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Автор: Grafiati
Опубліковано: 7 липня 2024

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Статті в журналах з теми "Public policy on autism":

1

Baker, Dana Lee. "Public Policy and the Shaping of Disability: Incidence Growth in Educational Autism." education policy analysis archives 12 (March 16, 2004): 11. http://dx.doi.org/10.14507/epaa.v12n11.2004.

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Autism has gained the attention of policy makers and public administrators in recent years. The surge in prevalence, in tandem with a growing social preference for community inclusion of individuals with disabilities, strains a variety of policy infrastructures. Autism and related disorders, which were first described in 1943, were originally thought to be extremely low incidence and usually coincident with mental retardation. In accordance with the disability policy paradigm of the era, public services for autism were provided predominantly in institutional settings. Since then, however, autism and related disorders have come to be understood as more common than was originally thought and more rarely associated with mental retardation. In this article, shift-share analysis is used to gain insight into how the growth in autism incidence is being differentially experienced and recorded within a single arena of policy across the United States. The challenges associated with a sudden growth in supply (that is the number of children with autism), while unique to autism in some respects, include aspects that are similar for other disabilities and in policy challenges in other arenas. Especially since the implementation of the Government Performance Results Act of 1996, there is increased pressure to create public policy infrastructures that are anchored by clearly cut categorical service delivery. If the categories themselves leave significant room for interpretation and their use actually has a shaping effect on the target population, then it is important to administration and policy evaluation to understand how the effect is playing out.
2

McCarthy, Jane, Eddie Chaplin, and Lisa Underwood. "An English perspective on policy for adults with autism." Advances in Autism 1, no. 2 (October 29, 2015): 61–65. http://dx.doi.org/10.1108/aia-08-2015-0011.

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Purpose – The purpose of this paper is to provide a summary of English policy and legislation which impacts on the health outcomes and social inclusion for adults with autism. Design/methodology/approach – A descriptive review of national policy for England was undertaken using key internet search engines such as Google. Findings – In spite of innovative legislation and policy relating to autism across England, there are still wide discrepancies in both service models and provision relating to autism. More work is required to communicate what autism services should look like along with greater awareness training for professionals working with adults with autism to ensure reasonable adjustments are occurring across public services. Originality/value – This paper outlines current key policy and legislation in England relating to autism.
3

Orchard, Vivienne. "Autisme, j’accuse! Life-writing, autism and politics in the work of Hugo Horiot." French Cultural Studies 30, no. 3 (July 30, 2019): 256–65. http://dx.doi.org/10.1177/0957155819861033.

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Autism has generated a great deal of controversy, culturally, intellectually and politically. The context for this in recent years in France is unusual and has been the site of strong antagonism. These debates are political in terms of policy implications and disagreements along political lines but also entail the politics of knowledge, and the question of who has the right to speak for whom. Competing groups – parents, ‘experts’ and autistic adults have different claims to validity as knowledge-bearers. This epistemological validity is vital in creating wider public understanding and determining policy directions. Autism life-writing is a new phenomenon in French and contributes to this set of debates. In order to illuminate this further, this article will offer an account of the first best-selling memoir by an autistic individual in France. The book, L’Empereur, c’est moi, is by Hugo Horiot, and was published in 2013, at the height of the ‘autism battle’ in the French public sphere.
4

Mellon, Hugh. "Charter Rights and Public Policy Choices: The Supreme Court and Public Finance." Constitutional Forum / Forum constitutionnel 15, no. 1, 2 & 3 (July 24, 2011): 2006. http://dx.doi.org/10.21991/c94h3h.

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Over the past two decades there have been numerous highly charged court cases involving claims that government program offerings and public spending fail to satisfy guarantees entrenched in the Canadian Charter of Rights and Freedoms.1 Calls for enhanced appeal mechanism in refugee determination,2 provincial health care coverage of hospital translation services for the deaf,3 equal leave provisions4 for both adoptive and birth parents, government coverage of autism treatment regimes,5 and access to health care provision rather than access to a waiting list6 all illustrate the intersection of the Charter with the allocation of the public purse.
5

van Kessel, Robin, Rok Hrzic, Katarzyna Czabanowska, Aurélie Baranger, Natasha Azzopardi-Muscat, Nefi Charambalous-Darden, Carol Brayne, Simon Baron-Cohen, and Andres Roman-Urrestarazu. "Autism and education—international policy in small EU states: policy mapping in Malta, Cyprus, Luxembourg and Slovenia." European Journal of Public Health 30, no. 6 (September 3, 2020): 1078–83. http://dx.doi.org/10.1093/eurpub/ckaa146.

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Abstract Background Special education provides an array of support that can advantageously meet special education needs (SEN) of children with autism. This report maps autism and SEN policies, and tension of international legislation in Malta, Cyprus, Luxembourg and Slovenia. Methods A policy path analysis was performed using a scoping review as fundamental methodological framework. Results Education for children with SEN developed from limited education towards segregation, and further to integration, and inclusion in mainstream education. International policy has greatly influenced the education systems under study. The rights to education and to have SEN addressed have been adopted in all countries. Inclusion is seen to be gradually incorporated by Malta, Cyprus and Luxembourg—closely following values of international documents through concise SEN policies. Slovenia’s education system remains segregated, indicating potential tension. Conclusions It appears that mainstream schools offer SEN services until no longer feasible for the child in the majority of investigated countries. Inclusion has become a guiding principle for most education systems under study. Finally, small states either commit to the implementation of inclusion or delay it and attempt to improve the education system for children with SEN in different ways.
6

Laffey, Mark, and Jutta Weldes. "US foreign policy, public memory, and autism: representing September 11 and May 4." Cambridge Review of International Affairs 17, no. 2 (July 2004): 355–75. http://dx.doi.org/10.1080/0955757042000245942.

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7

Вадюрова, Хелена, and Виктория Шмидт. "Personal Assistance to People with ASD in Czechia: Between Positive Discrimination and Ableism." Journal of Social Policy Studies 17, no. 4 (December 24, 2019): 629–42. http://dx.doi.org/10.17323/727-0634-2019-17-4-629-642.

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Contemporary politics concerning those with Autism Spectrum Disorder (ASD) revolves around a contest between the medical perspective of autism as a pathology in need of a cure and the autism acceptance perspective, which maintains that autism is a normal human variation. Neither of these extremes provides a sustainable solution to the dilemma of empowerment and care for the people with ASD. Even more, each of the extremes runs the risk of reproducing ableism, a cultural status quo that privileges an able-bodied 'norm' and re-establishes hierarchies of ability upon people with ASD. The call for personal assistance, a pillar of independent life for people with disabilities, reframes the policy of the individual approach for people with ASD by ensuring better continuity between assessment and intervention. The current Czech policy concerning people with disabilities remains aligned with the approach introduced in the late 1980s that divides people with disabilities into categories according to the degree of their dependence instead of refining the approach in line with needs assessment and individualizing interventions. How do different actors respond to the obvious lack of personal assistance to people with ASD? This article examines the impact of governmental bodies responsible for disability policy, the regional authorities and civil society actors on reproducing post-socialist path dependence on medicalised assessment, the centralised approach to funding, and the univocity with residential care. We apply the 'Assessing Personal Assistance Schemes', a multi-faceted set of criteria aimed at monitoring the right to independent life, for indicating options concerning sustainable switching to personal assistance.
8

Sherfinski, Melissa. "Challenges to goals of “Recovery”: A narrative analysis of neoliberal/ableist policy effects on two mothers of young children with autism." Journal of Early Childhood Research 16, no. 3 (May 22, 2018): 276–90. http://dx.doi.org/10.1177/1476718x18775767.

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This narrative inquiry shows the barriers and possibilities that the current US education context poses for two mothers of pre-kindergarten sons with autism. Specifically, this work is contextualized within the growing universal pre-kindergarten reform which provides a mixed delivery (public and private) implementation. Presented with the context of choice among school sites and the expectation of mothers to provide energy for the reform through their involvement in the universal pre-kindergarten “machine,” mothers of children with autism experienced unique challenges. An in-depth Bakhtinian analysis examining the mothers’ uses of heteroglossia and polyphony shows the complexities of how they presented an oscillating “double-consciousness,” working between machine expectations and narratives of “recovery,” meaning desiring normalization in line with the expectations of early childhood experts, children, and local policies. Neither the machine metaphor nor the narrative of recovery was sufficient to negotiate the challenges of education for the families, and mothers used strategies of recycling, resisting, and re-appropriating discourses to navigate. While universal pre-kindergarten was effective in improving the academic performance of children with mild autism, it did not always support the goals of inclusive and democratic education. Therefore, mothers began to question their choice of public school context and began to consider private universal pre-kindergarten sites, even though this might jeopardize the Individualized Education Plans that they worried their children needed, particularly for social purposes. The implications address both the mechanism for shifts from public to private choice in the current US education context, and the need for a reparative project that critically addresses relationships between homes and schools.
9

Taneja, Azzz, S. Sharma, N. Bhatt, and MK Bhutani. "Economic Burden of Autism and Autism-Related Spectrum Disorders (Asd) In EU5 Countries." Value in Health 20, no. 9 (October 2017): A712. http://dx.doi.org/10.1016/j.jval.2017.08.1885.

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10

Masi, Anne, Syeda Ishra Azim, Feroza Khan, Lisa Karlov, and Valsamma Eapen. "Dissemination of Early Intervention Program for Preschool Children on the Autism Spectrum into Community Settings: An Evaluation." International Journal of Environmental Research and Public Health 19, no. 5 (February 23, 2022): 2555. http://dx.doi.org/10.3390/ijerph19052555.

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We aimed to address a policy-relevant research area with high priority, namely disseminating early intervention for children on the autism spectrum into mainstream community settings. The study cohort comprised 47 children with a diagnosis of Autism Spectrum Disorder (ASD) receiving the Early Start Denver Model (ESDM) intervention: 23 children attending an Autism Specific Early Learning and Care Centre (ASELCC) and 24 children attending a mainstream preschool setting. Group comparisons revealed that the overall response to intervention was in the majority of cases not significantly different between settings. One difference was found in that children in the mainstream preschool setting showed a significant reduction in externalising behaviours compared to the children attending the autism-specific preschool. Intervention duration was found to influence outcomes with a one-month increase in duration found to improve expressive language skills. While the results need to be interpreted with caution due to the small sample size, these findings suggest that early intervention can be successfully delivered in both autism-specific and mainstream settings. However, those families needing additional parent support may be better served by a specialised service.
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Статті в журналах Дисертації Книги

Дисертації з теми "Public policy on autism":

1

Johnson, Taylon M. "Autism Policy: State and National Legislation Analysis." Scholarship @ Claremont, 2012. http://scholarship.claremont.edu/cmc_theses/278.

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This research thesis is a policy assessment of the factors that contribute to the current status in treating autism. The policy assessment begins with a description of the key components that that influence policy outcomes in regard to autism. After developing a policy model that outlines various components of issues and approaches to the policy has on Autism, the paper examines several issues with regard to Autism policy, including the lack of insurance coverage, state legislation, waiting lists, evidence vs. non evidence treatments, and the high price for treatments. The paper also examines current approaches to Autism, and potential solutions. Solution analysis on current policy alternatives is provided and, this suggests that increasing knowledge and awareness of the affects of autism on society needs further attention along with proper funding for early treatment.
2

Scalli, Leanne Elizabeth. "Accessibility to Health Care Services for Children with Autism Spectrum Disorders." ScholarWorks, 2018. https://scholarworks.waldenu.edu/dissertations/5522.

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The study was an investigation into health care accessibility for children with autism spectrum disorder (ASD) following the transition to a private Medicaid system in the state of Florida. Pilot studies of managed Medicaid programs focused on costs and did not address how changes to the system impacted access to health care services. There were limited studies designed to understand how a change in the system, such as a privatization, would affect vulnerable populations such as young children with ASD. Additional concerns existed for children that were historically underserved by the health care system such as African American and Latino children because they typically had more difficulty accessing health care services in general. A modified version of the Consumer Assessment of Health Providers and System (CAHPS) Survey 4.0 was used in this study. The modifications to the survey included reducing the number of survey questions and adding open-ended questions. 86 participants were recruited from local organizations that supported children and families affected by ASD. Findings generated using nonparametric tests such as the Mann-Whitney U test and chi-square revealed delays in accessing therapeutic health care services that were pervasive in both private and public insurance groups. Furthermore, the qualitative analysis indicated that participants did not view their difficulties in accessing therapeutic health care services as related to race or ethnicity. Limitations of the study included the modifications made to the survey instrument. Implications for positive social change include a better understanding of the scope of the issue of therapeutic health care access for those advocating on behalf of children and families affected by autism.
3

Klein, Antonia. "The Environmental Health of the Autistic Student in the Public School Classroom." ScholarWorks, 2015. https://scholarworks.waldenu.edu/dissertations/1409.

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Professionals have found autism to be an enigmatic condition. While necessary biomedical research continues, a gap exists in the inclusion of parental opinions, knowledge, and experiences in educational planning for their autistic children. The purpose of this mixed methods study was to identify the factors that the parents felt contributed to the academic success of their autistic child in the public school classroom environment and ways in which their ideas might contribute to overall educational planning and classroom design in structure, curriculum development, and intervention strategies which might lead to reduced stress. Parental input was explored through semistructured personal interviews with 8 parents and the administration of a 32-question survey questionnaire to 109 parents of autistic children. A content analysis was done on the qualitative data, and an analysis of quantitative data reported the frequency and percentages of the participant responses. Findings from the data revealed multiple areas in need of improved educational services that include the classroom organization, educator training and knowledge about the autistic condition, educator support, effective communication, and behavioral management of the symptoms of autism. The social change impact from the study's findings have the potential to inform educational planning, foster collaboration, increase educator participation in autism training methods, secure necessary funding for evidence based autism educational programs, promote further research, and provide awareness of existing empirically based approaches designed to meet the needs of a vulnerable population.
4

Mai, Angela Marie. "Beliefs Influencing Hiring Agents' Selection of Qualified Autistic Candidates." ScholarWorks, 2018. https://scholarworks.waldenu.edu/dissertations/5022.

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Qualified and capable working age autistics face an 83% unemployment rate, thus, straining the economy and deteriorating their quality of life. This research examines potential contributing factors by inquiring what hiring agents' beliefs may be influencing their selection of qualified autistic candidates. This quantitatively weighted, concurrent, mixed methods (QUAN > qual), multiple linear regression study measured the influence of hiring agents' control, normative, and behavioral beliefs upon their selection of qualified autistic candidates. Through the theoretical lens of Ajzen's theory of planned behavior, conceptually crystallized with other validated theories; a representative, simple, random probability sample of hiring agents throughout the contiguous United States (n = 212) participated in this study. This model statistically significantly identified hiring agents' beliefs influencing their selection of qualified autistic candidates to fill open positions (F(45, 73) = 36.067, p < .001, adj. R2 = .930). The inclusion of autistics in organizational diversity policies and practices (B = 0.266), overcoming dependability stereotypes (B = 0.195), and the fear of embarrassment (B = 0.187) were the most significant (p < .001) quantitative influencers. Participants (30%) qualitatively conveyed a desire for comprehensive autistic education. Future study should explore public policy aimed at organizational education relative to qualified autistic candidates. This increased scientific understanding could help develop expanded public policy leading to decreased unemployment rates for autistics, increased organizational performance for all business types, and improved socioeconomic stability across the nation resulting from increased economic contributions and decreased social service expenditures.
5

Silva, Raimunda Maria Moreira da. "Para além do discurso oficial das políticas públicas: possibilidade de (re)pensar o paradigma de inclusão escolar para o educando com transtorno do espectro autista na cidade de Manaus." Universidade Federal do Amazonas, 2013. http://tede.ufam.edu.br/handle/tede/3187.

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Made available in DSpace on 2015-04-22T21:55:44Z (GMT). No. of bitstreams: 1 raimunda maria.pdf: 857509 bytes, checksum: b752b0f7e21741b3125bd1750c58e6fe (MD5) Previous issue date: 2013-08-16
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This paper aims to rethink the paradigm of inclusive education for learners with Autism Spectrum Disorder in Manaus beyond the official discourse of public policy. It is based on a qualitative study of bibliographical focusing on documentary analysis. The course of this research begins with historical background of special education in Brazil, according to the description of the etiology, conceptualization, behavioral characteristics and incidence of students with Autism Spectrum Disorder ( ASD ), in classes of regular schools in the city of Manaus, in the period from 2011 to 2013, and finally, it is the analysis of the National Policy on Special Education in the Perspective of Inclusive Education - PNEE-PEI/2008 and Policy of the city of Manaus watching your points and counterpoints with a view to inclusion the student with ASD. The analysis of the documents were made from the perspective of historical and dialectical materialism, whose documents reviewed include educational law, LDB No. 4.024/1961, Law No. 5.692/1971 and 9.394/1996 LDB paragraph, relating to special education, the Education Policy special - PNEE/1994 , which shows the integration process, the National Policy on special Education in the Perspective of inclusive Education - PNEE-PEI/2008, bringing the proposal of inclusive education, and statistical data referring to autistic students enrolled in regular teaching Manaus. The research result shows that advances in relation to special education happened gradually, changing the status of segregation of disabled people to the integration process and subsequently for inclusion. The new LDB 9.394/1996 devoted an entire chapter to special education, establishing guidelines and guiding services and resources in this type of education. The policy of the Ministry of Education Inclusion 2008 guarantees the right of everyone to education, access, permanence and continuity in regular education, the Educational Service Specialist - ESA, among other services. However, against the policy comes PNEE-PEI/2008 the city of Manaus, with the vision care clinic for people with Autistic Spectrum Disorder, considering them unable, without the possibility of development, with no prospect of inclusion and participation in the life social, seeing the pathology, the disease and not the potential of the autistic person, stigmatizing him on account of disability. Thus, it is expected that this work can contribute to reflections on the public policies implemented in the city of Manaus in care for people with Special Educational Needs - SEN, in particular to students with Autism Spectrum Disorder, seeing the development of their potential, their inclusion in the educational process and their full participation in social life.
Este trabalho tem como objetivo repensar o paradigma da inclusão escolar para o educando com Transtorno do Espectro Autista no município de Manaus para além do discurso oficial das políticas públicas. Fundamenta-se em uma pesquisa qualitativa, de natureza bibliográfica com foco na análise documental. O percurso desta pesquisa inicia-se com contextualização histórica da educação especial no Brasil, seguindo com a descrição da etiologia, conceituação, características comportamentais e incidência de alunos com Transtorno do Espectro Autista (TEA), incluídos nas classes comuns do ensino regular na cidade de Manaus, no período de 2011 a 2013; por fim, faz-se a análise da Política Nacional da Educação Especial na Perspectiva da Educação Inclusiva PNEE-PEI/2008 e da Política do município de Manaus observando seus pontos e contrapontos com vistas à inclusão do educando com TEA. As análises dos documentos foram realizadas a partir da perspectiva do materialismo histórico dialético, cujos documentos analisados incluem a legislação educacional, LDB nº 4.024/1961, Lei nº 5.692/1971 e LDB nº 9.394/1996, referente à educação especial; a Política da Educação Especial PNEE/1994, que evidencia o processo de integração; a Política Nacional da Educação Especial na Perspectiva da Educação Inclusiva PNEE-PEI/2008, trazendo a proposta da educação inclusiva, e os dados estatísticos referentes aos alunos autistas matriculados na rede regular de ensino de Manaus. O resultado da pesquisa mostra que os avanços em relação à educação especial aconteceram gradativamente, alterando o status de segregação das pessoas deficientes para o processo de integração e posteriormente para a inclusão. A nova LDB 9.394/1996 dedicou um capítulo inteiro para a educação especial, instituindo as diretrizes e orientando serviços e recursos nessa modalidade de ensino. A política de Inclusão do Ministério da Educação de 2008 garante o direito de todos à educação, o acesso, permanência e continuidade no ensino regular; o Atendimento Educacional Especializado AEE, entre outros serviços. Contudo, na contramão da PNEE-PEI/2008 vem a política do município de Manaus, com a visão clínica de atendimento às pessoas com Transtorno do Espectro Autista, considerando-os incapazes, sem possibilidade de desenvolvimento, sem perspectiva de inclusão e participação na vida social, vendo a patologia, a doença e não a potencialidade da pessoa autista, estigmatizando-o por conta da deficiência. Desse modo, espera-se que este trabalho possa contribuir para reflexões sobre as políticas públicas implementadas no município de Manaus em atenção às pessoas com Necessidades Educacionais Especiais NEE, em particular, ao educandos com Transtorno do Espectro Autista, vislumbrando o desenvolvimento de suas potencialidades, sua inclusão no processo educacional e sua plena participação na vida social.
6

Taisne, Mylène. "Assistant numérique et trouble du spectre de l'autisme (TSA). Évaluation de Ben le Koala se brosse les dents auprès d'enfants avec et sans TSA dans le cadre familial." Electronic Thesis or Diss., Valenciennes, Université Polytechnique Hauts-de-France, 2024. http://www.theses.fr/2024UPHF0001.

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Au-delà des chiffres et des définitions, l'histoire de la reconnaissance de l'autisme ou troubles du spectre de l'autisme (TSA) est longue et empreinte de souffrance. Sous la pression des familles, le dépistage et l'accompagnement des enfants avec TSA sont devenus une préoccupation des politiques publiques. Le développement des nouvelles technologies du numérique a favorisé l'émergence d'aides techniques innovantes, en soutien aux apprentissages et à la socialisation. Dans ce contexte, une association lilloise, "Signes de sens", a produit en 2013 une application numérique baptisée "Ben le Koala". Facilement accessible, elle s'est diversifiée au fil du temps pour offrir aux enfants, sur le principe du mime, des tutoriels ou capsules liés à la vie quotidienne, au sport et aux loisirs. A partir d'une méthodologie de travail fondée sur la sociologie des portraits, la thèse vise à faire l'évaluation de cet assistant numérique dans le scénario "Ben le Koala se brosse les dents". Douze familles et plus précisément douze mamans, ont accepté de faire partie de l'étude et de nous livrer, sur la base d'entretiens semi-directifs, leur propre expérience et celle de leurs enfants avec Ben le Koala. Les verbatims témoignent de la progression incontestable des enfants quant au brossage des dents, qui est le premier effet recherché. L'évaluation révèle par ailleurs, pour les enfants avec TSA, les effets collatéraux très positifs de l'application qui ont trait à l'autonomie, au développement personnel et au bien-être. Ainsi, les bénéfices d'une telle application dépassent très largement le simple apprentissage de l'hygiène et améliore la vie des enfants et de leurs familles en profondeur
Beyond the figures and definitions, the history of recognition of autism or autism spectrum disorders (ASD) is long and marked by suffering. Under pressure from families, screening and support for children with ASD has become a public policy concern. The development of new digital technologies has encouraged the emergence of innovative technical aids to support learning and socialisation. Against this backdrop, in 2013 a Lille-based association, Signes de sens, produced a digital application called Ben le Koala. Easily accessible, it has diversified over time to offer children mime-based tutorials or capsules on everyday life, sport and leisure activities. Using a working methodology based on the sociology of portraits, the thesis aims to evaluate this digital assistant in the "Ben the Koala brushes his teeth" scenario. Twelve families, and more specifically twelve mothers, agreed to take part in the study and tell us, through semi-directive interviews, about their own experience and that of their children with Ben the Koala. The verbatims show that the children have made undeniable progress in brushing their teeth, which is the primary effect sought. The evaluation also reveals the very positive collateral effects of the application for children with ASD in terms of autonomy, personal development and well-being. So the benefits of such an application go far beyond simply learning about hygiene, and improve the lives of children and their families in depth
7

Mongy, Aymeric. "L'autisme, un handicap contre la protection sociale : les usages réformateurs d'un problème-outil." Thesis, Université de Lille (2018-2021), 2021. http://www.theses.fr/2021LILUD020.

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Depuis plus de quarante ans, la littérature en science politique s’intéresse aux processus de bureaucratisation conduisant à mobiliser dans la fabrique de l’action publique des savoirs et techniques issus du New Public Management (NPM) (Bezes et al., 2011), jusqu’à parfois dresser le constat englobant d’une « bureaucratisation néolibérale » du monde (Hibou, 2013). Ces conceptions mécanistes du transfert de techniques de gouvernement entre secteur public et privé renseignent finalement peu les conditions de leur encastrement social, c’est-à-dire les opérations politiques, symboliques et techniques par lesquelles des groupes sociaux légitiment le recours au NPM ; l’action de sa base sociale en somme. A partir d’une analyse du cas de la construction du problème de l’autisme en France, la présente thèse entend porter sur ce point un éclairage en mettant au jour la manière dont les mobilisations des mouvements associatifs parentaux de l’autisme ont contribué à motiver l’emploi par l’État de techniques et de formats organisationnels issus du management de la santé, renforçant par-là les capacités administratives de contrôle sur l’organisation et les contenus de l’offre de soins psychiatrique et médicosociale. En effet, à partir des années 2010 les « stratégies scandaleuses » (Offerlé, 1998) des organisations parentales conduisent à publiquement mettre à l’index l’archaïsme de modèles de prise en charge ségrégués car trop peu tournés vers l’école, inefficace car trop peu informés des avancées des neurosciences. Mêlant droit à l’inclusion sociale des personnes et accès aux soins dans le secteur libéral, les revendications de ces groupes d’intérêts font se croiser la « trajectoire de réformes » (Bezes, Palier, 2018) de l’autisme et celle d’un autre problème : celui du mode de gouvernement des secteurs du handicap et de la santé mentale. Ce deuxième enjeu est marqué par un retour en force de l’État qui, depuis le début des années 1990, recourt de plus en plus à différentes technologies – agences, appels d’offre, contrats, plateformes, recommandations de bonnes pratiques, forfaits, etc. – en vue de construire un « système » intégré de santé. Leur emploi est tendu vers l’accroissement du rendement des structures de soins sanitaires et des établissements médicosociaux, invités à se spécialiser dans des prises en charge « lourdes » et « complexes » pour renvoyer une partie de leurs publics vers le droit commun. Qu’on l’appelle « virage ambulatoire » ou « tournant inclusif », ce transfert des activités de prise en charge vers le « milieu ordinaire » – rarement sinon jamais interrogé en tant que foyer d’oppression ou facteur d’inégalités – compte pour beaucoup dans la sollicitation de la médecine libérale, censée absorber les demandes de prestations dont sont ainsi déchargées les milieux spécialisés. Sur la base de matériaux divers – sources écrites, entretiens observations et enquête ethnographique conduite en particulier dans le département du Pas-de-Calais – notre recherche montre comment, en cherchant à conformer le processus de production des soins à leurs conceptions des « bonnes pratiques », ces associations ont nourri ce programme. Elle rend également compte de comment la rationalisation logistique des soins induit un délitement des « propriétés sociales » (Castel, 1999) distribuées par les secteurs qu’elle travaille, ce au détriment de leurs publics socialement les plus précaires
For more than forty years, the political science literature has been interested in the processes of bureaucratization leading to the mobilization of knowledge and techniques from New Public Management (NPM) in the production of public action (Bezes et al., 2011), sometimes to the point of drawing up an all-encompassing observation of a "neoliberal bureaucratization" of the world (Hibou, 2013). Mechanistic conceptions of the transfer of government techniques between the public and private sectors ultimately provide little information about the conditions of their social embedding, i.e. the political, symbolic and technical operations through which social groups legitimize the use of the NPM; the action of its social base in short. From an analysis of the case of the construction of the autism problem in France, the present thesis intends to shed light on this point by bringing to light the way in which the mobilizations of the parent associations of autism contributed to motivate the use by the State of techniques and organizational formats stemming from health management, thereby reinforcing the administrative capacities of control over the organization and the contents of the psychiatric and medicosocial care offer. In fact, from the 2010s onwards, the "scandalous strategies" (Offerlé, 1998) of parent organizations have led to the archaic nature of segregated care models being publicly criticized because they are not sufficiently oriented towards school, and ineffective because they are not sufficiently informed about advances in neuroscience. Mixing the right to social inclusion of individuals and access to care in the liberal sector, the claims of these interest groups make the "trajectory of reforms" (Bezes, Palier, 2018) of autism intersect with that of another issue: that of the mode of government of the disability and mental health sectors. This second issue is marked by a return in force of the State which, since the beginning of the 1990s, has increasingly resorted to different technologies - agencies, calls for tender, contracts, platforms, recommendations of good practices, packages, etc. The use of these technologies is geared towards the development of an integrated health care "system". Their use is geared towards increasing the efficiency of health care structures and medico-social establishments, which are invited to specialize in "heavy" and "complex" care in order to send some of their patients back to the mainstream. Whether it is called the "ambulatory shift" or the "inclusive shift", this transfer of care activities to the "ordinary environment" - rarely, if ever, questioned as a source of oppression or a factor of inequality - accounts for a large part of the demand on private medicine, which is supposed to absorb the requests for services that are thus discharged from the specialized environments. On the basis of various materials - written sources, interviews, observations and an ethnographic survey conducted in particular in the Pas-de-Calais department - our research shows how, by seeking to conform the process of producing care to their conception of "good practice", these associations have fed this program. It also shows how the logistical rationalization of care leads to a disintegration of the "social properties" (Castel, 1999) distributed by the sectors it works in, to the detriment of their most socially precarious publics
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Perry, Christopher. "Strategic Plan for Autism." Digital Archive @ GSU, 2009. http://digitalarchive.gsu.edu/iph_theses/112.

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The purpose of the project was to develop a comprehensive strategic plan for addressing the problem of autism in Atlanta and the State of Georgia. The project was carried out under the Supervision of Children’s Healthcare of Atlanta personnel, specifically Lydia Gonzalez-Ryan. The protocol included using population data, historic utilization data, autism prevalence rates, benchmarking data on other autism centers and efforts ongoing in other states. This data was not statistically analyzed but was collected and summarized qualitatively and was, and will continue to be used to inform the strategic recommendations going forward. This project involved no human subjects and did not require any IRB intervention at Children’s Healthcare of Atlanta as it was an operationally focused project.
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Mentoor, John W. "Public participation in public policy making." Thesis, Stellenbosch : University of Stellenbosch, 1995. http://hdl.handle.net/10019.1/855.

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Thesis (MA (Public and Development Management))-- University of Stellenbosch, 1995.
ENGLISH ABSTRACT: This study assesses public participation in public policy making by way of a case study approach. The Regional Education Boards and the Regional Services Council form part of the case study evaluation of public participation in public policy making. In essence, a structural-functionalist analysis of the two cases is given. From this approach this study points out what the activities of the two institutions are, what services they render and the policy measures with which they are engaged in. This is imperative because by way of an analysis, the extent to which the public is allowed to participate in the policy making process, with reference to the two institutions, is determined. Before the assessment of the two cases a conceptual framework pertaining to public participation in public policy making is given. In this conceptual framework the different typologies, policy levels, participants and the modes of public participation in public policy making are highlighted. In earlier years public participation in public policy making was simply seen as being confined to voting turn-out. As the study of public policy making expanded the operational definition of public participation was broaden to include activities such as campaigning, handing petitions to members of parliament, attending political meetings, writing letters to communication media, written representations submitted to a minister and protest action. Thus, as the study of public policy making expanded it became clear that separate participation modes exist because the activities which emanates from the implementation of public policy differ systematically in the requirements it place on the citizens. What is significant of this thesis is that it proposed a nine-point criteriological model for effective participation in public policy making. Each criterium is analyzed in depth and it is indicated how important it is for effective public participation in public policy making.
AFRIKAANSE OPSOMMING: Hierdie studie bepaal publieke deelname in openbare beleidmaking by wyse van 'n setwerklike benadering. Die Onderwysstreekrade en die Streekdiensterade vorm deel van hierdie evaluering van publieke deelname in openbare beleidmaking. Vir hierdie benadering word 'n strukturieel - funksionele uiteensetting van die werkswyse en beleidsmaatreëls van die twee instansies gegee. Hierdie uiteensetting is belangrik omrede, deur middel van 'n analise, daar bepaal word tot watter mate die publiek deel uitmaak van die beleidmakingsproses ten opsigte van die twee instansies. Voor die uiteensetting van die setwerklike benadering word 'n raamwerk met betrekking tot die konsepte wat van toepassing is op publieke deelname in openbare beleidmaking, gegee. In hierdie raamwerk word die verskillende tipologieë, beleidsvlakke, deelnemers en die verskillende maniere van publieke deelname in die openbare beleidmakingsproses, uitgebeeld. In vroeër jare was publieke deelname in openbare beleid gesien as bloot deelname aan verkiesings. Namate die studie van openbare beleid uitgebrei het, het die operasionele definisie van publieke deelname groter geword om aktiwiteite soos petisies aan parlementslede, bywoning van politieke vergaderings, briewe aan kommunikasiemedia, geskrewe voorleggings aan ministers en protesaksies in te sluit. Dit het derhalwe duidelik geword dat daar verskillende maniere is betreffende publieke deelname omrede die aktiwiteite wat vloei uit die implementering van openbare beleid in verskillende gemeenskappe, verskillend is. Wat die studie merkwaardig maak is dat dit 'n nege-punt kriteriologiese model vir effektiewe publieke deelname in die openbare beleidmakingsproses voorstel. Elke kriteria word in diepte geanaliseer en dit word uitgewys hoe belangrik dit vir effektiewe publieke deelname in die openbare beleidmakingsproses is.
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Winter, Satine Hyacinth. "Navigating the battleground: autism policy and human rights for children with autism spectrum disorders in Australia." Thesis, Griffith University, 2017. https://doi.org/10.25904/1912/3455.

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The purpose of this study was to explore the Helping Children With Autism (HCWA) package, which is a public website on Australian autism policy with a particular consideration of how the HCWA package positioned parents when they engaged with this federal government initiative. The study also aimed to examine how and to what extent the HCWA package aligned with international human rights standards using the Convention on the Rights of Persons with Disabilities. This study was underpinned by a theoretical framework that combined the sociology of Zygmunt Bauman and the models of disability (charity, medical, social, human rights) with human rights. The nature and complexity of autism spectrum disorder (ASD) presents challenges to parents raising their child with ASD, which often results in uncertainty about their rights and responsibilities alongside those of the government, and State. In 2008 the Australian Government attempted to solve the policy problem of autism and implemented the HCWA package in response to parents’ pleas for help in raising their child with ASD (Palm Consulting Group, 2005, June 20). The HCWA package was the first autism specific policy in Australia and aimed to provide funding, support, and services for children with ASD and their families (Minister for Families Community Services and Indigenous Affairs, 2007). The HCWA package is currently being superseded by the rollout of the National Disability Insurance Scheme (NDIS) across Australia and hence the opportunity to benefit from a close exploration of the HCWA may contribute to this process. Limited research evaluating the effectiveness of the HCWA package has been conducted. No study has evaluated the parent perspective on the HCWA initiative as a policy and there were insufficient studies of parents’ reactions to the HCWA package (Prior, Roberts, Rodger, & Williams, 2011; Wicks & O'Reilly, 2013; K. D. Wilson, 2013; K. D. Wilson & Watson, 2011). Moreover, there is limited research on disability policy compliance with human rights standards, especially in Australia. Research on the HCWA package is important because it has the potential to identify areas of strength and weakness from a consumer and human rights perspective and helps inform future government policies and initiatives such as the NDIS and to improve the quality of life for children with ASD. A qualitative approach of Multimodal Critical Discourse Analysis (MCDA) was used to examine the HCWA package across three landing pages from two government departments: FaHCSIA and DEEWR. In 2013 data were selected from the HCWA package over several months during the implementation of the HCWA package across Australia. The researcher, as a parent of a child with ASD, selected and analysed the data to explore how the HCWA package positioned parents when they engaged with this federal government initiative. Kress and van Leeuwen’s (2006) grammar of visual design provided a framework to analyse online web content using the researcher as viewer of the policy. The e-government autism policy was further analysed in terms of web accessibility and compliance with regulatory guidelines for federal government department websites. The findings from this study reveal that the Australian Government positioned parents of children with ASD as consumers of the product of autism policy, in this case the HCWA package. This positioning was framed within a discourse of charity and medical models of disability that viewed autism as a problem of the individual and provided charity through funding, supports, and services (e.g. medical and education professionals). The charity and medical models of disability were entwined within a broader discourse of power where the Australian Government had power, position, and authority as experts over parents of children with ASD. This unequal distribution of power added to the tensions within the autism community and the cycle of blame between parents and professionals. Good parenting - as it was constituted by the HCWA package - involved being informed and educated and willing to follow the advice of the Australian Government. Good parents furthermore complied with traditional western gender roles where women were viewed as the primary caregivers and nurturers of children with ASD, particularly in the early years. The Australian Government also positioned parents as neoliberal citizens who were responsible for the success of raising their child with ASD and the outcomes of that child in life and within society. Lastly, the study found that the HCWA package did not align with all general principles of Article 3, Convention on the Rights of Persons with Disabilities and was thus regarded as indicative of a violation of human rights for children with ASD in Australia. Based on these findings, the study presents recommendations concerning the parent-as-consumer role in autism policy in meeting the best interests and needs of children with ASD and their families, which also have relevance to the current transition to the NDIS in Australia. An eight-step model is proposed to improve parent information and health literacy on ASD, which is important for improving parent decision-making for their child with ASD. In particular, a newly framed human rights model of disability is recommended as a means of moving forward from the social model of disability in critical disability studies and for advancing the rights of children with ASD in theory and in practice.
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Книги з теми "Public policy on autism":

1

North Carolina. General Assembly. Joint Study Committee on Autism Spectrum Disorder and Public Safety. Joint Study Committee on Autism Spectrum Disorder and Public Safety: Report to the 2010 regular session of the 2009 General Assembly. Raleigh, N.C: Joint Study Committee on Autism Spectrum Disorder and Public Safety, 2010.

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Safety, North Carolina General Assembly Joint Study Committee on Autism Spectrum Disorder and Public. Joint Study Committee on Autism Spectrum Disorder and Public Safety: Report to the 2008 session of the 2007 General Assembly of North Carolina. [Raleigh, N.C: Joint Study Committee on Autism Spectrum Disorder and Public Safety, 2008.

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North Carolina. General Assembly. Joint Study Committee on Autism Spectrum Disorder, Law Enforcement, Public Safety, and First Responders. Joint Study Committee on Autism Spectrum Disorder, Law Enforcement, Public Safety, and First Responders: Report to the 2007 General Assembly of North Carolina. Raleigh, N.C: Joint Study Committee on Autism Spectrum Disorder, Law Enforcement, Public Safety, and First Responders, 2006.

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North Carolina. General Assembly. Joint Study Committee on Autism Spectrum Disorder and Public Safety. Joint Study Committee on Autism Spectrum Disorder and Public Safety: Report to the 2008 session of the 2007 General Assembly of North Carolina. [Raleigh, N.C: Joint Study Committee on Autism Spectrum Disorder and Public Safety, 2008.

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5

North Carolina. General Assembly. Joint Study Committee on Autism Spectrum Disorder and Public Safety. Joint Study Committee on Autism Spectrum Disorder and Public Safety: Report to the 2008 session of the 2007 General Assembly of North Carolina. [Raleigh, N.C: Joint Study Committee on Autism Spectrum Disorder and Public Safety, 2008.

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6

Michael, Fitzpatrick. MMR and autism: What parents need to know. London: Routledge, 2004.

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7

Hupe, Peter, and Michael Hill. Public Policy. 1 Oliver's Yard, 55 City Road, London EC1Y 1SP United Kingdom: SAGE Publications Ltd, 2012. http://dx.doi.org/10.4135/9781446263099.

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Knill, Christoph, and Jale Tosun. Public Policy. London: Macmillan Education UK, 2012. http://dx.doi.org/10.1007/978-1-137-00800-8.

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Simon, Christopher A. Public Policy. Edited by Christopher A. Simon. Third Edition. | New York : Routledge, 2017. | Revised edition of the author’s Public policy, c2010.: Routledge, 2017. http://dx.doi.org/10.4324/9781315474458.

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Jan-Erik, Lane, ed. Public policy. London: Sage, 1990.

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Частини книг з теми "Public policy on autism":

1

Gallagher, James J. "Public Policy and Its Impact on Children with Autism." In Diagnosis and Assessment in Autism, 37–48. Boston, MA: Springer US, 1988. http://dx.doi.org/10.1007/978-1-4899-0792-9_3.

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2

Feinstein, Adam. "Public service jobs." In Autism Works, 106–15. 1 Edition. | New York : Routledge, 2018. |: Routledge, 2018. http://dx.doi.org/10.4324/9781351252348-8.

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Knill, Christoph, and Jale Tosun. "Policy Change and Policy Convergence." In Public Policy, 250–79. London: Macmillan Education UK, 2012. http://dx.doi.org/10.1007/978-1-137-00800-8_11.

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Savage, Ian. "Public Policy." In The Economics of Railroad Safety, 21–28. Boston, MA: Springer US, 1998. http://dx.doi.org/10.1007/978-1-4615-5571-1_3.

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Outhwaite, R. B. "Public Policy." In Dearth, Public Policy and Social Disturbance in England, 1550–1800, 35–44. London: Palgrave Macmillan UK, 1991. http://dx.doi.org/10.1007/978-1-349-11548-8_3.

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Levesque, Roger J. R. "Public Policy." In Encyclopedia of Adolescence, 2259–60. New York, NY: Springer New York, 2011. http://dx.doi.org/10.1007/978-1-4419-1695-2_658.

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Murphy, Peter. "Public Policy." In COVID-19, 39–83. Singapore: Springer Singapore, 2020. http://dx.doi.org/10.1007/978-981-15-7514-3_2.

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Reisman, David. "Public Policy." In Thomas Robert Malthus, 77–96. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-030-01956-3_4.

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Bertram, Tony, and Chris Pascal. "Public Policy." In Early Childhood Policies and Systems in Eight Countries, 21–42. Cham: Springer International Publishing, 2016. http://dx.doi.org/10.1007/978-3-319-39847-1_4.

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Hughes, Owen E. "Public Policy." In Public Management and Administration, 103–22. London: Macmillan Education UK, 2012. http://dx.doi.org/10.1007/978-1-137-00305-8_5.

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Тези доповідей конференцій з теми "Public policy on autism":

1

Kutik, Jan. "PUBLIC SECTOR, PUBLIC POLICY AND PUBLIC ADMINISTRATION." In SGEM 2014 Scientific SubConference on POLITICAL SCIENCES, LAW, FINANCE, ECONOMICS AND TOURISM. Stef92 Technology, 2014. http://dx.doi.org/10.5593/sgemsocial2014/b23/s7.055.

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Kahn, Sabzali Musa, Zahir Ahmad, Maslinor Ismai, Azizah Hamzah, and Nik Nairan Abdullah. "ART THERAPY FOR PEOPLE WITH AUTISM." In International Conference on Public Health. Masters Program in Public Health, Sebelas Maret University, 2017. http://dx.doi.org/10.26911/theicph.2017.043.

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Sharon Qi, Seung Jun Lee, and Tianqin Shi. "Insurance policy reformation for autism treatment coverage." In 2017 IEEE Technology & Engineering Management Conference (TEMSCON). IEEE, 2017. http://dx.doi.org/10.1109/temscon.2017.7998393.

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Stetsyunich, Yulia, Yulia Busheneva, and Andrey Zaytsev. "Framing public financial policy." In SPBPU IDE '19: International Scientific Conference on Innovations in Digital Economy 2019. New York, NY, USA: ACM, 2019. http://dx.doi.org/10.1145/3372177.3373289.

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Frankel, E. "Transportation and public policy." In Proceedings. The 7th International IEEE Conference on Intelligent Transportation Systems. IEEE, 2004. http://dx.doi.org/10.1109/itsc.2004.1398990.

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Chen, Zhonghao. "The Clinicopathologic Analysis of Autism." In 2020 International Conference on Public Health and Data Science (ICPHDS). IEEE, 2020. http://dx.doi.org/10.1109/icphds51617.2020.00068.

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Solo, Ashu M. G. "An Overview of the New Interdisciplinary Fields of Public Policy Engineering and Computational Public Policy for the Next Frontier in Public Policy." In 2017 International Conference on Computational Science and Computational Intelligence (CSCI). IEEE, 2017. http://dx.doi.org/10.1109/csci.2017.318.

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Bederson, Benjamin B., Jonathan Lazar, Jeff Johnson, Harry Hochheiser, and Clare-Marie Karat. "Workshop on SIGCHI public policy." In CHI '06 extended abstracts. New York, New York, USA: ACM Press, 2006. http://dx.doi.org/10.1145/1125451.1125755.

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Morozova, Elena. "NETWORK PUBLIC POLICY: SOCIOCULTURAL DIMENSION." In 4th International Multidisciplinary Scientific Conference on Social Sciences and Arts SGEM2017. Stef92 Technology, 2017. http://dx.doi.org/10.5593/sgemsocial2017/12/s01.015.

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Thomas, Vanessa, Christian Remy, Mike Hazas, and Oliver Bates. "HCI and Environmental Public Policy." In CHI '17: CHI Conference on Human Factors in Computing Systems. New York, NY, USA: ACM, 2017. http://dx.doi.org/10.1145/3025453.3025579.

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Звіти організацій з теми "Public policy on autism":

1

Roux, Anne, Kyle Chvasta, Kaitlin Koffer Miller, Dylan Cooper, Sha Tao, Eva Assing-Murray, Paul Shattuck, and Lindsay Shea. National Autism Indicators Report: Introduction to Medicaid and Autism. Policy Insight Series. A.J. Drexel Autism Institute, March 2023. http://dx.doi.org/10.17918/nair_medicaid_2023.

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Medicaid is the largest source of public health insurance in the U.S. In 2018, Medicaid provided public health insurance for 97 million low-income citizens in the U.S. including 9 million people with disabilities of all ages. In 2020, nearly one in every five people in the U.S. were ensured by Medicaid. Medicaid is important for autistic people and their family members. Yet, we know that autistic people and their families face difficulties navigating the process to enroll in Medicaid and then accessing the services Medicaid covers. While there are many publications that explain basic facts about Medicaid, and information about Medicaid for autistic individuals, few focus on the how autistic people use this public insurance or on what services Medicaid covers for children, youth, and adults on the autism spectrum. This report explores these topics using data from the Centers for Medicaid and Medicare Services (CMS) from 2008-2016.
2

Farquharson, Christine. Early years: Public spending and public policy. The IFS, March 2023. http://dx.doi.org/10.1920/ps.ifs.2023.0004.

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Cutler, David. Public Policy for Health Care. Cambridge, MA: National Bureau of Economic Research, May 1996. http://dx.doi.org/10.3386/w5591.

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Bernheim, B. Douglas, and John Karl Scholz. Private Saving and Public Policy. Cambridge, MA: National Bureau of Economic Research, November 1992. http://dx.doi.org/10.3386/w4215.

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Precious, Kate. Achieving policy change on autism: lessons from self-advocates in England. Emerald, October 2022. http://dx.doi.org/10.35241/emeraldopenres.1114936.1.

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Rast, Jessica E., Tamara Garfield, Anne M. Roux, Kaitlin H. Koffer Miller, Lisa M. Hund, Sha Tao, Connor M. Kerns, Kashia A. Rosenau, Emily Hotez, and Kristy A. Anderson. National Autism Indicators Report: Mental Health. A.J. Drexel Autism Institute, August 2021. http://dx.doi.org/10.17918/nairmentalhealth2021.

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The purpose of this report is to catalogue indicators of mental health and mental health care to highlight areas of needed improvement in practice and policy. Mental health care is an urgent priority and this report documents barriers that individuals and families face when trying to access mental health care. Good health and wellbeing require effective interventions and supportive policy to ensure that mental health needs of autistic children and adults are effectively addressed.
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Correa, Patricia. Public debt, public debt markets and monetary policy in Colombia. Bogotá, Colombia: Banco de la República, May 2000. http://dx.doi.org/10.32468/be.147.

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8

Rodgers, John, and Christy Hahn. Parkinson's Action Network Public Policy Forum. Fort Belvoir, VA: Defense Technical Information Center, December 2002. http://dx.doi.org/10.21236/ada411412.

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9

Hult, Kristopher, and Tomas Philipson. Public Liabilities and Health Care Policy. Cambridge, MA: National Bureau of Economic Research, November 2012. http://dx.doi.org/10.3386/w18571.

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10

Young, Claud R., and Jr. Strengthening Foreign Policy Through Public Diplomacy. Fort Belvoir, VA: Defense Technical Information Center, March 2004. http://dx.doi.org/10.21236/ada424213.

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