Дисертації: "Narratives of illness"

1

Kawasaki, Akiko. "Illness and nursing in the BronteÌˆ narratives". Thesis, University of Hull, 2005. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.418752.

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2

Povozhaev, Lea M. "Addiction Rhetoric: Conceptual Metaphors in Conversational Illness Narratives." Kent State University / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=kent1406720653.

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3

Buscemi, Nicole Desiree. "Diagnosing narratives: illness, the case history, and Victorian fiction." Diss., University of Iowa, 2009. https://ir.uiowa.edu/etd/282.

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“Diagnosing Narratives: Illness, the Case History, and Victorian Fiction” explores how the medical case study competes with patients’ experiential accounts of disease in the development of popular nineteenth-century fictions. During most of the Victorian period, clinical medicine served as the primary producer of medical knowledge. At the same time, its objectification of the sufferer—epitomized by the case narrative, the most prevalent form of nineteenth-century medical writing—led to an increasingly distanced relationship between doctor and patient. I argue that the mid-century novel responds by featuring narrator-sufferers who co-opt aspects of the medical case in order to represent their own subjective experiences and rethink what constitutes medical knowledge. As the century came to a close, however, sciences of the laboratory, rather than the clinic, began to gain epistemological sway. In light of widespread skepticism regarding the possibility of translating discoveries made in the lab into effective bedside practices, I contend that popular novels and short stories now returned full circle to the clinical case approach as a valuable alternative to the laboratory. The result is late-century fiction structurally and thematically driven by the useful yet sometimes callous techniques of the diagnostician and his case method. I chart these shifts through an examination of works by Charles Dickens, Wilkie Collins, Mary Elizabeth Braddon, Robert Louis Stevenson, Bram Stoker, and Arthur Conan Doyle. My project illustrates the responses of these authors to prevailing power dynamics in the world of medicine and offers a new reading of the ways in which the Victorian preoccupation with disease shaped literary narrative.

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4

Sile, Agnese. "The space of love in photographic essays of illness narratives." Thesis, University of Aberdeen, 2016. http://digitool.abdn.ac.uk:80/webclient/DeliveryManager?pid=231012.

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5

King, Katharine E. "Writing the breast cancer journey : illness narratives from an Internet forum /." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/MQ54928.pdf.

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6

McNamara, Karen. "Blogging breast cancer language and subjectivity in women's online illness narratives /." CONNECT TO ELECTRONIC THESIS, 2007. http://dspace.wrlc.org/handle/1961/4111.

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7

Bülow, Pia. "Making sense of contested illness : talk and narratives about chronic fatigue /." Linköping : Univ. : Dept. of Communication Studies [Kommunikation, Institutionen för Tema], Univ. [distributör], 2003. http://www.bibl.liu.se/liupubl/disp/disp2003/arts280s.pdf.

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8

Garthwaite, Kayleigh Ann. "Incapacitated? : exploring the health and illness narratives of Incapacity Benefit recipients." Thesis, Durham University, 2013. http://etheses.dur.ac.uk/6387/.

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Previous research has focused upon health, illness and identity, but the experience of receiving welfare benefits has largely been omitted. This thesis attempts to address this deficit by exploring the relationship between long-term Incapacity Benefit (IB) receipt and stigma in areas of North East England. Employing qualitative methodology, 25 IB recipients participated in the study, alongside 18 key stakeholders who worked with IB recipients. The narratives presented in this study uncover lives that are fraught with ill health and disability on a daily basis, accompanied by a strong sense of stigma, shame and frustration. Further, not all long-term IB recipients are resigned to a life on benefits – many possess a deep-seated desire to return to the labour market, including engaging in permitted or voluntary work – a sentiment which directly refutes any ‘dependency culture’ rhetoric. Tying all of this together is the construction and reconstruction of identity for long-term IB recipients. Stigma and shame arose as a result of the widespread suspicion of sick and disabled people; suspicion that was replicated in the views of some of the stakeholders involved in this study. Disturbingly, this led to a further distinction between ‘deserving’ and ‘undeserving’ amongst sickness benefits recipients themselves. Crucially, narratives were relayed against a backdrop of ongoing welfare reform which led to a dominant discourse of fear and insecurity for many participants who worried that their health would get worse, yet they could still be classified as ‘fit for work’. Fundamentally, this research calls for the need for a greater understanding of the lives of sick and disabled people, and an acceptance that being on sickness benefits is not the easy way out.

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9

Bond, Emma F. "Disrupted Narratives : Illness, Silence and Identity in Svevo, Pressburger and Morandini." Thesis, University of Oxford, 2009. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.516991.

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10

Stewart, Carly Louise. "Sporting autobiographies and illness narratives : when disrupted bodies tell their stories." Thesis, University of Exeter, 2006. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.439808.

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11

Halder, Anirban [Verfasser]. "Slow Engagements: Patient’s Perspective in Narratives of Chronic Illness / Anirban Halder." Mainz : Universitätsbibliothek Mainz, 2020. http://d-nb.info/1210964155/34.

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12

Bedwell, Rebecca, and Rebecca Bedwell. "Diabetes Illness Narratives among Mexican Immigrants in the U.S.-Mexico Border Region." Thesis, The University of Arizona, 2017. http://hdl.handle.net/10150/626725.

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This project investigates experiences of type 2 diabetes among Mexican immigrants living in Tucson, with a specific focus on conceptualizations of risk, heritability, individual responsibility, and experiences of emotion. It combines questions about the negative impacts of structural factors on the health of immigrants in the U.S. with questions about conceptualizations of risk. Participants viewed individual responsibility as an important ethical value in terms of managing risk. Because of the hereditary nature of diabetes, discourse on responsibility could be interpreted as an at-risk illness narrative. An emphasis on individual responsibility in diabetes management led to negative emotions both for the person with diabetes and their family members, as well as feelings of blame on the part of family members. Negative emotions cause conflict within families, and in the instance of depression or feelings of resignation, impede self-care.

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13

Soltermann, Tanya C. "Emergence of a Cancer Identity in Emerging Adulthood: Weblogs as Illness Narratives." Thèse, Université d'Ottawa / University of Ottawa, 2014. http://hdl.handle.net/10393/30653.

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The focus of this research is on the specific relational and particular circumstances that result in an emerging cancer identity expressed through the daily lived- experiences of emerging adults via personal weblogs. Identity, a complex term in its own right, is discussed here under the rubric of social identity as processual, therefore it is expected that an emerging cancer identity will develop as the participants begin to narrativize their daily experiences with cancer on their weblogs. By critically engaging with notions of emerging adulthood theories with theories on the sociology of death and dying and illness narratives, this research seeks to understand the specific psychosocial changes that occur as the participants engage with their illness on their weblogs, which arguably contributes to an emerging cancer identity.

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14

Coppock, Mary Jane. "Polarizing Narratives: Harmful Representations of Mental Illness and Bipolar in Popular Media." Scholarship @ Claremont, 2017. http://scholarship.claremont.edu/scripps_theses/953.

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Representations of mental illness in mainstream media have historically been infantilizing and dangerous. In the last century, dominant media has perpetuated inaccurate and damaging tropes about bipolar disorder in particular, perpetuating misunderstanding and stigma. Despite this fact, art can provide an outlet through which healthy images that promote understanding and sympathy can be dispersed. My project, Polarized, presents a more accurate representation of the disorder and its effects on individuals who struggle with it, as well as their loved ones. Bipolar disorders are a group of mental illnesses that cause dramatic shifts in an individual’s mood, energy, thinking ability, and sexual drive. In popular media, bipolar is represented in a number of different problematic ways ranging from childishness to irrational violence, which provide damaging stereotypes of the bipolar community and ultimately serve to further ostracize the bipolar community. Polarized’s critique of representations of disability in hegemonic discourse is informed by true stories and histories of mental illness. The short’s narrative is fictional, inspired by my own experience as a young woman with Bipolar II and augmented with the research and memoirs of manic-depressive diagnosed clinician Kay Jamison as written in An Unquiet Mind: A Memoir of Moods and Madness.

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15

Stringer, Helen. "The impossible story: Arthur W. Frank's "Chaos Narrative" and memoirs of madness." Thesis, Queensland University of Technology, 2019. https://eprints.qut.edu.au/135617/2/Helen_Stringer_Thesis.pdf.

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This practice-led project asks: how do writers of madness memoirs represent the discontinuity and incoherence of the madness experience, and how do I, as a writer, approach this? It finds that while the experience of madness is discontinuous and incoherent, writers choose to reconfigure their experiences into traditional narrative forms that adhere to expectations of continuity, coherence, and temporal linearity. As a practice-led project, in interrogating the research question, it comprises an academic exegesis, which employs the theories of sociologist, Arthur W. Frank, to justify discontinuous narrativisation and a madness memoir, entitled The Wolf.

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16

Schulz-Burgdorf, Ulrich. "Mwili, nafsi na roho katika ugonjwa: mfano wa simulizi za ugonjwa (illness narratives)." Universitätsbibliothek Leipzig, 2012. http://nbn-resolving.de/urn:nbn:de:bsz:15-qucosa-98610.

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Simulizi za ugonjwa zinatolewa na mgonjwa na mtu mmoja au wengi wanaoombwa naye wamsaidie wakashauriana hali ya maradhi. Kutambua ugonjwa ni kazi ya kawaida na siyo ya waganga au madaktari tu. Kama pengine, katika Afrika ya Mashariki wenyeji huwa na ujuzi wa kawaida juu ya maradhi, mwili, tiba, dawa za hospitali na za kienyeji. Kila jinsi ya tiba ina njia, lugha na mazoezi yake. Mfano ufuatao unaonyesha maana na matumizi ya dhana na tashbihi (metaphors) katika uganga wa kienyeji. Ni kazi yangu sasa ya kufasiri matumizi ya tashbihi na alama katika mawasiliano ambayo huitwa `simulizi za ugonjwa´, yaani illness narratives ambazo ni dhana ya utafiti katika mawasiliano ya kuganga.

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17

Hamza, Sabeeha. "The subjective response of people living with HIV to illness narratives in VR." Master's thesis, University of Cape Town, 2004. http://hdl.handle.net/11427/6400.

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Includes bibliographical references (leaves 92-101).
This dissertation reports on the results on an exploratory investigation into the potential efficacy of VR as both a support mechanism to people living with HIV I AIDS, as well its capabilities as an emotive medium. Two hypothesis were presented viz. (1) VR will be a form of social support and (2) VR will have an emotional impact on participants. The research builds up on findings which demonstrate the therapeutic effectiveness of telling personal and collective narratives in an HIV I AIDS support group. This fact, together with the tested ability ofVR as a therapeutic medium, let to the development of a virtual support group with an aim to test its therapeutic efficacy. A low cost, deployable desktop PC based system using custom software was developed. The system implemented a VR walkthrough experience of a tranquil campfire in a forest.

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18

Gray, Jeniffer. "Examining illness narratives in chronic fatigue and immune deficiency syndrome : a mindbody perspective." Master's thesis, University of Cape Town, 2001. http://hdl.handle.net/11427/10547.

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Bibliography: leaves 147-161.
A semi-structured interview was used to obtain illness narrative data from 10 Chronic Fatigue and Immune Deficiency Syndrom (CFIDS) patients. A qualitative narrative analysis was completed and the findings were discussed in relation to the patients' subjective understanding of the illness process. This was related to current CFIDS research findings, and more especially to the four theoretical paradigms that underpin this research - namely, Medical Illness Model, Lifeworld Illness Model, Mindbody Medicine, and Psychodynamic Theory. Each one of these illness theories highlighted an aspect of the healing influence on CFIDS patients' illness course and meaning. The analysis confirms the importance of all these healing influences. Thus it was concluded that the medical treatment, arising from the Cartesian dualistic understanding of mind and body, proved inadequate on its own as an effective intervention to bring release from CFIDS symptoms and enable the patients to engage a new meaningful life-process. The four paradigms together represent the mindbody reality and indicate the importance of patients receiving interventions at all levels of their lived experience. This intervention approach was shown to be most effective. It is therefore suggested that the Health System work towards such collaborative, integrated health care for chronically ill sufferers.

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19

Iannarino, Nicholas T. "Laughing at death: The forms and functions of humor in illness trauma narratives." University of Dayton / OhioLINK, 2010. http://rave.ohiolink.edu/etdc/view?acc_num=dayton1287429452.

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20

Bueno, Yvette. "The Co-Construction of Self-Talk and Illness Narratives: An HIV Intervention Case Study." Scholarly Repository, 2009. http://scholarlyrepository.miami.edu/oa_dissertations/200.

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This case study investigates the co-construction communication patterns that emerged during an Human Immunodeficiency Virus (HIV) intervention designed to reduce negative and critical self-talk. The transcripts of eight sequential acupressure and behavioral (SAB) counseling intervention sessions between a therapist and two medically nonadherent HIV-infected women were analyzed using Giorgi's (1989, 1994, 1997, 2006) phenomeonlogical method of inquiry. The analysis revealed three major themes: "assessing the present," "reviewing the past," and "forging the future," and eight subthemes: "safe atmosphere," "disclosure," "negotiating meaning," "releasing the past," "breaking the past-to-present pattern," "reducing uncertainty," "generating options," and "projecting images." Prior to the intervention sessions, the women reported experiencing negative and critical self-talk and inconsistent medication adherence. Self-talk and illness narrative modifications were evident within and across sessions as the therapist used sequential acupressure and behavioral counseling techniques. During the one month follow-up, the participants reported no experience of negative and critical self-talk and described actions taken toward goals discussed and imagined during the intervention such as medication adherence, exercise, and reenrollment in school. The co-construction themes that emerged in the intervention were consistent with findings in the comforting message literature with specific parallels to the factor analysis findings of Bippus (2001). This work lends support to comforting message research and suggests that distinctions between everyday comforting messages and chronic illness support strategies may be more similar than anticipated. Other study conclusions include clinical and practical implications for people working with HIV-infected individuals.

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21

McKay, Elizabeth Anne. ""Rip that whole book up - I've changed" : life and work narratives of mental illness." Thesis, University of Strathclyde, 2002. http://oleg.lib.strath.ac.uk:80/R/?func=dbin-jump-full&object_id=21202.

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Women with enduring mental illness are little considered in research and there is a dearth of occupational therapy literature concerning mental illness, although a third of therapists work in this speciality. This study explored two groups of women within a Scottish context. Phase One involved five women who lived with enduring mental illness, and Phase Two included sixteen occupational therapists who worked in mental health settings with similar women. Qualitative methodology, specifically, life history and focus group interviews, were used to give voice to the women's life and therapists' work experiences. The data from the women's life history interviews was analysed using narrative analysis. This produced a unique, powerful narrative for each illustrating their complex, individualised experiences, allowing insight into and understanding of effects within their lives. This data was then analysed using constant comparative analysis. Six themes portrayed their lives. The findi ngs highlighted the women's experiences as victims and importantly, as agents for themselves and others. Related to their personal agency was the need for future goals and hopes to be recognised and nurtured by health professionals. Furthermore, the significance of the women's experiences along the continuum of motherhood adds to our understanding of the long-term impact of continuing mental illness on women, their children and families. Overall, the women identified that they were experts in their own lives. The focus group material was also subjected to constant comparative analysis. Five themes encapsulated the processes that underpinned therapists' interventions and the inter-dependency of their actions within specific work contexts. Comparison across the two groups of women revealed three common issues: their need for safe environments, their feelings of powerlessness and the importance of being heard. These findings have implications for occupational therapy practice and research specifically as well as conveying important lessons to other professionals.

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22

Davis, Kayla. "On Experiencing Illness in the Western Biomedical World: A Push for more Comprehensive Healthcare in America." Digital Commons @ East Tennessee State University, 2018. https://dc.etsu.edu/honors/460.

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The purpose of this thesis is to identify common themes presented in several illness narratives with specific attention paid to the relationship between patients and their physicians and patients and their families. Only illness narratives written in America and Western Europe were used for this thesis so the topic could be narrowed to the experience within the western biomedical field. While most research on illness narratives focuses on defining illness and illustrating the importance of introspective work, this thesis identifies patterns in a way that can shape the future treatment of chronically ill patients. This thesis also allows me to creatively explore a personal illness narrative, reinforcing these themes and contributing to the discussion of what physicians and families can do to make the illness experience more bearable for the patient.

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23

Adlington, Rebecca Louise. "Narratives of young people living with cystic fibrosis (CF)." Thesis, University of Hertfordshire, 2012. http://hdl.handle.net/2299/9121.

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Background and aims: Cystic Fibrosis (CF) is the most common genetic, life threatening disorder in the UK (Cystic Fibrosis Trust, 2010). Given the trajectory of the illness, adolescence may be a particularly challenging period, during which young people become more aware of differences from peers, and are faced with the task of balancing increasing illness demands with the drive to aspire to developmental goals. Nevertheless, little research specifically explores how young people with CF reconcile their illness experiences with the emerging sense of self. In an attempt to address this gap in the literature, this study sought to hear the narratives of young people with CF with reference to the local and broader contextual factors influencing their construction, with the aim to further understanding, inform clinical practice and improve support for young people with CF. Methodology: A qualitative approach was employed. A purposive sample of six participants diagnosed with CF and aged between 12 and 16 years was recruited. Participants were asked to take photographs of their experiences of life as a young person with CF which were used alongside a semi-structured topic guide in individual interviews to explore the young person’s narratives. The interviews were audio-recorded, transcribed, and analysed using a narrative approach to explore both what was said and how it was told.Analysis and Findings: The researcher’s global impressions of each person’s narratives, along with details of the local context of the interview were presented. Following this, similarities and differences across the narratives were considered with particular attention to how the main storylines were interwoven with participants’ emotional experiences, the identity work taking place through the narrative, and the broader narratives available to them. It emerged that (i) CF was perceived as part of participants’ normality which they had grown accustomed to over time, (ii) participants drew on cultural narratives to position themselves as normal teenagers, to maintain a positive sense of self, though also leading them to minimise difficulties and distress, and (iii) participants continued to position themselves within the norm as they talked of their futures, describing similar hopes to their peers, and again played down concerns about how CF might impact on their futures. These findings are discussed with reference to the clinical implications, strengths, and limitations of the methodology, and directions for future research.

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24

Davies, Kerry Elisabeth. "Narratives beyond the walls : patients' experiences of mental health and illness in Oxfordshire since 1948." Thesis, Oxford Brookes University, 2002. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.394666.

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25

Schreiber, Jacob S. "Discursive constructions of decline| Narratives of illness and financial stress among residents in assisted living." Thesis, California State University, Long Beach, 2017. http://pqdtopen.proquest.com/#viewpdf?dispub=10196318.

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Treating aging as a disease has led to what Carrol Estes termed “the aging enterprise:” the development of services to house and care for elders. Much is known about the power structures in such facilities, but the issue of socio-economic decline and its relation to elder health has not received a great deal of attention. This thesis analyzes interview and participant-observation data from a sample of residents in an assisted living facility (ALF) to ethnographically explore the way physical and socio-economic experiences of decline emerge in participant narratives. Findings indicate elders construct identities of illness that draw from institutional discourses that diminish their personhood. The narrative structure of declining health is also found to be compatible with other socio-economic descriptions of decline. The multiple discursive patterns of decline culminate in a model of ALF resident dependency. Based on this model, recommendations are made to affirm elder personhood and enact agency in ALF.

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26

Dorgan, Kelly A., Kathryn L. Duvall, and Sadie P. Hutson. "Telling Stories about Cohabitating Morbidities: Female Cancer Survivors’ Interconnecting Illness Narratives in Southern Central Appalachia." Digital Commons @ East Tennessee State University, 2013. https://dc.etsu.edu/etsu-works/1266.

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27

Hughes, Danielle Anna. "The Other Child: Health Narratives of Adults Raised with a Chronically Ill Sibling." Antioch University / OhioLINK, 2012. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1340378917.

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28

Bromley, Helen. "Discourses and narratives of difference : 'race', rurality and illness : the case of the Hokianga, New Zealand." Thesis, University of Bristol, 1998. http://hdl.handle.net/1983/eaa176ee-c3f4-473a-971a-908d0c9afecb.

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29

Coats, Heather, Janice D. Crist, Ann Berger, Esther Sternberg, and Anne G. Rosenfeld. "African American Elders’ Serious Illness Experiences: Narratives of "God Did," "God Will," and "Life Is Better"." SAGE PUBLICATIONS INC, 2017. http://hdl.handle.net/10150/623518.

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The foundation of culturally sensitive patient-centered palliative care is formed from one's social, spiritual, psychological, and physical experiences of serious illness. The purpose of this study was to describe categories and patterns of psychological, social, and spiritual healing from the perspectives of aging seriously ill African American (AA) elders. Using narrative analysis methodology, 13 open-ended interviews were collected. Three main patterns were prior experiences, I changed, and across past, present experiences and future expectations. Themes were categorized within each pattern: been through it . . . made me strong, I thought about . . . others, went down little hills . . . got me down, I grew stronger, changed priorities, do things I never would have done, quit doing, God did and will take care of me, close-knit relationships, and life is better. Faith in God helped the aging seriously ill AA elders overcome things, whether their current illness or other life difficulties.

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30

Lee, Jessica Nalani Oi Jun. "Too Much Information: Agency and Disruptions of Power in Personal Narratives of Mental Illness and Suffering." Diss., The University of Arizona, 2014. http://hdl.handle.net/10150/323465.

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Healing in the mental health system of the 21st century is difficult as the credibility of mental health users is constantly called into question, their experiences and perceptions of their "illness" undervalued or even completely ignored. This attitude towards mental health users must be changed in order to work towards truly alleviating mental illness and suffering. Careful analysis of the rhetoric of published personal narratives written by women describing their experiences with mental healthcare reveals the ways in which medical knowledge is created, owned, and disseminated only by the “authoritative expert,” defined as healthcare professionals who categorize, taxonomize, and pathologize in order to treat both physical and mental illness. I argue the authoritative expert marginalizes the "everyday expert," exemplified through the perceptions of women who, in their narratives, record realities that do not always match the diagnoses and prognoses assigned to them by their healthcare providers. My project's central question asks: In what ways do personal narratives of mental illness and suffering illuminate the ways in which language constructs reality? My research illuminates the ways in which narratives of mental illness and suffering are healing, and thus serves as an advocate for patient rights, both by empowering patients and by furthering discussion among medical professionals regarding problematizing "standard" treatment. My work advances the connection between politics and language as it takes a commonly undervalued form of language and lived experience--narrative--and researches the ways in which it has been and can continue to be used as a powerful political agent to empower mental health users by giving them a voice. Specifically, I demonstrate how patients' personal experiences should and can be valued as a way to illuminate their own understanding of their disease as well as to inform their treatment. This project lays the foundation for future research examining ways treatment for mental illness should be differentiated from treatment for physical illness. I am interested in ways to further combat the stigma of mental illness by looking at ways providers can honor and respect the opinions and values of mental health patients in non-pejorative ways.

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31

Pederson, Sarah Nicole. "The final chapter: end-of-life identity constructions in hospice narrative performances." Diss., University of Iowa, 2012. https://ir.uiowa.edu/etd/3511.

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Through a post-colonial narrative turn, scholars created space for alternative illness narratives to be performed; narratives that reflected the fragmented and unpredictable ways of ailing bodies, and allowed for multiple and diverse identities to be constructed. However, even with this post-colonial turn, illness narratives in U.S. culture often depict situations in which individuals overcome their illnesses, and death is somehow avoided (Langellier & Peterson, 2004), which present potential constraints for what narratives individuals at the end-of-life (EOL) are able to tell and what identities they are able to construct. Using post-colonial narrative theory (Frank, 1995) as a framework, I engaged in a thematic narrative analysis of 16 hospice patient narratives, to understand whether narratives and identity constructions are constrained for dying individuals as they attempt to make sense of the end-of-life. Patients constructed the five identities of the experienced individual, the believer, the ailing individual, the good dier, and the individual who is still living, through several themes. Ideals of both post-colonialism and modernism were present in identity constructions, suggesting some acceptance of alternative narratives for individuals at the EOL. However, notably a new type of colonization emerged as patients' identity constructions and themes reflected elements of ars moriendi or the good death (Faust, 2008). Specifically, it appears that end-of-life narratives must reflect that the individual nearing the end-of-life is doing so in a culturally acceptable way which involves acceptance, sacrificial or selfless qualities, dying gladly, and dying not alone. This nuanced type of colonization suggests that specific illness situations might present unique narrative colonization. I end by offering practical implications for health care providers and family. Specifically, these findings might inform traditional practitioners and encourage them to broaden the clinical definition of the good death, with an understanding that elements such as esteem and emotional support or empowerment might be paramount for some patients' good deaths. Additionally, these findings offer awareness to family members regarding cultural expectations of the good death, so that they might consider whether they are adding pressure to their loved ones to achieve such a death.

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32

Dominicé, Dao Melissa. "Making sense of illness in the absence of diagnosis : patients' and physicians' narratives of medically unexplained symptoms." Thesis, McGill University, 2006. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=101113.

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The aim of this study was to improve medical understanding of patients' illness experience and everyday thinking about physical distress, by focusing on patients' and physicians' narratives of medically unexplained symptoms. Semi-structured interviews were held with 16 Canadian and immigrant patients from two primary care clinics in Montreal, and separately with their physician. Detailed content analysis reveals that, despite the absence of diagnosis, both patient and physicians hold complex and dynamic models of illness. Physicians' explanations rely almost exclusively on biomedical constructs, whereas patients' models of illness draw from a much wider range of sources of experience and authority. Despite regular follow-up, physicians have very limited access to the intricate networks of meaning revealed in their patients' interviews. In fact, although there is some common ground of understanding, patients and physicians show low congruence of their models, and much discrepancy in the expected outcome and management. Eliciting patients' illness narratives rather than focusing on narrow biomedical issues offers promising possibilities for physicians to negotiate meaning with their patients. The richness of patients' models provides potential avenues leading out of the clinical impasse of medically unexplained symptoms.

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Mueri, Christine Andrea. "'Defined not by time, but by mood': First-person narratives of bipolar disorder." Case Western Reserve University School of Graduate Studies / OhioLINK, 2011. http://rave.ohiolink.edu/etdc/view?acc_num=case1307662397.

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Plummer, Stephanie C. "Food Contamination Narratives in United States News Media." Bowling Green State University / OhioLINK, 2009. http://rave.ohiolink.edu/etdc/view?acc_num=bgsu1237761803.

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O'Brien, Mary Rose. "Hopes, transitions and letting go : living with ALS/MND as documented in published and unpublished first-person illness narratives." Thesis, Lancaster University, 2009. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.538620.

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Dorgan, Kelly A., Kathryn L. Duvall, Sadie P. Hutson, and Amber E. Kinser. "Mothered, Mothering & Motherizing in Illness Narratives: What Women Cancer Survivors in Southern Central Appalachia Reveal About Mothering-Disruption." Digital Commons @ East Tennessee State University, 2013. https://dc.etsu.edu/etsu-works/1221.

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Informed by a mothering-disruption framework, our study examines the illness narratives of women cancer survivors living in Southern Central Appalachia. We collected the stories of twenty-nine women cancer survivors from northeast Tennessee and southwest Virginia using a multi-phasic qualitative design. Phase I consisted of women cancer survivors participating in a day-long story circle (n=26). Phase II consisted of women cancer survivors who were unable to attend the story circle ; this sample sub-set participated in in-depth interviews (n=3) designed to capture their illness narratives. Participants' illness narratives revealed the presence of: (1) mothering-disruption whereby cancer adversely impacted the mothering role ; and (2) mothering-connection , whereby the cancer experience motivatedmother-survivors. Participants' illness narratives reflected thatthe role of mother was the preeminent role for mother-survivor and whenever there was oppositional tension between the roles of mother and survivor , the women-survivors seemed to linguistically relocate away from the survivor role and toward the mothering role. As a result , women-survivors seemingly rejected medicalization of their identities by emphasizing their mothering responsibilities , something we term motherizing.

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Miles, Stephanie Anne. "A dual-process approach to stigma reduction using online, user-generated narratives in social media messages." Diss., University of Iowa, 2016. https://ir.uiowa.edu/etd/2122.

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Mental illness is a widespread public health concern. Stigma is a known barrier to recovery, and individuals often avoid seeking treatment because of it. The purpose of my research was to understand how individuals process peer-created, mental illness messages on social media, and to what extent these messages reduce stigma. I conducted two experiments based on the Elaboration Likelihood Model (ELM) to examine attitudes related to negative beliefs about mental illness and preferred social distance from mentally ill individuals. Argument quality and amount of elaboration influenced empathetic responses to a message. Empathy was directly associated with a decrease in stigmatized beliefs about mental illness. Individuals who perceived that the message sharer was a close, trusted friend were more likely to indicate that the original message creator was more credible. Original message creators who disclosed having a mental illness were also perceived as more credible than creators who did not disclose having a mental illness. In addition, participants who perceived that the message sharer positively endorsed the message had less stigmatized beliefs about mental illness than participants who perceived negative endorsements. Results of this project suggest that traditional ELM variables, such as elaboration and argument quality, influence the processing and outcomes of viewing social media messages about mental illness. Several new media characteristics, such as who shares the message online and comments they attach to the message, also influence how users think about the message and influence processing outcomes.

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Thelen, Andrea Zolnier. "Narrative efforts at social redemption by people with AIDS/HIV." [Tampa, Fla] : University of South Florida, 2007. http://purl.fcla.edu/usf/dc/et/SFE0001863.

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Hancock, Sara Catherine. "“I think I should be feeling bad about it” HIV/AIDS, narrative, and the institutional voices of medicine – towards a conceptualization of medical consciousness." Thesis, University of British Columbia, 2008. http://hdl.handle.net/2429/2361.

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For those living in resource rich countries such as Canada a positive HIV diagnosis no longer means an imminent death. In response to this change, numerous treatment and therapeutic institutions have arisen to assist individuals with managing their illness. Illness narratives then, the stories people tell and retell about their illness experience, are constructed by and within this multiplicity of medical frameworks that can interact in ways that are both complimentary and contradictory. Drawing on ethnographic data obtained through two months of participant observation and seven in-depth interviews at an HIV/AIDS treatment facility in Vancouver, British Columbia I discuss how illness narratives reveal the presence of and an orientation towards the powerful discourses of medicine. Some of the frameworks evident in the narratives I examine include biomedical understandings of health and disease, support group dialogues on self-empowerment, tenets of complementary and alternative medicines, clinical models of low-threshold access to health care, notions of health services as a human right, and addiction treatment concepts. In order to afford a place for the institutional discourses of medicine in my analysis, the subjective experience of illness is contextualized with reference to it’s situatedness amongst the myriad of other voices that both construct and constrain narrative production. Ultimately, I seek to demonstrate how the incorporation of disparate institutional voices into a subjective story of illness reflects the development of a unique orientation to the institutions of medicine an understanding that I conceptualize as medical consciousness.

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de, Cavalho Raiana. "Agency, participation, and cancer stories on Instagram: A narrative analysis of the Networked Oncological Causers in Brazil." Kent State University / OhioLINK, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=kent1574249134299928.

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Dorgan, Kelly A., Sadie P. Hutson, Kathryn L. Duvall, Amber E. Kinser, and Joanne M. Hall. "Connecting Place to Disease and Gender: Cohabitating Morbidities in Narratives of Women Cancer Survivors in Southern Central Appalachia." Digital Commons @ East Tennessee State University, 2014. https://dc.etsu.edu/etsu-works/1223.

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Drawing on critical feminist narrative inquiry, we explore illness narratives of women cancer survivors living in Southern Central Appalachia via a daylong story circle (n = 26) and individual interviews (n = 3). In our article, we argue that participants functioned as illness genealogists as a consequence of their central location in families, as well as their location in a place (Southern Central Appalachia) characterized by what we call “cohabitating morbidities.” We coined this term to represent the experiences of women survivors living with multiple, sometimes simultaneously occurring illness experiences in their family systems. Finally, we reveal and explore rules that guide their survivorship experiences and storytelling, contending that study participants preserve their central location within family systems by decentering their own survivorship experiences and stories.

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Payne, Rosalind. "Narratives of parents living with a child affected by chronic fatigue syndrome/myalgic encephalomyelitis." Thesis, University of Hertfordshire, 2017. http://hdl.handle.net/2299/17472.

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Background and Aims: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) remains a poorly understood condition, shrouded by debate, stigma, and uncertainty. Unsurprisingly, the little available research suggests that caring for a Child or Young Person (CYP) affected by the condition can be extremely challenging. While the majority of available literature is quantitative in nature, there is some qualitative research examining the impact of having a CYP with CFS/ME on parents. However, there currently appear to be no studies examining the narratives of parents living with a CYP with CFS/ME. Therefore, this research aimed to hear how parents narrate their experiences of living with a CYP affected by CFS/ME, paying attention to how they construct their identity, and the contested condition. Methodology: This research drew on a qualitative approach that explored the narratives of the participants. A purposive sample of five parents of CYP affected by CFS/ME (5 mothers) was recruited for a single semi-structured interview. The interviews were audio-recorded, transcribed, and analysed using a narrative approach to explore what participants said and how they narrated their accounts. This was then situated within the social and cultural contexts that shaped them. Analysis and Findings: Multiple readings of the narratives allowed me to develop a summary of each individual's narrative account. These were presented, after which similarities and differences across narratives were considered. Analysis identified six areas of collective focus: 'stories of onset and diagnosis', 'stories of battle', 'stories of finding the person/people who can help', 'stories of impact', 'stories of seeking social support', and 'stories of coping and adjustment'. Participants' narratives were heavily influenced by dominant societal discourses surrounding CFS/ME and motherhood, and could be seen as a response to these narratives. Consequently, participants offered particular constructions of the condition, themselves, their CYP, and others that they had come into contact with. These findings are discussed with reference to their potential bearing for clinical practice, strengths and limitations of the methodology, and directions for future research.

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Cardillo, Linda Wheeler. "Constructing and making sense of difference narratives of the experience of growing up with a chronic illness or physical disability /." Connect to this title online, 2004. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=osu1101240415.

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Assad, Mary K. "Gender, Illness, and Narrative: A Rhetorical Study of the American Heart Association's Go Red For Women Campaign." Case Western Reserve University School of Graduate Studies / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=case1401996060.

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Giunti, Costanza <1990&gt. "Etnografia in Sardegna dentro al caso “sangue infetto”. La malattia nella cura. Illness narratives: beta-talassemia major, epatite C, battaglia legale." Master's Degree Thesis, Università Ca' Foscari Venezia, 2019. http://hdl.handle.net/10579/14608.

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Questo lavoro è l'esito di una ricerca etnografica della durata di un anno avvenuta in Sardegna tra il mese di dicembre 2017 e dicembre 2018. La Sardegna è una tra le tre regioni italiane in cui è maggiormente diffusa la beta-talassemia major, una patologia congenita cronica che comporta la necessità di svolgere emotrasfusioni ogni circa quindici giorni. Per questo motivo la quasi totalità della comunità talassemica sarda ha attraversato sulla propria pelle il cosiddetto “scandalo del sangue infetto”, venendo contagiata dai virus HCV/HIV/HBV attraverso le trasfusioni di sangue, dunque durante la terapia principale per la patologia con cui convivono. Stante il contesto giuridico italiano, quasi tutte le persone coinvolte hanno scelto un percorso legale per la richiesta di un risarcimento ordinario del danno subito. In questo lavoro, attraverso la metodologia dell'intervista nell'ambito delle illness narratives, si indaga la complessa rete di implicazioni biosociali delle persone coinvolte dal contagio di HCV nel sistema culturale di riferimento; la percezione della cura, del corpo in relazione al “sangue”, della malattia, il porsi in essere della relazione medico-paziente, in un percorso patologico altamente iatrogeno e continuamente in bilico tra la sua costruzione biologica, quella sociale e quella giuridica.

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Brisley, Adam Leon. "Accessing cancer care in the context of a changing English National Health Service." Thesis, University of Manchester, 2015. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.654877.

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This thesis is based on 18 months ethnographic fieldwork in and around the National Heath Service (NHS) in Greater Manchester, UK, between 2011 and 2012. The fieldwork focused on practices and experiences of cancer care and the care of other related diseases (e.g. brain tumour, post surgical pain and cancer related mental illnesses) and primarily involved in-depth interview-based case studies with patients, carers and clinicians, as well as participant observation at hospital outpatient clinics and a local cancer centre. Over the past thirty years, the English NHS has been through numerous market- based structural reorganisation programmes broadly aimed at increasing provider competition and patient choice within the health service. At the same time, various new ways of configuring medical knowledge and reforming the ‘traditional clinical interaction’ have grown in influence in NHS care practices. This thesis seeks to record the ways in which new managerial technologies, clinical tools and medical and healthcare rationalities (e.g. risk medicine, patient pathways, diagnostic categories and the logic of patient choice) introduce new ways to experience disease and treatment. Following Das (2015), among others (see Biehl and Moran- Thomas 2009), I do not treat these abstract forms as dominating forces that over-determine experience and practice. But instead, I attend to how broad structures and rationalities become embedded in practices, experiences and biographies of illness and care. In particular, I focus on what is required for care to be accessed (or ‘activated’) in a context permeated by these competing systems of value and meaning.

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Perez, Quintero Camilo E. "In-Between the Frames: Contesting Stigmas of Violence and Illness Through Digital Storytelling (a Visual Social Semiotic Analysis of Pasolini en Medellin and the PD Narrative Project)." Ohio University / OhioLINK, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=ohiou1565285316168429.

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Belloni, Eleonora. "Narrazioni di malattia e identità. Le prospettive dei caregiver primari di persone con demenza." Doctoral thesis, Università degli studi di Padova, 2014. http://hdl.handle.net/11577/3423978.

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In Italy the majority of people suffering from dementia is assisted inside their families, however, what being a "caregiver" means is often taken for granted, as if it were a precise entity, exclusively recognizable on a “task-based understanding”. Thus in specific literature the caregiver is often represented as the one who takes care of a sick or not self-sufficient person, however the repercussions of this experience on people’s identity is a little investigated issue. Starting from the contributions of illness narratives and narrative psychology, we have taken the positioning theory as theoretical framework of this study. This perspective emphasizes the “construction” of identity within the interactions and it considers narratives as performances where identities are negotiated. In the light of these premises, this study aims to explore how primary caregivers of people with dementia set themselves and how they (re)consider their identity in the care relationship. This investigation is divided into three distinct but related areas: (1) How caregivers construct dementia (2) How they construct the sick relative (3) How caregivers construct their own identity in the care relationship. For this purpose 47 narrative interviews have been developed with primary caregivers (20 spouses and 27 children) of people with dementia at a medium-serious stage of disease. The first two research questions have been investigated through a qualitative-thematic analysis, while the third question was explored through a positioning analysis taking a gender and generational perspective. From the analysis the person with dementia results as committed to express his/her agency through a continuous balance between identity disruption and identity re-construction towards a disease which is represented as a family disease and source of stigma. At the same time, caregivers present themselves as constantly striving to cope with the changes and demands imposed by the disease and to find a balance between different positions which are often in contradiction with each other. Thus being a caregiver would be presented as a process of constant negotiation between the person, the others, their own values and social expectations. Four types of identity movements are identified (“shifting”, “balancing”, “detachment” and “belonging”), they highlight the gender and generational differences which mainly influence the way the care experience is lived. At the end of the research the case-study of a caregiver is presented in order to propose an integrated analysis of the narrative self-characterization technique as a practical tool for professionals who work with caregivers. The overall results are critically discussed and commented in order to highlight the interactions between the three areas of investigation. Finally, the study proposes some reflections on an applied level as well as the limits and the possible research developments.
In Italia la maggior parte delle persone malate di demenza è assistita all’interno delle famiglie, tuttavia viene spesso dato per scontato cosa voglia dire essere “caregiver”, quasi fosse distinguibile un’entità precisa riconoscibile esclusivamente sulla base dei compiti a questa assegnati. Nella letteratura specifica, infatti, il caregiver viene spesso rappresentato come colui che si prende cura di una persona malata o non autosufficiente, tuttavia i riflessi di questa esperienza sull'identità delle persone restano un tema ancora poco indagato. Partendo dai contributi delle illness narratives e della psicologia narrativa, abbiamo assunto la teoria del posizionamento come cornice teorica del presente lavoro. Questa prospettiva pone l’accento sulla “costruzione” dell’identità all’interno delle interazioni e intende le narrazioni come performance in cui le identità vengono negoziate. Alla luce di queste premesse, lo studio mira ad esplorare come i caregiver primari di persone con demenza posizionino se stessi e come (ri)considerino la loro identità nella relazione di cura. L’indagine si articola su tre aree distinte ma connesse: (1) Come i caregiver costruiscono la demenza (2) Come costruiscono il familiare malato (3) Come i caregiver costruiscono la propria identità nella relazione di cura. A questo scopo sono state condotte 47 interviste narrative con i caregiver primari (20 coniugi e 27 figli/e) di persone malate di demenza ad uno stadio medio-grave. Attraverso un’analisi qualitativo-tematica sono state indagate le prime due domande di ricerca, mentre la terza è stata esplorata attraverso un’analisi del posizionamento assumendo una prospettiva di genere e generazionale. Dalle analisi la persona con demenza risulta impegnata ad esprimere la propria agency attraverso un continuo bilancio tra identity disruption e identity re-construction, confrontandosi con una patologia che si configura come malattia familiare e fonte di stigma. Allo stesso tempo, i caregiver si trovano costantemente impegnati a fronteggiare le richieste e i cambiamenti imposti dalla malattia e a trovare un equilibrio tra posizionamenti diversi, spesso in contraddizione tra di loro. Essere caregiver si presenta quindi come un processo di costante negoziazione tra la persona, gli altri, i propri valori e le aspettative sociali. Sono tracciati quattro tipi di movimenti identitari (“slittamento”, “bilanciamento”, “evitamento” e “appartenenza”), mettendo in luce le differenze di genere e generazionali che maggiormente influiscono su come l’esperienza di cura viene vissuta. A chiusura del lavoro è presentato il caso-studio di una caregiver al fine di proporre un’analisi integrata della tecnica narrativa dell’autocaratterizzazione come possibile strumento rivolto ai professionisti che lavorano con i familiari. I risultati complessivi sono discussi criticamente e commentati così da mettere in luce le interazioni tra le tre aree d’indagine. Lo studio propone infine alcune riflessioni sull’applicazione dei risultati, oltre ai limiti e ai possibili sviluppi della ricerca.

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Ohlsson, Robert. "Representationer av psykisk ohälsa : Egna erfarenheter och dialogiskt meningsskapande i fokusgruppsamtal." Doctoral thesis, Stockholms universitet, Pedagogiska institutionen, 2009. http://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-29952.

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The aim of the thesis is to explore socially shared ideas about mental illness in everyday contexts. Drawing on social representation theory, organizations for users of mental health services and self-help groups are regarded as communities where social knowledge is constructed that makes intersubjective understanding of illness experiences possible. In order to investigate such knowledge as a resource in joint construction of meaning, a theoretical model is introduced where a distinction is made between a discursive level of situated ‘representational work’ and an underlying level of sociocultural resources. A focus group study was carried out with 27 participants who label their health problems as anxiety, depression or bipolar disorder, and were members of service user organizations. The focus group conversations were analysed with regard to thematic, interactional and discursive features to answer the questions: 1) how is mental illness represented, 2) how is the mentally ill person represented, and 3) how are others’ views on mental illness represented. The results show how mental illness is represented as a complex phenomenon that is contextualised to a number of frames of reference. Further, the analysis identified different types of resources that are utilized in representational work: local knowledge of the communities, medical concepts, different explanatory models, narrative structures, metaphors and conceptual dichotomies. It also revealed dialogical properties of the representational work that have rhetorical functions for self-presentation as a team performance. The discussion suggests that widely shared resources are put to use in group- and situation-specific representational projects, and that representations that are produced in group discourse can be characterised as ‘polemical social representations’ that respond to a double stigma of mental illness in everyday life where mental illness is regarded as a sign of ‘weakness’ as well as ‘otherness’.

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Stanley, Daina. "Autobiographical Accounts of Early-Onset Alzheimer's Disease: Obituaries of the Living Dead?" Thèse, Université d'Ottawa / University of Ottawa, 2013. http://hdl.handle.net/10393/30173.

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The thesis was designed to gain insight into how Alzheimer’s disease influences selfhood from first-personal accounts of illness. The focus of the study was narrowed further by concentrating on the autobiographies of individuals diagnosed with Early-Onset Alzheimer’s disease (EOAD). The purpose of this thesis was to analyze the autobiographies of individuals with EOAD with the aim of understanding their selfhood. In this thesis I argue that, Alzheimer’s disease may influence a change in self, however, the self is not lost entirely. This thesis draws on the philosophical conception of narrated self as it allows for one perpetually constructed self, whereby a change in self does not necessarily mean the self is lost entirely. Through an interpretive analysis of six autobiographical accounts of Alzheimer’s, this thesis demonstrates that Alzheimer’s disease influences a loss of sense of self but that autobiography enables individuals with Alzheimer’s to (re)construct self.

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Дисертації з теми "Narratives of illness"

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