Дисертації з теми "Informal family caregivers"
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Tate, Anne J. "All on the family informal caregiving in America /." online access from Digital Dissertation Consortium, 2006. http://libweb.cityu.edu.hk/cgi-bin/er/db/ddcdiss.pl?1432821.
Повний текст джерелаSmith, Paula Caroline. "Family caregivers in palliative care : perception of their role and sources of support." Thesis, University of Southampton, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.340333.
Повний текст джерелаSmith, Hinders Julie Ann. "Unmet Support Needs of Informal Caregivers of Older Adults." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6375.
Повний текст джерелаSjölander, Catarina. "Consequences for family members of being informal caregivers to a person with advanced cancer." Doctoral thesis, Hälsohögskolan, Högskolan i Jönköping, HHJ, Avd. för omvårdnad, 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-19819.
Повний текст джерелаMerritt, Rebecca. "The Decision Making Process of Informal Caregivers of Dementia Family Members Regarding Nursing Home Placement." VCU Scholars Compass, 2010. http://scholarscompass.vcu.edu/etd/2334.
Повний текст джерелаOsborne-Lewis, Emily Jane, and Shanta LaShawn Clardy. "The needs of informal grandparent caregivers and how they are met at the Kinship Family Center." CSUSB ScholarWorks, 2005. https://scholarworks.lib.csusb.edu/etd-project/2790.
Повний текст джерелаKoumoutzis, Athena N. "Age Differences in Stressors and Outcomes Among Young Adult, Midlife, and Older Adult Caregivers." Kent State University / OhioLINK, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=kent1553839757877709.
Повний текст джерелаReid, Roxroy Anthony. "Improving the Experiences of Informal and Formal Alzheimer's Disease and Dementias Caregivers." ScholarWorks, 2015. https://scholarworks.waldenu.edu/dissertations/1209.
Повний текст джерелаAl, Awar Zeina. "Using HIT to Support Informal Caregivers of Cancer Patients at Home: a Needs Assessment." Thesis, Université d'Ottawa / University of Ottawa, 2016. http://hdl.handle.net/10393/34112.
Повний текст джерелаWeierbach, Florence M. "Who Provides Care in the Home for the Tri-State Area Elderly: Sn Assessment of Informal Family Caregiver’s Perception of Health?" Digital Commons @ East Tennessee State University, 2013. https://dc.etsu.edu/etsu-works/7401.
Повний текст джерелаSteiner, Adrienne Claire. "The Effect of Family Centered Music Therapy Sessions on Relaxation States of Informal Caregivers of Hospice and Palliative Care Patients." UKnowledge, 2014. http://uknowledge.uky.edu/music_etds/33.
Повний текст джерелаFrank, Kristal L. "A sensemaking exploration of work-eldercare crisis and the co-construction of informal work-eldercare policies." Thesis, Lethbridge, Alta. : University of Lethbridge, Faculty of Management, c2013, 2013. http://hdl.handle.net/10133/3388.
Повний текст джерелаxi, 171 leaves ; 29 cm
Gusdal, Annelie K. "Family caregiving for persons with heart failure : Perspectives of family caregivers, persons with heart failure and registered nurses." Doctoral thesis, Mälardalens högskola, Hälsa och välfärd, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:mdh:diva-35194.
Повний текст джерелаGallrach, Franziska. "Quality of Life of People with Dementia and their Informal Caregivers - A Clinical and Economic Analysis in New Zealand." Thesis, University of Canterbury. Health Sciences Centre, 2010. http://hdl.handle.net/10092/4818.
Повний текст джерелаKjellgren, Josefine, and Carola Crouthon. "Caring for a loved one : A literature review of older familycarers´experiences." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2011. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-1238.
Повний текст джерелаHyde, Emily. "Perception of healthcare professionals and use of formal-informal resources by families with son with chronic mental/physical illness." Virtual Press, 1995. http://liblink.bsu.edu/uhtbin/catkey/1020157.
Повний текст джерелаSchool of Nursing
Joubert, Janetta Debora. "A profile of informal carers in South Africa." Diss., Pretoria : [s.n.], 2005. http://upetd.up.ac.za/thesis/available/etd-12022005-140227.
Повний текст джерелаNicolai, Ingra Venturini. "Fatores de vulnerabilidade e proteção associados à função de cuidador familiar principal de paciente oncológico." Pontifícia Universidade Católica de São Paulo, 2019. https://tede2.pucsp.br/handle/handle/21984.
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Conselho Nacional de Pesquisa e Desenvolvimento Científico e Tecnológico - CNPq
Cancer is an aggressive disease that affects not only the carrier, but your family as a whole. Faced with the diagnosis and possible loss of a loved one, the family experiences moments of extreme suffering, anxiety and insecurities, in a scenario full of doubts and adaptive demands related to the treatment. It is necessary to look and give due attention to family caregivers who, even without having the disease itself, carry it within themselves, with feelings similar to those of the sick person or even more serious than those. It is necessary to look, mainly, for those who dedicate themselves integrally to this care. The present research aims to understand the vulnerability and protection factors associated with the role of the main family caregiver of cancer patients. Twelve family caregivers of cancer patients were interviewed. In the data collection, an interview script was used and active listening was practiced. The analysis was qualitative. The results revealed vulnerability and protection factors associated with the main family caregiver of cancer patients. Lack of information; silence; difficult access to health services; the existence of unprepared professionals; an inflexible and conflicting family structure, are factors that may contribute to the vulnerability of the main family caregiver of cancer patients. On the other hand, easy access to health services; the support offered by trained professionals; knowledge about the disease, treatment and correct information about the patient's clinical condition; self-care; spirituality and religiosity; support groups; a flexible family structure that allows the division of tasks, are factors that can contribute to the protection of the main family caregiver of cancer patients. These results reinforce the need for the caregiver to receive the necessary support to be able to assume this function in a healthy way, predicting physical, psychological and social damages
O câncer é uma doença agressiva que não afeta apenas o portador, mas a sua família como um todo. Frente ao diagnóstico e a possível perda de um ente querido, a família vivencia momentos de extremo sofrimento, ansiedade e inseguranças, em um cenário repleto de dúvidas e exigências adaptativas relacionadas ao tratamento. É necessário olhar e dar a devida atenção aos cuidadores familiares que, mesmo não possuindo a doença propriamente dita, carregam-na dentro de si, com sentimentos semelhantes aos do indivíduo adoecido ou ainda mais graves do que os do mesmo. É necessário olhar, principalmente, para quem se dedica integralmente a esse cuidado. A presente pesquisa tem como objetivo entender quais os fatores de vulnerabilidade e proteção associados à função de cuidador familiar principal de paciente oncológico. Foram entrevistados 12 cuidadores familiares de pacientes oncológicos. Na coleta de dados foi utilizado um roteiro de entrevista e praticada a escuta ativa. A análise foi qualitativa e os resultados revelaram fatores de vulnerabilidade e proteção associados à função de cuidador familiar principal de paciente oncológico. A falta de informação; o silêncio; o difícil acesso aos serviços de saúde; a existência de profissionais despreparados; uma estrutura familiar inflexível e conflituosa, são fatores que podem contribuir para a vulnerabilidade do cuidador familiar principal de paciente oncológico. Por outro lado, o fácil acesso aos serviços de saúde; o suporte oferecido por profissionais preparados; o conhecimento sobre a doença, sobre o tratamento e informações corretas sobre o quadro clínico do paciente; o autocuidado; a espiritualidade e a religiosidade; grupos de apoio; uma estrutura familiar flexível e que permita a divisão de tarefas, são fatores que podem contribuir para a proteção do cuidador familiar principal de paciente oncológico. Resultados estes, que reforçam a necessidade de o cuidador receber o suporte necessário para conseguir assumir essa função de forma saudável, prevendo danos físicos, psíquicos e sociais
Alvarez, Gustafsson Alejandra. "Närståendes erfarenheter av att vårda en anhörig med Alzheimers sjukdom : En litteraturöversikt." Thesis, Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, 2018. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-7443.
Повний текст джерелаMarques, Cristina. "Uma intervenção psicoeducativa na gestão da sobrecarga do cuidador Informal de pessoa com esquizofrenia." Master's thesis, Instituto Politécnico de Setúbal. Escola Superior de Saúde, 2014. http://hdl.handle.net/10400.26/6269.
Повний текст джерелаNo presente trabalho analisamos os possíveis benefícios, de um projeto de intervenção psicoeducativa, na redução da sobrecarga de cuidadores informais de pessoas em situação de esquizofrenia. Sendo a psicoeducação parte integrante dos cuidados de enfermagem especializada em saúde mental e psiquiatria, tentámos confirmar a hipótese experimental de que os cuidadores informais submetidos a um programa psicoeducativo multifamiliar que inclua o utente e também entrevistas de suporte emocional unifamiliar, apresentam maior redução da sobrecarga de que os cuidadores informais que recebem os cuidados habituais num Espaço Terapêutico e Comunitário de Saúde Mental. Para melhor confirmar ou infirmar esta hipótese, na primeira parte deste relatório, apresentamos um estudo de desenho experimental com pré-teste, pós-teste e grupo de controlo randomizado, numa amostragem de 14 cuidadores informais. Estes foram agrupados aleatoriamente em dois grupos, um experimental (N=7) e outro de controlo (N=7). Ao grupo experimental foi realizado um programa multifamiliar psicoeducativo com participação do utente e entrevistas individualizadas de suporte emocional, durante três meses. Como instrumento de colheita de dados, foi utilizado o QPF de Xavier et al (2002). O instrumento foi aplicado com o consentimento informado dos participantes e autorização formal dos responsáveis do serviço, no início e fim do projeto nos dois grupos. Não encontrámos diferenças de médias, estatisticamente significativas (p > .05) entre os dois grupos de investigação, na sobrecarga. Contudo, verificámos que o grupo experimental teve uma diminuição da sobrecarga 10.57% superior ao grupo de controlo. Os dados suportam a decisão de investir em projetos, desta natureza, naquele contexto específico, porque está associado a benefícios na redução da sobrecarga, superiores a 5%. Na segunda parte do relatório, refletimos sobre as principais competências clínicas e científicas desenvolvidas durante o estágio clinico. Estas competências basearam-se em intervenções terapêuticas realizadas com os utentes e seus cuidadores informais que frequentam o Espaço Terapêutico Comunitário. Foi possível desenvolver habilidades no domínio da relação de ajuda existencialista, na psicoeducação familiar, no treino de competências sociais e na metodologia de investigação científica segundo uma abordagem quantitativa.
Abstract: In this paper we analyze the possible benefits of a psychoeducational intervention project, reducing the burden of informal caregivers of people suffering from schizophrenia. Being psychoeducation part of nursing care in specialized mental health and psychiatry, we tried to confirm the experimental hypothesis that informal caregivers undergo a multifamily psychoeducational program that includes user interviews of single-family emotional support, have a higher reduction of overhead that informal caregivers receiving usual care in a Therapeutic Area Community and Mental Health. To better confirm or refute this hypothesis, we used a study of experimental design with pretest and posttest randomized control group, a sample of 14 caregivers. They were grouped randomly into two groups, one experimental group (N = 7) and a control (N = 7). In the experimental group was held multifamily psychoeducational program with participation of the user individualized interviews and emotional support for three months. As an instrument of data collection was used the QPF Xavier et al (2002). It was administered with the informed consent of participants and formal authorization of the responsible service, at the beginning and end of the project in both groups. We did not find differences in means, statistically significant (p> .05) between the two research groups, the overload. However, we have found that the experimental group had a decreased burden 10:57% higher than the control group. The data support the decision to invest in projects of this nature, in that specific context because it is associated with benefits in reducing overhead, greater than 5%. In the second part of the report, we reflect on key clinical and scientific skills developed during the clinical stage. These competencies were based on therapeutic interventions with patients and their informal caregivers attending the Therapeutic Area Community. It was possible to develop skills in the field of helping relationship existentialist in family psychoeducation, training in social skills and methodology of scientific research according to a quantitative approach.
Olai, Lena. "Life after a stroke event with special reference to aspects on prognosis, health and municipality care utilization, and life satisfaction among patients and their informal caregivers /." Doctoral thesis, Uppsala : Acta Universitatis Upsaliensis : Univ.-bibl. [distributör], 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-112875.
Повний текст джерелаEnglund, Jessica, and Ida Norin. "Min familj är drabbad av sjukdom : En litteraturöversikt om anhörigas upplevelse av att vårda en sjuk familjemedlem i hemmet." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-4280.
Повний текст джерелаBackground: Nowadays more people are being cared for in the home which is often considered an important place for both the patient and relatives. When illness hits one family member the relatives plays an essential role. They have to take responsibility for their sick family member and for the home nursing. Nevertheless, it is still the nurse´ task to ensure that the patient and the family experience quality of life and wellbeing. Aim: To describe the family experience of caring for a sick family member at home. Method: This literature review was based on ten scientific articles. These were taken from the databases CINAHL Plus with Full Text and PubMed. Family focused nursing was the theoretical framework that the literature review was proceeded from. Family focused nursing is about the family importance to the patient experience of health and illness. The consensus concepts of caring science were also discussed. Results: Four themes appeared in the result. The first one was emotional impact on the informal caregiver. That theme includes thoughts and feelings that arise when someone takes on the caregiving role. The second one was social impact which is about the family members' social lives and how the informal caregiving role affects them. The third one was changes and that theme is about the contrast between what life was like before the illness struck their family and how life became after the disease entered. The final theme was information and support which included the areas where the family required more help. Discussions: Emotional impact on the informal caregiver and social impacts were discussed on the basis of family focused nursing and the consensus concepts of caring science.
Abika, Angela, and Evakajsa Jönsson. "Hur gör jag för att orka? : Stöd till närstående som vårdar en demenssjuk i hemmet." Thesis, Högskolan i Borås, Akademin för vård, arbetsliv och välfärd, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:hb:diva-11975.
Повний текст джерелаEngström, Lovisa, and Cecilia Hanquist. "Copingstrategier för att bevara psykosocial hälsa för närstående som vårdar patienter med cancersjukdom : - En litteraturöversikt." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2018. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-354130.
Повний текст джерелаBackground: At least every third person will be diagnosed with cancer during his/hers lifetime. Relatives, familymembers and friends to these persons will play a central role in caring. Being a care giving relative, a family member or a friend to a person diagnosed with cancer, is often described as a stressful situation with both mental and physical strain. These strains in close relationships may lead to poor health. How each caregiver chooses to handle the situation is individual and he/she has a responsibility to self-assess health and create strategies to promote these stressful health situations. Aim: The purpose of the study was to describe which coping strategies relatives, familymembers or friends who care for patients with cancer disease use to maintain psychosocial health. Method: A literature review where the articles were evaluated with an analysis model according to Friberg (2012). Articles were read trough, focusing on results, to identify key findings. The results of each article were compiled and related to each other in order to develop new themes. Orem's self-care theory was applied to the resultdiscussion. Result: The results were presented in five main themes; Caregiving and coping, Cognitive coping strategies, Normalizing coping strategies, Instrumental coping strategies and Psychosocial factors. Coping strategies that emerged were redirecting thoughts, positive thinking, faith, hope, acceptance, maintaining routines, strong facade, comparison, support, and information. Other areas found in the results are how relatives, familymembers or friends develop coping strategies and conditions for experiencing support, benefits with care and coping and the relationship with healthcare professionals. Conclusion: The results show a variation in the use of coping strategies as well as differences and similarities in relation to these. Individual's experiences and knowledge play a part in the development of these copingstrategies. Which coping strategies individuals choose also seemed to be linked to their personal resources as well as own skills.
El-Tai, Abdel-Rehim Aisha, and Erik Thörn. "Närståendes upplevelser : I vårdandet av familjemedlemmar med Alzheimers sjukdom En litteraturöversikt." Thesis, Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, 2018. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-7149.
Повний текст джерелаBackground: According to WHO, approximately ten million people are affected by dementia each year, of which 60 to 70 percent are suffering from Alzheimer's disease. In Sweden, every fifth adult is an informal caregiver to someone in their environment. Informal care involves the care that relatives give to their care recipient. At the onset of Alzheimer's disease, the need of closeness to the relatives often increases. The nurse has a health promoting and disease preventing function and has a role as an adviser in which he/she guides the care recipient and their relatives. Aim: The aim was to illustrate the experiences of relatives in caring for family members with Alzheimer´s Disease. Method: A literature review was conducted where ten articles of qualitative design were examined and analyzed according to Friberg. These articles came from the databases Cinahl Complete, Pubmed, Medline and PsychInFO. Keywords used were "Alzheimers Disease", "Experience," "Relatives," and "Family." Results: Four main themes were constructed. The transition from relative to becoming a caregiver, here it emerged that relatives experienced powerlessness, doubt and a loss of autonomy. Dwelling on the past and Feeling worried about the future, relatives experienced a sense of concern for the future both for the care recipient and for themselves. The experience of stigmatization and isolation, relatives felt that they were isolated and felt stigma in society. The loss of togetherness and strengthen it, relatives explained that the relationship with the care recipient changed as a result of the effect of the disease. Discussion: The results was discussed based on Callista Roys theory of adaptation. The discussion was conducted in relation to how the experiences of relatives can be understood based on this theory, and other findings that emerged from the results. Relatives undergo a transition to becoming a caregiver and are in a changing environment where adaptation is sought to find a balance in life. A discussion was held about the nurse's role in the interaction with relatives.
Alves, Nuno Manuel Boieiro. "Cuidando, lado a lado - Otimização de estratégias de atuação na capitação do cuidador informal." Master's thesis, Universidade de Évora, 2018. http://hdl.handle.net/10174/23263.
Повний текст джерелаAvó, Maria Helena Guerreiro Mestre. "Gerir a adultez tardia: os processos de tomada de decisão e acomodação das famílias com idosos dependentes." Master's thesis, Instituto Superior de Ciências Sociais e Políticas, 2009. http://hdl.handle.net/10400.5/2970.
Повний текст джерелаNos países desenvolvidos o envelhecimento demográfico acentuado é motivo de preocupação, aos níveis económico, social e político. As famílias são afectadas nas suas actividades e relações, face ao acréscimo de membros idosos. O papel do cuidador familiar e as suas acomodações, muito importantes para a projecção de políticas sociais, têm sido pouco avaliados cientificamente. Este facto levou à decisão de investigar a perspectiva microssocial da família, numa abordagem do cuidador principal, nas vertentes domiciliar e institucional. O objectivo do estudo foi avaliar os processos de tomada de decisão e acomodação que envolvem o cuidador informal, quando confrontado com uma situação de dependência do familiar idoso. Pretendese contribuir para uma reflexão empírica fundamentada acerca de programas e iniciativas de Politica Social para idosos e famílias cuidadoras. Os dados obtidos sugerem um predomínio de CI do género feminino, que revelou sobrecargas a nível físico e emocional, com acomodações sucessivas para manter o idoso no domicílio ou acompanhá-los na institucionalização. Revelou igualmente gratificação pelo cuidado prestado. Foi transmitido que a insuficiência de respostas exteriores não permite olhar o futuro com confiança. Esta investigação é um estudo exploratório, de abordagem qualitativa, com recolha de dados por entrevista.
In developed countries the accentuated demographic aging causes concern at economical, social and political levels. Family relations and activities are affected with the increasing of elder individuals. The role of the family caregiver and necessary accommodations haven’t been duly evaluated scientifically, which reveals a gap in the projection of social politics. This led to the decision of investigating the family’s micro social perspective. The approach had particular incidence on the main informal caregiver both at home and at an institution. The purpose of this study was to evaluate the processes of decision making and accommodation which involve the caregiving family, when confronted with the elder relative’s dependence. It also intended to contribute to a grounded empirical reflection on the programs and initiatives of Social Politics for the elder and families’ caregivers. The data obtained points out a preponderance of a female gender IC and reveals physical and psychic overloads, with successive accommodations to keep the elder at home or accompany them when institutionalized. It also shows a sense of gratification for the caregiver. It’s clear to the IC that the lack of formal care services doesn’t allow to face the future with optimism. This investigation is an exploratory study, of qualitative approach, with data gathered through interviews.
Borges, Cristiane José. "Estratégias de atenção aos cuidadores informais de idosos: pesquisa participante baseada na comunidade." Universidade Federal de Goiás, 2017. http://repositorio.bc.ufg.br/tede/handle/tede/7325.
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INTRODUCTION: The process of population aging is a worldwide phenomenon and, simultaneously, a new social role emerges - the informal caregiver-, seen as an essential component to promote elderly’s quality of life in some dependency situation at home. OBJECTIVE: To describe the construction and implementation of care and support strategies for elderlies’ informal caregivers through the Community Based Participatory Research. METHOD: A descriptive study guided by Community Based Participatory Research (CBPR) principles and carried out through the organization of a Community Advisory Committee (CAC), which involved academic and community participants. The study was attended by 384 people, nine community partners, 255 professionals working in family health strategies and 120 elderlies’ informal caregivers. The research was divided into the following phases: 1 - establishment of the community partnership; 2 - identification of problems related to elderly’s informal caregiver; 3 - prioritization of problems related to elderly’s informal caregiver; 4 - capacity survey of community strengths, dynamics and resources; 5 – arrangement of strategies, method, support and care interventions to elderly’s informal caregiver; 6 - implementation of strategies, method, support and care interventions to elderly’s informal caregiver; 7 - data analysis by CAC members; 8- dissemination of results obtained with CAC partnership; 9 - maintenance, CAC sustainability and partnerships evaluation. For the results’ analytical process, the content analysis proposed by Bardin was used for qualitative data and the descriptive statistical analysis was used for quantitative data. The Bioecological Theory of Human Development was adopted as a complementary basis for data analysis. RESULTS: Through the CAC constitution, there were identified, in a collective way, 17 problems faced in the elderly’s informal caregiver daily life. The use of the Severity, Urgency and Trend matrix allowed these problems prioritization for decision making. This process mobilized the construction of an action plan composed by five strategies: 1 - teaching of CAC members about the concepts recommended to define the caregiver role; 2 -raising the knowledge of Family Health Strategy professionals about the importance of including the informal caregiver as a care focus; 3 - performance of the 1st Multiprofessional Care Meeting for Elderly and Informal Caregiver; 4 - recording of the city’s informal caregivers of elderly people; 5 - qualification of the elderlies’ informal caregivers. CONCLUSION: The use of Community Based Participatory Research enabled the community partners’ empowerment, that mobilized themselves in support of elderlies’ informal caregivers, developing actions that included the mapping of the city’s informal caregivers of elderly people, mobilization and qualification of the Family Health Strategy professionals, and the organization of care spaces. In this process, it was verified that this research approach strengthens health democratization by promoting greater involvement and social protagonism of community partners, creating ideas and concrete actions for the establishment of care strategies for the elderlies’ informal caregivers.
INTRODUÇÃO: O processo de envelhecimento populacional é um fenômeno mundial e, concomitante a ele, emergiu um novo papel social – o cuidador informal –, visto como uma peça elementar para promover a qualidade de vida do idoso em alguma situação de dependência no domicílio. OBJETIVO: Descrever a construção e a implementação de estratégias de atenção e suporte aos cuidadores informais de idosos por meio da Pesquisa Participante Baseada na Comunidade. MÉTODO: Estudo descritivo guiado pelos princípios da Pesquisa Participante Baseada na Comunidade e realizado a partir da organização de um Comitê de Assessoria Comunitária (CAC), que envolveu participantes acadêmicos e da comunidade. Participaram do estudo 384 pessoas, sendo nove parceiros da comunidade, 255 profissionais que atuam nas estratégias saúde da família e 120 cuidadores informais de idosos. A investigação foi dividida nas seguintes fases: 1 - formação de parceria com a comunidade; 2 - identificação de problemas relacionados ao cuidador informal de idoso; 3 - priorização de problemas relacionados ao cuidador informal de idoso; 4 - levantamento das capacidades de pontos fortes, dinâmicas e recursos da comunidade; 5 - planejamento de estratégias, método e intervenções de atenção ao cuidador informal de idoso; 6 - implementação de estratégias, método e intervenções em atenção ao cuidador informal de idosos; 7 - análise dos dados pelos membros do CAC; 8 - divulgação dos resultados obtidos com a parceria do CAC; 9 - manutenção, sustentabilidade do CAC e avaliação das parcerias. Para o processo analítico dos resultados, utilizou-se a análise de conteúdo proposta por Bardin, para os dados qualitativos, e a análise estatística descritiva, para os dados quantitativos. Adotou-se como fundamentação complementar para análise dos dados a Teoria Bioecológica do Desenvolvimento Humano. RESULTADOS: A partir da constituição do CAC identificaram-se, de maneira coletiva, 17 problemas enfrentados no cotidiano do cuidador informal de idoso. O uso da matriz de Gravidade, Urgência e Tendência possibilitou a priorização desses problemas para a tomada de decisão. Esse processo mobilizou a construção de um plano de ação composto por cinco estratégias: 1 - capacitação dos membros do CAC sobre os conceitos preconizados para definir o papel do cuidador; 2 - sensibilização dos profissionais da Estratégia Saúde da Família sobre a importância de incluir o cuidador informal como alvo de cuidados; 3 - realização do I Encontro Multiprofissional de Atenção à Pessoa Idosa e ao Cuidador Informal; 4 - cadastramento dos cuidadores informais de idosos do município; 5 - qualificação dos cuidadores informais de idosos. CONCLUSÃO: O uso da Pesquisa Participante Baseada na Comunidade possibilitou o empoderamento dos parceiros comunitários que se mobilizaram em prol dos cuidadores informais de idosos, desenvolvendo ações que incluíram o mapeamento dos cuidadores informais no município, a mobilização e a qualificação de profissionais da Estratégia Saúde da Família, e também a organização de espaços de cuidados. Nesse processo, constatou-se que essa abordagem de pesquisa fortalece a democratização da saúde por promover maior envolvimento e protagonismo social dos parceiros da comunidade, gerando ideias e ações concretas para o estabelecimento de estratégias de atenção aos cuidadores informais de idosos.
Ahmed-Dahmane, Imane, and Monica Popescu. "Anhörigvårdare av personer med demens : En litteraturöversikt om anhörigvårdares upplevelser under vårdtiden." Thesis, Högskolan Dalarna, Socialt arbete, 2020. http://urn.kb.se/resolve?urn=urn:nbn:se:du-32542.
Повний текст джерелаFamily caregiving of people with dementia is expected to increase due to a declining public care and a growing number of people suffering from dementia. There is a need for better understanding of the life situation of family caregivers in order to give them the right support. The aim of this literature study is to emphasize the life situation of relatives caring for persons with dementia disease. The methodological approach is thematic analysis av 15 qualitative studies that have been identified after a literature search conducted in three databases. The results are presented in three main themes and five sub-themes. The themes highlight the family caregivers, their experience and the strategies they use to cope with everyday life. The study concludes that the life situation of the family caregivers is individualized. Their support needs are varying according to the development of the dementia disease and the circumstances before the illness.
Lacroix, Victoria. "Usability, efficacy, and perspectives of an Internet-based psycho-educational program for informal caregivers of persons with Alzheimer's disease : the contributions of an iterative user-centered design and a randomized clinical trial." Thesis, Paris 5, 2014. http://www.theses.fr/2014PA05H116/document.
Повний текст джерелаGiven the important consequences of caregiving on the overall health and wellbeing of informal caregivers, the WHO strongly recommends interventions for them. Although Internet-based programs represent a promising tool for overburdened caregivers, little research has been conducted about their design and efficacy. The purpose of this PhD dissertation was to contribute to the knowledge and understanding of the development, evaluation, and implementation process of these programs. For this purpose, we involved forty-nine participants (12 healthcare professionals, 6 caregivers, and 31 healthy older-adults) in the iterative user-centered design process for the development of the Diapason program. The latest version of this program was evaluated in a randomized clinical trial, based on mixed methods research. Forty-nine informal caregivers of persons with Alzheimer's disease were randomly assigned to the experimental (n=25) or control group (n=24). Although the results were non conclusive about the program's efficacy, the experimental group significantly improved their knowledge of the disease (p=0.008 d=0.79). Furthermore the qualitative analysis showed that children of patients were more positive than female spouses caregivers about the usefulness of the program. The findings of this research offer promising perspectives for this kind of interventions, particularly when individualized and centered on the needs of caregivers. This work allows for the understanding and analysis of specific methodological features to develop and evaluate caregivers' interventions
Stacey, Anne Florence. "Measuring the health status of informal and family caregivers - how, what and why." Thesis, 2019. http://hdl.handle.net/2440/123619.
Повний текст джерелаThesis (Ph.D.) -- University of Adelaide, Adelaide Medical School, 2020
Hasselkus, Betty Risteen. "Family caregivers for the elderly at home an ethnography of meaning and informal learning /." 1987. http://catalog.hathitrust.org/api/volumes/oclc/16883174.html.
Повний текст джерелаTypescript. Vita. eContent provider-neutral record in process. Description based on print version record. Includes bibliographical references (leaves 156-166).
Duarte, Isabel Maria Duarte Pulquério. "Mudanças na vida dos familiares cuidadores de doentes com cancro." Master's thesis, 2014. http://hdl.handle.net/10400.12/3763.
Повний текст джерелаCuidar de um familiar que sofre de cancro provoca uma mudança profunda, no modo de organização da família cuidadora, ao nível das necessidades físicas, emocionais e sociais. Embora todos os membros da família sejam influenciados pelas mudanças introduzidas pelo processo da doença, o cuidador principal é especialmente afetado. É ele que vive mais de perto todo o processo e, numa segunda fase, sofre a perda do próprio doente. Pretende-se com este estudo, uma melhor compreensão das vivências e das mudanças mais sentidas na vida dos familiares cuidadores de doentes com cancro. Para o efeito, realizámos um estudo qualitativo, através da análise de um grupo focal de três familiares ex cuidadores de doentes com cancro, assistidos num Hospital no interior do país. Da análise, emergiram temas que tiveram um impacto significativo nas vivências familiares, como sejam os primeiros sintomas do doente, associados ao diagnóstico da doença; mudanças ocorridas no processo inicial, ao nível dos comportamentos, das capacidades físicas e da imagem; mudanças ao nível da reorganização das famílias para o processo de cuidar. O desgaste emocional, associado à adaptação às perdas em vida e após a morte, teve uma ampla manifestação. Ao longo de todo o processo existem momentos de grande dualidade de sentimentos, a vida passa a ser em função do doente, face à necessidade de cuidar e à sua eminente perda. O ex cuidador revelou sofrimento decorrente da sobrecarga vivida, com especial enfoque na quebra das rotinas e na reorganização da sua vida para cuidar.
ABSTRACT: Caring for a family member who suffers from cancer causes a profound change in the way the family is organized. Although all members of the family are influenced by the changing circumstances necessarily introduced by the disease process, the primary caregiver is especially affected. It is he/she who lives more closely the whole process and, subsequently, suffer the loss of the patient himself. The purpose of this study is understand better the experiences and changes in the lives of family caregivers of cancer patients. To this end, we conducted a qualitative study through the analysis of a focus group of three former family caregivers of cancer patients, assisted in a hospital in the countryside. From the analysis, themes emerged such as changes in the disease process, whether at the level of behavior, body image; reorganization of the families towards the care process. The adaptation to the losses in before and after death, as well as coping strategies and the pain of loss, were widely expressed. Throughout the process, there are moments of great duality of feelings, given the need to care for the patient and their imminent loss. Due to burdensome changes a certain level of distress was witnessed in their recollection of the caregiving experiences.
Mnisi, Daphney Martha Abigail. "The characteristics, attitudes and perceptions of informal caregivers caring for a mentally ill family member : a study in Dennilton." Thesis, 2011. http://hdl.handle.net/10500/6041.
Повний текст джерелаSociology
M.A. Soc.
Browning, Sean. "The mental health and well-being of informal caregivers in Europe: regime type, intersectionality, and the stress process." Thesis, 2021. http://hdl.handle.net/1828/12877.
Повний текст джерелаGraduate
Luh, Ray-Ling, and 陸瑞玲. "The Relationship among quality of life, Resilience, Family function in informal caregivers of people with dementia: The Stress Process Model Perspective." Thesis, 2019. http://ndltd.ncl.edu.tw/handle/pnup2q.
Повний текст джерела國立陽明大學
護理學系
107
Background: Dementia is one of the most debilitating and burdensome health conditions worldwide. In Taiwan, the number of people suffering from dementia has gradually increased. For primary caregivers, caring for family members with dementia is a long and arduous process; they will experience physical, psychological, and social difficulties. Purposes: This study examined the quality of life of family caregivers of people with dementia (PWD) as well as the application of a stress process model to explore its influencing factors. Furthermore, this study examined the mediating effects of resilience and family function of caregivers of the quality of life outcomes. Method: This study employed a cross-sectional research design. A sample of 221 caregivers was recruited from one medical center and a community from northern Taiwan; a self-administered questionnaire was distributed to them. Results: The overall quality of life of caregivers with the following demographics was very poor (mean: 43.98, standard deviation: 11.26, range: 16–80): female, aged > 70 years, junior high school education (including below), married, or a very poor pre-existing relationship with PWD. The more neuropsychiatric symptoms that PWD exhibit, and the lower their instrumental activities of daily living (IADL) function are, the worse the quality of life is for their family caregivers; furthermore, the more care that family caregivers are required to provide, the higher their degree of depression is, and thus, the worse their quality of life is. Next, the results of the mediation effects were examined; the neuropsychiatric symptoms of PWD, care burden of family caregivers, degree of depression, and quality of life of caregivers were partially mediated through resilience and family function; moreover, PWD’s IADL and quality of life were completely mediated through resilience and family functions. Conclusions: The results can help researchers understand the quality of life of family caregivers, which in particular can help to improve their leisure activities, quality of sleep, and interpersonal relationships. In addition, this study demonstrated and enhanced the resilience of family caregivers as well as the importance of improving family function to the quality of life of caregivers. Moreover, this paper provides specific recommendations for future research and clinical applications.
Alves, Cynthia Ann. "A pessoa idosa em situação de fim de vida no domicílio : estudo de caso." Master's thesis, 2012. http://hdl.handle.net/10400.3/3209.
Повний текст джерелаA dissertação de mestrado aqui apresentada visa compreender a experiência de cuidar a pessoa idosa em situação de fim de vida no domicílio na perspectiva dos diversos intervenientes: família com o papel de cuidadores informais, outros familiares, e profissionais de saúde que acompanharam o processo. O presente estudo de caso consiste na experiência de uma família e de profissionais de saúde no acompanhamento e cuidado de uma pessoa idosa em situação de fim de vida no domicílio, nos Açores. Para a obtenção dos dados, foram utilizados vários instrumentos: entrevistas aos familiares cuidadores da pessoa idosa em fim de vida no domicílio, entrevistas aos profissionais de saúde que acompanharam o caso, relatos experienciais escritos de outros familiares, processo clínico da idosa em situação de fim de vida, diário do cuidador informal e testemunho do marido (cuidador principal). As principais conclusões apontam para os seguintes aspectos: a) A pessoa idosa em situação de fim de vida no domicílio apresenta necessidades físicas, psicológicas e emocionais, e sociais; b) Existem factores intrínsecos e extrínsecos que levam a família a cuidar da pessoa idosa em fim de vida no domicílio; c) Os familiares, enquanto cuidavam da pessoa idosa no domicílio, desenvolveram sentimentos intensos, quer negativos e/ou difíceis de gerir, quer positivos e recompensadores; d) Na assistência à pessoa idosa em fim de vida no domicílio, a família experienciou sobretudo necessidades de informação, orientação e apoio; e) Segundo a família, os profissionais de saúde estabeleceram uma relação de ajuda com a pessoa idosa e com a família, existindo, por parte da família, um reconhecimento pelo apoio prestado pelos profissionais de saúde; f) Os profissionais de saúde que acompanharam a pessoa idosa em fim de vida no domicílio, e os seus familiares, valorizaram a formação que possuíam em cuidados paliativos, o trabalho em equipa e o papel da família da pessoa idosa.
ABSTRACT: The presentation presented here seeks to understand the experience of caring for an older person nearing the end of life, at home, in the perspective of various participants: the family, playing the role of informal caregivers, other family members and health care professionals that have accompanied the process. This case study reports the experience of a family and health care professionals in monitoring and caring for an older person nearing the end of life, at home, in the Azores. To obtain the data, several instruments were used such as: interviews with family caregivers of the older person nearing the end of life, at home; interviews with health care professionals who have followed the case; experiential reports written by other family members; the clinical process of the older person nearing the end of life; diary of the informal caregiver and her husband’s testimony (the main caregiver). The main findings presented lead to the following aspects: a) The older person nearing the end of life at home has physical, psychological, emotional and social needs; b) There are intrinsic and extrinsic factors that lead the family to care for the older person nearing the end of life at home; c) The family, while caring for the older person at home, developed intense feelings, whether negative and/or difficult to manage, or positive and rewarding; d) In assisting the older person nearing the end of life at home, the family has experienced, above all, the necessity of being informed, guided and supported; e) According to the family, health care professionals have established a relationship of assistance with the older person and the family. In this case, the family develops a feeling of recognition of the support provided by health care professionals; f) Health care professionals, who have followed the older person nearing the end of life at home, as well as her family members, valued their training in palliative care, team work and the role played by the family of the older person.
Stacey, Anne F. "Enhancing the health of informal carers : implications for general practice, policy and public health in the 21st century / by A.F. Stacey." 2002. http://hdl.handle.net/2440/21860.
Повний текст джерелаBibliography: p. 347-360.
xiii, 360, [200] p. : ill. ; 30 cm.
Title page, contents and abstract only. The complete thesis in print form is available from the University Library.
Thesis (M.Med.Sc.)--University of Adelaide, Dept. of Public Health, 2002
Stacey, Anne F. "Enhancing the health of informal carers : implications for general practice, policy and public health in the 21st century / by A.F. Stacey." Thesis, 2002. http://hdl.handle.net/2440/21860.
Повний текст джерелаLilly, Meredith Lenore. "The Labour Supply of Unpaid Caregivers in Canada." Thesis, 2008. http://hdl.handle.net/1807/11226.
Повний текст джерелаMkhonta, Nkosazana Ruth. "Guidelines for support of orphaned and vulnerable children being cared for by their grandparents in the informal settlements of Mbabane, Swaziland." Thesis, 2008. http://hdl.handle.net/10500/2958.
Повний текст джерелаHealth Studies
D. Litt. et Phil. (Health Studies)
English, Christine. "Ontario’s Home First Approach, Care Transitions, and the Provision of Care: The Perspectives of Home First Clients and Their Family Caregivers." Thesis, 2013. http://hdl.handle.net/1974/8037.
Повний текст джерелаThesis (Master, Rehabilitation Science) -- Queen's University, 2013-05-23 16:10:53.323
Michálková, Šárka. "Význam podpory pečujících osob." Master's thesis, 2016. http://www.nusl.cz/ntk/nusl-345060.
Повний текст джерелаBerthelot-Raffard, (née Jeanne-Rose) Agnès. "La reconnaissance des aidants informels : care, justice et vulnérabilité dans la famille." Thèse, 2012. http://hdl.handle.net/1866/9082.
Повний текст джерелаIn the 90's, ambulatory transfer increased care-giving at home in a period where paradoxically the population is ageing. Even though, this policy will allow a better distribution between formal and informal care, we must remain cautious on its actual consequences when families are confronted during a long term to a disease of one of its members. One real consequence is that the increased caregivers’ vulnerability. Due to the awareness of the aging population and the need for progress in research on neurodegenerative diseases, some politicians have committed to make of informal caregivers one topic of current interest. However, it is not so. How to express the vulnerability of caregivers and to emphasize that its overcoming represents an important social justice issue? Such is the key issue of this research. My goal is to demonstrate how public policies on dependency have consequences on private choice and by the way on caregiver's opportunity. This dissertation explores the way in which the labor of caregivers would be recognized in a just society. Caregivers who provide care for their own children, a disabled member of their family or older have less income and wealth, lower status, and fewer job opportunities than non-caregivers An adequate theory of justice should recognize these disadvantages as injustices In particular, it should allow caregivers to choose to take care of to a dependent person. I study this question in two parts. In the first section, I explore the moral issues of informal care in order to overcome assumptions that impede a proper understanding of this topic. The second part offers a political thought in order to show that this issue is not only confined to the domestic sphere and it relates to society. It is about reconciliation between care and justice that it could be resolved. Why care should be the heart of justice? This analysis opens a review of our responsibility to protect the vulnerable and questioning the secondary dependence associated with work done with these people.
Doctorat réalisé en cotutelle avec l’Université Paris I- Panthéon Sorbonne.
Bakalarczyk, Rafał. "Polityka wsparcia nieformalnych opiekunów niesamodzielnych osób starszych. Na podstawie zmian prawnych w latach 2003-2015." Doctoral thesis, 2016.
Знайти повний текст джерелаThe subject of dissertation is policy of support to informal carers of infirm elderly people in Poland. The analysis refers to the years 2003-2015. The main purpose is to explore and to describe the subject, but also to provide some tool to analyse, evaluate and project policy in that field in the future. First chapter starts with the description of categories such as long-term care and the risk of infirmity. Then, author moves to the description of being the carer of elderly person as a social risk. He distinguishes three aspects of that risk: poverty risk, poorer situation on labour market and risk of losing the health and psycho-social wellbeing of carer. Next, author shows the scale the risk of infirmity among elderly people in Poland and the way their caring needs are met. Finally, author examines what may be the reason for a huge role of family in polish long-term system concerning the elderly people. He points and elaborates three hypothetical factors that lead to family oriented model of elderly care in Poland: historically and traditionally rooted, social expectations that caring for the elderly family, the limits of formal care provision and access and the shape of law regulations that favour care provided by social actors form close surrounding, not public institutions.The second chapter is devoted to the goals and instruments of support to the informal caregivers. After enumerating the goals that can orientate such policy, author focuses on the question of the forms of support and their typologies. He decides to use his own way of dividing the forms of support into two groups: material and financial on the one hand, and the non-material on the second. The profound analysis of certain forms of support of both type in reference to the polish system of support to the carers leads to conclusion that system in Poland is based on material (especially financial) support, meanwhile the non-material help is not well-developed. In the third chapter author describes the evolution of policy of financial support to caregivers, considering the changes in regulatons, processes that stimulated that changes (such as social protests) and critical discussion about it. The most precise analysis refers to the years 2013-2015, when author used to participate in social dialogue between government and the representatives of carers. The analysis leads to the conclusion that main subject of the legislative changes and the argues between government and caregivers representation referred to the generosity of benefits and the conditions used to check who is eligible to support. The last chapter focuses on the criteria used to limit the access and the generosity of benefits. Author, divides the criteria into tree broad groups: socio-economic, caring, and social-family criteria. He examines which of them (and in what form) are used in polish policy and analyse the advantages and disadvantages of using them. Much attention is put on the income-test and the condition of total resignation from labour market activities, that are two main condition of getting support to carers according to national law.The final part includes not only conclusion but several recommendations on what direction the system should be reshaped in the future in order to gain the goals of support policy and to counteract the social risk of carer in the dimensions, mentioned in previous chapters.
Martins, Maria de Fátima Baptista Pereira. "Cuidadores informais de idosos dependentes: um estudo na freguesia dos Olivais, Lisboa." Master's thesis, 2016. http://hdl.handle.net/10071/12953.
Повний текст джерелаThe population in Portugal is aging and the trend is that aging increases in the coming years. This new reality brought new challenges especially the need for existence of informal caregivers for the elderly with dependence. The study was developed in the parish of Olivais in Lisbon because the proportion of elderly is higher than that found in Portugal, for the existing close relationship between the researcher and the object under study and the knowledge that the researcher have of the observed reality. Although there are already several studies on this subject it is thought that this becomes relevant because it was applied in an urban area where the age structure of the population is aging. Our methodological choice was a qualitative study, and we used a semistructured interview. For the analysis of the responses was used the technique of content analysis. Another technique used was participant observation. The target caregivers of this study were approached personally by the researcher / author of this dissertation in the consultations of the Family Health Unit Gardens of the Encarnação, Lisbon. The sampling method used was the not random or not probabilistic. The sample of convenience consisting of 17 caregivers who agreed to participate in the study. According to the results we can conclude that the provision of informal care is entirely the responsibility of family members and the same is true for their parents. In relation to age, we found that the age of caregivers is between 47 and 63 years, giving an average of 55 years. Most caregivers are women despite the males begin to show in care. Regarding the geographical proximity to the elderly caregivers live close. Regarding marital status married assume greater proportion. In care, we found that most caregivers of dependent elderly do it more than four years ago. The main motivation is the affective. On the negative aspects of informal caregivers of dependent elderly relate changes in personal life. On the impacts felt in care highlights the emotional overload.
Santos, Dina Isabel Francisco Alberto. "As vivências do cuidador informal na prestação de cuidados ao idoso dependente : um estudo no Concelho da Lourinhã." Master's thesis, 2008. http://hdl.handle.net/10400.2/732.
Повний текст джерелаO cuidar é comum a todas as culturas, embora as suas formas de expressão possam ser as mais variadas; cabe à família esse papel, pois é essencialmente ela que executa e se responsabiliza pelo cuidado. A prestação de cuidados requer um esforço contínuo ao nível cognitivo, emocional e físico, muitas vezes não reconhecido e inadequadamente recompensado. Cuidar de quem cuida é também uma responsabilidade e deverá ser uma preocupação de todos nós, bem como dos decisores políticos. Os cuidadores familiares representam novos desafios para a sociedade. Esta investigação teve como questão central analisar em que medida as vivências do cuidar influenciam a vida do cuidador informal familiar principal do idoso dependente, inseridos no Programa Cuidados Continuados do Centro de Saúde da Lourinhã. Os objectivos do estudo passaram por conhecer as vivências sentidas pelo cuidador informal familiar principal, no cuidar do idoso dependente, inserido no Programa de Cuidados Continuados do Centro de Saúde da Lourinhã; compreender de que forma o cuidar afecta a vida do cuidador; contribuir para a proposta de elaboração de programas de apoio para os cuidadores familiares no Centro de Saúde da Lourinhã. O estudo foi realizado na região da Estremadura de Portugal, na região Oeste, concelho da Lourinhã. A população do estudo é de trinta cuidadores informais familiares principais de idosos dependentes, inseridos no Programa de Cuidados Continuados do Centro de Saúde da Lourinhã, sendo constituído por uma amostra de conveniência. A nossa opção metodológica situa-se na triangulação dos modelos quantitativos e qualitativos. Os instrumentos utilizados para a recolha de dados foram a entrevista semi-estruturada e a escala de Zarit Caregiver Burden Interview. No tratamento dos dados, utilizámos a estatística descritiva e a análise de conteúdo. As entrevistas foram realizadas no domicílio do cuidador, durante os meses de Abril a Maio de 2007. Os cuidadores são predominantemente do sexo feminino, uma vez que é a mulher que continua a deter o papel de cuidadora, embora o homem se esteja a revelar nesse processo, ainda não assume a proporção dos cuidadores do sexo feminino. A faixa etária varia entre os 30 e os 82 anos. A maioria é casada, ou seja, dividem as responsabilidades da casa e da família com as actividades de cuidados. Quanto ao grau de parentesco com o idoso, a maior percentagem, são filhas, seguidas pelos cônjuges. Os resultados obtidos revelam que os motivos que levaram o cuidador a aceitar cuidar do idoso dependente foram o agravamento do estado de saúde do idoso, dever/obrigação, a ausência de outra resposta e o afecto/reciprocidade. As dificuldades sentidas pelo cuidador foram a fadiga, doença, sobrecarga ligada ao tipo de trabalho executado, a não-aceitação do estado de dependência do idoso. O apoio cedido por parte da rede informal que assume maior evidência é o emocional/ psicológico. As mudanças sentidas pelo facto do cuidador prestar cuidados ao idoso passam por alterações ao nível familiar, com maior incidência numa maior aproximação entre o cuidador e o idoso e um afastamento por parte da rede informal familiar. Ao nível das alterações da rotina diária verificamos que o cuidador refere ter menor disponibilidade de tempo para si próprio, bem como uma menor disponibilidade de tempo para a execução das actividades domésticas. No âmbito profissional, em algumas situações o cuidador foi obrigado a renunciar ao emprego, faltar ao trabalho e/ ou ajustar o seu horário de acordo com as necessidades do idoso dependente. Na saúde, verificamos alterações no domínio físico e psicológico. Por último, no campo social evidenciou-se uma restrição na actividade social do prestador de cuidados
Caring is a common activity in all cultures, although there are many different ways of providing people what they need for their health. It is a role that belongs to the family since it is usually the main responsible for the act of caring. Taking care for somebody requires a continuous cognitive, emotional and physical effort that is not always appreciated nor appropriately rewarded by society. Taking care for somebody who cares is also a great responsibility and should be a matter of worrying for all of us, citizens, as well as for politicians. The family members who care for a relative are a new challenge to our society. This investigation was based on a particular issue: analysing how the experience of taking care for a relative may influence the caregiver’s life. These carers are part of the “Cuidados Continuados do Centro de Saúde da Lourinhã", (a continuous caring program, carried out in Lourinhã). We had different purposes when we undertook this study: identifying the experiences related to the individuals who take care for a dependent elder relative; understanding how taking care for a relative may influence the caregiver’s life; and helping to prepare supporting programmes addressed to the caregivers that are related to Lourinhã’s cottage hospital. The study was done in Lourinhã, a region that is part of an area called Estremadura, in the west of Portugal. The sample of our study consists of thirty people, who care for a dependent elder relative, and that are part of the “Programa de Cuidados Continuados do Centro de Saúde da Lourinhã". The method chosen is part of a triangle based on quantitative and qualitative models. The tools used in order to collect the necessary data were the interview and the Scale of Zarit Caregiver Burden Interview. When analysing the data, we used the descriptive statistics and the analyses of content. The interviews were undertaken at the caregiver’s home, during April and May 2007. The carers are predominantly women, since they are still the ones who hold the responsibility for taking care for elder relatives most of the times. Although men are beginning to get involved in this process, they are part of a smaller group. The age of these people varies among 30 and 82 years old. The majority is married, which means they have to deal with responsibilities related to both housework and care. Most of these women are daughters of the individuals who are provided with care, or their wives (although in a fewer number). The statistics show us that the reasons why the caregiver accepts the task of caring for a dependent elder person are related to his/her bad health; to the feelings of duty, affection and reciprocity; and to the lack of appropriate answers outside home. The problems identified by these carers have to do with the overload/burden that derives from the activities performed and with the nonacceptance of the dependency of the elderly. The main support given by the informal network is related to emotional and psychological issues. Therefore, the needs identified by the carers are more likely to be solved with the support of the informal network. The changes that derive from the act of caring from an old person have to do with family: there is often an approach between the carer and the old person and a growing distance among the carer and the other members of the family. As far as the carer’s daily routine is concerned, there is usually a lack of time to take care of him/ herself, as well as to do housework. Regarding the professional situation of the carer, we realized that there are people who have to give up working, miss work frequently or change his/ her timetable according to the dependent old person’s needs. We also realized that there are physical and psychological changes in terms of health. Finally, there are changes within the social life of the carer, who doesn’t have time to take part in social events
Roy, Lina. "L’expression de l’identité d’aidant dont le proche est atteint de la maladie d’Alzheimer." Thèse, 2012. http://hdl.handle.net/1866/12828.
Повний текст джерелаKaplanová, Tereza. "Možnosti podpory pro pečující rodiny o dospělé osoby s těžkým zdravotním postižením." Master's thesis, 2021. http://www.nusl.cz/ntk/nusl-446461.
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