Статті в журналах з теми "Dependency (Psychology) in old age – Congresses"

In recent years much has been written about old age dependency and the need for greater emphasis on individual and familial responsibility for supporting elderly persons as opposed to state responsibility. We argue that old age dependency is not a new problem and that there was communal responsibility—as opposed to strictly privitized responsibility—for elderly persons in the past.

ABSTRACTOne of the principal motives behind pension reform in Britain in the post-war era has been to reduce dependence on means-tested assistance. Alternating attempts have been made to attain this objective through State and occupational collectivism but with only partial success. The present Government has shifted the emphasis away from collective provision towards individual saving promoted in the form of portable pensions. However, recent research has underlined the importance of structural determinants of dependency on means-tested assistance in retirement and of other factors over which individuals have little if any control. In the light of these findings questions are raised about the potential effectiveness of portable and occupational pensions as mechanisms for reducing future dependency on means-tested supplementation.

ABSTRACTThe concept of dependency is involved in two strands of the literature on old age, and is used in each with a different effect. In the literature on ‘structured dependency’ the concept is used to describe and criticise a relationship between elderly people and the state that is determined by social policy. In the literature on ‘dependency scales’ the concept is used as a basis for categorising elderly people for research, planning and service purposes. More recent commentary on the role of the concept in relation to elderly people suggests that dependency needs to be understood in a fuller way if it is to be useful in understanding the situation of elderly people in contemporary society. This paper develops the idea that dependency refers to a form of relationship characterised by an unequal distribution of power.

AbstractThis paper is concerned with the interlinked issues of citizenship and the structured dependency of older people within Social Gerontology. It argues that implicit in much British Social Gerontology is a strategy of advancing the wellbeing of elderly people through the extension of citizenship rights. Absence of these rights leads to poverty, exclusion and ageism being commonplace experiences of large sections of the older population. This approach draws heavily on the ideas regarding social citizenship of T. H. Marshall who has influenced much mainstream social policy in Britain since 1945. Changes to the Welfare State since 1979 have seriously questioned the validity of this approach and many of these criticisms apply to the structured dependency approach. Recent work on citizenship can help us to see how the relationship between old age and citizenship has changed and how far theory in social gerontology needs to change to take account of these new circumstances.

AbstractThe present study aims to compare the suicide rates in people over 85 years of age in relation to overall suicide rates in different European countries. In addition, the study aims to perform a preliminary analysis of which socioeconomic factors could explain higher suicide rates in this age group in Europe. An analysis of the Eurostat database has been made. In this pilot phase, certain socioeconomic variables representative of people over 85 years of age were chosen based on criteria of suitability, according to the bibliography available for other regions and availability of the information provided. The conditional suicide rate in this age group with respect to the overall suicide rate in each country has been calculated. Furthermore, Spearman correlations between the suicide rates in this age group and the chosen socioeconomic factors were performed. Conditional suicide rates in people over 85 years of age show a marked difference between southern and northern European countries. In the correlational analysis, suicide in this age group was associated with different economic ratios, the old-age dependency ratio, and the self-perceived health ratio. After performing a multivariate regression, the model that best explained the differences between the European countries included the variables "old-age dependency ratio" and "economic impossibility to buy new clothes ratio.” Different socioeconomic factors, specifically poverty and economic inequality, added to the old-age dependency ratio, could explain huge differences between the suicide rates in people over 85 years of age in the different European countries.

ABSTRACTThis paper reports on a longitudinal study of old people over the age of sixty-five living in rural Wales. Particular attention is paid to those who were over eighty in 1983, compared with the 1979 over-eighties. Whilst the findings demonstrate increased inputs of statutory domiciliary support with increased dependency, such support is clearly supplementary to the role of informal services. The paper shows that despite increased levels of dependency amongst the old elderly, levels of domiciliary services have not kept pace. Rationing mechanisms appear to focus services on the over-eighty-fives so that levels of support to younger age groups are essentially reduced.

Throughout Western history scholars and writers have characterized old age as a period of a second childhood and childish behavior. The second childhood stereotype has endured and finds expression in numerous works of literature, in a variety of historical contexts including ancient through contemporary times. Explanations for this stereotype were linked to the humoral theory of aging, the perceived and actual dependency of older people for care, dementia, and other ties between childhood and old age. The second childhood was also interpreted as a stage of life where the lifecycle returned to its beginning. The stereotype, while predominantly viewed as negative, may also be viewed in a positive light and underscores the duality and ambiguity that characterized the way older people have been viewed in Western history. The stereotype, while enduring, may have been more prevalent during certain periods, such as those periods when older people were devalued. Cultural representations and more importantly interpretations have also varied within historical context.

Positive psychiatry and the related positive psychology are offering a much needed alternative framework through which to view the psychology of old age (Jeste et al., 2015). Traditional models of old age tend to approach the subject from a negative view point where themes of dependency and decline can be common (Cumming and Henry, 1961). In contrast, positive psychiatry and psychology refer to the scientific study of strengths and capabilities that contribute to well-being (Seligman, 1998). Some of these can be thought of as character strengths and evidence suggests that concepts such as hope, humour, integrity, and gratitude are universal, with examples documented in at least 54 nations across the world (Park et al., 2006). Researchers aligned to these theoretical models seek to explore complex approaches to measuring and improving mental health, recognizing that well-being is often a dynamic interplay between positive and negative psychological processes and outcomes (Lomas and Ivtzan, 2016).

ABSTRACTSecond couplehood in old age is a growing phenomenon alongside increases in life expectancy. Lately, a shift has occurred in that individual diversity of ageing is perceived to depend on the physical and social contexts in which older persons experience change. Thus, the purpose of the study on which this paper reports was to examine second couplehood in the context of old age and old age in the context of second couplehood using an existential-phenomenological theoretical orientation. Twenty couples were recruited using criterion-sampling: men aged 65+ and women aged 60+, with children and grandchildren from a lifelong marriage that had ended in widowhood or divorce, living in second couplehood – married or not – in separate houses or co-habitating. Forty individual semi-structured interviews were tape-recorded, transcribed verbatim and analysed according to phenomenological tradition. Five sub-themes emerged, demonstrating couplehood and old age intertwining: (a) enjoying life while still possible; (b) living with health-related issues; (c) relationships with adult children: autonomy versus dependency; (d) loneliness: living as a couple is better than living alone; (e) self-image: feeling young–feeling old. Findings support the existence of positive and negative aspects of old age. Our discussion suggests the need to replace perceptions of old age as either a negative burden or a positive asset towards a period of balancing between gains and losses. Furthermore, we acknowledge the role of second couplehood in older peoples’ wellbeing on the personal–micro level through love, the familial–mezzo level through care-giving and the social–macro level by reducing prejudice.

Online social network is one of the biggest Internet phenomenon, which has attracted the interest of many marketers and psychologists who wanted to understand social network users? behavior. Recognizing the lack of theoretical and empirical attention that has been given to this field, especially in Vietnam market, this study was conducted to examine the relationships among social benefits, online social network dependency,satisfaction, and youth?s habit formation in the context of Facebook. The findings of the study of 200 Facebook users indicated that the interrelationship among four factors of social benefits, online social network dependency, satisfaction, and habit formation affect each other. Indeed, dependency on online social network among the youth whose age ranged from 16 to 24 years old is significantly affected by social benefits factor and leads to the formation of habit. In addition, satisfaction plays a role in determining habitual Facebook use. This paper discusses theoretical and practical implication in marketing and psychology field.

ABSTRACTPublic discourses concerning older people are available in a variety of texts, including popular media, and these discourses position older people with particular age identities. This study examined discursive formations of ageing and age identities in print media in Ireland. Constituting a single media event, newspaper texts concerned with revised welfare provision for older people were subjected to critical discourse analysis and revealed particular ways of naming and referencing older people and distinct constructions of ageing and age identities. The use of nouns and phrases to name and reference older people positioned them as a distinct demographic group and a latent ageism was discernible in texts that deployed collective names like ‘grannies and grandads’ and ‘little old ladies’. Five distinct identity types were available in the texts, variously constructing older people as ‘victims’; ‘frail, infirm and vulnerable’; ‘radicalised citizens’; ‘deserving old’ and ‘undeserving old’. The discourses made available subject positions that collectively produced identities of implied dependency and otherness, thereby placing older people outside mainstream Irish society. The proposition that older people might be healthy, self-reliant and capable of autonomous living was largely absent in the discourses. Newspaper discourses betray taken-for-granted assumptions and reveal dominant social constructions of ageing and age identity that have consequences for older people's behaviour and for the way that society behaves towards them.

AbstractObjective: Two day hospitals were established in North Dublin in 1989 to play a key role in the first old age psychiatry service in the Republic of Ireland. The purpose of this study was to identify the characteristics and needs of day hospital attenders, to carry out a preliminary evaluation of the role of the day hospitals in meeting these needs, and make recommendations for future developments. Method: All 237 regular attenders between March 1989 and 1992 were included. Demographic, social, medical and psychiatric data including CAGE questionnaire, Folstein mini-mental state, and Clifton Assessment Procedures for the Elderly survey version, were recorded at initial assessment. Data on duration and outcome of attendance, use of inpatient, general hospital and community care services were collected from a retrospective study of records and subjected to statistical analysis. Results: The average age was 78 years (SD 6yrs); 139 (59%) patients had organic and 98 (41%) had functional psychiatric disorders; 198 (84%) patients had a medical problem. In the functional group, 24 (25%) required acute admission; 70 (71%) patients were managed in the community. Twenty eight (29%) patients required residential care or had died on average 8 months after initial contact. In the group with dementia 104 (75%) had CAPE scores C/D/E at initial assessment, indicating high dependency. Eighty eight (63%) patients were in residential care or dead on average 8 months later. Conclusions: Day hospital treatment enabled elderly patients with functional psychiatric illness to be treated in the community with low usage of beds. It provided only short/medium term care for patients with dementia, who had little support from statutory services. A comprehensive network of services is necessary to support highly dependent patients in the community.

ABSTRACTThe Sociology and Social Policy Research Unit of the Berlin Aging Study focuses on four substantive areas: (1) life course antecedents and generational experiences, (2) later phases of the family life course, (3) action resources and social participation, and (4) economic situations and the provision of care. This paper reports results on the relationship between social and economic inequality and differential ageing, using the BASE multidisciplinary Intake Assessment (N = 360). The socio-economic position of older people is measured along three dimensions: economic resources, social status and prestige, and cultural status. Several ageing outcomes are considered, including functional physical health, cognitive functioning and mental health, overall subjective well-being, social autonomy and dependency. First, we show that old people as a group are neither socially nor economically homogeneous: very old women possess unusually low economic resources; and cohort differences in educational attainment are carried into old age. Second, cognitive functioning and mental health are positively correlated with socio-economic resources, while functional physical health is not. For women, socio-economic resources slightly affect overall subjective well-being, and are linked to the likelihood of living in a nursing home. We speculate that the wide availability of compulsory health insurance reduces social differentials in physical health and that these inequalities may determine who survives into old age.

This study addresses depression in late adulthood within the context of Blatt's (1974; 1991) theory of development and vulnerabilities to depression. Participants were a sample of 237 Israeli community-dwelling old adults (age 65–75) in good health and functioning well. The authors assumed that in this developmental period, normally beset with questions about self-identity and interpersonal relatedness, the associations among Self-criticism, the Neediness component of dependency, and depressive symptomatology are moderated by participants' perceived social support as well as by their fear of death. As expected, the correlational results confirmed that depression in late adulthood is associated with Self-criticism, Neediness, fear of death, and low perceived social support. Additional results illustrated the protective role of Efficacy and Connectedness, as well as the buffering roles of social support and low fear of death in the relation between vulnerabilities to depression and depressive symptoms in late adulthood. The overall findings highlight the relevance of personality vulnerability factors in depression in late adulthood and the need to consider a range of moderating factors that may serve to protectively buffer or exacerbate the impact of personality vulnerability factors.

ABSTRACTIn order to analyse the allocation of public care services in the city of Solna, Sweden, and how they changed in response to a rapid growth of the number of elderly people, a comparison was made between two surveys, 1985 and 1991.The surveys comprised all citizens of Solna who, on the day of the survey, were receiving long-term public medical and/or social care services. Living arrangements and services received were registered together with assessments of social support and disability/dependency. The latter was measured according to a special scale (the ASIM index) and – for 1991 – the Katz index of ADL. The assessments were made by the ordinary staff. The analysis showed that older and non-married persons were more likely to become clients of the public care system. Institutionalisation was also more common among the non-married – especially for men.Connected to the rapid increase in the number of the very old in the context of limited resources was a sharp decline during the period 1985–1991 in the proportion of the Solna population that received public care services in some form. This decline concerned all age-groups of both sexes, married as well as non-married, but the married were more affected than the non-married – especially among the women. The reductions in the proportion of the population that received care in the home affected mostly married persons in the oldest age group. Reductions in institutionalisation had most impact on very old, non-married men – partly counteracted by increases in the provision of home help. Multivariate analysis showed functional disability – in 1991 dependency in ADL according to Katz - and living arrangements to be the most important variables in explaining the allocation of home help in domiciliary care and sheltered housing.

AbstractCritical concern with infantilisation practices—i.e. the tendency to treat older people as if they are dependent children—has for the most part concentrated on the negative associations between infantilisation and dependency in later life. Infantilisation is usually defined as an unwelcome imposition on older men and women who are often portrayed as relatively powerless to resist. Whilst the negative consequences of enforced infantilisation must not be ignored there are also occasions when infantilisation may be regarded as a voluntary or chosen mode of resistance on the part of older people to the decrements and external impositions of later life. The concept of infantilisation may therefore be enlarged to include modes of resistance involving processes of mutual identification of the old with the young; in certain instances even as a form of conspiracy between these two age groups against the wider society. This paper therefore pursues fictional images of such rapport as they occur in a selection of the ‘William’ stories written by Richmal Crompton during the period from 1919 up to her death in 1969, and with an appeal which continues up to the present day. The argument is that these stories of alliances between boyhood and ‘elders’ may be regarded as vivid examples (a repository of positive images) of what may be described as ‘positive infantilisation’: that is to say, of consciousness of the independence of subjective selfhood from the ageing body in the face of the misperceptions and misleading stereotypes of the ‘mature’ adult world.

Background: Behavioral and psychological symptoms of dementia (BPSD) commonly occur among cognitively impaired people in geriatric care. BPSD are often managed with antipsychotic drugs, despite the associated serious health risks. The aim of the present study was to discover factors associated with the use of antipsychotics.Methods: A cross-sectional study in all geriatric care units in the county of Västerbotten, Sweden, which included 2017 residents aged 65 years and over with cognitive impairment (mean age was 83.5 years). Data were collected from prescription records and observations made by care staff of BPSD among residents during the preceding week. A multivariate regression model was con-structed to find factors independently associated with antipsychotic drug use.Results: Eleven factors were independently associated with the use of antipsychotics. Aggressive, verbally disruptive and wandering behavior, hallucinatory and depressive symptoms, male sex, living in a group dwelling for people with dementia, imposed mental workload, the ability to rise from a chair, activities of daily living (ADL) dependency and lower age all correlated significantly.Conclusions: Antipsychotic drug treatment of old people with cognitive impairment in geriatric care is common, and determined not only by the patient's symptoms but also by factors related more closely to the caregiver and the caring situation. These findings raise important questions about the indications for drug treatment in relation to the patient's quality of life.

Abstract Background After China entered an aging society and gradually implemented the two child and three child policy, the population dependency ratio and population structure of Yunnan Province have changed. According to the data of the seventh national census, the age structure of the population in Yunnan Province is unreasonable, the aging process is accelerated, and there are intergenerational conflicts and contradictions in the upbringing relationship between the elderly and young people, especially negative factors, which also have a significant impact on the social and economic development of Yunnan Province. Research Objects and Methods In order to understand the new changes and their causes, this paper uses the population data of Yunnan Province from 1999 to 2019, as well as variables such as total population dependency ratio, resident happiness index, natural population growth rate, unemployment rate, average life expectancy, urbanization rate, child birth rate, birth rate, social security and employment expenditure, which are selected from the perspective of positive psychology. Through the preprocessing, correlation and multicollinearity test of time series data, the ADL model is established to analyze the changes of population dependency ratio and structure in Yunnan Province, and explore the influencing factors and degree from the perspective of positive psychological emotion regulation. The life satisfaction scale is the life satisfaction scale (SWLS) compiled by dinner et al. There are five items in the scale, which are scored by Likert 7 points. 1 ~ 7 represent “very disagree” to “very agree” respectively. Calculate the average score of the five items. The higher the score, the higher the degree of life satisfaction. The internal consistency of life satisfaction scale in this study α the coefficient is 0.820. Results Through the intuitive analysis of the population data of Yunnan Province from 1999 to 2019, the results showed that the dependency ratio of the total population in Yunnan Province decreased slowly. The dependency ratio of children decreased rapidly, while the dependency ratio of the elderly increased slowly. Yunnan may enter the dilemma of “getting old before getting rich”. Whether now or in the future, it will pose great challenges to economic, social and public governance, especially to the establishment of harmonious family intergenerational relations. Through the analysis of ADL model, the results show that the changes of population dependency ratio and population structure in Yunnan Province are affected by factors such as residents' happiness index, unemployment rate, life expectancy and urbanization rate. The impact of residents' happiness index on population dependency ratio is long-term. The simple effect analysis of interaction found that for the non depressed population, there were significant differences in the emotional state of the subjects in the frustration inducing stage among the control group, conscious distraction group and unconscious distraction group (f (2,51) = 11.98, P < 0.001), η p2=0.52). Bonferroni's post hoc test showed that the scores of PA in conscious attention dispersion group (P < 0.001) and unconscious attention dispersion group (P < 0.05) were significantly higher than those in control group (M = 25.03, SD = 4.14), while there was no significant difference between unconscious attention dispersion group (M = 36.13, SD = 7.47) and conscious attention dispersion group (M = 37.33, SD = 6.93) (P = 0.67). It can be further seen from Figure 5 that both conscious and unconscious attention dispersion can effectively improve the positive mood of non depressed people. For depressed people, there was significant difference in emotional state among control group, conscious attention dispersion group and unconscious attention dispersion group after frustration induction (f (2,51) = 7.02, P < 0.05, η p2= 0.39). Bonferroni's post hoc test showed that the score of PA in unconscious attention dispersion group (M = 33.17, SD = 7.41) was significantly higher than that in control group (P < 0.05) and conscious attention dispersion group (P < 0.05), while there was no significant difference in emotional state between control group (M = 22.94, SD = 3.85) and conscious attention dispersion group (M = 27.29, SD = 6.73) (P = 1.00). It shows that only unconscious attention dispersion can effectively improve the positive emotion of depressed people. Similarly, ANOVA was performed on the negative emotion index Na of Panas. The results showed that group (f (2111) = 8.41, P < 0.05, η the main effect of P2 = 0.18) was significant, the main effect of population (f (1111) = 1.98, P = 0.17) was not significant, and the interaction of group * population was not significant (f (2111) = 2.60, P = 0.08). After the scores of trait anxiety, state anxiety, expression inhibition, acceptance and action scale were included in the covariates, only the main effect of the group was significant (f (2107) = 11.73, P < 0.001), η p2=0.32). Bonferroni's post hoc analysis of the main effect of the group showed that the scores of Na in conscious attention dispersion group (P < 0.001) and unconscious attention dispersion group (P < 0.001) were significantly lower than those in the control group (M = 27.21, SD = 8.49), while there was no significant difference between conscious attention dispersion group (M = 20.16, SD = 7.26) and unconscious attention dispersion group (M = 19.19, SD = 5.11) (P = 0.62) This shows that both conscious and unconscious attention dispersion can effectively reduce the self-assessment intensity of negative emotions, and their regulatory effects are similar for depressed and non depressed people. Conclusion Therefore, from the perspective of positive psychology, this paper puts forward the ways to improve the effect of young and middle-aged childbearing age in Yunnan Province from the aspects of developing individual positive psychological quality, improving family members' subjective well-being and improving the effect of young and middle-aged childbearing age in Yunnan Province. Create harmony between man and social environment. It aims to help Yunnan society, families and families establish harmonious parent-child relations for generations and promote the coordinated development of social economy in Yunnan Province. Acknowledgements Supported by a project grant from national Innovation and entrepreneurship training program (Grant No. DCXM165002).

The concept of androgyny appears in social psychology as an adaptive mixture of masculine and feminine traits unlinked to any age-specific schedule of development. The life cycle developmental view of androgyny is that sex-typed behavior is found early in the life cycle, in response to the “chronic emergency of parenthood,” but that in later life each sex recaptures the prerogatives surrendered earlier in adulthood—women recovering managerial, assertive traits, and men becoming more responsive to their needs for nurturance and dependency. This article proposes a reconciliation of social and developmental models of androgyny based on an analysis of Greek tragedy. The Bacchae, written by Euripides in his old age, suggests that the androgynous individual is advantaged throughout the life cycle, as social psychologists would claim today. However, the fate of Pentheus at the hands of Dionysus suggests that anxieties over the androgynous potential of the self may be heightened in young adulthood and ebb later in life, consistent with developmental observations of sex-typed behavior in young adulthood which gives way to the “normal unisex of later life.” A review of androgyny in psychoanalytic theory and literary criticism shows that recognition of androgyny is not new, but that each recognition has been short-lived—a problem in the sociology of knowledge which suggests that the fear of androgyny reaches into the scientific community.

ABSTRACTWhether life is spent in good health or disability has a critical influence on the use of health-care services. It is also known that average healthy life expectancy differs by sex. This paper reports estimations of healthy and unhealthy life expectancy in old age using self-reported health assessments for the City of São Paulo, Brazil in 2000–01. The data derived from the Health, Well-being and Aging in Latin America and the Caribbean Project (SABE), and from population censuses and mortality statistics. Sullivan's estimation method was used. It combines the age-specific schedule of the current probabilities of death with the prevalence of self-perceived ‘poor’ and ‘good’ health. The paper also reports multivariate analyses of the factors associated with variations by age group and sex in self-perceived health. The findings revealed that, at all ages, women live longer than men and for more years in a healthy state. Among men, those aged 60, 65 and 70 years were expected to live a higher percentage of their remaining life than women in a healthy state, but among those aged 75, 80 and 85 years, the opposite held. Among women, the percentage of remaining years that were unhealthy did not increase as age increased, which differs from previous findings. The multivariate analyses showed that with increasing age, for women the number of chronic diseases decreased but dependency increased, and for men the opposite held. This finding indicated that the percentage of life spent in poor self-perceived health more accurately predicts mortality in men than women.

ABSTRACTWorldwide, lifespan is lengthening. Concomitantly, late-life dementias are increasingly common, challenging both personal and public health internationally. After age 65, rates of dementia tend to double every five years in developed countries and every seven in developing ones. The late-life dementias, particularly Alzheimer's disease, have profound effects on aging individuals and their caregivers. Multidisciplinary research has explored the potential for various approaches to prevent or delay the onset of late-life dementias. Outlining that research, including our team's Adult Changes in Thought and Kame studies, this review concludes that delaying the onset of these dementias appears feasible, although absolute prevention may not be. Today, the most promising methods appear to include controlling vascular risk factors like hypertension and engaging in physical exercise – and possibly mental exercise. If people can delay the onset of dementias, they can lead more fulfilling lives for longer, spending less time suffering from dementia and letting their families spend less time coping with the disease. It is possible that trends toward more knowledge-based societies, where cognitive health is so vital, may increasingly exert evolutionary pressure favoring larger and healthier brains – and a “compression of cognitive morbidity” – well into old age. Public health's great triumph, increased lifespan, should give more of the world's people the reward of many years of dementia-free life. Rather than the personal difficulties and public health burdens of many years of functional impairment, dependency, and suffering with dementia, some interventions may delay the onset of Alzheimer's disease and other dementias.

This paper focuses on the circumstances of death and dying in old age. It considers the ways in which social policies and social gerontology reflect the values of independence, autonomy and citizenship, and it considers the implication of these values for older people who are dependent on others for care and support at the end-of-life. It discusses the complexity of the relationship between ageing and dying, by exploring recent research from the fields of social gerontology and the sociology of death and dying. Arguing that a long-term perspective is required to understand fully the circumstances of older people's deaths, it analyses the third age/fourth age dichotomy as a conceptual model. The task of developing knowledge about the links between ageing and dying requires consideration of moral and ethical principles. The article examines the conceptual frameworks developed by feminists who argue for an ethics of care as a central analytic referent in social policy. The feminist ethics-of-care approach provides a powerful critique of the moral framework of independence and autonomy as characterised in contemporary policies and practices. Feminist ethicists argue that the inter-relatedness of human beings and the importance of the social context have been overlooked in the preoccupation with individual rights – as reflected more generally in policies and social life. It is argued in the paper that the need for care at the end-of-life highlights these shortcomings. The feminist ethics of care has considerable potential to illuminate our understanding of dependency and care, and to generate both new approaches to policy and practice in health and social care and theoretical perspectives in gerontology.

ABSTRACTDespite major shifts in the position of older people in British society during the first half of the twentieth century, accounts of the emergence of retirement pensions have ignored the role of old age pressure groups, preferring arguments which emphasise structured dependency rather than human agency. By contrast, this paper examines the political campaigns mounted by two groups – one claiming to speak on behalf of older people, the other composed of older people themselves. The failure of both groups to influence major policy decisions relates not to the passivity or ‘silent suffering’ of older people, or to ‘generational equity’ criteria which privileged younger, unemployed workers, but to the inadequacies of their different styles of campaigning. While the National Conference, in the decade after 1916, focused their moral invective around notions of thrift which failed to arouse or articulate the needs of all but the most ‘respectable aged Britishers’, the uncompromising, combative approach of the National Federation during the critical years leading up to the Beveridge legislation incurred the disdain of policymakers. In the intervening years, trade union activity was underlain by mixed motives. While the historical specificity of the movements and debates that are discussed is significant, the generationally specific lifetime experiences of the older people in question to some extent determined their character.

AbstractAcross Europe a rising number of migrants are reaching higher ages. As old age is related to care dependency, care-giving within migrant families is becoming more important. To date, little research has focused on health outcomes for migrant care-givers. Theories and empirical evidence suggest differences in the relationship of care-giving and health between migrants and non-migrants due to differences in support, income, norms and values. Furthermore, across Europe the degree of formal care supply and the obligation to provide informal care vary considerably and presumably lead to different health outcomes of care-giving in different countries. Based on data from the Survey of Health, Ageing and Retirement in Europe (Waves 1, 2, 4, 5 and 6) and the English Longitudinal Study of Ageing (Waves 2–6), this paper studies the relationship between informal care-giving inside the household and health for migrant and non-migrant care-givers across Europe and analyses changes in health. In most countries migrant care-givers are in worse self-perceived and mental health compared to non-migrant care-givers. When controlling for important influences no differences in the relationship between health and care-giving for migrants and non-migrants can be found. Moreover, care-giving deteriorates mental health irrespective of origin. The country models showed that for non-migrants care-giving is most detrimental in Southern welfare states whereas for migrants care-giving is also burdening in Nordic welfare states.

Introduction: Chronic pain in sickle cell disease (SCD) is a multifactorial complication that can contribute to high healthcare utilization. Multidisciplinary treatments going beyond medication alone are needed for the most effective chronic pain management. Cognitive-behavioral therapy (CBT) is effective for youth with chronic pain and focuses on improving daily functioning and coping, but the clinical effectiveness for chronic SCD pain has not been evaluated. This study examined changes in healthcare use over time for youth with chronic SCD pain who participated in CBT compared to controls with chronic SCD pain who never initiated CBT. Methods: Youth receiving care at comprehensive SCD clinics at three tertiary care locations at Children's Healthcare of Atlanta were included if they were aged 6-18 years, any SCD genotype, and referred to a pediatric psychology outpatient clinic for chronic pain management from November 2014-March 2018. Youth were excluded if they received bone marrow transplantation during the study period, had ongoing CBT past the study period, or were not actively followed for ≥1 year of medical care pre- or post-CBT. Patients were grouped based on therapy attendance: Established Care (i.e., attended ≥3 CBT sessions within 3 consecutive months); Early Termination (i.e., attended <3 CBT sessions within 3 consecutive months); or Control (i.e., did not attend any CBT visits). Patient-reported outcomes included typical pain intensity, functional disability, and coping efficacy at pre- and post-treatment. Healthcare utilization outcomes were abstracted from electronic medical records including: number of inpatient admissions for pain, total inpatient days for pain, and emergency department dependency ratio (EDR; ratio of ED visits to sum of ED and outpatient visits). For the treatment groups, utilization outcomes were calculated from 12-months prior to the first CBT visit, and from 12-months following the last CBT visit. For the control group, outcomes were calculated for 12-months prior to the referral date, and from 12-months following the average duration of CBT for treatment groups (i.e., 3.5 months) to account for passage of time. Changes over time in inpatient admissions, hospital days, and EDR were evaluated separately using linear mixed effect models with a random effect for person-specific intercepts and slopes, which were retained based on model contribution determined by Bayesian Information Criterion. Time, patient characteristics, SCD-modifying treatments, therapy attendance, number of CBT sessions, and interaction effects were initially included in the models; the most parsimonious models were chosen based on backward selection. Results: At time of referral, youth (n=101) were on average (M) 13.4 years old (SD=2.92), 56.4% female, 68.1% HbSS or HbSβ0, 63.9% prescribed hydroxyurea, and 12.6% received chronic transfusions. The Control (n=44) and Treatment Groups (n=57) did not significantly differ by age, sex, genotype, or treatment with hydroxyurea or chronic transfusion. Based on therapy attendance, 36.1% Established Care, 21.8% were Early Termination, and 42% Controls. Adjusting for age, genotype, and hydroxyurea, patients who terminated CBT early had increased admissions and total hospital days over time compared to controls; those who established care had a reduction in admissions and hospital days over time compared to controls (F's=3.27-3.61, p's<.05). EDR decreased by 0.1 over time for Established Care; for every 1 completed CBT session, EDR was further reduced by 0.01 (p<.05). Patients who completed CBT (n=18) reported decreases in typical pain intensity (Mpre= 5.47, SD=2.24; Mpost=3.76, SD=2.84; p<.01), functional disability (Mpre=26.24, SD=8.45; Mpost=15.18, SD=10.85; p<.001), and improved coping efficacy (Mpre=8.0, SD=2.21; Mpost=9.65, SD=2.94; p<.05) from pre- to post-treatment. Conclusions: Establishing care in CBT may support reductions in admissions for pain, length of stay, and ED dependency for youth with chronic SCD pain beyond the potential effects of age, genotype, and SCD-modifying treatments. Reductions in utilization may be partially supported by patient-reported improvements in functioning, coping, and lower pain intensity following CBT. Reducing barriers to access and enhancing clinical implementation of multidisciplinary treatments may optimize the health of youth with chronic SCD pain. Disclosures Lane: NHLBI: Research Funding; CDC: Research Funding; GA Dept: Other: Contract for newborn screeninjg follow-up services services; Bio Products Laboratory: Other: Sickle Cell Advisory Board; FORMA Therapeutics: Other: Clinical Advisory Board. Dampier:Pfizer: Consultancy, Membership on an entity's Board of Directors or advisory committees, Research Funding; Micelle BioPharma: Consultancy, Membership on an entity's Board of Directors or advisory committees, Research Funding; Global Blood Therapeutics: Consultancy; Epizyme: Consultancy; Novartis: Consultancy, Membership on an entity's Board of Directors or advisory committees, Research Funding; Katz Foundation: Research Funding; Modus Therapeutics: Consultancy; NIH: Research Funding; Merck: Research Funding.

Abstract Objectives The fourth age is considered a life stage with a high likelihood of age-related losses. However, very old age extends over decades, and little is known about how transitions that may happen during this age period (e.g., developing support needs or adopting caregiving roles) or lack thereof might change perceptions of age-related gains or losses. Many subjective age scales assume implicitly that they work across advanced old age, but data to support this assumption are scarce. This study reports findings on (1) diverging, age-specific understandings of age-related change and (2) whether very old adults’ functional health, received social support, and caregiving roles, rather than chronological age, account for such differences. Method Data came from the nationally representative survey “Old Age in Germany D80+” conducted in 2020/2021, comprising 10,578 individuals aged 80–106 years. Results At equivalent levels of perceived gains and losses, adults in the early fourth age reported more “freedom in daily life,” less “dependency on others,” and fewer “needs to reduce activities,” whereas adults in the late fourth age reported more “appreciation of others.” Chronological age as such was not the primary source of this response shift. Rather, functional health, social support, and caregiving responsibilities accounted for the differences in how older adults interpreted and reported specific age-related gains and losses. Discussion Findings underscore that across the multiple decades of the fourth age, interpretations of aging experiences vary and depend on a person’s own late-life health and functioning and on that of significant others.

Visual perception of space and time has been shown to rely on context dependency, an inferential process by which the average magnitude of a series of stimuli previously experienced acts as a prior during perception. This article aims to investigate the presence and evolution of this phenomenon in early aging. Two groups of participants belonging to two different age ranges (Young Adults: average age 28.8 years old; Older Adults: average age 62.8 years old) participated in the study performing a discrimination and a reproduction task, both in a spatial and temporal conditions. In particular, they were asked to evaluate lengths in the spatial domain and interval durations in the temporal one. Early aging resulted to be associated to a general decline of the perceptual acuity, which is particularly evident in the temporal condition. The context dependency phenomenon was preserved also during aging, maintaining similar levels as those exhibited by the younger group in both space and time perception. However, the older group showed a greater variability in context dependency among participants, perhaps due to different strategies used to face a higher uncertainty in the perceptual process.

ObjectiveTo investigate the changing trend of Chinese couples' marital satisfaction and its relationship with social changes.MethodsA cross-temporal meta-analysis was performed on 118 original studies (n = 31,909) reporting marital satisfaction of Chinese couples from 1994 to 2020, primarily using correlation analysis and regression analysis.Results(1) Overall, the marital satisfaction of Chinese couples showed a downward trend over time. (2) Men's marital satisfaction displayed almost no change, while women's marital satisfaction had a more obvious downward trend. (3) Changes in macrosocial factors (per capita consumption expenditure, housing prices, old-age dependency ratio, and divorce rate) could significantly predict the downward trend of marital satisfaction, especially for women.ConclusionIn the past 27 years, the overall marital satisfaction level of Chinese couples has shown a downward trend, and there are gendered differences, which may be related to changes in the socioeconomic and cultural environments.

Advanced old age has been characterized as a biologically highly vulnerable life phase. Biological, morbidity-, and cognitive impairment-related factors play an important role as mortality predictors among very old adults. However, it is largely unknown whether previous findings confirming the role of different wellbeing domains for mortality translate to survival among the oldest-old individuals. Moreover, the distinction established in the wellbeing literature between hedonic and eudaimonic wellbeing as well as the consideration of within-person variability of potentially relevant mortality predictors has not sufficiently been addressed in prior mortality research. In this study, we examined a broad set of hedonic and eudaimonic wellbeing indicators, including their levels, their changes, as well as their within-person variability, as predictors of all-cause mortality in a sample of very old individuals. We used data from the LateLine study, a 7-year longitudinal study based on a sample of n = 124 individuals who were living alone and who were aged 87–97 years (M = 90.6, SD = 2.9) at baseline. Study participants provided up to 16 measurement occasions (mean number of measurement occasions per individual = 5.50, SD = 4.79) between 2009 and 2016. Dates of death were available for 118 individuals (95.2%) who had deceased between 2009 and 2021. We ran longitudinal multilevel structural equation models and specified between-person level differences, within-person long-term linear change trends, as well as the “detrended” within-person variability in three indicators of hedonic (i.e., life satisfaction and positive and negative affect) and four indicators of eudaimonic wellbeing (i.e., purpose in life, autonomy, environmental mastery, and self-acceptance) as all-cause mortality predictors. Controlling for age, gender, education, and physical condition and testing our sets of hedonic and eudaimonic indictors separately in terms of their mortality impact, solely one eudaimonic wellbeing indicator, namely, autonomy, showed significant effects on survival. Surprisingly, autonomy appeared “paradoxically” related with mortality, with high individual levels and intraindividual highly stable perceptions of autonomy being associated with a shorter residual lifetime. Thus, it seems plausible that accepting dependency and changing perceptions of autonomy over time in accordance with objectively remaining capabilities might become adaptive for survival in very old age.

Abstract Ideas of well-being in old age are often anchored in the successful ageing paradigm, foregrounding independence, activeness and autonomy. However, for those oldest old living in nursing homes, these goals are largely out of reach. In this article, we use the meta-ethnographic method to explore and reinterpret existing findings on the ways in which well-being is experienced (or not) by the oldest old in institutional care settings. We frame our findings in existential well-being theory, which understands wellbeing as a sense of ‘dwelling-mobility’. Our analysis resulted in the following themes: (a) institutionalisation as both restrictive and liberating; (b) reciprocity and mattering: the importance of being seen; (c) the need for kinship and the problem of ruptured sociality; (d) rethinking agency: situated, delegated and supported; and (e) lowered expectations: receiving care is not a passive act. We conclude that while institutional care environments are not always conducive to well-being, this does not have to be so. By shifting our focus from successful ageing ideals onto relationally situated care practices, a possibility for existential well-being opens up, even in situations of decline and care dependency.

Infants show impressive speech decoding abilities and detect acoustic regularities that highlight the syntactic relations of a language, often coded via non-adjacent dependencies (NADs, e.g., is singing). It has been claimed that infants learn NADs implicitly and associatively through passive listening and that there is a shift from effortless associative learning to a more controlled learning of NADs after the age of 2 years, potentially driven by the maturation of the prefrontal cortex. To investigate if older children are able to learn NADs, Lammertink et al. (2019) recently developed a word-monitoring serial reaction time (SRT) task and could show that 6–11-year-old children learned the NADs, as their reaction times (RTs) increased then they were presented with violated NADs. In the current study we adapted their experimental paradigm and tested NAD learning in a younger group of 52 children between the age of 4–8 years in a remote, web-based, game-like setting (whack-a-mole). Children were exposed to Italian phrases containing NADs and had to monitor the occurrence of a target syllable, which was the second element of the NAD. After exposure, children did a “Stem Completion” task in which they were presented with the first element of the NAD and had to choose the second element of the NAD to complete the stimuli. Our findings show that, despite large variability in the data, children aged 4–8 years are sensitive to NADs; they show the expected differences in r RTs in the SRT task and could transfer the NAD-rule in the Stem Completion task. We discuss these results with respect to the development of NAD dependency learning in childhood and the practical impact and limitations of collecting these data in a web-based setting.

The increase in ageing societies is posing new and urgent societal and political challenges to meeting people’s medical, personal, and social needs in old age. Ageing should not be considered a uniform phase of life and at least three phases should be distinguished: (a) silver age, (b) the mildly frail age, and (c) those at risk of dependency. Policy tools and logics should prevent and support specific needs in a life‐course approach and the preventive approach is seen as among the most useful interventions, with a baseline objective to promote ageing in place, minimize the institutionalization of care, and prevent psychophysical deterioration by supporting older people and their families through tailor‐made approaches and policies. Our study focuses on the project Invecchiare bene/Bien vieillir (ageing well) funded by Interreg Alcotra France–Italy and implemented in the Valleys of Monviso in northern Italy. The project targets older people living at home in mountainous areas, where healthy ageing is difficult due to chronic diseases and social isolation. This article presents an analysis of preventive‐based interventions and services that promote innovative ageing policies and investigates the involvement of the local community and how it can lead to the deployment of new preventive measures. The research covers the direct impact on the health and living conditions of the recipients (older people) and innovation by the local care model (among social workers and the local community). Qualitative (documentary analysis, semi‐structured interviews, and focus groups) as well as quantitative (questionnaire and secondary data analysis) methods were used.

Abstract Objectives Although prior research has detected a step-gap in intergenerational relationships in various aspects, there is a lack of studies examining adult children’s support toward their biological parents and stepparents. We investigated (i) whether adult children provide more support to their biological parents than stepparents; and (ii) whether the childhood co-residence duration is associated with the support given to stepparents. Methods The data was drawn from the German Family Panel (pairfam). Upward support was indicated by using three different measures, namely, financial, practical, and emotional support provided by adult children to their biological parents and stepparents. A path analysis was conducted to detect the potential differences regarding upward support. Results More support was channeled toward the biological parents than the stepparents. Moreover, the length of co-residence during childhood and adolescence was positively associated with the frequency of support provided toward the stepparents. Consequently, an increased childhood co-residence duration decreased the step-gap in upward support, although it did not fully eliminate it. Discussion The findings showed that stepparents are in a more disadvantaged position than the biological parents regarding receiving support from their adult children. In the context of a high old-age dependency ratio, it is important to recognize that stepparents may not have the opportunity to receive adequate support from their families as compared to individuals with biological children.

AbstractMotivating older employees both to prolong their working lives and to stay active even after retirement has become increasingly important due to rising old-age dependency ratios. Later life work—including both paid work and volunteering—has thus become an important topic for scholars and practitioners. We aim to extend research on later life work by hypothesizing that psychological empowerment at work increases not only desired and actual retirement ages but also levels of later life work. Second, we test differential effects of psychological empowerment on later life work, expecting it to be more strongly related to paid work after retirement (i.e., bridge employment) than to volunteering. Third, we suggest that the relationship between psychological empowerment and bridge employment depends on the employees’ level of physical limitations. We used data from a longitudinal panel study in Germany in which structured telephone interviews were conducted. A sample of older individuals who had retired between two waves of measurement was drawn (time lag: three years; n = 210). The results of a path analysis support the postulated mediation. Furthermore, as expected, psychological empowerment more accurately predicted bridge employment than volunteering, and physical limitations moderated the relationship between psychological empowerment and bridge employment. Lastly, additional analyses on the individual empowerment facets revealed that only the competence facet played a significant role in the proposed hypotheses. Overall, our findings suggest that psychological empowerment may help to increase older employees’ motivation to delay retirement and to stay active even after retirement.

Abstract Care strategies for older dependants are determined by not only individuals or network characteristics, but also contextual factors. The objective of this study is to determine whether urban contexts (neighbourhoods) are linked to the use of family care (informal), public services or private care at home (formal). We applied logistic regression analysis to data from the Survey of People in a Situation of Dependence 2018. The sample was composed of 530 older people (55 years old and over) living in two types of socio-economic groups of neighbourhoods in Barcelona, Spain. The type of neighbourhood is relevant in explaining the home care that older dependants receive. In neighbourhoods with a high socio-economic level, dependants are more likely to use private services and less likely to use informal care services and public services, even after controlling for household income, degree of dependency, sex, age and the number of people in the household. Understanding the factors that determine the use of public care services, private care services or family care-giving is important due to the increment in the number of older people in the population. Our results suggest that differences in urban socio-economic contexts determine some inequalities in the use of services even after controlling for socio-economic individual differences. The characteristics of neighbourhoods should be considered to adjust care policies for older dependants.

Purpose This study aims to reflect on how the COVID-19 pandemic has intensified the social and economic vulnerability of Indian elderly women, thereby making them prone to varied forms of abuse and denying them of the basic rights of secured existence. Design/methodology/approach This study was conducted by analyzing primary data from government sources that dealt with the aging Indian population and the common predicaments that elderly women experienced during the pandemic. A qualitative interview was conducted in three old-age homes in India where the experiences of 26 elderly female residents were documented for understanding their experiences during the pandemic. The secondary data collected from different newspaper articles and online resources also enabled in perusing the difficulties that they faced both at home and the caregiving space at the critical juncture of COVID-19. Findings Nearly 73% of the elderly population in the country has faced an incidence in different forms of abuse and exploitation during the subsequent waves of the pandemic. Disrespect and neglect were the most common type of mistreatment and around 23.1% reported physical assault. The elderly women were victimized further on socioeconomic grounds and their rights of living a secured and dignified life were significantly neglected. Research limitations/implications The basic premise of this paper operates on the ground that the family as an institution has shunned taking care of the responsibilities vis-a-vis the elderly and therefore formal institutions have been introduced to aid in the conventional caretaking responsibilities in the Indian societal structure. This situation became all the more grave during the pandemic and therefore needed much intervention. This paper follows the theoretical lens of gender theory and case study method to analyze the data. Social implications The HelpAge India report findings entail that elderly women/widows are doubly marginalized in the Indian society, and the COVID-19 pandemic has escalated the caregiver stress on manifold levels, thus exacerbating the problem. As most of the female senior citizens are economically dependent on their children and relatives, financial exploitation became one of the important premise that deprived them of a healthy living both at home and elderly caregiving institution. Despite the prevalence of certain elderly assistance schemes in the country, the older women’s needs and well-being got heavily impacted and their voice gets hardly recognized in the wider spectrum of sociopolitical events. To extend the requisite help and assistance to this socially vulnerable section, the government on September, 2021, launched a pan-India, toll-free helpline number “Elder Line” to provide relevant information on elderly legal and medical aid and guidance on procuring pension. Originality/value According to the secondary findings, a significant percentage of elderly women have been susceptible to physical and emotional abuse and factors such as widowhood, economic dependency, physical infirmity, cognitive impairment along with other stressors have aggravated their exposure to ill-treatment during the pandemic span. Thus, to recognize and mitigate the existing problems affecting the elderly subjects, the government should devise the necessary protocols and adopt essential measures to ensure the welfare of the marginalized section and protect their basic rights of a holistic existence.

The ProjectThe Hand Up Linkage project focuses on the family as a communication context through which to explore the dynamics of intergenerational welfare dependency. In particular, it explores ways that creative life-course interventions might allow children in welfare dependent families to construct alternative realities for themselves and alternative views of their future. Formed through an alliance between a key Western Australian social welfare not-for-profit organisation, St Vincent de Paul WA (SVDPWA and also, in the context of volunteers, ‘Vinnies’), and Edith Cowan University, the project aims to address the organisation’s vision to provide “a hand up” (St Vincent 1) rather than ‘a hand out’, so that people can move forward with their lives without becoming dependent upon welfare. Prior to the start of the research, SVDPWA already had a whole of family focus in its outreach to poverty-impacted families including offering homework clubs and school holiday children’s camps run by their youth services division. Selected families supported by SVDPWA have been invited to participate in an in-depth interview for the project (Seidman), partly so that researchers can help identify “turning points” (King et al.) that might disrupt the communication of welfare dependency and inform more generalised intervention strategies; but also in order to explore the response to creative interventions within the children’s daily lives, including investigation of how strategies the child (and family) employed might help them to imagine alternative realities and futures for themselves. This paper closely examines the way that one 10 year old child from a non-English-speaking background family has employed alternative ways of viewing her life, through the camp program provided by the Linkage Partner St Vincent de Paul WA, and through reading novels such as Harry Potter and the Lemony Snicket Unfortunate Incidents series. Such activities help fuel hope for a different future which, in Snyder’s view has “two main components: the ability to plan pathways to desired goals despite obstacles, and agency or motivation to use those pathways” (Carr 96).The FamilyKani is a 10 year old girl living in a migrant sole parent family. The parents had moved to Australia from Bangladesh on student visas when Kani was 5 years old, however due to domestic violence the mother had recently separated from her husband, first into a women’s refuge then into private rental accommodation. The mother is in protracted negotiations with the Department of Immigration for permanent residency, which she had to recommence due to her separation. There are also family court negotiations for child custody and which restrict her leaving Australia. She receives no government benefits and minimal child support, works fulltime and pays full childcare fees for Kani’s 3 year old brother Adil and full primary school fees for Kani at a local religious school, given that Kani had experienced bullying and social aggression in previous schools. Kani was referred to SVDPWA by the women’s refuge and she began attending SVDPWA Kids’ Camps thereafter. (NB: Whilst the relevant specifics of this description are accurate, non-relevant material has been added or changed to protect the child’s and family’s identity.)Creative Life-Course InterventionsThe creative engagement that Kani experienced in the Hand Up project is constructed as one component in a larger model of creativity which includes “intrapersonal insights and interpretations, which often live only within the person who created them,” (Kaufman and Beghetto 4). Such an approach also acknowledges Csikszentmihalyi’s work on the concept of “flow”, whereby optimal experiences can result from positive absorption in a creative activity. Relevant Australian research such as the YouthWorx project has identified participatory engagement in creativity as one means of engaging with young people at risk (Hopkins; Podkalicka). The creative interventions in the Hand Up project take two forms; one is the predesigned and participatory creative activities delivered as part of the SVDPWA Kids’ Camp program. The second is a personalised intervention, identified by way of an in-depth interview with the child and parent, and is wholly dependent on the interests expressed by the child, the ability for the family to engage in that activity, and the budget restraints of the project.Reading as an Alternative RealityA key creative intervention embedded in the Hand Up Linkage project is determined by the interests expressed by the child during their in-depth interview. Also taken into account is the ability for the family to engage in that activity. For example, Kani’s mother works fulltime at a location which is an hour by public transport from home and does not have a car or driver’s license, so the choice of creative opportunity was restricted to a home-based activity or a weekend activity accessible by public transport. A further restriction is the limited budget available for this intervention in the project, along with an imperative that such interventions should be equitable between families and within families, and be of benefit to all the children in addition to the interviewed child. Fortunately, transport was not an issue because Kani expressed her interest very emphatically as books and reading. When asked what she liked doing most in life, Kani replied: “Reading. I like reading like big books, like really thick books and stuff. I have like 30 in my room. Like those really big books. And I'm starting to read Harry Potter now. Okay, the books that I like reading is Harry Potter, the entire set Roald Dahl books and the Baudelaire Orphans by Lemony Snicket. I like reading David Walliams. I like Little Women” (Kani). Her excitement in listing these books further animated the interview and was immediately emphasised because Kani took the interviewer (second author) and her mother into her room to demonstrate the truth of her statement. When asked again at the close of the interview “what’s a favourite thing that makes you feel good inside?” Kani’s answer was “Family and reading”. The energy and enthusiasm with which Kani talked about her reading and books made these the obvious choice as her creative intervention. However, participation in book-related courses or after-school activities was restricted by Kani’s mother’s transportation limitations. Taking into account how the financial constraints of her sole parent family impacted upon their capacity to buy books, and the joy that Kani clearly experienced from having books of her own, it was decided that a book voucher would be provided for her at a local bookstore easily accessible by bus. The research team negotiated with the bookstore to try to ensure that Kani could choose a book a month until the funds were expended so that the intervention would last most of the coming six months.What Kani was expressing in her love of books was partly related to the raw material they provide that help her to imagine the alternative reality of the fictional worlds she loved reading about. Kani’s passionate engagement in these alternative realities reflects theories of narrative immersion in one’s chosen medium: “One key element of an enjoyable media experience is that it takes individuals away from their mundane reality and into a story world. We call the process of becoming fully engaged in a story transportation into a narrative world” (Green et al. 311–12). Kani said: “Reading is everything, yeah. Like getting more books and like those kind of things and making me read more... ‘cause I really love reading, it’s like watching a movie. Do you know ... have you watched Harry Potter? … the book is nothing like the movie, nothing, they’ve missed so many parts so the book is more enjoyable than the movie. That’s why I like reading more. ‘Cause like I have my own adventures in my head.” This process of imagining her own adventures in her head echoes Green and Brock’s explanation of the process of being transported into alternative realities through reading as a result of “an integrative melding of attention, imagery, and feelings” (701).Constructing Alternative Realities for Herself and an Alternative Possible FutureLike many 10 year olds, Kani has a challenging time at school, exacerbated by the many school moves brought about by changes in her family circumstances. Even though she is in a school which supports her family’s faith, her experience is one of being made to feel an outsider: “all the boys and the girls in our class are like friends, they’re like ... it’s a group. But I’m not in their group. I have my friends in other classes and they’re [my classmates are] not happy with it, that’s why they tease me and stuff. And like whenever I play with my friends they’re like ... yeah”. The interviewer asked her what she liked about her special friends. “They’re fun. Creative like, enjoyable, yeah, those kind of things …they have lots of cool ideas like plans and stuff like that.” As Hawkins et al. argue, the capacity to develop and maintain good relationships with peers (and parents) is a key factor in helping children be resilient. It is likely that Kani also shares her creativity, ideas and plans with her friendship group as part of her shared contribution to its existence.A domestication of technology framework (Silverstone et al.) can be useful as part of the explanation for Kani’s use of imaginative experience in building her social relationships. Silverstone et al. argue that technology is domesticated via four interlocking activities: ‘appropriation’ (where it embraced, purchased, taken into the household), ‘objectification’ (where a physical space is found for it), ‘incorporation’ (the spaces through which it is inserted into the everyday activities of the household or users) and ‘conversion’ (whereby the experience and fact of the technology use – or lack of use – becomes material through which family members express themselves and their priorities to the social world beyond the home). Arguably, Kani ‘converts’ her engagement with books and associated imaginative experiences into social currency through which she builds relationships with the like-minded children with whom she makes friends. At the same time, those children feed into her ideas of what constitutes a creative approach to life and help energise her plans for the future.Kani’s views of her future (at the age of 10) are influenced by the traditional occupations favoured by high achieving students, and by the fact that her parents are themselves educational high achievers, entering Australia on student visas. “I want to be a doctor … my cousin wants to be a doctor too. Mum said lawyer but we want to be a doctors anywhere. We want to be a ...me and my cousin want to be doctors like ...we like being doctors and like helping people.” Noting the pressures on the household of the possible fees and costs of high school, Kani adds “I need to work even harder so I get a scholarship. ‘Cause like my mum can’t pay for like four terms, you know how much money that will be? Yeah.” Kani’s follow-on statement, partly to justify why she wants “a big house”, adds some poignancy to her reference to a cousin (one of many), who still lives in Bangladesh and whom Kani hasn’t seen since 2011. “Like I want to live with my mum and like yeah and like I live with my cousin too because like I have a cousin ... she’s a girl, yeah? And like yeah, she’s in Bangladesh, I haven’t seen her for very long time so yeah.” In the absence of her extended family overseas, Kani adds her pets to those with whom she shares her family life: “And my mum and my uncle and then our cat Dobby. I named it [for Harry Potter’s house elf] ...and the goldfish. The goldfish are Twinkle, Glitter, Glow and Bobby.”Kani’s mum notes the importance of an opportunity to dream a future into existence: “maybe she’s too young or she hasn’t really kind of made up her mind as yet as to what she wants to do in life but just going out and just you know doing stuff and just giving them the opportunity”. The SVDPWA Kids’ Camp is an important part of this “they [the refuge] kind of told us like ‘there’s this child camp’. … I was like yeah, sure, why not?” Providing Alternative Spaces at the SVDPWA Kids’ CampThe SVDPWA Kids’ Camps themselves constitute a creative intervention in offering visions of alternative realities to their young participants. Their benefit is delivered via anticipation, as well as the reality of the camp experience. As Kani said “I forget all about the things that’s just past, like all the hard things, you know like I go through and stuff and it just makes me forget it and it makes me like think about camp, things we’re going to do at camp”. The Kids’ Camps take place three times a year and are open to children aged between 8 and 13, with follow-on Teen Camps for older age groups. Once a child is part of the program she or he can continue to participate in successive camps while they are in the target age group. Consisting of a four day activity-based experience in a natural setting, conducted by Vinnies Youth and staffed by key SVDPWA employees and Youth volunteers, the camps offer children a varied schedule of activities in a safe and supported environment, with at least one volunteer for every two child participants. The camps are specifically made available to children from disadvantaged families and are provided virtually free to participants. (A nominal $10 enrolment fee is applied per child). Kani was initially reticent about attending her first camp. She explained: “I was shy, scared because I sleep with my mum so it’s different sleeping without Mum. I know it’s kind of embarrassing ‘cause, sleeping with my mum like, but I just get scared at night”. Kani went on to explain how the camp facilitators were able to allay her fears “I knew I was safe. And I had people I could talk to so yeah ...like the leader”. As one Vinnies Youth volunteer explains, the potential of offering children like Kani time out from the pressures of everyday life is demonstrated when “towards the end of every camp we always see that progression of, they came out of their shell … So I think it’s really just a journey for everyone and it’s understandable if they did feel stuck. It’s about what we can do to help them progress forward” (VY1). Kani was empowered to envision an alternative idea of herself at camp, one which was unexpectedly intuited by the research interviewer.When the interviewer closed the interview by expressing that it had been lovely to talk to Kani as she was “such a bundle of energy”, Kani grinned and replied “Do you know the warm fuzzies, yeah? [When positive thoughts about others are exchanged at the SVDPWA Kids’ Camp]. The bundle ... all the leaders say I’m a bundle of happiness”. The Kids’ Camp provided Kani with a fun and positive alternative reality to the one she experienced as a child handling the considerable challenges experienced by social isolation, domestic violence and parental separation, including the loss of her home, diminished connection to her overseas extended family, legal custody issues, and several school changes. Taking the role of cultural intermediary, by offering the possibility of alternative realities via their camp, SVDPWA offered Kani a chance that supported her work on creating a range of enticing possible futures for herself. This was in contrast to some commercial holiday camp experiences which might more centrally use their “cultural authority as shapers of taste and … new consumerist dispositions” (Nixon and Du Gay 497). Even so, Kani’s interview made clear that her experience with the SVDPWA Kids’ Camps were only part of the ways in which she was crafting a range of possible visions for her adult life, adding to this her love of books and reading, her fun, creative friends, and her vision for a successful future which would reunite her with her distant cousin and offer security to her mother. ConclusionUnderstandably, Kani at 10 lacks the critical insight required to interpret how her imaginative and creative life provides the raw materials from which she crafts her visions for the future. Further, the interviewer is careful not to introduce words like ‘creative’ into her work with the participant families, so that when Kani used it to talk about her friends she did so drawing upon her own store of descriptions and not as a result of having recently been reminded of creativity as a desirable attribute. The interview with this young person indicates, however, how greatly she values the imaginative and cultural inputs into her life and how she converts them in ways which help ensure access to further such creative currency. Apart from referencing her reading in the naming of her cat, Kani’s vision for herself reflects both the conventional idea of success (“a doctor”) and a very specific idea of her future living as an adult in house large enough to include her mum and her cousin.Kani’s love of reading, her pleasure in books, her choice of friends and her aspirations to scholarly excellence all offer her ways to escape the restricted options available to families who seek support from organisations such as SVDPWA. At the same time the Kids’ Camps themselves, like Kani’s books, provide an escape from the difficulties of the present. Kani’s appropriation of the cultural raw materials that she draws into her life, and her conversion of these inputs into a creative, social currency, offers her an opportunity to anticipate a better future, and some tools she can use to help bring it into existence.ReferencesCarr, A. Positive Psychology: The Science of Happiness and Human Strengths. 2nd ed. Hove, UK: Routledge, 2011.Csikszentmihalyi, M. Creativity: Flow and the Psychology of Discovery and Invention. New York: HarperCollins, 1996.Green, M., and T. Brock. “The Role of Transportation in the Persuasiveness of Public Narratives.”. Journal of Personality and Social Psychology 79 (2000): 701–21.———, T. Brock, and G. Kaufman. “Understanding Media Enjoyment: The Role of Transportation into Narrative Worlds." Communication Theory 14.4 (2004): 311–27.Hawkins, J.D., R. Kosterman, R.F. Catalano, K.G. Hill, and R.D. Abbott. “Promoting Positive Adult Functioning through Social Development Intervention in Childhood: Long-Term Effects from the Seattle Social Development Project.” Archives of Pediatrics & Adolescent Medicine 159.1 (2005): 25. Hopkins, L. “YouthWorx: Increasing Youth Participation through Media Production.” Journal of Sociology 47.2 (2011): 181–197. doi: 10.1177/1440783310386827.Kani. In-depth interview, de-identified, 2016.Kaufman, J. C., and R.A. Beghetto. “Beyond Big and Little: The Four C Model of Creativity.” Review of General Psychology 13.1 (2009): 1–12. <http://dx.doi.org/10.1037/a0013688>. King, G., T. Cathers, E. Brown, J.A. Specht, C. Willoughby, J.M. Polgar, and L. Havens. “Turning Points and Protective Processes in the Lives of People with Chronic Disabilities.” Qualitative Health Research 13.2 (2003): 184–206.Nixon, S., and P. Du Gay. “Who Needs Cultural Intermediaries?” Cultural Studies 16.4 (2002): 495–500.Podkalicka, A. “Young Listening: An Ethnography of YouthWorx Media’s Radio Project.” Continuum 23.4 (2009): 561–72.St Vincent de Paul Society (WA). St Vincent de Paul Society, Annual Report 2013. Perth, WA: St Vincent de Paul Society (WA), 2013. 5 Jan 2017 <http://www.vinnies.org.au/icms_docs/169819_Vinnies_WA_2012_Annual_Report.pdf>.Seidman, I. Interviewing as Qualitative Research: A Guide for Researchers in Education and the Social Sciences. New York: Teachers College Press, Columbia University, 2006.Silverstone, R., E. Hirsch, and D. Morley. “Information and Communication Technologies and the Moral Economy of the Household.” Consuming Technologies: Media and Information in Domestic Spaces. Eds. R. Silverstone and E. Hirsch. London: Routledge, 1992. 9–17.Snyder, C.R. Handbook of Hope. Orlando, FL: Academic Press, 2000.VY1. In-depth interview with Vinnies Youth volunteer, de-identified, 2016.

Who Are Carers? A carer is any individual who provides unpaid care and support to a family member or friend who has a disability, mental illness, drug and/or alcohol dependency, chronic condition, terminal illness or who is frail. Carers come from all walks of life, cultural backgrounds and age groups. For many, caring is a 24 hour-a-day job with emotional, physical and financial impacts, with implications for their participation in employment, education and community activities. Carers exist in all communities, including amongst Aboriginal communities, those of culturally and linguistically diverse backgrounds, amongst Gay, Lesbian, Bisexual, Transgender, Intersex communities, and throughout metropolitan, regional and rural areas (Carers NSW). These broad characteristics mean that caring occurs across a wide variety of situations and care responsibilities can impact an even wider group of people. The ubiquitous nature of informal care warrants its consideration as a major social issue, as well as the potential impacts that these roles can have on carers in both short and long term contexts. Caring for a loved one is often an unseen component of people’s domestic lives. As will be outlined below, the potentially burdensome nature of care can have negative influences on carers’ wellbeing. As such, factors that can enhance the resilience of carers in the face of such adversity have been widely investigated. This being said, individual differences exist in carers’ responses to their caring responsibilities. The caring experience can therefore be argued to exist on a continuum, from the adversity in relation to stressful challenges through to prosperity in light of their caring responsibilities. By considering the experience of care as existing along this continuum, the place of resilience within people’s domestic spaces can be viewed as a mechanism towards identifying and developing supportive practices. Negative Impacts of Care A significant body of research has identified potential negative impacts of caring. Many of the most commonly cited outcomes relate to negative effects on mental health and/or psychological functioning, including stress, anxiety and depression (e.g. Baker et al.; Barlow, Cullen-Powell and Cheshire; Cheshire, Barlow and Powell; Dunn et al.; Gallagher et al.; Hastings et al.; Lach et al.; Singer; Sörensen et al.; Vitaliano, Zhang and Scanlan; Whittingham et al.; Yamada et al.). These feelings can be exacerbated when caring responsibilities become relentlessly time consuming, as demonstrated by this comment from a carer of a person with dementia: “I can’t get away from it” (O'Dwyer, Moyle and van Wyk 758). Similarly, emotional responses such as sorrow, grief, anger, frustration, and guilt can result from caring for a loved one (Heiman; Whittingham et al.). Negative emotional responses are not necessarily a direct result of caring responsibilities as such, but an understanding of the challenges faced by the person requiring their care. The following quote from the carer of a child with autism exemplifies the experience of sorrow: “It was actually the worst day of our lives, that was the day we came to terms with the fact that we had this problem” (Midence and O’Neill 280). Alongside these psychological and emotional outcomes, physical health may also be negatively impacted due to certain demands of the caring role (Lach et al.; Sörensen et al.; Vitaliano, Zhang and Scanlan). Outcomes such as these are likely to vary across individual caring circumstances, dictated by variables such as the specific tasks required of the carer, and individual personality characteristics of both the carer and the person for whom they care. Nevertheless, an awareness of these potential outcomes is particularly important when considering the place of resilience in the domestic space of individuals caring for a loved one. This conceptualisation of caring as being a burdensome task reflects many publicly held perceptions. If caring is widely viewed as compromising carers’ wellbeing, then there is likely to be an increased likelihood of carers viewing themselves as victims. This is particularly true amongst children and adolescents with caring responsibilities, since young people are most susceptible to having their personal identities shaped by others’ perceptions (Andreouli, Skovdal and Campbell). Resilience in Caring Adversity Despite the widely acknowledged potential for caring to have negative consequences for carers, it must be noted that the occurrence of these outcomes are not inevitable. In fact, much of the research that has identified increased stress amongst carers also finds that the majority cope well with the demands of their role (Barnett et al.). These carers have been considered by many researchers to demonstrate resilience (e.g. Barnett et al.; O'Dwyer, Moyle and van Wyk). The ability to respond positively despite exposure to risk or adversity is a key feature of most definitions of resilience (Luthar, Cicchetti and Becker; Masten and Obradović; Zauszniewski, Bekhet and Suresky). Resilience in this context can thus be defined as a psychological process that facilitates healthy functioning in response to intense life stressors (Johnson et al.). Since caring experiences are likely to continue for an extended period of time, resilience is likely to be necessary on an ongoing basis, rather than in response to a single traumatic event. A resilient carer is therefore one who is able to effectively and adaptively cope with extenuating pressures of caring for a loved one. This involves the presence of personal, social, familial, or institutional protective factors that enable carers to resist stress (Kaplan et al.). For example, support from health professionals, family, or community has been found to effectively support carers in coping with their role (Bekhet, Johnson and Zauszniewski; Gardiner and Iarocci; Heiman; Whittingham et al.). The benefit of support networks in assisting carers to cope in their role is widely reported in the associated research, reinforced by many examples such as the following from a carer of a person with dementia: “It’s a social thing, like, I’ve got friends on there… I find that is my escape” (O'Dwyer, Moyle and van Wyk 758). At an individual level, those who demonstrate resilient in the face of adversity demonstrate optimistic or hopeful outlooks (Ekas, Lickenbrock and Whitman; Lloyd and Hastings; Whittingham et al.), while simultaneously holding realistic expectations of the future (Rasmussen et al.; Wrosch, Miller, et al.; Wrosch, Scheier, et al.). Such attitudes are particularly significant amongst people caring for family members or friends with disabilities or illnesses. The following attitude held by a carer of a child with cerebral palsy exemplifies this optimistic outlook: “I look at the glass half full and say that “well, it’s only his walking, everything else is fine”. “So, get over [it] and deal with it” (Whittingham et al. 1451). Those who cognitively process information, rather than reacting in a highly emotion way have also been found to cope better (Bekhet, Johnson and Zauszniewski; Heiman; Monin et al.; Pennebaker, Mayne and Francis), as have those with a greater sense of self-efficacy or an internal locus of control (Bekhet, Johnson and Zauszniewski; Kuhn and Carter). However effective these coping strategies prove to be, this is unlikely to provide the full picture of caring experiences, or the place of resilience within that space. Associating resilience with adversity presumes a consensus on what constitutes adversity. Taking the typical approach to investigating resilience amongst carers risks making undue assumptions of the nature of individual carers’ experiences – namely, that caring equates to adversity. The following paragraphs will outline how this is not necessarily the case. And furthermore, that the concept of resilience still has a place in considering informal caring, regardless of whether adversity is considered to be present. Benefits of Care While a great deal of evidence suggests that caring for a loved one can be a stressful experience, research has also demonstrated the existence of positive impacts of care. In many instances, carers not only cope, but also thrive in their caring roles (Turnbull et al.). Elements such as positive relationships within caring relationships can both challenge and strengthen individuals – factors that only exist due to the specific nature of the individual caring role (Bayat; Heiman). Such positive elements of the caring experience have been reflected in the literature, illustrated by quotes such as: “In some sense, this makes our family closer” (Bayat 709). Rather than viewing carers from a perspective of victimisation (which is particularly prominent in relation to children and young people with caring responsibilities), recognising the prevalence of positive wellbeing within this population provides a more nuanced understanding of the lived experiences of all carers (Aldridge). Reported benefits of caring tend to revolve around personal relationships, particularly in reference to parents caring for their children with special needs. Reflective of the parental relationship, carers of children with disabilities or chronic illnesses generally report feelings of love, joy, optimism, strength, enjoyment, and satisfaction with their role (Barnett et al.; Heiman). The views of such carers do not reflect an attitude of coping with adversity, but rather a perspective that considers their children to be positive contributors to carers’ quality of life and the wellbeing of the wider family (King et al.). This point of view suggests an additional dimension to resilience; in particular, that resilience in the relative absence of risk factors, can cause carers to flourish within their caring role and relationships. In addition to benefits in relationships, carers may also prosper through their own personal growth and development in the course of their caring (Knight). This includes factors such as the development of life skills, maturity, purpose, social skills, a sense of responsibility, and recognition – particularly amongst young people in caring roles (Earley, Cushway and Cassidy; Early, Cushway and Cassidy; Jurkovic, Thirkield and Morrell; Skovdal and Andreouli; Stein, Rotheram-Borus and Lester; Tompkins). Recognition of the potential personal benefits of caring for a loved one is not intended to suggest that the view of carers coping with adversity is universally applicable. While it is likely that individual caring situations will have an impact on the extent to which a carer faces adversity (e.g. intensity of caring responsibilities, severity of loved one’s impairment, etc.), it is important to recognise the benefits that carers can experience alongside any challenges they may face. Circumstances that appear adversarial may not be thought of as such by those within that context. Defining resilience as an ability to cope with adversity therefore will not apply to such contexts. Rather, the concept of resilience needs to incorporate those who not only cope, but also prosper. Carers who do not perceive their role as burdensome, but identify positive outcomes, can therefore be said to demonstrate resilience though contextually different from those coping with adversity. This is not to suggest that resilience is the sole contributing factor in terms of prospering in the caring role. We must also consider individual circumstances and nuances differ between carers, those they care for, interpersonal relationships, and wider caring situations. Continuum of Care Awareness of the range of impacts that caring can have on carers leads to a recognition of the broad spectrum of experience that this role entails. Not only do caring experiences exhibit large variations in terms of practical issues (such as functional capacities, or type and severity of illness, disability, or condition), they include carers’ diverse personal responses to caring responsibilities. These responses can reflect either positive or negative dimensions, or a combination of both (Faso, Neal-Beevers and Carlson). In this way, caring experiences can be conceptualised as existing along a continuum. At one end of the spectrum, experiences align with the traditional view of caring as a struggle with and over adversity. More specifically, carers experience burdens as a result of their additional caring responsibilities, with negative outcomes likely to occur. At the other end of the spectrum, however, carers prosper in the role, experiencing significant personal benefits that would not have been possible without the caring role. This continuum makes a case for an expanded approach to stress and coping models of resilience to include positive concepts and a benefit-orientated perspective (Cassidy and Giles). In contrast to research that has argued for a progression from stress and coping models to strengths-based approaches (e.g. Glidden, Billings and Jobe; Knight), the continuum of care acknowledges the benefits of each of these theoretical positions, and thus may prove more comprehensive in attempting to understand the everyday lived experiences of carers. The framework provided by a representation of a continuum allows for the individual differences in caring situations and carers’ personal responses to be acknowledged, as well as accounting for any changes in these circumstances. Further, the experience and benefits of resilience in different contextual spheres can be identified. The flexibility afforded by such an approach is particularly important in light of individual differences in the ways carers respond to their situations, their changing caring contexts, and their subsequent individual needs (Monin et al.; Walsh; Whittingham et al.). As the caring experience can be dynamic and fluctuate in both directions along the continuum, resilience may be seen as the mechanism by which such movement occurs. In line with stress and coping models, resilience can assist carers to cope with adversarial circumstances at that end of the continuum. Similarly, it may be argued that those who prosper in their caring role exhibit characteristics of resilience. In other words, it is resilience that enables carers to cope with adversity at one end of the continuum and also to prosper at the other. Furthermore, by supporting the development of resilient characteristics, carers may be assisted in shifting their experiences along the continuum, from adversity to prosperity. This view extends upon traditional approaches reported in the stress and coping literature by contending that caring experiences may progress beyond positions of coping with adversity, to a position where caring is not understood in terms of adversity at all, but rather in terms of benefits. The individual circumstances of any carer must be taken into consideration with this framework of resilience and the continuum of care. It is unrealistic to assume that all caring situations will allow for the possibility of reaching the end point of this continuum. Carers with particularly high demands in terms of time, resources, effort, or energy may not reach a stage where they no longer consider their caring role to involve any personal burden. However, the combination of a coping and strengths-based approach suggests that there is always the possibility of moving away from perceptions of adversity and further towards an attitude of prosperity. Implications for Supportive Practice From the perspective of this continuum of care, the protective factors and coping strategies identified in previous literature provide a valuable starting point for the facilitation of resilience amongst carers. Enhancing factors such as these can assist carers to move from situations of adversity towards experiences of prosperity (Benzies and Mychasiuk). Research has suggested that carers who are less analytical in their thinking and less optimistic about their personal situations may find particular benefit from support systems that assist them in redirecting their attention towards positive aspects of their daily lives, such as the benefits of caring outlined earlier (Monin et al.). The principle of focusing on positive experiences and reframing negative thoughts is thought to benefit carers across all levels of functioning and adaptive experience (Monin et al.). While those entrenched in more burdensome mindsets are likely to experience the greatest benefit from supportive interventions, there is still merit in providing similar supports to carers who do not appear to experience the similar experiences of burden, or demonstrate greater resilience or adaptation to their situation. The dynamic view of caring situations and resilience suggested by a continuum of care incorporates benefits of stress and coping models as well as strengths-based approaches. This has implications for supportive practice in that the focus is not on determining whether or not a carer is resilient, but identifying the ways in which they already are resilient (Simon, Murphy and Smith). For carers who experience their role through a lens of adversity, resilience may need to be purposefully fostered in order to better enable them to cope and develop through the ongoing stresses of their role. For carers at the other end of the spectrum, resilience is likely to take on a substantially different meaning. Under these circumstances, caring for a loved one is not considered a burdensome task; rather, the positive impact of the role is pre-eminent. This point of view suggests that carers are resilient, not only in terms of an ability to thrive despite adversity, but in prospering to the extent that adversity is not considered to exist. The attitudes and approaches of services, support networks, and governments towards carers should remain flexible enough to acknowledge the wide variety of caring circumstances that exist. The continuum of care provides a framework through which certain aspects of caring and variations in resilience can be interpreted, as well as the type of support required by individual carers. Furthermore, it must be noted that caring circumstances can change – either gradually or suddenly – with the extent to which carers experience adversity, coping or prosperity also changing. Any attempts to provide support to carers or acknowledge their resilience should demonstrate an awareness of the potential for such fluctuation. The fundamental view that carers always have the potential to move towards more positive outcomes has the potential to reframe perceptions of carers as victims, or as simply coping, to one that embraces the personal strengths and resilience of the individual. As such, carers can be supported when faced with adversity, and to flourish beyond that position. This in turn has the potential to safeguard against any detrimental effects of adversity that may arise in the future. References Aldridge, Jo. "All Work and No Play? Understanding the Needs of Children with Caring Responsibilities." Children & Society 22.4 (2008): 253-264. Andreouli, Eleni, Morten Skovdal, and Catherine Campbell. "‘It Made Me Realise That I Am Lucky for What I Got’: British Young Carers Encountering the Realities of Their African Peers." Journal of Youth Studies (2013): 1-16. Baker, Bruce L., et al. "Behavior Problems and Parenting Stress in Families of Three-Year-Old Children with and without Developmental Delays." American Journal on Mental Retardation 107.6 (2002): 433-44. Barlow, J. H., L. A. Cullen-Powell, and A. Cheshire. "Psychological Well-Being among Mothers of Children with Cerebral Palsy." Early Child Development and Care 176.3-4 (2006): 421-428. Barnett, Douglas, et al. "Building New Dreams: Supporting Parents' Adaptation to Their Child with Special Needs." Infants and Young Children 16.3 (2003): 184. Bayat, M. "Evidence of Resilience in Families of Children with Autism." Journal of Intellectual Disability Research 51.9 (2007): 702-714. Bekhet, Abir K., Norah L. Johnson, and Jaclene A. Zauszniewski. "Resilience in Family Members of Persons with Autism Spectrum Disorder: A Review of the Literature." Issues in Mental Health Nursing 33.10 (2012): 650-656. Benzies, Karen, and Richelle Mychasiuk. "Fostering Family Resiliency: A Review of the Key Protective Factors." Child and Family Social Work 14 (2009): 103-114. Carers NSW. Carers NSW Strategic Directions 2012-2015. 2012. Cassidy, Tony, and Melanie Giles. "Further Exploration of the Young Carers Perceived Stress Scale: Identifying a Benefit-Finding Dimension." British Journal of Health Psychology 18.3 (2013): 642-655. Cheshire, Anna, Julie H. Barlow, and Lesley A. Powell. "The Psychosocial Well-Being of Parents of Children with Cerebral Palsy: A Comparison Study." Disability and Rehabilitation 32.20 (2010): 1673-1677. Dunn, Michael E., et al. "Moderators of Stress in Parents of Children with Autism." Community Mental Health Journal 37.1 (2001): 39-52. Earley, Louise, Delia Cushway, and Tony Cassidy. "Children's Perceptions and Experiences of Care Giving: A Focus Group Study." Counselling Psychology Quarterly 20.1 (2007): 69-80. Early, Louise, Delia Cushway, and Tony Cassidy. "Perceived Stress in Young Carers: Development of a Measure." Journal of Child and Family Studies 15.2 (2006): 165-176. Ekas, Naomi V., Diane M. Lickenbrock, and Thomas L. Whitman. "Optimism, Social Support, and Well-Being in Mothers of Children with Autism Spectrum Disorder." Journal of Autism and Developmental Disorders 40.10 (2010): 1274-1284. Faso, Daniel J., A. Rebecca Neal-Beevers, and Caryn L. Carlson. "Vicarious Futurity, Hope, and Well-Being in Parents of Children with Autism Spectrum Disorder." Research in Autism Spectrum Disorders 7.2 (2013): 288-297. Gallagher, Stephen, et al. "Predictors of Psychological Morbidity in Parents of Children with Intellectual Disabilities." Journal of Pediatric Psychology 33.10 (2008): 1129-1136. Gardiner, Emily, and Grace Iarocci. "Unhappy (and Happy) in Their Own Way: A Developmental Psychopathology Perspective on Quality of Life for Families Living with Developmental Disability with and without Autism." Research in Developmental Disabilities 33.6 (2012): 2177-2192. Glidden, L. M., F. J. Billings, and B. M. Jobe. "Personality, Coping Style and Well-Being of Parents Rearing Children with Developmental Disabilities." Journal of Intellectual Disability Research 50.12 (2006): 949-962. Hastings, Richard P., et al. "Coping Strategies in Mothers and Fathers of Preschool and School-Age Children with Autism." Autism 9.4 (2005): 377-91. Heiman, Tali. "Parents of Children with Disabilities: Resilience, Coping, and Future Expectations." Journal of Developmental and Physical Disabilities 14.2 (2002): 159-171. Johnson, Douglas C., et al. "Development and Initial Validation of the Response to Stressful Experiences Scale." Military Medicine 176.2 (2011): 161-169. Jurkovic, GregoryJ, Alison Thirkield, and Richard Morrell. "Parentification of Adult Children of Divorce: A Multidimensional Analysis." Journal of Youth and Adolescence 30.2 (2001): 245-257. Kaplan, Carol P., et al. "Promoting Resilience Strategies: A Modified Consultation Model." Children & Schools 18.3 (1996): 158-168. King, G. A., et al. "A Qualitative Investigation of Changes in the Belief Systems of Families of Children with Autism or Down Syndrome." Child: Care, Health and Development 32.3 (2006): 353-369. Knight, Kathryn. "The Changing Face of the ‘Good Mother’: Trends in Research into Families with a Child with Intellectual Disability, and Some Concerns." Disability & Society 28.5 (2013): 660-673. Kuhn, Jennifer C., and Alice S. Carter. "Maternal Self-Efficacy and Associated Parenting Cognitions among Mothers of Children with Autism." American Journal of Orthopsychiatry 76.4 (2006): 564-575. Lach, Lucyna M., et al. "The Health and Psychosocial Functioning of Caregivers of Children with Neurodevelopmental Disorders." Disability and Rehabilitation 31.8 (2009): 607-18. Lloyd, T. J., and R. Hastings. "Hope as a Psychological Resilience Factor in Mothers and Fathers of Children with Intellectual Disabilities." Journal of Intellectual Disability Research 53.12 (2009): 957-68. Luthar, Suniya S., Dante Cicchetti, and Bronwyn Becker. "The Construct of Resilience: A Critical Evaluation and Guidelines for Future Work." Child Development 71.3 (2000): 543-62. Masten, Ann S., and Jelena Obradović. "Competence and Resilience in Development." Annals of the New York Academy of Sciences 1094.1 (2006): 13-27. Midence, Kenny, and Meena O’Neill. "The Experience of Parents in the Diagnosis of Autism: A Pilot Study." Autism 3.3 (1999): 273-85. Monin, Joan K., et al. "Linguistic Markers of Emotion Regulation and Cardiovascular Reactivity among Older Caregiving Spouses." Psychology and Aging 27.4 (2012): 903-11. O'Dwyer, Siobhan, Wendy Moyle, and Sierra van Wyk. "Suicidal Ideation and Resilience in Family Carers of People with Dementia: A Pilot Qualitative Study." Aging & Mental Health 17.6 (2013): 753-60. Pennebaker, James W., Tracy J. Mayne, and Martha E. Francis. "Linguistic Predictors of Adaptive Bereavement." 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I wake up early, questions buzzing through my mind. While I sip my morning cup of tea and read The Guardian online, the writer, restless because I’m ignoring her, walks around firing questions.“Expecting the patriarchy to want to share its enormous wealth and power with women is extremely naïve.”I nod. Outside the window pieces of sky are framed by trees, fluffy white clouds alternate with bright patches of blue. The sweet, heady first wafts of lavender and citrus drift in through the open window. Spring has come to Hvar. Time to get to work.The more I understand about narcissism, the more I understand the world. I didn’t understand before. In the 1990s.“No—you knew, but you didn’t know at the same time.”I kept telling everybody The River Ophelia wasn’t about sex, (or the sex wasn’t about sex), it was about power. Not many people listened or heard, though. Only some readers.I’ve come here to get away. To disappear. To write.I can’t find the essay I want for my article about the 1990s. I consider the novel I’m reading, I Love Dick by Chris Kraus and wonder whether I should write about it instead? It’s just been reprinted, twenty years after its initial release. The back cover boasts, “widely considered to be the most important feminist novel of the past two decades.” It was first published in the 1990s. So far it’s about a woman named Chris who’s addictively obsessed with an unavailable man, though I’m yet to unravel Kraus’s particular brand of feminism—abjection? Maybe, maybe … while I think, I click through my storage folder. Half way through, I find a piece I wrote about Kathy Acker in 1997, a tribute of sorts that was never published. The last I’d heard from Kathy before this had been that she was heading down to Mexico to try shark cartilage for her breast cancer. That was just before she died.When I was first introduced to the work of Foucault and Deleuze, it was very political; it was about what was happening to the economy and about changing the political system. By the time it was taken up by the American academy, the politics had gone to hell. (Acker qtd. in Friedman 20)Looking back, I’d have to say my friendship with Kathy Acker was intense and short-lived.In the original I’d written “was a little off and on.” But I prefer the new version. I first met Kathy in person in Sydney, in 1995. We were at a World Art launch at Ariel bookshop and I remember feeling distinctly nervous. As it turned out, I needn’t have been. Nervous, that is.Reading this now brings it all back: how Kathy and I lost touch in the intervening two years and the sudden fact of her death. I turn to the end and read, “She died tragically, not only because she was much too young, but because American literature seems rather frumpy without her, of cancer on the 30th November 1997, aged 53.”The same age as I am now. (While some believe Kathy was 50 when she died, Kathy told me she lied about her age even to the point of changing her passport. Women who lie about their age tend to want to be younger than they are, so I’m sticking with 53.) This coincidence spooks me a little.I make a cup of tea and eat some chocolate.“This could work …” the writer says. My reasons for feeling nervous were historical. I’d spoken to Kathy once previously (before the publication of The River Ophelia on the phone from Seattle to San Francisco in 1993) and the conversation had ended abruptly. I’d wanted to interview Kathy for my PhD on American fiction but Kathy wouldn’t commit. Now I was meeting her face to face and trying to push the past to the back of my mind.The evening turned out to be a memorable one. A whole bunch of us—a mixture of writers, publishers, academics and literati—went out to dinner and then carried on drinking well into the night. I made plans to see Kathy again. She struck me as a warm, generous, sincere and intensely engaging person. It seemed we might become friends. I hesitated: should I include the rest? Or was that too much?The first thing Kathy had said when we were introduced was, “I loved your book, The River Ophelia. I found it as soon as I arrived. I bought it from the bookshop at the airport. I saw your amazing cover and then I read on the back that it was influenced by the work of Kathy Acker. I was like, wow, no one in America has ever put that on the back cover of a novel. So I read it immediately and I couldn’t put it down. I love the way you’ve deconstructed the canon but still managed to put a compelling narrative to it. I never did that.”Why didn’t I include that? It had given me more satisfaction than anything anyone else had said.I remember how quickly I abandoned my bestselling life in Sydney, sexual harassment had all but ruined my career, and exchanged it for an uncertain future in London. My notoriety as an author was damaging my books and my relationship with my publisher had become toxic. The first thing I did in London was hire a lawyer, break my contract with Picador and take both novels out of print.Reality intrudes in the form of a phone call from my mother. Terminally ill with cancer, she informs me that she’s off her food. For a retired chef, the loss of appetite is not inconsiderable. Her dying is a dull ache, a constant tiredness and sadness in me. She’s just arrived in London. I will go there next week to meet her.(1)I first came across Kathy’s work in 1991. I’d just finished my MA thesis on postmodernism and parody and was rewarding myself with some real reading (i.e. not related to my thesis) when I came across the novel Don Quixote. This novel had a tremendous impact on me. Those familiar with DQ may recall that it begins with an abortion that transforms its female narrator into a knight.When she was finally crazy because she was about to have an abortion, she conceived of the most insane idea that any woman can think of. Which is to love. How can a woman love? By loving someone other than herself. (Acker Quixote 9)Kathy’s opening sentences produced a powerful emotional response in me and her bold confronting account of an abortion both put me in touch with feelings I was trying to avoid and connected these disturbing feelings with a broader political context. Kathy’s technique of linking the personal and emotional with the political changed the way I worked as a writer.I’d submitted the piece as an obituary for publication to an Australian journal; the editor had written suggestions in the margin in red. All about making the piece a more conventional academic essay. I hadn’t been sure that was what I wanted to do. Ambitious, creative, I was trying to put poststructuralist theory into practice, to write theoretical fiction. It’s true, I hadn’t been to the Sorbonne, but so what? What was the point of studying theory if one didn’t put it into practice? I was trying to write like French theorists, not to write about them. The editor’s remarks would have made a better academic essay, it’s just I’m not sure that’s where I wanted to go. I never rewrote it and it was never published.I first encountered I Love Dick (2017) during a film course at the AFTVRS when the lecturer presented a short clip of the adaptation for the class to analyse. When I later saw the novel in a bookshop I bought a copy. Given my discovery of the unpublished obituary it is also a bit spooky that I’m reading this book as both Chris Kraus and Kathy Acker had relationships with academic and Semiotext(e) publisher Sylvère Lotringer. Chris as his wife, Kathy as his lover. Kraus wrote a biography of Acker called After Kathy Acker: A Biography, which seems fairly unsympathetic according to the review I read in The Guardian. (Cooke 2017) Intrigued, I add Kraus’s biography to my growing pile of Acker related reading, the Acker/Wark letters I’m Very Into You and Olivia Laing’s novel, Crudo. While I’ve not read the letters yet, Crudo’s breathless yet rhythmic layering of images and it’s fragmented reflections upon war, women and politics reminded me less of Acker and more of Woolf; Mrs Dalloway, in fact.(2)What most inspired me, and what makes Kathy such a great writer, is her manner of writing politically. For the purposes of this piece, when I say Kathy writes politically, I’m referring to what happens when you read her books. That is, your mind—fuelled by powerful feelings—makes creative leaps that link everyday things and ideas with political discourses and debates (for Kathy, these were usually critiques of bourgeois society, of oedipal culture and of the patriarchy).In the first pages of Don Quixote, for example, an abortion becomes synonymous with the process of becoming a knight. The links Kathy makes between these two seemingly unrelated events yields a political message for the creative reader. There is more at stake than just gender-bending or metamorphoses here: a reversal of power seems to have taken place. A relatively powerless woman (a female victim except for the fact that in having an abortion she’s exerting some measure of control over her life), far from being destroyed by the experience of aborting her foetus, actually gains power—power to become a knight and go about the world fulfilling a quest. In writing about an abortion in this way, Kathy challenges our assumptions about this controversial topic: beyond the moral debate, there are other issues at stake, like identity and power. An abortion becomes a birth, rather than a banal tragedy.When I think about the 1990s, I automatically think of shoulder pads, cocktails and expense accounts (the consumption of the former, in my case, dependent on the latter). But on reflection, I think about the corporatisation of the publishing industry, the Backlash and films like Thelma and Louise, (1991) Basic Instinct (1992) and Single White Female (1992). It occurs to me that the Hollywood movie star glamorous #MeToo has its origin in the turbulent 1990s Backlash. When I first saw each of these films I thought they were exciting, controversial. I loved the provocative stance they took about women. But looking back I can’t help wondering: whose stories were they really, why were we hearing them and what was the political point?It was a confusing time in terms of debates about gender equality.Excluding the premise for Thelma and Louise, all three films present as narrative truth scenarios that ran in stark contrast to reality. When it came to violence and women, most domestic homicide and violence was perpetrated by men. And violence towards women, in the 1990s, was statistically on the rise and there’s little improvement in these statistics today.Utter chaos, having a British passport never feels quite so wonderful as it does in the arrivals hall at Heathrow.“Perhaps these films allow women to fantasise about killing the men who are violent towards them?”Nyah, BI is chick killing chick … and think about the moral to the story. Fantasy OK, concrete action painful, even deadly.“Different story today …”How so?“Violent female protagonists are all the rage and definitely profitable. Killing Eve (2018) and A Simple Favour (2018).”I don’t have an immediate answer here. Killing Eve is a TV series, I think aloud, A Simple Favour structurally similar to Single White Female … “Why don’t you try self-publishing? It’ll be 20 years since you took The River Ophelia out of print, bit of an anniversary, maybe it’s time?”Not a bad idea. I’m now on the tube to meet mum at her bed and breakfast but the writer is impatient to get back to work. Maybe I should just write the screenplay instead?“Try both. If you don’t believe in your writing, who else will?”She has a point. I’m not getting anywhere with my new novel.A message pips through on Facebook. Want to catch up?What? Talk about out of the blue. I haven’t heard from Sade in twenty years … and how on earth did he get through my privacy settings?After meeting mum, the next thing I do is go to the doctor. My old doctor from West Kensington, she asks me how I’m going and I say I’m fine except that mum’s dying and this awful narcissistic ex-partner of mine has contacted me on Facebook. She recommends I read the following article, “The Highly Sensitive Person and the Narcissist” (Psychology Today).“Sometimes being a kind caring person makes you vulnerable to abusers.”After the appointment I can’t get her words out of my head.I dash into a Starbucks, I’m in Notting Hill just near the tube station, and read the article on my laptop on wifi. I highlight various sections. Narcissists “have a complete lack of empathy for others including their own family and friends, so that they will take advantage of people to get their own needs and desires met, even if it hurts someone.” That sounds about right, Sade could always find some way of masking his real motives in charm, or twisting reality around to make it look like things weren’t his fault, they were mine. How cleverly he’d lied! Narcissists, I read, are attracted to kind, compassionate people who they then use and lie to without remorse.But the bit that really makes me sit up is towards the end of the article. “For someone on the outside looking at a relationship between a highly sensitive person and a narcissist, it’s all too easy to blame the HSP. How and why would anyone want to stay in such a relationship?” Narcissists are incredibly good at making you doubt yourself, especially the part of you that says: this has happened before, it’ll happen again. You need to leave.The opening paragraph of the psychology textbook I read next uses Donald Trump as an example. Trump is also Patrick Bateman’s hero, the misogynistic serial killer protagonist of Bret Easton Ellis’s notorious American Psycho. Despite an earlier version that broadly focused on New York fiction of the 1990s, Ellis’s novel and the feminist outcry it provoked became the central topic of my PhD.“Are you alright mum?”I’ve just picked Mum up and I’m driving her to Paris for a night and then on to Switzerland where she’s going to have voluntary euthanasia. Despite the London drizzle and the horrific traffic the whole thing has a Thelma and Louise feel about it. I tell mum and she laughs.“We should watch it again. Have you seen it since it first came out?”“Sounds like a good idea.”Mum, tiny, pointy-kneed and wearing an out-of-character fluoro green beanie given to her at the oncology clinic in Sydney, is being very stoic but I can tell from the way she constantly wrings her hands that she’s actually quite terrified.“OK Louise,” she says as I unfold her Zimmer frame later that evening.“OK Thelma,” I reply as she walks off towards the hotel.Paris is a treat. My brother is waiting inside and we’re hoping to enjoy one last meal together.Mum didn’t want to continue with chemo at 83, but she’s frightened of dying a horrific death. As we approach hotel reception Mum can’t help taking a detour to inspect the dinner menu at the hotel restaurant.“Oysters naturel. That sounds nice.”I smile, wait, and take her by the elbow.I’ve completely forgotten. The interview/review I wrote of Acker’s Pussy, King of the Pirates, in 1995 for Rolling Stone. Where is it? I open my laptop and quickly click through the endless publicity and reviews of The River Ophelia, the interview/review came out around the same time the novel was published, but I can’t find it. I know I had it out just a few months ago, when I was chasing up some freelance book reviews.I make a fresh pot of tea from the mini bar, green, and return to my Acker tribute. Should I try to get it published? Here, or back in Australia? Ever the émigré’s dilemma. I decide I like the Parisian sense of style in this room, especially the cotton-linen sheets.Finally, I find it, it’s in the wrong folder. Printing it out, I remember how Kathy had called her agent and publisher in New York, and her disbelief when I’d told her the book hadn’t been picked up overseas. Kathy’s call resulted in my first New York agent. I scrutinise its pages.Kathy smiles benign childlike creativity in the larger photo, and gestures in passionate exasperation in the smaller group, her baby face framed by countless metal ear piercings. The interview takes place—at Kathy’s insistence—on her futon in her hotel room. My memories clarify. It wasn’t that we drifted apart, or rather we did, but only after men had come between us first. Neither of us had much luck in that department.(4)Kathy’s writing is also political because her characters don’t act or speak the way you’d expect them to. They don’t seem to follow the rules or behave in the way your average fictional character tends to do. From sentence to sentence, Kathy’s characters either change into different people, or live revolutionary lives, or even more radical still, live impossible lives.When the narrator of DQ transforms herself into a knight (and lives an impossible life); she turns a situation in which she is passive and relatively powerless—she is about to be operated on and drugged—into an empowering experience (and lives a creative revolutionary life). Ironically, getting power means she turns herself into a male knight. But Kathy gets around the problem that power is male by not letting things rest there. The female, aborting Kathy isn’t actually replaced by a male knight, bits of him are just grafted onto her. Sure, she sets out on a quest, but the other aspects of her empowerment are pretty superficial: she does adopt a new name (which is more like a disguise), and identity (appearance); and picks up a bad habit or two—a tendency to talk in the language used by knights.“But who’s the father?” the writer wants to know. “I mean isn’t that the real question here?”No, that is exactly not the real question here and not the point. It is not about who the father is—it’s about what happens to a woman who has an unwanted unplanned pregnancy.The phone rings. It’s my brother. Mum’s waiting for me downstairs and the oysters are beckoning.(5)The idea that writing could be political was very appealing. The transformation between my first novel, Marilyn’s Almost Terminal New York Adventure and my second, The River Ophelia (Picador insisted on publishing them in reverse chronology) was partly a result of my discovery of Kathy’s work and the ideas it set off in me. Kathy wasn’t the first novelist to write politically, but she was the first female novelist to do so in a way that had an immediate impact on me at an emotional level. And it was this powerful emotional response that inspired me as a writer—I wanted to affect my readers in a similar way (because reading Kathy’s work, I felt less alone and that my darkest experiences, so long silenced by shame and skirted around in the interests of maintaining appearances, could be given a voice).We’re driving through Switzerland and I’m thinking about narcissism and the way the narcissists in my personal and professional life overshadowed everything else. But now it’s time to give the rest of the world some attention. It’s also one way of pulling back the power from the psychopaths who rule the world.As we approach Zurich, my mother asks to pull over so she can use the ladies. When she comes out I can see she’s been crying. Inside the car, she reaches for my hand and clasps it. “I don’t know if I’m strong enough to say goodbye.”“It’s alright Mum,” I say and hold her while we both cry.A police car drives by and my mother’s eyes snag. Harassed by the police in Australia and unable to obtain Nembutal in the UK, Mum has run out of options.To be a woman in this society is to find oneself living outside the law. Maybe this is what Acker meant when she wrote about becoming a pirate, or a knight?Textual deconstruction can be a risky business and writers like Acker walk a fine line when it comes to the law. Empire of the Senseless ran into a plagiarism suit in the UK and her publishers forced Acker to sign an apology to Harold Robbins (Acker Hannibal Lecter 13). My third novel Dependency similarly fell foul of the law when I discovered that in deconstructing gossip and myths about celebrities, drawing on their lives and then making stuff up, the result proved prophetic. When my publisher, Harper Collins, refused to indemnify me against potential unintended defamation I pulled the book from its contract on the advice of a lawyer. I was worth seven million pounds on paper at that point, the internet travel site my then husband and I had founded with Bob Geldof had taken off, and the novel was a radical hybrid text comprised of Rupert Murdoch’s biography, Shakespeare’s King Lear and Hello Magazine and I was worried that Murdoch might come after me personally. I’d fictionalised him as a King Lear type, writing his Cordelia out of his will and leaving everything to his Goneril and Reagan.Recent theoretical studies argue that Acker’s appropriation and deconstruction constitute a feminist politics as “fragmentation” (June 2) and as “agency” (Pitchford 22). As Acker puts it. “And then it’s like a kid: suddenly a toy shop opens up and the toy shop was called culture.” (Acker Hannibal Lecter 11).We don’t easily fit in a system that wasn’t ever designed to meet our needs.(6)By writing about the most private parts of women’s lives, I’ve tried to show how far there is to go before women and men are equal on a personal level. The River Ophelia is about a young woman whose public life might seem a success from the outside (she is a student doing an honours year at university in receipt of a scholarship), but whose private life is insufferable (she knows nothing about dealing with misogyny on an intimate level and she has no real relationship-survival skills, partly as a result of her family history, partly because the only survival skills she has have been inscribed by patriarchy and leave her vulnerable to more abuse). When Justine-the-character learns how to get around sexism of the personal variety (by re-inventing her life through parodies of classic texts about oedipal society) she not only changes her life, but she passes on her new-found survival skills to the reader.A disturbing tale about a young university student who loses herself in a destructive relationship, The River Ophelia is a postmodern novel about domestic violence and sexual harassment in the academy, contrary to its marketing campaign at the time. It’s protagonist, Justine, loves Sade but Sade is only interested in sex; indeed, he’s a brutish sex addict. Despite this, Justine can’t seem to leave: for all her education, she’s looking for love and commitment in all the wrong places. While the feminist lore of previous generations seems to work well in theory, Justine can’t seem to make it work in practise. Owning her power and experimenting with her own sexuality only leaves her feeling more despairing than before. Unconventional, compelling and controversial, The River Ophelia became an instant best-seller and is credited with beginning the Australian literary movement known as grunge/dirty realism.But there is always the possibility, given the rich intertextuality and self referentiality, that The River Ophelia is Justine’s honours thesis in creative writing. In this case, Sade, Juliette, Ophelia, Hamlet, Bataille, Simone, Marcelle and Leopold become hybrids made up from appropriated canonical characters, fragments of Justine’s turbulent student’s world and invented sections. But The River Ophelia is also a feminist novel that partly began as a dialogue with Ellis whose scandalous American Psycho it parodies even as it reinvents. This creative activity, which also involves the reader by inviting her to participate in the textual play, eventually empowers Justine over the canon and over her perpetrator, Sade.Another hotel room. This one, just out of Zürich, is tiny. I place my suitcase on the rack beneath the window overlooking the narrow street and start to unpack.“Hasn’t this all been said before, about The River Ophelia?” The writer says, trying out the bed. I’m in the middle of an email about self-publishing a new edition of TRO.Some of it. While the grunge label has been refuted, Acker’s influence has been underplayed.Acker often named her protagonists after herself, so losing the Acker part of my textual filiation plays into the whole grunge/dirty realism marketing campaign. I’ve talked about how I always name protagonists after famous women but not linked this to Acker. Bohemia Beach has a protagonist named after Cathy as in Wuthering Heights. Justine of The River Ophelia was doubly an Acker trait: firstly, she was named Justine after De Sade’s character and is a deconstruction of that character, and secondly she was named Justine self-reflexively after me, as a tribute to Kathy as in Kathy Goes to Haiti.The other context for The River Ophelia that has been lost is to do with the early work of Mary Gaitskill, and Catherine Texier. The narcissists were so destructive and so powerful they left no time for the relatively more subtle Gaitskill or Texier. Prototypes for Sex in the City, the 1990s was also a time when Downtown New York women writers explored the idea that gender equality meant women could do anything men did sexually, that they deserved the full gamut of libertine sexual freedoms. Twenty years on it should also be said that women who push the envelope by writing women protagonists who are every bit as sexually transgressive as men, every bit as addictively self-destructive as male protagonists deserve not to be shamed for that experimentation. They deserve to be celebrated and read.AfterwordI’d like to remember Kathy as I knew her briefly in Sydney. A bottle-blonde with a number two haircut, a leopard-skin bikini and a totally tattooed body, she swam a surprisingly genteel breast-stroke in the next lane in one of the world’s most macho lap-swimming pools.ReferencesA Simple Favour. Dir. Paul Feig. Lionsgate, 2018.Acker, Kathy. Don Quixote. London: Collins, 1986.———. Empire of the Senseless. New York: Grove, 1988.———. Hannibal Lecter, My Father. New York: Semiotext(e), 1991.———. Kathy Goes to Haiti. New York: Grove Press/Atlantic Monthly, 1994.——— and McKenzie Wark. I’m Very into You: Correspondence 1995-1996. New York: Semiotext(e), 2015.Basic Instinct. Dir. Paul Verhoeven. TriStar Pictures, 1992.Brontë, Emily. Wuthering Heights. New York: Norton and Co, 2003.Bushnell, Candace. Sex in the City. United States: Grand Central Publishing, 1996.Cooke, Rachel. “Review of After Kathy Acker: A Biography by Chris Kraus—Baffling Life Study.” The Guardian 4 Sep. 2017. 4 Dec. 2018 <https://www.theguardian.com/books/2017/sep/04/after-kathy-acker-a-biography-chris-kraus-review>.Deleuze, Gilles, and Felix Guattari. A Thousand Plateaus: Capitalism and Schizophrenia. Minneapolis: University of Minnesota Press, 1987.Ellis, Bret Easton. American Psycho. New York: Vintage, 1991.Ettler, Justine. Bohemia Beach. Melbourne: Transit Lounge. 2018.———. “Kathy Acker: King of the Pussies.” Review of Pussy, King of the Pirates, by Kathy Acker. Rolling Stone. Nov. 1995: 60-61.———. Marilyn’s Almost Terminal New York Adventure. Sydney: Picador, 1996.———. “La Trobe University Essay: Bret Easton Ellis’s Glamorama, and Catherine Texier’s Break Up.” Australian Book Review, 1995.———. The Best Ellis for Business: A Re-Examination of the Mass Media Feminist Critique of “American Psycho.” PhD. Sydney: University of Sydney, 2013.———. The River Ophelia. Sydney: Picador, 1995.Faludi, Susan. Backlash: The Undeclared War against American Women. New York: Crown, 1991.Friedman, Ellen G. “A Conversation with Kathy Acker.” The Review of Contemporary Fiction 9.3 (Fall 1989): 20-21.Gaitskill, Mary. Bad Behaviour. New York: Random House, 1988.I Love Dick. Dir. Jill Soloway. Amazon Video, 2017.June, Pamela B. The Fragmented Female Body and Identity: The Postmodern Feminist and Multiethnic Writings of Toni Morrison, Therese Huk, Kyung Cha, Phyllis Alesia Perry, Gayl Jones, Emma Perez, Paula Gunn Allen, and Kathy Acker. New York: Peter Lang Publishing, 2010.Killing Eve. Dir. Phoebe Waller-Bridge. BBC America, 2018.Kraus, Chris. After Kathy Acker: A Biography. London: Penguin, 2017.———. I Love Dick. London: Serpent’s Tail, 2016.Laing, Olivia. Crudo. London: Picador, 2018.Lee, Bandy. The Case of Donald Trump: 27 Psychiatrists and Mental Health Experts Assess a President. New York: St Martin’s Press. 2017.Lombard, Nancy, and Lesley McMillan. “Introduction.” Violence against Women. Eds. Nancy Lombard and Lesley McMillan. London: Jessica Kingsley Publishers, 2013.Pitchford, Nicola. Tactical Readings: Feminist Postmodernism in the Novels of Kathy Acker and Angela Carter. London: Associated Uni Press, 2002.Schiffrin, André. The Business of Books: How International Conglomerates Took Over Publishing and Changed the Way We Read. London and New York: Verso, 2000.Shakespeare, William. King Lear. London: Penguin Classics, 2015.Siegle, Robert. Suburban Ambush: Downtown Writing and the Fiction of Insurgency. United States: John Hopkins Press, 1989.Single White Female. Dir. Barbet Schroeder. Columbia Pictures, 1992.Texier, Catherine. Panic Blood. London: Collins, 1991.Thelma and Louise. Dir. Ridley Scott. Metro-Goldwyn-Mayer, 1991.Ward, Deborah. “Sense and Sensitivity: The Highly Sensitive Person and the Narcissist.” Psychology Today (16 Jan. 2012). 4 Dec. 2018 <https://www.psychologytoday.com/us/blog/sense-and-sensitivity/201201/the-highly-sensitive-person-and-the-narcissist>.

In this article I discuss a story told by the South Australian Ngarrindjeri Aboriginal elder, Aunty Hilda Wilson (nee Varcoe), about the time when, at not quite sixteen, she was sent from the Point Pearce Aboriginal Station to work in the Adelaide Hills, some 500 kilometres away, as a housekeeper for “one of Adelaide’s leading doctors”. Her secondment was part of a widespread practice in early and mid-twentieth century Australia of placing young Aboriginal women “of marriageable age” from missions and government reserves into domestic service. Consciously deploying Indigenous storytelling practices as pedagogy, Hilda Wilson recounted this episode in a number of distinct ways during the late 1990s and early 2000s. Across these iterations, each building on the other, she exhibited a personal resilience in her subjectivity, embedded in Indigenous knowledge systems of relationality, kin and work, which informed her agency and determination in a challenging situation in which she was both caring for a white socially-privileged family of five, while simultaneously grappling with the injustices of a state system of segregated indentured labour. Kirmayer and colleagues propose that “notions of resilience emerging from developmental psychology and psychiatry in recent years address the distinctive cultures, geographic and social settings, and histories of adversity of indigenous peoples”. Resilience is understood here as an ability to actively engage with traumatic change, involving the capacity to absorb stress and to transform in order to cope with it (Luthar et al.). Further to this, in an Indigenous context, Marion Kickett has found the capacity for resilience to be supported by three key factors: family connections, culture and belonging as well as notions of identity and history. In exploring the layers of this autobiographical story, I employ this extended psychological notion of resilience in both a domestic ambit as well as the broader social context for Indigenous people surviving a system of external domination. Additionally I consider the resilience Aunty Hilda demonstrates at a pivotal interlude between girlhood and womanhood within the trajectory of her overall long and productive life, and within an intergenerational history of resistance and accommodation. What is especially important about her storytelling is its refusal to be contained by the imaginary of the settler nation and its generic Aboriginal-female subject. She refuses victimhood while at the same time illuminating the mechanisms of injustice, hinting also at possibilities for alternative and more equitable relationships of family and work across cultural divides. Considered through this prism, resilience is, I suggest, also a quality firmly connected to ideas of Aboriginal cultural-sovereignty and standpoint and to, what Victoria Grieves has identified as, the Aboriginal knowledge value of sharing (25, 28, 45). Storytelling as Pedagogy The story I discuss was verbally recounted in a manner that Westphalen describes as “a continuation of Dreaming Stories”, functioning to educate and connect people and country (13-14). As MacGill et al. note, “the critical and transformative aspects of decolonising pedagogies emerge from storytelling and involve the gift of narrative and the enactment of reciprocity that occurs between the listener and the storyteller.” Hilda told me that as a child she was taught not to ask questions when listening to the stories of an Elder, and her own children were raised in this manner. Hilda's oldest daughter described this as a process involving patience, intrigue and surprise (Elva Wanganeen). Narratives unfold through nuance and repetition in a complexity of layers that can generate multiple levels of meaning over time. Circularity and recursivity underlie this pedagogy through which mnemonic devices are built so that stories become re-membered and inscribed on the body of the listener. When a perceived level of knowledge-transference has occurred, a narrator may elect to elaborate further, adding another detail that will often transform the story’s social, cultural, moral or political context. Such carefully chosen additional detail, however, might re-contextualise all that has gone before. As well as being embodied, stories are also emplaced, and thus most appropriately told in the Country where events occurred. (Here I use the Aboriginal English term “Country” which encompasses home, clan estate, and the powerful complex of spiritual, animate and inanimate forces that bind people and place.) Hilda Wilson’s following account of her first job as a housekeeper for “one of Adelaide’s leading doctors”, Dr Frank Swann, provides an illustration of how she expertly uses traditional narrative forms of incrementally structured knowledge transmission within a cross-cultural setting to tell a story that expresses practices of resilience as resistance and transformation at its core. A “White Doctor” Story: The First Layer Aunty Hilda first told me this story when we were winding along the South Eastern Freeway through the Adelaide hills between Murray Bridge and Mount Barker, in 1997, on our way home to Adelaide from a trip to Camp Coorong, the Ngarrindjeri cultural education centre co-founded by her granddaughter. She was then 86 years old. Ahead of us, the profile of Mt Lofty rose out of the plains and into view. The highest peak in the Mount Lofty ranges, Yurrebilla, as it is known to Kaurna Aboriginal people, or Mt Lofty, has been an affluent enclave of white settlement for Adelaide’s moneyed elite since early colonial times. Being in place, or in view of place, provided the appropriate opportunity for her to tell me the story. It belongs to a group of stories that during our initial period of working together changed little over time until one day two years later she an added contextual detail which turned it inside out. Hilda described the doctor’s spacious hill-top residence, and her responsibilities of caring for Dr Swann’s invalid wife (“an hysteric who couldn't do anything for herself”), their twin teenage boys (who attended private college in the city) along with another son and younger daughter living at home (pers. com. Hilda Wilson). Recalling the exhilaration of looking down over the sparkling lights of Adelaide at night from this position of apparent “privilege” on the summit, she related this undeniably as a success story, justifiably taking great pride in her achievements as a teenager, capable of stepping into the place of the non-Indigenous doctor's wife in running the large and demanding household. Successfully undertaking a wide range of duties employed in the care of a family, including the disabled mother, she is an active participant crucial to the lives of all in the household, including to the work of the doctor and the twin boys in private education. Hilda recalled that Mrs Swann was unable to eat without her assistance. As the oldest daughter of a large family Hilda had previously assisted in caring for her younger siblings. Told in this way, her account collapses social distinctions, delineating a shared social and physical space, drawing its analytic frame from an Indigenous ethos of subjectivity, relationality, reciprocity and care. Moreover Hilda’s narrative of domestic service demonstrates an assertion of agency that resists colonial and patriarchal hegemony and inverts the master/mistress-servant relationship, one she firmly eschews in favour of the self-affirming role of the lady of the house. (It stands in contrast to the abuse found in other accounts for example Read, Tucker, Kartinyeri. Often the key difference was a continuity of family connections and ongoing family support.) Indeed the home transformed into a largely feminised and cross-culturalised space in which she had considerable agency and responsibility when the doctor was absent. Hilda told me this story several times in much the same way during our frequent encounters over the next two years. Each telling revealed further details that fleshed a perspective gained from what Patricia Hill Collins terms an “epistemic privilege” via her “outsider-within status” of working within a white household, lending an understanding of its social mechanisms (12-15). She also stressed the extent of her duty of care in upholding the family’s well-being, despite the work at times being too burdensome. The Second Version: Coming to Terms with Intersecting Oppressions Later, as our relationship developed and deepened, when I began to record her life-narrative as part of my doctoral work, she added an unexpected detail that altered its context completely: It was all right except I slept outside in a tin shed and it was very cold at night. Mount Lofty, by far the coldest part of Adelaide, frequently experiences winter maximum temperatures of two or three degrees and often light snowfalls. This skilful reframing draws on Indigenous storytelling pedagogy and is expressly used to invite reflexivity, opening questions that move the listener from the personal to the public realm in which domestic service and the hegemony of the home are pivotal in coming to terms with the overlapping historical oppressions of class, gender, race and nation. Suddenly we witness her subjectivity starkly shift from one self-defined and allied with an equal power relationship – or even of dependency reversal cast as “de-facto doctor's wife” – to one diminished by inequity and power imbalance in the outsider-defined role of “mistreated servant”. The latter was signalled by the dramatic addition of a single signifying detail as a decoding device to a deeper layer of meaning. In this parallel stratum of the story, Hilda purposefully brings into relief the politics in which “the private domain of women's housework intersected with the public domain of governmental social engineering policies” (Haskins 4). As Aileen Moreton-Robinson points out, what for White Australia was cheap labour and a civilising mission, for Indigenous women constituted stolen children and slavery. Protection and then assimilation were government policies under which Indigenous women grew up. (96) Hilda was sent away from her family to work in 1927 by the universally-feared Sister Pearl McKenzie, a nurse who too-zealously (Katinyeri, Ngarrindjeri Calling, 23) oversaw the Chief Protector’s policies of “training” Aboriginal children from the South Australian missions in white homes once they reached fourteen (Haebich, 316—20). Indeed many prominent Adelaide hills’ families benefited from Aboriginal labour under this arrangement. Hilda explained her struggle with the immense cultural dislocation that removal into domestic service entailed, a removal her grandfather William Rankine had travelled from Raukkan to Government House to protest against less than a decade earlier (The Register December 21, 1923). This additional layer of story also illuminates Hilda’s capacity for resilience and persistence in finding a way forward through the challenge of her circumstances (Luthar et al.), drawing on her family networks and sense of personhood (Kickett). Hilda related that her father visited her at Mount Lofty twice, though briefly, on his way to shearing jobs in the south-east of the state. “He said it was no good me living like this,” she stated. Through his active intervention, reinforcement was requested and another teenager from Point Pearce, Hilda’s future husband’s cousin, Annie Sansbury, soon arrived to share the workload. But, Hilda explained, the onerous expectations coupled with the cultural segregation of retiring to the tin shed quickly became too much for Annie, who stayed only three months, leaving Hilda coping again alone, until her father applied additional pressure for a more suitable placement to be found for his daughter. In her next position, working for the family of a racehorse trainer, Hilda contentedly shared the bedroom with the small boy for whom she cared, and not long after returned to Point Pearce where she married Robert Wilson and began a family of her own. Gendered Resilience across Cultural Divides Hilda explicitly speaks into these spaces to educate me, because all but a few white women involved have remained silent about their complicity with state sanctioned practices which exploited Indigenous labour and removed children from their families through the policies of protection and assimilation. For Indigenous women, speaking out was often fraught with the danger of a deeper removal from family and Country, even of disappearance. Victoria Haskins writes extensively of two cases in New South Wales where young Aboriginal women whose protests concerning their brutal treatment at the hands of white employers, resulted in their wrongful and prolonged committal to mental health and other institutions (147-52, 228-39). In the indentured service of Indigenous women it is possible to see oppression operating through Eurocentric ideologies of race, class and gender, in which Indigenous women were assumed to take on, through displacement, the more oppressed role of white women in pre-second world war non-Aboriginal Australian society. The troubling silent shadow-figure of the “doctor’s wife” indeed provides a haunting symbol of - and also a forceful rebellion against – the docile upper middle-class white femininity of the inter-war era. Susan Bordo has argued that that “the hysteric” is archetypal of a discourse of ‘pathology as embodied protest’ in which the body may […] be viewed as a surface on which conventional constructions of femininity are exposed starkly to view in extreme or hyperliteral form. (20) Mrs Swann’s vulnerability contrasts markedly with the strength Hilda expresses in coping with a large family, emanating from a history of equitable gender relations characteristic of Ngarrindjeri society (Bell). The intersection of race and gender, as Marcia Langton contends “continues to require deconstruction to allow us to decolonise our consciousness” (54). From Hilda’s brief description one grasps a relationship resonant with that between the protagonists in Tracy Moffat's Night Cries, (a response to the overt maternalism in the film Jedda) in which the white mother finds herself utterly reliant on her “adopted” Aboriginal daughter at the end of her life (46-7). Resilience and Survival The different versions of story Hilda deploys, provide a pedagogical basis to understanding the broader socio-political framework of her overall life narrative in which an ability to draw on the cultural continuity of the past to transform the future forms an underlying dynamic. This demonstrated capacity to meet the challenging conditions thrown up by the settler-colonial state has its foundations in the connectivity and cultural strength sustained generationally in her family. Resilience moves from being individually to socially determined, as in Kickett’s model. During the onslaught of dispossession, following South Australia’s 1836 colonial invasion, Ngarrindjeri were left near-starving and decimated from introduced diseases. Pullume (c1808-1888), the rupuli (elected leader of the Ngarrindjeri Tendi, or parliament), Hilda’s third generation great-grandfather, decisively steered his people through the traumatic changes, eventually negotiating a middle-path after the Point McLeay Mission was established on Ngarrindjeri country in 1859 (Jenkin, 59). Pullume’s granddaughter, the accomplished, independent-thinking Ellen Sumner (1842—1925), played an influential educative role during Hilda’s youth. Like other Ngarrindjeri women in her lineage, Ellen Sumner was skilled in putari practice (female doctor) and midwifery culture that extended to a duty of care concerning women and children (teaching her “what to do and what not to do”), which I suggest is something Hilda herself drew from when working with the Swann family. Hilda’s mother and aunties continued aspects of the putari tradition, attending births and giving instruction to women in the community (Bell, 171, Hughes Grandmother, 52-4). As mentioned earlier, when the South Australian government moved to introduce The Training of Children Act (SA) Hilda’s maternal grandfather William Rankine campaigned vigorously against this, taking a petition to the SA Governor in December 1923 (Haebich, 315-19). As with Aunty Hilda, William Rankine used storytelling as a method to draw public attention to the inequities of his times in an interview with The Register which drew on his life-narrative (Hughes, My Grandmother, 61). Hilda’s father Wilfred Varcoe, a Barngarrla-Wirrungu man, almost a thousand kilometres away from his Poonindie birthplace, resisted assimilation by actively pursuing traditional knowledge networks using his mobility as a highly sought after shearer to link up with related Elders in the shearing camps, (and as we saw to inspect the conditions his daughter was working under at Mt Lofty). The period Hilda spent as a servant to white families to be trained in white ways was in fact only a brief interlude in a long life in which family connections, culture and belonging (Kickett) served as the backbone of her resilience and resistance. On returning to the Point Pearce Mission, Hilda successfully raised a large family and activated a range of community initiatives that fostered well-being. In the 1960s she moved to Adelaide, initially as the sole provider of her family (her husband later followed), to give her younger children better educational opportunities. Working with Aunty Gladys Elphick OBE through the Council of Aboriginal Women, she played a foundational role in assisting other Aboriginal women establish their families in the city (Mattingly et al., 154, Fisher). In Adelaide, Aunty Hilda became an influential, much loved Elder, living in good health to the age of ninety-six years. The ability to survive changing circumstances, to extend care over and over to her children and Elders along with qualities of leadership, determination, agency and resilience have passed down through her family, several of whom have become successful in public life. These include her great-grandson and former AFL football player, Michael O’Loughlin, her great-nephew Adam Goodes and her-grand-daughter, the cultural weaver Aunty Ellen Trevorrow. Arguably, resilience contributes to physical as well as cultural longevity, through caring for the self and others. Conclusion This story demonstrates how sociocultural dimensions of resilience are contextualised in practices of everyday lives. We see this in the way that Aunty Hilda Wilson’s self-narrated story resolutely defies attempts to know, subjugate and categorise, operating instead in accord with distinctively Aboriginal expressions of gender and kinship relations that constitute an Aboriginal sovereignty. Her storytelling activates a revision of collective history in ways that valorise Indigenous identity (Kirmayer et al.). Her narrative of agency and personal achievement, one that has sustained her through life, interacts with the larger narrative of state-endorsed exploitation, diffusing its power and exposing it to wider moral scrutiny. Resilience in this context is inextricably entwined with practices of cultural survival and resistance developed in response to the introduction of government policies and the encroachment of settlers and their world. We see resilience too operating across Hilda Wilson’s family history, and throughout her long life. The agency and strategies displayed suggest alternative realities and imagine other, usually more equitable, possible worlds. References Bell, Diane. Ngarrindjeri Wurruwarrin: A World That Is, Was and Will Be. Melbourne: Spinifex, 1998. Bordo, Susan. “The Body and the Reproduction of Femininity.” Writing on the Body: Female Embodiment and Feminist Theory. Eds. Katie Conboy, Nadia Medina, and Sarah Stanbury. New York: Columbia UP, 1997. 90-110. Collins, Patricia Hill. Black Feminist Thought. New York: Routledge, 2000. Fisher, Elizabeth M. "Elphick, Gladys (1904–1988)." Australian Dictionary of Biography. National Centre of Biography, Australian National University, 29 Sep. 2013. ‹http://adb.anu.edu.au/biography/elphick-gladys-12460/text22411>. Grieves, Victoria. Aboriginal Spirituality: Aboriginal Philosophy, The Basis of Aboriginal Social and Emotional Wellbeing, Melbourne University: Cooperative Research Centre for Aboriginal Health, 2009. Haebich, Anna. Broken Circles: The Fragmenting of Indigenous Families. Fremantle: Fremantle Arts Press, 2000. Haskins, Victoria. My One Bright Spot. London: Palgrave, 2005. Hughes, Karen. "My Grandmother on the Other Side of the Lake." PhD thesis, Department of Australian Studies and Department of History, Flinders University. Adelaide, 2009. ———. “Microhistories and Things That Matter.” Australian Feminist Studies 27.73 (2012): 269-278. ———. “I’d Grown Up as a Child amongst Natives.” Outskirts: Feminisms along the Edge 28 (2013). 29 Sep. 2013 ‹http://www.outskirts.arts.uwa.edu.au/volumes/volume-28/karen-hughes>. Jenkin, Graham. Conquest of the Ngarrindjeri. Adelaide: Rigby, 1979. Kartinyeri, Doris. Kick the Tin. Melbourne: Spinifex, 2000. Kartinyeri, Doreen. My Ngarrindjeri Calling, Adelaide: Wakefield, 2007. Kickett, Marion. “Examination of How a Culturally Appropriate Definition of Resilience Affects the Physical and Mental Health of Aboriginal People.” PhD thesis, Curtin University, 2012. Kirmayer, L.J., S. Dandeneau, E. Marshall, M.K. Phillips, K. Jenssen Williamson. “Rethinking Resilience from Indigenous Perspectives.” Canadian Journal of Psychiatry 56.2 (2011): 84-91. Luthar, S., D. Cicchetti, and B. Becker. “The Construct of Resilience: A Critical Evaluation and Guidelines for Future Work.” Child Development 71.3 (2000): 543-62. MacGill, Bindi, Julie Mathews, Ellen Trevorrow, Alice Abdulla, and Deb Rankine. “Ecology, Ontology, and Pedagogy at Camp Coorong,” M/C Journal 15.3 (2012). Mattingly, Christobel, and Ken Hampton. Survival in Our Own Land, Adelaide: Wakefield, 1988. Moreton-Robinson, Aileen. Talkin’ Up to the White Woman. St Lucia: UQP, 2000. Night Cries, A Rural Tragedy. Dir. Tracy Moffatt. Chili Films, 1990. Read, Peter. A Rape of the Soul So Profound. Crows Nest: Allen & Unwin, 2002. Tucker, Margaret. If Everyone Cared. Sydney: Ure Smith, 1977. Wanganeen, Elva. Personal Communication, 2000. Westphalen, Linda. An Anthropological and Literary Study of Two Aboriginal Women's Life Histories: The Impacts of Enforced Child Removal and Policies of Assimilation. New York: Mellen Press, 2011.

Introduction The public sphere includes a range of credible discourses asserting that a proportion of teenagers (“teens”) has an unhealthy dependence upon continuous connection with media devices, and especially smartphones. A review of media discourse (Jaunzems et al.) in Australia, and a critical review of public discourse in Australia and Belgium (Zaman et al.), reveal both positive and negative commentary around screentime. Despite the “emotionally laden, opposing views” expressed in the media, there appears to be a groundswell of concern around young people’s dependence upon digital devices (Zaman et al. 120). Concerns about ‘addiction’ to and dependency on digital media first emerged with the Internet and have been continually represented as technology evolves. One recent example is the 2020 multi-part Massey Lecture series which hooked audiences with the provocative title: “we need to reclaim our lives from our phones” (Deibert). In Sydney, a psychology-based “outpatient addiction treatment centre” offers specialised recovery programs for “Internet addiction”, noting that addicts include school-aged teens, as well as adults (Cabin). Such discourse reflects well-established social anxieties around the disruptive impacts of new technologies upon society (Marvin), while focussing such concern disproportionately upon the lives, priorities, and activities of young people (Tsaliki and Chronaki). While a growing peer-reviewed evidence base suggests some young people have problematic relationships with digital media (e.g. Odgers and Robb; Donald et al.; Gaspard; Tóth-Király et al.; Boer et al.), there are also opposing views (e.g. Vuorre et al.) Ben Light, for instance, highlights the notion of disconnection as a set of practices that include using some platforms and not others, unfriending, and selective anonymity (Light). We argue that this version of disconnection and what we refer to as ‘detox’ are two different practices. Detox, as we use it, is the regular removal of elements of lived experience (such as food consumption) that may be enjoyable but which potentially have negative consequences over time, before (potentially) reintroducing the element or pratice. The aims of a detox include ensuring greater control over the enjoyable experience while, at the same time, reducing exposure to possible harm. There is a lack of specific research that unequivocally asserts young people’s unhealthy dependence upon smartphones. Nonetheless, there appears to be a growing public belief in the efficacy of “the detox” (Beyond Blue) or “unplugging” (Shlain). We argue that a teen’s commitment to regular smartphone abstinence is non-fungible with ‘as and when’ smartphone use. In other words, there is a significant, ineluctable and non-trivial difference between the practice of regularly disconnecting from a smartphone at a certain point of the day, or for a specified period in the week, compared with the same amount of time ‘off’ the device which is a haphazard, as and when, doing something else, type of practice. We posit that recurrent periods of smartphone abstinence, equating to a regular detox, might support more balanced, healthy and empowered smartphone use. Repeated abstinence in this case differs from the notion of the disconnected holiday, where a person might engage in irregular smartphone withdrawal during an annual holiday, for example (Traveltalk; Hoving; Stäheli and Stoltenberg). Such abstinence does have widespread historical and cultural resonance, however, as in the fasting practices of Islam (the month of Ramadan), the Christian season of Lent, and the holy Hindu month of Śravaṇa. Where prolonged periods of fasting are supplemented by weekly or holy-day fasts, they may be reprised with a regularity that brings the practice closer to the scheduled pattern of abstinence that we see as non-fungible with an unstructured as-and-when approach. An extreme example of the long fast and intermittent fast days is offered by the traditional practices of the Greek Orthodox church, whose teachings recommend fasting on Wednesdays and Fridays as well as on religious holy days. With the inclusion of Lent, Greek Orthodox fasting practices can comprise 180 fast days per year: that’s about half of available days. As yet, there is no coherent evidence base supporting the benefits of regular intermittent disconnection. The Australian mental health Website Beyond Blue, which asserts the value of digital detox, cannot find a stronger authority to underpin a practice of withdrawal than “Research from Deloitte’s annual Mobile Consumer Survey report” which indicates that “44 per cent of people in Australia think their phone use is a problem and are trying to reduce how much time they spend on it” (Beyond Blue). Academic literature that addresses these areas by drawing on more than personal experience and anecdote is scarce to non-existent. Insofar as such studies exist over the past decade, from Maushart to Leonowicz-Bukała et al., they are irregular experiments which do not commit to repeated periods of disconnection. This article is a call to investigate the possibly non-fungible benefits of teens’ regularly practicing smartphone disconnection. It argues that there is actual evidence which is yet to be collected. New knowledge in this area may provide a compelling dataset that suggests verifiable benefits for the non-fungible practice of regular smartphone disconnection. We believe that there are teenagers, parents and communities willing to trial appropriate interventions over a significant period of time to establish ‘before’ and ‘after’ case studies. The evidence for these opinions is laid out in the sections that follow. Teens’ Experiences of Media, Smartphone, and Other Cultural Dis/connection In 2018, the Pew Research Center in the US surveyed teens about their experiences of social media, updating elements of an earlier study from 2014-15. They found that almost all (95%) the 743 teens in the study, aged between 13 and 17 when they were surveyed in March-April 2018, had or had access to a smartphone (Anderson and Jiang). A more recent report from 2021 notes that 88% of US teenagers, aged 13-18, have their own smartphone (Common Sense Media 22). What is more, this media use survey indicates that American teens have increased their screen entertainment time from 7 hours, 22 minutes per day in 2019 to 8 hours, 39 minutes per day in 2021 (Common Sense Media 3). Lee argues that, on average, mobile phone users in Australia touch their phones 2,617 times a day. In Sweden, a 2019 study of youth aged 15-24 noted a pervasive concern regarding the logical assumption “that offline time is influenced and adapted when people spend an increasing amount of time online” (Thulin and Vilhelmson 41). These authors critique the overarching theory of young people comprising a homogenous group of ‘digital natives’ by identifying different categories of light, medium, and heavy users of ICT. They say that the “variation in use is large, indicating that responses to ubiquitous ICT access are highly diverse rather than homogenously determined” (Thulin and Vilhelmson 48). The practice or otherwise of regular periods of smartphone disconnection is a further potential differentiator of teens’ digital experiences. Any investigation into these areas of difference should help indicate ways in which teens may or may not achieve comparatively more or less control over their smartphone use. Lee argues that in Australia “teens who spend five or more hours per day on their devices have a 71% higher risk factor for suicide”. Twenge and Campbell (311) used “three large surveys of adolescents in two countries (n = 221,096)” to explore differences between ‘light users’ of digital media (<1 hour per day) and ‘heavy users’ (5+ hours per day). They use their data to argue that “heavy users (vs. light) of digital media were 48% to 171% more likely to be unhappy, to be low in well-being, or to have suicide risk factors such as depression, suicidal ideation, or past suicide attempts” (Twenge and Campbell 311). Notably, Livingstone among others argues that emotive assertions such as these tend to ignore the nuance of significant bodies of research (Livingstone, about Twenge). Even so, it is plausible that teens’ online activities interpolate both positively and negatively upon their offline activities. The capacity to disconnect, however, to disengage from smartphone use at will, potentially allows a teen more opportunity for individual choice impacting both positive and negative experiences. As boyd argued in 2014: “it’s complicated”. The Pew findings from 2018 indicate that teens’ positive comments about social media use include: 81% “feel more connected to their friends”; 69% “think it helps [them] interact with a more diverse group of people”; and 68% “feel as if they have people who will support them through tough times.” (Anderson and Jiang) The most numerous negative comments address how of all teens: 45% “feel overwhelmed by all the drama there”; 43% “feel pressure to only post content that makes them look good to others”; and 37% “feel pressure to post content that will get a lot of likes and comments.” (Anderson and Jiang) It is notable that these three latter points relate to teens’ vulnerabilities around others’ opinions of themselves and the associated rollercoaster of emotions these opinions may cause. They resonate with Ciarrochi et al.’s argument that different kinds of Internet activity impact different issues of control, with more social forms of digital media associated with young females’ higher “compulsive internet use […] and worse mental health than males” (276). What is not known, because it has never been investigated, is whether any benefits flowing from regular smartphone disconnection might have a gendered dimension. If there is specific value in a capacity to disconnect regularly, separating that experience from haphazard episodes of connection and disconnection, regular disconnection may also enhance the quality of smartphone engagement. Potentially, the power to turn off their smartphone when the going got tough might allow young people to feel greater control over their media use while being less susceptible to the drama and compulsion of digital engagement. As one 17-year-old told the Pew researchers, possibly ruefully, “[teens] would rather go scrolling on their phones instead of doing their homework, and it’s so easy to do so. It’s just a huge distraction” (Anderson and Jiang). Few cultural contexts support teens’ regular and repeated disengagement from smartphones, but Icelandic society, Orthodox Judaism and the comparatively common practice of overnight disconnection from smartphone use may offer helpful indications of possible benefits. Cross-Cultural and Religious Interventions in Smartphone Use Concern around teens’ smartphone use, as described above, is typically applied to young people whose smartphone use constitutes an integral part of everyday life. The untangling of such interconnection would benefit from being both comparative and experimental. Our suggestions follow. Iceland has, in the past, adopted what Karlsson and Broddason term “a paternalistic cultural conservatism” (1). Legislators concerned about the social impacts of television deferred the introduction of Icelandic broadcasting for many years, beyond the time that most other European nations offered television services. Program offerings were expanded in a gradual way after the 1966 beginnings of Iceland’s public television broadcasting. As Karlsson and Broddason note, “initially the transmission hours were limited to only a few hours in the evening, three days a week and a television-free month in July. The number of transmission days was increased to six within a few years, still with a television-free month in July until 1983 and television-free Thursdays until 1987” (6). Interestingly, the nation is still open to social experimentation on a grand scale. In the 1990s, for example, in response to significant substance abuse by Icelandic teens, the country implemented an interventionist whole-of-Iceland public health program: the Icelandic Prevention Model (Kristjansson et al.). Social experimentation on a smaller scale remains part of the Icelandic cultural fabric. More recently, between 2015 and 2019, Iceland ran a successful social experiment whereby 1% of the working population worked a shorter work week for full time pay. The test was deemed successful because “workers were able to work less, get paid the same, while maintaining productivity and improving personal well-being” (Lau and Sigurdardottir). A number of self-governing Icelandic villages operate a particularly inclusive form of consultative local democracy enabling widespread buy-in for social experiments. Two or more such communities are likely to be interested in trialling an intervention study if there is a plausible reason to believe that the intervention may make a positive difference to teens’ (and others’) experiences of smartphone use. Those plausible reasons might be indicated by observational data from other people’s everyday practices. One comparatively common everyday practice which has yet to be systematically investigated from the perspective of evaluating the possible impacts of regular disconnection is that practiced by families who leave connected media outside the bedroom at night-time. These families are in the habit of putting their phones on to charge, usually in a shared space such as a kitchen or lounge room, and not referring to them again until a key point in the morning: when they are dressed, for example, or ready to leave the house. It is plausible to believe that such families might feel they have greater control over smartphone use than a family who didn’t adopt a regular practice of smartphone disconnection. According to social researchers in the Nordic nations, including co-authors Kjartan Ólafsson and Elisabeth Staksrud, it is likely that an Icelandic community will be keen to trial this experience of regular smartphone disconnection for a period of six months or more, if that trial went hand in hand with a rigorous evaluation of impact. Some religious communities offer a less common exemplar for teens’ regular disconnection from their smartphone. Young people in these communities may suspend their smartphone (and other media use) for just over a full day per week to focus on deepening their engagement with family and friends, and to support their spiritual development. Notable among such examples are teenagers who identify as members of the Orthodox Jewish faith. Their religious practices include withdrawing from technological engagement as part of the observance of Shabbat (the Sabbath): at least, that’s the theory. For the past ten years or so in Australia there has been a growing concern over some otherwise-Orthodox Jewish teens’ practice of the “half-Shabbat,” in which an estimated 17-50% of this cohort secretly use digital media for some time during their 25 hours of mandated abstinence. As one teacher from an Orthodox high school argues, “to not have access to the phone, it’s like choking off their air” (Telushikin). Interestingly, many Jewish teens who privately admit practicing half-Shabbat envision themselves as moving towards full observance in adulthood: they can see benefits in a wholehearted commitment to disengagement, even if it’s hard to disengage fully at this point in their lives. Hadlington et al.’s article “I Cannot Live without My [Tablet]” similarly evokes a broader community crisis around children’s dependence on digital media, noting that many children aged 8-12 have a tablet of their own before moving onto smartphone ownership in their teens (Common Sense Media 22). We appreciate that not every society has children and young people who are highly networked and integrated within digital dataflows. Nonetheless, while constant smartphone connectivity might appear to be a ‘first world problem’, preparing teens to be adults with optimal choice over their smartphone use includes identifying and promoting support for conscious disengagement from media as and when a young person wishes. Such a perspective aligns with promoting young people’s rights in digital contexts by interrogating the possible benefits of regularly disconnecting from digital media. Those putative benefits may be indicated by investigating perspectives around smartphone use held by Orthodox Jewish teenagers and comparing them with those held by teens who follow a liberal Jewish faith: liberal Jewish teens use smartphones in ways that resonate with broader community teens. A comparison of these two groups, suggests co-author Lynne Cohen, may indicate differences that can (in part) be attributed to Orthodox Jewish practices of digital disconnection, compared with liberal Jewish practices that don’t include disconnection. If smartphone disconnection has the potential to offer non-fungible benefits, it is incumbent upon researchers to investigate the possible advantages and drawbacks of such practices. That can be done through the comparative investigation of current practice as outlined above, and via an experimental intervention for approximately six months with a second Icelandic/Nordic community. The Potential Value of Investigating the (Non-)Fungibility of Digital Engagement and Digital Inactivity The overarching hypothesis addressed in this article is that a lived experience of regular smartphone disconnection may offer teenagers the opportunity to feel more in control of their personal technologies. Such a perspective aligns with many established media theories. These theories include the domestication of technology and its integration into daily life, helping to explain the struggle teens experience in detaching from digital media once they have become a fundamental element of their routine. Domestication theory asserts that technology moves from novelty to an integral aspect of everyday experience (Berker et al.). Displacement theory asserts that young people whose lives are replete with digital media may have substituted that media use for other activities enjoyed by the generations that grew up before them, while boyd offers an alternative suggestion that digital media add to, rather than displace, teens’ activities in daily contexts. Borrowing inputs from other disciplinary traditions, theories around mindfulness are increasingly robust and evidence-based, asserting that “attentiveness to what is present appears to yield corrective and curative benefits in its own right” (Brown et al. 1). Constant attention to digital media may be a distraction from mindful engagement with the lived environment. A detailed study of the non-fungible character of smartphone disconnection practices might offer an evidence base to support suggestions, such as those proffered by Beyond Blue, that a digital detox benefits mental health, resilience, and sociality. Such information might support initiatives by schools and other organisations central to the lives of teenagers to institute regular digital disconnection regimes, akin to Iceland’s experiments with television-free Thursdays. These innovations could build upon aligned social initiatives such as “no email Fridays” (Horng), which have been trialled in business contexts. Further, studies such as those outlined above could add authority to recommendations for parents, educators, and caregivers such as those recommendations contained in papers on the Common Sense Media site, for example, including Tweens, Teens, Tech, and Mental Health (Odgers and Robb) and Device-Free Dinners (Robb). Relevantly, the results from such observational and intervention studies would address the post-COVID era when parents and others will be considering how best to support a generation of children who went online earlier, and more often, than any generation before them. These results might also align with work towards early-stage adoption of the United Nations’ General Comment No. 25 on Children’s Rights in Relation to the Digital Environment (UNCRC). If so, an investigation into the fungibility or otherwise of digital abstention could contribute to the national and international debate about the rights of young people to make informed decisions around when to connect, and when to disconnect, from engagement via a smartphone. References Anderson, Monica, and Jingjing Jiang. "Teens’ Social Media Habits and Experiences." Pew Research Center 28 Nov. 2018. <https://www.pewresearch.org/internet/2018/11/28/teens-social-media-habits-and-experiences/>. Berker, Thomas, Maren Hartmann, and Yves Punie. Domestication of Media and Technology. McGraw-Hill Education, 2005. Beyond Blue. “The Benefits of a Digital Detox: Unplugging from Digital Technology Can Have Tremendous Benefits on Body and Mind.” Beyond Blue, n.d. <https://www.beyondblue.org.au/personal-best/pillar/wellbeing/the-benefits-of-a-digital-detox>. Boer, Maartje, Gonneke W.J.M. Stevens, Catrin Finkenauer, Margaretha E. de Looze, and Regina J.J.M. van den Eijnden. “Social Media Use Intensity, Social Media Use Problems, and Mental Health among Adolescents: Investigating Directionality and Mediating Processes.” Computers in Human Behavior 116 (Mar. 2021): 106645. <https://doi.org/10.1016/j.chb.2020.106645>. boyd, danah. It’s Complicated : The Social Lives of Networked Teens. Yale University Press, 2014. <http://www.danah.org/books/ItsComplicated.pdf>. Brown, Kirk Warren, J. David Creswell, and Richard M. Ryan. “The Evolution of Mindfulness Science.” Handbook of Mindfulness : Theory, Research, and Practice, eds. Kirk Warren Brown et al. Guilford Press, 2016. Cabin, The. “Internet Addiction Treatment Center.” The Cabin, 2020. <https://www.thecabinsydney.com.au/internet-addiction-treatment/>. Ciarrochi, Joseph, Philip Parker, Baljinder Sahdra, Sarah Marshall, Chris Jackson, Andrew T. Gloster, and Patrick Heaven. “The Development of Compulsive Internet Use and Mental Health: A Four-Year Study of Adolescence.” Developmental Psychology 52.2 (2016): 272. Common Sense Media. "The Common Sense Census: Media Use by Tweens and Teens, 2021". <https://www.commonsensemedia.org/sites/default/files/research/report/8-18-census-integrated-report-final-web_0.pdf>. Deibert, Ron. “Reset: Reclaiming the Internet for Civil Society.” 2020 Massey Lectures. CBC Radio. 7 Feb. 2022 <https://www.cbc.ca/radio/ideas/reset-reclaiming-the-internet-for-civil-society-1.5795345>. Donald, James N., Joseph Ciarrochi, and Baljinder K. Sahdra. "The Consequences of Compulsion: A 4-Year Longitudinal Study of Compulsive Internet Use and Emotion Regulation Difficulties." Emotion (2020). Gaspard, Luke. “Australian High School Students and Their Internet Use: Perceptions of Opportunities versus ‘Problematic Situations.’” Children Australia 45.1 (Mar. 2020): 54–63. <https://doi.org/10.1017/cha.2020.2>. Hadlington, Lee, Hannah White, and Sarah Curtis. "‘I Cannot Live without My [Tablet]’: Children's Experiences of Using Tablet Technology within the Home." Computers in Human Behavior 94 (2019): 19-24. Horng, Eric. “No-E-Mail Fridays Transform Office.” ABC News [US], 4 Aug. 2007. <https://abcnews.go.com/WNT/story?id=2939232&page=1>. Hoving, Kristel. “Digital Detox Tourism: Why Disconnect? : What Are the Motives of Dutch Tourists to Undertake a Digital Detox Holiday?” Undefined, 2017. <https://www.semanticscholar.org/paper/Digital-Detox-Tourism%3A-Why-disconnect-%3A-What-are-of-Hoving/17503393a5f184ae0a5f9a2ed73cd44a624a9de8>. Jaunzems, Kelly, Donell Holloway, Lelia Green, and Kylie Stevenson. “Very Young Children Online: Media Discourse and Parental Practice.” Digitising Early Childhood. Cambridge Scholars Publishing, 2019, <https://ro.ecu.edu.au/ecuworkspost2013/7550>. Karlsson, Ragnar, and Thorbjörn Broddason. Between the Market and the Public: Content Provision and Scheduling of Public and Private TV in Iceland. Kristjansson, Alfgeir L., Michael J. Mann, Jon Sigfusson, Ingibjorg E. Thorisdottir, John P. Allegrante, and Inga Dora Sigfusdottir. “Development and Guiding Principles of the Icelandic Model for Preventing Adolescent Substance Use.” Health Promotion Practice 21.1 (Jan. 2020): 62–69. <https://doi.org/10.1177/1524839919849032>. Lau, Virginia, and Ragnhildur Sigurdardottir. “The Shorter Work Week Really Worked in Iceland: Here’s How.” Time, 2021. <https://time.com/6106962/shorter-work-week-iceland/>. Lee, James. “16 Smartphone Statistics Australia Should Take Note Of (2021).” Smartphone Statistics Australia, 2022. <https://whatasleep.com.au/blog/smartphone-statistics-australia/>. Leonowicz-Bukała, Iwona, Anna Martens, and Barbara Przywara. "Digital Natives Disconnected. The Qualitative Research on Mediatized Life of Polish and International Students in Rzeszow and Warsaw, Poland." Przegląd Badań Edukacyjnych (Educational Studies Review) 35.2 (2021): 69-96. Light, Ben. Disconnecting with Social Networking Sites. Palgrave Macmillan, 2014. Livingstone, Sonia. "iGen: Why Today’s Super-Connected Kids Are Growing Up Less Rebellious, More Tolerant, Less Happy–and Completely Unprepared for Adulthood." Journal of Children and Media, 12.1 (2018): 118–123. <https://doi.org/10.1080/17482798.2017.1417091>. Marvin, Carolyn. When Old Technologies Were New : Thinking about Electric Communication in the Late Nineteenth Century. Oxford UP, 1990. Maushart, Susan. The Winter of Our Disconnect: How Three Totally Wired Teenagers (and a Mother Who Slept with Her iPhone) Pulled the Plug on Their Technology and Lived to Tell the Tale. Penguin, 2011. Odgers, Candice L., and Michael Robb. “Tweens, Teens, Tech, and Mental Health: Coming of Age in an Increasingly Digital, Uncertain, and Unequal World.” Common Sense Media, 2020. <https://www.commonsensemedia.org/research/tweens-teens-tech-and-mental-health>. Robb, Michael. “Why Device-Free Dinners Are a Healthy Choice.” Common Sense Media, 4 Aug. 2016. <https://www.commonsensemedia.org/blog/why-device-free-dinners-are-a-healthy-choice>. Shlain, Tiffany. “Tech’s Best Feature: The Off Switch.” Harvard Business Review, 1 Mar. 2013. <https://hbr.org/2013/03/techs-best-feature-the-off-swi>. Stäheli, Urs, and Luise Stoltenberg. “Digital Detox Tourism: Practices of Analogization.” New Media & Society (Jan. 2022). <https://doi.org/10.1177/14614448211072808>. Telushikin, Shira. “Modern Orthodox Teens Can’t Put Down Their Phones on Shabbat.” Tablet Magazine, 12 Sep. 2014. <https://www.tabletmag.com/sections/belief/articles/shabbat-phones>. Thulin, Eva, and Bertil Vilhelmson. “More at Home, More Alone? Youth, Digital Media and the Everyday Use of Time and Space.” Geoforum 100 (Mar. 2019): 41–50. <https://doi.org/10.1016/j.geoforum.2019.02.010>. Tóth-Király, István, Alexandre J.S. Morin, Lauri Hietajärvi, and Katariina Salmela‐Aro. “Longitudinal Trajectories, Social and Individual Antecedents, and Outcomes of Problematic Internet Use among Late Adolescents.” Child Development 92.4 (2021): e653–73. <https://doi.org/10.1111/cdev.13525>. Traveltalk. “The Rise of Digital Detox Holidays and Tech-Free Tourism.” Traveltalk, 2018. <https://www.traveltalkmag.com.au/blog/articles/the-rise-of-digital-detox-holidays-and-tech-free-tourism>. Tsaliki, Liza, and Despina Chronaki. Discourses of Anxiety over Childhood and Youth across Cultures. 1st ed. Springer International Publishing, 2020. <https://doi.org/10.1007/978-3-030-46436-3>. Twenge, Jean M. iGen: Why Today's Super-Connected Kids Are Growing Up Less Rebellious, More Tolerant, Less Happy – and Completely Unprepared for Adulthood – and What That Means for the Rest of Us. Simon and Schuster, 2017. Twenge, Jean M., and W. Keith Campbell. “Media Use Is Linked to Lower Psychological Well-Being: Evidence from Three Datasets.” The Psychiatric Quarterly 90.2 (2019): 311-331. <https://doi.org/10.1007/s11126-019-09630-7>. UNCRC. "General Comment No. 25 (2021) on Children's Rights in Relation to the Digital Environment." United Nations Human Rights Office of the High Commissioner, Committee on the Rights of the Child, 2 Mar. 2021. <https://www.ohchr.org/en/documents/general-comments-and-recommendations/general-comment-no-25-2021-childrens-rights-relation>. Vuorre, Matti, Amy Orben, and Andrew K. Przybylski. “There Is No Evidence That Associations Between Adolescents’ Digital Technology Engagement and Mental Health Problems Have Increased.” Clinical Psychological Science 9.5 (Sep. 2021): 823–35. <https://doi.org/10.1177/2167702621994549>. Zaman, Bieke, Donell Holloway, Lelia Green, Kelly Jaunzems, and Hadewijch Vanwynsberghe. “Opposing Narratives about Children’s Digital Media Use: A Critical Discourse Analysis of Online Public Advice Given to Parents in Australia and Belgium:” Media International Australia (May 2020). <https://doi.org/10.1177/1329878X20916950>.

Introduction The public sphere includes a range of credible discourses asserting that a proportion of teenagers (“teens”) has an unhealthy dependence upon continuous connection with media devices, and especially smartphones. A review of media discourse (Jaunzems et al.) in Australia, and a critical review of public discourse in Australia and Belgium (Zaman et al.), reveal both positive and negative commentary around screentime. Despite the “emotionally laden, opposing views” expressed in the media, there appears to be a groundswell of concern around young people’s dependence upon digital devices (Zaman et al. 120). Concerns about ‘addiction’ to and dependency on digital media first emerged with the Internet and have been continually represented as technology evolves. One recent example is the 2020 multi-part Massey Lecture series which hooked audiences with the provocative title: “we need to reclaim our lives from our phones” (Deibert). In Sydney, a psychology-based “outpatient addiction treatment centre” offers specialised recovery programs for “Internet addiction”, noting that addicts include school-aged teens, as well as adults (Cabin). Such discourse reflects well-established social anxieties around the disruptive impacts of new technologies upon society (Marvin), while focussing such concern disproportionately upon the lives, priorities, and activities of young people (Tsaliki and Chronaki). While a growing peer-reviewed evidence base suggests some young people have problematic relationships with digital media (e.g. Odgers and Robb; Donald et al.; Gaspard; Tóth-Király et al.; Boer et al.), there are also opposing views (e.g. Vuorre et al.) Ben Light, for instance, highlights the notion of disconnection as a set of practices that include using some platforms and not others, unfriending, and selective anonymity (Light). We argue that this version of disconnection and what we refer to as ‘detox’ are two different practices. Detox, as we use it, is the regular removal of elements of lived experience (such as food consumption) that may be enjoyable but which potentially have negative consequences over time, before (potentially) reintroducing the element or pratice. The aims of a detox include ensuring greater control over the enjoyable experience while, at the same time, reducing exposure to possible harm. There is a lack of specific research that unequivocally asserts young people’s unhealthy dependence upon smartphones. Nonetheless, there appears to be a growing public belief in the efficacy of “the detox” (Beyond Blue) or “unplugging” (Shlain). We argue that a teen’s commitment to regular smartphone abstinence is non-fungible with ‘as and when’ smartphone use. In other words, there is a significant, ineluctable and non-trivial difference between the practice of regularly disconnecting from a smartphone at a certain point of the day, or for a specified period in the week, compared with the same amount of time ‘off’ the device which is a haphazard, as and when, doing something else, type of practice. We posit that recurrent periods of smartphone abstinence, equating to a regular detox, might support more balanced, healthy and empowered smartphone use. Repeated abstinence in this case differs from the notion of the disconnected holiday, where a person might engage in irregular smartphone withdrawal during an annual holiday, for example (Traveltalk; Hoving; Stäheli and Stoltenberg). Such abstinence does have widespread historical and cultural resonance, however, as in the fasting practices of Islam (the month of Ramadan), the Christian season of Lent, and the holy Hindu month of Śravaṇa. Where prolonged periods of fasting are supplemented by weekly or holy-day fasts, they may be reprised with a regularity that brings the practice closer to the scheduled pattern of abstinence that we see as non-fungible with an unstructured as-and-when approach. An extreme example of the long fast and intermittent fast days is offered by the traditional practices of the Greek Orthodox church, whose teachings recommend fasting on Wednesdays and Fridays as well as on religious holy days. With the inclusion of Lent, Greek Orthodox fasting practices can comprise 180 fast days per year: that’s about half of available days. As yet, there is no coherent evidence base supporting the benefits of regular intermittent disconnection. The Australian mental health Website Beyond Blue, which asserts the value of digital detox, cannot find a stronger authority to underpin a practice of withdrawal than “Research from Deloitte’s annual Mobile Consumer Survey report” which indicates that “44 per cent of people in Australia think their phone use is a problem and are trying to reduce how much time they spend on it” (Beyond Blue). Academic literature that addresses these areas by drawing on more than personal experience and anecdote is scarce to non-existent. Insofar as such studies exist over the past decade, from Maushart to Leonowicz-Bukała et al., they are irregular experiments which do not commit to repeated periods of disconnection. This article is a call to investigate the possibly non-fungible benefits of teens’ regularly practicing smartphone disconnection. It argues that there is actual evidence which is yet to be collected. New knowledge in this area may provide a compelling dataset that suggests verifiable benefits for the non-fungible practice of regular smartphone disconnection. We believe that there are teenagers, parents and communities willing to trial appropriate interventions over a significant period of time to establish ‘before’ and ‘after’ case studies. The evidence for these opinions is laid out in the sections that follow. Teens’ Experiences of Media, Smartphone, and Other Cultural Dis/connection In 2018, the Pew Research Center in the US surveyed teens about their experiences of social media, updating elements of an earlier study from 2014-15. They found that almost all (95%) the 743 teens in the study, aged between 13 and 17 when they were surveyed in March-April 2018, had or had access to a smartphone (Anderson and Jiang). A more recent report from 2021 notes that 88% of US teenagers, aged 13-18, have their own smartphone (Common Sense Media 22). What is more, this media use survey indicates that American teens have increased their screen entertainment time from 7 hours, 22 minutes per day in 2019 to 8 hours, 39 minutes per day in 2021 (Common Sense Media 3). Lee argues that, on average, mobile phone users in Australia touch their phones 2,617 times a day. In Sweden, a 2019 study of youth aged 15-24 noted a pervasive concern regarding the logical assumption “that offline time is influenced and adapted when people spend an increasing amount of time online” (Thulin and Vilhelmson 41). These authors critique the overarching theory of young people comprising a homogenous group of ‘digital natives’ by identifying different categories of light, medium, and heavy users of ICT. They say that the “variation in use is large, indicating that responses to ubiquitous ICT access are highly diverse rather than homogenously determined” (Thulin and Vilhelmson 48). The practice or otherwise of regular periods of smartphone disconnection is a further potential differentiator of teens’ digital experiences. Any investigation into these areas of difference should help indicate ways in which teens may or may not achieve comparatively more or less control over their smartphone use. Lee argues that in Australia “teens who spend five or more hours per day on their devices have a 71% higher risk factor for suicide”. Twenge and Campbell (311) used “three large surveys of adolescents in two countries (n = 221,096)” to explore differences between ‘light users’ of digital media (<1 hour per day) and ‘heavy users’ (5+ hours per day). They use their data to argue that “heavy users (vs. light) of digital media were 48% to 171% more likely to be unhappy, to be low in well-being, or to have suicide risk factors such as depression, suicidal ideation, or past suicide attempts” (Twenge and Campbell 311). Notably, Livingstone among others argues that emotive assertions such as these tend to ignore the nuance of significant bodies of research (Livingstone, about Twenge). Even so, it is plausible that teens’ online activities interpolate both positively and negatively upon their offline activities. The capacity to disconnect, however, to disengage from smartphone use at will, potentially allows a teen more opportunity for individual choice impacting both positive and negative experiences. As boyd argued in 2014: “it’s complicated”. The Pew findings from 2018 indicate that teens’ positive comments about social media use include: 81% “feel more connected to their friends”; 69% “think it helps [them] interact with a more diverse group of people”; and 68% “feel as if they have people who will support them through tough times.” (Anderson and Jiang) The most numerous negative comments address how of all teens: 45% “feel overwhelmed by all the drama there”; 43% “feel pressure to only post content that makes them look good to others”; and 37% “feel pressure to post content that will get a lot of likes and comments.” (Anderson and Jiang) It is notable that these three latter points relate to teens’ vulnerabilities around others’ opinions of themselves and the associated rollercoaster of emotions these opinions may cause. They resonate with Ciarrochi et al.’s argument that different kinds of Internet activity impact different issues of control, with more social forms of digital media associated with young females’ higher “compulsive internet use […] and worse mental health than males” (276). What is not known, because it has never been investigated, is whether any benefits flowing from regular smartphone disconnection might have a gendered dimension. If there is specific value in a capacity to disconnect regularly, separating that experience from haphazard episodes of connection and disconnection, regular disconnection may also enhance the quality of smartphone engagement. Potentially, the power to turn off their smartphone when the going got tough might allow young people to feel greater control over their media use while being less susceptible to the drama and compulsion of digital engagement. As one 17-year-old told the Pew researchers, possibly ruefully, “[teens] would rather go scrolling on their phones instead of doing their homework, and it’s so easy to do so. It’s just a huge distraction” (Anderson and Jiang). Few cultural contexts support teens’ regular and repeated disengagement from smartphones, but Icelandic society, Orthodox Judaism and the comparatively common practice of overnight disconnection from smartphone use may offer helpful indications of possible benefits. Cross-Cultural and Religious Interventions in Smartphone Use Concern around teens’ smartphone use, as described above, is typically applied to young people whose smartphone use constitutes an integral part of everyday life. The untangling of such interconnection would benefit from being both comparative and experimental. Our suggestions follow. Iceland has, in the past, adopted what Karlsson and Broddason term “a paternalistic cultural conservatism” (1). Legislators concerned about the social impacts of television deferred the introduction of Icelandic broadcasting for many years, beyond the time that most other European nations offered television services. Program offerings were expanded in a gradual way after the 1966 beginnings of Iceland’s public television broadcasting. As Karlsson and Broddason note, “initially the transmission hours were limited to only a few hours in the evening, three days a week and a television-free month in July. The number of transmission days was increased to six within a few years, still with a television-free month in July until 1983 and television-free Thursdays until 1987” (6). Interestingly, the nation is still open to social experimentation on a grand scale. In the 1990s, for example, in response to significant substance abuse by Icelandic teens, the country implemented an interventionist whole-of-Iceland public health program: the Icelandic Prevention Model (Kristjansson et al.). Social experimentation on a smaller scale remains part of the Icelandic cultural fabric. More recently, between 2015 and 2019, Iceland ran a successful social experiment whereby 1% of the working population worked a shorter work week for full time pay. The test was deemed successful because “workers were able to work less, get paid the same, while maintaining productivity and improving personal well-being” (Lau and Sigurdardottir). A number of self-governing Icelandic villages operate a particularly inclusive form of consultative local democracy enabling widespread buy-in for social experiments. Two or more such communities are likely to be interested in trialling an intervention study if there is a plausible reason to believe that the intervention may make a positive difference to teens’ (and others’) experiences of smartphone use. Those plausible reasons might be indicated by observational data from other people’s everyday practices. One comparatively common everyday practice which has yet to be systematically investigated from the perspective of evaluating the possible impacts of regular disconnection is that practiced by families who leave connected media outside the bedroom at night-time. These families are in the habit of putting their phones on to charge, usually in a shared space such as a kitchen or lounge room, and not referring to them again until a key point in the morning: when they are dressed, for example, or ready to leave the house. It is plausible to believe that such families might feel they have greater control over smartphone use than a family who didn’t adopt a regular practice of smartphone disconnection. According to social researchers in the Nordic nations, including co-authors Kjartan Ólafsson and Elisabeth Staksrud, it is likely that an Icelandic community will be keen to trial this experience of regular smartphone disconnection for a period of six months or more, if that trial went hand in hand with a rigorous evaluation of impact. Some religious communities offer a less common exemplar for teens’ regular disconnection from their smartphone. Young people in these communities may suspend their smartphone (and other media use) for just over a full day per week to focus on deepening their engagement with family and friends, and to support their spiritual development. Notable among such examples are teenagers who identify as members of the Orthodox Jewish faith. Their religious practices include withdrawing from technological engagement as part of the observance of Shabbat (the Sabbath): at least, that’s the theory. For the past ten years or so in Australia there has been a growing concern over some otherwise-Orthodox Jewish teens’ practice of the “half-Shabbat,” in which an estimated 17-50% of this cohort secretly use digital media for some time during their 25 hours of mandated abstinence. As one teacher from an Orthodox high school argues, “to not have access to the phone, it’s like choking off their air” (Telushikin). Interestingly, many Jewish teens who privately admit practicing half-Shabbat envision themselves as moving towards full observance in adulthood: they can see benefits in a wholehearted commitment to disengagement, even if it’s hard to disengage fully at this point in their lives. Hadlington et al.’s article “I Cannot Live without My [Tablet]” similarly evokes a broader community crisis around children’s dependence on digital media, noting that many children aged 8-12 have a tablet of their own before moving onto smartphone ownership in their teens (Common Sense Media 22). We appreciate that not every society has children and young people who are highly networked and integrated within digital dataflows. Nonetheless, while constant smartphone connectivity might appear to be a ‘first world problem’, preparing teens to be adults with optimal choice over their smartphone use includes identifying and promoting support for conscious disengagement from media as and when a young person wishes. Such a perspective aligns with promoting young people’s rights in digital contexts by interrogating the possible benefits of regularly disconnecting from digital media. Those putative benefits may be indicated by investigating perspectives around smartphone use held by Orthodox Jewish teenagers and comparing them with those held by teens who follow a liberal Jewish faith: liberal Jewish teens use smartphones in ways that resonate with broader community teens. A comparison of these two groups, suggests co-author Lynne Cohen, may indicate differences that can (in part) be attributed to Orthodox Jewish practices of digital disconnection, compared with liberal Jewish practices that don’t include disconnection. If smartphone disconnection has the potential to offer non-fungible benefits, it is incumbent upon researchers to investigate the possible advantages and drawbacks of such practices. That can be done through the comparative investigation of current practice as outlined above, and via an experimental intervention for approximately six months with a second Icelandic/Nordic community. The Potential Value of Investigating the (Non-)Fungibility of Digital Engagement and Digital Inactivity The overarching hypothesis addressed in this article is that a lived experience of regular smartphone disconnection may offer teenagers the opportunity to feel more in control of their personal technologies. Such a perspective aligns with many established media theories. These theories include the domestication of technology and its integration into daily life, helping to explain the struggle teens experience in detaching from digital media once they have become a fundamental element of their routine. Domestication theory asserts that technology moves from novelty to an integral aspect of everyday experience (Berker et al.). Displacement theory asserts that young people whose lives are replete with digital media may have substituted that media use for other activities enjoyed by the generations that grew up before them, while boyd offers an alternative suggestion that digital media add to, rather than displace, teens’ activities in daily contexts. Borrowing inputs from other disciplinary traditions, theories around mindfulness are increasingly robust and evidence-based, asserting that “attentiveness to what is present appears to yield corrective and curative benefits in its own right” (Brown et al. 1). Constant attention to digital media may be a distraction from mindful engagement with the lived environment. A detailed study of the non-fungible character of smartphone disconnection practices might offer an evidence base to support suggestions, such as those proffered by Beyond Blue, that a digital detox benefits mental health, resilience, and sociality. Such information might support initiatives by schools and other organisations central to the lives of teenagers to institute regular digital disconnection regimes, akin to Iceland’s experiments with television-free Thursdays. These innovations could build upon aligned social initiatives such as “no email Fridays” (Horng), which have been trialled in business contexts. Further, studies such as those outlined above could add authority to recommendations for parents, educators, and caregivers such as those recommendations contained in papers on the Common Sense Media site, for example, including Tweens, Teens, Tech, and Mental Health (Odgers and Robb) and Device-Free Dinners (Robb). Relevantly, the results from such observational and intervention studies would address the post-COVID era when parents and others will be considering how best to support a generation of children who went online earlier, and more often, than any generation before them. These results might also align with work towards early-stage adoption of the United Nations’ General Comment No. 25 on Children’s Rights in Relation to the Digital Environment (UNCRC). If so, an investigation into the fungibility or otherwise of digital abstention could contribute to the national and international debate about the rights of young people to make informed decisions around when to connect, and when to disconnect, from engagement via a smartphone. References Anderson, Monica, and Jingjing Jiang. "Teens’ Social Media Habits and Experiences." Pew Research Center 28 Nov. 2018. <https://www.pewresearch.org/internet/2018/11/28/teens-social-media-habits-and-experiences/>. Berker, Thomas, Maren Hartmann, and Yves Punie. Domestication of Media and Technology. McGraw-Hill Education, 2005. Beyond Blue. “The Benefits of a Digital Detox: Unplugging from Digital Technology Can Have Tremendous Benefits on Body and Mind.” Beyond Blue, n.d. <https://www.beyondblue.org.au/personal-best/pillar/wellbeing/the-benefits-of-a-digital-detox>. Boer, Maartje, Gonneke W.J.M. Stevens, Catrin Finkenauer, Margaretha E. de Looze, and Regina J.J.M. van den Eijnden. “Social Media Use Intensity, Social Media Use Problems, and Mental Health among Adolescents: Investigating Directionality and Mediating Processes.” Computers in Human Behavior 116 (Mar. 2021): 106645. <https://doi.org/10.1016/j.chb.2020.106645>. boyd, danah. It’s Complicated : The Social Lives of Networked Teens. Yale University Press, 2014. <http://www.danah.org/books/ItsComplicated.pdf>. Brown, Kirk Warren, J. David Creswell, and Richard M. Ryan. “The Evolution of Mindfulness Science.” Handbook of Mindfulness : Theory, Research, and Practice, eds. Kirk Warren Brown et al. Guilford Press, 2016. Cabin, The. “Internet Addiction Treatment Center.” The Cabin, 2020. <https://www.thecabinsydney.com.au/internet-addiction-treatment/>. Ciarrochi, Joseph, Philip Parker, Baljinder Sahdra, Sarah Marshall, Chris Jackson, Andrew T. Gloster, and Patrick Heaven. “The Development of Compulsive Internet Use and Mental Health: A Four-Year Study of Adolescence.” Developmental Psychology 52.2 (2016): 272. Common Sense Media. "The Common Sense Census: Media Use by Tweens and Teens, 2021". <https://www.commonsensemedia.org/sites/default/files/research/report/8-18-census-integrated-report-final-web_0.pdf>. Deibert, Ron. “Reset: Reclaiming the Internet for Civil Society.” 2020 Massey Lectures. CBC Radio. 7 Feb. 2022 <https://www.cbc.ca/radio/ideas/reset-reclaiming-the-internet-for-civil-society-1.5795345>. Donald, James N., Joseph Ciarrochi, and Baljinder K. Sahdra. "The Consequences of Compulsion: A 4-Year Longitudinal Study of Compulsive Internet Use and Emotion Regulation Difficulties." Emotion (2020). Gaspard, Luke. “Australian High School Students and Their Internet Use: Perceptions of Opportunities versus ‘Problematic Situations.’” Children Australia 45.1 (Mar. 2020): 54–63. <https://doi.org/10.1017/cha.2020.2>. 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