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Статті в журналах з теми "Caregivers Australia Attitudes"
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Reeve, Emily, Lee-Fay Low, and Sarah N. Hilmer. "Attitudes of Older Adults and Caregivers in Australia toward Deprescribing." Journal of the American Geriatrics Society 67, no. 6 (February 13, 2019): 1204–10. http://dx.doi.org/10.1111/jgs.15804.
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Gutman, Talia, Ayano Kelly, Nicole Scholes-Robertson, Jonathan C. Craig, Shilpanjali Jesudason, and Allison Tong. "Patient and Caregiver Experiences and Attitudes about Their Involvement in Research in Chronic Kidney Disease." Clinical Journal of the American Society of Nephrology 17, no. 2 (February 2022): 215–27. http://dx.doi.org/10.2215/cjn.05960521.
Повний текст джерелаАнотація:
Background and objectivesAlthough patient and caregiver involvement in research is widely advocated to improve the relevance and uptake of study findings, barriers and uncertainties in achieving this goal remain. This study aimed to describe patient and caregiver experiences and perspectives of their previous involvement in research, to inform strategies to strengthen patient involvement in research.Design, setting, participants, & measurementsSemistructured interviews were conducted with 23 adult patients with CKD and caregivers who had previously been involved in research, from Australia, the United States, the United Kingdom, and Denmark. Transcripts were analyzed thematically.ResultsWe identified six themes: grappling with CKD diagnosis (overwhelmed by the burden of illness, silenced by stigma and shame, absence of advocacy, and awareness), bearing the responsibility for involvement (autonomy in their own care, forced to be proactive to access opportunities, infrastructural support to connect researchers and patients), battling big agendas (struggling in a system of disincentive, changing research culture, becoming equals), seeing the person behind the patient (harnessing broader knowledge, expertise, skills and interests, understanding patient needs, motivations for involvement), sensitivity to complexities of payment (accounting for individual circumstances, denoting value, enabling diverse involvement), and championing the patient voice (links to important stakeholders, drivers of innovation, responsibility to end users).ConclusionsThe burden of CKD, limited opportunities, and power asymmetry between patients/caregivers and researchers were challenges to meaningful involvement in research. Building trust, awareness of opportunities, and recognizing the broad expertise and value of patients/caregivers, including and beyond their illness experience, may better support patient and caregiver involvement in research in CKD.
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Khokhar, Durreajam, Caryl Nowson, Claire Margerison, Bruce Bolam, and Carley Grimes. "Comparison of salt-related knowledge, attitudes and behaviours between parents and caregivers of children under 18 years of age and other adults who do not care for children under 18 years of age in Victoria, Australia." BMJ Nutrition, Prevention & Health 2, no. 2 (July 16, 2019): 51–62. http://dx.doi.org/10.1136/bmjnph-2018-000018.
Повний текст джерелаАнотація:
Background/AimsSalt intake among Australian adults exceeds recommendations, increasing the risk of cardiovascular disease. Knowledge, attitudes and behaviours (KABs) are modifiable factors that may influence salt consumption. It is not known whether salt-related KABs among parents and caregivers of children under 18 years of age differ from other adults who do not care for children under 18 years of age. Therefore, we aimed to determine whether salt-related KABs differed between parents and caregivers and other adults. This information can be used to inform messages included in salt reduction consumer awareness campaigns.MethodsAdults, aged 18–65 years, were recruited from four shopping centres, Facebook and a consumer research panel in the state of Victoria, Australia. Participants indicated if they were a parent or a caregiver of a child/children <18 years (‘parents/caregivers’) or not (‘other adults’). Regression models, adjusted for covariates, assessed differences in KABs between the two groups. Construct scores for KABs were developed, with high scores for knowledge indicative of high salt-related knowledge, for attitude indicative of lower importance of using salt to enhance the taste of food, and for behaviours indicative of higher frequency of engaging in behaviours to reduce salt in the diet.ResultsA total of 840 parents/caregivers and 1558 other adults completed the survey. Just over half of the parents/caregivers and other adults were female, with a mean (SD) age of 41.1 (10.3) years and 44.3 (15.3) years, respectively. Mean construct scores for salt-related KABs were similar between the two groups. Parents/caregivers were less likely to be aware of the relationship between salt and sodium (OR=0.73, p=0.002) and more likely to report difficulty in interpreting sodium information displayed on food labels (OR=1.36, p=0.004). Parents/caregivers were more likely to be concerned about a range of food-related issues, including the amount of saturated fat, sugar and salt in food. Parents/caregivers were more likely to report that they were trying to reduce their salt intake (OR=1.27, p=0.012) and more likely to report adding salt at the table (OR=1.28, p=0.008).ConclusionsThere were some differences in salt-related KABs between parents/caregivers and other adults. These findings provide insight into particular messages that could be focused on in consumer awareness campaigns that seek to improve parents’/caregivers’ KABs related to salt intake. Specifically, messages targeted at parents/caregivers should include practical guidance to reduce table salt and resources to assist in interpreting sodium information on food labels and the relationship of sodium to salt.
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Collins, Anna, Sue-Anne McLachlan, and Jennifer Philip. "Initial perceptions of palliative care: An exploratory qualitative study of patients with advanced cancer and their family caregivers." Palliative Medicine 31, no. 9 (April 3, 2017): 825–32. http://dx.doi.org/10.1177/0269216317696420.
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Background: Despite evidence for early integration of palliative care for people with advanced cancer and their families, patterns of late engagement continue. Prior research has focused on health professionals’ attitudes to palliative care with few studies exploring the views of patients and their carers. Aim: To explore initial perceptions of palliative care when this is first raised with patients with advanced cancer and their families in Australian settings. Design: Cross-sectional, prospective, exploratory qualitative design, involving narrative-style interviews and underpinned by an interpretative phenomenological framework. Setting/participants: Purposively sampled, English-speaking, adult patients with advanced cancer ( n = 30) and their nominated family caregivers ( n = 25) recruited from cancer services at a tertiary metropolitan hospital in Melbourne, Victoria, Australia. Results: Three major themes evolved which represent the common initial perceptions of palliative care held by patients with advanced cancer and their carers when this concept is first raised: (1) diminished care, (2) diminished possibility and (3) diminished choice. Palliative care was negatively associated with a system of diminished care which is seen as a ‘lesser’ treatment alternative, diminished possibilities for hope and achievement of ambitions previously centred upon cure and diminished choices for the circumstances of one’s care given all other options have expired. Conclusion: While there is an increasing move towards early integration of palliative care, this study suggests that patient and caregiver understandings have not equally progressed. A targeted public health campaign is warranted to disentangle understandings of palliative care as the ‘institutional death’ and to reframe community rhetoric surrounding palliative care from that of disempowered dying to messages of choice, accomplishment and possibility.
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Rhee, Joel, Anne Meller, Karolina Krysinska, Peter Gonski, Vasi Naganathan, Nicholas Zwar, Andrew Hayen, et al. "Advance care planning for patients with advanced illnesses attending hospital outpatient clinics study: a study protocol for a randomised controlled trial." BMJ Open 9, no. 1 (January 2019): e023107. http://dx.doi.org/10.1136/bmjopen-2018-023107.
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IntroductionIt is unclear whether advance care planning (ACP) undertaken with patients living in the community can improve patient care and avoid unwanted interventions and hospital admissions. We have designed a randomised controlled trial (RCT) to examine if ACP undertaken with patients with advanced illnesses attending hospital outpatient clinics can reduce unplanned hospital admissions and improve patient and caregiver well-being.Methods and analysisPragmatic RCT involving patients from subspecialty outpatient clinics at five clinical sites in Sydney, Australia. Participants will be ≥18 years screened as potentially having palliative care needs and at risk of dying in 6–12 months. The patients will be randomised to intervention or control group. Intervention group will undertake ACP discussions facilitated by a trained health professional. The control group will receive written information on ACP, representing the current standard of care. The primary outcome is the number of unplanned hospital admissions at the 6-month follow-up. Secondary outcomes include: (i) patient’s health-related quality-of-life and quality of chronic disease care; (ii) caregiver’s health-related quality-of-life and caregiver burden and (iii) other health outcomes including ambulance usage, emergency department presentations, hospital admissions, resuscitation attempts, intensive care unit admissions, deaths, documentation of patient wishes in patient records and audit of ACP discussions and documents. The staff’s self-reported attitudes and knowledge of ACP will also be measured. The data will be collected using self-report questionnaires, hospital records audit, audit of ACP documentation and data linkage analysis. Semistructured interviews and focus group discussions with patients, caregivers and healthcare professionals will explore the acceptability and feasibility of the intervention.Ethics and disseminationApproved by South-East Sydney Local Health District Human Research Ethics Committee and NSW Population and Health Services Research Ethics Committee. Results will be disseminated via conference presentations, journal publications, seminars and invited talks.Trial registration numberACTRN12617000280303.
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Jochelson, Tanya, Myna Hua, and Chris Rissel. "Knowledge, attitudes and behaviours of caregivers regarding children's exposure to environmental tobacco smoke among Arabic and Vietnamese-speaking communities in Sydney, Australia." Ethnicity & Health 8, no. 4 (November 2003): 339–51. http://dx.doi.org/10.1080/13557850310001631713.
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Logeman, Charlotte, Yeoungjee Cho, Benedicte Sautenet, Gopala K. Rangan, Talia Gutman, Jonathan Craig, Albert Ong, et al. "‘A sword of Damocles’: patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study." BMJ Open 10, no. 10 (October 2020): e038005. http://dx.doi.org/10.1136/bmjopen-2020-038005.
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Background and objectivesPresymptomatic testing is available for early diagnosis of hereditary autosomal dominant polycystic kidney disease (ADPKD). However, the complex ethical and psychosocial implications can make decision-making challenging and require an understanding of patients’ values, goals and priorities. This study aims to describe patient and caregiver beliefs and expectations regarding presymptomatic testing for ADPKD.Design, setting and participants154 participants (120 patients and 34 caregivers) aged 18 years and over from eight centres in Australia, France and Korea participated in 17 focus groups. Transcripts were analysed thematically.ResultsWe identified five themes: avoiding financial disadvantage (insecurity in the inability to obtain life insurance, limited work opportunities, financial burden); futility in uncertainty (erratic and diverse manifestations of disease limiting utility, taking preventive actions in vain, daunted by perplexity of results, unaware of risk of inheriting ADPKD); lacking autonomy and support in decisions (overwhelmed by ambiguous information, medicalising family planning, family pressures); seizing control of well-being (gaining confidence in early detection, allowing preparation for the future, reassurance in family resilience); and anticipating impact on quality of life (reassured by lack of symptoms, judging value of life with ADPKD).ConclusionsFor patients with ADPKD, presymptomatic testing provides an opportunity to take ownership of their health through family planning and preventive measures. However, these decisions can be wrought with tensions and uncertainty about prognostic implications, and the psychosocial and financial burden of testing. Healthcare professionals should focus on genetic counselling, mental health and providing education to patients’ families to support informed decision-making. Policymakers should consider the cost burden and risk of discrimination when informing government policies. Finally, patients are recommended to focus on self-care from an early age.
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Barrett, Emma Louise, Zachary W. Adams, Erin V. Kelly, Natalie Peach, Rachel Hopkins, Bronwyn Milne, Sudie E. Back, and Katherine L. Mills. "Service provider perspectives on treating adolescents with co-occurring PTSD and substance use: challenges and rewards." Advances in Dual Diagnosis 12, no. 4 (November 7, 2019): 173–83. http://dx.doi.org/10.1108/add-07-2019-0005.
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Purpose Post-traumatic stress disorder (PTSD) and substance use disorder (SUD) frequently co-occur (PTSD+SUD). The onset of these disorders often occurs during adolescence. There is limited understanding of the perspectives of service providers working with this population. The purpose of this paper is to identify the practices, attitudes, experiences and training needs of Australian service providers treating adolescents with PTSD+SUD. Design/methodology/approach Service providers in Australia were invited to complete an anonymous online survey regarding their experiences working with adolescents who have PTSD+SUD. Ninety participants completed the 48-item survey that comprised multiple choice and open-ended questions. Findings Service providers estimated that up to 60 per cent of their adolescent clients with PTSD also have SUD. They identified case management, engaging with caregivers and difficult client emotions as specific challenges associated with working with this population. Despite this, providers rated treating PTSD+SUD as highly gratifying for reasons such as teaching new coping skills, developing expertise and assisting clients to achieve their goals. There were mixed perspectives on how to best treat adolescents with PTSD+SUD, and all participants identified a need for evidence-based resources specific to this population. Originality/value This is the first survey of Australian service providers working with adolescents who experience PTSD+SUD. The findings improve our understanding of the challenges and rewards associated with working with this population, and provide valuable information that can enhance clinical training and guide the development of new treatment approaches for this common and debilitating comorbidity.
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Kinshella, Mai-Lei Woo, Sangwani Salimu, Brandina Chiwaya, Felix Chikoti, Lusungu Chirambo, Ephrida Mwaungulu, Mwai Banda, et al. "“So sometimes, it looks like it’s a neglected ward”: Health worker perspectives on implementing kangaroo mother care in southern Malawi." PLOS ONE 15, no. 12 (December 17, 2020): e0243770. http://dx.doi.org/10.1371/journal.pone.0243770.
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Introduction Kangaroo mother care (KMC) involves continuous skin-to-skin contact of baby on mother’s chest to provide warmth, frequent breastfeeding, recognizing danger signs of illness, and early discharge. Though KMC is safe, effective and recommended by the World Health Organization, implementation remains limited in practice. The objective of this study is to understand barriers and facilitators to KMC practice at tertiary and secondary health facilities in southern Malawi from the perspective of health workers. Methods This study is part of the “Integrating a neonatal healthcare package for Malawi” project in the Innovating for Maternal and Child Health in Africa initiative. In-depth interviews were conducted between May-Aug 2019 with a purposively drawn sample of service providers and supervisors working in newborn health at a large tertiary hospital and three district-level hospitals in southern Malawi. Data were analyzed using a thematic approach using NVivo 12 software (QSR International, Melbourne, Australia). Findings A total of 27 nurses, clinical officers, paediatricians and district health management officials were interviewed. Staff attitudes, inadequate resources and reliance on families emerged as key themes. Health workers from Malawi described KMC practice positively as a low-cost, low-technology solution appropriate for resource-constrained health settings. However, staff perceptions that KMC babies were clinically stable was associated with lower prioritization in care and poor monitoring practices. Neglect of the KMC ward by medical staff, inadequate staffing and reliance on caregivers for supplies were associated with women self-discharging early. Conclusion Though routine uptake of KMC was policy for stable low birthweight and preterm infants in the four hospitals, there were gaps in monitoring and maintenance of practice. While conceptualized as a low-cost intervention, sustainable implementation requires investments in technologies, staffing and hospital provisioning of basic supplies such as food, bedding, and KMC wraps. Strengthening hospital capacities to support KMC is needed as part of a continuum of care for premature infants.
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Ho (何式怡), Elsie Seckyee, та Lan-hung Nora Chiang (姜蘭虹). "Translocal Families: The Challenges of Practicing Filial Piety through Transnational Parental Care (台灣澳洲移民為盡孝道而跨國照顧年長父母的挑戰)". Translocal Chinese: East Asian Perspectives 10, № 2 (20 жовтня 2016): 232–58. http://dx.doi.org/10.1163/24522015-01002004.
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The values of filial piety have strongly influenced the care of older people in traditional Chinese societies. Changes in family structure and relationships have occurred and in recent decades, transnational migration has become a factor in how filial piety is perceived and practiced in contemporary translocal Chinese families. Through the use of in-depth interviews, this pilot study explores transnational family patterns, elder care practices, attitudes towards filial piety, and opinions of the medical systems in Taiwan and Australia among 14 Taiwanese families who have lived in Australia for over 20 years. The study finds that despite immigration, filial piety remains an important value for these families. Most participants have/had provided care to their aged parents at the site of immigration and back home, and some of these parents were immigrants who had returned to Taiwan in their old age. Participants generally felt that older people are better looked after in Taiwan than in Australia, as Taiwan has a better healthcare system, and hired caregivers are more readily available. Elders’ expectations of filial piety from their children varied among participants, but all were prepared for a weakening of filiality and ongoing changes in intergenerational relations while living in a Western country. 傳統中國社會的老人照顧，受到孝道價值觀的影響很深。因為家庭結構及成員關係的改變，特別是近三十年來移民國外人口的增加，對當代華人家庭對孝道的認知與實踐產生了新的影響。本研究透過深入訪談居住澳洲二十年以上的台灣移民，探索跨國家庭類型、照顧年長父母的方式、對孝道的看法，以及台灣及澳洲兩地醫療體系的差異。研究發現雖然移民海外，盡孝道仍是重要的家庭價值。大部分的受訪者都曾為長者提供資源或參與照顧，無論是在澳洲或在台灣。年長父母也曾經在成年子女居住澳洲期間前往探視、短期逗留或移民。他們大部分都已回流台灣，原因是在台灣的年長者會得到較好的照顧，台灣的健保制度較適合年長者的需要，而且可以僱用外傭幫忙。已定居澳洲的台灣移民，對孝道的看法雖有差異，但對自己的成年子女是否能在環境不同的西方國家盡孝道，均有所保留。 (This article is in English.)
Дисертації з теми "Caregivers Australia Attitudes"
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Cuevas, Marianela. "Perceptions of elder abuse among Australian elderly individuals and general practitioners." Thesis, Edith Cowan University, Research Online, Perth, Western Australia, 1998. https://ro.ecu.edu.au/theses/994.
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Research available on elder abuse is limited. There continues to be a lack of uniformity in how to define and identify the problem, as well as how to intervene. One group which continues to be excluded from the process of gaining knowledge on the issue of elder abuse is the elderly themselves. As general practitioners are the primary source of health care for older people, their perspectives on elder mistreatment should be explored as well. The first objective of this study was to examine whether differences existed in the perceived severity of potentially abusive situations between three groups of older people and general practitioners. The second objective was to determine if gender differences existed in perceptions of severity of abuse. The sample consisted of 48 general practitioners, 40 independent elderly, 38 elderly caregivers and 36 elderly care-receivers. The participants' perceptions of elder abuse were assessed using a modified version of a questionnaire developed by Moon and Williams (1993). The questionnaire described 10 potential elder abuse scenarios which covered five categories of abuse: physical, psychological, sexual, financial and neglect. Participants were asked to indicate whether or not they perceived each situation to represent an example of elder abuse and, if they answered affirmatively, to rate the severity of the abusive behaviour and identify which aspect of the scenario they considered abusive. Data were analysed using split-plot analysis of variance, as well as contingency tables. The results suggested that significant differences existed in the perceptions of severity of elder abuse scenarios across groups and gender. General practitioners tended to view the scenarios as less severe examples of elder abuse than the older-aged groups. There were similarities within the elderly groups in that all groups perceived the sexual abuse scenarios as examples of more severe forms of abuse than the financial abuse scenarios. Within the elderly groups, caregivers generally perceived the scenarios as less abusive. With regard to gender differences, females generally perceived the sexual abuse scenarios as more severe than males. This was particularly so for female independent elders and female care-receivers. Both the symbolic interaction theory and social exchange theory were adopted to explain why there were differences in the perceived severity of the scenarios. It was argued that how the participants viewed the interactions between the characters in the scenarios, and whether they perceived the interactions as being rewarding or unrewarding for particular characters, would affect participants' perceptions of severity. To conclude, with such differences in views found, the development of effective assessment and intervention strategies will be difficult. However, both the public and professionals alike need to increase their understanding on the topic of elder abuse, lest the abuse continues.
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Skett, Kim A. "Meeting the challenge : The female carers' perspective of managing dyspnoea." Thesis, Edith Cowan University, Research Online, Perth, Western Australia, 2004. https://ro.ecu.edu.au/theses/807.
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The aim of this descriptive, explorative study was to describe the lived experience of informal carers providing care within the home, to a family member who has lung cancer and the symptom of dyspnoea. Many studies have highlighted the stressors associated with care provision, but no studies have focused on the experience associated with caring for a family member who is dyspnoeic. Ten carers were interviewed regarding their experiences of providing care to the family member during the palliative phase of the illness and while the family member was experiencing the symptom of dyspnoea. Analysis of the initial data highlighted differences in issues identified by nurses and carers, therefore, two Registered Nurses were interviewed to determine how the perceptions of the carers needs differ between the carer and the nurse. Data was collected using unstructured, in-depth interviews which were audio-taped. All data was analysed and common themes identified. Three key themes emerged from the data: developing skills, sustaining the carer and meeting the challenge. In addition to these themes, "developing relationships" emerged as the underpinning concept that supports the themes. The double ABCX model of adaptation and adjustment was used to determine how the carers' perceptions of the stressor and their coping resources influence the process of adaptation. Recommendations have been developed from the findings and are directed towards clinical practice issues, education of carers and areas for further nursing research. The aim of this descriptive, explorative study was to describe the lived experience of informal carers providing care within the home, to a family member who has lung cancer and the symptom of dyspnoea. Many studies have highlighted the stressors associated with care provision, but no studies have focused on the experience associated with caring for a family member who is dyspnoeic. Ten carers were interviewed regarding their experiences of providing care to the family member during the palliative phase of the illness and while the family member was experiencing the symptom of dyspnoea. Analysis of the initial data highlighted differences in issues identified by nurses and carers, therefore, two Registered Nurses were interviewed to determine how the perceptions of the carers needs differ between the carer and the nurse. Data was collected using unstructured, in-depth interviews which were audio-taped. All data was analysed and common themes identified. Three key themes emerged from the data: developing skills, sustaining the carer and meeting the challenge. In addition to these themes, "developing relationships" emerged as the underpinning concept that supports the themes. The double ABCX model of adaptation and adjustment was used to determine how the carers' perceptions of the stressor and their coping resources influence the process of adaptation. Recommendations have been developed from the findings and are directed towards clinical practice issues, education of carers and areas for further nursing research.
Частини книг з теми "Caregivers Australia Attitudes"
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Adamson, Elizabeth. "Restructuring care: comparative policy developments." In Nannies, Migration and Early Childhood Education and Care. Policy Press, 2016. http://dx.doi.org/10.1332/policypress/9781447330141.003.0003.
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This chapter presents historical overviews of in-home childcare in Australia, the UK and Canada. It discusses the policy trajectories across these countries within the context of early childhood education and care policy and migration policy. Particular attention is given to debates about how childcare policies and funding positioned home-based care arrangements – in both the caregiver and child’s home – across the public, private, informal and formal domains. In all three countries similar debates took place regarding the role of care versus education across the public and private, and formal and informal spheres. Dominant ideas about the care of young children being the responsibility of the family hindered the success of advocacy efforts, particularly by the feminist movement, for regulated, centre-based early childhood education and care. However, by looking at the details of the debates, pressures and actors through the lens of in-home childcare, contrasting attitudes are revealed.