Teses / dissertações sobre o tema "Qualitative research – moral and ethical aspects"

Following the call for further research on the consumer perspective of corporate ethics, this research sets out to explore and conceptualize the construct of ‘Consumer Perceived Ethicality’ (CPE), referring to consumers’ aggregate and valenced perceptions of a subject’s(i.e. a company, brand, product, or service) ethicality. Results present novel insights into how positive/negative CPE is formed and impacted by various kinds of corporate conduct, thereby offering some explanations as to why some companies benefit from positive while others suffer from negative moral equity.

Doctorat en Sciences économiques et de gestion
info:eu-repo/semantics/nonPublished

Over the past five years, Sovereign Wealth Funds (SWFs) have become a prominent phenomenon in contemporary capitalism. Described as government investment vehicles that invest state wealth in financial markets, the majority of the world's 60-plus funds have been established since the year 2000. Despite extensive treatments of SWFs' geopolitical and international significance, ethical and domestic level analyses are sparse. In response, this thesis interrogates three key normative questions raised by the funds for the domestic citizen-state relationship: (1) How (and by whom) should sovereign funds be managed? (2) How should sovereign wealth be invested? (3) How should the earnings of sovereign fund investment be distributed? In answering these questions, this thesis aims to dispel ambiguity over the ownership status of sovereign funds, evident in popular and academic discourse and within communities that establish these entities. For this task, it draws on recently revived fiduciary theory of the citizen-state relationship to argue that the rightful owner of these funds is the citizenry - not states or governments who enjoy physical and legal possession of SWFs. It goes on to examine the implications of this fiduciary state conception of SWF ownership, asking how citizen-owners should enjoy control over and benefit from the distinct constituent parts of their SWF property: the institution of the fund, the underlying sovereign wealth and the financial returns earned on the investment of its assets. The model of citizen ownership defended demands substantially increased popular control over SWF management and the investment of sovereign wealth, as well as direct benefit rights for citizen-owners to fund income through individualised distribution of investment returns. Examination of existing practice among SWFs demonstrates that this normative ideal is far, although not impossibly distant from current institutional practice.

With pre-implantation genetic diagnosis (PGD), genetic testing and selective transfer of embryos is possible. In the future, germ-line gene therapy (GLGT) applied to embryos before implantation, in order to introduce missing genes or replace mutant ones, may be possible. The objective of this dissertation is to analyse moral aspects of these technologies, as described by eighteen British, Italian and Swedish gynaecologists and geneticists. The objective is systematised into three parts: research interviews and qualitative analysis, philosophical analysis, and elaboration of a framework that supports the combination of analytic methods. PGD was described as positive since it enabled some couples at risk for a genetic disease to have a child without the disease. PGD was described as in different senses ‘better’ than methods for prenatal diagnosis and selective termination of pregnancy. It was also described as positive since it provided couples at risk with one more option, even if it did not result in the birth of a healthy child. However, interviewees were concerned about the difficulty of defining and evaluating genetic disease. They were also concerned about patients’ choices, and about exaggerated use or misuse. Whereas PGD gave rise to ambivalence in terms of how to understand, describe and evaluate it, GLGT was often described as unrealistic or undesirable. The results of the qualitative analysis are used in a philosophical analysis of the concepts of choice, autonomous choice, ambivalence, trust and ambivalence in trust relations. A set of distinct characteristics of each concept are elaborated. The results of the philosophical analysis are used in the discussion of the results of the qualitative analysis. The study shows that the technologies imply both ‘new’ ways to perform ‘old’ medical practices and ‘new’ practices. Old moral questions are reformulated. New moral questions are added. Against the background of this, the concept of genetic identity is discussed. Key words: empirical ethics, pre-implantation genetic diagnosis, germ-line gene therapy, qualitative research, philosophical analysis, medical progress, genetic disease, choice, autonomous choice, ambivalence, trust, genetic identity.

In acknowledging past abuses of humans in research contexts, and recognising the potential for malpractices in Human Movement Studies (HMS), this study evaluated the extent to which ethical issues are addressed in the discipline. The primary method consisted of the standard techniques of philosophic analysis, with empirical data complementing the conclusions. In general, the study contends that insufficient attention is paid to ethical issues in HMS research. In response to a set of specifically constructed, ethically problematic research proposals, only 1.8% of comments from senior researchers advocated rejection of the proposals on ethical grounds. Also, a journal search indicated that consideration of ethical issues in published research may largely be absent. Questionnaire responses revealed that South African HMS departments may be deficient in terms of accountability towards ethical guidelines. Whilst noting the existence of utilitarian ethics in HMS research, it is advocated that deontologic principles should take precedence. Further, only a sound educative effort will produce improvements. In conclusion, this study advocates a deontology-based approach to research ethics. This is consistent with the contention that the use of humans in research is a privilege, and that the rights of participants ought to outweigh the desire of researchers to conduct research.

Over the past few years, embryo research has been a widely discussed topic. New techniques such as embryo stem cell research or therapeutic cloning are considered by scientists to be very promising. Nevertheless, opponents of these experimentations warn against the commodification of human life forms and argue that the moral status of embryos should protect them from being destroyed purely for research.
Legislations on this topic have been enacted in most Western countries, though they are still much criticised. Is there an adequate way of regulating embryo research? Our argument suggests that consensus can only be procedurally obtained. That is, we believe that only legislative assemblies should have authority to take a position on this controversial topic, which is subject to moral disagreement, and as such, judges should only have a minor role.

Previous studies have suggested that participating in psychological research may temporarily amplify participants’ experience of positive or negative emotions (Daugherty & Lawrence. 1996). In the present research, 114 male and female university students completed either self-focused or non-self-focused questionnaires to investigate characteristics that may predispose some participants to positive or negative reactions following participation in research. Four hypotheses were examined: (a) A self-focused task compared to a non-self-focused task would significantly increase average levels of emotional arousal; (b) the amplification of emotional reactions would be greater in females than males (c) participants experiencing negative life events and who are less well adjusted would experience a negative emotional reaction to participation; and (d) participants experiencing positive life events and who are well adjusted would experience a positive emotional reaction to participation. Results suggest no difference between self-focused and non-self-focused tasks in their ability to effect emotions during research participation. Findings also indicate that males' emotional reaction was significantly more elevated than females after participation. Personality traits rather than life experiences were also identified as better predictors of emotional reactions to participation. These results bring into question conclusions drawn by previous research about sex-differences and self-focused attention and suggest that completion of self-report questionnaires have few aversive affects.

Thesis (MA)--Stellenbosch University, 2008.
ENGLISH ABSTRACT: New genetic technologies (e.g. stem-cell research, gene-therapies and cloning) raise some of the most enigmatic moral problems in the field of bioethics. My aim in this thesis is to explore the philosophical and ethical significance of the idea of an “ethics of responsibility” (as, particularly, developed in the work of Hans Jonas, Zygmunt Bauman and Emmanuel Levinas) for moral reflection on these problems. “Ethics of responsibility” is a new approach to ethics that represents an alternative to both rule morality (where moral action is identified with the application of rules) and utilitarianism (where moral action is identified with establishing the best consequences for the most people). Rule morality has the serious shortcoming of being unable to deal with real and actual moral dilemmas, and of being unclear as to which rule applies in which situation. Utilitarianism has the serious shortcoming of often being way too counter-intuitive: deeds that we normally find morally abhorrent, such a lying, stealing and even torturing can, within the utilitarian calculus, sometimes be justified. The notion of an ethics of responsibility has been promoted by the mentioned authors both to counter the simplistic idea that a rule exists in terms of which every moral action can be determined, but also to counter the crassness of the utilitarian calculus. It represents an approach to ethics in which the interests of the other are taken as seriously as possible within the confines of the situation in which action is called for. My aim is to explore this approach critically, and to invesitgate its desirability, applicability and efficacy with particular reference to the moral problems raised by the new genetic technologies.
AFRIKAANSE OPSOMMING: Nuwe genetiese tegnologieë bv stamselnavorsing en kloning, opper enigmatiese morele probleme binne die veld van bio-etiek. Die doel van hierdie tesis is om die filosofiese en etiese belang van die idee van “ ‘n etiek van verantwoordelikheid” (soos dit in die werk van Hans Jonas, Zygmunt Bauman en Emmaneul Levinas ontwikkel is) vir morele refleksie van hierdie probleme te ondersoek. ‘n Etiek van verantwoordelikheid is ‘n nuwe benadering binne etiek wat ‘n alternatief daarstel vir onderskeidelik utilitarisme (waar ‘n moreel korrekte aksie dié aksie is wat die beste gevolge vir die meeste mense tot stand bring) en deontologie of reël-moraliteit (waar ‘n moreel korrekte aksie dié aksie is wat die morele reëls gehoorsaam). Albei hierdie tradisionele etiese teorie beskik oor tekortkominge. Utilitarisme voer byvoorbeeld aan dat ‘n aksie wat gewoonlik as kontraintuitief beskou word, moreel korrek is. Aksies soos steel, die vertel van leuens en marteling kan volgens die utilitaristiese beskouing moreel regverdig word. Deontologie slaag weer nie daarin om sinvol met werklike en aktuele morele probleme om te gaan nie, en dit is dikwels onduidelik watter morele reël voorkeur moet kry wanneer dit op ‘n morele dilemma toegepas word. ‘n Etiek van verantwoordelikheid wat deur bogenoemde outeurs voorgestaan word, bied ‘n alternatief vir die simplisitese idee dat vaste morele reël bestaan wat op ‘n universele wyse kan bepaal wanneer ‘n aksie moreel reg of verkeerd is. ‘n Etiek van verantwoordelikheid beweeg ook weg van die kras benadering van utilitarisme, en bied ‘n maak ruimte vir ‘n meer komplekse, genuanseerde benadering tot die etiese problematiek. Dit verskaf ‘n benadering tot etiek waar die belange van die ander binne die etiese besluitnemingsproses, ernstig opgeneem word. Die doel van hierdie tesis is om die tradisionele etiese teorie krities te benader, waarna die toepasbaarheid en effektiwiteit van ‘n etiek van verantwoordelikheid, ondersoek sal word.

Thesis (PhD)--University of Stellenbosch, 2005.
ENGLISH ABSTRACT: Problem statement For utilitarians, human beings have intrinsic moral significance based on only two acquired characteristics: sentience, or the ability to suffer, and psychological personhood. Sentience is the entrance-requirement for moral significance, but does not justify a "right to life" claim; at most a "right" not to suffer. Personhood, described as some sort of self-conscious awareness with a concept of the future, may justify a "right to life" claim. However, since personhood is absent in prenatal beings, and only develops some time after birth, the implication is that such beings have little moral significance and may, for instance, be killed "at will". The moral problem that I address in this dissertation is to investigate, assess and evaluate the utilitarian position on the moral status or value of prenatal life. Methodology and results I firstly, on the basis of an extensive literature study, make a detailed analysis of the utilitarian position with reference to a number of themes that I have identified in their argument. This is followed by a critical philosophical evaluation of the utilitarian position, based on six particular arguments: • Utilitarianism is philosophically incoherent. It over-simplifies the moral argument in claiming that consequences are all that matter morally. Its underlying moral theory is at odds with moral claims contained in contemporary notions of human rights and individual justice. It ignores the moral significance of special obligations to special groups. • Utilitarianism potentially has unacceptable consequences. It IS inherently discriminatory and may lead to legitimate "slippery slope" fears. • Utilitarianism clashes with our fundamental moral intuitions on the value of prenatal life. These intuitions are cherished in most world religions. • Contrary to the utilitarian position, speciesism is inevitable to the human condition, especially argued from a position of existential phenomenology. Self- constitution, simultaneous constitution of the world as we know it, and the very possibility of morality are possible only within a particular notion of speciesism. • The potentiality of pre-persons to develop into persons cannot be as convincingly ignored as is done by the utilitarian. • There is a basic and underlying need and intuition to protect vulnerable human beings, of which pre-persons are exemplars. These notions clash with utilitarian theory. As an alternative, I introduce, set out and evaluate a two-phased position on the moral significance of pre-personal human life, a position of respectfulness of prenatal and pre-personal human life based upon its humanity, potentiality and separation-viability. This leads, firstly, to the conclusion of a graded, sliding scale conception of human prepersonal moral significance in line with the level of development and with the actuation of potentiality. Secondly, it leads to the conclusion that the advent of separationsurvivability (viability) is a morally significant cut-off point beyond which the human fetus may "normally" have a justifiable right to the continuation of its life. In as far as the application of my argument is concerned, I develop a "moderate" position with reference to the abortion debate. Whilst I recognize that all human prenatal beings of which it can be argued that they have a reasonable chance to develop their intrinsic potentiality, i.e., to become full-fledged persons, should have the opportunity to do so, I also recognize that neither this position, nor the complexities of life make it possible to hold "absolute" positions on the justifiability of abortion. I explore this extremely problematic notion in the text. That having been said, the advent of separation-survivability may imply a "moral cut-off point", beyond which termination is only rarely justified. I argue that I find no moral hindrance to wellmotivated research on human pre-embryos and stem cells.
AFRIKAANSE OPSOMMING: Probleemstelling Utilitariste huldig sterk omlynde standpunte oor die waarde van lewe. Hulle redeneer dat menslike (inderwaarheid, alle lewende) wesens slegs op grond van twee eienskappe intrinsieke morele waarde kan verwerf: sentiëntisme, d.i. die vermoë om lyding te ervaar, en persoonstatus. Sentiëntisme is 'n bepalende vereiste vir morele status, maar regverdig nie 'n "reg op lewe"-aanspraak nie. Persoonsyn, verstaan as 'n vorm van selfbewustheid tesame met 'n bewuste belang by die voortsetting van eie bestaan, mag wel so 'n aanspraak regverdig. Voorgeboortelike (en "voorpersoonlike") wesens is egter nie persone nie; hulle word eers (aansienlik) ná geboorte volwaardige persone. Die implikasie is dat sulke wesens weinig morele status het, en byvoorbeeld, na willekeur gedood mag word. Die morele probleem wat ek in hierdie dissertasie aanspreek is om die utilitaristiese beskouing ten opsigte van die morale status of waarde van voorgeboortelike lewe krities-filosofies te ondersoek en te evalueer. Metodologie en gevolgtrekkings Eerstens maak ek na aanleiding van 'n gedetaileerde literatuurstudie 'n in-diepte analise van van die utilitaristiese posisie aan die hand van 'n aantal temas wat ek in hul argument geïdentifiseer het. Daarna volg 'n krities-filosofiese evaluasie van die utilitaristiese posisie, aan die hand van ses argumente: • Utilitarisme is filosofies onsamehangend. Dit oorvereenvoudig die morele argument deur voor te gee dat gevolge al is wat moreel saakmaak. Die onderliggende utilitaristiese teorie bots met die morele eise vervat in kontemporêre sienings van menseregte en geregtigheid. Dit negeer die morele belangrikheid van spesiale verpligtinge teenoor spesiale belangegroepe. • Utilitarisme het potensieelonaanvaarbare gevolge. Dit IS inherent diskriminerend en kan lei tot onkeerbare glybaan ("slippery slope")-argumente. Utilitarisme bots met ons fundamentele morele intuïsies betreffende die waarde van voorgeboortelike lewe. Hierdie intuïsies word onder meer ondersteun deur die meeste hoofstroom godsdienste. • Spesiësisme is, in kontras met die utilitaristiese beskouing, onafwendbaar vir ons selfverstaan as mense, soos aangetoon kan word met 'n beroep op die eksistensiële fenomenologie. Self-konstituering, gelyktydige konstituering van die wêreld van die mens, en selfs die moontlikheid van moraliteit is slegs moontlik vanuit' n bepaalde spesiësistiese beskouing. • Die potensialiteit van "pre-persone" om tot volwaardige persone te ontwikkel kan nie, soos die utilitaris doen, sonder meer geïgnoreer word nie. • Daar is 'n basiese en onderliggende morele eis om swak en weerlose menslike wesens te beskerm. Hierdie idees bots lynreg met utilitaristiese teorie. As 'n alternatief tot die utilitaristiese beskouing, ontwikkel ek 'n twee-fase posisie betreffende die morele waarde van voorgeboortelike menslike lewe. Ek noem hierdie posisie agting vir voorgeboortelike en voor-persoonlike menslike lewe gebaseer op die menslikheid, potensialiteit en oorleefbaarheid van prenatale mense. Dit lei, eerstens, tot die gevolgtrekking van 'n gegradeerde glyskaal konsepsie van voor-persoonlike menslike morele waarde, min of meer parallel aan die vlak van ontwikkeling en die ontwikkeling van potensialiteit. Tweedens lei dit tot die gevolgtrekking dat die ontwikkeling van lewensvatbaarheid 'n moreel-beduidende afsnypunt is waarna die menslike fetus "normaalweg" aanspraak kan maak op 'n reg dat sy lewe voortgesit moet word. In soverre dit die toepassing van my argument betref, ontwikkel ek 'n "gematigde" posisie vis-á-vis aborsie. Ek redeneer dat alle menslike voorgeboortelike wesens wat 'n redelike kans het dat hul intrinsieke potensialiteit verder sal ontwikkel, die geleentheid daartoe gegun behoort te word. Ek aanvaar ook dat nog hierdie beskouing, nog die kompleksiteit van die menslike bestaan "absolute" posisies moreel regverdig. Die problematiek en inherente spanning tussen hierdie oënskynlik-opponerende posisies word in die teks bespreek. Nogtans beskou ek die ontwikkeling van lewensvatbaarheid as 'n moreel insiggewende afsnypunt waarna terminasie net in buitengewone omstandighede moreel regverdigbaar is.

Emerging markets are a great point of interest to multinational companies seeking to exploit new opportunities as they realise that catering to the rich domestic markets limits their opportunities, their potential and competitive advantage. Serving the consumers that are at the bottom of the economic pyramid (BoP) presents enormous opportunity but it also comes with its unique set of challenges. These challenges require an alternative business strategy, as companies entering these markets must develop new offerings designed to meet the specific requirements of servicing the BoP consumer. This report seeks to explore why companies operating in South Africa are entering the lower income markets, and will describe the challenges encountered both internally and externally, when operating in these markets. Ten interviews at six multinational companies based in South Africa were conducted to test the research propositions derived from the literature. The results concluded that companies enter the BoP markets in pursuit of growth. A variety of secondary factors also emerged. The data revealed that these companies have created innovative alternative execution strategies to overcome the challenges encountered in this market. The report offered a descriptive model of why companies enter the BoP market, and highlights how the challenges presented by the institutional voids and institutional distance were overcome.
Dissertation (MBA)--University of Pretoria, 2014.
lmgibs2015
Gordon Institute of Business Science (GIBS)
Unrestricted

This thesis includes four essays, of which each comprises two original contributions. Based on this thesis’ eight contributions, we add knowledge or understanding to the literatures on responsible investment, research output analyses and investment performance evaluation. First, we develop the first generic, reliable approach to benchmark research area output (e.g. journal articles or books), which we expect to appeal to governments’ increasing interest in monitoring their research funding investments. Second, we apply this approach to the research area of responsible investment, which is currently backed by an about $ 7 trillion industry. We find that the (quality weighted) quantity of responsible investment’s research output is statistically significantly under-proportional compared with peer research areas. One of several explanations for this result lies in the intransparency of the current responsible investment literature. Third, we develop an approach to research synthesis, which improves a research area’s transparency without experiencing many weaknesses of conventional literature reviews. We title this approach Influential Literature Analysis (ILA). Fourth, we apply ILA to the relatively intransparent responsible investment literature. One of our many findings is that responsible assets with their ceteris paribus under-proportional total risk might appear artificially unattractive when assessed by the most common investment performance measure, the Sharpe ratio, which is biased in favour of high risk assets due to its currently unsolved negative excess return problem. Fifth, we develop a generic, reliable and robust solution to the negative Sharpe ratio problem, which investors can customise according to their specific increasing incremental disutility of risk functions. Six, we generalise our solution to the negative Sharpe ratio problem, which allows us to solve the negative (excess) return problems of over twenty other investment performance measures. Seventh, we develop independent, statistically sophisticated tests of the sufficiency and quality of suggested solutions to the negative Sharpe ratio problem, since all existing tests a-priori assume the superiority of a specific solution. In contrast, our tests are only based on the Sharpe ratio itself and two basic axioms of investment theory. Hence, they are conceptually unrelated to our solutions. Eighth, we apply these tests using two different data samples to all existing solutions to the negative Sharpe ratio problem. We find that investors are best advised to use our solutions, the H⁶-, H⁷- or H⁸-measure, in their evaluation of investment performance from a Sharpe ratio like perspective.

Islam, its texts and lived practice, finds growing importance within the global discourse on bioethics, as there is an increasing Muslim population and burgeoning interest in biomedical research and biotechnologies in the Muslim world. The aim of this thesis is to assess if and how Islam influences the ethical decision making of researchers, REC (researcher ethics committee) members, guideline developers and Islamic scholars in the biomedical research context. I began addressing this question by first reviewing the literature that has been published to explore the role that Islam plays in the literature on biomedical research ethics. There is evidence that some Muslim countries have developed "Islamic" guidelines. That is, guidelines with the explicit aim of setting out Islamic values and stating their relevance to the ethics of research. A review of research guidelines employed within countries with a significant Muslim population, was carried out, to investigate the role of Islam in such guidelines. The literature and guideline review revealed that although international guidelines have been adapted to incorporate Islamic views, studies have shown that the latter are of limited practical application within a "Muslim country" setting. An empirical study was carried out in two case study sites to assess the extent to which Islam influences ethical decision making within the context of biomedical research. 56 semi-structured interviews were carried out in Malaysia (38) and Iran (18) with researchers, REC members, guideline developers and Islamic scholars to understand whether Islam influences what they consider to be an ethico-legal problem, and if the latter emerges, then how such issues are addressed. The empirical study indicates five main conclusions. The first is that Islam and its institutional forms do impact ethical decision making in the day-to-day practice of biomedical research in countries with a Muslim population and/or in the research careers of Muslim researchers. Secondly, it shows that there are many distinctive mechanisms, such as the involvement of Islamic scholars, the process of ijtihad (independent reasoning) and the production of fatawah (legal edicts), by which Islam does identify and develop ethical views about biomedical matters. Thirdly, HIV/AIDS poses major challenges to the world of Islam as it does the rest of world. The epidemic raises issues that touch on cultural sensitivities that are important to Islamic societies and this study has shown that no simple or single response was observed to the ethical issues arising from HIV/AIDS. Fourthly, researchers face practical challenges when deliberating women's autonomy in contexts where Islam is appropriated within 'male dominated' contexts. The role and status of women is disputed in such contexts with views ranging from women needing their husband's permission to leave the home to men and women having equal freedoms. Finally, this study describes and analyses how the personal faith of researchers and their deep commitment to Islamic ethics and law influences their understanding of their legal and moral accountability and ethico-legal decision making. It shows that researchers adopt multiple roles and are required to balance numerous value systems and priorities and face moral anxiety and frustration when these different moral sources are in conflict. Overall, this study indicates that, in the countries studied, Islam does influence biomedical research ethics, and that this can be appreciated through the growing reference to Islam and its scriptural sources in biomedical research ethics literature, research ethics guidelines and the role of Islam in the day-to-day practice of biomedical researchers in the case study sites, that has been captured in the empirical study.

Teachers confront the problem of plagiarism when they give research assignments. These research projects vary according to the way in which the professor, the department and the discipline defines research. To investigate research across the disciplines, I interviewed six professors who teach research assignments in their classes and six students who attempted to complete these assignments during the academic period of summer semester (1993) through fall semester (1994) at Ball State University.Specifically, I observed six disciplines--English, history, philosophy and religious studies, anthropology, physics, and biology--to assess the teachers' procedures for teaching research, and their explanations of how research could go wrong.Six student volunteers were observed throughout their research assignment as they gathered sources, accumulated data, observed experiments, wrote papers and compiled11a Works Cited list. After students completed their research assignments, I requested that each instructor evaluate the assignments and conclude whether it constituted legitimate, effective research. Although all six student researchers had difficulties completing their assignments, by the end of the semester four out of the six produced successful research projects. One student received an F on her project because she plagiarized, while another earned a C because she did not complete the assignment effectively. The students who did well on their research projects exhibited discipline-specific skills and the following general characteristics: the ability to gather sources, focus topics, authenticate sources, employ disciplinary language, adhere to citation and documentation format guidelines, and use computer and lab equipment. Indicators of possible plagiarism in research projects included: students using unspecified format (such as an older MLA format), writing that revealed improvement several skill levels above previous writing, uncited elevated language and phraseology, and a lack of sources in the bibliography.
Department of English

Numerous ethical guidelines are referred to when medical research is conducted on human participants. These guidelines include the Nuremberg Code, the Declaration of Helsinki, and the International Ethical Guidelines for Biomedical Research Involving Human Subjects. From a Western viewpoint, these guidelines may seem like well-reasoned, universally applicable codes for conducting medical research on human subjects. Some of the guidelines, however, merely impose Western values on developing countries without giving adequate consideration to their worldviews. I explore the applicability of current codes and guidelines of ethics on medical research with human subjects to the Zulu of South Africa and the Kikuyu of Kenya. Through a study of African traditional religions and philosophy and the community mindset that flows out of them, I have gained insight into the limitations of current universal codes when applied to traditional Kikuyu and Zulu communities.

Thesis (DPhil (Philosophy))--University of Stellenbosch, 2007.
Should surplus embryos which are destined to be discarded be protected at all cost, to the extent that they cannot contribute to medical knowledge - knowledge which could benefit society at large? Are embryos people or merely items of property? Different moral theories address these questions in different ways. Deontologists argue that the end never justifies the means and that the right not to be killed is more fundamental than the obligation to save. Utilitarians, on the other hand, argue that certain criteria should be met before moral significance can be contributed to an entity. The question of the moral status of the embryo is, as my discussion will show, one of the most widely discussed issues in the history of bioethics. Extensive literature exists on the topic. This study holds that an Ethics of Responsibility (ER) should by applied when answering the questions posed above as it encourages one to accept responsibility for the choices or decisions made and to defend them accordingly. I have endeavoured to answer the question of the personhood and rights of the embryo within the framework of the Ethics of Responsibility. Although these concepts overlap in many ways they remain central to the debate surrounding the sanctioning or prevention of the use of human embryonic stem cells in research. After identifying the micro-issues surrounding the human embryonic stem cell debate and explaining why both the deontologist and utilitarians fail to provide any adequate answers in this respect, I turn my attention to macro-issues such as safety concerns surrounding the usages and storage of stem cells. Commercialization, power issues, accessibility and the allocation of limited resources are also examined. Living in a society such as South Africa one cannot be blind to the inequalities of our health system. On a macro level I cannot but conclude that stem cell research does not seem to be a viable exercise within the South African context. South Africa faces a health care crisis far greater than the benefits stem cell research currently has to offer. However, the need still exists for a policy to guide future lawmakers who might need to address stem cell research and to guide decisions and actions. This brings me to my final chapter, namely proposing a morally justified policy for South Africa. I propose a policy which respects and values the autonomy of the progenitors’ choices (provided they have not been coerced) and which focuses on the beneficence of the greater society. Furthermore, it is paramount that the goal of any stem cell research should be for therapeutic use ONLY. Before commencing with the extraction of the stem cells, scientists should be obligated first to present convincing evidence that they have tried alternative ways to reach the same result. Once this has been proven, a regulatory body could issue the scientist/team with a license to undertake the specific research with a specific therapy as goal in order to prevent abuse. If they are found guilty of any unethical conduct their licenses should be revoked and an investigation launched.

This thesis uses an advocacy/participatory framework and moral conflict theory to examine the opposing ideas: and interests of parties involved in the issue of prostitution on 82nd Avenue in Portland, Oregon. It locates areas of contention within the larger dominant feminist discourse, which views sex work as either a form of violence and exploitation or as a form of legitimate free-contract labor. The thesis shows how the intractable moral conflict between these differing feminist theories and values can be mediated using participatory data collection techniques. Ethnographic data was collected and analyzed from 11 women working in the sex industry in Portland, highlighting voices commonly left out of the conflict. Participants were given cameras and invited to photo-document their individual and community's needs and aspirations through the qualitative, arts-based research method, photovoice. An exhibit of these photographs was displayed as an art exhibit at several locations throughout the Portland area. Data collection methods also included a review of local media sources collected between September 2007 and April 2009, and field notes gathered from participatory and non-participatory observations at public town hall forums. Close analytic attention is given to the perspectives of those marginalized populations of sex workers excluded from the dialogue on issues that directly affect them. This thesis demonstrates ways in which community-based, participatory research, such as the use of photovoice method, can empower marginalized individuals to affect change within their community. The exhibit of photovoice data was used to enhance communication among individuals and groups involved in an intractable moral conflict about sex work in Portland. This thesis argues that photovoice method has potential for increasing the quality of public discourse to manage moral conflicts or to discover resolutions suitable to the needs and desires of multiple stakeholders.

African Americans’ tendency to choose life-prolonging treatments (LPT) over comfort focused care (CFC) at end-of-life is well documented but poorly understood. There is minimal knowledge about African American (AA) perceptions of decisions to continue or discontinue LPT. The purpose of this study was to examine AA family members’ perceptions of factors that influenced end-of-life care decision-making for a relative who recently died from serious illness. A conceptual framework informed by the literature and the Ottawa Decision Support Framework was developed to guide this study. A retrospective, mixed methods design combined quantitative and qualitative descriptive approaches. Forty-nine bereaved AA family members of AA decedents with serious illness who died between 2 to 6 months prior to enrollment participated in a one-time telephone interview. Outcomes examined include end-of-life treatment decision, decision regret, and decisional conflict. Quantitative data were analyzed using descriptive statistics, independent-sample t-tests, Mann-Whitney U tests, chi-square tests, Spearman and Pearson correlations, and linear and logistic regressions. Qualitative data were analyzed using content analysis and qualitative descriptive methods. Family members’ decisional conflict scores were negatively correlated with their quality of general communication (rs = -.503, p = .000) and end-of-life communication scores (rs = -.414, p = .003). There was a significant difference in decisional regret scores between family members of decedents who received CFC versus those who received LPT (p = .030). Family members’ quality of general communication (p = .030) and end-of-life communication (p = .014) were significant predictors of family members’ decisional conflict scores. Qualitative themes related to AA family members’ experiences in end-of-life decision-making included understanding (e.g., feeling prepared or unprepared for death), relationships with healthcare providers (e.g., being shown care, distrust) and the quality of communication (e.g., being informed, openness, and inadequate information). Additional qualitative themes were related to perceptions of the decision to continue LPT (e.g., a lack of understanding, believe will benefit) or discontinue LPT (e.g., patient preferences, desire to prevent suffering). In conclusion, this study generated new knowledge of the factors that influenced AA bereaved family members’ end-of-life decision-making for decedents with serious illnesses. Directions for future research were identified.

Thesis (DPhil)--University of Stellenbosch, 2004.
ENGLISH ABSTRACT: Human participant research raises a conflict between medical progress as a societal good and the protection of participants as an individual good. Prior to 1960 the discretionary authority for the protection of participants resided in the hands of individual investigators. However, a wave of research atrocities from Tuskegee in 1932 to the Beecher expose in 1966 stimulated a change to a principle based system of regulation. Research Ethics Committees (RECs) and Institutional Review Boards (IRBs) were henceforth charged with the responsibility of human participant protection. Since 1966, this system of research review was established internationally and at one institution in South Africa. In 1997, placebo-controlled HIV vertical transmission trials in a number of developing countries including South Africa raised unprecedented controversy in research ethics internationally and nationally. In 2000, the fraudulent breast cancer trials conducted by Dr Bezwoda at Baragwanath Hospital drew international attention to research ethics in South Africa. However, the events that called into question the efficiency of the system of ethical review most poignantly were the recent deaths of volunteers in research at centres of excellence in the United States. It was charged that if there were deficiencies in the research ethics review system in developed countries, these were more likely to be present in developing countries. Around the same time the Interim National Health Research Ethics Committee (INHREC) was established in South Africa to explore and regulate the ethical review system in South Africa. Cognisant of these issues, the current study was undertaken to establish the various structural, procedural and substantive ethical challenges facing justifiable and ethical review of research in South Africa. A combination of conceptualphilosophical reflection and empirical research was employed in this dissertation. The empirical work employed both quantitative and qualitative research methodology. The quantitative survey explored the composition of RECs reviewing clinical trials research in South Africa with an emphasis on committee composition and structure as well as the review process. The qualitative research was conducted using semi-structured interviews of ten REC Chairpersons in South Africa to explore complex substantive issues like informed consent, standards of care and participant remuneration, inter alia. While the review system in South Africa is functioning at a reasonable level, there is wide variation from one REC to the next. RECs are geographically distant and function in isolation without opportunity to communicate and share ideas. Amongst institutional RECs, there is a stark contrast between historically disadvantaged institutions and historically advantaged institutions. REC membership, ten years into democracy remains white male dominated. Community representation is inadequate. Most RECs are dominated by scientists and clinicians. The review process is widely variable with delays in review ranging from ten days to ten weeks. Procedural and bureaucratic demands impact on the ability of REC members to engage in debate on important substantive ethics issues like standards of care, informed consent and participant remuneration. Research ethics training and educational needs vary widely across the country. Serious attention must be paid to the way in which RECs are constituted in South Africa. Restructuring of RECs with a view to improving representation in terms of race, gender and religion must be prioritized. There is a need for community representation and non-scientific membership to be explored. RECs in South Africa need to revisit the question of whether they should be conducting both scientific and ethics review or ethics review alone. The review process requires a paradigm shift in emphasis from adverse event reporting to monitoring, from informed consent forms to a culturally relevant informed consent process. Aparadigm shift is indicated to shift the focus from informed consent to a more comprehensive review framework. Policies regarding standards of care and participant remuneration must be clarified and articulated. Although the role of RECs in human participant protection has been questioned, it is clear that in the vast majority of cases, they are fulfilling an important role. Their function could certainly be enhanced. This is being facilitated by training programs and an electronic newsletter. However, responsibility for human participant protection does not reside in the domain of the REC alone. A collective responsibility shared by researchers, institutions, research ethics committees, sponsors and participants is integral to human participant protection and the generation of new, valid and relevant scientific knowledge.
AFRIKAANSE OPSOMMING: Navorsing op menslike subjekte gee aanleiding tot ‘n konflik tussen mediese vooruitgang as ‘n voordeel vir die samelewing en die beskerming van deelnemers as iets waarby die individu direkte belang het. Voor 1960 het die diskresionêre gesag vir die beskerming van deelnemers by die individuele navorsers berus. ‘n Golf van navorsingsvergrype, van Tuskegee in 1932 tot die Beecher onthulling in 1966, het egter veranderinge in die rigting van ‘n stelsel van beginsel-gebaseerde regulasie gestimuleer. Navorsingsetiekkomitees (NEKs) en Institusionele Beoordelings- en toesigrade (IBRs) is gevolglik belas met die verantwoordelikheid om toe te sien dat mense wat deelneem, sover moontlik beskerm word. Sedert 1966 is hierdie stelsel van navorsingshersiening en -toesig internasionaal tot stand gebring – ook, aanvanklik, by een instansie in Suid-Afrika. In 1997 het plasebo-beheerde HIV-vertikale oordrag-proewe in ‘n aantal ontwikkelende lande, insluitend Suid-Afrika, tot ongekende kontroversie op die terrein van navorsingsetiek aanleiding gee, internasionaal en nasionaal. In 2000 het die bedrog met borskankerproewe, uitgevoer deur dr Bezwoda by Baragwanath Hospitaal, internasionale aandag op navorsing in Suid-Afrika gevestig. Hierdie gebeure het egter die effektiwiteit van die stelsel van etiese toesig in Suid-Afrika en elders in die wêreld bevraagteken. Die mees kommerwekkende onlangse insident was die dood van navorsingsvrywilligers by sentra van uitmuntendheid in die Verenigde State. Daar is beweer dat as daar tekortkominge in die navorsingsetiektoesigsisteem in ontwikkelende lande is, daar ‘n groter moontlikheid bestaan dat dit ook (en moontlik meer) in ontwikkelende lande voorkom. Ongeveer dieselfde tyd is die Interim Nasionale Gesondheidsnavorsings-etiekkomitee (INGNEK) [Interim National HealthResearch Ethics Committee (INHREC)] in Suid-Afrika gestig om die etiekoorsigstelsel in Suid-Afrika te ondersoek en te reguleer. Met dit in gedagte is die huidige studie onderneem om die verskillende strukturele-, prosedurele- en substantiewe etiese uitdagings wat regverdigbare en etiese oorsig van en toesig oor navorsing in Suid-Afrika in die gesig staar, vas te stel. Daar is van ‘n kombinasie van konseptuele, filosofiese refleksie en empiriese navorsing in hierdie proefskrif gebruik gemaak. Die empiriese werk maak gebruik van sowel kwantitatiewe as kwalitatiewe navorsingsmetodes. Die kwantitatiewe opname bestudeer die samestelling van NEKs wat toesig hou oor kliniese proewe in Suid-Afrika, met die klem op komiteesamestelling, -struktuur en die toesigproses. Die kwalitatiewe navorsing is gedoen met behulp van van semi-gestruktureerde onderhoude van tien NEK-voorsitters in Suid-Afrika om die komplekse substantiewe aspekte, soos onder andere ingeligte toestemming, standaard van versorging en deelnemervergoeding, te ondersoek. Terwyl die etiek-toesigstelsel in Suid-Afriks op ‘n redelike vlak funksioneer, is daar ‘n groot verskil tussen verskillende NEKs. NEKs is geografies verspreid en funksioneer dikwels in isolasie sonder ‘n geleentheid om te kommunikeer en idees te deel. Ten opsigte van die institusionele NEKs bestaan daar ‘n duidelike kontras tussen histories benadeelde instansies en histories bevoordeelde instansies. NEK-lidmaatskap word, tien jaar na demokrasie, steeds gedomineer deur blanke mans. Gemeenskapsverteenwoordiging is onvoldoende. Die meerderheid NEKs word gedomineer deur wetenskaplikes en klinici. Die toesig- en hersieningsprosesse in die verskillende komitees verskil grootliks, met vertragings wat wissel van 10 dae to 10 weke. Prosedurele- en burokratiese vereistes het ‘n impak op die vermoëns van NEK-lede om by debatte oor belangrike substantiewe etiese aangeleenthede betrokke te raak, soos byvoorbeeld die standaard van versorging, ingeligte toestemming en deelnemervergoeding. Opleiding en opvoedkundige behoeftes verskil wyd oor die land.Ernstige aandag moet geskenk word aan die wyse waarop NEKs in Suid-Afrika saamgestel is. Herstrukturering van NEKs met ‘n visie op verbeterde verteenwoordiging in terme van ras, geslag en geloof is ‘n prioriteitsvereiste. Gemeenskapsverteenwoordiging en lidmaatskap van nie-wetenskaplikes moet verder ondersoek word. NEKs in Suid-Afrika moet die vraag of hulle sowel wetenskaplike- as etiektoesig moet uitvoer, of sl slégs etiektoesig, opnuut ondersoek. Die nasiensproses vereis ‘n paradigmaskuif, vanaf ‘n klem op rapportering van gebeurtenisse, na monitering van ingeligte toestemmingsvorms sowel as na ‘n kultureel toepaslike ingeligte toestemmingsproses. ’n Paradigmaskuif is noodsaaklik ten einde die fokus te verskuif vanaf ingeligte toestemming na ‘n meer omvattende toesig- en nasiensraamwerk. Beleid rakende standaard van versorging en deelnemervergoeding moet verduidelik en geartikuleer word. Alhoewel die rol van NEKs in die beskerming van menslike deelnemers aan navorsing bevraagteken word, is dit duidelik dat NEKs in die meerderheid van gevalle wel ‘n belangrike rol vervul. Hul funksie kan natuurlik uitgebrei word. Dit sal gefasiliteer word deur opleidingsprogramme en ‘n elektroniese nuusbrief. Verantwoordelikheid vir die beskerming van mense wat deelneem aan navorsing berus egter nie uitsluitlik by NEKs nie. ‘n Kollektiewe verantwoordelikheid, gedeel deur navorsers, instellings, navorsingsetiekkomitees, borge en deelnemers is ‘n integrale vereiste vir hierdie beskerming sowel as vir die verwerwing van nuwe, geldige en relevante wetenskaplike kennis.

This thesis seeks to demonstrate, by way of a multidisciplinary study, that consent is, despite its legal definition which refers to the free and enlighted expression of individual will, in fact, at times limited if not eliminated, by social considerations, arising from the medical, economic and legal context. These considerations reflect what one might call the social norm. An appropriate understanding of consent serves, therefore, to express the social norm as a constraint, which, in turn, acts as a measure of what it means to belong in society. Thus, while consent is often presented as the fundamental principle to be respected in biomedical research, it is in reality, merely one principle to respect among others. These limitations connected to consent are exacerbated in emergency situations where consent is sometimes reduced to mere signature, and in some cases it has been recognized that research can be undertaken without the subject's prior consent.

Research consistently shows actuarial classification instruments have equal or higher predictive validity than clinical judgment and can lead to more ethical and fair treatment of incarcerated men and women (Austin, 1983, 1986; Bonta, 2002; Clements, 1981; Holsigner, Lowenkamp, & Latessa, 2006; Meehl, 1954; Salisbury, Van Voorhis, & Spiropoulos, 2009). Best correctional practice recommends all objective classification systems are tested for reliability and validity to ensure they are effective for the population they intend to serve (Austin, 1986; Holsinger et al., 2006; Salisbury et al., 2009). This study examined the reliability and validity of the classification and assessment instruments currently used by Golden Grove Adult Correctional Facility (Golden Grove), located on St. Croix in the United States Virgin Islands (USVI). Golden Grove is a mixed-gender, mixed-security status prison managed by the USVI territorial government, and is subject to United States Federal laws and mandates. Data from archival files were used to assess the internal reliability, construct validity, and predictive validity of the classification and assessment instruments used with incarcerated men and women at Golden Grove (N = 200). Primary objectives of this study were separated into four main categories: 1) examine the construct validity of Golden Grove's custody assessment tools; 2) investigate the predictive validity of Golden Grove's custody assessment tools across gender; 3) determine reliability and assess to what extent the primary classification officer's decisions have higher predictive validity than the actuarial tool; and 4) investigate the relationship between items on the needs assessment form and level of custody (minimum, medium, or maximum). Results were mixed but generally indicated weak reliability, construct validity, and predictive validity. Contrary to most research on gender and classification, a significant correlation between the initial custody score for incarcerated females and disciplinary reports (r = .26, n = 56, p < .05) indicated the initial custody tool predicted misconduct for maximum custody females better than for males. The mean number of disciplinary reports for maximum women (M = 1.12) was significantly higher compared to maximum men (M = .46). The classification officer overrode the instrument at a high rate for both the initial assessment instrument (44%) and the reassessment instrument (36.4%) rendering the objective assessment overly subjective. Overall, findings show the classification system at Golden Grove is not functioning as intended and improvements are recommended.

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Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPES
Fundação São Paulo - FUNDASP
This thesis aims to analyse the determinations and implications which embrace the demand of research Project submission in Social Service to the Ethics Committee based on the Postgraduate Program on Social Service and Social Politics and of the Ethics Committee in Research with Human Beings of the State University of Londrina. In order to reach this goal, I aim to analyse the ethics grounds built by Social Service and materialized in the Professional Ethics Code of the Social Workers. The needs to develop a study about ethics in Social Service is due to the my insertion to various Ethics Committee in Research during my academic history between 2006 and 2015. To reach the objectives I understand that the researcher must try repeatedly to access the object of study, aiming to get the reality in its multiple determinations. Categories are built every time there is approach and return. These categories allow the evident to make way to wider determinations. The method which is, at the same time, materialistic and dialectic, stems from the empiric and gathers the relation to other empirical groups, its historical origin taking into account the phenomenon historicity and this is rebuilt according to the researcher’s reflection. As method’s categories, those which contemplate the research object were contradiction, historicity, mediation and totallity. My research is exploratory and descriptive, mainly when I locate the Postgraduate Program in Social Service and Social Politics of the State University of Londrina and the Ethics Committee of the same University. This thesis was developed in the chapters. The first delas with my theoretical background based on Barroco (2005). I begin with a discussion about the ethical development aiming the praxis through the Project. The next step is to write about the ethical-political Project historically built by the social workers’ category. I end the first chapter writing about the bioethics and its basis: bioethics principialism.I seek a critique of the bioethical principles based on the Social Service Ethical Code, on Barroco and Terra (2012). I begin the second chapter making history of the developing process of the protocol whose result is the resolution 510/16, which deals with ethics in Human and Social Science research. Still in chapter II, I talk about the research and the production of human knowledge under the historical-critical perspective. I go on the second chapter creating a context and adding caracteristics to my research locus, which is the Postgraduate Program in Social Service and Social Politics of the State University of Londrina. I finish the chapter II positioning the Ethics Committee in Reseach of Human Beings of the State University of Londrina – CEP – UEL. The third chapter deals with my field research. For this section, I interviewed two students and one professor of the program. There are three aspects of my field research: the first is the reasons to submitt or not to the CEP research. Secondly, if there are any problems during the process and why the CEP evaluation process can become a problem through research. Finally, the last aspect relates to the implications of the submission to ethics in Social Service research. I understand that these aspects answer the first question about the implications and determinations of the CEP evaluation about ethics in Social Service research
A presente tese tem por objetivo analisar as determinações e implicações que envolvem a exigência de submissão dos projetos de pesquisa em Serviço Social aos Comitês de Ética em Pesquisa a partir do programa de Pós-graduação em Serviço Social e Política Social e do Comitê de Ética em Pesquisa com Seres Humanos da Universidade Estadual de Londrina. Para tanto busco analisar a fundamentação ética construída pelo Serviço Social e materializada no Código de Ética Profissional – CE – dos Assistentes Sociais. A necessidade de aprofundar o estudo acerca da ética na pesquisa em Serviço Social se deu devido minha inserção em vários Comitês de Ética em Pesquisa durante minha trajetória acadêmica desde o ano de 2006 até 2015. Para alcançar os objetivos entendo que o pesquisador faz sucessivas aproximações ao objeto de pesquisa, buscando extrair da realidade suas múltiplas determinações. A cada aproximação e retorno, vão se construindo categorias. Estas categorias fazem com que o aparente dê lugar a determinações cada vez mais abrangestes. O método materialista-dialético parte do empírico e apanha as relações com outros conjuntos empíricos, sua gênese histórica considerando a historicidade do fenômeno e isto é reconstruído no pensamento do pesquisador. Como categorias do método, as que contemplaram o objeto de pesquisa foram contradição, historicidade, mediação e totalidade. Desenvolvi uma pesquisa exploratória e descritiva, principalmente quando situo o Programa de Pós-graduação em Serviço Social e Política Social da Universidade Estadual de Londrina e o Comitê de Ética em Pesquisa da UEL. A presente tese foi elaborada em três capítulos. O primeiro trata de meu referencial teórico baseado em Barroco (2005). Inicio com a discussão da construção da ética como objetivação da práxis através do trabalho. Em seguida discorro acerca da construção do projeto ético-político construído historicamente pela categoria dos assistentes sociais. Finalizo o primeiro capítulo escrevendo acerca da bioética e de seu fundamento: o principialismo bioético. Baseado no Código de Ética do Serviço Social e em Barroco e Terra (2012), busco uma crítica aos princípios bioéticos. Inicio o segundo capítulo historicizando o processo de construção da minuta que resultou na resolução 510/16 que trata da ética na pesquisa para a área das Ciências Humanas e Sociais. Em seguida, ainda no capítulo dois, trato a respeito da pesquisa e da produção do conhecimento humano na perspectiva histórico-crítica. Dou continuidade ao segundo capítulo contextualizando e caracterizando meu lócus de pesquisa – o Programa de Pós-graduação em Serviço Social e Política Social da UEL. Finalizo o segundo capítulo situando o Comitê de Ética em Pesquisa Envolvendo Seres Humanos da Universidade Estadual de Londrina – CEP-UEL. O terceiro capítulo trata da minha pesquisa de campo. Para esta sessão foram realizadas três entrevistas com dois estudantes e um docente do programa. Como eixos de análise desta minha pesquisa de campo, delimitei três: primeiramente “por que submeter, ou não submeter as pesquisas ao CEP”. Em segundo lugar “se ocorrem algum problema no processo? Por que o processo de avaliação do CEP pode se tornar um problema no processo de pesquisa”. O último eixo se refere às “implicações da submissão para a ética na pesquisa em Serviço Social”. Entendo que estes eixos de análise respondem à pergunta inicial acerca das implicações e determinações da avaliação do CEP sobre a ética na pesquisa em Serviço Social

Cette thèse d’éthique médicale, située dans une approche interdisciplinaire et tentant de s’affranchir de tout préjugé personnel de la part de l’auteur, tend à apporter un éclairage, aussi objectif que possible, sur une question, jusqu’à présent, inexplorée : la communication sur la sédation continue, maintenue jusqu’au décès, dans les unités de soins palliatifs, en France et en Pologne. En premier lieu, une recherche bibliographique a été réalisée et les principales failles des publications existantes ont été mises en exergue dont deux en particulier : le flou terminologique et conceptuel autour de la notion de sédation dans le champ de la médecine palliative, et de la notion de représentation elle-même. Pour que l’objet de recherche soit correctement cerné, deux notions-clés – la notion de sédation continue, maintenue jusqu’au décès et la notion de représentation – ont été d’abord explicitées, puis articulées entre elles. En second lieu, une recherche qualitative fondée sur l’étude de cas multiples a été réalisée sur le terrain, c’est-à-dire dans différentes unités de soins palliatifs, en France et en Pologne. Deux méthodes qualitatives ont été adoptées : l’analyse de dossiers et les entretiens semi-directifs individuels. Ces derniers ont été réalisés auprès des principaux acteurs impliqués dans une situation de communication : les médecins prescripteurs, les infirmières et les proches des malades sédatés. Les malades n’ont pas été interrogés, mais leurs témoignages ont été recueillis via les entretiens avec les professionnels de santé et les proches. Quinze cas complets par pays, soit trente cas en tout, ont été inclus dans l’étude. Les données obtenues ont été analysées à l’aide d’outils linguistiques adaptés. Les résultats ont montré que les représentations de la « sédation continue, maintenue jusqu’au décès », faites par les professionnels de santé, avaient un impact sur la délivrance de l’information. Une certaine influence des contextes nationaux a été observée, dans la plupart des cas. En revanche, les souhaits des malades et de leurs proches, quant au contenu de l’information, étaient les mêmes dans les deux pays. Par ailleurs, ce n’était pas tant l’information stricto sensu qui comptait mais une présence bienveillante. Ce besoin de relation nous a amenés à nous interroger sur une certaine universalité de l’être souffrant, malgré ses particularités, d’où notre proposition d’une éthique de la présence à l’autre. Ne devrait-elle pas être intégrée dans le champ de la médecine palliative ou plutôt dans la médecine toute entière, voire dans nos vies de tous les jours ?
This thesis addresses an issue of medical ethics which has previously been investigated, that of communication concerning continuous sedation until death as practised in palliative care units in France and Poland. Using an interdisciplinary approach, free of any personal preconceptions by the author, it aims to provide an objective insight into the issue. A literature review is performed initially which highlights the main flaws in the existing publications of which there are two in particular: terminological and conceptual confusion around the idea of sedation in palliative medicine and its conceptual representation. In order to properly frame the object of research, two key concepts: continuous sedation until death and representation are first clarified and then linked together. Subsequently, a qualitative multiple-case field study is performed in a number of different palliative care units in France and Poland. Two qualitative methods are used: case analyses and individual semi-structured interviews with the main parties involved in the communication process - prescribing clinicians, nurses and the families and friends of sedated patients. Patients were not directly interviewed but their experiences were accounted for via the interviews with the carers and family members. Thirty completed case, fifteen per country, are included in the study. The data obtained are analysed using the appropriate linguistic tools. The results show that carers' representations of “continuous sedation until death” influence the delivery of information to patients. The national contexts are seen to exert a certain influence in most cases. However, with regard to the content of information, the wishes of patients and family members are the same in both countries. Moreover, it is less the information itself that counts as much as the caring way it is delivered. The emergence from this study of a needful wish to be cared for leads us to question whether, despite individual differences, there is not a universal dimension to the suffering being. This in turn prompts our suggestion of an ethical scope to the presence of the other. Should this not be at the root of palliative medicine and moreover throughout the entire field of medicine? And if that's the case, why not in our everyday lives ?

Thesis (MPhil)--Stellenbosch University, 2005.
ENGLISH ABSTRACT: Television is a powerful tool in the diffusion of information to the masses. It is therefore influential in the way society perceives and responds to children, and in so doing it has an influence on the provision and protection of children's rights. According to international and locally conducted studies children are not high on the media agenda, are seldom given a voice or status, and if they are, issues around them are mostly formulated by adults. This assignment sets out to determine whether the same conclusion can be drawn from South African free-to-air television station e-TV. In particular it seeks to establish whether e- News has been successful in placing children's rights in on the public agenda or whether it has reported on children in an ad hoc manner. Children's human rights issues have been defined in accordance with the United Nation's Children's Rights Charter and the South African Bill of Rights, which makes specific provision for the child/children. This assignment takes its lead from a Media Monitoring Project study. Like the MMP report this research is conducted within a human rights framework and concedes according to Section 28 (2) of the Constitution that "the child's best interests are of paramount importance in every matter concerning the child". The methodology employed in this assignment, while replicating a Media Monitoring Project study, also employs discourse analysis in the form of interviews and questionnaires conducted with e-News members of staff. The methodology was applied to a sample of 71 stories which included reference to a child or children and which were broadcast on e-News Live at 7 and e-News live at 10 between January and August 2004. In brief it was found that the rights to privacy, dignity and freedom of speech were satisfactorily upheld (as per the Bill of Rights), but that issues about children are mostly sourced by and commented on by adults. Furthermore it was found that children's rights do not form an implicit part of the e-News agenda. Given that a human rights framework is normative for e-News, it is recommended that children's rights be placed in context, that stories challenge stereotypes about children and that e- News should consider appointing 'children's correspondents'.
AFRIKAANSE OPSOMMING: Televisie is n' kragtige medium vir die verspreiding van inligting na die samelewing. Om hierdie rede speel televisie n' invloedryke rol op die manier waarop mense met kinders omgaan en dus het dit ook n' groot invloed op die voorsiening en berskerming van kinderregte. Volgens internastionale en plaaslike studies is kinders nie hoog op die media se agenda nie. Hulle word selde status verleen en indien wel, word kwessies wat hulle raak, dikwels deur volwassenes geformuleer. Hierdie opdrag wil bepaal of hierdie gevolgtrekking ook spesifiek betrekking het op die televisiestasie, e-TV. Daar word spesifiek gefokus op e-News se agenda met betrekking tot kinderregte en of dit suksesvol genhandhaaf word of nie. Kindreregte-kwessies is gedefineer soos in die Verenigde Nasies se Handves van Kinderrregte en die Suid-Afrikaanse Hanves van Menseregte wat specifiek focus op voorsiening vir kinders. Hierdie opdrag is volg die voorbeeld van n' verslag van die Media Monitoring Project (MMP). Soos die MMP-verslag word hierdie narvorsing binne n' menseregte-raamwerk gedoen en neem ook artikel 28 (2) van die Suid-Afrikaanse Grondwet in ag, wat stipuleer dat die kind se belange van kardinale belang is asook elke aspek wat die kind betrek. Die metodologie wat in hierdie opdrag gebruik word, repliseer tegelykertyd die MMPstudie en maak gebruik van diskoersanalise in die vorm van onderhoude en vraelyste onder e- News personeellede. Hierdie metodologie maak gebruik van n' steekproefvan 71 nuusstories wat verwys na n' kind/kinders wat tussen Januarie en Augustus 2004 op e-News Live om 19hOO uitgesaai is. Ter opsomming is bevind dat privaatheidsregte, waardigheid en vryheid van spraak van kinders bevredigend benader is. Kwessies wat kinders aanraak word egter meer deur volwassenes aangespreek as deur kinders self. Daar is egter ook bevind dat kinderregte nie n' intergrale deel van e-News agenda vorm me. Gegewe dat n' menseregteraamwerk bye-News toegepas word, word dit aanbeveel dat kinderregte binne konteks geplaas word en dat berigte sal streef daarna om stereotypes oor kinders te verander en dat e-News oorweeg om kinderkorrespndente aan te stel.

In negotiating research relationships with Aboriginal and Torres Strait Islander peoples, the question of colonisation runs deep. Often, as a gesture to counter the colonising effects of the research gaze, ‘participation’ is hailed as a methodological solution, as a means of healing and transforming power relations. In practice however, the ethical implications of research activities remain complex and contested (Cornwall, 2008, p.276). Much is written about why participatory methods offer remedial qualities of empowerment to counter colonialism in research, but there is little discussion of what happens when participatory research with Indigenous Australians does not operate as a smooth process of reclamation. Often, researchers avoid accounting for resistance to participation because this is viewed as a personal ‘failure’ to accurately represent the interests of a colonised group. The basis of these assumptions comes from a moral compulsion to alter power relations towards social justice: such logic cannot accept that ‘oppressed’ peoples would reject opportunities for empowerment. Yet, international literature (Kothari, 2001) shows that subjectivities comprising participatory research must be carefully considered when constructing research relationships. Drawing from a case study of my own participatory research experience with an Aboriginal community development organisation in Western Sydney, I consider how a non–Indigenous researcher might approach an understanding of their ethics when attempting to ‘decolonise’ their research. I reflexively investigate my own practice to offer a discussion of the ways in which researchers can understand how they come to determine what is ethical and what is not. My account begins with a description of a case study involving multiple forms of participation over a three–year period, which I explore as a series of ‘invited spaces’ (Cornwall, 2004). Drawing from my case study, I incorporate Foucault’s ethics (2005) by discussing how ethics codes create subjectivities, which not only shape the participants in the research, but also shape the kind of ‘selves’ researchers seek to become through participatory research. I consider the contingencies that have led to the construction of a remedial role for participatory methods in research involving Indigenous Australians by critically analysing the discourses within the National Health and Medical Research Council’s ethics guidelines. This research offers a multi–layered approach to reflexivity, by attending to transparency, interpersonal relationships, and a collective evaluation of the process with participants (Nicholls, 2009). Collective reflection about (re)presenting research findings to a variety of audiences highlights the importance of examining one’s own motives as crucial to ‘ethical’ practice. Researchers seeking to achieve a form of participation without resistance set themselves an impossible task. Resistance is not to be feared, but is to be expected within the mechanics of power relations amongst subjectivities within ‘communities’. Incorporating resistance into accounts of participatory research enables an ability to acknowledge ‘internal conflicts and contradictions’ (Fawcett and Hearn, 2004, p. 211) without deeming participation a failure. I argue that participation is a liminal space between trust and resistance, containing tensions and productive possibilities. By attending to one's ethics (Foucault, 2005), participatory researchers might now understand fluidity, uncertainty, and dynamism within research relationships as a rich source of reflexive work towards countering the colonising gaze.

Social network sites (SNSs) have become very popular, with more than 1.39 billion people using Facebook alone. The ability to share large amounts of personal information with these services, such as location traces, photos, and messages, has raised a number of privacy concerns. The popularity of these services has enabled new research directions, allowing researchers to collect large amounts of data from SNSs to gain insight into how people share information, and to identify and resolve issues with such services. There are challenges to conducting such research responsibly, ensuring studies are ethical and protect the privacy of participants, while ensuring research outputs are sustainable and can be reproduced in the future. These challenges motivate the application of a theoretical framework that can be used to understand, identify, and mitigate the privacy impacts of emerging SNSs, and the conduct of ethical SNS studies. In this thesis, we apply Nissenbaum's model of contextual integrity to the study of SNSs. We develop an architecture for conducting privacy-preserving and reproducible SNS studies that upholds the contextual integrity of participants. We apply the architecture to the study of informed consent to show that contextual integrity can be leveraged to improve the acquisition of consent in such studies. We then use contextual integrity to diagnose potential privacy violations in an emerging form of SNS.

In this thesis, the author studies the ethical and legal aspects of research conducted on stored tissue samples of deceased persons in North America.
The first part of this thesis presents an overview of what constitutes human tissues and how are they used in research. The author describes the process in which human tissues are acquired and stored by health facilities, their utility for scientific research, and currently used techniques.
The second part is dedicated to the analysis of the current normative framework associated with research involving human tissue samples in North America. The author underlines the presence of two different normative regimes depending on whether the human tissues were removed before or after death. Finally, the author examines international documents in order to evaluate whether or not they can provide guidance to North American national legislation.
The third part evaluates the normative limitations associated with the use of stored tissue samples of deceased persons for research. The author considers that these limitations are related to the presence of conflicting interests, the difficulties in establishing rights over human tissues, the difficulties of establishing the rights of the dead, and the limitations of the theory of informed consent with regards to stored tissue samples.
The last part of this thesis suggests that stored human tissues should be interpreted as if they were part of an individual's medical record. After presenting some of the philosophical arguments in favour of such an interpretation, the author underlines the presence of legal precedents supporting the "tissue as information" model. The author finally examines the legal implications and the potential limitations of this proposal.

En France, sous l'impulsion de la loi du 4 mars 2002 relative aux droits des malades et à la qualité du système de santé, des modifications profondes de la relation de soin en faveur d'une participation plus active des patients ont été engagées imposant un repositionnement de chaque acteur de cette relation. La loi précise que l'implication des patients dans les processus de prise de décision doit être recherchée y compris lorsque les patients présentent des limitations de leurs capacités de décision. L'affirmation de ces droits va de pair avec la reconnaissance de capacités de décision aux patients et le développement d'une décision médicale partagée. Elle entraîne néanmoins, lorsque ces capacités sont atteintes, des difficultés concrètes dans le recueil du consentement du patient et/ou de ses représentants légaux et aidants. Il est aujourd'hui reconnu que les besoins en santé orale des patients présentant des limitations durables de leurs capacités de décision sont non satisfaits et augmentés par rapport à la population générale. Ces inégalités de santé résultent de nombreux obstacles dans l'accès aux soins et à la prévention, mais aussi dans la prise en charge, et alors que le principe d'égal accès au soin de tous les citoyens est reconnu comme un fondement juridique national. Cette situation constitue une perte de chance pour ces personnes d'autant plus qu'une santé bucco-dentaire dégradée peut avoir, au-delà des conséquences locales, des répercussions sur la santé générale et plus particulièrement sur la qualité de vie et l'intégration sociale. Ces difficultés cumulées quotidiennement conduiraient donc à privilégier des thérapeutiques symptomatiques sans réflexion de l'ensemble des acteurs autour d'une réhabilitation fonctionnelle globale. Pourtant, il est reconnu que la lutte contre les inégalités de santé passe par le développement d'une prise en charge globale de la santé. S'appuyant sur une participation des différents acteurs et notamment des patients aux prises de décision, celle-ci prévoit un décloisonnement entre les domaines relevant du sanitaire, du social et de l'éducatif pour un continuum par priorité. Ce travail, par une recherche qualitative et participative, a pour objectif d'explorer les raisons des limitations de réponse thérapeutique auprès de chaque acteur de la relation de soin - les patients, les aidants et les chirurgiens-dentistes. Une fois celles-ci mieux comprises, les différentes représentations sont confrontées et les tensions éthiques qui s'y dégagent discutées. Puis, des pistes d'évolution de la prise en charge de la santé orale, et au-delà, des évolutions sociétales sont proposées pour espérer à terme réduire les inégalités de santé
In France, under the impulse of the Law of 4 March 2002 on patients' rights and the quality of the health system, deep changes have been undertaken in the care relationship for a more active participation of patients. This imposes a repositioning of each individual involved in the relationship. The law specifies that the involvement of patients in decision-making should be sought even when they present limitations of their decision-making abilities. The affirmation of these rights is consistent with the recognition of patients' decision-making abilities and the development of a shared decision. Nevertheless, when the limits of these abilities are reached, it leads to practical difficulties in the consent of patients and/or legal guardians and caregivers. It is now recognized that the oral health needs of patients with enduring limitations of their decision-making abilities are not satisfied, and are increased compared to those of the general population. These health inequities result from many barriers in access to care and prevention, but also during care, and yet the principle of equal access to care for all citizens is recognized as a national legal principle. This situation constitutes a loss of opportunity for these people - especially as, beyond its local impacts, impaired oral health may have impacts on their overall health and particularly on their quality of life and social integration. These limitations, which accumulate day after day, may lead to symptomatic therapies being favoured without concerted thinking on a global functional rehabilitation. Yet it is recognized that the fight against health inequalities requires the development of comprehensive overall health care. This means that, relying on the participation of the different stakeholders including patients in decision-making, the barriers separating areas concerning health, social and educational care have to be abolished for a continuum by priority. The aim of this work is to explore, by qualitative and participatory research, the reasons for the limitations of the therapeutic response from each member of the care relationship - patients, caregivers and dentists. Once these reasons have been better understood, the different representations are considered face to face and the ethical tensions that emerge are discussed. Then, ways in which the management of oral health can be improved and, beyond this evolution, ways in which society could change are proposed with the ultimate hope of reducing health inequalities

Thesis (DPhil)--Stellenbosch University, 2004
ENGLISH ABSTRACT: Researchers in Social Sciences have generally encountered problems in ensuring data quality when dealing with topics that are regarded as sensitive. This thesis reports on an investigation into the methodology used for research projects around sensitive issues in education in the Limpopo Province of South Africa. Data consists of twelve interviews with individual principals (each interview schedule containing semi-structured question items from ten categories) and a thirty-three item self-report questionnaire survey administered to one hundred and fifty principals drawn from two hundred and seventy two secondary schools over the course of an academic year (2002) and conducted in the Limpopo Province of South Africa .. Results reveal nine major categories of sensitive issues in school management on which principals have difficulty in providing information to researchers: school policy, school financial issues, moral or social relations issues, learner and educator disciplinary issues, working conditions, absenteeism, developmental appraisal, educator unions, and religious matters policy issues. Principals have also reported on the various reasons why they regard each of the aspects as sensitive, thereby making it difficult for them to provide information around. Of these, moral issues were considered the most sensitive. The major reasons given were: confidentiality, intrusion of privacy, fear oflegal sanction, threat to work and violation of the rights of the individual. Analysis of the different sensitive issues also show that certain biographical characteristics - age of the principal and years of experience as principal - are significant mediators in principals' perceptions of sensitive issues in school management. That is to say, these contribute to principals' assessment of their emotional, physical and psychological well-being. Sensitivity is a problem when collecting data for research purposes. It warrants the attention of all those involved in social science research. The findings in this study point to the issues in school management that are highly sensitive to provide information suggesting that data collected would therefore not be of a high quality.
AFRIKAANSE OPSOMMING: Menige navorsers in sosiale wetenskappe het oor die algemeen probleme teëgekom met die versekering van data kwaliteit in sensitiewe onderwerpe. Hierdie tesis raporteer oor 'n ondersoeke in die metodologie gebruik vir navorsing projekte rondom sensitiewe onderwerpe in onderwys in die Limpopo Provinsie in Suid-Afrika. Data bestaan uit twaalf onderhoude met individuele prinsipale (elke onderhoud se skedule bevat se gestruktureerde items van tien katagorieë) en 'n drie-en-dertig item (self-report) vraelys wat onder 150 prinsipale uitgedeel is, waarvan 272 sekondêre skole oor 'n tydperk van 'n akademiese jaar (2002) gebruik was in die Limpopo Provinsie van Suid Afrika. Die resultate toon nege hoof onderwerpe in skoolbestuur waar prinsipale dit moeilik vind om informasie aan navorsers te verskaf: skoolbeleid, finansiële onderwerpe, moraliteite of sosiale verhoudinge, leerder en onderwyser dissiplinêre onderwerpe, werkverhoudinge, afwesigheid, personeelontwikkeling, onderwysunies, en godsdienstige sake. Prinsipale raporteer om verskeie redes waarom hulle elk van die aspekte as sensitief beskou. Onder hierdie is morele sake as die sensitiefste geklasifiseer. Die hoofredes hiervoor is gegee as vertroulikheid, inbreuk van privaatheid, vrees vir wettige sanksies, dreigemente in die werk en skending van die regte van die indiwidueel. Analiese van die verskillende sensitiewe sake toon aan dat verskeie biografiese eienskappe - ouderdom van die prinsipaal - is oorsake in die prinsipaal se persepties in die prinsipaal se sake onder die skool se bestuur. Dit se met ander woorde bogenoemde dra by tot die prinsipaal se emosionele en fisiese geestelike toestand. Sensitifiteit is 'n probleem wanneer data vir navorsing doeleindes verkry word. Dit regverdig die aandag van die mense betrokke in sosiale wetenskap navorsing. Die bevinding in hierdie studie verwys na sake in skoolbestuur wat hoogssensitief is om informasie te voorsien, en stel voor dat die data verkry is nie van hoë standard is nie.

Acompanha: Plágio: não copie essa ideia
O presente estudo teve como objetivo verificar se as instituições de ensino superior (IES) desenvolvem políticas e ações para combater o plágio nos trabalhos acadêmicos, permitindo a criação de publicações relevantes. Para isso, definiu-se a seguinte hipótese básica: As políticas adotadas no combate ao plágio e as ações desenvolvidas pelas IES não o eliminam, contudo, gerando publicações pouco relevantes e com reduzido índice de citações. Como variáveis dependentes da hipótese básica, tem-se: publicações relevantes e quantidade de citações. As variáveis independentes da hipótese básica envolvem as políticas e as ações institucionais. Em se tratando dos objetivos, o estudo realizou uma pesquisa exploratória, efetuando uma análise predominantemente qualitativa do problema. Com relação aos procedimentos técnicos, adotou-se um levantamento, no qual o corpus documental foi constituído de 330 documentos (dissertações e teses) apresentados, no período de 2010 a 2012, junto aos cursos de Pós-Graduação (Mestrado, Mestrado Profissional e Doutorado) na área de Ensino, ofertados em 45 instituições de ensino superior. A coleta de dados foi efetuada utilizando a ferramenta de busca Google, sendo analisados 50 trechos (compostos de sentenças de até seis palavras), retirados das seções: introdução - cinco trechos; referencial teórico - 30 trechos; metodologia - cinco trechos; e, resultados e discussão - 10 trechos. A análise dos dados foi efetuada por meio de estatística descritiva. Constatou-se que a hipótese básica foi confirmada, pois as ações institucionais implementadas não eliminam os problemas decorrentes de plágio, em virtude da proporção de plágio obtido (1.942 trechos com plágio - acima de 11,0% dos trechos analisados). Adicionalmente, a divulgação dos resultados de algumas pesquisas foi realizada em periódicos sem indexação no Qualis da Capes (33,1%). Confirma-se que, apesar das recomendações encaminhadas pela Capes em 2011, poucas medidas foram implementadas nas IES para combater o plágio acadêmico. Conclui-se que, se as IES implementassem normativos internos e, periodicamente, orientassem a comunidade, efetuassem uma análise mais rigorosa dos documentos encaminhados, penalizassem severamente os responsáveis e intensificassem ações e medidas para o combate sistemático da desonestidade científica, o volume de plágio seria mitigado.
This study aimed at verifying whether Higher Education Institutions (IES, Brazilian Portuguese abbreviation) develop policies and actions to prevent plagiarism in academic works enabling the creation of relevant publications. To achieve such aim, the following basic hypothesis was defined: Policies adopted to prevent plagiarism and actions developed by IES do not eliminate it, therefore, generate publications of little relevance and reduced reference indicators. The variables dependent on the basic hypothesis were relevant publications and number of appearance in references. The basic hypothesis independent variables involved policies and institutional actions. Regarding the objectives, the study was developed as exploratory research, carrying out a predominantly qualitative analysis of the problem. In relation to technical procedures, a survey was carried out, in which the corpus comprised 330 documents (dissertations and thesis) presented from 2010 to 2012, from the Graduate Courses (Masters, Professional Masters and PhD programs) in the teaching area offered by 45 higher education institutions. Data was collected using the Google search tool, and 50 excerpts were analyzed (containing sentences of up to six words) from the sections: introduction, five excerpts; theoretical background, 30 excerpts; methodology, 5 excerpts; and results and discussion, 10 excerpts. The data was analyzed by employing descriptive statistics. The basic hypothesis was confirmed, since the institutional actions implemented did not eliminate the problems resulting from plagiarism as confirmed by the proportion of plagiarism found (1,924 excerpts with plagiarism – over 11.0% of the excerpts analyzed). In addition, the report of some research results was published in journals which are not indexed in the Qualis system by Capes (33.1%). Despite recommendations made by Capes in 2011, very few measures were implemented by the IES to prevent academic plagiarism. The results led to the conclusion that the IES should implement internal norms and instruct the community periodically. They should also carry out a stricter analysis of the documents sent, punishing severely those responsible for plagiarism and intensifying actions and measures to systematically fight scientific dishonesty. Such measures might mitigate the plagiarism volume.

The issue leading to this study is the purported lack of short-term consideration of climate change materiality on investment portfolios. The on-going research argument deliberates the roles and motives of institutional investors in considering environmental, social and governance (ESG) issues, including climate change, in investment decisions. The purpose of this study was therefore to explore the underlying motives of South African institutional investors for the incorporation of climate change in their short-term investment decision-making. The study was conducted through a qualitative, exploratory enquiry, whereby seven semi-structured interviews were conducted with institutions in the South African asset management industry. Participants’ views were analysed and indicated the following themes: The state of climate change awareness and the incorporation of ESG and climate change in investment decision-making; tactical valuation of assets using ESG/climate change screening and methods of monitoring ESG/climate change practices; and motives, incentives and constraints of responsible investment (RI) practices to incorporate climate change. These are supported by business conditions that enable consideration of climate change in investment analysis. Industry practitioners can lead by implementing RI to include climate change in order to attract potential clients to their portfolios.
Dissertation (MBA)--University of Pretoria, 2014.
zkgibs2015
Gordon Institute of Business Science (GIBS)
Unrestricted

The concept of ethical leadership has been intrinsically evident for over a century, but studies have only recently been documented that have attempted to observe and analyse the phenomenon. The concept has become more popular in the information age as companies start to employ additional knowledge workers who search for enhanced meaning in their respective occupations. The gold mining industry in Africa has improved substantially as conflicts have subsided slightly. As such, industry leaders need demonstrate better skills of engagement when managing legacy issues. While the shareholders’ interest remain high on leaders’ radar, leaders need effectively manage operations to address issues that might not be immediately evident in balance sheet, but that nonetheless have an effect on economic sustainability of the gold mining entities. Given that the concept of ethical leadership is known, there are still scandals that have recently been documented that involve leaders who have made decisions that led to demise of entities for which they were responsible. The purpose of this research was to explore ethical leadership and its association with sustainable economic performance within gold mining industries. The study aimed to analyse companies that have an African footprint, while originating from South Africa. A qualitative research method was employed following a phenomological approach to obtain insights of how African leaders have operated gold mines in Africa and have managed operations that performed very well. The aim was to crystallise and distil the findings for the use by future leaders so that they could avoid future scandals and not destroy shareholder value and disappoint stakeholders. The personal and leadership traits of ethical leaders were reviewed with the aim of determining the mental development that would be required, as well as which aspects would require consideration when determining the effects on economic sustainability. The African leaders interviewed were familiar with the concept of ethical leadership, economic sustainability and implicitly understood the association of ethical leadership with economic sustainability. The concept of ethical leadership generated two new terms, as described by the interviewees that could be infused to the definition to cater for an African context. The concept of “Ubuntu” and “displaying appropriate conduct” were the two terms that were derived from the leaders. The concept of greed was identified as a strong impediment towards economic sustainability. The gap of iii displaying that ethical leadership has a favourable outcome towards economic sustainability was demonstrated. By attempting to close this gap, it could help curb unemployment rates, as decisions would be made differently. From the propositions made, which were all proven successfully, there remains opportunities for future quantitative studies to be undertaken to add insight to the existing body of knowledge.
Dissertation (MBA)--University of Pretoria, 2014.
zkgibs2015
Gordon Institute of Business Science (GIBS)
Unrestricted

Moral degeneration is a universal phenomenon which negatively affects many societies, also the South African society. The South African society, with specific reference to family life and school life is experiencing a serious moral breakdown. The media is constantly reporting this breakdown, which is evident in social ills such as a general lack of discipline and self-discipline, violence, poverty, unemployment, a high crime rate, promiscuity, school vandalism and corruption. The literature study indicates that these moral ills have negative implications for society and for education, and that they are mainly the result of a lack of a positive value system in society as a whole. This study aims at determining the role of “values education” in addressing the problem of moral degeneration. The conceptual framework upon which the study is based is known as social reconstructivism. It is a philosophical theory which proposes that society should be transformed by addressing the social problems which it experiences. An ethnographic research design and grounded theory were employed. Questionnaires were distributed to 200 learners from four public schools in order to determine their value systems. Trends that were found after the analysis of the questionnaires were further explored by means of in-depth interviews with some of these learners. The main data collecting instrument was the semi-structured interview (individual and focus group interviews). The participants were parents, principals, teachers, community leaders and learners, who are all important stakeholders in education. Data were collected in the Eastern Cape Province over a period of five months. The empirical research findings were compared to literature findings. Both these findings revealed that, to an alarming extent, the moral code in South African society is on the decline. Currently education in the home, school and community does not convey a positive value system to learners - thus perpetuating the problem of a society in decline. In the light of the findings, guidelines have been developed in order to improve school practices and to suggest possible solutions to the social problems that endanger the future prosperity of the South African society.
Education
D. Ed. (Socio-Education)

A rise in the number of high-profile cases of management failure and leadership misconduct increased the awareness of one of the core challenges of management, namely to lead responsibly and with integrity. The environment which senior managers create and within which middle managers need to function seems to have a direct bearing on the moral behaviour and integrity of the middle manager. The aim of this research was therefore to gain a better understanding of how middle managers view the impact of senior managers on their experience of integrity. There is an increasing need in organisations for responsible leadership, leadership with integrity and leadership towards developing the integrity of the follower. This study was conducted within the interpretive research paradigm. Sampling was directed by criterion-based guidelines, focusing on current middle managers from different industries in the private sector. In-depth interviews were conducted and the data was analysed using a grounded theory method. The main findings indicated that senior managers should engage in two debates with middle managers in the organisation. Firstly, integrity is not something that is demonstrated but rather means that leaders can be differentiated from other leaders when they lead with integrity. Secondly, defining integrity and linking it to personal standards and values, as well as aligning these standards and values to the organisational strategy, vision and mission, are important. The findings of this study can assist senior managers with decreasing unethical behaviour and increasing integrity in the organisation. The research provided a basic framework that can assist in creating a positive context for the viii relationship between senior managers and middle managers within which to function, in order to decrease unethical employee activity and increase integrity.
Industrial and Organisational Psychology
M.A. (Industrial and Organisational Psychology)

The objective of this research is to explore the perceptions of rural Samburu women in Kenya with regard to HIV/AIDS in terms of their knowledge, attitudes, beliefs and opinions; to examine several HIV/AIDS awareness channels that have been used to communicate HIV/AIDS messages to the Samburu women to determine how effective they have been in effecting behaviour change.This study is an example of how a communication audit can be carried out on a certain sub-group of a community in order to suggest a tailor-made communication strategy in an effort to stop the spread of HIV among the Samburu women. This study is also a confirmation that the prevention strategies that have been in use to communicate to Samburu women have been inadequate and need to be revised to address the knowledge gaps that exist. The study is located within a relatively new field of health communication where health messages are evaluated to determine whether target audiences are receiving these messages and changing their behaviour in order to live healthier lives. This area of study is also supported by behaviour change models such as the Health Belief Model (HBM), the Social Cognitive Theory (SCT), Diffusion of Innovations Theory, Cultural Models, and Strategic Communication. A qualitative study was undertaken in 2008 by way of ten focus group discussions with Samburu women and eleven in-depth interviews with professionals who ran HIV/AIDS programmes in the Samburu district. The focus groups were constituted by means of convenience sampling whereas the snowball strategy was utilised for the selection of participants for in-depth interviews. The questioning route for the focus group discussions for the Samburu women was guided by five themes namely: knowledge levels of the women; cultural aspects that made the women vulnerable to HIV/AIDS; beliefs about HIV/AIDS; attitudes towards HIV/AIDS; and the different channels of communication used to convey HIV/AIDS messages. The interview schedule for the professionals consisted of open-ended questions and face-to-face interviews were carried out using this schedule.
Communication Sciences
D. Litt. et Phil. (Communication)

Educators play an essential role within the education system as role models. Many educators, in addition to being affected by learners living with HIV and AIDS, are themselves living with HIV and struggle to cope. SMTs have to play a role in the provision of psychosocial services. The purpose of this study was to explore the types of psychosocial services provided to ELWHIV by their SMTs in order to gain insight and understanding and to make suggestions on how psychosocial services can be improved. A qualitative study was undertaken in 2008. Fifteen interviews were conducted with ELWHIV and members of SMTs at four primary schools in Bela-Bela, Limpopo Province. The findings reveal that SMTs are failing to implement government policies and are not providing adequate support for ELWHIV. None of the participating schools had a functional AIDS policy. Support structures were found to be inadequate and ineffective. Disclosure was identified as one of the major obstacles to the provision of effective services.
Sociology
M.A. (Social Behaviour Studies in HIV/AIDS)

Educators play an essential role within the education system as role models. Many educators, in addition to being affected by learners living with HIV and AIDS, are themselves living with HIV and struggle to cope. SMTs have to play a role in the provision of psychosocial services. The purpose of this study was to explore the types of psychosocial services provided to ELWHIV by their SMTs in order to gain insight and understanding and to make suggestions on how psychosocial services can be improved. A qualitative study was undertaken in 2008. Fifteen interviews were conducted with ELWHIV and members of SMTs at four primary schools in Bela-Bela, Limpopo Province. The findings reveal that SMTs are failing to implement government policies and are not providing adequate support for ELWHIV. None of the participating schools had a functional AIDS policy. Support structures were found to be inadequate and ineffective. Disclosure was identified as one of the major obstacles to the provision of effective services.
Sociology
M.A. (Social Behaviour Studies in HIV/AIDS)

There has been a vast amount of academic research done in the field of employee satisfaction and the resulting impact of this dimension on employee innovation output and institutional entrepreneurship. However, there is a dearth of literature on how to retain employees and their tacit knowledge in firms. This study, therefore, seeks to identify Institutional Entrepreneurship (IE) as a key pivot point of strategy, that firms can exploit when endeavouring to actively improve employee retention levels. In this interpretation, the researcher seeks to make a distinction between generally entrepreneurial companies and employee driven innovation or intrapreneurship within companies. There appears to be an appealing synergy that the fostering of institutional entrepreneurship initiatives can offer business strategists. By incorporating plans for IE into core strategy, they could potentially create sustainable competitive advantage from new business innovations. What this report aims to show is that businesses that make a concerted effort at fostering IE can also protect their current competitive advantage contained in the tacit knowledge of their workforce. This all happens in a climate that is better equipped to deliver organic growth. The main objective of the research is to establish that there is a relationship between the propensity for an employee to remain in a firm in the near future and their perceptions of whether or how strongly their firm supports IE. A secondary objective is to explore whether this association is stronger among young employees, specifically those who are from the cohort that has been defined as ‘the millennials’, with an assumption that this relationship, therefore, will become more important in future. This research report has set out to prove that by orchestrating strategies to improve institutional entrepreneurship, firms can enjoy the benefits of increased employee retention in conjunction with increased organic growth.
Dissertation (MBA)--University of Pretoria, 2014.
lmgibs2015
Gordon Institute of Business Science (GIBS)
Unrestricted

This study is focused on improving understanding around moral decision-making as a critical component of managerial decision-making, considering that many decisions involve a basic conflict between selfishness versus fairness (Forgas & Tan, 2013). Changing factors in the business environment is influencing managerial decision-making, making this ‘the perfect time’ for increased research into managerial decision-making (Milkman, Chugh, & Bazerman, 2009). As this working environment within which managerial decisions are being made is changing, understanding decision-making is increasingly becoming fundamental to the study of management in organisations (Taggart et al., 1985). Within such a changing economy, the key factor is the increased reliance on intellectual abilities over either physical effort, or natural resources. Yet, ‘where there is effective management, that is, application of knowledge, we can always obtain the other resources’ (Drucker, 1993). When then considering such management actions and specifically the role of employees within such an economic structure, the primary deliverable of a knowledge worker is a good decision (Milkman et al., 2009). The importance of a ‘good decision’ is therefore paramount in the current knowledge economy, and those industries which depend heavily on the ‘application of knowledge’. In exploring this topic, this research study explores predominantly four fields of study. The first is decision-making in the most fundamental sense, by understanding the different systems whereby decision-making occurs. This is contextualised by focussing on managerial decision-making and highlighting a particular instance of moral decision-making. The premise is that although moral decision-making is a subset of managerial decision-making, the human processes involved in the decision making is universal and findings should accordingly be transferrable to the whole discipline of decision-making. In expanding the area of moral decision-making the notion of fairness, norm violations and negative reciprocity is explored. This provides a context within which to study moral decision-making. Concepts such as the universal acceptance of fairness are discussed, as well as an equally universal desire to punish norm violations through negative reciprocity. Existing research on this disconnect between the intent to punish and the physical execution of this intent is explored with the conclusion that personality type offers some indication, but that additional research around this topic is required. It is in Moral decision-making: Personality Type as influence on Moral Intuitionism Len Marais 13403797 Page iii addressing this weakness in current academic research that this research study aims to make a contribution. The approach to this research is to do personality type assessments of voluntary subjects where after a moral decision is posed to them and their responses captured. By studying the relationship between these personality types, and traits, as well as the decision made inferences can be drawn on the extent to which personality type is an influence on moral decision-making. Finally the environment of management consulting is introduced. This working environment exhibits many of the characteristics which define the knowledge economy. The study concludes by answering the research question, ‘Is Personality Type, or its decomposed traits, an accurate predictor of moral decision-making’?, in the positive: Yes, there is statistically significant proof that a strong, linear relationship exists between moral decision-making, as defined by the decision to enact revenge, and the Sensing personality trait, as measured by the Jung Typology Test™.
Dissertation (MBA)--University of Pretoria, 2014.
lmgibs2015
Gordon Institute of Business Science (GIBS)
Unrestricted

Research in resource-limited, multi-cultural contexts raises complex ethical concerns. The term ‘over-researched community’ (ORC) has increasingly been raised as an ethical concern and potential barrier to community participation in research. However, the term lacks conceptual clarity and is omitted from established ethical guidelines and academic literature. In light of the concern being raised in relation to vitally needed HIV prevention research in developing countries, a critical exploration of the meaning of the notion was undertaken. Guided by Emanuel et al.’s (2004) eight principles for ethically sound research in developing countries, this study explored the relevance and meaning of the terms ‘over-research’ and ‘over-researched community’ through a thorough review of ethical guidance documents and analysis of key stakeholder perspectives. In-depth interviews were conducted with 23 resource persons from research ethics committees, community advisory boards and research organisations in South Africa. Interviews were transcribed and translated where necessary and data were analysed thematically. ‘Over-research’ was found to reflect a conglomeration of ethical concerns, often being used as a proxy for existing ethical concepts. ‘Over-research’ might be interpreted to mean exploitation. However, exploitation itself could mean a range of different things. ‘Over-research’ seemed fundamentally linked to disparate positions and perspectives between different stakeholders in the research interaction, arising from challenges in inter-stakeholder relationships. Analysis of the data suggests that using the term may lead to an obscured understanding of real or perceived ethical transgressions, making it difficult to intervene to address the underlying concerns. It is recommended that the term not be used in research ethics discourse. However, because it represents other legitimate concerns, it should not be dismissed without careful exploration.
Thesis (M.A.)-University of KwaZulu-Natal, Pietermaritzburg, 2010.

In the history of public health vaccines have proven to be among the most effective disease prevention tools. It is clear that in the fight against HIV that new and powerful preventive technology such as a vaccine is badly needed. Ethically, however the processes of developing a vaccine against HIV have been distinctly different from that of any previous pharmaceutical products. HIV vaccine trials can be ethically complex for a number of reasons. In 2004 the HIV I AIDS Vaccine Ethics Group undertook a research initiative that aimed to collect data from various South African stake holders of HIV vaccine trials to ascertain what they perceived as the ethical challenges related to HIV vaccine trials. A quantitative content analysis on the data from 31 semistructured interviews revealed that the ethical issue listed spontaneously by most of the respondents was that of informed consent. Further probing and discussion on informed consent identified a number of sub issues which the respondents thought would pose important challenges to HIV vaccine trials in the South African context. This study undertook to do a more in-depth qualitative analysis of the data to ascertain whether the challenges and concerns the stakeholders have are consistent with or different to those already identified in the literature and ethical guidelines on informed consent in medical research. What variables may be impacting on the position stakeholders take was also of interest. Results indicated that many concerns relating to the substantive and procedural elements of informed consent were consistent with those debated in the literature. These issues related to first person consent, the voluntariness of participants' consent, practicing cultural sensitivity, dealing with language issues, promoting and assessing understanding of material disclosed, issues around the vulnerability of .. participants, children and adolescents' capacity to consent and the role of the media. More specific to the South African context, stakeholders were concerned about the legal framework under which the trials take place, the general lack of education and training about HIV vaccine trials, a lack of communication and coordination between stakeholder groups, and the historical influences of apartheid on black South African participants' capacity to consent. The main variables that appeared to impact on the position stakeholders took related to the role the stakeholders play within the trials, the philosophical position underpinning their ethical viewpoints, stakeholders' understanding of vulnerability and capacity to consent, and how they view the universality or relativity of ethical issues.
Thesis (M.A.)-University of KwaZulu-Natal, Pietermaritzburg, 2008.

This study aimed to profile social science researchers' experiences of ethically challenging incidents and ethics review and to consider these experiences in terms of the two institutions from which participants were selected. Data was gathered by means of an email survey sent to social science researchers working in both a university and a research organisation. The findings reveal that ethically challenging incidents involving privacy, confidentiality and anonymity, harm, beneficence, poor science, role conflict, informed consent, recruitment of participants and publication were encountered frequently by social science researchers. While respondents reported both positive and negative experiences of ethics review, researchers at the university reported significantly more ethically challenging incidents and negative experiences of ethics review than did researchers from the research organisation.
Thesis (M.Soc.Sc.)-University of KwaZulu-Natal, Pietermaritzburg, 2007.

M.Cur. (Psychiatric nursing)
Withdrawal of life-support treatment is a well-known concept which has been studied often, especially from a medical point of view. The life-world of families involved in decision making concerning withdrawal of life-support of a family member is, however, an unknown field. This leads to the reaction and behavior of families to this traumatic process often begin mistakenly described by professionals as "difficult" , "passive" or "incapable of decision making". The patient and his/her family have, to a large extent, the right of self-determination and the right to take part in decision making. In the intensive care unit it often happens, according to Burger (1996:1-175), that the patient is not able to participate actively in the decision making process because of his/her illness and/or medication. The family then steps forward as decision maker and as the patient's "mouthpiece". The situation arises where the family, who must make the decision about withdrawal of life support treatment, are exposed to utterly moral conflict. Burger (1996:163) found that a family that experiences such trauma is not capable of focusing and assimilating knowledge. Members of the family have a great need for support and the intensive care nurse cannot provide that support for different reasons. One of the reasons being limited time and the other not being able to build therapeutic relationships. Because of the above mentioned, the overall objective of this study is to analyse the phenomenon of families who are involved in decision making concerning withdrawal of life-support treatment of a family member. Guidelines have been formulated according to the analysis of this phenomenon for the psychiatric nurse specialist to mobilise resources for the family to promote, maintain and restore their mental health as integral part of health. The research model of Botes (1989:1-283) is used in this study. The study is undertaken from the Judeo-Christian perspective of Nursing for the Whole Person Theory (Oral Roberts University, Anna Vaughn School of Nursing, 1990:136-142). A phenomenon analysis was undertaken in two phases. During the first phase, secondary analysis of primary data was done on the family used in Burger (1996:1-175) and was followed up by phenomenological interviews with families in the same circumstances and according to the same criteria that Burger (1996:1-175) used in her study. Data were analysed in collaboration with an independent coder. The family used for member checking in this study was also used in data control. A literature control was conducted as part of data control. On the ground of the repetitive themes from the secondary analysis and phenomenological interviews with the family involved in member checking, guidelines were formulated in phase two, based on all the data obtained from phase one, for psychiatric nursing specialists to mobilise resources for families in this situation. The proposed guidelines leave the door open for follow-up research where a model for assistance can be formulated for psychiatric nursing specialists to assist these families, since intensive care personnel are either too involved in the process, or do not always know how to build therapeutic relationships and usually also do not have enough time to attend to the patient's family.

Dissertation in compliance with the requirements for the Master's Degree in Technology: Journalism, Durban University of Technology, 2013.
Ethical behaviour by investigators is the cornerstone of scientific research. Recognizing, declaring and avoiding a conflict of interest are key responsibilities for biomedical researchers, particularly since commercial enterprises, such as pharmaceutical companies, have become major funding sources of research. Proactive disclosure of researchers' financial relationships is now a requirement for publication in most scientific journals. The question that arises is whether this same increased scrutiny of financial disclosure and potential for conflict of interest has extended to the mainstream press in Canada. A content analysis of biomedical research articles that appeared in Canadian daily newspapers from 2001 to 2008 showed that 82 per cent of the articles failed to identify the financial connection that existed between the researcher(s) and the commercial funder, and nearly half of the articles did not even identify the commercial funding source of the research. A text analysis showed that 94 per cent of the articles were positive about the drug/device cited by the research, and positive, optimistic words such as “breakthrough”, “significant”, “hope” and “promising” were often used in the news articles. Reporters frequently frame biomedical research articles using a battle-like template that describes a fight between good and evil. Another common approach was to frame the article as a message of hope for the future. A genre analysis showed that the genre of medical research news articles published in newspapers is highly dissimilar to the genre of medical research articles published in scientific journals. It is likely these two genres have been constructed to appeal to very different target audiences. The study results show overwhelmingly that readers are not provided with key information about potential financial conflicts of interest involving the researchers and the commercial sources of funding for the research. Such lack of transparency thwarts the reader’s ability to reach informed conclusions about whether or not the research has been either explicitly or implicitly influenced by the researcher’s potential conflict.

AIDS has had a negative impact on developing countries. Because most developing countries cannot afford the new antiretroviral drug therapies, it has been suggested that preventive vaccines might reduce the spread of the HIV/AIDS epidemic (Bloom, 1998). The clinical trials of AIDS vaccines do, however, present with complex ethical issues such as informed consent. Informed consent is primarily grounded on the Western principle of respect for individuals as autonomous agents. This may be at variance, however, with African societies' emphasis on the social embeddedness of the individual. The current study forms part of the HIVNET vaccine trials to be conducted in Hlabisa, in Northern Zululand, under the auspices of the South African Medical Research Council. The main aim of the study was to explore key informants' cultural conceptions of research and informed consent in order to facilitate community consultation and cultural sensitivity. Maximum variation sampling was used to select twenty-three key informants, who are in leadership positions within Hlabisa. An interview guide was used to facilitate narrative disclosure of cultural conceptions of research and informed consent. Perceptions of research, conceptions of the informed consent process, and projected motivations for why individuals agree to participate in studies were explored during interviews. Results suggest that members of the Hlabisa community have a limited understanding of the Western research process. Community education about research is therefore warranted. Informants indicated that community members would value the establishment of a relationship characterised by mutual respect for cultural differences between researchers and participants. This was perceived as likely to facilitate shared decision-making, and the reduction of the power differentials that exist between researchers and participants. While the involvement of key community leaders and family members was recommended by most informants, a few informants felt that participants could also make individual decisions about participation. The theoretical implications of the study are considered last.
Thesis (M.A.)-University of Natal, Pietermaritzburg, 1999.