Bibliografias temáticas / Patients and family relationships

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  2. Teses / dissertações
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Literatura científica selecionada sobre o tema "Patients and family relationships"

Autor: Grafiati
Publicado: 29 de julho de 2024
Última modificação: 30 de julho de 2024

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Artigos de revistas sobre o assunto "Patients and family relationships"

1

Erker, Craig, Ke Yan, Liyun Zhang, Kristin Bingen e Julie A. Panepinto. "Impact of Cancer on Family Relationships". Blood 128, n.º 22 (2 de dezembro de 2016): 687. http://dx.doi.org/10.1182/blood.v128.22.687.687.

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Abstract Introduction: Family relationships are the subjective experience of feeling involved, important and accepted in one's family. A new patient-reported outcome (PRO) domain has been developed as part of the NIH pediatric PROMIS (patient reported outcome measurement information system) which measures for the first time the child's perspective of family relationships. Previous research has demonstrated the impact of cancer on the family from the parent's perspective. This project sought to determine the impact of cancer and cancer therapy on family relationships in children with cancer and their siblings, both on and off therapy. Our primary hypotheses were that 1) Siblings have worse family relationships compared to their brother or sister with cancer and 2) Children receiving active cancer therapy have worse family relationships compared to childhood cancer survivors. Our secondary hypothesis was that children with poor family relationships would have impairment in depression, anxiety, and social relationship domains. Methods: We conducted a cross sectional study of children with cancer and their siblings aged 8-17 years old. The children belonged to one of four groups: 1) On-therapy patients (children receiving cancer directed therapy), 2) Siblings of on-therapy patients, 3) Off-therapy patients (children who completed cancer therapy at least 6 months ago), 4) Siblings of off-therapy patients. All subjects completed the self-reported PROMIS family relationships domain and PROMIS domains of depression, anxiety, and social relationships. The family relationships domain asks questions such as: "my family and I have fun together" and "my parents listen to me". PROMIS is a validated PRO tool that uses a mean T-score of 50 and standard deviation of 10. Recently, the minimally important difference (MID) for PROMIS was estimated to be 2-3 points on the T-score scale. The Mann-Whitney test was used to test the difference between therapy groups while the Wilcoxon signed-rank test was used to test the difference between patients and siblings. Social relationships, anxiety and depression PROMIS domains were correlated to the family relationships domain using Pearson's correlations. P-values <0.05 were considered as significant. Results: One-hundred and ninety children completed the assessments. Forty-eight were on-therapy patients and 62 were off-therapy patients. Paired data included 25 pairs of on-therapy patients and siblings and 31 pairs of off-therapy patients and siblings. The median and range of age was 12[8-17] years for patients and 13[8-17] for siblings. Fifty-four percent of the children enrolled were male and 65% of patients had leukemia or lymphoma. Off-therapy siblings had lower family relationships T-score than off-therapy patients (p=0.004, median (IQR) of 44.1 (41.1, 48.6) for siblings vs. 47.4 (43.1, 53.2) for patients). Off-therapy patients had higher family relationships T-scores than on-therapy patients (p=0.042, median (IQR) of 48.6 (43.1, 53.2) for off-therapy patients vs. 46.3 (42.1, 48.6) for on-therapy patients). No significant difference was found in family relationships T-scores between on-therapy patients vs. their siblings (p=0.22) or between the two groups of siblings (p=0.58). The correlations between family relationships T-scores and depression or anxiety scores were significantly different from zero for off-therapy patients and their siblings (p<0.001 for patients and p<0.005 for siblings). Impaired family relationships were related to increased depression and anxiety. Also, the correlation between family relationships T-scores and social relationships scores were significantly different from zero for off-therapy patients (p=0.031). Worse family relationships were related to worse social relationships. Conclusion: Off-therapy patients report better family relationships than their siblings and on-therapy patients. Also worse family relationships scores often correlate with increased levels of anxiety and depression. This study provides important information for pediatric oncology staff to help identify at-risk families in need of support. Disclosures No relevant conflicts of interest to declare.
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Frey, J. J. "In This Issue: Relationships Count for Patients and Doctors Alike". Annals of Family Medicine 8, n.º 2 (1 de março de 2010): 98–99. http://dx.doi.org/10.1370/afm.1098.

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Nissen, Kathrine G., Kelly Trevino, Theis Lange e Holly G. Prigerson. "Family Relationships and Psychosocial Dysfunction Among Family Caregivers of Patients With Advanced Cancer". Journal of Pain and Symptom Management 52, n.º 6 (dezembro de 2016): 841–49. http://dx.doi.org/10.1016/j.jpainsymman.2016.07.006.

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Korabelnik, P. Yu,, e E. B. Karpova. "Features of the Subjective Assessment of Intrafamilial Relationships in Patients with Psoriasis". Клиническая и специальная психология 11, n.º 1 (2022): 1–22. http://dx.doi.org/10.17759/cpse.2022110101.

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Psoriasis is a common polyetiological disease that affects significant elements of the patient's personality relationship system, including his intrafamily relationships. The hypothesis was tested about the negative impact of subjective experiences associated with psoriatic disease on the perception of the family environment. The influence of several factors (gender, duration and severity of the disease) on the subjective assessment of patients with psoriasis of their family environment was analyzed. In total, 99 individuals took part in the study: 66 subjects suffering from various forms of psoriasis (30 men and 36 women; age: 38±17.68 y.o., disease duration: 13±7.78 years). 40 subjects had an average severity of the disease according to the PASI index. Comparison group consisted of 33 patients (15 men and 18 women; age: 41±14.56 y.o.) with pathology of the musculoskeletal system (disease duration: 12±9.38 years). The following methods were used: semi-structured interview, Family Environment Scale adapted by S.Yu. Kupriyanov (1985), Uncompleted sentences (Joseph M. Sacks, 1950). The subjective experience of psoriatic disease does not have a strong negative impact on the perception of the family environment. At the same time, the influence of gender and duration of the disease on the subjective assessment of their family microclimate by patients with psoriasis was noted. There is a peculiarity of the family environment of patients with psoriasis in comparison with patients with pathology of the musculoskeletal system: patients with psoriasis more often note that in their families it is allowed to openly act and express their feelings, and independence in decision-making is encouraged; the family microclimate of patients with psoriasis is less characterized by the hierarchy of family organization, the rigidity of family rules, and control by family members of each other. These studies can help improve the effectiveness of psychological work with psoriatic patients.
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Chesla, Catherine, Ida Martinson e Marilou Muwaswes. "Continuities and Discontinuities in Family Members' Relationships with Alzheimer's Patients". Family Relations 43, n.º 1 (janeiro de 1994): 3. http://dx.doi.org/10.2307/585135.

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Lee, Joyce, e Kirsten Bell. "The Impact of Cancer on Family Relationships Among Chinese Patients". Journal of Transcultural Nursing 22, n.º 3 (2 de maio de 2011): 225–34. http://dx.doi.org/10.1177/1043659611405531.

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van Walsum, Kimberly L., David M. Lawson e Rachel Bramson. "Physicians' Intergenerational Family Relationships and Patients' Perceptions of Working Alliance." Families, Systems, & Health 22, n.º 4 (2004): 457–73. http://dx.doi.org/10.1037/1091-7527.22.4.457.

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Mitnick, Sheryl, Cathy Leffler e Virginia L. Hood. "Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships". Journal of General Internal Medicine 25, n.º 3 (9 de janeiro de 2010): 255–60. http://dx.doi.org/10.1007/s11606-009-1206-3.

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Mitnick, Sheryl. "Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships". Journal of General Internal Medicine 25, n.º 6 (30 de março de 2010): 488. http://dx.doi.org/10.1007/s11606-010-1315-z.

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Cohen, Andrew B., Mark Trentalange e Terri Fried. "Patients With Next-of-Kin Relationships Outside the Nuclear Family". JAMA 313, n.º 13 (7 de abril de 2015): 1369. http://dx.doi.org/10.1001/jama.2015.2409.

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Teses / dissertações sobre o assunto "Patients and family relationships"

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Tumelo, Sylvia Mmamoseka 1953. "COMPLIANCE AND FAMILY INVOLVEMENT WITH TUBERCULOSIS PATIENTS IN BOTSWANA". Thesis, The University of Arizona, 1986. http://hdl.handle.net/10150/275566.

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Ip, Lai-yin Frances. "Social support systems and coping: family members of terminal cancer patients". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1985. http://hub.hku.hk/bib/B29648191.

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Chan, Chun-wai Raymond. "Bereavement of spouses of cancer patients". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2000. http://hub.hku.hk/bib/B29726694.

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Davidson, Melissa J. "Shared experiences : a qualitative study of the impact of a diagnosis of terminal illness on family functioning". Thesis, McGill University, 2007. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=112611.

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The purpose of this qualitative research is to provide an in-depth exploration of the impact that a diagnosis of a terminal illness has on family functioning. The goal is to gain insight into adult children's personal experience when a parent is diagnosed with a terminal form of cancer. This study explores how families respond, adapt and cope when this specific family member is diagnosed with a terminal illness. It also explores any significant changes in relationships within the family and any shifts in the roles of the members and how they adjusted to such shifts.
The study is informed by a phenomenological paradigm and used an explorative, qualitative design, which included semi-structured interviews. Participant text and "found poetry" is used in order to present a more accurate account of the participants' experiences. Found poetry provides an opportunity to hear the participant's voices by taking direct quotes from their transcripts and forming them into a poem. Themes of denial, anger, helplessness, hope and anticipatory grief/mourning are portrayed in the findings of this study. The difficult emotional dilemmas and tensions that people have to work through when faced with a family member dying are discussed. The realization of the loss of future relationships will be identified as one of the greatest impacts of the illness. This study shows the lack of professional supports and resources that are available for each participant's family in being faced with the diagnosis of a terminal illness, and will address a needed consideration for social work practice.
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Chung, Yin-kwan Carol. "Stress, appraisal, coping and perceived social support as predictors of mental health outcomes of spouse-caregivers of persons withdementia". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1998. http://hub.hku.hk/bib/B29697888.

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Veach, Theresa A. "Family adaptation to medical illness inventory (FAMILLI) : the development of a measure for second order patients". Virtual Press, 1999. http://liblink.bsu.edu/uhtbin/catkey/1180776.

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Although there are many instruments available to assess patient adaptation to cancer, there are few instruments which can be used to assess family members of cancer patients' adaptation to cancer. The present study was conducted to determine the internal structure and factor reliability estimates of a new instrument, the Family Adaptation to Medical ILLness Inventory (FAMILLI). The analysis of the FAMILLI was conducted using respondents (N=139) with family members of cancer. Respondents' ages ranged from 18 to 70 and many types of cancer, such as lung, breast, colorectal, prostate, brain, and cervical, were represented. The study was conducted in two phases, the pilot study and the major investigation.During the pilot study, respondents from a midwestern university setting and the oncology department at a midwestern hospital (N=28) completed the FAMILLI and participated in feedback groups. The pilot study helped to refine the demographic information sheet and to reduce the number of questions on the FAMILLI from 55 to 35 questions. In addition, interesting demographic questions were added to the demographics forms.The major study (N= 117) was conducted to test the initial factor structure of the FAMILLI and to test convergent and discriminant validity. A principal components extraction yielded a six factor solution which was judged best in terms of statistical structure and theoretical parsimony. The six factors to emerge were 1) factor one, "personal needs," 2) factor two, "attitudes toward leisure and work activities," 3) factor three, "anger and blame," 4) factor four, "receiving support," 5) factor five, "seeking medical information," and 6) factor six, "family responsibilities."Convergent and discriminant validity were tested using the Cancer Behavior Inventory (CBI-B) and the Satisfaction With Life Scale (SWLS). It was hypothesized that the FAMILLI would demonstrate convergent validity with the CBI-B. Four of the six factors (factors 2, 3, 4, and 5) significantly correlated with the CBI-B. The SWLS was used to test discriminant validity. Five of the six factors (factors 1, 2, 3, 4, and 6) correlated significantly with the SWLS. Thus, the FAMILLI did not demonstrate discriminant validity with an instrument used to measure global assessment of quality of life. Further research is needed to test the reliability and validity of the FAMILLI.
Department of Counseling Psychology and Guidance Services
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陳袁美玉 e Yuen Mei-yuk Peggy Chan. "Problems encourtered by discharged mentally ill patients and their families: case study of four young maleschizophrenics and their families". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1985. http://hub.hku.hk/bib/B31974338.

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Liu, Chak-chun Jeffrey. "Family communication, coping and psychological health of cancer patients in Hong Kong". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1998. http://hub.hku.hk/bib/B29726360.

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Dhanbhoora, Khushnud A. "Spousal communication among patients with cancer". Virtual Press, 2007. http://liblink.bsu.edu/uhtbin/catkey/1364940.

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Using primarily grounded theory methodology, the purpose of this study was to understand how the experience of cancer affects communication patterns in married couples where one spouse has been diagnosed with cancer. Nine couples, five in which women were diagnosed with cancer and four in which men were diagnosed with cancer, were interviewed individually. They were asked questions pertaining to changes in their relationship and communication patterns since the diagnosis of cancer. Potential barriers and facilitators to communication were explored. Additionally, gender differences that could play a role in these marital communication patterns were examined. Participants were also administered a measure of mood states, the Profile of Mood States (POMS) and, a measure of family cohesion, flexibility and communication, the Family Adaptability and Cohesion Evaluation Scale-version IV (FACES IV). Findings from both qualitative and quantitative methods were triangulated.Information gathered from the interviews generated eight themes: initial reactions to diagnosis, the experience of cancer, coping strategies, impact of cancer on the spousal relationship, spousal communication prior to cancer, spousal communication since the diagnosis of cancer, barriers to communication, and impact of gender and gender role on communication and adjustment. These categories and their subcategories generated an integrated grounded theory on the dimensions of communication. The theory consisted of three interactive elements: facilitators of communication, barriers to communication and the role of gender.Findings from this study confirmed existing trends in the current literature on communication among couples facing cancer. Results demonstrated that the experienceof cancer and its treatment brought couples closer to each other, where they experienced increased intimacy and communication with their spouses. There were several factors that facilitated these changes. On the other hand, barriers to communication were also identified; however, some of these barriers also served as coping strategies for participants. Furthermore, although there were differences and similarities noted among men and women in the study, results highlighted the importance of viewing them within the context of each participant's role as a patient and a caregiver, and not merely as a result of gender.Several research and practice implications are presented. Results of this study can help health care and mental health professionals gain a better understanding of the needs of cancer patients and their families. Couples and families can also benefit from an awareness of specific facilitators and barriers to communication.
Department of Counseling Psychology and Guidance Services
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Van, der Merwe Jó-Marié. "Family needs following adult traumatic brain injury". Thesis, University of Port Elizabeth, 2004. http://hdl.handle.net/10948/335.

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Traumatic brain injury (TBI) represents a significant and growing type of disability in South Africa. Coping with the impact of traumatic brain injury is one of the most difficult tasks that can confront a family, and family members experience a wide range of needs as the injured person progresses through rehabilitation. In South Africa, research on family needs following traumatic brain injury has thus far been neglected and rehabilitation resources are sadly lacking. For this reason it is necessary to accumulate knowledge about these families’ needs so as to assist with the planning of future rehabilitation programmes. The study aimed to explore and describe the needs of a sample of families with adult traumatic brain injury individuals in the Eastern Cape utilizing the Family Needs Questionnaire (FNQ). The research approach followed could be described as descriptive and exploratory in nature and was conducted within a quantitative framework. A biographical questionnaire and the FNQ were administered to a heterogeneous sample of 32 family members, including significant others and primary caregivers, of 16 adult traumatically brain-injured individuals, who sustained the TBI one to three years previously, and who underwent rehabilitation treatment at a private rehabilitation hospital in Port Elizabeth. A non-probability, purposive, and convenient sampling method was used. Descriptive statistics were computed to determine the importance and the perceived fulfillment of the needs. The results of the present study indicated that all 40 needs were endorsed by at least half the sample as being important to very important. Furthermore, 52.50% of the needs were endorsed by more than two-thirds of the sample as being important to very important. The needs were rank-ordered according to their importance ratings and the 10 mostly rated as important or very important were identified. These 10 needs were endorsed by between 84.38% and 93.75% of the family members as being important to very important. Six of the important or very important needs related to health information, two to professional support, one to community support, and one to emotional support. The relation between various participant, traumatically brain-injured individual and brain injury characteristics and the 10 important or very important needs, as well as the 10 needs more frequently rated as met were investigated and found to either have a limited or varied relationship. The 10 needs most often rated as met were endorsed by between 43.75% and 56.25% of the family members. Six of the met needs related to health information, two to community support, one to instrumental support, and one to treatment decisions. The highest unmet need was endorsed by 46.88% of the participants and related to the need to discuss their feelings with someone who has gone through the same experience. Based on the findings of the present study, further research on family needs following traumatic brain injury is suggested. It is also recommended that the Family Needs Questionnaire be used to evaluate existing rehabilitation programmes so as to make suggestions as to how to improve them. The results of this study suggested that family members would benefit from receiving educational information material, as well as referrals to professionals for advice and support.
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Livros sobre o assunto "Patients and family relationships"

1

Stanford, Ashley. Asperger syndrome and long-term relationships. London: Jessica Kingsley Publishers, 2003.

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2

Hagag, Nabil G. When cancer strikes. Commack, NY: Kroshka Books, 1998.

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3

Thompson, Ruth. A Guide for patients and families of depressive illness. 2a ed. Toronto, Ont: Clarke Institute of Psychiatry, 1987.

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4

Hoek, Beatrice Hofman. Cancer lives at our house: Help for the family. Grand Rapids, Mich: Baker Books, 1997.

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5

Lea, Baider, Cooper Cary L e Kaplan De-Nour A. 1932-, eds. Cancer and the family. Chichester: Wiley, 1996.

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6

Oldham, Tasha, e Noelle Wright. The Smith family. [Harriman, NY]: New Day Films, 2002.

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Jackson, Helen. Family coping and AIDS in Zimbabwe: A study. Harare: Journal of social development in Africa, School of Social Work, 1994.

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Abrahamson, Patt. Brain injury: A family tragedy. Houston, Tex: HDI Publishers, 1997.

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BACUP, ed. What do I tell the children?: A guide for a parent with cancer. London: BACUP, 1996.

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Ben, Brack, ed. Moms don't get sick. Aberdeen, S.D: Melius Pub. Corp., 1990.

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Capítulos de livros sobre o assunto "Patients and family relationships"

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Haug, Marie R. "Professional Client Relationships and the Older Patient". In Family and Support Systems across the Life Span, 225–42. Boston, MA: Springer US, 1988. http://dx.doi.org/10.1007/978-1-4899-2106-2_17.

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Rowe, Michael, e Antonella Surbone. "To sue or not to sue: restoring trust in patient-doctor-family relationships". In Clinical Oncology and Error Reduction, 51–63. Hoboken, NJ, USA: John Wiley & Sons, Inc, 2015. http://dx.doi.org/10.1002/9781118749272.ch4.

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Sustrami, Dya, Candra Maulidya Dwi Pratiwi, Ah Yusuf e Rizki Fitryasari. "Relationship Between Family Functioning and Burden Among Family Caregivers of Schizophrenia Patients in Menur Mental Hospital Surabaya Indonesia". In Advances in Health Sciences Research, 158–62. Dordrecht: Atlantis Press International BV, 2023. http://dx.doi.org/10.2991/978-94-6463-132-6_19.

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D’Onofrio, Grazia, Annamaria Petito, Antonella Calvio, Giusi Antonia Toto e Pierpaolo Limone. "Robot Assistive Therapy Strategies for Children with Autism". In Psychology, Learning, Technology, 103–16. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-031-15845-2_7.

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AbstractBackground: Autism spectrum disorder (ASD) is a category of neurodevelopmental disorder characterized by persistent deficits in social communication and social interaction across multiple contexts as well as restricted, repetitive patterns of behaviour, interests, or activities. Social robots offer clinicians new ways to interact and work with people with ASD. Robot-Assisted Training (RAT) is a growing body of research in HRI, which studies how robots can assist and enhance human skills during a task-centred interaction. RAT systems have a wide range of application for children with ASD.Aims: In a pilot RCT with an experimental group and a control group, research aims will be: to assess group differences in repetitive and maladaptive behaviours (RMBs), affective states and performance tasks across sessions and within each group; to assess the perception of family relationships between two groups before and post robot interaction; to develop a robotic app capable to run Raven’s Progressive Matrices (RPM), a test typically used to measure general human intelligence and to compare the accuracy of the robot to capture the data with that run by psychologists.Material and Methods: Patients with mild or moderate level of ASD will be enrolled in the study which will last 3 years. The sample size is: 60 patients (30 patients will be located in the experimental group and 30 patients will be located in the control group) indicated by an evaluation of the estimated enrolment time. Inclusion criteria will be the following: eligibility of children confirmed using the Autism Diagnostic Observation Schedule −2; age ≥ 7 years; clinician judgment during a clinical psychology evaluation; written parental consent approved by the local ethical committee. The study will be conducted over 10 weeks for each participant, with the pretest and post test conducted during the first and last weeks of the study. The training will be provided over the intermediate eight weeks, with one session provided each week, for a total of 8 sessions. Baseline and follow-up evaluation include: socioeconomic status of families will be assessed using the Hollingshead scale; Social Communication Questionnaire (SCQ) will be used to screen the communication skills and social functioning in children with ASD; Vineland Adaptive Behavior Scale, 2nd edition (VABS) will be used to assess the capabilities of children in dealing with everyday life; severity and variety of children’s ripetitive behaviours will be also assessed using Repetitive Behavior Scale-Revised (RBS-R). Moreover, the perception of family relationships assessment will be run by Portfolio for the validation of parental acceptance and refusal (PARENTS).Expected Results: 1) improbe communication skills; 2) reduced repetitive and maladaptive behaviors; 3) more positive perception of family relationships; 4) improved performance.Conclusions: Robot-Assisted Training aims to train and enhance user (physical or cognitive) skills, through the interaction, and not assist users to complete a task thus a target is to enhance user performance by providing personalized and targeted assistance towards maximizing training and learning effects. Robotics systems can be used to manage therapy sessions, gather and analyse data and like interactions with the patient and generate useful information in the form of reports and graphs, thus are a powerful tool for the therapist to check patient’s progress and facilitate diagnosis.
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Testoni, Ines, Simone Cernesi, Federica Davolio, Marta Perin, Mariagiovanna Amoroso, Chiara Villani e Jacopo Demurtas. "Family Physicians’ Relationship with Older Patients Between Palliative Care and Advance Care Planning Management". In Practical Issues in Geriatrics, 407–19. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-030-78923-7_25.

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Beveridge, Ryan M., e Lisa M. Jaremka. "Family, Relationships". In Encyclopedia of Behavioral Medicine, 861–64. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-39903-0_1314.

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Clemson, Lindy, J. Rick Turner, J. Rick Turner, Farrah Jacquez, Whitney Raglin, Gabriela Reed, Gabriela Reed et al. "Family, Relationships". In Encyclopedia of Behavioral Medicine, 780–82. New York, NY: Springer New York, 2013. http://dx.doi.org/10.1007/978-1-4419-1005-9_1314.

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Beveridge, Ryan M., e Lisa M. Jaremka. "Family, Relationships". In Encyclopedia of Behavioral Medicine, 1–4. New York, NY: Springer New York, 2017. http://dx.doi.org/10.1007/978-1-4614-6439-6_1314-2.

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Parker, Julia. "Family Relationships". In Women and Welfare, 65–93. London: Palgrave Macmillan UK, 1989. http://dx.doi.org/10.1007/978-1-349-19817-7_5.

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Raynor, Lois. "Family Relationships". In The Adopted Child Comes of Age, 103–13. London: Routledge, 2021. http://dx.doi.org/10.4324/9781003202844-13.

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Trabalhos de conferências sobre o assunto "Patients and family relationships"

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Шарапов, Д. И., А. Е. Шарапова e Г. Ю. Моллаева. "THE IMPACT OF PLASTIC SURGERY ON FEMALE-MALE RELATIONSHIPS AND THE FAMILY SYSTEM". In Антология российской психотерапии и психологии. Crossref, 2023. http://dx.doi.org/10.54775/ppl.2023.52.51.001.

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В докладе представлен анализ результатов скринингового психологического анкетирования пациенток, перенёсших пластические операции. Исследовалась взаимосвязь между ожиданием пациенток улучшить женско-мужские отношения по средствам изменения своей внешности и исходным качеством отношений в семье (паре). The report presents an analysis of the results of screening psychological questionnaires of patients who have undergone plastic surgery. The relationship between the patients' expectation to improve female-male relations by means of changing their appearance and the initial quality of relationships in the family (couple) was investigated.
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PEREIRA, LAUANNA FREITAS, ANDRESA MOTA DE MELO, DANIELE DA SILVA DE SOUZA, DAYENE BUENO CRUVINEL DE LIMA, EMILY DOS SANTOS SILVA, GABRIELLA FONSECA DE JESUS MESQUITA,, GABRIELLE RODRIGUES TUSSOLINI e GISELLE DE OLIVEIRA RODRIGUES. "MENTAL HEALTH IN THE MIDST OF THE COVID-19 PANDEMIC: A PANORAMIC VIEW OF HEALTH PROFESSIONALS, AFFECTED PATIENTS AND INTERPERSONAL RELATIONSHIPS". In I South Florida Congress of Development. CONGRESS PROCEEDINGS I South Florida Congress of Development - 2021, 2021. http://dx.doi.org/10.47172/sfcdv2021-0008.

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The pandemic caused by the SARS-CoV-2 virus provided a new global dynamic, reflecting on the lives of health professionals, people affected by the disease and interpersonal relationships. The main strategy adopted to curb contagion was social distance, with implications in several spheres: in family organization, in the closing of schools and public places and in work routines. This situation gave rise to feelings of helplessness, loneliness and disorders such as anxiety and depression, which directly or indirectly influence the morbidity and mortality of the disease. Health professionals are faced with a new routine, which requires countless hours of work in an exhaustive manner, concern with their patients and the unknown disease, in addition to the vulnerability of their family members. The general population is faced with difficulties in sustaining themselves, in treating chronic conditions and in the constant presence of fear and mourning. In this context, the need for investment and implementation of public policies aimed at mental health is concluded.,
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PEREIRA, LAUANNA FREITAS, ANDRESA MOTA DE MELO, DANIELE DA SILVA DE SOUZA,, DAYENE BUENO CRUVINEL DE LIMA, EMILY DOS SANTOS SILVA, GABRIELLA FONSECA DE JESUS MESQUITA, GABRIELLE RODRIGUES TUSSOLINI e GISELLE DE OLIVEIRA RODRIGUES. "MENTAL HEALTH IN THE MIDST OF THE COVID-19 PANDEMIC: A PANORAMIC VIEW OF HEALTH PROFESSIONALS, AFFECTED PATIENTS AND INTERPERSONAL RELATIONSHIPS". In I South Florida Congress of Development. CONGRESS PROCEEDINGS I South Florida Congress of Development - 2021, 2021. http://dx.doi.org/10.47172/sfcdv2021-0061.

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The pandemic caused by the SARS-CoV-2 virus provided a new global dynamic, reflecting on the lives of health professionals, people affected by the disease and interpersonal relationships. The main strategy adopted to curb contagion was social distance, with implications in several spheres: in family organization, in the closing of schools and public places and in work routines. This situation gave rise to feelings of helplessness, loneliness and disorders such as anxiety and depression, which directly or indirectly influence the morbidity and mortality of the disease. Health professionals are faced with a new routine, which requires countless hours of work in an exhaustive manner, concern with their patients and the unknown disease, in addition to the vulnerability of their family members. The general population is faced with difficulties in sustaining themselves, in treating chronic conditions and in the constant presence of fear and mourning. In this context, the need for investment and implementation of public policies aimed at mental health is concluded.,
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Nurlela, Lela, Meiana Harfika e Laelani Eka Novitasari. "Family Support Relationships with Patient Adaptation Ability above with Diagnosis Hallucination of Post Care". In The 9th International Nursing Conference: Nurses at The Forefront Transforming Care, Science and Research. SCITEPRESS - Science and Technology Publications, 2018. http://dx.doi.org/10.5220/0008329906260630.

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Siregar, Cholina Trisa, Yengsi Mei Karmita Pasaribu, Siti Zahara Nasution, Zulkarnain e M. Pahala Hanafi Harahap. "The relationship of family support and self-acceptance of haemodialysis patients in Medan". In THE II INTERNATIONAL SCIENTIFIC CONFERENCE “INDUSTRIAL AND CIVIL CONSTRUCTION 2022”. AIP Publishing, 2023. http://dx.doi.org/10.1063/5.0149996.

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Feijão, Maria Clara Tomaz, Fernanda Pimentel Arraes Maia, Mateus Coelho Gondim de Oliveira Lima, Vitória Moreira Soares e Luiz Gonzaga Porto Pinheiro. "CONCERNING A FAMILY WITH BRCA2 MUTATION". In XXIV Congresso Brasileiro de Mastologia. Mastology, 2022. http://dx.doi.org/10.29289/259453942022v32s1019.

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Introduction: Breast cancer is the most common malignancy in women and represents a major obstacle to public health worldwide. The molecular diagnosis of this type of cancer is one of the main contemporary challenges in oncology, since it is hampered by a complex inheritance pattern, characterized by both genetic and environmental factors. Only a minority of breast cancers are explained by the presence of high penetrance gene mutations, such as those in the BRCA1 and BRCA2 genes, which together with mutations in intermediate penetrance genes explain only up to 25% of the risk. In fact, much of the genetic influence is elucidated by low penetrance variants. Mutations in the germline BRCA1 and BRCA2 are the most common alterations in cases of early onset or of family history of breast cancer. It is also important to acknowledge that BRCA2 mutations can increase the risk of developing other cancers. Some studies show a relation between BRCA2 mutations and the development of leukemia, especially acute myeloid leukemia (AML). Also, some of these mutations, when inherited from both parents, cause a rare form of Fanconi anemia, a syndrome associated with the development of AML. In addition, there are studies evaluating a higher risk of pancreatic and esophageal cancer in carriers of BRCA2 mutations. The risk of colorectal cancer is also increased in patients with BRCA1 mutations. However, there are also some authors who defend that BRCA2 mutations could also be related. The specific statistics are not well defined because of the lack of data focusing on the relationship with the aforecited types of cancers, demonstrating the need for further analysis. This study aims to report the case of a woman with breast cancer at an early age. Such malignancy is associated and was somehow induced by the rich family history, represented by the high prevalence of cancer in the ancestry. We report a 34-year-old woman with an extensive history of carcinoma in the family, who was diagnosed with breast cancer in July 2016. In order to confirm the diagnosis, it was required an ultrasound, which resulted in a 2.2×1.5 cm node on the right breast’s left superior quadrant, classified as BIRADS 4A. It also performed an ultrasound-guided biopsy that showed a tubular carcinoma on the right breast with the following characteristics: positive for estrogen and progesterone receptor, positive for KI 67 (5%), and negative for HER2, with staging of T1cN0M0. During anamnesis, the patient mentioned menarche at 12 years old, history of birth control pills use for 10 years, no pregnancy, and no breastfeeding. When it comes to family history, a great number of relatives were previously diagnosed with some type of cancer. Her paternal grandfather had rectum cancer at 42 years old and breast cancer at 62 years old. The paternal grandmother passed away because of a fast-progression leukemia at the age of 68. It is important to mention that her progenitors were first cousins. Furthermore, the patient’s dad was diagnosed with breast cancer at 62 years, alongside his three brothers who were also diagnosed with cancer: one with prostatic cancer at the age of 64 years and the other two with intestinal cancer at the ages of 64 and 68 years old. Considering such a family history, a genetic panel was performed, analyzing the genes related to hereditary cancer risk, and it identified mutations in the patient’s BRCA2 gene. Then, firstly, she performed a bilateral mastectomy in January 2017 with sentinel lymph node investigation, which was negative for neoplastic cells in the lymph nodes. Later, considering the BRCA2 mutation, in August 2017, the patient had to undergo prophylactic surgery: oophorectomy with salpingectomy.
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"The relationship between spiritual well-being and family cohesion in patients with Thalassemia Major". In International Conference on Medicine, Public Health and Biological Sciences. CASRP Publishing Company, Ltd. Uk, 2016. http://dx.doi.org/10.18869/mphbs.2016.205.

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Noor Anisa, Fadhiyah, Elvine Ivana Kabuhung e Ruthiana Amia. "Family Support Relationship With The Level Of Anxiety In Cervical Cancer Patients Ulin Hospitals Banjarmasin". In 2nd Sari Mulia International Conference on Health and Sciences 2017 (SMICHS 2017) � One Health to Address the Problem of Tropical Infectious Diseases in Indonesia. Paris, France: Atlantis Press, 2017. http://dx.doi.org/10.2991/smichs-17.2017.16.

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"RELATIONSHIP BETWEEN DUAL DISORDERS AND SLEEP DISORDERS". In 23° Congreso de la Sociedad Española de Patología Dual (SEPD) 2021. SEPD, 2021. http://dx.doi.org/10.17579/sepd2021p023s.

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Objectives Study the relationship between Dual Disorders and Sleep Disorders Describe the most frequent Sleep Disorders amongst substance dependent patients. Material and methods A database was designed, providing the clinical information obtained from the entry sheets of 398 drug dependent patients during their first visit to the Addictions Unit. Henceforth, both descriptive and analytic studies were performed simultaneously. Results -A statistical relationship between Dual Disorders and Sleep Disorders was shown. -Insomnia was the most frequent sleep disturbance amongst Dual patients. -Alcohol was the main substance for consultation amongst Dual patients. -Most Dual patients shown family psychiatric background. -Sleep Disorders appearance in Dual patients correlates to clinical severity. -Sleep Disorders in Dual patients are related to the state of change in substance recovery. Conclusions - “Dual Disorders have a significant relationship with Sleep Disorders appearance” - “Dual Disorders always have to be considered in the study of substance dependent patients”
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Otani, Kagari, e Yasunobu Ito. "Transmission of the techniques of Care by nurses in Close Contact with the Patient’s Living Space: A Case Study of a Visiting Nurse Station in Japan". In 14th International Conference on Applied Human Factors and Ergonomics (AHFE 2023). AHFE International, 2023. http://dx.doi.org/10.54941/ahfe1003114.

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We have been examining home care nursing from the perspective of service research/service design research. We have presented the process of 'co-creation' between visiting nurses and patients to restore/continue the patient's daily life (Otani and Ito 2021: 503-509) and have also examined the work of visiting nurses made with patients and their families in the patients' homes as sticky information that is difficult to detach from the context and difficult to transfer (von Hippel 1994, Otani and Ito 2021: 503-509). In light of these findings, this paper aims to identify the difficulties visiting nurses face in transferring the knowledge they co-create with patients and patients' families in patients' homes to their fellow nurses and health professionals in the workplace.In service research, the importance of the perspective that providers and recipients "co-create" value together (Vargo and Lusch 2004, 2008, 2014) has been pointed out. On the other hand, in previous anthropological research on the transmission of deeds (eg. Lemonnier 2002), there is little analysis from the perspective of the relationship between the provider of the deeds and the recipient of the value of the deeds, or from the perspective of co-creation by both parties. The analysis in this paper is significant and novel in that it incorporates the perspective of co-creation in service research into previous anthropological research on the transmission of deeds.The study period was from 2013 to November 2022. The study site was X visiting nurse station in Nagoya City. The research method consisted of observation and interviews at the home-visit nursing station and at the patients' homes.The provider (visiting nurse) listened to the requests of the recipients (patients) and their families and develops nursing care techniques(services) to support their preferred way of life. The nurses listed them and had the patient and family select them proactively to their satisfaction. In order for patients and their families to remain satisfied with nursing care, the co-created nursing skills had to be transferred to fellow nurses and health professionals so that other nurses, not just the nurse who created them, could also perform them. Nurses recorded their inventions in their electronic health records and explain them in meetings, but there were limitations to recording and explaining them verbally. Because (1) the techniques created by visiting nurses and others were stored in the nurse's body. Because of their dependence on the nurse's body, the only way to communicate them to others was to express them with gestures or to communicate them verbally in parts (using the 'craft language'). In addition, (2) the techniques produced by visiting nurses and others were closely linked to the context of the patient's home. This is because, unlike care in hospital nursing, visiting nurses form (co-create) the skills in the patient's home, together with the patient and their family. That was difficult to transfer the skills embedded in the context of the patient's home to other nurses and health professionals.
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Relatórios de organizações sobre o assunto "Patients and family relationships"

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Woods, Rachel, Alison Zhong e Madelyn Vincent. Factors Associated with Influenza & Tdap Vaccine Uptake in Pregnant Patients at the UT Family Medicine Clinic in Memphis. University of Tennessee Health Science Center, 2021. http://dx.doi.org/10.21007/com.lsp.2020.0003.

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INTRODUCTION: Given the increased risk for infections among pregnant patients and newborns, vaccination against influenza (>50,000,000 annual US cases affecting all ages) and pertussis (>15,000 annual US cases disproportionately affecting newborns) are recommended among pregnant patients in order to protect them and their babies via passive immunity to cover a newborn’s window of vaccine ineligibility. Though flu and Tdap vaccination rates among pregnant patients have been trending upwards nationally, there is still room for improvement to achieve optimal rates. OBJECTIVES: The primary objectives were to study factors that affect the vaccination rates at the University of Tennessee Family Medicine Clinic at Memphis (UTFMC-M), compare those rates with national pregnancy flu/Tdap vaccination rates, and to generate recommendations based off observed factors associated with vaccine uptake to improve flu/Tdap vaccination rates in UTFMC-M pregnant patients. METHODS: This was a retrospective chart review of UTFMC-M patients who were pregnant from September 1, 2019-April 24, 2020 (included 2019-2020 flu season) (n=465). Variables studied included demographic data (race, age, insurance), immunization history (vaccine status, history of physician encouragement), and prenatal history (parity, number of prenatal visits, trimester at first visit, high risk clinic (HRC) admittance status). Vaccination status was based on ACIP recommendations (Flu shot eligible = any gestational age; Tdap eligible = ≥27 weeks). Positive HRC admittance was noted for patients with ≥2 visits to the UTFMC-M HRC, a clinic that specializes in high risk pregnant patient care. RESULTS: The patient sample was predominantly black (84.3%) and insured by Medicaid programs (88%). Among eligible UTFMC-M pregnant patients, 50.1% were flu-vaccinated (n=465); 73.8% were Tdap-vaccinated (n=317); and 52.1% were Flu+Tdap-vaccinated (n=317). No significant associations were found between vaccine uptake and HRC status, parity, and age. However, statistically significant relationships were found between vaccine uptake and physician encouragement (positive relationship with flu shot: X2(1, N = 465) =131, p < 0.001, Tdap: X2 (6, N = 465) =476, p < 0.001), number of prenatal visits (flu shot group median 8 visits, Tdap group median 9 visits vs. unvaccinated group median 4 visits; p < 0.001), and early trimester age at first prenatal visit (X2(6, N = 465) =47.635 , p CONCLUSION: 2019-2020 UTFMC-M vaccination rates were on par with 2018-2019 US flu vaccine rates and higher than 2018-2019 US Tdap and Flu+Tdap rates. There were statistically significant relationships between vaccine uptake at UTFMC-M and physician encouragement, number of prenatal visits, and early trimester age at first prenatal visit but no significant relationships with UTFMC-M HRC admittance, parity, or age. Recommendations following from our observations to address further vaccine rate improvement include: continue vaccine encouragement, continue booking multiple visits (8 for flu, 9 for Tdap), prioritize Tdap vaccine higher for late trimester intake patients, and focus on flu vaccine encouragement and education.
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C. Strumpf, Erin, Laurie J. Goldsmith, Caroline E. King, Ruth Lavergne, Rita McCracken, Kimberlyn M. McGrail e Leora Simon. Measuring Access to and Quality of Primary Care in Quebec: Insights from Research on Patient Enrolment Policies. CIRANO, março de 2023. http://dx.doi.org/10.54932/xnxr2949.

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More than one million “orphan” patients do not have a family physician in Quebec as revealed by the department of Health and Social Services scoreboard. This spring, Minister Dubé has launched several initiatives aimed at transforming the health system to facilitate access to high-quality and timely primary care services. These reforms focus primarily on the enrolment of patients with a family physician. Having access to a regular source of care is almost universally seen as a good thing. In this short note, Erin C. Strumpf, McGill University Professor and Fellow CIRANO, and her co-authors challenge this idea. They show that there is a tendency to confuse concepts and assume that repeated contact is evidence of a truly caring, trusting patient-physician relationship, which could ultimately lead to better health outcomes. If we want to effectively create and evaluate interventions aimed at improving primary care, it is essential to clearly identify the processes through which patient care can be improved and to identify the most relevant measures that actually capture the outcomes of interest such as affiliation and continuity of care. That is what the authors precisely do here. By being honest and clear about what we can actually measure and evaluate with the data we have, they argue that we create an opening for more creative approaches to health policy evaluation.
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Travis, Amanda, Margaret Harvey e Michelle Rickard. Adverse Childhood Experiences and Urinary Incontinence in Elementary School Aged Children. University of Tennessee Health Science Center, outubro de 2021. http://dx.doi.org/10.21007/con.dnp.2021.0012.

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Purpose/Background: Adverse Childhood Experiences (ACEs) have an impact on health throughout the lifespan (Filletti et al., 1999; Hughes et al., 2017). These experiences range from physical and mental abuse, substance abuse in the home, parental separation or loss, financial instability, acute illness or injury, witnessing violence in the home or community, and incarceration of family members (Hughes et al., 2017). Understanding and screening for ACEs in children with urinary incontinence can help practitioners identify psychological stress as a potentially modifiable risk factor. Methods: A 5-month chart review was performed identifying English speaking patients ages 6-11 years presenting to the outpatient urology office for an initial visit with a primary diagnosis of urinary incontinence. Charts were reviewed for documentation of individual or family risk factors for ACEs exposure, community risk factors for ACEs exposures, and records where no related documentation was included. Results: For the thirty-nine patients identified, no community risk factors were noted in the charts. Seventy-nine percent of patients had one or more individual or family risk factors documented. Implications for Nursing Practice This chart review indicates that a significant percentage of pediatric, school-aged patients presenting with urinary incontinence have exposure to ACEs. A formal assessment for ACEs at the time of initial presentation would be helpful to identify those at highest risk. References: Felitti VJ, Anda RF, Nordenberg D, Williamson DF, Spitz AM, Edwards V, Koss MP, Marks JS. Relationship of childhood abuse and household dysfunction to many of the leading causes of death in adults: the adverse childhood experiences (ACE) study. Am J Prev Med. 1998;14:245–258 Hughes, K., Bellis, M.A., Hardcastle, K.A., Sethi, D., Butchart, D., Mikton, C., Jones, L., Dunne, M.P. (2017) The effect of multiple adverse childhood experiences on health: a systematic review and meta-analysis. Lancet Public Health, 2(8): e356–e366. Published online 2017 Jul 31.doi: 10.1016/S2468-2667(17)30118-4 Lai, H., Gardner, V., Vetter, J., & Andriole, G. L. (2015). Correlation between psychological stress levels and the severity of overactive bladder symptoms. BMC urology, 15, 14. doi:10.1186/s12894-015-0009-6
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Tucker, Corinna, e Desiree Wiesen-Martin. Coos county teens’ family relationships. University of New Hampshire Libraries, 2012. http://dx.doi.org/10.34051/p/2020.167.

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Zhao, Zepeng, Fengyuan Zhang e Yijin Li. The Relationship Between Il-1 RN intron 2 (VNTR) rs2234663 Gene Polymorphism and The Progression of Periodontitis: A systematic Review and Meta-Analysis. INPLASY - International Platform of Registered Systematic Review and Meta-analysis Protocols, março de 2023. http://dx.doi.org/10.37766/inplasy2023.3.0100.

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Review question / Objective: The aim of this systematic review and meta-analysis of case-control studies is to find out the association of IL-1 RN intron 2 (VNTR) rs2234663 Gene Polymorphism and the occurrence and progression of periodontitis(including chronic periodontitis, aggressive periodontitis and early-onset periodontitis). Condition being studied: Periodontitis is one of the most common ailments affecting the teeth, leading to the destruction of the supporting and surrounding tooth structure. Periodontitis is originally a disease originating from the gingival tissue which if left untreated results in penetration of inflammation to the deeper tissues, altering the bone homeostasis causing tooth loss. Periodontal disease has a multifactorial origin. The main culprit identified in periodontitis is the bacterial biofilm growing on the tooth surfaces. The deleterious effects of periodontopathogens are not limited to the periodontium, but they also exude their ill effects on the systemic health of the patients. While the host response determines the progression of the disease, genetics, environmental factors, systemic health of the patient, lifestyle habits and various social determinants also play a role. Interleukin-1 receptor antagonist encoded by this gene IL-1RN is a member of the interleukin 1 cytokine family. This protein inhibits the activities of interleukin 1, alpha (IL1A) and interleukin 1, beta (IL1B), and modulates a variety of interleukin 1 related immune and inflammatory responses, particularly in the acute phase of infection and inflammation. We aim to study their association by conducting a meta-analysis.
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Chan, Marc K., e Kai Liu. Changing families: family relationships, parental decisions and child development. The University of Queensland, fevereiro de 2023. http://dx.doi.org/10.14264/57b47e4.

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Guengerich, Terri. Support Patients and Family Caregivers in California: Infographic. AARP Research, junho de 2019. http://dx.doi.org/10.26419/res.00259.051.

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Guengerich, Terri. Support Patients and Family Caregivers in Ohio: Infographic. AARP Research, julho de 2019. http://dx.doi.org/10.26419/res.00259.083.

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Murphy, Lauren. Psychological detachment as a moderator in work-family conflict relationships. Portland State University Library, janeiro de 2000. http://dx.doi.org/10.15760/etd.6038.

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Altonji, Joseph, e Thomas Dunn. Relationships Among the Family Incomes and Labor Market Outcomes of Relatives. Cambridge, MA: National Bureau of Economic Research, junho de 1991. http://dx.doi.org/10.3386/w3724.

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