Livros: "Male caregivers"

1

J, Kramer Betty, e Thompson Edward H, eds. Men as caregivers. Amherst, N.Y: Prometheus Books, 2005.

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2

Kusaka, Riki. Herupuman! =: One touch of nature makes the whole wrold kin. Tōkyō: Kōdansha, 2004.

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3

Marc, Heyison, ed. For the women we love: A breast cancer action plan and caregiver's guide for men. Baltimore: Bartleby Press, 2007.

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4

1948-, Ueno Chizuko, ed. Semarikuru "musuko kaigo" no jidai: 28-nin no genba kara. Tōkyō: Kabushiki Kaisha Kōbunsha, 2014.

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5

Kyōgikai, Zenkoku Kokumin Kenkō Hoken Shinryō Shisetsu. Dansei kaigosha ni taisuru shien no arikata ni kansuru chōsa kenkyū jigyō hōkokusho. Tōkyō-to Minato-ku: Shadan Hōjin Zenkoku Kokumin Kenkō Hoken Shinryō Shisetsu Kyōgikai, 2011.

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6

Page, Sara. As men we care--: Male involvement in community home-based care programming in Zambia. Lusaka: Zambia Red Cross Society, 2008.

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7

Paul, Reed. Serenity: Support and guidance for people with HIV, their families, friends, and caregivers. 2^a ed. Berkeley, Calif: Celestial Arts, 1990.

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8

Morgan, Carl. Man to man: A practical guide for male caregivers when breast cancer strikes their loved ones. Windsor, Ont: Benchmark Publishing & Design, 2003.

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9

Charles, Gloria A. Exploring the experiences of male spousal caregivers for their wives with alzheimer disease in their homes: The lived experience and the men's perception of support groups. St. Catharines, Ont: Brock University, Faculty of Education, 2002.

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10

Rabe, David. A question of mercy. New York: Grove Press, 1998.

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11

illustrator, Pickens Robin, ed. The compassionate heart: Caregivers like you make a difference. Portland: Sellers Publishing, 2014.

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12

Pelzmann, Joy. Decisions to make, paths to take: A guide for caregivers. Boyton Beach, FL: Decision Press, 1997.

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13

Adams, Dale B. Care Giving Made Easy: How to be an Awesome Caregiver. Harrison, Arkansas: Majestic Publishers, 2006.

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14

Johnson Institute (Minneapolis, Minn.), ed. How to help kids make and keep friends: For parents, teachers, and other caregivers. Minneapolis, MN: Johnson Institute, 1998.

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15

Blank, Thomas O., Lara Descartes e Marysol Asencio. Male Patients and Their Male Caregivers (DRAFT). Editado por Youngmee Kim e Matthew J. Loscalzo. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190462253.003.0006.

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There is a dearth of literature on male-to-male caregiving relationships generally and almost none specific to cancer. Some prior studies have included male caregivers and/or male care recipients, but they have rarely separated out male–male dyads for analysis. Thus, without access to much research specific to male–male caregiving for cancer, this chapter draws on related and relevant literature, such as that on men caring for men with AIDS and interactions within prostate cancer support groups. These findings are used to describe what male–male caregiving may look like. A consideration of how female caregiving is typically foregrounded and valued in the caregiving literature is used to critique the current state of knowledge of male caregiving, and the large research gap in this field is identified.

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16

Badger, Terry, e Chris Segrin. Female Caregivers of Male Cancer Patients (DRAFT). Editado por Youngmee Kim e Matthew J. Loscalzo. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190462253.003.0007.

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The diagnosis and treatment of cancer is a relationship, rather than an individual problem, because there is a patient and often an informal caregiver. In terms of male cancer patients and their female caregivers, this is most often studied in the context of prostate cancer patients and their female caregivers. Concepts from the stress process model are used to organize research findings on the women caring for their male partners with cancer. This review illustrates how different contexts of care, primary objective stressors, and resources can all contribute to the primary subjective stressors (e.g., quality of life, relationship problems, role demands) experienced by dyads in this context. Interventions to help caregivers as well as directions for clinical practice and future research are discussed.

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17

Men as caregivers. Amherst, NY: Prometheus Books, 2004.

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18

(Editor), Betty J. Kramer, e Edward H., Jr. Thompson (Editor), eds. Men As Caregivers. Prometheus Books, 2004.

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19

Hidden among the Hidden: African-American Elder Male Caregivers. Oxford University Press, Incorporated, 2017.

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20

Grunell, Marianne. Mannen die zorgen, zijn de kerels van morgen: Hoe jongens, dertigers en vijftig-plussers zich laten aanspreken op het onbetaalde werk. J. Van Arkel, 1997.

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21

Otoko ga kaigosuru: Kazoku no kea no jittai to shien no torikumi. Tōkyō: Chūō Kōron Shinsha, 2021.

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22

Garbowski, Anthony J. Don't Walk Through the Mirror. McMillen Publishing, 2007.

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23

Black, Helen K., John T. Groce e Charles E. Harmon. The Hidden Among the Hidden. Oxford University Press, 2018. http://dx.doi.org/10.1093/acprof:oso/9780190602321.001.0001.

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The question of our research and our book is as follows: What is the experience of African-American elder male caregivers? Research and literature on African-American older males as informal, primary caregivers of demented or impaired family members, particularly spouses, are negligible. Male caregivers in general have been called “hidden” caregivers. Thus, we named the elderly African-American male caregivers we interviewed for this book “the hidden among the hidden.” We asked the experts—a group of 13 African-American male caregivers—to discuss the concrete and nonmaterial aspects of giving care to an impaired loved one. Our book addresses the knowledge gap about African-American male caregivers by revealing, in case-study form, their experiences of caregiving in the context of their personal biography and cohort history. Our focus is the practical and existential meaning of daily life as a caregiver. The men discussed in this book are over 60 years of age, most are long married, and they have been caregivers in their homes for at least 5 years and as long as 25 years. Their loved ones, particularly wives, suffered from a variety of illnesses and debilities that necessitated hands-on care. The book examines varied aspects of the caregiving experience, the unique generativity of men who give care, and the emotions and conflicts about decision making that emerge in day-to-day caregiving.

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24

Kyogikai, Zenkoku Kaigosha Shien. Dansei kaigosha ni taisuru shien no arikata ni kansuru chosa kenkyu jigyo hokokusho. Tōkyō-to Toshima-ku, 2011.

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25

Fuller, Freida Jean. HEALTH OF ELDERLY MALE DEPENDENT-CARE AGENTS FOR A SPOUSE WITH ALZHEIMER'S DISEASE (CAREGIVERS, OREM). 1992.

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26

Kim, Youngmee, Hannah-Rose Mitchell e Amanda Ting. Theories of Gender in Adjustment to Medical Illness (DRAFT). Editado por Youngmee Kim e Matthew J. Loscalzo. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190462253.003.0003.

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Caregiving has historically been considered the role of women, yet the number of male caregivers has increased substantially in recent years. Such changes call for systematic understanding of the role of gender in caregiving processes. This chapter summarizes theoretical perspectives pertaining to gender issues in caregiving and then evaluates their adequacy for the cancer caregiver population. Despite lack of gender theory–driven research in cancer caregiving, studies support the adequacy of gender theories in identifying subgroups of caregivers who are vulnerable to adverse effects of cancer in the family and in developing evidence-based interventions. Integration of the issues related to the medical trajectory of the patients, lifespan stage of the caregivers, sociocultural resources, and risk factors in this emerging area of gender-oriented research and practice in cancer caregiver is highly encouraged.

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27

Men, Caregiving and the Media: The Dad Dilemma. Taylor & Francis Group, 2019.

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28

Riggs, Damien W., e Sarah C. Hunter. Men, Caregiving and the Media: The Dad Dilemma. Taylor & Francis Group, 2019.

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29

Riggs, Damien W., e Sarah C. Hunter. Men, Caregiving and the Media: The Dad Dilemma. Taylor & Francis Group, 2019.

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30

Kramer, Betty J., e Thompson Edward H. Men As Caregivers: Theory, Research, and Service Implications. Springer Publishing Company, Incorporated, 2002.

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31

Kramer, Betty J., e Edward H. Thompson. Men as Caregivers: Theory, Research, and Service Implications. Springer Publishing, 2001.

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32

Cohen, Jeffrey A., Justin J. Mowchun, Victoria H. Lawson e Nathaniel M. Robbins. A 50-Year-Old Male with Speech, Swallowing, and Behavioral Difficulties. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780190491901.003.0003.

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Treatment issues are discussed in the setting of a very challenging patient with amyotrophic lateral sclerosis with frontotemporal dementia (FTD), including management of neurological symptoms and cognitive dysfunction. Features of FTD are discussed. It is now appreciated that FTD is more common than previously thought. FTD can occur before the onset of motor symptoms. An ALS multidisciplinary clinic is the best approach for the care of ALS patients. Ethical issues are analyzed in this case as well. The need for the discussion of end of life issues is important for the patient family and caregivers. The careful consideration of tracheostomy and ventilator use is important in light of pulmonary function. Pulmonary function testing and sleep studies are helpful in managing respiratory issues. Palliative care consultation can be very beneficial.

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33

Bains, Allegra. Caregivers : How to Make Life Safer and Easier: Caregiver Guide to Stroke. Independently Published, 2021.

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34

Ferrell, Jimmy Arthur. MANAGING CARE IN THE CONTEXT OF BEREAVEMENT: A GROUNDED THEORY STUDY OF MALE SURVIVORS OF PARTNERS WHO DIED FROM AIDS (IMMUNE DEFICIENCY, CAREGIVERS). 1992.

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35

Black, Helen K., John T. Groce e Charles E. Harmon. Introduction. Oxford University Press, 2018. http://dx.doi.org/10.1093/acprof:oso/9780190602321.003.0001.

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Chapter One offers a brief history of the rise in awareness of the vast numbers of informal, family caregivers caring for aged, demented, and impaired loved ones in the home. The importance of informal caregivers to the healthcare system, both financially and emotionally, emerged in studies exploring the numbers of home caregivers and the nature of their care work. Early studies also focused on the sense of burden caregivers experienced due to caregiving. Since the 1980s, caregiving studies have been a constant in research, and have become increasingly complex in the use of large data sets and advanced technology to study the number of caregivers, their characteristics and labors, and the outcomes of caregiving on their emotional and physical health. Few studies have focused solely on the experience of caregiving in African-American elder male caregivers, and in the way we accomplish here.

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36

Meyer, Jessica. “A Blind Man’s Homecoming”. Oxford University Press, 2017. http://dx.doi.org/10.1093/oso/9780190458997.003.0008.

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This chapter draws upon the personal narratives of noncommissioned rankers serving with the British Royal Army Medical Corps during World War I to explore how these men responded to encounters with bodily strength and weakness in their roles as male caregivers. In particular, it examines how they constructed the disablement of combatant troops by warfare in light of their own role as noncombatant service men. It locates this analysis in the context of a cultural historiography that has examined the gendering of the disabled male body in war primarily in relation to female caregivers. By examining the impact of disability on relationships between men in wartime, this chapter explores the role of the male gaze in constructing war disability and the gendering of caregiving.

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37

Men, Masculinities and Childcare. Taylor & Francis Group, 2020.

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38

Publishing, Jhonsky. Nurses Make It Better: Caregiver Logbook with the Jhonsky Signature Perfect for an Assisted Living , Medical Journal History , Caregiver Gifts for Women, Caregivers Gifts . Independently Published, 2021.

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39

Schreiber, Mary. Partnering with Parents. ABC-CLIO, LLC, 2019. http://dx.doi.org/10.5040/9798400695384.

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Libraries offer many programs and services for children, but sometimes caregivers are left out of the equation, especially once children start school. Nevertheless, parents and caregivers are an integral part of literacy development, and libraries are a great place for them to witness modeling practices and participate in engaging family programs that encourage early literacy. Mary Schreiber combines personal experience and professional research with the programming expertise of youth librarians from across the country in this guide for libraries looking to make an even greater impact on the level of literacy attained by the children they serve. In Partnering with Parents, readers will find a wealth of information on how to talk to caregivers about the different stages of a child’s reading life, what books to recommend to excite both caregivers and children about reading, and ways to encourage parent and caregiver participation in library programming, with additional information on working with and providing programming for diverse families. Whether you are a veteran in the profession or brand new to working with families, you will find something in this book that will help you to make your library a more integral part of the education community.

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40

Amanda, Perfectly Made: A Caregiver's Journey. Bloomington, IN, USA: iUniverse, 2012.

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41

Hendershott, Anne. The Reluctant Caregivers. Greenwood Publishing Group, Inc., 2000. http://dx.doi.org/10.5040/9798216007463.

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Although Hendershott has spent many years teaching and writing about the sociological aspects of aging, she writes that none of this could have prepared me for the overwhelming challenge of caring for my own mother-in-law in my home. She introduces baby boomers as the unexpected caregivers of the coming decades. The process of family denial about symptoms, work-family conflict, and the unique problems of children of caregivers are explored in an effort to find solutions to the caregiving challenge. Social science research is made accessible and is coupled with anecdotal information gleaned from interactions with other caregivers and personal experience. Throughout the book, Hendershott shows family caregivers that by gaining insight into their motivations for caregiving and by drawing from family support and help from the community, they can move beyond maladaptive caregiving coping styles, to a rewarding reality-based caregiving experience.

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42

Marin, Mara. Care, Oppression, and Marriage as Commitment. Oxford University Press, 2017. http://dx.doi.org/10.1093/oso/9780190498627.003.0005.

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Chapter 4 argues that the sphere of intimate care, which takes shape around the practice of attending to each other’s needs, makes us vulnerable to each other. Providing care requires “skills of flexibility” because needs make demands at times that cannot be easily foreseen, change over time, and have to be interpreted. Under current social arrangements and understandings of value, the labor involved in exercising these skills is made invisible, and thus a condition of mutual vulnerability is disproportionately placed on caregivers. This creates two social groups, caregivers and care receivers, that stand in an oppressive, unjust social relation. Marriage law reform should be guided by the aim of remedying this form of injustice. Marriage law should be modeled on the notion of commitment, which would acknowledge the structural, social relational, and open-ended nature of the claims of justice made on behalf of caregivers.

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43

Schneider, Judith K. You Can't Make Me (The Competent Caregiver Training Program). C. A. P. E. Center, 1985.

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44

Black, Helen K., John T. Groce e Charles E. Harmon. Experiences of Suffering. Oxford University Press, 2018. http://dx.doi.org/10.1093/acprof:oso/9780190602321.003.0004.

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In prior research, elders recounted experiences of suffering as a rupture of the integrity of the person, thus a brokenness in body, mind, and spirit. Persons interviewed stated that their ethnicity, biography, history, and mental and physical health were integral to an experience of suffering. Likewise, the context of suffering—when in life it occurred, its cause, and its resolution—also was included in descriptions of suffering. Did male caregivers agree with this assessment? We welcomed caregiving respondents’ definitions of suffering and asked them to give examples in their own lives. This chapter also explores the experience of mourning the loved one who is still alive but lost within dementia or is enduring other illnesses.

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45

Hagedoorn, Mariët, e Tracey A. Revenson. Men Caring for Women in the Cancer Context (DRAFT). Editado por Youngmee Kim e Matthew J. Loscalzo. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190462253.003.0004.

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This chapter provides an overview of the consequences of a cancer diagnosis for female patients and their male caregivers, mostly partners or spouses. The majority of the couples adjust well; only a minority shows elevated levels of psychological distress a year or more after diagnosis. Nevertheless, the literature shows that cancer and its treatment may have a considerable impact on sexual functioning, fertility, and other aspects of the relationship. Communication between patients and partners and between couples and health care professionals plays a key role in solutions to these problems. Psychosocial interventions that may ameliorate the stresses these couples face are presented throughout the chapter. The authors also address issues of gender and caregiving.

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46

Cosbey, Janet. LETTING GO: HOW CAREGIVERS MAKE THE DECISION FOR NURSING HOME PLACEMENT. 1994.

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47

Freitag, Lisa. Hard Labor. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190491789.003.0003.

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Much of the research on parent caregivers examines only the physical or emotional state of the caregiver, reporting such problems as depression, stress, and poor health. Some more recent studies from the nursing and ethics literature, done mostly with families of children who are living at home and dependent on medical technology, also begin to uncover ethical concerns. This chapter outlines the tasks involved in extreme caregiving, dealing with the most well-researched ones: the physical and financial burdens of care, social isolation, and the need to maintain positivity and advocate for the child’s inclusion. Correlating existing studies with statements made by parents in narrative form, it becomes clear that issues raised by researchers are mirrored by parents. In addition, parent narratives reveal deeper concerns that researchers have not uncovered and begin to offer some explanation behind the problems that have been reported.

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48

Care Giving Made Easy: How to be an Awesome Caregiver. Corpus Christi, Texas: Majestic Publishers, 2006.

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49

Avoiding Confusion: Top 10 Mistakes Caregivers Make and How to Navigate Them. Carepreneur, The, 2023.

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50

Sasso, Jaynee. Make Life Work : A Caregivers Inspirational Journal: 30 Days in H. I. M. CreateSpace Independent Publishing Platform, 2014.

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