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1

Rego, Mark D. "On Being Chronically Ill". American Journal of Psychiatry 172, n.º 6 (junho de 2015): 510–11. http://dx.doi.org/10.1176/appi.ajp.2015.15020165.

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2

JELLINEK, MICHAEL S. "The Chronically Ill Child". Pediatric News 39, n.º 3 (março de 2005): 23. http://dx.doi.org/10.1016/s0031-398x(05)70035-7.

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3

&NA;. "The Chronically Critically Ill". Journal of Hospice & Palliative Nursing 10, n.º 2 (março de 2008): 89–90. http://dx.doi.org/10.1097/01.njh.0000306733.24097.22.

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4

Koesel, Niki. "The Chronically Critically Ill". Journal of Hospice & Palliative Nursing 10, n.º 2 (março de 2008): 83–88. http://dx.doi.org/10.1097/01.njh.0000306735.31721.6e.

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5

Cutler, David L. "The chronically mentally ill". Community Mental Health Journal 21, n.º 1 (1985): 3–13. http://dx.doi.org/10.1007/bf00754702.

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6

Nisevic, Sanja. "The importance of social support to chronically ill adolescents". Medical review 59, n.º 7-8 (2006): 331–34. http://dx.doi.org/10.2298/mpns0608331n.

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Introduction. Improvements in medicine have significantly prolonged life of chronically ill children and adolescents in the past several decades. There is a great variability in adaptation to illness among chronically ill persons - some of them seem to be very well adapted, with almost no problems. However, research results suggest that chronically ill children are more likely to have psychological problems than their healthy peers. Material and methods. Eighty-four subjects, all elementary school pupils, participated in the study. The first group included adolescents with chronical illness (malignant illness, insulin dependent diabetes mellitus, epilepsy, or asthma), and the second their healthy peers. Depression and social support were evaluated. The Birleson's Depression Scale and Perceived Social Support Scales (forms for friends and for family members) were used. Results and discussion. The results show significant differences for two of the three variables: depression, and perceived social support from family, while there was no significant difference for perceived social support from friends. The results suggest that chronically ill adolescents are more depressed and that they perceive that the social support they receive from their families is lower when compared to their healthy peers. Conclusion. The results of this study showed that chronically ill adolescents are more depressed than their healthy peers. This group of adolescents also perceives that they have less social support from their families than their healthy peers. When it comes to perceived social support from friends, these two groups do not differ. .
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7

Maas, Vera K., Frederik H. Dibbets, Vincent J. T. Peters, Bert R. Meijboom e Daniëlle van Bijnen. "The never-ending patient journey of chronically ill patients: A qualitative case study on touchpoints in relation to patient-centered care". PLOS ONE 18, n.º 5 (17 de maio de 2023): e0285872. http://dx.doi.org/10.1371/journal.pone.0285872.

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Background Healthcare professionals caring for chronically ill patients increasingly want to provide patient-centered care (PCC). By understanding each individual patient journey, they can significantly improve the quality of PCC. A patient journey consists of patient interactions, so-called touchpoints, with healthcare professionals distributed over three periods: pre-service, service, and post-service period. The aim of this study was to ascertain chronically ill patients’ needs for digital alternatives for touchpoints. Specifically, we aimed to explore which digital alternatives patients would like to see implemented into their patient journey to help healthcare professionals providing PCC. Methods Eight semi-structured interviews were conducted either face-to-face or via Zoom. Participants were included if they had visited the department of internal medicine and had received treatment for either arteriosclerosis, diabetes, HIV, or kidney failure. The interviews were analyzed utilizing a thematic analysis approach. Results The results suggest that the patient journey of chronically ill patients is a continuous cycle. Furthermore, the results showed that chronically ill patients would like to see digital alternatives for touchpoints implemented into their patient journey. These digital alternatives consisted of video calls, digitally checking in before a physical appointment, digitally self-monitoring one’s medical condition and personally uploading monitoring results into the patient portal, and viewing their own medical status in a digital format. Particularly, patients who were familiar with their healthcare professional(s) and were in a stable condition mostly opted for digital alternatives. Conclusion In the cyclical patient journey, digitalization can help put the wishes and needs of the chronically ill patients at the center of care. It is recommended that healthcare professionals implement digital alternatives for touchpoints. Most chronically ill patients consider digital alternatives to lead to more efficient interactions with their healthcare professionals. Furthermore, digital alternatives support patients to be better informed about the progress of their chronical illness.
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8

Mason, Marlys J., Debra L. Scammon e Robert P. Huefner. "Does Health Status Matter? Examining the Experiences of the Chronically Ill in Medicaid Managed Care". Journal of Public Policy & Marketing 21, n.º 1 (abril de 2002): 53–65. http://dx.doi.org/10.1509/jppm.21.1.53.17610.

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Managed care's promises of improved cost efficiency and continuity of care to the general population are being tested by the higher demands of Medicare and Medicaid populations, including many chronically ill individuals. By examining and comparing satisfaction among chronically ill and healthier enrollees and between Medicaid and non-Medicaid enrollees, the authors develop an understanding of how satisfaction among the chronically ill provides assessments that are important to all enrollees. The authors examine public policy initiatives in the context of the special needs of the chronically ill to determine whether the initiatives are likely to help generate improvements with respect to aspects of care and access that are most important to the chronically ill and ultimately to enrollees in general.
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9

Abraham, Jean M., Anne Beeson Royalty e Thomas DeLeire. "Measuring the Financial Exposure from Medical Care Spending Among Families with Employer Sponsored Insurance". Forum for Health Economics and Policy 16, n.º 1 (1 de janeiro de 2013): 193–217. http://dx.doi.org/10.1515/fhep-2012-0012.

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Abstract We develop an empirical method to assess the degree of financial exposure associated with medical care spending among non-elderly US families with employer-sponsored insurance. A key feature of this method is its simplicity – it only requires data on out-of-pocket (OOP) health care spending and total health care spending and does not require detailed knowledge of health insurance benefit design. We apply our method to assess whether families with a chronically ill member face more financial exposure given their level of total spending relative to families with no chronically ill members. We find that the insured chronically ill face more financial exposure than the insured non-chronically ill. Additional analyses suggest that the reason for this additional financial exposure is not that families with a chronically ill member are in different, less generous plans, on average. Rather, families with a chronically ill member have higher spending on certain types of medical services (e.g., pharmaceuticals) that face higher levels of coinsurance. Given recent work on value-based insurance design and coinsurance as an obstacle to medication adherence, our findings suggest that the current design of health plans could jeopardize both the health and the financial well-being of the chronically ill.
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10

Kodadek, Sheila M. "Working with the Chronically Ill". Nurse Practitioner 10, n.º 3 (março de 1985): 45–48. http://dx.doi.org/10.1097/00006205-198503000-00005.

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11

Kodadek, Sheila M. "Working with the Chronically Ill". Nurse Practitioner 10, n.º 3 (março de 1985): 45–48. http://dx.doi.org/10.1097/00006205-198510030-00005.

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12

Kilway, Denise, Joseph A. Skelton, Qun Xiang e Glenn Flores. "OVERWEIGHT, STRESSED, AND CHRONICALLY ILL". Journal of Pediatric Gastroenterology and Nutrition 43, n.º 4 (outubro de 2006): E63. http://dx.doi.org/10.1097/00005176-200610000-00186.

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13

Vane, Julia R. "Dealing With Chronically Ill Children". Contemporary Psychology: A Journal of Reviews 31, n.º 2 (fevereiro de 1986): 150–51. http://dx.doi.org/10.1037/024533.

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14

LEWINE, RICHARD. "Treating Chronically Mentally Ill Women". American Journal of Psychiatry 146, n.º 3 (março de 1989): 394—a—395. http://dx.doi.org/10.1176/ajp.146.3.394-a.

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15

Meleski, Debra D. "Families with Chronically Ill Children". American Journal of Nursing 102, n.º 5 (maio de 2002): 47–54. http://dx.doi.org/10.1097/00000446-200205000-00036.

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16

Lindsey, Elizabeth. "Experiences of the Chronically Ill". Journal of Holistic Nursing 15, n.º 3 (setembro de 1997): 227–42. http://dx.doi.org/10.1177/089801019701500304.

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17

Wanderer, Jonathan P., e Naveen Nathan. "Critically Ill, Then Chronically Painful". Anesthesia & Analgesia 127, n.º 3 (setembro de 2018): 590. http://dx.doi.org/10.1213/ane.0000000000003688.

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18

Harris, Juan-Diego. "Fatigue in chronically ill patients". Current Opinion in Supportive and Palliative Care 2, n.º 3 (setembro de 2008): 180–86. http://dx.doi.org/10.1097/spc.0b013e32830baed0.

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19

Cohen, A. J. "Caring for the chronically ill". Academic Medicine 73, n.º 12 (dezembro de 1998): 1261–6. http://dx.doi.org/10.1097/00001888-199812000-00015.

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20

Drexel-Fink, C., e F. Peters. "Contraception in Chronically ill Adolescents". Zentralblatt für Gynäkologie 124, n.º 10 (2002): 465–68. http://dx.doi.org/10.1055/s-2002-38913.

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21

Sochett, Etienne B., e Outi Mäkitie. "Osteoporosis in chronically ill children". Annals of Medicine 37, n.º 4 (junho de 2005): 286–94. http://dx.doi.org/10.1080/07853890510007250.

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22

Abareshi, Panteha. "Disabled, Chronically Ill, Severe Artist". Massachusetts Review 63, n.º 4 (dezembro de 2022): 681–92. http://dx.doi.org/10.1353/mar.2022.0100.

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23

Jaudes, Paula Kienberger. "Neglect of Chronically Ill Children". Archives of Pediatrics & Adolescent Medicine 140, n.º 7 (1 de julho de 1986): 655. http://dx.doi.org/10.1001/archpedi.1986.02140210053024.

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24

Singh, Maninder, P. S. James e Shirshendu Ganguli. "Managing employees with chronic illness". Human Resource Management International Digest 26, n.º 1 (8 de janeiro de 2018): 7–10. http://dx.doi.org/10.1108/hrmid-06-2017-0101.

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Purpose The purpose of this paper is to identify future directions for human resource managers to provide work accommodations to chronically ill employees. Design/methodology/approach The authors researched empirical studies in management, occupational health journals, and reports on chronically ill employees. Findings The paper provides research-based practical insights for human resource practitioners to deal with the growing number of chronically ill employees. Practical implications The paper highlights solutions for human resource managers to create an inclusive workplace for employees with chronic illness. Originality/value The authors identified effective human resource and health practices for chronically ill employees, which would help to increase their productivity.
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25

Xin, Haichang. "High-cost sharing policies and non-urgent emergency department visits". International Journal of Health Care Quality Assurance 31, n.º 7 (13 de agosto de 2018): 735–45. http://dx.doi.org/10.1108/ijhcqa-05-2017-0089.

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Purpose The purpose of this paper is to examine whether high-cost-sharing ambulatory care policies affect non-urgent emergency department (ED) care utilization differently among individuals with and without chronic conditions. Design/methodology/approach This retrospective cohort study used 2010–2011 US Medical Expenditure Panel Survey data. Difference-in-difference methods, multivariate logit model and survey procedures were employed. Time lag effect was used to address endogeneity concerns. Findings The sample included 4,347 individuals. Difference in non-urgent ED visits log odds between high- and low-cost-sharing policies was not significantly different between chronically ill and non-chronically ill individuals (β=−0.48, p=0.42). Sensitivity analysis with 15 and 25 percent cost-sharing levels also generated consistent insignificant results (p=0.33 and p=0.31, respectively). Ambulatory care incidence rates were not significantly different between high- and low-cost-sharing groups among chronically ill people (incidence rate ratio=0.849, p=0.069). Practical implications High-cost-sharing ambulatory care policies were not associated with increased non-urgent ED care utilization among chronically ill and healthy people. The chronically ill patients may have retained sizable ambulatory care that was necessary to maintain their health. Health plans or employers may consider low-level cost-sharing policies for ambulatory care among chronically ill enrollees or employees. Originality/value Findings contribute to insurance benefit design; i.e., whether high-cost-sharing ambulatory care policies should be implemented among chronically ill enrollees to maintain their health and save costs for health plans.
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26

Walęcka-Matyja, Katarzyna Kamila. "Family values vs parental involvement in families with a chronically ill child". Kwartalnik Naukowy Fides et Ratio 53, n.º 1 (28 de março de 2023): 47–61. http://dx.doi.org/10.34766/fetr.v53i1.1169.

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Introduction: The aim of the study was to determine the differences in family values and parental involvement in groups of parents raising a chronically ill child and a healthy child. In addition, it was checked whether family values allow predicting parental involvement. Method: The study was conducted using the CAWI method in a group of 160 adults, of whom 64 (40%) had a chronically ill child. Research tools with good psychometric properties were used: Familism Scale, Parental Involvement Questionnaire and a questionnaire. Results: It was found that mothers and fathers raising a chronically ill child achieved a statistically significantly higher intensity of the value expressed in striving for independence and self-sufficiency than parents of healthy children. Mothers raising a chronically ill child obtained statistically significantly higher scores in terms of general, valence and behavioural parental involvement than mothers raising a healthy child. Fathers raising a chronically ill child were characterized by lower scores in terms of general parental involvement, cognitive-emotional and behavioural involvement. In the group of parents raising a healthy child, as the value emphasizing the importance of material achievements increased, the intensity of the general parental involvement variable decreased. Conclusions: The results of the study complement the existing knowledge on selected psychological conditions of chronically ill children’s parents’ functioning.
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27

Baum, Ulrike, Eero Poukka, Arto A. Palmu, Heini Salo, Toni O. Lehtonen e Tuija Leino. "Effectiveness of vaccination against SARS-CoV-2 infection and Covid-19 hospitalisation among Finnish elderly and chronically ill—An interim analysis of a nationwide cohort study". PLOS ONE 16, n.º 11 (18 de novembro de 2021): e0258704. http://dx.doi.org/10.1371/journal.pone.0258704.

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Background In Finland, both mRNA and adenovirus vector (AdV) Covid-19 vaccines have been used after the vaccination campaign started on December 27, 2020. Vaccination of the elderly and chronically ill was prioritized and the interval between doses set to 12 weeks. The objective of this interim analysis was to evaluate first and second dose vaccine effectiveness (VE) in a real-world setting. Methods During the first five months of the campaign, a register-based cohort study was conducted in the Finnish elderly aged 70+ years and those aged 16–69 years with medical conditions predisposing to severe Covid-19 (chronically ill). Using Cox regression, VE against SARS-CoV-2 infection and Covid-19 hospitalisation was estimated comparing the hazard in the vaccinated with that in the unvaccinated. Results The cohorts included 901092 elderly (89% vaccinated) and 774526 chronically ill (69% vaccinated) individuals. Three weeks after the first dose, mRNA VE against infection was 45% (95% confidence interval, 36–53%) and 40% (26–51%) in elderly and chronically ill; mRNA VE against hospitalisation was 63% (49–74%) and 82% (56–93%). In chronically ill, AdV VE was 42% (32–50) and 62% (42–75%) against infection and hospitalisation, respectively. One week after the second dose, mRNA VE against infection was 75% (65–82%) and 77% (65–85%) in elderly and chronically ill; mRNA VE against hospitalisation was 93% (70–98%) and 90% (29–99%). Conclusions Covid-19 vaccines protect against SARS-CoV-2 infection and Covid-19 hospitalisation. A single dose provides moderate protection in elderly and chronically ill, although two doses are clearly superior.
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28

Sherif, T., T. Jehani, M. Saadani e A. W. Andejani. "Adult oncology and chronically ill patients: comparison of depression, anxiety and caregiver’s quality of life". Eastern Mediterranean Health Journal 7, n.º 3 (15 de setembro de 2001): 502–9. http://dx.doi.org/10.26719/2001.7.3.502.

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A diagnosis of cancer can be devastating for patients and their loved ones. We compared the intensity of anxiety and depression for 30 terminally ill cancer patients and 30 chronically ill patients and the quality of life of their most attendant caregivers. Hamilton depression and anxiety scales were used with the patients and the quality of life scale [family] was used with the caregivers. Cancer patients and their caregivers had significantly higher scores on these scales and suffered more from depression and anxiety than chronically ill patients and caregivers. Cancer patient caregivers also had poorer quality of life than did caregivers of the chronically ill.
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29

Putriana, Maria Magdalena Greda, Soetjipto, Hendy Muagiri Margono, Cornelia Santoso e Budi Kristiano. "Music Therapy for Chronically ill Patient". Jurnal Psikiatri Surabaya 11, n.º 1 (30 de maio de 2022): 47–53. http://dx.doi.org/10.20473/jps.v11i1.23379.

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Chornic illness puts a person at increased risk for developing anxiety or an anxiety disorder. Most often, chronic diseases are incurable, and treatment is focused primarily on the management of symptoms. Patients with chronic diseases commonly report fears of illness or symptoms recurring or worsening. The more this illness may consume a person’s life and thoughts, the more negativity tends to take over. Music can affect a person at psychological or emotional aspect during treatment of an illness or injury.
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30

Blackford, Karen A. "The Children of Chronically Ill Parents". Journal of Psychosocial Nursing and Mental Health Services 26, n.º 3 (março de 1988): 33–36. http://dx.doi.org/10.3928/0279-3695-19880301-10.

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31

Anonymous. "Care for the Chronically Mentally Ill". Journal of Psychosocial Nursing and Mental Health Services 26, n.º 9 (setembro de 1988): 7. http://dx.doi.org/10.3928/0279-3695-19880901-06.

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32

Anonymous. "Reassessing Treatment of Chronically Mentally Ill". Journal of Psychosocial Nursing and Mental Health Services 27, n.º 3 (março de 1989): 5. http://dx.doi.org/10.3928/0279-3695-19890301-03.

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33

Kieckhefer, Gail M., Nicholas Hobbs, James M. Perrin e Henry T. Ireys. "Chronically Ill Children and Their Families". American Journal of Nursing 86, n.º 8 (agosto de 1986): 975. http://dx.doi.org/10.2307/3425518.

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34

Allaire, Saralynn. "How a Chronically Ill Mother Manages". American Journal of Nursing 88, n.º 1 (janeiro de 1988): 46. http://dx.doi.org/10.2307/3425826.

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35

Cook, Judith A. "Who "Mothers" the Chronically Mentally Ill?" Family Relations 37, n.º 1 (janeiro de 1988): 42. http://dx.doi.org/10.2307/584428.

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36

Hamilton, Joan. "Comfort and the HOSPITALIZED CHRONICALLY ILL". Journal of Gerontological Nursing 15, n.º 4 (1 de abril de 1989): 28–33. http://dx.doi.org/10.3928/0098-9134-19890401-08.

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37

NARAYANASAMY, ARU. "Spiritual care of chronically ill patients". Journal of Clinical Nursing 4, n.º 6 (novembro de 1995): 397–98. http://dx.doi.org/10.1111/j.1365-2702.1995.tb00042.x.

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38

Nierman, David M., e Jeffrey I. Mechanick. "Hypotestosteronemia in chronically critically ill men". Critical Care Medicine 27, n.º 11 (novembro de 1999): 2418–21. http://dx.doi.org/10.1097/00003246-199911000-00016.

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Narayanasamy, Aru. "Spiritual care of chronically ill patients". British Journal of Nursing 5, n.º 7 (11 de abril de 1996): 411–16. http://dx.doi.org/10.12968/bjon.1996.5.7.411.

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STERLING-FISHER, CARMEN E. "Spiritual Care and Chronically ILL Clients". Home Healthcare Nurse: The Journal for the Home Care and Hospice Professional 16, n.º 4 (abril de 1998): 243–50. http://dx.doi.org/10.1097/00004045-199804000-00006.

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Winkelman, Chris, Patricia A. Higgins e Yea-Jyh Kathy Chen. "Activity in the Chronically Critically Ill". Dimensions of Critical Care Nursing 24, n.º 6 (novembro de 2005): 281–90. http://dx.doi.org/10.1097/00003465-200511000-00011.

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42

Allaire, Saralunn. "HOW A CHRONICALLY ILL MOTHER MANAGES". AJN, American Journal of Nursing 88, n.º 1 (janeiro de 1988): 46–49. http://dx.doi.org/10.1097/00000446-198801000-00018.

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43

Smith, H. "Chronically ill children with their families". Archives of Disease in Childhood 61, n.º 8 (1 de agosto de 1986): 824–25. http://dx.doi.org/10.1136/adc.61.8.824-b.

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44

Feshbach, Norma Deitch, e Barbara E. Nelms. "RXs for the Chronically Ill Child". Contemporary Psychology: A Journal of Reviews 33, n.º 1 (janeiro de 1988): 57–59. http://dx.doi.org/10.1037/025300.

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Grazier, Kyle L. "The Chronically Ill and Managed Care". Journal of Healthcare Management 43, n.º 6 (novembro de 1998): 477–79. http://dx.doi.org/10.1097/00115514-199811000-00004.

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46

Jacobs, Linda A. "Living with a Chronically Ill Child". American Journal of Nursing 102, n.º 5 (maio de 2002): 24A—24C. http://dx.doi.org/10.1097/00000446-200205000-00051.

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47

Flume, Patrick, Sue Gray, C. Michael Bowman, Cheryl Kerrigan, Mary Lester e Isabel Virella-Lowell. "Emergency Preparedness for the Chronically Ill". AJN, American Journal of Nursing 105, n.º 3 (março de 2005): 68–72. http://dx.doi.org/10.1097/00000446-200503000-00028.

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48

Martin, Sylvia S., Michael P. Brady e Joseph A. Kotarba. "Families with Chronically Ill Young Children". Remedial and Special Education 13, n.º 2 (março de 1992): 6–15. http://dx.doi.org/10.1177/074193259201300203.

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49

BAANDERS, A. N., F. ANDRIES, P. M. RIJKEN e J. DEKKER. "Work adjustments among the chronically ill". International Journal of Rehabilitation Research 24, n.º 1 (março de 2001): 7–14. http://dx.doi.org/10.1097/00004356-200103000-00002.

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50

Mayer, Jane B., Lissa Robins Kapust, Anita L. Mulcahey, Lynne Helfand, Andrea Neal Heinlein, Marsha Mailick Seltzer, Leon C. Litchfield e Richard J. Levin. "Empowering Families of the Chronically Ill". Social Work in Health Care 14, n.º 4 (15 de agosto de 1990): 73–90. http://dx.doi.org/10.1300/j010v14n04_07.

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