Bibliografias temáticas / Chronically ill children

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Literatura científica selecionada sobre o tema "Chronically ill children"

Autor: Grafiati

Publicado: 4 de junho de 2021

Última modificação: 29 de julho de 2024

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Artigos de revistas sobre o assunto "Chronically ill children"

Vane, Julia R. "Dealing With Chronically Ill Children". Contemporary Psychology: A Journal of Reviews 31, n.º 2 (fevereiro de 1986): 150–51. http://dx.doi.org/10.1037/024533.

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Meleski, Debra D. "Families with Chronically Ill Children". American Journal of Nursing 102, n.º 5 (maio de 2002): 47–54. http://dx.doi.org/10.1097/00000446-200205000-00036.

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Sochett, Etienne B., e Outi Mäkitie. "Osteoporosis in chronically ill children". Annals of Medicine 37, n.º 4 (junho de 2005): 286–94. http://dx.doi.org/10.1080/07853890510007250.

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Jaudes, Paula Kienberger. "Neglect of Chronically Ill Children". Archives of Pediatrics & Adolescent Medicine 140, n.º 7 (1 de julho de 1986): 655. http://dx.doi.org/10.1001/archpedi.1986.02140210053024.

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Blackford, Karen A. "The Children of Chronically Ill Parents". Journal of Psychosocial Nursing and Mental Health Services 26, n.º 3 (março de 1988): 33–36. http://dx.doi.org/10.3928/0279-3695-19880301-10.

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Kieckhefer, Gail M., Nicholas Hobbs, James M. Perrin e Henry T. Ireys. "Chronically Ill Children and Their Families". American Journal of Nursing 86, n.º 8 (agosto de 1986): 975. http://dx.doi.org/10.2307/3425518.

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Smith, H. "Chronically ill children with their families". Archives of Disease in Childhood 61, n.º 8 (1 de agosto de 1986): 824–25. http://dx.doi.org/10.1136/adc.61.8.824-b.

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Martin, Sylvia S., Michael P. Brady e Joseph A. Kotarba. "Families with Chronically Ill Young Children". Remedial and Special Education 13, n.º 2 (março de 1992): 6–15. http://dx.doi.org/10.1177/074193259201300203.

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Boling, Whitney. "The Health of Chronically Ill Children". Family & Community Health 28, n.º 2 (abril de 2005): 176–83. http://dx.doi.org/10.1097/00003727-200504000-00009.

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B. Reichenbach, Mary Ann. "Promoting Normalcy in Chronically ill Children". Orthopaedic Nursing 15, n.º 1 (janeiro de 1996): 37???42. http://dx.doi.org/10.1097/00006416-199601000-00008.

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Teses / dissertações sobre o assunto "Chronically ill children"

Fiala, Samuel E. "Camp counselors working with chronically ill children". Texas A&M University, 2005. http://hdl.handle.net/1969.1/3210.

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A growing body of empirical evidence suggests that attending specialized summer camps is beneficial for chronically ill youth (Briery & Rabian, 1999). However, there is some inconsistency across studies regarding these benefits (Hazzard & Angert, 1986). One potential explanation for these differences across camps is that they may differ in how well they recruit and train effective volunteer camp counselors. This possibility cannot be explored until more research is conducted identifying what type of person volunteers to work with chronically ill children and how they differ from others. In response to this gap in the research literature, the present study was conducted to examine characteristics of volunteer camp counselors (n =72), a group of nonvolunteers (n = 325), and a group of volunteer mentors (n = 194). Guided by Omoto and Snyders (1990) volunteer process model, the investigation explored how counselors differed from others in terms of dispositional variables, knowledge, and experience; and the relation between these individual characteristics and ratings of counselor efficacy was explored. Changes in counselors knowledge of and/or attitudes toward chronically ill children after their camp experience were also examined. Results suggest that camp counselors differ from others in terms of dispositional characteristics (e.g., attachment style), knowledge, and experience. Specifically, counselors displayed higher levels of agreeableness, greater attachment security, more knowledge of chronic illness, and greater experience with chronic illness than nonvolunteers. Efforts to predict which counselors would be rated as most effective were unsuccessful. Counselors knowledge of illness increased over the course of their camp experience.

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Lindström, Caisa. "Burnout in parents of chronically ill children". Doctoral thesis, Örebro universitet, Institutionen för hälsovetenskaper, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-47391.

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Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1DM (paper II), explore how mothers suffering from burnout describe their mothering of a child with diabetes, with special focus on their need for control and Performance-based self-esteem (PBSE) (paper IV), and to evaluate the effect of a group intervention aimed at reducing stress-related symptoms (paper III). A total of 251 parents of children with T1DM, 38 parents of children with IBD and 124 parents of healthy children participated in a population-based study (I, II). The validated Shirom-Melamed Burnout Questionnaire (SMBQ) was used to assess burnout. 16 parents (SMBQ ≥3.75) participated in a group intervention and were evaluated for changes in SMBQ and PBSE (III). A total of 21 mothers of children with T1DM who scored for clinical burnout (SMBQ) participated in a qualitative study. Semi-structured interviews were conducted and Inductive content analysis was used (IV). In the study group 36.0% parents of children with a chronic disease scored for clinical burnout (SMBQ ≥3.75) compared to 20.2% of the reference parents (p=0.001) with a preponderance of mothers compared to fathers, 42% vs. 20.5% (p=0.001), respectively (I). Less support from the social network, sleep disturbances and lack of personal leisure time and recovery seem to be important risk factors for clinical burnout in parents of children with T1DM, especially mothers (II). Mothers’ experiences of mothering a child with T1DM were interpreted as one theme; Mission impossible, illustrating the extremely difficult circumstances under which they bring up the child with diabetes to adulthood (IV). Parents’ subjective evaluation of the intervention group was mainly positive and SMBQ (p=0.01) and PBSE scale (p= 0.04) measurements were significantly reduced 6 months after completion of the intervention (III). It is important to pay attention to how parents and especially mothers experience their daily life in order to support those who are at risk of developing burnout.

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Fung, Shuk-man Amy. "Psychosocial risk and protective factors in chronic childhood illnesses : the case of thalassaemia major /". Hong Kong : University of Hong Kong, 1996. http://sunzi.lib.hku.hk/hkuto/record.jsp?B17390084.

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Driskill, Gail. "Chronically Ill Children: Maternal Stress and Psychological Symptomatology". Thesis, University of North Texas, 1995. https://digital.library.unt.edu/ark:/67531/metadc279114/.

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This study used a parenting stress and coping model to identify predictors of symptomatology for 13 8 mothers of medically compromised children. This model proposed that: child characteristics (severity of the chronic illness and child related parenting stressors); parent characteristics (self-esteem, sense of competence, and parents' perceived stress/distress); and environmental characteristics (social support, general life stressor events, and demographic variables) contribute to psychological symptomatology for these mothers. Multiple regression analysis found a relationship between general life stressor events, severity of the children's chronic conditions, lower satisfaction with social support, lower self-esteem, and younger mothers' ages and greater symptomatology. Trends toward significance were found for more parenting stress and lower parenting sense of competence predicting greater symptomatology. Predicted relationships between family socioeconomic status and parenting daily hassles and symptomatology were not supported.

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Lees, Nancy Berman. "The self-esteem of chronically ill adolescents". CSUSB ScholarWorks, 1991. https://scholarworks.lib.csusb.edu/etd-project/852.

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Rodak, Rina S. "Chronically and terminally ill children and medical decision-making". Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/MQ55708.pdf.

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Fritts, Sharon Louise. "The impact of chronic illness on the family, the educators, and the community : an ethnographic research study /". For electronic version search Digital dissertations database. Restricted to UC campuses. Access is free to UC campus dissertations, 2004. http://uclibs.org/PID/11984.

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Thesis (Ph. D.)--Joint Doctoral Program in Educational Leadership (California State University, Fresno and University of California, Davis).
Typescript. Includes bibliographical references. Also available via the World Wide Web. (Restricted to UC campuses)

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Thompson, Jacquelyn J. "How chronic illness affects family relationships and the individual". Online version, 2009. http://www.uwstout.edu/lib/thesis/2009/2009thompsonj.pdf.

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Myers, Basil Joseph. "School, hospital information exchange, boundary spanning for chronically ill children". Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1997. http://www.collectionscanada.ca/obj/s4/f2/dsk3/ftp04/nq20759.pdf.

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Ioannou, Chrissi. "Acute pain in chronically ill children : psychological assessment and intervention". Thesis, University of Leicester, 1992. http://hdl.handle.net/2381/34660.

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Five separate studies are reported on two groups of chronically ill children: children with end-stage renal failure who had received renal transplants and children with insulin dependent diabetes mellitus (IDDM). Assessment studies of both these groups investigated psychosocial factors influencing children's anxiety, pain and distress during venipunctures. Behavioural, cognitive and physiological measures of pain were used as well as standardized and structured interview questionnaires. The assessment studies involved 21 renal transplant children and 62 chidren with IDDM. The results found a revised version of the Observation Scale of Behavioural Distress to be a valid and reliable measure of children's distress during venipuncture. The predictor variables for children's distress in the transplant sample were the child's self-concept for social acceptance and the child's usual anxiety over injections. In the diabetic sample, the presence of emotional/conduct disorder, the child's usual anxiety over bloodtests and parent's rating of the child's usual anxiety over bloodtests were the three predictor variables for children's distress. Other significant psychosocial variables are discussed. Bloodtests were reported to be the most stressful aspect of the medical treatment by parents of children with renal transplants and by diabetic children. A pilot study is reported of cognitive-behavioural and hypnotic intervention with children in the transplant clinic. Cogntive-behavioural intervention was found to be effective in reducing distress during venipuncture in children aged four to seven years, following renal transplantation. With older children aged 6-16 years, both cognitive-behavioural and hypnotic intervention were effective in reducing diabetic children's distress. However, control groups appeared to improve following baseline observations, possibly as a result of non-specific factors such as attention and therapist presence. The results are discussed in relation to the literature on acute pain in children.

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Livros sobre o assunto "Chronically ill children"

Gray, Garwood S., ed. Chronically ill children. Austin, Tex: Pro-Ed, 1986.

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Gagne, Tammy. Ways to help chronically ill children. Hockessin, DE: Mitchell Lane Publishers, 2011.

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M, Perrin James, e Ireys Henry T, eds. Chronically ill children and their families. San Francisco: Jossey-Bass, 1985.

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W, Shayne May, e Bloom Sheila R, eds. Home and community care for chronically ill children. New York: Oxford University Press, 1993.

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Dempsey, Sharon. Extreme parenting: Parenting your chronically ill child. London: Jessica Kingsley Publishers, 2008.

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Oregon. Steering Committee on Children with Chronic Illness and their Families. e Northwest Instructional Design, eds. On the agenda: Oregon's chronically ill children and their families. Salem, Or: The Department, 1989.

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Scotland. Scottish Executive. Education Department. Guidance on education of children absent from school through ill-health. Edinburgh: Scottish Executive, 2001.

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Gordon, Maria. Challenges surrounding the education of children with chronic diseases. Hershey PA: Information Science Reference, 2016.

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Shabecoff, Philip. Poisoned for profit: How toxins are making our children chronically ill. White River Junction, Vt: Chelsea Green Pub., 2010.

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McKeever, Patricia Taylor. Mothering chronically-ill, technology-dependent children: An analysis using critical theory. [S.l: s.n.], 1991.

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Capítulos de livros sobre o assunto "Chronically ill children"

Colaluca, Beth, e Jonelle Ensign. "Assessing and Intervening with Chronically Ill Children". In Best Practices in School Neuropsychology, 693–736. Hoboken, NJ, USA: John Wiley & Sons, Inc., 2012. http://dx.doi.org/10.1002/9781118269855.ch27.

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Irons, Thomas G. "Loving the Chronically Ill Child: A Pediatrician’s Perspective". In Children And Health Care, 323–29. Dordrecht: Springer Netherlands, 1989. http://dx.doi.org/10.1007/978-0-585-27406-5_27.

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Miller-Smith, Laura, Ásdís Finnsdóttir Wagner e John D. Lantos. "Chronically Critically Ill with Technological Dependence". In Bioethics in the Pediatric ICU: Ethical Dilemmas Encountered in the Care of Critically Ill Children, 93–109. Cham: Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-030-00943-4_7.

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Tew, Kristi. "Filial Therapy with Parents of Chronically Ill Children". In Child-Centered Play Therapy Research, 295–309. Hoboken, NJ, USA: John Wiley & Sons, Inc., 2012. http://dx.doi.org/10.1002/9781118269626.ch16.

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Johnson, Melissa R., e Jennifer L. Kreimer. "Guided Fantasy Play for Chronically Ill Children: A Critical Review." In Empirically based play interventions for children., 105–22. Washington: American Psychological Association, 2005. http://dx.doi.org/10.1037/11086-006.

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Jones, Elizabeth Murphy, e Kara Carnes-Holt. "The Efficacy of Intensive Individual Child-Centered Play Therapy for Chronically Ill Children". In Child-Centered Play Therapy Research, 51–67. Hoboken, NJ, USA: John Wiley & Sons, Inc., 2012. http://dx.doi.org/10.1002/9781118269626.ch3.

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Lennon, Jaclyn M., Alexandra M. Psihogios, Caitlin B. Murray, Christina E. Holbein e Grayson N. Holmbeck. "Promoting Resilience During the Transition to Adolescence in Chronically Ill Children and Their Families". In Child and Adolescent Resilience Within Medical Contexts, 51–75. Cham: Springer International Publishing, 2016. http://dx.doi.org/10.1007/978-3-319-32223-0_4.

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Svavarsdottir, E. K. "Quality of Life in Healthy and Chronically Ill Icelandic Children: Agreement Between Child’s Self-Report and Parents’ Proxy-Report". In Handbook of Disease Burdens and Quality of Life Measures, 2483–502. New York, NY: Springer New York, 2010. http://dx.doi.org/10.1007/978-0-387-78665-0_145.

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Lee, Steven W., e Thomas P. Guck. "Parenting Chronically Ill Children". In Handbook of Diversity in Parent Education, 277–97. Elsevier, 2001. http://dx.doi.org/10.1016/b978-012256483-3/50014-9.

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Brown, Ronald T., e Michelle Macias. "Chronically Ill Children and Adolescents". In Handbook of Psychological Services for Children and Adolescents, 353–72. Oxford University Press, 2001. http://dx.doi.org/10.1093/med:psych/9780195125238.003.0017.

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Trabalhos de conferências sobre o assunto "Chronically ill children"

Maier, Edith, Pascale Baer-Baldauf, Peter Jaeschke, Ulrich Reimer e Tom Ulmer. "Continuous real-time remote monitoring of severely or chronically ill children". In The 18th international symposium on health information management research. Linnaeus University Press, 2022. http://dx.doi.org/10.15626/ishimr.2020.12.

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Compared to parents of healthy children, parents of severely or chronically ill children have significantly worse physical and mental health and a lower quality of life, e.g. because of lack of sleep. The proposed solution aims at assisting caregivers by means of a remote monitoring service run by professional nursing staff which should allow parents to get a good night’s sleep. A smart algorithm has been developed to detect if a particular parameter (heart rate, respiration rate or oxygen saturation) has exceeded a pre-defined threshold and thus may imply an emergency. Parents are only alerted after a professional nurse in the monitoring centre has cross-checked vital parameter trends and carried out an audio-visual inspection. The quality and accuracy of the system has been validated through iterative testing including a test performed in a children’s hospital to ensure that the monitoring system is not inferior to a hospital set-up.

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Wijngaarde, Ricardo O., Faisal Ahmed, Reema Mujey, Shelna Aisath e Dirk T. Ubbink. "296 Baseline measurement of shared decision-making with chronically ill children in the Maldives". In 12th International Shared Decision Making Conference. BMJ Publishing Group Ltd, 2024. http://dx.doi.org/10.1136/bmjebm-2024-sdc.295.

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Zybarth, David, Maike Heiser e Laura Inhestern. "315 Healthcare professionals’ perspective on participation and shared decision making among chronically ill children and their parents: an interview study". In 12th International Shared Decision Making Conference. BMJ Publishing Group Ltd, 2024. http://dx.doi.org/10.1136/bmjebm-2024-sdc.314.

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