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Bibliografias temáticas / Chronically ill

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Literatura científica selecionada sobre o tema "Chronically ill"

Autor: Grafiati

Publicado: 4 de junho de 2021

Última modificação: 29 de julho de 2024

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Artigos de revistas sobre o assunto "Chronically ill"

1

Rego, Mark D. "On Being Chronically Ill". American Journal of Psychiatry 172, n.º 6 (junho de 2015): 510–11. http://dx.doi.org/10.1176/appi.ajp.2015.15020165.

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JELLINEK, MICHAEL S. "The Chronically Ill Child". Pediatric News 39, n.º 3 (março de 2005): 23. http://dx.doi.org/10.1016/s0031-398x(05)70035-7.

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&NA;. "The Chronically Critically Ill". Journal of Hospice & Palliative Nursing 10, n.º 2 (março de 2008): 89–90. http://dx.doi.org/10.1097/01.njh.0000306733.24097.22.

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4

Koesel, Niki. "The Chronically Critically Ill". Journal of Hospice & Palliative Nursing 10, n.º 2 (março de 2008): 83–88. http://dx.doi.org/10.1097/01.njh.0000306735.31721.6e.

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5

Cutler, David L. "The chronically mentally ill". Community Mental Health Journal 21, n.º 1 (1985): 3–13. http://dx.doi.org/10.1007/bf00754702.

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Nisevic, Sanja. "The importance of social support to chronically ill adolescents". Medical review 59, n.º 7-8 (2006): 331–34. http://dx.doi.org/10.2298/mpns0608331n.

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Introduction. Improvements in medicine have significantly prolonged life of chronically ill children and adolescents in the past several decades. There is a great variability in adaptation to illness among chronically ill persons - some of them seem to be very well adapted, with almost no problems. However, research results suggest that chronically ill children are more likely to have psychological problems than their healthy peers. Material and methods. Eighty-four subjects, all elementary school pupils, participated in the study. The first group included adolescents with chronical illness (malignant illness, insulin dependent diabetes mellitus, epilepsy, or asthma), and the second their healthy peers. Depression and social support were evaluated. The Birleson's Depression Scale and Perceived Social Support Scales (forms for friends and for family members) were used. Results and discussion. The results show significant differences for two of the three variables: depression, and perceived social support from family, while there was no significant difference for perceived social support from friends. The results suggest that chronically ill adolescents are more depressed and that they perceive that the social support they receive from their families is lower when compared to their healthy peers. Conclusion. The results of this study showed that chronically ill adolescents are more depressed than their healthy peers. This group of adolescents also perceives that they have less social support from their families than their healthy peers. When it comes to perceived social support from friends, these two groups do not differ. .

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Maas, Vera K., Frederik H. Dibbets, Vincent J. T. Peters, Bert R. Meijboom e Daniëlle van Bijnen. "The never-ending patient journey of chronically ill patients: A qualitative case study on touchpoints in relation to patient-centered care". PLOS ONE 18, n.º 5 (17 de maio de 2023): e0285872. http://dx.doi.org/10.1371/journal.pone.0285872.

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Background Healthcare professionals caring for chronically ill patients increasingly want to provide patient-centered care (PCC). By understanding each individual patient journey, they can significantly improve the quality of PCC. A patient journey consists of patient interactions, so-called touchpoints, with healthcare professionals distributed over three periods: pre-service, service, and post-service period. The aim of this study was to ascertain chronically ill patients’ needs for digital alternatives for touchpoints. Specifically, we aimed to explore which digital alternatives patients would like to see implemented into their patient journey to help healthcare professionals providing PCC. Methods Eight semi-structured interviews were conducted either face-to-face or via Zoom. Participants were included if they had visited the department of internal medicine and had received treatment for either arteriosclerosis, diabetes, HIV, or kidney failure. The interviews were analyzed utilizing a thematic analysis approach. Results The results suggest that the patient journey of chronically ill patients is a continuous cycle. Furthermore, the results showed that chronically ill patients would like to see digital alternatives for touchpoints implemented into their patient journey. These digital alternatives consisted of video calls, digitally checking in before a physical appointment, digitally self-monitoring one’s medical condition and personally uploading monitoring results into the patient portal, and viewing their own medical status in a digital format. Particularly, patients who were familiar with their healthcare professional(s) and were in a stable condition mostly opted for digital alternatives. Conclusion In the cyclical patient journey, digitalization can help put the wishes and needs of the chronically ill patients at the center of care. It is recommended that healthcare professionals implement digital alternatives for touchpoints. Most chronically ill patients consider digital alternatives to lead to more efficient interactions with their healthcare professionals. Furthermore, digital alternatives support patients to be better informed about the progress of their chronical illness.

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Mason, Marlys J., Debra L. Scammon e Robert P. Huefner. "Does Health Status Matter? Examining the Experiences of the Chronically Ill in Medicaid Managed Care". Journal of Public Policy & Marketing 21, n.º 1 (abril de 2002): 53–65. http://dx.doi.org/10.1509/jppm.21.1.53.17610.

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Managed care's promises of improved cost efficiency and continuity of care to the general population are being tested by the higher demands of Medicare and Medicaid populations, including many chronically ill individuals. By examining and comparing satisfaction among chronically ill and healthier enrollees and between Medicaid and non-Medicaid enrollees, the authors develop an understanding of how satisfaction among the chronically ill provides assessments that are important to all enrollees. The authors examine public policy initiatives in the context of the special needs of the chronically ill to determine whether the initiatives are likely to help generate improvements with respect to aspects of care and access that are most important to the chronically ill and ultimately to enrollees in general.

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Abraham, Jean M., Anne Beeson Royalty e Thomas DeLeire. "Measuring the Financial Exposure from Medical Care Spending Among Families with Employer Sponsored Insurance". Forum for Health Economics and Policy 16, n.º 1 (1 de janeiro de 2013): 193–217. http://dx.doi.org/10.1515/fhep-2012-0012.

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Abstract We develop an empirical method to assess the degree of financial exposure associated with medical care spending among non-elderly US families with employer-sponsored insurance. A key feature of this method is its simplicity – it only requires data on out-of-pocket (OOP) health care spending and total health care spending and does not require detailed knowledge of health insurance benefit design. We apply our method to assess whether families with a chronically ill member face more financial exposure given their level of total spending relative to families with no chronically ill members. We find that the insured chronically ill face more financial exposure than the insured non-chronically ill. Additional analyses suggest that the reason for this additional financial exposure is not that families with a chronically ill member are in different, less generous plans, on average. Rather, families with a chronically ill member have higher spending on certain types of medical services (e.g., pharmaceuticals) that face higher levels of coinsurance. Given recent work on value-based insurance design and coinsurance as an obstacle to medication adherence, our findings suggest that the current design of health plans could jeopardize both the health and the financial well-being of the chronically ill.

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Kodadek, Sheila M. "Working with the Chronically Ill". Nurse Practitioner 10, n.º 3 (março de 1985): 45–48. http://dx.doi.org/10.1097/00006205-198503000-00005.

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Teses / dissertações sobre o assunto "Chronically ill"

1

Coppa, Kay. "Self-help groups in the Hunter region : a qualitative study of their role in chronic illness management /". [St. Lucia, Qld. : s.n.], 2002. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe16644.pdf.

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Stanberry-Beall, Jenny Kay. "Building a case for lifespan respite the effects of formal respite care on caregivers of family members with chronic dependencies /". Access to citation, abstract and download form provided by ProQuest Information and Learning Company; downloadable PDF file, 242 p, 2007. http://proquest.umi.com/pqdweb?did=1251902551&sid=1&Fmt=2&clientId=8331&RQT=309&VName=PQD.

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Fiala, Samuel E. "Camp counselors working with chronically ill children". Texas A&M University, 2005. http://hdl.handle.net/1969.1/3210.

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A growing body of empirical evidence suggests that attending specialized summer camps is beneficial for chronically ill youth (Briery & Rabian, 1999). However, there is some inconsistency across studies regarding these benefits (Hazzard & Angert, 1986). One potential explanation for these differences across camps is that they may differ in how well they recruit and train effective volunteer camp counselors. This possibility cannot be explored until more research is conducted identifying what type of person volunteers to work with chronically ill children and how they differ from others. In response to this gap in the research literature, the present study was conducted to examine characteristics of volunteer camp counselors (n =72), a group of nonvolunteers (n = 325), and a group of volunteer mentors (n = 194). Guided by Omoto and Snyders (1990) volunteer process model, the investigation explored how counselors differed from others in terms of dispositional variables, knowledge, and experience; and the relation between these individual characteristics and ratings of counselor efficacy was explored. Changes in counselors knowledge of and/or attitudes toward chronically ill children after their camp experience were also examined. Results suggest that camp counselors differ from others in terms of dispositional characteristics (e.g., attachment style), knowledge, and experience. Specifically, counselors displayed higher levels of agreeableness, greater attachment security, more knowledge of chronic illness, and greater experience with chronic illness than nonvolunteers. Efforts to predict which counselors would be rated as most effective were unsuccessful. Counselors knowledge of illness increased over the course of their camp experience.

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4

Lindström, Caisa. "Burnout in parents of chronically ill children". Doctoral thesis, Örebro universitet, Institutionen för hälsovetenskaper, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-47391.

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Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1DM (paper II), explore how mothers suffering from burnout describe their mothering of a child with diabetes, with special focus on their need for control and Performance-based self-esteem (PBSE) (paper IV), and to evaluate the effect of a group intervention aimed at reducing stress-related symptoms (paper III). A total of 251 parents of children with T1DM, 38 parents of children with IBD and 124 parents of healthy children participated in a population-based study (I, II). The validated Shirom-Melamed Burnout Questionnaire (SMBQ) was used to assess burnout. 16 parents (SMBQ ≥3.75) participated in a group intervention and were evaluated for changes in SMBQ and PBSE (III). A total of 21 mothers of children with T1DM who scored for clinical burnout (SMBQ) participated in a qualitative study. Semi-structured interviews were conducted and Inductive content analysis was used (IV). In the study group 36.0% parents of children with a chronic disease scored for clinical burnout (SMBQ ≥3.75) compared to 20.2% of the reference parents (p=0.001) with a preponderance of mothers compared to fathers, 42% vs. 20.5% (p=0.001), respectively (I). Less support from the social network, sleep disturbances and lack of personal leisure time and recovery seem to be important risk factors for clinical burnout in parents of children with T1DM, especially mothers (II). Mothers’ experiences of mothering a child with T1DM were interpreted as one theme; Mission impossible, illustrating the extremely difficult circumstances under which they bring up the child with diabetes to adulthood (IV). Parents’ subjective evaluation of the intervention group was mainly positive and SMBQ (p=0.01) and PBSE scale (p= 0.04) measurements were significantly reduced 6 months after completion of the intervention (III). It is important to pay attention to how parents and especially mothers experience their daily life in order to support those who are at risk of developing burnout.

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5

Elzen, Henrike Anje. "Self-management for chronically ill older people". [S.l. : [Groningen : s.n.] ; University Library Groningen] [Host], 2006. http://irs.ub.rug.nl/ppn/297661620.

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Lees, Nancy Berman. "The self-esteem of chronically ill adolescents". CSUSB ScholarWorks, 1991. https://scholarworks.lib.csusb.edu/etd-project/852.

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Fung, Shuk-man Amy. "Psychosocial risk and protective factors in chronic childhood illnesses : the case of thalassaemia major /". Hong Kong : University of Hong Kong, 1996. http://sunzi.lib.hku.hk/hkuto/record.jsp?B17390084.

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Steuten, Lotte Maria Gertruda. "Evaluation of disease management programmes for chronically ill". Maastricht : Maastricht : UPM, Universitaire Pers Maastricht ; University Library, Maastricht University [Host], 2006. http://arno.unimaas.nl/show.cgi?fid=7668.

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9

Turner, Roxanne. "Depression in older persons who are chronically ill". DigitalCommons@Robert W. Woodruff Library, Atlanta University Center, 1990. http://digitalcommons.auctr.edu/dissertations/1471.

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This study explores the severity of depression in older persons who are chronically ill. The study was an attempt to determine if there is a significant relationship between four independent variables—family support, social support, marital status, and gender. The study was conducted while respondents were hospitalized at Clayton General Hospital. The research concluded that most older chronically ill persons were not depressed or were only mildly depressed. Significant factors were gender. Females reported more incidence of depression than males and single respondents reported higher incidences of depression than married persons. Suggestions for identifying depression in older persons were indicated and implications for social work practice for working with this unique population were discussed.

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Driskill, Gail. "Chronically Ill Children: Maternal Stress and Psychological Symptomatology". Thesis, University of North Texas, 1995. https://digital.library.unt.edu/ark:/67531/metadc279114/.

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This study used a parenting stress and coping model to identify predictors of symptomatology for 13 8 mothers of medically compromised children. This model proposed that: child characteristics (severity of the chronic illness and child related parenting stressors); parent characteristics (self-esteem, sense of competence, and parents' perceived stress/distress); and environmental characteristics (social support, general life stressor events, and demographic variables) contribute to psychological symptomatology for these mothers. Multiple regression analysis found a relationship between general life stressor events, severity of the children's chronic conditions, lower satisfaction with social support, lower self-esteem, and younger mothers' ages and greater symptomatology. Trends toward significance were found for more parenting stress and lower parenting sense of competence predicting greater symptomatology. Predicted relationships between family socioeconomic status and parenting daily hassles and symptomatology were not supported.

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Livros sobre o assunto "Chronically ill"

1

Gray, Garwood S., ed. Chronically ill children. Austin, Tex: Pro-Ed, 1986.

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2

McClelland, Nelson. Aged, disabled & chronically ill: Report. Yellowknife, N.W.T: Dept. of Health, 1987.

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3

L, Bachrach Leona, e Nadelson Carol C, eds. Treating chronically mentally ill women. Washington, D.C: American Psychiatric Press, 1988.

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4

Maryland Health Resources Planning Commission., ed. The Chronically mentally ill in Maryland. [Baltimore, Md.]: MHRPC, Division of Health Systems Planning, 1987.

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5

Gagne, Tammy. Ways to help chronically ill children. Hockessin, DE: Mitchell Lane Publishers, 2011.

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6

M, Perrin James, e Ireys Henry T, eds. Chronically ill children and their families. San Francisco: Jossey-Bass, 1985.

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7

Dempsey, Sharon. Extreme parenting: Parenting your chronically ill child. London: Jessica Kingsley Publishers, 2008.

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8

E, Gerber Kenneth, e Nehemkis Alexis M, eds. Compliance: The dilemma of the chronically ill. New York: Springer Pub. Co., 1986.

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9

Dempsey, Sharon. Extreme parenting: Parenting your chronically ill child. London: Jessica Kingsley Publishers, 2008.

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10

W, Shayne May, e Bloom Sheila R, eds. Home and community care for chronically ill children. New York: Oxford University Press, 1993.

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Capítulos de livros sobre o assunto "Chronically ill"

1

Glynn, Shirley M. "The Chronically Mentally Ill". In Research in Psychiatry, 445–60. Boston, MA: Springer US, 1992. http://dx.doi.org/10.1007/978-1-4899-0688-5_18.

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2

Carson, Shannon S., e Kathleen Dalton. "The Chronically Critically Ill". In The Organization of Critical Care, 197–216. New York, NY: Springer New York, 2014. http://dx.doi.org/10.1007/978-1-4939-0811-0_13.

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Melamed, Barbara G. "Parenting the Chronically Ill Infant". In Parenthood and Mental Health, 277–88. Chichester, UK: John Wiley & Sons, Ltd, 2010. http://dx.doi.org/10.1002/9780470660683.ch25.

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Flemming, Carol. "Hope for the Chronically Ill". In The Other Side of Medical Care, 97–108. London: Macmillan Education UK, 1986. http://dx.doi.org/10.1007/978-1-349-18179-7_9.

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Mitler, Merrill M., Steven Poceta, Stuart J. Menn e Milton K. Erman. "Insomnia in the Chronically Ill". In Case Studies in Insomnia, 223–36. Boston, MA: Springer US, 1991. http://dx.doi.org/10.1007/978-1-4757-9586-8_14.

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Paul, Thomas, e Andreas Thiel. "Treatment of Chronically Ill Patients". In Handbook of Eating Disorders and Obesity, 391–96. Berlin, Heidelberg: Springer Berlin Heidelberg, 2024. http://dx.doi.org/10.1007/978-3-662-67662-2_52.

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Shore, Miles F., e Martin D. Cohen. "Homelessness and the Chronically Mentally Ill". In Homelessness, 67–75. Boston, MA: Springer US, 1992. http://dx.doi.org/10.1007/978-1-4899-0679-3_6.

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Rinnenburger, Dagmar. "The Strain of Being Chronically Ill". In Chronicity, 21–24. Cham: Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-66873-0_4.

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Miller-Smith, Laura, Ásdís Finnsdóttir Wagner e John D. Lantos. "Chronically Critically Ill with Technological Dependence". In Bioethics in the Pediatric ICU: Ethical Dilemmas Encountered in the Care of Critically Ill Children, 93–109. Cham: Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-030-00943-4_7.

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Colaluca, Beth, e Jonelle Ensign. "Assessing and Intervening with Chronically Ill Children". In Best Practices in School Neuropsychology, 693–736. Hoboken, NJ, USA: John Wiley & Sons, Inc., 2012. http://dx.doi.org/10.1002/9781118269855.ch27.

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Trabalhos de conferências sobre o assunto "Chronically ill"

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Mack, Kelly, Emma J. McDonnell, Leah Findlater e Heather D. Evans. "Chronically Under-Addressed: Considerations for HCI Accessibility Practice with Chronically Ill People". In ASSETS '22: The 24th International ACM SIGACCESS Conference on Computers and Accessibility. New York, NY, USA: ACM, 2022. http://dx.doi.org/10.1145/3517428.3544803.

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2

Batista, Susana, e Rosa Martins. "Personality and Suffering in the Hospitalized Chronically Ill". In 2nd icH&Hpsy International Conference on Health and Health Psychology. Cognitive-crcs, 2016. http://dx.doi.org/10.15405/epsbs.2016.07.02.41.

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Jurenikova, Petra. "COMPLIANCE OF CHRONICALLY ILL PATIENTS BEFORE STARTING AN EDUCATIONAL PROCESS". In 6th SWS International Scientific Conference on Social Sciences ISCSS 2019. STEF92 Technology, 2019. http://dx.doi.org/10.5593/sws.iscss.2019.3/s12.056.

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Desai, A., L. Rho e J. Nelson. "Helping the Chronically Critically Ill To Communicate: Speaking Valve Pilot Trial." In American Thoracic Society 2009 International Conference, May 15-20, 2009 • San Diego, California. American Thoracic Society, 2009. http://dx.doi.org/10.1164/ajrccm-conference.2009.179.1_meetingabstracts.a3083.

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Maier, Edith, Pascale Baer-Baldauf, Peter Jaeschke, Ulrich Reimer e Tom Ulmer. "Continuous real-time remote monitoring of severely or chronically ill children". In The 18th international symposium on health information management research. Linnaeus University Press, 2022. http://dx.doi.org/10.15626/ishimr.2020.12.

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Compared to parents of healthy children, parents of severely or chronically ill children have significantly worse physical and mental health and a lower quality of life, e.g. because of lack of sleep. The proposed solution aims at assisting caregivers by means of a remote monitoring service run by professional nursing staff which should allow parents to get a good night’s sleep. A smart algorithm has been developed to detect if a particular parameter (heart rate, respiration rate or oxygen saturation) has exceeded a pre-defined threshold and thus may imply an emergency. Parents are only alerted after a professional nurse in the monitoring centre has cross-checked vital parameter trends and carried out an audio-visual inspection. The quality and accuracy of the system has been validated through iterative testing including a test performed in a children’s hospital to ensure that the monitoring system is not inferior to a hospital set-up.

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Ciudad Gutierrez, P., A. Rodríguez Pérez, L. Rodríguez De Francisco, P. Suárez Casillas, M. Espinosa Malpartida, S. Lora e E. Hevia Álvarez. "4CPS-032 Pharmaceutical interventions for medication reconciliation in complex chronically ill patients". In 28th EAHP Congress, Bordeaux, France, 20-21-22 March 2024. British Medical Journal Publishing Group, 2024. http://dx.doi.org/10.1136/ejhpharm-2024-eahp.136.

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Laverman, M., J. H. M. Schonk, P. J. M. van der Boog e M. A. Neerincx. "Personalized and contextualized information in self-management systems for chronically ill patients (PERISCOPE)". In the 28th Annual European Conference. New York, New York, USA: ACM Press, 2010. http://dx.doi.org/10.1145/1962300.1962370.

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Mihovska, Albena, Sofoklis A. Kyriazakos e Ramjee Prasad. "eWall for active long living: Assistive ICT services for chronically ill and elderly citizens". In 2014 IEEE International Conference on Systems, Man and Cybernetics - SMC. IEEE, 2014. http://dx.doi.org/10.1109/smc.2014.6974251.

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Jian, Yuan, Tan Kok Kiong e Lee Tong Heng. "Development of an e-Guardian for the Single Elderly or the Chronically-Ill Patients". In 2010 International Conference on Communications and Mobile Computing (CMC). IEEE, 2010. http://dx.doi.org/10.1109/cmc.2010.167.

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Wijngaarde, Ricardo O., Faisal Ahmed, Reema Mujey, Shelna Aisath e Dirk T. Ubbink. "296 Baseline measurement of shared decision-making with chronically ill children in the Maldives". In 12th International Shared Decision Making Conference. BMJ Publishing Group Ltd, 2024. http://dx.doi.org/10.1136/bmjebm-2024-sdc.295.

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Relatórios de organizações sobre o assunto "Chronically ill"

1

Albers, Karen. A Study of Multnomah County community support services for the chronically mentally ill. Portland State University Library, janeiro de 2000. http://dx.doi.org/10.15760/etd.5294.

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2

Stanek, Richard. Residential Options for the Institutionalized Chronically Mentally Ill: The Impact of Psychosis on Choice. Portland State University Library, janeiro de 2000. http://dx.doi.org/10.15760/etd.6515.

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Brubaker, Tom. A descriptive study of demography & transportation issues of chronically mentally ill in the eastern Oregon comprehensive community mental health catchment area. Portland State University Library, janeiro de 2000. http://dx.doi.org/10.15760/etd.2812.

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Homan, Rick, e Catherine Searle. Programmatic implications of a cost study of home-based care programs in South Africa. Population Council, 2005. http://dx.doi.org/10.31899/hiv14.1001.

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The HIV/AIDS epidemic has meant that an increasing number of chronically ill people need ongoing assistance with care and support. Programs providing home-based care (HBC) services are a key component of the response to HIV/AIDS. However, few programs are using operations research, including cost studies, to decide what services to provide and how to structure their services. In 2004, the Horizons Program undertook a study of six HBC programs from different South African provinces to provide key information to NGOs, government ministries, donors, and the programs themselves to inform decisions about service delivery. The study analyzed the cost of HBC services, the best use of resources, and how well programs are able to meet the needs of beneficiaries and their families. The sample represents programs that operate in rural areas and informal settlements. This brief focuses on the coverage, organization, volume, and costs of the services and on findings from two of the methods of data collection: financial records and service statistics, and interviews with financial officers, program managers, and caregivers.

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