Artykuły w czasopismach: „Terminally ill”

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Cecconello, Leonardo, Emelly Gabriele Erbs i Letícia Geisler. "Ethical conduct and terminal care". Revista Bioética 30, nr 2 (czerwiec 2022): 405–12. http://dx.doi.org/10.1590/1983-80422022302536en.

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Abstract Given its peculiarities, terminality highlights the need for an individualization of the therapeutic plan and integrality of assistance in health care. This article analyzed 23 scientific publications with thematics related to terminality and palliative care and discussed the therapeutic approach to the terminally ill patient and the incorporation of different integral practices in health. We sought to evidence that recognizing the characteristics of terminality makes it possible to establish the adequate prognostic study and implement a plan of care that supplies the necessities of the terminally ill patient, with care based of bioethical principles, respecting the will and particularities of the individual. We conclude that the palliative care constitutes an important instrument in managing biopsychosocial and spiritual angst of terminally ill people, by making ample assistance in care possible, promoting dignity, minimizing suffering, and bettering the quality of life of these patients and their families.

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Gauba, Anu. "PSYCHOLOGICAL ISSUES WITH TERMINALLY ILL PATIENTS". International Journal of Advanced Research 11, nr 12 (31.12.2023): 309–10. http://dx.doi.org/10.21474/ijar01/17988.

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Terminally ill patients may be sophisticated and/or demanding health care consumers they also may be bitter, cynical, and difficult to engage in conversation. Terminally ill patients often are on complicated drug regimens requiring detailed instruction and monitoring. Treat terminally ill patients with respect and work with them to achieve optimal therapeutic efficacy within the complexities of their illnesses and the health care environment. Terminally ill patients may need help dealing withcomplex medication regimens. Terminally ill patients need close monitoring and reassurance about their medication regimens. Some terminally ill patients require large and frequent doses of narcotics work with the patient and the patientâ€™s family to legitimize the use of these medications and minimize the hassles associated with obtaining narcotics.

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Afia Kwakyewaa Owusu-Agyeman, Eric Tornu, Abdulai Abdul Malik, Catherine Kyiu, Faustina Yin Yariga, Safura Seidu, Ababio-Boamah Christopher, Ofei Philemon Ashirifie i Owusu Samuel. "KNOWLEDGE AND PRACTICES OF FAMILY CAREGIVERS OF TERMINALLY ILL PATIENTS AT THE TAMALE REGIONAL HOSPITAL". EPH - International Journal of Science And Engineering 9, nr 3 (21.12.2023): 59–76. http://dx.doi.org/10.53555/ephijse.v9i3.221.

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The goal of this study was to evaluate the knowledge of family Caregivers in caring for terminally ill sufferers, to assess the practices of household Caregivers in caring for terminally ill sufferers, to examine the factors affecting household Caregivers in caring for terminally ill sufferers at the Tamale Regional Hospital. The findings show that there is the need for a caregiver to be present and ready to offer help to the patients due to their inability to move. Terminally ill patients may mostly be immobile or incapable of performing basic life functions without external support. It appears from the engagement with respondents that, the latter have appreciable knowledge of the concept of palliative care and care for terminally ill patients. They understand the challenging situation of terminally ill patients and are equally aware of what constitutes care for the sufferer. Also, family caregiver showed evidence of knowledge of health workers role in palliative care. They indicated that health workers had a crucial role to play in giving palliative care to the terminally ill patient. Doctors had the responsibility of prescribing medications while nurses also educate relatives and caregivers on palliative care. More so, health workers assisted in the caring of patients by assisting caregivers to physically move patients. Caregivers who could not move their patients due to the latters weight had to be assisted by some health workers. The result also indicates health workers played a crucial role in caring for terminally ill patients, of which caregivers were aware. The study further found that the other effect of caring for terminally ill patients was financial demands. To overcome this burden, the study recommends that caregivers had to cut their expenditures and request financial support from relatives and friends as family support was also a mechanism used in coping with the burden of caring for terminally ill patients. Also, the Tamale Regional Hospital should incorporate the services of family caregivers in the care of terminally ill patients. Their competence would immensely contribute to the improvement in the health of terminally ill patients. Further, the Ministry of Health should develop policies that will lessen burden on family caregivers of patients suffering from terminal diseases.

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Laporte, Pauline, Typhaine Juvet, Jean-François Desbiens, Diane Tapp, Jérôme Pasquier i Marc-Antoine Bornet. "Factors affecting attitudes towards caring for terminally ill patients among nursing students in Switzerland: a cross-sectional study". BMJ Open 10, nr 9 (wrzesień 2020): e037553. http://dx.doi.org/10.1136/bmjopen-2020-037553.

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ObjectivesPositive attitudes towards end-of-life care are essential among nursing students to adequately support terminally ill patients and enable students to feel confident about providing end-of-life care. This study aimed to determine nursing students’ attitudes towards caring for terminally ill patients, as well as the associations between these attitudes and year of study, exposure to terminally ill people, self-perceived nursing skills and subjective impact of instruction.DesignCross-sectional study.SettingA health sciences school in Switzerland.ParticipantsAll preparatory students, first-year nursing students and third-year nursing students were invited to participate; 178 agreed to participate.Primary outcome measureAttitudes towards terminally ill patients were assessed using the Frommelt Attitudes Toward Care of the Dying Scale, Form B (FATCOD, Form B), as the primary outcome. Secondary measures were gender, age, year of study, number of terminally ill persons encountered, self-perceived palliative care nursing skills and subjective impact of instruction.ResultsMean FATCOD, Form B score was 117.7 (SD: 9.8, median: 118.0). Better attitudes towards terminally ill patients were significantly associated with being aged 24–26 years (β=6.97, 95% CI 2.00 to 11.95, p=0.006), year of study (β=3.47, 95% CI 1.69 to 5.25, p<0.001), professional encounters with terminally ill patients (β=3.59, 95% CI 2.23 to 4.95, p<0.001) and self-perceived palliative care nursing competence (β=1.23, 95% CI 0.41 to 2.04; p=0.003). In the multivariate analysis, professionally encountering terminally ill patients remained significant (β=3.00; 95% CI 1.43 to 4.57; p<0.001).ConclusionsNursing students’ attitudes towards caring for terminally ill patients were positive and improved as their year of study progressed. Professional exposure to terminally ill patients was the strongest factor, followed by private encounters, self-perceived palliative care nursing skills, year of study and age.

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Matchim, Yaowarat, Borwarnluck Thongthawee, Parinya Raetong i Ruankwan Kanhasing. "Quality of death and its related factors in terminally ill patients, as perceived by nurses". International Journal of Palliative Nursing 28, nr 10 (2.10.2022): 491–96. http://dx.doi.org/10.12968/ijpn.2022.28.10.491.

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Background: Little is known about the quality of death of terminally ill patients in hospitals in Thailand. Aim: To examine the quality of death of terminally ill patients and investigate correlations between the quality of death and the organisational climate; nurses' palliative care knowledge; nurses' palliative care practice; and nurses' perceptions of barriers in providing palliative care. Methods: A cross-sectional survey design was used. Data collected among 281 nurses were analysed by descriptive statistics, Pearson correlation and Spearman's rank correlation. Results: The overall quality of death of terminally ill patients in the hospital was moderate. Organisational climate and nurses' palliative care practice positively correlate with terminally ill patients' quality of death. Nurses' difficulty in providing palliative care negatively correlates with terminally ill patients' quality of death. Conclusion: Promoting an organisational climate and enhancing nurses' palliative care practice may improve the quality of death of terminally ill patients in this hospital.

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ONISHI, HIDEKI, MASANARI ONOSE, SHIGEKO OKUNO, SUZU YAE, YASUHIRO MIZUNO, MIZUHO ITO, HIDEYUKI SAITO i CHIAKI KAWANISHI. "Spouse caregivers of terminally-ill cancer patients as cancer patients: A pilot study in a palliative care unit". Palliative and Supportive Care 3, nr 2 (czerwiec 2005): 83–86. http://dx.doi.org/10.1017/s1478951505050157.

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Objective: It is known that families of terminally-ill cancer patients show levels of emotional and functional disruption and are called “second order patients,” however, little is actually known about the health problems of family members, especially in terms of cancer.Methods: This study reviewed the family histories of terminally-ill cancer patients in a palliative care unit and investigated cancer related health problems of the spouses of terminally-ill cancer patients.Results: We investigated the past medical history of 125 spouses of terminally-ill cancer patients and found that five spouses had a past medical history of cancer. In these five spouses, the duration of illness, present status of treatment and physical condition were reviewed from the database. Of these five spouses, three patients continued to attend an outpatient clinic regularly for checkup and one patient was hospitalized for nephrectomy. Two spouses did not have physical symptoms that made them unable to provide direct care for the terminally-ill spouses, while three could not provide care because of their own physical symptoms derived from cancer.Significance of results: Our findings indicated that some of the spouses of terminally-ill cancer patients are not only “second order patients” but also “cancer patients.” Our findings also suggest that some spouses of terminally-ill cancer patients might experience distress both as a cancer patient and as a spouse and may need care both as a cancer patient and as a spouse.

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Abell, Sue. "Terminally Ill Grandmother". Clinical Pediatrics 46, nr 9 (listopad 2007): 854–55. http://dx.doi.org/10.1177/0009922806290827.

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Jansen, Lynn A., Steven Wall i Franklin G. Miller. "Drawing the line on physician-assisted death". Journal of Medical Ethics 45, nr 3 (21.11.2018): 190–97. http://dx.doi.org/10.1136/medethics-2018-105003.

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Drawing the line on physician assistance in physician-assisted death (PAD) continues to be a contentious issue in many legal jurisdictions across the USA, Canada and Europe. PAD is a medical practice that occurs when physicians either prescribe or administer lethal medication to their patients. As more legal jurisdictions establish PAD for at least some class of patients, the question of the proper scope of this practice has become pressing. This paper presents an argument for restricting PAD to the terminally ill that can be accepted by defenders as well as critics of PAD for the terminally ill. The argument appeals to fairness-based paternalism and the social meaning of medical practice. These two considerations interact in various ways, as the paper explains. The right way to think about the social meaning of medical practice bears on fair paternalism as it relates to PAD and vice versa. The paper contends that these considerations have substantial force when directed against proposals to extend PAD to non-terminally ill patients, but considerably less force when directed against PAD for the terminally ill. The paper pays special attention to the case of non-terminally ill patients who suffer from treatment-resistant depression, as these patients present a potentially strong case for extending PAD beyond the terminally ill.

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Shedletsky, Ralph, i Rory H. Fisher. "Terminal Illness: Attitudes in Both an Acute Care and an Extended Care Teaching Hospital". Journal of Palliative Care 2, nr 1 (marzec 1987): 16–21. http://dx.doi.org/10.1177/082585978700200104.

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This paper describes an attitudinal survey carried out at Sunnybrook Medical Centre, a teaching hospital with large acute and extended care sections. The study assesses and compares the attitudes and behaviour of acute care and extended care staff towards terminally ill patients and also the attitudes and beliefs of a sample on non-terminally ill patients. Six hundred and fifty-one completed questionnaires were reviewed. Respondents were asked questions regarding the management of terminally ill patients in acute beds; informing patients of the nature of their disease; management of patient's emotional and physical needs; the use of investigations in the terminally ill. A majority felt that the terminally ill should not be managed in acute hospital beds and that patients should be informed of the nature of their disease, although staff did not uniformly favour full disclosure. While physical care was thought to be quite good, staff responses were much less favourable about fulfillment of patients’ emotional needs. As well, staff in acute care, more so than in extended care, felt that investigations were being over-utilized.

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Pan, Hsueh-Hsing, Li-Fen Wu, Li-Fang Chang, Yu-Chun Hung, Chin Lin i Ching-Liang Ho. "Effects of Dispositional Resilience and Self-Efficacy on Practice in Advanced Care Planning of Terminally Ill Patients among Taiwanese Nurses: A Study Using Path Modeling". International Journal of Environmental Research and Public Health 18, nr 3 (30.01.2021): 1236. http://dx.doi.org/10.3390/ijerph18031236.

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This study aimed to expand on previous research elucidating the effects of dispositional resilience and self-efficacy on practice in advanced care planning (ACP) of terminally ill patients among Taiwanese nurses using path modeling. This cross-sectional study was conducted using cluster sampling. Data were collected using demographics, nurses’ knowledge, attitude, and practice of ACP (KAP-ACP) inventory, Dispositional Resilience Scale, and General Self-Efficacy Scale. A total of 266 nurses from a tertiary medical center in northern Taiwan participated in this study in 2019. The results showed that gender and ward were significant K-ACP predictors among nurses. The ACP knowledge, ward, and experience of caring for terminally ill friends or relatives were significant A-ACP predictors, whereas ACP attitudes, dispositional resilience, self-efficacy, ward, and the frequency of caring for terminally ill patients were the key predictors of P-ACP. The path modeling showed that dispositional resilience; self-efficacy; medical, surgical, hematology and oncology wards; previous experience in caring for terminally ill friends or relatives; participating in the do-not-resuscitate signature; and the frequency of caring for terminally ill patients directly influenced ACP practices. We recommend that nurses enhance their dispositional resilience and self-efficacy, which may encourage them to appreciate the value of ACP practice of terminally ill patients and improve the quality of care.

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Pany, Subraham, Lipilekha Patnaik i Trilochan Sahu. "Palliative Care Practices Among Physicians Providing Palliative Care to Terminally Ill Cancer Patients – A Cross Sectional Study in A Tertiary Care Hospital of Eastern India". National Journal of Community Medicine 12, nr 11 (10.03.2022): 369–73. http://dx.doi.org/10.5455/njcm.20211007035327.

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Introduction: To find out palliative care practices among physicians providing care to terminally ill cancer patients. Methods: The study was cross-sectional in nature, conducted in a tertiary care hospital from July 2015 to September 2017 using a predesigned and pretested questionnaire among physicians providing care to terminally ill cancer patients. A universal sample of 42 doctors involved in providing health services to terminally ill cancer patients were included in. The analysis was done using SPSS v. 20.0. Results: Most of the physicians involved in care giving to the terminally ill were specialist care providers (67%) and only 1/5th of the physicians had received training on palliative care. Physicians who had either had training or had a personal loss of near and dear one through the state of terminal illness showed much compassionate care giving attitude. 83% physicians had a positive care giving attitude towards their patients. Conclusion: Family and physician interactions need to be improved so as to facilitate better care for the terminally ill patients. There should be regular trainings organised for physicians and other health care providers dealing with terminal illness so they can provide best palliative care to their patients.

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Fernandes, Fernanda de Souza, Fabiane Ferraz, Giovana Ilka Jacinto Salvaro, Amanda Castro i Jacks Soratto. "Social representations of health professionals about terminally ill children and adolescents". Revista CEFAC 20, nr 6 (grudzień 2018): 742–52. http://dx.doi.org/10.1590/1982-021620182062618.

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ABSTRACT Purpose: to understand the social representations of health professionals about terminally ill children and adolescents in different work settings. Methods: a qualitative, descriptive, exploratory study was conducted with ten health professionals, selected through the technique of network sampling. The instruments for data collection were semi-structured interviews, and free association of words. The analysis of the data followed the steps of content analysis, subsidized by the theory of social representations, with the support of Atlas.ti software. Results: the analysis of the interviews presented 115 excerpts of statements, condensed into 11 codes, which were grouped into three categories: experiences, strategies, and consequences of conviviality with terminality; mission and amorousness in a terminal condition; terminality as the end of life. The free association of words resulted in 52 evocations, with an emphasis on suffering, pain, love, mission, and family. Conclusion: the social representations of health professionals about terminally ill children and adolescents are associated with the situations being experienced, the strategies developed to deal with these moments in the exercise of the profession, and the consequences that this experience causes in the health professionals.

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Keeling, Geoff. "The sensitivity argument against child euthanasia". Journal of Medical Ethics 44, nr 2 (5.04.2017): 143–44. http://dx.doi.org/10.1136/medethics-2017-104221.

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Is there a moral difference between euthanasia for terminally ill adults and euthanasia for terminally ill children? Luc Bovens considers five arguments to this effect, and argues that each is unsuccessful. In this paper, I argue that Bovens' dismissal of the sensitivity argument is unconvincing.

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Witjaksono, Maria, Dwi Yatiningsih, Hesti Widaretno, Rani Asdiniah i Ame Ame. "The Role of Family Meeting In Dealing With Rejection Towards Hospital Discharge of Terminally Ill Cancer Patients". Indonesian Journal of Cancer 12, nr 2 (2.10.2018): 52. http://dx.doi.org/10.33371/ijoc.v12i2.577.

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Background: Rejection towards discharge planning of terminally ill patients and the role of family meetings to overcome such issue has not been evaluated. The aims of this study were to identify who and the reasons of rejection, to evaluate the effectiveness of family meetings, and to assess the important aspects in preparing homecare.Methods: This is an interventional study using queasy-experimental design. Samples of the study were family members of terminally ill patients who refused patient discharge from 1st of May to 31st of October 2016. Paired-Sample T-test was applied to analyze the result. Result: Rejections of discharge planning was mostly by the families. The most reason of rejection was lack of knowledge and skills in taking care of the terminally ill patients (40%). Family meetings solved the problem of rejection. The total score of 10 aspects needed in taking care of terminally ill patients was significantly increased (p=0.000). Conclusion: Family meetings effectively changed the attitude towards hospital discharged

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Gear, Paula. "The terminally ill child". Paediatric Nursing 3, nr 4 (maj 1991): 22–23. http://dx.doi.org/10.7748/paed.3.4.22.s14.

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Rogers, Rowena E. "Counseling the Terminally Ill". Journal of Gerontological Nursing 23, nr 8 (1.08.1997): 46–47. http://dx.doi.org/10.3928/0098-9134-19970801-14.

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FINK, PAUL J. "Helping the Terminally Ill". Clinical Psychiatry News 33, nr 2 (luty 2005): 10. http://dx.doi.org/10.1016/s0270-6644(05)70664-0.

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Siegel, Karolynn, i Peter Tuckel. "Rational Suicide and the Terminally Ill Cancer Patient". OMEGA - Journal of Death and Dying 15, nr 3 (listopad 1985): 263–69. http://dx.doi.org/10.2190/7nck-q22n-5y21-49bm.

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In recent years societal attitudes toward suicide among the terminally ill have become increasingly tolerant. These sentiments have become embodied in “Rational Suicide” movements. The central underlying premise of the rational suicide position is that terminally ill patients (of which the cancer patient has served as the prototypal case) have a greater propensity for suicide growing out of their desire to escape overwhelming pain and despair. This assumption is found to be unsubstantiated when examined in light of existing statistical and clinical data. In addition, the implications of providing legal sanctions to safeguard the right of the terminally ill to end their own lives are explored.

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Lee, Haeyoung, i Seung-Hye Choi. "Factors Associated with Quality of Dying and Death in Korean Intensive Care Units: Perceptions of Nurses". Healthcare 9, nr 1 (5.01.2021): 40. http://dx.doi.org/10.3390/healthcare9010040.

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The objective of this study was to investigate the factors affecting the quality of dying and death among terminally ill patients in an intensive care unit in Korea using a cross-sectional, online survey. A total of 300 nurses in the intensive care unit who had cared for a terminally ill patient for at least 48 h prior to death in the past six months were chosen to participate. The person-centered critical care nursing (PCCN) score and quality of dying and death (QODD) had a positive correlation. The QODD score increased when the consultation was conducted between the terminally ill patients and their doctors when CPR was not performed within 48 h of death, and when the PCCN score increased. The quality of death of patients is affected by whether they have sufficiently consulted with healthcare providers regarding their death and how much respect they receive. It is important for nurses to practice and improve patient-centered nursing care in order to ensure a good quality of death for terminally ill patients.

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Kolva, Elissa, Barry Rosenfeld i Rebecca M. Saracino. "Neuropsychological Predictors of Decision-Making Capacity in Terminally Ill Patients with Advanced Cancer". Archives of Clinical Neuropsychology 35, nr 1 (21.07.2019): 1–9. http://dx.doi.org/10.1093/arclin/acz027.

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Abstract Objective The purpose of this cross-sectional study was to identify the neuropsychological underpinnings of decision-making capacity in terminally ill patients with advanced cancer. Method Participants were 108 English-speaking adults. More than half (n = 58) of participants had a diagnosis of advanced cancer and were receiving inpatient palliative care; the rest were healthy adults. Participants completed a measure of decision-making capacity that assesses four legal standards of capacity (Choice, Understanding, Appreciation, and Reasoning), and several measures of neuropsychological functioning. Results Patients with terminal cancer were significantly more impaired on measures of capacity and neuropsychological functioning. Surprisingly, in the terminally ill sample, there were no significant correlations between neuropsychological functioning and decision-making capacity. Conclusion The terminally ill sample exhibited high levels of neuropsychological impairment across multiple cognitive domains. However, few of the measures of neuropsychological functioning were significantly associated with performance on the decisional capacity subscales in the terminally ill sample. It is possible that end-of-life decisional capacity is governed by general, rather than domain-specific, cognitive abilities.

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Fleck, Leonard M. "Just Caring: Health Care Rationing, Terminal Illness, and the Medically Least Well off". Journal of Law, Medicine & Ethics 39, nr 2 (2011): 156–71. http://dx.doi.org/10.1111/j.1748-720x.2011.00585.x.

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What does it mean to be a “just” and “caring” society in meeting the health care needs of the terminally ill when we have only limited resources to meet virtually unlimited health care needs? This is the question that will be the focus of this essay. Another way of asking our question would be the following: Relative to all the other health care needs in our society, especially the need for lifesaving or life-prolonging health care, how high a priority ought the health care needs of persons who are terminally ill have? Should any of the health care needs of the terminally ill be assigned very low priority? Or should all their health care needs be assigned the highest priority? If we reflect a bit, we will find ourselves greatly internally conflicted. On the one hand, the “caring” side of our moral self might see terminally ill individuals as being among the “medically least well off,” and therefore, deserving virtually any medical resources that will yield any degree of good for them.

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Samuels, Alec. "Complicity in Suicide". Journal of Criminal Law 69, nr 6 (grudzień 2005): 535–39. http://dx.doi.org/10.1350/jcla.2005.69.6.535.

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This article addresses the extent to which, if at all, a person may lawfully ‘help’ another person, for example a terminally ill spouse, to take his own life or submit to euthanasia. It considers what intent is required to be proved for a crime and the situation where the intent is mercy. In addition, it looks at the position of a survivor of a suicide pact and whether there is a human right to die. Other questions raised are: How near to voluntary euthanasia is English law now? Is an advance decision ‘no treatment if I am terminally ill’ legally valid? What is the legal duty of the doctor towards a terminally ill patient?

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KELLY, B., P. BURNETT, D. PELUSI, S. BADGER, F. VARGHESE i M. ROBERTSON. "Factors associated with the wish to hasten death: a study of patients with terminal illness". Psychological Medicine 33, nr 1 (23.12.2002): 75–81. http://dx.doi.org/10.1017/s0033291702006827.

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Background. There is considerable debate regarding the clinical issues surrounding the wish to hasten death (WTHD) in the terminally ill. The clinical factors contributing to the WTHD need further investigation among the terminally ill in order to enhance understanding of the clinical assessment and treatment needs that underlie this problem. A more detailed understanding may assist with the development of appropriate therapeutic interventions.Method. A sample of terminally ill cancer patients (N=256) recruited from an in-patient hospice unit, home palliative care service and a general hospital palliative care consulting service from Brisbane Australia between 1998–2001 completed a questionnaire assessing psychological (depression and anxiety), social (family relationship, social support, level of burden on others) and the impact of physical symptoms. The association between these factors and the WTHD was investigated.Results. A high WTHD was reported by 14% of patients. A discriminant function analysis revealed that the following variables were associated with a high WTHD (P<0·001): higher levels of depressive symptoms, being admitted to an in-patient hospice setting, a greater perception of being a burden on others, lower family cohesion, lower levels of social support, higher levels of anxiety and greater impact of physical symptoms.Conclusions. Psychological and social factors are related to a WTHD among terminally ill cancer patients. Greater attention needs to be paid to the assessment of psychological and social issues in order to provide appropriate therapeutic interventions for terminally ill patients.

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Leenaars, Antoon A. "Can a Theory of Suicide Predict All “Suicides” in the Elderly?" Crisis 24, nr 1 (styczeń 2003): 7–16. http://dx.doi.org/10.1027//0227-5910.24.1.7.

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Summary: Older adults consistently have the highest rates of suicide in most societies. Despite the paucity of studies until recently, research has shown that suicides in later life are best understood as a multidimensional event. An especially neglected area of research is the psychological/psychiatric study of personality factors in the event. This paper outlines one comprehensive model of suicide and then raises the question: Is such a psychiatric/psychological theory applicable to all suicides in the elderly? To address the question, I discuss the case of Sigmund Freud; raise the topic of suicide and/or dignified death in the terminally ill; and examine suicide notes of the both terminally ill and nonterminally ill elderly. I conclude that, indeed, greater study and theory building are needed into the “suicides” of the elderly, including those who are terminally ill.

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Bye, Rosalind A. "When Clients are Dying: Occupational Therapists’ Perspectives". Occupational Therapy Journal of Research 18, nr 1 (styczeń 1998): 3–24. http://dx.doi.org/10.1177/153944929801800101.

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Occupational therapists working with people who are terminally ill potentially face a contradiction between the principles and assumptions of rehabilitation-oriented practice and the needs and experiences of clients who are dying. This research investigated experiences of occupational therapists working with clients who are terminally ill to examine if such a contradiction existed and, if so, how it was managed in daily practice. Ten occupational therapists working with people who are terminally ill shared their perspectives through in-depth interview and participant observation. Data analysis followed grounded theory procedures. Nine conceptual categories were generated from the data: Making a Difference, Referral to Occupational Therapy, Assessing the Situation, Goal Setting, Building Against Loss, “Normality Within a Changed Reality,” Client Control, Supported and Safe Care, and Closure. Analysis of relationships between categories resulted in the development of a conceptual framework of occupational therapy practice with people who are terminally ill. The core phenomenon of the framework emerged as Affirming Life: Preparing for Death. Results indicate that occupational therapists manage this contradiction between their rehabilitation training and their work with people who are dying by reframing the process and outcomes of practice to acknowledge clients’ dual states of living and dying.

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Trigo, M. "Psychiatric aspects of the end of life in oncologic patients". European Psychiatry 64, S1 (kwiecień 2021): S748. http://dx.doi.org/10.1192/j.eurpsy.2021.1982.

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IntroductionPatients with life-limiting oncologic conditions should be approached by multidisciplinary teams that contribute to improve their quality of life, including support from mental health dedicated professionals. It is the role of the psychiatrist to understand the relationship between mental health and general health outcomes, specific of this type of patients. Terminally ill and dying patients benefit from psychiatric support, and it seems to have real effects in terms of patient care and medical staff education.ObjectivesTo identify approaches and mental health professionals’ practices regarding end-of-life issues in terminally ill cancer patients.MethodsReview of the most recent literature regarding end-of-life issues in terminally ill cancer patients. The research was carried out through the Cochrane, UptoDate, PubMed, MedLine, LILACS and SciELO databases, using the terms “oncology”, “psychiatry” and “end of life”, until December 2020.ResultsWhile symptoms of anxiety and depression are common in palliative care settings, generally related to feelings of helplessness and fear of death, they should not be assumed to be an inevitable part of it. For terminally ill patients, anxiety and trauma-related disorders can manifest in various ways and it is important to establish personalized treatment approaches, based on a supportive clinical team, and, if necessary, psychotherapy and psychopharmacologic or complementary treatments.ConclusionsIt is extremely important to assess terminally ill patients from the mental health point of view. It is required that psychiatrists take part in clinical care and research on the treatment of these patients with severe medical conditions, in order to increase their quality of life.DisclosureNo significant relationships.

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Kuberowa, Helena, i Maria Sidorowa. "The role of nurses in palliative and hospice care". Medical Science Pulse 7, nr 4 (31.12.2013): 10–17. http://dx.doi.org/10.5604/01.3001.0003.3145.

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Introduction: The role of nurses in palliative and hospice care especially with the terminally ill and dying patients in hospice.Aim of the study: To show the importance and irreplaceable role of nurses in meeting the needs of a patient.Material and methods: The survey was performed among nurses working with terminally ill and dying people in hospices in the Czech Republic and Slovakia.Results: Obtained results were analyzed by means of questionnaires, where there are opinions and attitudes of nurses who take care of patients in the terminal stages of various diseases.Conclusions: Although the survey shows significant differences in providing hospice care in Slovakia and the Czech Republic, we can conclude the same result, which is that the role of nurses in the case of care of the terminally ill is extremely important.

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Felix, Zirleide Carlos, Patrícia Serpa de Souza Batista, Solange Fátima Geraldo da Costa, Maria Emília Limeira Lopes, Regina Célia de Oliveira i Fátima Maria da Silva Abrão. "Nursing care in terminality: compliance with principles of bioethics". Revista Gaúcha de Enfermagem 35, nr 3 (wrzesień 2014): 97–102. http://dx.doi.org/10.1590/1983-1447.2014.03.46405.

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The aim of the study was to investigate the principles of bioethics reported by nurses when caring for terminally ill patients. Exploratory research with qualitative approach, developed with fifteen nurses from an intensive care unit of a university hospital, in northeastern Brazil. Data collection was conducted between March and July 2013, through a form. Data were analyzed using the technique of content analysis, emerging the following thematic category: respect to the principles of autonomy, beneficence, non-maleficence and justice to take care of the terminally ill patients. The participating nurses valued these principles when caring for terminally ill patients, which reflect the ethical commitment of these professionals in the practice of nursing care. It is noteworthy that bioethical principles should guide the nursing care of human beings throughout their life cycle.

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Tulsky, James A., Ann Alpers i Bernard Lo. "A Middle Ground on Physician-Assisted Suicide". Cambridge Quarterly of Healthcare Ethics 5, nr 1 (1996): 33–43. http://dx.doi.org/10.1017/s0963180100006708.

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“[A] murder prosecution is a poor way to design an ethical and moral code for doctors,” observed the California Court of Appeal in 1983. Yet, physicians who have chosen to help terminally ill patients to commit suicide have trespassed on illegal ground. When skilled medical care fails to relieve the pain of terminally ill patients, some people believe that physicians may assist in these suicides. Others reject any kind of physician involvement. The debate on assisted suiczide and active euthanasia has focused on whether these acts can ever be acceptable. We propose to shift the debate to a less divisive issue: whether a caring physician who provides a suffering and ill patient with a prescription for a lethal dose of medication should be prosecuted as a felon. Even assisted suicide's opponents may object to such criminal prosecution. We propose to modify existing criminal laws to give physicians who assist their terminally ill patients in suicide, under carefully defined circumstances, a legal defense against criminal charges.

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Kumari, Minti, Tanoj Kumar, Shweta Rai, Anurag Rai, Rafat Sultana i Leena Priya. "Evaluation of Dental Health in Terminally Ill Patients". Journal of Medicine and Life 13, nr 3 (lipiec 2020): 321–28. http://dx.doi.org/10.25122/jml-2020-0023.

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Dental health plays an imperative role in the general health and well-being of an individual. Terminally ill patients due to a compromised immune response are susceptible to a wide array of oral complications, which may affect their ability to speak and chew, leading to malnutrition. The present study was conducted to evaluate dental health and various oral manifestations in terminally ill patients. One hundred twenty terminally ill patients hospitalized with diseases of the respiratory tract, gastrointestinal tract, circulatory system, liver, and endocrinal disorders were included in the study. The evaluation of oral manifestations and their prevalence was done by a single examiner. The oral health was evaluated according to symptoms exhibited by the patients and clinical presentation. Of the patients included in the study, 78 were male, and 42 were female. All the individuals were adults between 25 to 55 years of age. Out of 120 admitted terminally ill patients, 27 subjects had respiratory diseases, 17 had gastrointestinal disorders, 5 had disorders of the circulatory system, 39 had liver disorders, and 32 had endocrine disorders. A need for added comprehension is mandatory to link the inter-relationships between dentistry and medicine to further perk up the management of the overall health of patients, which will further reinforce the partnership between dental and medical communities.

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Pérez-de la Cruz, Sagrario, Ivonne Ramírez i César Maldonado. "Factors and Beliefs that Condition the Attitude of Health Science Students towards End of Life in Spain and Bolivia: A Multicenter Study". International Journal of Environmental Research and Public Health 17, nr 17 (1.09.2020): 6373. http://dx.doi.org/10.3390/ijerph17176373.

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Health Science students in Spain and Bolivia should be trained in the management of the processes of death and dying of patients. The aim of this study was to examine the degree of training, self-perceived safety and preferences in relation to the care of terminal and non-terminal patients. It was a descriptive, cross-sectional, multicenter study with students of Medicine, Nursing and Physiotherapy in Spain and Bolivia. The following variables were evaluated: care preparation and emotional preparation to caring for terminally ill and non-terminally ill patients, the Death Attitude Profile Revised (PAM-R) and the Bugen Scale for Facing Death. The self-perceived preparation of students for caring for terminally ill patients can be considered “fair” (mean 2.15, SD 0.756), and this was also the case for their perceived emotional preparation (mean 2.19, SD 0.827). In contrast, the score obtained for their preparedness for treating non-terminal patients was higher (mean 2.99 and 3.16, respectively). Working with terminally ill patients, including terminal or geriatric cancer patients, was the least preferred option among future health professionals. The results obtained show a limited preference for end-of-life care and treatment, highlighting a lack of preparation and motivation among health science students in Spain and Bolivia for working with these patients.

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Malik, Mohammad Manzoor. "Ethical Hazards of Modern, Advanced Medical Technology in Promoting Euthanasia:A Resolution from Islamic Perspective". Journal of Islam in Asia (E-ISSN: 2289-8077) 8 (2.02.2012): 337–55. http://dx.doi.org/10.31436/jia.v8i0.250.

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Proponents of active euthanasia argue that in cases where the modern, advanced medical technology has prolonged death of many miserable terminally ill patients, active euthanasia can put end to their suffering; hence active euthanasia should be permissible. Against this line of thought, the researcher argues that much of the suffering which terminally ill patients go through occurs because of the misapplication of the advanced medical technology. Therefore, mishandled, mistreated, or over-treated patients become alleged subjects of debate on active euthanasia. It may be argued that consensus on permitting active euthanasia has remained so far impossible because of ethical, cultural, and religious reasons, yet there is possibility of attaining consensus on the appropriate use and employment of advanced medical technology. This research argues that to avoid any legal and moral risks which may emerge from the inappropriate employment of the advanced medical technology to terminally ill patients, it is important to make the very initiation of advanced medical treatment in regard to the terminally ill patients subject to moral and legal analysis. This paper has basically two arguments: moral and preventive law arguments, and their links with Islamic perspective, leading eventually, to the Islamic perspective on the issue so as to suggest an ethically sound and rationally valid alternative.

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Bendiane, PhDc, Marc Karim, Anne-Deborah Bouhnik, PhDc, Roger Favre, PhD, Anne Galinier, MD, Yolande Obadia, MD, Jean-Paul Moatti, PhD i Patrick Peretti-Watel, PhD. "Morphine prescription in end-of-life care and euthanasia: French home nurses’ opinions". Journal of Opioid Management 3, nr 1 (1.01.2007): 21. http://dx.doi.org/10.5055/jom.2007.0035.

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Objective: This study aimed to investigate factors that might lead French homecare nurses to consider the pre-scription of high-dose morphine to terminally ill patients to be euthanasia.Methods: The researchers conducted an anonymous telephone survey among a random sample of602 French homecare nurses (response rate = 75percent) in 2005.Results: Overall, 27percent of responding home nurses considered prescribing high-dose morphine to terminally ill patients to be euthanasia. Such an opinion was more frequently held by older nurses, those who had not followed terminally ill patients during the previous three years, and those with less knowledge about pain management involving opioid analgesics.Conclusion: There is an urgent need to strengthen pain management education among French homecare nurses—especially regarding the use of morphine—in order to both improve their technical skills and correct some misconceptions about opioid analgesics.

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Christina, Nanou, Apostolidi Dimitra-Maria, Pantelaki Nikoletta, Tigka Maria i Metallinou Dimitra. "Creating Memories with a Terminally-Ill Neonate". EAS Journal of Nursing and Midwifery 5, nr 05 (3.10.2023): 72–76. http://dx.doi.org/10.36349/easjnm.2023.v05i05.003.

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Dealing with a terminally-ill neonate has a significant emotional toll for both the parents and the entire family. The experience of creating memories with a terminally-ill neonate can be deeply emotional and challenging, but it can also be profoundly meaningful and comforting for both the family and the neonate. Memories may involve celebrations related to naming or milestone celebrations, parental involvement in neonatal care and spending quality time with the neonate as well as creating mementoes, capturing or videotaping moments. The creation of memories, despite the neonate’s limited lifespan, acknowledges its individuality and affirms its dignity and identity as a human being, whereas it creates a sense of unity during such difficult times. Specialized multidisciplinary teams, with advanced training and professional skills, and national initiatives are critical for families’ support to the grieving process and their guidance to emotional and ethical complexities associated with the caring of a terminally-ill neonate.

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Golden, Adam G. "Is Geriatric Medicine Terminally Ill?" Annals of Internal Medicine 156, nr 9 (1.05.2012): 654. http://dx.doi.org/10.7326/0003-4819-156-9-201205010-00009.

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Tuffrey-Wijne, Irene. "Care of the terminally ill". Learning Disability Practice 1, nr 1 (kwiecień 1998): 8–11. http://dx.doi.org/10.7748/ldp.1.1.8.s10.

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Thomas, Jay R., i Charles F. von Gunten. "Pain in Terminally Ill Patients". CNS Drugs 17, nr 9 (2003): 621–31. http://dx.doi.org/10.2165/00023210-200317090-00002.

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Tuffrey-Wijne, Irene. "Care of the terminally ill". Learning Disability Practice 1, nr 1 (kwiecień 1998): 8–11. http://dx.doi.org/10.7748/ldp1998.04.1.1.8.c1408.

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Andrews, Maria, Eric R. Bell, Shirley A. Smith, James F. Tischler i Jeanne M. Veglia. "Dehydration in terminally ill patients". Postgraduate Medicine 93, nr 1 (styczeń 1993): 201–8. http://dx.doi.org/10.1080/00325481.1993.11701584.

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Cruikshank, Ross P., Bruce Stafford i Lee Jones. "Polypharmacy in the terminally ill". Medical Journal of Australia 199, nr 1 (lipiec 2013): 29. http://dx.doi.org/10.5694/mja12.11660.

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Antonowich, Ruth A. "Dehydration and the terminally ill". American Journal of Hospice Care 6, nr 5 (wrzesień 1989): 48. http://dx.doi.org/10.1177/104990918900600510.

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Stephany, Theresa M. "Nutrition for the Terminally Ill". Home Healthcare Nurse: The Journal for the Home Care and Hospice Professional 9, nr 3 (maj 1991): 48–49. http://dx.doi.org/10.1097/00004045-199105000-00017.

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Lucas, Monica Ann. "Praying with the Terminally Ill". Journal of Health Care Chaplaincy 6, nr 1 (31.10.1994): 61–71. http://dx.doi.org/10.1300/j080v06n01_06.

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Okolo, Eucharia Nnadi, i Jan McReynolds. "Communicating with the Terminally Ill". Journal of Pharmacy Technology 2, nr 6 (listopad 1986): 261–64. http://dx.doi.org/10.1177/875512258600200608.

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Chatterton, Pip. "Physiotherapy for the Terminally Ill". Physiotherapy 74, nr 1 (styczeń 1988): 42–46. http://dx.doi.org/10.1016/s0031-9406(10)63658-9.

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Marik, Paul E., i Gary P. Zaloga. "CPR in terminally ill patients?" Resuscitation 49, nr 1 (kwiecień 2001): 99–103. http://dx.doi.org/10.1016/s0300-9572(00)00344-0.

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Hill, Lucius T. "Care of the terminally ill". American Journal of Surgery 166, nr 1 (lipiec 1993): 82–83. http://dx.doi.org/10.1016/s0002-9610(05)80592-6.

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Rousseau, P. "Hope in the terminally ill". Western Journal of Medicine 173, nr 2 (1.08.2000): 117–18. http://dx.doi.org/10.1136/ewjm.173.2.117.

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Owens, Darrell A. "Hydration in the Terminally Ill". Journal of Hospice & Palliative Nursing 9, nr 3 (maj 2007): 122–23. http://dx.doi.org/10.1097/01.njh.0000270001.36496.bd.

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Binsack, Thomas. "Caring for terminally ill patients". Supportive Care in Cancer 7, nr 6 (11.10.1999): 377–78. http://dx.doi.org/10.1007/s005200050295.

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