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Rozprawy doktorskie na temat „Terminally ill”

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Data publikacji: 4 czerwca 2021

Data aktualizacji: 30 lipca 2024

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1

Damm, Kathryn. "Social support and mental health for terminally ill patients and their caregivers". Diss., Connect to a 24 p. preview or request complete full text in PDF format. Access restricted to UC campuses, 2008. http://wwwlib.umi.com/cr/ucsd/fullcit?p3307164.

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Thesis (Ph. D.)--University of California, San Diego, 2008.
Title from first page of PDF file (viewed July 9, 2008). Available via ProQuest Digital Dissertations. Vita. Includes bibliographical references (p. 86-103).

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2

Cisneros, Francisco. "Terminally ill and hospice residential settings". Theological Research Exchange Network (TREN), 1996. http://www.tren.com.

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Cranfill, Timothy D. "Giving sorrow words turning mourning into dancing : improving the quality of life of terminally ill children, adolescents, and adults through the use of therapeutic videography /". Online full text .pdf document, available to Fuller patrons only, 2004.

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Ministry research project (D. Min.)--Midwestern Baptist Theological Seminary, 2004.
Submitted in partial fulfillment of the requirements for the Doctor of Ministry Degree. Includes bibliographical references (leaves 184-188).

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4

Webb, Nicole Marie. "Factors affecting young adults' opinions about hospice and home death". Birmingham, Ala. : University of Alabama at Birmingham, 2009. https://www.mhsl.uab.edu/dt/2009p/webb.pdf.

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Thesis (Ph. D.)--University of Alabama at Birmingham, 2009.
Title from PDF title page (viewed Sept. 2, 2009). Additional advisors: Virginia G. (Wadley) Bradley, Elizabeth A. Kvale, Kathryn L. Burgio, Edwin W. Cook III. Includes bibliographical references.

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5

Fulton, Graham, i n/a. "The Perceived needs of the terminally ill". University of Canberra. Education, 1989. http://erl.canberra.edu.au./public/adt-AUC20050217.103844.

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While there is considerable international interest in the development of hospice and palliative care programs, as an alternative form of care for the terminally ill, there is minimal empirical research undertaken on the needs of recipients of these programs. Using a Q-sort, developed by the author, this research examined the relationship between individual patient's ranking of their needs, and the nurse's perception of the needs identified by individual patients in their care. A basic assumption of the study was that patients' needs could be categorised in four groups, namely spiritual, physical, emotional, and social. Consequently, the study also examined whether patients and nurses identified, as most important, needs from one group, more frequently than the other groups. The limited size of the sample placed severe restrictions on the analysis of results derived from this research. However, while no definite conclusions could be drawn from data obtained from the small sample, tentative analysis identified trends that may have proved significant had they continued in a larger sample.

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6

Dye, Deborah K. "Spirituality in the terminally ill hospitized [sic] patient". Muncie, Ind. : Ball State University, 2008. http://cardinalscholar.bsu.edu/357.

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7

Chemane, Bonginkosi Reginald. "Integrating spirituality and psychotherapy : experiences of a sample of terminally ill patients". Thesis, Rhodes University, 2013. http://hdl.handle.net/10962/d1008217.

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The general aim of this study was to determine the experiences of a sample of terminally ill patients in using spiritually focused psychotherapy. This was a qualitative study conducted to a sample of 2 terminally ill patients from hospice in Grahamstown, South Africa. The research was conducted in 3 phases: an initial in-depth interview conducted to determine the participants' level of spirituality as well as the extent to which their terminal illnesses had affected their functioning. This was followed by a minimum of 6 spiritually focused therapy (SFT) sessions as a second phase of the research. To determine the participants' experiences of SFT, 2-3 in-depth interviews were conducted during the 3m phase of the research study. The research revealed that a belief in a higher power helps terminally ill patients cope better with their illness and that social disconnectedness is related to HIV / AIDS stigma. It also revealed that terminal illness is co-morbid with other psychiatric symptoms such as depression, evokes existential concerns, results in a change in the level of spirituality and affects the whole family. Participants blamed themselves for their illness, but found that engaging in the process of forgiveness of self and others brought about psychological healing for them. They experienced SFT as a coping resource that assisted them to deal with the fear of death as well as increased insight into the development of psychopathology and spiritual blockages. It is recommended that a comprehensive and holistic assessment during intake be undertaken so that where spiritual needs are available, therapy can be spiritually augmented to ensure that such needs/ struggles are addressed.
KMBT_363
Adobe Acrobat 9.54 Paper Capture Plug-in

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8

Rodak, Rina S. "Chronically and terminally ill children and medical decision-making". Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/MQ55708.pdf.

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9

Bergendal, Adam. "Architecture as medicine : Rethinking care for the terminally ill". Thesis, KTH, Arkitektur, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:kth:diva-163431.

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Societies have an ethical responsibility to provide the dying with the highest possible quality of care. Yet, terminal patients are sometimes lost in a healthcare system that emphasizes procedure over the individual. This project envisions a new approach - a restructuring of the current system. A shared facility that combines rehabilitation and home care with end of life care, promoting flexible treatment to be tailored to each patient according to their individual needs.
Vårt samhälle har ett etiskt ansvar att tillhandahålla döende med högsta möjliga vårdkvalitet. Trots det åsidosätts ibland döende patienter i ett sjukvårdssystem som betonar metod över individen. Detta projekt föreslår en ny strategi - en omstrukturering av det nuvarande systemet. Istället för uppdelade vårdstrukturer föreslås en sammansatt vårdanläggning som kombinerar rehabilitering och avancerad hemsjukvård med sluten palliativ vård, som främjar flexibel behandling och som skräddarsys för varje patient utifrån dess individuella behov.

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10

Henn, J. W. "Psychological care of the terminally ill : theory and application". Thesis, University of East Anglia, 1999. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.302199.

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11

Lloyd-Williams, Mari. "Depression in the terminally ill : current treatment and assessment". Thesis, University of Leicester, 1999. http://hdl.handle.net/2381/29583.

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12

Opincariu, Marius. "Counseling the terminally ill patients with cancer in hospital". Online full text .pdf document, available to Fuller patrons only, 2003. http://www.tren.com.

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13

Kuhl, David R. "Exploring spiritual and psychological issues at the end of life". Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1999. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape10/PQDD_0015/NQ46369.pdf.

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14

Ellis, Rebecca Lynne. "Are associate degree nursing graduates adequately prepared to meet the cultural needs of their patients at the end of life?" Online access for everyone, 2006. http://www.dissertations.wsu.edu/Thesis/Spring2006/r%5Fellis%5F042606.pdf.

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Cooper, Carolyn Ellen May. "Death is something to be avoided the psychodynamics of end-of-life planning for the general practitioner /". [Hawthorn, Vic.] : Swinburne University of Technology, 2008. http://hdl.handle.net/1959.3/36677.

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Thesis (PhD) - Australian Graduate School of Entrepreneurship, Swinburne University of Technology - 2008.
Submitted as partial fulfilment of the requirements for the degree of Doctor of Philosophy, Australian Graduate School of Entrepreneurship, Swinburne University of Technology, 2008. Bibliography: p. 357-371.

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16

Morris, Christie A. "Designing the Threshold: A Holistic Center for the Terminally Ill". Thesis, Virginia Tech, 1998. http://hdl.handle.net/10919/35663.

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If Architecture can express the joy of birth and all the infinite aspects of human life, then Architecture can celebrate death as a final rite of passage. Can Architecture celebrate man's transition into the afterlife? How does this celebration translate literally into something tangible? How does this celebration translate figuratively into something tactile?
Master of Architecture

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17

Barnard, Ann. "A situational analysis of children living with terminally ill parents". Master's thesis, University of Cape Town, 2003. http://hdl.handle.net/11427/12513.

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Bibliography: leaves 79-84.
Background: While there is a lot of literature available on the negative effects of orphanhood on children, litle attention has been paid to children in the period before their parents die when they are living with a sick parent. This study seeks to focus on such children to gain greater understanding of their situation. Aim: To describe the problems and coping strategies of children living with and caring for their terminally ill parents. Design: This study is a cross-sectional descriptive survey. Setting: A rural district in a middle-income country. Main outcome measures: Demography of households, symptoms of the sick parent, attributes of child carers, how children deal with specified symptoms of their parent's illness, greatest perceived hardships faced, type and quantity of help from outside sources and extended family. Results: Thirty five households were interviewed using a structured questionnaire. Households were found to be poor with difficulty accessing services. Most parents had symptoms consistent with AIDS and over 30% died within two months of the interview. Pain ranked as the most troublesome symptom. One hundred children aged four to eighteen were involved to some extent in the care of their sick parents. Male children were the main carers in 40% of households. The children generally dealt appropriately with the parents' symptoms and correcdy identified what pills they were taking and what the pills were for. Seventy one percent of carers believed that their parent would get better. The children identified their greatest hardships as hunger (43%), lack of money for school (29%) and parent's illness (19%). Sixty nine percent asked for material support and the same number reguested financial support for schooling. Support frum relatives was mostly provided by grandmothers and aunts. Five provided food, five cared for the sick person and three helped with child care. Ten of the 35 households were never visited by relatives staying outside the homestead. From the wider community, neighbours were the most supportive group practically, helping with food and nursing. Church groups were active in praying with families but most did not help materially or practically. Eight families received support from local non-governmental organisations and only two were visited by the Department of Welfare. Conclusions: Poverty was the overriding issue negatively impacting on the families. It prevented adequate access to health care, nutrition and schooling. Poor infrastructure and government services further compounded these problems as well as preventing access to water, sanitation, education and government grants. Children were often found to be caring for their parents with little external support and would benefit from training as well as supervision and counselling from trained health workers. The children's role as carers frequently interfered with school attendance yet many of their teachers were unaware of their home circumstances and did little to support them. Teachers' awareness of the social problems facing learners needs to be raised. Support by the extended family and community is often superficial and generally targets the sick parent while ignoring the children. Greater attention needs to be paid to the psychological and matenal needs of the children in these vulnerable families.

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18

Parker-Oliver, Debra. "The diffusion of hospice care in Missouri /". free to MU campus, to others for purchase, 2000. http://wwwlib.umi.com/cr/mo/fullcit?p9988689.

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Da, Via Carrie. "Between wandering + residing". This title; PDF viewer required. Home page for entire collection, 2010. http://archives.udmercy.edu:8080/dspace/handle/10429/9.

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Swift, Thomas Madison. "Psalms for the journey a study using the Psalter to help the dying find peace /". Theological Research Exchange Network (TREN), 2007. http://www.tren.com/search.cfm?p062-0319.

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21

Hunt, Marie W. "Dying at home : its basic #ordinariness' displayed in patients, relatives and nurses talk". Thesis, Goldsmiths College (University of London), 1989. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.283998.

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22

Spooner, Jeffrey M. (Jeffrey Michael) Carleton University Dissertation Religion. "Canadian Christian church perspectives on requests for active voluntary euthanasia by terminally ill patients". Ottawa, 1992.

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23

Ng, Lai-nga. "An exploratory study on an interventive approach to work with the spouse of patients with terminal illness /". [Hong Kong : University of Hong Kong], 1987. http://sunzi.lib.hku.hk/hkuto/record.jsp?B1234168X.

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24

Wikblom, Ida. "Antibiotic Use and Effects in the Terminally Ill : – A Retrospective Review". Thesis, Örebro universitet, Institutionen för medicinska vetenskaper, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-66978.

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25

Akaleephan, Chutima. "Current practice, financing and policy on terminally ill patients in Thailand". Thesis, University of East Anglia, 2010. https://ueaeprints.uea.ac.uk/32217/.

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Dixon, Laura Marie. "Physician-assisted suicide for the terminally ill patient : a constitutional right?" Honors in the Major Thesis, University of Central Florida, 1997. http://digital.library.ucf.edu/cdm/ref/collection/ETH/id/168.

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This item is only available in print in the UCF Libraries. If this is your Honors Thesis, you can help us make it available online for use by researchers around the world by following the instructions on the distribution consent form at http://library.ucf.edu/Systems/DigitalInitiatives/DigitalCollections/InternetDistributionConsentAgreementForm.pdf You may also contact the project coordinator, Kerri Bottorff, at kerri.bottorff@ucf.edu for more information.
Bachelors
Health and Public Affairs
Legal Studies

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27

D'Souza, Violet. "Perceived oral care needs of terminally ill adults – a qualitative investigation". Thesis, University of Iowa, 2019. https://ir.uiowa.edu/etd/6939.

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Individuals with advance-stage illnesses frequently face illness or treatment-related adverse effects in the mouth. These adverse effects can have serious consequences. Despite that, the importance of oral care in this population is often overlooked and there are no definitive guidelines as to what kind of oral care should be provided to these individuals. Given that, our study aims were to explore and better understand the oral health-related concerns, perceived oral care needs of palliative care patients and the berries that face in accessing dental care services. We conducted a qualitative description study by recruiting a purposive sample of 11 participants with advanced stage health conditions from the outpatient palliative care services of the University of Iowa Hospitals and Clinics. Data were collected using in-depth, semi-structured interviews using an interview guide. All interviews were fully transcribed, with the data managed with Atlas.ti software to facilitate the analysis. All participants had oral concerns although they varied widely from person to person and their illness statuses. The most significant concerns were related to dry mouth, loose dentures, and eating difficulties. Among those who stated that they would seek dental care if required, they were not planning on seeking dental care even though they had treatable oral problems, suggesting a mismatch between their oral health status and their perceived needs. The frequently observed barriers that prevented them from seeking dental care were their illness and illness related priorities, finances, feeling discriminated against by the dentist, and a dislike towards the dentist. Providing information to the palliative care clinicians about the significance of oral health and its impact, incorporating a dental care provider in palliative care team, and providing timely information to individuals with advanced health conditions may enhance the understanding of their oral health problems and help them better manage their oral health and may enhance their dental care seeking behavior.

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Law, Foon-kam. "Participation in parent support group as perceived by parents of children with cancer /". View the Table of Contents & Abstract, 2006. http://sunzi.lib.hku.hk/hkuto/record/B36397003.

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Wilson, Margaret Taylor. "Developing a nurturing model of pastoral care in the hospice setting based on "restored image" in Genesis 1:27 /". Free full text is available to ORU patrons only; click to view:, 2002. http://wwwlib.umi.com/cr/oru/fullcit?p3079970.

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Shirley, Jamie L. "Autonomy at the end of life : a discourse analysis /". Thesis, Connect to this title online; UW restricted, 2005. http://hdl.handle.net/1773/7231.

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Granlund, Lucie. "Det vårdande mötet när döden närmar sig". Thesis, Blekinge Tekniska Högskola, Sektionen för hälsa, 2007. http://urn.kb.se/resolve?urn=urn:nbn:se:bth-1795.

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Att vårda en patient i livets slutskede innebär att bekanta sig med känslomässiga situationer som ofta påverkar sjuksköterskans omvårdnadshandling exempelvis effektiv symtomlindring. Syfte: Syftet med denna studie var att beskriva sjuksköterskans upplevelse av det vårdande mötet med patienten i samband med palliativ vård. Metod: Metoden var en litteraturstudie med kvalitativa ansatser. Sex vetenskapliga artiklar samlade in och användes som analysmaterial av denna studie. Innehållanalysen inspirerad av Graneheim och Ludman (2003) användes för att analysera insamlade data. Resultat: Resultatet visade att sjuksköterskan upplever tillfredställelse och välbefinnande om hon lyckas med att tillgodose patientens behov exempelvis smärta. Effektiv smärtlindring upplevdes som meningsfull och det innebar att hon hade betytt något för patienten och dess närstående. Däremot upplevdes hon stress, frustration, maktlöshet och konflikt när hennes omvårdnadshandling inte mött patientens behov. Samverkan mellan arbetsteamen och stöd från kollegor upplevdes som viktigt i den palliativa vården. Sjuksköterskan höll distans för att kunna hjälpa patienten. Slutsatsen: Sjuksköterskan behöver kunskap om smärtlindring samt kunskap om palliativ vård för att effektivt lindra patientens smärta. För att tillgodose patientens behov i sin helhet behöver hon tillräcklig med tid och frihet att själv planerar sitt arbete. Samarbetet med andra vårdteam och kollegornas stöd måste stärkas och ha ett gemensamt mål: patientens välbefinnande då kan sjuksköterskan uppleva välbefinnande.

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32

Törn, Camilla, i Hannah Halvarsson. "Vuxna personers upplevelser av att leva med obotlig cancer : en litteraturstudie". Thesis, Högskolan i Gävle, Avdelningen för hälso- och vårdvetenskap, 2018. http://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-26463.

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Bakgrund: Under år 2016 upptäcktes 64 000 maligna tumörer i Sverige. Cancer uppstår när det blir en rubbning i celldelningen och cellerna börjar dela sig okontrollerat. När det inte finns någon chans att en kurativ behandling skulle lyckas går man in i en palliativ behandling. Denna fokuserar på symtomlindring och stöd till både patientenoch närstående. Det är viktigt för sjuksköterskan att vara medveten om hur patienter med obotlig cancer upplever sin situation för att kunna ge en så god omvårdnad som möjligt. Syfte: Att beskriva vuxna personers upplevelser av att leva med obotlig cancer samt beskriva vilka datainsamlingsmetoder som använts i de valda artiklarna. Metod: En deskriptiv litteraturstudie som inkluderade tolv vetenskapliga artiklar, varav nio artiklar av kvalitativ ansats och tre av kvantitativ ansats. Sökningarna skedde i PubMed och Cinahl. De valda artiklarna analyserades sedan objektivt. Huvudresultat: Trötthet var ett av de vanligaste upplevda symtomen hos terminalt sjuka cancerpatienter. Rädsla för framtiden samt rädsla inför döden var vanligt upplevda känslor. Känsla av hopp ansågs viktig, likaså relationen till nära och kära. Kontakten med sjukvården kunde upplevas som frustrerande, dock beskrev många att de var tacksamma över den hjälp de fick. Slutsats: Att leva med en obotlig cancer påverkar personerna i både den fysiska, psykiska, sociala och existentiella delen av livet. En rädsla inför framtiden och döden beskrevs. För att minska personens lidande är det viktigt att vården fungerar och att sjuksköterskan kan bemöta den drabbade på dennes nivå.
Background: In 2016, 64,000 malignant tumors were discovered in Sweden. Cancer occurs when there is an abnormal cell growth and the cells start to divide uncontrollably. When there is no chance that a curative treatment would succeed the palliative treatment takes place. It focuses on symptom relief and support for both the patient and his/her relatives. It is important for the nurse to be aware of how patients with incurable cancer experience their situation in order to provide as good care as possible. Aim: To describe adult experiences of living with incurable cancer as well as to describe the data collection methods used in the selected articles. Method: A descriptive literature study, which included twelve scientific articles. Nine articles of qualitative approach, and three of quantitative approach. The searches took place in PubMed and Cinahl. The selected articles were then objectively analyzed. Key Findings: Fatigue was one of the most commonly experienced symptoms in terminally ill cancer patients. Fear of the future as well as fear of death were common feelings. Feeling of hope was considered important, as well as the relationship to loved ones. The contact with health care could be perceived as frustrating, however, many described that they were grateful for the help they received. Conclusion: Living with an incurable cancer affects the people in both the physical, mental, social and existential part of life. A fear of the future and death is described. In order to reduce the person's suffering it is important that the health care works and that the nurse can respond to the patient at his level.

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Pilotte, Janice Lee Fitzherbert. "Withdrawal/Withholding Life-Sustaining Therapies: Factors that Influence Family Decisions". Fogler Library, University of Maine, 2005. http://www.library.umaine.edu/theses/pdf/PilotteJLF2005.pdf.

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Copp, Gina. "Facing impending death : the experiences of patients and their nurses in a hospice setting". Thesis, Oxford Brookes University, 1996. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.320565.

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35

Poirier, Norma. "An analysis of physicians' reluctance to follow terminally ill patients' advance directives". ScholarWorks, 1999. http://scholarworks.waldenu.edu/hodgkinson/4.

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This explanatory study examined the reasons why physicians have difficulty respecting the wishes of terminally ill patients who refuse treatment. Consistent with the relevant literature, three alternative explanations were hypothesized in answering the question: fear of litigation, religious beliefs, and medical professional values. Evidence was gathered from three different sources. Semistructured interviews were carried out with 24 emergency physicians from the Moncton Area in the Canadian province of New Brunswick and submitted to both quantitative and qualitative content analysis. Nineteen cases of terminally ill patients whose wishes not to be treated were not respected were collected and submitted to content analysis. Finally, administrative policies on resuscitative policies and on clinical ethics committees of all New Brunswick Hospital Corporations were collected and also submitted to content analysis. The results of the study showed that fear of litigation may be a partial explanation in about one third of the cases, but contradictory evidence also pointed to diverging conclusions. Religious beliefs may also account for certain physicians' attitudes toward refusal of treatment by their terminally ill patients. Statistically significant differences were found between unilingual and bilingual physicians. However, medical professional values were demonstrated to be the single most important factor in explaining why physicians acted the way they did in the treatment of their terminally ill patients. Normative pluralism and especially Luhmann's self-reference concept may explain why physicians had so much difficulty adapting their behaviors to meet the courts' legal decisions and the legislative changes respecting the rights of terminally ill patients who refuse treatment.

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Albertus, Chesne Joy. "The Right to Health Care of Terminally Ill Inmates in South Africa". University of the Western Cape, 2018. http://hdl.handle.net/11394/6247.

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Doctor Legum - LLD
In South Africa, prison authorities are not primarily concerned with the health of the prison population. This is evidenced by inter alia: the vast number of complaints regarding health care received by the Judicial Inspectorate of Correctional Centres; natural deaths in prisons reported annually; litigation regarding health care and treatment in prisons; and the notoriously poor conditions of detention which inevitably have a negative impact on prisoners' health. There is as a result a noticeable difference between state provided health care to the public and health care in prisons. This thesis is therefore aimed at unpacking what the right to health means in respect of terminally ill prisoners. This question has been overshadowed by issues regarding medical parole in South Africa and intermittently by calls for palliative care in prisons. Whilst these issues are relevant to their plight, there is a need to articulate the scope of the right to health of terminally ill prisoners. This is imperative as not all prisoners who are terminally ill are eligible for medical parole and there are instances where the granting of such parole may be impractical. An analysis of the right to health in relation to terminally ill prisoners will provide legal certainty as to the legal entitlements regarding health care for one of the most vulnerable groups in society. They will know what they may legally claim and what they cannot insist upon in terms of the law.

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Jameson, C. "Investigation of the palliative care needs of patients terminally ill with AIDS". Master's thesis, University of Cape Town, 2005. http://hdl.handle.net/11427/3401.

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38

Morgan, Dale Owen. "Spirituality and psychosocial adjustment in a population of terminally ill cancer patients". Thesis, The University of Arizona, 1989. http://hdl.handle.net/10150/558113.

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Beene, Jerry Dale. "The living and spiritual experiences of gay men with AIDS : an exploratory study : a project based upon an independent investigation /". View online, 2008. http://hdl.handle.net/10090/5866.

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Cacciattolo, Marcelle 1971. "Coping with breast cancer : women's lived experiences with illness and dying and the role of faith in facilitating well-being". Monash University, School of Political and Social Inquiry, 2001. http://arrow.monash.edu.au/hdl/1959.1/8636.

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Khandelwal, Nikhil Krueger Kem P. Berger Bruce A. "Developing condition-specific hospice formularies for congestive heart failure and depression conditions and the evaluation of their economic impact". Auburn, Ala., 2006. http://repo.lib.auburn.edu/2006%20Summer/Dissertations/KHANDELWAL_NIKHIL_24.pdf.

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Chan, Wai-ling Churonley. "Family members' perspective of terminally ill patient for do-not-resuscitate (DNR) order /". View the Table of Contents & Abstract, 2006. http://sunzi.lib.hku.hk/hkuto/record/B36403246.

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Nicholls, Jackie. "An exploration of the relationships between health-care professionals and terminally-ill patients". Thesis, Bangor University, 1998. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.262749.

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Chan, Wai-ling Churonley, i 陳慧玲. "Family members' perspective of terminally ill patient for do-not-resuscitate (DNR) order". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2006. http://hub.hku.hk/bib/B45011746.

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Mnisi, Pretty Pertunia. "The experiences of families regarding caring for family members who are terminally ill". Diss., University of Pretoria, 2009. http://hdl.handle.net/2263/67809.

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Caring for terminally ill patients can be regarded as an important public health concern in South Africa. In Sub-Saharan Africa, the Human Immunodeficiency Virus (HIV) or Acquired Immune Deficiency Syndrome (AIDS) and cancer are the most pressing concerns, with 22.5 million infected people in 2009, which means that two thirds (68%) of the global population is living with HIV/AIDS (Pool, 2011:10). It is generally known that South Africa is a leading country in Sub-Saharan Africa in the provision of palliative care. Previous research studies also revealed that many terminally ill patients are voicing the desire to die at home instead of in a hospital or in other health care institutions, which place an unbearable pressure on families. Family caregiving is generally provided by close family members of the terminally ill patient. Providing care to a family member with a terminal illness at home presents with several challenges, such as the fact that taking care of the terminally ill patient is time consuming, which may lead to feelings of social isolation. The goal of the research study was to explore the experiences of families regarding caring for family members who are terminally ill at home in the community of Ehlanzeni District in the Mpumalanga Province. The guiding research question was: What are the experiences of families regarding caring for family members who are terminally ill living in Ehlanzeni District in the Mpumalanga Province? A qualitative research approach was followed, with a collective case study as research design. The population for this study was family members who lived with a terminally ill patient. Non-probability, purposive sampling was applied to generate a sample. The sample size of the study was 11 participants between the ages of 18 and 62 years. Semi-structured interviews were used to collect the data, supported by an interview schedule to explore the experiences of family members regarding caring for terminally ill family members. All interviews were voice recorded with the consent of the participants. The data that was gathered by the researcher were analysed and themes and sub-themes were identified. The empirical findings of the study indicated that the physical demands of family caregiving for a family member with a terminal illness at home are often too much for families to handle on their own without the support of other professional systems. It also revealed that these caregivers, who are mostly females, often present with poor health themselves because of the pressure they experience during the caring process. Some of the family caregivers feel isolated, as they do not have enough time for themselves or for the other family members due to the fact that family caregiving demands almost all of their time. Some of these caregivers face financial constraints, their children‟s school performance decreases, and they are living in poverty-stricken conditions. Some of the participants indicated that family caregiving does have a positive side too, namely that they can take care of a family member, which is a symbol of love and respect. Conclusions and recommendations were formulated which focus primarily on the role of health professionals, including social workers, in providing a quality service to the terminally ill patients and their families. Themes for further research in this professional field were indicated.
Social Work and Criminology
MSW
Unrestricted

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Chao, Co-Shi Chantal. "The meaning of good dying of Chinese terminally ill cancer patients in Taiwan". Case Western Reserve University School of Graduate Studies / OhioLINK, 1993. http://rave.ohiolink.edu/etdc/view?acc_num=case1056732376.

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Fletcher, Kirsten. "Nutritional support for the terminally ill patient : attitudes and ethics education of dietitians /". Thesis, This resource online, 1993. http://scholar.lib.vt.edu/theses/available/etd-09292009-020254/.

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Volker, Deborah L. "Oncology nurses' experiences with requests for assisted dying from terminally ill cancer patients /". Digital version accessible at:, 1999. http://wwwlib.umi.com/cr/utexas/main.

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Fairbanks, Wendy. "Psychological transformation in survivors of terminal cancer". Thesis, University of British Columbia, 1990. http://hdl.handle.net/2429/29682.

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The purpose of this study was to understand the meaning of transformation in surviving terminal cancer. An existential-phenomenological approach was used to interview five participants who had lived at least five years beyond the diagnosis of widely metastatic or terminal cancer. Review of the literature which addressed the issue of transformation suggested that life-threatening illness is an opportunity for growth. There are many cross-cultural accounts of transformation, and many studies of survivorship qualities, but little research into the transformation process as it is experienced by cancer survivors. Participants told the story of their recovery from cancer and how it changed their lives. Cochran's (1986) dramaturgical approach provided the model for capturing the meaning of this experience in story form. Each interview lasted from 2½to 5 hours. Interviews were audio-recorded and transcribed. Analysis of the interviews followed Colaizzi's (1978) method. Significant statements were extracted from the protocols, themes were formulated, and a description of the experience was written. Other sources of data were used in addition to interviews. An autobiography and a series of articles were collected from two participants. This written material was analyzed in the same way as the interviews. The experience of the researcher also served as data, and was analyzed through reflective and descriptive methods. Conducting interviews, soliciting written descriptions and including the researcher's experience allowed the data to be more broadly supported. Results of the study were validated by the participants in a second interview. They confirmed that the 38 themes and the common pattern of transformation derived from the five participants accurately reflected their own experience. The results indicated that psychological transformation in survivors of terminal cancer is a spiritual journey. In allowing a life-threatening disease to become an opportunity for personal awareness and growth, people can transform their illness into a spiritual teaching. Serious illness can teach people about the meaning of life., and give their own lives purpose and direction. Through this affirmation of life, and by following their purpose and path, healing can occur. This healing not only moves people toward wholeness, but it holds the potential for transforming and healing the problems of others. This pattern of transformation has practical implications for the nature of support useful for people experiencing a health crisis, and has implications for the designing of effective psychosocial support for cancer patients.
Education, Faculty of
Educational and Counselling Psychology, and Special Education (ECPS), Department of
Graduate

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Behr, Macrina. "Hospice care in the United Kingdom and in the United States of America". Theological Research Exchange Network (TREN), 1990. http://www.tren.com.

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