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Weingarten, Richard, i Maria E. Restrepo-Toro. "Recovery narratives: 'see how far i've come'". Cadernos Saúde Coletiva 20, nr 4 (2012): 448–52. http://dx.doi.org/10.1590/s1414-462x2012000400007.
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As the paradigm shift towards a recovery-oriented mental health system becomes more prominent, individuals with lived experience of mental illness will continue to write and speak their narratives of mental illness and recovery. This article discusses the social reality of people with mental illness: how they are stigmatized by the media and how competing narratives within the mental health system afflict people with this disability. It also discusses the empowering process of constructing a narrative that enables the narrator/speaker to find meaning in her/his experience while putting a realistic 'face' on mental illness and recovery for the general public. It further describes how telling a narrative to diverse audiences, including a college class of 'people in recovery' enhances the author's personal recovery by giving his life new meaning and purpose.
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Wang, Jin Yong. "Service users’ personal experience and interpretation of mental illness: Oriental narratives". International Journal of Social Psychiatry 58, nr 4 (21.06.2011): 425–32. http://dx.doi.org/10.1177/0020764011408000.
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Background: Service users’ perception of mental illness is vital because it points out a viable direction that practitioners can follow to fully understand service users in their own sociocultural context. Material: Qualitative research findings include mental health service users’ roles and identities, their perceptions of mental illness and their personal experiences of psychiatric stigma. Discussion: While there are similar phenomena regarding mental illness stigma between East and West, there are culturally distinctive characteristics found in Taiwan. Conclusions: Based on personal perceptions and experiences, mental health service users have interpreted illness and performed the patient role in their own way.
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Lysaker, Paul H., Catherine A. Clements, Cynthia D. Plascak-Hallberg, Stacy J. Knipscheer i Dustin E. Wright. "Insight and Personal Narratives of Illness in Schizophrenia". Psychiatry: Interpersonal and Biological Processes 65, nr 3 (wrzesień 2002): 197–206. http://dx.doi.org/10.1521/psyc.65.3.197.20174.
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Young, Elizabeth. "Memoirs". Narrative Inquiry 19, nr 1 (25.09.2009): 52–68. http://dx.doi.org/10.1075/ni.19.1.04you.
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Four published memoirs refute culturally dominant ideas about severe mental illness as personal weakness, as something shameful, and as a condition that necessarily leads to isolation and disenfranchisement. The narrative structure and content of the memoirs reveal that people’s experience differs from the hegemonic discourse: while narrating symptoms, diagnosis, treatment, and acceptance of the illness, all four authors present themselves as accomplished, self-possessed, and socially integrated. Their memoirs, and the act of narrating their experiences with mental illness, challenge the established cultural discourse of mental illness as limitation. The narratives help change that discourse and our social attitudes toward people with mental illness.
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Oyebode, Femi. "Autobiographical narrative and psychiatry". Advances in Psychiatric Treatment 9, nr 4 (lipiec 2003): 265–70. http://dx.doi.org/10.1192/apt.9.4.265.
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This paper addresses how mental illness and psychiatry are presented in autobiographical narratives. The richness of clinical psychopathology unmediated by the expectations of psychiatry is described. The rituals of psychiatry, the importance of the personal relationships between patients and clinicians, and the subjective beliefs of people about mental illness are explored.
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Wiens, Sandra E., i J. C. Daniluk. "Loss and change: The challenges of mothering an adult child with schizophrenia". International Journal of Healthcare 3, nr 1 (12.01.2017): 26. http://dx.doi.org/10.5430/ijh.v3n1p26.
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A qualitative narrative and cross-narrative research method was used to explore how six mothers of adult children with schizophrenia or schizoaffective disorder experienced personal growth and change. Twenty-four largely unstructured interviews were conducted over the course of two years. The following eight common themes emerged across the narratives: Enduring sadness and loss, Distress and struggle, Fluctuations in hope, Feelings of guilt and regret, Concern about their child’s future, Impact of their child’s mental illness on their other children, Commitment to helping/action, and Personal and relational change. The changes reported by these mothers were set against the backdrop of the nonfinite losses that characterized the realities and uncertainties of their lives since the onset of their child’s mental illness. Implications for mental health practice are addressed based on these findings.
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Oshodi, Abiola, i Gavin Rush. "Recovery from mental illness: changing the focus of mental health services". Irish Journal of Psychological Medicine 28, nr 3 (wrzesień 2011): 161–64. http://dx.doi.org/10.1017/s0790966700012180.
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AbstractThe concept of recovery entered the lexicon of the mental health services in the 1980s following the publication of a series of studies and personal narratives which demonstrated that the course of mental illness was not always one of inevitable deterioration and that people diagnosed with severe mental illness could reclaim or recover meaningful lives. For a long time, recovery was not thought possible by many family members, service providers and researchers. However globally, specific policy and clinical strategies are being developed to implement recovery principles although key questions remain. In fact, the possibility of recovery is still debated by some. In this paper, we include information about the recovery model and the medical model; we provide evidence for recovery and document changes in mental health practices and policies incorporating recovery as the guiding principle. We also attempt to address the debate as to whether recovery is an evidence based practice. We propose that evidence based practice should be complementary to value-based and narrative-based practices and we suggest an integrative model that maximises the virtues and minimises the weaknesses of each practices (see Figure 1).
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Nohr, Laura, Theresa Steinhäuser, Alexis Lorenzo Ruiz, Juan Emilio Sandoval Ferrer i Ulrike von Lersner. "Causal attribution for mental illness in Cuba: A thematic analysis". Transcultural Psychiatry 56, nr 5 (10.06.2019): 947–72. http://dx.doi.org/10.1177/1363461519853649.
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Explanatory models (EMs) for illness are highly relevant for patients, and they are also important for clinical diagnoses and treatment. EMs serve to capture patients' personal illness narratives and can help reveal how culture influences these narratives. While much research has aimed to understand EMs in the Western hemisphere, less research has been done on other cultures. Therefore, we investigated local causal attributions for mental illness in Cuba because of its particular history and political system. Although Cuban culture shares many values with Latin American cultures because of Spanish colonization, it is unique because of its socialist political and economic context, which might influence causal attributions. Thus, we developed a qualitative interview outline based on the Clinical Ethnographic Interview and administered interviews to 14 psychiatric patients in Havana. We conducted a thematic analysis to identify repeated patterns of meaning. Six patterns of causal attribution for mental illness were identified: (1) Personal shortcomings, (2) Family influences, (3) Excessive demands, (4) Cultural, economic, and political environment in Cuba, (5) Physical causes, and (6) Symptom-related explanations. In our sample, we found general and Cuba-specific patterns of causal attributions, whereby the Cuba-specific themes mainly locate the causes of mental illness outside the individual. These findings might be related to Cubans' socio-centric personal orientation, the cultural value of familismo and common daily experiences within socialist Cuban society. We discuss how the findings may be related to social stigma and help-seeking behavior.
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Lysaker, Paul H., Christopher M. France, Nicole L. Hunter i Louanne W. Davis. "Personal Narratives of Illness in Schizophrenia: Associations with Neurocognition and Symptoms". Psychiatry: Interpersonal and Biological Processes 68, nr 2 (czerwiec 2005): 140–51. http://dx.doi.org/10.1521/psyc.2005.68.2.140.
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Nurser, Kate P., Imogen Rushworth, Tom Shakespeare i Deirdre Williams. "Personal storytelling in mental health recovery". Mental Health Review Journal 23, nr 1 (12.03.2018): 25–36. http://dx.doi.org/10.1108/mhrj-08-2017-0034.
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Purpose Creating more positive individual narratives around illness and identity is at the heart of the mental health care recovery movement. Some recovery services explicitly use personal storytelling as an intervention. The purpose of this paper is to look at individual experiences of a personal storytelling intervention, a recovery college Telling My Story (TMS) course. Design/methodology/approach Eight participants who had attended the TMS course offered at a UK recovery college were interviewed. Data were analysed using interpretative phenomenological analysis. Findings Five key themes, namely a highly emotional experience, feeling safe to disclose, renewed sense of self, two-way process and a novel opportunity, were emerged. Originality/value The findings suggest that storytelling can be a highly meaningful experience and an important part of the individual’s recovery journey. They also begin to identify elements of the storytelling process which might aid recovery, and point to pragmatic setting conditions for storytelling interventions to be helpful. More time could be dedicated to individuals telling their story within UK mental health services, and the authors can use this insight into the experience of personal storytelling to guide any future developments.
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Hui, Ada, Theodore Stickley, Michelle Stubley i Francesca Baker. "Project eARTh: participatory arts and mental health recovery, a qualitative study". Perspectives in Public Health 139, nr 6 (5.04.2019): 296–302. http://dx.doi.org/10.1177/1757913918817575.
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Aims: To identify the potential mental health benefits of a rural-based participatory arts programme in the United Kingdom. Methods: Fourteen narrative interviews were conducted among participants of the Project eARTh programme. The data were subjected to a thematic analysis process. Results: Three overarching themes were identified: identity and self-expression; connectedness through occupation; wellbeing and personal growth. The importance of meaningful relationships was highlighted as preventing social isolation, particularly in rural locations. Engagement in artistic group activities enable participants to connect with their communities. Conclusions: Artistic activities help people to develop friendships and to engage with local communities in rural locations. Connectedness to people and places were valued by participants as part of their personal growth. The groups empower people to experience increased confidence and identities beyond illness narratives. Artistic group activities can benefit the mental health of participants in rural locations.
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Berna, F., M. C. Allé, J. Potheegadoo, C. Kber, P. Schneider, H. Kobayashi, R. Coutelle, T. Habermas i J. M. Danion. "Self-recovery in schizophrenia: Insight from autobiographical narratives of patients". European Psychiatry 30, S2 (listopad 2015): S26. http://dx.doi.org/10.1016/j.eurpsy.2015.09.080.
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The self or identity is often seriously challenged by the emergence of psychotic symptoms. A first reason for that is most likely due to the traumatic experience caused by the sudden emergence of hallucinations or persecutory ideas that challenge both the representation of oneself and that of the world and others. A second reason is linked to the social consequences of having a mental illness and of being assigned with the label of “mentally ill or disabled person”. A third relates to the patients’ cognitive impairment that alters their ability to take distance from these self-challenging events, to give a meaning to these experiences and to build coherent narratives of their life that integrate a great variety of personal experiences such as turning points or unpleasant events. For these reasons, recovering from a severe mental illness is a process through which the self evolves by integrating the lessons of past personal events, building new representations of oneself and looking to new directions for future projects. Excerpts of patients’ narratives collected in experimental setting will be presented in order to illustrate how indexes of recovery can be measured in self-narratives and how they help identifying the steps of self-recovery that have been identified in qualitative research on patients with schizophrenia .
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Yit. "Personal Narratives of Mental Illness: Redressing Madness in the Singaporean Fiction of Amanda Lee Koe". Humanities 8, nr 2 (6.04.2019): 70. http://dx.doi.org/10.3390/h8020070.
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Amanda Lee Koe’s short stories (2013) redress the limited tolerance for the mad citizen-subject, whose subjectivity is obscured, if not erased, by medical prescriptions. Official and often state-sanctioned conceptualizations of the peculiar mind are grievously justified in behavioral manifestations deemed socially unacceptable. Koe’s stories about idiosyncratic Singaporeans illustrate the way personal experiences—of memory loss, homosexual tendencies, and emotional self-expressions—are informed by, and in turn inform, the biopolitical regulation of Singaporean citizens rendered objects of biopower. In this way, her stories invite a meditation on the state, people and power. Foregrounding fractured and unorthodox characters, these stories serve to intensify individual voices articulated in personal narratives addressing affective experiences, including sadness culminating in loneliness. Furthermore, the stories attest to socially constructed norms instigating the repudiation and criminalization of sexual deviants. Significantly, they add to the “cultural apparatus”—which C.W. Mills defines as “the source of Human Variety—of styles of living and of ways to die”—by questioning the nation’s ideological imperatives, including heterosexual norms, social insistence on mono-cultural marriages and state/family-endorsed medical intervention. Offering a critique of ideological state apparatus embedded within the power structures inherent to psychopathology, Koe’s Ministry of Moral Panic challenges the established ways of viewing “Others” who are ostensibly “mad”. Consequently, her stories mediate a broadening human experience, by calling for inclusivity amid the social rejection and insular treatment of afflicted subjects with alleged disorders.
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Hjärthag, Fredrik, Karin Persson, Karin Ingvarsdotter i Margareta Östman. "Professional views of supporting relatives of mental health clients with severe mental illness". International Journal of Social Psychiatry 63, nr 1 (31.01.2017): 63–69. http://dx.doi.org/10.1177/0020764016682268.
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Background: Supporting families where one person suffers from long-term severe mental illness (SMI) is essential, but seems hard to reach. The aim of this study was to examine professionals’ views of supporting relatives of persons with SMI. Material: Individual interviews mirroring personal narratives and group interviews reflecting group-processed answers were conducted among 23 professionals and analyzed thematically. Results: Three themes emerged: (a) information and group interaction reduces stigma and increases well-being, (b) professionals need to feel secure and confident about how the support structure works and (c) collaboration is difficult but required on several levels. Conclusion: Trusting relationships with families were considered important, although seldom achieved; professionals wished to feel secure in their role toward relatives of a person with SMI; and professionals wanted to feel confident when working together with other services to support families.
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Soni, Shikha. "Personal Narrative of Mental Illness within the Family: A Mental Health Professional’s Autoethnography". Journal of Psychosocial Research 15, nr 1 (14.09.2020): 69–76. http://dx.doi.org/10.32381/jpr.2020.15.01.5.
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Karnieli-Miller, Orit, Geffen Nissim i Miriam Goldberg. "“It’s in the Cards”". Qualitative Health Research 27, nr 1 (11.07.2016): 138–51. http://dx.doi.org/10.1177/1049732315609897.
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In this article, we present the use of illustrated metaphorical cards as a technique to enrich the qualitative narrative interview. We examine the advantages of incorporating a projective tool to assist in constructing and understanding personal narratives of people living with severe mental illness. We interviewed 25 participants—staff and members of a clubhouse in Israel (an international community model of rehabilitation in mental health)—and sought to understand their stories focused on personal and organizational values. The findings revealed that, in most cases, the cards contributed to data collection by enhancing the interviewees’ ability for expression and by facilitating richer, more comprehensive stories and descriptions. This in turn enhanced the researcher’s ability to understand the messages and stories presented. The research conclusions discuss the cards’ potential contribution to improving data collection and analysis. The cards became an additional channel for expressing participants’ experiences, emotions, and unique voice.
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Furqan, Z., J. Zaheer, M. Sinyor i A. Schaffer. "Mental Illness and Mental Health Care as Experienced by Persons who Die by Suicide; a Qualitative Analysis of Suicide Notes". European Psychiatry 41, S1 (kwiecień 2017): S293. http://dx.doi.org/10.1016/j.eurpsy.2017.02.165.
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While mental illness is a risk factor for suicidal behaviour and many suicide victims receive mental health care prior to death, there is a comparative lack of research that explores their narratives of care. Suicide notes offer unique insight into these subjective experiences. Our study explores the following questions: “How is mental health care experienced by those who die by suicide?” and “What role does this experience play in an individual's journey to suicide?” Our sample is a set of 21 purposefully selected notes that explicitly make mention of mental illness and/or mental health care, from a larger sample of 255 notes obtained through the Toronto Coroner's Office. We utilized a constructivist grounded theory framework to engage in line-by-line open coding, axial coding, memo-ing and theorizing of the data. Preliminary themes include (1) perception of recurrent utilization of mental health care as personal failure, (2) recurrent utilization of mental health care as a manifestation of accumulating hopelessness, (3) the construction of suicide as being beyond the scope of mental health care, (4) tensions between the conceptualization of mental illness as an inherent part of the self and mental illness as a disease to be fought or overcome, and (5) suicide as an exertion of self-autonomy, distinct from the influence of mental illness. An exploration of the complexity of an individual's relationship with mental illness and mental health care can foster better identification, understanding and support for those at risk for suicide.Disclosure of interestThe authors have not supplied their declaration of competing interest.
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England, Marcia R. "Being open in academia: A personal narrative of mental illness and disclosure". Canadian Geographer / Le Géographe canadien 60, nr 2 (17.04.2016): 226–31. http://dx.doi.org/10.1111/cag.12270.
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Engebretson, Joan C., Noemi E. Peterson i Moshe Frenkel. "Exceptional patients: Narratives of connections". Palliative and Supportive Care 12, nr 4 (4.07.2013): 269–76. http://dx.doi.org/10.1017/s147895151300014x.
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AbstractObjective:This study sought to better understand the patient s perspective of the experience of recovery from cancer that appeared to defy medical prognoses.Methods:Fourteen cases of medically verified exceptional outcomes were identified. A qualitative approach, employing long narrative interviews was used. Data was analyzed using a cross case thematic analytic approach.Results:The major overarching theme was connections, both internal and external. Internal included connections with God or a higher power and with oneself. The external connections, the focus of this paper, included 1) personal connections with friends and family, 2) connections with the medical system: the physician, nurses and other staff, and 3) connections with other patients. They described the nature of these relationships and the importance of frequent contact with family and friends as providing significant emotional and instrumental support. They expressed confidence in receiving care from a reputable clinic, and with very little probing illustrated the importance of the relationship with their providers. They articulated the significance of the compassionate qualities of the physician and identified communication attributes of their physician that were important in establishing this connection. These attributes were demeanor, availability, honesty, sensitivity in the decision making process. They provided examples of positive connections with nurses and other staff as well as with other patients through their illness process.Significance of results:The importance of connections in these illness narratives was richly illustrated. These issues often are overlooked in clinical settings; yet they are of crucial importance to the health and well-being of the patients.
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Jones, Raya A. "Identity commitments in personal stories of mental illness on the internet". Narrative Inquiry 15, nr 2 (22.12.2005): 293–322. http://dx.doi.org/10.1075/ni.15.2.06jon.
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The Internet augments the informational flows that organize biographies in late modernity. Sufferers of bipolar disorder (manic depression) may turn to the Internet for accessible information, to learn about others' experiences and impart their own knowledge. Personal accounts posted in the public domain become themselves part of those informational flows, and thus acquire a dual life at a boundary between private and public domains. This poses certain challenges for the investigation of computer-mediated autobiographical telling, which are identified in this paper and negotiated in an analysis of downloaded personal accounts of bipolar disorder. Two of the stories are selected for a close look. Story 1 tells about achieving long-term remission through personal resolve and psychological alternatives to medication. Story 2 tells about becoming able to talk about the illness through the achievement of a social identity as “manic depressive”. The stories' similarities, differences, and comparability with the other texts are discussed with a view to theorizing how such texts position their implied author in the illness experience. Building upon Bakhtin's idea of a text's plan and its realization, a concept of “identity commitments” as textual properties is proposed. (Narrative identity, Computer-mediated communication, Bipolar disorder, Bakhtin)
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Sawyer, Annita. "Let's talk: a narrative of mental illness, recovery, and the psychotherapist's personal treatment". Journal of Clinical Psychology 67, nr 8 (17.06.2011): 776–88. http://dx.doi.org/10.1002/jclp.20822.
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Naughton, Michael Frederick, Darryl Maybery i Melinda Goodyear. "A parent’s perspective of the bidirectional impact of mental illness in families". Clinical Nursing Studies 7, nr 1 (17.09.2018): 46. http://dx.doi.org/10.5430/cns.v7n1p46.
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Objective: Recent research has found over 70% of children attending a mental health service also have a parent with a mental illness. Research on the impact of mental illness in families focuses primarily on how parental mental illness impacts on children. What is not understood is the experience of parents and children where both have a mental illness. The aim of this study was to investigate the experiences of parents where both a child and a parent have a mental illness.Methods: Thirty-seven parents were interviewed using a narrative design to determine their personal and family experiences. Interviews were analyzed using interpretative phenomenological analysis with a number of themes highlighted.Results: Themes particular to this family type were: impact of parental mental illness; specific strategies; bidirectional impacts of mental illness; and intergenerational factors. Also raised were supports parents would have liked. From the narrative of these parents the challenges of families, where both a parent and a child have a mental illness, are highlighted.Conclusions: It is from these interviews, that awareness of clinicians can be raised, and more effective, well-thought-out interventions put in place. Interventions that take account of the bidirectional influences of mental illness will be more successful in meeting the needs of all members of a family. People do not operate in isolation and providing a family focused approach is an essential first step in helping people manage where mental illness is a prevalent factor for different family members.
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Leamy, Mary, Victoria Bird, Clair Le Boutillier, Julie Williams i Mike Slade. "Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis". British Journal of Psychiatry 199, nr 6 (grudzień 2011): 445–52. http://dx.doi.org/10.1192/bjp.bp.110.083733.
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BackgroundNo systematic review and narrative synthesis on personal recovery in mental illness has been undertaken.AimsTo synthesise published descriptions and models of personal recovery into an empirically based conceptual framework.MethodSystematic review and modified narrative synthesis.ResultsOut of 5208 papers that were identified and 366 that were reviewed, a total of 97 papers were included in this review. The emergent conceptual framework consists of: (a) 13 characteristics of the recovery journey; (b) five recovery processes comprising: connectedness; hope and optimism about the future; identity; meaning in life; and empowerment (giving the acronym CHIME); and (c) recovery stage descriptions which mapped onto the transtheoretical model of change. Studies that focused on recovery for individuals of Black and minority ethnic (BME) origin showed a greater emphasis on spirituality and stigma and also identified two additional themes: culturally specific facilitating factors and collectivist notions of recovery.ConclusionsThe conceptual framework is a theoretically defensible and robust synthesis of people's experiences of recovery in mental illness. This provides an empirical basis for future recovery-oriented research and practice.
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Abrahamson, David. "Shared housing and long-term mental illness". Housing, Care and Support 17, nr 1 (12.03.2014): 41–47. http://dx.doi.org/10.1108/hcs-12-2013-0026.
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Purpose – The purpose of this paper is to give an account by a rehabilitation psychiatrist of many years of involvement in shared housing for former long-stay hospital residents and other long-term mental health service users. Design/methodology/approach – The paper offers a personal view based on developments in one locality of East London, blending case study narrative with cited earlier published papers that confirm and/or give greater detail on specific aspects of the experience gained. Findings – Long-term mental health service users, given the opportunity via shared housing to develop more lasting and natural relationships, proved to have social and interactive capacity that was obscured by both the conditions of hospital wards and by isolating accommodation “in the community”. The experience provides lessons for a better understanding of patients’ problems. Practical implications – Shared housing is often seen as simply a poor substitute for independent living; but the experience recounted here suggests that shared living may have particular value for some client groups. Originality/value – The housing developments and the associated research remain unusual and of potential value for planners of long-term services.
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HINSHAW, STEPHEN P., i DANTE CICCHETTI. "Stigma and mental disorder: Conceptions of illness, public attitudes, personal disclosure, and social policy". Development and Psychopathology 12, nr 4 (grudzień 2000): 555–98. http://dx.doi.org/10.1017/s0954579400004028.
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The end of the last millennium witnessed an unprecedented degree of public awareness regarding mental disorder as well as motivation for policy change. Like Sartorius, we contend that the continued stigmatization of mental illness may well be the central issue facing the field, as nearly all attendant issues (e.g., standards of care, funding for basic and applied research efforts) emanate from professional, societal, and personal attitudes towards persons with aberrant behavior. We discuss empirical and narrative evidence for stigmatization as well as historical trends regarding conceptualizations of mental illness, including the field's increasing focus on genetic and neurobiological causes and determinants of mental disorder. We next define stigma explicitly, noting both the multiple levels (community, societal, familial, individual) through which stigma operates to dehumanize and delegitimize individuals with mental disorders and the impact of stigma across development. Key developmental psychopathology principles are salient in this regard. We express concern over the recent oversimplification of mental illness as “brain disorder,” supporting instead transactional models which account for the dynamic interplay of genes, neurobiology, environment, and self across development and which are consistent with both compassion and societal responsibility. Finally, we consider educational and policy-related initiatives regarding the destigmatization of mental disorder. We conclude that attitudes and policy regarding mental disorder reflect, in microcosmic form, two crucial issues for the next century and millennium: (a) tolerance for diversity (vs. pressure for conformity) and (b) intentional direction of our species' evolution, given fast-breaking genetic advances.
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Møllerhøj, Jette. "Offender Recovery. Forensic Patient Perspectives on Long-Term Personal Recovery Processes". International Journal of Environmental Research and Public Health 18, nr 12 (9.06.2021): 6260. http://dx.doi.org/10.3390/ijerph18126260.
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Knowledge on user experiences from mentally disordered offenders (MDOs) is still limited in a Danish context, especially regarding recovery from offences, severe mental illness, long-term admissions and often involuntarily contact with hospital psychiatry. The study is based on 34 semi-structured interviews with nine forensic patients exploring their experiences with personal recovery processes. The MDOs point out a significant number of elements and factors enhancing, supporting and limiting personal recovery processes. Long-term recovery processes for MDOs involve coming to terms with mental disorders as well as offences. Working with offender recovery implies addressing and understanding the index offence leading to psychiatric measurement as well as addressing risk and prevention of future crime. This coming to terms is an individual and deeply personal process and it often involves several and changing narratives. According to the informants, professionals play a crucial role in supporting recovery processes and maintaining hope and optimism over time. MDOs experience structural barriers limiting recovery potential, especially stigma or limited areas of participation. It is important not to focus solely on personal recovery as a one-dimensional individual process or responsibility, but as a process also marked by structural and organisational challenges.
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Poole, Ria, Daniel Smith i Sharon Simpson. "How Patients Contribute to an Online Psychoeducation Forum for Bipolar Disorder: A Virtual Participant Observation Study". JMIR Mental Health 2, nr 3 (8.07.2015): e21. http://dx.doi.org/10.2196/mental.4123.
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Background In a recent exploratory randomized controlled trial, an online psychoeducation intervention for bipolar disorder has been found to be feasible and acceptable to patients and may positively impact on their self-management behaviors and quality of life. Objective The objective of the study was to investigate how these patients contribute to an online forum for bipolar disorder and the issues relevant for them. Methods Participants in the intervention arm of the Bipolar Interactive PsychoEDucation (“BIPED”) trial were invited to contribute to the Beating Bipolar forum alongside receiving interactive online psychoeducation modules. Within this virtual participant observation study, forum posts were analyzed using thematic analysis, incorporating aspects of discourse analysis. Results The key themes which arose from the forum posts included: medication, employment, stigma, social support, coping strategies, insight and acceptance, the life chart, and negative experiences of health care. Participants frequently provided personal narratives relating to their history of bipolar disorder, life experiences, and backgrounds, which often contained emotive language and humor. They regularly sought and offered advice, and expressed encouragement and empathy. The forum would have benefitted from more users to offer a greater support network with more diverse views and experiences. Conclusions Online forums are inexpensive to provide and may offer peer support and the opportunity for patients to share their experiences and explore issues related to their illness anonymously. Future research should focus on how to enhance patient engagement with online health care forums. Trial Registration ISRCTN81375447; http://www.isrctn.com/ISRCTN81375447 (Archived by WebCite at http://www.webcitation.org/6YzWtHUqu).
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Butterly, L. C. "At the mercy of Janus: transitioning from the child to the adult mental health services". Irish Journal of Psychological Medicine 32, nr 1 (26.01.2015): 45–49. http://dx.doi.org/10.1017/ipm.2014.80.
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This is a personal account of the transition from the child to the adult mental health services. The title references Janus, the Roman god of transitions. As such, the narrative looks to the past and the future in youth mental health. The discussion begins with a brief examination of the phenomenon of personal accounts in the broader context of evidence-based knowledge. There are a number of themes discussed throughout this perspective including access to education and loss of vocational capacity as a result of illness and service involvement. The discussion emphasises the importance of ‘Time’ in the delivery of services and provides justification for improved access to vocational and/or therapeutic options for young people with mental health difficulties. Time is also used as a structural device in order to communicate lived experience of mental illness, treatment and recovery.
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Slade, Mike, Stefan Rennick-Egglestone, Laura Blackie, Joy Llewellyn-Beardsley, Donna Franklin, Ada Hui, Graham Thornicroft i in. "Post-traumatic growth in mental health recovery: qualitative study of narratives". BMJ Open 9, nr 6 (czerwiec 2019): e029342. http://dx.doi.org/10.1136/bmjopen-2019-029342.
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ObjectivesPost-traumatic growth, defined as positive psychological change experienced as a result of the struggle with challenging life circumstances, is under-researched in people with mental health problems. The aim of this study was to develop a conceptual framework for post-traumatic growth in the context of recovery for people with psychosis and other severe mental health problems.DesignQualitative thematic analysis of cross-sectional semi-structured interviews about personal experiences of mental health recovery.SettingEngland.ParticipantsParticipants were adults aged over 18 and: (1) living with psychosis and not using mental health services (n=21); (2) using mental health services and from black and minority ethnic communities (n=21); (3) underserved, operationalised as lesbian, gay, bisexual and transgender community or complex needs or rural community (n=19); or (4) employed in peer roles using their lived experience with others (n=16). The 77 participants comprised 42 (55%) female and 44 (57%) white British.ResultsComponents of post-traumatic growth were present in 64 (83%) of recovery narratives. Six superordinate categories were identified, consistent with a view that post-traumatic growth involves learning about oneself (self-discovery) leading to a new sense of who one is (sense of self) and appreciation of life (life perspective). Observable positively valued changes comprise a greater focus on self-management (well-being) and more importance being attached to relationships (relationships) and spiritual or religious engagement (spirituality). Categories are non-ordered and individuals may start from any point in this process.ConclusionsPost-traumatic growth is often part of mental health recovery. Changes are compatible with research about growth following trauma, but with more emphasis on self-discovery, integration of illness-related experiences and active self-management of well-being. Trauma-related growth may be a preferable term for participants who identify as having experienced trauma. Trauma-informed mental healthcare could use the six identified categories as a basis for new approaches to supporting recovery.Trial registration numberISRCTN11152837
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Chiu, Marcus Yu-Lung, Grace Fang-Wan Wei i Sing Lee. "Personal Tragedy or System Failure: A Qualitative Analysis of Narratives of Caregivers of People with Severe Mental Illness in Hong Kong and Taiwan". International Journal of Social Psychiatry 52, nr 5 (wrzesień 2006): 413–23. http://dx.doi.org/10.1177/0020764006065155.
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Background: Most studies agree that mental illness brings a heavy objective and subjective burden of care on the family and especially the caregivers. However, very little attention has been paid to the wider context in which this burden is shaped and sustained. Material: In-depth interviews were conducted with 11 caregivers in Hong Kong and Taiwan and subsequent analysis identified four major themes: mystical knowledge beyond understanding, persistent self-blame and lay explanation, inertia of caregivers and non-responsive service system, and unsatisfying encounters with medical staff. Discussion: The results of the study indicate that these families did not get the services they needed. In spite of recounting many system failures, most respondents attributed their situation to tragedy and misfortune at personal and family levels. Such a discourse is closely connected to a wider context of health and social care. The Hong Kong subjects complained more, felt more helpless, and had more persistent self-blame and lay explanation than the Taiwanese subjects. Conclusions: To reduce such experiences, this paper calls for inclusive policies for the family, new education strategies and reflections on the roles of mental health professionals in empowerment and advocacy beyond conventional treatment, counseling and education.
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Slade, Mike, Michaela Amering i Lindsay Oades. "Recovery: an international perspective". Epidemiologia e Psichiatria Sociale 17, nr 2 (czerwiec 2008): 128–37. http://dx.doi.org/10.1017/s1121189x00002827.
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SummaryAims– To review developments in recovery-focussed mental health services internationally.Methods– Two forms of ‘recovery’ which have been used in the literature are considered, and international examples of recovery-focussed initiatives reviews. A ‘litmus test’ for a recovery-focussed service is proposed.Results– ‘Clinical recovery’ has emerged from professional literature, focuses on sustained remission and restoration of functioning, is invariant across individuals, and has been used to establish rates of recovery. ‘Personal recovery’ has emerged from consumer narratives, focuses on living a satisfying, hopeful and contributing life even with limitations caused by the illness, varies across individuals, and the empirical evidence base relates to stages of change more than overall prevalence rates. Clinical and personal recovery are different. Two innovative, generalisable and empirically investigated examples are given of implementing a focus on personal recovery: the Collaborative Recovery Model in Australia, and Trialogues in German-speaking Europe. The role of medication is an indicator: services in which all service users are prescribed medication, in which the term ‘compliance’ is used, in which the reasoning bias is present of attributing improvement to medication and deterioration to the person, and in which contact with and discussion about the service user revolves around medication issues, are not personal recovery-focussed services.Conclusions– The term ‘Recovery’ has been used in different ways, so conceptual clarity is important. Developing a focus on personal recovery is more than a cosmetic change – it will entail fundamental shifts in the values of mental health services.Declaration of Interest: None.
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Eli, Karin. "Striving for liminality: Eating disorders and social suffering". Transcultural Psychiatry 55, nr 4 (14.05.2018): 475–94. http://dx.doi.org/10.1177/1363461518757799.
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In this article, I argue that eating disorders constitute a form of social suffering, in which sufferers embody liminality as a response to, and a reflection of, oppressive sociality, structural violence, and institutional constraints. Based on the illness narratives of people with anorexia nervosa, bulimia nervosa, and their subclinical variants in Israel, the analysis draws the experiential, the social, and the structural into critical focus. These narratives, which delineate lived experiences of self-starving, bingeing, and purging, and the attendant viscerality of hunger, fullness, and emptiness, reveal how participants developed an embodied drawing inward and away, being at once within and without society for extended periods of time, through eating disordered practices. This liminal positioning, I argue, was a mode through which participants cultivated alternative (if temporary) personal spaces, negotiated identities, and anesthetized pain: processes many deemed essential to survival. Embedding the participants’ narratives of eating disordered experiences within familial, societal, and political-economic forces that shaped their individual lives, I examine the participants’ striving for liminality as at once intimately embodied and structurally mapped. The analysis suggests that policy initiatives for eating disorder prevention must address the social suffering that eating disorders manifest: suffering caused by structures and institutions that reinforce social inequality, violence, and injustice.
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Docherty-Skippen, Susan. "Navigating the Terrain of Dis/Ability". Canadian Journal of Disability Studies 8, nr 4 (1.07.2019): 321–45. http://dx.doi.org/10.15353/cjds.v8i4.538.
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Through my lens as an adult educator with non-apparent dis/abilities, this paper has been constructed as an autoethnographic cartography in the lived experience of a dis/ability paradigm. Like a navigational pelorus used to sustain a vessel’s bearing at sea, the relative fluidity of my dis/abled identity, lost and found, has been charted against encounters and relapses of stroke and mental illness. Drawing from personal dis/ability narratives, I illustrate how I captured and studied the familiar yet unaccustomed geography of my body’s dis/abling experiences. I describe how the use of visually captivating, artistic underwater photographs of feminine bodies—strong—sensual—alive, and reminiscent of my embodied experiences, serve not only as visual representations of my dis/ability, but as entry points into the messy process of textualizing dis/ability experiences.
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Alsén, Sara, Lilas Ali, Inger Ekman i Andreas Fors. "Facing a blind alley - Experiences of stress-related exhaustion: a qualitative study". BMJ Open 10, nr 9 (wrzesień 2020): e038230. http://dx.doi.org/10.1136/bmjopen-2020-038230.
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IntroductionMental illness is a major concern in many countries. In Sweden, stress-related mental illness is currently the most frequent reason for sick leave.ObjectiveThis study aimed to explore patients’ experiences of stress-related exhaustion.DesignA qualitative study with interview data analysed using a phenomenological hermeneutic method.SettingParticipants were selected from public primary healthcare centres in a larger city in western Sweden.ParticipantsSeven women and five men on sick leave from work due to stress-related exhaustion were included in the study.FindingsStress-related exhaustion was experienced as a loss of access to oneself and one’s context and feelings of being trapped and lost in life. The condition had a significant impact on personal identity, raised existential issues and was interpreted as facing a blind alley. Participants described a mistaken direction in life, being forced to stop, change direction and act differently.ConclusionStress-related exhaustion is a challenging, life-changing existential experience that involves a crisis with an opportunity for new insights. Careful consideration of patients’ narratives together with the expertise of healthcare professionals can be combined to improve health and optimise recovery based on individual’s situation.
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Fatic, Aleksandar. "The intentionality of madness: Checking the cognitive issues in DSM-based diagnosis". Filozofija i drustvo 25, nr 2 (2014): 204–16. http://dx.doi.org/10.2298/fid1402204f.
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In this paper I discuss John Searle?s selective view of intentionality of mental states, and place it in the context of impairment to personal identity that occurs in mental illness. I criticize Searle?s view that intentionality characterizes some but not all mental states; I do so both on principled and on empirical grounds. I then proceed to examine the narrative theory of self, advanced by Paul Ricoeur, Marya Schechtman and others, and explore the extent to which the theory fits a more generalized view of intentionality that would apply to all mental states. This discussion is followed by a brief consideration of the way in which the modern DSM-based psychiatric diagnosis and treatment, reductively and mechanistically, dispenses with the issues of ?strong ontology?, namely the life events and values that mental states might in fact reach for, even when ostensibly without reference. In this sense, DSM-inspired psychiatry is based on a Searlian view of mental states. It is contrasted with the narrative theory of self (and therefore also of mental states) which, rather than defining madness by clusters of symptoms, seeks to understand the underlying ontology of reference by looking for both the initial script of the person?s ?life narrative? and for ruptures and knots in that narrative that might give rise to madness. Finally I discuss and evaluate the perspective of personality enhancement through counseling aimed at repairing the personal narrative.
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García-Mieres, Helena, Nancy Lundin, Kyle Minor, Giancarlo DiMaggio, Simone Cheli, Raffaele Popolo, Susana Ochoa i Paul Lysaker. "T193. THE ROLE OF METACOGNITION ON NEGATIVE SYMPTOMS: A PSYCHOLOGICAL MODEL FOR DIMINISHED EXPRESSION IN SCHIZOPHRENIA". Schizophrenia Bulletin 46, Supplement_1 (kwiecień 2020): S305. http://dx.doi.org/10.1093/schbul/sbaa029.753.
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Abstract Background The resistance of negative symptoms to pharmacologic treatment has spurred interest in understanding the psychological factors that contribute to their formation and persistence. However, little is understood about the psychological processes that reinforce and sustain the negative symptoms domain of diminished expression. Prior research has shown that higher levels of diminished expression relate to deficits in metacognitive capacity. We propose a more complex model in which diminished expression occurs when impairments in metacognitive self-reflectivity, alterations in higher-order language structure, and cognitive deficits interact and thus interfere with persons’ ability to understand and express emotions in ways others can recognize. Methods Individuals with schizophrenia-spectrum disorders (N=201) provided personal narratives including their life story and reflections regarding their mental illness and a clinician-rated interview of psychotic symptoms (i.e., Positive and Negative Syndrome Scale; PANSS). Self-reflectivity was measured with the Metacognition Assessment Scale-Abbreviated, and situation models were extracted from participants’ personal narratives via Coh-Metrix 3.0, an automated program that calculates basic and complex language indices. Diminished expression and cognitive symptoms were measured with the PANSS. Structural equation models (SEM) examined whether self-reflectivity mediated the impact of cognitive deficits and situation models on diminished expression. Results SEM revealed that self-reflectivity partially mediated the impact of situation models on diminished expression (β = -.083, p = .005, ±95% CI [-.141, -.026]) and fully mediated the influence of cognitive symptoms in diminished expression (β = .099, p = .001, ±95% CI [.038, .160]). Findings persisted after controlling for educational level. Discussion This study is the first of its kind to utilize a mediational model including higher-order linguistic structures, cognitive impairment and metacognition to explain diminished expression in psychosis. Results suggest that self-reflectivity, situation models and cognitive symptoms may be useful targets for intervention in efforts to decrease diminished expression.
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Pelletier, Jean-François, Larry Davidson, Charles-Édouard Giguère, Nicolas Franck, Jonathan Bordet i Michael Rowe. "Convergent and Concurrent Validity between Clinical Recovery and Personal-Civic Recovery in Mental Health". Journal of Personalized Medicine 10, nr 4 (12.10.2020): 163. http://dx.doi.org/10.3390/jpm10040163.
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Several instruments have been developed by clinicians and academics to assess clinical recovery. Based on their life narratives, measurement tools have also been developed and validated through participatory research programs by persons living with mental health problems or illnesses to assess personal recovery. The main objective of this project is to explore possible correlations between clinical recovery, personal recovery, and citizenship by using patient-reported outcome measures. All study participants are currently being treated and monitored after having been diagnosed either with (a) psychotic disorders or (b) anxiety and mood disorders. They have completed questionnaires for clinical evaluation purposes (clinical recovery) will further complete the Recovery Assessment Scale and Citizenship Measure (personal-civic recovery composite index). Descriptive and statistical analyses will be performed to determine internal consistency for each of the subscales, and assess convergent-concurrent validity between clinical recovery, citizenship and personal recovery. Recovery-oriented mental health care and services are particularly recognizable by the presence of Peer Support Workers, who are persons with lived experience of recovery. Upon training, they can personify personalized mental health care and services, that is to say services that are centered on the person’s recovery project and not only on their symptoms. Data from our overall research strategy will lay the ground for the evaluation of the effects of the intervention of Peer Support Workers on clinical recovery, citizenship and personal recovery.
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Dej, Erin. "Psychocentrism and Homelessness: The Pathologization/Responsibilization Paradox". Studies in Social Justice 10, nr 1 (11.08.2016): 117–35. http://dx.doi.org/10.26522/ssj.v10i1.1349.
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Psychocentrism is a governing neoliberal rationality that pathologizes human problems and frames individuals as responsible for socially structured inequalities. The homeless community provides an important case study to examine the ways psychocentrism manifests among an excluded population. This paper explores the paradox whereby homeless individuals are simultaneously pathologized and responsibilized through psychocentric discourses in which their status as economically poor becomes individualized as a symptom of mental illness and/or addiction. Although medicalized understandings of mental and emotional distress pervade the homeless industry, the obligations of freedom in the neoliberal era mean that individuals alone are held responsible for their failures. The paper examines the ways individuals experiencing homelessness are compelled to embark on an entrepreneurial project of the self that requires them to accept blame for their social precariousness. Further, it deconstructs the narratives that regard social explanations as an excuse and a failure of individual accountability. I argue that the “shamed poor” adopt empowerment discourses touted by the homeless industry, which paradoxically encourage individuals to find strength in their personal failures and to work toward self-governance, devoid of historical, social, and cultural context.
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Fawcett, Christina, i Steven Kohm. "Carceral violence at the intersection of madness and crime in Batman: Arkham Asylum and Batman: Arkham City". Crime, Media, Culture: An International Journal 16, nr 2 (6.08.2019): 265–85. http://dx.doi.org/10.1177/1741659019865298.
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The action-adventure video games Batman: Arkham Asylum (2009) and Batman: Arkham City (2011) draw on familiar comic book narratives, themes and characters to situate players in a world of participatory violence, crime and madness. In the first game, the player-as-Batman is situated in Arkham Asylum, a high-security facility for the criminally insane and supervillains that also temporarily houses a general population of prisoners from Blackgate Penitentiary. The elision of criminality and mental illness becomes amplified in the second game with the establishment of Arkham City, a combined facility that conflates asylum and prison, completely dissolving any distinction between crime and madness. We draw on Rafter’s conceptual framework of popular criminology to seriously interrogate the representation of violence, crime and madness in these games. More than simply texts offering popular explanations for crime, the games directly implicate the player in violence enacted upon the bodies of criminals and patients alike. Violence is necessary to move the action of the game forward and evokes a range of emotional responses from players who draw from personal experience and other cultural and media representations as they navigate the game. We argue that while the game celebrates violence and the brutal conditions of incarceration, it also offers possibilities for subversive and critical readings. While working to affirm assumptions about crime and mental illness, the game also provides a visceral and visual critique of excessive punishment by the state as a source of injustice for those deemed mad or bad.
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Ramesh, Venkat. "Light at the end of the tunnel: a front-line clinician's personal narrative on COVID-19 and mental illness – Reflection". British Journal of Psychiatry 219, nr 4 (27.09.2021): 568. http://dx.doi.org/10.1192/bjp.2021.84.
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Ballesteros-Urpi, Anna, Mike Slade, David Manley i Hector Pardo-Hernandez. "Conceptual framework for personal recovery in mental health among children and adolescents: a systematic review and narrative synthesis protocol". BMJ Open 9, nr 8 (sierpień 2019): e029300. http://dx.doi.org/10.1136/bmjopen-2019-029300.
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IntroductionPersonal recovery has been defined as ‘a profound personal and unique process for the individual to change their attitudes, values, feelings, goals, abilities and roles in order to achieve a satisfactory, hopeful and productive way of life, with the possible limitations of the illness’. However, research on personal recovery has focused almost exclusively on adults. This project aims to systematically review the available literature on definitions of personal recovery among children and adolescents with mental health conditions and to undertake a narrative synthesis to develop a conceptual framework of recovery.Methods and analysisSystematic review and narrative synthesis consisting (1) searching scientific literature databases, (2) handsearching, (3) citation tracking, (4) grey literature searching, (5) web-based searching and expert consultation. We will include qualitative and quantitative studies or systematic reviews providing a definition, theoretical or conceptual framework, domains or dimensions of personal recovery among eligible participants. The study will follow standard systematic review methodology for study selection and data extraction. We will assess quality of the evidence using tools appropriate for each study design. We will develop a new conceptual framework using a modified narrative synthesis approach, as follows: (1) describing eligible studies and conducting a preliminary synthesis, (2) determining relationships within and between studies and (3) determining the robustness of the synthesis.Ethics and disseminationWe obtained a waiver of approval from our local Research Ethics Committee. Results will be disseminated via publications in international peer-reviewed journals and conference proceedings.This study will result in a theoretical framework that is based on an exhaustive review of the literature and the input of experts in the field of recovery. We expect that this framework will foster a better understanding of the stages and processes of recovery in children and adolescents with mental health conditions.PROSPERO registration numberCRD42018064087.
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Maunu, Aleisha, i Catherine H. Stein. "Coping with the personal loss of having a parent with mental illness: young adults' narrative accounts of spiritual struggle and strength". Journal of Community Psychology 38, nr 5 (lipiec 2010): 645–55. http://dx.doi.org/10.1002/jcop.20385.
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Stewart, Janet Laura. "The ghettoization of persons with severe mental illnesses". Mental Health and Social Inclusion 23, nr 1 (12.02.2019): 53–57. http://dx.doi.org/10.1108/mhsi-10-2018-0036.
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Purpose The purpose of this paper is to outline the reflections of a person with lived experience of a severe mental illness (SMI) and former peer support worker in Montreal, Quebec, Canada, who has also worked for seven years in mental health research. It describes a tendency of resources and services to create ghettos of people with SMIs by failing to support the integration of people with SMIs into the community at large or in exploring options for meaningful, fulfilling occupation, reinforcing social exclusion and ghettoization. Design/methodology/approach This paper shows a reflective and narrative account of personal experiences and observations of the ghettoizing tendency in mental health services. Findings Mental healthcare professionals tend to support people with SMIs in engaging activities within resources for the mentally ill, and not in carrying out activities in the community at large. The range of activities offered is limited, an obstacle to finding meaningful, fulfilling occupation. Harmful psychological effects include self-stigma, low self-esteem and a sense of marginalization, generating a ghettoized mentality. The difficulties encountered in an effort to leave the mental health ghetto are touched on with examples of how to overcome them. Practical implications The need for professional support for social integration of people with SMIs is identified, which could ultimately favor social inclusion of people with SMIs. Originality/value It is written from the perspective of a user and provider of mental health services, who also has seven years’ experience in mental health research.
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Sjolander, Claire Turenne. "Personal reflections on love, death and suffering: My narrative of the final days of my husband's life". Palliative and Supportive Care 7, nr 1 (13.02.2009): 121–32. http://dx.doi.org/10.1017/s1478951509000145.
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John was weak, something that had begun quite suddenly the day before, and he needed my help in order to lift himself off the couch or to climb the stairs or to maneuver throughout the house. That morning, I had to cancel an invitation to accompany my parents on a trip out of town; John was too weak for me to leave him alone. I had been looking forward to leaving behind my responsibilities for a bit ever since my parents had suggested that I needed a break—and the prospect of a short trip into the Ottawa Valley for a few hours, a chance to live a little out from under the weight of everything at home, was so enticing. The decision not to go was both completely inescapable and incredibly hard, and I sobbed for a long time after getting off the phone with my Dad. For the first time since John had become ill, I let myself tell him how unfair this disease was and how its presence in our lives was affecting not only him, but me—how I felt that I no longer existed in any meaningful sense apart from the illness, how my entire days were defined by the need to manage his illness, his almost daily trips to the hospital, the constant appointments, the endless challenge of trying to get some nutrition into him, the need to take care of everything around the house and yet to stay on top of work.
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Rani, Akanksha, Sphoorthi G. Prabhu, Thirumoorthy Ammapattian, Janaki Trichy i Sojan Antony. "Lived Experiences of Persons with Chronic Schizophrenia Living in the Community". Social Science Protocols 2 (27.09.2019): 1–12. http://dx.doi.org/10.7565/ssp.2019.2656.
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Background and Purpose: Schizophrenia is a chronic and severe mental disorder which impacts a person’s ability to successfully function in the community. When it interacts with structural and situational stress like poverty, homelessness and unemployment, it can lead to negative experiences and makes a person vulnerable to abuse or even develop resilience or retaining a meaningful life within the limitation of the disorder. The study aims to understand how individuals diagnosed with schizophrenia define and evaluate their experience of living in the community; personal and environmental strengths, impact of illness on their personal and social life, the challenges and barriers they meet in their day to day life and how they overcome those challenges. Methods: The study focuses on lived experiences and deriving meaning from those experiences from a service user perspective. Therefore, Hermeneutic phenomenological approach will be used. In-depth interviews will be conducted over the course of four months to elicit client’s narratives of their experiences. The interviews are transcribed, read and coded to cluster thematic aspects in each case by using ATLAS.ti.v.7. Data will be collected till saturation point is reached and participants are from various age-group, socio-economic status, ethnicity and educational background, living in the Community. Implication: Participants’ stories would narrate sources of strength, process of normalization, describing instances of discrimination, social and structural factors which they encounter affecting their help-seeking behaviour and how these factors act as facilitator and barriers in their day to day life. Findings would suggest the need for advocacy services which are discussed through recommendations and suggestions.
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Malm, Christer, Johan Jakobsson i Andreas Isaksson. "Physical Activity and Sports—Real Health Benefits: A Review with Insight into the Public Health of Sweden". Sports 7, nr 5 (23.05.2019): 127. http://dx.doi.org/10.3390/sports7050127.
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Positive effects from sports are achieved primarily through physical activity, but secondary effects bring health benefits such as psychosocial and personal development and less alcohol consumption. Negative effects, such as the risk of failure, injuries, eating disorders, and burnout, are also apparent. Because physical activity is increasingly conducted in an organized manner, sport’s role in society has become increasingly important over the years, not only for the individual but also for public health. In this paper, we intend to describe sport’s physiological and psychosocial health benefits, stemming both from physical activity and from sport participation per se. This narrative review summarizes research and presents health-related data from Swedish authorities. It is discussed that our daily lives are becoming less physically active, while organized exercise and training increases. Average energy intake is increasing, creating an energy surplus, and thus, we are seeing an increasing number of people who are overweight, which is a strong contributor to health problems. Physical activity and exercise have significant positive effects in preventing or alleviating mental illness, including depressive symptoms and anxiety- or stress-related disease. In conclusion, sports can be evolving, if personal capacities, social situation, and biological and psychological maturation are taken into account. Evidence suggests a dose–response relationship such that being active, even to a modest level, is superior to being inactive or sedentary. Recommendations for healthy sports are summarized.
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Priebe, Stefan, Serif Omer, Domenico Giacco i Mike Slade. "Resource-oriented therapeutic models in psychiatry: conceptual review". British Journal of Psychiatry 204, nr 4 (kwiecień 2014): 256–61. http://dx.doi.org/10.1192/bjp.bp.113.135038.
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BackgroundLike other medical specialties, psychiatry has traditionally sought to develop treatments targeted at ameliorating a deficit of the patient. However, there are different therapeutic models that focus on utilising patients' personal and social resources instead of ameliorating presumed deficits. A synopsis of such models might help to guide further research and improve therapeutic interventions.AimsTo conduct a conceptual review of resource-oriented therapeutic models in psychiatry, in order to identify their shared characteristics.MethodThe literature was searched to identify a range of resource-oriented therapeutic models, particularly for patients with severe mental illness. Key texts for each model were analysed using a narrative approach to synthesise the concepts and their characteristics.ResultsTen models were included: befriending, client-centred therapy, creative music therapy, open dialogue, peer support workers, positive psychotherapy, self-help groups, solution-focused therapy, systemic family therapy and therapeutic communities. Six types of resources were utilised: social relationships, patients' decision-making ability, experiential knowledge, patients' individual strengths, recreational activities and self-actualising tendencies. Social relationships are a key resource in all the models, including relationships with professionals, peers, friends and family. Two relationship dimensions – reciprocity and expertise – differed across the models.ConclusionsThe review suggests that a range of different therapeutic models in psychiatry address resources rather than deficits. In various ways, they all utilise social relationships to induce therapeutic change. A better understanding of how social relationships affect mental health may inform the development and application of resource-oriented approaches.
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Fredwall, Terje Emil, i Inger Beate Larsen. "Textbook descriptions of people with psychosis – some ethical aspects". Nursing Ethics 26, nr 5 (29.04.2018): 1554–65. http://dx.doi.org/10.1177/0969733017753742.
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Background: Textbooks are central for the education of professionals in the health field and a resource for practitioners already in the field. Objectives: This article focuses on how 12 textbooks in psychiatric nursing and psychiatry, published in Norway between 1877 and 2012, describe and present people with psychosis. Research design: We used qualitative content analysis. Ethical considerations: The topic is published textbooks, made available to be read by students, teachers and professionals, and no ethical approval was required. Findings: The analysis shows that all 12 textbooks describe and present people who are considered as psychotic from a ‘perspective from above’. In this perspective, the readers are learning about psychosis in the professional’s language and from the author’s viewpoint. Most often the textbooks communicate a universal image of people with psychosis, a description that fits with the diagnostic criteria. The analysis also shows that two textbooks in psychiatric nursing combined this perspective with a ‘perspective from within’. Here, the readers are learning about psychosis from the patients’ own viewpoint. The authors communicate a personal, psychotic universe that differs from various people, even if they have the same diagnosis, and the descriptions are focusing on the patient as a whole person. Discussion and conclusion: Drawing partly on Rita Charon’s writings about narrative knowledge in the health field, and partly on insights from Martha Nussbaum and her concept of narrative imagination, we argue that mental health professionals need to learn about, understand and fathom what patients go through by reading, listening to and acknowledging the patients’ own stories and experiences. Cultivating the capacity for empathy and compassion are at the very heart of moral performance in the mental health field. A valuable moral resource in that regard is leading textbooks and how they describe and present people with severe mental illness.
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Heine, Viktoria, Fritz Schultze, Michael Koehler i Joerg Frommer. "From Life-Threatening Experiences to Ideas of Rescue: Coping with “Trajectories of Suffering†in Adult Acute Leukaemia Survivors". Research in Psychotherapy: Psychopathology, Process and Outcome 15, nr 2 (17.02.2013): 107–16. http://dx.doi.org/10.4081/ripppo.2012.115.
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We investigated the illness records and life stories of 17 leukaemia survivors using narrative autobiographical interviews. Audio tapes were transcribed and analysed according to qualitative methodology. Using the sociological concept of “trajectory of suffering†(TOS) as a means of analysis we focused on the survivors’ mechanisms of psychosocial adaptation including integration of disease-related experiences as part of their autobiographical narration. Verbal data show how the diagnosis pulls affected people out of their everyday life from healthy, strong and with plans for the future to seriously ill, weak and facing death, and thus suspends their self-confidence and social action competence. Analysing the interview transcripts we found six categories of coping with TOS: (1) personal meaningful nourishments, (2) challenging experience with significant others, (3), courage to persevere, (4) family support, (5) dramatic family events, and (6) dreams. The results of our study demonstrate that the cancer is still a dark shadow over the lives of all survivors. They are discussed in the context of coping theory postulating creativity as an up to now underestimated resource of coping behaviour. As a consequence it seems to be vital that medical staff should recognize and discuss these individual needs and feelings of their patients in daily clinical practice.
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Hinson, Katrina, i Ben Sword. "Illness Narratives and Facebook: Living Illness Well". Humanities 8, nr 2 (30.05.2019): 106. http://dx.doi.org/10.3390/h8020106.
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Earlier scholarship provides important insights into the relationship of individual stories and narratives. Interactions with healthcare professionals and the healthcare system can often subsume the individual’s authority/agency. The patient’s narrative often gets lost in the elaborate web of doctor visits, referrals, medical records, case notes, etc. Online spaces such as Facebook, however, provide individuals with a platform through which they can understand, craft, and communicate their own personal illness narratives. Realizing this, this paper examines how the narratives of illness shared in illness-related Facebook groups help individuals make sense out of the disruption caused by their personal experience while residing in the ‘kingdom of the ill.’ To observe the construction and communication of these narratives, the researchers observed the activity of an online pulmonary embolism and deep-vein thrombosis survivor support group for one year. In this online space, individuals gained agency and authority in the construction of their own illness narratives. The findings of the research demonstrated both the importance of narrative in an individual’s health/illness journey as well as the need to further explore avenues that establish and bolster patient agency within the medical system.