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Data publikacji: 4 czerwca 2021

Data aktualizacji: 28 lipca 2024

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1

Coppa, Kay. "Self-help groups in the Hunter region : a qualitative study of their role in chronic illness management /". [St. Lucia, Qld. : s.n.], 2002. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe16644.pdf.

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Stanberry-Beall, Jenny Kay. "Building a case for lifespan respite the effects of formal respite care on caregivers of family members with chronic dependencies /". Access to citation, abstract and download form provided by ProQuest Information and Learning Company; downloadable PDF file, 242 p, 2007. http://proquest.umi.com/pqdweb?did=1251902551&sid=1&Fmt=2&clientId=8331&RQT=309&VName=PQD.

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3

Fiala, Samuel E. "Camp counselors working with chronically ill children". Texas A&M University, 2005. http://hdl.handle.net/1969.1/3210.

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A growing body of empirical evidence suggests that attending specialized summer camps is beneficial for chronically ill youth (Briery & Rabian, 1999). However, there is some inconsistency across studies regarding these benefits (Hazzard & Angert, 1986). One potential explanation for these differences across camps is that they may differ in how well they recruit and train effective volunteer camp counselors. This possibility cannot be explored until more research is conducted identifying what type of person volunteers to work with chronically ill children and how they differ from others. In response to this gap in the research literature, the present study was conducted to examine characteristics of volunteer camp counselors (n =72), a group of nonvolunteers (n = 325), and a group of volunteer mentors (n = 194). Guided by Omoto and Snyders (1990) volunteer process model, the investigation explored how counselors differed from others in terms of dispositional variables, knowledge, and experience; and the relation between these individual characteristics and ratings of counselor efficacy was explored. Changes in counselors knowledge of and/or attitudes toward chronically ill children after their camp experience were also examined. Results suggest that camp counselors differ from others in terms of dispositional characteristics (e.g., attachment style), knowledge, and experience. Specifically, counselors displayed higher levels of agreeableness, greater attachment security, more knowledge of chronic illness, and greater experience with chronic illness than nonvolunteers. Efforts to predict which counselors would be rated as most effective were unsuccessful. Counselors knowledge of illness increased over the course of their camp experience.

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4

Lindström, Caisa. "Burnout in parents of chronically ill children". Doctoral thesis, Örebro universitet, Institutionen för hälsovetenskaper, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-47391.

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Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1DM (paper II), explore how mothers suffering from burnout describe their mothering of a child with diabetes, with special focus on their need for control and Performance-based self-esteem (PBSE) (paper IV), and to evaluate the effect of a group intervention aimed at reducing stress-related symptoms (paper III). A total of 251 parents of children with T1DM, 38 parents of children with IBD and 124 parents of healthy children participated in a population-based study (I, II). The validated Shirom-Melamed Burnout Questionnaire (SMBQ) was used to assess burnout. 16 parents (SMBQ ≥3.75) participated in a group intervention and were evaluated for changes in SMBQ and PBSE (III). A total of 21 mothers of children with T1DM who scored for clinical burnout (SMBQ) participated in a qualitative study. Semi-structured interviews were conducted and Inductive content analysis was used (IV). In the study group 36.0% parents of children with a chronic disease scored for clinical burnout (SMBQ ≥3.75) compared to 20.2% of the reference parents (p=0.001) with a preponderance of mothers compared to fathers, 42% vs. 20.5% (p=0.001), respectively (I). Less support from the social network, sleep disturbances and lack of personal leisure time and recovery seem to be important risk factors for clinical burnout in parents of children with T1DM, especially mothers (II). Mothers’ experiences of mothering a child with T1DM were interpreted as one theme; Mission impossible, illustrating the extremely difficult circumstances under which they bring up the child with diabetes to adulthood (IV). Parents’ subjective evaluation of the intervention group was mainly positive and SMBQ (p=0.01) and PBSE scale (p= 0.04) measurements were significantly reduced 6 months after completion of the intervention (III). It is important to pay attention to how parents and especially mothers experience their daily life in order to support those who are at risk of developing burnout.

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5

Elzen, Henrike Anje. "Self-management for chronically ill older people". [S.l. : [Groningen : s.n.] ; University Library Groningen] [Host], 2006. http://irs.ub.rug.nl/ppn/297661620.

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6

Lees, Nancy Berman. "The self-esteem of chronically ill adolescents". CSUSB ScholarWorks, 1991. https://scholarworks.lib.csusb.edu/etd-project/852.

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7

Fung, Shuk-man Amy. "Psychosocial risk and protective factors in chronic childhood illnesses : the case of thalassaemia major /". Hong Kong : University of Hong Kong, 1996. http://sunzi.lib.hku.hk/hkuto/record.jsp?B17390084.

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8

Steuten, Lotte Maria Gertruda. "Evaluation of disease management programmes for chronically ill". Maastricht : Maastricht : UPM, Universitaire Pers Maastricht ; University Library, Maastricht University [Host], 2006. http://arno.unimaas.nl/show.cgi?fid=7668.

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9

Turner, Roxanne. "Depression in older persons who are chronically ill". DigitalCommons@Robert W. Woodruff Library, Atlanta University Center, 1990. http://digitalcommons.auctr.edu/dissertations/1471.

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This study explores the severity of depression in older persons who are chronically ill. The study was an attempt to determine if there is a significant relationship between four independent variables—family support, social support, marital status, and gender. The study was conducted while respondents were hospitalized at Clayton General Hospital. The research concluded that most older chronically ill persons were not depressed or were only mildly depressed. Significant factors were gender. Females reported more incidence of depression than males and single respondents reported higher incidences of depression than married persons. Suggestions for identifying depression in older persons were indicated and implications for social work practice for working with this unique population were discussed.

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10

Driskill, Gail. "Chronically Ill Children: Maternal Stress and Psychological Symptomatology". Thesis, University of North Texas, 1995. https://digital.library.unt.edu/ark:/67531/metadc279114/.

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This study used a parenting stress and coping model to identify predictors of symptomatology for 13 8 mothers of medically compromised children. This model proposed that: child characteristics (severity of the chronic illness and child related parenting stressors); parent characteristics (self-esteem, sense of competence, and parents' perceived stress/distress); and environmental characteristics (social support, general life stressor events, and demographic variables) contribute to psychological symptomatology for these mothers. Multiple regression analysis found a relationship between general life stressor events, severity of the children's chronic conditions, lower satisfaction with social support, lower self-esteem, and younger mothers' ages and greater symptomatology. Trends toward significance were found for more parenting stress and lower parenting sense of competence predicting greater symptomatology. Predicted relationships between family socioeconomic status and parenting daily hassles and symptomatology were not supported.

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11

Salmond, Susan Warner. "Perceptions of health care needs of the chronically ill population according to stage of illness /". Access Digital Full Text version, 1987. http://pocketknowledge.tc.columbia.edu/home.php/bybib/10692733.

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12

Routt, Katherine M. "The process of families creating meaning of chronic illness and the medical community". Online version, 2000. http://www.uwstout.edu/lib/thesis/2000/2000routtk.pdf.

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13

Lemons, Paul M. "Development of a pulmonary rehabilitation program : a biopsychosocial approach /". Master's thesis, This resource online, 1990. http://scholar.lib.vt.edu/theses/available/etd-01202010-020100/.

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14

Rodak, Rina S. "Chronically and terminally ill children and medical decision-making". Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/MQ55708.pdf.

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15

Newman, Andrea Ardele. "The healing nature of dwelling". Thesis, Montana State University, 2008. http://etd.lib.montana.edu/etd/2008/newman/NewmanA0508.pdf.

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My thesis will discuss the historical pattern of mistreatment and misunderstanding of the chronically mentally ill and the continued struggle the population faces. I believe that architecture holds some of the answers for these issues concerning the "ill" and that environmental factors do play a large part in the effective treatment of this population. It is my intention to design a facility where the chronically mentally ill can live and communicate freely without the stigma that has plagued them for so long. I will use the tools that social theory, philosophers such as Heidegger and the concepts of phenomenology have given me to explore the question: how can architecture help heal the chronically mentally ill.

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16

Thompson, Jacquelyn J. "How chronic illness affects family relationships and the individual". Online version, 2009. http://www.uwstout.edu/lib/thesis/2009/2009thompsonj.pdf.

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17

Reich, Julie A. "Perceptions of Parental Differential Treatment: Correlates in Chronically Ill and Non-Ill Samples of Children". [Tampa, Fla.] : University of South Florida, 2003. http://purl.fcla.edu/fcla/etd/SFE0000063.

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18

Hagen, Brad Francis. "Evaluation of education and support initiatives for family caregivers". Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1998. http://www.collectionscanada.ca/obj/s4/f2/dsk2/tape17/PQDD_0025/NQ34265.pdf.

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19

Tsui, Jin-ching Wilson. "Control, appraisals, and coping as predictors of health outcomes in chinese patients with chronic illness". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1994. http://hub.hku.hk/bib/B29695624.

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20

Alcock, Denise. "Information processing analysis of chronically ill children's problem solving abilities". Thesis, University of Ottawa (Canada), 1986. http://hdl.handle.net/10393/4709.

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21

Myers, Basil Joseph. "School, hospital information exchange, boundary spanning for chronically ill children". Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1997. http://www.collectionscanada.ca/obj/s4/f2/dsk3/ftp04/nq20759.pdf.

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22

Pellack, David. "The chronically homeless mentally ill characteristics that predict program compliance /". [Bloomington, Ind.] : Indiana University, 2007. http://gateway.proquest.com/openurl?url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:dissertation&res_dat=xri:pqdiss&rft_dat=xri:pqdiss:3297096.

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Thesis (Ph.D.)--Indiana University, Dept. of Counseling Psychology, 2007.
Title from dissertation home page (viewed Sept. 25, 2008). Source: Dissertation Abstracts International, Volume: 69-02, Section: A, page: 0519. Adviser: Michael L. Tracy.

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23

West, Tousha Terrell. "An evaluation study of the homeless chronically mentally ill program". DigitalCommons@Robert W. Woodruff Library, Atlanta University Center, 1997. http://digitalcommons.auctr.edu/dissertations/573.

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This is an summative evaluation of the Homeless Chronically Mentally Ill program which examined the impact of case management and the outcome of the program on participant's substance abuse usage. Twenty-six participants' participated in the study. Participants were evaluated by two scales, the Client Satisfaction Questionnaire and the Reid-Gundlach Social Service Satisfaction Scale. Participants were sampled from those who were admitted into the HCMI program. The result of the study revealed that the majority (73.1) of those surveyed were satisfied overall with the program and 73.1 percent felt they could count on their social worker in times of trouble. This indicates that the HCMI program is meeting its goal to serve those veterans who are homeless and chronically mentally ill in order to help them reconnect into society.

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24

Ioannou, Chrissi. "Acute pain in chronically ill children : psychological assessment and intervention". Thesis, University of Leicester, 1992. http://hdl.handle.net/2381/34660.

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Five separate studies are reported on two groups of chronically ill children: children with end-stage renal failure who had received renal transplants and children with insulin dependent diabetes mellitus (IDDM). Assessment studies of both these groups investigated psychosocial factors influencing children's anxiety, pain and distress during venipunctures. Behavioural, cognitive and physiological measures of pain were used as well as standardized and structured interview questionnaires. The assessment studies involved 21 renal transplant children and 62 chidren with IDDM. The results found a revised version of the Observation Scale of Behavioural Distress to be a valid and reliable measure of children's distress during venipuncture. The predictor variables for children's distress in the transplant sample were the child's self-concept for social acceptance and the child's usual anxiety over injections. In the diabetic sample, the presence of emotional/conduct disorder, the child's usual anxiety over bloodtests and parent's rating of the child's usual anxiety over bloodtests were the three predictor variables for children's distress. Other significant psychosocial variables are discussed. Bloodtests were reported to be the most stressful aspect of the medical treatment by parents of children with renal transplants and by diabetic children. A pilot study is reported of cognitive-behavioural and hypnotic intervention with children in the transplant clinic. Cogntive-behavioural intervention was found to be effective in reducing distress during venipuncture in children aged four to seven years, following renal transplantation. With older children aged 6-16 years, both cognitive-behavioural and hypnotic intervention were effective in reducing diabetic children's distress. However, control groups appeared to improve following baseline observations, possibly as a result of non-specific factors such as attention and therapist presence. The results are discussed in relation to the literature on acute pain in children.

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25

Fritts, Sharon Louise. "The impact of chronic illness on the family, the educators, and the community : an ethnographic research study /". For electronic version search Digital dissertations database. Restricted to UC campuses. Access is free to UC campus dissertations, 2004. http://uclibs.org/PID/11984.

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Thesis (Ph. D.)--Joint Doctoral Program in Educational Leadership (California State University, Fresno and University of California, Davis).
Typescript. Includes bibliographical references. Also available via the World Wide Web. (Restricted to UC campuses)

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26

Hrabe, David Paul. "Relationship development among chronically ill women in a computer-mediated environment". Diss., The University of Arizona, 2001. http://hdl.handle.net/10150/280117.

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The purpose of this study was to determine the stages and processes of relationship development in a computer-mediated support group. Using grounded theory methodology, a secondary data analysis was conducted of 22 weeks of textual message exchanges among 15 chronically ill women. The study's outcome is a new middle range theory, Connecting in Cyberspace. This theoretical framework is the first attempt to describe the processes and phases of a computer-mediated support group and is intended as a beginning guide for nursing practice in an electronic environment. Orienting is defined as the start-up period in which members experience techno-uncertainty and unsettled impressions of fellow group members. The next stage, Intensifying, evolves from orienting and represents overcoming the uncertainty of phase one. It is heralded by high messaging activity fueled by the novelty of communicating in a new environment and the ability to connect with others in similar situations. As Intensifying's excitement fades, the group enters a settling and blending period termed Integrating. Integration's focus is the group's work to support one another, share life events and suggest coping alternatives. In the Concluding phase, the group's task is to transition away from the official group experience and to determine what contact they will have with one another afterward. Six relationship processes were identified in the data. Maintaining is the process by which participants sustained functioning of the group. Committing, an affiliative process, involves giving back to the group, entrusting the group with significant personal information, providing explanations or updates about one's participation or situation and extending oneself to group members. Maintaining and Committing followed similar trajectories as they peaked in weeks three through six, then gradually declined until the group's termination. The secondary processes support functioning of the primary processes and remained constant throughout the operation of the group. Initiating is the process by which participants commence messages to each other while Responding processes are communication that reply to previous messages. Grouping is the participants' identification with the group. Terminating comments are expressions of appreciation and saying goodbye that function to transition members away from the group.

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27

Kleynshteyn, Inna. "Social Connectedness and the Quality of Life in Chronically Ill Patients". UNF Digital Commons, 2013. http://digitalcommons.unf.edu/etd/451.

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Social connectedness, feelings of belonging and closeness with the social world, has been identified as an important aspect for the physical, emotional, and collective well-being. People faced with chronic illness may feel like they no longer belong, and this lack of connectedness may have a negative impact on health, well-being, and psychological functioning. The present study investigated social connectedness and quality of life in 151 patients with ongoing symptoms of chronic illness. It was hypothesized that lower levels of social connectedness would be associated with poorer health-related quality of life and more depression. Participants (N =151, 85.4% women, Mage = 46.5) completed four online surveys that measured the level of their connectedness (Social Connectedness Scale) and their health related quality of life (Depression PHQ Scale and the SF-36 Scale). Overall, the hypotheses were supported with social connectedness being a significant predictor of depression and seven of the eight subscales on the health outcomes SF-36 measure. There was an increase in physical and social functioning, emotional well-being, and energy as the patients’ level of social connectedness increased. Meanwhile, decreased feelings of social connectedness were associated with greater pain and role limitations due to physical health and emotional problems. These findings suggest that feelings of interpersonal closeness and belonging can be an important factor in health outcomes and quality of life within a chronically ill population.

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28

Tew, Kristi L. (Kristi Lee). "The Efficacy of Filial Therapy with Families with Chronically Ill Children". Thesis, University of North Texas, 1997. https://digital.library.unt.edu/ark:/67531/metadc277594/.

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This study was designed to determine the effectiveness of Filial Therapy as a method of intervention with families with chronically ill children. Filial Therapy is an intervention that focuses on strengthening and enhancing the parent-child relationship. Parents are trained to become the agents of change for their children's behaviors by utilizing basic child-centered play therapy skills in weekly play sessions. The purpose of this study was to a) determine the effectiveness in decreasing parental stress, b) determine the effectiveness in increasing parental acceptance, and c) determine the effectiveness in decreasing problematic behaviors in the chronically ill child as assessed by their parents.

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29

Blauner, Michael Lee. "Self-help groups for the chronically ill: Different structures, varying processes". Case Western Reserve University School of Graduate Studies / OhioLINK, 1991. http://rave.ohiolink.edu/etdc/view?acc_num=case1055450373.

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30

Blubaugh, Victoria G. "Self-concept in siblings of chronically ill children : Duchenne muscular dystrophy /". The Ohio State University, 1986. http://rave.ohiolink.edu/etdc/view?acc_num=osu1487265555440494.

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31

Chang, Pi-Chen 1964. "Social support, uncertainty, and ways of coping in chronically ill adolescents". Thesis, The University of Arizona, 1991. http://hdl.handle.net/10150/558162.

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32

Cheng, Ka-ki. "Is chronic illness associated with the occurrence of intimate partner violence? /". View the Table of Contents & Abstract, 2006. http://sunzi.lib.hku.hk/hkuto/record/B36396916.

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33

Greenbergs, Helen Lea. "Sexual adjustment in couples living with systemic sclerosis /". Diss., Connect to a 24 p. preview or request complete full text in PDF format. Access restricted to UC campuses, 1997. http://wwwlib.umi.com/cr/ucsd/fullcit?p9728768.

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34

Powers, Thomas V. "The relationship among protective factors, volition, and academic resilience in chronically-ill adolescents /". Thesis, Connect to this title online; UW restricted, 2003. http://hdl.handle.net/1773/7863.

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35

Jean, Raynice Eveline. "The perceptions among African American caregivers of children with chronic illnesses /". Digital version accessible at:, 1999. http://wwwlib.umi.com/cr/utexas/main.

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36

Shiu, Shiona. "Achieving equity in educational outcomes for students with chronic illness". View thesis, 2008. http://handle.uws.edu.au:8081/1959.7/19222.

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Thesis (Ed.D.)--University of Western Sydney, 2008.
A thesis submitted to the University of Western Sydney, College of Arts, School of Education, in fulfilment of the requirements for the degree of Doctor of Education. Includes bibliography.

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37

McIlroy, Charles R. "Aftercare for the chronically mentally ill utilizing church resources in the community /". Theological Research Exchange Network (TREN), 1985. http://www.tren.com.

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38

Torri, Dischinger Maria Inês. "Loss of Resources and Demoralization in the Chronically Ill: A Mediation Model". UNF Digital Commons, 2016. http://digitalcommons.unf.edu/etd/649.

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In order to obtain a closer look into the psychosocial impact of chronic conditions, symptom severity, loss of resources, and demoralization were investigated through a mediation analysis. The function and implication of social support was also explored within the circumstances of chronic conditions. Lastly, symptom chronicity was probed as an influential element in the understanding of the consequences of being chronically ill. Participants were 200 men and women, with a mean age of 46 years, and the dataset came from the VOICE (Verification of Illness and Coping Experience) survey. The concepts of Conservation of Resources (COR) theory and Demoralization Syndrome were utilized to portray the underlying processes experienced by individuals with chronic condition. Analyses between symptom severity and demoralization via loss of resources as the mediator were statistically significant. Symptom chronicity did not interact with symptom severity on predicting loss of resources, but analyses showed that individuals with less symptom chronicity reported both larger loss of resources and demoralization. Social support was confirmed as a moderator, buffering the effects of symptom severity on loss of resources. Exploratory analyses with the inclusion of both symptom severity and chronicity as the predictor variable and the use of age as a moderating factor at the prediction of loss of resources was statistically significant, showing that when symptoms were more severe and chronic, younger participants experienced more losses than older participants. Additionally, when age was included as a moderator of the effect of symptom chronicity and severity on the prediction of social support, it was indicated that when symptoms were less chronic and severe, the average perception of social support was higher among younger participants, but, on the other hand, when symptoms were more chronic and severe, younger participants suffered an abysmal drop in their social support perception. In light of the aforementioned results, risk, protective, and developmental aspects are discussed, along with implications for health care providers.

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39

Allgood-Scott, Jill R. "A study of health care utilization among chronically ill rural older adults". free to MU campus, to others for purchase, 1998. http://wwwlib.umi.com/cr/mo/fullcit?p9901213.

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40

English, Amber L. "Measuring parenting stress in those with chronically ill children: A psychometric evaluation". Thesis, English, Amber L. (2020) Measuring parenting stress in those with chronically ill children: A psychometric evaluation. Masters by Coursework thesis, Murdoch University, 2020. https://researchrepository.murdoch.edu.au/id/eprint/60896/.

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This study examined the measurement of parenting stress in caregivers of chronically ill children (N=203). The evaluation was focussed on the two most popular measures in the literature; the Parenting Stress Index-Short Form and the Paediatric Inventory for Parents. The Parenting Stress Index-Short Form (PSI-SF) it the most commonly used measure. However, while the PSI-SF has been well-supported in the healthy populations it was designed for, the evidence was poor for its utility with parents of chronically ill children. The Paediatric Inventory for Parents (PIP), developed with parents of children with cancer, has emerged as a popular alternative as a general measure for paediatric disease populations. However, the PIP had not been adequately investigated to make sure it is the best measure for this population. To address this, the present study conducted exploratory factor analyses of the PSI-SF and the PIP. The results failed to support the proposed factor structure for either measure. Instead, both demonstrated a univariate structure, indicating that they may lack the sensitivity to capture discrete aspects of parenting stress in this population. The implications of these results are discussed, and potential univariate solutions considered. The main recommendation for future research is to focus on condition-specific measures, as general measures appear to lack.

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41

Neimeyer, Jennifer. "The Impact of a Coordinated Care Program on Uninsured, Chronically Ill Patients". VCU Scholars Compass, 2010. https://scholarscompass.vcu.edu/etd/2038.

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This study explored how being enrolled in a program that both coordinates patient care and provides a medical home changes health care utilization for uninsured patients, more specifically those persons with chronic conditions, through the use of the Chronic Care Model and Andersen and Aday’s Behavioral Model for Access to Health Care. Uninsured patients typically seek out care in a fragmented manner, which may lead to ineffective and inefficient care, especially for conditions that may require ongoing treatment and monitoring such as chronic conditions. The methodology used to examine the relationship between the interaction of enrollment and chronic condition status and health care utilization was multivariate linear regression. The results of this study show that enrollment in a coordinated care program does have an impact on health care utilization, and that the impact differs for patients with no chronic conditions, a single chronic condition, and multiple chronic conditions. These results point to the effectiveness of implementing the Chronic Care Model to improve access to health care for patients with chronic conditions.

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42

Bracey, Kimberly Vaunterice. "Experiences of Parents With Chronically Ill Children Regarding the Affordable Care Act". ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6975.

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Ways in which the implementation of the Patient Protection and Affordable Care Act (ACA) affect parents with chronically ill children are not well understood. The purpose of this phenomenographic study was to gain greater insight into the perceived experiences of parents of chronically ill children regarding implementation of the ACA in a southern state. Argyris's intervention theory provided the framework for the study. Face-to-face interviews were conducted with a purposeful sample of 12 female parents who are caregivers of chronically ill children. Data were analyzed and coded to identify categories and themes. Findings indicated that parents view physicians and policymakers as key actors in their communities to create more equitable services for parents of chronically ill children through the expansion of Medicaid services in southern state. Many participants did not perceive that the ACA had made significant changes to services received prior to its implementation. Findings may assist health care providers, insurance companies, legislators, and other policymakers to develop appropriate health care policies and interventions to lessen the financial burden experienced by parents of chronically ill children. Providing more support services that address the physical, emotional, and financial needs of parents may improve the health outcomes of their chronically ill children.

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Cordingly, Kimberly Lynne. "The emerging geographies of work and identity exploring alternative employment strategies and work subjectivities of women with multiple sclerosis (MS) /". Morgantown, W. Va. : [West Virginia University Libraries], 2007. https://eidr.wvu.edu/etd/documentdata.eTD?documentid=5302.

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Thesis (Ph. D.)--West Virginia University, 2007.
Title from document title page. Document formatted into pages; contains x, 415 p. : col. ill. Includes abstract. Includes bibliographical references (p. 324-368).

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Loong, Lai-ching Eve, i 龍麗貞. "Effectiveness of chronic disease self management program (CDSMP) for non-English speaking population: a narrativeliterature review". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2011. http://hub.hku.hk/bib/B46940728.

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Thames, Robert Milton 1955. "The chronically mentally-ill served by the public fiduciary of Pima County, Arizona". Thesis, The University of Arizona, 1987. http://hdl.handle.net/10150/276536.

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This study was a survey of the chronically mentally ill cases served by the Public Fiduciary of Pima County, Arizona made to determine differences between and among these cases in numbers, finances, living arrangements, and the nature of their involvement with the Public Fiduciary according to age, sex, ethnic group, and mental disorder. Information was collected on 89 chronically mentally ill cases. Summaries and statistical analyses were made of the collected information. Schizophrenia in its various forms was found to be the dominant illness. Over half of the cases lived in unsupervised settings. Almost half of the cases received supplemental security income. Three-fourths of the cases received a total income of less than 350 dollars per month. The percentage of Hispanic people in the sample was higher than in the percentage of this group in the general population of Pima county. (Abstract shortened with permission of author.)

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Larivière, Nadine. "Adjustment to community residential settings among severely and chronically mentally ill older adults". Thesis, McGill University, 2001. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=31253.

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Little is known about the impact of deinstitutionalization on severely and chronically mentally ill older adults. The primary purpose of this study was to describe the adjustment process of 33 adults, aged 65 years and over, with severe and chronic psychiatric disorders, who were transferred from a psychiatric hospital to community housing facilities between 1995 and 1998. Data was collected at five periods in times, twice prior to discharge and three times following relocation. Global functioning, social behaviors, functioning in activities of daily living, cognitive status, perceived quality of life, housing conditions and rehospitalizations rates were assessed. Results showed that participants remained stable over time in general functioning, regardless of baseline functioning. Only five subjects were readmitted for short hospitalizations. Eighty-nine percent preferred to live in the community. Relocating these participants to a smaller supervised community facility did not lead to significant deterioration in their functioning and improved their quality of life.

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Milner, James Allen Sr. "The intervention and assistance to the chronically mentally ill who are experiencing homelessness". DigitalCommons@Robert W. Woodruff Library, Atlanta University Center, 2006. http://digitalcommons.auctr.edu/dissertations/560.

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The writing of this dissertation was an effort to address the issue of providing assistance to those persons who have been diagnosed with a chronic mental illness and were also experiencing homelessness. The author addresses several questions surrounding this issue. Ultimately, it was the desire of this writer to develop a Safe Haven program for this population that would create a residential service center. At this writing, there is not such a program in the State of Georgia. Among the many questions surrounding this issue that this writer addressed was: What is the history behind this problem? How did so many people in this targeted population become homeless? Is there a possible solution? What does the bible have to say regarding this issue and what if anything can the Faith community do to intervene and render assistance to this population? The questions were challenging. The intent of this dissertation was to provide some answers and design a program that could be replicated by any congregation that believed they were called to such a mission. The project consisted often men who were homeless and had a diagnosis of achronic mental illness. The period of time these men were observed was a minimum of six months. The staff consisted of a director of counseling who is a licensed master of social work degree holder who specialized in psychotherapy; there were case managers; peer specialist; residential support staff; night managers and a dietician.The program was designed to include volunteerism from the members of the sponsoring congregation. Funding was sought through the support of the sponsoring church as well as other churches and individuals. The bulk of the funding however was provided by government sources. The overall hypothesis was that if given adequate support and assistance, those persons targeted by this effort could become stabilized, non-symptomatic and able to live in permanent housing with the necessary supportive services

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Seidmann, Susana, Dorina Stefani, Carlos O. Pano, Luisa Acrich i Vera Bail Pupko. "Feeling of burden and social support in family caregivers of chronically ill patients". Pontificia Universidad Católica del Perú, 2013. http://repositorio.pucp.edu.pe/index/handle/123456789/100203.

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We evaluate if the social network structure, the percei ved support and the personal satisfaction acts on the caregiver's feeling of burden, coming from the caring of a child oran older parent with chronic invalidating illness. We used Mannheim's Instrument for Social Support (1986) and the Feeling of Burden Questionnaire (Zarit & Zarit, 1999) with 143 caregivers -50,3% mothers and 49,7% daughters. Taking into account the multivariate statistical tests, we can conclude that mothers have a larger relatives network than daughters, even though they don't significantly differ in the perception of social support. In mothers, the size of the relatives network, the everyday instrumental and the psychological crisis support diminishes the feeling of burden, as for the daughters the more intense crisis instrumental perceived support diminishes the same feeling.
Se evalúa si la estructura de la red social, el apoyo percibido y su nivel de satisfacción personal inciden en el sentimiento de sobrecarga del cuidador, derivado de la asistencia de un hijo o de un progenitor anciano con una enfermedad crónica invalidante. Con tal fin, fueron administrados a 143 cuidadoras -50,3% madres y 49,7% hijas- el Cuestionario sobre Apoyo Social de Mannheim (1986) y el Cuestionario sobre Sentimiento de Carga de Zarit y Zarit (1999). A partir de las pruebas multivariadas de significación estadística, se puede concluir que las madres presentan una red de parientes mayor que las hijas, aunque no se diferencian significativamente en la percepción del apoyo social. En ellas, el tamaño de la red de parientes, el apoyo instrumental cotidiano y psicológico en crisis aminora el sentimiento de sobrecarga, mientras que en las hijas lo disminuye la mayor intensidad de apoyo instrumental en crisis percibido por ellas.

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Hughes, Danielle Anna. "The Other Child: Health Narratives of Adults Raised with a Chronically Ill Sibling". Antioch University / OhioLINK, 2012. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1340378917.

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Wiencek, Clareen. "Symptom Burden and Its Relationship to Functional Status in the Chronically Critically Ill". Case Western Reserve University School of Graduate Studies / OhioLINK, 2008. http://rave.ohiolink.edu/etdc/view?acc_num=case1207241196.

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