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Erker, Craig, Ke Yan, Liyun Zhang, Kristin Bingen e Julie A. Panepinto. "Impact of Cancer on Family Relationships". Blood 128, n. 22 (2 dicembre 2016): 687. http://dx.doi.org/10.1182/blood.v128.22.687.687.
Testo completoAbstract (sommario):
Abstract Introduction: Family relationships are the subjective experience of feeling involved, important and accepted in one's family. A new patient-reported outcome (PRO) domain has been developed as part of the NIH pediatric PROMIS (patient reported outcome measurement information system) which measures for the first time the child's perspective of family relationships. Previous research has demonstrated the impact of cancer on the family from the parent's perspective. This project sought to determine the impact of cancer and cancer therapy on family relationships in children with cancer and their siblings, both on and off therapy. Our primary hypotheses were that 1) Siblings have worse family relationships compared to their brother or sister with cancer and 2) Children receiving active cancer therapy have worse family relationships compared to childhood cancer survivors. Our secondary hypothesis was that children with poor family relationships would have impairment in depression, anxiety, and social relationship domains. Methods: We conducted a cross sectional study of children with cancer and their siblings aged 8-17 years old. The children belonged to one of four groups: 1) On-therapy patients (children receiving cancer directed therapy), 2) Siblings of on-therapy patients, 3) Off-therapy patients (children who completed cancer therapy at least 6 months ago), 4) Siblings of off-therapy patients. All subjects completed the self-reported PROMIS family relationships domain and PROMIS domains of depression, anxiety, and social relationships. The family relationships domain asks questions such as: "my family and I have fun together" and "my parents listen to me". PROMIS is a validated PRO tool that uses a mean T-score of 50 and standard deviation of 10. Recently, the minimally important difference (MID) for PROMIS was estimated to be 2-3 points on the T-score scale. The Mann-Whitney test was used to test the difference between therapy groups while the Wilcoxon signed-rank test was used to test the difference between patients and siblings. Social relationships, anxiety and depression PROMIS domains were correlated to the family relationships domain using Pearson's correlations. P-values <0.05 were considered as significant. Results: One-hundred and ninety children completed the assessments. Forty-eight were on-therapy patients and 62 were off-therapy patients. Paired data included 25 pairs of on-therapy patients and siblings and 31 pairs of off-therapy patients and siblings. The median and range of age was 12[8-17] years for patients and 13[8-17] for siblings. Fifty-four percent of the children enrolled were male and 65% of patients had leukemia or lymphoma. Off-therapy siblings had lower family relationships T-score than off-therapy patients (p=0.004, median (IQR) of 44.1 (41.1, 48.6) for siblings vs. 47.4 (43.1, 53.2) for patients). Off-therapy patients had higher family relationships T-scores than on-therapy patients (p=0.042, median (IQR) of 48.6 (43.1, 53.2) for off-therapy patients vs. 46.3 (42.1, 48.6) for on-therapy patients). No significant difference was found in family relationships T-scores between on-therapy patients vs. their siblings (p=0.22) or between the two groups of siblings (p=0.58). The correlations between family relationships T-scores and depression or anxiety scores were significantly different from zero for off-therapy patients and their siblings (p<0.001 for patients and p<0.005 for siblings). Impaired family relationships were related to increased depression and anxiety. Also, the correlation between family relationships T-scores and social relationships scores were significantly different from zero for off-therapy patients (p=0.031). Worse family relationships were related to worse social relationships. Conclusion: Off-therapy patients report better family relationships than their siblings and on-therapy patients. Also worse family relationships scores often correlate with increased levels of anxiety and depression. This study provides important information for pediatric oncology staff to help identify at-risk families in need of support. Disclosures No relevant conflicts of interest to declare.
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Frey, J. J. "In This Issue: Relationships Count for Patients and Doctors Alike". Annals of Family Medicine 8, n. 2 (1 marzo 2010): 98–99. http://dx.doi.org/10.1370/afm.1098.
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Nissen, Kathrine G., Kelly Trevino, Theis Lange e Holly G. Prigerson. "Family Relationships and Psychosocial Dysfunction Among Family Caregivers of Patients With Advanced Cancer". Journal of Pain and Symptom Management 52, n. 6 (dicembre 2016): 841–49. http://dx.doi.org/10.1016/j.jpainsymman.2016.07.006.
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Korabelnik, P. Yu,, e E. B. Karpova. "Features of the Subjective Assessment of Intrafamilial Relationships in Patients with Psoriasis". Клиническая и специальная психология 11, n. 1 (2022): 1–22. http://dx.doi.org/10.17759/cpse.2022110101.
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Psoriasis is a common polyetiological disease that affects significant elements of the patient's personality relationship system, including his intrafamily relationships. The hypothesis was tested about the negative impact of subjective experiences associated with psoriatic disease on the perception of the family environment. The influence of several factors (gender, duration and severity of the disease) on the subjective assessment of patients with psoriasis of their family environment was analyzed. In total, 99 individuals took part in the study: 66 subjects suffering from various forms of psoriasis (30 men and 36 women; age: 38±17.68 y.o., disease duration: 13±7.78 years). 40 subjects had an average severity of the disease according to the PASI index. Comparison group consisted of 33 patients (15 men and 18 women; age: 41±14.56 y.o.) with pathology of the musculoskeletal system (disease duration: 12±9.38 years). The following methods were used: semi-structured interview, Family Environment Scale adapted by S.Yu. Kupriyanov (1985), Uncompleted sentences (Joseph M. Sacks, 1950). The subjective experience of psoriatic disease does not have a strong negative impact on the perception of the family environment. At the same time, the influence of gender and duration of the disease on the subjective assessment of their family microclimate by patients with psoriasis was noted. There is a peculiarity of the family environment of patients with psoriasis in comparison with patients with pathology of the musculoskeletal system: patients with psoriasis more often note that in their families it is allowed to openly act and express their feelings, and independence in decision-making is encouraged; the family microclimate of patients with psoriasis is less characterized by the hierarchy of family organization, the rigidity of family rules, and control by family members of each other. These studies can help improve the effectiveness of psychological work with psoriatic patients.
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Chesla, Catherine, Ida Martinson e Marilou Muwaswes. "Continuities and Discontinuities in Family Members' Relationships with Alzheimer's Patients". Family Relations 43, n. 1 (gennaio 1994): 3. http://dx.doi.org/10.2307/585135.
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Lee, Joyce, e Kirsten Bell. "The Impact of Cancer on Family Relationships Among Chinese Patients". Journal of Transcultural Nursing 22, n. 3 (2 maggio 2011): 225–34. http://dx.doi.org/10.1177/1043659611405531.
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van Walsum, Kimberly L., David M. Lawson e Rachel Bramson. "Physicians' Intergenerational Family Relationships and Patients' Perceptions of Working Alliance." Families, Systems, & Health 22, n. 4 (2004): 457–73. http://dx.doi.org/10.1037/1091-7527.22.4.457.
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Mitnick, Sheryl, Cathy Leffler e Virginia L. Hood. "Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships". Journal of General Internal Medicine 25, n. 3 (9 gennaio 2010): 255–60. http://dx.doi.org/10.1007/s11606-009-1206-3.
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Mitnick, Sheryl. "Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships". Journal of General Internal Medicine 25, n. 6 (30 marzo 2010): 488. http://dx.doi.org/10.1007/s11606-010-1315-z.
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Cohen, Andrew B., Mark Trentalange e Terri Fried. "Patients With Next-of-Kin Relationships Outside the Nuclear Family". JAMA 313, n. 13 (7 aprile 2015): 1369. http://dx.doi.org/10.1001/jama.2015.2409.
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Green, Jonathan. "Child in-patient treatment and family relationships". Psychiatric Bulletin 18, n. 12 (dicembre 1994): 744–47. http://dx.doi.org/10.1192/pb.18.12.744.
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Residential child psychiatry units inevitably offer a form of temporary parenting to their patients. This paper explores various effects of this ‘parenting’ task on the treatment process itself and on a unit's relationship with parents. The potent therapeutic opportunities as well as potential unwanted effects deriving from this role are described. An awareness of the processes involved along with appropriate case management can maximise the benefits and minimise the unwanted effects of this factor within in-patient treatment.
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Peisah, Carmelle, Henry Brodaty, Georgina Luscombe e Kaarin J. Anstey. "Children of a Cohort of Depressed Patients 25 Years on: Identifying Those at Risk". Australian & New Zealand Journal of Psychiatry 39, n. 10 (ottobre 2005): 907–14. http://dx.doi.org/10.1080/j.1440-1614.2005.01663.x.
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Objective: Factors associated with psychological outcome in children of patients with depression have been examined piecemeal, with emphasis on young rather than adult children. We hypothesized that psychological morbidity in adult children of patients with depression would be associated with characteristics of the children, their parents and their family relationships. Method: Factors predicting psychopathology in children (n = 94) of a cohort of patients with depression, admitted to a teaching hospital 25 years earlier, were examined using logistic regression. Results: Psychological morbidity in children was predicted by their being younger at parent's admission, their perception of the depressed parent as more controlling and chronicity of the parent's depression. Correlations between child characteristics, parent illness and family relationship variables showed systemic interactions between parental illness, child psychopathology and family relationships. Conclusion: Chronicity (though neither recurrence nor severity) of parent depression and younger children's age at the time of parental admission for depression were associated with psychological morbidity in the children in adulthood. The interaction between child psychopathology, parental illness and family relationships emphasizes the need for a systemic, family focus in the treatment of depression.
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Williamson, Charlotte. "‘Real’ patients and ‘real’ doctors? Doctors and patient activists in working relationships". British Journal of General Practice 68, n. 677 (29 novembre 2018): 591–92. http://dx.doi.org/10.3399/bjgp18x700157.
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Mas’ud, Alfian, Najman Najman, A. Artifasari e Nilmawati Nilmawati. "Family Support Relationships Degrees of Diabetic Foot Wounds". Journal La Medihealtico 4, n. 6 (30 dicembre 2023): 283–88. http://dx.doi.org/10.37899/journallamedihealtico.v4i6.970.
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Changes in lifestyle can cause degenerative diseases such as Diabetes Mellitus (DM). The prevalence and incidence of this disease has increased drastically in industrialized and developing countries, including Indonesia. WHO predicts that DM data will increase to 300 million in the next 25 years. The International Diabetes Federation (IDF) estimates that in 2020 there will be 178 million DM sufferers in Indonesia aged over 20 years and assuming a DM prevalence of 4.6%, there will be 8.2 million DM patients. Currently, the prevalence of DM based on the International Diabetes Federation (IDF) in 2019, Indonesia is ranked 6th in the world with 10 million people. Based on the 2007 Riskesdas results, it is estimated that 463 million people suffer from diabetes currently and it is projected to reach 578 million in 2030. and 700 million in 2045. This study was to determine the relationship between family support and the degree of Diabetic Foot Ulcers (DFU). The design of this research is an analytical observational study with a cross-sectional approach design. The subjects of this study were DM sufferers with diabetic foot ulcers who underwent treatment at the Independent Wound Nursing Practice in Bone Regency. The sampling technique uses the Total Sampling method. After carrying out the Pearson correlation test, test results were obtained with a p value = 0.000 and an r value = 0.648** so it can be concluded that there is a very strong correlation between family support and the degree of diabetic foot ulcers. So it can be concluded that the higher the family support for patients with diabetic foot ulcers, the lower the degree of injury. The results of this study can be concluded that there is a strong relationship between family support and the degree of injury in Diabetic Foot Ulcer (DFU) patients so that caring for families with diabetic foot ulcers will provide good encouragement for diabetic foot ulcer patients so they can heal and follow the treatment program. the good one.
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Cachioni, Meire, Thaís Bento Lima-Silva, Tiago Nascimento Ordonez, Juliana Galo-Tiago, Ana Regina Alves, Milena Yuri Suzuki e Deusivania Vieira da Silva Falcão. "Elderly patients with Alzheimer's disease and their family relationships: Caregiver perspectives". Dementia & Neuropsychologia 5, n. 2 (giugno 2011): 114–22. http://dx.doi.org/10.1590/s1980-57642011dn05020010.
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Abstract Objective: The present study was to investigate the status of the family relationships of elderly patients with Alzheimer's disease from a caregiver's perspective. Methods: A total of sixteen relatives/caregivers of AD patients were assessed by applying a semi-structured questionnaire about family relationships. Frequency tables containing categorical variables (gender, schooling, personal income and current occupation) were compiled. Descriptive statistics were calculated of continuous variables such as age. Answers to open questions were submitted to Bardin's content analysis. The data were held on the Epidata program and statistical analysis was performed using the SPSS v.17.0 software package. Results: In line with the literature, the family was the main source of caregivers and the typical caregiver profile was female. In contrast to other studies, emotional burnout was not a major complaint in the sample studied. The ties created among family members and the life experience of each individual influences how interviewees cope with AD. Conclusion: The family relationships of caregivers of AD patients represent a constant challenge, due to changes in roles within the family structure as well as to disease progression. However, participation in psychological and socio-educational activities run by pioneering institutions in Brazil, act as a mediator of stress in the lives of both caregivers and patients.
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Gerson, Mary-Joan, e Charles D. Gerson. "The Importance of Relationships in Patients with Irritable Bowel Syndrome: A Review". Gastroenterology Research and Practice 2012 (2012): 1–5. http://dx.doi.org/10.1155/2012/157340.
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Chronic illnesses such as irritable bowel syndrome are not experienced by patients in isolation. They live in a context of relationships, including spouses and partners, other family members, friends and business associates. Those relationships can have an effect, both positive and negative, on the course of illness and may also be affected by the experience of living with a chronic illness like IBS. We review the general literature regarding the effect of relationship factors on chronic illness followed by a focus on IBS symptomatology. We then discuss the challenges experienced by partners of IBS patients, followed by the effects of spousal violence, the particular relationship of mothers with IBS and their children, the effects of social support, and the importance of family dynamics and IBS. The final segment includes conclusions and recommendations. The topic, relationships and IBS, may have a significant effect on the lives of IBS patients and deserves more attention than it has received.
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Cocksedge, Simon, Rebecca Greenfield, G. Kelly Nugent e Carolyn Chew-Graham. "Holding relationships in primary care: a qualitative exploration of doctors' and patients' perceptions". British Journal of General Practice 61, n. 589 (agosto 2011): e484-e491. http://dx.doi.org/10.3399/bjgp11x588457.
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Irfan, Irfan, Heriyati Heriyati e Saharani Saharani. "SUPPORT AND FAMILY PERCEPTION ABOUT QUALITY OF PATIENTS LIFE WITH MENTAL DISORDERS". Media Kesehatan Politeknik Kesehatan Makassar 15, n. 1 (29 giugno 2020): 109. http://dx.doi.org/10.32382/medkes.v15i1.1440.
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Mental disorders are thought patterns that are usually associated with problems or distorted problems in one or more important functions for humans, namely psychological, behavioral, biological, and change functions not only in the relationships of these people but also in society. The purpose of this study is to discuss family relationships with family perceptions about the quality of life of patients with mental disorders. The research design used was analytic description with cross-sectional study, sample selection with purposive sampling technique, the number of samples found was 64 samples. Data were analyzed using chi-square test. Statistical test results obtained about family relations with a quiet family about the quality of life of patients for p = 0,000 <0.05. The conclusion of this study is about the relationship between family support and patients' perceptions about the quality of life of patients with mental disorders. Related to health care recommendations to provide maximum psychiatric care for patients, not only with care but also with useful information both from the medical and family and those around him to improve the quality of life of patients, such as socializing about caring for people with mental assistance and providing training for the cadres mostly about the care of patients with mental disorders.Keywords : family support, quality of life, mental disorder
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Cakmak, Betul, Afra Calik e Bahar Vardar Inkaya. "Metaphoric Perceptions of Covid-19 Patients Related to the Disease". Clinical Nursing Research 31, n. 3 (7 ottobre 2021): 385–94. http://dx.doi.org/10.1177/10547738211048312.
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This study aimed to explore metaphoric perceptions of patients with COVID-19 including treatment process, family relationships, and mental health via using metaphors. Purposive sampling was used to include participants. Totally 46 patients diagnosed with COVID-19 were included in the study. The metaphor-based data collection process was carried out with three open-ended questions. The metaphors compiled according to questions and grouped by 13 themes according to analysis. Patients explained to COVID-19 process by using 91 different metaphors. Most frequently used metaphors by patients; black hole/dark for the treatment process of COVID-19, steel for family relationships, sea metaphor for mental health. This study, it was determined that individuals are afraid of death, have a serious perception of uncertainty, and their family relationships and this process negatively affected their family relationships and mental states. Nurses have important responsibilities to increase the quality of patient care.
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McKinlay, Eileen, Janet McDonald, Ben Darlow e Meredith Perry. "Social networks of patients with multimorbidity: a qualitative study of patients’ and supporters’ views". Journal of Primary Health Care 9, n. 2 (2017): 153. http://dx.doi.org/10.1071/hc16062.
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ABSTRACT INTRODUCTION Multimorbidity impacts on patients’ health and wellbeing, but relationships experienced within social networks can support people to live well. AIM This study sought to elicit the views of New Zealanders with multimorbidity about their social networks and the views of their nominated supporters. METHODS Ten patients with multimorbidity and their nominated supporters each independently recorded their views of the patient’s social network on a five-concentric-circle template, indicating supporting role and importance to each patient. Sets of patients’ and nominated supporters’ templates were compared followed by comparing matched pairs of patient–supporter templates. Nominated supporters’ views about the patients’ networks and why they were nominated were collated. RESULTS Three patients nominated family members as supporters and seven nominated health professionals. Nominated family members identified a greater range of supporters than nominated health professionals. Nominated family members perceived that they played an integral role, whereas health professionals were less comfortable viewing relationships with patients in this way. Family members were not surprised to be nominated as supporters, and some described a considerable burden of care. Health professionals described themselves as coordinators of support and having positive relationships with patients. DISCUSSION Patients with multimorbidity have rich and diverse social networks. They view partners, family and health professionals as providing significant support. Family members are more aware of their role and have a deeper understanding of other network members than health professionals. Further research is needed on the use of social networks in clinical practice to support the health and wellbeing of those with multimorbidity.
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SPETZ, AGNETA, ROGER HENRIKSSON, A. TOMMY BERGENHEIM e PÄR SALANDER. "A specialist nurse-function in neurooncology: A qualitative study of possibilities, limitations, and pitfalls". Palliative and Supportive Care 3, n. 2 (giugno 2005): 121–30. http://dx.doi.org/10.1017/s1478951505050200.
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Objective:Brain tumors, a cancer that affects the cortical processes, have a substantial social impact. Typically, malignant glioma is a brain tumor with a poor prognosis; few patients survive more than two years after diagnosis. In the last several years, different groups have documented how this disease affects a patient's quality of life. These findings have resulted in new ways for nurses to improve the care for these patients and their spouses. However, these initiatives have not been studied in a systematic way. This study investigates how patients with malignant glioma and their families respond to a special nurse, a nurse specifically instructed to address the needs of the patient and the patient's family.Methods: Sixteen patients and their next-of kin were included. At the time of diagnosis, the special nurse offered to serve as a resource to the patient and the patient's family. During the whole course of the disease, the nurse recorded her interactions with the patients and the patients' family. In addition, the spouses were interviewed after the patient's death. Data was analysed qualitatively with focus on tasks and relationships.Results:Four relationships between the special nurse and the family were detected: 1) a resource for the whole family; 2) a parallel resource within the family; 3) a resource for the next-of kin; and 4) a resource for the patient. Most of the patients and their families found this program beneficial. The nurse provided the patient and family with several functions. In some cases the family and nurse interaction developed into a closer relationship, a relationship based on the nurse's availability and concern for the patient's and family's welfare.Significance of Results:This close relationship underlines the importance of the nurse's professionalism and a systemic perspective for understanding the nurse's function within the milieu of a cancer patient's family.
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Szarka, Nikolett, Zsolt Nagykáldi, Mária Végh e János Oberling. "Patient satisfaction with care in gastrooesophageal reflux disease". Orvosi Hetilap 154, n. 43 (ottobre 2013): 1713–18. http://dx.doi.org/10.1556/oh.2013.29734.
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Introduction: Besides medical treatment, adequate communication and personal relationships between physicians and patients are the most important determinants of patient satisfaction. Aim: To explore doctor–patient relationships, and factors that may determine patient satisfaction with care. Method: Patients with gastroesophageal reflux (n = 80) were divided into subgroups treated by family doctors or by gastroenterologists. Patients were asked to fill in a questionnaire about communication and patient satisfaction. Results: Significantly more patients visited family doctors than gastroenterologists with health problems (80%; 20%, p < 0.001). Patients were significantly more satisfied with the information they received about the process of care provided by family doctors (95%) compared to that they obtained from gastroenterologists (65%; p = 0.002). Significantly more patients in family practices indicated that their doctors spent enough time with them compared to subspecialists (96.7%; 80% p = 0.032). Conclusions: Patients develop a closer personal relationship and more appropriate communication with family doctors compared to specialists, which can be an important component of successful treatment. Orv. Hetil., 154 (43), 1713–1718.
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RGN,, Christopher Johns. "Caring Connections: Knowing Self Within Caring Relationships Through Reflection". International Journal of Human Caring 3, n. 2 (marzo 1999): 31–38. http://dx.doi.org/10.20467/1091-5710.3.2.31.
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Practitioners who espouse a holistic philosophy of caring need to know and manage their appropriate involvement in relationships with patient/family relationships. Yet nurses often struggle with this aspect of work. A single shared experience, taken from a guided reflection relationship, is used to reflect on and transcend extant theory of managing practitioner involvement in patient/family relationship. Guided reflection is illustrated as a meaningful learning opportunity1 caring action whereby knowing self in the context of working with patients and families can be effectively known.
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Thapwong, Parichat, Christine Norton, Helen Terry e Wladyslawa Czuber-Dochan. "Impact of inflammatory bowel disease on partners: a qualitative study". Gastrointestinal Nursing 20, n. 3 (2 aprile 2022): 40–50. http://dx.doi.org/10.12968/gasn.2022.20.3.40.
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Background: Extensive studies have documented the impacts of inflammatory bowel disease (IBD) on patient quality of life, but this study addresses the gap concerning IBD outcomes for the family members of adult IBD patients. Aims: To explore the lived experience of IBD patients and their family members regarding impacts of IBD on family members and their coping strategies. Methods: Semi-structured, in-depth, online interviews were held via Skype, Microsoft Teams and Zoom from February to June 2020, with 12 purposively selected participants, comprising six IBD patients with their six partners. Interviews were audio-recorded and transcribed verbatim, for inductive thematic data analysis. Results: Four main themes emerged during the analysis under the central theme ‘our relationship with IBD, for better or worse’. The theme ‘our relationship’ revealed the impact of IBD on intimate relationships, family planning, role change as partner and carer, and the importance of honest communication. IBD also affected wider relationships with family, children and social life, but teamwork could mediate negative impacts on relationships. Living in constant fear and guilt impacted on emotional wellbeing. Humour and knowledge of IBD reduced negative impacts. IBD had impacts on everyday life (diet, finances and travel) for both patients and partners. Planning for uncertain situations was helpful to reduce restrictions. Conclusions: There are wide-ranging implications for healthcare providers (gastroenterologists, GPs and IBD nurses), social care professionals (psychologists and social workers), family therapists and researchers who could incorporate a bio-psycho-social approach to working with patients with IBD to improve services for individuals who have IBD and their partners and families.
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Sedykh, K., e V. Lavrinenko. "FEATURES OF PSYCHOTHERAPEUTIC WORK WITH FAMILIES OF DRUG DEPENDENT PATIENTS". Psychology and Personality, n. 2 (6 ottobre 2022): 98–114. http://dx.doi.org/10.33989/2226-4078.2022.2.265488.
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The article characterizes the types of relationship configurations in chemically dependent families; the internal conflicts of the addict's personality are described; the role of shame in the addiction formation is highlighted. The theoretical principles of understanding the family relationships configurations essence and its specificities in families with drug addicts are presented.
It is presented that the most typical for families with drug addicts are symbiotic-conflict and conflict types of family relationships configurations, which allow the interaction participants to realize a dependent type of attachment. The phenomenon of family configurations repetition in different generations of the same family is revealed and described.
Some practical psychotherapeutic techniques in dealing with addicted patients are highlighted. In particular, the differences in the implementation of psychotherapy of families of drug addicts with a predominance of symbiotic-conflict (reduction of emotional dependence) or conflict (search for other ways of communication) types of configurations are shown.
The role of shame in working with drug addicts is described, constructive and non-constructive variants of the influence of shame on the process of overcoming excessive use are differentiated.
Based on the description of the prevailing types of intrapersonal conflicts in drug addicts, appropriate strategies for psychotherapeutic work with them are presented.
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Shamali, Mahdi, Birte Østergaard e Hanne Konradsen. "Living with heart failure: perspectives of ethnic minority families". Open Heart 7, n. 1 (giugno 2020): e001289. http://dx.doi.org/10.1136/openhrt-2020-001289.
Testo completoAbstract (sommario):
BackgroundThe family perspective on heart failure (HF) has an important role in patients’ self-care patterns, adjustment to the disease and quality of life. Little is known about families’ experiences of living with HF, particularly in ethnic minority families. This study describes the experiences of Iranian families living with HF as an ethnic minority family in Denmark.MethodsIn this descriptive qualitative study, we conducted eight face-to-face joint family interviews of Iranian patients with HF and their family members living in Denmark. We used content analysis with an inductive approach for data analysis.ResultsWe identified three categories: family daily life, process of independence and family relationships. Families were faced with physical restrictions, emotional distress and social limitations in their daily lives that threatened the patients’ independence. Different strategies were used to promote independence. One strategy was normalisation and avoiding the sick role; another strategy was accepting and adjusting themselves to challenges and limitations. The independence process itself had an impact on family relationships. Adjusting well to the new situation strengthened the relationship, while having problems in adjustment strained the relationship within the family.ConclusionsThis study highlights the process of independence as perceived by families living with HF. It is crucial to both families and healthcare professionals to maintain a balance between providing adequate support and ensuring independence when dealing with patients with HF. Understanding patients’ stories and their needs seems to be helpful in gaining this balance.
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Hansen, Lissi, Susan J. Rosenkranz, Kathleen Wherity e Anna Sasaki. "Family members’ perspectives of caring for patients with terminal hepatocellular carcinoma." Journal of Clinical Oncology 33, n. 3_suppl (20 gennaio 2015): 323. http://dx.doi.org/10.1200/jco.2015.33.3_suppl.323.
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323 Background: Hepatocellular carcinoma (HCC) is a growing problem worldwide and accounts for more than 700,000 deaths annually. There is no curative treatment for those diagnosed with terminal HCC. This group of patients differs from other populations with liver disease or cancer due to the combined disease processes of cancer and liver failure. Although family members often play an integral role in providing care, no study was found specifically examining family member experiences of caring for patients with terminal HCC. The aim of this study was to describe family members’ experiences and perceptions of providing care for patients with HCC as they near the end of life. Methods: This longitudinal, prospective pilot study described here presents the qualitative results of semi-structured in-person interviews with a convenience sub-sample of 13 family members conducted once a month for up to a 6-month period. The interview guide included questions about family member experiences of providing care for patients living with HCC and any current concerns of significance. Interview data were analyzed using conventional content analysis. Results: Analysis included a total of 39 family member interviews. Ten family members were female and three were male (mean age = 56 years, range = 22-68 years). Family members’ relationships to patients varied and included: spouses, siblings, adult children, parents, and ex-spouses. The analysis resulted in four major themes: perception of and response to terminal HCC diagnosis, HCC progression, symptom assessment and interpretation, and challenges of providing care. Findings were colored by complex relationships between family members and patients that changed or did not change as the disease progressed. Conclusions: This study contributes new knowledge to begin developing interventions that address family members’ need for support, help, and information as the disease progresses and at the end of life. Future research should include a larger sample size that is more ethnically and racially diverse, includes more male family members, and focuses on how care provided by family members may vary based on kinship, and relationship dynamics.
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Angood, Peter. "Connectedness, Empathy, Relationships, and Leadership". Physician Leadership Journal 10, n. 6 (novembre 2023): 1–4. http://dx.doi.org/10.55834/plj.2937999901.
Testo completoAbstract (sommario):
Physician leadership is a complex set of aptitudes, attributes, knowledge, and experience, and the leadership required to ensure true patient-centered care is complicated. Critical to every situation is the sense of connectedness and the variety of relationships with patients, peers, friends, and family.
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Madianos, MG, e M. Economou. "Schizophrenia and family rituals: measuring family rituals among schizophrenics and “normals”". European Psychiatry 9, n. 1 (1994): 45–51. http://dx.doi.org/10.1017/s0924933800003199.
Testo completoAbstract (sommario):
SummaryFamily rituals consisting of ceremonial acts, traditions and patterned interactions serve as a basis of communication, collective identity, and stabilizing relationships. Therefore, the measurement of rituals in a schizophrenic family is an objectification of the family's symbolic communication and integration. Based upon this, the relationship between family rituals practice in 138 families both with a schizophrenic member (71) and without (67) was examined by the use of an originally developed instrument, the “Family Rituals Scale” (FRS). The psychometric properties of this instrument were tested and proved to be reliable. Families with a schizophrenic member were less ritualizing than the “normal” families. The correlation between FRS scores and Global Assessment Scale scores in schizophrenic patients was negative (the higher the psychosocial functioning level, the lower FRS scores), which means a higher performance of family rituals. The effect of other factors on FRS scores and the therapeutic implications are discussed.
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Moosa, S. A. H. "Patients as friends - awkward or advantageous?" South African Family Practice 45, n. 4 (30 aprile 2003): 3. http://dx.doi.org/10.4102/safp.v45i4.1960.
Testo completoAbstract (sommario):
Rural General Practitioners often find themselves in a small community having patients as friends. This can lead to difficulty in the relationship. This is a reflection on the family friends where I missed the youngest child's diagnosis of myoclonic epilepsy in the social context and which lead to a crisis in the relationship. This lead me to reflect on acknowledging mt needs, defining the roles and relationships and being explicit and honest with the patient cum friend in the structuring of the dual relationship in various ways. I, as doctor, have learnt to continuously reflect on objectivity and comfort in the care of patient cum friend.
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Stolper, Hanna, Karin van Doesum, Petra Henselmans, Anne Lynn Bijl e Majone Steketee. "The Patient’s Voice as a Parent in Mental Health Care: A Qualitative Study". International Journal of Environmental Research and Public Health 19, n. 20 (13 ottobre 2022): 13164. http://dx.doi.org/10.3390/ijerph192013164.
Testo completoAbstract (sommario):
Objective: This study is an evaluation of patients in mental health care who have undertaken treatment with an integrated family approach. The treatment focuses on the mental disorders of patients, their role as parents, the development of their young children, and family relationships. The treatment was conducted by professionals from an adult and a child mental health service in the Netherlands. The aim of the study was to identify the key elements and processes of this approach in order to develop a theoretical model. Background: Parental mental disorders have an impact on parenting and child development. To stop detrimental cascade effects and prevent parents and children from being caught up in the intergenerational transmission of psychopathology, a family approach in mental health care is needed. Methods: A qualitative design was adopted using thematic analysis. Data were collected through 18 interviews with patients. The themes in the interviews were which outcomes the patients experienced and which key elements of the treatment contributed to these outcomes. Results: In general, patients were satisfied with the treatment offered. Improved outcomes were within the domain of the family, the parent-child relationship, individual symptoms, and the functioning of the parent and the child. Patients mentioned six key elements of success in treatment: focus on the whole family, flexible treatment tailored to the situation of the family, components of the whole treatment reinforcing each other, multi-disciplinary consultation among involved professionals, a liaison between adult and child mental health services, and attention to the social and economic environment. Conclusions: According to the majority of patients, treatment with an integrated family approach in mental health care is of value for themselves, their children, and family relationships, especially the parent-child relationship.
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Park, Su-Jung, Minjeong An e Hyang-Sook So. "Relationships of Stigma, Family Support, and Quality of Life in Tuberculosis Patients". Journal of the Korea Contents Association 15, n. 9 (28 settembre 2015): 285–94. http://dx.doi.org/10.5392/jkca.2015.15.09.285.
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Pentzek, Michael, Michael Wagner, Heinz-Harald Abholz, Horst Bickel, Hanna Kaduszkiewicz, Birgitt Wiese, Siegfried Weyerer et al. "The value of the GP’s clinical judgement in predicting dementia: a multicentre prospective cohort study among patients in general practice". British Journal of General Practice 69, n. 688 (8 ottobre 2019): e786-e793. http://dx.doi.org/10.3399/bjgp19x706037.
Testo completoAbstract (sommario):
BackgroundClinical judgement is intrinsic to diagnostic strategies in general practice; however, empirical evidence for its validity is sparse.AimTo ascertain whether a GP’s global clinical judgement of future cognitive status has an added value for predicting a patient’s likelihood of experiencing dementia.Design and settingMulticentre prospective cohort study among patients in German general practice that took place from January 2003 to October 2016.MethodPatients without baseline dementia were assessed with neuropsychological interviews over 12 years; 138 GPs rated the future cognitive decline of their participating patients. Associations of baseline predictors with follow-up incident dementia were analysed with mixed-effects logistic and Cox regression.ResultsA total of 3201 patients were analysed over the study period (mean age = 79.6 years, 65.3% females, 6.7% incident dementia in 3 years, 22.1% incident dementia in 12 years). Descriptive analyses and comparison with other cohorts identified the participants as having frequent and long-lasting doctor–patient relationships and being well known to their GPs. The GP baseline rating of future cognitive decline had significant value for 3-year dementia prediction, independent of cognitive test scores and patient’s memory complaints (GP ratings of very mild (odds ratio [OR] 1.97, 95% confidence intervals [95% CI] = 1.28 to 3.04); mild (OR 3.00, 95% CI = 1.90 to 4.76); and moderate/severe decline (OR 5.66, 95% CI = 3.29 to 9.73)). GPs’ baseline judgements were significantly associated with patients’ 12-year dementia-free survival rates (Mantel–Cox log rank test P<0.001).ConclusionIn this sample of patients in familiar doctor–patient relationships, the GP’s clinical judgement holds additional value for predicting dementia, complementing test performance and patients’ self-reports. Existing and emerging primary care-based dementia risk models should consider the GP’s judgement as one predictor. Results underline the importance of the GP-patient relationship.
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SHEPHERD, JADE. "LIFE FOR THE FAMILIES OF THE VICTORIAN CRIMINALLY INSANE". Historical Journal 63, n. 3 (22 novembre 2019): 603–32. http://dx.doi.org/10.1017/s0018246x19000463.
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AbstractThis article uses hundreds of letters written by the families of patients committed to Victorian Broadmoor Criminal Lunatic Asylum to provide the first sustained examination of the effects of asylum committal on patients’ individual family members. It shows that, despite what historians have previously suggested, the effect on families was not solely, or even necessarily primarily, economic; it had significant emotional effects, and affected family members’ sense of self and relationships outside the asylum. It also shows that family ties and affective relationships mattered a great deal to working-class Victorians. Some found new ways to give meaning to their relationship with, and the life of, their incarcerated relative, despite the costs this entailed. By taking a new approach – engaging with the history of the family, shifting focus from patients to their individual family members, and considering factors including age, class, gender, change over time, and life stage – this article demonstrates the breadth and depth of the effects of asylum committal, and in doing so provides new and significant insights into the history of the Victorian asylum. It also enriches the history of the family by providing an insight into working-class quotidian lives, bonds, and emotions.
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Vidal, Kathleen. "Listening to Patients Changes Clinicians’ Perspectives and Improves Care". Creative Nursing 20, n. 2 (2014): 122–26. http://dx.doi.org/10.1891/1078-4535.20.2.122.
Testo completoAbstract (sommario):
This article shares strategies of an academic medical center and its system of hospitals in partnering with patients and families to create a climate in which patients, families, and clinicians are comfortable enough to ask questions, suggest alternatives, and even choose to disagree. Relationship-Based Care: A Model for Transforming Practice (Koloroutis, 2004) was instrumental in developing an interdisciplinary relationship-based model of care supported by 4 key processes (admission interview, daily rounds, discharge planning, and follow-up phone calls). These processes—along with patient/family councils, patient/family/staff retreats, patient/family representation on hospital committees, and a patient experience bundle—have proven successful in aligning patient and family expectations with clinicians’ care delivery, as reflected in Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS) scores. A study suggesting the nature of caring as a nurse-driven activity may vary from caring as a patient-driven activity. Inspired engagement with Koloroutis and Trout (2012) See Me as A Person: Creating Therapeutic Relationships with Patients and Their Families; attunement, wondering, following, and holding build bridges between clinicians perceptions and knowledge, and patients knowledge and expectations.
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Crist, Jamie. "Modern family: Texas critical care clinicians need to know about informal marriage". Southwest Respiratory and Critical Care Chronicles 8, n. 34 (26 aprile 2020): 73–76. http://dx.doi.org/10.12746/swrccc.v8i34.623.
Testo completoAbstract (sommario):
Critical care clinicians are legally and ethically obligated to identify the appropriate surrogate decision-makers for patients who lack capacity and cannot make medical decisions for themselves. When the identification of the appropriate surrogate is streamlined, patient care is improved due to an uninterrupted and consistent plan of care that adheres to patient preferences. However, the process of identifying this “appropriate” person can be complex, especially as interpersonal relationships have evolved over time. One such modern family relationship is informal marriage, a Texas-specific relationship formerly known as “common-law” marriage. Though crucially important, this relationship is can difficult to recognize and frequently misunderstood.
Utilizing a case study that illustrates the impact the existence of an informal marriage has on medical decision-making, this paper seeks to demystify informal marriage by outlining what makes a relationship an informal marriage and provide tools to assist clinicians with identifying it. In an age where non-traditional relationships are more common, Texas critical care clinicians should be familiar enough with informal marriage to recognize it in their patients in order to efficiently identify surrogates and therefore improve patient care.
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Shah, Lisa L., Sandra Daack-Hirsch, Anne L. Ersig, Anthony Paik, Ferhaan Ahmad e Janet Williams. "Family Relationships Associated With Communication and Testing for Inherited Cardiac Conditions". Western Journal of Nursing Research 41, n. 11 (12 dicembre 2018): 1576–601. http://dx.doi.org/10.1177/0193945918817039.
Testo completoAbstract (sommario):
The purpose of this study was to identify characteristics of family relationships associated with communication of genetic risk and testing behaviors among at-risk relatives in families with an inherited cardiac condition. Data were collected from 53 patients and parents of children with an inherited cardiac condition through interviews, pedigrees, and surveys. Associations were examined among family relationship characteristics and whether at-risk relatives were informed about their risk and tested for disease. Of 1,178 at-risk relatives, 52.5% were informed about their risk and 52.1% of those informed were tested. Emotional closeness, relationship quality, and communication frequency had significant bivariate associations with genetic risk communication. Communication frequency was associated with genetic risk communication and testing in multivariate models. This study provides new insight into the extent of genetic risk communication and testing in families with inherited cardiac conditions. Family relationships, especially communication frequency, are critical factors in family communication of genetic risk.
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Ljubicic, Milana. "Family (dis)functionality and mental health: Review of atmosphere, emotional relationships and communicational schemes in schizophrenic patients’ families". Sociologija 47, n. 1 (2005): 67–92. http://dx.doi.org/10.2298/soc0501067l.
Testo completoAbstract (sommario):
This review summarizes research findings on socio-pathological aspects of life of schizophrenic patients? families. Instigated on a system theory, and socio-dynamic notion that links the commencement of the schizophrenia to economical circumstance of individual hence: inadequate function of this component is a product of personal pathology of individual. System therapy perceives family as a system as its members play particular roles and form multiple relations. Therapy observes family as a system: their members play certain roles and form multiple interactions. This disorder of the family system can be manifested through mental disturbance of one of its members: however, it is never a reflection of individual?s personal pathology but troubled family relations. System theory on commencement of schizophrenia emphasizes emotional relationship, atmosphere and communication between family members. Therefore, system theory underlines the importance of troubled emotional relationships, atmosphere bearing negative notion and inadequate communication between family members. Negative family surroundings, emotional and communicational character of the schizophrenic patients? families? relations were confirmed by the research.
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Na'imah, Siti, Christantie Effendy e Supriyati Supriyati. "BURDEN OF FAMILY CAREGIVER IN CARING FOR STROKE PATIENTS: A MIXED METHOD RESEARCH". Jurnal Keperawatan Respati Yogyakarta 10, n. 01 (17 febbraio 2023): 17. http://dx.doi.org/10.35842/jkry.v10i01.721.
Testo completoAbstract (sommario):
Background: Stroke is the fifth leading cause of death in the world, stroke does not only have a negative impact on patients but also has an impact on family caregivers. This study aims to describe the burden experienced by family caregivers in caring for stroke patients.
Methods: This research uses a mixed method with sequential explanatory approach. The research was conducted from August to October 2019 involved 106 family caregivers using a purposive sampling technique. Burden experienced was measured with the Zarit Burden Interview (ZBI) questionnaire. Quantitative data analysis was performed by SPSS and qualitative data analysis with Opencode.
Results: Burden experienced was at a mild level, there was a significant relationship to education variables (p = 0.007, r = -0.297), family relationships (p = 0.001, r = 0.001), number of caregivers (p = 0.001, r = 0.364), and the patient's duration of stroke (p = 0.006, r = -0.322).
There are three themes in this study, that is difficulties in caring, motivation for caring and sources of support. Conclusion: Although quantitatively the family caregiver experiences a mild burden, qualitatively the family caregiver reports complaints in caring for almost all aspects, so treatment is needed to resolve this burden.
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Jang, Yoo-Ri, e Mi-Aie Lee. "A study of relationships among tuberculosis knowledge, family support, and medication adherence in tuberculosis patients". Journal of Korean Academic Society of Nursing Education 28, n. 1 (28 febbraio 2022): 80–90. http://dx.doi.org/10.5977/jkasne.2022.28.1.80.
Testo completoAbstract (sommario):
Purpose: This study was conducted to investigate the effect of tuberculosis-related knowledge and family support on medication adherence in tuberculosis patients.Methods: The data were collected from 175 patients diagnosed with tuberculosis at three general hospitals located in two provincial cities in South Korea from September 1 to November 31, 2020. The 160 questionnaires were analyzed using IBM SPSS WIN 25.0.Results: The patients’ average score for tuberculosis-related knowledge was 15.85±5.87 (out of 25), for family support it was 22.03±9.20 (out of 35), and for medication adherence it was 5.11±2.68 (out of 8). There were significant differences in tuberculosis-related knowledge, family support, and medication adherence according to patients’ general characteristics and significant positive relationships among tuberculosis-related knowledge, family support, and medication adherence. Factors affecting patients’ tuberculosis medication adherence were history of stopping the medication, the importance of treatment among tuberculosis-related knowledge and family support, and these factors could explain 78% of patients’ taking tuberculosis drugs.Conclusion: It could be concluded that the importance of tuberculosis treatment and family support are very important for improving patients’ rates of medication adherence. Therefore, medical staffs caring for tuberculosis patients need to manage patients’ medication of tuberculosis drugs with continuous consultation.
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Leon-quismondo, L., e M. F. Dieguez-porres. "Influence Of Family Dynamics In The Development And Recovery Of Patients With Cancer Diagnosis. Report Of Two Cases". European Psychiatry 33, S1 (marzo 2016): S499. http://dx.doi.org/10.1016/j.eurpsy.2016.01.1836.
Testo completoAbstract (sommario):
IntroductionNowadays, it is well known that a cancer diagnosis has an important impact on the patient and his family. Given a stressful life event, such as cancer, the family is in crisis, so it is crucial how they facing the process. Two families with different adaptation process at the time of diagnosis are presented and the differences are analyzed.CasesFamily 1: Woman, diagnosis of breast cancer. She lives with her husband and she has two children. Troubled family relationships before the diagnosis. Following the cancer diagnosis, family conflicts increase, both with their children and with her husband. The family is not able to adapt to the new situation and the patient perception is that her family do not care what is happening to her.Family 2: Woman, diagnosis of breast cancer. She lives with her boyfriend, she has no children. She has a good relationship with her family before the diagnosis, without unresolved conflicts in the past. Since cancer diagnosis the whole family has turned to the patient, being more available for her needs, physically and emotionally. She is feeling supported by them and this is making the adaptation process and family adjustment easier, feeling the patient stronger to cope with illness.ConclusionsIn families with unresolved crisis before the disease, the psychological stress increases after diagnosis. The family finds it difficult to react and adapt to the changes caused by the disease and the relationships between its members deteriorate. Conversely, if the family dynamic is good, it is a positive factor in the recovery.Disclosure of interestThe authors have not supplied their declaration of competing interest.
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Nasution, Lisna Khairani, e Normayanti Rambe. "HUBUNGAN DUKUNGAN KELUARGA DENGAN KEPATUHAN PENDERITA HIPERTENSI DIET RENDAH GARAM DI PUSKESMAS SIBUHUAN". JURNAL MUTIARA NERS 5, n. 1 (5 febbraio 2022): 1–6. http://dx.doi.org/10.51544/jmn.v5i1.1959.
Testo completoAbstract (sommario):
Family support is needed by patients with hypertension in overcoming their problems that occur during long-term treatment. Hypertensive patient compliance determines the success of treatment programs. This study was descriptive koleratif that aims to analyze the relationship between family support with client adherence of hypertensive patients in the low-salt diet Sibuhuan Puskesmas Padang Lawas. This study was conducted in February 2021 to 41 hypertensive patients. Sampling was done by sampling incidental. The results of data analysis showed that the majority of patients with hypertension have a good family support as many as 24 people (58.5%), and non-adherent low-salt diet were 28 people (68.3%). The results showed that family support variable has a value significancy (p) is 0.021 (p <0.05), which means no family support relationships with clients adherence of patients a diet low in salt. It is suggested to the nurse and the family in particular in order to motivate and support of hypertensive patients to comply with treatment programs.
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Permatasari, Devi, Cucu Rokayah e Ruhyat Ejeb. "The Relationship Between Family Role and Self-Care Patients with Schizophrenia". Indonesian Journal of Global Health Research 1, n. 1 (30 novembre 2019): 21–30. http://dx.doi.org/10.37287/ijghr.v1i1.1.
Testo completoAbstract (sommario):
Schizophrenia is a serious disease that results in psychotic behavior, disruption in processing information, and interpersonal relationships, the prevalence of schizophrenia in Indonesia, which is around 400,000 people, patients with schizophrenia tend to experience a decrease in self-care. This is due to the decline in some brain functions that are owned by these patients which make it difficult to express emotions, withdraw from the social environment, lose motivation, not interested in doing daily activities, and ignore personal hygiene, to self-care schizophrenic patients need a family role. This study aims to determine whether there is a relationship between the role of the family and self-care in schizophrenic patients in the Outpatient Installation of the Mental Hospital of West Java Province. This study uses a quantitative method with a type of descriptive correlation research, using accidental sampling technique and cross sectional approach. The sample in this study amounted to 296 patient families. This study used a family role questionnaire and self-care questionnaire. The independent variables studied were the role of the family and the dependent variable studied, namely self-care. Univariate analysis uses frequency distribution and bivariate using chi-square. The results showed that patients had a good family role of 151 respondents (51.0%), and for self-care patients who needed as many as 125 (42.2%) assistive devices. There is a significant relationship between the relationship of the role of the family and self-care in schizophrenic patients p-value = 0.006.
Keywords: self-care, family role
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Saputro, Heri, Mariana Ina Camo e Budi Suraksono. "Analysis Support Families With Quality Of Life After Stroke Patients". STRADA Jurnal Ilmiah Kesehatan 8, n. 2 (18 novembre 2019): 172–76. http://dx.doi.org/10.30994/sjik.v8i2.175.
Testo completoAbstract (sommario):
The study design was cross-sectional descriptive correlative approach. Data collection tool is a questionnaire guide. Sample of 35 respondents using accidental sampling technique. The independent variable in this study is the family support and the dependent variable quality of life of patients with post-stroke. The results showed 16 respondents, or 45.8% of respondents received sufficient family support. Respondents who have a sufficient quality of life amounted to 15 respondents or 42.7%. By Spearman Rho obtained significance value (p value = 0.00) <(α = 0.05), which proved to be no family support relationships with the quality of life of the elderly after a stroke. Post-stroke patients have problems of physical health, psychological, level of dependence, social relationships, environment and personal beliefs. Therefore, they need emotional support, awards, instrumental and information, especially of the family as the people closest to them thus improving patient quality of life after stroke
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Neumann, Melissa Francoise, Neal J. Murphy e Nagashree Seetharamu. "Smoking cessation after cancer diagnosis: Relationships matter." Journal of Clinical Oncology 40, n. 16_suppl (1 giugno 2022): e24039-e24039. http://dx.doi.org/10.1200/jco.2022.40.16_suppl.e24039.
Testo completoAbstract (sommario):
e24039 Background: Continued smoking after a cancer diagnosis leads to worse morbidity and mortality. Unfortunately, smoking prevalence remains high amongst cancer patients and survivors. Few studies have been conducted to evaluate and target patients’ social networks that may contribute to a patient continuing to smoke. We developed a questionnaire intended to assess patients’ smoking status, motivation to quit, patient/family dynamics, and interest in enrolling in a smoking cessation program that includes the patient and the person closest to them in their social network that may be contributing to their continued smoking. Methods: We designed a three-page questionnaire to gain more information about a patient’s past and current smoking history, level of nicotine dependence, assessment of their motivation to quit smoking, their social network and family/friends who may be smoking, and willingness of the patient and close family to quit. Inclusion criteria included patients who have been diagnosed with any solid tumor malignancy and had a history of smoking or recently quit. Non-smokers were excluded. IRB approval was obtained and questionnaires were distributed to patients when checking in at the front desk of the Monter Cancer Center. 32 questionnaires were collected from July 2021 - January 2022. Results: Of the questionnaires completed, 59% quit smoking after their cancer diagnosis, 34% tried and were unable, and 7% did not try or declined to answer. Of the 59% who quit, 52% were married, compared to 45% of the 34% who tried and were unable to quit. The odds of quitting among people who were married was 1.56 (95% CI 0.36 - 6.69; p-value 0.55) times the odds of quitting among people who were not married. In the quit group, 53% lived with a smoker at some point compared with 75% of those in the quit but unable to group. The odds of quitting among people who lived with a smoker was 0.42 (95% CI 0.08 - 2.07; p-value 0.28) times the odds of quitting among people who did not live with a smoker. Five social network members quit after their relatives’ cancer diagnosis. No patients were currently enrolled in a tobacco cessation program. Two people answered they would be interested in being enrolled in a tobacco cessation program with a close family member that also smokes. Conclusions: Our study highlights high rates of continued smoking amongst cancer patients. Being diagnosed with cancer can serve as a teachable moment and motivate patients to quit smoking. Social network plays an important role in tobacco cessation. Our study showed that the odds of quitting was lower in patients who lived with smokers than those who did not, though not statistically significant likely due to small sample size. None of the active smokers were enrolled in a smoking cessation program highlighting the imminent need for innovative smoking cessation platforms that are engaging and effective in improving quit rates amongst cancer patients.
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Costa, Rosana dos Santos, e Lidya Tolstenko Nogueira. "Family support in the control of hypertension". Revista Latino-Americana de Enfermagem 16, n. 5 (ottobre 2008): 871–76. http://dx.doi.org/10.1590/s0104-11692008000500012.
Testo completoAbstract (sommario):
Hypertension is related to the incidence of cardiovascular diseases. Family support is essential for the patient to control the disease. This study aimed to analyze whether the family positively contributes to the patient's control of the disease. The research was carried out in 2005 in Teresina, PI, Brazil and involved people who were enrolled in the Hypertension Program of an Integrated Health Center. Data were collected through individual interviews, using the Critical Incident Technique. After the content analysis, the element Consequence was identified in 146 references, 58 positive and 88 negative, composing four categories: Family, Financial, Health and Emotional Aspects. Difficulties in family relationships, patients' concern with their descendants, and the families' little involvement in the patients' care were identified through the reports.
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Han, Ge-Ge. "Family resilience of cancer patients: a concept analysis". Frontiers of Nursing 11, n. 2 (1 giugno 2024): 153–58. http://dx.doi.org/10.2478/fon-2024-0016.
Testo completoAbstract (sommario):
Abstract Objective The concept of family resilience of cancer patients was discussed through literature review, which provided reference for nursing of cancer patients. Methods China National Knowledge Infrastructure (CNKI), Wanfang Database, SinoMed, PubMed, Web of Science, and Embase were systematically searched, and the concept analysis method proposed by Walker and Avant was adopted. Results In this study, we defined the concept of family resilience, identified attributes, and analyzed the antecedents and consequences. The proposed operational definition of family resilience was: After a family member is diagnosed with cancer, the whole family can actively explore its own unique internal and external resources and advantages, strengthen self-regulation, jointly cope with the crisis by establishing close family relationships, providing mutual support to family members, and interacting with the outside world. Conclusions The definition of family resilience of cancer patients is conducive to the development of measurement tools and the improvement of family outcomes of adult cancer patients by intervening family resilience factors.
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James, Oscar, Karen Cardwell, Frank Moriarty, Susan M. Smith e Barbara Clyne. "Pharmacists in general practice: a qualitative process evaluation of the General Practice Pharmacist (GPP) study". Family Practice 37, n. 5 (7 maggio 2020): 711–18. http://dx.doi.org/10.1093/fampra/cmaa044.
Testo completoAbstract (sommario):
Abstract Background There is some evidence to suggest that pharmacists integrated into primary care improves patient outcomes and prescribing quality. Despite this growing evidence, there is a lack of detail about the context of the role. Objective To explore the implementation of The General Practice Pharmacist (GPP) intervention (pharmacists integrating into general practice within a non-randomized pilot study in Ireland), the experiences of study participants and lessons for future implementation. Design and setting Process evaluation with a descriptive qualitative approach conducted in four purposively selected GP practices. Methods A process evaluation with a descriptive qualitative approach was conducted in four purposively selected GP practices. Semi-structured interviews were conducted, transcribed verbatim and analysed using a thematic analysis. Results Twenty-three participants (three pharmacists, four GPs, four patients, four practice nurses, four practice managers and four practice administrators) were interviewed. Themes reported include day-to-day practicalities (incorporating location and space, systems and procedures and pharmacists’ tasks), relationships and communication (incorporating GP/pharmacist mode of communication, mutual trust and respect, relationship with other practice staff and with patients) and role perception (incorporating shared goals, professional rewards, scope of practice and logistics). Conclusions Pharmacists working within the general practice team have potential to improve prescribing quality. This process evaluation found that a pharmacist joining the general practice team was well accepted by the GP and practice staff and effective interprofessional relationships were described. Patients were less clear of the overall benefits. Important barriers (such as funding, infrastructure and workload) and facilitators (such as teamwork and integration) to the intervention were identified which will be incorporated into a pilot cluster randomized controlled trial.
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Pilecki, Maciej Wojciech, e Barbara Józefik. "Perception of transgenerational family relationships: Comparison of eating-disordered patients and their parents". Medical Science Monitor 19 (2013): 1114–24. http://dx.doi.org/10.12659/msm.889432.
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Permatasari, Indah, Ririn Isma Sundari e Arni Nur Rahmawati. "HUBUNGAN KECEMASAN DAN BEBAN KELUARGA DENGAN KEMAMPUAN ANGGOTA KELUARGA MERAWAT PASIEN PERILAKU KEKERASAN DI RUMAH SAKIT JIWA PROF. DR. SOEROJO MAGELANG". Jurnal Ilmu Keperawatan Komunitas 1, n. 2 (10 dicembre 2018): 25. http://dx.doi.org/10.32584/jikk.v1i2.176.
Testo completoAbstract (sommario):
The number of people with mental disorders in Central Java 2012 is quite high. It is about 3.300-9.300 people. This number is only from the diagnosed patients. One of them is mental disorder of violent behavior. The data obtained from RSJ Prof. Dr. Soerojo Magelang about this disorder reached 643 patients from May to October 2017. Violent behavior raises anxiety and burdens on families who care the people with violent behavior. The objective of this research was to find out the anxiety and family burden relationships with family members ability in caring violent behavior patients in RSJ Prof. Dr. Soerojo Magelang. This research used cross sectional approach with 52 total of samples. The technique used was purposive sampling, and the research instruments were anxiety questionnaire (HARS), family burden (ZBI), families’ ability in caring violent behaviour patients and also spearmen rank statictic test. Theresult shows that there is the anxiety is on average level which is 48,1%, the burden is also in average level which is 59,6% and the caring ability is not good which is 63,3%. There is a relationship of anxiety with the ability of family members to treat patients with violent behavior. And there is a family burden relationship with the ability of family members to care for patients of violent behavior.