Tesi: "Parents of autistic children"

1

Chee, Ming-mu Anthony, e 錢孟武. "Stress of parents with autistic children". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1991. http://hub.hku.hk/bib/B31248883.

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Chee, Ming-mu Anthony. "Stress of parents with autistic children /". [Hong Kong : University of Hong Kong], 1991. http://sunzi.lib.hku.hk/hkuto/record.jsp?B13115698.

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3

McGrath, Wanita. "Educating children presenting with autistic spectrum disorder: exploring parents' experiences". Thesis, Nelson Mandela Metropolitan University, 2015. http://hdl.handle.net/10948/10265.

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Abstract (sommario):

According to Pienaar and Raymond (2013, p.10) learners with disabilities have historically experienced the most serious exclusion from learning. The worldwide call for inclusive education prompted South Africa to develop the White Paper 6 (WP6) (2001, p.18) which clearly states that for Inclusive Education to be successfully implemented in South Africa, there has to be an acknowledgement that all children and youth can learn. The implementation of WP6 therefore not only benefits learners with special educational needs, but all South African learners by implementing "a more flexible system of education that focuses on removing barriers to learning and creating learning-friendly environments" (Pienaar and Raymond, 2013, pp. 10-11). However, a great disparity exists in what is proposed in official documents such as WP6 and what parents of children with barriers to learning actually experience within schools. This phenomenological study employed memory work, drawings and focus group discussions with four purposively selected parents to explore parents’ experiences of the education of their children who are on the Autistic Spectrum. Bronfenbrenner’s Eco-systemic perspective was used to make meaning of the data. The findings show that parents find the education of their autistic children as a stressful and isolating experience because of an unprepared education system. Despite the challenges, the participants also find their experiences to be a journey of personal growth and fulfilment. The study therefore recommends that schools should engage parents of autistic children more actively in order to make inclusion of such children effective. Teachers who are expected to practice inclusivity in schools should be adequately prepared to work with children presenting with ASD through a collaborative effort of the Department of Health and the Department of Education.

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4

Songlee, Dalhee. "Parents' satisfaction with the education of their child with autism". Full text available online (restricted access), 2002. http://images.lib.monash.edu.au/ts/theses/Songlee.pdf.

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Mattingly, Lisa-Marie. "The educational placement of children with autism what do parents think? /". Online version, 2001. http://www.uwstout.edu/lib/thesis/2001/2001mattinglyl.pdf.

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6

Thigpen, Dee. "Parents' perceptions of effective coping strategies for raising a child with autism". CSUSB ScholarWorks, 2008. https://scholarworks.lib.csusb.edu/etd-project/3365.

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Abstract (sommario):

The purpose of this study is to identify the main stessors that parents experience when raising an autistic child and parents' perceptions of what can help them cope better. It is important that parenting stressors and coping strategies are identified as they relate to the age of the child with autism.

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7

Montgomery, Quinn Vickers. "The effects of parent training on parents' use of appropriate praise and child's quantity of spoken words". Columbus, Ohio : Ohio State University, 2008. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=osu1218559007.

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8

Stoner, Julia B. Bock Stacey Jones Thompson James R. "Parental perceptions of the interactions between parents of young children with autism spectrum disorders and education professionals". Normal, Ill. Illinois State University, 2003. http://wwwlib.umi.com/cr/ilstu/fullcit?p3087875.

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Thesis (Ed. D.)--Illinois State University, 2003.
Title from title page screen, viewed November 1, 2005. Dissertation Committee: Stacey Jones Bock, James R. Thompson (co-chairs), Maureen E. Angell, E. Paula Crowley, Barbara S. Heyl. Includes bibliographical references (leaves 168-183) and abstract. Also available in print.

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9

Hitge, Marcel. "Fathers' coping with the day-to-day stressors of living with a child on the autistic spectrum". Thesis, Nelson Mandela Metropolitan University, 2014. http://hdl.handle.net/10948/8628.

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In general there is very little research on the coping styles that the fathers of children suffering from Autistic Spectrum Disorder (ASD) use in order to cope with the day-to-day demands and stressors that result from their child‘s unique condition. The research study focuses on the fathers of children on the autistic spectrum and how they cope with the stressors resulting from their children‘s condition on daily basis. The study made use of Bronfenbrenner‘s Ecosystemic Theory of Human Development as the guiding theoretical framework in exploring and describing this specific research domain. This was a qualitative study and it was phenomenological, descriptive and analytical in nature. The reason for this was to hear the voices of the fathers and explore in-depth how they deal with the daily stressors resulting from their children‘s condition. Semi-structured interviews were utilised where the fathers were asked to respond to an open-ended question. The data that was obtained from the fathers was analysed by means of content analysis. The sample size of the study was small (n=5) and other limitations included a small number of previous studies done on the fathers of children on the autistic spectrum. The literature that is available that focused on the fathers of ASD children are often old and might possibly be out dated. However, this study aimed to hear the voices of the fathers of children on the autistic spectrum and explore how they cope with the daily stressors. Therefore, this study will contribute to the literature on the fathers of ASD children.

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Boyer, Heather Ann. "The school and parent autism wars : a civil rights struggle /". Full text (PDF) from UMI/Dissertation Abstracts International, 2001. http://wwwlib.umi.com/cr/utexas/fullcit?p3008283.

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11

McDonald, Kimberly Sue. "The effect of length of participation in a parent support group on reported stress levels of parents of children with autism or other developmental disorders". CSUSB ScholarWorks, 2001. https://scholarworks.lib.csusb.edu/etd-project/1970.

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12

Lo, Chak-chuen Eddie. "Parenting stress in family with autistic individual". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1994. http://hub.hku.hk/bib/B29689430.

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Al, Kandari Mohammad Taleb M. "Parenting an autistic child in Kuwait Kuwaiti mothers' voice and experiences with children labeled autistic /". Related electronic resource:, 2006. http://proquest.umi.com/login?COPT=REJTPTU0NWQmSU5UPTAmVkVSPTI=&clientId=3739.

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14

Lam, Ling. "Raising an autistic child: parents' self-guides, emotional reactions, regulatory focus and commitment in child-training". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1998. http://hub.hku.hk/bib/B29725628.

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15

Brogan, Clare A. "The diagnosis of children with autistic spectrum disorders : implications for parents". Thesis, Glasgow Caledonian University, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.313177.

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16

Dunham, Wendi Marissa. "Understanding the Stressors of Low Socioeconomic Rural Parents of Autistic Children". ScholarWorks, 2015. https://scholarworks.waldenu.edu/dissertations/1845.

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Parents of children with autism spectrum disorder (ASD) often exhibit high parental stress which may be caused by parent-child behaviors, child behaviors, and parent distress. Awareness and understanding of ASD is critical for parents and educators to connect students with support services and resources. The purpose of this bounded, descriptive case study was to identify perceived parental stressors and to determine the primary stressors of parents with low socioeconomic status who are raising a child with ASD in a rural area. The foundation of family systems theory framed this study. Ten parents raising a child with ASD were purposefully selected and volunteered to participate in this study. The quantitative data were collected using the Parental Stress Index-Short Form, a 36-item Likert scale with items related to parent-child dysfunctional relationships, parenting distress, and child behavior. Descriptive analysis determined which domain and items were most stressful and were the basis for developing 6 semistructured interview questions. Interview data were open-coded and analyzed thematically to identify the greatest stressors to parents. Based on these findings, it is recommended that school personnel coordinate an autism support group to include educators, parents of children with ASD, and professional service providers to share formal and informal supports within the school district and the community. These endeavors may contribute to positive social change by providing parents and educators access to resources and therapeutic and social supports, thus allowing students with ASD to receive appropriate and timely support and to reduce parental stress.

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17

Liden, Timothy Allen. "Parent Partnership: Towards a Constructional Approach to Improving the Life of Parents with Children with Autism". Thesis, University of North Texas, 2015. https://digital.library.unt.edu/ark:/67531/metadc804904/.

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Parents with children diagnosed with autism face a variety of stressors. The typical approach to dealing with these stressors is pathological which focuses on the problem by attempting to eliminate or alleviate the stressors through counseling, behavioral therapy, tutoring, and/or drugs. The purpose of the current study was to assess an alternative approach, a constructional one, which focuses on solutions by teaching 3 parents to analyze their life, formulate goals, and develop programs to reach their goals building off of their strengths and assets. The by-product is the reduction or elimination of the stressors. The results suggest that the use of a constructional program is very effective in helping parents develop a new repertoire that will ultimately improve their overall quality of life.

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Yeung, Sin-ming. "An exploratory study of flexibility of emotional expression, stress and psychological well-being of parents of ASD children". Click to view E-thesis via HKUTO, 2006. http://sunzi.lib.hku.hk/hkuto/record/B37105346.

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楊先鳴 e Sin-ming Yeung. "An exploratory study of flexibility of emotional expression, stress and psychological well-being of parents of ASD children". Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2006. http://hub.hku.hk/bib/B37105346.

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20

Cashin, Andrew. "A hermeneutic phenomenological study of the lived experience of parenting a child with autism /". Electronic version, 2003. http://adt.lib.uts.edu.au/public/adt-NTSM20040802.155323/index.html.

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21

Jonovich, Sarah Hildebrand. "Association between parenting behaviors, social skills, and anxiety in children with high-functioning autism spectrum disorders /". Connect to full text in OhioLINK ETD Center, 2007. http://rave.ohiolink.edu/etdc/view?acc_num=toledo1182518785.

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22

Gerbitz, Mindy Lee. "The correlation between family cohesion and success in autistic treatment". CSUSB ScholarWorks, 2007. https://scholarworks.lib.csusb.edu/etd-project/3125.

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This research project offered an overview of Autistic spectrum disorder and discussed the need for research regarding the family's role in treatment. The treatment framework examined in this research project was Applied Behavioral Analysis. The study took place at the University Center for Developmental disabilities (UCDD), located at California State University San Bernardino.

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23

Goettl, Elizabeth J. Ala'i-Rosales Shahla S. "The emergence of joint attention in a naturalistic parent training program". [Denton, Tex.] : University of North Texas, 2008. http://digital.library.unt.edu/permalink/meta-dc-6104.

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24

Hanekom, Leché. "Resilience in families with a child living with Autism Spectrum Disorder". Thesis, Nelson Mandela Metropolitan University, 2008. http://hdl.handle.net/10948/973.

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In recent years the number of studies on resilience emerging within the field of positive psychology has increased. However, such studies are limited within the South African context and so the proposed study aims to explore and describe the factors that facilitate adjustment and adaptation in South African families living with Autism Spectrum Disorder. McCubbin, McCubbin and Thompson (2001) developed the Resiliency Model of Family Stress, Adjustment and Adaptation which were used to conceptualise the family’s adaptation. Mothers (n = 19) from 19 families participated in the study. The families consisted of at least three members, of which two are parents and one a child younger than 18 years of age that has been diagnosed with Autistic Spectrum Disorder. A combination of non-probability purposive sampling and snowball sampling was used to select participants. The study had an exploratory and descriptive aim and employed triangulation of method, including both qualitative and quantitative data collection procedures. A biographical questionnaire and the following seven structured paper-and-pencil questionnaires were used: the Family Attachment and Changeability Index 8 (FACI8), the Family Crisis-oriented Personal Evaluation Scales (F-COPES), the Family Hardiness Index (FHI), the Family Problem-solving Communication (FPSC), the Family Time and Routine Index (FTRI), the Relative and Friend Support (RFS), and the Social Support Index (SSI). Descriptive statistics were used to describe the biographical information. Qualitative data were analysed by means of content analysis. Quantitative data were manipulated by means of correlation and regression analysis. The results from the quantitative analysis indicate three significant positive correlations with the FACI8. These variables were the family hardiness (measured by FHI), family problem-solving communication (measured by the FPSC), and family time and routines (measured by the FTRI). The findings from the qualitative analysis point out that social support, the spousal relationship and family time, togetherness and routines are the most important strength factors that contribute to the family’s adjustment and adaptation. Even though this study had a small sample size and several other limitations, the findings of this study could still assist in guiding specialised institutions toward providing more comprehensive information and support to families living with a child diagnosed with Autism Spectrum Disorder. This study also contributes to the studies on family resilience within a South African context.

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Duffy, Kathleen M. "Filial therapy a comparison of child-parent relationship therapy and parent-child interaction therapy /". Muncie, Ind. : Ball State University, 2008. http://cardinalscholar.bsu.edu/747.

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26

Tams, Rachel. "Parents' experiences and perceptions of autism : a qualitative study". Thesis, Cardiff University, 1998. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.327303.

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27

Hines, Monique Avril. "Living with autism : a narrative analysis of older parents' experiences". Thesis, Faculty of Health Sciences, 2009. http://hdl.handle.net/2123/10233.

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28

Linden, Paola Maria. "Children with autism disorder receiving applied behaviour analysis therapy : parents’ experiences". Stellenbosch : Stellenbosch University, 2012. http://hdl.handle.net/10019.1/71781.

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Thesis (MEdPsych)--Stellenbosch University, 2012.
Bibliography
ENGLISH ABSTRACT: The purpose of this study was to explore the experiences of parents who have a child previously diagnosed with autistic disorder who is following or has in the past followed an intensive Applied Behaviour Analysis programme. Parents willingly participated in this research study. The aim of this study was to explore parents' experiences and the various challenges they face. This study also focuses on support and coping strategies experienced by parents. Parents were also asked to provide ideas for support strategies, coping strategies and advice to other parents who may be embarking on a similar journey. A literature review was conducted in order to obtain perspective on research conducted in this field. I fulfilled the dual role of researcher and trainee educational psychologist. The interpretive paradigm was chosen as the framework for this study and the data was gathered by means of semi-structured interviews and written reflections. This research report describes a variety of experiences that parents underwent and the repercussions thereof. Suggestions were made and parents shared advice and support strategies to help other parents who have a child with autism who may decide to embark on an intensive ABA programme.
AFRIKAANSE OPSOMMING: Die doelwit van hierdie studie was om die ondervindinge van ouers met 'n kind wat voorheen met outistiese versteuring gediagnoseer is en wat tans of in die verlede 'n intensiewe Toegepaste Gedrags Analise program voltooi het, te verken. Ouers het vrywillig aan hierdie navorsingsprojek deelgeneem. Die mikpunt van die projek was om die ouers se ervaringe en die verskeie uitdagings wat hulle in die gesig staar, te ondersoek. Hierdie studie fokus ook op ondersteuning en hanteringstrategieë wat deur ouers ervaar word. Ouers is ook gevra om ondersteuningstrategieë, hanteringstrategieë en advies te bied aan ander ouers wat dalk 'n soortgelyke reis sal deurmaak. 'n Literatuuroorsig is gedoen ten einde die perspektief van navorsing wat op hierdie gebied gedoen is, te verkry. Ek het die dubbele rol van navorser en leerling opvoedkundige sielkundige gevul. Die interpretatiewe paradigma is gekies as die raamwerk vir hierdie studie. Die ervaringe is vanuit semi-gestruktureerde onderhoude en geskrewe refleksies versamel. Hierdie navorsingsverslag beskryf 'n verskeidenheid ervaringe wat die ouers deurgemaak het, asook die gevolge daarvan. Voorstelle is gemaak en advies en ondersteuningstrategieë is deur ouers gedeel om hulp te verleen aan ander ouers van 'n kind met outisme wat 'n intensiewe ABA program gaan begin.

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Fish, Wade W. "Perceptions of parents of students with autism towards the IEP meeting". Thesis, University of North Texas, 2004. https://digital.library.unt.edu/ark:/67531/metadc4709/.

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The purpose of the study was to investigate how parents of students with autism perceived individualized education program (IEP) meetings. I determined factors that contributed to the belief held by parents that their children were or were not being properly served by IEP meetings. Parental relationships with educators, IEP meeting experiences, IEP outcomes, and treatment by educators were revealed through participant input. Parents were asked to share their experiences of previous IEP meetings. Additionally, parents provided input regarding practices that school districts could take to improve IEP meetings, and actions that parents could take to serve as better advocates for their children. Research findings indicated that parents did not perceive themselves as being treated as equals during IEP meetings. Parents believed that their input was not valued or welcomed by educators. Not having an equal voice toward their child's education prevented parents from positively influencing outcomes in their child's IEP meetings in terms of obtaining quality services and building positive relations with educators. Parents further revealed that educators failed to implement proper IEP protocol. According to parents, student objectives agreed upon in IEP meetings were often not always fully implemented for students receiving special education services. Research findings concluded that parents new to the IEP process often experienced difficulty understanding special education law, and were unaware of services that school districts should provide for their children.Suggestions for improving IEP meetings include: educators valuing parents as equal partners during IEP meetings, educators properly adhering to IEP objectives set forth in IEP meetings, and both educators and parents taking measures to becoming more knowledgeable of special education law and the IEP process.

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Hunt, Nina Marie. "A Training Package for Parents and their Toddlers with Autism: Observed Changes in Parent Teaching Episodes, Child Turn Taking and Social Attending, and Parent-Child Engagement". Thesis, University of North Texas, 2015. https://digital.library.unt.edu/ark:/67531/metadc801880/.

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Research has shown that parents of children with autism report higher stress than parents of children with other developmental disabilities. It has been suggested that parent training programs, specifically naturalistic social-communication training, can reduce parental stress and enhance the quality of the parent-child relationship. Although the development of a multilevel assessment has been suggested, much of the research in this area has relied on measures of parent implementation fidelity and specific child target skills such as vocal communication, eye contact, and joint attention. Few have directly measured the parent-child interaction. The purpose of the current study is to examine the effects of an in-home parent training package for toddlers with autism on parent-child social interactions. Within this package, parents are taught to attend to contextual variables, to arrange the environment to set the occasion for child responding, to respond immediately to targeted child approximations, and to respond in ways that are mutually reinforcing, social, and fun. Data were collected during 5-min video-taped assessments, on the number of parent teaching episodes, child target skills (turn taking and social attending), engagement, and synchronous engagement. Results were evaluated in a multiple baseline design across two parent-child dyads and indicated increases in all measures. This study contributes to the current discussion on toddler parent-training programs and extends it in a way that highlights the benefits of using a multi-level assessment to measure the parent-child interaction.

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31

Swanepoel, Yolandi. "Primary caregivers' experience of raising children with autism: a phenomenological perspective". Thesis, Rhodes University, 2005. http://hdl.handle.net/10962/d1002576.

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Autism occupies an extreme position among childhood pathologies due to its severity, duration and impact on the family. In this qualitative study, four primary caregivers of autistic children were interviewed regarding their experiences of the diagnostic process, their post-diagnostic adjustment, and how helping professionals can improve their service rendering to these families. This study utilised a phenomenological approach to look at primary caregivers as the best-informed authority to explore and describe their lived realities and experiences of raising their autistic children in South Africa. The rationale for a phenomenological approach in this study is that such an interpretative inquiry enables material to be collected and analysed within the specific context of the subjective realities of primary caregivers of autistic children in South Africa. The researcher utilised semi-structured, in-depth, face-to-face interviews as method of data collection. Each participant was interviewed over the course of three separate interviews. The themes and categories that resulted from a content analysis of the material were grouped into two broad fields of experience, namely: (1) experiences surrounding the diagnostic process; and (2) the pervasive influence of autism on different areas of family life. In terms of experiences surrounding children’s diagnosis, four themes were identified: (1) Being a new parent and making sense out of chaos; (2) Responsibility and blame; (3) Confusion and disillusionment during early experiences with helping professionals; and (4) Feelings about the diagnosis. The pervasive influence of autism on different areas of family life includes: (5) Strained family relationships; (6) Challenges of behaviour management and disciplining the autistic child; (7) Challenges of finding suitable resources for education and day-care; and (8) Maintaining the family unit and doing things as a family.

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32

Goin, Robin P. "Parental reports of the development of autism in their children : the relevance of regression, comorbidity, and genetics in the detection of early characteristics /". Online version:, 2003. http://hdl.handle.net/10156/1735.

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Thesis (Ph. D.)--Virginia Commonwealth University, 2003.
Prepared for: College of Humanities and Sciences. Includes bibliographical references (leaves 127-138). Also available online via the internet.

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Haynes, Callie L. "Perceptions of parents on sensory integration therapy and children with autism". Honors in the Major Thesis, University of Central Florida, 2004. http://digital.library.ucf.edu/cdm/ref/collection/ETH/id/337.

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This item is only available in print in the UCF Libraries. If this is your Honors Thesis, you can help us make it available online for use by researchers around the world by following the instructions on the distribution consent form at http://library.ucf.edu/Systems/DigitalInitiatives/DigitalCollections/InternetDistributionConsentAgreementForm.pdf You may also contact the project coordinator, Kerri Bottorff, at kerri.bottorff@ucf.edu for more information.
Bachelors
Education
Education

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34

Broome, Jessica L. Ala'i-Rosales Shahla S. "Toward a systematic method of evaluating favorable conditions in a parent training program the pursuit of happiness /". [Denton, Tex.] : University of North Texas, 2007. http://digital.library.unt.edu/permalink/meta-dc-3995.

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35

Horak, Alicia. "Resilience factors in low-income families with an autistic child". Thesis, Nelson Mandela Metropolitan University, 2017. http://hdl.handle.net/10948/16033.

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Autism Spectrum Disorder (ASD) encompasses a group of life-long neurodevelopmental disorders. It is an enormous challenge to care for someone with ASD. The majority of people with ASD will need life-long support from family members and will not be able to function independently in society. This places emotional and financial strain on a family. There are many low-income families in South Africa with autistic children who cannot afford specialised intervention. It has been estimated that 135 000 autistic children are not getting the specialized education they need. Despite not receiving the needed support, there are many low-income families who remain resilient after their child is diagnosed. This study aimed to explore how these low-income families remain resilient. Qualitative data was gathered using in-depth, semi-structured interviews conducted in English and Afrikaans; depending on the participant’s language of preference. Six participants were recruited with the help of professionals in a local community in Cape Town, Western Cape. The data obtained was transcribed and analysed through thematic analysis. Lincoln and Guba’s model (Krefting, 1990) was used to determine the trustworthiness of the data. The three themes that emerged from the study were (1) parents’ response to the diagnosis of their child, (2) the resources parents found helpful in their immediate environment and (3) the specific coping skills that parents use to remain resilient. Walsh’s family resilience framework as well as the Resiliency Model of Family Stress, Adjustment and Adaptation (The Resiliency Model) of McCubbin and McCubbin were used to understand how participants adjusted to their circumstance and remained resilient. This study provides a more in-depth understanding of the resilience factors of families with a child with ASD in a resource-limited setting in the Western Cape.

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Ewing, Sarah A. Ala'i-Rosales Shahla S. "Measuring indices of happiness in a parent training program". [Denton, Tex.] : University of North Texas, 2008. http://digital.library.unt.edu/permalink/meta-dc-6114.

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Giglio, Cheryl P. "Accessibility of animal-assisted therapy for children with autism a parent's perspective : a project based upon an independent investigation /". View online, 2010. http://dspace.nitle.org/handle/10090/13384.

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Ben, Chaabane Delia B. "The effects of parent implemented training on improvisation of mands by children with autism". Columbus, Ohio : Ohio State University, 2007. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=osu1172144721.

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39

Kissel, Susan. "Parents' perceptions of the severity of their child's autistic behaviors and differences in parental stress, family functioning, and social supports". Xavier University / OhioLINK, 2010. http://rave.ohiolink.edu/etdc/view?acc_num=xavier1394728371.

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40

Woodward, Debbie Louise. "(A) Views to autism held by parents and clinicians; (B) attitudes towards adults with mental illness". Thesis, University of Birmingham, 1994. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.341661.

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41

FIGUEIREDO, CAROLINA SALVIANO DE. "A STUDY ON EARLY INTERVENTION PROGRAMS AND ENGAGEMENT OF PARENTS AS COTHERAPISTS FOR AUTISTIC CHILDREN". PONTIFÍCIA UNIVERSIDADE CATÓLICA DO RIO DE JANEIRO, 2014. http://www.maxwell.vrac.puc-rio.br/Busca_etds.php?strSecao=resultado&nrSeq=29057@1.

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PONTIFÍCIA UNIVERSIDADE CATÓLICA DO RIO DE JANEIRO
COORDENAÇÃO DE APERFEIÇOAMENTO DO PESSOAL DE ENSINO SUPERIOR
PROGRAMA DE SUPORTE À PÓS-GRADUAÇÃO DE INSTS. DE ENSINO
Estudos apontam para a importância dos pais como co-terapeutas no tratamento de crianças com o diagnóstico de Transtorno do espectro do autismo. Ao revisarmos algumas das principais pesquisas que preocupam-se com o engajamento dos pais na terapia, podemos observar melhoras significativas, como: aumento da generalização das habilidades aprendidas, melhora significativa do contato afetivo, aumento da atenção compartilhada e principalmente, melhora da comunicação verbal e não verbal, indicando a eficácia da inclusão dos pais na terapia. Por ser a comunicação a principal área de intervenção, citaremos o desenvolvimento da comunicação em crianças típicas e nas crianças autistas. Modelos como o ESDM (Early Start Denver Model/Modelo Denver de intervenção precoce; Rogers e Dawson, 2010) e o PRT (Pivotal Response Treatment/Tratamento de Respostas Pivôs; Koegel e Koegel, 2006) consideram importante e necessário o treinamento destes pais para um melhor desenvolvimento das crianças. Ambos utilizam técnicas comportamentais e desenvolvimentistas para estimularem habilidades sociais, comunicativas e cognitivas. Por isso, tornou-se necessário citarmos os dois tipos de abordagens. O objetivo deste estudo é fazer uma pesquisa bibliográfica, realizando uma revisão teórica das metodologias citadas e de pesquisas que utilizam estas metodologias para o treinamento de pais como co-terapeutas de seus filhos autistas. Avaliar a eficácia da participação destes pais no tratamento de seus filhos e propor uma intervenção baseada no grupo de pais, serão objetivos importantes. Grupos de treinamento e de apoio são apresentados como sugestões para que os pais sejam orientados e também apoiados.
Studies points to the importance of parents as co-therapists in the treatment of children diagnosed with autism spectrum disorder. On reviewing some of the major researches that are concerned with the engagement of parents in therapy, we observed significant improvements, such as increase of the generalization of skills learned, significant improvement of affective contact, increase of the shared attention and especially a greater verbal and nonverbal communication, indicating the effectiveness of the inclusion of parents in therapy. For communication to be the main area of intervention, we will cite the development of communication in typical children and in children with autism. Models such as the ESDM ( Early Start Denver Model; Rogers and Dawson, 2010) and PRT (Pivotal Response Treatment; Koegel and Koegel, 2006) consider important and necessary training of these parents for a better development of children. Both use behavioral and developmental techniques to stimulate social, communicative, and cognitive skills. Therefore, it became necessary to cite these two kinds of approaches. The purpose of this study is to do a bibliographic research, making a theoretical review of the above methodologies and researches, using these models for training parents as co-therapists for their autistic children. Evaluate the effectiveness of the involvement of these parents to treat their children and propose an intervention based on the parents group, will also be important objectives in this study. The proposal for a group of parents is presented to motivate their engagement in the treatment of these children and increase the quality of social and affective interactions. Groups of training and support are provided as suggestions for parents are also advised and supported.

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Crone, Regina M. "Comparing the Effects of Home Versus Clinic-Based Parent Training for Children with Autism". Thesis, University of North Texas, 2010. https://digital.library.unt.edu/ark:/67531/metadc28408/.

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Abstract (sommario):

Research with parents on managing child problem behavior typically measures either child or parent behavior. This study was designed to evaluate the effectiveness of training parents to implement a function-based behavior intervention plan (BIP) in a non-trained natural environment utilizing a Multiple Probe Design across Participants. Participants included four parent-child dyads. Measurement variables included parents' use of effective and ineffective strategies and child problem behavior. Intervention involved training parents to understand and implement the BIP using effective strategies, modeling the effective procedures, and providing feedback following parent implementation of procedures. Results showed that the intervention was very effective in promoting skill generalization of parents and decreasing child problem behavior. The findings have implications for research and clinical practice.

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Van, der Walt Kerry-Jan. "Resilience in families with an autistic child". Thesis, Link to the online version, 2006. http://hdl.handle.net/10019/1260.

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Puglisi, Annette. "Parents' perceptions of the gluten-free casein-free diet for their children with autism". Morgantown, W. Va. : [West Virginia University Libraries], 2005. https://eidr.wvu.edu/etd/documentdata.eTD?documentid=4277.

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Thesis (M.S.)--West Virginia University, 2005.
Title from document title page. Document formatted into pages; contains v, 49 p. Vita. Includes abstract. Includes bibliographical references (p. 38-42).

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Newcomer, Andrea L. Ala'i-Rosales Shahla S. "A systematic replication of the family connections parent-toddler training program". [Denton, Tex.] : University of North Texas, 2009. http://digital.library.unt.edu/permalink/meta-dc-9921.

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Ogorman, Meranda Mae. "The Effects of a Parent Training Program that is Responsive to Current Repertoire and Affect". Thesis, University of North Texas, 2016. https://digital.library.unt.edu/ark:/67531/metadc849784/.

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Social deficits are one of the defining symptoms of autism spectrum disorder and affect a child’s ability to build relationships with others. These deficits put children with autism at a disadvantage when most of their world is focused on building connections with others – family, friendships, and community ties. Sunny Starts, a service-learning project, was created to specifically meet the needs of families with young toddlers with autism. The primary focus of Sunny Starts is to enhance the quality of the parent-child relationship by teaching parents a basic teaching interaction and to arrange the child’s environment in ways that are mutually reinforcing. The purpose of this experiment is to study the effects of the Sunny Starts DANCE training package, a responsive parent training program, on three levels of parent and child behaviors: 1) teaching episodes, 2) turn taking, social attending, vocal requests, and 3) synchronous engagement. Participants included two parent-child dyads. Parent training included 5-minute video assessments, video review, descriptions, rationales, modeling, practice, and feedback. The effects of the parent training were evaluated using a concurrent multiple baseline across participants. Results indicate parent teaching episodes and child behaviors (turn taking, social attending, and verbal requests) increased during the intervention phase. The duration of parent-child synchronous engagement maintained at high levels and slightly increased.

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Goettl, Elizabeth J. "The emergence of joint attention in a naturalistic parent training program". Thesis, University of North Texas, 2008. https://digital.library.unt.edu/ark:/67531/metadc6104/.

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Behaviors related to joint attention have been described by behavior analysts and developmental psychologists alike as having a distinctly social function. Children with autism often do not emit these behaviors. Research on the collateral effects of teaching joint attention suggests far reaching consequences. Given the reported benefits of using these behaviors, and the theoretical descriptions of their function, we assessed joint attention as a collateral effect of a naturalistic parent training program. Data suggest that although these behaviors were not directly targeted, they increased in all 3 children. Implications of parent training goals and child intervention targets are discussed in terms of a behavior analysis of joint attention and child development.

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Eleftheriades, Amelia L. "Theory of mind, central coherence and executive function in parents of children with autistic spectrum disorder". Thesis, University of East Anglia, 2001. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.246968.

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Introduction: This study investigates cognitive theory of autistic spectrum disorder. Based on the argument that the disorder may have a genetic component to its aetiology, cognitive characteristics similar to those associated with the condition are hypothesised to be evident in the parents. Theory of mind, central coherence and executive function are therefore investigated. Relationships between these three areas of cognitive function are also explored. Methodology: Nineteen parents of children with high functioning autism or Asperger syndrome were compared with 18 gender-matched parents of normally developing children, on measures of theory of mind, central coherence, and executive function. Results: Executive function was significantly poorer in the parents of children with autistic spectrum disorder, than in the control group; but theory of mind and central coherence were similar across the two groups. Overall, 52.6 % of the autism group and only 5.6 % of the control group fell below age and IQ weighted cut-off scores on the Hayling and Brixton tests of executive dysfunction, A number of significant correlations between test measures were found. Discussion : These findings provide further support for the genetic argument and the executive function theory of autism, but fail to support the theory of mind or central coherence models. Possible interpretations of the significant associations between test scores were considered in the light of previous findings. Methodological issues were considered important. Limits of the executive dysfunction model as a stand-alone theory of autistic spectrum disorder were also highlighted. Ideas regarding clinical relevance and future research were discussed.

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Ritchie, Tiffany L. "The loss of a dream : parents raising an autistic child". Thesis, Manhattan, Kan. : Kansas State University, 2008. http://hdl.handle.net/2097/1231.

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Vargas, Liliana. "Autism and family functioning: The role of parental coping". CSUSB ScholarWorks, 2006. https://scholarworks.lib.csusb.edu/etd-project/3092.

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The present study employed a family systems approach to investigate the effects of level of autism severity on family functioning as mediated by parental coping. Participants were mothers of children with autism who were volunteers in an ongoing research program conducted within a university-based treatment center (N=146). Gilliam Autism Rating Scale, Second Edition (GARS-2) scores were available for all of the children and, as part of the broader program, parents completed the Coping Scale for Adults, which assesses a range of coping styles, and the Family Environment Scale, which provides positive and negative indicators of family functioning. Data analyses indicated that nonproductive coping significantly mediated the relationship between level of autism severity and family cohesion and conflict. Results also suggested that level of autism severity was negatively related to family conflict. The study further examined the use of specific coping styles on family cohesion and conflict. Evaluation of findings suggest that parents who have a child diagnosed with severe autism may be employing maladaptive coping strategies, such as wishful thinking, blaming one's self, or avoiding the situation. Implications for intervention approaches for individuals working with families of children with autism are suggested.

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