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Articles de revues sur le sujet « Partnership of care givers/family »

Auteur : Grafiati

Publié le 5 avril 2025

Mis à jour le 31 juillet 2025

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Afzal Javed. "Developing partnership with patients and carers: A need of the time for mental health service delivery." Journal of the Pakistan Medical Association 74, no. 7 (2024): 1217–18. http://dx.doi.org/10.47391/jpma.24-51.

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Contemporary practice of psychiatry is witnessing a radicle shift in the care of mentally ill. As compared to the 20th century, we are now moving towards community psychiatry and large mental hospitals and asylums are closing with a shift to manage these patients closer to their homes. Following these changes in mental health care, current literature provides growing evidence for developing partnership with patients, carers and family members in the delivery of mental health services. While this approach is appreciated for improving the quality of life of patients, there has also been some con

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Sloan, Danetta, Valerie Cotter, Quincy Samus, et al. "My Faith Gives Me Strength: Black Churches Supporting Dementia Care Partners." Innovation in Aging 5, Supplement_1 (2021): 516. http://dx.doi.org/10.1093/geroni/igab046.1995.

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Abstract Inequities in dementia care require an in depth understanding of dementia care partner life experiences, care needs, sources of support and ways to improve those experiences at the community level. In partnership with Black Churches in Baltimore, MD and rural Pennsylvania, we facilitated three focus groups (n=30) with Black dementia care partners to understand: 1) unique dementia care-related needs and challenges, and 2) how the church can be a supportive care partner. Participants noted three overarching themes related to challenges and needs: 1) unique challenges in caregiving - ass

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Basukala, Sulochana. "Care giver burden among spouse of psychiatric patients attending psychiatry outpatient department of a teaching hospital." Journal of Patan Academy of Health Sciences 6, no. 1 (2019): 72–77. http://dx.doi.org/10.3126/jpahs.v6i1.27084.

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Introductions: Caregiver burden in mental illness is a global issue. Burden is more significant and high among spouse than other caregivers. Spouse face illness-specific burdens of feeling powerlessness, fear, marital stress and partnership and family roles. Methods: A cross-sectional study was conducted in outpatient department of psychiatry in Patan hospital, Patan Academy of Health Sciences, Nepal, from 26th August to 23rd September, 2018. Non-probability purposive sampling technique was used. Data was collected from spouses of psychiatric patients by face-to-face interview using Burd

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Maffoni, Marina, Francesco Zanatta, Ilaria Setti, Ines Giorgi, Laura Velutti, and Anna Giardini. "SMiLE to Life: Meaning in life in healthcare professionals working in palliative care and rehabilitation medicine: SMiLE to Life: Meaning in life in healthcare professionals." La Medicina del Lavoro 112, no. 5 (2021): 387–400. https://doi.org/10.23749/mdl.v112i5.11408.

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Background: In the healthcare landscape, various protective factors are identified, such as meaning in life (MiL), namely what gives sense to life events. However, little is known about this construct in the healthcare population. Objectives: To describe MiL among healthcare professionals employed in palliative care and neuro-rehabilitation medicine, unveiling possible differences related to medical specialty and socio-demographic characteristics. Methods: In this cross-sectional and multicentre study, palliative care and neuro-rehabilitation professionals were recruited. MiL was evaluated wit

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Heip, Tine, and Jochen Van den steen. "Person centred care: good practises in an ambulatory mental healthcare setting." International Journal of Integrated Care 23, S1 (2023): 167. http://dx.doi.org/10.5334/ijic.icic23060.

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Introduction: BW IPSO is an organisation that started out as a variety of small organisations in the late 1970. By offering people with a mental illness the possibility to live in sheltered housing, with the guidance of mental healthcare workers, the organisation intended to improve the quality of life for this population. Over the years the organisation grew, merged and became BW IPSO. We now offer 118 places of supported living, going from group homes, to small appartements provided by the organisation, as well as guiding people in their own (social) home. Description: Throughout the y

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NAKAGAWA, YOSHINORI, RINA YAMADA, and SEIGO NASU. "Characteristics of care-givers and care recipients influencing the impact of paid care services on family care-giver burdens." Ageing and Society 34, no. 8 (2013): 1314–34. http://dx.doi.org/10.1017/s0144686x13000081.

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ABSTRACTIn the last few decades, a number of researchers have attempted to identify the effects of paid care services on alleviating the sense of burden of family care-givers, especially care-givers to people with dementia. However, few researchers have considered the possibility that paid care services alleviate the sense of burden only among those care-givers who possess specific characteristics. Without considering this point, the impact of paid care services would be averaged over an entire sample, and one might overlook the effects on these specific care-givers. With this background, this

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Ehrlich, Ulrike, Nadiya Kelle, Daniela Klaus, and Katja Möhring. "How did the COVID-19 pandemic impact the wellbeing of family care-givers? A longitudinal study of older adults in Germany." Ageing & Society 44, no. 7 (2024): 1533–50. https://doi.org/10.1017/S0144686X22000873.

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Previous research was not able to identify an effect of the COVID-19 pandemic on family care-givers' wellbeing due to cross-sectional data structures, care-giver-specific samples or non-probability sampling designs. In this article, by drawing on longitudinal data from a random and representative sample of the German population aged 40 and older, <strong>the German Ageing Survey (DEAS) 2017 and 2020/21</strong>, we overcome methodological limitations of previous research. We examine the impact of the COVID-19 pandemic on the wellbeing (life satisfaction, depressive symptoms, loneliness) o

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DE LA CUESTA-BENJUMEA, CARMEN, and BRENDA ROE. "The experience of family care-givers and migrant paid care-givers' relief of burden: a contrasted qualitative analysis." Ageing and Society 34, no. 7 (2013): 1219–42. http://dx.doi.org/10.1017/s0144686x13000044.

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ABSTRACTOlder people are increasingly being cared for in the community across Europe. Dependent care in Spain largely remains a private issue involving family carers and migrant women from developing countries. Qualitative research on respite care has contributed to our understanding of respite as a subjective experience. Nonetheless, how care-givers relieve the burden of care is still not fully understood. Migrant care-givers are present in family life but their need for rest remains unseen. The aim of the study presented in this paper was to contrast family care-givers and migrant care-giver

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Thrysøe Hansen, L., L. I. Nielsen, P. Gazerani, and L. Petrini. "“What about me?”: A qualitative explorative study on perspectives of spouses living with complex chronic pain patients." Scandinavian Journal of Pain 16, no. 1 (2017): 173. http://dx.doi.org/10.1016/j.sjpain.2017.04.027.

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Abstract Aims Being a close relative of a chronic pain patient affects family life. No study has been carried out in Denmark to explore relatives’ life experiences and challenges while living with complex chronic pain patients. Hence, the aim of the study was to investigate the experiences of living with chronic pain patients from their spouses’ perspectives. In particular, this study focused on how spouses describe: (i) their everyday tasks and roles as a spouse; (ii) the types of changes and challenges that the pain condition brings into their partnership lives; (iii) a gender difference in

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Fisher, Alinka, Michelle Bellon, Sharon Lawn, and Sheila Lennon. "Identifying Current Practices and Supports in Behaviour Management Following ABI in South Australian Community Settings: A Delphi Study." Brain Impairment 18, no. 2 (2017): 211–25. http://dx.doi.org/10.1017/brimp.2016.36.

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Objectives: To consider the strategies currently used by family care givers to manage challenging behaviour in the community following ABI, and to identify what supports are available that support family care givers in addressing this issue.Research design: Delphi study.Methods: Service providers (n = 8) and family care givers (n = 3) completed a three-round Delphi process with the aim of reaching consensus (75% agreement) regarding research objectives. Round 1 consisted of an open-ended questionnaire in which items were identified; these items were then rated in Round 2 and 3 using a Likert s

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Huang, Chiung-Yu. "Informal Female Caregivers of Older Adults with Dementia in Taiwan." Californian Journal of Health Promotion 2, no. 3 (2004): 53–66. http://dx.doi.org/10.32398/cjhp.v2i3.880.

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Family care givers providing a major portion of care giving often experience stress related to the negative consequences for their health. Female care givers often more heavily involved care giving activities than males. Care givers’ gender studies have seldom conducted in Taiwan. The purpose of this study was to explore the relationship of demographic factors and coping on health of female care givers of older adults with dementia in Taiwan. In addition, whether coping mediated or moderated the relationship between stress and care giver’s health was also examined. Lazarus and Folkman’s Stress

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Farberman, Harvey A., Stephen J. Finch, Beverly P. Horowitz, Abraham Lurie, Richard Morgan, and Jaimie Page. "A Survey of Family Care Giving to Elders in New York State: Findings and Implications." Care Management Journals 4, no. 3 (2003): 153–60. http://dx.doi.org/10.1891/cmaj.4.3.153.57524.

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It is estimated that there are 734,400 care giver households in New York State (9.6% [±] 0.8% of all households). Categorization of all care givers on a 5 level “intensity of care” measure reveals that, on average, care givers provide 22.1 hours of care per week. Highest intensity level 5 care givers (9.2% of all care givers), provide, on average, 88 hours of care per week and account for 36.3% of all care giving. The annualized market contribution of all care givers to the NYS health care system is estimated at between $7.5 and $11.2 billion dollars. The combination of care levels 4 and 5 con

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Bagbe, Atinuke, Moses Ayokunle Akanbi, and Sabastine Dekaa Francis. "Disparities in Elderly care Supports during Post-Covid-19 era in Ondo State, Nigeria." International Journal of Advanced Multidisciplinary Research and Studies 4, no. 4 (2024): 868–73. http://dx.doi.org/10.62225/2583049x.2024.4.4.3121.

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The paper examines disparities in elderly care supports during Post Covid¬-19 era in Ondo state Nigeria. A total sample size of 12 family care-givers belonging to age-group 26-53 and 43-68 years were engaged in the two Focus Group Discussions (FGDs). Focus Group Discussions were conducted at different locations of Irele and Okiti-pupa Local Government Areas (LGAs). The data collected from the study areas were analyzed with their contents. The key findings from FGDs are: That the dominated care supports (50.1 percent) received by 6 elderly people (50-80 years) at Irele during Post-Covid 19 era

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Tinker, Cindy. "Vanderbilt-Ingram Cancer Center's & Gilda's Club Nashville: Songs from the Heart." OMEGA - Journal of Death and Dying 67, no. 1-2 (2013): 213–19. http://dx.doi.org/10.2190/om.67.1-2.z.

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Songs from the Heart is an annual palliative care and outreach/support project done in partnership with the Vanderbilt-Ingram Cancer Center Henry Joyce Cancer Clinic and Gilda's Club Nashville. It is a two-evening songwriters' workshop and concert that gives cancer survivors, family members and healthcare professionals the opportunity to tell their story about cancer through the art of music in a safe therapeutic environment. It is a unique project through the art of music helping others of all ages and from all walks of life find healing and hope; as well as an opportunity to give back to oth

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Özen, Yelda. "Body work and later-life care in Turkey: a qualitative study of paid and unpaid carers of older people." Ageing and Society 40, no. 10 (2019): 2106–27. http://dx.doi.org/10.1017/s0144686x19000989.

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AbstractThe ageing population of Turkey has brought later-life care into question. Family care remains most prevalent, but institutional, paid and professional care are increasing. Literature in Turkey has focused on the medical or social policy aspects but not care-givers’ experiences, nor how the care is performed. This study aims to illuminate care-givers’ experiences using qualitative methods, through in-depth interviews in Ankara with 19 care-givers providing home care for people aged 65 and over. Commonalities and differences were revealed among unpaid family care-givers, paid care-giver

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G, Umesh, Asokan T.V., Roselin V, and Sri Santhanakrishnan V. V. "Cross-Sectional Study on Stigma among Care Givers of Patients with Mental Illness in Kanchipuram District, Tamil Nadu." Journal of Evidence Based Medicine and Healthcare 8, no. 28 (2021): 2484–88. http://dx.doi.org/10.18410/jebmh/2021/460.

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BACKGROUND Stigma experienced by caregivers of patients with mental illnesses remains unnoticed. This study was conducted to evaluate the stigma perceived by the care givers of patients with various mental illnesses and the factors associated with stigma. METHODS This cross-sectional study was conducted among the care givers of patients with mental illnesses who accompanied the patients to the outpatient department (OPD) of Psychiatry in Meenakshi Medical College Hospital and Research Institute, from January 2017 to March 2017. A total of hundred care givers were included in the study. All car

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Dalmer, Nicole K. "‘Add info and stir’: an institutional ethnographic scoping review of family care-givers’ information work." Ageing and Society 40, no. 3 (2018): 663–89. http://dx.doi.org/10.1017/s0144686x18001125.

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AbstractFamily care-givers are increasingly expected to find, understand and use information to meet the complex needs of older adults in their care. A significant number of studies, however, continue to report that care-givers’ information needs are unmet. Following Arksey and O'Malley's scoping review framework, I examined 72 articles for the range and extent of available research on the information work done by family care-givers of community-dwelling older adults living with dementia. To untangle the complex relationship between information and care, this scoping review maps out (a) the wa

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COOK, ERICA J., GURCH RANDHAWA, ANDY GUPPY, et al. "Exploring factors that impact the decision to use assistive telecare: perspectives of family care-givers of older people in the United Kingdom." Ageing and Society 38, no. 9 (2017): 1912–32. http://dx.doi.org/10.1017/s0144686x1700037x.

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ABSTRACTIn the United Kingdom (UK), an ageing population met with the reduction of social care funding has led to reduced support for older people marked with an increased demand on family care-givers. Assistive telecare (AT) devices are viewed as an innovative and effective way to support older people. However, there is limited research which has explored adoption of AT from the perspectives of family care-givers. In-depth, semi-structured interviews were conducted with 14 family care-givers of patients who used the Assistive Telehealth and Telecare service in Cambridgeshire, UK. Family care-

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Perlick, Deborah, Robert R. Rosenheck, John F. Clarkin, et al. "Burden experienced by care-givers of persons with bipolar affective disorder." British Journal of Psychiatry 175, no. 1 (1999): 56–62. http://dx.doi.org/10.1192/bjp.175.1.56.

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BackgroundFamily members of patients with schizophrenia frequently report burdens associated with caring for their relatives.AimsWe evaluate the impact of illness beliefs on the burden reported by family care-givers of people with bipolar illness.MethodThe multivariate relationships between patient symptomatology and family illness beliefs and report of burden were examined at baseline among care-givers of 266 patients with Research Diagnostic Criteria-diagnosed bipolar illness who were subsequently followed for 15 months.ResultsAt baseline, 93% of care-givers reported moderate or greater dist

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TSUNAKA, MEGUMI, and JENNY C. C. CHUNG. "Care-givers’ perspectives of occupational engagement of persons with dementia." Ageing and Society 32, no. 4 (2011): 543–60. http://dx.doi.org/10.1017/s0144686x11000365.

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ABSTRACTMeaningful engagement in activity is associated with the maintenance of health and wellbeing, but reduced activity participation is common among persons with dementia. Family care-givers play an important role in engaging their relatives with dementia in activities but little is known about their perception of occupational engagement. This study aimed to examine care-givers’ perception of occupational performance of their relatives from three aspects: person, occupation and environment. Adopting a qualitative methodology, semi-structured and in-depth interviews were conducted with 14 f

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Wells, Y. D., A. F. Jorm, F. Jordan, and R. Lefroy. "Effects on Care-Givers of Special Day Care Programmes for Dementia Sufferers." Australian & New Zealand Journal of Psychiatry 24, no. 1 (1990): 82–90. http://dx.doi.org/10.3109/00048679009062889.

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Two groups of care-givers to dementia sufferers were interviewed to assess their psychological symptoms and the behaviour problems of the dementia sufferers. The first group were using special dementia day care while the second group were about to begin using it. The second group were re-interviewed three months later. Therefore two comparisons could be made; a with/without day care comparison and a before/after admission to day care comparison. Care-givers had a high level of psychological symptoms which were not significantly reduced by using day care. Full-time institutional care did reduce

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Giraldo-Rodríguez, Liliana, Nathalia Guevara-Jaramillo, Marcela Agudelo-Botero, Dolores Mino-León, and Mariana López-Ortega. "Qualitative exploration of the experiences of informal care-givers for dependent older adults in Mexico City." Ageing and Society 39, no. 11 (2018): 2377–96. http://dx.doi.org/10.1017/s0144686x18000478.

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AbstractPopulation ageing and increasing prevalence of chronic diseases and their consequences, changes in family structure and a decrease in the potential pool of family care, increase the need for formal long-term care for older adults in Mexico, and the need to understand the experiences of informal care-givers and how this impacts their social, family and personal conditions. This study investigates the experience of informal care-givers of dependent older adults using a cross-sectional qualitative study with an ethnographic focus. Thematic analysis was performed. The study comprised 48 se

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GUBERMAN, NANCY, JEAN-PIERRE LAVOIE, and IGNACE OLAZABAL. "Baby-boomers and the ‘denaturalisation’ of care-giving in Quebec." Ageing and Society 31, no. 7 (2011): 1141–58. http://dx.doi.org/10.1017/s0144686x11000419.

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ABSTRACTThe North American post-war generation, known as the baby-boomers, has challenged traditional family relations and the sexual division of labour. How do these challenges play out in the face of frail, ill or disabled family members? A study undertaken in Montreal, Quebec, with baby-boomer care-givers aimed to raise understanding of the realities of this group. We met with 40 care-givers for a one and a half-hour qualitative interview to discuss their identification with their social generation, their relationship to care-giving, their values regarding care-giving, and the reality of th

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Bentwich, Miriam Ethel, Ya'arit Bokek-Cohen, and Nomy Dickman. "How figurative language may be related to formal care-givers’ person-centred approach toward their patients with dementia." Ageing and Society 39, no. 12 (2018): 2653–70. http://dx.doi.org/10.1017/s0144686x18000685.

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AbstractPerson-centred care that respects a patient's personhood is the gold standard in dementia care, which is often difficult to achieve given the complexity of caring for people with dementia. This article delves into the narration style of formal care-givers from a variety of ethno-cultural backgrounds in search of linguistic cues that may be related to their emphasis on a person-centred approach to care. A qualitative study, using a discourse analysis of semi-structured interviews with 20 formal care-givers in an institutional setting, was employed. The care-givers fell into three groups

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NAGANATHAN, GAYATHRI, KERRY KULUSKI, ASHLINDER GILL, LIISA JAAKKIMAINEN, ROSS UPSHUR, and WALTER P. WODCHIS. "Perceived value of support for older adults coping with multi-morbidity: patient, informal care-giver and family physician perspectives." Ageing and Society 36, no. 9 (2015): 1891–914. http://dx.doi.org/10.1017/s0144686x15000768.

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ABSTRACTThis study investigated the perceived value of informal and formal supports for older adults with multi-morbidity from the perspectives of patients, care-givers and family physicians. Semi-structured interviews were conducted with 27 patients, their informal care-givers and their family physicians in an urban academic family health team in Ontario. Analysis was conducted using a General Inductive Approach to facilitate identification of main themes and build a framework of perceived value of supports. Participant views converged on supports that facilitate patient independence and ease

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Sun, Qian, Nan Lu, Nan Jiang, and Vivian W. Q. Lou. "Intention to use respite services among informal care-givers of frail older adults in China: the role of care needs change." Ageing and Society 41, no. 1 (2020): 101–20. http://dx.doi.org/10.1017/s0144686x20000628.

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AbstractPopulation ageing in China calls for evidence-based solutions, especially in terms of fulfilling long-term care needs among frail older adults. Respite services are identified as effective resources for alleviating care-giver burden and promoting the wellbeing of both older adults and their family care-givers. However, respite care is often under-used in China. This research aimed to examine factors associated with intention to use respite services among informal care-givers in Shanghai, mainland China. This study was part of the Longitudinal Study on Family Caregivers for Frail Older

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GROOTEGOED, ELLEN, TRUDIE KNIJN, and BARBARA DA ROIT. "Relatives as paid care-givers: how family carers experience payments for care." Ageing and Society 30, no. 3 (2009): 467–89. http://dx.doi.org/10.1017/s0144686x09990456.

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ABSTRACTPayments for care, by which people in need of long-term care directly employ care workers, have been introduced in many European countries. In The Netherlands, care dependants are allowed to use these payments to hire relatives to perform care tasks. Care-givers who are employed by their relatives are in a hybrid position, because they are contracted as employees in the informal setting of a family home and its affective care relationships. This paper reports a qualitative study of relatives' experiences of payments for care and how these affect their care-giving. In-depth interviews w

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Angelin Lavanya and Vishnu Priya. "Assess the attitude and perception regarding mental illness among the care givers of mentally ill patients." International Journal of Research in Pharmaceutical Sciences 10, no. 4 (2019): 3078–82. http://dx.doi.org/10.26452/ijrps.v10i4.1597.

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Mental health is defined as a state of well being in which the individual realizes his or her own abilities, can cope with the normal stress of the life, can work productively and fruitfully and is able to make a contribution towards his or her own community. Mental illness refers to a condition of emotional and mental impairment that disturbs a person’s thinking, mood and ability that relate to others and daily functioning. The aim of the study was to assess the attitude and perception regarding mental illness among the care givers at saveetha medical college and hospital. A quantitative rese

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Ahsan, Rakhshan, Naheed Anwar, Afifa Tanveer, and Hafiza Khushbakhat. "Adaptive Clothing as a Fundamental Castigatory Requirement of Old Patient with Alzheimer." Review of Education, Administration & LAW 1, no. 1 (2018): 13–22. http://dx.doi.org/10.47067/real.v1i1.2.

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Families have vital role in the medical care of Alzheimer's which is most common among the old age people. It I is kind of dementia that fosters problems in the thinking, memory and the incapability to activate modest implementations, or orient clothing to the human body. In such cases family members have vital role for the care of patients. Dressing of Alzheimer`s patient is main tension for care contributors therefore this research discourse the dressing difficulties to Alzheimer`s patient encountered by care givers. A qualitative research method found to explore care givers perception about

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Kahana, Jeffrey, Lawrence Force, and Roger Monthie. "Data From a Mindfulness Program for Family Caregivers to Persons With DD, and Application for Older Individuals." Innovation in Aging 4, Supplement_1 (2020): 508. http://dx.doi.org/10.1093/geroni/igaa057.1640.

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Abstract Parents who care for their children (young and adult) with developmental disabilities face many stressors and challenges. This paper reports on an intervention using mindfulness and cognitive reframing to improve psychological well-being of care-givers. We report on results based on 92 care-givers who participated in the program. An innovative component was utilizing parent care-givers along with trained peer facilitators. The program was conducted over six weeks, with three in person sessions, and three at home web-based sessions. The content emphasized mindfulness practice (meditati

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Kour, Perkash. "Effectiveness of Psychoeducation Programme on Knowledge of Schizophrenia among Care Givers of the Patients with Schizophrenia, Admitted in Selected Hospital of SGR." Trends in Nursing Administration & Education 09, no. 02 (2020): 1–6. http://dx.doi.org/10.24321/2348.2141.202002.

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Background: Schizophrenia is one of the commonly occurring disorders, often causing a high degree of disability to the patients, as well as being stressful to the caregivers. Many people are still unaware that there are effective treatments for schizophrenia. A combination of regular medication, family education and support reduce the relapse rate from 50% to 60%. Psychoeducation interventions provide information to patients and their families as well as provide the tools necessary to cope with the disorder. Aim: The study aimed to find the efficacy of psycho-education on knowledge regarding s

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Wells, Yvonne, and A. F. Jorm. "Evaluation of a Special Nursing Home Unit for Dementia Sufferers: A Randomised Controlled Comparison with Community Care." Australian & New Zealand Journal of Psychiatry 21, no. 4 (1987): 524–31. http://dx.doi.org/10.3109/00048678709158920.

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Applicants for a newly opened special unit for dementia sufferers were randomly allocated to full-time care in the unit or placed on a waiting list and offered periodic respite care in the meantime. All applicants were living in the community at the time of random assignment. Both groups were followed up for three months to assess the effects on the dementia sufferers and on their family care-givers. Care-givers initially had a high level of psychological symptoms, which was greatly reduced after admission of the dementia sufferer to full-time care. By contrast, the care-givers of the communit

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Mohammad, Aysha Saghir, Saba Yaqoob, Atia Ur Rehman, et al. "Anxiety of Caregivers in Telerehabilitation Sessions During Covid 19." Pakistan Journal of Medical and Health Sciences 16, no. 7 (2022): 438–40. http://dx.doi.org/10.53350/pjmhs22167438.

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Introduction: Pandemics affect people in a defeatist manner and become stressful for people with relatives which need specific forms of care and attention. The study was conducted to find out if anxiety prevails among caretakers during the Covid-19 Pandemic as according to the literature review caregivers experience burden and fears related to their care-recipients and telerehabilitation. Material and Methods: The study used cross sectional survey and quantitative research.50 care-givers participated in the research where they filled online questionnaires inspired and derived from care-giver b

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Sharma, Mohit, Priyanka Devgun, and Ashwin Sharma. "Burden of care on family caregivers of patients of gastrointestinal cancers in a tertiary care institute." Indian Journal of Community Health 35, no. 3 (2023): 359–63. http://dx.doi.org/10.47203/ijch.2023.v35i03.020.

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Background: Gastrointestinal tract cancers are one of the leading causes of morbidity and mortality globally and cause family members to become primary caregivers. Method: The observational cross- sectional study was conducted using a pretested questionnaire and BSFC short form scale on 156 primary family care givers of patients suffering from and seeking treatment for cancer of the gastrointestinal tract from June 2021 to May 2022 in a tertiary care institute. Result: Mean age of family caregiver was 48.6 (4.7) years and the majority were female 111 (71.1 %). Average duration of primary care

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Quah, Stella R. "Partnership." International Journal of Health Services 47, no. 3 (2015): 532–49. http://dx.doi.org/10.1177/0020731415614512.

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This study discusses the main barriers to partnership between family and health services in the context of schizophrenia and de-institutionalization (reduction of the length of hospitalization whenever possible and returning the patient to the community) addressed to deal with the increasing costs and demand for health care services. Thus, in de-institutionalization the burden of care is not resolved but shared with the family, under the assumption that the patient has someone—a family caregiver—who can take up the responsibility of care at home. Despite the high burden of care faced by the fa

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SMITH-CARRIER, TRACY, THUY-NGA PHAM, SABRINA AKHTAR, GAYLE SEDDON, MARK NOWACZYNSKI, and SAMIR K. SINHA. "‘It’s not just the word care, it’s the meaning of the word…(they) actually care': caregivers’ perceptions of home-based primary care in Toronto, Ontario." Ageing and Society 38, no. 10 (2017): 2019–40. http://dx.doi.org/10.1017/s0144686x1700040x.

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ABSTRACTThe frail and homebound older adult populations currently experience difficulties accessing primary care in the medical office. Given this fundamental access to care problem, and the questionable care quality that arises when navigating a labyrinthine health-care system, these populations have typically been subject to inadequate primary care. To meet their needs better, growing research stresses the importance of providing comprehensive home-based primary care (HBPC), delivered by an inter-professional team of health-care providers. Family care-givers typically provide the majority of

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AYALON, LIAT. "Family and family-like interactions in households with round-the-clock paid foreign carers in Israel." Ageing and Society 29, no. 5 (2009): 671–86. http://dx.doi.org/10.1017/s0144686x09008393.

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ABSTRACTThis paper reports a study of family and family-like interactions and transfers, or exchanges of goods and resources, between paid, round-the-clock, Filipino home carers and those they care for in a sample of households in Israel. Qualitative interviews about their experiences and attitudes concerning the care role were conducted with 22 family members and 29 Filipino home-care workers. A thematic analysis of the interview data identified three major themes: the structure and internal dynamics of the adapted family or family-like system of care; the role of family members; and the role

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Cebeci, Fatma, Hicran Aydın Bektaş, Gülten Sucu Dağ, and Ebru Karazeybek. "Families as hospital care givers: A pilot in Turkey." Journal of Nursing Education and Practice 7, no. 6 (2017): 27. http://dx.doi.org/10.5430/jnep.v7n6p27.

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Objective: It is a common tradition that families as caregivers have been in the hospital in order to support patients. This study describes the services performed by family caregivers in surgical and medical wards of hospital.Methods: This is a descriptive study. The study includes 442 family caregivers selected by the simple random sampling, who agreed to participate in, and who have been providing care for their relatives at least 48 hours in a university hospital. Data were collected through a questionnaire conducted during face-to-face interviews and were analyzed by descriptive statistic

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Meegoda, MKD Lalitha, Sharaine Fernando, S. Sivayogan, and NOS Atulomah. "EXPLORINGTHE PREPAREDNESS OF FAMILY CARE GIVERS TO PROVIDE CANCER PALLIATIVE CARE." International Journal of Research -GRANTHAALAYAH 7, no. 6 (2019): 18–26. http://dx.doi.org/10.29121/granthaalayah.v7.i6.2019.734.

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Background: Palliative care for pain relief and management of other distressing symptoms of cancer patients specially through non-pharmacological approach by family care givers (FCGs) improves the quality of life of patients. Preparedness of FCGs for this role needs to be explored. Methodology: Descriptive qualitative design was adopted to explore the FCGs readiness on providing cancer palliative care for their cancer survivors. Focus Group Discussions were conducted in public sector, private sector and cancer care institutions which are managed by the Cancer Society in the Colombo area

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MKD, Lalitha Meegoda, Fernando Sharaine, Sivayogan S, and Atulomah NOS. "EXPLORINGTHE PREPAREDNESS OF FAMILY CARE GIVERS TO PROVIDE CANCER PALLIATIVE CARE." International Journal of Research - Granthaalayah 7, no. 6 (2019): 18–26. https://doi.org/10.5281/zenodo.3262110.

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Background: Palliative care for pain relief and management of other distressing symptoms of cancer patients specially through non-pharmacological approach by family care givers (FCGs) improves the quality of life of patients. Preparedness of FCGs for this role needs to be explored. Methodology: Descriptive qualitative design was adopted to explore the FCGs readiness on providing cancer palliative care for their cancer survivors. Focus Group Discussions were conducted in public sector, private sector and cancer care institutions which are managed by the Cancer Society in the Colombo area until

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Flynn, Rachel, and Helen Mulcahy. "Early-onset dementia: the impact on family care-givers." British Journal of Community Nursing 18, no. 12 (2013): 598–606. http://dx.doi.org/10.12968/bjcn.2013.18.12.598.

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Barber, Chris. "Family care-givers: the role of the healthcare assistant." British Journal of Healthcare Assistants 6, no. 9 (2012): 428–31. http://dx.doi.org/10.12968/bjha.2012.6.9.428.

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Thomas, Bino, and Marie M. Nympha. "Care Giver’s Needs in the Process of Cancer Recovery." Artha - Journal of Social Sciences 11, no. 1 (2012): 67. http://dx.doi.org/10.12724/ajss.20.5.

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Goals of work: The aim of the study is to explore the psychosocial needs of persons taking care of family members suffering from cancer. Materials & Methods: An Sixty care-givers participated in the cross sectional study. An interview schedule was used. The care recipients had heterogeneous cancer diagnosis and were hospitalized for at least a month. Main Result: Their Financial needs were the highest followed by informational needs, family needs, personal needs, social needs, psychological needs and spiritual needs. It is in contrast to their studies from the west where psycho

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LITWIN, HOWARD, and CLAUDINE ATTIAS-DONFUT. "The inter-relationship between formal and informal care: a study in France and Israel." Ageing and Society 29, no. 1 (2008): 71–91. http://dx.doi.org/10.1017/s0144686x08007666.

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ABSTRACTThis study examined whether formal care services delivered to frail older people's homes in France and Israel substitute for or complement informal support. The two countries have comparable family welfare systems but many historical, cultural and religious differences. Data for the respondents aged 75 or more years at the first wave of the Survey of Health, Ageing and Retirement in Europe (SHARE) were analysed. Regressions were examined of three patterns of care from outside the household: informal support only, formal support only and both formal and informal care, with the predictor

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SUZUKI, WATARU, SEIRITSU OGURA, and NOBUYUKI IZUMIDA. "BURDEN OF FAMILY CARE-GIVERS AND THE RATIONING IN THE LONG-TERM CARE INSURANCE BENEFITS OF JAPAN." Singapore Economic Review 53, no. 01 (2008): 121–44. http://dx.doi.org/10.1142/s0217590808002872.

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Long-Term Care Insurance (LTCI), introduced in Japan in 2000, is rapidly turning into a system of rationed benefits due to financial difficulty. Based on our survey of 2,530 family care-givers and the Zarit Care-Giver Burden Index, we have examined how LTCI is affecting their subjective burden. We have found that, as Kishida and Tanigaki (2004) had shown, (i) insufficient provision of short-term stays, day services and home-helper services, as well as (ii) disruptive or antisocial behaviors of the elderly, increase the care-giver's burden. We then argue that (iii) these results establish the p

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Hlebec, Valentina. "Family Care Experience in a Decentralized Social Home Care Context." Lex localis - Journal of Local Self-Government 15, no. 3 (2017): 495–511. http://dx.doi.org/10.4335/15.3.495-511(2017).

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This survey analyses the scope and intensity of informal care for the elderly residing in their homes in Slovenia and their determinants: the residing municipality of the care recipient, geographical distance between the informal carer and the care recipient, to the care recipients’ and the care givers’ individual characteristics. With the increasing private out-of-pocket financial contribution, which is determined by municipality, the scope and intensity of informal care shows a significant increase as shown by regression analysis. Inter-municipal cooperation and the introduction of gradual p

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Mathew, Suja Chungathil, and Thereza Mathias. "Effectiveness of family based educational program on burden of care and stress among family caregivers of young adults with chronic mental disorders: a pilot study report." International Journal Of Community Medicine And Public Health 12, no. 2 (2025): 845–56. https://doi.org/10.18203/2394-6040.ijcmph20250318.

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Background: Living with and caring for a young adult with mental disorders is often challenging and induce enormous amount of burden and stress to Family Care Givers. This area has not received adequate attention in India. Methods: Caregiver’s Stress scale (KCSS) were used to assess the burden and stress. The family care givers in the intervention group were provided with family-based intervention on two alternative days and the standard care group received only routine care. A post test was conducted on 30th, 90th and 180 days. Independent t -test was used to establish the effectiveness of fa

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Jain, Rajkamal. "Effectiveness of Self-Instructional Module Among Primary Care Givers." Nursing Journal of India CVIII, no. 06 (2017): 278–82. http://dx.doi.org/10.48029/nji.2017.cviii604.

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Stroke is common clinical problem that occurs without a warning. The major responsibility for providing adequate care to patient has fallen on primary caregivers or family members. The nurse has to provide comprehensive care to stroke survivors as well as to care givers. The present study sought to assess the knowledge of primary care givers regarding care of stroke patients before and after administration of self-instructional module (SIM). It was a pre-experimental and evaluative approach covering 30 primary care givers from KC General Hospital, Bangalore (Karnataka). Purposive sample techni

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Saal, Howard M. "Neonatal Intensive Care as a Locus for Ethical Decisions." Cleft Palate-Craniofacial Journal 32, no. 6 (1995): 500–503. http://dx.doi.org/10.1597/1545-1569_1995_032_0500_nicaal_2.3.co_2.

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Children born with congenital anomalies are usually cared for in the neonatal intensive care unit (NICU). Although most of these children will have conditons amenable to surgical correction, many will have serious underlying disorders that will alter the approach to management of the secondary birth defects and the child. The decision as to whether to treat or withhold treatment from a child with congenital anomalies lies with the parents or legal guardians with guidance and counseling from the health and medical care givers. The ability to make a rational decision about whether or not to offe

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Roshan, Monteiro. "Care Givers' Experiences in Families Living with Mentally Ill Patients." Pearl Multidisciplinary Journal 3, no. 2 (2017): 182–95. https://doi.org/10.5281/zenodo.3628141.

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Family members play vital role in care of persons with sick especially with mental illness living in families. Their care is multiple in terms of taking day-to-day care, supervising medications, taking the patient to the hospital and looking after the financial needs as well as to bear with the behavioral disturbances of the patient. Thus, the family caregiver experiences considerable stress and burden, and needs help in coping with it. The present study assessed the experiences faced by care givers in care of mentally ill patients living in their families. It is a part of UGC sponsored minor

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