Bibliographies thématiques / Healthcare Design for Children

Littérature scientifique sur le sujet « Healthcare Design for Children »

Auteur : Grafiati
Publié le 10 mars 2023

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Articles de revues sur le sujet "Healthcare Design for Children"

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Sims, Tara. « Participatory design of healthcare technology with children ». International Journal of Health Care Quality Assurance 31, no 1 (12 février 2018) : 20–27. http://dx.doi.org/10.1108/ijhcqa-11-2016-0162.

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Purpose There are many frameworks and methods for involving children in design research. Human-Computer Interaction provides rich methods for involving children when designing technologies. The paper aims to discuss these issues. Design/methodology/approach This paper examines various approaches to involving children in design, considering whether users view children as study objects or active participants. Findings The BRIDGE method is a sociocultural approach to product design that views children as active participants, enabling them to contribute to the design process as competent and resourceful partners. An example is provided, in which BRIDGE was successfully applied to developing upper limb prostheses with children. Originality/value Approaching design in this way can provide children with opportunities to develop social, academic and design skills and to develop autonomy.
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Allsop, Matthew J., et Raymond J. Holt. « Evaluating methods for engaging children in healthcare technology design ». Health and Technology 3, no 4 (14 juillet 2013) : 295–307. http://dx.doi.org/10.1007/s12553-013-0062-7.

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Srinivas, Gunda. « Healthcare Innovation and Design Thinking ». Karnataka Pediatric Journal 36 (6 septembre 2021) : 87–93. http://dx.doi.org/10.25259/kpj_14_2021.

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The objective of this article is to bring awareness to the changing landscape of the healthcare ecosystem and the clinician’s role with respect to medical devices, medical systems, technology, and processes involved in the system. Clinicians interact with them every day and have a huge implication for them directly, and to their patients indirectly. Clinicians are actively involved in clinical research which involves the knowledge and practice of the disease, diagnosis and management, etc. Recently, the role of non-clinical aspects such as medical devices, processes and systems of the healthcare ecosystem is gaining popularity. Hence, there is potential to explore this aspect of the healthcare delivery system to redesign and innovate for improving clinical outcomes. To achieve this, the clinicians need to understand these systems from a perspective that will help them to identify the problems and develop innovative solutions. Just like the clinical research is systematic and methodical, the improvement of the medical systems is also methodical to a large extent. This includes concepts and techniques that are quite fresh and new to a clinician who probably has never been exposed to these in their medical careers. These general principles of Innovation and Design thinking applied to other domains have yielded fantastic results and for the same to be applied in the medical domain, the role of the practicing clinician is central. As clinicians, we have always practiced innovation at some point of time in our career when we would have faced a resource crunch and were compelled to save the children and hence have tried to innovate on the devices, processes, etc., in our own way and has worked many a times. To generate many such solutions at large scale, the whole process needs to be methodical and systematic so that the solutions developed are safe and consistent at all times. Such a solution can be scaled up and made to reach across such setups where it is needed and there can be a measurable improvement in efficiency, quality, effectiveness, or economics of patient care delivery on a large scale.
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Weightman, Andrew Patrick Hayes, Nick Preston, Raymond Holt, Matthew Allsop, Martin Levesley et Bipinchandra Bhakta. « Engaging children in healthcare technology design : developing rehabilitation technology for children with cerebral palsy ». Journal of Engineering Design 21, no 5 (25 mars 2009) : 579–600. http://dx.doi.org/10.1080/09544820802441092.

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Babbu, Abdul Halim, et Mazharul Haque. « Design Characteristics for Sustainable Pediatric Healthcare Environments : Stakeholder’s Perception ». European Journal of Sustainable Development 12, no 1 (1 février 2023) : 113. http://dx.doi.org/10.14207/ejsd.2023.v12n1p113.

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Background: The therapeutic environments of children and adolescents differ from those of adults, and are complex entities. Though studies have been conducted on the built environments of adult healthcare facilities, the impact of therapeutic environments on the health outcomes of pediatric patients is yet to be explored. Objective: The purpose of this study is to investigate design characteristics for creating a pleasant, comfortable, and child-friendly physical environment in children's healthcare settings. Method: After extracting features that influence pediatric healthcare design from the relevant literature, a survey questionnaire, consisting of 45 items from 14 domains, was conducted. Principal component analysis (PCA) using varimax rotation was used to explore the intrinsic concept in an Indian sample (N= 224). Results: PCA with varimax rotation yielded 4- factors: (1) child-centred design characteristics; (2) indoor ambient environmental quality; (3) positive distraction strategies; and (4) sense of autonomy and control, accounting for 78.14% of the explained variance. A factor loading range of 0.41 to 0.93 was found across the four variables, indicating construct validity, and all the factors were found to be significantly related to each other. Conclusions: This study concludes that the built environment of pediatric healthcare settings impacts patients’ health outcomes and behaviour, with decreased patient stress & anxiety, and better family experience. The findings suggest the need of providing comfort to the children through several rejuvenating elements such as positive distraction strategies, play opportunities, family and peer interaction, child-friendly design, age-associated characteristics, etc. It also suggests various design characteristics that help contribute the positive patient health outcomes. Keywords: pediatric therapeutic environment, healthcare design, child-friendly design, therapeutic play, family-centred care
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Han, Hsing-Wen, Hsien-Ming Lien et Tzu-Ting Yang. « Patient Cost-Sharing and Healthcare Utilization in Early Childhood : Evidence from a Regression Discontinuity Design ». American Economic Journal : Economic Policy 12, no 3 (1 août 2020) : 238–78. http://dx.doi.org/10.1257/pol.20170009.

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This paper estimates the price elasticity of healthcare utilization in early childhood. We employ a regression discontinuity design by exploiting a subsidy that reduces patient cost-sharing for children under age 3 in Taiwan. Using longitudinal medical claims of over 410,000 children, we find a modest price elasticity of outpatient expenditure (e.g., −0.10 for regular outpatient care). Furthermore, increased cost-sharing at age 3 largely decreases the chance of visiting high-intensity healthcare providers (e.g., teaching hospitals) for minor illnesses. In contrast, children’s utilization of inpatient care is price insensitive, providing a rationale for full inpatient care coverage to children. (JEL H51, I11, I12, I13, I18, J13)
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Salami, Bukola, Alleson Mason, Jordana Salma, Sophie Yohani, Maryam Amin, Philomena Okeke-Ihejirika et Tehseen Ladha. « Access to Healthcare for Immigrant Children in Canada ». International Journal of Environmental Research and Public Health 17, no 9 (10 mai 2020) : 3320. http://dx.doi.org/10.3390/ijerph17093320.

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Immigrants experience poorer health outcomes than nonimmigrants in Canada for several reasons. A central contributing factor to poor health outcomes for immigrants is access to healthcare. Previous research on access to healthcare for immigrants has largely focused on the experience of immigrant adults. The purpose of this study was to investigate how immigrants access health services for their children in Alberta, Canada. Our study involved a descriptive qualitative design. Upon receiving ethics approval from the University of Alberta Research Ethics Board, we invited immigrant parents to participate in this study. We interviewed 50 immigrant parents, including 17 fathers and 33 mothers. Interviews were audio recorded, transcribed, and analyzed according to the themes that emerged. Findings reveal that systemic barriers contributed to challenges in accessing healthcare for immigrant children. Participants identified several of these barriers—namely, system barriers, language and cultural barriers, relationship with health professionals, and financial barriers. These barriers can be addressed by policymakers and service providers by strengthening the diversity of the workforce, addressing income as a social determinant of health, and improving access to language interpretation services.
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Setiawan, Agus, Poppy Fitriyani, Rizkiyani Istifada et Shefaly Shorey. « Healthcare Providers and Caregivers’ Perspectives on the Quality of Child Health Services in Urban Indonesia : A Mixed-Methods Study ». International Journal of Environmental Research and Public Health 18, no 15 (29 juillet 2021) : 8047. http://dx.doi.org/10.3390/ijerph18158047.

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Although Indonesia’s child mortality rate has decreased in tandem with the global trend, healthcare services can be further improved for children. This study aims to explore the perceptions of healthcare providers and caregivers of children aged below five years to improve child health in urban Indonesia. A mixed-methods study design was adopted. Quantitative data were collected via questionnaires from the caregivers. Qualitative data were collected via semi-structured interviews from the healthcare providers. Analysis of 540 caregiver questionnaires regarding the care provided to their child revealed that the majority of them were very satisfied (46.1%) and satisfied (52.2%) with the care received. Analysis of 12 interviews with healthcare providers derived three major themes: (1) importance of one’s role as a healthcare provider; (2) factors affecting the delivery of healthcare; and (3) the way forward in caring for young children. Although caregivers were very satisfied with the care received for their children, the perception of healthcare providers regarding their responsibility in delivering care to children under five years old provides insights into improving the quality of services for children in Indonesia. Our findings suggest that mortality and morbidity of children aged below five years can be best reduced by optimizing primary and secondary preventive measures.
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Mimmo, Laurel, Susan Woolfenden, Joanne Travaglia, Iva Strnadová, Maya Tokutake and Karen Phillips, Matthew and Debbie van Hoek et Reema Harrison. « Codesigning patient experience measures for and with children and young people with intellectual disability : a study protocol ». BMJ Open 11, no 12 (décembre 2021) : e050973. http://dx.doi.org/10.1136/bmjopen-2021-050973.

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IntroductionChildren and young people with intellectual disability represent one of the most vulnerable groups in healthcare, yet they remain under-represented in projects to design, develop and/or improve healthcare service delivery. Increasingly, healthcare services are using various codesign and coproduction methodologies to engage children and young people in service delivery improvements.Methods and analysisThis study employs an inclusive approach to the study design and execution, including two co-researchers who are young people with intellectual disability on the project team. We will follow an adapted experience-based co-design methodology to enable children and young people with intellectual disability to participate fully in the co-design of a prototype tool for eliciting patient experience data from children and young people with intellectual disability in hospital.Ethics and disseminationThis study was granted ethical approval on 1 February 2021 by the Sydney Children’s Hospitals Network Human Research Ethics Committee, reference number 2020/ETH02898. Dissemination plan includes publications, doctoral thesis chapter, educational videos. A summary of findings will be shared with all participants and presented at the organisation quality and safety committee.
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Bester, Michelle, Yolanda Havenga et Zea Ligthelm. « Practices employed by South African healthcare providers to obtain consent for treatment from children ». Nursing Ethics 25, no 5 (12 août 2016) : 640–52. http://dx.doi.org/10.1177/0969733016660878.

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Background: The ability to consent promotes children’s access to health services. Healthcare providers should assess and arrive at a clinical judgement about the child’s maturity and mental capacity to obtain valid consent. Research objective: The objective of the study was to determine practices employed by South African healthcare providers to obtain consent for treatment from children. Research design: A qualitative, explorative, descriptive research design was used and the study was contextual. Participants and research context: In all, 24 healthcare providers (professional nurses and medical practitioners) were purposively sampled from a hospital and primary health clinics. Semi-structured interviews were used. Ethical consideration: Ethical approval was obtained from the Institutional Review Board and gatekeepers. Written informed consent was obtained from each participant. Findings: Healthcare providers’ current practices in obtaining consent from children revealed inconsistency in implementation as well as the yardstick used to determine children’s mental capacity. Building trust with children, sharing information and assessment were interlinked in obtaining consent. Discussion: The inconsistent practice has implications for children’s access to healthcare services. Conclusion: Inconsistent practices in the implementation of consent laws have the potential to violate children’s rights to bodily and psychological integrity, access to health services and having their opinions heard and be taken into consideration. Through uncovering the current perceptions and practices and a literature review, guidelines intended for use by the Department of Health could be developed.
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Thèses sur le sujet "Healthcare Design for Children"

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Allsop, Matthew John. « Involving children in the design of healthcare technology ». Thesis, University of Leeds, 2010. http://etheses.whiterose.ac.uk/1000/.

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Although children are potential end users of healthcare technology, very little research has investigated their role in its design. Subsequently, very little guidance and few research methods are available for designers of healthcare technology to use in practice. Given that research involving funding from public sector sources in the United Kingdom calls for the compulsory addition of user involvement, there is a need to explore the most suitable methods to ensure the involvement of child populations in the design of healthcare technology. The first stage of the research explored the use of four interview methods for involving children in healthcare technology design. Personal and environmental factors influencing child involvement were examined, alongside the cost and value of child participation. A framework for examining the use of methods for designing with children was also developed and applied. The experience gathered from involving children in the first stage was used to inform the development of an internet application and practice guidelines in the second stage of the research. The internet application was provided as a means of overcoming a range of barriers to child involvement, including disability. The internet application also provided the opportunity to explore the involvement of children in the evaluation of healthcare technology. The experience gathered throughout all of the research was synthesised to produce guidelines for future research in the area. Although interview methods were used to involve children in the design of healthcare technology, future research should focus on examining a wider range of methods. It is recommended that strategies for validating information gathered from children should also be developed. Such future endeavours could be assisted by the insight provided in the guidelines and experiences formed throughout this research.
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Bishop, Katherine G. « From their perspectives : Children and young people's experience of a paediatric hospital environment and its relationship to their feeling of well-being ». Thesis, The University of Sydney, 2008. http://hdl.handle.net/2123/3962.

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This study was conducted to increase our understanding of children and young people’s experience of a hospital environment and to identify the salient attributes of the physical environment in their experience. There were three specific aims: to describe children and young people’s experience of a hospital environment and identify what constitutes a supportive paediatric environment; to examine the role of the physical environment in patients’ feeling of well-being; and to highlight the capacity of participatory research with children and young people to inform evidence-based paediatric design. At this stage, there has been very little healthcare design research carried out with populations of children and young people. Well-being research with children and young people in paediatric environments that identifies the potential supportive attributes in this environment is also very limited. Historically research on children’s health and well-being has been dominated by a focus on the prevalence of disorders, problems and disabilities. More recently, in response to the change to health promotion, positive attributes have been included in well-being and satisfaction measures. At this stage, there are still many fewer positive measures. Within the body of literature that exists in healthcare, healthcare design research, and well-being research, there are only a small number of participatory studies that focus on children and young people’s experience of hospitalisation, and an even smaller number that include children and young people’s experience of hospital environments. The picture that is created by the research that exists is patchy. There is a need for a more holistic understanding of children and young people’s experience of hospitalisation and of hospital environments from their own perspectives. Based on these gaps in current knowledge, two research questions were developed. The first was concerned with describing children and young people’s experience of the sociophysical environment of a paediatric hospital. The second question was concerned with understanding the role of the physical environment in children and young people’s feeling of well-being in a hospital environment. In addressing these questions, the intention was to identify attributes within the hospital setting which collectively comprise a supportive environment for children and young people and which contribute to children and young people’s feeling of well-being in a paediatric setting. The current study was conducted as an exploratory qualitative case study and carried out at the Children’s Hospital at Westmead, in Sydney, Australia. Using participatory research techniques, the sequence of the study included two pilot studies and the main study. The focus was on understanding the experiences of longer-term patients of a paediatric hospital environment. In the main study 25 children and young people, aged between 9-18 years, who had been in hospital for at least a week completed semi-structured interviews in which they talked about their response to the environment of the hospital and their experience of hospitalisation. Data analysis was completed using a combination of concept mapping and thematic analysis techniques. Preliminary findings were used as the basis of a further member-checking task carried out with a further six children and young people before conclusions were reached. The findings reveal that children and young people’s experience of a paediatric setting involves a number of major areas of influence including their personal situation, their social experience, their interaction with the physical environment, opportunities and characteristics of the organisation, and the effect of time. The findings also reveal that children’s feeling of well-being within this experience is linked to their ability to feel comfortable in the environment, to maintain a positive state of mind, and to remain positively engaged with the experience and the environment. This research reveals a dynamic relationship between children and young people and a paediatric environment that children and young people actively manage and shape. It reveals some of the key considerations in children and young people’s experience of hospitalisation. It also reveals why these considerations are important and what role they play in patients’ experience and feeling of well-being. These findings provide the basis for further research and they have implications for future design and research practice in paediatric healthcare settings.
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Bishop, Katherine G. « From their perspectives children and young people's experience of a paediatric hospital environment and its relationship to their feeling of well-being / ». University of Sydney, 2008. http://hdl.handle.net/2123/3962.

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Doctor of Philosophy (PhD)
This study was conducted to increase our understanding of children and young people’s experience of a hospital environment and to identify the salient attributes of the physical environment in their experience. There were three specific aims: to describe children and young people’s experience of a hospital environment and identify what constitutes a supportive paediatric environment; to examine the role of the physical environment in patients’ feeling of well-being; and to highlight the capacity of participatory research with children and young people to inform evidence-based paediatric design. At this stage, there has been very little healthcare design research carried out with populations of children and young people. Well-being research with children and young people in paediatric environments that identifies the potential supportive attributes in this environment is also very limited. Historically research on children’s health and well-being has been dominated by a focus on the prevalence of disorders, problems and disabilities. More recently, in response to the change to health promotion, positive attributes have been included in well-being and satisfaction measures. At this stage, there are still many fewer positive measures. Within the body of literature that exists in healthcare, healthcare design research, and well-being research, there are only a small number of participatory studies that focus on children and young people’s experience of hospitalisation, and an even smaller number that include children and young people’s experience of hospital environments. The picture that is created by the research that exists is patchy. There is a need for a more holistic understanding of children and young people’s experience of hospitalisation and of hospital environments from their own perspectives. Based on these gaps in current knowledge, two research questions were developed. The first was concerned with describing children and young people’s experience of the sociophysical environment of a paediatric hospital. The second question was concerned with understanding the role of the physical environment in children and young people’s feeling of well-being in a hospital environment. In addressing these questions, the intention was to identify attributes within the hospital setting which collectively comprise a supportive environment for children and young people and which contribute to children and young people’s feeling of well-being in a paediatric setting. The current study was conducted as an exploratory qualitative case study and carried out at the Children’s Hospital at Westmead, in Sydney, Australia. Using participatory research techniques, the sequence of the study included two pilot studies and the main study. The focus was on understanding the experiences of longer-term patients of a paediatric hospital environment. In the main study 25 children and young people, aged between 9-18 years, who had been in hospital for at least a week completed semi-structured interviews in which they talked about their response to the environment of the hospital and their experience of hospitalisation. Data analysis was completed using a combination of concept mapping and thematic analysis techniques. Preliminary findings were used as the basis of a further member-checking task carried out with a further six children and young people before conclusions were reached. The findings reveal that children and young people’s experience of a paediatric setting involves a number of major areas of influence including their personal situation, their social experience, their interaction with the physical environment, opportunities and characteristics of the organisation, and the effect of time. The findings also reveal that children’s feeling of well-being within this experience is linked to their ability to feel comfortable in the environment, to maintain a positive state of mind, and to remain positively engaged with the experience and the environment. This research reveals a dynamic relationship between children and young people and a paediatric environment that children and young people actively manage and shape. It reveals some of the key considerations in children and young people’s experience of hospitalisation. It also reveals why these considerations are important and what role they play in patients’ experience and feeling of well-being. These findings provide the basis for further research and they have implications for future design and research practice in paediatric healthcare settings.
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Stålberg, Anna. « Facilitating participation : A joint use of an interactive communication tool by children and professionals in healthcare situations ». Doctoral thesis, Mälardalens högskola, Hälsa och välfärd, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:mdh:diva-35178.

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Children’s right to participation in situations that matter to them is stated in law and convention texts and is emphasized by the children themselves in research studies, too. When actively involved, their perspective is visualized. Children’s use of interactive technology has increased considerably during the last decade. The use of applications and web sites are becoming a regular occurrence in paediatric healthcare. The overall aim was to develop and test, together with children, an interactive communication tool meant to facilitate young children’s participation in healthcare situations. To understand children’s varied perceptions of their involvement in healthcare situations, interviews, drawings and vignettes were used in a phenomenographic approach (I). A participatory design iteratively evaluated evolving prototypes of an application (II). Video observations and hermeneutics captured the meanings of the participation cues that the children demonstrated when they used the application in healthcare situations (III). A quantitative approach was used to identify patterns in the children’s cue use (IV). In total, 114 children in two clinical settings and in a preschool were involved. The result showed that the children perceived themselves, their parents and the professionals as actors in a healthcare situation, although all were perceived to act differently (I). The children contributed important information on age-appropriateness, usability and likeability in the iterative evaluating phases that eventually ended up in the application (II). When using the application in healthcare situations, the cues they demonstrated were understood as representing a curious, thoughtful or affirmative meaning (III). Curious cues were demonstrated to the highest extent. The three-year-olds and the children with the least experience of healthcare situations demonstrated the highest numbers of cues (IV). Conclusion: when using the application, the children demonstrated a situated participation which was influenced by their perspective of the situation and their inter-inter-action with the application as well as the health professional. The children’s situated participation provided the professionals’ with additional ways of guiding the children based on their perspectives.
I lag- och konventionstexter, liksom i forskning, som använder barnens egna uttryck betonas deras rättighet att vara delaktiga i situationer av betydelse för dem. Genom att delta kan de göra sitt perspektiv synligt. Under det senaste årtiondet har barns användning av interaktiv teknik ökat kraftigt. Applikationer och web-sidor används nuförtiden även flitigt inom barnsjukvården. Avhandlingens övergripande syfte var att utveckla och pröva, tillsammans med barn, ett interaktivt kommunikationsverktyg avsett att möjliggöra yngre barns delaktighet i vårdsituationer. Intervjuer, teckningar och vignetter användes för att, fenomenografiskt, förstå barnens uppfattningar av att vara i en vårdsituation (I). En iterativ deltagarbaserad design användes för att utveckla en prototyp av en applikation. En hermeneutisk tolkning av video-observationer fångade meningen i barnens sätt att visa sin delaktighet (hintar) vid användningen av applikationen i vårdsituationer (III). En deduktiv, kvantitativ ansats användes för att identifiera mönster i barnens sätt att visa sin delaktighet när de använde applikationen (IV). Resultatet visade att barnen uppfattade sig själva, föräldrarna och vårdpersonalen som aktörer i situationen, även om alla uppfattades agera på olika sätt (I). Barnen bidrog i den iterativa processen med viktig information gällande aspekter som åldersanpassning, användbarhet och hur väl den tilltalar dem, vilket slutligen ledde fram till den färdiga applikationen (II). Barnens sätt att visa sin delaktighet när de använde applikationen förstods ha en nyfiken, tankfull och självbekräftande mening (III). Nyfikenheten visades mest vid användningen av applikationen. Treåringarna samt barnen med minst vårderfarenhet använde applikationen i störst utsträckning (IV). Sammanfattning: när applikationen användes i vårdsituationen visade barnen en situerad delaktighet vilken byggde på deras perspektiv på den aktuella situationen samt på deras inter-inter-aktion med applikationen och vårdpersonalen. Genom detta erbjöds vårdpersonalen ytterligare ett sätt att guida barnet utifrån barnets eget perspektiv.
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KOZLOVA, ANASTASIA. « How design can contribute to children's neurological rehabilitation ? Case study : Co-designing paediatric rehabilitation programs for learning disabilities ». Doctoral thesis, Università IUAV di Venezia, 2015. http://hdl.handle.net/11578/255593.

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What is the role of designer in project development of rehabilitation programs? Designer plays the conductive role between different groups of specialists of various competences and frames of reference (e.g. engineers, software developers, doctors, therapists etc.), and communities of individuals with particular characteristics (potential users or customers: patients, children, parents etc.), uniting them together as a productive multidisciplinary team and contributing knowledge of his own competence (product design, graphic design, interface design, user experience design, ergonomics etc.) In order to be able to organize, manage and be the valuable part of the project developing team, designer should inevitably become a multidisciplinary researcher as well. Answering the main research questions: How design can contribute to children’s neurological rehabilitation? Present research exposed the example of successfully developing multidisciplinary project on robotic rehabilitation system for Dysgraphia. In our case the therapeutic equipment for certain neurological disorder in a certain infant neuropsychiatric department is being brought to a new quality level. Consequently patient’s therapeutic experience is to become more pleasant and exciting, so the efficiency of rehabilitation process is being improved. Moreover our suggestion is that using our general guidelines of project development in this field would bring to similar positive results.
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Barco, Martelo Alexandre. « Social Robots to enhance therapy and interaction for children : From the design to the implementation "in the wild" ». Doctoral thesis, Universitat Ramon Llull, 2017. http://hdl.handle.net/10803/399675.

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En les últimes dues dècades els robots socials s'han convertit en un camp emergent en el qual encara hi ha molt per fer. Aquest camp requereix coneixements en mecànica, control, intel·ligència artificial, sistemes, etc., però també en psicologia, disseny, ètica, etc. El nostre grup de recerca de perfil interdisciplinari ha estat treballant en el disseny de robots socials en diferents aplicacions per a nens amb necessitats especials. L'objectiu d'aquesta tesi és investigar diferents escenaris en teràpia o educació on els robots socials podrien ser una eina útil per als nens. Es van realitzar 4 estudis amb diferents propòsits: (1) dissenyar activitats amb robòtica de LEGO per avaluar el comportament social dels nens amb trastorn de l'espectre autista (TEA) (entre companys i amb adults) i analitzar la seva efectivitat, (2) dissenyar un robot social per recuperar les funcionalitats més afectades a causa de traumatismes cranioencefàlics (TCE) en nens i veure l'eficàcia del tractament, (3) proporcionar un robot mascota per alleujar els sentiments d'ansietat, solitud i estrès en nens hospitalitzats, i (4) comprovar com un robot amb comportament social i amb una personalització versus robots sense aquestes característiques mostra diferències en termes d'interacció amb nens i, per tant, pot ajudar en l'efectivitat de diferents tractaments com hem esmentat anteriorment. Els resultats van revelar diferents resultats depenent de l'aplicació: (1) efectivitat amb la plataforma robòtica social que vam dissenyar en el tractament neuropsicològic per a aquells nens afectats per TCE, (2) eficàcia amb les activitats de robòtica de LEGO dissenyades per un grup de terapeutes en termes de millora d'habilitats socials (3) un efecte positiu entre els mediadors i facilitadors de la interacció i les relacions entre els diferents agents involucrats en el procés de la cura: pacients hospitalitzats, familiars, voluntaris i personal clínic, i (4) una interacció diferent, en termes de temps, entre els dos grups durant període de dues setmanes.
En las últimas dos décadas los robots sociales se han convertido en un campo emergente en el que todavía hay mucho por hacer. Este campo requiere conocimientos en mecánica, control, inteligencia artificial, sistemas, etc., pero también en psicología, diseño, ética, etc. Nuestro grupo de investigación de perfil interdisciplinar ha estado trabajando en el diseño de robots sociales en diferentes aplicaciones para niños con necesidades especiales. El objetivo de esta tesis es investigar diferentes escenarios en terapia o educación donde los robots sociales podrían ser una herramienta útil para los niños. Se realizaron 4 estudios con diferentes propósitos: (1) diseñar actividades con robótica de LEGO para evaluar el comportamiento social de los niños con trastorno del espectro autista (TEA) (entre compañeros y con adultos) y analizar su efectividad, (2) diseñar un robot social para recuperar las funcionalidades más afectadas a causa de traumatismos craneoencefálicos (TCE) en niños y ver la eficacia del tratamiento, (3) proporcionar un robot mascota para aliviar los sentimientos de ansiedad, soledad y estrés en niños hospitalizados, y (4) comprobar como un robot con comportamiento social y con una personalización versus robots sin esas características muestra diferencias en términos de interacción con niños y, por tanto, puede ayudar en la efectividad de diferentes tratamientos como mencionamos anteriormente. Los resultados revelaron diferentes resultados dependiendo de la aplicación: (1) efectividad con la plataforma robótica social que diseñamos en el tratamiento neuropsicológico para aquellos niños afectadas por TCE, (2) eficacia con las actividades de robótica de LEGO diseñadas por un grupo de terapeutas en términos de mejora de habilidades sociales (3) un efecto positivo entre los mediadores y facilitadores de la interacción y las relaciones entre los diferentes agentes involucrados en el proceso del cuidado: pacientes hospitalizados, familiares, voluntarios y personal clínico, y (4) una interacción diferente, en términos de tiempo, entre ambos grupos en el promedio de un período de dos semanas.
Over the past two decades social robots have become an emerging field where there are many things still to work on. This field not only requires knowledge in mechanics, control, artificial intelligence, systems, etc., but also in psychology, design, ethics, etc. Our multidisciplinary research group has been working on designing social robotic platforms in different applications for children with special needs. The aim of this thesis is to investigate different scenarios in therapy or education where social robots could be a useful tool for children. We ran 4 studies with different purposes: (1) to design activities with LEGO robotics to assess children with autism spectrum disorder (ASD) social behaviour (between peers and with adults) and to analyze the effectiveness, (2) to design a social robotic platform to recover the functionalities most affected by traumatic brain injuries (TBI) in children and see the effectiveness of the treatment, (3) to provide a pet robot to alleviate feelings of anxiety, loneliness and stress of long-term children inpatient and their bystanders, and (4) to verify how a robot with social behaviour and personalization verses those robots without, shows differences in terms of interaction with children and thus, helps the effectiveness of different treatments as we mention above. The results revealed different outcomes depending on the application: (1) effectiveness with the social robotic platform that we designed in neuropsychological treatment in those areas affected by TBI, (2) effectiveness with the LEGO robotics activities designed by a group of therapists in terms of improvement of the social skills and engagement, (3) a positive effect within mediators and facilitators of interaction and relationships between the different agents involved in the caring process: in-patients, relatives, volunteers and clinical staff (4) slight evidence towards a different interaction, in terms of time, between both groups in the average of a two-week period.
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Zajkowska, Sandra. « Healthcare utilization of children enrolled in public programs ». Thesis, California State University, Long Beach, 2015. http://pqdtopen.proquest.com/#viewpdf?dispub=1585819.

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Healthcare utilization is a factor that directs quality and cost of health services. The cost of healthcare, income level, and demographics affect the frequency and circumstances, in which patients seek medical attention. One of the main goals of public assistance programs in this study is to facilitate the access to medical services for vulnerable groups of children. This study analyzes the impact of enrollment in various different public assistance programs and the access patterns to healthcare services. The study found that children who are enrolled in public assistance programs are more likely to visit an emergency room but less likely to visit a doctor at least 7 times a year (high utilization) compared to children who are also eligible for public programs but are not enrolled. This difference in patterns has a significant impact on cost of health services for public assistance programs' beneficiaries. A causal multifactorial link is observed, and therefore further research is needed.

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Marshall, L. « Healthcare environment design and patient experience ». Thesis, Canterbury Christ Church University, 2018. http://create.canterbury.ac.uk/17671/.

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The design of healthcare environments has been shown to produce positive effects for patient outcomes, particularly in mental healthcare. However, relatively little is known about patient experience of design within physical healthcare environments. In this study, fourteen cancer patients were interviewed about their experiences of using a newly built cancer centre that incorporates art and design. Grounded theory methodology provided a framework for the analysis of results and the construction of a theoretical model which represents a first attempt at explaining the relationship between healthcare environments and patients with respect to emotional wellbeing. Results show that central aspects of this particular healthcare environment – orientation, physical aspects of design, and atmosphere – were not like a hospital and these led to diverse patient experiences depending on the individual context, in other words the personal histories and preferences that patients brought. Implications for research and clinical practice, including the benefits of drawing upon helpful aspects of environments as part of a holistic approach to treatment, are discussed.
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Burrow, A. L., et L. Lee Glenn. « Greater Healthcare Utilization in Pregnancies for First Born Children ». Digital Commons @ East Tennessee State University, 2011. https://dc.etsu.edu/etsu-works/7500.

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Hung, Yah-Ling. « Healthcare media design for low-literate users ». Thesis, University of Leeds, 2014. http://etheses.whiterose.ac.uk/8364/.

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Low health literacy has been associated with poor outcomes in health care. Recent research suggests that good healthcare media can help to reduce the literacy barrier and enhance health outcomes. However, the majority of healthcare media are constructed for well-educated users rather than those with low literacy skills. This begs the question of whether or not various healthcare media have the same effect on low-literate users. Immigrant populations are vulnerable to serious health disparities, and language barriers and these may further exacerbate their limited health literacy in accessing health care information. Yet, ways to help low-literate parents to look after their children by applying healthcare media are still at an early stage of development. The aim of this study is to establish useful design strategies for Graphic and Information designers when planning and designing healthcare media for low-literate users. This research was implemented through four experiments, including a focus group interview and questionnaire survey, a pre-post knowledge test, a usability evaluation, and semi-structured interviews. The findings revealed the problems immigrant parents usually encounter in caring for their children’s health. The results demonstrated that the influence of interventions by leaflets and websites on low-literate users is not significantly different. The findings also showed the criteria used by low-literate users to evaluate healthcare media and the visual factors of healthcare media that affect their satisfaction. An assessment checklist related to the design of health educational materials for low-literate users was also listed. This is an interdisciplinary research that integrates Design, Communication and Public Health. It provides a holistic framework for improving health intervention using various methodologies, including development, experiment, observation, comparison, and analysis.
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Livres sur le sujet "Healthcare Design for Children"

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Estates, NHS, dir. Friendly healthcare environments for children and young people. London : TSO, 2004.

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Andrée, Fournier Marie, McDougal Kendra Ward et Association for the Care of Children's Health., dir. Healthcare environments for children and their families. Dubuque, IA : Kendall/Hunt Pub., 1998.

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1959-, Marberry Sara O., dir. Healthcare design. New York : Wiley, 1997.

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Goodwin, Scott. Meaningful Healthcare Experience Design. Boca Raton : Routledge, 2020. | : Productivity Press, 2020. http://dx.doi.org/10.4324/9781315120317.

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Ward, Adam. Lean Design in Healthcare. Boca Raton : Taylor & Francis, 2018. : Productivity Press, 2018. http://dx.doi.org/10.4324/9781351015554.

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Evidence-based healthcare design. Hoboken, N.J : J. Wiley, 2009.

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Beauty & healthcare package design. Tokyo, Japan : PIE Books, 2008.

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Maharatna, Koushik, et Silvio Bonfiglio, dir. Systems Design for Remote Healthcare. New York, NY : Springer New York, 2014. http://dx.doi.org/10.1007/978-1-4614-8842-2.

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S, Swensson Earl, et Robinson J. Todd, dir. Hospital and healthcare facility design. 3e éd. New York : W.W. Norton, 2012.

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McNeil, J. Chase, Judith R. Campbell et Jonathan D. Crews, dir. Healthcare-Associated Infections in Children. Cham : Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-319-98122-2.

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Chapitres de livres sur le sujet "Healthcare Design for Children"

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Alhonsuo, Mira, Jenny Siivola, Melanie Sarantou et Satu Miettinen. « Storytelling as a Way to Design and Innovate Healthcare Services for Children ». Dans Human-Centered Service Design for Healthcare Transformation, 265–84. Cham : Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-20168-4_15.

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Boyer, Michael D., Lisa Brandenburg et Joan Wellman. « Integrated Facility Design at Seattle Children's Hospital ». Dans Leading the Lean Healthcare Journey, 251–73. Taylor & Francis Group, 6000 Broken Sound Parkway NW, Suite 300, Boca Raton, FL 33487-2742 : CRC Press, 2016. http://dx.doi.org/10.1201/9781315369303-20.

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Kharrazi, Hadi, Anthony Faiola et Joseph Defazio. « Healthcare Game Design : Behavioral Modeling of Serious Gaming Design for Children with Chronic Diseases ». Dans Human-Computer Interaction. Interacting in Various Application Domains, 335–44. Berlin, Heidelberg : Springer Berlin Heidelberg, 2009. http://dx.doi.org/10.1007/978-3-642-02583-9_37.

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Allsop, M. J., R. J. Holt, J. F. Gallagher, M. C. Levesley et B. Bhakta. « The Involvement of Primary Schools in the Design of Healthcare Technology for Children ». Dans Designing Inclusive Interactions, 209–18. London : Springer London, 2010. http://dx.doi.org/10.1007/978-1-84996-166-0_20.

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Peng, Cheng, ZhenYuan Liu et WanHan Cheng. « Design Model Based on Systems for Children’s Healthcare in Hospital ». Dans Proceedings of the 2022 2nd International Conference on Computer Technology and Media Convergence Design (CTMCD 2022), 586–96. Dordrecht : Atlantis Press International BV, 2022. http://dx.doi.org/10.2991/978-94-6463-046-6_69.

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Waddingham, Paula, Richard Eastgate et Sue Cobb. « Design and Development of a Virtual-Reality Based System for Improving Vision in Children with Amblyopia ». Dans Advanced Computational Intelligence Paradigms in Healthcare 6. Virtual Reality in Psychotherapy, Rehabilitation, and Assessment, 229–52. Berlin, Heidelberg : Springer Berlin Heidelberg, 2011. http://dx.doi.org/10.1007/978-3-642-17824-5_11.

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Buie, Allen. « Healthcare Facilities for Children ». Dans Architecture and Health, 25–42. New York : Routledge, 2020. : Routledge, 2019. http://dx.doi.org/10.4324/9780429021169-3.

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Gollehon, Nathan. « Scenario Design ». Dans Comprehensive Healthcare Simulation, 159–73. Cham : Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-33660-8_14.

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Khayal, Inas S., et Amro M. Farid. « Healthcare System Design ». Dans Design Engineering and Science, 543–62. Cham : Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-49232-8_19.

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Backett-Milburn, Kathryn, Sarah Cunningham-Burley et John Davis. « Children Reflecting on Health ». Dans The Sociology of Healthcare, 149–58. London : Macmillan Education UK, 2008. http://dx.doi.org/10.1007/978-1-137-26654-5_14.

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Actes de conférences sur le sujet "Healthcare Design for Children"

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Høiseth, Marikken, Michail N. Giannakos, Ole A. Alsos, Letizia Jaccheri et Jonas Asheim. « Designing healthcare games and applications for toddlers ». Dans IDC '13 : Interaction Design and Children 2013. New York, NY, USA : ACM, 2013. http://dx.doi.org/10.1145/2485760.2485770.

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John, Titus, Robin W. Doroshow et Raj Shekhar. « A Smartphone Stethoscope and Application for Automated Identification of Innocent Still’s Murmur ». Dans 2018 Design of Medical Devices Conference. American Society of Mechanical Engineers, 2018. http://dx.doi.org/10.1115/dmd2018-6905.

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Primary care physicians (PCPs) often lack the skills to distinguish the common innocent Still’s murmur from far less frequent but potentially serious pathological heart murmurs. This leads to approximately 800,000 children being referred to pediatric cardiologists each year for evaluation of heart murmurs in the United States [1–2]. The murmur is ultimately diagnosed as an innocent Still’s murmur in approximately 78% of these children (Children’s National Health System data). These unnecessary referrals and associated tests cost the healthcare system over half a billion annually, and are a source of avoidable anxiety for children and families while waiting to see a pediatric cardiologist.
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Tsvyatkova, Damyanka, et Cristiano Storni. « Educational Interactive eBook for Newly Diagnosed Children with T1DM : Children’s Role in Design ». Dans 9th International Conference on Pervasive Computing Technologies for Healthcare. ICST, 2015. http://dx.doi.org/10.4108/icst.pervasivehealth.2015.260130.

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de Vette, A. F. A., M. Tabak et M. M. R. Vollenbroek-Hutten. « How to Design Game-based Healthcare Applications for Children ? - A Study on Children’s Game Preferences ». Dans 11th International Conference on Health Informatics. SCITEPRESS - Science and Technology Publications, 2018. http://dx.doi.org/10.5220/0006584804220430.

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Văcăreţu, Tudor, Sigrid Pillen, Sebastiaan Overeem, Thomas Visser et Panos Markopoulos. « A Design Research Into the Needs of a Sleep Diary for Children ». Dans PervasiveHealth '20 : 14th EAI International Conference on Pervasive Computing Technologies for Healthcare. New York, NY, USA : ACM, 2020. http://dx.doi.org/10.1145/3421937.3421969.

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Viviani, Sara, Rocco Furferi et Alessandra Rinaldi. « The hospitalization experience design using gamification applied to a pediatric 3d scanner for compound fractures ». Dans 13th International Conference on Applied Human Factors and Ergonomics (AHFE 2022). AHFE International, 2022. http://dx.doi.org/10.54941/ahfe1002114.

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Physical, social and mental well-being is the basic assumption which allows children to experience hospitalization positively. In this age of medical-scientific progress and technological development on hospital equipment, the designers of instruments for healthcare focus their activities on developing a coherent patient-centered approach which aims to consider the person globally. Currently, the rigors of the humanization of pediatric care are elaborating products which have both technological innovation and effective design specifications on children’s implicit needs and expectations. Mainly, the active, collaborative, and coordinated presence and accessibility of the family and of the pediatric patient in the care setting are unachieved goals in this field. The article presents the research project Oplà, a 3D acquisition system, as a demonstration of how emerging technologies, culture, communication and collaboration can help significantly in mapping out new diversification measures in standard clinical practice, to enhance the assistance services, by adopting a Human-centered approach strengthened by the iterative process of design thinking.
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Duncombe, R., et R. Evans Fry. « G395(P) An innovative app designed to reduce healthcare-related anxiety in young children ». Dans Royal College of Paediatrics and Child Health, Abstracts of the Annual Conference, 13–15 March 2018, SEC, Glasgow, Children First – Ethics, Morality and Advocacy in Childhood, The Journal of the Royal College of Paediatrics and Child Health. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2018. http://dx.doi.org/10.1136/archdischild-2018-rcpch.384.

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Hott, Morgan E., Richard M. Beane, Cliff Megerian et Lawrence J. Bonassar. « Injection Molding of Tissue Engineered Tympanic Membrane Patches Utilizing Computer-Aided Design ». Dans ASME 2001 International Mechanical Engineering Congress and Exposition. American Society of Mechanical Engineers, 2001. http://dx.doi.org/10.1115/imece2001/bed-23151.

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Abstract Over two million tympanostomy tubes are inserted annually in the United States, making this the most commonly performed of all surgical procedures (Isaacson 1996). In approximately 10% of cases the patient treated with tympanostomy tubes is left with a permanent perforation of the tympanic membrane that requires surgical repair. Current surgical technique involves grafting of an autologous tissue such as temporalis fascia or tragal cartilage to the perforated membrane (Paterson 1999). This is an involved surgical procedure requiring general anesthesia. We propose tissue engineering an autologous cartilage tympanic membrane patch. If successful this approach has the potential to transform an operating room procedure to an office procedure. This would provide tremendous healthcare savings, and potentially obviate the need for tens of thousands of children to undergo general anesthesia.
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Migliorelli, Lucia, Annalisa Cenci, Michele Bernardini, Luca Romeo, Sara Moccia et Primo Zingaretti. « A Cloud-Based Healthcare Infrastructure for Neonatal Intensive-Care Units ». Dans ASME 2019 International Design Engineering Technical Conferences and Computers and Information in Engineering Conference. American Society of Mechanical Engineers, 2019. http://dx.doi.org/10.1115/detc2019-97526.

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Abstract Intensive medical attention of preterm babies is crucial to avoid short-term and long-term complications. Within neonatal intensive care units (NICUs), cribs are equipped with electronic devices aimed at: monitoring, administering drugs and supporting clinician in making diagnosis and offer treatments. To manage this huge data flux, a cloud-based healthcare infrastructure that allows data collection from different devices (i.e., patient monitors, bilirubinometers, and transcutaneous bilirubinometers), storage, processing and transferring will be presented. Communication protocols were designed to enable the communication and data transfer between the three different devices and a unique database and an easy to use graphical user interface (GUI) was implemented. The infrastructure is currently used in the “Women’s and Children’s Hospital G.Salesi” in Ancona (Italy), supporting clinicians and health opertators in their daily activities.
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Neubauer, Brett Cullen, et William K. Durfee. « Simulation Based Design of a Pediatric-Sized Hydraulic Ankle-Foot Orthosis ». Dans ASME 2016 Dynamic Systems and Control Conference. American Society of Mechanical Engineers, 2016. http://dx.doi.org/10.1115/dscc2016-9739.

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Cerebral palsy can cause gait impairments in children that require the prescription of passive ankle-foot orthoses. This project aims to develop a pediatric-sized hydraulic active ankle-foot orthosis with computer-controlled stiffness. The orthosis will allow a clinician to investigate a range of AFO stiffnesses while collecting gait performance metrics to determine the optimal stiffness value for the AFO prescription. The ankle-foot orthosis uses hydraulic technology to generate the large required torques in a light, compact package. The preliminary design uses additive manufacturing to further reduce the weight of the manifolds on the medial and lateral sides of the ankle. The simulation prototype of the design illustrated that the orthosis should be capable of generating 91 Nm of ankle torque and a maximum angular velocity of 483 °/sec. The device will be a valuable resource in the clinic, saving time and resources in the AFO prescription process while improving the healthcare of the patient.
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Rapports d'organisations sur le sujet "Healthcare Design for Children"

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Iizuka, Toshiaki, et Hitoshi Shigeoka. Free for Children ? Patient Cost-sharing and Healthcare Utilization. Cambridge, MA : National Bureau of Economic Research, novembre 2018. http://dx.doi.org/10.3386/w25306.

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Drum, Christopher F. Master Planning Model for Healthcare Facility Design. Fort Belvoir, VA : Defense Technical Information Center, juin 2005. http://dx.doi.org/10.21236/ada444001.

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Thomas, Kathleen, Gabriela Stein, Christianna Williams, Mónica Pérez Jolles, Betsy Sleath, Maria Martinez, San Juanita García, Linda Guzman, Charlotte Williams et Joseph Morrissey. Padres Efectivos (Parent Activation) : Skills Latina Mothers Use to Get Healthcare For Their Children. Patient-Centered Outcomes Research Institute (PCORI), août 2018. http://dx.doi.org/10.25302/8.2018.ad.12114900.

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Parsons, Helen M., Hamdi I. Abdi, Victoria A. Nelson, Amy M. Claussen, Brittin L. Wagner, Karim T. Sadak, Peter B. Scal, Timothy J. Wilt et Mary Butler. Transitions of Care From Pediatric to Adult Services for Children With Special Healthcare Needs. Agency for Healthcare Research and Quality (AHRQ), mai 2022. http://dx.doi.org/10.23970/ahrqepccer255.

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Objective. To understand the evidence base for care interventions, implementation strategies, and between-provider communication tools among children with special healthcare needs (CSHCN) transitioning from pediatric to adult medical care services. Data sources. We searched Ovid MEDLINE, Ovid Embase, the Cochrane Central trials (CENTRAL) registry, and CINAHL to identify studies through September 10, 2021. We conducted grey literature searches to identify additional resources relevant to contextual questions. Review methods. Using a mixed-studies review approach, we searched for interventions or implementation strategies for transitioning CSHCN from pediatric to adult services. Two investigators screened abstracts and full-text articles of identified references for eligibility. Eligible studies included randomized controlled trials, quasi-experimental observational studies, and mixed-method studies of CSHCN, their families, caregivers, or healthcare providers. We extracted basic study information from all eligible studies and grouped interventions into categories based on disease conditions. We summarized basic study characteristics for included studies and outcomes for studies assessed as low to medium risk of bias using RoB-2. Results. We identified 9,549 unique references, 440 of which represented empirical research; of these, 154 (16 major disease categories) described or examined a care transition intervention with enough detail to potentially be eligible for inclusion in any of the Key Questions. Of these, 96 studies met comparator criteria to undergo risk of bias assessment; however only 9 studies were assessed as low or medium risk of bias and included in our analytic set. Low-strength evidence shows transition clinics may not improve hemoglobin A1C levels either at 12 or 24 months in youth with type 1 diabetes mellitus compared with youth who received usual care. For all other interventions and outcomes, the evidence was insufficient to draw meaningful conclusions because the uncertainty of evidence was too high. Some approaches to addressing barriers include dedicating time and resources to support transition planning, developing a workforce trained to care for the needs of this population, and creating structured processes and tools to facilitate the transition process. No globally accepted definition for effective transition of care from pediatric to adult services for CSHCN exists; definitions are often drawn from principles for transitions, encompassing a broad set of clinical aspects and other factors that influence care outcomes or promote continuity of care. There is also no single measure or set of measures consistently used to evaluate effectiveness of transitions of care. The literature identifies a limited number of available training and other implementation strategies focused on specific clinical specialties in targeted settings. No eligible studies measured the effectiveness of providing linguistically and culturally competent healthcare for CSHCN. Identified transition care training, and care interventions to
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Castellanos, Katie. Communication Methods in Healthcare for Latinos with Limited English Proficiency : Physician Language Concordance and Children as Translators. Portland State University Library, janvier 2016. http://dx.doi.org/10.15760/honors.252.

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Steinmann, Peter. Can in-service health professional training improve the resuscitation of seriously ill newborns and children in low-income countries ? SUPPORT, 2016. http://dx.doi.org/10.30846/1608152.

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Mortality among seriously ill neonates and children remains high in many low -income countries, even in healthcare facilities with professional staff. Most of these deaths occur within 48 hours of admission. In-service training courses in the emergency care of neonates and children are targeted towards professional healthcare staff. This is seen as a way of reducing mortality through training. However, most courses have been developed in high-income countries and their potential effectiveness in low-income country settings is unclear.
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Gordon, Linsey, et Lucy Dunne. The Re-design and Evaluation of the Patient Gown for an Integrated Healthcare Organization. Ames : Iowa State University, Digital Repository, 2013. http://dx.doi.org/10.31274/itaa_proceedings-180814-457.

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Idris, Iffat. Increasing Birth Registration for Children of Marginalised Groups in Pakistan. Institute of Development Studies (IDS), juillet 2021. http://dx.doi.org/10.19088/k4d.2021.102.

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This review looks at approaches to promote birth registration among marginalised groups, in order to inform programming in Pakistan. It draws on a mixture of academic and grey literature, in particular reports by international development organizations. While there is extensive literature on rates of birth registration and the barriers to this, and consensus on approaches to promote registration, the review found less evidence of measures specifically aimed at marginalised groups. Gender issues are addressed to some extent, particularly in understanding barriers to registration, but the literature was largely disability-blind. The literature notes that birth registration is considered as a fundamental human right, allowing access to services such as healthcare and education; it is the basis for obtaining other identity documents, e.g. driving licenses and passports; it protects children, e.g. from child marriage; and it enables production of vital statistics to support government planning and resource allocation. Registration rates are generally lower than average for vulnerable children, e.g. from minority groups, migrants, refugees, children with disabilities. Discriminatory policies against minorities, restrictions on movement, lack of resources, and lack of trust in government are among the ‘additional’ barriers affecting the most marginalised. Women, especially unmarried women, also face greater challenges in getting births registered. General approaches to promoting birth registration include legal and policy reform, awareness-raising activities, capacity building of registration offices, integration of birth registration with health services/education/social safety nets, and the use of digital technology to increase efficiency and accessibility.
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Anderson, Kristy A., Anne M. Roux, Hillary Steinberg, Tamara Garfield, Jessica E. Rast, Paul T. Shattuck et Lindsay L. Shea. The Intersection of National Autism Indicators Report : Autism, Health, Poverty and Racial Inequity. A.J. Drexel Autism Institute, avril 2022. http://dx.doi.org/10.17918/nairintersection2022.

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This report examines the following two questions: 1) do income-based differences in health and health care outcomes look the same for children with and without autism? and 2) do income-based differences in health and health care outcomes look the same for BIPOC (Black, Indigenous, and People of Color) children with autism and white children with autism? Examining the health and healthcare outcomes of children with autism in combination with other social characteristics offers several advantages. First, we can illuminate how demographics alone, and in combination with other social characteristics of children, are associated with differences in the rates of health and healthcare outcomes they experience. Second, it increases our understanding of the health-related experiences of social groups who are often neglected in research. Third, it provides current and comprehensive evidence on how children with autism experience relative disadvantages related to social determinants of health, which are aspects of the environment that affect health, functioning, and quality-of-life outcomes and risks.
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Bonnema, E., I. Doebber, S. Pless et P. Torcellini. Technical Support Document : Development of the Advanced Energy Design Guide for Small Hospitals and Healthcare Facilities--30% Guide. Office of Scientific and Technical Information (OSTI), mars 2010. http://dx.doi.org/10.2172/977289.

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