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Bibliographies thématiques / End-of-life choice / Livres

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Livres sur le sujet « End-of-life choice »

Auteur : Grafiati

Publié le 9 mars 2023

Mis à jour le 10 mars 2023

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1

Terman, Stanley A. The best way to say goodbye : A legal peaceful choice at the end of life. Carlsbad, CA : Life Transitions Publications, 2005.

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2

1944-, Lindsey Karen, dir. Peaceful dying : The step-by-step guide to preserving your dignity, your choice, and your inner peace at the end of life. Reading, MA : Perseus Books, 1999.

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3

The end of her innocence. Toronto : Harlequin, 2012.

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4

National Health Council (U.S.), dir. Whose choice is it anyway ? : Autonomous decison-making at the end of life : a summary report of the National Health Council's seminar on "The Ethics of Health Care" held on December 1, 1987 at The Harvard Club in New York City. New York : National Health Council, inc., 1988.

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5

Jo, DeMars, dir. Final choices : Making end-of-life decisions. Santa Barbara, Calif : ABC-CLIO, 1992.

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6

Randall, Fiona. End of life choices : Consensus and controversy. Oxford : Oxford University Press, 2010.

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7

S, Downie R., dir. End of life choices : Consensus and controversy. Oxford : Oxford University Press, 2010.

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8

Atkinson, David John. Life and death : Moral choices at the beginning and end of life. Oxford : Oxford University Press, 1985.

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9

Atkinson, David. Life and death : Moral choices at the beginning and end of life. Oxford : Oxford University Press, 1985.

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10

Christner, Anne M. End-of-life decisions : Facing the challenges of medical and ethical choices. Providence, RI : Manisses Communications Group, 1995.

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11

Jenkins, Jerry B. Ominous choices. Wheaton, Ill : Tyndale Kids, 2004.

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12

M, Fitzpatrick Eileen, dir. A better way of dying : How to make the best choices at the end of life. Waterville, Me : Thorndike Press, 2010.

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13

Fitzpatrick, Jeanne. A better way of dying : How to make the best choices at the end of life. New York, N.Y : Penguin Books, 2010.

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14

M, Fitzpatrick Eileen, dir. A better way of dying : How to make the best choices at the end of life. New York : Penguin Books, 2010.

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15

A midwife through the dying process : Stories of healing and hard choices at the end of life. Baltimore : Johns Hopkins University Press, 1996.

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16

The Jewish tradition and choices at the end of life : A new Judaic approach to illness and dying. Lanham, MD : United Press of America, 2001.

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17

Honoring final wishes : How to respect American's choices at the end of life : hearing before the Special Committee on Aging, United States Senate, One Hundred Tenth Congress, second session, Washington, DC, September 24, 2008. Washington : U.S. G.P.O., 2009.

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18

United States. Congress. Senate. Special Committee on Aging. Honoring final wishes : How to respect American's choices at the end of life : hearing before the Special Committee on Aging, United States Senate, One Hundred Tenth Congress, second session, Washington, DC, September 24, 2008. Washington : U.S. G.P.O., 2009.

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19

Final Days : Japanese Culture And Choice at the End of Life. University of Hawaii Press, 2006.

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20

Final Days : Japanese Culture And Choice at the End of Life. University of Hawaii Press, 2005.

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21

Long, Susan Orpett. Final Days : Japanese Culture and Choice at the End of Life. University of Hawaii Press, 2005.

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22

End-of-Life-Care : Promoting Comfort, Choice And Well-being for Older People. Policy Press, 2005.

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23

Miller, Ronald B., Stanley A. Terman et Michael S. Evans. The Best Way to Say Goodbye : A Legal Peaceful Choice At the End of Life. Brand : Life Transitions Publications, 2007.

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24

Fairman, Nathan, et Scott A. Irwin. Depression and the Desire to Die Near the End of Life. Sous la direction de Stuart J. Youngner et Robert M. Arnold. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780199974412.013.25.

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This chapter examines how depression may affect a patient’s ability to make life-shortening decisions within the setting of care near the end of life, as well as a clinician’s willingness to support the patient’s preferences (that is, respecting his autonomy). It considers how the suspicion of depression can make the physician pause even when the obvious choice would be to support the patient’s decision. It also describes some of the defining features of depression, including hopelessness, suicidal ideation, and desire for hastened death. The chapter first reviews depression and similar clinical conditions in the context of end-of-life care before discussing the construct of capacity and the elements of its assessment. It then considers evidence on the relationship between depression and decisional capacity before concluding with suggestions to help guide decision-making.

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25

McCarthy, Michael, et Mark G. Kuczewski. Reframing Care in End-of-Life Care Helpful Themes from a Catholic-Christian Understanding of Death. Sous la direction de Stuart J. Youngner et Robert M. Arnold. Oxford University Press, 2014. http://dx.doi.org/10.1093/oxfordhb/9780199974412.013.5.

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This article proposes an alternative approach to caring for dying persons at the end of life based on three aspects of care—embodied, compassionate, and communal—that have strong roots in the Catholic-Christian theological tradition. Before explaining the theological rationale for an embodied, compassionate, and communal focus in end-of-life care, it considers a number of key concepts in Catholicism-Christianity that provide an important supplement or corrective to the current overemphasis on patient autonomy, which almost exclusively centers on preference or choice. It then discusses the advantages of adopting themes from a Catholic-Christian understanding of death, particularly in the context of palliative care. The article goes on to examine embodiment as the basis of compassionate care within the community and makes the case for compassion as a fundamental element of a spiritual approach to patient care at the end of life.

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26

Lindsey, Karen, et Daniel R. Tobin. Peaceful Dying : The Step-By-Step Guide to Preserving Your Dignity, Your Choice, and Your Inner Peace at the End of Life. Perseus Books Group, 1998.

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27

Rose, Susannah, et Janelle Highland. The Cost of Dying Among the Elderly in the United States. Sous la direction de Stuart J. Youngner et Robert M. Arnold. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780199974412.013.18.

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This chapter examines the empirical evidence related to the reasons for the rising healthcare costs, particularly on end-of-life care and the elderly. It evaluates empirical evidence related to people’s preferences in end-of-life care, providing the foundation for a claim that end-of-life care preferences are varied, which therefore calls for a wide conception of autonomy and choice when it comes to end-of-life care decisions. However, given that the quality end-of-life care is generally poor and costs are high, a conception of autonomy is needed that promotes quality improvement and controls costs. This chapter proposes a conception of soft paternalism and choice architecture that provides palliative care as a default choice for people with serious and chronic diseases. The limitations of this proposal are discussed, including significant cost and resources implications.

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28

Downie, Robin, et Fiona Randall. End of Life Choices : Consensus and Controversy. Oxford University Press, 2009.

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29

Downie, Robin, et Fiona Randall. End of Life Choices : Consensus and Controversy. Oxford University Press, Incorporated, 2009.

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30

Publishing, Jewish Lights. Making Sacred Choices/End of Life-12 Pk. Jewish Lights Publishing, 2000.

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31

Birkholz, Gay Lyn. Conscious Passage : Documenting Your End-of-life Care Choices. Balboa Pr, 2018.

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32

Birkholz, Gay Lyn. Conscious Passage : Documenting Your End-of-Life Care Choices. BalboaPress, 2018.

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33

Board, Ruth E., et Association of Cancer Physicians Staff. End of Life Choices for Cancer Patients : An International Perspective. EBN Health, 2020.

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34

Christner, Anne M. End-Of-Life Decisions : Facing the Challenges of Medical and Ethical Choices. Manisses Communications Group, Incorporated, 1995.

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35

Proot, Catherine, et Michael Yorke. Challenges and Choices for Patient, Carer and Professional at the End of Life. Routledge, 2021. http://dx.doi.org/10.4324/9781003089346.

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36

Challenges and Choices for Patient Carer and Professional at the End of Life. Taylor & Francis Group, 2021.

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37

Special Committee on Aging (senate), United States Senate et United States United States Congress. Honoring Final Wishes : How to Respect American's Choices at the End of Life. Independently Published, 2019.

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38

Challenges and Choices for Patient Carer and Professional at the End of Life. Taylor & Francis Group, 2021.

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39

Thomas, Keri, Ben Lobo et Karen Detering, dir. Advance Care Planning in End of Life Care. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198802136.001.0001.

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Advance Care Planning (ACP) is an essential part of quality end of life care in the UK and in most developed countries, enabling more people to live well and die well as they would choose. In the context of the ageing population, with increasing possibilities for medical interventions, ACP is an crucial consideration, with important implications for the individual person and their family and for our wider population. This book takes a comprehensive look at the subject, helps readers explore a wide range of issues and practicalities in providing ACP; frames the purpose, process, and outcomes; provides updates on national and international research, policy, and practice and includes contributions from experts from around the world. Death will affect us all; it is the one certainty in life. Yet the subject of death remains something of a taboo, we rarely discuss what our preferences would be at end of life, what we would want, where we would want to be cared for, not even with loved ones.

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40

Fitzpatrick, Jeanne, Fitzpatrick, Eileen M. A Better Way of Dying : How to Make the Best Choices at the End of Life. Penguin (Non-Classics), 2010.

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41

Fenker, Richard. Red Button : Creating Good Choices at the End of Life for People Living with Dementia. Cimarron International LLC, 2020.

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42

Quill, Timothy E. A Midwife through the Dying Process : Stories of Healing and Hard Choices at the End of Life. The Johns Hopkins University Press, 2001.

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43

Yorke, Michael, et Catherine Proot. Challenges and Choices for Patient, Carer and Professional at the End of Life : Living with Uncertainty. Taylor & Francis Group, 2021.

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44

Yorke, Michael, et Catherine Proot. Challenges and Choices for Patient, Carer and Professional at the End of Life : Living with Uncertainty. Taylor & Francis Group, 2021.

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45

Fenker, Richard M. The Red Button : Creating Good Choices at the End of Life for People Living with Dementia. Cimarron International LLC, 2021.

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46

Norlander, Linda. Choices at the End of Life : Finding Out What Your Parents Want - Before it's too late. Fairview Press, 2001.

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47

Yorke, Michael, et Catherine Proot. Challenges and Choices for Patient, Carer and Professional at the End of Life : Living with Uncertainty. Taylor & Francis Group, 2021.

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48

Yorke, Michael, et Catherine Proot. Challenges and Choices for Patient, Carer and Professional at the End of Life : Living with Uncertainty. Taylor & Francis Group, 2021.

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49

Gray, Muir, Rammya Matthews et Keri Thomas. A population-based approach to end of life care and advance care planning. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198802136.003.0027.

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A population-based approach takes account of the needs of the people within a given population. A key aspect of this is reducing unwarranted variation and addressing both the underuse of high-value interventions and the overuse of low-value interventions. In the context of end-of-life care, high-value interventions are those that enhance quality of life. In contrast, low-value interventions are those that are futile, those that negatively impact on quality of life, and those that are not in line with the person’s wishes. Advance care planning (ACP) is a means by which a person can document their choices at the end of life; it supports person-centred care and also facilitates the redistribution of investment from low-value to high-value interventions.

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50

Hand, Adrienne, et Mona Hanford. Graceful Exit Book Club Guide : : Face Reality, Make Wise Choices and Find Hope at the End of Life. Independently Published, 2018.

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