Littérature scientifique sur le sujet « Biobanca »

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Articles de revues sur le sujet "Biobanca"

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Meškys, Edvinas. "BIOBANKŲ SAMPRATA IR STATUS QUO LIETUVOJE." Teisė 92 (February 11, 2015): 80–95. http://dx.doi.org/10.15388/teise.2014..3908.

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 Šiame straipsnyje siekiama atskleisti žmogaus biobanko sampratą ir parodyti šios sampratos įvairiapusiškumą užsienio šalių praktikoje, dėl kurio dažnai atsiranda teisinių kliūčių bendrai plėtoti tarpvalstybinius ar tarptautinius mokslinius projektus, kurti europinį biobankų tinklą. Kartu bandoma palyginti biobanką su kitomis biologinių mėginių kolekcijomis ir nustatyti, koks biobanko apibrėžimas galėtų būti priimtinas Lietuvoje. Galiausiai, daug dėmesio straipsnyje skiriama atskirų Lietuvos Respublikos įstatymų analizei, siekiant įvertinti, ar esama teisinė aplinka sukuria pakankamą pag
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Meškys, Edvinas. "TRADICINIO INFORMUOTO ASMENS SUTIKIMO PRITAIKYMO MOKSLINIAMS BIOBANKAMS LIETUVOJE GALIMYBĖS." Teisė 92 (February 11, 2015): 96–108. http://dx.doi.org/10.15388/teise.2014..3907.

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 Šiame straipsnyje siekiama įvertinti medicinos praktikoje išvystyto informuoto asmens sutikimo pritaikymo problematiką mokslinių biobankų veikloje, tai yra, paimant, tvarkant ir atliekant tyrimus su iš žmogaus gauta biologine medžiaga (organais ar jų dalimis, audiniais, ląstelėmis ar jų komponentais), su šia medžiaga susijusia medicinine ar kita asmenį identifikuojančia informacija. Straipsnyje analizuojama, ar nežinant mokslinio tyrimo tikslo, jo trukmės ir galimų padarinių, bei galimo kito, nei buvo išreikštas sutikimas, panaudojimo tikslo asmuo gali būti laikomas tinkamai sutikęs dal
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Veloza Cabrera, Luis Alberto, Carolina Wiesner Ceballos, Martha Lucía Serrano López, Nelsy Ruth Peñaranda Correa, and Antonio Huertas Salgado. "Consideraciones éticas y legales de los biobancos para investigación." Revista Colombiana de Bioética 5, no. 1 (2015): 121. http://dx.doi.org/10.18270/rcb.v5i1.1287.

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<p> Un biobanco es una colección de muestras biológicas y datos asociados con fines diagnósticos, terapéuticos o de investigación. Las actividades llevadas a cabo por los bancos de muestras biológicas conllevan muchos dilemas éticos y legales, por lo que en el ámbito internacional existen diversas normas y recomendaciones establecidas para salvaguardar los derechos de los donantes. En Colombia, el Instituto Nacional de Cancerología considera prioritario la creación de un biobanco con fines de investigación. El propósito de este artículo es realizar una revisión de la literatura, internac
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Salokannel, Marjut, Heta Tarkkala, and Karoliina Snell. "Legacy samples in Finnish biobanks: social and legal issues related to the transfer of old sample collections into biobanks." Human Genetics 138, no. 11-12 (2019): 1287–99. http://dx.doi.org/10.1007/s00439-019-02070-0.

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Abstract Biobank operations started officially in Finland in 2013 when the Biobank Act defining and regulating biobank operations came into force. Since then, ten biobanks have been established and they have started to collect new prospective samples with broad consent. The main corpus of biobank samples, however, consists of approximately 10 million “legacy samples”. These are old diagnostic or research samples that were transferred to biobanks in accordance with the Biobank Act. The focus of this article is on ambiguities concerning these legacy samples and their transfer in terms of legalit
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Verlinden, Michiel, Herman Nys, Nadine Ectors, and Isabelle Huys. "Access to Biobanks: Harmonization Across Biobank Initiatives." Biopreservation and Biobanking 12, no. 6 (2014): 415–22. http://dx.doi.org/10.1089/bio.2014.0034.

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Artene, Stefan-Alexandru, Marius Eugen Ciurea, Stefana Oana Purcaru, et al. "Biobanking in a Constantly Developing Medical World." Scientific World Journal 2013 (2013): 1–5. http://dx.doi.org/10.1155/2013/343275.

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Biobank is a very sophisticated system that consists of a programmed storage of biological material and corresponding data. Biobanks are created to be used in medical research, in clinical and translational medicine, and in healthcare. In the past 20 years, a large number of biobanks have been set up around the world, to support the modern research directions in medicine such as omix and personalized medicine. More recently, embryonic and adult stem cell banks have been developed. Stem cell banking was reported to be required for medical research as well as clinical transplant applications. Th
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Kryukova, E. S., and V. D. Ruzanova. "Legal regime of biobanks in domestic legislation." Juridical Journal of Samara University 7, no. 1 (2021): 57–62. http://dx.doi.org/10.18287/2542-047x-2021-7-1-57-62.

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In the article on the basis of a critical analysis of the existing positions in the doctrine the concept of a biobank as an object of rights was formulated. At the same time, it is proposed to distinguish between the organizations in charge of biobanks and the collections themselves. It was concluded that biobank is a complex object, which is differentiated unity, since its elements, on the one hand, are autonomous, but on the other hand, are interconnected and interdependent. It is emphasized that the formation of a single legal regime of biobanks is complicated by the substantive heterogenei
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Kaye, Jane, Jessica Bell, Linda Briceno, and Colin Mitchell. "Biobank Report: United Kingdom." Journal of Law, Medicine & Ethics 44, no. 1 (2016): 96–105. http://dx.doi.org/10.1177/1073110516644202.

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The United Kingdom is a leader in genomics research, and the presence of numerous types of biobanks and the linking of health data and research within the UK evidences the importance of biobank-based research in the UK. There is no biobank-specific law in the UK and research on biobank materials is governed by a confusing set of statutory law, common law, regulations, and guidance documents. Several layers of applicable law, from European to local, further complicate an understanding of privacy protections. Finally, biobanks frequently contain data in addition to the samples; the legal framewo
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Cervo, Silvia, Paolo De Paoli, Tiziana Perin, Vincenzo Canzonieri, and Agostino Steffan. "Cost-Effective Organization of an Institutional Human Cancer Biobank in a Clinical Setting: CRO-Biobank Experience Toward Harmonization." International Journal of Biological Markers 30, no. 2 (2015): 243–51. http://dx.doi.org/10.5301/jbm.5000138.

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This report describes the organization of the Biobank of the CRO Aviano National Cancer Institute, Aviano (CRO- Biobank), Italy, implemented as a structured facility dedicated to collecting human biological samples. It describes a particular disease-specific biobank and the integration of a research biobank in a clinical setting. The CRO-Biobank's mission is rooted in supporting and implementing cancer research, with its main focus on optimizing technical and quality processes, while also investigating ethical, legal and IT topics. The CRO-Biobank has implemented processes aimed at guaranteein
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Jiménez-Gómez, Giovanny, María L. Luna-González, Silvia Becerra-Bayona, Norma Serrano Díaz, Elizabeth Guio-Mahecha, and René Lobo-Quintero. "Aplicación de las TIC para monitoreo remoto de biobancos con fines de investigación." Revista Facultad de Ciencias de la Salud UDES 4, no. 2.S1 (2017): 18. http://dx.doi.org/10.20320/rfcsudes.v4i2.s1.r05.

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Introducción. Los biobancos se encargan de gestionar colecciones de material biológico (MB) con fines diagnósticos o de investigación biomédica, por lo cual deben estar organizados como unidades técnicas con criterios de calidad, orden y destino. La Universidad Autónoma de Bucaramanga cuenta con un biobanco formado por ocho ultracongeladores que contienen MB colectado en proyectos de investigación y que requiere de supervisión para garantizar un entorno óptimo. Objetivo. Diseñar y validar un sistema de monitoreo para un biobanco utilizando hardware libre que vigile de manera constante las cond
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Thèses sur le sujet "Biobanca"

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COSENZA, Lucia Carmela. "Cellular and biomolecular technologies for stratification of β thalassemia patients: applications in theranostics". Doctoral thesis, Università degli studi di Ferrara, 2015. http://hdl.handle.net/11392/2389112.

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The research described in the present PhD Thesis has been conducted in the context of a multicenter FP7 European Project called THALAMOSS (THalassemia MOdular Stratification System), having as major objective the identification of molecular markers for the development of personalized therapies for hemoglobinopathies, in particular ß-thalassemia. The ß-thalassemias are an autosomal recessive genetic disorders caused by the absence or reduction of ß-globin chains of adult hemoglobin, for which targeted and definitive treatments are, at present, not available. In order to sustain project bas
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POZZI, STEFANO. "Caratterizzazione del trascrittoma di PBMCs di pazienti affetti da aneurisma dell'aorta addominale e da ostruzione carotidea." Doctoral thesis, Università degli Studi di Milano-Bicocca, 2009. http://hdl.handle.net/10281/7479.

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Atherosclerosis (also known as Arteriosclerotic Vascular Disease or ASVD) is the condition in which an artery wall thickens as the result of a build-up of fatty materials such as cholesterol. It is a syndrome affecting arterial blood vessels, a chronic inflammatory response in the walls of arteries, in large part due to the accumulation of macrophage white blood cells and promoted by Low-density lipoproteins (plasma proteins that carry cholesterol and triglycerides) without adequate removal of fats and cholesterol from the macrophages by functional high density lipoproteins (HDL). It is common
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Bozzetti, Rodrigo Porto. "A dimensão informacional e documental dos biobancos: uma análise do UK Biobank." Instituto Brasileiro de Informação em Ciência e Tecnologia/Universidade Federal do Rio de Janeiro, 2016. http://ridi.ibict.br/handle/123456789/888.

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Submitted by Priscilla Araujo (priscilla@ibict.br) on 2016-10-10T17:10:18Z No. of bitstreams: 2 license_rdf: 0 bytes, checksum: d41d8cd98f00b204e9800998ecf8427e (MD5) RODRIGO PORTO BOZZETTI mestrado 2016.pdf: 883197 bytes, checksum: 050ebfc1523b4008448c5a32d7a953cc (MD5)<br>Made available in DSpace on 2016-10-10T17:10:18Z (GMT). No. of bitstreams: 2 license_rdf: 0 bytes, checksum: d41d8cd98f00b204e9800998ecf8427e (MD5) RODRIGO PORTO BOZZETTI mestrado 2016.pdf: 883197 bytes, checksum: 050ebfc1523b4008448c5a32d7a953cc (MD5) Previous issue date: 2016-04-29<br>Investiga as dimensões informaciona
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Breimelyte, Jurate. "Open Biobanks. Reframing intellectual property rights in biobanking." Doctoral thesis, Universitat Autònoma de Barcelona, 2018. http://hdl.handle.net/10803/664270.

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Esta tesis se enfrentó al reto de resolver la cuestión sobre si los derechos de propiedad intelectual creados por los biobancos pueden gestionarse más abiertamente para garantizar la distribución equitativa del conocimiento y las mejoras de la investigación genética. Se propone fomentar que los biobancos usen licencias más abiertas en sus obras protegidas por derechos de autor, bases de datos e inventos patentados. Para facilitar la transferencia de conocimiento entre biobancos y garantizar que la investigación genética mejore, se realiza una reflexión sobre la aplicación de licencias abiertas
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Argudo, Portal Violeta. "Biomedicina en proceso de elaboración: Un estudio cualitativo sobre los biobancos como infraestructuras para la investigacion biomedica." Doctoral thesis, Universitat Autònoma de Barcelona, 2021. http://hdl.handle.net/10803/674032.

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Durant la segona meitat del segle passat es van estabilitzar algunes tecnologies i maneres de pensar i generar coneixement entorn del que s’ha vingut a denominar biomedicina, la medicina biologicista posterior a la Segona Guerra Mundial. La criopreservació en glicerol, el desenvolupament de maquinària per a la producció de baixes temperatures, l’estandardització de les anàlisis biològiques, la tècnica PCR o la seqüenciació del genoma humà han estat alguns dels esdeveniments que han propiciat l’auge de les ciències “ómicas” i la molecularització de la vida. Els biobancs, un tipus de bioreposito
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Baptista, Rosanita Ferreira e. "Coleções de material humano para uso em pesquisa: controvérsias e redes na construção da regulamentação de biobancos e biorrepositórios no Brasil." Faculdade de Filosofia e Ciências Humanas, 2013. http://repositorio.ufba.br/ri/handle/ri/18825.

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Submitted by Oliveira Santos Dilzaná (dilznana@yahoo.com.br) on 2016-04-04T14:54:45Z No. of bitstreams: 1 Tese de Rosanita Ferreira e Baptista.pdf: 2893108 bytes, checksum: 82b1fb069c85249aab41ed18da8212cb (MD5)<br>Approved for entry into archive by Ana Portela (anapoli@ufba.br) on 2016-04-06T14:26:35Z (GMT) No. of bitstreams: 1 Tese de Rosanita Ferreira e Baptista.pdf: 2893108 bytes, checksum: 82b1fb069c85249aab41ed18da8212cb (MD5)<br>Made available in DSpace on 2016-04-06T14:26:35Z (GMT). No. of bitstreams: 1 Tese de Rosanita Ferreira e Baptista.pdf: 2893108 bytes, checksum: 82b1fb069c85
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Castelhano, Marta Guilherme Pimentel. "Development and implementation of a veterinary biobank to support biomedical research : the Cornell Veterinary Biobank." Master's thesis, Universidade de Lisboa, Faculdade de Medicina Veterinária, 2017. http://hdl.handle.net/10400.5/15641.

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Maira, Alessandra. "Le biobanche di embrioni." Thesis, Universita' degli Studi di Catania, 2011. http://hdl.handle.net/10761/377.

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Con la presente trattazione ci si e' posto l' obbiettivo di affrontare la questione relativa alla conservazione degli embrioni prodotti tramite le tecniche di fecondazione artificiale e non immediatamente impiantati. In assenza di specifiche disposizioni normative in grado di regolamentare tale materia, si e' cercato di individuare quali possano essere gli obblighi giuridici ed etici che incombono su un centro che si occupa della conservazione degli embrioni residuali, anche alla luce degli interventi comunitari in materia di biobanche, della legge 40/2004 e delle linee guida adottate dal Mi
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Hirschman, Sarah (Sarah Margaret). "Biobank for America." Thesis, Massachusetts Institute of Technology, 2011. http://hdl.handle.net/1721.1/63051.

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Thesis (M. Arch.)--Massachusetts Institute of Technology, Dept. of Architecture, 2011.<br>Cataloged from PDF version of thesis.<br>Includes bibliographical references (p. 116-120).<br>More than 300 million biospecimens - blood samples, saliva swabs, excised tumors - are housed in different collections all over the country right now. Meanwhile, biometric data is constantly being compiled by sophisticated security systems, by lifestyle products, and even by ordinary ATMs. Because private companies, hospitals, for-profit testing facilities, and security companies 'own' the information they collec
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Chobisara, Tarmphong. "Partnership and biobank governance." Thesis, University of Edinburgh, 2017. http://hdl.handle.net/1842/23440.

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The forward march of biobanking creates the need for an alternative approach to biobank governance. Biobanking encourages medical advancement by making the conduct of health-related research more efficient, by minimising physical harms to participants, and by facilitating personalised medicine and greater understandings of disease. Nonetheless, its characteristics that distinguish it from general health-related research often give rise to many ethical and social issues. For example, multiple and unexpected uses of biobank resources can render conventional informed consent inadequate for safegu
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Livres sur le sujet "Biobanca"

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Lenk, Christian, Judit Sándor, and Bert Gordijn, eds. Biobanks and Tissue Research. Springer Netherlands, 2011. http://dx.doi.org/10.1007/978-94-007-1673-5.

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1958-, Gottweis Herbert, and Petersen, Alan R., Ph. D., eds. Biobanks: Governance in comparative perspective. Routledge, 2008.

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Gert, Almind, ed. Health science information banks: Biobanks. Danish Medical Research Council, 1996.

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1958-, Gottweis Herbert, and Petersen, Alan R., Ph. D., eds. Biobanks: Governance in comparative perspective. Routledge, 2008.

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Robbio, Antonella De. Biobanks: Patents or open science? Woodhead Publishing, 2013.

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Matera-Witkiewicz, Agnieszka, Joanna Gleńska-Olender, Izabela Uhrynowska-Tyszkiewicz, et al. Manual of Biobank Quality Management. Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-12559-1.

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1975-, Nishi Yoshito, ed. Coca: Un biobanco : investigación científica sobre alimentación, curación y regeneración. t'ika & teko, 2012.

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Chen, Zhengming, ed. Population Biobank Studies: A Practical Guide. Springer Singapore, 2020. http://dx.doi.org/10.1007/978-981-15-7666-9.

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1962-, Kaye Jane, and Stranger Mark, eds. Principles and practice in biobank governance. Ashgate, 2009.

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Institute, Cambridge Healthtech. The Science of BioBanking: Investing in the future : November 16-17, 2009, Crowne Plaza, Philadelphia City Center, Philadelphia, PA : highlights of conference presentations. Cambridge Healthtech Institute, 2009.

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Chapitres de livres sur le sujet "Biobanca"

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Tzortzatou, Olga, and Anastasia Siapka. "Mapping the Biobank Landscape in Greece." In GDPR and Biobanking. Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-49388-2_16.

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AbstractThe biobank landscape in Greece is mainly defined by tissue and data collections created in the course of clinical practice whose samples are subsequently repurposed for research. Given that there is no specific Greek biobank law, these collections have been so far governed through provisions drawn from the domestic civil and constitutional legal armamentarium concerning (biomedical) research as well as soft and hard EU and international laws. This chapter provides an empirical overview of the biobank landscape in Greece, describing existing biobanks and tissue collections potentially
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Befring, Anne Kjersti. "Norwegian Biobanks: Increased Complexity with GDPR and National Law." In GDPR and Biobanking. Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-49388-2_18.

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AbstractNorway is generally regarded as having good opportunities for biobank research because of Biobank Norway—its national infrastructure of biobanks—which represents one of the world’s largest existing resources within biobanking. It covers both consented population-based and disease-specific clinical biobanks. However, the regulatory framework in Norway for biobanking is fragmented, which makes navigating the legal landscape challenging.The Personal Data Act (PDA) implements the General Data Protection Regulation (GDPR), and a few adjustments were made in the national health legislation i
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Staunton, Ciara. "Individual Rights in Biobank Research Under the GDPR." In GDPR and Biobanking. Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-49388-2_6.

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AbstractThe coming into force of the General Data Protection Regulation (GDPR) on 25 May 2018 has brought about considerable changes in how data may collected, stored and used. Biobanks, which require the collection, use and re-use of large quantities of biological samples and data, will be affected by the proposed changes. In seeking to require ‘data protection by design’, the GDPR provides data subjects with certain individual rights. They are, the right to be informed, the right of access, the right to rectification, the right to erasure, the right to restrict processing, the right to data
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Lalova, Teodora, Anastassia Negrouk, Laurent Dollé, et al. "An Overview of Belgian Legislation Applicable to Biobank Research and Its Interplay with Data Protection Rules." In GDPR and Biobanking. Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-49388-2_10.

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AbstractThis contribution aims to present in a clear and concise manner the intricate legal framework for biobank research in Belgium. In Part 1, we describe the Belgian biobank infrastructure, with a focus on the concept of biobank. In Part 2, we provide an overview of the applicable legal framework, namely the Act of 19 December 2008 on Human Body Material (HBM), and its amendments. Attention is given to an essential piece of self-regulation, namely the Compendium on biobanks issued by the Federal Agency on Medicine Products and Health (FAMPH). Furthermore, we delineate the interplay with re
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Nordberg, Ana. "Biobank and Biomedical Research: Responsibilities of Controllers and Processors Under the EU General Data Protection Regulation." In GDPR and Biobanking. Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-49388-2_5.

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AbstractBiobanks are essential infrastructures in current health and biomedical research. Advanced scientific research increasingly relies on processing and correlating large amounts of genetic, clinical and behavioural data. These data are particularly sensitive in nature and the risk of privacy invasion and misuse is high. The EU General Data Protection Regulation (GDPR) developed and increased harmonisation, resulting in a framework in which the specific duties and obligations of entities processing personal data—controllers and processors—were defined. Biobanks, in the exercise of their fu
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Stenbeck, Magnus, Sonja Eaker Fält, and Jane Reichel. "Swedish Law on Personal Data in Biobank Research: Permissible But Complex." In GDPR and Biobanking. Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-49388-2_21.

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AbstractThis chapter describes the regulatory and organisational infrastructure of biobank research in Sweden, and how the introduction of the GDPR affects the possibilities to use biobank material in future research. The Swedish legislator has chosen a rather minimalistic approach in relation to the research exception in Article 89 GDPR and has only enacted limited general exceptions to the data protection rules. This may be partly explained by the comprehensive right to public access to official documents which gives researchers vast access to information held in registries, albeit condition
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Duguet, Anne-Marie, and Jean Herveg. "Safeguards and Derogations Relating to Processing for Scientific Purposes: Article 89 Analysis for Biobank Research." In GDPR and Biobanking. Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-49388-2_7.

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AbstractWhen complying with appropriate safeguards, the processing of personal data for scientific research under the GDPR benefits from a special regime which is of interest for biobank research. On the one hand, under this condition, the further processing of personal data will not be incompatible with the initial purposes for which the data were originally collected and processed and it allows for retaining data for longer periods of time for scientific research. Complying with this condition is a condition to lift the prohibition to process special categories of personal data in the contex
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Dzyuba, Borys, and William V. Holt. "Biobanks." In Cryobiology for South American Neotropical Fish Species. CRC Press, 2024. http://dx.doi.org/10.1201/9781003269441-3.

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Crouch, Mair. "Biobanks." In Medical Genetics and Law. Springer Nature Switzerland, 2025. https://doi.org/10.1007/978-3-031-78958-8_9.

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Nahler, Gerhard. "biobank." In Dictionary of Pharmaceutical Medicine. Springer Vienna, 2009. http://dx.doi.org/10.1007/978-3-211-89836-9_119.

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Actes de conférences sur le sujet "Biobanca"

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Ember, Katherine J. I., Frédérick Dallaire, Éloïse D’Amours, et al. "Low-cost Raman Spectroscopy for Detection of Lung Cancer in a National Blood Plasma Biobank." In Clinical and Translational Biophotonics. Optica Publishing Group, 2025. https://doi.org/10.1364/translational.2025.tm1f.4.

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We present a low-cost lung cancer detection technique using Raman spectroscopy. Our study is tested in 381 patients from the Quebec Respiratory Health Network Biobank, and may bring lung cancer screening to a wider population.
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Oliveira, LC, M. Silva, CRS Nascimento, RC Azevedo, CG Stefanoff, and TS Salles. "DESAFIOS E PERSPECTIVAS NA SELEÇÃO, PARAMETRIZAÇÃO, IMPLANTAÇÃO E IMPLEMENTAÇÃO DE UM SISTEMA DE GESTÃO DE ACERVOS PARA BIOBANCOS." In Resumos do 55º Congresso Brasileiro de Patologia Clínica/Medicina Laboratorial. Zeppelini Editorial e Comunicação, 2023. http://dx.doi.org/10.5327/1516-3180.141s2.9016.

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Objetivo: Biobancos são estruturas institucionalizadas que garantem a preservação por longa duração de material biológico (MB), que pode ser usado em pesquisa, desenvolvimento tecnológico e inovação. A ABNT NBR ISO 20387 (requisitos para atividades de biobancos) ampliou a definição de biobancos, além de MB humano, incluindo outros organismos (vírus, bactéria, fungo, planta etc.). Com a integração de diferentes tipologias de MB em uma mesma estrutura, a gerência de acervos que integre toda essa cadeia de custódia é um grande desafio. Assim, este trabalho objetivou selecionar e parametrizar um s
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Souza, Rayana Baraúna de, Pedro Henrique Said Faria, Maria Isabelle Leão Pedrosa, Fellipe Gabriel Ferreira Mendonça, and Alvaro Hafiz Cury. "Biobanco De Dentes Humanos - FAO/UFAM." In XXXII Congresso de Iniciação Científica. Even3, 2024. http://dx.doi.org/10.29327/xxxii-congresso-de-iniciacao-cientifica-380957.818935.

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Seebode, Christian, Matthias Ort, Peter Hufnagl, and Christian R. A. Regenbrecht. "Next generation biobanks." In 2015 IEEE International Conference on Big Data (Big Data). IEEE, 2015. http://dx.doi.org/10.1109/bigdata.2015.7363896.

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Hyysalo, Jarkko, Anja Keskinarkaus, Gavin Harper, and Jaakko Sauvola. "Architecture Enabling Service-oriented Digital Biobanks." In Hawaii International Conference on System Sciences. Hawaii International Conference on System Sciences, 2017. http://dx.doi.org/10.24251/hicss.2017.420.

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Afifi, Nahla. "Qatar Population Biobank: Cohort Profile." In Congenital Dystrophies - Neuromuscular Disorders Precision Medicine: Genomics to Care and Cure. Hamad bin Khalifa University Press (HBKU Press), 2020. http://dx.doi.org/10.5339/qproc.2020.nmd.21.

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Švandere, Alise, and Ilze Mileiko. "Pētniecības biobanku izpētes rezultātu atgriešana: donoru skatījums." In LU Studentu zinātniskā konference "Homo et". LU Akadēmiskais apgāds, 2020. http://dx.doi.org/10.22364/lu.szk.1.rk.02.

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Kimura, Leonardo T., and Marcos A. Simplício Jr. "Amazon Biobank: a Blockchain-based Genomic Database for Bioeconomy." In Anais Estendidos do Simpósio Brasileiro de Segurança da Informação e de Sistemas Computacionais. Sociedade Brasileira de Computação - SBC, 2024. http://dx.doi.org/10.5753/sbseg_estendido.2024.242034.

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The bioeconomy, an industrial production model based on biological resources and sustainable development, can be considered an emerging opportunity for biodiversity-abundant regions, such as the Amazon rainforest. However, existing genomic repositories lack data traceability and economic benefit-sharing mechanisms, resulting in limited motivation for data providers to contribute. To address this challenge, we present Amazon Biobank, a communitydriven genetic database. By leveraging blockchain and peer-to-peer (P2P) technologies, we enable distributed and transparent data sharing; meanwhile, by
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Kimura, Leonardo T., and Marcos A. Simplício Jr. "Amazon Biobank: a Blockchain-based Genomic Database for Bioeconomy." In Anais Estendidos do Simpósio Brasileiro de Sistemas de Informação. Sociedade Brasileira de Computação (SBC), 2024. http://dx.doi.org/10.5753/sbsi_estendido.2024.238604.

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The bioeconomy, an industrial production model based on biological resources and sustainable development, can be considered an emerging opportunity for biodiversity-abundant regions, such as the Amazon rainforest. However, existing genomic repositories lack data traceability and economic benefit-sharing mechanisms, resulting in limited motivation for data providers to contribute. To address this challenge, we present Amazon Biobank, a community-driven genetic database. By leveraging blockchain and peer-to-peer (P2P) technologies, we enable distributed and transparent data sharing; meanwhile, b
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Newman, Lee S., Lisa A. Maier, John R. Balmes, et al. "Beryllium BioBank And Opportunities For Research." In American Thoracic Society 2012 International Conference, May 18-23, 2012 • San Francisco, California. American Thoracic Society, 2012. http://dx.doi.org/10.1164/ajrccm-conference.2012.185.1_meetingabstracts.a2314.

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Rapports d'organisations sur le sujet "Biobanca"

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Nogales Calvo, Cristian, Montserrat Puiggròs, and Raquel Quintilla Mateo. D5.1 - Initial whitepaper on a virtual EU biobank platform for patient recruitment pilots. REPO4EU, 2023. https://doi.org/10.58647/repo4eu.202300d5.1.

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Within the framework of REPO4EU, we intend to establish a comprehensive European biobank network for disease endotyping and pre-test patient recruitment. Our specific focus lies in conducting biomarker studies relevant to future clinical trials involving the repurposing of drugs. Our proposed methodology entails the creation of a virtual connection between major European biobanks in close collaboration with the Biobanking and Biomolecular Resources Research Infrastructure (BBMRI). This connection will grant us access to relevant data, facilitate the retrieval of stored samples for stable bioma
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Hospital de Clínicas de Porto Alegre, Grupo de Pesquisa em Pós-Graduação do. Biobanco Covid-19. Hospital de Clínicas de Porto Alegre, 2020. http://dx.doi.org/10.22491/hcpa-biobanco.

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D.H. Kaye. Bioethical Biobanks: Three Concerns in Designing and Using Law Enforcement DNA Identification Databases. Office of Scientific and Technical Information (OSTI), 2006. http://dx.doi.org/10.2172/893638.

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Ryan, Matthew, Neerupma Bhardwaj, Miguel Camara, et al. Securing the future of microbiome research and innovation: the need for biobanking infrastructure in the UK. CABI, 2024. http://dx.doi.org/10.1079/20240382445.

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This report provides an in-depth review of the science and opportunities in microbiome biobanking, inspired by the success of the UK Biobank. It delivers actionable recommendations to establish a world-leading "UK Microbiome Biobank" (UKMB) to support academic and industrial research. The report highlights the importance of microbes in health, agriculture, and the environment, and the need to conserve microbial resources for research and innovation. Key recommendations include establishing the UKMB as a hub-and-spoke model with thematic areas, incorporating existing infrastructure, promoting d
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Emotional abuse during childhood is linked with differences in brain structure. ACAMH, 2020. http://dx.doi.org/10.13056/acamh.14335.

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Delia Gheorghe and colleagues at the University of Oxford have harnessed data from the UK Biobank to delineate the relationship between adverse experiences and brain structure. The researchers accessed brain imaging data together with retrospective reports of childhood adversity and adulthood partner abuse from more than 6,000 adults (mean age, 62.1 years).
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