Livres : « Associations – Patients »

1

Baggott, Rob. Speaking for patients and carers : Health consumer groups and the policy process. Houndmills, Basingstoke, Hampshire : Palgrave Macmillan, 2005.

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2

Wood, Bruce. The politics of disease-related patients' associations : An Anglo-American comparison. Manchester : Department of Government, University of Manchester, 1999.

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3

Burleigh, Karen Sarita. Associations among plasma homocysteine, amino acids and nutritional status in hemodialysis patients. Ottawa : National Library of Canada, 2001.

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4

United States. Agency for International Development., International Community of Women living with HIV/AIDS., Global Network of People Living with HIV/AIDS. et Synergy Project, dir. Directory of associations of people living with HIV/AIDS. 2^e éd. Washington, D.C : Social & Scientific Systems under The Synergy Project, 2004.

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5

Matos, Ana Raquel, et Mauro Serapioni. Saúde, participação e cidadania : Experiências do sul da Europa. Coimbra : CES, 2014.

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6

Shumar, Erik. Associations between Homelessness and Psychiatric Symptom Severity and How Homelessness Interacts with Risk Factors among First-Admission Psychiatric Patients. [New York, N.Y.?] : [publisher not identified], 2014.

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7

Roscher, Roland. Der Beitrag der Freien Wohlfahrtspflege zum Gemeinwohl am Beispiel der Suchtkrankenhilfe. Baden-Baden : Nomos, 1999.

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8

Worldwide, HealthLink, dir. CCRDA HIV/AIDS members' directory. Addis Ababa, Ethiopia : Consortium of Christian Relief and Development Association (CCRDA), 2011.

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9

Perry, Angela. American Medical Association guide to talking to your doctor. New York : Wiley, 2001.

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10

McKibben, Sherry A. Daunting tasks, dedicated people : Stories in the management of change in HIV/AIDS organizations. Edmonton : Muttart Foundation, 2001.

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11

Green, André. Associations (presque) libres d'un psychanalyste. Paris : Albin Michel, 2006.

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12

The public shaping of medical research : Patient associations, health movements and biomedicine. London : Routledge, Taylor & Francis Group, 2015.

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13

Association, American Lung. Implementing the American Lung Association's early childhood asthma programs. [New York] : The Association, 2001.

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14

Marie-Jo, Sourty-Le Guellec, et Centre de recherche d'étude et de documentation en économie de la santé., dir. La Morbidité hospitalière aux Etats-Unis et en France : Association de diagnostics. Paris : CREDES, 1990.

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15

Medical Library Association. Consumer and Patient Health Information Section. Consumer and Patient Health Information Section of the Medical Library Association. [Chicago, Ill.] : Medical Library Association, 2001.

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16

Betschart-Roemer, Jean. American Diabetes Association guide to raising a child with diabetes. 3^e éd. Alexandria, Va : American Diabetes Association, 2011.

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17

Association, British Kidney Patient, dir. The Silver lining appeal in aid of the British Kidney Patient Association. Bordon : British Kidney Patient Association, 1996.

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18

Isnawati, Muflihah. Association of serum leptin concentration and body fatness in chronic renal failure patients on haemodialysis. [London] : University of Surrey Roehampton, 2000.

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19

Association, American Heart. American Heart Association guide to heart attack : Treatment, recovery, and prevention. New York : Times Books, 1996.

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20

V, Joga Rao S., National Law School of India University. Institute of Law and Ethics in Medicine. et Dr Reddy's Laboratories, dir. Lawshop on Doctor, Patient, and the Law in association with Dr. Reddy's Laboratories. Bangalore : Institute of Law and Ethics in Medicine, National Law School of India University, 2006.

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21

1946-, Dan Bruce B., et Young Roxanne K, dir. A Piece of my mind : A collection of essays from The Journal of the American Medical Association. New York : Feeling Fine, 1988.

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22

(Association), Aides. Réponses associatives à la lutte contre le sida en Afrique. 2^e éd. Paris] : AIDES, 2005.

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23

Association, British Complementary Medicine. Handbook of complementary medicine qualifications : The definitive guide for doctors and patients : how to find a competent, safe and qualified complementary medicine practitioner. Cheltenham : BCMA, 2001.

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24

Julian, Hughes, dir. Palliative care in severe dementia : In association with nursing and residential care. London : Quay, 2006.

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25

David, Lipscombe, et Greater London Association of Community Health Councils., dir. Losing patients : A report on priority groups for the Greater London Association of Community Health Councils. London : GLACHC, 1987.

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26

Association, British Medical. Special report of the council of the British Medical Association on the Government's white paper "Workingfor Patients". London : British Medical Association, 1989.

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27

Siminerio, Linda M. American Diabetes Association guide to raising a child with diabetes. 2^e éd. Alexandria, VA : American Diabetes Association, 2000.

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28

K, Young Roxanne, dir. A piece of my mind : A new collection of essays from JAMA, the Journal of the American Medical Association. [Chicago, IL] : AMA Press, 2000.

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29

Malis, Volk Ruti, et Medical Library Association, dir. The Medical Library Association guide to cancer information : Authoritative, patient-friendly print and electronic resources. New York : Neal-Schuman, 2007.

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30

Avery, Wendy. Dysphagia care and related feeding concerns for adults : A self-paced clinical course from the American Occupational Therapy Association. 2^e éd. Bethesda, MD : AOTA, 2010.

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31

Association, British Medical. Special report of the Council of the British Medical Association on the Government's white paper"Working for patients". London : British Medical Association, 1989.

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32

Association, British Medical. Special report of the Council of the British Medical Association on the Government's white paper "Working for Patients". London : B.M.A., 1989.

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33

Speaking for Patients and Carers. Palgrave Macmillan, 2004.

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34

Allsop, Judith, Kathryn Jones et Rob Baggott. Speaking for Patients and Carers. Palgrave Macmillan, 2004.

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35

Allsop, Judith, Kathryn Jones et Rob Baggott. Speaking for Patients and Carers : Health Consumer Groups and the Policy Process. Palgrave Macmillan, 2006.

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36

Allsop, Judith, Kathryn Jones et Rob Baggott. Speaking for Patients and Carers : Health Consumer Groups and the Policy Process. Ebsco Publishing, 2005.

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37

Patient Power ? : The Politics of Patients' Associations in Britain and America (State of Health Series). OPEN UNIVERSITY PRESS, 2000.

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38

Wood. Patient Power ? Open University Press, 2000.

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39

Viehöver, Willy, Peter Wehling et Sophia Koenen. Public Shaping of Medical Research : Patient Associations, Health Movements and Biomedicine. Taylor & Francis Group, 2014.

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40

Balboni, Michael J., et Tracy A. Balboni. Spirituality and End-of-Life Outcomes. Sous la direction de Michael J. Balboni et Tracy A. Balboni. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780199325764.003.0003.

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A growing number of studies show prospective associations between patient spirituality and quality of life. Evidence suggests that as physical health worsens, spiritual health holds a central role in determining patient well-being. Spirituality may enable patients to endure the suffering that comes with advanced illness and dying. Growing evidence also indicates that treatment preferences, medical decisions, and medical utilization are shaped by patients’ religiosity and the level of spiritual support from the medical team and religious communities. Spiritual support from the medical system is associated with increased hospice use, decreased aggressive care, and cost differences in the final week of life. This suggests that medical system spiritual support is an essential component that lessens futile medical treatment near life’s end. Those clinicians who are proficiently “fluent” in engaging religious beliefs may be better able to influence patients in making medical decisions. National standards have begun to incorporate these results.

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41

American Brain Tumor Association : [patient education materials]. Des Plaines, Ill : The Association, 1996.

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42

Lehmann, Peter. Are Users and Survivors of Psychiatry Only Allowed to Speak about their Personal Narratives ? Sous la direction de John Z. Sadler, K. W. M. Fulford et Cornelius Werendly van Staden. Oxford University Press, 2014. http://dx.doi.org/10.1093/oxfordhb/9780198732365.013.5.

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In modern psychiatry, professionals claim to speak to patients as equals, to take them seriously as a person. In this article, the author shares his personal experience, in which he—like other former psychiatric inmates—is reduced to the role of a former patient who is expected only to speak about his personal patient narrative. This happens despite the fact that he received international awards in acknowledgement of exceptional scientific and humanitarian contributions about how to minimize risks of withdrawal from psychiatric drugs, build alternatives beyond psychiatry and develop possibilities for self-help for individuals experiencing madness and strategies toward implementing humane and ethical treatment. Can psychiatry solve its intrinsic ethical problems when professionals do not leave behind their roles as “experts” (and users and survivors of psychiatry their roles as “patients”) and their associations continue to refuse even discussion about psychiatric human rights violations?

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43

Müller, Saskia, dir. Patient Bezirksklinik. Ergon – ein Verlag in der Nomos Verlagsgesellschaft, 2020. http://dx.doi.org/10.5771/9783956506253.

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As a relatively new discipline, psychiatry always strived to live up to the latest medical standards. In doing so, it had to let itself be judged above all by its institutions. However, with each step forward taken in the field of medicine, these buildings were regarded as out of date as quickly as they were built. In this respect, therefore, district hospitals in Bavaria represent a special case. In a few decades and in line with the development of medicinal treatment and new concepts in hospitals, therapy and care, they became specialist hospitals. However, constant calls for modernisation have raised questions about how their old architecture can be integrated and continued to be used. In 2019, the ‘Bezirksheimatpflege Mittelfranken’, the association responsible for the cultivation of regional values and traditions in Middle Franconia, organised a conference in this regard called ‘District Hospitals and the Preservation of Buildings of Special Architectural Interest’. The lectures from the conference are compiled in this book and are supplemented by other contributions. Eight essays underline the tremendous importance of such district hospitals and provide insights into the problems posed by their maintenance, use and further development.

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44

Beheiry, Hossam El. Neurophysiology/Neuroprotection. Sous la direction de David E. Traul et Irene P. Osborn. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190850036.003.0027.

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Intracerebral hemorrhage (ICH) is a catastrophic event that may lead to severe disability or death. It is associated with major disruption of intracranial neurophysiology and subsequent neuronal tissue injury. The etiology of ICH may be primary (e.g., hypertensive) or secondary (e.g., traumatic). Treatment options include conservative management or neurosurgical intervention in selected patients. In order to manage these challenging cases, the anesthesiologist and the intensivist should have thorough knowledge pertaining to neurophysiologic concepts of cerebral blood flow, cerebral autoregulation, and neuroprotection principles. Additionally, the specialized team managing the patient with ICH should be cognizant of the most recent evidence-based guidelines recommended by the pertinent associations.

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45

Smith, Seoirse, et Laurie M. Savage. Patient support and advocacy. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198734444.003.0027.

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Patient advocacy groups grew out of a need to provide support to and education for patients and to fuel research to better understand diseases and their diagnosis, and treatment options for patients. These organizations have become integral partners with the medical community in developing healthcare policy, patient education, patient support, and scientific research. The Ankylosing Spondylitis International Federation (ASIF) of patient advocacy and support groups and the Spondylitis Association of America (SAA) are two of the leading patient advocacy organizations for millions of people affected by axial spondyloarthritis, increasing awareness of the disease, disseminating knowledge, sponsoring research, and influencing public policy.

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46

Salama, Alan D. The patient with vasculitis. Sous la direction de Giuseppe Remuzzi. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780199592548.003.0159_update_001.

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Primary systemic vasculitis frequently leads to renal involvement and is responsible for significant numbers of patients progressing to end-stage renal disease. Frequently this is due to small vessel vasculitis, in association with antineutrophil cytoplasm antibody, which requires prompt recognition and timely therapeutic intervention to optimize renal and patient outcomes. Other organ systems are often affected. Relapses occur in about 50%.Less commonly medium or larger vessel vasculitis may involve the kidneys and through ischaemia lead to impaired renal function and renovascular hypertension, as in Takayasu’s or Kawasaki disease, and polyarteritis nodosa (PAN).

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47

American Medical Association Guide to Talking to Your Doctor. Wiley, 2001.

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48

Kotseva, Kornelia, Neil Oldridge et Massimo F. Piepoli. Evaluation of preventive cardiology. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656653.003.0026.

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The Joint European Societies guidelines on cardiovascular disease (CVD) prevention define lifestyle and risk factor targets for patients with coronary or other atherosclerotic disease and people at high risk of developing CVD. However, several surveys in Europe and the United States showed inadequate lifestyle and risk factor management and under-use of prophylactic drug therapies in primary and secondary CVD prevention. Various professional associations have developed core components, standards, and outcome measures to evaluate quality of care and provide guidelines for identifying opportunities for improvements. Optimal control of cardiovascular risk factors is one of the most effective methods for reducing vascular events in patients with atherosclerotic disease or high cardiovascular risk. Improving treatment adherence is also very important. Health-related quality of life (HRQL) is considered as an outcome measure in research studies and in clinical practice. HRQL measures can help in improving patient-clinician communication, screening, monitoring, and continuous assessment of quality of care.

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49

Kotseva, Kornelia, Neil Oldridge et Massimo F. Piepoli. Evaluation of preventive cardiology. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199656653.003.0026_update_001.

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The Joint European Societies guidelines on cardiovascular disease (CVD) prevention define lifestyle and risk factor targets for patients with coronary or other atherosclerotic disease and people at high risk of developing CVD. However, several surveys in Europe and the United States showed inadequate lifestyle and risk factor management and under-use of prophylactic drug therapies in primary and secondary CVD prevention. Various professional associations have developed core components, standards, and outcome measures to evaluate quality of care and provide guidelines for identifying opportunities for improvements. Optimal control of cardiovascular risk factors is one of the most effective methods for reducing vascular events in patients with atherosclerotic disease or high cardiovascular risk. Improving treatment adherence is also very important. Health-related quality of life (HRQL) is considered as an outcome measure in research studies and in clinical practice. HRQL measures can help in improving patient-clinician communication, screening, monitoring, and continuous assessment of quality of care.

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50

Viehöver, Willy, Peter Wehling et Sophia Koenen. Public Shaping of Medical Research : Patient Associations, Health Movements and Biomedicine. Taylor & Francis Group, 2014.

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