Literatura académica sobre el tema "The meaning of being an oncology nurse"
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Artículos de revistas sobre el tema "The meaning of being an oncology nurse"
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Davis, Lindsey Ann, Frances Fothergill-Bourbonnais y Christine McPherson. "Le sens de la vocation d’infirmière en oncologie : s’investir pour aider vraiment". Canadian Oncology Nursing Journal 27, n.º 1 (6 de febrero de 2017): 15–21. http://dx.doi.org/10.5737/236880762711521.
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Davis, Lindsey Ann, Frances Fothergill-Bourbonnais y Christine McPherson. "The meaning of being an oncology nurse: Investing to make a difference". Canadian Oncology Nursing Journal 27, n.º 1 (6 de febrero de 2017): 9–14. http://dx.doi.org/10.5737/23688076271914.
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Wright, Emily M., Alaina Carr, Barbara J. Cashavelly, William F. Pirl y Lara Traeger. "Oncology nurse perspectives on the nature and meaning of their positive relationships with seriously ill patients." Journal of Clinical Oncology 35, n.º 31_suppl (1 de noviembre de 2017): 42. http://dx.doi.org/10.1200/jco.2017.35.31_suppl.42.
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42 Background: Inpatient oncology nurses regularly care for patients at or near the end of life. Given increasing attention to risk of compassion fatigue in this setting, we conducted a qualitative study to explore nurses’ perspectives on the nature and meaning of their positive relationships with patients who were seriously ill or dying. Methods: We conducted in-depth interviews with 24 registered nurses (RN)s working on an inpatient medical oncology unit at an academic medical center. We used a semi-structured interview guide to elicit RNs’ descriptions of ‘good’ relationships they had with patients/families with attention to aspects that made these relationships meaningful. Using a framework approach, including an iterative coding process, two team members independently coded all interview data (Kappa = .80) and worked with a multidisciplinary team to identify themes. Results: RNs (95.8% female; 95.8% non-Hispanic white, M age = 32.7 yrs [SD = 10.8 yrs], median yrs as RN = 4.0 [range: 1.5-35.0 yrs]) described specific cases in which they felt they had developed ‘good’ relationships with patients and families. RN descriptions centered on highly intimate and transformative moments in patient/family care. These unique moments occurred in the context of longitudinal nurse-patient relationships in which RNs felt able to 1) facilitate patient/family processing of emotions and disclosure of treatment preferences that they otherwise were not able to process or disclose to other loved ones or clinicians; 2) provide highly-skilled patient-centered care to reduce patient suffering; and/or 3) facilitate patient/family prognostic understanding and peace at the end of life. RNs felt privileged to serve these roles. Memorable transformative moments enriched RNs’ professional identities and inspired their continued work. Conclusions: Inpatient oncology nurse-patient relationships serve distinctive functions for both patient-centered care and RN well being. Results underscore the importance of assisting RNs in managing patient symptoms, forming longitudinal relationships with patients/families, and coping with factors that impede ‘good’ relationships.
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Gomes, Lucas Vinicios Sodré, Rosenilda Viana Alves, Lidiane Xavier de Sena, Sônia Cristina de Albuquerque Vieira y Silvo Eder Dias da Silva. "Imagens e significações: um estudo interpretativo de desenhos sobre espiritualidade". Revista Recien - Revista Científica de Enfermagem 11, n.º 33 (29 de marzo de 2021): 318–26. http://dx.doi.org/10.24276/rrecien2021.11.33.318-326.
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Identificar os desenhos produzidos por enfermeiros sobre espiritualidade em um hospital oncológico infantil na cidade de Belém do Pará. Estudo qualitativo com análise através dos núcleos de significação, realizado com 21 enfermeiros de um hospital público de médio porte de referência em oncologia infantil no estado do Pará. Utilizando instrumento de criação própria do tipo formulário tendo como procedimento principal, a construção do desenho. Os dados coletados foram descritos e organizados em duas categorias que emergiram das narrativas dos enfermeiros a partir da elaboração dos desenhos: Associado a uma confissão religiosa e Não associados a uma confissão religiosa. Os desenhos produzidos trouxeram a construção da representação da espiritualidade através da visão dos enfermeiros assistencialistas diante de situações de fragilidade emocional, melhora material e cura, bem como a predisposição para melhora da espiritualidade do paciente.Descritores: Espiritualidade, Oncologia, Enfermagem. Images and meanings: an interpretative study of drawings on spiritualityAbstract: To identify the drawings produced by nurses about spirituality in a children’s cancer hospital in the city of Belé do Pará – Brazil. Qualitative study with analysis through the meaning centers, performed with 21 nurses of a public hospital of medium-size of reference in child oncology in the state of Pará. A self-created form-type instrument was used with the main procedure being the construction of the drawing. The data collected were described and organized in to two categories that emerged from the nurses' narratives from the elaboration of the drawings: Associated with a religious confession and not associated with a religious confession. The drawings produced brought the construction of the representation of spirituality through the view of assistential nurses in situations of emotional fragility, material improvement and healing, as well as the predisposition to improve the patient's spirituality.Descriptors: Spirituality, Oncology, Nursing. Imágenes y significados: un estudio interpretativo de dibujos sobre espiritualidadResumen: Indentificar los dibujos producidos por enfermeros sobre espiritualidad en un hospital oncológico infantil en la ciudad de Belém do Pará. Estudio cualitativo con análisis a través de los núcleos de significación, realizado con 21 enfermeros de un hospital público de mediano porte de referencia en oncología infantil en el estado de Pará. Utilizando instrumento de creación propia del tipo formulario que tiene como procedimiento principal, la construcción del dibujo. Los datos recopilados fueron descritos y organizados en dos categorías que surgieron de las narrativas de los enfermeros a partir de la elaboración de los dibujos: Asociado a una confesión religiosa y no asociados a una confesión religiosa. Los dibujos producidos, trajeron la construcción de la representación de la espiritualidad a través de la visión de los enfermeros asistencialistas ante situaciones de fragilidad emocional, mejora material y cura, así como la predisposición para la mejora de la espiritualidad del paciente.Descriptores: Espiritualidad, Oncología, Enfermería.
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Sigurđsson, Hrafn Óli. "The Meaning of Being a Perioperative Nurse". AORN Journal 74, n.º 2 (agosto de 2001): 202–17. http://dx.doi.org/10.1016/s0001-2092(06)61529-9.
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Galuska, Lee A. y Brenda Bursch. "Meaning, Joy, and Critical Care Nurse Well-Being". Critical Care Nursing Clinics of North America 32, n.º 3 (septiembre de 2020): 349–67. http://dx.doi.org/10.1016/j.cnc.2020.04.002.
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Almeida, Carla Simone Leite de, Catarina Aparecida Sales y Sônia Silva Marcon. "The existence of nursing in caring for terminally ills’life: a phenomenological study". Revista da Escola de Enfermagem da USP 48, n.º 1 (febrero de 2014): 34–40. http://dx.doi.org/10.1590/s0080-623420140000100004.
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By taking care of cancer patients in their process of end of life, nursing experience situations of suffering before the anguish of others. This study aimed to understand the meaning and significance attributed by the nurses from the palliative care cancer hospital. This is a phenomenological research, grounded in Heidegger’s thinking, performed with 13 nurses, who work at Oncology hospitalward, through semi-structured interviews, which were analyzed according to the steps recommended by Josgrilberg. From understanding the statementsof the subjects, two ontological themesemerged: Feeling satisfaction and love in the care offered and Feeling anger and inabilitytowards terminally ill patients.We inferred that working in Oncology Ward is something rewarding for these professionals, but it entails physical and mental suffering, from feeling helpless before the death-dying process. Thus, we showedthat nursing professionals need to be recognized as human beings and as such, also deserving of care.
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Jacobs, Arthur M. y Johannes C. Ziegler. "Has Glenberg forgotten his nurse?" Behavioral and Brain Sciences 20, n.º 1 (marzo de 1997): 26–27. http://dx.doi.org/10.1017/s0140525x97310012.
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Glenberg's conception of “meaning from and for action” is too narrow. For example, it provides no satisfactory account of the “logic of Elfland,” a metaphor used by Chesterton to refer to meaning acquired by being told something.All that we call spirit and art and ecstasy only means that for one awful instant we remember that we forget.G. K. Chesterton (in Gardner 1994, p. 101)
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Bäck-Pettersson,, Siv, Kirsten Pryds Jensen, y Kerstin Segesten,. "The Meaning of Being Touched Deeply Inside in a Nurse- Patient Encounter-Excellent Nurse Encounter-Excellent Nurse Experiences". International Journal of Human Caring 2, n.º 3 (abril de 1998): 16–23. http://dx.doi.org/10.20467/1091-5710.2.3.16.
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This article explores the meaning to nurses of being touched deeply inside in a nurse-patient encounter. The manuscript reflects the caring perspectives of Pellegrino, Watson, Gadow, Carper, and Eriksson. Caring is viewed from a lifeworld perspective according to the phenomenological philosophy of Husserl and Merleau-Ponty. Giorgi’s descriptive phenomenological method was applied and data were collected through open interviews with five excellent nurses. The analysis resulted in a general structure of the phenomenon sbtudied including four key constituents: witnessing patient exposed to suffering and unfairness; sensing closeness, understanding, and involvement in patient/person; experiencing extreme difficulties as a challenge to act accordingly; and growing professionally. The results are consistent with literature about moral sensing, and caring values and attitudes. Being touched deeply inside appeared to be crucial in fostering professional growth and excellence in nursing.
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Laurencelle, Francine L., Judith M. Scanlan y Anne Liners Brett. "The meaning of being a nurse educator and nurse educators' attraction to academia: A phenomenological study". Nurse Education Today 39 (abril de 2016): 135–40. http://dx.doi.org/10.1016/j.nedt.2016.01.029.
Texto completoTesis sobre el tema "The meaning of being an oncology nurse"
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Davis, Lindsey Ann. "The Meaning of Being an Oncology Nurse: Investing to Make a Difference". Thèse, Université d'Ottawa / University of Ottawa, 2012. http://hdl.handle.net/10393/23250.
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The landscape of cancer care is evolving and as a result nursing care continues to develop and respond to the changing needs of oncology patients and their families. There is a paucity of qualitative research examining the experience of being an oncology nurse on an inpatient unit. Therefore, a qualitative study using an interpretive phenomenological approach has been undertaken to discover the lived experience of being an oncology nurse. In-depth tape recorded interviews has been conducted with six oncology nurses who worked on two adult inpatient oncology units. Van Manen’s (1990) interpretive phenomenological approach has been used to analyze the data by subjecting the transcripts to an analysis both line by line and as a whole. The overarching theme of the interviews is: Investing to Make a Difference. The themes that reflect this overarching theme are: Caring for the Whole Person, Being an Advocate, Walking a Fine Line, and Feeling Like You are Part of Something Good. Oncology nurses provide care for their patients through a holistic lens that further enhances how they come to know their patients. Over time, relationships with patients and families develop and these nurses share that balancing the emotional aspects of their work is key in being able to continue to invest in their work and in these relationships. Their investment is further evident as oncology nurses continuously update their knowledge, for example, of treatment regimes, medication protocols, and as they champion their patients wishes and needs. As nurses develop their own identities as oncology nurses, they in turn enhance the team with their emerging skill and knowledge. These research findings serve to acknowledge the meaning of oncology nurses’ work and inform the profession’s understanding of what it means to be an oncology nurse.
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Rutty, Jane Elizabeth. "The meaning of 'being' as a nurse involved in the work of death investigation : a North American view and its implications to practice in England". Thesis, University of Bradford, 2010. http://hdl.handle.net/10454/5331.
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This research study explored the meaning of 'Being' (i.e. Heidegger's four philosophical concepts of Being-in the-world, fore-structures, time and space) as a nurse involved in the work of death investigation in the USA. The objectives were to: reveal the hidden meaning of Being; transfer the findings into an English context by examining what nurses could offer beyond their current role boundaries in an area not currently practised to the extent that nurses make to other medical specialities; and finally put forward developments that would need to take place to ensure such proposals were successful in making an effective difference to health care. In the USA there are two systems of death investigation, the Coronial and Medical Examiner system. The Coroner is an elected county or state position with varied educational and professional requirements. Some Coroner positions have been filled by registered nurses as they have put themselves forward successfully for election. In contrast, the Medical Examiner is an appointed county or state position who must be a licensed physician and a qualified pathologist or forensic pathologist in most cases. Within the Medical Examiner systems death investigators may also be appointed of which some have been filled by registered nurses. It was under the interpretive paradigm that a Heideggerian hermeneutic study was undertaken. Snowball sampling was instigated to reach a hidden population and collect qualitative data by means of unstructured interviews, non-participant observations, interrogation of historical records and the keeping of a personal reflective diary. The seven phase analysis process underpinned by the hermeneutic circle was developed to enable a synopsis of the shared meaning of Being to be revealed through the presentation of paradigm cases that encompass stories and themes. Of the 22 nurses found to be working as either death investigators or Coroners in the USA who fulfilled the inclusion criteria, 17 nurses from 11 States in the USA consented to take part. Fore-structures concerning age (average 37), gender (82% were women) and professional experience (majority came from an adult nursing background with emergency department or critical care experience) are discussed. Overall participants were interviewed for a total of 78 hours in 11 States, five of which were also observed in practice for a total of 142 hours in 3 States, giving a total of 220 hours of interview and observational data. The interpretive analysis revealed the three major paradigms of: the authentic and inauthentic reality of Being (the death investigator nurse in action); the everydayness and averageness of Being (community outreach) and the publicness of Being (mass fatality care). This study reveals knowledge concerning the meaning of Being as a nurse involved in the work of death investigation in the USA. Aspects of this illuminated landscape have propositioned for the advancement of nursing clinical practice to replace and further develop the current coroner's officer and soon to be implemented medical examiner officer role in England and Wales. Hence recommendations are made for practice development and further research in England.
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Maier, Steffani. "The lived experience of being a new pediatric oncology nurse". 2009. http://proquest.umi.com/pqdweb?did=1814562501&sid=1&Fmt=2&clientId=3916&RQT=309&VName=PQD.
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"Critical Moments of Meaning and Being: Narratives of Cancer during Young Adult Life". Thesis, 2013. http://hdl.handle.net/10388/ETD-2013-12-1317.
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Emerging conversations within oncology have drawn more attention to cancer among young adults (ages 18-45). Recent research has illuminated many of the psychosocial difficulties young adults face as they go through the many trials and tribulations of chronic illness. However, a subject still understudied, much is unclear about the personal as well as the cultural implications of being diagnosed during this period of time. In a book of cancer stories, performer and young adult cancer patient Kairol Rosenthal (2009) expressed her frustration with what she saw as “stereotypes” promulgated by the limited public discourses that exist on the subject (p. 7). She sought to counterbalance these representations with stories capturing the “complexities of our real daily lives” (p. 7).
Indeed, in oncological discourses young adults tend to be cast in oversimplified terms, based upon cultural expectations about what young adulthood should be and pressures to conform to those standards. Intersecting with dominant discourses within narrative identity development, two imperatives are placed upon young adults’ stories: integration of different life experiences and selves into a coherent narrative and developing a sense of self-authorship in the direction of one’s life. What seems to be lost in these imperatives within the existing research is what is at stake for individual lives (a phenomenological perspective) and how those stakes are negotiated or contested with hegemonic trajectories of life (a critical perspective).
Receptive to Rosenthal’s critique of dominant discourses around cancer and young adulthood, the purpose of this thesis was to explore the complexity and diversity of young adults living with cancer. More specifically, I intended to interrogate some of their existential and biographical challenges as expressed in their narratives of cancer, as well as their engagements with ideological constructions of young adulthood, namely, the expectations of narrative coherence and self-authorship. This research marked a departure from most studies on the subject in its qualitative methodology (i.e., narrative analysis) and in its explicit evaluation of the effects of cultural discourses on young adults’ attempts to make meaning. More generally, this research shows the importance of language—in discourses, narratives, and metaphors—in constructing and communicating illness experiences.
For this project, I gathered a mix of written and oral narratives (through semi-structured interviews) from 21 participants from across Canada. The foci of analyses were on what could be called narrative ‘moments of meaning’ and ‘moments of being,’ that is, situated expressions of how they made sense of their worlds and themselves. Many of these were critical moments in the sense of questioning and resisting dominant discourses of cancer and young adulthood. Their moments of meaning often expressed negotiation of personal desires and innovative intentions with familiar cultural narratives or “prototypical plots” (Good, 1994)—including stories of battling cancer, embarking on a life journey, nearing recovery, encountering unpredictability and mystery, and living with chaos. These moments of meaning served an array of purposes well beyond the expected function of constructing a coherent narrative.
When telling of identity disruptions and the liminality of cancer, participants produced both more orderly moments of being (e.g., survivor, patient, or warrior identities) and more liminal moments of non-being (e.g., victim, phoenix, or trickster identities). Self-authorship seemed to be present among the former, while the latter expressed less control and certainty of being—which was not always seen as a problem. These moments of being and non-being were collaborated and contested within the intersubjective spaces of their clinical relationships, local worlds, and cancer patient communities. More specific to their age group, their moments of being and non-being often related to what may be understood as developmental identities, including the ‘traditional milestones’ such as individual autonomy, family (i.e., marriage and parenthood), and vocation (i.e., getting an education and building a career). In their struggles they sometimes reaffirmed these cultural ideals toward identity integration and other times resisted them as “normalizing ideologies” (Becker, 1997) of young adulthood.
As part of these larger negotiations of meaning and being, the participants expressed struggles to understand the moral significance of their illnesses. Confronted with what may be called “causal ontologies” of suffering (Shweder, 1997), they spoke of different etiological models of cancer’s origins as well as reconciliatory models for living with cancer in the future. Their narratives sometimes led toward “remoralization” (Kleinman, 1988)—couching experiences of suffering in terms of a moral order (narrative coherence) and personal responsibility (self-authorship)—and sometimes led away from it, depending on whether they believed their illnesses originated from events in their personal and social lives.
Overall, the participants in this study communicated complex and potentially chronic existential challenges. In many ways their narratives resisted dominant representations of young adults with cancer—and of cancer patients in general—suggesting that such representations need to be rethought. Their critical moments of meaning and being may serve as counternarratives to the stereotypes of concern to Rosenthal and many other cancer patients. Specifically, their narratives revealed the merits and limits of the ideological construction of young adulthood as a time of narrative coherence and self-authorship. This study has important implications for future health research and psychosocial support in the field of oncology; building upon a “narrative medicine” (Charon, 2006), sensitivity to how language is used among young adult cancer patients may lead toward more inclusive clinical practices.
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Stevenson, Moire. "Being a bereaved parent : early bereavement experiences and perspectives on paediatric palliative care and bereavement services". Thèse, 2014. http://hdl.handle.net/1866/11433.
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La mort d'un enfant est considérée comme l'une des expériences les plus difficiles à laquelle une personne puisse faire face. Les cliniciens, les hôpitaux et plusieurs organismes ont pour objectif d’aider les parents endeuillés, mais leurs efforts sont compliqués par un manque de recherche dans le domaine du deuil parental. Cette thèse est composée de trois articles, soit deux revues de littérature et une étude empirique, qui tentent de combler cette lacune et d’informer les services en soins palliatifs pédiatriques et les services de soutien au deuil en particulier.
Le premier article porte sur les besoins des patients recevant des soins palliatifs pédiatriques et de leurs familles. Par le biais d’un méta-résumé de la recherche descriptive et qualitative récente, 10 domaines de besoins ont été identifiés qui correspondent aux lignes directrices actuelles en soins palliatifs pédiatriques et de fin de vie. Ces besoins sont présentés de manière à être facilement applicables à la pratique. Cependant, les résultats mettent aussi en évidence plusieurs aspects des soins identifiés comme déficitaires ou problématiques qui mériteraient une attention particulière dans le cadre de politiques futures.
Dans le deuxième article, l'objectif était de résumer une vaste littérature d'une manière utile aux cliniciens. À cette fin, une synthèse narrative a permis d’intégrer la recherche quantitative et qualitative dans le domaine du deuil parental. Les résultats mettent en évidence les éléments susceptibles de favoriser l’adaptation des parents au deuil, éléments qui suggèrent par le fait même des avenues possibles de soutien et d'intervention. Cette synthèse a cependant cerné dans la littérature certaines failles méthodologiques qui rendent l'applicabilité clinique des résultats difficile.
L'objectif du troisième article était d'informer les services de suivi et de soutien au deuil auprès des parents en se renseignant directement auprès de parents endeuillés. À cette fin, 21 parents (dont 8 couples) et 7 membres du personnel impliqués dans des activités de suivi de deuil de 2 hôpitaux pédiatriques ont été interrogés dans le cadre d’une description interprétative, et l'application clinique des résultats a été vérifiée par le biais de réunions avec des collaborateurs de recherche et les décideurs des centres hospitaliers. Les résultats décrivent comment les parents ont fait face à leur détresse dans la phase précoce de leur deuil, ainsi que leurs points de vue sur la façon dont les divers services de suivi de deuil ont été aidants. Les résultats suggèrent que les parents gèrent leurs sentiments intenses de douleur par une alternance de stratégies axées soit sur leur deuil ou sur leur quotidien et que dans plusieurs cas leurs relations avec autrui les ont aidé. Cette étude a également permis d'élucider la façon dont divers services de soutien aide les parents à aborder leur deuil. Les implications cliniques de ces résultats sont discutées ainsi que des recommandations à l’intention de ceux qui sont impliqués dans la provision des services en deuil.The death of a child is considered one of the most stressful and difficult experiences a person can face. Clinicians, hospitals, and other organizations want to help and support bereaved parents through their grief, but their efforts are hampered by a lack of research in the area of parental bereavement. This dissertation is comprised of two literature reviews and one empirical study that attempt to address this gap and inform services in paediatric palliative care in general, and in bereavement support in particular. The first article consists of an examination of the needs of patients receiving paediatric palliative care and their families. By metasummarizing the descriptive and qualitative research in the area, 10 need domains were found. The results were generally in agreement with current guidelines in paediatric palliative and end-of-life care; however, there were several aspects of care that were reported as lacking or problematic that are not addressed in these guidelines and that should be considered in future guideline and policy creation. In the second article, parents’ adaptation to their grief and elements found to influence their adaptation were examined. The aim was to synthesize the relevant literature in a way that could be useful to clinicians; to this end, a narrative synthesis method was employed in order to synthesize both quantitative and qualitative research in the area of parental bereavement. The results suggest important elements to keep in mind when assessing how parents adapt to their grief. The results also suggest aspects related to better adaptation, which could serve as potential avenues for support and intervention. However, this review also demonstrated certain methodological issues in the literature that hinder the synthesis and clinical applicability of the findings. The objective of the third article was to inform bereavement follow-up and support services through the use of an interpretive description methodology. To this end, 21 bereaved parents (including 5 parental couples) and 7 hospital staff involved in bereavement follow-up activities at two paediatric hospitals were interviewed, and the clinical applicability of the results verified through various meetings with project collaborators and service/program providers. The results of the study describe how parents coped with their grief in the early phase of their bereavement, as well as their perspectives on how various bereavement follow-up services helped them cope. We found that parents regulate their intense feelings of grief through either loss-oriented or restoration-oriented strategies, including attempts to reorganize their self-identity and connection to their deceased child; often parents’ relationships with others help them cope in these ways. The insights we gained from the respondents also allowed us to elucidate how various bereavement support and follow-up services were helpful. These results are discussed along with the clinical implications and how these findings can inform bereavement service providers.
Libros sobre el tema "The meaning of being an oncology nurse"
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Astrow, Alan B. Religion and Spirituality in Oncology. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190272432.003.0009.
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A diagnosis of cancer may evoke concerns relating to life’s meaning and ultimate purpose that by consensus understanding are considered “spiritual.” In addressing these, oncologists face three tasks: to acknowledge spiritual questions, to recognize spiritual concerns, and to engage with patients about spiritual issues in a supportive way. Some Americans turn to religion to answer spiritual questions, but others are religiously unaffiliated and consider themselves “spiritual but not religious.” Patient spirituality resists ready transformation into quantitative measures. Still, investigators have devised validated instruments that measure spiritual well-being and spiritual needs. Patients’ underlying spiritual belief system and spiritual support network may influence decisions about cancer treatment. Spiritual needs are common among patients with cancer and may affect satisfaction with care. Additional research into how best to measure patient spirituality and to train physicians and nurses to identify and meet patient spiritual needs may improve the overall quality of oncology care.
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Breitbart, William S., ed. Meaning-Centered Psychotherapy in the Cancer Setting. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199837229.001.0001.
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There is an evolution taking place regarding the nature and scope of the clinical goals of psychotherapeutic or counseling interventions in the palliative care setting. Meaning-Centered Psychotherapy in the Cancer Setting provides a theoretical context for meaning-centered psychotherapy (MCP), a nonpharmacologic intervention that has been shown to enhance meaning and spiritual well-being, increase hope, improve quality of life, and significantly decrease depression, anxiety, desire for hastened death, and symptom burden distress in the cancer setting. Based on the work of Viktor Frankl and his concept of logotherapy, MCP is an innovative intervention for clinicians practicing in fields of psycho-oncology, palliative care, bereavement, and cancer survivorship. This resource contains chapters on adapting MCP for different cancer-related populations and for different purposes and clinical problems, including interventions for cancer survivors, caregivers of cancer patients, adolescents and young adults with cancer, as a bereavement intervention, and cultural and linguistic applications in languages such as Mandarin, Spanish, and Hebrew.
Capítulos de libros sobre el tema "The meaning of being an oncology nurse"
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Haugdahl, Hege Selnes, Ingeborg Alexandersen y Gørill Haugan. "Health Promotion Among Long-Term ICU Patients and Their Families". En Health Promotion in Health Care – Vital Theories and Research, 245–68. Cham: Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-63135-2_18.
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AbstractFew patients are as helpless and totally dependent on nursing as long-term intensive care (ICU) patients. How the ICU nurse relates to the patient is crucial, both concerning the patients’ mental and physical health and well-being. Even if nurses provide evidence-based care in the form of minimum sedation, early mobilization, and attempts at spontaneous breathing during weaning, the patient may not have the strength, courage, and willpower to comply. Interestingly, several elements of human connectedness have shown a positive influence on patient outcomes. Thus, a shift from technical nursing toward an increased focus on patient understanding and greater patient and family involvement in ICU treatment and care is suggested. Accordingly, a holistic view including the lived experiences of ICU care from the perspectives of patients, family members, and ICU nurses is required in ICU care as well as research.Considerable research has been devoted to long-term ICU patients’ experiences from their ICU stays. However, less attention has been paid to salutogenic resources which are essential in supporting long-term ICU patients’ inner strength and existential will to keep on living. A theory of salutogenic ICU nursing is highly welcome. Therefore, this chapter draws on empirical data from three large qualitative studies in the development of a tentative theory of salutogenic ICU nursing care. From the perspective of former long-term ICU patients, their family members, and ICU nurses, this chapter provides insights into how salutogenic ICU nursing care can support and facilitate ICU patients’ existential will to keep on living, and thus promoting their health, survival, and well-being. In a salutogenic perspective on health, the ICU patient pathway along the ease/dis-ease continuum reveals three stages; (1) The breaking point, (2) In between, and (3) Never in my mind to give up. The tentative theory of salutogenic long-term ICU nursing care includes five main concepts: (1) the long-term ICU patient pathway (along the salutogenic health continuum), (2) the patient’s inner strength and willpower, (3) salutogenic ICU nursing care (4), family care, and (5) pull and push. The salutogenic concepts of inner strength, meaning, connectedness, hope, willpower, and coping are of vital importance and form the essence of salutogenic long-term ICU nursing care.
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Duva, Melissa Masterson, Wendy G. Lichtenthal, Allison J. Applebaum y William S. Breitbart. "Meaning-Centered Psychotherapy". En Psycho-Oncology, editado por William S. Breitbart, Phyllis N. Butow, Paul B. Jacobsen, Wendy W. T. Lam, Mark Lazenby y Matthew J. Loscalzo, 489–94. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780190097653.003.0062.
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Existential concerns carry significant distress, particularly among patients with advanced cancer. For patients who are facing death, a sense of meaning—and the preservation of that meaning—is not only clinically and existentially important but also central to providing holistic, high-quality end-of-life care. Nearly two decades ago, the authors’ research group at Memorial Sloan Kettering Cancer Center began to understand that a meaning-centered approach to psychosocial care was imperative to alleviate the existential distress that plagued many patients with advanced cancer. Based on Viktor Frankl’s work on the importance of meaning and principles of existential psychology and philosophy, they developed Meaning-Centered Psychotherapy (MCP) to help patients with advanced cancer sustain or enhance a sense of meaning, peace, and purpose in their lives in the face of terminal cancer. This chapter provides an overview of MCP in working with patients with cancer. It summarizes the ever-growing body of research that has demonstrated the effectiveness of MCP in improving meaning, spiritual well-being, and quality of life and in reducing psychological distress and despair at end of life. Adaptations of MCP for other purposes and populations, such as cancer survivors, caregivers, and bereavement, are mentioned but are elaborated on in other specific chapters related to these issues in this textbook.
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van der Spek, Nadia, Wendy G. Lichtenthal, Karen Holtmaat, William S. Breitbart y Irma M. Verdonck-de Leeuw. "Meaning-Centered Group Psychotherapy for Cancer Survivors". En Psycho-Oncology, editado por William S. Breitbart, Phyllis N. Butow, Paul B. Jacobsen, Wendy W. T. Lam, Mark Lazenby y Matthew J. Loscalzo, 521–27. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780190097653.003.0066.
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This chapter gives an overview of the application, content, and scientific evidence of meaning-centered group psychotherapy for cancer survivors (MCGP-CS). Experiencing meaning is strongly related to adjustment and psychological well-being after cancer diagnosis and medical treatment for survivors. MCGP-CS is an eight-session group intervention that aims to help survivors enhance or maintain a sense of meaning, in order to improve their psychological well-being and decrease distress. The chapter describes two adaptations of MCGP for survivors: a US version developed specifically for breast cancer survivors and a Dutch version developed for general cancer survivors. This chapter includes summaries of the content of each session and examples of some of the exercises in the manual. Furthermore, it summarizes the results of two conducted pilot studies, a randomized controlled trial, and a cost-utility analysis, all showing positive effects. Finally, future directions for MCGP for cancer survivors are given.
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Wittenberg, Elaine, Joy V. Goldsmith, Sandra L. Ragan y Terri Ann Parnell. "M—Making Meaning". En Communication in Palliative Nursing, 114–42. Oxford University Press, 2019. http://dx.doi.org/10.1093/med/9780190061326.003.0004.
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Making meaning is predicated on the notion that helping patients and families make meaning of their suffering is a valuable contribution that palliative care nurses can make. The Voice of the Lifeworld of the patient/family is juxtaposed with the Life of Medicine to help the reader recognize the powerful meaning of the life lived outside of the illness. The chapter explores the patient’s quality of life and the spiritual and/or religious life spaces of patients/families. Presence is that quality of being there for the patient or family member, either physically or psychologically, or both, and being nonjudgmental, unscripted, and spontaneous. Thus, a mindful presence means that the nurse is totally dedicated to the circumstances of the here and now, regardless of what has gone before or what is predicted to follow. It is a valuing of “being” over “doing,” in the belief that compassionately bearing witness to a patient’s/family’s suffering may be the greatest gift a provider can offer.
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Kissane, David W. "Supportive-Expressive and Other Forms of Group Psychotherapy in Cancer Care". En Psycho-Oncology, editado por William S. Breitbart, Phyllis N. Butow, Paul B. Jacobsen, Wendy W. T. Lam, Mark Lazenby y Matthew J. Loscalzo, 445–51. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780190097653.003.0057.
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Group therapy in cancer care commonly involves the application of supportive-expressive, cognitively oriented, or meaning-centered models, which seek to optimize quality of life and adaptation to illness through inherent group support, psychoeducation, and improved coping outcomes. Groups can restore body image and reduce fear of recurrence and cancer-related anxiety for early-stage disease. In the advanced cancer setting, groups ameliorate and prevent depression, reduce existential distress, and promote creative and purposeful living among their members. Meaning-centered group therapy enhances spiritual well-being and quality of life. Overcoming social isolation, treating depression, and enhancing adherence to anticancer therapies has the potential to extend survival. Meta-analyses of supportive-expressive groups have confirmed a survival benefit at one year, which has not been sustained over five years.
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Kagawa-Singer, Marjorie y Annalyn Valdez-Dadia. "Cancer, Culture, and Health Disparities". En Psycho-Oncology, editado por Matthew J. Loscalzo, 609–15. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780190097653.003.0076.
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Culture is the core, dynamic, responsive, adaptive, and organizing system of life that (1) ensures the survival and well-being of its members, (2) provides a shared way to find meaning and purpose throughout one’s life, (3) creates culturally identifiable ways to communicate caring, and (4) defines characteristics that identify a “good” person. Thus, a cultural system is composed of a shared set of beliefs, values, and lifestyles that enables its members to successfully adapt within a biotic and abiotic geographic niche, using available technology and economic resources, that ensures the survival of its members and provides meaning in and for life within this worldview. Culture also provides its members a purpose for living, especially in times of trial, such as the receipt of a cancer diagnosis. This chapter provides a more comprehensive and integrating concept of culture to guide clinicians to better understand how culture defines a “good person” and desired modes of emotional, physical, and spiritual support. Following these guidelines, clinicians might feel more comfortable learning from their patients in cross-cultural encounters and likely enrich their ability to work collaboratively with patients from diverse backgrounds to provide them the information and support they desire and need when faced with cancer and its myriad questions, choices, and fears.
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Applebaum, Allison J., Erin Kent, Kristin Litzelman, Betty Ferrell, J. Nicholas Dionne-Odom y Laurel Northouse. "Cancer Caregivers". En Psycho-Oncology, editado por Phyllis N. Butow, 737–44. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780190097653.003.0092.
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This chapter describes prevalence estimates of cancer caregivers in the United States and provides a comprehensive review of the effect of cancer on caregivers’ psychological, physical, and financial well-being. The unique burden faced by spouse caregivers versus adult child caregivers is clearly delineated. Four evidence-based interventions to assist cancer caregivers or patient-caregiver dyads are described: psychoeducational interventions (e.g., ENABLE), dyadic interventions (e.g., FOCUS), cognitive behavioral therapy (CBT), and Meaning-Centered Psychotherapy for Cancer Caregivers (MCP-C). The chapter also explores the ethical and legal issues faced by caregivers and concludes with important future directions including the need for (1) more comprehensive caregiver assessment, (2) more research on optimal intervention dose and delivery, and (3) more implementation of evidence-based interventions for caregivers in formal health care systems.
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Hales, Sarah y Gary Rodin. "Managing Cancer and Living Meaningfully (CALM) Therapy". En Psycho-Oncology, editado por William S. Breitbart, Phyllis N. Butow, Paul B. Jacobsen, Wendy W. T. Lam, Mark Lazenby y Matthew J. Loscalzo, 502–8. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780190097653.003.0064.
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Managing Cancer and Living Meaningfully (CALM) is a brief, semistructured individual intervention designed to alleviate distress and to promote psychological growth in individuals with advanced disease. This intervention emerged from a longitudinal program of research and from the theoretical traditions of relational, attachment, and existential theory. Through a process that supports affect regulation, attachment security, and reflective functioning, CALM focuses on four content domains: (1) symptom management and communication with health care providers; (2) changes in self and relations with close others; (3) spiritual well-being, sense of meaning, and purpose; and (4) preparing for the future, sustaining hope, and facing mortality. Caregivers are invited to one or more CALM sessions, during which communication, relational strengths and disruptions, and hopes and fears related to the present and to the future are addressed. Qualitative research has shown that the structure of CALM provides a safe place for cancer patients to explore their fears, to be seen in human terms, and to face the challenges and threats of advancing disease. Quantitative research has shown that compared to usual care, it leads to significantly greater reduction in and prevention of depressive symptoms and improvement in death preparation. Therapist skill in the delivery of CALM is developed through didactic and experiential workshops and by ongoing supervision.
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Zwinkels, Hanneke. "Advocacy and the perspective of (neurology) nursing". En Advocacy in Neurology, editado por Wolfgang Grisold, 89–96. Oxford University Press, 2019. http://dx.doi.org/10.1093/med/9780198796039.003.0009.
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The advocacy role of neurology nurses—similar as to other involved healthcare professionals—is to support the patient and the caregiver through active involvement in analysing needs during the disease process and thereby improve a present condition of state. Advocacy is an activity to act in the best interest of the patient, in accordance with their wishes. In caretaking for patients’ well-being, the neurology nurse has to keep patients properly informed and carry out treatment and care plans with competence and diligence, while maintaining patients’ confidentiality. Neurology nurses in this way can contribute their expertise and influence as they work with communities or patient populations to improve health. With a case study of a neuro-oncology patient, it is made clear how neurology nurses will be able to determine and understand needs, speak on behalf of others when required, and support the mobilization of resources to effect change, and in this way, improve quality of care. Within multidisciplinary care the neurology nurse can have the role of a patient’s care navigator. When acknowledged as a case manager, the neurology nurse is able to deploy advocacy for the patients she takes care of.
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Levi, Rachel B. "Quality of Life in Childhood Cancer: Meaning, Methods, and Missing Pieces". En Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease. Oxford University Press, 2006. http://dx.doi.org/10.1093/oso/9780195169850.003.0014.
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It is only in the last three decades that the quality of the lives of children and adolescents treated for cancer and their families has become a major focus in the field of pediatric oncology. This shift from helping families to tolerate arduous treatments and prepare for early death is a result of advances in treatment and survival rates for most pediatric disease categories. One result of this paradigm shift is that quality of life (QOL) has become a critical construct within the field of pediatric oncology. The construct of QOL was initially developed for use with adult populations and was based on the definition of health generated in 1948 by the World Health Organization (WHO): “a state of complete physical, mental, and social well being, and not merely the absence of disease or infirmity.” Although there remains no universally adopted definition of QOL, the WHO’s definition of QOL as an “individual’s perceptions of their position in life in the context of the culture and value system in which they live and in relation to their goals, standards, and concerns” is frequently employed (WHO, 1993). This definition includes several domains that are considered central to the QOL construct: physical, mental/emotional, and social. This initial construct has been expanded with adult populations to include physical symptoms and functioning, functional status (i.e., ability to participate in daily and life activities), psychological functioning, and social functioning (e.g., Ware, 1984). This more expansive definition is referred to as health-related quality of life (HRQOL). HRQOL emphasizes the impact of health on one’s QOL but looks further to include other domains of life functioning that are also potentially affected by health/illness states (Jenney, 1998). The HRQOL construct was initially developed for populations of adults living with chronic illness to assess the impacts of illness/injury/disability, medical treatment, or health care policy on an individual’s life quality (for reviews, see Aaronson et al., 1991; Patrick&Erikson, 1993; Speith&Harris, 1996). Over time, there have been modifications and developments in the construct, approaches to measurement, and the measures themselves (Wilson & Cleary, 1994).