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Liang, Bridget. "Divided Communities and Absent Voices: The Search for Autistic BIPOC Parent Blogs". Studies in Social Justice 16, n.º 2 (11 de marzo de 2022): 447–69. http://dx.doi.org/10.26522/ssj.v16i2.3407.
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Both autistic adults and families of autistic children rely heavily on blogs and other digital platforms to create community and gain experiential knowledge about autism, but research on autism blogs has failed to distinguish between the perspectives of autistic adults and neurotypical parent bloggers. Furthermore, intersections in the experiences of BIPOC autistics are rarely examined. Using a content analysis with a feminist Critical Disability Studies lens, I explore six autism parent blogs from diverse demographics: a white neurotypical father, a white autistic mother in an interracial relationship, a white neurotypical mother, an Indigenous autistic trans father, a Black autistic nonbinary mother, and a Black neurotypical mother. I examine the attitudes of these bloggers to get a sampling of their opinions on autism, how they parent autistic children, and how their social location, specifically race, impacts their experiences. More intersectional research needs to be done to boost the perspectives of BIPOC autistics and the expertise of autistic parents.
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Kusmiati, Yopi y Achmad Syarifudin. "Extra Attention Toward Autistic Children: Islamic Psychology Perspective". Psikis : Jurnal Psikologi Islami 7, n.º 1 (30 de junio de 2021): 31–44. http://dx.doi.org/10.19109/psikis.v7i1.7994.
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Having an autistic child is a challenge for some parents because an autistic child should be treated specifically, based on condition and ability. The autistic child needs more extra attention than a non-autistic child because the attention from family can accelerate the development and ability of an autistic child, but not all parents can do the treatment because of various reasons. This study aimed to reveal the family's treatment which had an autistic child, especially parent or autistic's sister and brother. The study was done by using qualitative method with a phenomenological approach. The findings showed that there were three treatments of the family to treat an autistic child in daily life, they were extra attention, attention, and inattention. Extra attention was the informant included in the category who gave extra attention to a child. They were strongly caring about their child’s ability, food, and education. The attention category was an informant who did not fully give attention to their child, and not all time. The inattention category was an informant who rarely cares for their child, it related to the development of the child, education, and life.
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Eslami, Neda, Taraneh Movahed y Masoumeh Asadi. "Parents' Perceptions of the Oral Health-related Quality of Life of their Autistic Children in Iran". Journal of Clinical Pediatric Dentistry 42, n.º 6 (1 de enero de 2018): 422–26. http://dx.doi.org/10.17796/1053-4625-42.6.3.
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Objectives: The aim of this study was to evaluate parents' perception of the oral health-related quality of life (OHRQoL) of autistic children in Iran, and to determine the quality of life of their families in relation to child' oral health status. Study design: 70 families with at least one child with autism, and 70 families with normal children were enrolled. Parents' perceptions of the OHRQoL of children were assessed using pre-validated PedsQL oral health scale questionnaire. PedsQL Family Impact Module questionnaire was also used to evaluate the impact of having an autistic child on the quality of life of their families. Both of the questionnaires were filled by parents. Parents of children with autism spectrum filled a separate questionnaire for the sibling of the autistic child. In the control families, child-reported PedsQL oral health scale questionnaire was also filled by the child himself/herself. Mann-Whitney U-test, and chi-square were used for statistical analysis. Results: There was a significant difference in the mean total score of PedsQL oral health scale questionnaire between autistics and controls. Parents of normal children reported more oral problems (p<0.001). There was not a significant difference in the mean total score of PedsQL Family Impact Module questionnaire between the families of autistics and controls in the last 7 and 30 days. Conclusion: According to parents' point of view, oral health-related quality of life of autistic children was better than normal children. However, parents of autistic children had more problems in the social and communication issues.
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Taft, Lawrence T. "PARENTS OF AUTISTIC CHILDREN". Developmental Medicine & Child Neurology 11, n.º 1 (12 de noviembre de 2008): 104–6. http://dx.doi.org/10.1111/j.1469-8749.1969.tb01402.x.
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Gombosi, Peter G. "Parents of Autistic Children". Psychoanalytic Study of the Child 53, n.º 1 (enero de 1998): 254–75. http://dx.doi.org/10.1080/00797308.1998.11822486.
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Milgram, Norman A. y Mira Atzil. "Consensus and Conflict in Parents of Autistic Children". Psychological Reports 61, n.º 2 (octubre de 1987): 557–58. http://dx.doi.org/10.2466/pr0.1987.61.2.557.
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Parents raising autistic children at home tended to agree on “objective” aspects of parenting—how difficult their child is, each parent's share of parenting responsibility, school/home collaboration, counseling received, child's attainments at maturity. They disagree on the “subjective”—fairness of each parent's share of parenting, how much each parent should do, whether child's living at home is worthwhile. Latter findings suggest parental discord warranting professional counseling.
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McCauley, James B. y Marjorie Solomon. "Characterizing Parent–Child Interactions in Families of Autistic Children in Late Childhood". Social Sciences 11, n.º 3 (28 de febrero de 2022): 100. http://dx.doi.org/10.3390/socsci11030100.
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Parent–child interactions are influential to a wide range of positive developmental processes in neurotypical children, yet contributions to our understanding of these interactions using observational methods in families of children on the autism spectrum are lacking. The aim of the current study is to investigate how autism symptoms might impact these interactions. We use a family discussion task to: (1) compare families of autistic children aged 8–12 years (n = 21) to families of typically developing children (n = 21, matched on age and cognitive abilities) on the observed levels of supportive and directive behaviors in the parent–child relationship, and (2) examine the associations between parent–child interaction characteristics and child functioning. Results showed no differences in the observed levels of supportive behavior exhibited by parents, but significantly less supportive behavior in autistic children compared to neurotypical children. In addition, parents of autistic children had higher levels of observed directive behavior compared to parents of neurotypical children. Levels of supportive behavior in parents and autistic children were negatively associated with child ADHD symptoms. Findings reinforce literature on younger children describing positive parenting characteristics and further rebuke historical accounts of negative parenting qualities of parents of autistic children.
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Mathée-Scott, Janine y Susan Ellis Weismer. "Naturalistic parent–child reading frequency and language development in toddlers with and without autism". Autism & Developmental Language Impairments 7 (enero de 2022): 239694152211367. http://dx.doi.org/10.1177/23969415221136740.
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Background and aims The efficacy of parent–child reading for supporting language development has been well-established in the neurotypical (NT) literature. For children with autism spectrum disorder, (ASD) who may be at risk for delays in language development, prior research has shown promise for shared book-reading interventions. Yet there has been limited research on naturalistic parent–child reading with autistic children to date. The present study aimed to fill this missing link in the current literature. Methods Fifty-seven autistic toddlers participated at two developmental time points: Time 1 ( Mage = 30.4 months) and Time 2 ( Mage = 43.8 months). An NT control group ( N = 31) was matched on age to a subset of the ASD group ( N = 33). We assessed group differences in parent–child reading frequency between age-matched NT and autistic groups. Using a one-year follow-up design, we evaluated the relationship between parent–child reading and autistic children’s language development. Results Cross-group comparisons revealed that parents of age-matched NT children reported significantly more frequent weekly parent–child reading than parents of autistic toddlers. After a one-year follow-up with the autistic group, within-group analyses revealed that greater frequency of parent–child reading (controlling for maternal education, books in the home, and autism symptom severity) was associated with larger growth in autistic toddlers’ receptive and expressive language skills. Conclusions and implications These findings have important clinical implications as they emphasize the potential of parent–child reading for supporting autistic children’s language development. Findings demonstrate that frequency of parent–child reading is associated with language development over one year. Findings also demonstrate that parents of autistic children engage in less frequent parent–child reading than parents of age-matched NT peers, suggesting these parents may face more barriers to implementing parent–child reading than parents of NT children.
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Crane, Laura, Lok Man Lui, Jade Davies y Elizabeth Pellicano. "Autistic parents’ views and experiences of talking about autism with their autistic children". Autism 25, n.º 4 (4 de enero de 2021): 1161–67. http://dx.doi.org/10.1177/1362361320981317.
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Little is known about how parents talk about autism with their autistic children, particularly among families in which both a parent and child are autistic. Using an online survey, we gathered quantitative and qualitative data from 34 autistic parents (most of whom had told their children about their diagnosis) to address this knowledge gap. There was considerable overlap between the views and experiences of the autistic parents in this study and the largely non-autistic parent samples in previous research. Specifically, parents emphasised the importance of being open and honest about the diagnosis, disclosing the diagnosis as early as possible, individualising discussions to children’s needs and framing the diagnosis positively. There were, however, areas in which the views and experiences of the current sample differed from previous research on non-autistic samples. First, our sample of autistic parents outlined the benefits of their own experiential expertise, which they felt resulted in heightened understanding and empathy with their children. Second, our sample tended not to express concerns about disclosure potentially having a negative impact. Finally, our participants did not express a want or need for professional support with disclosure. Instead, they reported feeling well equipped to support their children using their own knowledge and lived experience. Lay abstract Previous research examining how parents talk about autism with their children has tended to focus on parents who are not autistic themselves. We collected information on this topic from 34 autistic parents of autistic children (most of whom had told their children about their diagnosis). We found similarities, but also differences, between the views and experiences of autistic parents in this research and those reported in previous research (in studies of largely non-autistic parents). Similarities include the following: it is important to be open and honest about the diagnosis; the diagnosis should be introduced/discussed as early as possible; discussions should be tailored to each individual child’s needs; and we should not overlook the challenges associated with autism, but it is important to focus on positive aspects too. Differences include the following: autistic parents used personal experiences in conversations about autism, which was felt to result in increased understanding and empathy with their children; autistic parents overwhelmingly focused on more positive aspects of an autism diagnosis; our sample did not express concerns that discussions could have negative consequences too (e.g. making children more anxious); and autistic parents did not want or need professional support to talk about autism with their children (instead, they felt confident in using their own knowledge/experiences to guide discussions).
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Usma Naeem, Irfan Abbas y Iqra Majeed. "Impact of Computer-Aided Educational Applications on Communication and Learning Abilities of the Autists". sjesr 5, n.º 3 (30 de septiembre de 2022): 57–67. http://dx.doi.org/10.36902/sjesr-vol5-iss3-2022(57-67).
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Computer-aided instructions have significant potential in increasing the educational experiences and facilitating the development of children with special needs (autistic children). Early intervention for autistic children helps their learning, language, and communication skills. This study aimed to explore the perceptions of parents of autists and speech therapists regarding the use of computer-aided educational applications to improve the communication and learning of Autistic Students. A critical paradigm was used for this study, under this paradigm, mixed methods research was used. Under mixed methods research, an explanatory sequential design was used. All the parents of autists and speech therapists of Lahore were considered the population for this study. A purposive sampling technique was used to determine the desired sample size from the population. Seventy-three parents of autists and twenty-eight speech therapists participated in the study. For the quantitative phase, the purposive sampling technique was used. For the qualitative phase, only those parents of autists using mobile/computer applications for student communication and language development were selected. Four instruments were used in this study. The reliability for the parents of autists’ questionnaire was α=.77 and for the speech therapists' questionnaire was α=.96. Data was analyzed using SPSS. It is concluded that parents of autists and speech therapists have average to high perceptions (based on their means) regarding the usage of educational applications. However, positive perceptions were shared by the speech therapists and parents of autists about the educational applications using these applications for specific purposes. It is also noted that an individualized set of activities are essential for autistic children.
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ХВОРОВА, Ганна. "Introduction and content of training of competent interaction of specialists with parents of children with autism and training of competent parenting by children with autism". EUROPEAN HUMANITIES STUDIES: State and Society 2 (27 de junio de 2019): 98–112. http://dx.doi.org/10.38014/ehs-ss.2019.2.09.
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The purpose of the article is to substantiate and describe the content of the training of competent interaction between specialists and parents of autistic children and training of competent parenting by the autistic children, and also - the prospect of the research of phenomenon of parenting for children with autism. Despite the annual increase in the number of people with autism, the problem of support of children with autism in Ukraine and in the world has not received sufficient scientific study, in particular - little is known about the methods of effective influence on the level of competence of parents of children and adolescents with autism and on optimization of social communication of parents on micro- and the macro level. Parents raising children with disabilities (in the conditions of transformation of parental functions), face additional problems in comparison with parents of standard-type children. Parental competence, in its modern sense, is characterized by the ability of the parent to perform parental functions in such a way that it promotes the positive direction of the physical, mental, emotional, speech, communicative, etc. of the child, under conditions the parent has sufficient quality of his own life. The main question of the research: what kind of parenting behavior and which parent's socio-psychological characteristics provide the positive direction for the development of a child with autism, and how the social environment at the micro-level (family, teachers, friends, acquaintances) and at the macro-level (civil society organizations, state organizations and services, public authorities) of social communication affect this ability. The article describes the system of support in educational institutions for children with autism and their parents abroad (USA, Israel), provides guidance to the administration of educational institutions on the competent relationship with parents of children with autism. Training of competent interaction of specialists with parents of autistic children and competent parenting for autistic children are described.
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Fletcher-Randle, Jessy Erin. "Where are all the Autistic Parents? A Thematic Analysis of Autistic Parenting Discourse within the Narrative of Parenting and Autism in Online Media". Studies in Social Justice 16, n.º 2 (11 de marzo de 2022): 389–406. http://dx.doi.org/10.26522/ssj.v16i2.2701.
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Although content related to parenting Autistic children is common in online media, little attention is paid to the experiences of Autistic parents. There is a growing trend of parents receiving autism diagnoses after their children are diagnosed, yet a basic Google search on “parents” and “autism” reveals myriad data on the experiences of parents of Autistic children and little on experiences of Autistic parents. A systematic online search, augmented with a “crowd-sourcing” request to online parent support groups, identified only 15 articles and blogs that discuss Autistic parenting in advocacy, lifestyle, and parenting websites. This article explores the scope and content of Autistic parenting discourse in these online media to consider how the experiences of Autistic parents are conceptualized and situated within broader narratives of neurodiversity, autism and parenting. Media discourse focused on women who had received their autism diagnosis in adulthood, their experiences navigating their diagnoses, minimizing parenting challenges, and pushing back against autism stereotypes, with the majority of content intended for Allistic audiences. Recent increased recognition of autism in women has coincided with a new interest in Autistic parenthood, raising questions about gendered assumptions and disabled mothering. The media narrative includes “defying stereotypes” and “proving” autism is compatible with parenthood, echoing mainstream beliefs. Social justice issues reinscribed in the narrative illustrate how centring the voices of Autistic parents can reconceptualize public perception of autism and bridge the disconnect between parenting Autistic children, and Autistic parenting of children.
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Anthony, Bruno J., Hillary A. Robertson, Alyssa Verbalis, Yetta Myrick, Mary Troxel, Sydney Seese y Laura Gutermuth Anthony. "Increasing autism acceptance: The impact of the Sesame Street “See Amazing in All Children” initiative". Autism 24, n.º 1 (22 de mayo de 2019): 95–108. http://dx.doi.org/10.1177/1362361319847927.
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To promote knowledge and acceptance of autism, Sesame Workshop created an online initiative: See Amazing in All Children. This nationwide evaluation of See Amazing assessed whether it increased knowledge and acceptance, promoted community inclusion, reduced parenting strain, and enhanced parenting competence. Survey responses were collected online from parents of children (age ⩽ 6) with and without autism before (N = 1010), 1 week after (N = 510), and, for parents of autistic children, 1 month after (N = 182) they viewed the See Amazing materials. Following exposure, parents of non-autistic children showed small but significant increases in knowledge of autism and, like parents of autistic children, greater acceptance of autistic children. Parents of autistic children reported less strain, increased parenting competence, and more hope about involving their child in their community. That the See Amazing materials invoked positive changes in the general parent community and in parents of autistic children suggests that See Amazing materials have the potential to be an effective resource to increase acceptance and community inclusion, although limitations of self-selection, dropout rate, and lack of control group constrain interpretation. Implications include support for targeting acceptance as a step beyond awareness campaigns, though actual behavior change is a subject for future research.
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Creak, Mildred. "THE PARENTS OF AUTISTIC CHILDREN". Developmental Medicine & Child Neurology 14, n.º 5 (12 de noviembre de 2008): 659–61. http://dx.doi.org/10.1111/j.1469-8749.1972.tb02650.x.
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Riyadi, Slamet, Rosmawati Rosmawati y Mira Sri Gumilar. "The Effectiveness of Brushing Teeth Video to Improve Autism Parent’s Skill in Brushing Teeth at SLB 2 Provinsi Jambi Year 2020". Jurnal Kesehatan Gigi 8, n.º 2 (15 de diciembre de 2021): 125–29. http://dx.doi.org/10.31983/jkg.v8i2.7629.
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Childrens with Autism have difficulty to clean their oral cavity because less of ability in motor skills. Case reports show that the average autistic child has dental caries and periodontal disease due to the inability to brush their teeth properly. Autistic children spend a lot of time with their families so that the role of families, especially parents, is very important in the development of children with autism. This study aims to determine the effectiveness of brush teeth video counseling to improve brushing teeth skill in parents of autistic children at SLB 2 Provinsi Jambi. Study design is a quasi experimental study. The independent variable was the video counsellling of brushing teeth and the dependent variable was the parent’s ability of brushing teeth. The Sample in this study were parents of autistic children who met the inclusion and exclusion criteria. The average age of the respondents was 41 years (CI: 38 - 44). Wilcoxon test showed p value 0, 0001 (0.05) means significant difference of brushing skills between treatment group and control group. Mann Whitney showed p value 0.0042 (0.05), means significant difference between before and after intervention in the treatment group. Providing education on brushing skills to children with autism cannot be done instantly, it is necessary for the role of parents in teaching tooth brushing skills to be carried out continuously until children can brush their teeth independently. There is an improvement in brushing skills in parents of autistic children through counseling using videos on how to brush teeth.
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Mano, Elona. "Adult Autism - Global Challenge of the Future". European Journal of Social Sciences Education and Research 6, n.º 1 (30 de abril de 2016): 94. http://dx.doi.org/10.26417/ejser.v6i1.p94-98.
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There is an increase awareness of Autism Spectrum Disorder recently. The truth is that tens of thousands face an autism diagnosis each year. Even though the integration of autistic children is the focus of many studies in the last decades, the problem remains unsolved. What happens with autistic children as adults? In addition, one of the biggest challenges in providing services to people with an autism spectrum disorder is that the needs change from person to person. This study is focused on parent`s point of view. During the interviews the participants raised some important issues. To have their children in the same classes with non-disabled children, was the first won battle of parents of autistic children, but integrating autistic individuals as adults in society seems to be just the cover of a big dilemma for parents of autistic children. Autistic child as adult is a real challenge for society worldwide.
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Smith, Jodie, Rhylee Sulek, Ifrah Abdullahi, Cherie C. Green, Catherine A. Bent, Cheryl Dissanayake y Kristelle Hudry. "Comparison of mental health, well-being and parenting sense of competency among Australian and South-East Asian parents of autistic children accessing early intervention in Australia". Autism 25, n.º 6 (25 de abril de 2021): 1784–96. http://dx.doi.org/10.1177/13623613211010006.
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Parents from individualist cultures (those focused on autonomy of individuals; that is, Australian) may view their autistic children differently compared to parents from collectivist cultures (where community needs are valued over an individual’s, that is, South-East Asian cultures). As most research on autism and parenting has been undertaken in Western individualist cultures, knowledge of parenting beliefs and mental health within collectivist cultures is lacking. We compared the mental health, quality of life, well-being and parenting sense of competency between families raising an autistic child from two groups: 97 Australian parents and 58 parents from South-East Asian backgrounds. Children from both groups were receiving the same community-based early intervention. No group differences were found on the measures of mental health but, when compared to Australian parents, parents from South-East Asian backgrounds reported higher well-being and less impact on their quality of life resulting from their child’s autism-specific difficulties. Furthermore, a positive association between well-being and quality of life was only observed for South-East Asian parents. Hence, the views of, and responses to, disability for South-East Asian parents may act as a protective factor promoting well-being. This novel research indicates that culture plays a role in parenting autistic children and highlights the need to accurately capture cultural background information in research. Lay abstract We know that parents of autistic children experience poorer mental health and lower well-being than parents of non-autistic children. We also know that poorer mental health among parents of autistic children has been observed across different cultures. Most research focuses on Western cultures, so we know little about parental mental health and well-being of parents from different cultural backgrounds; yet, it is likely that cultural background contributes to how parents view their child’s condition and respond to the diagnosis. Here, we compared mental health, quality of life and well-being between families raising an autistic child from Australian backgrounds to families from South-East Asian backgrounds. All children in the current study were receiving the same community-based early intervention. When compared to the general population, parents had poorer mental health overall, but there were no differences between the two groups of parents. However, parents from South-East Asian backgrounds reported higher well-being and fewer difficulties associated with their child’s autism. These findings suggest that cultural background likely influences not only parent’s view of, and response to, their child’s autism, but also their own sense of well-being. As researchers and clinicians working with families of autistic children, we should more explicitly consider family’s cultural background within our work.
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Raza, Yasir, Sadaf Ali, Saher Mushtaque, Ujala Mushtaque, Hariza Surani y Shafaq Nomani. "The Oral Health of Autistic Children and its Impact on the Mental Health of Parents of Karachi, Pakistan". Pakistan Journal of Medical and Health Sciences 16, n.º 1 (30 de enero de 2022): 948–50. http://dx.doi.org/10.53350/pjmhs22161948.
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Background: Autism spectrum disorder is a mental health disorder which affects the oral health of autistic children. The parents of autistic children have to come across various problems associated with mental health. Objective: This study is conducted to assess the oral health of autistic children and its impact on the mental health of parents. Methodology: A cross-sectional study was conducted among 150 parents of autistic children. Out of which 75 were mothers and 75 were fathers. Hence, (DASS 21) was use to assess depression, anxiety and stress of parents. SPSS version-23 was use to analyze the data by applying independent t-test and Pearson product-moment correlation coefficient . (P ≤ 0.05) was considered significant. Results: The findings of the study revealed that autistic children have poor oral health status. Oral symptoms such as caries (p < 0.001), bad breath (p < 0.001), gingivitis (p < 0.001), and breathing from mouth (p < 0.001), biting of objects (p < 0.05) and unfavorable experience of dentist (p < 0.001) was highly significant among autistic children. Hence no significant difference was observed in dietary pattern of autistic children. Depression, anxiety and stress were observed among the parents of autistic children. Conclusion: Dental Carries, bad breath and gingivitis was commonly seen among the autistic children due to poor oral hygiene. In this situation when children are unable to understand parents. It becomes a challenging situation for parents leading to depression, stress and anxiety. Keywords: Autism spectrum disorder, Mental health, Oral health
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Azeem Mubarak, Doaa Mohammed Abdul. "Psychological Stress and Perceived Self-Efficacy in Mothers of Autistic Children". Journal of Intellectual Disability - Diagnosis and Treatment 10, n.º 6 (15 de diciembre de 2022): 334–41. http://dx.doi.org/10.6000/2292-2598.2022.10.06.7.
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Background: Literature has indicated that parents of autistic children face higher stress levels than parents of allistic children (non-autistic children), leading them to experience depressive symptoms that impact their daily lives, reducing their quality of life. This study aims to investigate the relationship between psychological stress and perceived self-efficacy in mothers and fathers of autistic children.
Methods: This study is descriptive and cross-sectional. A total of 125 mothers and fathers consented to participate in the current study. 15 parents only partially completed the survey, so their data was not included. The remaining 110 cases were included. This left a final sample of 110 parents of autistic children, 100 mothers (90.9 %), and 10 fathers (9.1%). All were biological parents.
Results: As indicated by the results, all statements in the Parental distress (PD) subscale had a score ranging between high (the majority of items, 10) to medium (two items). All statements in the Parent-Child Dysfunctional interaction (P-CDI) subscale had a score ranging between high (the majority of items, 10) to low (two items). All statements in the Difficult Child (DC) subscale scored high. The whole subscale had a mean score of 4.04 (SD=3.17) with a high score. For correlations, psychological stress was negatively correlated with perceived self-efficacy (r = -0. 34, p < 0.001).
Conclusion: The stress experienced during the nurturing of children with disabilities is a factor that threatens the psychological well-being of mothers of autistic children.
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Sipowicz, Kasper, Tadeusz Pietras, Marlena Podlecka y Łukasz Mokros. "The Association between Depression and Perceived Stress among Parents of Autistic and Non-Autistic Children—The Role of Loneliness". International Journal of Environmental Research and Public Health 19, n.º 5 (4 de marzo de 2022): 3019. http://dx.doi.org/10.3390/ijerph19053019.
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Having an autistic child significantly impairs the functioning of the family, including the wellbeing of the parents. The aim of this study was to assess whether loneliness mediates the relationship between perceived stress and the severity of depressive symptoms in the studied sample of parents. This cross-sectional study involved 39 parents of autistic children and 45 parents of non-autistic children. They completed a set of tests: a survey on sociodemographic and clinical data and psychometric questionnaires, i.e., Beck Depression Inventory II (BDI), De Jong Gierveld Loneliness Scale (DJGLS), and Perceived Stress Questionnaire (KPS). A rise in external and intrapsychic stress, independently, was linked to a rise in the severity of depressive symptoms. The severity of depression, loneliness and stress was higher among parents of autistic children compared with parents of non-autistic children. Intrapsychic stress exhibited an indirect effect through loneliness on the worsening of depressive symptoms.
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Agha Mohammad Hasani, Parvin, Mahmood Sheikh Fathollahi, Asal Gerami Fard y Mohammadreza Mokhtari. "Effectiveness of Happiness Training on the Pattern of Parent-Child Relationships and the Hope of Parents With Autistic Children". Iranian Rehabilitation Journal 18, n.º 3 (1 de septiembre de 2020): 309–18. http://dx.doi.org/10.32598/irj.18.3.946.1.
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Objectives: Families of children with special needs face many problems. This study aimed to investigate happiness training on the pattern of parent-child relationships and the hope of parents with autistic children. Methods: Twenty-six couples with autistic children who referred to Rafsanjan Autism Clinic, Rafsanjan City, Iran, were enrolled in the study by the census method. Informed consent was obtained from them. Then the parents completed the Schaefer and Edgerton Parent-Child Interaction Questionnaire (1985) and Miller Hope Scale (1988). Next, parents were randomly assigned to the intervention or control groups. Happiness training based on the Fordyce method was performed for eight 1.5-hour sessions per week for the intervention group. The parents of either group completed the questionnaires after training of the intervention group (about 2 months and 3 months later). The Chi-square test, independent t-test, and 2-way repeated-measures ANOVA were used for statistical analysis. The level of significance was set at 0.05. Results: The results of the analysis showed that the changes in the scores of communication (P=0.013), acceptance (P=0.008), control (P=0.005), independence (P=0.040), aggressive non-attachment (P=0.015), and hope (P=0.010) were significant between the two groups at stages of measurement. The scores of all variables increased but the aggressive non-attachment decreased. Discussion: The education of happiness in Fordyce style influenced the interactive pattern of communication and hope of parents with autistic children. Therefore, training of happiness along with other services available to parents of autistic children can also be considered.
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Burrows, Kristen E., Cindy L. Adams y Jude Spiers. "Sentinels of Safety: Service Dogs Ensure Safety and Enhance Freedom and Well-Being for Families With Autistic Children". Qualitative Health Research 18, n.º 12 (diciembre de 2008): 1642–49. http://dx.doi.org/10.1177/1049732308327088.
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Children with autism might display unpredictable and volatile behavior that places them in considerable physical danger and creates stress for the family. Families of autistic children often have limited freedom and experience difficulty with everyday activities. In this qualitative ethology study, we examined the effect of integrating service dogs into ten families with an autistic child. Data included participant observation, video recordings of family—parent—dog interaction, and semistructured interviews with the parents. The themes were (a) the dog as a sentinel of safety, (b) gaining freedom through enhanced safety, facilitating public outings and family activities, and (c) improving social recognition and status, in which the presence of the dog promoted awareness of autism and affected social interaction. The triadic relationship between parent, autistic child, and service dog constantly evolves. This research provides valuable information for parents interested in having a service dog for their autistic child, and has implications for long-term human—animal companionship for children with special needs and their caregivers.
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HUGHES, C., M. LEBOYER y M. BOUVARD. "Executive function in parents of children with autism". Psychological Medicine 27, n.º 1 (enero de 1997): 209–20. http://dx.doi.org/10.1017/s0033291796004308.
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Background. Previous studies have shown that individuals with autism show impaired performance on tests of executive function (Ozonoff et al. 1991, 1993; Hughes & Russell, 1993; Hughes et al. 1994). There is also strong evidence for genetic involvement in autism (see Rutter, 1991 for review). If executive dysfunction is a core impairment in autism, then similar impairments are hypothesized to exist in a subtler form among the parents of autistic children.Methods. Forty parents of autistic children were compared with 40 parents of learning disabled children and 36 adults from unaffected families on three computerized tests of executive function. These tasks tapped attentional-shifting skills, visuospatial planning and working memory. Participants also received a computerized control test of spatial memory-span. In addition, the interviewer's initial impressions of family members were coded using a new 33-item questionnaire.Results. A significant proportion of parents of autistic children (especially fathers) showed impaired executive function. By contrast, parents did as well as both comparison groups on a control test of spatial span, and on other ‘non-executive’ measures from the tasks, indicating that the autism group were as able and motivated as comparison groups. Interestingly, impairment of executive function was significantly correlated with the interviewer's pre-test impression of social abnormality among parents of autistic children.Conclusions. The hypothesis that a significant proportion of parents of autistic children show impaired executive function was supported. Parents showed good memory ability, but relatively poor planning skills and attentional flexibility. The extent to which this is an inherent trait in family members, rather than a reflection of the difficulties involved in caring for an autistic child, remains to be examined.
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Kristanti, Lucia Ani y Cintika Yorinda Sebtalesy. "Parents' Capacity for Autistic Child Personal Hygiene". Jurnal Midpro 11, n.º 2 (29 de diciembre de 2019): 117. http://dx.doi.org/10.30736/md.v11i2.117.
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ABSTRAK Anak autisme memiliki kebutuhan dasar yang sama dengan anak normal lainnya. Namun akibat dari gangguan perkembangan yang dialami menyebabkan mereka tidak atau kurang mampu memenuhi kebutuhannya tersebut secara mandiri. Tujuan penelitian ini adalah mengetahui kapasitas orang tua terhadap personal hygiene anak autis. Jenis penelitian deskriptif. Populasi penelitian ini adalah semua orang tua yang memiliki anak autis dengan jumlah sampel 30 responden. menggunakan teknik total sampling. Variabel dalam penelitian ini adalah kapasitas orang tua terhadap personal hygiene anak autis. Instrumen penelitian menggunakan kuesioner. Data yang diperoleh kemudian diproses editing, coding, scoring dan tabulating. Hasil penelitian menunjukkan bahwa sebagian besar orang tua memiliki kapasitas maksimal terhadap personal hygiene (mandi) anak autis yaitu 21 orang (70%). Sebagian besar orang tua memiliki kapasitas maksimal terhadap personal hygiene (keramas) anak autis yaitu 21 orang (70%). Sebagian besar orang tua memiliki kapasitas maksimal terhadap personal hygiene (gosok gigi) anak autis yaitu 22 orang (73,3%). Sebagian besar orang tua memiliki kapasitas maksimal terhadap personal hygiene (cuci tangan) anak autis yaitu 20 orang (63,7%). Sebagian besar orang tua memiliki kapasitas maksimal terhadap personal hygiene (memotong kuku) anak autis yaitu 19 orang (63,3%). Saran dari hasil penelitian yaitu memberikan pendidikan dan pelatihan kepada orang tua yang memiliki anak autis dalam mengelola sumber-sumber daya yang dimiliki, paling tidak uang dan waktu dalam upaya peningkatan kapasitas orang tua terhadap personal hygiene anak autis. Diharapkan hasil penelitian ini dapat dikembangkan dengan menyertakan variabel yang belum diangkat dalam pelaksanaan penelitian ini. Kata kunci : Kapasitas Orang Tua, Anak Autis, Personal Hygiene ABSTRACT Children with autism have the same basic needs as other normal children. However, the result of developmental disruptions caused them to be unable or less able to meet these needs independently. The purpose of this study is to determine the capacity of parents of autistic children personal hygiene. Descriptive research type. The study population was all parents who have autistic children with a sample of 30 respondents. using total sampling techniques. The variable in this study is the capacity of parents for personal hygiene in children with autism. The research instrument used a questionnaire. The data obtained is then processed editing, coding, scoring and tabulating. The results showed that most parents have the maximum capacity for personal hygiene (bathing) of autistic children, which is 21 people (70%). Most parents have the maximum capacity for personal hygiene (shampooing) for autistic children, which is 21 people (70%). Most of the parents have a maximum capacity for personal hygiene (brush teeth) of autistic children, that is 22 people (73.3%). Most parents have the maximum capacity for personal hygiene (hand washing) of autistic children, which is 20 people (63.7%). Most parents have a maximum capacity for personal hygiene (nail cutting) of autistic children, 19 people (63.3%). Suggestions from the results of the study are to provide education and training to parents who have autistic children in managing their resources, at least money and time in an effort to increase the capacity of parents to autistic children personal hygiene. It is expected that the results of this study can be developed by including variables that have not been raised in the implementation of this study. Keywords: Parental Capacity, Personal Hygiene, Autistic Children
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Suyanti, Suyanti y Kurniyatul Faizah. "HUBUNGAN ANTARA PENERIMAAN DIRI DAN DUKUNGAN SOSIAL ORANG TUA ANAK AUTIS DENGAN INTERAKSI SOSIAL ANAK AUTIS". Edupedia 3, n.º 2 (8 de enero de 2019): 1–8. http://dx.doi.org/10.35316/edupedia.v3i2.246.
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This study aims to determine how much influence social acceptance and support for parents of autistic children with social interaction of children with autism. The population is 30 parents of autistic children and the closestpeople who attend in PAUD Inklusi Anggrek MandiriSitubondo and the sample is the whole of the population of some 30 people. This study is correlational; the subject is determined by purposive sampling technique. Results of the study showed that the regression analysis coefficient on F = 17.839, p = 0.000 (p <0.05) so that there is a significant relationship between self-acceptance and social support for parents of autistic children with social l interactionautistic children is received. Partially there is a significant correlation between self-acceptance with social interaction shown by prices at t = 5.018, p = 0.000, so the hypothesis is accepted. In parsal also shown at t = 1.613 p = 0.118 (p> 0.05), so the research hypothesis that says there is a relationship of social support with social interaction rejected. So overall derived price Sguare R = 0.569 which shows variable acceptance of self and social support contributed 56.9% effective this further strengthensacceptance your self parents with autistic children and social support autistic children associated with autistic children social interaction. So H0 rejected, which means acceptance of self and relationship betweensocial parents support correlated with sociall interactionautistic children.
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Fisman, Sandra N., Lucille C. Wolf y Samuel Noh. "Marital Intimacy in Parents of Exceptional Children". Canadian Journal of Psychiatry 34, n.º 6 (agosto de 1989): 519–25. http://dx.doi.org/10.1177/070674378903400607.
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The purpose of this study was to examine the role of perceived parenting stress and parental depression on marital intimacy between parents of handicapped children versus developmentally normal children, and to investigate discrepancies between husbands' and wives' reports of marital intimacy. The parents of 31 autistic children, 31 Down Syndrome children and 62 developmentally normal children, matched for both mental and chronological age were studied. Results indicated significantly greater stress and depression, as well as lower marital intimacy for mothers of autistic children than mothers of normal children, and significantly greater stress than mothers of Down Syndrome children who fell somewhere between other groups of parents in all three measures. Fathers of autistic children experienced significantly higher parenting stress than the other groups, as well as lower marital intimacy but there were no differences amongst fathers on measures of depression. Low scores on subscales of identity and compatibility for mothers implying low self esteem contributed significantly to the lowered perception of marital intimacy. Implications for intervention, based on these findings, are discussed.
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Badi’ah, Atik, Ni Ketut Mendri, Heru Santoso Wahito Nugroho y Wawuri Handayani. "The Effect of Parenting on The Language Development of Autistic Children". Proceeding International Conference on Science and Engineering 3 (30 de abril de 2020): 509–15. http://dx.doi.org/10.14421/icse.v3.554.
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Autistic children have abilities and characteristics that are different from each other, so different ways of interacting with themselves and the environment and making autistic children as unique individuals (Ginanjar, 2007). The development of autistic children both physically, emotionally, intellectually, and psychosocially has a problem that results in the inhibition of children reaching a level of language development that is appropriate to their age. Parenting in children with autism includes autistic child parents providing emotional, social, informational and practical support. Attention and love from parents and family will encourage autistic children to develop better. An autistic child will feel that he is loved and wanted if more and more people in the family environment who love and care for him. Based on the results of a preliminary study conducted by the author by interviewing 8 autistic schools in the provinces of DIY and Ponorogo, East Java, to 16 parents who have autistic children, the majority of parents (93%) think that by entering autistic children into an outside school ordinary (SLB) autism in accordance with its limitations means their efforts can be said to be enough. Not all parents realize that having children with special needs in accompanying language development can maximize language development. Knowing the effect of parenting on the language development of children with autism This type of quantitative research uses Quasi experiment with the design "Pre test Post test with Control Group Design". Observation was carried out twice. The first observation is to determine the development of an autistic child before being given parenting and the second observation after being given parenting. Sampling was done by purposive sampling with the criteria of parents and autistic children aged 6-12 years in the autistic schools of the provinces of Yogyakarta and Ponorogo, East Java. Examination data were analyzed analytically with the help of SPSS for Windows version 16.0 using paired t-test and Wilcoxon, with a significant level of p <0.05. The experimental group pre-test and post-test with a value of p (sig) 0,000 <0.05 then Ha is accepted and Ho is rejected, meaning there is a difference between pre-test and post-test in the experimental group. In the control group pre-test and post-test with p value (sig) 0.002 <0.05 then Ha is accepted and Ho is rejected, meaning there is a difference between pre-test and post-test in the control group. There is a parenting effect on the language development of autistic children in autistic schools with p (sig) <0.05 means that Ha is accepted and Ho is rejected.
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Loveland, Katherine A., Susan H. Landry, Sheryl O. Hughes, Sharon K. Hall y Robin E. McEvoy. "Speech Acts and the Pragmatic Deficits of Autism". Journal of Speech, Language, and Hearing Research 31, n.º 4 (diciembre de 1988): 593–604. http://dx.doi.org/10.1044/jshr.3104.593.
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In a videotaped free-play session with a parent, autistic children were compared with mental-age matched Developmental Language Delay (DLD) children and with normally developing (ND) 2-year-olds in the use of communicative acts by parent and child. Groups were matched for language level. Autistic children had more incidents of no responses, produced less affirming, turn-taking vocalization, and gesture, and were less likely to initiate communication than other children. Parent groups differed only in a greater amount of initiating and use of imperatives by parents of autistic children. Few relations between parent behaviors and child behaviors were found. Nonresponses by all children were concentrated subsequent to parent imperatives and questions, but no group differences were found in the distribution of nonresponses to various parent communicative acts. Results are interpreted to support the hypothesis that autistic children's language can serve a number of useful functions but that their pattern of language functions differs from that of nonautistic language-impaired children and much younger normal children of similar language level.
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Begum, Fardaus Ara, Md Shafiqul Islam y Abu SMMH Rahman. "Coping strategies and education of parents of autistic children in Bangladesh". Bangladesh Journal of Medical Science 19, n.º 4 (12 de abril de 2020): 614–19. http://dx.doi.org/10.3329/bjms.v19i4.46615.
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Objectives: Bangladesh is a country characterized by the shared cultures of different ethnic groups. Parents in different cultures demonstrate diverse psychological functioning when caring for a child with a chronic disability such as autistic disorder. Few investigations have been conducted in Bangladesh regarding the coping strategies used by parents of autistic children. Therefore, the purpose of this study was to examine the coping strategies of parents raising autistic children in Dhaka city. We also studied the relation between the coping strategies of parents with autistic children and the parents’ educational status.
Materials and Methods: A total of 44 parents with autistic children participated in this survey and were randomly selected from a simple sample comprising parents of children attending special schools in Dhaka city, Bangladesh. Data were collected through questionnaires on coping strategies and were administered by an interviewer. A chi square test was conducted to determine the significance of the relation between education and different coping strategies.
Results and Discussion: Eight groups of coping strategies were selected as follows: Confrontive coping, Distancing from problem, Seeking social support, Self-controlling, Accepting responsibility, Planful problem-solving, Escape-avoidance, and Positive reappraisal. A total of 34, 10, 26, 19, 17, 32, 6, and 35 parents chose “at least try,” “not overanalyzing,” “get professional help,” “separate own feelings,” “conduct self-evaluation” “apply more effort….;” “hand over…,” “fantasies for turn the….,” “wish for over the…,” and “change daily lifestyle”, respectively. Moreover, a significant relation was revealed between parents’ education and the strategy, “accepting responsibilities.”
Conclusion: We concluded that parents of autistic children need more social support, counseling, and higher education to support their child’s special needs, as well as ensure their own physical and mental wellbeing.
Bangladesh Journal of Medical Science Vol.19(4) 2020 p.614-619
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Ben Soussia, R., A. Bouallagui, S. Khouadja, I. Marrag y M. Nasr. "Psychoaffectives Repercussions of Autism on Parents". European Psychiatry 41, S1 (abril de 2017): S122. http://dx.doi.org/10.1016/j.eurpsy.2017.01.1922.
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IntroductionCaring for a child with autism is a stressful experience for parents. The daily stress of this handicap has a major impact and triggers in the parents a series of adverse psychological reactions.AimTo reveal sociodemographic characteristics of parents of autistic children and to estimate the prevalence of anxiety and depressive symptoms among these parents.MethodsA cross-sectional study conducted among parents of autistic children supported by four of autistic children rehabilitation centers under the Tunisian Association for the Promotion of Mental Health. Data were collected through a questionnaire to explore the sociodemographic data of parents of autistic children. Depressive symptoms were assessed by the Beck scale and anxiety symptoms by the Hamilton scale.ResultsFifty-two parents were collected. The middle age was 35.73 years. They lived in an urban area in 96% of cases. The majority had an average socioeconomic level (88.4%). The respective rates of depressed or anxious parents as Beck scales and Hamilton were 48% and 23%. The association between depressive and anxious symptoms was found in 19%. In addition, depression was more common in mothers (P < 10−4) and anxiety was also more evident among mothers (P = 0.01).ConclusionThe presence of an autistic child causes profound changes in families and can be a source of tension and stress. The anxious and depressive impact on parents is important and frequent. The intervention that designs the psychiatrist to help children with autism should necessarily include an action for parents.Disclosure of interestThe authors have not supplied their declaration of competing interest.
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Boy, Hendry, Rina Kurnianti y Satria Al Fatiha. "Knowledge and Attitudes of Parents with Prevalence of Autism in Children in Schools with Special Needs (SABK) Unggul Sakti Jambi City". Jurnal Kesehatan Gigi 6, n.º 2 (31 de diciembre de 2019): 130–35. http://dx.doi.org/10.31983/jkg.v6i2.5490.
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Oral and dental health is important for anyone, including children with special needs. According to the Ministry of Health of the Republic of Indonesia, the role of parents, especially mothers, is very important in maintaining the cleanliness of their child's teeth and mouth. Especially in autistic children, caries and gingivitis are encountered, and while their behavior will cause dental care to be rather difficult. Dental caries is a dental tissue disease characterized by tissue damage, starting from the surface of the tooth extending towards the pulp. The study was to determine the relationship of knowledge and attitudes of parents with the prevalence of dental caries in autistic children in the School of Children with Special Needs of Jambi City. This study used a cross sectional approach. The sampling technique used was purposive sampling as many as 30 respondents. The measuring instruments used were questionnaires and dental caries observation sheets. Prevalence of dental caries was 77% or 23 children had caries, knowledge of parents of autistic children was 86.7% or 26 people had high criteria while those with moderate criteria were 13.3% or 4 people and attitudes in parents of autistic children were as much as 76.7% or 23 people have good criteria while those that have good criteria are 23.3% or 7 people. There is relationship between the level of knowledge of parents with the prevalence of dental caries in autistic children (p value = 0.031) and OR = 16.5 and there is relationship between attitudes of parents with the prevalence of dental caries (p value = 0.033), and OR = 8.88. There is a significant relationship between the level of knowledge of parents with the prevalence of dental caries in autistic children and there is a significant relationship between attitudes of parents with the prevalence of dental caries.
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Kocabıyık, Oya Onat y Yeşim Fazlıoğlu. "Life Stories of Parents with Autistic Children". Journal of Education and Training Studies 6, n.º 3 (16 de febrero de 2018): 26. http://dx.doi.org/10.11114/jets.v6i3.2920.
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The major aim of this study was to determine how children diagnosed with autism shapes their parents’ lives by specifying parents’ life stories. The study group consisted of 10 parents who have children with autism. Parents who have participated in the study were determined through a preliminary interview prior to the study and in-depth interviews were conducted with volunteer parents. In the study, "Life Story Interview" list was implemented to examine the content of life stories that shape parents’ lives. The data obtained from the research were analyzed using data analysis phases of interpretative phenomenology which is one of the qualitative research models. By analyzing the data obtained in the research, 10 major themes emerged. These major themes include; diagnosis, feeling, hopes and plans, concerns and questions, social reactions / stigmatization, parenting roles, coping with, sensitivity to disease, meaning of life and development. Analyses revealed that parents with autistic children undergo through a wide variety of emotions, challenges and difficulties during their daily lives and also that good coping skill is the key to normal functioning within the family which had an autistic child.
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Rahman, Farah Shalsabila y Rita Destiwati. "The Intrapersonal Communication Model of Parents with Autistic Children in Tangerang". Jurnal Ilmu Komunikasi 20, n.º 3 (30 de diciembre de 2022): 275. http://dx.doi.org/10.31315/jik.v20i3.7333.
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Autism Spectrum Disorder (ASD) is a developmental disability that can cause significant social, communication, and behavioral challenges. Having a child with ASD is an exceedingly important challenge for parents. Parents must deal with their child's repetitive behavior, difficulties with speech, understanding, and uncontrollable tantrums. Parents had to face financial problems regarding the high cost of nurturing their children and the high intensity of negative stigma in the surrounding environment. This situation has not fully received the attention and care of the surrounding community. This study aims to explain and discover the intrapersonal communication model among parents with autistic children in Tangerang. This study uses a descriptive qualitative method with data collection techniques, namely observation and unstructured interviews. Six parents in Tangerang city were selected using purposive sampling. Through four stages, the results of this research show that the intrapersonal communication of parents with autistic children is represented as sad, disappointment, anger, confusion, scared, traumatized, self-acceptance, self-approach to God, treatment attempts, etcetera. This research is conducted to support parents with autistic children to increase their confidence in raising their children. This research also contributes information and education to the public regarding the intrapersonal communication of parents with autistic children.
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Hussein, Amal M., Elizabeth Pellicano y Laura Crane. "Understanding and awareness of autism among Somali parents living in the United Kingdom". Autism 23, n.º 6 (29 de noviembre de 2018): 1408–18. http://dx.doi.org/10.1177/1362361318813996.
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Using vignettes and interviews, this study examined understanding and awareness of autism, and (a)typical development more broadly, among 32 Somali parents living in the United Kingdom. Results demonstrated that parents of both autistic (n = 16) and non-autistic (n = 16) children were just as likely to identify vignettes of typically developing children, yet parents of autistic children appeared more astute to signs of atypical development. Across the whole sample, parents commonly identified and labelled vignettes of autistic children, but experienced more difficulty labelling vignettes that described children with other forms of atypical development, sometimes mislabeling these children as autistic. This suggests that there is a need for greater support in recognising and identifying different types of atypical development in the Somali community (to mitigate the risk that the term ‘autism’ may take on its own meaning within the Somali community, becoming a euphemism for a range of developmental conditions). Analysis of interview data identified key sociocultural factors that either helped or hindered the inclusion of families with autistic children within the community, including the Somali community’s: (1) perceptions of disability, (2) beliefs about the causes of autism in the Western world and (3) strong reliance on religious beliefs in understanding and accepting an autism diagnosis.
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Doron, Hadas y Adi Sharabany. "Marital Patterns among Parents to Autistic Children". Psychology 04, n.º 04 (2013): 445–53. http://dx.doi.org/10.4236/psych.2013.44063.
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Elder, Jennifer H. "Beliefs Held by Parents of Autistic Children". Journal of Child and Adolescent Psychiatric Nursing 7, n.º 1 (enero de 1994): 9–16. http://dx.doi.org/10.1111/j.1744-6171.1994.tb00184.x.
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BERNARD-OPITZ, VERA y ADRIAN KOK. "Training parents of autistic children in Singapore". International Journal of Rehabilitation Research 15, n.º 1 (marzo de 1992): 82–84. http://dx.doi.org/10.1097/00004356-199203000-00011.
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Lehmann, Christine. "Parents of Autistic Children Forge Research Partnerships". Psychiatric News 39, n.º 3 (6 de febrero de 2004): 27. http://dx.doi.org/10.1176/pn.39.3.0027.
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Floríndez, Lucía I., Dominique H. Como, Daniella C. Floríndez, Francesca M. Floríndez, Evelyn Law, Jose C. Polido y Sharon A. Cermak. "Toothbrushing and Oral Care Activities of Autistic and Non-Autistic Latino Children". Children 9, n.º 5 (18 de mayo de 2022): 741. http://dx.doi.org/10.3390/children9050741.
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Background: Oral care activities, e.g., toothbrushing, are habitual occupations often considered routine. However, for autistic children, performing these routine dental practices can be challenging due to the child’s sensory sensitivities, unique executive function, and the complicated way in which autistic children conceptualize structure and habits. Limited research exists exploring the nuances of oral care routines in the autistic population, and more knowledge is needed to support targeted education interventions to improve oral care and address health inequities. The purpose of this study was to examine videos of oral care routines in the home to understand how oral care activities, such as toothbrushing, were performed by autistic and non-autistic Latino/a children. Methods: Parents/caregivers from eighteen Latino/a families with children between 6 and 12 years old (n = 10 autistic children and n = 8 non-autistic children) video recorded their child’s oral care routines for three days. The research team blindly coded and analyzed these videos using an oral care observation template to understand how these activities were uniquely performed by the children. Results: Eighty-five oral care videos were analyzed for this study. In addition to noting areas of oral care that can be improved, which included length of brushing and using the correct brushing technique, we identified two themes related to the differences between oral care practices in the autistic and non-autistic children: parent involvement and modifications. Conclusions: Qualitative findings show that parental involvement was documented especially in the case of autistic children, and that two types of modifications, habitual and sensory, were observed that demonstrated parents being aware of the needs of their autistic child and modifying the oral care activity to meet those needs. By synthesizing observations from the oral care videos into suggestions for practitioners working with families, we hope to supplement knowledge about effective oral care practices for autistic and non-autistic Latino/a children, thereby improving overall oral health and reducing oral health inequities in this population.
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Odabaş Özgür, Bahar, Mürşit Aksoy, Mensure Aydın, Serkan Koçkaya y Bergün Meriç Bingül. "Determination of mothers’ depression levels by the type of special educational services they get for their autistic children". Journal of Human Sciences 13, n.º 3 (30 de diciembre de 2016): 6092. http://dx.doi.org/10.14687/jhs.v13i3.4269.
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The purpose of this study is to determine the depression levels of mothers by the type of special educational services they got for their autistic children. Mothers of 20 male autistics and 5 female autistics participated in the study as volunteers. %24 of families got educational services from life coaches, %48 from O.Ç.E.M (Autistic Children Education Centers) and %28 from rehabilitation centers. Beck depression scale applied to volunteers to determine the depression levels (SCORES, Life Coach =16±7,05, O.Ç.E.M =13,83±7,05, Rehabilitation Center =25,57±9,28). Data were presented as mean, SD, frequency for description purpose. Variables were analyzed and were calculated by using Kruskal Wallis Test and Mann Whitney U tests. There is a significance difference at level of P<0.05 (p=0,035) between parents which get different types of special educational services. As a result; significant difference has found in the depression levels of parents which get special educational services from rehabilitation centers found more depressive then O.Ç.E.M and life coach services.
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Ma’rifah, Asirotul, Naning Puji Suryantini Suryantini y Rina Mardiyana. "STRATEGI KOPING ORANG TUA TERHADAP ANAK AUTIS DAN POLA ASUH ORANG TUA". Journal of Health Sciences 11, n.º 2 (25 de octubre de 2018): 196–204. http://dx.doi.org/10.33086/jhs.v11i2.113.
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Autism is still a nightmare for most parents. Parents with autism can be very stressful when dealing with a hyperactive child's behavior, aggressive and passive. Stress experienced by parents of children with autism will affect the ability of parents in the parenting role, especially in relation to coping strategies have in dealing with problems of children. The participation of parents is crucial the success of socializing with children with autism in the general population. This study aims to determine the relationship of coping strategies parents of autistic children and parenting parents. This type of research is an analytic correlation with cross sectional approach. The population in this study were all parents of autistic children in SLB Muhammadiyah Mojokerto numbering 15 people. Samples in this study were all parents of autistic children in SLB Muhammadiyah Mojokerto which totaled 15 people by using total sampling technique. Collecting data using questionnaires. Data analized use cross tabulation, presented in a frequency distribution. On cross-tabulation obtained results tend to use maladaptive coping strategies permissive parenting that is 8 (53.3%), there are also respondents who use adaptive coping strategies using authoritarian parenting as much as one person (16.7%), and adaptive coping strategies tend using democratic parenting style as much as 5 people (33.3%). Expected parents still seeking information to broaden their parents on coping strategies of parents of autistic children and parenting parents as well as parents to give special attention for children with autism to the development and advancement of their lives because they have the same rights as any other normal child.
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Asari, Hasyim, Suri Ana y Hilmi Yumni. "Caring for Autistic Children Based on the Development of a Family Stress Coping Model". Open Access Macedonian Journal of Medical Sciences 11, G (1 de enero de 2023): 12–15. http://dx.doi.org/10.3889/oamjms.2023.11141.
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BACKGROUND: The limitations of social interaction, communication, cognitive abilities, behavior patterns, and activities in autistic children are sources of stress for parents. Parents’ negative stress assessment of autistic children causes maladaptive coping and has an impact on inappropriate caring behavior. AIM: Caring of autistic children based on the development of family stress coping models METHODS: This research was observational research by utilizing a cross-sectional approach. Participants of parents of autistic children at the Surabaya Autism Therapy Center. The determination of the amount using the rule of thumb formula in SEM is determined by 7 x 15 parameters of 105. Data collection uses a multi-stage random technique. Test the model reliability using the Structural Equation model - Partial Least Square (SEM - PLS), the structure using R Square, and evaluate using Q-square. RESULT: A significant influence occurred toward stress assessment against stress coping and stress coping against parental behavior in caring for children with autism. CONCLUSION: Parents’ positive assessment of stressors and energy adequacy and good health will make parents able to control themselves and make themselves an important psychological resource in developing adaptive coping. The development of adaptive coping for parents can increase togetherness among family members, maintain and reduce physiological and psychological reactions to stressors, and manage family support and professional staff to obtain comfort, attention, or assistance in improving behavior in caring for autistic children.
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Ferrara, R. y M. Esposito. "Parental stress in autistic parents: The counseling effects". European Psychiatry 41, S1 (abril de 2017): s787. http://dx.doi.org/10.1016/j.eurpsy.2017.01.1504.
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IntroductionIn parents of autistic children there are high levels of stress. For parents, counseling can help them face the world of autism through the many stressors they experiment.ObjectivesTo evidence a possible effect of the counseling intervention on parental stress.MethodsThe sample consisted of 24 parents (mean age = 38.7) of children diagnosed with autism spectrum disorder related to the treatment centre “Una breccia nel muro”. Parents’ group was randomly divided into two subgroups, the first (EG experimental group) consists in 12 parents, which were included in a counseling treatment of six months (one meeting of 2 hours every 15 days), while the other subgroup parents, (CG control group) were not included. We used parenting stress index–short form (PSI-SF) before counseling intervention (T0) and after (T1) with every parent. PSI values stress level in following scales: parental distress (PD), parent-child dysfunctional interaction (PCDI) and difficult child characteristics (DC). Figure 1 shows all the variables in each group at T0 and T1.ResultsThen a 2-tail t-test was separately carried out for each group (Counseling Yes; Counseling No). Counseling Yes: PD (t22 = .70, P = .49); PCDI (t22 = .72, P = .47); DC (t22 = 2.23, P = .03); Tot Stress (t22 = 1.04, P = .3). Counseling No: PD (t22 = .82, P = .42); PCDI (t22 = 1.7, P = .09); DC (t22 = .59, P = .56); Tot Stress (t22 = .72, P = .48)ConclusionsOur data confirm the positive effects of counseling especially on the difficulties related to children (DC scale).Disclosure of interestThe authors have not supplied their declaration of competing interest.
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Poole, Daniel, Emma Gowen, Ellen Poliakoff y Luke A. Jones. "‘No idea of time’: Parents report differences in autistic children’s behaviour relating to time in a mixed-methods study". Autism 25, n.º 6 (30 de abril de 2021): 1797–808. http://dx.doi.org/10.1177/13623613211010014.
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An emerging body of research suggests that temporal processing may be disrupted in autistic children, although little is known about behaviours relating to time in daily life. In the present study, 113 parents of autistic and 201 parents of neurotypical children (aged 7–12 years) completed the It’s About Time questionnaire and open-ended questions about their child’s behaviour relating to time. The questionnaire scores were lower in the autistic compared with the neurotypical group, suggesting that behaviours are affected. Three key themes were identified using thematic analysis: autistic children had problems with temporal knowledge, learning about concepts relating to time, such as how to use the clock and language around time. There were differences in prospection with autistic children having more difficulties with how they thought about the future and prepared themselves for upcoming events. The final theme, monotropism, described how autistic children viewed their time as precious so they could maximise engagement in their interests. The present study indicates that behaviours relating to time can have a considerable impact on the daily lives of autistic children and their families. Further work exploring the development of temporal cognition in autism would be valuable for targeting effective educational and clinical support. Lay abstract Many everyday activities require us to organise our behaviours with respect to time. There is some evidence that autistic children have problems with how they perceive and understand time. However, little is currently known about this, or the ways in which behaviours related to time are impacted in daily life. In this study, 113 parents of autistic children and 201 parents of neurotypical children completed a questionnaire and open-ended questions about their child’s behaviour relating to time. Questionnaire scores were lower in the autistic group compared with neurotypicals, which suggests that behaviours relating to time are affected in autistic children. The open-ended responses further confirmed that the autistic children struggled with time and that this impacted on them and their family. Three key themes were identified. Theme 1: autistic children have problems with learning about concepts relating to time such as telling the time from a clock and using words to describe time (hours, minutes, etc.) appropriately. Theme 2: autistic children think about the future differently. Planning and working under time pressure were described as a problem. Theme 3: autistic children have strong interests which take up a lot of their attention and worrying about having sufficient time to pursue these interests causes anxiety. This research indicates that behaviours related to time can have a considerable impact on the lives of autistic children and that targeted support may be required.
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Alhuzimi, Talal E. y Mudi H. Alharbi. "Perceptions of Parents on Management of Food Allergy in Children with Autism Spectrum Disorder (ASD) in Saudi Arabia". Children 10, n.º 1 (26 de diciembre de 2022): 48. http://dx.doi.org/10.3390/children10010048.
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Background: Food allergy is one of the most serious health concerns spread across the globe. Its awareness and management are undervalued, especially in children with autism spectrum disorders (ASD). The aim of this study is to explore the perception of parents of autistic children from Saudi Arabia on the prevalence, knowledge, awareness and management of food allergens. Methods: A cross-sectional exploratory self-administrated online survey was conducted in Saudi Arabia, where 125 parents of autistic children voluntarily took part in the survey from April to August 2022. Results: This study indicates that less than one-fourth of autistic children suffering from food allergies, while most of them are allergic to proteins mainly. Examination of the knowledge level of these parents regarding food allergies, depending upon the score of correct answers given by them, showed that a majority of parents had a moderate level of knowledge on food allergy. Even though there was awareness about food allergens, the use of medical interventions was not employed much. However, the parents were mindful of food labeling and found it to be useful in avoiding known food allergies. Mediating effects of food allergy were observed in the relationship between food allergy knowledge and its management. Moreover, the source of information about food allergies was also found to be significantly associated with the knowledge score and the level of awareness regarding food allergies. This study provides evidence that there is a significant influence of food allergy knowledge of parents of autistic children on its management among autistic children from Saudi Arabia, with awareness of food allergies as the mediator. Conclusions: This is the first study where the prevalence, knowledge and management, along with awareness of food allergy, has been empirically explored through the perception of parents of autistic children.
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Yuliandika, Rizal Dwi y Dewi Suryandari. "Hubungan Antara Pola Asuh Orang Tua dengan Temper Tantrum Anak Autis di SLB AGCA Center Surakarta". Jurnal Berita Ilmu Keperawatan 12, n.º 1 (1 de enero de 2019): 15–22. http://dx.doi.org/10.23917/bik.v12i1.9618.
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Growth and development, especially in children, sometimes impaired either before birth or after birth. Developmental disorders in children one of which is a developmental disorder behavior. Autism is one of irregularities in development since infancy. The purpose of this study was to determine the description of parents' parenting autistic children in SLB Agca Center Surakarta and analyze the relationship between foster parents with autistic children in special schools tantrums Agca Center Surakarta. The result is expected to increase the knowledge and contribute to the parties involved in this research about the types of parenting parents the right to their children, especially to children dishabilitas, such as autistic children. This study design using correlational, which examines the relationship between variables. Method is a cross sectional approach. The population in this study are all autistic children in SLB Agca Center Surakarta numbered 34 children. The sample in this study were students with autism SLB Agca Center Surakarta totaling 34 children. The sampling technique used is total sampling. Analysis of the data in this study using univariate and bivariate analysis
aimed to test the hypothesis or testing a relationship between parenting parents with an autistic child temper tantrums in SLB Agca Center Surakarta. The results showed that parents' parenting of children autism in SLB Agca Center Surakarta included in the category of good, and the trend parenting democratic show that autistic children at SLB Agca Center Surakarta has temper tantrums low and temper tantrums of children autism in SLB Agca Center Surakarta included in the category are low, this indicates that the planting of education in SLB Agca Center Surakarta quite successful. There is a correlation between parenting system and temper tantrum of children with Autism Syndrom Disorder in Agca Center Surakarta.
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Crane, Laura, Lydia Jones, Rachel Prosser, Morvarid Taghrizi y Elizabeth Pellicano. "Parents’ views and experiences of talking about autism with their children". Autism 23, n.º 8 (27 de marzo de 2019): 1969–81. http://dx.doi.org/10.1177/1362361319836257.
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The way an autism diagnosis is disclosed to parents has been found to play a crucial role in their acceptance of, and the way they cope with, their child’s diagnosis. Yet, research into parents’ subsequent experiences of disclosing a diagnosis to their children, and talking to their families about autism more generally, is limited. Using an online survey, the current study examined 558 parents’ experiences of talking about autism with their autistic and non-autistic children. Results demonstrated that most parents ( n = 379, 67.9%) had told their autistic children about their diagnosis. Despite few parents ( n = 163, 20.4%) receiving advice or support regarding the disclosure of the diagnosis, those that had disclosed felt satisfied with the process ( n = 319, 84.2%) and felt confident in talking about autism with their children ( n = 339, 92.4%). Those who had not told their autistic children about the diagnosis largely planned to discuss this with their child in the future ( n = 100, 73.5%), felt confident in doing so ( n = 95, 70.9%) and were satisfied with their decision ( n = 95, 70.4%). Analysis of open-ended data, using thematic analysis, highlighted the importance of openness and the need to tailor explanations to individual children’s needs, while acknowledging that disclosure could often be challenging for parents.
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Orsini, Michael. "Autism, Neurodiversity and the Welfare State: The Challenges of Accommodating Neurological Difference". Canadian Journal of Political Science 45, n.º 4 (diciembre de 2012): 805–27. http://dx.doi.org/10.1017/s000842391200100x.
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Abstract.In the last decade, autism has become one of the most hotly contested health policy issues in North America and beyond. From debates about the role of vaccines to the efficacy of therapeutic interventions, a range of civil society actors has been advocating for policy and societal change in the field, with mixed success. In Canada, this culminated in 2004 with a much-publicized Supreme Court decision—Auton v. British Columbia—that pitted parents of autistic children against the BC government, which was unwilling to cover the costs of behavioural treatment for autistic children. In contrast to parent-led advocacy groups, there has been a flurry of civil society activity waged by autistic self-advocates who decry the focus on curing autistic people and press instead for the recognition of neurological difference. Drawing on interviews with advocates in Canada and the US, this article highlights these contending perspectives and argues that both pose fundamental challenges to how we view the redistributive aims of the welfare state in Canada and beyond.Résumé.Au cours de la dernière décennie, l'autisme est devenu l'un des enjeux les plus controversés dans le domaine de la santé au Canada et à l'étranger. Que ce soit lors de débats sur le rôle des vaccins ou encore sur l'efficacité des interventions thérapeutiques, plusieurs acteurs de la société civile ont milité, avec un succès mitigé, en faveur de changements dans politiques et sociaux par rapport à l'autisme. Au Canada, cet activisme résultera en une décision fort controversée de la Cour Suprême en 2004,Auton v. Colombie-Brittanique, portant sur un conflit entre les parents d'enfants autistes et le gouvernement de la Colombie-Britannique, qui refusait de payer le coût des traitements pour les enfants autistes. En parallèle au militantisme des parents d'enfants autistes, des individus autistes se sont aussi mobilisés pour dénoncer cette fois l'objectif même de guérir les personnes autistes. Ces derniers exigent plutôt que soient reconnues leurs différences et, de manière plus large, le principe de la diversité neurologique. Se basant sur des entrevues avec des militants et des militantes, cet article présente ces différentes perspectives et démontre qu'elles remettent en question la façon dont nous conceptualisons le modèle de redistribution associé à l'État-providence.
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Badi’ah, Atik, Ni Ketut Mendri, Bondan Palestin y Heru Santoso Wahito Nugroho. "The Effect of Applied Behavior Analysis on the Gross Motor Development of Autistic Children". Open Access Macedonian Journal of Medical Sciences 9, T4 (27 de febrero de 2021): 55–59. http://dx.doi.org/10.3889/oamjms.2021.5754.
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BACKGROUND: Autistic children have abilities and characteristics that are different from each other, so different ways of interacting the environment autistic children individuals. The development of autistic children both physically, emotionally, intellectually, and psychosocially has a problem that results in the inhibition of children reaching a level of gross motor development that is appropriate to their age. Stimulation applied behavior analysis (ABA) in children with autism includes gross motor, fine motor, emotional, social, language, informational, and practical supports. An autistic child will feel that he is loved and wanted if more and more people in the family environment love and care for him. Based on this preliminary study, interviewing eight autistic schools in the provinces of DIY and Ponorogo, East Java, to 16 parents who have autistic children, the majority of parents (93%) think that by entering autistic children into a special school (SLB) in accordance with its limitations mean that their efforts can be said to be enough. Not all parents realize that stimulating and accompanying children with special needs can maximize gross motor development. AIM: This study aims to assess the effect of stimulation ABA on the gross motor development of children with autism. METHODS: Quasi-experiment “Pre-Post Control Group Design” was used in this study. The first observation is to determine the gross motor development of an autistic child before being given stimulation ABA and the second observation after being given the ABA stimulation. Samples were recruited using a purposive sampling technique with the criteria of parents and autistic children aged 6–12 years in the autistic schools of the provinces of Yogyakarta and Ponorogo, East Java. T-test and Wilcoxon applied in this study with significance level was <0.05. The significance level was set at p < 0.05. RESULTS: Result of data analysis showed in the experiment group before intervention, the category of the gross motor is enough category and after intervention, the category was high. Meanwhile, in the control group, there is no differences category between pre test and post test. there is a difference of the gross motor development of autistic children in intervention group and control group with p value 0.001 and 0.004 respectively. CONCLUSION: There is an effect of stimulation ABA on the gross motor development of autistic children in autistic schools with p (sig.) <0.05 means that Ha is accepted and Ho is rejected.
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Banasiak, Anna. "THE SENSE OF EMPOWERMENT AMONG PARENTS OF CHILDREN WITH AUTISM". SOCIETY. INTEGRATION. EDUCATION. Proceedings of the International Scientific Conference 3 (25 de mayo de 2018): 27–36. http://dx.doi.org/10.17770/sie2018vol1.3286.
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The aim of this study was to examine the level of a sense of empowerment among mothers and fathers of children with autism. The relationship between a sense of empowerment and socio-demographic variables characterising the respondents including the parents was also analysed. Among the participants, there were 74 parents of autistic children (39 mothers, 35 fathers), 77 parents of children with Down syndrome (40 mothers, 37 fathers) as well as 80 parents of typically developing children (40 mothers, 40 fathers). Two statistical tools, namely the non-parametric Mann-Whitney U test and Kruskal-Wallis test, were employed in this study. The results show a higher level of a sense of empowerment when it comes to the evaluation of own knowledge and competences in mothers of autistic children than in mothers of children with Down syndrome, contrary to fathers of autistic children whose level of a sense of empowerment is lower within the said scope compared with fathers of children with Down syndrome.