Tesis: "Male caregivers"

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Spearman, Marilyn S. "The expressions of male caregivers /." The Ohio State University, 1999. http://rave.ohiolink.edu/etdc/view?acc_num=osu1487952208105824.

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Barnes, Kristi A. "An examination of existing caregiving models and male spousal caregivers." Morgantown, W. Va. : [West Virginia University Libraries], 2000. http://etd.wvu.edu/templates/showETD.cfm?recnum=1424.

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Sexton, Stephanie Fitzsimmons. "Relationship Between Stress Burden and Perceived Support Among Elderly Male Spousal Caregivers." ScholarWorks, 2015. http://scholarworks.waldenu.edu/dissertations/1717.

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As older couples age, often one partner becomes more competent and able to care for the other, in which case they are able to remain in their homes. In one township in the northeastern United States, the caregiving role had a significant effect on the lives of elderly men who care for their wives. The purpose of this quantitative project study was to determine the relationship between perceived stress burden and perceived level of social support services and between perceived stress burden and use of support services by elderly male spousal caregivers residing in active adult communities. Watson's theory of caring provided the theoretical foundation for this study. A correlational design was used and data were collected from 82 elderly male spousal caregivers with (a) the Zarit Burden Interview; (b) the Multidimensional Scale of Perceived Social Support; and (c) a checklist, Support Services in Your Area. Descriptive analysis indicated that participants carry a large stress burden, particularly emotional stress (Zarit Burden score of 36.58/65), enjoy strong social support (Multidimensional Scale score of 45.47/75), and use few community services. Pearson's product-moment correlation revealed no significant relationship between perceived stress burden and perceived social support or between perceived stress burden and use of community services, indicating that men feel emotional stress but the feelings are not related to their use of community services. As community services were not used by elderly male caregiver spouses, a workshop for professionals was developed to help the professionals expand programs and services that may have value for these men in their caregiver role. This study has social significance because satisfaction with the caregiver role has consequences for the health and financial well-being of the elderly and for U.S. society.

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Jones, Jazmin. "A psycho-educational support group for older adult male caregivers| A grant proposal." Thesis, California State University, Long Beach, 2016. http://pqdtopen.proquest.com/#viewpdf?dispub=10032304.

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Providing direct caregiving for a loved one is emotionally difficult, and it can be uniquely challenging for male spousal caregivers. As men adjust to their new roles, they are faced with caregiver burdens, which can present complications mentally, physically, and financially. Therefore, the purpose of this project was to develop a grant proposal for a male caregiver support group for older adult caregivers within the greater Long Beach, CA area. The proposed program, entitled the Sure Project, would help caregivers decrease their stress, increase their coping abilities, and provide resources for additional community support. The most appropriate funder identified was the Archstone Foundation, as the goals of the Sure Project coincided with the goals of this foundation. The Long Beach Jewish Family and Children Services agency served as the host agency from this project. The actual submission and/or funding of this grant were not required for the successful completion of the project.

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Khokhar-Cottrell, F. "The lived experience of male and female caregivers of people with dementia : a qualitative study." Thesis, City, University of London, 2017. http://openaccess.city.ac.uk/17711/.

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Background: Burden, satisfaction, depression, anxiety, social support, coping strategies and the disease state of dementia patients all influence carers’ quality of life (QoL) and well-being. Qualitative research looking at carers’ lived experiences and the effect that this has on their well-being is limited. Aim/Objectives: To explore carers’ lived experiences in relation to their daily management care and adjustment of having to care for a person with dementia, and to examine the differences or similarities of carers’ lived experiences in relation to the care provided to the recipients and the effect that this has on carers’ QoL and well-being. Design: Interpretative phenomenological analysis (IPA). Methods: Semi-structured interviews were conducted with fourteen carers (seven males and seven females) and the audio-taped raw data was transcribed. Key constructs and initial meanings in relation to the everyday lived experiences were identified. Results: Carers’ accounts clustered around five master themes: ‘just normal’, providing best and safe care, managing to cope, sharing and supporting others, and cherished moments. Conclusions: Health professionals and governmental agencies need to consider carers in clinical interventions, psychological and educational programmes. Local communities should adopt a positive image of carers, dementia patients, and health professionals, and have a greater understanding of carers’ criteria for the standard of care and factors affecting carers’ life circumstances in relation to QoL and well-being. Keywords: Carers, Caregivers, Dementia, Well-being, Lived, Interpretative Phenomenological Analysis (IPA) and Qualitative.

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Schwartz, Abby J. "Moderators of the impact of sociodemographic and economic factors on the well-being of caregiving men: Implications for social work practice and policy." Thesis, Boston College, 2013. http://hdl.handle.net/2345/3934.

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Thesis advisor: Kathleen McInnis-Dittrich A vast amount of caregiving literature focuses on the well-being of caregivers of older adults, and is primarily focused on the experiences of caregiving women who have traditionally assumed this role. However, the number of male caregivers is growing related to the increase in the number of older adults requiring care, as well as changing sex roles in the family. It is important to examine the impact caregiving has on men to determine the similarities or differences from women in order to inform social work policy and practice. This dissertation begins to answer the question of whether or not there are differences between male and female caregivers through the completion of a secondary data analysis using the Caregiving in the U.S. Study, 2009, conducted by the National Alliance for Caregiving in collaboration with AARP, and funded by the MetLife Foundation. Women are included in the analyses as a comparison group to the male caregivers to identify what similarities or differences exist in the caregiver's well-being. Ordered logistic regression and logistic regression analyses were used to test if caregiver's age and employment status predicted the well-being of caregivers. Moderation analysis was employed to determine what factors moderated the relationship between the predictors and well-being. Seemingly unrelated regression and Chow tests were used to determine if the impact of caregiving on men was unique or the same as female caregivers. Some key findings included that low-income group caregivers reported greater odds of higher financial hardship and physical strain. Caregiving men reported decreased emotional stress, physical strain, and negative impact on social interaction with others since beginning caregiving compared to females. Caregiving men also sought help from unpaid help (e.g., family and friends) more than female caregivers. With several provisions under the Patient and Protection Affordable Care Act of 2010 centered on addressing caregiver needs, it is an appropriate time to consider how to meet the needs of underserved caregivers. Based on the findings in this dissertation, social work policy and practice recommendations are suggested to address specifically low-income and male caregiver needs Thesis (PhD) — Boston College, 2013 Submitted to: Boston College. Graduate School of Social Work Discipline: Social Work

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Dawson-Weiss, Judith. "A male caregiver's perceived experience of caring for a wife with stroke." Connect to full-text via OhioLINK ETD Center, 2005. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=mco1116804126.

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Thesis (M.S.)--Medical College of Ohio, 2005. "In partial fulfillment of the requirements for the degree of Master of Science in Nursing." Major advisor: Linda Pierce. Includes abstract. Document formatted into pages: vi, 56 p. Title from title page of PDF document. Bibliography: pages 46-50.

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Dimmock, Alexandra. "Male primary caregivers in the UK : an exploratory study of the care work performed by British fathers." Thesis, University of Bristol, 2014. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.658845.

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This thesis presents an account of the experiences and practices of a group of primary caregiving fathers in the UK. It fills a gap in the academic literature on fatherhood in relation to an under-researched yet apparently increasing group of men. Drawing on descriptions of their engagement in paid work, housework and childcare practices, and engagement in the public sphere, this thesis argues that the practices of primary caregiving fathers across these three areas are indicative of shifts in ideas about , and experiences of, contemporary fathering. These primary caregiving fathers are not necessarily disengaged from the labour market although economic provisioning is not central to their conception of good fatherhood. They also take on full responsibility . for childcare and its management, in contrast to previous accounts which suggested that even in 'role reversal ' situations mothers continue to take the lead. The public arena is a more difficult space to negotiate with fathers developing a range of responses to navigate female-dominated situations. Finally, it is suggested that the total social organisation of labour (TSOL) framework is helpful for providing a more integrated approach to evaluating fathers' care and work routines. These encompass paid employment, volunteering, childcare, and networking at fathers' groups and cannot be readily classified as either work or leisure.

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Wicks, Bridget Marie. "Questions Asked by Male and Female Caregivers of Persons with Stroke in a Web-based Support Group." University of Toledo Health Science Campus / OhioLINK, 2005. http://rave.ohiolink.edu/etdc/view?acc_num=mco1142949248.

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Billings, Giovanni M. "Father care-giving and the development of empathy and general social and emotional competence among school-aged males." Theological Research Exchange Network (TREN) Access this title online, 2005. http://www.tren.com.

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Lindqvist, Gunilla. "Informal caregivers' conceptions of daily life with a spouse having chronic obstructive pulmonary disease." Doctoral thesis, Linnéuniversitetet, Institutionen för hälso- och vårdvetenskap, HV, 2013. http://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-23308.

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The overall aim of this thesis was to explore informal caregivers’ daily life with particular focus on those living with a spouse who has Chronic Obstructive Pulmonary Disease (COPD) in different grades, mild to severe, based on the ill person’s main concern. The study design was explorative, comparative and descriptive. The thesis included a literature review of 45 scientific articles and semi-structured interviews with 23 patients suffering from COPD, and 21 women and 19 men living with a spouse suffering from COPD. Data were analysed using content analysis, grounded theory, and phenomenography. Main findings: Men and women living with a spouse suffering from mild COPD did not experience changes in their daily life, and were not in need of support. It was when the COPD gradually escalated that their daily life was affected and they needed support. The caregiving women conceived that their daily life was socially restricted, they had changed roles, changes in health and changes in the couple’s relationship. The caregiving men’s daily life was conceived as burdened, restricted and the partner relationship was affected. The men’s attitude was to continue with their own life and own activities, and their approach to their caregiving situation was to view themselves as “Me and my spouse”. The main concern for people suffering from COPD was feelings of guilt due to self-inflicted disease associated with smoking habits. The thesis shows that there are differences in informal caregiving between males and females. Conclusion: This thesis shows that there are differences in male and female caregiving for a spouse suffering from COPD. The caregivers conceive and handle the caregiving situation in different ways. It is central that health professionals and municipality consider this along with the individual needs that are related to the development of the COPD. There is a need to identify the person who suffers from COPD and their spouses from the first contact onwards, to regularly follow the development of their situation and need of support.

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Munro, Ian. "The lived experience of gay men caring for others with HIV/AIDS living, loving, and dying in the era of HIV/AIDS /." Connect to this title online, 2002. http://tux.lib.deakin.edu.au/adt-VDU/public/adt-VDU20020913.150027/.

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Goldman, Sarron. "White boyhood under Apartheid the experience of being looked after by a black nanny /." Thesis, Pretoria : [s.n.], 2003. http://upetd.up.ac.za/thesis/available/etd-06032004-144915.

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Dawson-Weiss, Judith A. "A Male Caregiver's Perceived Experience of Caring for a Wife with Stroke." University of Toledo Health Science Campus / OhioLINK, 2005. http://rave.ohiolink.edu/etdc/view?acc_num=mco1116804126.

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Edman, Elisabet. "Äldre anhörigvårdares situation berättade med egna ord : en kvalitativ innehållsanalys." Thesis, Mid Sweden University, Department of Health Sciences, 2008. http://urn.kb.se/resolve?urn=urn:nbn:se:miun:diva-8474.

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Syftet med studien var att öka kunskaperna om och förståelsen för de äldre anhörigvårdarnas situation genom att låta dem berätta om sin situation ur egen synvinkel för de äldre anhörigvårdarna, 75 år eller äldre, som vårdar sin maka / make.Metoden som användes för att samla information var semistrukturerad intervju. Intervjutexterna analyserades med manifest innehållsanalys och med separat analys av de underliggande känslouttryck som framkom i intervjun.Resultatet visar att dessa äldre anhörigvårdares situation innefattar många dagliga stressorer. Deras sömn blir störd av vårdtagaren, de har aldrig en lugn stund utan de har beredskap dygnet runt, deras avlastningstid i samband med inköp är otillräcklig och skapar stress, möjligheterna till dagavlastning för egen tid är obefintlig, de blir isolerade, de är oroade därför att back-up saknas som kan ta över om deras egen hälsa sviker, färdtjänstlagen ger inget stöd för besvär som uppkommer vid normalt åldrande, de önskar en universalkontakt, så kallad hjälpkontakt för äldre vid kommunen samt saknar känslan av förståelse från kommunen om de konsekvenser det innebär att bli äldre oavsett hälsotillstånd.Slutsatsen är att det behövs mer forskning inom området för att vi skall kunna hjälpa dessa äldre anhörigvårdare till en värdigare tillvaro. The purpose of this study was to enriche the knowledge about the life conditions of elderly caregivers by letting them tell about their own ´point of view, in order to create a basis for deeper understanding of the eldrely caregivers, 75 years old or older, who care for their spouse.The method used for collecting data was a semistructured intervju. The interviews were analysed using qualitative manifest content analysis of the interwiews and counting of the underlying feelings of the participants.The results shows that the elderly caregiver´s situation includes many daily stressors.Their sleep gets disturbed by the care recipient, they have never a moment of rest, instead they are on constant alert day and night, moments of free time in connection with purchase are insufficient and create stress, the possibilties to get daycare is inifinitimal, they become isolated, they are worried due lack of back-up, if thier own helth fails, the legislation of journeyservice does not give any aid for inconveniences that are caused by getting old, they wish that there would be an overall contact help at the municipality that could help the elderly caregivers, and they lack understanding from the municipality about the fact of getting older irrespective of healthcondition.Conclusion: If we will be able to give these elderly caregiver´s a life that is more worthy there will be a need for more reaserch in this area.

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Knutsen, Håvard. "Eldre menn som omsorggivere til demente ektefeller. : En kvalitativ studie om menn som omsorgsgivere til ektefeller med diagnosen aldersdemens." Thesis, Nordic School of Public Health NHV, 2006. http://urn.kb.se/resolve?urn=urn:nbn:se:norden:org:diva-3245.

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Ny statistikk viser økende forekomst av aldersdemens blant eldre. Menn utgjør en økende gruppe omsorgsgivere. Disse mennene har fått relativt liten forskningsmessig oppmerksomhet, det finnes en begrenset mengde litteratur tilgjengelig om menn som omsorgsgivere for ektefeller med aldersdemens. Der er derfor viktig å gi dette feltet forskningsmessig oppmerksomhet, blant annet for å kunne gi helsepersonell kunnskap om denne gruppen. Med økt innsikt i mennenes opplevelse av sin situasjon vil de kunne gis bedre følelsesmessig og praktisk assistanse i omsorgsarbeidet sitt. Det ble gjennomført en studie med fokus på ektefeller av menn med demente ektefeller ved bruk av Grounded Theory som metode. Studien ble basert på opplevelsene til ni menn, seks av dem hadde omsorg for hjemmeboende ektefelle, de tre andre hadde flerårige erfaringer med å ha dement ektefelle hjemme men hadde nå sine ektefeller i sykehjem og fulgte dem opp der. Data ble samlet gjennom dybdeintervjuer tatt opp på bånd. Intervjuene ble analysert ved bruk av Grounded Theory. Det ble funnet fem hovedkategorier, mestring, ensomhet, lojalitet, sorg og tap av felleskap med ektefelle Recent statistics reveal a growth in the incident of Alzheimer disease and related dementia amongst elderly. Males make up an increasing group of caregivers, yet little attention has been given to them as that, there is limited literature available on husbands as caregivers for wives with the disease. Therefore, the need to conduct research in the area of male caregivers is essential if nurses and other help personnel are to understand and provide appropriate support and care for male caregivers. A qualitative study which focused on the experience of husbands who are home caregivers of wives diagnosed with dementia was conducted using Grounded Theory as research method. The study was based on the experience of nine husbands, six of them were caregiving for their wives at home at the time of the interview, the others had their wives in an institutional setting after years of home caregiving. Data collected during in-dept tape recorded interviews with the participants was analysed using Grounded Theory. Five major categories themes emerged from the participants stories, coping methods, loneliness, grief, loyalty and loss of fellowship in relationship. ISBN 91-7997-140-7

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Landfeldt, Markus, and Hmayak Sukiasyan. "Anhörigvårdares upplevelser av att vårda sin närstående med diagnotiserad Alzheimers sjukdom." Thesis, Högskolan i Gävle, Avdelningen för hälso- och vårdvetenskap, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-23020.

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Introduktion: Idag finns det ungefär 160 000 personer i Sverige som har någon form av demens, och risken att drabbas utav demens ökar med stigande ålder. Alzheimers är den vanligaste formen av demenssjukdom. Personer som befinner sig tidigt i sin Alzheimers utveckling klarar sig relativt bra med ett begränsat stöd från sin omgivning. Att vårda sin närstående med Alzheimers är krävande, och det ställs stora krav på den som är omvårdnadsansvarig. Syfte: Syftet med denna litteraturstudie är att beskriva anhörigvårdares upplevelse av att vårda sin närstående som lever med diagnotiserad Alzheimers sjukdom. Syftet är också att beskriva de valda artiklarnas undersökningsgrupper. Metod: En beskrivande litteraturstudie. Data har samlats in via PubMed och 10 artiklar valdes ut till denna litteraturstudie. Artiklarna var av antigen kvalitativ eller kvantitativ ansats. Resultat: Resultatet baseras på fem underrubriker utifrån anhörigvårdarnas upplevelser: "Upplevselsen av den psykiska påfrestningen", "brist på stöd och information", "upplevelsen av att vårda sin närstående utifrån ett genusperspektiv", "livsstilsförändringar" och "förväntningar och farhågor". Slutsats: Anhörigvårdarna är i stort behov av stöd och rådgivning både från sin sociala omgivning, men framförallt ifrån sjukvårdens olika institutioner. Sjuksköterskan har en viktig roll att fylla. Sjuksköterskan ska tillgodose både den som är drabbad utav Alzheimers, men även dennes anhöriga med individanpassad information och stöttning. Introduction: Today, there are about 160 000 people in Sweden who have some form of dementia, and the risk out of dementia increases with age. Alzheimer's is the most common form of dementia. Persons who are early in their development of Alzheimer cope relatively well with limited support from their surroundings. Caring for relatives with Alzheimer's are demanding, and it places great demands on the care that is responsible. Purpose: The purpose of this study is to describe the experience of family caregivers for their relatives who live with diagnosed Alzheimer's disease. The aim is also to describe the selected articles study groups. Method: A descriptive literature. Data was collected via PubMed and 10 articles were selected for this study. The articles were of either qualitative or quantitative approach. Results: The results are based on five sub-headings based on family caregivers: "Feels notification of mental stress", "lack of support and information", "the experience of caring for their loved one from a gender perspective", "lifestyle changes" and "expectations and concerns". Conclusion: family caregivers are in great need of support and advice both from their social environment, but above all from different healthcare institutions. The nurse has an important role to play. The nurse will satisfy both the afflicted out of Alzheimer's, but also his family with personalized information and jacking.

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Sundqvist, Robert, and Fahima Khan. "ATT VARA NÄRSTÅENDE TILL PERSONER MED CANCER : En litteraturöversikt." Thesis, University of Skövde, School of Life Sciences, 2009. http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-3158.

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Var tredje person i Sverige kan under sin livstid drabbas av en cancersjukdom. När en familjmedlem får diagnosen cancer påverkar detta oftast livet för dem som är närstående. Forskning visar att de närstående upplever olika förändringar i livet. Det uppstår oftast känslor som ångest, hjälplöshet och maktlöshet. Syftet med denna litteraturöversikt var att beskriva hur närstående till personer med cancer upplever sin förändrade livssituation. Informationskällor använda i analysen är 13 artiklar som beskriver närståendes upplevelser. Resultatet presenteras i fyra olika huvudteman med tillhörande underteman. Dessa fyra teman är Förändrad livssituation, Maktlöshet och hjälplöshet, Stöd är betydelsefullt och Behov av information. I resultatet framgår att relationer mellan familjmedlemmar antingen fördjupas eller försämras. Behovet av information och stöd visar sig vara stort hos den närstående. Det är av betydelse att resultatet används i vården så att sjuksköterskor samt annan vårdpersonal blir uppmärksamma på närståendes upplevelse. Dessa kunskaper kan hjälpa sjuksköterskor och annan vårdpersonal att erbjuda bättre stöd till dessa närstående. Every third person in Sweden can be afflicted by cancer during a life course. When a family member gets the cancer diagnosis this most often influences the lives of those who are closest to them. Research shows that family caregivers experience various changes through life. These changes are often accompanied by feelings of anxiety, helplessness, and powerlessness. The purpose with this literature review was to describe how caregivers of persons with cancer experience their changed situation of life. The sources of information used in analysis are 13 articles who describe the experiences of caregivers. The result is presented in four main themes with sub themes. These four themes are Changed life situation, Powerlessness and helplessness, Support is important and Need for information. In the presented result it is clear that relations between family members is either deepened or worsen. The need for information and support has showed itself to be of great value for family members. It is of importance to implement the result in healthcare so that registered nurses and other staff can be attentive to the experiences of the relatives. This knowledge can help nurses and other personnel to offer better opportunities to give support to these relatives.

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Johansson, Mona. "Att vara ett steg före eller efter : Äldre anhörigvårdares erfarenheter av kunskapsbehov." Thesis, Högskolan i Skövde, Institutionen för kommunikation och information, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-4509.

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I Sverige har antalet äldre ökat de senaste årtiondena. Ju äldre människor blir desto vanligare blir förekomsten av sjukdomar och funktionshinder. Vårdplatserna inom både slutenvård och särskilt boende har blivit färre och uppskattningsvis vårdas 250 000 personer i hemvård idag. Denna utveckling innebär att den närstående, som är anhörigvårdare i hemmet har en betydelsefull roll. Syftet med denna studie är att beskriva anhörigvårdarens erfarenheter av kunskapsbehov för att ge omsorg och vård till sin make/maka med långvarig sjukdom och/eller funktionshinder i hemmet. Studien baseras på intervjuer, som gjordes med anhörigvårdare dels genom en fokusgrupp med fyra deltagare, dels genom fyra individuella intervjuer, det vill säga sammanlagt åtta informanter. Intervjumaterialet har bearbetats med hjälp av kvalitativ innehållsanalys. Studien pågick under åren 2009-2010. I resultatet framkom fem huvudkategorier: Behov av kunskap om: sjukdomen och dess konsekvenser, hur man behärskar komplexa situationer, regelverk och stödfunktioner, praktisk personlig vård samt kunskap om anhörigvårdarens egen hälsa. Studien visar också vilka metoder anhörigvårdaren använder för att skaffa sig kunskap. Anhörigvårdaren efterfrågar framförallt individuell praktisk handledning samt kunskap som ger handlingsberedskap för att förstå behov av helhetsvård och hantera nya situationer. I diskussionen har jag valt att belysa vilken slags kunskap anhörigvårdaren behöver för att ge vård och omsorg till sin make/maka. Jag diskuterar även anhörigvårdarens syn på sin utsatthet och ensamhet, hur tillvaron kan hanteras samt vilka möjligheter till återhämtning som finns. In Sweden the number of elderly people has continually increased during the last decades. The older the person grows the more frequent the rate of illness and functional disability. The number of beds in both hospital care and municipality care has been reduced and about 250 000 persons receive domestic care today. This means that relatives who are caregivers play an important role in today’s society. The aim of this study is to describe the caregiver’s experiences and the need for knowledge in order to give care at home to a spouse suffering from a long-term illness and/or a disability. Interviews with family caregivers were made partly through a focus group with four participants and partly through four individual interviews - in all eight informants. The interviews have been processed according to content analysis. The study was undertaken in the period 2009-2010. The result can be divided into five main categories. 1. Need for knowledge concerning the sick spouse’s illness and its consequences. 2. Need for knowledge in handling complicated situations. 3. Need for knowledge about regulations and care given by the municipality. 4. Need for knowledge in practical individual care. 5. Need for knowledge concerning the caregiver’s own health. The study also shows the methods used by the caregiver to acquire knowledge. Above all, the caregiver requests individual practical guidance and knowledge in order to understand and cope with new situations. In the discussion I have chosen to illustrate what kind of knowledge the caregiver needs in order to care for his/her spouse. I also discuss the caregiver’s view on his/her vulnerability and loneliness, how one can cope with one’s life situation and what possibilities there are for recovery.

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Ould, Bouamama Sundström Malin. "Anhörigstöd : Om tre fruar till personer med demenssjukdom, deras upplevelser av stöd och tre anhörigkonsulenters arbete med att stödja." Thesis, Stockholms universitet, Institutionen för socialt arbete - Socialhögskolan, 2013. http://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-87975.

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The paper aims to examine how the wives of men with dementia experience their lives and how they perceive support from the society. The paper also aims to highlight the family care consultants´ work and views on support for families of people with dementia. Three spouses of people with dementia and three family care consultants were interviewed and the results were analyzed using Antonovsky's (1991) three theoretical concepts; comprehensibility, manageability and meaningfulness that comes from his theory Sense of coherence. The results show that the three wives whose men suffered from dementia spend most of their time, effort and energy on their husbands. They do not have time to think about their own needs and what support they feel they could use for themselves. They do not think about themselves as caregivers, they are spouses. Family care consultants are well aware of the importance of meeting and see the relatives in their lives, and denounces the importance of a support designed individually. Family care consultants understand that the most important and the best support society can provide a family care giver is that their close ones are well taken care of and given good care.

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Chen, Kuei-Ju, and 陳奎如. "Research on Male Home-caregivers for the Elderly." Thesis, 2000. http://ndltd.ncl.edu.tw/handle/00581081341283530861.

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碩士 國立政治大學 社會學系 90 As a response to the increasing demand of elder care in the modern aging society, the issue of home care for the elder has attracted more attention in several academic fields. In the literature, there have been some research findings about the experiences and challenges of home caregivers. However, these discussions primarily focused on the impact of caring works on the female caregivers. According to the previous research, there exists significant difference between male and female caregivers in their ways of input and impact from caring work. There is a need to study the topics of male caregivers in order to have a thorough understanding of home caregivers. This thesis studies the relations between gender difference and caregiving by exploring the unique experience of male caregivers, who take 30% to 40% share of total caregivers in Taiwan. The main purposes of this research include: (i) the formation of male caregivers; (ii) the experience and impact of caring work on the male caregivers; (iii) the coping strategy of male caregivers and their social support; (iv) the accordingly policy suggestions with gender-sense. This study adopts qualitative research methods by interviewing twelve male caregivers in Taiwan. The major findings can be summarized as (i) The formation of male caregivers depend on the job market condition, the normative gender role, and kinship relations. (ii) There exist conflicts between socially expected characteristics of care providers and male care provider’s masculinity in the caregiving process. Examples include the conflicts between recognized and actual ways of emotion expression, between autonomic and constrained (defined) role playing, and between personal career development and home care works. (iii) The male caregivers develop several innovative problem solving strategies, such as using personal economic resources, adjusting predominate thinking, and sharing care responsibilities with others. Finally, this study provides concrete policy implications in three aspects: reducing elders’ dependence, increasing governmental support with gender-sense for caregivers, and de-constructing the division of gender on caregiving systems.

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Chang, An-Yu, and 張安瑜. "The caregiving experience and day care service utilization experience of male caregivers." Thesis, 2017. http://ndltd.ncl.edu.tw/handle/a9wf4s.

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碩士 國立臺灣大學 社會工作學研究所 105 The risk of diagnosis dementia increases with age, and the trend of population aging calls attention to dementia care. In reviewing caregiver''s literature, the subjects were mostly female, but with the change of the modern society, male caregivers gradually appeared in the field of informal care with rarely mentioned. Accordingly, the study aims to explore the care process of male caregivers who take care of the elderly diagnosed with dementia, including finding out the elderly has dementia, taking responsibility of being caregivers, adapting and learning to be a caregivers. In recent years, Taiwan Government has been actively promoting long-term care policy and has focused on community-based services. Researcher take day care services as an example, try to discover day care service utilization experience of male caregivers, including who is the decision maker of day care service and division of labor between formal services and informal care, also positive and negative experience. It’s expected to be able to understand the unique aspects of male caregivers experience in the use of formal services and caring experience through the study, and provide first-line social workers with greater sensitivity to male caregivers. Care and service utilization experience is a personal issue. Therefore, the study employs a qualitative approach, including semi-structured, in depth interviews with eight son caregivers and two husband caregivers. The findings are as follows: First, process of becoming a male caregiver. The process includes finding out the elderly diagnosed with dementia, taking the caregiver role, adapting and learning to be a caregiver. The most challenge thing in the process is son caregivers need to cooperate with his sibling. Second, day care service utilization experience. In the decision making process, husband caregivers are passive, his kids are the keyperson to interact with formal service. In the division of labor between family caregivers and day care services, day care services provide daily activities and the chance for the elderly to socialize. Also, day care service demonstrates a new way for how care arrangements could be, and benefits a stable life to male caregivers. But there still some dilemma when the elderly’ dementia is getting worse, the day care service will consider to end up providing service. Then, male caregivers feel frustrated to be rejected by professional authority. Correspond to the findings, research discussion focus on: 1. the reason why male caregivers emerge is not because there are no female caregivers can substitute, but because those female got the irreplaceable position in the family such as financial ability, also traditional gender division of labor is no longer regarded as a standard. 2. When the recipient dementia illness becomes serious, male caregivers need more respite, but face to the result which is refused by the day care service, male caregivers feel depressed, we need to rethink about the acceptance criteria and the purpose of the day care service. Based on the above, suggestions for male caregivers include providing male caregivers support group which can divide male caregivers from sons and husbands, and break away care-feminization and the myth that caregivers must sacrifice themselves. Suggestions for formal service include not only increase the number of day care centers but also strengthen the continuity of community services.

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TSENG, HAN-YUN, and 曾涵雲. "Lived Experiences of Taking Care for Elderly with Dementia among Male Caregivers." Thesis, 2019. http://ndltd.ncl.edu.tw/handle/b97474.

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碩士 國立臺北護理健康大學 護理研究所 107 The purpose of this study was to explore the lived experiences of taking care for elderly with dementia among male caregivers. A qualitative design with phenomenological method was used. Purposive sampling and semi-structured interviews were conducted in a teaching hospital in northern Taiwan from March 2018 to January 2019. Total of 10 male caregivers completed the interviews. Data were analyzed using Colaizzi’s analysis method. Five main themes emerged from the data narratives: the reasons for being caregivers, the impact of care work, the difficulties faced with caregiving, the complex emotions, and the adjustments and responses of care work. The study found that male family members became the primary caregivers because they were the eldest son of the family, unpaid members, unable to let go of their parents, and had no other suitable candidates in their families. They experienced the effects of sleep impact, limited personal schedule, financial stress, and disruption of life plans as a result of caregiving. In the process of care, men faced the special problems in taking care for the elderly who were different sex with them. They felt difficult to apply for long-term resources and difficult to ask for assistance.They especially felt it makes more difficult to take care when the elders have multiple diseases.In addition, male caregivers experienced many complex emotions, including shock, anger and helplessness in the face of elders’ problem behavior, conflicting feelings of blaming the elderly but regretting, and a lack of outlet for depressed emotions. Fortunately, male caregivers have developed the responses and adjustments of care work.They worked with the elderly to adjust their sleep, coordinate family support, seek external assistance, adjust their mindset and seek to share their experiences with other caregivers. This study found that the needs of male caregivers are clear and need to be valued. However, it is difficult for men to ask for help in the first place. Most of them use "bearing" and hope to handle difficulties on their own. It is recommended that clinical nurses can actively explore the needs of caregivers in the face of male caregivers of dementia elders, and actively provide care and assistance for them. The results of this study can help clinical nurses, have a better understanding of male primary caregivers of dementia elders, and provide as a reference to develop more appropriate nursing guidance.

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LIANG，SHU-HUI and 梁淑惠. "The Experiences of Male Caregivers Who Take Care of the Relative with Dementia." Thesis, 2018. http://ndltd.ncl.edu.tw/handle/uj68cs.

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碩士 國立臺北護理健康大學 長期照護研究所 106 Research background and motivation: The aging and the demented population have been growing rapidly, in Taiwan as well as world-wide. Because dementia is often accompanied by behavioral and psychological symptoms which are problematic for the family caregivers, especially when the condition worsens. The long-term care of dementia has a stronger impact on the emotional, financial or physical well-beings of caregivers than caring for families with other diseases. Nowadays, with the change of gender role and family structure/labor distribution plus more acceptance of the concept of gender equality, the number of male family caregivers has been increasing. Recently, there are many international studies about male family caregivers of the dementia population. However, due to various differences in Eastern and Western cultures, there are different challenges and experiences in caring to be explored. Objective: To explore the experience of male family caregivers in caring for demented relatives and to understand the factors that influence the experience of care. Research methods: This study using grounded theory and data collection by in-depth interview. From October 2017 to April 2018, a total of 12 male caregivers participated in the study. After interviews, 2 researchers complete this study by using constant comparative data analysis. Findings: This study finds that male caregivers experience negative and positive care experiences in highly intertwined ways. Negative experiences include care sacrifices; accusations/misunderstanding/questioning by others, care frustrations/ feeling guilty, experience unfriendly environment. Positive experiences include improvement in health /life routine and stability, more intimacy with the demented relative, and experience support from a friendly environment. The core mechanism for adaptation in the care experience is "Commitment and good mastery and strategy in facing the care experience". This mechanism contains four important components: 1, Willingness/commitment/sense of responsibility, 2, Early planning and prepare for future care. 3, Maintaining core family relation and balance with the care responsibility. 4, Flexibility in personal caring tasks. The factors affecting the core mechanism of care experience are divided into adjustable factors and the characteristics of caregivers and demented relatives. The adjustable factors are the comprehensive recognition of dementia and the ability to seek after resources. The characteristics of the caregiver and the person with dementia involve age, physical condition, the reasons for becoming a caregiver, and the self-perceived economic situation. The results of this study suggest that if the male caregiver can effectively cope with caring for their relative with dementia, the core mechanism for positive adaptation is "Commitment and good mastery and strategy in facing the care experience". As helping professionals, we look for ways to facilitate such attitudes and offer needed resources to ensure a friendlier environment to enhance the positive caring experiences. Scale for developing "Commitment and good mastery and strategy in facing the care experience" is recommended for further research.

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Hung, Chia-Chi, and 洪佳琦. "A Study of the Current Status and Reflection of Young Home Caregivers Entering the Home Care Industry– A Case Study on Male Home Caregivers." Thesis, 2018. http://ndltd.ncl.edu.tw/handle/vyr67k.

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碩士 靜宜大學 社會工作與兒童少年福利學系 106 The purpose of this research is to examine young home caregivers’ motives, willingness and experience in entering the caregiving industry. This research also takes a look at the current circumstances and difficulties faced by our nation’s home care industry. For this purpose, the researcher interviewed four young, male home caregivers from Taichung in order to collect and analyze qualitative data. Research findings show that the rate of population aging in Taiwan is accelerating and the need for long-term care for the elderly is increasing, yet the government is facing a lack of manpower when promoting home caregiving. By taking a deeper look at the reasons for this, the researcher finds that caregiving jobs are viewed as exhausting, low-paid and lacking in social status so most young people are not willing to enter this field of work. This causes the lack of caregiving manpower. Thus, the researcher makes the following reappraisal suggestions for policy making: (1) Male home caregivers might have entered the industry because of unstable employment or unemployment, but due to gender bias in the industry and the clash with traditional sociocultural values, there is a high rate of manpower loss among male home caregivers; (2) Male home caregivers expect reasonable compensation, promotion systems and occupational status. The way to attract young labor force in entering the caregiving industry is to give them a sense of accomplishment and belonging with the industry.

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Lien, I.-Ping, and 連翊蘋. "To Be a Better Man?An Exploration on the Role Balance of Male Primary Caregivers." Thesis, 2017. http://ndltd.ncl.edu.tw/handle/yjmmcq.

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碩士 國立臺灣大學 社會工作學研究所 106 Family caregiving is the mainstream of long-term care model in Taiwan. However, this progress continues to put pressure on family members to take on caregiving roles; including financial, emotional, and physical strain. Accroding to the change of the modern society, the traditional gender division of housework has been transforming. Therefore, this study aims to explore the care process of male caregivers, the gender performativity of male caregivers, and multiple relationship between male caregiver and family members. This research adopts qualitative method, using in-depth interview to collect data from 5 male caregivers and 3 family members. Firstly, the study finds that the formation of male caregivers depends on the care responsibilities, the lack of female family members, insufficient economic resources, and recipients’ requests. Besides, male caregivers got caregiving burden from the diseases characteristics of recipients, the irreversibility of aging, the lack of social involvement, economic pressures, kinship relations, and filial piety. Second, by observing the gender performativity of male caregivers, we can recognize that male caregivers still consider being a breadwinner is their significant role in the family. Finally, male caregivers are looking for reconciliation between family and work. According to research findings, there are some suggestions for policy and practice in five aspects: increasing the accessibility of care service information, providing services actively, maintaining economic security of family caregivers, workers equipped with gender sensitivity, and focusing on family dynamics.

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Lee, Chien-Te, and 李建德. "An Exploration of the Care Giving Experience of male Caregivers for Their Families with Mental Illness." Thesis, 2005. http://ndltd.ncl.edu.tw/handle/88382749780612822145.

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碩士 國立成功大學 護理學系碩博士班 93 This study is describing the caring experience which for patients with mental disease by male caregivers. All the subjects(9) in this study were sampling on purpose and those ones were receiving homecare in a comprehensive mental health center in southern Taiwan. A detail interview was made individually according to the framework which researcher made by himself and all the process of interview were recorded beyond the agreement of 9 male caregivers. In order to learn more the caring experiences, role of gender and their meanings, researcher transferred the recording content into words then analyzed by Giorgi’s(1985) method of phenomenological analysis after interviewed. As a result, this study finds the male caregivers always adapt themselves to face their life because they thought it is predestinate and with no choice. The adapting process for endless aggravation and fatalism can explain why they can give their efforts on caring continuously. They offer more effective information for male caregivers in clinic to promoting safe and comfortable for caregivers and patients. Furthermore, this research will be a stepping stone for the studies about male caregiver in the future.

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WANG, CHI, and 王淇. "The Dilemma between Filial Piety and Work Ethics:An Exploration on the Course How Male Adults become Caregivers." Thesis, 2016. http://ndltd.ncl.edu.tw/handle/aqa5zh.

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碩士 東吳大學 社會工作學系 104 Population aging is an inevitable trend, thus the care issue should get more attention in the future. Population aging will trap more and more males becoming caregivers, which need more resources and social support. My thesis is focused on these male caregivers, and to discuss the dilemma between two norms of filial piety and work ethics that they have confronted. I attempted to explore how and why some males assumed care responsibilities, and their perception and response to the dilemma between filial piety and work ethics. I expected such exploration would provide suggestions to the policies of family caregivers. I adopted qualitative method, and in-depth interviewed five male family caregivers who had once or still provided care services to their elderly parents. The research outcomes are as follows: 1). The process how male adults became caregivers. According to the data collected from in-depth interview, the external and internal life resources are the main influencing factors contributing the males to assume the care responsibilities. Besides, their relationship with dependents and the social expectation for them as sons also caused male adults to become caregivers. 2). Male caregivers’ perception and practice of filial piety. The male interviewee all expressed strong sense of filial duty. Each interviewee has different practice of filial duty based on his unique position among the hierarchy of family. 3). Male caregivers’ perception and practice of work ethics. All male interviewee identified work ethics, and recognized it as an essential value of Taiwan society, which would be emphasized repeatedly and continuously through the gender role norm. 4). Reconciliation between work and care. I attempted to apply Merton’s “strain theory” to categorize the male interviewees’ reconciliation strategies between work and care. Through such exploration on the difficulties that male caregivers had been trapped in, I expected to offer suggestions for the relevant social welfare policies: 1. To provide resources and social support to male caregivers actively; 2). The right to practice care services for particular family members should be implemented by means of the relevant social legislation and welfare service delivery. Key words: family caregiver, male caregiver, filial piety, work ethics.

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Brown, Peter John, University of Western Sydney, College of Arts, and School of Social Sciences. "Care giving experiences of older husbands providing care for wives with dementia." 2007. http://handle.uws.edu.au:8081/1959.7/12728.

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As there were few studies of older husbands’ experiences associated with providing care at home for spouses with dementia, the researcher designed a two-stage study to examine their experiences, In stage one, a qualitative paradigm guided one-to-one interviews with sixteen care giver husbands to examine their care giving experiences. Analysis of the interview data guided the identification of four models of care giving related to the past, present and future and an overall model over time. In stage two, a comprehensive questionnaire was developed and questionnaire items were identified from multiple sources. In stage two the researcher utilized a quantitative approach to identify to investigate husbands’ experiences. A representative sample of 71 care giver husbands participated by completing the questionnaire and standardized measures of burden and depression along with other measures of husbands’ characteristics and experiences and levels of wives’ illness and associated behaviour. Predictive models of care giver burden were care giving seen as a ‘job’, effects of care giving on the husband-wife relationship, and use of avoidant-evasive coping strategies by husbands. The best predictive models of care giver depression were use of avoidant-evasive coping strategies and changes in husbands’ emotional health status related to care giving. Doctor Of Philsophy (PhD)

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30

Chuang, Tsung-Ming, and 莊琮名. "I NEITHER RUN AWAY, NOR SURRENDER: A NARRATIVE STUDY OF MALE CAREGIVERS' EXPERIENCES DEALING WITH RARE DISEASES IN THEIR FAMILY." Thesis, 2016. http://ndltd.ncl.edu.tw/handle/ueb4fm.

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碩士 國立臺北大學 社會工作學系 104 The purposes of the study were to understand the experiences and challenges that male caregivers went through when taking care their kids with rare diseases, and the social support they obtained. 　　This research method is narrative study. The subjects of this study are three male caregivers who have kids with rare diseases. The research findings are as follows: 1.The three male givers are fathers in the family. They take care of their children with positive spirit. The family members understand their situation and are considerate, providing a strong family bond. Even though these fathers have experienced bad experiences from outsiders' attitudes toward their families, they are not impacted by the mistreatments nor do they have thoughts of payback. Despite receiving criticism from hecklers, the fathers have not lost their love for their children; and, they encounter the situation with positive attitudes. They participates in the activities provided by Taiwan Foundation for Rare Disorders(TFRD) and obtain their support from other members. They want their kids to cherish what they have and not just feel sorry for themselves. 2.When pressure arises from complications, these fathers deal with the pressure positively without resorting to negative thoughts of anger or hopelessness. They face the problems encountered, adjust themselves in order to provide the best care for their kids. 3.Frustration can still set in for these fathers despite have the best of intentions. They gain their resilience through taking care of their kids. The key to their resilience is empowering themselves through the process of finding resources and obtaining knowledge concerning their children’s diseases. 4.The three families participate in the activities provided by TFRD. TFRD is very important to them. Their social life is focusing on TFRD. The members of TFRD exchange their experiences of taking care children and receive support from each other. Lastly, the researcher makes some comments on the limits of the study and some suggestions for future studies.

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Carter-Haith, James A. Jr. "The Effects of Surrogate Caregivers on The Relationship Between Fatherless/Fatherloss African American Male Youths and Their Level of Delinquent Behavior." 2008. http://hdl.handle.net/1969.1/ETD-TAMU-2008-12-151.

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This study hypothesized that fathers and surrogates (male role models) contribute a unique set of factors that help guide African American male youths (N=496) during their normal developmental stages. This study hypothesized that surrogate caregivers would have an impact on the overall level of delinquent behavior of this population. A path analysis tested direct and mediated effects of exposure to violence on delinquent behavior, with anger/aggression level as a potential mediator for all three levels of caregiver presence or absence as a moderator. In the analysis of archival data from 496 African American male youths, the findings did not support these hypotheses consistently. Exposure to family violence as a mediator consistently predicted level of anger, and level of anger negatively predicted delinquent behavior for the fatherless sample. However, exposure did not have a direct positive effect on delinquent behavior in any of the three samples. Implications of these findings as well as other unpredicted findings with these three groups are explored.

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Allen, Sarah Katlyn. "Mr. mom no more : the rise of the male caregiver and his implications on the marketing landscape." 2012. http://hdl.handle.net/2152/19929.

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The population of male primary caregivers in the United States has risen dramatically within the past decade. Accompanying this trend is the evolution of fathers and their impact in the home. The modern dad is more involved in parenting and housework than in previous generations. Despite fathers’ growing role in the home, current depictions of dads on TV merely perpetuate the portrayal of dads as blundering and incompetent. Analysis of current depictions of mothers and fathers in TV ads and shows reveals the gap between today’s parenting reality and pop culture’s rendering of reality. Further exploration into the shifting parenting landscape and notions of masculinity yields a population of fathers who not only welcome increased responsibility at home, but also act as thought leaders and influencers in the parenting realm. By committing to the development of accurate and balanced depictions of dads on TV, marketers have the opportunity to harness this growing population’s influence and gain vocal and technologically savvy brand advocates. text

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33

Dworzanowski-Venter, Bronwyn Joan. "Emotional labour, black men and caregiving: cases from South Africa (1850-2010)." Thesis, 2013. http://hdl.handle.net/10210/8298.

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D.Litt. et Phil. (Sociology) Reid and Walker (2005) suggest that black South African men are ‘behaving differently’. Added to this Budlender (2008) has found that South African men are more likely to engage in unpaid community care work than conventional wisdom suggests. Part of this community work involves black men acting as AIDS caregivers. It is imperative to gain knowledge about masculine caregivers as the informal health care sector bears the brunt of the HIV pandemic. The fragmented and over-burdened public health system simply cannot absorb the 15-20% of HIV infected South Africans. Coovadia et.al. (2009) point to a lacuna in the scholarship regarding community health workers (CHW) in South Africa. My study of black masculine caregivers, located in the world of informal AIDS care, hopes to fill this gap. Yet, I do something more for I tackle the conventional wisdom that suggests South African men are different and exceptional if they conduct feminised care work. The emotions involved in care processes are the basis upon which society may feminise care work. My argument is also premised upon forging links between the past and the present. As such, I focus upon determining the extent to which emotional labour that may be exhibited by historical and contemporary black men. I make use of W.E.B. Du Bois’ (1903) notion of double-consciousness to show how the normalising society, surrounding masculine care, impacts this category of black men. In so doing, I not only forge links between past and present by means of doubleconsciousness, but I perform an intersectional analysis of emotional labour, and the context, in which it occurs. In so doing, I show how double-consciousness is an intersectionally-forged mechanism for Foucault’s (1978) biopower, and one that has become reinvented in present day South Africa. In this way I augment the works of Du Bois (1903) and Foucault (1978) for both did not give primacy to gender as a construct. It is essentially this view of black men, involved in AIDS care that contributes to the originality of this work. This historical-sociological investigation relied upon the linking of cases. I conducted historical research upon two cases: ‘houseboys’ in colonial Natal (1850 – 1928) and mine hospital ‘ward boys’ (1931 – 1959). Contemporary cases were constructed to reflect the world of AIDS and cancer care. The 13 original cases were compressed into seven case categories and based on triangulated survey and interview data (29 AIDS and 18 cancer caregivers were interviewed; while 195 community workers involved in AIDS care were surveyed in 2005/6; follow-up interviews were conducted with 11 caregivers across all case categories in 2010).

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Brown, Peter J. "Care giving experiences of older husbands providing care for wives with dementia." Thesis, 2007. http://hdl.handle.net/1959.7/uws:2405.

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As there were few studies of older husbands’ experiences associated with providing care at home for spouses with dementia, the researcher designed a two-stage study to examine their experiences, In stage one, a qualitative paradigm guided one-to-one interviews with sixteen care giver husbands to examine their care giving experiences. Analysis of the interview data guided the identification of four models of care giving related to the past, present and future and an overall model over time. In stage two, a comprehensive questionnaire was developed and questionnaire items were identified from multiple sources. In stage two the researcher utilized a quantitative approach to identify to investigate husbands’ experiences. A representative sample of 71 care giver husbands participated by completing the questionnaire and standardized measures of burden and depression along with other measures of husbands’ characteristics and experiences and levels of wives’ illness and associated behaviour. Predictive models of care giver burden were care giving seen as a ‘job’, effects of care giving on the husband-wife relationship, and use of avoidant-evasive coping strategies by husbands. The best predictive models of care giver depression were use of avoidant-evasive coping strategies and changes in husbands’ emotional health status related to care giving.

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35

Kilvington-Dowd, Lynne. "Identity, support and health : the heterogenous experiences of retired husband carers." Thesis, 2021. http://hdl.handle.net/1959.7/uws:63499.

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Retired men contribute significantly towards the care of the elderly, with half of all carers over the age of 65 years in Australia, being men. Dementia is an age-related disease characterized by progressive cognitive decline over a number of years and often manifests in memory loss and personality and/or behaviour changes in the care recipient. Caring for a family member with a cognitive illness has been shown to be particularly challenging and is often reported to have adverse health impacts on the health of carers themselves Despite a growing body of literature about men’s experiences of caring for dementia impaired wives, the impact of caregiving on the health and wellbeing of retired/elderly husbands caring for a dementia impaired wife remains unclear. Theoretical frameworks employed to understand retired men’s experiences of caregiving largely focus on gender, therefore other aspects of identity such age and/or class are often missing from these analyses. The aim of this study is to investigate retired husband’s experiences of caring for dementia impaired wives. The study explores how various aspects of identity (gender, class and age/generation) intersect to shape the husbands’ caregiving practices and considers the implications of these practices, for their health and wellbeing at different points during the dementia caregiving trajectory. Findings suggest that gender, class, age/generation, location and faith and to some extent place, intersect in multiple nuanced ways informing the men’s caregiving practices and their health at different stages of the caregiving trajectory. These intersections were significant in determining how the husbands navigated: their own corporeal decline, whilst caring for increasingly dependent wives; the health system to obtain their wife’s diagnosis; and the husbands’ capacity to seek and accept help and assistance from their informal and formal support networks. Seeking emotional support was problematic for all the husbands, but class and age/generation acted as mediators influencing at what stage in the caregiving trajectory such support would be needed and the likelihood of the husbands to seek and use this support. Findings suggest that intersections of gender, class and age/generation informed the extent to which the husbands were able to reap the emotional rewards of caregiving, develop softer masculinities and in doing so be positively transformed by their caregiving experiences.

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Hage, Linda. "Gendered experiences of 12- to 14-year-old African male learners living in child- and youth-headed households in Soweto." Thesis, 2015. http://hdl.handle.net/10210/14824.

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M.Ed. (Educational Psychology) In the context of poverty, political turmoil and HIV/AIDS, it has become more difficult for parents to take care of their children accordingly. This problem is especially pronounced in Africa and contributes to the formation of child- and youth-headed households (CYHHs). The emergence of such households places children and youth at risk of vulnerability to exploitation, poverty and lack of access to education and resources. This means that these children and youth need to fend and provide for themselves. Given the dominant position of boys in African cultures, they may be in a better position to take care of and provide for their families. Therefore, the aim of this study is to describe and understand the gendered experiences of 12- to 14-year-old African male learners living in CYHHs and, based on this, to suggest possible support interventions to assist them. A qualitative multiple case study design was used, where seven male learners from the Soweto area participated in the data collection process. These learners were identified through a non-profit organisation (NPO) in the Soweto area. The data collection process included the use of individual interviews, collages, and essays. These were analysed using qualitative content analysis methods, as stipulated by Zhang and Wildemuth (2009). The study is explorative in nature and, given the issues of gender being addressed, a social constructionist paradigm was used. The theoretical framework included the works of two prominent theorists in the field of developmental psychology – Erikson (1963, 1968) and Nsamenang (1992, 2005, 2006). Erikson provides valuable insights into the psychosocial experiences of adolescents, whereas Nsamenang explains the relevance of development in an African context. Their ideas were used to understand the findings in relation to the development of the participants.

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Oyebode, Jan R., H. J. Smith, and K. Morrison. "The personal experience of partners of individuals with motor neuron disease." 2013. http://hdl.handle.net/10454/6984.

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Most research on partners' experiences of living with a person with MND is questionnaire-based with no qualitative study focusing on the period between diagnosis and end-of-life care. This study aimed to provide an in-depth qualitative exploration of the experience of living with, and caring for, a partner with MND. Semi-structured interviews were conducted with eight individuals, and transcripts analysed from an interpretative phenomenological perspective. Two main themes were derived. 'Impact on life' included having concern for partner's safety, having social restrictions, being continually tired, struggling with anger and frustration, loss of intimacy and uncertainty around the future; while 'Adjusting to the situation' included trying to be strong, retaining a sense of normality, appreciation of specialist services, adopting a problem-solving approach, living day to day and ability to remain positive. In conclusion, experiences of stress and loss are illustrated in this sample of partners of those with MND, and it is suggested both these aspects should be integrated into understanding of carers' experiences. Carers appear to inhibit their grief in order to appear strong. Greater understanding of the consequences of this would help in providing appropriate emotional support.

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Riley, G. A., G. Fisher, B. F. Hagger, A. Elliott, Serve H. Le, and Jan R. Oyebode. "The Birmingham Relationship Continuity Measure: the development and evaluation of a measure of the perceived continuity of spousal relationships in dementia." 2013. http://hdl.handle.net/10454/7003.

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BACKGROUND: Qualitative research has suggested that spousal carers of someone with dementia differ in terms of whether they perceive their relationship with that person as continuous with the premorbid relationship or as radically different, and that a perception of continuity may be associated with more person-centered care and the experience of fewer of the negative emotions associated with caring. The aim of the study was to develop and evaluate a quantitative measure of the extent to which spousal carers perceive the relationship to be continuous. METHODS: An initial pool of 42 questionnaire items was generated on the basis of the qualitative research about relationship continuity. These were completed by 51 spousal carers and item analysis was used to reduce the pool to 23 items. The retained items, comprising five subscales, were then administered to a second sample of 84 spousal carers, and the questionnaire's reliability, discriminative power, and validity were evaluated. RESULTS: The questionnaire showed good reliability: Cronbach's alpha for the full scale was 0.947, and test-retest reliability was 0.932. Ferguson's delta was 0.987, indicating good discriminative power. Evidence of construct validity was provided by predicted patterns of subscale correlations with the Closeness and Conflict Scale and the Marwit-Meuser Caregiver Grief Inventory. CONCLUSION: Initial psychometric evaluation of the measure was encouraging. The measure provides a quantitative means of investigating ideas from qualitative research about the role of relationship continuity in influencing how spousal carers provide care and how they react emotionally to their caring role.

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Clare, L., R. Whitaker, Catherine Quinn, H. Jelley, Z. Hoare, B. Woods, Murna G. Downs, and B. A. Wilson. "AwareCare: development and validation of an observational measure of awareness in people with severe dementia." 2012. http://hdl.handle.net/10454/5932.

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No Signs of sensory and perceptual awareness can be observed in people with very severe dementia, and may be influenced by the extent to which the environment offers appropriate stimulation. We developed an observational tool, AwareCare, which care staff can use to identify signs of awareness in residents with very severe dementia, based on the concept of the Wessex Head Injury Matrix (WHIM). Using WHIM items as a guide, and following focus groups with care staff and family members, an expert panel identified 28 environmental stimuli and 35 response categories for the initial version of AwareCare. After baseline assessments of cognition, well-being and quality of life were taken, 40 residents were observed individually for 30 minutes on 5 occasions. Based on the observational data, 10 stimulus categories and 14 response categories were identified for further analysis and formed the final version of AwareCare. All participants showed awareness to varying degrees. Social stimuli elicited the most responses. Greater awareness was associated with better cognitive function, self-care, mobility, and responsiveness, but not with proxy-rated quality of life. Understanding the nature of awareness in this group is an important element in ensuring appropriate levels of interaction and stimulation, and hence enhancing quality of care.

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McLoughlin, K., J. Rhatigan, S. McGilloway, Allan Kellehear, M. Lucey, F. Twomey, M. Conroy, et al. "INSPIRE (INvestigating Social and PractIcal suppoRts at the End of life): Pilot randomised trial of a community social and practical support intervention for adults with life-limiting illness." 2015. http://hdl.handle.net/10454/9267.

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Yes BACKGROUND: For most people, home is the preferred place of care and death. Despite the development of specialist palliative care and primary care models of community based service delivery, people who are dying, and their families/carers, can experience isolation, feel excluded from social circles and distanced from their communities. Loneliness and social isolation can have a detrimental impact on both health and quality of life. Internationally, models of social and practical support at the end of life are gaining momentum as a result of the Compassionate Communities movement. These models have not yet been subjected to rigorous evaluation. The aims of the study described in this protocol are: (1) to evaluate the feasibility, acceptability and potential effectiveness of The Good Neighbour Partnership (GNP), a new volunteer-led model of social and practical care/support for community dwelling adults in Ireland who are living with advanced life-limiting illness; and (2) to pilot the method for a Phase III Randomised Controlled Trial (RCT). DESIGN: The INSPIRE study will be conducted within the Medical Research Council (MRC) Framework for the Evaluation of Complex Interventions (Phases 0-2) and includes an exploratory two-arm delayed intervention randomised controlled trial. Eighty patients and/or their carers will be randomly allocated to one of two groups: (I) Intervention: GNP in addition to standard care or (II) Control: Standard Care. Recipients of the GNP will be asked for their views on participating in both the study and the intervention. Quantitative and qualitative data will be gathered from both groups over eight weeks through face-to-face interviews which will be conducted before, during and after the intervention. The primary outcome is the effect of the intervention on social and practical need. Secondary outcomes are quality of life, loneliness, social support, social capital, unscheduled health service utilisation, caregiver burden, adverse impacts, and satisfaction with intervention. Volunteers engaged in the GNP will also be assessed in terms of their death anxiety, death self efficacy, self-reported knowledge and confidence with eleven skills considered necessary to be effective GNP volunteers. DISCUSSION: The INSPIRE study addresses an important knowledge gap, providing evidence on the efficacy, utility and acceptability of a unique model of social and practical support for people living at home, with advanced life-limiting illness. The findings will be important in informing the development (and evaluation) of similar service models and policy elsewhere both nationally and internationally. TRIAL REGISTRATION: ISRCTN18400594 18(th) February 2015.

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Green, J. R., A. Forster, J. Young, Neil A. Small, and Joanna Spink. "Older people's care experience in community and general hospitals: a comparative study." 2008. http://hdl.handle.net/10454/6860.

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Community hospitals are an important component of the post-acute care pathway for older people. The objective of this study was to describe and contrast patients' and carers' experiences of community and general hospitals. Interviews with patients and carers revealed similarities in the perceptions of care between the two settings. These included appreciation of staff sensitivity, a sense of security, encouragement of independence and lack of activity. The community hospital was appreciated for its location, atmosphere, accommodation, greater sense of freedom, quality of food and staff attitudes. UK health policy promotes the development of community hospitals. This should be progressed in a way that retains key strengths of the specific service they offer.

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Raghavan, R., Nicole Pawson, and Neil A. Small. "Family carers' perspectives on post-school transition of young people with intellectual disabilities with special reference to ethnicity." 2013. http://hdl.handle.net/10454/9794.

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No 90009335 School leavers with intellectual disabilities (ID) often face difficulties in making a smooth transition from school to college, employment or more broadly to adult life. The transition phase is traumatic for the young person with ID and their families as it often results in the loss of friendships, relationships and social networks. The aim of this study was to explore the family carers' views and experiences on transition from school to college or to adult life with special reference to ethnicity. Forty-three families (consisting of 16 White British, 24 Pakistani, 2 Bangladeshi and one Black African) were interviewed twice using a semi-structured interview schedule. The carers were interviewed twice, Time 1 (T1) and Time 2 (T2), T2 being a year later to observe any changes during transition. The findings indicate that although transition planning occurred it was relatively later in the young person's school life. Parents were often confused about the process and had limited information about future options for their son or daughter. All family carers regardless of ethnicity, reported lack of information about services and expressed a sense of being excluded. South Asian families experienced more problems related to language, information about services, culture and religion. The majority of families lacked knowledge and awareness of formal services and the transition process. Socio-economic status, high levels of unemployment and caring for a child with a disability accounted for similar family experiences, regardless of ethnic background. The three key areas relevant for ethnicity are interdependence, religion and assumptions by service providers.

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Wu, Yi-Shan, and 吳宜姍. "Let us close to even more- The subjective utilization experience of elderly male spouse caregiver''s on the homecare service system." Thesis, 2006. http://ndltd.ncl.edu.tw/handle/14214124718890804053.

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Huang, Yi-Xiang, and 黃義翔. "Make Actions and Let Life Easier: Explore the Barrier-free Environment for the High School Students with Physical Disabilities and Their Main Caregivers." Thesis, 2014. http://ndltd.ncl.edu.tw/handle/498c7s.

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碩士 國立東華大學 特殊教育學系 102 This study aims to investigate in the status of campus barrier-free environment for two high schools, to identify the perceptions of the students with physical disabilities in using barrier-free environment, and to collect the ideas of the students’ main caregivers toward the design of the barrier-free environment. The participants of this study included three high school students with physical disabilities and their main caregivers. The data was collected by using the field investigation form and semi-structured interviews. In order to get the final results, the researcher analyzed data corresponding to purpose of the research. The findings of this study are as follows: 1. On average, the total qualification rate of barrier-free environment for the school A and school B was 89.2% and 92.3% respectively. Their qualification rate were nearly or more than 90%, which means the school did an excellent job for the students with physical disabilities. 2. Three students with physical disabilities and their main caregivers were very satisfied with two accessibility facilities “refuge floor entrance and exit” and “wheelchair auditorium”, therefore they did not provide any improvement suggestions. However, except the two facilities mentioned, the six participants were less satisfied in other facilities. Therefore, they provided different suggestions to their schools. 3. Other significant research findings included “some viewpoints of students with physical disabilities and main caregivers were not included in the barrier-free environment regulations”, “students with physical disabilities and main caregivers were more satisfied for current school’s barrier-free environment than their previous one”, “students with physical disabilities and main caregivers had individual perceptions about the feeling of invisible accessibility”, “students with physical disabilities have depended upon other’s assistance”. Finally, based on the results of the research, the researcher made several recommendations to governments, schools, teachers, caregivers, and future researchers.

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