Relevant bibliographies by topics / Wellbeing of caregiver

Academic literature on the topic 'Wellbeing of caregiver'

Author: Grafiati
Published: 10 December 2022
Last updated: 28 January 2023

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Journal articles on the topic "Wellbeing of caregiver"

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Frias, Cindy E., Esther Cabrera, and Adelaida Zabalegui. "Informal Caregivers’ Roles in Dementia: The Impact on Their Quality of Life." Life 10, no. 11 (October 23, 2020): 251. http://dx.doi.org/10.3390/life10110251.

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The constantly changing process of caring for a person with dementia affects the informal caregivers’ role due to its psychosocial impact. This cross-sectional study aimed to analyze the impact of the Person with Dementia informal caregiver’s role caregiver to a person with dementia on the self-perceived quality of life (QoL) of the caregiver. In total, 160 informal caregivers were recruited between January and December 2019. Informal caregivers’ quality of life was assessed using the European Quality of Life 5-Dimension scale, burden with the Zarit Burden Scale, emotional wellbeing using the General Health Questionnaire, and caregiver reactions using Caregiver Reaction Aspects. Patients’ cognitive impairment was assessed with the Mini-Mental State Examination, their quality of life using Quality of Life in Alzheimer’s Disease, and neuropsychiatric symptoms using the Neuropsychiatric Inventory. Outcomes were studied using the Pearson correlation coefficient and ANOVA test. Most informal caregivers’ outcomes were significantly associated with their quality of life. Male informal caregivers have a slightly better quality of life than female caregivers (p < 0.001). Caregiver burden (p < 0.001), psychological wellbeing (p < 0.001) and negative aspects of caregiving on health (p < 0.001) correlated moderately with informal caregivers’ quality of life. Factors associated with dementia, including the course of the illness and its severity with the presence of neuropsychiatric symptoms can negatively affect the informal caregiver’s role and produce a low self-perception of quality of life; thus, social and professional support for informal caregivers is essential.
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Sims, Tai, Kristine Talley, Joseph Gaugler, Cynthia Peden-McAlpine, Laura Kirk, and Fang Yu. "ENGAGING OLDER ADULTS WITH ALZHEIMER’S DISEASE IN EXERCISE: IMPACT ON CAREGIVERS." Innovation in Aging 6, Supplement_1 (November 1, 2022): 777. http://dx.doi.org/10.1093/geroni/igac059.2811.

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Abstract Informal caregivers provide the bulk of care for persons with Alzheimer’s dementia (PWAD) living at home, resulting in increased burden, and deteriorations in wellbeing and health. The stress process model hypothesizes characteristics of PWAD influence caregiver outcomes. Few studies have identified if engaging PWAD in exercise influences caregiver outcomes. This ancillary mixed methods study of a RCT evaluated the impact of a 6-month, moderate-intensity aerobic exercise intervention for community-dwelling PWAD on family caregiver burden, wellbeing and general health. Quantitative data was collected at baseline, 3, 6, 9 and 12 months using Zarit Burden Interview, Caregiver Strain Index, Caregiver Wellbeing Scale, and 36-item Short Form Health Survey. Qualitative data was collected at 6 and 9 months using semi-structured interviews. The convergent mixed methods design included ANCOVA analyses of quantitative and content analysis of qualitative data. Participants were 25 (17 intervention, 8 control) caregivers aged 34–86 years who were primarily white, females that lived with care-recipient. Based on group assignment, quantitative and qualitative results provided mixed insight on influence of intervention on burden and wellbeing, and found no influence on general health. Quantitative findings indicated caregiver characteristics of relationship with care-recipient, gender and education influenced wellbeing, and relationship with care-recipient, co-residence and education influenced general health; and caregiver characteristics did not influence burden. Qualitative findings suggest improved burden and wellbeing were consequences of respite and social support, rather than the exercise intervention. This study provides insight that integrating family caregiver components into community-based exercise programs may benefit PWAD and their family caregivers.
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Chow, Esther, and Sai-fu Fung. "Hope, active coping and well-being in stroke-survivors and caregivers: An actor–partner model analysis." Innovation in Aging 5, Supplement_1 (December 1, 2021): 804. http://dx.doi.org/10.1093/geroni/igab046.2961.

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Abstract Purpose: Stroke is a medical condition cause of suffering for both patients and their caregivers within the family. This paper aimed to assess the influence of the psychological construct of hope and active coping on hedonic wellbeing in patient with stroke and caregiver dyads by determining the dyadic patterns. Methods: A baseline study including 200 stroke-survivor (Age 73.63; SD=7.22) and caregiver (62.49; SD=14.44) dyads with actor–partner interdependence model (APIM) estimated by structural equation modelling with maximum likelihood estimation. Herth Hope Index (HHI), Proactive Coping Inventory (PCI) and Personal Wellbeing Index (PWI) were used to measure hope, proactive coping and wellbeing, respectively. Results: The APIM analysis revealed that both stroke patients and caregivers demonstrated double actor-only pattern. As such, stroke-survivors’ hope and active coping excreted an actor effect on their own wellbeing with beta = 0.48 (p &lt; 0.01) and 0.16 (p &lt; 0.01), respectively. Similarly, the caregiver also reported an actor effect between hope and wellbeing (beta = 0.84, p &lt; 0.01) as well as active coping with wellbeing (beta = 0.37, p &lt; 0.01). The overall SEM model also fulfilled the criteria for good model fit (χ2 (5.87), p = &gt; 0.05, CFI = 0.98, TLI = 0.96 and RMSEA = 0.07). Conclusions: The results suggest that both stroke patients and caregivers’ hedonic wellbeing are holding actor-oriented pattern with the hope and active coping. The implications for clinical practitioners, research and theoretical development are discussed.
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Davis, Abigail Oluwadunni, Oladapo Michael Olagbegi, Kayode Orekoya, Mathew Adekunle, Olufemi Oyeleye Oyewole, Modinat Adepoju, and Oluyemisi Soetan. "Burden and quality of life of informal caregivers of children with cerebral palsy." Rev Rene 22 (May 3, 2021): e61752. http://dx.doi.org/10.15253/2175-6783.20212261752.

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Objective: to analyze the caregiver burden and the quality of life of informal caregivers of children with cerebral palsy. Methods: the cross-sectional survey involved 109 caregivers of children with cerebral palsy recruited from physiotherapy clinic at a tertiary hospital. The quality of life and caregiver burden were assessed using the Personal Wellbeing Index Scale and the Modified Caregivers’ Strain Index, respectively. Data were analysed using descriptive and inferential statistics. Results: the mean strain index and quality of life scores of the participants were 11.85 ± 5.72 and 64.68 ± 8.03 respectively. The majority (67.9%) of the caregivers had fair personal well-being, while about one-third (33.0%) had high caregiver’s strain. Child’s age (B=2.454; p<0.005) and caregivers’ occupation (B= -2.547; p=0.001) were predictors of caregiver strain. Conclusion: caring for children with cerebral palsy imposed a substantial burden on the caregivers and child’s age and caregivers’ occupation were predictor variables.
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Yuen, Eva Y. N., and Carlene J. Wilson. "The Relationship between Cancer Caregiver Burden and Psychological Outcomes: The Moderating Role of Social Connectedness." Current Oncology 29, no. 1 (December 22, 2021): 14–26. http://dx.doi.org/10.3390/curroncol29010002.

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The present study: (a) examined the extent of caregiver burden and psychological wellbeing and (b) tested whether social connectedness moderated the association between caregiver burden and psychological symptoms in caregivers of people with cancer. The cross-sectional survey study included 189 cancer caregivers (mean age = 36.19 years, standard deviation = 11.78; 80.4% female). Data were collected on caregiver burden, social connectedness, and depression and anxiety. Moderation analysis was conducted to examine the effect of social connectedness on the relationship between caregiver burden and depression and anxiety. Caregiver burden was positively associated with depression and anxiety symptoms. Controlling for significant demographic and caregiver characteristics, the moderation model showed as perceived social connectedness increased, the relationship between caregiver burden and depression decreased (β = −0.007, se = 0.004, 95% CI: −0.014, 0.000, p = 0.05). By contrast, social connectedness did not moderate the association between caregiver burden and anxiety. Findings have implications for the management of depression in cancer caregivers. Social connectedness appears to provide a protective buffer from the negative impacts of caregiving, providing increased psychological resources to manage the burden associated with caregiving, resulting in lower depression. Research on strategies to improve caregiver wellbeing through enhancing engagement with social networks in ways that improve perceived sense of connectedness with others is warranted.
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Prado, Lia, Rebecca Hadley, and Dawn Rose. "Taking Time: A Mixed Methods Study of Parkinson’s Disease Caregiver Participation in Activities in Relation to Their Wellbeing." Parkinson's Disease 2020 (April 9, 2020): 1–18. http://dx.doi.org/10.1155/2020/7370810.

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Objectives. Although many studies have shown that psychosocial interventions, such as dance classes, can improve quality of life for people with Parkinson’s disease (PD): few have addressed the role of, and potential benefits to, the caregivers in such activities. This mixed methods study explored the reasons for caregiver participation in a variety of activities and considered whether participation in, or abstention from these, affected the wellbeing of the caregivers. Method. Transcriptions of a focus group (two people with PD, two caregivers) and eight semistructured interviews (caregivers) were analysed using Grounded Theory (GT). To test the hypotheses derived from the GT, caregivers (n = 75) completed an online survey about activities they and the person they care for participated in, alongside the PDQ-Carer questionnaire, to establish the caregiver’s levels of wellbeing. Results. Qualitative findings suggested that caregivers tried to find a balance between caring for the person with PD and participating in activities to attend to their own needs. Reasons for participating in activities for people with PD included being able to socialise in an empathetic safe space, alongside engaging in physical activity that provided some respite distraction, such as dancing with others to music. Reasons for not participating included generating time for oneself and increasing the independence of the person with PD. Quantitative results suggested that most of the participants’ wellbeing was not compromised, although this was gendered: female caregivers reported lower wellbeing scores than male caregivers. Overall, 62% of caregivers participated in joint activities. Linear regression revealed a significant relationship between nonparticipation in daily activities and stress levels for female caregivers only, whereby the more independent the person with PD was, the lower the stress of the caregiver. Conclusion. This study suggests that caregivers of people with PD can find a healthy balance in terms of their own wellbeing by jointly participating in two-thirds of activities while ensuring the remaining third is time reserved for themselves.
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Beverly, Alexis, Christina Baucco, Seho Park, Matthew Schroeder, Shelley Johns, Katherine Judge, and Nicole Fowler. "THE RELATIONSHIP BETWEEN SOCIOECONOMIC DISADVANTAGE AND DEMENTIA CAREGIVER BURDEN." Innovation in Aging 6, Supplement_1 (November 1, 2022): 769. http://dx.doi.org/10.1093/geroni/igac059.2786.

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Abstract More than 16 million people provide unpaid care to someone with Alzheimer’s disease or a related dementia (ADRD) in the United States. These caregivers frequently report experiencing psychological and physical burden. Prior research shows that socioeconomic disadvantaged neighborhoods have higher rates of ADRD, but little is known about caregiver burden. We hypothesized more socioeconomic disadvantage is associated with higher caregiver burden. We performed a secondary analysis using baseline data on dementia caregivers (n=132) enrolled in the Indiana University Telephone Acceptance and Commitment Therapy for Caregivers (TACTICs) pilot trials. Mean (SD) caregiver age was 61.6 (11.6) years; 83.3% women; 78.8% white; 19.7% black. Seventy-two percent of the caregivers lived with the care recipient and 50.8% reported moderate dementia severity. A linear regression model examined the relationship between caregiver’s national Area Deprivation Index (ADI) score (ranging from 1–100 with higher scores indicating greater socioeconomic disadvantage) and caregiver burden. The following covariates were included: age, sex, race, education, shared residence with care-recipient, health status, anxiety, depression, and dementia severity of care recipient. Higher ADI was associated with lower caregiver burden (β=-0.222, p &lt; 0.001). Caregiver burden has a significant negative relationship with ADI and dementia severity (p&lt;-.001 and 0.046, respectively) and positive relationship with anxiety (p=0.014) controlling other covariates in the model. Although we found no support for the hypothesis, further research should examine these factors with how caregiver’s ADI may impact other psychosocial wellbeing outcomes. Discussion will highlight the need for caregivers to have access to resources that can aid them through their experience.
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M, Ardhanaari, Ashweeja N, Prashant Jain, Karthigai Priya, and Nappinnai N.R. "A Study to Assess Caregiver Burden in Parents of Children with Autism Spectrum Disorder." Journal of Evidence Based Medicine and Healthcare 7, no. 46 (November 16, 2020): 2700–2704. http://dx.doi.org/10.18410/jebmh/2020/555.

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BACKGROUND Autism is one of the most demanding types of disorders in terms of caregiver’s intervention. A significant amount of distress is always associated with a long term, pervasive intervention and attention given by the care giver. The above scenario leads to depression, adjustment disorder along with suicidal tendencies among the care givers leading to poor prognosis of the disease progress in children and emergence of stress related mental illness in the care givers. Pro-active assessment, diagnosis and management of the above among the care givers might be beneficial for both the child and the care giver along with other family members. METHODS This study was conducted in the special schools of Kancheepuram from December 2019 to February 2020. The cross-sectional study aimed to assess caregiver burden and the variations of burden with varying social and language development in parents of children with ASD (Autism Spectrum Disorder). A total of 60 parents whose children were diagnosed to have Autism Spectrum Disorders were assessed to scale the caregiver burden using Burden Assessment Schedule, and semi structured socio-demographic questionnaire. RESULTS Majority of the caregivers showed an impact on multiple areas of life. 59 % of the caregivers showed significant impact on wellbeing with 84 % feeling depressed and anxious. Lack of appreciation for care was seen in 85 % of the caregivers. Relationship with others was very much impacted in about 14 % of the caregivers. Perceived severity of illness was impacted in 53 % population. CONCLUSIONS Bringing up a child with an autism spectrum disorder is a significant chronic stressor sufficient to disrupt various areas of an adult life and also to cause mental illnesses. Early recognition and management of burden is of immense value in the wellbeing of the caregiver, more importantly in the prognosis of the child’s disorder. KEYWORDS Autism Spectrum Disorder, Caregiver Burden Assessment, Caregiver Burnout
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Quinn, Catherine, Linda Clare, and Robert T. Woods. "The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review." International Psychogeriatrics 22, no. 1 (September 22, 2009): 43–55. http://dx.doi.org/10.1017/s1041610209990810.

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ABSTRACTBackground: The majority of people in the early and middle stages of dementia are cared for at home by non-paid caregivers, the majority of whom will be family members. Two factors which could have an impact on the quality of care provided to the care-recipient are the caregiver's motivations for providing care and the meaning s/he finds in caregiving. The aim of this review is to explore the potential impact of both meaning and motivation on the wellbeing of caregivers of people with dementia. The review also explores individual differences in motivations to provide care.Methods: This was a systematic review of peer-reviewed empirical studies exploring motivations and meanings in informal caregivers of people with dementia. Four studies were identified which examined the caregiver's motivations to provide care. Six studies were identified which examined the meaning that caregivers found in dementia caregiving.Results: Caregivers' wellbeing could be influenced by the nature of their motivations to care. In addition, cultural norms and caregivers’ kin-relationship to the care-recipient impacted on motivations to provide care. Finding meaning had a positive impact on caregiver wellbeing.Conclusions: The limited evidence currently available indicates that both the caregiver's motivations to provide care and the meaning s/he finds in caregiving can have implications for the caregiver's wellbeing. More research is needed to explore the role of motivations and meaning in dementia caregiving.
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van Wijnen, Helena GFM, Sascha MC Rasquin, Caroline M. van Heugten, Jeanine A. Verbunt, and Véronique RM Moulaert. "The impact of cardiac arrest on the long-term wellbeing and caregiver burden of family caregivers: a prospective cohort study." Clinical Rehabilitation 31, no. 9 (January 9, 2017): 1267–75. http://dx.doi.org/10.1177/0269215516686155.

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Objective: The purpose was to gain insight in the functioning of caregivers of cardiac arrest survivors at 12 months after a cardiac arrest. Secondly, the course of the wellbeing of the caregivers during the first year was studied. Finally, factors that are associated with a higher care burden at 12 months after the cardiac arrest were investigated. Subjects: A total of 195 family caregivers of cardiac arrest survivors were included. Main measures: Quality of life (SF-36, EuroQol-VAS), caregiver strain (CSI) and emotional functioning (HADS, IES) were measured at two weeks, three months and one year after the cardiac arrest. Thereby, the caregiver was asked to fill out the cognitive failure questionnaire (CFQ) to evaluate their view on the cognitive status of the patient. Results: Caregiver strain was high in 16 (15%) of the caregivers at 12 months. Anxiety was present in 33 (25%) caregivers and depression in 18 (14%) caregivers at 12 months. The repeated measures MANOVA showed that during the first year the following variables improved significantly: SF-36 domains social and mental health, role physical, role emotional and vitality, caregiver strain, HADS and IES ( P<0.001). At 12 months caregiver strain correlated significantly (explained variance 63%, P=0.03) with caregiver HADS ( P=0.01), EuroQol-VAS ( P=0.02), and the CFQ ( P<0.001), all measured at 12 months after the cardiac arrest. Conclusions: Overall wellbeing of the caregivers improves during the first year up to normal levels, but caregivers with emotional problems or perceived cognitive problems at 12 months are at risk for developing a higher care burden.
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Dissertations / Theses on the topic "Wellbeing of caregiver"

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Butler, Lucy. "Caregiver wellbeing in psychosis services." Thesis, Canterbury Christ Church University, 2016. http://create.canterbury.ac.uk/15029/.

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The study aimed to examine the relationship between wellbeing, burden, distress and third-wave factors, including self-compassion and psychological flexibility, in caregivers of people with psychosis. The study secondly aimed to trial a new brief group intervention, combining Acceptance and Commitment Therapy (ACT) and Compassion-focused Therapy (CFT) for this population. Twenty-nine participants were assessed at baseline on primary measures of wellbeing, distress, psychological flexibility and self-compassion. Secondary factors including burden and mindfulness were also collected. Correlation analyses were used. Fourteen participants completed the group in intervention and follow-up measures, and pre-post investigations were employed. Lower levels of psychological flexibility and self-compassion were related to lower levels of wellbeing and higher levels of burden and distress. There was a potential mediating effect of psychological flexibility on the relationship between self-compassion and wellbeing. The group intervention was acceptable to caregivers, and there were significant positive changes in self-compassion, distress, burden and mindfulness. The study adds to the existing data regarding wellbeing and burden in caregivers of people with psychosis. This study provides new insights into the factors of self-compassion and psychological flexibility within this population. The ACT with Compassion intervention is a promising, brief intervention which would benefit from further application and evaluation.
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Stevens, Elizabeth K. "Appraisal and Coping: Mediators between Caregiver Stress and Psychological Wellbeing." online version, 2008. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=case1193879393.

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Tang, Yong. "Obligation of filial piety, adult child caregiver burden, received social support, and psychological wellbeing of adult child caregivers for frail elderly people in Guangzhou, China." Click to view the E-thesis via HKUTO, 2006. http://sunzi.lib.hku.hk/hkuto/record/B37227385.

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Tang, Yong, and 唐咏. "Obligation of filial piety, adult child caregiver burden, received social support, and psychological wellbeing of adult child caregiversfor frail elderly people in Guangzhou, China." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2006. http://hub.hku.hk/bib/B37227385.

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Elison, S. N. "Toothbrushing as a dyadic process : insights from novice caregivers and firstborn infants." Thesis, University of Salford, 2013. http://usir.salford.ac.uk/29418/.

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AIMS: The thesis explored influences on emergence of toothbrushing as a dyadic process through infancy with influences conceptualised throughout using Bronfenbrenner’s ecological model. Influences were used to develop methods to support novice mothers to establish and maintain toothbrushing routines with infants. METHODS: Study One: Qualitative interview study with novice mothers of infants exploring influences on emergence of dyadic toothbrushing routines (n=16). Study Two: Using collected qualitative data to develop and standardise a psychometric scale measuring parental self-efficacy (PSE) for enforcing toothbrushing routines with infants (n=91). Study Three: Cross-sectional observational study of dyadic interactions during toothbrushing episodes, using three age groups of infant, 12-months, 18-months and 24-months (each n=12). Study Four: Development and evaluation of an intervention to increase maternal control of the brush dyadic toothbrushing using three study groups (each n=11). RESULTS: Study One: A total of 25 influences on emergence of dyadic toothbrushing were identified. Many of these influences were identified as lying within the mother-infant dyad. Study Two: Scale items were generated from the 25 sub-themes identified from the qualitative study. Overall reliability of the scale was α= .934 and it was found to contain five components. Study Three: Significant differences (p < .001) were found between the three groups in frequency and duration of maternal and infant control of holding and using the toothbrush during observed episodes. Study Four: The picture book intervention did not significantly affect frequency and duration of either maternal or infant control of holding and using the toothbrush during observed episodes. Conclusion: Many influences on emergence of dyadic toothbrushing come from the mother-infant dyad. Some may pose challenges, such as infant drive for self-toothbrushing. However, some influences such as PSE may facilitate the routine. Further work should focus on supporting caregivers to maintain control of holding and using the toothbrush during dyadic toothbrushing.
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Cavallaro, Liz. "Employee Wellbeing and Compassion Fatigue among Animal Caregivers| A Hermeneutic Phenomenological Study." Thesis, The George Washington University, 2015. http://pqdtopen.proquest.com/#viewpdf?dispub=3740298.

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The purpose of this study was to develop an understanding of the experience of employee wellbeing and compassion fatigue (CF) in the animal care industry. According to Figley and Roop (2006) in Compassion Fatigue in the Animal-Care Community, compassion fatigue is found at every level among the caregivers in animal-related fields. Utilizing hermeneutic phenomenology, this study explored the experience of employee wellbeing (EW) and compassion fatigue via interviews with 11 participants who are paid, full-time employees from a diverse array of animal shelters. Data analysis followed van Manen’s (1990) description of the inventive thoughtful attitude, which takes place through an ongoing process of writing and reflecting throughout and after data collection to capture participant narratives.

The interpretation of the findings and incorporation of relevant literature led to the development of six key conclusions: 1. Personal History: Participants’ prior life experiences and personal histories are relevant to, and may have implications for, the experience of compassion fatigue. 2. Social Construct: Participant understanding of compassion fatigue is socially constructed, developed through comparisons to, interactions with and support from others. 3. Dirty Work: The perception of animal caregiving as a form of “dirty work” has consequences for the experience of employee wellbeing and compassion fatigue. 4. Three-Tier Approach: Participants use two frequently promoted strategies to combat compassion fatigue: self-care and compassion satisfaction, but they also engage in proactive behaviors, implying a three-tier approach to coping with and combatting CF and improving employee wellbeing. 5. Levels of Responsibility: Participants believe the responsibility to develop and employ appropriate solutions to address issues of compassion fatigue and employee wellbeing exists on three different levels: individual, organizational, and societal. 6. Primary Outcomes: Two primary outcomes are evident from the experience of compassion fatigue—if caregivers are unable to combat the syndrome, they may reach a breaking point and burn out of the field; alternatively they may overcome CF, continue in their work and thrive.

Implications for research, theory and practice are presented. A better understanding of CF will allow for more effective planning, preparation and intervention at each level of responsibility. The contributions of this study offer constructive ideas for both individuals and organizations to incorporate into their efforts to reduce CF, improve EW, and hopefully avoid burnout and turnover.

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Major, Grace. "Family caregivers of people with an acquired brain injury : attributions of challenging behaviour and psychological interventions for emotional wellbeing." Thesis, University of Birmingham, 2018. http://etheses.bham.ac.uk//id/eprint/8505/.

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Objective: To use Weiner's attributional model of helping behaviour to investigate the relationship between causal attributions of challenging behaviour, emotional response and propensity to help in family caregivers of people with acquired brain injury. Method: Twenty four male and female caregivers, aged 29-73 years, were recruited through Headway, a charitable organisation. Participants completed an online questionnaire, giving information on the type of challenging behaviour they had witnessed in the previous month. They rated their attributions, emotions (anger and sympathy) and propensity to help in relation to this behaviour. Correlational and mediation analyses were utilised to examine relationships between key variables. Results: No significant correlations were found between attributions, emotions and propensity to help, with the exception of anger and sympathy and helping. Emotions did not mediate the relationship between attributions and propensity to help. Conclusion: Whilst Weiner's model (I 980; 1985) may be applicable to other populations, there was little evidence for its application in family caregivers of people with ABI. Attributions may not be the most important determinant of willingness to help in family caregivers. Methodological issues are explored and suggestions for future research are discussed.
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Hui, Yee-ki, and 許綺琪. "Gender differences in psychological wellbeing of spousal carers for frail elderly in Hong Kong: a secondary dataanalysis." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2009. http://hub.hku.hk/bib/B45167898.

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Victor, C. R., I. Rippon, Catherine Quinn, S. M. Nelis, A. Martyr, N. Hart, R. Lamont, and L. Clare. "The prevalence and predictors of loneliness in caregivers of people with dementia: findings from the IDEAL programme." 2020. http://hdl.handle.net/10454/17813.

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Yes
Objectives: To establish the prevalence of loneliness among family caregivers of people with dementia and to identify potential risk factors for loneliness. Methods: Using data from the baseline wave of the Improving the experience of Dementia and Enhancing Active Life (IDEAL) cohort study, we examined loneliness in 1283 family caregivers of people with mild-to-moderate dementia living in Great Britain. Multinomial regression was used to examine the relative influence of a series of risk factors for caregiver loneliness. Results: Almost half, 43.7%, of caregivers reported moderate loneliness and 17.7% reported severe loneliness. Greater social isolation and increased caregiving stress were linked with both moderate and severe loneliness. Better quality of relationship with the person with dementia along with increased levels of well-being and life satisfaction were associated with a lower relative risk of reporting both moderate and severe loneliness. Discussion: This study examines the prevalence and predictors of loneliness in a large sample of family caregivers of people with dementia. Notably over two-thirds of caregivers in our sample reported feeling lonely. Interventions aimed at reducing caregiving stress and supporting meaningful relationships may go some way towards helping to reduce loneliness.
‘Improving the Experience of Dementia and Enhancing Active Life: living well with dementia. The IDEAL study’ was funded jointly by the Economic and Social Research Council (ESRC) and the National Institute for Health Research (NIHR) through grant ES/L001853/2 ‘Improving the experience of dementia and enhancing active life: living well with dementia’
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Mangal, Dewa. "The impacts of care giving on the wellbeing of caregivers of people living with HIV/AIDS." 2015. http://hdl.handle.net/1993/30663.

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Research has shown that caregivers are confronted with a number of stressors such as burnout, compassion fatigue, and post-traumatic stress disorder as a result of being in direct or close contact with the people suffering from chronic diseases such as HIV/AIDS. However, relevant and professional training, and effective self-care strategies could prevent such stressors. Using the “Individual Interviews with Formal Caregivers” dataset, this study looked at the experiences of seventeen caregivers who provided care to stigmatized and low income people of living with HIV/AIDS. The study sought to understand how the well-being of caregivers was impacted by providing care to stigmatized and low income people living with HIV/AIDS in Manitoba and Saskatchewan. Also, it examined how formal caregivers perceived their relationship with people living with HIV/AIDS at their care. The findings suggested that caregivers were confronted with and experienced stressors such as burnout, compassion fatigue, and secondary traumatic stress due to having direct and close relationships with people living with HIV/AIDS in their care. Medical caregivers treating HIV/AIDS patients perceived these as formal professional relationships; however, most caregivers working in community support, community outreach, and education sectors understood their caregiving relationships with people living with HIV/AIDS as that of supporter and helper. There was not much research on how caregivers in HIV/AIDS sector perceived their relationships with people living with HIV in their care, so further research is needed to explore the nature of the relationship between the caregiver and care recipients. Finally, this study enriched the existing research on this topic by providing an insight on how caregivers in HIV sector perceive their relationships with individuals living with HIV/ AIDS in their care.
October 2015
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Books on the topic "Wellbeing of caregiver"

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Voicing Caregiver Experiences: Wellbeing and Recovery Narratives for Caregivers. Sussex Partnership NHS Trust, 2013.

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Felgoise, Stephanie H., and Michelle L. Dube. Resilience and coping strategies in ALS patients and caregivers. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780198757726.003.0007.

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The experience of living with amyotrophic lateral sclerosis (ALS) necessitates adaptation by the person living with ALS (PALS) and their caregiver. In the face of an incurable illness, many PALS and their caregivers report a significant decline in their physical and psychosocial-spiritual health, whereas others endure the illness with great fortitude and demonstrate positive adjustment and wellbeing. This heterogeneity in adjustment has led researchers to conjecture about why or how some people maintain their quality of life while others do not. Psychosocial processes that facilitate adjustment to ALS are coping and a variety of resilience factors including hope, optimism, social problem solving, spirituality and religiosity, and social support and relationship satisfaction. Therapeutic interventions that may foster resilience and coping in PALS and their caregivers include communication, dignity therapy, Buddhist psychology and mindfulness, social problem-solving therapy, constructivist grief therapy, and quality of life therapy (QOLT).
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Baker, Caroline, Sally Knocker, and Danuta Lipinska. Dementia, Sex and Wellbeing: A Person-Centred Guide for People with Dementia, Their Partners, Caregivers and Professionals. Kingsley Publishers, Jessica, 2017.

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Saavedra, Mary Jo. Eldercare 101: A Practical Guide to Later Life Planning, Care, and Wellbeing. Rowman & Littlefield Publishers, 2017.

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McCarty, Susan Cain, Theresa Giddings, Rev Lawrence Hansen, Benjamin B. Hellickson, and Mary Jo Saavedra. Eldercare 101: A Practical Guide to Later Life Planning, Care, and Wellbeing. Rowman & Littlefield Publishers, Incorporated, 2016.

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Eldercare 101: A practical guide to later life planning, care, and wellbeing. 2016.

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Warman, Andrea. Caring with vitality: Yoga and wellbeing for foster carers, adopters and their families everyday ideas to help you cope and thrive! 2016.

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Dennison, Susan M., and Kirsten L. Besemer. Missing and Missing Out. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198810087.003.0006.

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This chapter explores the concept of social exclusion and the ways that it can be used to frame discussions about the consequences of parental imprisonment for children. It reviews emerging findings that show that parental imprisonment may have fundamental impacts on intergenerational social exclusion. Next, the chapter draws on narratives of children with imprisoned fathers and their caregivers to illustrate how paternal imprisonment interrupts customary practices — living patterns and roles that a father might be expected to fulfil in contemporary family life. This chapter thus extends the discussion beyond the typical focus on economic and health indicators of social exclusion to consider children’s exclusion from daily social activities, proposing that these are essential for children’s identity formation and sense of inclusion and belonging. It argues that such direct experiences of social exclusion are fundamentally harmful to children’s long-term wellbeing and may mediate the lifelong disadvantage known to affect prisoners’ children.
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Book chapters on the topic "Wellbeing of caregiver"

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Olson, Sonja A. "Caregiver Concerns." In Creating Wellbeing and Building Resilience in the Veterinary Profession, 19–36. Boca Raton: CRC Press, 2022. http://dx.doi.org/10.1201/9780367816766-2.

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Chatterjee, Prasun. "Living with Failing Memory: A Caregiver’s Perspective." In Health and Wellbeing in Late Life, 21–36. Singapore: Springer Singapore, 2019. http://dx.doi.org/10.1007/978-981-13-8938-2_2.

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Oostra, Dorien L., Minke S. Nieuwboer, Marcel G. M. Olde Rikkert, and Marieke Perry. "REsilience Monitor for INformal Caregivers in Dementia (REMIND): Digital Monitoring of Informal Caregivers Wellbeing to Prevent Crises." In Communications in Computer and Information Science, 161–68. Cham: Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-030-33540-3_17.

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Kwan, Polly. "Occupational Therapy." In Longer-Term Psychiatric Inpatient Care for Adolescents, 115–26. Singapore: Springer Nature Singapore, 2022. http://dx.doi.org/10.1007/978-981-19-1950-3_13.

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AbstractOccupational therapy aims to engage individuals in meaningful tasks to improve and maintain their performance and quality of life. At the Walker Unit, occupational therapists assist young people to increase their independence and overall mental wellbeing through practical daily activities in the home and community, and through sensory-based interventions. Sensory approaches facilitate self-regulation in regards to both physiological and emotional arousal. Young people with mental health problems also have unique sensory experiences and needs, which should be understood by clinicians and caregivers to promote a sensory supportive experience to aid their recovery. The Walker Unit has embraced the sensory framework, incorporating the use of sensory-based interventions into treatment and everyday living.
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Løvseth, Lise Tevik, Steffen Wellinger, Maren Storihle Ødegård, and Sunniva Huus Nordbø. "The ‘FRIrom’ at St Olav University Hospital in Norway. A Room for Emotional Outlets, Finding Strength and Courage for the Relatives and Caregivers of the Youngest Patients." In Integrating the Organization of Health Services, Worker Wellbeing and Quality of Care, 391–97. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-59467-1_24.

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Sardella, Alberto, Vittorio Lenzo, and Maria C. Quattropani. "The Importance of Being Caregivers of Older Adults, and the Role of Patients' Psychological and Functional Health in Contributing to Burden." In Handbook of Research on Healthcare Standards, Policies, and Reform, 1–17. IGI Global, 2022. http://dx.doi.org/10.4018/978-1-7998-8868-0.ch001.

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In the chapter, the authors will address the delicate role played by caregivers of older adults, discussing the close interaction between caregivers' wellbeing and care recipients' health status. After a brief introduction on the complexity of aging trajectories, the authors will focus on the experiences of assistance to elderly people by formal and informal caregivers, by indicating the main objectives according to the degree and nature of the medical condition. The central topic of the chapter will be the risk of developing a care-related burden by the caregivers, with negative consequences on the caregiver's wellbeing, as well as on the caregiver-patient relationship. In this perspective, the authors will highlight in detail the potential impact on the caregiver burden of peculiar functional and psychological factors exhibited by older care recipients.
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"Research on Subjective Wellbeing." In Advances in Psychology, Mental Health, and Behavioral Studies, 1–34. IGI Global, 2019. http://dx.doi.org/10.4018/978-1-5225-7452-1.ch001.

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This chapter posits that based on a careful review of extant literature, the quest to identify the factors that assist caregivers in sustaining or elevating their subjective wellbeing while providing comfort and support to care recipients is critical. In this sense, discussion in this chapter provides a rationale for the design and focus of research reported in this book, which focuses on the positive factors that elevate subjective wellbeing of informal caregivers. Thus, this chapter explores various research findings and theoretical discussion on associations between subjective wellbeing and fundamental characteristics of mental and psychical wellness of those providing care on an informal basis. These include the accentuation of self-efficacy and spirituality. It also includes the extent to which an informal caregiver receives support from others to enhance a sense of belonging to community. In addition, it further includes personal resilience of the caregiver as well as opportunities to participate in leisure activities and community involvement.
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"Presentation of Research Findings." In Advances in Psychology, Mental Health, and Behavioral Studies, 46–68. IGI Global, 2019. http://dx.doi.org/10.4018/978-1-5225-7452-1.ch003.

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Most of the research participants believed their caregiving responsibilities adversely affected their subjective wellbeing. Some of the research participants believed their caregiving responsibilities had a positive psychological effect on their subjective wellbeing. Meanwhile, a significant number of research participants believed they were innately capable of handling their caregiving responsibilities. Research participants had the perception that their spiritual beliefs were positively influential to their caregiver roles and their subjective wellbeing. Research participants seemed to rely on their spiritual convictions as the lynchpin in sustaining themselves in their roles as informal caregivers as it related to their subjective wellbeing. The variable family support was a significant factor. Similarly, the vast majority of research participants believed their resilience allowed them to be optimistic about their performance as caregivers. A significant number of the research participants believed they had limited time for leisure activities but felt this did not negatively affect their performance as informal caregivers.
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"Personal Reflection." In Advances in Psychology, Mental Health, and Behavioral Studies, 85–94. IGI Global, 2019. http://dx.doi.org/10.4018/978-1-5225-7452-1.ch005.

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This chapter encompasses a reflective autobiographic account of the principal investigator, Dr. Ware, that plumbs the depths of what it means to be an informal caregiver for a family member or loved one. The chapter traces her steps as a caregiver for her late mother and the joys of personal fulfillment (positive sense of social wellbeing) and occasional travails associated with an individual stepping in this role. The author uses the independent variables in the study (subjective wellbeing, self-efficacy, spirituality, social support, resilience, and leisure participation) as lenses to discuss a reflective account of her idiosyncratic experiences in the context of her own family.
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Maiti, Tanay. "Mental Health Issues, Wellbeing, and Related Issues Among Caregivers of Individuals With Intellectual Disability." In Research Anthology on Mental Health Stigma, Education, and Treatment, 772–80. IGI Global, 2021. http://dx.doi.org/10.4018/978-1-7998-8544-3.ch045.

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Caregivers are the important and integral part in the lives of people with intellectual disability. As caregiving is extensive and mostly lifelong for this population, the associated burden, stigma, and also wellbeing of the caregivers are also equally important as these are often very directly correlated with the wellbeing of the individuals with intellectual disability. The chapter focused on the issues and impacts of caregiving, mental health problems, wellbeing, and related issues of caregivers. The authors also discuss the various facets of stigma caregivers do face and ways to deal with the stigma.
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Conference papers on the topic "Wellbeing of caregiver"

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Rubczak, Anna. "Design public spaces to enable all 0-5 year children flourish." In Post-Oil City Planning for Urban Green Deals Virtual Congress. ISOCARP, 2020. http://dx.doi.org/10.47472/pyra2020.

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The Public Spaces of Tomorrow are places that enable young children 0-5 to flourish. Contemporary places support healthy child development. The early years are the foundation for lifelong physical and mental health, wellbeing, and social skills. Designing, planning, and building new public spaces for our babies and toddlers should take into consideration the wellbeing of their caregivers. Engage parents, grandparents, siblings, or pregnant women in the design process provides for the ability to create new types of public spaces. Knowledge of how to do it for wellbeing in specific circumstances, places, social or natural environment is the purpose of the work (for ex. the Covid-19 pandemic is still unfolding but the principle of healthy development or caregiver isn`t changing). Responsibility of local authorities, urban planners, architects, park managers, all people engaged in city planning and functioning, have their role to play. During the collaborative workshop Mentor and Student Research Lab 3 in Poland (Gdańsk University of Technology) numerous investigation and methods were tried to answer research questions on how to resolve problems of designing public spaces of tomorrow.
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Salman, Ozlem, Karolina Bezerra, José Machado, Vitor Carvalho, Filomena Soares, and Celina P. Leão. "Design of a Conceptual Bed Mattress for Reducing Pressure on Bony Prominences." In ASME 2015 International Mechanical Engineering Congress and Exposition. American Society of Mechanical Engineers, 2015. http://dx.doi.org/10.1115/imece2015-52201.

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Elderly care emphasizes the social and personal requirements of older people who need assistance with daily activities and health care, where almost always the main caregiver is the other element of the couple (husband or wife). In the context of Wellbeing, and from its perspective, it is important to have information regarding the type of care needed by bedridden elderly people. Regardless of the needs, they desire independence and autonomy in their life so they need better, more efficient and integrated systems for health and social care. Nowadays, there is an increase on the availability of assisted devices that can be used at home, decreasing the constant requirement for health professional assistance. The main objective of this study is to propose a conceptual solution consisting on the development of a bed mattress in order to reduce pressure points and protect fragile elders. Also, it intends to show a solution that may reduce the number of caregivers to only one. Besides it allows a safety design structure, to be able to take care of older people with disabilities in order to live independently and be active in their home.
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Lim, Ee Jane, Seng Beng Tan, Andrew Yeoh, Ai Xin Cheah, Chooi Lin Doong, Ee Chin Loh, and Chee Loong Lam. "4 Wellbeing of informal caregivers." In The APM’s Annual Supportive and Palliative Care Conference, In association with the Palliative Care Congress, “Towards evidence based compassionate care”, Bournemouth International Centre, 15–16 March 2018. British Medical Journal Publishing Group, 2018. http://dx.doi.org/10.1136/bmjspcare-2018-aspabstracts.31.

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Costa Pereira, Carla, Joana Pinto, Gianni Montagna, and Cristina Carvalho. "The Wardrobe for Patients with Autism Spectrum Disorder." In 13th International Conference on Applied Human Factors and Ergonomics (AHFE 2022). AHFE International, 2022. http://dx.doi.org/10.54941/ahfe1001532.

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Autism is a developmental brain disorder that affects communication skills and social integration, often exposing stereotyped and repetitive patterns. People with this syndrome have an overreaction or underreaction to different sensory stimuli, presenting difficulty in sharing emotions and interpreting body languages.There are studies confirming different reactions between genders, and it is pertinent to analyse how both adapt to the act of dressing and to the reception of different pieces of clothing.Neglecting the practice of Fashion representation and highlighting the functionality of the act of covering and protecting the body, this study aims to discover the wardrobe of a patient with ASD (Autistic Spectrum Disorder) and to know how Design can be more inclusive to improve their wellbeing. Being just the beginning of the investigation, now still based on literature review and pre-test results, the conclusion of the study is not fully defined. Elements of Fashion Design have not all been tested, and the small sample results reflect the needs of caregivers more than the needs of patients
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Hamdan, Abeer, and Manar Abdel-Rahman. "Child Disciplinary Practices in relation to Household Head Education and beliefs in Five Middle East and North African (MENA) countries: Cross Sectional study-Further analysis of Multiple Indicator Cluster survey data." In Qatar University Annual Research Forum & Exhibition. Qatar University Press, 2020. http://dx.doi.org/10.29117/quarfe.2020.0168.

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Introduction:Internationally, eight out of ten children are exposed to violent discipline by their caregivers. To reduce the prevalence of violent discipline against children, we should understand the social and economic factors that affect the choice of disciplinary methods. Despite the high prevalence of violent discipline in the Middle East and North African (MENA) region, only a few studies explored disciplinary methods in this region. Aim: This study aims to determine the prevalence of positive and violent disciplinary practices in five selected MENA countries and assess their association with household head education and beliefs of physical punishment. Methods: This is a cross-sectional study design based on available secondary data from the Multiple Indicator Cluster Survey on its fourth round (MICS-4). A child was selected randomly from the household, and the Parent-Child Conflict Scale (CTSPC) tool was used to report disciplinary methods the child encountered during the last month period preceding the survey. Univariate and multivariable logistic regression were used to investigate the association between disciplinary practices with household head education and respondent's beliefs of physical punishment. The analysis was conducted using pooled data from all selected surveys and also for individual countries. Result: The overall prevalence of positive discipline was only 15% (95% CI: 14.4-15.8), in the five countries, while the prevalence of violent discipline was 80% (95% CI: 79.0 -80.5). The prevalence of positive discipline was highest in Qatar (40%; 95% CI: 35.0-44.4) and lowest in Tunisia (5%; 95% CI: 4.3-5.9) while the prevalence of violent discipline was highest in Tunisia (93%; 95% CI: 92.1-94.1), and lowest in Qatar (50%; 95% CI: 44.7-55.0). Overall, the household head education was not significantly associated with either positive or violent discipline after adjusting for covariates. However, respondents believe of disciplinary methods was significantly associated with both positive and violent discipline (OR=5.88; 95% CI: 4.97-6.96) and (OR=6.27; 95% CI: 5.40-7.28), respectively. Conclusion: High rates of violent discipline in the MENA region might indicate an increase in mental, behavioral, and social problems and disorders in our future generation. Rapid action is needed to reduce the worsening of violent discipline, and it is consequences. There is a need for educational programs for caregivers to teach them alternative non-violent methods of discipline. Besides, these numbers should inform policymakers about the importance of the existence and the implementations of laws, policies, and regulations to protect children from all forms of violence to protect our future youths and ensure their health and wellbeing.
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Reports on the topic "Wellbeing of caregiver"

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Stall, Nathan M., Kevin A. Brown, Antonina Maltsev, Aaron Jones, Andrew P. Costa, Vanessa Allen, Adalsteinn D. Brown, et al. COVID-19 and Ontario’s Long-Term Care Homes. Ontario COVID-19 Science Advisory Table, January 2021. http://dx.doi.org/10.47326/ocsat.2021.02.07.1.0.

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Key Message Ontario long-term care (LTC) home residents have experienced disproportionately high morbidity and mortality, both from COVID-19 and from the conditions associated with the COVID-19 pandemic. There are several measures that could be effective in preventing COVID-19 outbreaks, hospitalizations, and deaths in Ontario’s LTC homes, if implemented. First, temporary staffing could be minimized by improving staff working conditions. Second, homes could be further decrowded by a continued disallowance of three- and four-resident rooms and additional temporary housing for the most crowded homes. Third, the risk of SARS-CoV-2 infection in staff could be minimized by approaches that reduce the risk of transmission in communities with a high burden of COVID-19. Summary Background The Province of Ontario has 626 licensed LTC homes and 77,257 long-stay beds; 58% of homes are privately owned, 24% are non-profit/charitable, 16% are municipal. LTC homes were strongly affected during Ontario’s first and second waves of the COVID-19 pandemic. Questions What do we know about the first and second waves of COVID-19 in Ontario LTC homes? Which risk factors are associated with COVID-19 outbreaks in Ontario LTC homes and the extent and death rates associated with outbreaks? What has been the impact of the COVID-19 pandemic on the general health and wellbeing of LTC residents? How has the existing Ontario evidence on COVID-19 in LTC settings been used to support public health interventions and policy changes in these settings? What are the further measures that could be effective in preventing COVID-19 outbreaks, hospitalizations, and deaths in Ontario’s LTC homes? Findings As of January 14, 2021, a total of 3,211 Ontario LTC home residents have died of COVID-19, totaling 60.7% of all 5,289 COVID-19 deaths in Ontario to date. There have now been more cumulative LTC home outbreaks during the second wave as compared with the first wave. The infection and death rates among LTC residents have been lower during the second wave, as compared with the first wave, and a greater number of LTC outbreaks have involved only staff infections. The growth rate of SARS-CoV-2 infections among LTC residents was slower during the first two months of the second wave in September and October 2020, as compared with the first wave. However, the growth rate after the two-month mark is comparatively faster during the second wave. The majority of second wave infections and deaths in LTC homes have occurred between December 1, 2020, and January 14, 2021 (most recent date of data extraction prior to publication). This highlights the recent intensification of the COVID-19 pandemic in LTC homes that has mirrored the recent increase in community transmission of SARS-CoV-2 across Ontario. Evidence from Ontario demonstrates that the risk factors for SARS-CoV-2 outbreaks and subsequent deaths in LTC are distinct from the risk factors for outbreaks and deaths in the community (Figure 1). The most important risk factors for whether a LTC home will experience an outbreak is the daily incidence of SARS-CoV-2 infections in the communities surrounding the home and the occurrence of staff infections. The most important risk factors for the magnitude of an outbreak and the number of resulting resident deaths are older design, chain ownership, and crowding. Figure 1. Anatomy of Outbreaks and Spread of COVID-19 in LTC Homes and Among Residents Figure from Peter Hamilton, personal communication. Many Ontario LTC home residents have experienced severe and potentially irreversible physical, cognitive, psychological, and functional declines as a result of precautionary public health interventions imposed on homes, such as limiting access to general visitors and essential caregivers, resident absences, and group activities. There has also been an increase in the prescribing of psychoactive drugs to Ontario LTC residents. The accumulating evidence on COVID-19 in Ontario’s LTC homes has been leveraged in several ways to support public health interventions and policy during the pandemic. Ontario evidence showed that SARS-CoV-2 infections among LTC staff was associated with subsequent COVID-19 deaths among LTC residents, which motivated a public order to restrict LTC staff from working in more than one LTC home in the first wave. Emerging Ontario evidence on risk factors for LTC home outbreaks and deaths has been incorporated into provincial pandemic surveillance tools. Public health directives now attempt to limit crowding in LTC homes by restricting occupancy to two residents per room. The LTC visitor policy was also revised to designate a maximum of two essential caregivers who can visit residents without time limits, including when a home is experiencing an outbreak. Several further measures could be effective in preventing COVID-19 outbreaks, hospitalizations, and deaths in Ontario’s LTC homes. First, temporary staffing could be minimized by improving staff working conditions. Second, the risk of SARS-CoV-2 infection in staff could be minimized by measures that reduce the risk of transmission in communities with a high burden of COVID-19. Third, LTC homes could be further decrowded by a continued disallowance of three- and four-resident rooms and additional temporary housing for the most crowded homes. Other important issues include improved prevention and detection of SARS-CoV-2 infection in LTC staff, enhanced infection prevention and control (IPAC) capacity within the LTC homes, a more balanced and nuanced approach to public health measures and IPAC strategies in LTC homes, strategies to promote vaccine acceptance amongst residents and staff, and further improving data collection on LTC homes, residents, staff, visitors and essential caregivers for the duration of the COVID-19 pandemic. Interpretation Comparisons of the first and second waves of the COVID-19 pandemic in the LTC setting reveal improvement in some but not all epidemiological indicators. Despite this, the second wave is now intensifying within LTC homes and without action we will likely experience a substantial additional loss of life before the widespread administration and time-dependent maximal effectiveness of COVID-19 vaccines. The predictors of outbreaks, the spread of infection, and deaths in Ontario’s LTC homes are well documented and have remained unchanged between the first and the second wave. Some of the evidence on COVID-19 in Ontario’s LTC homes has been effectively leveraged to support public health interventions and policies. Several further measures, if implemented, have the potential to prevent additional LTC home COVID-19 outbreaks and deaths.
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Evidence-informed planning and action in Central Asia: Learnings from the Tajikistan Adolescent Wellbeing and Health Pilot Project. Population Council, 2021. http://dx.doi.org/10.31899/sbsr2021.1046.

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To address adolescent health and wellbeing in Tajikistan, the Aga Khan Foundation (AKF) and Population Council used a hybrid human-centered (HCD) and evidence-based program design to engage adolescent girls, boys, and caregivers in a guided process of defining key issues and program areas. The design informed the development of a first-of-its-kind program model for AKF and in Tajikistan: coordinated community-based groups for adolescent girls and boys, caregivers' groups, and an institutional stakeholder community of practice in Tajikistan. Design and implementation experiences established "proof of concept" as a basis to expand the approach across the country and region. The pilot generated valuable lessons and resources to inform and support both expansion and new programming.
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