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1

Moore, Alison. Mental health user involvement. Birmingham: University of Central England in Birmingham, 1999.

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2

Social care, service users and user involvement. London: Jessica Kingsley Publishers, 2012.

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3

Greenhalgh, Trisha, Charlotte Humphrey, and Fran Woodard, eds. User Involvement in Health Care. Oxford, UK: Wiley-Blackwell, 2010. http://dx.doi.org/10.1002/9781444325164.

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4

Barnes, Marian. Developing a strategy for user involvement. Leeds: Nuffield Institute for Health, Community Care Division, 1995.

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5

Branfield, Fran. Making user involvement work: Supporting service user networking and knowledge. York: Joseph Rowntree Foundation, 2006.

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6

Thompson, Susan. User involvement: Giving older people a voice. Wrexham: Prospects Training Publications, 1997.

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7

Robson, Paul. Developing user involvement: Working towards user-centred practice in voluntary organisations. Bristol: Policy Press, 2003.

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8

Hutchison, Maureen. User involvement information pack: From policy to practice. [s.l.]: MIND South East, 1990.

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9

Wallcraft, Jan, Beate Schrank, and Michaela Amering, eds. Handbook of Service User Involvement in Mental Health Research. Chichester, UK: John Wiley & Sons, Ltd, 2009. http://dx.doi.org/10.1002/9780470743157.

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10

Hawcroft, Lynn. Visible voices: Developing deaf service user involvement in local services. [Carlisle]: British Deaf Association, 1996.

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11

Sommerlad, Elizabeth. User involvement in the development and application of learning technology. London: EDRU, 1995.

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12

Croft, Suzy. User involvement: Tuning in to the voice of the customer. [s.l.]: Social Work Today, 1988.

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13

Lisa, Malihi-Shoja, and Downe Soo, eds. Service user & carer involvement in education for health & social care. Chichester, West Sussex, U.K: Wiley-Blackwell, 2010.

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14

Morrow, Elizabeth, Annette Boaz, Sally Brearley, and Fiona Ross. Handbook of Service User Involvement in Nursing and Healthcare Research. Oxford, UK: Wiley-Blackwell, 2011. http://dx.doi.org/10.1002/9781444347050.

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15

Fawcett, Barbara, Joy Fillingham, Dawn River, Maureen Smojkis, and Nicki Ward. Service User and Carer Involvement in Health and Social Care. London: Macmillan Education UK, 2018. http://dx.doi.org/10.1057/978-1-137-53771-3.

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16

Faulkner, Alison. User involvement in forensic mental health research and development: Expert paper. Liverpool: National R & D Programme on Forensic Mental Health, 2002.

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17

Robson, Paul. Consumerism or democracy?: User involvement in the control of voluntary organisations. Bristol: Polity Press, 1997.

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18

Bishop, John. Managing user involvement: A manual for managers of public welfare services. Brighton: Pavilion Publishing, 1988.

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19

White, Julia Mary. User involvement in the planning of services within Social Services departments. Manchester: University of Manchester, 1993.

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20

Brafield, Helen. Service user involvement: Reaching the hard to reach in supported housing. London: Jessica Kingsley Publishers, 2007.

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21

Brafield, Helen. Service user involvement: Reaching the hard to reach in supported housing. London: Jessica Kingsley Publishers, 2007.

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22

Uji, Zanzan A. Housing the urban poor in Nigeria: User involvement in the production process. Enugu, Nigeria: EDPCA Publications, 2007.

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23

Vivien, Lindow, and Joseph Rowntree Foundation, eds. Living with risk: Mental health service user involvement in risk assessment and management. Bristol, UK: Policy Press, 2004.

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24

Cooke, Jane. Beyond tokenism: Mental health service user involvement in Wales : a Mind Cymru report. [Cardiff]: [Mind Cymru], 2002.

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25

Crowley, Cian. User and third party involvement in the development of medical devices in Ireland. Dublin: University College Dublin, Graduate School of Business, 1998.

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26

Management, Office for Public. Joint reviews of social services departments: A framework for evaluating user and carer involvement. [s.l.]: [The Office?], 1994.

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27

Bunting, Valerie Jane. The empowerment of mental health service users in Northern Ireland: The impact of user involvement in the voluntary sector. [S.l: The author], 2002.

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28

Osborn, Averil. Taking part in community care planning: The involvement of user groups, carer groups and voluntary groups. Leeds: Nuffield Institute, 1991.

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29

Joule, Nikki. User involvement in medical audit: A spoke in the wheel or a link in the chain? London: Greater London Association of Community Health Councils, 1992.

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30

Philpot, Terry. Managing to listen: A guide to user involvement for mental health service managers : promoting & supporting good practice : manager, staff & user experiences : reading & resources : problem solving. London: King's Fund Centre, 1994.

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31

Services, Centre for Public. User/employee involvement in best value, PFI and partnerships: A handbook for local authorities, health and other public bodies, user and community organisations, and trade unions. Sheffield: Centre for Public Services, 1998.

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32

George, Taylor. An exploration of issues of identity and user involvement within the context of an ethical applied research methodology. Leicester: De Montfort University, 2005.

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33

Midgley, Gerald. The improvement of housing for older people: Developing services through an integrated system of multi-agency working and user involvement. Hull: University of Hull, 1996.

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34

Joule, Nikki. Choices and opportunities for user involvement in the primary care-led NHS?: Exploring relationships between CHCs and GPs in London. London: Greater London Association of Community Health Councils, 1997.

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35

Thompson, Jane. User involvement in mental health services: The limits of consumerism, the risks of marginalisation and the need for a critical approach. Hull: University of Hull, 1995.

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36

Dick, Sally. Nothing about me, without me: The report of a practice based study of approaches to effective user involvement in individual care in one agency. Edinburgh: Consultation and Involvement Trust Scotland, 2000.

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37

Office, General Accounting. Earth observing system: Broader involvement of the EOSDIS user community is needed : report to the Chairman, Committee on Science, Space, and Technology, House of Representatives. Washington, D.C: The Office, 1992.

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38

McAleenan, Gerard Anthony. An examination of user involvement in information systems development and its relationship to system success with particular reference to the "MATRIX" system development project in Shorts Bros PLC. [s.l: The Author], 1991.

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39

G, Brailow Anthony, ed. Strategic emotional involvement. Northvale, N.J: Aronson, 1996.

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40

Service User Involvement. Joseph Rowntree Foundation, 1995.

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41

1952-, Barnes Marian, Wistow Gerald 1946-, and Nuffield Institute for Health Services Studies., eds. Researching user involvement. Leeds: Nuffield Institute for Health Services Studies, University of Leeds, 1992.

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42

Hutchinson, Maureen, Georgina Linton, and Jo Lucas. User Involvement Information Pack. Mind Publications, 1990.

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43

Greenhalgh, Trisha, Charlotte Humphrey, and Fran Woodard. User Involvement in Health Care. Wiley & Sons, Incorporated, John, 2010.

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44

User Involvement In Health Care. Wiley-Blackwell, 2010.

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45

Critical Perspectives On User Involvement. Policy Press, 2012.

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46

Greenhalgh, Trisha, Charlotte Humphrey, and Fran Woodard. User Involvement in Health Care. Wiley & Sons, Limited, John, 2010.

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47

Wallcraft, Jan. Service User Involvement in Research. Edited by John Z. Sadler, K. W. M. Fulford, and Werdie (C W. ). van Staden. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780198732372.013.13.

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This chapter traces the development of service user involvement in research and user-controlled research, from its origins in the early 1990s to the present day where mental health researchers are expected to involve service users. It looks at why service users wanted to be involved in research and their issues of concern, including the effects of treatment, staff attitudes, and human rights. Values in research are linked to the epistemological underpinnings of research, and it is argued that service users’ ways of knowing based on experience are in conflict with mainstream research based on claims of objectivity and neutrality. Service user involvement at all levels from consultation to control is explored with examples. The benefits and problems of working in partnership are explored, and the chapter ends with an assessment of the impact of involvement in research and how it can lead to change.
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48

Barnes, Marian, and Phil Cotterell, eds. Critical Perspectives on User Involvement. Policy Press, 2011. http://dx.doi.org/10.1332/policypress/9781847427519.001.0001.

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49

Greenhalgh, Trisha, Charlotte Humphrey, and Fran Woodard. User Involvement in Health Care. Wiley & Sons, Incorporated, John, 2011.

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50

Greenhalgh, Trisha, Charlotte Humphrey, and Fran Woodard. User Involvement in Health Care. Wiley & Sons, Incorporated, John, 2011.

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