Relevant bibliographies by topics / Terminally ill

Academic literature on the topic 'Terminally ill'

Author: Grafiati
Published: 4 June 2021
Last updated: 30 July 2024

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Journal articles on the topic "Terminally ill"

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Cecconello, Leonardo, Emelly Gabriele Erbs, and Letícia Geisler. "Ethical conduct and terminal care." Revista Bioética 30, no. 2 (June 2022): 405–12. http://dx.doi.org/10.1590/1983-80422022302536en.

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Abstract Given its peculiarities, terminality highlights the need for an individualization of the therapeutic plan and integrality of assistance in health care. This article analyzed 23 scientific publications with thematics related to terminality and palliative care and discussed the therapeutic approach to the terminally ill patient and the incorporation of different integral practices in health. We sought to evidence that recognizing the characteristics of terminality makes it possible to establish the adequate prognostic study and implement a plan of care that supplies the necessities of the terminally ill patient, with care based of bioethical principles, respecting the will and particularities of the individual. We conclude that the palliative care constitutes an important instrument in managing biopsychosocial and spiritual angst of terminally ill people, by making ample assistance in care possible, promoting dignity, minimizing suffering, and bettering the quality of life of these patients and their families.
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Gauba, Anu. "PSYCHOLOGICAL ISSUES WITH TERMINALLY ILL PATIENTS." International Journal of Advanced Research 11, no. 12 (December 31, 2023): 309–10. http://dx.doi.org/10.21474/ijar01/17988.

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Terminally ill patients may be sophisticated and/or demanding health care consumers they also may be bitter, cynical, and difficult to engage in conversation. Terminally ill patients often are on complicated drug regimens requiring detailed instruction and monitoring. Treat terminally ill patients with respect and work with them to achieve optimal therapeutic efficacy within the complexities of their illnesses and the health care environment. Terminally ill patients may need help dealing withcomplex medication regimens. Terminally ill patients need close monitoring and reassurance about their medication regimens. Some terminally ill patients require large and frequent doses of narcotics work with the patient and the patient’s family to legitimize the use of these medications and minimize the hassles associated with obtaining narcotics.
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Afia Kwakyewaa Owusu-Agyeman, Eric Tornu, Abdulai Abdul Malik, Catherine Kyiu, Faustina Yin Yariga, Safura Seidu, Ababio-Boamah Christopher, Ofei Philemon Ashirifie, and Owusu Samuel. "KNOWLEDGE AND PRACTICES OF FAMILY CAREGIVERS OF TERMINALLY ILL PATIENTS AT THE TAMALE REGIONAL HOSPITAL." EPH - International Journal of Science And Engineering 9, no. 3 (December 21, 2023): 59–76. http://dx.doi.org/10.53555/ephijse.v9i3.221.

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The goal of this study was to evaluate the knowledge of family Caregivers in caring for terminally ill sufferers, to assess the practices of household Caregivers in caring for terminally ill sufferers, to examine the factors affecting household Caregivers in caring for terminally ill sufferers at the Tamale Regional Hospital. The findings show that there is the need for a caregiver to be present and ready to offer help to the patients due to their inability to move. Terminally ill patients may mostly be immobile or incapable of performing basic life functions without external support. It appears from the engagement with respondents that, the latter have appreciable knowledge of the concept of palliative care and care for terminally ill patients. They understand the challenging situation of terminally ill patients and are equally aware of what constitutes care for the sufferer. Also, family caregiver showed evidence of knowledge of health workers role in palliative care. They indicated that health workers had a crucial role to play in giving palliative care to the terminally ill patient. Doctors had the responsibility of prescribing medications while nurses also educate relatives and caregivers on palliative care. More so, health workers assisted in the caring of patients by assisting caregivers to physically move patients. Caregivers who could not move their patients due to the latters weight had to be assisted by some health workers. The result also indicates health workers played a crucial role in caring for terminally ill patients, of which caregivers were aware. The study further found that the other effect of caring for terminally ill patients was financial demands. To overcome this burden, the study recommends that caregivers had to cut their expenditures and request financial support from relatives and friends as family support was also a mechanism used in coping with the burden of caring for terminally ill patients. Also, the Tamale Regional Hospital should incorporate the services of family caregivers in the care of terminally ill patients. Their competence would immensely contribute to the improvement in the health of terminally ill patients. Further, the Ministry of Health should develop policies that will lessen burden on family caregivers of patients suffering from terminal diseases.
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Laporte, Pauline, Typhaine Juvet, Jean-François Desbiens, Diane Tapp, Jérôme Pasquier, and Marc-Antoine Bornet. "Factors affecting attitudes towards caring for terminally ill patients among nursing students in Switzerland: a cross-sectional study." BMJ Open 10, no. 9 (September 2020): e037553. http://dx.doi.org/10.1136/bmjopen-2020-037553.

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ObjectivesPositive attitudes towards end-of-life care are essential among nursing students to adequately support terminally ill patients and enable students to feel confident about providing end-of-life care. This study aimed to determine nursing students’ attitudes towards caring for terminally ill patients, as well as the associations between these attitudes and year of study, exposure to terminally ill people, self-perceived nursing skills and subjective impact of instruction.DesignCross-sectional study.SettingA health sciences school in Switzerland.ParticipantsAll preparatory students, first-year nursing students and third-year nursing students were invited to participate; 178 agreed to participate.Primary outcome measureAttitudes towards terminally ill patients were assessed using the Frommelt Attitudes Toward Care of the Dying Scale, Form B (FATCOD, Form B), as the primary outcome. Secondary measures were gender, age, year of study, number of terminally ill persons encountered, self-perceived palliative care nursing skills and subjective impact of instruction.ResultsMean FATCOD, Form B score was 117.7 (SD: 9.8, median: 118.0). Better attitudes towards terminally ill patients were significantly associated with being aged 24–26 years (β=6.97, 95% CI 2.00 to 11.95, p=0.006), year of study (β=3.47, 95% CI 1.69 to 5.25, p<0.001), professional encounters with terminally ill patients (β=3.59, 95% CI 2.23 to 4.95, p<0.001) and self-perceived palliative care nursing competence (β=1.23, 95% CI 0.41 to 2.04; p=0.003). In the multivariate analysis, professionally encountering terminally ill patients remained significant (β=3.00; 95% CI 1.43 to 4.57; p<0.001).ConclusionsNursing students’ attitudes towards caring for terminally ill patients were positive and improved as their year of study progressed. Professional exposure to terminally ill patients was the strongest factor, followed by private encounters, self-perceived palliative care nursing skills, year of study and age.
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Matchim, Yaowarat, Borwarnluck Thongthawee, Parinya Raetong, and Ruankwan Kanhasing. "Quality of death and its related factors in terminally ill patients, as perceived by nurses." International Journal of Palliative Nursing 28, no. 10 (October 2, 2022): 491–96. http://dx.doi.org/10.12968/ijpn.2022.28.10.491.

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Background: Little is known about the quality of death of terminally ill patients in hospitals in Thailand. Aim: To examine the quality of death of terminally ill patients and investigate correlations between the quality of death and the organisational climate; nurses' palliative care knowledge; nurses' palliative care practice; and nurses' perceptions of barriers in providing palliative care. Methods: A cross-sectional survey design was used. Data collected among 281 nurses were analysed by descriptive statistics, Pearson correlation and Spearman's rank correlation. Results: The overall quality of death of terminally ill patients in the hospital was moderate. Organisational climate and nurses' palliative care practice positively correlate with terminally ill patients' quality of death. Nurses' difficulty in providing palliative care negatively correlates with terminally ill patients' quality of death. Conclusion: Promoting an organisational climate and enhancing nurses' palliative care practice may improve the quality of death of terminally ill patients in this hospital.
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ONISHI, HIDEKI, MASANARI ONOSE, SHIGEKO OKUNO, SUZU YAE, YASUHIRO MIZUNO, MIZUHO ITO, HIDEYUKI SAITO, and CHIAKI KAWANISHI. "Spouse caregivers of terminally-ill cancer patients as cancer patients: A pilot study in a palliative care unit." Palliative and Supportive Care 3, no. 2 (June 2005): 83–86. http://dx.doi.org/10.1017/s1478951505050157.

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Objective: It is known that families of terminally-ill cancer patients show levels of emotional and functional disruption and are called “second order patients,” however, little is actually known about the health problems of family members, especially in terms of cancer.Methods: This study reviewed the family histories of terminally-ill cancer patients in a palliative care unit and investigated cancer related health problems of the spouses of terminally-ill cancer patients.Results: We investigated the past medical history of 125 spouses of terminally-ill cancer patients and found that five spouses had a past medical history of cancer. In these five spouses, the duration of illness, present status of treatment and physical condition were reviewed from the database. Of these five spouses, three patients continued to attend an outpatient clinic regularly for checkup and one patient was hospitalized for nephrectomy. Two spouses did not have physical symptoms that made them unable to provide direct care for the terminally-ill spouses, while three could not provide care because of their own physical symptoms derived from cancer.Significance of results: Our findings indicated that some of the spouses of terminally-ill cancer patients are not only “second order patients” but also “cancer patients.” Our findings also suggest that some spouses of terminally-ill cancer patients might experience distress both as a cancer patient and as a spouse and may need care both as a cancer patient and as a spouse.
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Abell, Sue. "Terminally Ill Grandmother." Clinical Pediatrics 46, no. 9 (November 2007): 854–55. http://dx.doi.org/10.1177/0009922806290827.

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Jansen, Lynn A., Steven Wall, and Franklin G. Miller. "Drawing the line on physician-assisted death." Journal of Medical Ethics 45, no. 3 (November 21, 2018): 190–97. http://dx.doi.org/10.1136/medethics-2018-105003.

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Drawing the line on physician assistance in physician-assisted death (PAD) continues to be a contentious issue in many legal jurisdictions across the USA, Canada and Europe. PAD is a medical practice that occurs when physicians either prescribe or administer lethal medication to their patients. As more legal jurisdictions establish PAD for at least some class of patients, the question of the proper scope of this practice has become pressing. This paper presents an argument for restricting PAD to the terminally ill that can be accepted by defenders as well as critics of PAD for the terminally ill. The argument appeals to fairness-based paternalism and the social meaning of medical practice. These two considerations interact in various ways, as the paper explains. The right way to think about the social meaning of medical practice bears on fair paternalism as it relates to PAD and vice versa. The paper contends that these considerations have substantial force when directed against proposals to extend PAD to non-terminally ill patients, but considerably less force when directed against PAD for the terminally ill. The paper pays special attention to the case of non-terminally ill patients who suffer from treatment-resistant depression, as these patients present a potentially strong case for extending PAD beyond the terminally ill.
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Shedletsky, Ralph, and Rory H. Fisher. "Terminal Illness: Attitudes in Both an Acute Care and an Extended Care Teaching Hospital." Journal of Palliative Care 2, no. 1 (March 1987): 16–21. http://dx.doi.org/10.1177/082585978700200104.

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This paper describes an attitudinal survey carried out at Sunnybrook Medical Centre, a teaching hospital with large acute and extended care sections. The study assesses and compares the attitudes and behaviour of acute care and extended care staff towards terminally ill patients and also the attitudes and beliefs of a sample on non-terminally ill patients. Six hundred and fifty-one completed questionnaires were reviewed. Respondents were asked questions regarding the management of terminally ill patients in acute beds; informing patients of the nature of their disease; management of patient's emotional and physical needs; the use of investigations in the terminally ill. A majority felt that the terminally ill should not be managed in acute hospital beds and that patients should be informed of the nature of their disease, although staff did not uniformly favour full disclosure. While physical care was thought to be quite good, staff responses were much less favourable about fulfillment of patients’ emotional needs. As well, staff in acute care, more so than in extended care, felt that investigations were being over-utilized.
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Pan, Hsueh-Hsing, Li-Fen Wu, Li-Fang Chang, Yu-Chun Hung, Chin Lin, and Ching-Liang Ho. "Effects of Dispositional Resilience and Self-Efficacy on Practice in Advanced Care Planning of Terminally Ill Patients among Taiwanese Nurses: A Study Using Path Modeling." International Journal of Environmental Research and Public Health 18, no. 3 (January 30, 2021): 1236. http://dx.doi.org/10.3390/ijerph18031236.

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This study aimed to expand on previous research elucidating the effects of dispositional resilience and self-efficacy on practice in advanced care planning (ACP) of terminally ill patients among Taiwanese nurses using path modeling. This cross-sectional study was conducted using cluster sampling. Data were collected using demographics, nurses’ knowledge, attitude, and practice of ACP (KAP-ACP) inventory, Dispositional Resilience Scale, and General Self-Efficacy Scale. A total of 266 nurses from a tertiary medical center in northern Taiwan participated in this study in 2019. The results showed that gender and ward were significant K-ACP predictors among nurses. The ACP knowledge, ward, and experience of caring for terminally ill friends or relatives were significant A-ACP predictors, whereas ACP attitudes, dispositional resilience, self-efficacy, ward, and the frequency of caring for terminally ill patients were the key predictors of P-ACP. The path modeling showed that dispositional resilience; self-efficacy; medical, surgical, hematology and oncology wards; previous experience in caring for terminally ill friends or relatives; participating in the do-not-resuscitate signature; and the frequency of caring for terminally ill patients directly influenced ACP practices. We recommend that nurses enhance their dispositional resilience and self-efficacy, which may encourage them to appreciate the value of ACP practice of terminally ill patients and improve the quality of care.
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Dissertations / Theses on the topic "Terminally ill"

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Damm, Kathryn. "Social support and mental health for terminally ill patients and their caregivers." Diss., Connect to a 24 p. preview or request complete full text in PDF format. Access restricted to UC campuses, 2008. http://wwwlib.umi.com/cr/ucsd/fullcit?p3307164.

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Thesis (Ph. D.)--University of California, San Diego, 2008.
Title from first page of PDF file (viewed July 9, 2008). Available via ProQuest Digital Dissertations. Vita. Includes bibliographical references (p. 86-103).
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Cisneros, Francisco. "Terminally ill and hospice residential settings." Theological Research Exchange Network (TREN), 1996. http://www.tren.com.

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Cranfill, Timothy D. "Giving sorrow words turning mourning into dancing : improving the quality of life of terminally ill children, adolescents, and adults through the use of therapeutic videography /." Online full text .pdf document, available to Fuller patrons only, 2004.

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Ministry research project (D. Min.)--Midwestern Baptist Theological Seminary, 2004.
Submitted in partial fulfillment of the requirements for the Doctor of Ministry Degree. Includes bibliographical references (leaves 184-188).
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Webb, Nicole Marie. "Factors affecting young adults' opinions about hospice and home death." Birmingham, Ala. : University of Alabama at Birmingham, 2009. https://www.mhsl.uab.edu/dt/2009p/webb.pdf.

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Thesis (Ph. D.)--University of Alabama at Birmingham, 2009.
Title from PDF title page (viewed Sept. 2, 2009). Additional advisors: Virginia G. (Wadley) Bradley, Elizabeth A. Kvale, Kathryn L. Burgio, Edwin W. Cook III. Includes bibliographical references.
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Fulton, Graham, and n/a. "The Perceived needs of the terminally ill." University of Canberra. Education, 1989. http://erl.canberra.edu.au./public/adt-AUC20050217.103844.

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While there is considerable international interest in the development of hospice and palliative care programs, as an alternative form of care for the terminally ill, there is minimal empirical research undertaken on the needs of recipients of these programs. Using a Q-sort, developed by the author, this research examined the relationship between individual patient's ranking of their needs, and the nurse's perception of the needs identified by individual patients in their care. A basic assumption of the study was that patients' needs could be categorised in four groups, namely spiritual, physical, emotional, and social. Consequently, the study also examined whether patients and nurses identified, as most important, needs from one group, more frequently than the other groups. The limited size of the sample placed severe restrictions on the analysis of results derived from this research. However, while no definite conclusions could be drawn from data obtained from the small sample, tentative analysis identified trends that may have proved significant had they continued in a larger sample.
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Dye, Deborah K. "Spirituality in the terminally ill hospitized [sic] patient." Muncie, Ind. : Ball State University, 2008. http://cardinalscholar.bsu.edu/357.

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Chemane, Bonginkosi Reginald. "Integrating spirituality and psychotherapy : experiences of a sample of terminally ill patients." Thesis, Rhodes University, 2013. http://hdl.handle.net/10962/d1008217.

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The general aim of this study was to determine the experiences of a sample of terminally ill patients in using spiritually focused psychotherapy. This was a qualitative study conducted to a sample of 2 terminally ill patients from hospice in Grahamstown, South Africa. The research was conducted in 3 phases: an initial in-depth interview conducted to determine the participants' level of spirituality as well as the extent to which their terminal illnesses had affected their functioning. This was followed by a minimum of 6 spiritually focused therapy (SFT) sessions as a second phase of the research. To determine the participants' experiences of SFT, 2-3 in-depth interviews were conducted during the 3m phase of the research study. The research revealed that a belief in a higher power helps terminally ill patients cope better with their illness and that social disconnectedness is related to HIV / AIDS stigma. It also revealed that terminal illness is co-morbid with other psychiatric symptoms such as depression, evokes existential concerns, results in a change in the level of spirituality and affects the whole family. Participants blamed themselves for their illness, but found that engaging in the process of forgiveness of self and others brought about psychological healing for them. They experienced SFT as a coping resource that assisted them to deal with the fear of death as well as increased insight into the development of psychopathology and spiritual blockages. It is recommended that a comprehensive and holistic assessment during intake be undertaken so that where spiritual needs are available, therapy can be spiritually augmented to ensure that such needs/ struggles are addressed.
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Rodak, Rina S. "Chronically and terminally ill children and medical decision-making." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/MQ55708.pdf.

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Bergendal, Adam. "Architecture as medicine : Rethinking care for the terminally ill." Thesis, KTH, Arkitektur, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:kth:diva-163431.

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Societies have an ethical responsibility to provide the dying with the highest possible quality of care. Yet, terminal patients are sometimes lost in a healthcare system that emphasizes procedure over the individual. This project envisions a new approach - a restructuring of the current system. A shared facility that combines rehabilitation and home care with end of life care, promoting flexible treatment to be tailored to each patient according to their individual needs.
Vårt samhälle har ett etiskt ansvar att tillhandahålla döende med högsta möjliga vårdkvalitet. Trots det åsidosätts ibland döende patienter i ett sjukvårdssystem som betonar metod över individen. Detta projekt föreslår en ny strategi - en omstrukturering av det nuvarande systemet. Istället för uppdelade vårdstrukturer föreslås en sammansatt vårdanläggning som kombinerar rehabilitering och avancerad hemsjukvård med sluten palliativ vård, som främjar flexibel behandling och som skräddarsys för varje patient utifrån dess individuella behov.
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Henn, J. W. "Psychological care of the terminally ill : theory and application." Thesis, University of East Anglia, 1999. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.302199.

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Books on the topic "Terminally ill"

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Amenta, Madalon. Nursing care of the terminally ill. Boston: Little, Brown, 1986.

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L, Bohnet Nancy, ed. Nursing care of the terminally ill. Boston: Little, Brown, 1986.

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Belgique), Équipe Delta (Chénée, ed. Soins palliatifs: Le dernier manteau : une clinique du détail. Toulouse: Éditions Érès, 2014.

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British Medical Association. Medical Ethics Committee., ed. Withholding or withdrawing life-prolonging medical treatment: Guidance for decision making. London: BMJ Books, 1999.

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George, Rob. Healthy dying. Bristol, PA: Jessica Kingsley Publishers, 1997.

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John, Ellershaw, and Wilkinson Susie, eds. Care of the dying: A pathway to excellence. Oxford: Oxford University Press, 2003.

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Bommel, Harry Van. Choices: For people who have a terminal illness, their families and their caregivers. Toronto: NC Press, 1986.

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Cendon, Paolo. I malati terminali e i loro diritti. Milano: A. Giuffrè, 2003.

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Great Britain. Parliament. House of Lords. Select Committee on the Assisted Dying for the Terminally Ill Bill. Assisted Dying for the Terminally Ill Bill [HL]. London: Stationery Office, 2005.

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Great Britain. Parliament. House of Lords. Assisted Dying for the Terminally Ill Bill [HL]. London: Stationery Office, 2004.

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Book chapters on the topic "Terminally ill"

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Stolberg, Michael. "Caring for Terminally Ill Patients." In Philosophy and Medicine, 15–49. Cham: Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-54178-5_2.

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Carr, A. T. "Working with the Terminally Ill." In Current Issues in Clinical Psychology, 49–55. Boston, MA: Springer US, 1987. http://dx.doi.org/10.1007/978-1-4615-6778-3_5.

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Rousseau, Paul C. "Palliative Sedation in Terminally Ill Patients." In Advances in Experimental Medicine and Biology, 263–67. Boston, MA: Springer US, 2004. http://dx.doi.org/10.1007/978-0-306-48526-8_24.

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Gianotten, W. L., and J. A. Hordern. "Sexual Health in the Terminally Ill." In Cancer and Sexual Health, 577–87. Totowa, NJ: Humana Press, 2011. http://dx.doi.org/10.1007/978-1-60761-916-1_37.

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Fritzsche, Kurt. "The Terminally Ill and Dying Patient." In Psychosomatic Medicine, 267–74. Cham: Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-030-27080-3_18.

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Rees, Dewi. "Domiciliary Care of the Terminally Ill." In Innovations in the Care of the Elderly, 158–68. London: Routledge, 2022. http://dx.doi.org/10.4324/9781003284376-14.

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Wilson, Christine. "Terminal care: using psychological skills with the terminally ill." In Health Psychology, 476–92. Boston, MA: Springer US, 1989. http://dx.doi.org/10.1007/978-1-4899-3228-0_24.

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Lewer, Helen, and Leslie Robertson. "Nursing the child who is terminally ill." In Care of the Child, 156–67. London: Macmillan Education UK, 1987. http://dx.doi.org/10.1007/978-1-349-09488-2_16.

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Kaiser, H. E., D. B. Brock, D. J. Foley, H. Maier-Gerber, and T. A. Hodgson. "Care for the Terminally Ill: Death and Dying." In Cancer Management in Man, 216–26. Dordrecht: Springer Netherlands, 1989. http://dx.doi.org/10.1007/978-94-009-1095-9_22.

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Loewy, Erich H. "Problems in the Care of the Terminally Ill." In Textbook of Medical Ethics, 123–55. Dordrecht: Springer Netherlands, 1989. http://dx.doi.org/10.1007/978-94-017-4479-9_10.

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Conference papers on the topic "Terminally ill"

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Truhlarova, Zuzana. "HOME CARE FOR TERMINALLY ILL." In 2nd International Multidisciplinary Scientific Conference on Social Sciences and Arts SGEM2015. Stef92 Technology, 2015. http://dx.doi.org/10.5593/sgemsocial2015/b11/s2.072.

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Ulrichova, Monika. "Victories Over Impending Death Among The Terminally-Ill." In 12th International Conference on Education and Educational Psychology. European Publisher, 2021. http://dx.doi.org/10.15405/epiceepsy.21101.20.

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Pabla, Katherine, John Knight, and Mandy Motley. "O-24 Virtual reality transforming the lives of terminally ill patients." In Leading, Learning and Innovating, Hospice UK 2017 National Conference, 22–24 November 2017, Liverpool. British Medical Journal Publishing Group, 2017. http://dx.doi.org/10.1136/bmjspcare-2017-hospice.24.

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Stanzani, Licia Zanol Lorencini, Mariana Marques, Matheus Martins, Wilton Vieira, Fabio Amorim, and Ricardo Carvalho. "Morphine use in the treatment of dyspnea in terminally ill patients." In ERS International Congress 2021 abstracts. European Respiratory Society, 2021. http://dx.doi.org/10.1183/13993003.congress-2021.pa3135.

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Gil-Herrera, E., A. Yalcin, A. Tsalatsanis, L. E. Barnes, and B. Djulbegovic. "Towards a classification model to identify hospice candidates in terminally ill patients." In 2012 34th Annual International Conference of the IEEE Engineering in Medicine and Biology Society (EMBC). IEEE, 2012. http://dx.doi.org/10.1109/embc.2012.6346171.

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Gil-Herrera, E., A. Yalcin, A. Tsalatsanis, L. E. Barnes, and B. Djulbegovic. "Rough Set Theory based prognostication of life expectancy for terminally ill patients." In 2011 33rd Annual International Conference of the IEEE Engineering in Medicine and Biology Society. IEEE, 2011. http://dx.doi.org/10.1109/iembs.2011.6091589.

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Godawa, Grzegorz. "OVERCOMING BARRIERS TO EDUCATION OF A TERMINALLY ILL CHILD IN THE FAMILY." In 12th International Technology, Education and Development Conference. IATED, 2018. http://dx.doi.org/10.21125/inted.2018.0872.

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Stanzani, Licia Zanol Lorencini, Mariana Marques, Matheus Martins, Wilton Vieira, Fabio Amorim, and Ricardo Carvalho. "Morphine and oxygen use in terminally ill patients with dyspnea in Brazil." In ERS International Congress 2021 abstracts. European Respiratory Society, 2021. http://dx.doi.org/10.1183/13993003.congress-2021.pa3136.

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Dassel, Katharina, and Stefan Klein. "(My) data for (my) health – privacy calculi of terminally-ill patients with rare diseases." In Enabling Technology for a Sustainable Society. University of Maribor Press, 2020. http://dx.doi.org/10.18690/978-961-286-362-3.2.

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Digital healthcare information systems promise to improve care efficiency, to reduce complexity for patients, and to increase access to information and advance research efforts. A prominent example are multi-sided-platforms (MSP), which are essentially an information business, linking key healthcare stakeholders for individualized as well as aggregated information services. However, platform-based health innovation relies on the extensive collection, storage, and use of sensitive health information, raising issues of information privacy. This study uses the privacy calculus perspective to shed light on patients’ trade-off considerations. We use the case of a MSP, which connects patients, care providers and researchers, in order to model a multi-level calculus for health information of terminally ill patients. These insights inform stepwise consent options, which highlight the trade-offs between information value and patient privacy. By reflecting on the implications for patient empowerment this conceptual paper develops a research agenda on how to study and design responsible health information systems.
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Niederman, Michael S., and Moshe C. Ornstein. "Antibiotics Are Used Excessively In Terminally Ill ICU Patients And Create Potential Harm To Others." In American Thoracic Society 2011 International Conference, May 13-18, 2011 • Denver Colorado. American Thoracic Society, 2011. http://dx.doi.org/10.1164/ajrccm-conference.2011.183.1_meetingabstracts.a6220.

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Reports on the topic "Terminally ill"

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Djulbegovic, Benjamin. Proposal for Development of EBM-CDSS (Evidence-based Clinical Decision Support System) to Aid Prognostication in Terminally Ill Patients. Fort Belvoir, VA: Defense Technical Information Center, October 2014. http://dx.doi.org/10.21236/ada610718.

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Djulbegovic, Benjamin. Proposal for Development of EBM-CDSS (Evidence-Based Clinical Decision Support System) to Aid Prognostication in Terminally Ill Patients. Fort Belvoir, VA: Defense Technical Information Center, October 2011. http://dx.doi.org/10.21236/ada601835.

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Djulbegovic, Benjamin. Proposal for Development of EBM-CDSS (Evidence-based Clinical Decision Support System) to Aid Prognostication in Terminally Ill Patients. Fort Belvoir, VA: Defense Technical Information Center, October 2012. http://dx.doi.org/10.21236/ada601841.

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Djulbegovic, Benjamin. Proposal for Development of EBM-CDSS (Evidence-Based Clinical Decision Support System) to Aid Prognostication in Terminally Ill Patients. Fort Belvoir, VA: Defense Technical Information Center, October 2013. http://dx.doi.org/10.21236/ada601844.

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Murray, Chris, Keith Williams, Norrie Millar, Monty Nero, Amy O'Brien, and Damon Herd. A New Palingenesis. University of Dundee, November 2022. http://dx.doi.org/10.20933/100001273.

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Robert Duncan Milne (1844-99), from Cupar, Fife, was a pioneering author of science fiction stories, most of which appeared in San Francisco’s Argonaut magazine in the 1880s and ’90s. SF historian Sam Moskowitz credits Milne with being the first full-time SF writer, and his contribution to the genre is arguably greater than anyone else including Stevenson and Conan Doyle, yet it has all but disappeared into oblivion. Milne was fascinated by science. He drew on the work of Scottish physicists and inventors such as James Clark Maxwell and Alexander Graham Bell into the possibilities of electromagnetic forces and new communications media to overcome distances in space and time. Milne wrote about visual time-travelling long before H.G. Wells. He foresaw virtual ‘tele-presencing’, remote surveillance, mobile phones and worldwide satellite communications – not to mention climate change, scientific terrorism and drone warfare, cryogenics and molecular reengineering. Milne also wrote on alien life forms, artificial immortality, identity theft and personality exchange, lost worlds and the rediscovery of extinct species. ‘A New Palingenesis’, originally published in The Argonaut on July 7th 1883, and adapted in this comic, is a secular version of the resurrection myth. Mary Shelley was the first scientiser of the occult to rework the supernatural idea of reanimating the dead through the mysterious powers of electricity in Frankenstein (1818). In Milne’s story, in which Doctor S- dissolves his terminally ill wife’s body in order to bring her back to life in restored health, is a striking, further modernisation of Frankenstein, to reflect late-nineteenth century interest in electromagnetic science and spiritualism. In particular, it is a retelling of Shelley’s narrative strand about Frankenstein’s aborted attempt to shape a female mate for his creature, but also his misogynistic ambition to bypass the sexual principle in reproducing life altogether. By doing so, Milne interfused Shelley’s updating of the Promethean myth with others. ‘A New Palingenesis’ is also a version of Pygmalion and his male-ordered, wish-fulfilling desire to animate his idealised female sculpture, Galatea from Ovid’s Metamorphoses, perhaps giving a positive twist to Orpheus’s attempt to bring his corpse-bride Eurydice back from the underworld as well? With its basis in spiritualist ideas about the soul as a kind of electrical intelligence, detachable from the body but a material entity nonetheless, Doctor S- treats his wife as an ‘intelligent battery’. He is thus able to preserve her personality after death and renew her body simultaneously because that captured electrical intelligence also carries a DNA-like code for rebuilding the individual organism itself from its chemical constituents. The descriptions of the experiment and the body’s gradual re-materialisation are among Milne’s most visually impressive, anticipating the X-raylike anatomisation and reversal of Griffin’s disappearance process in Wells’s The Invisible Man (1897). In the context of the 1880s, it must have been a compelling scientisation of the paranormal, combining highly technical descriptions of the Doctor’s system of electrically linked glass coffins with ghostly imagery. It is both dramatic and highly visual, even cinematic in its descriptions, and is here brought to life in the form of a comic.
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Sparks, Paul, Jesse Sherburn, William Heard, and Brett Williams. Penetration modeling of ultra‐high performance concrete using multiscale meshfree methods. Engineer Research and Development Center (U.S.), September 2021. http://dx.doi.org/10.21079/11681/41963.

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Terminal ballistics of concrete is of extreme importance to the military and civil communities. Over the past few decades, ultra‐high performance concrete (UHPC) has been developed for various applications in the design of protective structures because UHPC has an enhanced ballistic resistance over conventional strength concrete. Developing predictive numerical models of UHPC subjected to penetration is critical in understanding the material's enhanced performance. This study employs the advanced fundamental concrete (AFC) model, and it runs inside the reproducing kernel particle method (RKPM)‐based code known as the nonlinear meshfree analysis program (NMAP). NMAP is advantageous for modeling impact and penetration problems that exhibit extreme deformation and material fragmentation. A comprehensive experimental study was conducted to characterize the UHPC. The investigation consisted of fracture toughness testing, the utilization of nondestructive microcomputed tomography analysis, and projectile penetration shots on the UHPC targets. To improve the accuracy of the model, a new scaled damage evolution law (SDEL) is employed within the microcrack informed damage model. During the homogenized macroscopic calculation, the corresponding microscopic cell needs to be dimensionally equivalent to the mesh dimension when the partial differential equation becomes ill posed and strain softening ensues. Results of numerical investigations will be compared with results of penetration experiments.
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McElwain, Terry F., Eugene Pipano, Guy H. Palmer, Varda Shkap, Stephn A. Hines, and Wendy C. Brown. Protection of Cattle against Babesiosis: Immunization against Babesia bovis with an Optimized RAP-1/Apical Complex Construct. United States Department of Agriculture, September 1999. http://dx.doi.org/10.32747/1999.7573063.bard.

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Previous research and current efforts at control of babesiosis fall short of meeting the needs of countries where the disease is endemic, such as Israel, as well as the needs of exporting countries and countries bordering on endemic areas, such as the U.S. Our long-term goal is to develop improved methods of immunization against bovine babesiosis based on an understanding of the molecular mechanisms of immune protection and parasite targets of a protective immune response. In our previous BARD project, we established the basis for focusing on rhoptry antigens as components of a subunit vaccine against bovine babesiosis, and for additional research to better characterize rhoptry associated protein-1 (RAP-1) as a target of protective immunity. In this continuation BARD project, our objectives were to [1] optimize the immune response against RAP-1, and [2] identify additional rhoptry candidate vaccine antigens. The entire locus encoding B. bovis RAP-1 was sequenced, and the rap-1 open reading frame compared among several strains. Unlike B. bigemina, in which multiple gene copies with variant domains encode RAP-1, the B. bovis RAP-1 locus contains only two identical genes which are conserved among strains. Through testing of multiple truncated constructs of rRAP-1, one or more immunodominant T cell epitopes were mapped to the amino terminal half of RAP-1. At least one linear and one conformational B cell epitope have been demonstrated in the same amino terminal construct, which in B. bigemina RAP-1 also contains an epitope recognized by neutralizing antibody. The amine terminal half of the molecule represents the most highly conserved part of the gene family and contains motifs conserved broadly among the apicomplexa. In contrast, the carboxy terminal half of B. bovis RAP-1 is less well conserved and contains multiple repeats encoding a linear B cell epitope potentially capable of inducing an ineffective, T cell independent, type 2 immune response. Therefore, we are testing an amino terminal fragment of RAP-1 (RAP-1N) in an immunization trial in cattle. Cattle have beer immunized with RAP-1N or control antigen, and IL-12 with Ribi adjuvant. Evaluation of the immune response is ongoing, and challenge with virulent B. bovis will occur in the near future. While no new rhoptry antigens were identified, our studies did identify and characterize a new spherical body antigen (SBP3), and several heat shock proteins (HSP's). The SBP3 and HSP21 antigens stimulate T cells from immune cattle and are considered new vaccine candidates worthy of further testing. Overall, we conclude that a single RAP-1 vaccine construct representing the conserved amino terminal region of the molecule should be sufficient for immunization against all strains of B. bovis. While results of the ongoing immunization trial will direct our next research steps, results at this time are consistent with our long term goal of designing a subunit vaccine which contains only the epitopes relevant to induction of protective immunity. Parallel studies are defining the mechanisms of protective immunity. Apicomplexan protozoa, including babesiosis and malaria, cause persistent diseases for which control is inadequate. The apical organelles are defining features of these complex protozoa, and have been conserved through the evolutionary process, Past and current BARD projects on babesiosis have established the validity and potential of exploiting these conserved organelles in developing improved control methods applicable to all apicomplexan diseases.
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Funkenstein, Bruria, and Shaojun (Jim) Du. Interactions Between the GH-IGF axis and Myostatin in Regulating Muscle Growth in Sparus aurata. United States Department of Agriculture, March 2009. http://dx.doi.org/10.32747/2009.7696530.bard.

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Growth rate of cultured fish from hatching to commercial size is a major factor in the success of aquaculture. The normal stimulus for muscle growth in growing fish is not well understood and understanding the regulation of muscle growth in fish is of particular importance for aquaculture. Fish meat constitutes mostly of skeletal muscles and provides high value proteins in most people's diet. Unlike mammals, fish continue to grow throughout their lives, although the size fish attain, as adults, is species specific. Evidence indicates that muscle growth is regulated positively and negatively by a variety of growth and transcription factors that control both muscle cell proliferation and differentiation. In particular, growth hormone (GH), fibroblast growth factors (FGFs), insulin-like growth factors (IGFs) and transforming growth factor-13 (TGF-13) play critical roles in myogenesis during animal growth. An important advance in our understanding of muscle growth was provided by the recent discovery of the crucial functions of myostatin (MSTN) in controlling muscle growth. MSTN is a member of the TGF-13 superfamily and functions as a negative regulator of skeletal muscle growth in mammals. Studies in mammals also provided evidence for possible interactions between GH, IGFs, MSTN and the musclespecific transcription factor My oD with regards to muscle development and growth. The goal of our project was to try to clarify the role of MSTNs in Sparus aurata muscle growth and in particular determine the possible interaction between the GH-IGFaxis and MSTN in regulating muscle growth in fish. The steps to achieve this goal included: i) Determining possible relationship between changes in the expression of growth-related genes, MSTN and MyoD in muscle from slow and fast growing sea bream progeny of full-sib families and that of growth rate; ii) Testing the possible effect of over-expressing GH, IGF-I and IGF-Il on the expression of MSTN and MyoD in skeletal muscle both in vivo and in vitro; iii) Studying the regulation of the two S. aurata MSTN promoters and investigating the possible role of MyoD in this regulation. The major findings of our research can be summarized as follows: 1) Two MSTN promoters (saMSTN-1 and saMSTN-2) were isolated and characterized from S. aurata and were found to direct reporter gene activity in A204 cells. Studies were initiated to decipher the regulation of fish MSTN expression in vitro using the cloned promoters; 2) The gene coding for saMSTN-2 was cloned. Both the promoter and the first intron were found to be polymorphic. The first intron zygosity appears to be associated with growth rate; 3) Full length cDNA coding for S. aurata growth differentiation factor-l I (GDF-II), a closely related growth factor to MSTN, was cloned from S. aurata brain, and the mature peptide (C-terminal) was found to be highly conserved throughout evolution. GDF-II transcript was detected by RT -PCR analysis throughout development in S. aurata embryos and larvae, suggesting that this mRNA is the product of the embryonic genome. Transcripts for GDF-Il were detected by RT-PCR in brain, eye and spleen with highest level found in brain; 4) A novel member of the TGF-Bsuperfamily was partially cloned from S. aurata. It is highly homologous to an unidentified protein (TGF-B-like) from Tetraodon nigroviridisand is expressed in various tissues, including muscle; 5) Recombinant S. aurata GH was produced in bacteria, refolded and purified and was used in in vitro and in vivo experiments. Generally, the results of gene expression in response to GH administration in vivo depended on the nutritional state (starvation or feeding) and the time at which the fish were sacrificed after GH administration. In vitro, recombinantsaGH activated signal transduction in two fish cell lines: RTHI49 and SAFI; 6) A fibroblastic-like cell line from S. aurata (SAF-I) was characterized for its gene expression and was found to be a suitable experimental system for studies on GH-IGF and MSTN interactions; 7) The gene of the muscle-specific transcription factor Myogenin was cloned from S. aurata, its expression and promoter activity were characterized; 8) Three genes important to myofibrillogenesis were cloned from zebrafish: SmyDl, Hsp90al and skNAC. Our data suggests the existence of an interaction between the GH-IGFaxis and MSTN. This project yielded a great number of experimental tools, both DNA constructs and in vitro systems that will enable further studies on the regulation of MSTN expression and on the interactions between members of the GHIGFaxis and MSTN in regulating muscle growth in S. aurata.
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Terminally ill patients and their families may need more help to manage their medicines. National Institute for Health Research, September 2020. http://dx.doi.org/10.3310/alert_41179.

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