Journal articles on the topic 'Survivor-Informed'
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1
Wood, Leila, Dessie Clark, Laurie Cook Heffron, and Rachel Voth Schrag. "Voluntary, Survivor-Centered Advocacy in Domestic Violence Agencies." Advances in Social Work 20, no. 1 (July 30, 2020): 1–21. http://dx.doi.org/10.18060/23845.
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Voluntary, survivor-centered advocacy is a model of practice used in domestic violence organizations; however, more information is needed from the perspective of survivors on how to best facilitate survivor-centered approaches in a voluntary service format. This qualitative study used a thematic analysis to uncover core advocacy approaches from 25 female-identified survivors dwelling in domestic violence emergency shelter and transitional housing programs in two states. Themes revealed that three core approaches aid a voluntary, survivor-centered advocacy model: 1) Establishing a safe base for support, 2) Facilitating access and connection, and 3) Collaboration. Advocacy approaches that emphasize safety, mutuality, and availability of support best engage survivors in voluntary services to address needs and meet goals. Use of a strengths-based approach, psychoeducation, and resource-building contributes to the social and emotional well-being of survivors. Findings indicate community DV advocates should use adaptable advocacy models aimed at service access, connection, and collaborative resource acquisition. Voluntary, survivor-centered models use principals of trauma-informed care, though more widespread use of trauma-informed care (TIC) in voluntary services are needed. Advocates need organizational support to meet survivor needs. Implications for research include the need for fidelity studies and longitudinal research.
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Hoffman, Barbara, and Ellen Stovall. "Survivorship Perspectives and Advocacy." Journal of Clinical Oncology 24, no. 32 (November 10, 2006): 5154–59. http://dx.doi.org/10.1200/jco.2006.06.5300.
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From the moment of diagnosis, a cancer survivor faces serious life-altering decisions. Survivors who are informed about their options and who feel they have personal control over decision making generally perceive a higher quality of life than those who feel less informed and less in control. Health care providers are in a unique position to define a survivor's cancer care and to guide a survivor through treatment and post-treatment care. By implementing survivorship care plans and directing their patients to survivorship resources, health care providers can advocate for survivors and teach them to be effective self-advocates.
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Brown, Stephanie. "Sexual Assault Survivors and Information: Needs and Recommendations." Pathfinder: A Canadian Journal for Information Science Students and Early Career Professionals 3, no. 1 (May 9, 2022): 1–13. http://dx.doi.org/10.29173/pathfinder54.
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This paper examines the information needs of sexual assault survivors, with a focus on the kinds of information these individuals may be seeking and how libraries can best assist survivors with their information needs. The paper begins with an overview of sexual assault as a pervasive problem in society in order to form a basis of understanding of what a sexual assault survivor may be going through and the kinds of barriers that may affect their information seeking. The information needs of sexual assault survivors are complex because of their experiences of violence and trauma, and these factors often result in mental and physical health challenges, and potentially distressing information seeking experiences. In order to best serve sexual assault survivors in libraries, I recommend a trauma-informed approach to librarianship, which underscores the importance of safety, empathy, and empowerment for the survivor. A trauma-informed approach to librarianship can assist sexual assault survivors in remedying potential distress through forming trust, validating their experiences and identity, valuing their voice, and ultimately, supporting their healing.
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Stephens, Darryl W. "Bearing Witness as Social Action: Religious Ethics and Trauma-Informed Response." Trauma Care 1, no. 1 (June 18, 2021): 49–63. http://dx.doi.org/10.3390/traumacare1010005.
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Written from a standpoint of religious ethics, this article interprets the work of trauma response and recovery in transcendent and moral terms not always apparent to the practitioner or institution. This article provides a broad understanding of spirituality, transcendence, and faith as these concepts relate to Judith Herman’s stages of trauma healing and the characteristics of trauma-informed response articulated by the Substance Abuse and Mental Health Services Administration. These features are then mapped onto specific modes of transcendence and moral themes identifiable in a wide range of religious traditions. The connective framework for this mapping is provided by utilizing the concept “bearing witness,” as synthesized from a wide range of disciplinary perspectives, to describe the work of trauma-informed response. This article concludes by recognizing bearing witness as a form of social action, a moral response with implied if not explicit religious dimensions and spiritual implications, for which an understanding of religious ethics is a helpful ally. Thus, this article concludes that religious ethics can be a valuable resource and partner in addressing the personal, systemic, and political aspects of trauma response and recovery, enabling attention to spiritual well-being of both the trauma survivor and the one responding to the survivor.
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Ashing, Kimlin Tan, Kommah McDowell, Shirley Brown, Mayra Serrano, Lily L. Lai, and Aria Miller. "Evaluating a clinically and culturally informed survivorship care plan trial for African American breast cancer survivors (AABCS)." Journal of Clinical Oncology 34, no. 3_suppl (January 20, 2016): 71. http://dx.doi.org/10.1200/jco.2016.34.3_suppl.71.
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71 Background: This randomized control study was designed to evaluate the impact of trial participation on access to survivorship care planning (SCP) and adherence to surveillance recommendations among AABCS. Methods: AABCS were recruited from the State Cancer Registry and support groups. This trial consisted of 1:1 randomization into two conditions: 1) peer navigation + clinically- and culturally-informed breast cancer (BC) materials, and 2) clinically- and culturally-informed BC materials, only. AABCS (N= 29) from advocacy groups were trained as peer navigators, with on-going supervision and monitoring by the research team. The ASCO-SCP template was modified based on input from survivor-advocates to increase clinical, cultural and socio-ecological relevance. The study was implemented using community based-participatory approach. Mailed, self-report assessments were taken at baseline and at 6- and 12-month follow-up. Results: In total, 112 AABCS who were 6-18 months post initial primary treatment for stage 0-3 BC participated in the study. There was a 74% participation rate and a 64% completion rate. At 6- and 12-month follow-up, 65% and 73% reported access to a SCP, respectively. Improvements from baseline in adherence to SCP surveillance recommendations were observed at 6- and 12- month follow-up assessments regarding physical exam (45.6%, 71.2%, 71.0%, respectively), pelvic exam (39.7%, 45.2%, 46.5%, respectively), breast self-exam (45.0%, 79.0%, 81.2%, respectively), and breast imaging (31.1%, 75.6%, 81.1%, respectively) (p< 0.05). There we no significant demographic, medical or study outcome differences by study condition. Conclusions: Our study findings demonstrate the effectiveness of trial participation in facilitating access to SCP and improved adherence to recommended surveillance. Participation of survivor-advocates in developing culturally-informed BC informational and survivorship care strategies can enhance acceptability and sustainability, especially in community and primary care settings. Untapped opportunities exist for survivor-advocate engagement in survivorship research and practice to address inequities. Clinical trial information: NCT01824745.
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Koutra, Kleio, Courtney Burns, Laura Sinko, Sachiko Kita, Hülya Bilgin, and Denise Saint Arnault. "Trauma Recovery Rubric: A Mixed-Method Analysis of Trauma Recovery Pathways in Four Countries." International Journal of Environmental Research and Public Health 19, no. 16 (August 19, 2022): 10310. http://dx.doi.org/10.3390/ijerph191610310.
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Research is beginning to examine gender-based violence (GBV) survivors’ recovery, but little is known about diverse recovery trajectories or their relationships with other distress and recovery variables. This interdisciplinary, international multisite mixed-method study developed and used the TRR to identify and classify survivors’ trauma pathways. This study describes the phases of the initial development of the preliminary TRR (Phase 1), refines and calibrates the TRR (Phase 2), and then integrates the TRR into quantitative data from four countries (Phase 3). Seven recovery pathways with six domains emerged: normalizing, minimizing, consumed/trapped; shutdown or frozen, surviving, seeking and fighting for integration; finding integration/equanimity. Depression scores were related to most recovery domains, and TRR scores had large effect sizes. At the same time, PTSD was not statistically related to TRR scores, but TRR had a medium effect size. Our study found that the TRR can be implemented in diverse cultural settings and promises a reliable cross-cultural tool. The TRR is a survivor-centered, trauma-informed way to understand different survivorship pathways and how different pathways impact health outcomes. Overall, this rubric provides a foundation for future study on differences in survivor healing and the drivers of these differences. This tool can potentially improve survivor care delivery and our understanding of how to meet best the needs of the survivor populations we intend to serve.
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Barlow, Charlotte, Sandra Walklate, and Kelly Johnson. "Risk Refraction: Thoughts on the Victim-Survivor’s Risk Journey through the Criminal Justice Process." International Journal for Crime, Justice and Social Democracy 10, no. 3 (September 1, 2021): 177–90. http://dx.doi.org/10.5204/ijcjsd.1805.
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The limits of inter-agency understandings of risk in the context of intimate partner violence are well documented. Informed by Hester’s (2011) ‘three planet’ analogy and using empirical data in one police force area in the south of England, this paper offers an exploration of intra-agency operations, focusing on police risk assessment practices. Exploring the policing risk lens and the victim-survivor journey together, findings highlight police operate with at least three risk assessment moments (call hander, front-line and Safeguarding Hub) and point to the tensions that result when failing to centralise victim-survivors’ own assessment of their risk. Using complexity theory, this paper examines the complex interplay of risk that occurs when the victim-survivor risk journey intersects with the policing aspect of the criminal justice process.
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DIEBOLD, JEFFREY, and SUSAN CAMILLERI. "An experimental analysis of modifications to the survivor benefit information within the Social Security statement." Journal of Pension Economics and Finance 19, no. 1 (March 9, 2018): 21–48. http://dx.doi.org/10.1017/s1474747218000082.
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AbstractThe Social Security Statement is the primary resource most workers prefer to use to learn about their Social Security benefits. The Social Security Administration periodically mails this and supporting documents to all workers to help them make informed decisions about when to start receiving their benefits. Understandably, the Statement provides detailed information about the worker's retirement benefit. However, these documents contain remarkably little information about the survivor benefit despite the financial importance of this particular auxiliary benefit to the widows of deceased workers in widowhood. We analyze the effect of modifications to the survivor benefit information in the Statement on benefit knowledge and expected claiming behavior of married men using an experimental survey of workers. The results provide evidence that the augmentation of this information can temporarily improve benefit knowledge and influence expected claim ages.
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Perl, Gerhild. "Migration as Survival." Migration and Society 2, no. 1 (June 1, 2019): 12–25. http://dx.doi.org/10.3167/arms.2019.020103.
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How to write about survival? How to tell survival? By exploring manifold reasons to withhold a story, I shed light on the limits of ethnographic knowledge production and the politics of storytelling that mobilize one story and silence another. Through engaging with the fragmented narrative of a Moroccan survivor of a shipwreck in Spanish waters in 2003, I reconceptualize the movement called “migration as survival” by theorizing it as an ethnographic concept. I explore the different temporalities of survival as living through a life-threatening event and as living on in an unjust world. These interrelated temporalities of survival are embedded in the afterlife of the historical time of al-Andalus and the resurgent fear of the Muslim “Other.” By suggesting an existentially informed political understanding of the survival story, I show how the singularity of the survivor is inscribed in a regime of mobility that constrains people and their stories.
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Hudson, Melissa M., Daniel A. Mulrooney, Daniel C. Bowers, Charles A. Sklar, Daniel M. Green, Sarah S. Donaldson, Kevin C. Oeffinger, Joseph P. Neglia, Anna T. Meadows, and Leslie L. Robison. "High-Risk Populations Identified in Childhood Cancer Survivor Study Investigations: Implications for Risk-Based Surveillance." Journal of Clinical Oncology 27, no. 14 (May 10, 2009): 2405–14. http://dx.doi.org/10.1200/jco.2008.21.1516.
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Childhood cancer survivors often experience complications related to cancer and its treatment that may adversely affect quality of life and increase the risk of premature death. The purpose of this manuscript is to review how data derived from Childhood Cancer Survivor Study (CCSS) investigations have facilitated identification of childhood cancer survivor populations at high risk for specific organ toxicity and secondary carcinogenesis and how this has informed clinical screening practices. Articles previously published that used the resource of the CCSS to identify risk factors for specific organ toxicity and subsequent cancers were reviewed and results summarized. CCSS investigations have characterized specific groups to be at highest risk of morbidity related to endocrine and reproductive dysfunction, pulmonary toxicity, cerebrovascular injury, neurologic and neurosensory sequelae, and subsequent neoplasms. Factors influencing risk for specific outcomes related to the individual survivor (eg, sex, race/ethnicity, age at diagnosis, attained age), sociodemographic status (eg, education, household income, health insurance) and cancer history (eg, diagnosis, treatment, time from diagnosis) have been consistently identified. These CCSS investigations that clarify risk for treatment complications related to specific treatment modalities, cumulative dose exposures, and sociodemographic factors identify profiles of survivors at high risk for cancer-related morbidity who deserve heightened surveillance to optimize outcomes after treatment for childhood cancer.
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Essue, Beverley M., Claire de Oliveira, Tracey Bushnik, Sharon Fung, Jeremiah Hwee, Zhuolu Sun, Elba Gomez Navas, Jean Hai Ein Yong, and Rochelle Garner. "The Burden of Health-Related Out-of-Pocket Cancer Costs in Canada: A Case-Control Study Using Linked Data." Current Oncology 29, no. 7 (June 27, 2022): 4541–57. http://dx.doi.org/10.3390/curroncol29070359.
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Background: The burden of out-of-pocket costs among cancer patients/survivors in Canada is not well understood. The objective of this study was to examine the health-related out-of-pocket cost burden experienced by households with a cancer patient/survivor compared to those without, examine the components of health-related costs and determine who experiences a greater burden. Data and methods: This study used a data linkage between the Survey of Household Spending and the Canadian Cancer Registry to identify households with a cancer patient/survivor (cases) and those without (controls). The out-of-pocket burden (out-of-pocket costs measured relative to household income) and mean costs were described and regression analyses examined the characteristics associated with the household out-of-pocket burden and annual out-of-pocket costs. Results: The health-related out-of-pocket cost burden and annual costs measured in households with a cancer patient/survivor were 3.08% (95% CI: 2.55–3.62%) and CAD 1600 (95% CI: 1456–1759), respectively, compared to a burden of 2.84% (95% CI: 2.31–3.38) and annual costs of CAD 1511 (95% CI: 1377–1659) measured in control households, respectively. Households with a colorectal cancer patient/survivor had a significantly higher out-of-pocket burden compared to controls (mean difference: 1.0%, 95% CI: 0.18, 0.46). Among both cases and controls, the lowest income quintile households experienced the highest health-related out-of-pocket cost burden. Interpretation: Within a universal health care system, it is still relevant to monitor health-related out-of-pocket spending that is not covered by existing insurance mechanisms; however, this is not routinely assessed in Canada. We demonstrate the feasibility of measuring such costs in households with a cancer patient/survivor using routinely collected data. While the burden and annual health-related out-of-pocket costs of households with a cancer patient/survivor were not significantly higher than control households in this study, the routine measurement of out-of-pocket costs in Canada could be systemized, providing a novel, system-level, equity-informed performance indicator, which is relevant for monitoring inequities in the burden of out-of-pocket costs.
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Quillen, Joanne, Yimei Li, Michele Demski, Claire Carlson, Holli Bradley, Lisa Schwartz, Jill P. Ginsberg, and Wendy Hobbie. "Comparing the Knowledge of Parents and Survivors Who Attend a Survivorship Clinic." Journal of Pediatric Oncology Nursing 35, no. 1 (November 2, 2017): 56–64. http://dx.doi.org/10.1177/1043454217735828.
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Background: This study underscores the importance of the survivor/parent dynamic in understanding the knowledge level of childhood cancer survivors and their parents with regard to cancer diagnosis, treatments, and potential late effects, and to assess the impact of parental knowledge on survivor’s knowledge. Procedure: A convenience sample (N = 219 dyads) consisting of childhood cancer survivors with a parent match was used. Survivors 2 years out from completion of therapy, aged 16 to 25 years, and fluent in English or Spanish completed 2 questionnaires to assess adolescent and young adult and parental knowledge regarding diagnosis, treatment, and long-term risks. Results: Data from the survivor/parent dyad confirm that parents are more knowledgeable than their child regarding treatment specifics. However, survivors are more accurate when assessing second tumor and fertility risk. More knowledgeable parents led to more knowledgeable survivors. Conclusions: Although parents were well-informed about treatment specifics, they were not as accurate in identifying risks appropriately. Therefore, education must be directed at both parent and survivors to maximize knowledge.
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Mountjoy, Margo, Tine Vertommen, Rachael Denhollander, Sheldon Kennedy, and Renald Majoor. "Effective engagement of survivors of harassment and abuse in sport in athlete safeguarding initiatives: a review and a conceptual framework." British Journal of Sports Medicine 56, no. 4 (February 2022): 232–38. http://dx.doi.org/10.1136/bjsports-2021-104625.
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Sport, as a microcosm of society, is not immune to the abuse of its stakeholders. Attention to abuse in sport has recently become a priority for sport organisations following several high-profile cases of athlete abuse from different sports around the world. Resulting from this increased awareness, many sport organisations have commenced work in the field of athlete safeguarding including the development of policy, educational programmes, reporting pathways, investigation mechanisms and research initiatives. One mechanism adopted by many sport organisations to support their safeguarding efforts is the engagement of survivors of abuse in sport: typically, as guest speakers at conferences or educational events. Unfortunately, many sport organisations do not have the knowledge or trauma-informed expertise to engage survivors safely and effectively; and in doing so, may unintentionally retraumatise the survivor if erroneous methods of engagement are employed. For some survivors, this experience may compound the original harms, and thus it also represents an area of vulnerability for the organising entity. The purpose of this paper is to explore the rationale for partnering with survivors of abuse in sport in safeguarding initiatives and to propose a living conceptual framework to support effective and safe survivor engagement in safeguarding initiatives. We will explore the underpinning scientific background, as well as the ‘why’, and ‘how’ of survivor engagement to inform sport organisations, research scientists, policy-makers, conference organisers, safeguarding officers, sport medicine clinicians and survivors themselves.
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Kristensson, Linda, and Ann Björkdahl. "Experience of Information Provision at the Stroke Unit From the Perspective of Relatives to Stroke Survivors." Rehabilitation Process and Outcome 9 (January 2020): 117957272094708. http://dx.doi.org/10.1177/1179572720947086.
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Introduction: Stroke not only affects the stroke survivor, it also significantly affects their families. Given the important supportive role that relatives of stroke survivor have, they should receive information that helps them plan and cope with the new situation. The objective of the study was to explore how relatives to stroke survivors perceived the information provided by the stroke unit. Methods: This qualitative study was based on extensive semi-structured interviews with an inductive approach. A heterogeneous convenience sample of relatives to stroke survivor (n=14) was selected. Qualitative content analysis served to analyze the transcribed interview texts. Results: The content analysis yielded four categories, each with 2–3 subcategories. The overall theme was “to be acknowledged or not”: it encompassed the underlying meaning and the relationships between the categories. The four categories were as follows: shifting information needs; striving for information; lacking of continuity and structure; and taking part and being acknowledged. Conclusions: The study highlighted that the relatives of stroke survivors have a strong need for information and showed that the relatives experienced that they did not always feel satisfactorily informed and supported by the healthcare professionals in the stroke unit. A challenge for the healthcare professionals was to be able to give the right information at the right time and in the appropriate way. The study also showed that when the relatives were acknowledged and invited to participate in the rehabilitation process, they were less anxious of the discharge.
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Rabin, Carmel, Karen Edell Yoskowitz, and Barbara Bedney. "Evaluation Findings of a Community-Based Intervention for Older Adults With a History of Trauma." Innovation in Aging 4, Supplement_1 (December 1, 2020): 34. http://dx.doi.org/10.1093/geroni/igaa057.111.
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Abstract Between 70% and 90% of Americans aged 65 and older have experienced at least one traumatic event such as a sexual or physical assault, disaster, illness, or terrorism. Trauma exposure in older adult populations is linked to physical, mental, and cognitive decline. A new approach to improve outcomes of trauma-affected older adults is Person-Centered, Trauma-Informed (PCTI) Care, which promotes the dignity, strength, and empowerment of trauma-affected individuals by incorporating knowledge about trauma into agency programs, policies, and procedures. The Administration for Community Living/Administration on Aging has awarded The Jewish Federations of North America (JFNA) a grant to develop innovative PCTI interventions for Holocaust survivors. This includes a community-based intervention whereby local leadership councils are developed to identify Holocaust survivor needs, distribute grant funding, train caregivers in PCTI care, and forge partnerships to advance community-led Holocaust survivor care. This program has been implemented in eight major US cities where 168 community leaders dispersed 25 grants serving approximately 500 Holocaust survivors. JFNA conducted an evaluation of the first six of the eight cities to determine the impact of this community-based model on participants and Holocaust survivors and investigate the process by which a community-based model can be replicated. This evaluation used surveys and semi-structured interviews to collect data on variables including understanding of PCTI care, awareness of Holocaust survivor needs, strength of community partnerships, and leadership council sustainability. This session will review evaluation findings including best practices for community-based models of PCTI care, and applicability of findings to other older populations.
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Dorgan, Kelly A., Kathryn L. Duvall, Sadie P. Hutson, and Amber E. Kinser. "Mothered, Mothering, and Motherizing in Illness Narratives: What Women Cancer Survivors in Southern Central Appalachia Reveal About Mothering-Disruption." Journal of Appalachian Studies 19, no. 1-2 (April 1, 2013): 59–81. http://dx.doi.org/10.2307/42635927.
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Abstract Informed by a mothering-disruption framework, our study examines the illness narratives of women cancer survivors living in Southern Central Appalachia. We collected the stories of twenty-nine women cancer survivors from northeast Tennessee and southwest Virginia using a multi-phasic qualitative design. Phase I consisted of women cancer survivors participating in a day-long story circle (n=26). Phase II consisted of women cancer survivors who were unable to attend the story circle; this sample sub-set participated in in-depth interviews (n=3) designed to capture their illness narratives. Participants’ illness narratives revealed the presence of: (1) mothering-disruption whereby cancer adversely impacted the mothering role; and (2) mothering-connection, whereby the cancer experience motivated mother-survivors. Participants’ illness narratives reflected that the role of mother was the preeminent role for mother-survivors and whenever there was oppositional tension between the roles of mother and survivor, the women-survivors seemed to linguistically relocate away from the survivor role and toward the mothering role. As a result, women-survivors seemingly rejected medicalization of their identities by emphasizing their mothering responsibilities, something we term motherizing.
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Bedera, Nicole. "Beyond Trigger Warnings: A Survivor-Centered Approach to Teaching on Sexual Violence and Avoiding Institutional Betrayal." Teaching Sociology 49, no. 3 (June 4, 2021): 267–77. http://dx.doi.org/10.1177/0092055x211022471.
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As sociology instructors increasingly include materials on sexual violence in their courses, both instructors and students express anxieties over how best to handle such sensitive conversations. This article critically examines the conventional advice to offer a trigger warning, which can interfere with student education (e.g., requiring survivors to miss out on a lesson) and does not adequately prepare instructors for the difficulties that may arise during discussions of sexual violence (e.g., managing victim-blaming comments). Using institutional betrayal as an alternative frame, this article builds a trauma-informed and survivor-centered pedagogy that offers specific examples and strategies of how to teach to survivors instead of around them.
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Kulkarni, Shanti. "Intersectional Trauma-Informed Intimate Partner Violence (IPV) Services: Narrowing the Gap between IPV Service Delivery and Survivor Needs." Journal of Family Violence 34, no. 1 (September 17, 2018): 55–64. http://dx.doi.org/10.1007/s10896-018-0001-5.
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Morgan-Consoli, Melissa L., Brian J. Stevenson, Erika Noriega Pigg, Wendy Eichler Morrison, Kelley Hershman, and Carlos Roman. "A Social-‐Justice Informed Evaluation of a Mentorship-Based Program Pairing At-Risk Youth and Holocaust Survivors." Journal for Social Action in Counseling & Psychology 8, no. 2 (December 1, 2016): 49–69. http://dx.doi.org/10.33043/jsacp.8.2.49-69.
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This paper describes a social justice informed, formative evaluation of a community-based intervention program in our community that paired marginalized Latinx youth and Holocaust survivor mentors. This program is a unique effort to address the issues facing this youth population through difficult dialogues and mentorship from a group who has clearly suffered oppression. Using a qualitative, community-based approach, eight program participants were interviewed to explore the aspects of the program that were helpful or challenging among youth mentees and survivor mentors. We reflect on the success of mentorship interventions in promoting bridges of understanding between populations with different combinations of power and privilege. Emergent themes from the evaluation suggest that this community-based mentorship program led to several positive outcomes, including increased openness to diversity, increased empathy, and increased potential meaning-making for mentor survivors, as well as some challenges such as clearer program expectations and program planning issues. Using a lens of Positive Youth Development and social justice, we detail the lessons learned from this mentoring program for future counselors and psychologists interested in program development and evaluation. We also provide reflections on the formative program evaluation process for future community-based researchers and the personal impact of the experience on the students in training. Finally, we reflect on impact validity and the systems level transformative change that can be promoted through community-based programs such as this one.
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Raveis, Victoria, and Simona Kwon. "Challenges and Perspectives on Breast Cancer Survivorship: The Journey Continues." Innovation in Aging 4, Supplement_1 (December 1, 2020): 96. http://dx.doi.org/10.1093/geroni/igaa057.317.
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Abstract Women have a 1-in-8 lifetime risk of breast cancer. Earlier diagnosis and treatment advances have improved 15- and 20-year survival rates. Increased survival can mean coping with the effects of cancer and its treatment over an extended period of time, while experiencing age-related changes in functioning and the emergence of other health issues. To explore breast cancer survivors’ perspectives on their issues and concerns across the life-course, focus groups were conducted with a culturally diverse sample (N=18) of survivors (72% white, 28% Black, 11% Hispanic). Participants were 44-82 years old. Most, 83% were 50 and older, 56% were 60 and older. The majority (83%) were diagnosed in their 40’s and 50’s. Two were diagnosed in their early 30’s and one at age 68. Participants reaffirmed the necessity, as a breast cancer survivor, of being a life-long health advocate on their own behalf, and the importance of being self-informed. As one woman commented: “Knowledge is power”. Survivors shared that their emergent health issues were complicated by their cancer history, and, that, as a cancer survivor, “I never stop worrying”. A widespread concern was not knowing if the health issues and co-morbidities they experienced (such as joint pain, neuropathy, tendinitis, heart disease), were age-related, a consequence of their cancer, or a late treatment effect. An overriding sentiment expressed was that clinicians have not recognized the importance of quality of life in cancer survival. As a survivor succinctly stated: “We are living longer, but we need to live long with quality of life.”
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Shannon, Erin R. "Safeguarding and Agency: Methodological Tensions in Conducting Research with Survivors of Sexual Violence in Universities." Social Sciences 11, no. 8 (August 7, 2022): 350. http://dx.doi.org/10.3390/socsci11080350.
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This paper examines the tension between safeguarding measures and participant agency in conducting feminist interviews with survivors of sexual violence in universities. There is a core contradiction inherent in feminist research of gender-related violence, including sexual violence, because participants have been traumatized: Research with survivors of violence must enact appropriate safeguarding measures to ensure their emotional wellbeing, yet in designing these safeguarding measures, researchers must also ensure that survivor participants can exert agency within the research process. These phenomena are often at odds as safeguarding—the work of protecting participants through limiting their exposure to upsetting stimuli—appears to circumscribe participant agency, or a participant’s ability to make informed choices for themselves that respond to and change the structures in which they are situated. Using part of my doctoral thesis research’s methodology, I detail the safeguarding measures I implemented for participants as well as highlight how and where I attempted to build in agential engagement for survivor participants, and whether, or how often, survivors took up these options. The article concludes by suggesting ways gender-related violence research more broadly can reflect on and continue to interrogate how researchers balance safeguarding requirements while enabling survivors to assert their agency in the research process.
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Sharoni, Simona, and Brian Klocke. "Faculty Confronting Gender-Based Violence on Campus: Opportunities and Challenges." Violence Against Women 25, no. 11 (August 4, 2019): 1352–69. http://dx.doi.org/10.1177/1077801219844597.
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Faculty have played an important role in the ongoing efforts to confront gender-based violence on college campuses, as teachers, researchers, advocates, and policy advisors. Nevertheless, few institutions have welcomed faculty activism on this issue, especially when it took the form of vocal support for survivor-led efforts to transform campus policies and culture. This article examines the nature and scope of faculty involvement in confronting gender-based violence on college campuses across North America between 2014 and 2018. Our analysis of the range of roles and responsibilities faculty have assumed and the challenges and obstacles they have faced is informed by our own involvement with the U.S.-based group, Faculty Against Rape (FAR), which is dedicated to supporting faculty involvement in confronting gender-based violence on campus. Informed by the context of the #MeToo and #TimesUp movements on one hand, and the changes in Federal and State protections for student survivors in the Trump–DeVos era on the other, the article concludes with a list of best practices for faculty involvement.
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Ullman, Sarah E., Erin O’Callaghan, and Katherine Lorenz. "Women’s Experiences of Impairment and Incapacitation During Alcohol/Drug-Related Sexual Assaults: Toward a Survivor-Informed Approach to Measurement." Archives of Sexual Behavior 48, no. 7 (July 20, 2019): 2105–16. http://dx.doi.org/10.1007/s10508-019-1441-6.
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Chambers, Ronald. "Caring for human trafficking victims: A description and rationale for the Medical Safe Haven model in family medicine residency clinics." International Journal of Psychiatry in Medicine 54, no. 4-5 (July 4, 2019): 344–51. http://dx.doi.org/10.1177/0091217419860358.
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Human trafficking is a growing public health issue. As we understand more about the prevalence of persons experiencing trafficking accessing clinical services and their unique healthcare needs, we recognize the need for programs dedicated to creating a safe environment to ensure victims and survivors have equitable, sustainable access to the physical, mental, and psychosocial care they require. Healthcare providers are often a first line of care for persons experiencing trafficking and represent a significant opportunity to positively impact outcomes in terms of health, overall quality of life, and reintegration into society. Here we discuss how persons experiencing trafficking present in the clinic, including survivors’ reported experiences with healthcare providers, how to identify victims, and why it is important to do so appropriately in a trauma-informed manner. We then describe key characteristics of a “Medical Safe Haven” clinic, an umbrella term used to describe clinics providing longitudinal care for patients who have been trafficked using validated victim-centered trauma-informed care techniques and incorporating survivor-informed practices. Medical Safe Haven clinics coordinate care with local community agencies, provide training for healthcare providers, and ensure longitudinal, comprehensive care by mitigating barriers to access, reducing risk of re-traumatization, and preventing failure of victim rehabilitation. We conclude with recommendations for next steps in evaluation and dissemination of this model of care.
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Alyce, Susanna, Danny Taggart, Indiana Montaque, and Jackie Turton. "Avoiding psychological (re)traumatisation in dentistry when working with patients who are adult survivors of child sex abuse." British Dental Journal 233, no. 8 (October 28, 2022): 666–70. http://dx.doi.org/10.1038/s41415-022-5103-z.
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AbstractIntroduction Seven percent of the adult population in the UK, including one in six women, report unwanted sexual experiences before the age of 16. The impacts of psychological trauma following child sexual abuse (CSA) creates difficulties for many survivors in accessing dental care due to fears of reminders of abuse, the power imbalance with the dentist and triggered traumatic responses.Aims To analyse and report CSA survivor perspectives of dental care and offer suggestions for practice.Method Qualitative semi-structured interviews of 17 CSA survivors generated data as part of a broader study investigating trust and trustworthiness in survivor-professional relationships. The range of dental interactions and the needs survivors described when receiving dental treatment are presented. Transcripts were analysed using NVivo software and thematic analysis methodology.Results Three main themes were identified: the dental encounter ('it really panics me'); the opportunity to disclose; and choice and control.Conclusion This is the first UK study to present qualitative data from CSA survivors about their experiences of dental care. Survivors wish to access dental care but tailored support is needed to ameliorate reminders of abuse and traumatic stress triggers. Trauma-informed care may address difficulties with treatment if dental staff adopt flexible approaches and work collaboratively with survivors to facilitate relational safety. (Please note, in this paper, 'survivors' refers to those sexually abused as children).
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Calder, Allyson, Gisela Sole, and Hilda Mulligan. "Co-Design of an Educational Resource with Female Partners of Male Stroke Survivors to Support Physical Activity Participation." International Journal of Environmental Research and Public Health 19, no. 24 (December 15, 2022): 16856. http://dx.doi.org/10.3390/ijerph192416856.
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Many male stroke survivors find it challenging to meet the recommended physical activity (PA) guidelines for health benefits. The spouse/partner is an important source of self-management for stroke survivor PA participation; however, they feel unsupported by health professionals. This study aimed to co-design an educational resource prototype to guide and empower female partners in supporting male stroke survivors’ participation in PA. We used a participatory action research (PAR) methodology. Thirteen support persons of male stroke survivors from Canterbury, New Zealand participated in four PAR cycles. The data were collected using individual interviews and focus groups and analyzed inductively using the general inductive approach. Three themes were reflected in the data and informed the prototype content: (1) managing an unwanted and challenging new life, (2) inconsistent access to meaningful information, and (3) considerations for successful stroke survivor PA participation. If partners are to be an essential source in supporting stroke survivors’ self-management of PA, they require resources that are meaningful and credible to enhance their confidence and self-efficacy. Further research is needed to explore the acceptability and usability of the educational resource with a wider audience and evaluate the co-design process. An inclusive and collaborative approach where support persons were valued for their expertise was essential in co-designing a meaningful resource intended to support stroke survivors and support persons’ self-management of their PA.
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Fukushima, Annie Isabel, Kwynn Gonzalez-Pons, Lindsay Gezinski, and Lauren Clark. "Multiplicity of stigma: cultural barriers in anti-trafficking response." International Journal of Human Rights in Healthcare 13, no. 2 (April 18, 2020): 125–42. http://dx.doi.org/10.1108/ijhrh-07-2019-0056.
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Purpose The purpose of this study is to contribute to the social understanding of stigma as a societal and cultural barrier in the life of a survivor of human trafficking. The findings illustrate several ways where stigma is internal, interpersonal and societal and impacts survivors’ lives, including the care they receive. Design/methodology/approach This study used qualitative methods. Data collection occurred during 2018 with efforts such as an online survey (n = 45), focus groups (two focus groups of seven participants each) and phone interviews (n = 6). This study used thematic analysis of qualitative data. Findings The research team found that a multiplicity of stigma occurred for the survivors of human trafficking, where stigma occurred across three levels from micro to meso to macro contexts. Using interpretive analysis, the researchers conceptualized how stigma is not singular; rather, it comprises the following: bias in access to care; barriers of shaming, shunning and othering; misidentification and mislabeling; multiple levels of furthering how survivors are deeply misunderstood and a culture of mistrust. Research limitations/implications While this study was conducted in a single US city, it provides an opportunity to create dialogue and appeal for more research that will contend with a lens of seeing a multiplicity of stigma regardless of the political climate of the context. It was a challenge to recruit survivors to participate in the study. However, survivor voices are present in this study and the impetus of the study’s focus was informed by survivors themselves. Finally, this study is informed by the perspectives of researchers who are not survivors; moreover, collaborating with survivor researchers at the local level was impossible because there were no known survivor researchers available to the team. Practical implications There are clinical responses to the narratives of stigma that impact survivors’ lives, but anti-trafficking response must move beyond individualized expectations to include macro responses that diminish multiple stigmas. The multiplicity in stigmas has meant that, in practice, survivors are invisible at all levels of response from micro, meso to macro contexts. Therefore, this study offers recommendations for how anti-trafficking responders may move beyond a culture of stigma towards a response that addresses how stigma occurs in micro, meso and macro contexts. Social implications The social implications of examining stigma as a multiplicity is central to addressing how stigma continues to be an unresolved issue in anti-trafficking response. Advancing the dynamic needs of survivors both in policy and practice necessitates responding to the multiple and overlapping forms of stigma they face in enduring and exiting exploitative conditions, accessing services and integrating back into the community. Originality/value This study offers original analysis of how stigma manifested for the survivors of human trafficking. Building on this dynamic genealogy of scholarship on stigma, this study offers a theory to conceptualize how survivors of human trafficking experience stigma: a multiplicity of stigma. A multiplicity of stigma extends existing research on stigma and human trafficking as occurring across three levels from micro, meso to macro contexts and creating a system of oppression. Stigma cannot be reduced to a singular form; therefore, this study argues that survivors cannot be understood as experiencing a singular form of stigma.
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Kofron, Christopher P., and Angela Chapman. "Breast Cancer With Brain Metastases: Perspective From a Long-Term Survivor." Integrative Cancer Therapies 19 (January 2020): 153473541989001. http://dx.doi.org/10.1177/1534735419890017.
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The purpose of this essay is to inform others that it is possible to survive breast cancer with brain metastases. The second author is the subject patient and a long-term survivor of systemic metastatic breast cancer with numerous brain metastases (corresponding to 8% survivor group). We credit her survival to a combination of (1) medicine as practiced by an excellent oncologist with whom we developed a partnership to manage the patient’s health, (2) our informed exploration of the available scientific knowledge including a review of scientific research articles that go beyond conventional care, and (3) the patient’s supplementation with numerous repurposed drugs and other substances reported to have antitumor properties. Alongside her conventional treatment (the medical standard of care), it seems likely that this supplementation has been a key factor in the patient’s long-term survival. We also point out that the lack of follow-up magnetic resonance imaging brain scans for early detection of brain metastases poses substantial risks for patients with HER2+ metastatic breast cancer in non–central nervous system locations. Thus, we suggest that research be conducted on such early detection for possible inclusion in the recommendations for the medical standard of care. Finally, medical doctors and also patients with backgrounds in biological science may wish to consider potential options and advantages of repurposed drugs and other substances reported in scientific publications when the medical standard of care has limited options for advanced cancer and other severe chronic health conditions. However, any efforts along this line by patients should be in collaboration with their medical doctors.
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Twis, Mary K., Kathleen M. Preble, Don Greenwood, and Samantha Kollmeyer. "A Qualitative Analysis of Sex Trafficking Survivor-Advocates’ Barriers to Exiting “The Life”." Violence and Victims 37, no. 6 (December 1, 2022): 820–36. http://dx.doi.org/10.1891/vv-2021-0079.
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Despite the recent expansion of sex trafficking awareness, prevention, and aftercare services, knowledge about sex trafficking remains limited by the systemic exclusion of survivors’ voices and strengths from sex trafficking epistemology. Notably, little research examines sex trafficking survivors’ experiences, their critiques of the counter-trafficking movement, nor their recommendations for how the counter-trafficking movement could be improved to better meet survivors’ needs. In this qualitative study, we adhered to an Intersectional-Standpoint Methodology (ISM) to explore sex trafficking survivors’ perceptions of the counter-trafficking movement and their barriers to sex trafficking exit. The results of this study suggest that survivors encounter numerous barriers to sex trafficking exit, including internal barriers, social barriers, and systemic-institutional barriers. Results point towards recommendations for improving service delivery systems by building upon sex trafficking survivors’ strengths and resilience and by reducing their many barriers to exit. By implementing these recommendations, counter-trafficking advocates at all levels of practice can increase sex trafficking survivors’ access to effective, survivor-informed aftercare services.
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Sun, Virginia, Anne Reb, Marc Debay, Marwan Fakih, and Betty Ferrell. "Rationale and Design of a Telehealth Self-Management, Shared Care Intervention for Post-treatment Survivors of Lung and Colorectal Cancer." Journal of Cancer Education 36, no. 2 (January 8, 2021): 414–20. http://dx.doi.org/10.1007/s13187-021-01958-8.
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AbstractSurvivors of lung and colorectal cancer have high post-treatment needs; the majority are older and suffer from greater comorbidities and poor quality of life (QOL). They remain underrepresented in research, leading to significant disparities in post-treatment outcomes. Personalized post-treatment follow-up care and care coordination among healthcare teams is a priority for survivors of lung and colorectal cancer. However, there are few evidence-based interventions that address survivors’ post-treatment needs beyond the use of a follow-up care plan. This paper describes the rationale and design of an evidence-informed telehealth intervention that integrates shared care coordination between oncology/primary care and self-management skills building to empower post-treatment survivors of lung and colorectal cancer. The intervention design was informed by (1) contemporary published evidence on cancer survivorship, (2) our previous research in lung and colorectal cancer survivorship, (3) the chronic care self-management model (CCM), and (4) shared post-treatment follow-up care between oncology and primary care. A two-arm, parallel randomized controlled trial will determine the efficacy of the telehealth intervention to improve cancer care delivery and survivor-specific outcomes. ClinicalTrials.govIdentifier: NCT04428905
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Wilson, Tyra, and Lawrence Hill. "The role of the paramedic in identifying modern slavery." Journal of Paramedic Practice 13, no. 2 (February 2, 2021): 1–11. http://dx.doi.org/10.12968/jpar.2021.13.2.cpd1.
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Background: Modern slavery is the recruitment or harbouring of people through the use of force and coercion for exploitation. Paramedics have significant potential and unique opportunities regarding the detection, prevention and combating of modern slavery. Aim: To analyse the literature relating to modern slavery and synthesise it for paramedic practice. Method: Following a structured literature review, a comparative analysis was undertaken of articles concerning the relationships between modern slavery and healthcare. Findings: Five major themes were identified: barriers to healthcare access; causes of missing the indicators of trafficking; clinician knowledge; the need for training and education; and trauma-informed practices. Conclusions: Paramedics are in an optimal position to identify and intervene in cases of modern slavery. The introduction of survivor-centred education is recommended to better understand the barriers to healthcare access.
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Wilson, Tyra, and Lawrence Hill. "The role of the paramedic in identifying modern slavery." International Paramedic Practice 10, no. 4 (December 2, 2020): 93–102. http://dx.doi.org/10.12968/ippr.2020.10.4.93.
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Background: Modern slavery is the recruitment or harbouring of people through the use of force and coercion for exploitation. Paramedics have significant potential and unique opportunities regarding the detection, prevention and combating of modern slavery. Aim: To analyse the literature relating to modern slavery and synthesise it for paramedic practice. Method: Following a structured literature review, a comparative analysis was undertaken of articles concerning the relationships between modern slavery and healthcare. Findings: Five major themes were identified: barriers to healthcare access; causes of missing the indicators of trafficking; clinician knowledge; the need for training and education; and trauma-informed practices. Conclusions: Paramedics are in an optimal position to identify and intervene in cases of modern slavery. The introduction of survivor-centred education is recommended to better understand the barriers to healthcare access.
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Abramson, Paul R., and Sienna Bland-Abramson. "Racial Animus, Police Corruption, and a Wrongful Conviction of Murder." Wrongful Conviction Law Review 2, no. 2 (September 22, 2021): 103–20. http://dx.doi.org/10.29173/wclawr55.
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It is one thing to faithfully report and investigate police corruption; it is another thing to effectively punish abusive officers and the institutions that support them. A third, arguably the most fundamental concern of all, is to understand why these officers, and the infrastructures that protect them, rarely face repercussions for their crimes and the catastrophic psychological traumas that they inflict. The case described herein – a wrongful conviction of murder (1991) that was eventually overturned (2010) and then successfully litigated for restitution (2021) – provides a vivid narrative of prosecutorial misconduct, and the consequent psychological anguish of a survivor, as informed and articulated by participant-observers. Our hope is that by doing so, we can facilitate an understanding for, and empathy with, the trials and tribulations of victims of color who have suffered tremendously from police corruption and wrongful convictions.
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Gray, Lori A. "Living the Full Catastrophe: A Mindfulness-Based Program to Support Recovery from Stroke." Healthcare 8, no. 4 (November 19, 2020): 498. http://dx.doi.org/10.3390/healthcare8040498.
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Decades of research suggest that Mindfulness-Based Stress Reduction (MBSR) training supports a greater capacity to live with chronic medical conditions and contributes to lowering stress levels. This paper introduces a model for a Mindfulness-Based Recovery from Stroke (MBRfS) for promoting stroke recovery, informed by the lived experience of the author (a stroke survivor and certified MBSR instructor), the research literature regarding MBSR training, and the specific challenges of stroke recovery. Four themes emerged from the autoethnographic analysis that informed the proposed model: Readiness to accept the stroke event and the acquired brain injury, navigating uncertainties of stroke recovery with awareness and self-responsibility for outcomes, trusting the inherent wisdom of the body as a stroke recovery “teacher”, and increased capacity to integrate complex emotions with self-compassion, and a sense of wholeness. A four-component MBRfS model is offered, which consists of an integration amongst a modified MBSR framework, emergent attitudinal themes, and insights from the autoethnographic vignettes. The MBRfS model offers a path for providing participants with a supportive experience within stroke recovery. Recommendations and suggestions for future studies are offered to support the development of MBRfS for stroke survivors and their caregivers, as well as contributing to healthcare providers.
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Connors, Shahnjayla K., Isabel Martinez Leal, Vijay Nitturi, Chisom N. Iwundu, Valentina Maza, Stacey Reyes, Chiara Acquati, and Lorraine R. Reitzel. "Empowered Choices: African-American Women's Breast Reconstruction Decisions." American Journal of Health Behavior 45, no. 2 (March 1, 2021): 352–70. http://dx.doi.org/10.5993/ajhb.45.2.14.
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Objectives: Breast reconstruction (BR) potentially can improve quality of life in postmastectomy breast cancer survivors (BCS); however, African-American women are less likely to undergo BR than Caucasian women. This qualitative study was undertaken to explore individual, sociocultural, and contextual factors influencing African-American women's BR decision-making processes and preferences. Methods: Postmastectomy African-American BCS with and without BR participated in semi-structured interviews. We adopted a grounded theory approach using the constant comparison method to understand the contexts and processes informing participants' BR decision-making. Results: Twenty-three women participated, of whom 17 elected BR and 6 did not. Whereas women's primary reasons for deciding for or against BR differed, our core category, "empowered choices ," describes both groups' decision-making as a process focused on empowering themselves physically and/or psychologically, through self-advocacy, informed and shared decision-making, and giving back/receiving communal and spiritual support from church and African-American survivor groups. Socioeconomic factors influenced women's access to BR. Women preferred autologous BR and expressed the need for greater culturally-matched resources and support to inform treatment and shared BR decision-making. Conclusions: Understanding and supporting African-American women's BR preferences and empowerment is essential to ensuring equal access, and culturally-relevant, high-quality, and informed patient-centered care.
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Messing, Jill Theresa, Jacquelyn Campbell, Kelly Dunne, and Suzanne Dubus. "Development and Testing of the Danger Assessment for Law Enforcement (DA-LE)." Social Work Research 44, no. 3 (May 23, 2020): 143–56. http://dx.doi.org/10.1093/swr/svaa005.
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Abstract One-third of women are victimized by intimate partner violence (IPV) in their lifetime; when women are killed, they are often murdered by a previously abusive intimate partner. Risk-informed collaborative interventions, such as domestic violence high risk teams (DVHRTs), use IPV risk assessment to identify and intervene in high-risk IPV cases. This study reports on the development and testing of the Danger Assessment for Law Enforcement (DA-LE), an IPV risk assessment intended for use with DVHRTs. Data were collected through structured telephone interviews from service-seeking survivors of IPV at two time points approximately seven to eight months apart. One sample (n = 570) was used to develop the DA-LE and another (n = 389) was used to test the predictive validity of the instrument using the receiver operating characteristic area under the curve (AUC). The DA-LE predicted near fatal IPV on follow-up with similar or better accuracy than most validated IPV risk assessment instruments (AUC = 0.6864–0.7516). There were no significant differences in predictive validity based on survivor/offender race or ethnicity. The DA-LE has the potential to identify high-risk police-involved IPV cases. Risk-informed collaborative interventions may enhance outcomes for survivors of IPV by holding offenders accountable, increasing help seeking, and reducing future assaults.
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Lamont, Bethany Rose. "Amusing Abusers and Humourless Survivors: Analysing the Role of Comedy in Media Representations of Sexual Violence." Galactica Media: Journal of Media Studies 3, no. 3 (October 29, 2021): 344–73. http://dx.doi.org/10.46539/gmd.v3i3.134.
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This article reflects on the importance of comedy when considering media engagements with sexual abuse themes. This approach is informed by how closely the study of humour is rooted in the analysis of power relations, with comic theorists, both historical and contemporary, grounding the work.The comic figures of both the child sex (CS) abuser and the sexual violence survivor are first identified, before exploring what exactly about these tropes evoke laughter, and what this means for wider conceptions of interpersonal abuse and victimology.
In analysing examples of CS abuser themed British and American comedy, animated adult comedies such as Family Guy (1999-present) and Monkey Dust (2003-2005) are considered in the context of early 2000s anxieties towards the suburban dirty old man and online child safety. In the case of the sexual violence survivor, Saturday Night Live’s 1993 ‘Is It Date Rape?’ sketch is considered within the context of 1990s anxieties regarding feminist campus politics, and is paralleled to the mid-2010s media panic surrounding British and American university students and trigger warnings through examples including The Simpson’s 2017 ‘Caper Chase’ episode and early to mid-2010s online academic polemics on the humourless feminist, such as Mark Fisher’s ‘Exiting The Vampire Castle’ (2013) and Jack Halberstam’s ‘You are Triggering Me!’ (2014). The article concludes by considering the changing consensuses for sexual violence themed humour in the Me Too era through the 2018 episode of It’s Always Sunny in Philadelphia (2005-present) ‘Times Up For The Gang.’
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Wood, Leila, Laurie Cook Heffron, Molly Voyles, and Shanti Kulkarni. "Playing by the Rules: Agency Policy and Procedure in Service Experience of IPV Survivors." Journal of Interpersonal Violence 35, no. 21-22 (June 27, 2017): 4640–65. http://dx.doi.org/10.1177/0886260517716945.
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More than 1,800 programs exist in the United States, providing not only shelter but also transitional housing, advocacy and support, transportation, legal aid, and group and individual counseling for women who have experienced intimate partner violence (IPV). Shelter and transitional housing provide critical support for survivors, but have also been critiqued for having too many restrictive rules and code of conduct. More information is needed about the impact of rules and agency policy on women seeking services in IPV residential settings. This qualitative study explored the central research question, “How do rules shape IPV residential environment and survivor experiences in services?” Twenty-five women in four programs in two states who were currently residing in IPV residential services were interviewed about their experiences. Data were analyzed using grounded theory methods. Findings indicated rules affect individual survivors’ and families’ experiences and responses in services and of healing from IPV (micro), the relationships among residents and between residents and staff (mezzo), and participants’ relationships with the agency as an institution and the help-seeking community (macro). An intriguing paradox is noted in that at their best, rules provide stability and motivation for some survivors. At their worst, rules create isolation and force exit from shelter into unsafe circumstances, causing a ripple effect of impact. Implications include the need to restructure rules and policies collaboratively with residents, and reduce the amount of rules used in services. Addressing rules will better enable IPV services to be survivor-centered and trauma-informed, ultimately increasing safety and healing.
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Delvaux, Joke, Alexandra John, Lucy Wedderburn, and Jacqui Morris. "Implementation of Dynamic Lycra® Orthoses for Arm Rehabilitation in the Context of a Randomised Controlled Feasibility Trial in Stroke: A Qualitative study Using Normalisation Process Theory." Rehabilitation Process and Outcome 9 (January 2020): 117957272095021. http://dx.doi.org/10.1177/1179572720950210.
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Objective: To explore how non-research funded rehabilitation practitioners implemented dynamic Lycra® orthoses for arm recovery after stroke into rehabilitation practice, as part of a feasibility randomised controlled trial. Design: Qualitative interview study. Setting: Two in-patient stroke units and associated rehabilitation units. Subjects: Fifteen purposefully selected stroke rehabilitation practitioners involved in delivery of dynamic Lycra® orthoses as part of a feasibility randomised controlled trial. Methods: Semi-structured interviews conducted at the end of the trial. Interviews examined their experiences of orthosis implementation. Normalisation Process Theory structured the interview guide and informed data analysis. NVivo software supported data analysis. Results: Practitioners intuitively made sense of the intervention in the face of uncertainty about its precise mechanisms of action (Normalisation Process Theory construct: coherence) and espoused commitment to the research, despite uncertainty about orthosis effectiveness (cognitive participation). They did however adapt the intervention based on perceived therapeutic need, their own skillsets and stroke survivor preference (collective action). They were uncertain about benefits (reflexive monitoring). Across the 4 theoretical constructs, ambivalence about the intervention was detected. Conclusions: Ambivalence interfered with implementation – but only to an extent. ‘Good-enough’ coherence, cognitive participation, collective action and reflexive monitoring were sufficient to initiate normalisation – as long as implementation did not undermine the relationship between practitioner and stroke survivor. Ambivalence stemmed from practitioners’ uncertainty about the intervention theory and mechanisms of action. Making intervention mechanisms of action more explicit to practitioners may influence how they implement and adapt a research intervention, and may determine whether those processes undermine or enhance outcomes.
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O’Brien, Haley D. "Augmenting Trait-Dependent Diversification Estimations with Fossil Evidence: A Case Study Using Osmoregulatory Neurovasculature." Brain, Behavior and Evolution 91, no. 3 (2018): 148–57. http://dx.doi.org/10.1159/000488887.
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When comparative neuromorphological studies are extended into evolutionary contexts, traits of interest are often linked to diversification patterns. Features demonstrably associated with increases in diversification rates and the infiltration or occupation of novel niche spaces are often termed “key innovations.” Within the past decade, phylogenetically informed methods have been developed to test key innovation hypotheses and evaluate the influence these traits have had in shaping modern faunas. This is primarily accomplished by estimating state-dependent speciation and extinction rates. These methods have important caveats and guidelines related to both calculation and interpretation, which are necessary to understand in cases of discrete (qualitative) character analysis, as can be common when studying the evolution of neuromorphology. In such studies, inclusion of additional characters, acknowledgement of character codistribution, and addition of sister clade comparison should be explored to ensure model accuracy. Even so, phylogenies provide a survivor-only examination of character evolution, and paleontological contexts may be necessary to replicate and confirm results. Here, I review these issues in the context of selective brain cooling – a neurovascular-mediated osmoregulatory physiology that dampens hypothalamic responses to heat stress and reduces evaporative water loss in large-bodied mammals. This binary character provides an example of the interplay between sample size, evenness, and character codistribution. Moreover, it allows for an opportunity to compare phylogenetically constrained results with paleontological data, augmenting survivor-only analyses with observable extinction patterns. This trait- dependent diversification example indicates that selective brain cooling is significantly associated with the generation of modern large-mammal faunas. Importantly, paleontological data validate phylogenetic patterns and demonstrate how suites of characters worked in concert to establish the large-mammal communities of today.
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Cruciat, Gheorghe, Georgiana Irina Nemeti, Roxana Popa-Stanila, Andreea Florian, and Iulian Gabriel Goidescu. "Imaging diagnosis and legal implications of brain injury in survivors following single intrauterine fetal demise from monochorionic twins – a review of the literature." Journal of Perinatal Medicine 49, no. 7 (April 22, 2021): 837–46. http://dx.doi.org/10.1515/jpm-2020-0566.
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Abstract Brain injury of the surviving twin from monochorionic pregnancies following intrauterine fetal demise during the second and third trimesters is a rare but severe complication. Monochorionicity and gestational age at the time of stillbirth seem to be decisive factors in terms of long-term neurologic outcome prediction for the survivor. Magnetic resonance imaging (MRI), diffusion weighted imaging (DWI) in particular, seem to bring the earliest and most accurate diagnosis. Ultrasound detection of brain damage is possible in later stages of fetal brain injury. It is essential to provide early diagnosis and multidisciplinary counsel to the parents to ensure informed decision making. For couples who choose to terminate pregnancy legislation related to late abortion might lead to further distress. Our paper aims to stress the importance of MRI DWI in the evaluation of surviving twins following single intrauterine fetal demise in monochorionic pregnancies and the delicate context of the medical professionals and parents facing this clinical situation, sometimes complicated by legal constraints.
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Taylor, Janette Y. "Moving From Surviving to Thriving: African American Women Recovering From Intimate Male Partner Abuse." Research and Theory for Nursing Practice 18, no. 1 (January 2004): 35–50. http://dx.doi.org/10.1891/rtnp.18.1.35.28056.
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In this ethnographic study, a womanist framework was used to investigate the process of recovery from domestic violence. A purposive sample of African American women (N= 21) was interviewed to gain understanding of their recovery process. Survivorship-thriving was the overarching process. Six themes related to survivorship-thriving were identified: (a) Sharing secrets/Shattering silences—sharing information about the abuse with others; (b) Reclaiming the Self—defining oneself separate from abuser and society; (c) Renewing the Spirit—nurturing and restoring the spiritual and emotional self; (d) Self-healing through Forgiveness—forgiving their partners for the abuse and violence; (e) Finding Inspiration in the Future—looking to the future with optimism; and (f) Self-generativity by Engaging in Social Activism—participating in prosocial activities to promote social change. This article presents recovery oriented towards survivorship—thriving as a transformative process overall characterized by resilience and self-generativity. This represents more than just recovery as return to homeostasis or “back to normal.” Implications for survivor-informed practices are included.
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Gonzalez-Guarda, Rosa Maria, Jessica Williams, Dalia Lorenzo, and Cherelle Carrington. "Desired Characteristics of HIV Testing and Counseling among Diverse Survivors of Intimate Partner Violence Receiving Social Services." Health & Social Work 46, no. 2 (May 1, 2021): 93–101. http://dx.doi.org/10.1093/hsw/hlab003.
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Abstract Despite recent calls to integrate HIV testing into social services addressing intimate partner violence (IPV), few studies have reported on survivors’ perspectives regarding the desired characteristics of this integration. The purpose of this study was to describe desired characteristics of HIV and sexually transmitted infection (STI) testing services from a survivor’s perspective. A qualitative descriptive approach was taken to describe the perspectives of IPV survivors who may or may not have accessed this service. Four focus groups were conducted with a diverse sample of English and Spanish speakers (N = 25) who sought services through a family justice center and associated shelters. Focus groups were recorded, transcribed, and analyzed using conventional content analysis. Three themes were identified, including (1) peace of mind; (2) interacting stigmas and traumas; and (3) making testing easy, comfortable, and tailored. The findings of this study have the potential to influence survivor-centered practices and policies regarding the integration of culturally informed HIV/STI and IPV services.
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Porat, Talya, Iain J. Marshall, Euan Sadler, Miguel A. Vadillo, Christopher McKevitt, Charles D. A. Wolfe, and Vasa Curcin. "Collaborative design of a decision aid for stroke survivors with multimorbidity: a qualitative study in the UK engaging key stakeholders." BMJ Open 9, no. 8 (August 2019): e030385. http://dx.doi.org/10.1136/bmjopen-2019-030385.
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ObjectivesEffective secondary stroke prevention strategies are suboptimally used. Novel development of interventions to enable healthcare professionals and stroke survivors to manage risk factors for stroke recurrence are required. We sought to engage key stakeholders in the design and evaluation of an intervention informed by a learning health system approach, to improve risk factor management and secondary prevention for stroke survivors with multimorbidity.DesignQualitative, including focus groups, semistructured interviews and usability evaluations. Data was audio recorded, transcribed and coded thematically.ParticipantsStroke survivors, carers, health and social care professionals, commissioners, policymakers and researchers.SettingStroke survivors were recruited from the South London Stroke Register; health and social care professionals through South London general practices and King’s College London (KCL) networks; carers, commissioners, policymakers and researchers through KCL networks.Results53 stakeholders in total participated in focus groups, interviews and usability evaluations. Thirty-seven participated in focus groups and interviews, including stroke survivors and carers (n=11), health and social care professionals (n=16), commissioners and policymakers (n=6) and researchers (n=4). Sixteen participated in usability evaluations, including stroke survivors (n=8) and general practitioners (GPs; n=8). Eight themes informed the collaborative design of DOTT (Deciding On Treatments Together), a decision aid integrated with the electronic health record system, to be used in primary care during clinical consultations between the healthcare professional and stroke survivor. DOTT aims to facilitate shared decision-making on personalised treatments leading to improved treatment adherence and risk control. DOTT was found acceptable and usable among stroke survivors and GPs during a series of evaluations.ConclusionsAdopting a user-centred data-driven design approach informed an intervention that is acceptable to users and has the potential to improve patient outcomes. A future feasibility study and subsequent clinical trial will provide evidence of the effectiveness of DOTT in reducing risk of stroke recurrence.
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Armes, David Grahame. "Mission informed discursive tactics of British mental health service-user/survivor movement (BSUSM) resistance to formalization pressures accompanying contractual relationships with purchasing authorities." Journal of Mental Health 18, no. 4 (January 2009): 344–52. http://dx.doi.org/10.1080/09638230802522973.
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Swiecichowski, Mandy, Amye Tevaarwerk, Mark Juckett, James Edward Haine, Kirsten Norslien, Jessica Becher, Bethaney Campbell, Eneida Mendonca, and Mary Sesto. "Leveraging the electronic health record (EHR) to support survivorship care planning for bone marrow transplant (BMT) survivors." Journal of Clinical Oncology 36, no. 7_suppl (March 1, 2018): 57. http://dx.doi.org/10.1200/jco.2018.36.7_suppl.57.
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57 Background: BMT survivors are underrepresented in survivorship research, yet are at high risk for complications. Practice guidelines are vague, non-BMT clinicians are inadequately informed, and communication between BMT and non-BMT clinicians is inconsistent. Our objective is to develop EHR-integrated survivorship care planning that is user-centered, supports non-BMT clinician and survivor needs, but does not adversely impact clinical workflow. Methods: A multidisciplinary team of clinicians (primary care, oncology, BMT), engineers, and EHR analysts used a systems engineering approach to identify barriers and facilitators to BMT survivorship care planning. The team identified patient data categories to include in BMT survivorship care plan (SCP) templates, as well as examined tasks, technology, workflows and individual roles and responsibilities necessary to support care planning. Results: Facilitators include: potential for EHR to discretely capture individual diagnosis and treatment data to create accurate SCPs addressing survivor and primary care information needs. Barriers are: lack of EHR inter-operability which prevents sharing of patient data outside the BMT center’s EHR system, reliance on manual entry of critical data elements into the SCP (i.e. majority of the 88 patient data categories, identified by the team, are non-discrete in the EHR), inefficient or absent survivorship workflows, lack of resources (including time, dedicated clinical staff, space, SCP content), poorly defined roles and responsibilities for survivorship care provision, and lack of evidence-based BMT survivorship guidelines. Conclusions: Work system barriers impede use of the EHR to support survivorship care planning. Steps to overcome barriers: design discrete fields in the EHR to support patient-level data capture, re-engineer existing workflows to support survivorship care planning, obtain BMT program consensus on SCP content, and evaluate user-centeredness of SCPs. This research has the potential to improve feasibility and sustainability of survivorship care planning activities, resulting in improved communication and care coordination for BMT survivors.
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Tivenga, Doreen Rumbidzai. "Contemporary Zimbabwean popular music in the context of adversities." Tydskrif vir Letterkunde 55, no. 1 (March 20, 2018): 134–48. http://dx.doi.org/10.17159/2309-9070/tvl.v.55i1.1583.
Full textAbstract:
Contemporary Zimbabwean popular and urban genres of music namely, urban grooves and its variant Zimdancehall emerged and continue to exist at a time Zimbabwe is grappling with socio-economic and political adversities. The music is part of crucial artistic forms and dissent, hence for the ordinary Zimbabweans, it plays a significant role, detailing their experiences and survival strategies and influencing their patterns of entertainment and daily cultural practises. This article which is informed by popular culture theorists such as Karin Barber (1987) and John Fiske (1989) makes a textual analysis of Winky D's (2015) songs "Disappear", "Copyrights" and "Survivor" to examine the power of the songs in exploring the survival strategies employed by ordinary Zimbabweans in dealing with their experiences. The paper examines how the music is a source of power that fosters a response resonating with a postcolonial urban youth cultural activism seeking to empower the ordinary Zimbabweans to autonomously transcend their adversities and take control of their destinies in a country where the ruling elite are failing to improve the nation's socio-economic conditions.
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Barada, Rassil, Alina Potts, Angela Bourassa, Manuel Contreras-Urbina, and Krystel Nasr. "“I Go up to the Edge of the Valley, and I Talk to God”: Using Mixed Methods to Understand the Relationship between Gender-Based Violence and Mental Health among Lebanese and Syrian Refugee Women Engaged in Psychosocial Programming." International Journal of Environmental Research and Public Health 18, no. 9 (April 23, 2021): 4500. http://dx.doi.org/10.3390/ijerph18094500.
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Lebanon’s intersecting economic and political crises exacerbate complex public health issues among both host and refugee populations. This mixed-methods study by a Lebanese service provider, in partnership with an international research institute, seeks to better understand how experiences of gender-based violence (GBV) and mental health intersect in the lives of Syrian and Lebanese women, and how to better meet these needs. It employs a randomized cross-sectional survey of 969 Abaad service users and focus groups with community members and service providers. There were significant associations between GBV and ill mental health; notably, respondents reporting transactional sex had 4 times the likelihood of severe distress (aOR 4.2; 95% CI 1.2–14.8; p ≤ 0.05). Focus groups emphasized less-visible forms of violence, such as emotional violence, and the importance of environmental factors in one’s ability to cope, noting “it always came back to the economy”. Recommendations include providing a more holistic and coordinated approach between GBV, mental health, livelihood, and basic assistance sectors; and sensitive, accessible, and higher-quality mental health services informed by GBV response actors’ experience putting in place survivor-centered programming and made available to both host and refugee community members.
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Cherry, Tamara K. "Trauma survivors and the media: A qualitative analysis." Journal of Community Safety and Well-Being 6, no. 3 (August 24, 2021): 127–32. http://dx.doi.org/10.35502/jcswb.218.
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While much has been written about how the media covers traumatic events, little is known about the impact of the media on trauma survivors. This, despite the fact that crime coverage has been a staple of daily news cycles for several decades. Likewise, little has been written about the training and methods of the journalists who cover these events, or the impact of this coverage on the journalists. Based on 71 qualitative surveys and interviews with homicide and traffic fatality survivors, and 22 qualitative surveys of journalists, this article serves to describe five main themes regarding survivor experiences: 1) Prior experience with the media; 2) First encounters with the media; 3) Negative impacts of the media; 4) Positive impacts of the media; and 5) Advice for various stakeholders. Additionally, this article will describe three main themes highlighted by the journalists: 1) Trauma-informed training and guidelines; 2) Comfort in contacting survivors; and 3) Personal impact of reporting on trauma. These findings illustrate a clear gap in services available to survivors, in particular in the immediate aftermath of traumatic events when media attention is often at its highest, as well as a lack of support for journalists covering these events.
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Entwistle, David N., Stephen K. Moroney, and Jamie Aten. "Integrative Reflections on Disasters, Suffering, and the Practice of Spiritual and Emotional Care." Journal of Psychology and Theology 46, no. 1 (February 23, 2018): 67–81. http://dx.doi.org/10.1177/0091647117750658.
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Disasters are an ever-present part of the broken world that we inhabit. Research has shown that churches often play an important role in providing spiritual and emotional care in the wake of disasters. Over the last decade much has been written about disaster spiritual care. Though a few of these resources draw from Scripture, an integrative framework is lacking in this burgeoning body of literature. In this article, we provide some preliminary considerations of disasters and suffering based on a sampling of biblical narratives and we offer psychologically informed recommendations for providing disaster spiritual care. We can respond to suffering in any number of ways: indifference, blaming the survivor, feeling overwhelmed, and/or seeking ways to intervene helpfully. We contend that Christians have an obligation to offer tangible help when we are able to do so in times of catastrophe. We further argue that following Jesus compels us to be careful of the attitudes we have towards those who suffer. Our hope is that this article will help spark theological exploration of disaster spiritual and emotional care and will spur Christians to provide wise, compassionate care to those affected by disasters.