Dissertations / Theses: 'Support for carers'

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Jegermalm, Magnus. "Carers in the Welfare State : On Informal Care and Support for Carers in Sweden." Doctoral thesis, Stockholm University, Department of Social Work, 2005. http://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-642.

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The general aim of this dissertation is to describe and analyse patterns of informal care and support for carers in Sweden. One specific aim is to study patterns of informal care from a broad population perspective in terms of types of care and types of carer. A typology of four different care categories based on what carers do revealed that women were much more likely than men to be involved at the ‘heavy end’ of caring, i.e. providing personal care in combination with a variety of other caring tasks. Men were more likely than women to provide some kind of practical help (Study I).

Another aim is to investigate which support services are received by which types of informal caregiver. Relatively few informal caregivers in any care category were found to be receiving any kind of support from municipalities or voluntary organizations, for example training or financial assistance (Study II).

The same study also examines which kinds of help care recipients receive in addition to that provided by informal carers. It appears that people in receipt of personal care from an informal caregiver quite often also receive help from the public care system, in this case mostly municipal services. However, the majority of those receiving personal, informal care did not receive any help from the public care system or from voluntary organizations or for-profit agencies (Study II).

The empirical material in studies I and II comprises survey data from telephone interviews with a random sample of residents in the County of Stockholm aged between 18 and 84.

In a number of countries there is a growing interest among social scientists and social policymakers in examining the types of support services that might be needed by people who provide informal care for older people and others. A further aim of the present dissertation is therefore to describe and analyse the carer support that is provided by municipalities and voluntary organizations in Sweden. The dissertation examines whether this support is aimed directly or indirectly at caregivers and discusses whether the Swedish government’s special financial investment in help for carers actually led to any changes in the support provided by municipalities and voluntary organisations. The main types of carer support offered by the municipalities were payment for care-giving, relief services and day care. The chief forms of carer support provided by the voluntary organizations were support groups, training groups, and a number of services aimed primarily at the elderly care recipients (Study III).

Patterns of change in municipal carer support could be discerned fairly soon. The Swedish government’s special allocation to municipalities and voluntary organisations appears to have led to an increase in the number of municipalities providing direct support for carers, such as training, information material and professional caregiver consultants. On the other hand, only minor changes could be discerned in the pattern of carer support services provided by the voluntary organizations. This demonstrates stability and the relatively low impact that policy initiatives seem to have on voluntary organizations as providers (Study IV).

In studies III and IV the empirical material consists of survey data from mail questionnaires sent to municipalities and voluntary organizations in the County of Stockholm.

In the fields of social planning and social work there appears to be a need to clarify the aims of support services for informal carers. Should the support be direct or indirect? Should it be used to supplement or substitute caregivers? In this process of reappraisal it will be important to take the needs of both caregivers and care recipients into account when developing existing and new forms of support. How informal caregivers and care recipients interact with the care system as a whole is undeniably a fertile field for further research.

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Andersson, Stefan. "Information and Communication Technology - mediated support for working carers of older people." Doctoral thesis, Linnéuniversitetet, Institutionen för hälso- och vårdvetenskap (HV), 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-65220.

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Despite a growing awareness of the importance of support for carers who combine paid work with care of an older relative, so called ‘working carers’, there remains a lack of empirical knowledge about more innovative ways to support this largest group of carers of older people. Information and Communication Technologies (ICTs) are becoming more readily available. As a result, ICTs have made it feasible to offer working carers more targeted forms of support. This thesis aimed to gain an understanding about support for working carers of older people via the use of ICT. An integrative literature review was conducted to explore and evaluate the current evidence base concerning the use of ICT-mediated support for working carers (I). Content analysis of qualitative data was used to describe nursing and support staff’s experiences of using web-based ICTs for information, e-learning and support of working carers (II). Content analysis was also used to describe working carers’ experiences of having access to a web-based family care support network provided by the municipality (III). Descriptive statistical methods were used to analyse survey data which focused on the types of support received and how they were valued by working carers, with a focus on ICT support (IV). Findings highlighted that ICT mediated support provided working carers with the means to manage their caring situation, via the provision of information, e-learning and education, in addition to practical assistance and emotional and/or physical respite from caregiving. In this way, working carers felt empowered in their caring situation by feeling more competent and prepared in their caring role and by strengthening their self-efficacy and positive self-appraisal of their situation. Carers were provided channels to share their frustrations and burdens via forums for emotional and social support between working carers, caring professionals, and other peer carers. This led to working carers feeling less burdened by their caregiving role and it helped promote their wellbeing. Further, carers were helped in some instances to balance work and care. As a result caregiving activities conflicting with work obligations were then lessened. In contrast, when ICT mediated support was neither provided in a timely fashion or in accordance with individual carers’ needs and preferences, then it was perceived by them to be unimportant. Cross-sectional data revealed that take-up of support services was low suggesting that unmet support needs may be inflated by work-care conflicts. For carers with lower digital skills, the additional time needed to learn to use ICTs was a further barrier. Overall, ICT mediated support acted as a complementary form of support for working carers. Measures to overcome dis-empowering aspects of this innovative from of support are needed to avoid working carers’ deprioritizing their own support needs and also to avoid possible digital exclusion from the current information society.

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Tiltina, Kristine. "Challenges facing long-term foster carers : an exploration of the nature of psychoanalytic parent/carer support." Thesis, University of East London, 2015. http://roar.uel.ac.uk/5178/.

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This research study investigates the role and impact of psychoanalytically-informed short-term parent work with long-term foster carers of looked-after children, in support of the foster placement. The study reflects on the data gathered from four child assessments and five foster families seen by a psychoanalytic child psychotherapist for four sessions each. It draws on psychoanalytic ideas from a range of theoretical traditions, exploring such concepts as trauma, defences, compulsion to repeat, psychological-mindedness, ‘container/contained’ (Bion) and ‘holding environment’ (Winnicott). One distinctive contribution of this research is what it adds to our already existing understanding of the defences (or responses) aroused in the carer when faced with the intense and distressing affect associated with the child’s early trauma; and the impact of this legacy of trauma on the child, on the carer and on the wider Social Services system. Applying Grounded Theory and psychoanalytically-informed clinical case study methodology to the research material, the study breaks down the data analysis into seven stages of coding, from the initial reading of the data to the eventual development of two key hypotheses. One of the predominant themes that emerged from the analysis was the carer’s capacity to remain focused on the child’s emotional needs and how this in turn was linked to the direction of the therapist’s focus. The successive analyses of the data culminated in the hypothesis that the more the therapist focused on the carer and the carer’s emotional states in the course of the parent work, the more the carer was enabled to focus on the child’s emotional needs. As the system of categories emerged according to the themes exemplified in the sessions, a particular focus of analysis became the concept of psychologicalmindedness, considered under several sub-categories: displaying insightful comments; awareness of the child’s bodily states; awareness of the child’s affect; the carer’s ability to recognize the child’s defences; and the carer’s ability to make links between the child’s current difficulties and the child’s past experiences. Through this analysis it became apparent that degree of psychological-mindedness was closely linked to the individual carer’s capacity to metabolize the child’s distressed and distressing communication. This in turn led to a deeper exploration of the situations that were particularly challenging for the carers: i.e., instances when the child was compelled to repeat past traumatic emotional states and as a result was communicating intense distress. This exploration eventually generated the second hypothesis: that in reaction to the child’s distress, the response of each carer could be plotted somewhere along a spectrum, from either distancing themselves from the child’s emotional state to seeking excessive closeness with the child (merging). The next stage of the analysis developed four new categories of carer responses to the distressed child: identification and distancing from the child; identification and merging with the child; the category that describes the carer’s psychologicalmindedness as being ‘impaired’; and ‘good enough’ caring. This then led to an exploration of the carer’s own defences at these most challenging times. This research demonstrates clearly that even within the short space of four sessions of weekly psychoanalytic parent work, it is possible to achieve significant improvement in a carer’s capacity to bear the child’s compulsion to repeat early traumas, and to help the carers become more emotionally available to provide the child with effective psychological parenting at such difficult and challenging times. Key words: looked-after children; long-term foster carers; psychoanalytic short-term parent work; trauma; compulsion to repeat; psychological-mindedness; empathy; defences; psychoanalytically-informed clinical case study research methodology; Grounded Theory research methodology.

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Samrai, Amandeep. "Exploring foster carers' perceptions and experiences of placements and placement support." Thesis, University of Oxford, 2008. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.490734.

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Aims; The study aims to explore foster carers' experiences of successful placements and what constitutes a successful placement. The study also explores foster carers' experiences of support and examines their views of current services. Conclusions: The findings were constructed into a theory that can inform future fostering practice and placement planning. Related clinical and service implications are discussed and suggestions for future research are outlined. Most importantly, support that is accessible, with good professional relationships between the foster carer and social workers, whilst facilitating an attachment between the tester carer and child are key if a placement is to succeed.

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Harvey, Ann. "Perceptions of support in relationships between social workers and foster carers." Thesis, University of Newcastle Upon Tyne, 1996. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.319191.

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Ottenby, Anki. ""När jag väl har friheten…" : - en kvalitativ studie om anhörigas upplevelse av stöd." Thesis, Stockholm University, Department of Social Work, 1998. http://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-26251.

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With this study I wanted to capture the experience of support and increase the knowledge of what it means for women who are living with a husband who suffers from dementia. To do so I conducted four interviews and used an informal questionnaire. The result shows that there are four key words that can symbolize what the women experience as support: communica-tion, freedom, understanding and knowledge. The women’s experience of support range from meaningful and secure to not satisfying and complicated. Living with a husband who suffers from dementia has made their lives very different from before. But even if they sometimes are in a tough situation they want to take care of their husbands. Being able to go away a few hours or half a day once a week, can sometimes be enough and gives the women a sense of satisfaction. On the other hand it is not certain that the support offered is what the women need or that it is satisfactory for the husband. The link between the women’s experience of support and that of their husband is strong. And if the husband is not pleased nor will the wife be.

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7

Golding, Kim. "Providing specialist psychological support to foster carers : the usefulness of consultation as a mechanism for providing support." Thesis, Cardiff University, 2001. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.394050.

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Tzimoula, X. M. "Social support and psychological health of family carers of people with dementia." Thesis, University College London (University of London), 2013. http://discovery.ucl.ac.uk/1418834/.

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The majority of people with dementia are cared by family members. Family caregivers of PwD are vulnerable to high levels of burden, depression and loneliness. Social support, as a coping resource, can play an important role in the stress process. However, levels of social support can be lower than needed, which may lead to the experience of loneliness. This study aims to examine the effects of social support on caregivers' psychological well-being and whether social support interacts with burden or mediates in the burden — psychological outcome relationship, both cross-sectionally and longitudinally. Furthermore, I examine predictors of loneliness in caregivers of PwD and in particular the relationship between loneliness and social support. Methods: 120 family caregivers of PwD living in the community were interviewed at baseline and 97 (>80%) were re- interviewed two years later. Recruitment took place in the UK counties of Norfolk and Suffolk, and the London Borough of Havering. I employed measures of depression, perceived emotional support, burden and loneliness with sound psychometric properties. Results: Social support was significantly associated with reduced depression both at baseline and follow-up. Social support also was suggested to mediate the burden — depression relationship at baseline, but did not appear to buffer the effects of burden on depression. Psychosocial variables of perceived support and loss of companionship were suggested to predict loneliness over and above the demographic variables. Furthermore, perceived social support did not significantly buffer the effects of loss of companionship on loneliness. Therefore, different aspects of loneliness may be experienced as a result of loss of supportive others or loss of an attachment figure. Conclusions: Social support is suggested to reduce the effects of burden on depression, irrespective of how burdened caregivers were. Social support also is suggested to reduce feelings of loneliness but not those of loss of a close relationship.

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Chaava, Thebisa Hamukoma. "Skills, training and support for carers in HIV/AIDS community home-based care: a case study of carers in Chikankata, Zambia." Thesis, University of the Western Cape, 2005. http://etd.uwc.ac.za/index.php?module=etd&amp.

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The high prevalence of HIV/AIDS in Zambia has led to the development of innovative ways of coping with sickness related to this infection. HIV/AIDS home-based care is one such innovation designed in Chikankata Hospital in 1987. Home-based care depends on the availability of family members and community volunteers in the provision of care and support for People Living with HIV/AIDS (PLWHA).

This minithesis is based on a qualitative descriptive case study exploring perspectives regarding skills, supervision and support mechanisms for carers in the Chikankata HIV/AIDS Community-Home Based Care (CHBC) program. The study utilized documented research, focus group discussions with carers and structured interviews with local CHBC supervisors, national experts in CHBC, and PLWHA and their families, to collect data from 32 study participants.

The findings were that CHBC was being delivered by community volunteers with limited involvement from the local health services
that carers were highly motivated, personally and collectively mobilizing resources to meet the needs of CHBC clientele
that local arrangements for training, skills and support of carers were not aligned to national guidelines regarding process, content and duration of programmes
and that carers acquired skills in CHBC through formal and informal training processes and were facing challenges related to inadequate skills, poor infrastructure and extreme poverty in households caring for PLWHA.

Based on the findings the local arrangements for coordination of CHBC need to be strengthened and linked to formal processes for technical support, financial resources and materials for delivery of CHBC in line with existing guidelines on CHBC. The picture of the real situation of the carers that emerges from this qualitative study might inform the supervising organizations and policymakers on the gaps in the training and support of this crucial cadre in the provision of quality care for People Living with HIV/AIDS (PLWHA) at community level.

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Day, Chantelle. "The YACU Project: Exploring the Educational Experiences and Student Support Needs of Young Adult Carers in Australian Universities." Thesis, Griffith University, 2017. http://hdl.handle.net/10072/366970.

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The lived experiences of Australian Young Adult Carers (YACs) are underresearched, particularly in relation to the educational implications of caregiving on their university experiences. As a consequence of this gap, student-YACs remain largely unrecognised and unsupported in both carer recognition and student equity support policy and practice. In response to these problems—together with my own experiences as a YAC while attending university—the aim of this research was to explore the educational experiences and support needs of university student-YACs, from their perspective as well as those of wider stakeholders, including carer associations and universities. To achieve this research aim, I designed the YACU-Student Experience Framework (YACU-SEF). The YACU-SEF, informed by my analysis and subsequent synthesis of pertinent theoretical notions and structures, provides a holistic conceptualisation of YACs’ university student experiences. Comprising two parts, a base model and an outer structure, the YACU-SEF draws upon three individual student development frameworks and two social theories to provide a conceptual, operational and analytical framework that can be used to investigate student-young adult caregiving.
Thesis (PhD Doctorate)
Doctor of Philosophy (PhD)
School of Education and Professional Studies
Arts, Education and Law
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Chien, Wai-Tong. "Evaluation of a mutual support group for family carers of patients with schizophrenia." Thesis, King's College London (University of London), 2006. https://kclpure.kcl.ac.uk/portal/en/theses/evaluation-of-a-mutual-support-group-for-family-carers-of-patients-with-schizophrenia(daab2f18-12bc-41c9-896e-f1b6b48592d6).html.

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McKechnie, I. V. "The impact of an online support forum for carers of people with dementia." Thesis, University College London (University of London), 2013. http://discovery.ucl.ac.uk/1410117/.

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This thesis addresses computer-mediated interventions for carers of people with dementia and is comprised of three parts. Part 1 is a literature review of computer-mediated interventions for carers of people with dementia. It systematically reviews research studies in this field published after January 2000. Part 2, the empirical paper, is a mixed-methods evaluation of Talking Point, the UK Alzheimer’s Society’s online peer support forum for carers of people with dementia. Changes in new users’ depression, anxiety and quality of the relationship with the person with dementia are examined over a 12 week period, and follow-up qualitative interviews are conducted with eight participants. Part 3 is a critical appraisal of, and reflection on, the research and the manner in which it was conducted. It focuses on the following areas: issues in the evaluation of interventions for carers of people with dementia; the challenges of conducting research in a non-face-to-face context; the interview process; the extent of conclusions that can be drawn from the research and; future research.

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Webster, Gemma. "Multimedia profiles as external personalities to support people with dementia and their carers." Thesis, University of Dundee, 2011. https://discovery.dundee.ac.uk/en/studentTheses/f68f7545-c3af-427d-b4fe-96633824208a.

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Dementia is a growing problem with prevalence rapidly increasing. It is a progressive and eventually severe disease that affects many areas of the person’s life. Often, as a result of this disease, individuals reside in care homes. Care staff can find it difficult to get to know a person with dementia as they have limited time to spend with each person. In addition, communication difficulties can make it difficult to learn important social information and preferences. This lack of knowledge about an individual with dementia can make social interactions very difficult and can often contribute to repetitive social interactions. This research aimed to establish if technology could be used to support care staff within their care environment to get to know people with late-stage dementia. The goal was to develop software that can act as an external communication bridge between carers and people with dementia through the creation of simple but effective ‘Portraits’. This thesis investigates the creation and use of multimedia ‘Portraits’ of individuals with dementia that are immediately and easily accessible to care staff. This thesis describes the development of a software tool called Portrait, designed to help staff in care homes quickly get to know a person with dementia as a person. It is intended to be used by the staff in their care environment to gain an initial understanding of that person’s life prior to entering care and to learn more personal information about their needs and habits. The Portrait system contains important but limited personal and social information about the people with dementia. Five key studies were conducted during this research. The first study evaluated the usability of the Portrait system. The second and third were conducted with care managers and staff in the care home setting to assess usefulness and usability of the Portrait system and to compare it to current methods used in the care home environment. The fourth study conducted case studies with families of people with dementia to investigate the Portrait creation process and the final study investigated the placement of these Portraits in the care environment. The results of this research are promising, with Portrait being very positively received by care managers, care staff and the families of people with dementia. This research highlights the potential benefits of technology in the care environment to assist care staff. A number of key areas for future research have been identified including the possibility of expanding the use of the system and using alternative state of the art devices.

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Clear, Mike, of Western Sydney Hawkesbury University, and of Health Humanities and Social Ecology Faculty. "Public discourse personal reality: disablement and a re-search for caring culture." THESIS_FHHS_xxx_Clear_M.xml, 1996. http://handle.uws.edu.au:8081/1959.7/34.

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This thesis explored the lives of carers of disabled people, and the research process itself within the collaborative framework of a support group. It used as its data sources an extensive review of the literature, interview transcripts and fieldnotes from carers, participants from the local service system, and the records of meetings and activities of the Group over 5 years. The study highlights the way public discourse on deinstitutionalisation has so captured our consciousness on care of disabled people that the personal reality of care in the family home has been effectively lost. It traces the disordering discourses of disablement and their link with constructions of caring. The personal reality of care and the isolating nature of this union of caring and disablement was the primary research focus. This may be characterised by social loss, and a lifestyle bound up with disablement which involves a search for a supportive or caring culture. The isolation and exclusion of carers occurs behind the screens of apparently caring institutions such as marriage, family, community and the service system. In the search for a caring cuture carers find their lives bound up with that of state and service systems which offer some hope of a supportive response. Instead they invariably find that the culture is an alien one. The research informed attempts of the Group to explore improved forms of caring culture, and more relevant public policy approaches. The study attempted to bridge the gap between the process of knowledge construction and discourse, and the material experience of carers
Doctor of Philosophy (PhD)

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15

Ratti, Victoria. "Exploring person-centred support in adults with intellectual disabilities and challenging behaviour supported by paid carers in the community." Thesis, University College London (University of London), 2018. http://discovery.ucl.ac.uk/10049834/.

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Background: Deinstitutionalisation and the movement of people with intellectual disabilities (ID) to the community have seen the emergence of care philosophies aimed at tailoring services to individuals’ needs. Person-centred support has been widely advocated and considered synonymous of good care. It is useful to investigate if day-to-day support provided by paid carers in the community is person-centred. / Aims: 1. To explore person-centred support and choice in adults with ID and challenging behaviour. 2. To investigate correlates of person-centred support, including challenging behaviour. 3. To investigate whether the results of self-report questionnaires and direct- observations are comparable. / Methods: 1. Self-report measures of person-centred support typically used by staff supporting older adults with dementia were adapted for use by staff supporting adults with ID and challenging behaviour. A measure of choice availability was also updated. 2. A cross-sectional study of 109 paid carers supporting adults with mild to severe ID was conducted to address aims 1 and 2. 3. Naturalistic observations of eighteen participants with ID were conducted to complement the results of the cross-sectional study. Data was collected using momentary time-sampling and narrative descriptions. / Results: Paid carers reported high levels of person-centred support and choice availability for service-users. No significant associations were found between person-centred support and characteristics of the living environments, however choice availability was significantly higher in supported living compared to residential care homes and in living environments with fewer residents. Carers who reported higher levels of person-centred support experienced less subjective burden in their jobs. There was an association between choice and service-users’ adaptive behaviour. No association was found between person-centred support/choice and global challenging behaviour; stereotyped behaviour however was negatively associated with autonomy and carers’ knowledge of individuals with ID. The findings from the observations showed lower levels of person-centred support than those reported by paid carers, suggesting desirability effects in carers’ responses. Low levels of engagement in meaningful activities, assistance and contact from staff were observed, although there was much variability at the individual level. There were few instances of challenging behaviours and these mostly consisted of stereotyped/repetitive movements which were prevalent in disengaged participants. / Implications: The support for people with ID and challenging behaviour requires improvement but quality evaluation criteria adopted by inspectors and regulators may need to be reconsidered. Improvements in day-to-day support could reduce stereotyped behaviour but input from skilled professionals may be required for other types of challenging behaviour.

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Dance, Cherilyn. "Permanent family placement during middle childhood : outcomes and support." Thesis, University of Bedfordshire, 2005. http://hdl.handle.net/10547/314065.

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Appropriate long-term care arrangements for children whose birth families are unable or unwilling to raise them is one of the most critical issues confronting providers of children's social services. Knowing something of the longer term outcomes of different types of provision, the factors associated with differential outcomes and requirements for additional services will all assist in the development of practice and policy in this field. This document reports on a decade of publications arising from just such an applied programme of research, to which I have made a significant contribution in terms of research design, data collection, analysis of data and dissemination through both publication and other means. These publications represent a unique and original contribution to the field in terms of methodology and the analysis approach, the samples studied and the relevance of the findings to the policy and practice world. The majority of the publications focus on a sample of children placed for permanence during their middle childhoods, that is children placed between the ages of five and eleven years. This cohort was followed-up at one-and six-years after placement. Some of the findings from the early works were then explored in more depth in subsequent publications. The contribution to knowledge that is evidenced by these publications is reinforced by the use of longitudinal and prospective methods to address some of the weaknesses of previous work in this area. By focussing particularly on children placed during middle childhood, the works have added considerably to the knowledge base concerning permanent family placement for children. This is true not only in looking at disruption rates but also in terms of the factors associated with poorer outcomes among continuing placements in the short-and medium-term. In particular, several of the papers draw attention to the identification of what may prove to be a very important experience in the backgrounds of some looked after children -preferential rejection. This term has been coined to describe children who have been 'singled-out', within a sibling group, for negative attention from birth parents and who are alone in entering the care system. Although numbers were relatively small, the association between this experience and poor outcome in the later permanent placement was found to be highly significant, and held across time, within the samples studied. The papers, taken together, have also substantially informed the debate on likely support and intervention requirements of placed children and their new families and at least one of the selected publications has contributed specifically and significantly to government policy making.

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Woodward, E. C. "Foster carer views of education : an exploratory study into what enables foster carers to support the education of children looked after." Thesis, University of Essex, 2009. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.504890.

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This research sets out the key features of a mixed method exploratory design investigation conducted between September 2007 and May 2009 into what foster carers feel enables them to support the education of children looked after. The research concentrates on one quadrant of a large out of London County. Nine foster carers were purposively selected, according to the age and type of children they currently fos.t er, and were then interviewed over a series of seven ' interviews about their views in relation to supporting education and what enables them to do so. The contents of these interviews were transcribed and analysed using inductive thematic analysis at a latent level to identify both common and distinct themes. From this analysis a 1 questionnaire was constructed using in-vivo comments taken from the transcripts. The questionnaire was used to explore the generalisability of these views to the wider foster carer population within the quadrant of the focus local authority (LA). The questionnaire received a 37.1% response rate and possible 'reasons for low responden~ rate are discussed. The findings that came from this research indicate that foster carers feefthat they care and support children looked after (CLA) well, however there is a greater role for the LA to play to enable them to do so in terms of providing specific and relevant support focussing on the carers so that they may iri turn continue to support the education of CLA. The limitations of the research, ideas for future exploration and the implication to the practice of educational psychology are also discussed. Throughout the research the term children looked after (CLA) has been adopted rather than the more usual term looked after children (LAC) to reflect both the terminology used with the focus LA and move within several other authorities to adopt this term.

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Palesy, Debra Lee. "Learning Occupational Practice in the Absence of Expert Guidance: A Case Study of In-Home Disability Support Workers." Thesis, Griffith University, 2016. http://hdl.handle.net/10072/366682.

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How in-home disability support workers adapt what they learn in manual handling classroom training sessions to the circumstances of their work (i.e., their clients’ homes), is central to their own safety and that of their clients. In the in-home work setting there is no “expert” for newly trained workers to closely observe or on whom to model their work practice. A particular concern, therefore, is the degree of transfer or adaptability from classroom training sessions that may assist these workers to enact safe practices, as their musculoskeletal injuries continue to occur at unacceptably high rates. Consequently, understanding how best to support these workers initially learn their occupational practice may offer considerable procedural benefits across the entire arena of working well and safely. Contemporary accounts of learning emphasise the importance of immediate social partners such as teachers and co-workers. Yet, much of our learning for work occurs without such experts. So, we need better understandings of how individuals learn from different educational experiences and adapt what they learn to their practice, and also how this learning occurs in the absence of expert guidance. A case study approach, comprising two separate practical studies, was adopted for this inquiry, which aimed to explore the personal, situational and instructional bases for realising effective learning in the absence of expert guidance. Study A comprised an exploratory investigation in which a community service organisation’s existing manual handling training situation was appraised by way of semi-structured interviews and direct observation of support workers, and a trajectory for learning in situations of relative social isolation was proposed. Study B comprised an intervention, where the proposed trajectory was implemented for a group of new support workers learning manual handling. The effectiveness of this program was appraised, again through semi-structured interviews and direct observation. A reconciliation of both studies led to conclusions about the best ways that learning in relative social isolation may progress.
Thesis (PhD Doctorate)
Doctor of Philosophy (PhD)
School of Education and Professional Studies
Arts, Education and Law
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Hillyer, Rachael. "The support needs of foster carers who look after young people with emotional and behavioural difficulties." Thesis, University of Wolverhampton, 2012. http://hdl.handle.net/2436/297633.

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The poor outcomes of young people leaving foster care are well documented and demand a focus on placement permanency and interventions that encourage stability (Rubin et al, 2007). The need for better support for foster carers is widely acknowledged (Warman, Pallet & Scott, 2006; Morgan & Baron, 2011). To provide effective support an understanding of foster carers support needs is required. A qualitative approach explored the support needs of foster carers who look after young people perceived to have emotional and behavioural difficulties. Semi- structured interviews were undertaken with 17 foster carers employed by a local authority or an Independent Fostering Agency. A grounded theory methodology within a social constructionist framework was used to develop a new theoretical understanding from the data. A central storyline of ‘keeping your head above water’ emerged and appeared to encapsulate daily struggles and ways of managing. Categories which contributed to this were ‘becoming isolated’ from other professionals, ‘role ambiguity’ regarding the multiple meanings attached to being a foster carer, ‘making sense of emotional and behavioural difficulties’ highlighting a need to understand the children cared for, ‘a focus on behaviours’ illuminating approaches to parenting and ‘unmet emotional needs’ which is a possible consequence of focussing on children’s behaviours. The emergent theory may hold potential for developing psychological formulations, interventions and training programmes for foster carers. Suggestions for future support are put forward based on the new theoretical framework. Applications of the findings to Counselling Psychology are discussed in detail.

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Magnusson, Lennart. "Designing a responsive support service for family carers of frail older people using information and communication technology /." Göteborg : Acta Universitatis Gothoburgensis, 2005. http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&doc_number=013142543&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA.

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Pullin, Laynie Dominique Hall. "Living with and providing support to people with spinal cord injury: experiences of long-term family carers." Thesis, The University of Sydney, 2014. http://hdl.handle.net/2123/13698.

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This grounded theory study explores the experiences of partners and other long-term family carers living with and supporting a person with a spinal cord injury. Most research in this area has focused on this experience during the first five years post injury. This study focuses on the experiences of family carers beyond that five-year period. The study aimed to shed light on the daily lives and caring responsibilities of family carers and to explore the extent to which they perceived they were supported by health and social services. Data collection methods included in-depth interviews, a focus group and an online research blog. Data analysis was conducted concurrently with data collection with the goal of developing theoretical conceptualisations of carer experiences. Findings revealed that the experience of long-term caring is all-encompassing and lifelong. This is conceptualised as lifetime, active caring which involves protective, negotiated, surreptitious and strategic caring. This thesis explicates the experiences that are involved for carers in this situation, and the ways in which various aspects of care are interwoven and embedded within the daily lives of carers and their families. The thesis also draws attention to the perceived support needs of long-term family carers in this context.

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O'Rourke, G., C. Pentecost, den Heuvel E. van, C. Victor, Catherine Quinn, A. Hillman, R. Litherland, and L. Clare. "Living with dementia during the COVID-19 pandemic: coping and support needs of community-dwelling people with dementia and their family carers. Research findings from the IDEAL COVID-19 Dementia Initiative (IDEAL-CDI)." Older People and Frailty Policy Research Group, 2021. http://hdl.handle.net/10454/18452.

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Yes
We interviewed people with dementia and carers from the IDEAL cohort to find out how the COVID-19 lockdown and continuing restrictions affected those living with dementia. Some people with dementia coped well, while others coped with difficulty or were only just coping. The additional stress of COVID-19 exacerbated pre-existing coping difficulties. For many, social isolation increased anxiety. Some felt that lack of activity or lack of social contact caused a decline in their abilities to manage everyday tasks. Confusion about COVID-19 rules or difficulty remembering what to do led to anxiety when leaving the house. People felt that members of the public might not understand their particular needs. While some carers felt they were coping well, others experienced stress when having to leave the home because the person with dementia might not be safe if left alone. Some experienced increased strain in the caring relationship compounded by an uncertainty about future availability of respite. Some were concerned about the complex health needs of the person with dementia alongside COVID-19 risk and lack of personalised information. Both people with dementia and carers talked about the importance of access to safe outdoor space. People were anxious about how others would react or behave towards them regarding keeping a distance if they went out. Being connected to friends, family and wider community or support groups was important to help combat the effects of isolation. People from BAME communities worried about their increased vulnerability to the virus. A lack of trust in Government guidance and in health care services added to their anxiety. However, some benefitted from strong community and faith group involvement. What might be helpful for people with dementia? • Reablement to help regain or maintain skills • Personalised health advice regarding managing COVID-19 risk and the opportunity to ask questions. • Identification of people with dementia who live alone and an assessment of their needs. What might be helpful for carers? • Needs assessment in regard to respite. • Novel forms of respite care that incorporate social distancing. What might be helpful for both carers and people with dementia? • Access to COVID-safe outdoor spaces. • Continuation and expansion of ‘just checking’ services. • Support to get online and use the internet. • Communication and information through non-digital means. • Community COVID-19 ‘dementia awareness’ initiatives. What might be helpful for people from Black and minority ethnic groups? • Addressing concerns about their increased risk of COVID-19. • Directing information and support through existing community and faith groups.
This report presents independent research funded by the National Institute for Health Research Policy Research Unit in Older People and Frailty.

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Rohdin, Jeanette, and Åsa Nylander. "Vård- och omsorgspersonals erfarenheter av att använda COAT : Carers Outcome Agreement Tool." Thesis, Högskolan i Borås, Institutionen för Vårdvetenskap, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:hb:diva-20237.

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Antalet anhörigvårdare i Sverige är många. För att de anhöriga ska orka vårda sina närstående 24 timmar om dygnet, sju dagar i veckan behöver det finnas ett stöd. De anhörigstöd som finns varierar från kommun till kommun. Ett anhörigstöd som har utarbetats för att underlätta insatsbehovet är COAT- Carers Outcome Agreement Tool som syftar till att kartlägga anhörigas behov, planera och följa upp anhörigstöd. COAT har en grund i partnerskapsmodellen och i modellen ses den anhörige som experten på situationen runt den närstående. De studier som är gjorda med anhöriga har mycket positiva resultat. Det är få studier gjorda utifrån personalperspektivet därför avsåg vi att undersöka deras individuella erfarenheter utav att använda COAT. Tio stycken kvalitativa intervjuer med personal är utförda i studien och analyserades med hjälp av en innehållsanalys. Fem kategorier trädde fram i analysen och presenteras i resultatet. I kategorierna beskriver vi det som personalen berättat i intervjuerna. Personalen är uteslutande positiva till instrumentet och de anser att det bör användas i större utsträckning. Diskussionen är formad utifrån våra forskningsfrågor och diskuteras med stöd av tidigare forskning. Vi diskuterar olika begrepp och relaterar dem ur personalens synvinkel gentemot den anhörige och dennes familj.
Program: Specialistsjuksköterskeutbildning med inriktning mot distriktssköterska

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Brooks, Deborah Jane. ""Bereavement without death": Improving psychosocial support of spousal family carers of people with dementia following placement into residential care." Thesis, Queensland University of Technology, 2020. https://eprints.qut.edu.au/201748/1/Deborah_Brooks_Thesis.pdf.

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This research explored the support needs of Australian spousal carers of people with dementia following residential care placement and piloted an evidence-based intervention to improve psychosocial outcomes. Overall, findings indicate that many spouses report high levels of stress, depression, guilt, and grief, but have not received any formal dementia education, counselling nor attended support groups. The pilot study found the Residential Care Transitions Module (developed in the US) to be feasible within an Australian context, with promising findings regarding acceptance of loss. The research adds to the evidence-base regarding the need for, and potential of, psychosocial interventions to improve support to spousal dementia carers post-placement.

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Simon, Chantal Anne Else. "Does amount and satisfaction with community support affect outcome for informal carers of stroke patients in the community?" Thesis, University of Southampton, 2007. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.445489.

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Johl, Nicholas. "Support needs and service provision for family carers from Black and minority ethnic communities within the United Kingdom." Thesis, University of Warwick, 2013. http://wrap.warwick.ac.uk/58611/.

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Chapter one is a literature review of the experiences of carers from Black and ethnic minority communities caring for someone with dementia in the United Kingdom. Critical analysis of eight articles revealed that carers viewed symptoms of dementia as a normal process of ageing. Furthermore, the carers perceived their role as an extension of an existing responsibility to provide care and support for their family member. The literature review highlighted the majority of carers being female and stigma of a family member having a mental health issue still influenced carers’ willingness to engage in formal health services. Chapter two is an exploration of the experiences that staff within alcohol services have had whilst providing support to relatives of alcohol dependent individuals from the Sikh community. Ten staff members were recruited to take part in semi-structured interviews. Thematic analysis was conducted on the derived data, eliciting a number of themes illustrating the nature of familial support provided for someone who is alcohol dependent, the pro-social attitude towards alcohol held by Sikh family members, a lack of understanding regarding addiction and the confidential nature of alcohol services. This article provided evidence of inter-generational differences between Sikh family member’s knowledge of addiction and the expectation of alcohol services. Lastly, the present study identified variations in how alcohol services target and tailor their services in specific ways to meet the needs of Sikh family members of someone with alcohol dependence. Chapter three is a reflective article on the process of conducting the empirical research. The article addressed reasons why the lead researcher conducted research in this area and considers the effects of participant experiences of working with Sikh family members of someone with alcohol dependence. This chapter also discusses the lead researcher’s relationship with participants and how the research process impacted on the lead researcher’s personal life.

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Pleschberger, Sabine, Elisabeth Reitinger, Birgit Trukeschitz, and Paulina Wosko. "Older people living alone (OPLA) - non-kin-carers' support towards the end of life: qualitative longitudinal study protocol." Springer Nature, 2019. http://dx.doi.org/10.1186/s12877-019-1243-7.

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Background: A growing number of older people, mainly women, live in single households. They represent avulnerable group as staying at home may turn out challenging when care needs increase, particularly at the end oflife. Non-kin-carers can play an essential role in supporting individuals' preferences to stay at home. In research Little attention has been paid to non-kin-carers, such as friends and neighbors, yet. Thus, the Older People Living Alone (OPLA) study will evaluate whether non-kin support is robust enough to enable care dependent people to stay athome even at the end of life. This paper aims to introduce the research protocol. Methods: We plan to apply a qualitative longitudinal study to better understand how older people living aloneand their non-kin-carers manage to face the challenges with increased care needs towards the end-of-life. We willconduct serial interviews with the older persons living alone and their non-kin-carers. A total of 20-25 completedata sets and up to 200 personal interviews were planned. These will be complemented by regular telephonecontacts. All interviews will be analysed following the grounded theory approach and strategies for reconstructingcase trajectories, supported by MAXQDA software. In the course of the study, inter- and transdisciplinary workshopsshall assure quality and support knowledge transfer. Discussion: This study protocol aims to guide research in a field that is difficult to approach, with regard to itstopic, methodology and the interdisciplinary approach. As this study introduces longitudinal qualitative Research methodology in the field of home care in Austria, a deeper understanding of (end-of-life-) care trajectories will beenhanced, which is of major relevance for future care planning. With investment in additional reflexivity andcommunication procedures innovative results and robust knowledge are expected outcomes.

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Bechara, Isabelle, and Patricia Saliba. "Mentorsfamiljer som stöd till familjehemsföräldrar : En kvalitativ intervjustudie om familjehemsföräldrars upplevelser av projektet Mentorsfamiljer." Thesis, Stockholms universitet, Institutionen för socialt arbete, 2021. http://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-195508.

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This study aims to examine how foster carers involved in the project Mentoring families experience the project overall, the support they receive and how they describe that the project has been put into practice. The data was collected by using qualitative interviews with six participants in the project, two mentoring families and four linked foster carers. The results have been analysed through a thematic analysis and then interpreted via the theoretic ideas about social support from peers. The study finds that foster carers have a positive experience of the project and that the support they receive is something they consider to be valuable for the role as foster carers. Another finding is that the project seems to be able to contribute to increased support. The results also show that the mentoring families have an important role for the possibility of putting the project into practice. The results indicate that some of the functions within the project were not implemented as fully as others, such as the network and planned sleepovers. Apart from these findings the study presents plausible risks about the project Mentoring families concerning the support given by non-professionals.
Mentorsfamiljer

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Grant, Karra Janet. "Lifestyle behaviour change in adults with intellectual disabilities : an exploratory investigation of carers’ causal attributions and motivation to support change." Thesis, University of Glasgow, 2012. http://theses.gla.ac.uk/3613/.

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Abstract Background: Carers and families have a key role in supporting adults with intellectual disabilities to make lifestyle behaviour changes. This study explores paid and family carers’ motivation to support change and their attributions around physical activity choices in the individuals that they support. Methods: A between subjects questionnaire design, using two questionnaires adapted specifically for this study, was used to investigate carers’ motivation to support behaviour change and explore how this related to their attributions of physical activity choices. The influence of gender, age and level of intellectual disabilities of the individual that the carer supports were examined. Results: 18 carers participated in the study. There was evidence to suggest that carers’ motivation to support change and attributions were correlated. In addition, motivation and attributions were related to age and level of intellectual disabilities of the individual supported by the carer. Conclusion: Carer attributions might present a barrier to motivation to support change. This may indicate a training need for carers. Further research is required to further explore carer attributions and to further examine the utility of the questionnaire measures adapted for this study.

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Sines, David Thomas. "Valuing the carers : an investigation of support systems required by mental handicap nurses working in residential services in the community." Thesis, University of Southampton, 1991. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.305651.

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Whitney, Jenna Beth. "Providing support to carers : an evaluation of individual and multiple family interventions for adult patients with anorexia nervosa and their caregivers." Thesis, King's College London (University of London), 2006. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.436039.

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Bromley, Leslie Andrew. "How do carers of people with an intellectual disability with dementia experience their role and the support they receive through services?" Thesis, University of Exeter, 2014. http://hdl.handle.net/10871/16367.

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Background: People with an intellectual disability often require carers to provide assistance in their basic living needs and to help them achieve the best quality of life possible. The increased prevalence of dementia in people with an intellectual disability over recent years has prioritised the importance of research into the impact this has had on people with an intellectual disability with dementia, their carers, and their support services. There has been a lack of qualitative studies investigating the experiences of carers for people with an intellectual disability and dementia and their perceptions of services that support them to carry out their role. These carers fulfil an important need within the community and this study explored family and paid carers’ experiences of caring for people who have an intellectual disability with dementia. Method: This paper describes a qualitative study that used semistructured interviews to investigate both paid and family carer’s experiences of caring for people with an intellectual disability with dementia. Face-to-face interviews were conducted with 12 carers and the resulting data were analysed using thematic analysis. Results: The analysis generated 9 meta-themes including a carer’s identity, transitions in the carer experience, self-care, difficulties in caring, changes to services, recommendations for change, barriers to accessing carer support, sources of support and resources, and sharing carers’ best practice. Conclusions: The implications of the results are discussed and recommendations for future research are provided.

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Clear, Mike. "Public discourse personal reality: disablement and a re-search for caring culture." Thesis, View thesis View thesis, 1996. http://handle.uws.edu.au:8081/1959.7/34.

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This thesis explored the lives of carers of disabled people, and the research process itself within the collaborative framework of a support group. It used as its data sources an extensive review of the literature, interview transcripts and fieldnotes from carers, participants from the local service system, and the records of meetings and activities of the Group over 5 years. The study highlights the way public discourse on deinstitutionalisation has so captured our consciousness on care of disabled people that the personal reality of care in the family home has been effectively lost. It traces the disordering discourses of disablement and their link with constructions of caring. The personal reality of care and the isolating nature of this union of caring and disablement was the primary research focus. This may be characterised by social loss, and a lifestyle bound up with disablement which involves a search for a supportive or caring culture. The isolation and exclusion of carers occurs behind the screens of apparently caring institutions such as marriage, family, community and the service system. In the search for a caring cuture carers find their lives bound up with that of state and service systems which offer some hope of a supportive response. Instead they invariably find that the culture is an alien one. The research informed attempts of the Group to explore improved forms of caring culture, and more relevant public policy approaches. The study attempted to bridge the gap between the process of knowledge construction and discourse, and the material experience of carers

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Morris, Katharine Clare. "Psychological distress in carers of head injured individuals : ways of coping, locus of control, social support and the provision of written information." Thesis, University of Edinburgh, 1998. http://hdl.handle.net/1842/26792.

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Since the early 1970's researchers have expressed concern about the emotional well being of family members after traumatic brain injury (TBI) and it is now widely acknowledged that TBI has long term effects on the patient and relatives alike. Researchers have found a substantial number of relatives caring for head injured patients to show significant levels of anxiety and depression and have emphasised the need for information for relatives on the prognosis of head injury. There are, however, very few studies that have investigated the usefulness of giving literature to relatives. Using a longitudinal, mixed variable, within and between subject design, the present study investigated the effect of an information booklet on levels of distress in a group of 35 carers of individuals with TBI. The role of individual coping strategies, locus of control and social support were also considered. The participants were either caring for someone two to nine months post injury (early) or one or more years post injury (late). This allowed for the hypothesis that those carers in the early group would show a greater reduction in psychological distress than those in the late group. In addition, the influence of coping strategy, social support and individual locus of control were examined. These results are discussed and the proposal made that an information booklet such as the one used in the present study should become an integral part of the discharge procedure for relatives of individuals who have sustained a head injury.

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McClenahan, Roshan. "Distress in the carers of acute and chronic stroke patients : the role of illness perceptions, coping, social support, dispositional characteristics and patient factors." Thesis, King's College London (University of London), 2003. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.397990.

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Davidson, Sarah Katherine. "An action research enquiry in one unitary local authority about how to support young carers in schools using recommended guidelines for good practice." Thesis, University of Birmingham, 2009. http://etheses.bham.ac.uk//id/eprint/377/.

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Young carers are young people under the age of eighteen who provide substantial amounts of care on a regular basis to another family member. Over the past ten years there has been a growing awareness within societal agendas about the potential vulnerability of this group in terms of educational, emotional and social outcomes, and recommended guidelines for good practice with young carers have been produced for schools (e.g. Frank 2002). This thesis is an account of an episode of action research, undertaken by an educational psychologist in her employing local authority, which explores the perceptions of key stakeholders (adults in schools, children and young people and young carers) about selected recommendations for good practice and how they can be implemented in schools. The thesis considers the salutogenic aspects of the recommendations and the findings indicate that all stakeholder groups are broadly positive about the guidelines and their value in fostering mechanisms for social support for young carers. The thesis also considers the role of the educational psychologist as an external change agent and the efficacy of “one-off” training in schools regarding this topic. The findings suggest that whilst the training may have prompted further action within the majority of schools, the good practice guidelines need to become part of a school’s “organisational architecture” (Senge et al 2000) in order to become embedded in a school’s procedures.

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Gundersen, Nicola. ""We do have a role in the education part!": an exploratory study of how foster carers support the education of looked after children." Thesis, University of Essex, 2014. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.654429.

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It is has been consistently highlighted over the past 20 years, that children in public care fall behind at school, often do not achieve good qualifications, and are much less likely than their peers to go on to further or higher education (Martin & Jackson, 2002). It is widely recognised that if pupils are to maximise their potential from schooling they will need the full support of their parents (Desforges & Abouchaar, 2003). Furthermore, research has consistently shown that parental involvement in children's education does make a positive difference to pupils' achievement (DCSF, 2008). However to date, there is little existing research into how foster carers support education. The aim of the present study was to explore how foster carers support the education of looked after children (LAC). A qualitative methodology was employed and the data analysed using grounded theory. Research participants were registered foster carers with a minimum of 12 months experience and currently fostering at least one school aged child. A total of 6 foster carers were interviewed via face to face semi-structured interviews. Foster carers were provided with the choice of being interviewed within the LA's main office or at home. Each foster carer chose to be interviewed at home. Find ings illustrated the importance of how foster carers' perceive their role and how this impacts upon how they take up their role in education. The implications of the present study's findings for the Local Authority and the Educational Psychology Service are discussed.

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Jarrold, Karen. "How do carers of people with early episode psychosis cope and adjust? : to what extent do demographics, social support, appraisals and coping predict distress?" Thesis, University of Oxford, 2006. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.437398.

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Häggvik-Sundgren, Kerstin, and Helen Long. "Den tysta omsorgen : - Om anhörigstöd ur ett rättsvetenskapligt perspektiv." Thesis, Stockholm University, Department of Social Work, 2008. http://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-26244.

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The aim of the study was to examine the background and prerequisites for social services responsibility for carers according to the carers’ section in the Social Services Act. How the legislation is perceived and implemented in practice was also studied. The study’s theoretical basis was jurisprudence and the sociology of law. Preparatory work and other sections of importance for the interpretation of the carers’ section in the Social Services Act were also scrutinized. Interviews with four municipal politicians and four local civil servants were conducted. Various factors which affect the prerequisites for the social services duty of care towards carers were identified in the study. By studying the direct effects of legislation various indirect effects were also highlighted. The results showed that legislation is a weak instrument of control in municipalities’ planning and implementation of support for carers. Therefore social services responsibility for carers is unclear and imprecise. For carers themselves it is difficult to know what support they can demand or ask for from social services – municipalities have to offer support for carers but the carers’ section does not give carers any legal right to support.

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Jedholt, Anneli. "Samtal som stödintervention inom palliativ vård : Närståendes erfarenheter." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-4828.

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Bakgrund: Närstående inom palliativ vård har en viktig roll som patientens språkrör och funktion att upprätthålla patientens identitet. De antar ofta rollen som vårdare vilket är förknippat med många negativa känslor som ångest, rädsla, oro och sorg. Närståendes behov kan vara så stora att de överträffar patientens. Det är viktigt att närstående involveras i vården och att de får stöd i sin situation för att minska de negativa konsekvenserna. Stödsamtal kan utgöra en avgörande skillnad mellan en orimlig situation till en situation som är hanterbar. Stödinterventioner har dock begränsad evidens för långsiktiga resultat. Kunskapen om närståendes erfarenheter från stödsamtal är liten. Syfte: Att undersöka närståendes erfarenheter från en samtalsintervention inom palliativ vård. Metod: Beskrivande och tolkande design. Datainsamlingsmetoden är kvalitativ forskningsintervju. För analysen användes kvalitativ innehållsanalys. Resultat: Initialt var närstående skeptiska mot stödsamtal som kändes nytt och främmande men ansåg efteråt att samtalen var nödvändiga och att de borde vara obligatoriska inom palliativ vård. Det kändes viktigt att få prata med någon som kände till patienten och visste hur familjesituationen såg ut. Samtalen gav tid för reflektion där man dels pratat om existentiella frågor, dels om relationer och olika praktiska saker. Samtalen gav också vägledning för hur situationen kunde hanteras såväl under som efter vårdtid samt för att kunna gå vidare i livet. Diskussion: Resultatet diskuteras mot pendlingsmodellen där sorg ses som en stressor i en process som kan hanteras genom förlustorientering eller återhämtningsorientering och pendlingen däremellan. Samtalen har handlat om saker som kan ses vara förlustorienterande samtidigt som de handlat om andra saker som kan ses vara återhämtningsorienterande.
Background: In the context of palliative care, family carers have an important role to play as the patients spokesperson and help maintain the patients identity. They often take on the role as nursing carer which often is associated with many negative feelings such as anxiety, fear, concern and a sense of bereavement. Family carers need for support may be so great that they exceed the needs of the patient. It is important to involve family carers in caring and to support them in their situation in order to decrease negative consequences. Counseling support could make a crucial difference between an unreasonable and a manageable situation. However, there is limited evidens to the longterm impact of support interventions. Knowledge of family carers experiences of counseling support is limited. Aim: To examine family carers experiences of a counseling support intervention in palliative care. Method: Descriptive and interpretive research design. Qualitative research interviews used for data collection. Qualitative content analysis used for data analysis. Results: Initially the family carers were skeptical about counseling support which felt new and strange but afterwards felt necessary and ought to be mandatory in palliative care. It felt important to talk to someone who knew the patient and who knew the family situation. Counseling gave time for reflection where they both talked about existential questions, relationships and different practical tasks. Counseling also gave guidance on how to handle the situation during and after caring and to move on in life. Discussions: The results are discussed in the context of the dual process modell where bereavement is a stressor that can be coped with a loss orientation or restoration orientation and the oscillation in between. The counseling has focused on tasks that could be seen as lossorientated and at the same time on tasks that could be seen as restoration-orientated.

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Zapata, Pon Milagros. "Anhörigas upplevelse av stöd genom sjukdomsförloppet vid demenssjukdom." Thesis, Linnéuniversitetet, Institutionen för hälso- och vårdvetenskap (HV), 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-48646.

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Bakgrund: Allt fler kommer drabbas av demenssjukdom och fler anhöriga kommer påverkas av att bli vårdande anhörig. Tidigare studier har visat att anhöriga behöver stöd under den period som de vårdar sina närstående med demenssjukdom. Att vara anhörig till en närstående som är demenssjuk påverkar anhörigas hälsa och välbefinnande. Hälso- och sjukvårdspersonal finns tillgänglig under hela perioden: från diagnos till flytten till ett boende. Det har även noterats om vikten med informella personers stöd. Nationella riktlinjer finns sedan tidigare om att stötta och erbjuda utbildning till anhöriga i deras situationer, men det är oklart huruvida detta uppfylls. Hälso- och sjukvårdpersonal innehar kunskap men det noteras en brist på förståelse för den situation anhöriga befinner sig i såväl som vårdande anhörig i ordinärt boende som efter flytten till äldreboende. Syfte: Syftet med studien var att belysa anhörigas upplevelser av formellt och informellt stöd genom sjukdomsförloppet vid demenssjukdom. Metod: Studien är en kvalitativ intervjustudie där sju anhöriga, som tidigare varit vårdande anhöriga men som nu har närstående boendes på äldreboende, intervjuats. Intervjuerna var semistrukturerade och analys genomfördes med hjälp av kvalitativ innehållsanalys. Resultat: Resultatet visade att stöd och utbildning inte endast behövs i början av demenssjukdomen när diagnos ställs utan är något som kontinuerligt behöver erbjudas under processens gång och ges till anhöriga. Ett stöd var av vikt även efter flytten till ett boende. Det framkom även att kommunikation och kompetensutveckling i form av utbildning kring demenssjukdomen är en viktig del för att kunna förbättra relationen mellan hälso- och sjukvårdspersonal och anhöriga. Brist på kommunikation och en dålig relation mellan anhöriga och hälso- och sjukvårdspersonal ledde till psykisk ohälsa och lidande för anhöriga. Informellt stöd i form av grannar och familj var av stor betydelse för anhöriga. Slutsats: Det finns en viktig del som specialistsjuksköterska/sjuksköterska kan göra vilket var bland annat att ge kunskap till anhöriga och till personal om demenssjukdom under hela processen. Det kan förbättra ett bemötande och skapa en god relation med anhöriga, men det kan även ge mer kvalité till vården och genom detta ge trygghet till anhöriga. Genom tillämpning av relationscentrerad vård tillsammans med personcentrerad vård kan det ge stöd och delaktighet till anhöriga. Det var viktigt att stödet var individualiserat för anhöriga och att hälso- och sjukvårdspersonal får en förståelse för deras situation och de känslor de har.
Background: More people will be diagnosed with dementia and more relatives will be affected and become informal carers. Previous studies show that informal carers need support during the period they care for their relative with dementia. To be an informal carer to a next-of-kin affects the carers’ health and well-being. Healthcare staffs are available during this whole period: from diagnosis to the placement at a nursing home. It has also been noted of the importance of informal persons support. There are national guidelines about support and to offer education to informal carers in their situation, but it is unclear how this is fulfilled. Healthcare staff beholds knowledge but there is noted a lack of understanding for the situation informal carers are in, both during the time of caring and after the move to a nursing home. Aim: The aim of the study was to illuminate informal carers experiences of formal and informal support through the course of the dementia-disease. Method: The study is a qualitative interview study, where seven informal carers were interviewed. The informal carers had previously been carers, before their relatives moved in to a nursing home. Semi-structured interviews were conducted and were analyzed with qualitative content analysis. Result: The study show that the support and education is not only needed in the beginning of the dementia disease when the diagnosis is set, but support needs to be offered continuously and given to informal carers during the whole disease trajectory. Support is needed even after the move to a nursing home. It has been shown that communication and developing competence in forms of education about dementia is an important part to improve the relationship between informal carers and healthcare staff. Lack of communication and a bad relationship between relatives and healthcare staff led to mental ill health and suffering for the relative. Neighbours and family members gave informal support, and this was of importance for the informal carer. Conclusion: There is an important part that specialized nurses/nurses can do and that is to give or offer knowledge to informal carers and to healthcare staff about dementia during the whole process. It can improve the treatment of patients with dementia and their informal carers and through this create a good relationship and the feeling of safety, and also improve the quality of care. By applying relationship-centred care with person-centred care can give the feeling of support and participation to informal carers. It is also of importance that support is individualized for relatives and that healthcare staff has an understanding for their situation and the emotions they have.

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Larsson, Löthman Anna. "Anhörigvårdares hälso- och relationsperspektiv : tre intervjuer om hur samtal i anhöriggrupper påverkat deras vardag." Thesis, Högskolan i Gävle, Akademin för utbildning och ekonomi, 2011. http://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-9452.

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Syftet med undersökningen var att ta reda på hur anhöriga resonerar kring att deras (o)hälsa har förbättras eller inte vid medverkan i en kommuns anhöriggrupper. I bakgrunden presenteras bland annat tidigare forskning som visat att anhörigvårdare har en sämre upplevd hälsa än de som inte vårdar och att behovet av att ventilera sina känslor är stort. Vidare presenteras att vi lär oss genom kommunikation och samspel med andra människor. Det har gjorts tre kvalitativa intervjuer med anhörigvårdare som medverkat i en kommuns anhöriggrupper. Två intervjuer har gjorts på en kommuns anhörigcenter och en intervju har gjorts i en av informantens hem. Två av informanternas anhöriga har gått bort och en av informanternas anhöriga lever än. Resultatet visar att ett anhörigcenter är en viktig del i anhörigvårdarnas liv för att de ska må bra. De medverkandes psykiska hälsa har förbättrats och de har insett vikten av att ta hand om sig själva och inte bara den sjuka. Anhörigvårdarna värdesätter gemenskapen och personerna i grupperna högt och anser att det är tack vare dem som de orkar med vardagen.

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Sköllerud, Emelee. "Avlösning i hemmet, på vilka premisser? : En kvantitativ studie om hur avlösning i hemmet erbjuds till personer som vårdar demenssjuka närstående." Thesis, Linnéuniversitetet, Institutionen för socialt arbete (SA), 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-51240.

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The aim of this study was to identify differences in how the service respite care in ordinary housing is offered to people who are caring for or supporting relatives with dementia in nine municipalities in a region in southern Sweden. The study has focused on organizational factors that may affect the use of the service and the theoretical aspects of professional discretion and assessment principles in social work. To examine this, data was collected from a semi-structured survey (n = 59) directed to assistance officers and chief managers. Secondary quantitative data from a mapping of the nine municipalities support for people with dementia and their relatives was also included in the study. The methods used to analyse data were statistical analysis and quantitative content analysis. The span between equal and individual care have been studied to gain perspective on how local assistance officers and chief managers can adapt the availability and configuration of the service, in relation to the guidelines and the individual's needs. The results of the study show that there are differences in how municipalities offer respite care in ordinary housing for the informal carers and on what grounds they have access to it. There are also differences in the range of the service in some of the municipalities. Respondents estimate that they have wide professional discretion to adapt the service to individual needs, while they feel that the municipality's guidelines should be followed. Furthermore, the results show that use of the service is relatively low in the studied municipalities. To increase the use, respondents believe that security, confidence and trust are especially important in the relationship between the staff in home care services and the carers.

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Khapova, Svetlana Nikolaýevna. "Careers in the knowledge economy and the web-based career support new challenges and opportunities /." Enschede : University of Twente [Host], 2006. http://doc.utwente.nl/57123.

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Brooks, Alice. "A narrative enquiry of experienced family carers of people with dementia volunteering in a carer supporter programme." Thesis, Royal Holloway, University of London, 2011. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.588521.

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Peer support involves matching people in need of support with volunteers who have been in a similar situation. Whilst motivations and positive and negative aspects of general volunteering have been noted in the literature, little is known about the impact of providing peer support in the context of personal experiences of caring for someone with dementia. The aim of this study was to use rich, detailed case studies to build narratives of the impact of being a carer supporter. Participants were experienced carers of a person with dementia (either current or former), matched in a programme with newer dementia carers for a ten month period. The aim of the programme was to improve a sense of self-efficacy and competence in the newer carer through encouragement and positive reinforcement of carer skills development and carer network building activities. Eight carer supporters from two London Boroughs took part m semi-structured interviews. These were subject to a narrative analysis, focusing on structural components of the narratives, themes, and the influence of the wider socio-cultural context.

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Ciganovic, Renato. "Supportability Engineering in Wind Power Systems - Who Cares? : Considering important stakeholders and their requirements." Licentiate thesis, Linnéuniversitetet, Institutionen för teknik, TEK, 2011. http://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-14087.

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Wind power is one of the fastest growing energy sources, which have advantages in terms of delivering clean, cheap and fast energy. Many actors and organizations have realized this potential, which has lead to exponential growth of the wind power over recent couple of years. Despite promising future of clean and green energy through wind there are still areas to be improved to tackle main hinders for further development on a larger scale. The larger scale development of wind power has up-to-date been reached in only few countries such asDenmarkandGermany. The most potential can be found through offshore wind turbines due to, among other, lesser height and noise restrictions than inland wind turbines as well as better wind resources. This thesis is mainly characterized by the mixed-method method, which is in its turn characterized by mixing different research methods such as induction, deduction and abduction as they might be suitable to apply during the different stages of the research process. In this thesis the system approach will be considered to model the scope of this study’s context. As this thesis was constructed as a theoretical study the systematic literature review was used as the main source for data collection. The synthesis of the reviewed articles was initially performed in a broad manner to show overall picture of research related to the scope of this thesis. In the following step, the adopted LCM tool was used to extract study specific data from the reviewed and additional articles. This enabled to link some of the current problems, in wind power area, and ‘unfulfilled’ stakeholder requirements. This thesis aim was to identify important stakeholders and to address their respective requirements within the scope of supportability engineering applied in the wind power context, particularly stakeholder requirements that have not been considered by previous research. The purpose of it was to compare different requirements with current issues in the wind power sector. Conducted systematic literature review showed significant and costly (development) issues related to the supportability engineering such as reliability, availability, maintainability, accessibility problems etc. This was fully in line with the stakeholders’ requirements, which in several cases demanded higher dependability i.e. availability performance and its influencing factors. The thesis also included definition of supportability engineering framework, through comparing several widely accepted and standardized theoretical concepts. This comparison enabled definition of more focused approach with requirements on the ‘supported system’ and to lesser extent the ‘support system’. These requirements are usually mixed within the different theoretical concepts. The main findings from this study are that application of supportability engineering framework would lead to earlier identification of important stakeholders and their requirements. Considering these requirements, for instance availability and maintainability of the wind turbines, at earlier stages of the life cycle through better design and improved supportability infrastructure could potentially decrease amount of current problems in the wind energy sector in particular for the offshore part. Another result was that different stakeholders and their requirements were identified. Thesis contribution overall was a new ‘refined approach’ to deal with supportability issues through supportability engineering framework, whose main focus is the ‘supported system’.

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Raymond, Danielle R. "Who Cares? Social Support and Social Network in Depression." Case Western Reserve University School of Graduate Studies / OhioLINK, 2015. http://rave.ohiolink.edu/etdc/view?acc_num=case1428063501.

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Hren, Stephen Frank. "A Multicase Study of the Impact of Perceived Gender Roles on the Career Decisions of Women in Science-Related Careers." DigitalCommons@USU, 2012. https://digitalcommons.usu.edu/etd/1415.

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The purpose of this study was to determine how perceived gender roles developed throughout childhood and early adulthood impacted the career decisions of women in science-related career fields. An additional purpose was to determine if my experiences as I analyzed the data and the propositions discovered in the study would become a transformative agent for me. A multicase framework was utilized so that within and between case analyses could be achieved. Four women who showed early promise in science were chosen as the case study participants. The relationship of gender roles to the career decisions made by the four cases were arbitrated through three areas: (a) supports, which came from parents, immediate family members, spouses, teachers, mentors, and collaborators; (b) opportunities, which were separated into family experiences and opportunities, school and community opportunities, and postsecondary/current opportunities; and (c) postmodern feminism, which was the lens that grounded this study and fit well with the lives of the cases. As seen through a postmodern feminist lens, the cases’ social class, their lived experiences tied to their opportunities and supports, and the culture of growing up in a small rural community helped them develop personas for the professions they chose even where those professions did not necessarily follow from the early promise shown for a sciencerelated career. In addition, as related to my transformation as a male researcher, being a male conducting research in a realm most often shared by women, I was able to gain greater empathy and understanding of what it takes for women to be successful in a career and at the same time maintain a fruitful family life.

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French, Judith. "Support of marginalized students in science: An examination of successful lesbian individuals in science career paths." The Ohio State University, 2009. http://rave.ohiolink.edu/etdc/view?acc_num=osu1249396616.

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Barnett, Belinda. "The impact of organisational support for career development on intrinsic career success /." [St. Lucia, Qld.], 2006. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe19300.pdf.

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Dissertations / Theses on the topic 'Support for carers'

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