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Relevant bibliographies by topics / Seriously ill child

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Academic literature on the topic 'Seriously ill child'

Author: Grafiati

Published: 4 June 2021

Last updated: 10 February 2022

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Journal articles on the topic "Seriously ill child"

1

ALLEN, LaRUE, and EDWARD ZIGLER. "Psychological Adjustment of Seriously Ill Children." Journal of the American Academy of Child Psychiatry 25, no. 5 (September 1986): 708–12. http://dx.doi.org/10.1016/s0002-7138(09)60299-5.

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Ward, Cynthia, Nel Glass, and Rosemary Ford. "Care in the home for seriously ill children with complex needs." Journal of Child Health Care 19, no. 4 (June 30, 2014): 524–31. http://dx.doi.org/10.1177/1367493514538327.

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This article reviews contemporary literature on home care of the seriously ill child with complex care needs and the sick child/parent dyad. The literature search revealed three major themes, namely the increasing acuity of child illness, the evolving role of the parent as care provider, and the health professional as care provider. While there is much known about the complexity of care of children and the role of family in that care, little is known about what families require in terms of support and sustenance during the long years of care provision.

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Hill, Douglas L., Pamela G. Nathanson, Karen W. Carroll, Theodore E. Schall, Victoria A. Miller, and Chris Feudtner. "Changes in Parental Hopes for Seriously Ill Children." Pediatrics 141, no. 4 (March 22, 2018): e20173549. http://dx.doi.org/10.1542/peds.2017-3549.

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4

Davidson, Lindy Grief. "Poems from the Deep." Departures in Critical Qualitative Research 10, no. 3 (2021): 57–64. http://dx.doi.org/10.1525/dcqr.2021.10.3.57.

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Conducting research in a familiar site of crisis brings about feelings of resonance between a researcher and participants. After 11 months of shadowing a pediatric palliative care team and 20 interviews with parents and grandparents of seriously ill children, the author, also the parent of a medically complex child, searched for creative ways to explore her findings. In this exploration of life as the parent of a seriously ill hospitalized child, the researcher reflects on her participants’ and her own collective experiences and frustrations in the form of poetry.

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REEVES, J. H., W. B. BUTT, and A. S. SATHE. "A review of venovenous haemofiltration in seriously ill infants." Journal of Paediatrics and Child Health 30, no. 1 (February 1994): 50–54. http://dx.doi.org/10.1111/j.1440-1754.1994.tb00566.x.

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Kelly, Katherine P., Kathleen A. Knafl, Susan Keller, and Pamela S. Hinds. "Thematic expansion: A new strategy for theory development." Western Journal of Nursing Research 43, no. 10 (February 3, 2021): 962–71. http://dx.doi.org/10.1177/0193945920984795.

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We developed and applied metasynthesis methods to expand previously reported thematic descriptions of parents’ internal definition of “being a good parent to my seriously ill child” as part of a larger study to examine parenting of children with serious illness. Our systematic approach included: literature search, purposeful selection of grounded theories regarding parenting a seriously ill child, study summaries, mapping evidence of good parent themes onto structural elements of grounded theory, cross-study comparisons, and theoretical memoing to summarize analytic insights. Twenty-five grounded theory studies from 32 reviewed reports reflected multiple conditions (n=5), countries (n=10) and family members (n=386 families). We report a worked example of the processes used to extend the original good parent themes and detail our processes through one good parent theme. The methods we describe are a promising approach to extend thematic analysis findings and advance thematic expansions toward development of more formal theoretical syntheses.

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Miraie, Emily D., and Mary B. Mahowald. "Withholding nutrition from seriously ill newborn infants: A parent's perspective." Journal of Pediatrics 113, no. 2 (August 1988): 262–65. http://dx.doi.org/10.1016/s0022-3476(88)80262-2.

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Reed, Michael D., Robert M. Kliegman, Joel S. Weiner, Marian Huang, Toyoko S. Yamashita, and Jeffrey L. Blumer. "The Clinical Pharmacology of Vancomycin in Seriously Ill Preterm Infants." Pediatric Research 22, no. 3 (September 1987): 360–63. http://dx.doi.org/10.1203/00006450-198709000-00024.

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Siew, Lawrence, Allen Hsiao, Paul McCarthy, Anup Agarwal, Eric Lee, and Lei Chen. "Reliability of Telemedicine in the Assessment of Seriously Ill Children." Pediatrics 137, no. 3 (February 5, 2016): e20150712. http://dx.doi.org/10.1542/peds.2015-0712.

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Koivula, Krista, Hannu Kokki, Maija Korhonen, Aarno Laitila, and Kirsi Honkalampi. "Experienced dyadic emotion regulation and coping of parents with a seriously ill child." Couple and Family Psychology: Research and Practice 8, no. 1 (March 2019): 45–61. http://dx.doi.org/10.1037/cfp0000115.

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Dissertations / Theses on the topic "Seriously ill child"

1

Wells, Beth Sue. "The use of the Haak Sentence Completion Measure and the Child Behavior Checklist/Teacher Report Form by school psychologists in the identification of students with serious emotional disturbance /." Full text (PDF) from UMI/Dissertation Abstracts International, 2000. http://wwwlib.umi.com/cr/utexas/fullcit?p3004400.

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Raymond, Kathryn Y. "Parents Caring for Adult Children With Serious Mental Illness: A Qualitative Descriptive Study: A Dissertation." eScholarship@UMMS, 2016. https://escholarship.umassmed.edu/gsn_diss/40.

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The purpose of this study was to examine parents’ management styles when caring for adult children with serious mental illness (SMI), as well as parents’ perspectives on what type of community-based mental health interventions would support and/or enhance overall family functioning. This qualitative descriptive study was undergirded by Knafl and Deatrick’s Family Management Style Framework. Thirty parents (N = 30) caring for adult children with SMI over age 18 were recruited as participants. Demographic data included age, gender, ethnicity, educational level, annual income, and National Alliance on Mental Illness membership. Parents were interviewed in their homes or other private setting. Verbal informed consent was obtained. Audio-recorded, individual, semistructured interviews were conducted until redundancy was achieved. Data were analyzed using qualitative content analysis. Four major themes emerged from the data. These themes described prolonged, difficult, and confusing phases that parents and the family undergo in caring for an adult child with SMI. These phases have a progressive nature, moving from parents recognizing that their child has a SMI to redefining family life as a result of caring for an adult child with SMI. Successful management of these phases must include increasing access to mental health information, mental health screening, early interventions, violence prevention, and various treatment options for adult children and their families.

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Fen, Hsieh Chiao, and 謝巧芬. "A study on seriously ill father and young child’s parent-child interaction." Thesis, 2010. http://ndltd.ncl.edu.tw/handle/83138590813909143780.

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碩士
國立臺灣師範大學
人類發展與家庭學系
98
The main purpose of this study is to explore the change of a father in his individual thoughts, the parent-child interactions with his son, and the meaning of the interactions for him after he was attacked by cancer. This study also explores, in the meanwhile, the possible factors that influence the interactions. To achieve the above purpose, this study adopts the semi-structured interview method of qualitative research. The subject of this study “Happy Dad” is a father who suffers from lung cancer and received chemotherapy. He has a three-year old son. From September 2007 to January 2008, the researcher conducted six depth interviews with Happy Dad. The main conclusions of this study are as follows: 1. Before “Happy Dad” was sick, his relationship with son was not familiar. 2. Serious illness acts as a turning point for the parent-child interactions: (1) “Happy Dad” learns to “put down” everything, cherishes his life, grateful to others, and to fight up against cancer with optimism. (2) Parent-child interactions transfer from not familiar to close, through companionship, care, discipline, and spiritual interaction. (3) “Happy Dad” is always in conflict between “love education” and corporal punishment. (4) “Happy Dad” has trouble deciding between “leaving wealth” or “leaving morality” to leave to his son. 3. The parent-child interactions bring the sense of achievement to “Happy Dad” and “Happy Dad” has completed the mission to have a son to carry on the family name. 4. The father of “Happy Dad” has tremendous influence on “Happy Dad”. 5. “Happy Dad” experiences a second childhood during the parent-child interactions with his son. Suggestions are made according to the results shown above for all fathers and future studies.

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Woods, Martin. "Parental resistance : mobile and transitory discourses : a discursive analysis of parental resistance towards medical treatment for a seriously ill child : a thesis presented in fulfilment of the requirements for the degree of Doctor of Philosophy in Nursing, Massey University, Palmerston North, New Zealand." 2007. http://hdl.handle.net/10179/1585.

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This qualitative thesis uses discourse analysis to examine parental resistance towards medical treatment of critically ill children. It is an investigation of the 'mobile and transitory' discourses at play in instances of resistance between parents, physicians and nurses within health care institutions, and an examination of the consequences of resistance through providing alternative ways of perceiving and therefore understanding these disagreements. The philosophical perspectives, methodology and methods used in this thesis are underpinned by selected ideas taken from the works of Michel Foucault and Pierre Bourdieu and supported by relevant literature in the fields of media, law, children, parenting, caring, serious childhood illness, medicine and nursing. The thesis obtains information from a variety of texts that includes established literature (such as medical, sociological, legal, academic and philosophical), newspaper articles, radio or television interviews, internet sources, court reports and proceedings, legal experts and other commentators - and 15 interview based texts, where the focus is on analyses of narratives of parents, doctors and nurses. In the texts gathered for this thesis, there are noticeable differences between the personal experience discourses of parents, the 'in-between' discourses of nurses, and the disciplined discourses of physicians. This thesis brings these discourses into conversation with each other suggesting that parental resistance does not occur because of an infrequent and unusual set of circumstances where a few socially isolated and/or 'difficult' parents disagree with the treatment desires of paediatric physicians. Instead, it is argued that from an examination of interview based texts, parental resistance is an omnipresent but transitory occurrence that affects many of the interactions between the parents of seriously ill children and clinical staff. It is maintained that within these interactions, the seeds of this resistance are sown in both critical decision making situations and in everyday occurrences between doctors, nurses and parents within healthcare institutions. Contributing factors to parental resistance include the use of power games by staff, the language of medicine, forms of symbolic violence, the presence or absence of trust between parents and medical staff, the effects of medical habitus, and challenges to the parental role and identity. Overall, it is proposed in this thesis that parents who resist treatment for their seriously ill child are not exceptions to the normative patient-physician relationship. Instead an analysis of their discourses and practices is able to illuminate the complex interactions between patients and medical conventions. It is therefore possible to see parents who resist medical advice not as peripheral to the medical encounter but as examples of how patient-physician relationships come to be codified, constructed and crafted through everyday discourses and practices within health care settings.

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Books on the topic "Seriously ill child"

1

Living with a seriously ill child. London: Sheldon Press, 2007.

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2

E, White Beth, ed. In the shadows: How to help your seriously ill adult child. Pittsburgh, Pennsylvania: Hygeia Media, 2013.

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United, States Congress Senate Committee on Health Education Labor and Pensions Subcommittee on Substance Abuse and Mental Health Services. Mental health in children and youth: Issues throughout the developmental process : hearing before the Subcommittee on Substance Abuse and Mental Health Services of the Committee on Health, Education, Labor, and Pensions, United States Senate, One Hundred Eighth Congress, second session, on examining mental health in children and youth, focusing on issues throughout the developmental process, and S. 1704, to amend the Public Health Service Act to establish a state family support grant program to end the practice of parents giving legal custody of their seriously emotionally disturbed children to state agencies for the purpose of obtaining mental health services for those children, April 28, 2004. Washington: U.S. G.P.O., 2004.

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4

Smith, Christopher L. Honest talk about serious mental illness. Louisville, KY: Bridge Resources, 1998.

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5

Kohle, Jane. My Angel: The Story of a Mother and Her Seriously Ill Child. Twisterella Books, 1997.

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6

As Big As It Gets Supporting A Child When A Parent Is Seriously Ill. Winston's Wish, 2007.

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7

Glasper, Edward Alan, Gillian McEwing, and Jim Richardson, eds. Paediatric emergencies. Oxford University Press, 2010. http://dx.doi.org/10.1093/med/9780198569572.003.0031.

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Recognizing a seriously ill child 930Haemorrhage 932Sudden infant death syndrome (SIDS) 934Near-drowning in children and adolescents 936Acute asthmatic attack 938The choking infant and child 940Management of airway obstruction 942Anaphylaxis 944Management of hypothermia 946Multiple traumas 948Recovery position in children and young people ...

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Ragsdale, Lindsay B., and Elissa G. Miller, eds. Pediatric Palliative Care. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780190051853.001.0001.

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What Do I Do Now: Pediatric Palliative Care succinctly describes the palliative care approach to children with serious illness and provides practical guidance to clinicians and trainees. This book address physical, emotional, social, cultural, and spiritual needs of ill children and their families. Many clinicians want to help children that are seriously ill but have not been taught the skills or practice guidelines to attend to their needs. This book walks a provider through a challenging clinical pediatric case and outlines how to think through clinical dilemmas and respond to the patient and family. Each clinical vignette introduces a topic and provides context to the practical, clinical content, including symptom management and communication strategies. This book equips providers with applicable skills and knowledge for frequently encountered challenges caring for seriously ill children from prenatal to adolescent ages. This book will be clinically relevant to primary care providers, inpatient pediatricians, palliative care and hospice providers that are not familiar with pediatric care, nurses, allied health practitioners, fellow and resident physicians, medical students, and advance practice providers. Pediatric Palliative Care is a growing field and this book offers condensed, case based learning. Palliative care is, by nature, an interdisciplinary practice and this book reflects that collaboration with contributors from nursing, chaplaincy, child life, social work, psychology and physicians.

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9

Maxine, Harris, and Landis Christine L, eds. Sexual abuse in the lives of women diagnosed with serious mental illness. Amsterdam, the Netherlands: Harwood Academic Publishers, 1997.

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10

Hamilton, Joan. When a Parent Is Sick: Helping Parents Explain Serious Illness to Children. Pottersfield Press, 2001.

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Book chapters on the topic "Seriously ill child"

1

Chandler, Karen, Gill McEwing, and Janet Kelsey. "Emergency Care of the Critically Ill or Seriously Injured Child." In Emergency Care of Children and Young People, 111–26. Oxford, UK: Blackwell Publishing Ltd, 2008. http://dx.doi.org/10.1002/9780470691786.ch8.

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2

Behar, Lenore B. "Public–academic collaboration in training child mental health professionals." In Serving the seriously mentally ill: Public–academic linkages in services, research, and training., 77–83. Washington: American Psychological Association, 1993. http://dx.doi.org/10.1037/10141-008.

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3

"The non-seriously ill child." In Pre-Hospital Paediatric Life Support, 103–8. Chichester, UK: John Wiley & Sons, Ltd, 2017. http://dx.doi.org/10.1002/9781118339725.ch9.

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4

Mittal, Kundan. "Assessment of Seriously Injured Child." In IAST Manual for Acutely Ill Children, 29. Jaypee Brothers Medical Publishers (P) Ltd., 2010. http://dx.doi.org/10.5005/jp/books/11026_5.

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5

"Transport of the seriously ill child." In Handbook of Pediatric Emergency Medicine, 381–85. CRC Press, 2003. http://dx.doi.org/10.3109/9780203634240-39.

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"Immediate management of the seriously ill child." In Pre-Hospital Paediatric Life Support, 29–52. Chichester, UK: John Wiley & Sons, Ltd, 2017. http://dx.doi.org/10.1002/9781118339725.ch5.

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7

"The Structured Approach to the Seriously Ill Child." In Advanced Paediatric Life Support, 53–69. The Atrium, Southern Gate, Chichester, West Sussex, PO19 8SQ, UK: John Wiley & Sons, Ltd, 2012. http://dx.doi.org/10.1002/9781118369784.ch7.

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"Assessment and immediate management of the seriously ill or injured child." In Pre-Hospital Paediatric Life Support, 15–28. Chichester, UK: John Wiley & Sons, Ltd, 2017. http://dx.doi.org/10.1002/9781118339725.ch4.

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Cousino, Melissa K., Wynne E. Morrison, and Victoria A. Miller. "Communication and Decision-Making with Parents and Seriously Ill Children about Phase 1 Research Trials." In Ethics and Research with Children, 184–205. Oxford University Press, 2018. http://dx.doi.org/10.1093/med-psych/9780190647254.003.0011.

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This chapter uses a case study to explore communication and decision-making with parents and seriously ill children about phase 1 research trials. The chapter begins with a case scenario about 13 year-old “Gabby,” who has relapsed high-risk acute myeloid leukemia, which brings to the forefront ethical issues specific to communication and decision-making with parents and seriously ill children about phase 1 research trials. A brief history on phase 1 research trials in pediatric oncology is provided, followed by a review of the scientific literature regarding challenges to informed consent and child assent in this context. The chapter ends with evidence-based strategies for improving informed consent for pediatric phase 1 trials and questions for discussion.

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Gupta, Pawan. "Paediatric Emergencies." In Oxford Assess and Progress: Emergency Medicine. Oxford University Press, 2011. http://dx.doi.org/10.1093/oso/9780199599530.003.0024.

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It is normal in the early days of one’s medical career to feel apprehensive on seeing a seriously ill child in the resuscitation room. The effect is compounded by the fact that children of different age groups have different normal clinical parameters and require different drug dosages, volumes of fluids to be transfused, equipment of variable sizes, etc. To deal with the situation safely, various formulae have been developed to calculate the approximate weight of the child, size of the endotracheal tube, etc. The BNF for Children should be consulted when there is time to address it; otherwise, use the standard chart of common drug dosages according to the child’s body weight, which is freely available in almost every ED in the UK. It should cover most of your concerns when seeing and treating the acutely sick child. Children compensate well with any underlying serious illness, but there are some subtle symptoms and signs they will usually have in such circumstances. If these are missed, and appropriate management is not given or delayed, a child can suddenly decompensate and go into cardiorespiratory arrest unlike adults, who show gradual deterioration before an arrest. The success rate of return of spontaneous circulation from this situation is poor in children in comparison with adults. Therefore, for clinicians treating children, it is highly rewarding to identify those subtle symptoms and signs and institute the required treatment early on to avoid a catastrophe or a poorer outcome. There are high-quality videos available at the website www.spottingthesickchild.com for junior doctors on how to diagnose a sick child. ‘Be gentle with the young’ (Juvenal, Roman poet) is a well-known saying. Yet, for various socioeconomic or personal reasons, children sometimes become victims of adults trying to find an outlet for their anger. The ED is the place where such children are then brought to, with complaints that may raise suspicion of abuse. It is our primary duty to safeguard vulnerable young children and provide them the opportunity and support they require to grow up like every other child. A few questions in this chapter aim to stimulate the thinking of the reader in this area.

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