Dissertations / Theses on the topic 'Quality of life Queensland'
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1
Lybrand, Sean. "Health related quality of life and the burden of disease in Australian rheumatology practice /." [St. Lucia, Qld. : s.n.], 2003. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe17399.pdf.
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O'Reilly, Maria Therese. "Quality of life for carers of people with dementia : a comparison between rural and metropolitan samples /." [St. Lucia, Qld.], 2003. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe17632.pdf.
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Rofail, Marc. "Open globe injuries at the Royal Brisbane Hospital : 12 year audit : prognostic indicators, enucleation and quality of life /." [St. Lucia, Qld.], 2005. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe19391.pdf.
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Lowry, Timothy. "Health related quality of life in chronic fatigue syndrome : predictors of physical functioning and psychological distress /." [St. Lucia, Qld], 2004. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe18193.pdf.
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Macaulay-Reif, Teegan. "Evaluating the influence of a family supportive work environment on work-family conflict : the moderating role of gender /." [St. Lucia, Qld.], 2007. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe19846.pdf.
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Mitchell, Geoffrey Keith. "The effect of case conferences between general practitioners and palliative care specialist teams on the quality of life of dying people /." [St. Lucia, Qld.], 2004. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe18557.pdf.
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Stephen, Dimity M. "Putting a price on climate change: The cost of climate change and foodborne diseases in Queensland in quality-adjusted life years and dollars." Thesis, Queensland University of Technology, 2017. https://eprints.qut.edu.au/107853/5/Dimity_Stephen_Thesis.pdf.
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Previously, there were no estimates of what effect climate change may have on foodborne diseases in Queensland in future. This thesis provides the first estimates of the incidence and health and economic costs of three important foodborne diseases under climate change to 2036 at a regional level in Queensland. Further, this thesis took the novel approach of using microsimulation models to calculate these costs. From these results, all levels of government and other interested organisations could develop strategies to reduce the future costs of foodborne disease.
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Butten, Kaley Verlaine. "Oral health in an urban, Aboriginal and Torres Strait Islander community in Queensland, Australia and the development of a culturally specific health-related quality of life measurement tool." Thesis, Queensland University of Technology, 2020. https://eprints.qut.edu.au/204193/1/Kaley_Butten_Thesis.pdf.
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Within Australia, data on the oral health and health-related quality of life experiences of Aboriginal and Torres Strait Islander children living in urban areas are lacking. This project utilised a mixed-methods approach to contribute new epidemiological and life experience data to the field of oral health and create a culturally specific, parent-proxy tool to measure the health-related quality of life of Aboriginal and Torres Strait Islander children. These findings provide contemporary oral health data to inform policy and a foundation for the development of other culturally specific health-related quality of life measures for Aboriginal and Torres Strait Islander peoples.
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Leong, Cynthia S. Y. "Evaluation of service quality : Brisbane City Council, Customer Service Centre." Thesis, Queensland University of Technology, 1999.
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Vong, Man Ieng. "Quality of work life and life satisfaction." Thesis, University of Macau, 2006. http://umaclib3.umac.mo/record=b1641454.
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Leishman, Kirsty. "Becoming Zine : the place of Zines in Australia's cultural life /." St. Lucia, Qld, 2004. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe18016.pdf.
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Saroso, Dana Santoso. "Product quality improvement : a system approach /." St. Lucia, Qld, 2003. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe17433.pdf.
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Morrison, Fiona Clare, and n/a. "Altitudinal Variation in the Life History of Anurans in Southeast Queensland." Griffith University. School of Environmental and Applied Science, 2002. http://www4.gu.edu.au:8080/adt-root/public/adt-QGU20031125.120847.
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Global declines and disappearances of amphibians from high altitude, pristine habitats have been reported in recent years. To date the cause of many of these declines and/or disappearances has not been identified. Although it is well documented that life history characteristics of temperate amphibians are influenced by altitude (due to systematic variation of temperature with altitude), little work has been carried out on the effects of altitude on Australian anurans. This lack of ecological data is a major impediment to identifying the causal factors responsible for amphibian declines. Due to differences in life history characteristics, high altitude populations may be less resilient than their lowland counterparts and subsequently may be more vulnerable to extinction. Consequently, the main aim of this study was to determine whether altitude influenced life history characteristics and ultimately population resilience of anurans in the southeast Queensland region. Six anuran species; Litoria chloris, L. lesueuri, L. pearsoniana (Anura: Hylidae), Mixophyes fasciolatus, M. fleayi and M. iteratus (Anura: Myobatrachidae) were studied over three field seasons (1997-1999) in 18 sites of varying altitude (100-950m) in the southeast Queensland region. The life history characteristics examined were: activity and breeding season length, fecundity and egg size, number of clutches produced per season, tadpole growth and development rates, longevity, age at maturity, reproductive life span, average lifetime fecundity, survival and recapture rates. The data were collected using a combination of field-based surveys (body sizes, clutch sizes, and survival and recapture rates), museum specimen dissections (clutch and egg sizes), reciprocal transplant field experiments (tadpole growth and development rates) and skeletochronology (longevity, age at maturity, reproductive lifespan and average lifetime fecundity). On average, high altitude populations of all species had shorter breeding and activity seasons than low altitude populations (up to 10 weeks less in some cases). The magnitude of the difference in breeding season length varied among years depending on the average temperature and rainfall for the year; i.e. differences appeared greater in warmer and wetter years. Within a population males had longer breeding and activity seasons than females. Although breeding season length varied with altitude, the number of nights that individuals were active within the breeding season did not vary; i.e. low altitude populations were not active for more nights despite having a longer breeding season. This result was attributed to the absence of a relationship between individual activity and environmental variables (air temperature, rainfall, etc.) in many of the populations. Generally, intraspecific clutch size did not vary significantly with altitude. This result was due to the absence of a significant relationship between female body size and altitude (as clutch size is proportional to female body size). Egg size also did not vary with altitude however, suggesting egg size may be canalized (i.e. fixed) in these species. Results also suggest that females of these species only produce one clutch of eggs per season. Interspecific differences in reproductive characteristics largely reflected differences in reproductive mode, larval habitat and female body size. Altitude negatively influenced growth and development rates in L. chloris and development rates in L. pearsoniana. Tadpoles raised at high altitudes were also generally larger at each Gosner Development Stage in both species. The results of the reciprocal transplant experiments suggested that most of the variation in growth and development rates was due to environmental factors (water temperature) rather than genetic or maternal factors. Altitude or genetic factors did not significantly affect tadpole survival in either species. The results suggest that tadpoles occurring at high altitudes take longer to reach metamorphosis and do so at a larger size than their lowland counterparts. With the exception of L. lesueuri, skeletochronology was suitable for age estimation in the study species. Altitude had a significant effect on the age at maturity or longevity in some of the species, however there were trends toward older individuals and older ages at maturity in high altitude populations for the remaining species. Females were generally older than males for all species and in the case of longer-lived species (i.e. Mixophyes spp.) also tended to be older when breeding for the first time. The large overlap of body sizes of individuals of different ages demonstrates that body size is a poor indicator of age in these species. This is the first study to estimate average lifetime fecundity for more than one amphibian species and/or population. The results suggest that the absence of significant altitudinal variation in the average lifetime fecundity of different populations is due to tradeoffs made by females (current reproduction vs. survival). There was no significant altitudinal variation in annual survival and recapture rates in any of the species, and generally there was no difference in the survival and recapture rates of males and females in each population. Within a year, monthly survival and recapture rates were more variable at low than high altitudes and this was attributed to the longer breeding season of low altitude populations. The results did not support previous studies that suggested there was a size bias in survival and recapture rates. The shorter breeding seasons, slower growth and development rates, older age at maturity and greater longevity found in the high altitude study populations will result in increased generation time in those populations. In turn, increased generation time can cause high altitude populations to be less resilient (i.e. population takes longer to return to equilibrium after a disturbance away from equilibrium) (Pimm et al. 1988, Pimm 1991) and ultimately more vulnerable or prone to extinction or decline. The majority of unexplained global amphibian declines have occurred at high altitudes in tropical and subtropical areas. These latitudinal patterns may be explained by the narrow range of environmental tolerances exhibited by tropical organisms resulting in mountains being effectively higher in the tropics. Consequently, high altitude tropical species are likely to be even more vulnerable than temperate species occurring at similar altitudes. Further work on the effects of geographic variation, especially interactions between altitude and latitude are needed to evaluate the hypotheses for the causes of these declines and disappearances.
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Thorgrimsen, Lene Marie Harkjaer. "Quality of life in dementia." Thesis, University College London (University of London), 2004. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.405573.
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Cremeens, Joanne. "Quality of life in childhood." Thesis, University of Sheffield, 2004. http://etheses.whiterose.ac.uk/14680/.
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The aim of this thesis was to develop a child self-report quality of life (QOL) measure for children below eight years. Two questions were central to the development of our instrument. First, can children below eight years self-report on their thoughts, feelings, and lives? Second, if so what are the best ways to gain self-reports from children? In answering these questions, we produced a set of guidelines that can be applied by researchers developing self-report measures for children. Studies 1 and 2 report the initial validation of our child self-report QOL measure (the teddy bear QOL measure, TedQL.l & 2). In Study 1, children's TedQL.l scores were positively correlated to their scores on an established measure (the PedsQLTM4.0). In Study 2, the response scale used to complete TedQL.2 items impacted on the psychometric properties of our measure. Study 3 reported further development of the content of our measure, using interview data from children about their lives. Based on the results of Study 3, a new version of our measure was developed (due to deletion, alteration, and addition of items). Study 4 established the most appropriate response scale for the TedQL.4, by comparing the psychometric properties of children's responses to TedQL.3 items across three response scales. Study 4 showed that children used concrete examples of specific situations to answer the TedQL.3 items, which may explain why young children's self reports are less stable over time compared to older children. The analysis in Study 4 revealed eight items that could be removed from the TedQL.3. Study 5 reported further validation of the child and parent versions of the TedQL.4. Both children's and parent's TedQLA scores were correlated to their PedsQLTM4.0 scores. No relations between child and parent rated child QOL were found for the PedsQLTM4.0 scores, however children's and parent's TedQL.4 scores were correlated across some of their scores. This thesis has shown the importance of gaining self-reports from children themselves, , and highlighted the best methods to use for such instruments. The applications of our TedQL measure have been discussed in the concluding section.
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Hoe, Juanita. "Quality of Life in dementia." Thesis, University College London (University of London), 2006. http://discovery.ucl.ac.uk/1446449/.
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Background: Quality of Life (QoL) is now an important outcome for people with dementia but the nature of the illness means that there may be difficulty in measuring it. Aims: This thesis, using an established dementia specific outcome measure, the QOL-AD, aims to assess the validity of measuring QoL in severe dementia and to investigate determinants both of QoL and of change in QoL in dementia. Method: In the first study, 224 people with Alzheimer's disease living in community and institutional settings and their caregivers were interviewed. In the second study, 238 people with dementia living in residential homes and staff were interviewed with a follow up assessment at 20 weeks.;Results: People with a MMSE scores of < 12 and 3 could provide valid and reliable ratings of their own QoL and mood, functional ability and psychosocial factors were associated with QoL in this group. Secondly, the person with dementia's self-ratings of QoL were independently predicted by current mood, cholinesterase inhibitor treatment and living environment, whereas family caregiver ratings of the person with dementia's QoL were predicted by mood and neuropsychiatric symptoms. Similarly, in residential homes, mood was the strongest predictor of self-rated QoL but staff ratings of resident's QoL were predicted by levels of dependency. Lastly, cognition, mood function and behaviour were investigated as putative factors influencing change in QoL over 20 weeks. Change in QoL was predicted by changes in mood and cognition. Conclusion: People with severe dementia (MMSE > 2) can comment on their QoL. People with dementia's perception of QoL differs from their caregiver's perception of it. Many people with dementia experience a decline in QoL and this may be linked to deterioration in mood or cognitive function. This suggests that psychological and pharmacological interventions aimed at improving mood or cognition may also benefit QoL.
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Moller, Valerie, and Benjamin J. Roberts. "South Africa, quality of life." Springer Netherlands, 2014. http://hdl.handle.net/10962/67255.
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publisher versionThe aim of this encyclopedia is to provide a comprehensive reference work on scientific and other scholarly research on the quality of life, including health-related quality of life research or also called patient-reported outcomes research. Since the 1960s two overlapping but fairly distinct research communities and traditions have developed concerning ideas about the quality of life, individually and collectively, one with a fairly narrow focus on health-related issues and one with a quite broad focus. In many ways, the central issues of these fields have roots extending to the observations and speculations of ancient philosophers, creating a continuous exploration by diverse explorers in diverse historic and cultural circumstances over several centuries of the qualities of human existence. What we have not had so far is a single, multidimensional reference work connecting the most salient and important contributions to the relevant fields. Entries are organized alphabetically and cover basic concepts, relatively well established facts, lawlike and causal relations, theories, methods, standardized tests, biographic entries on significant figures, organizational profiles, indicators and indexes of qualities of individuals and of communities of diverse sizes, including rural areas, towns, cities, counties, provinces, states, regions, countries and groups of countries.
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Cardona, Laura A. "Conceptualizing Quality of College Life." Thesis, University of North Texas, 2014. https://digital.library.unt.edu/ark:/67531/metadc699982/.
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The objectives of this study were to mathematically model the quality of college life (QCL) concept and to study the associations between attachment style, emotion regulation abilities, psychological needs fulfillment and QCL via structural equation modeling. Data was collected from 507 undergraduate students (men = 178, women = 329; age M = 21.78 years, SD = 4.37). This data was used to provide evidence for the validity of the College Adjustment Scales (CAS) as a measure of quality of college life. The CAS demonstrated good convergent validity with the World Health Organization Quality of Life measure (WHOQOL), Subjective Well-being and Psychological Well-being Scales. Results: Students who were insecurely attached were as likely to feel adequate in their academic and professional endeavors as securely attached students. However, insecurely attached students had lower QCL levels, lower fulfillment of psychological needs and more emotion regulation difficulties than securely attached students. The results also indicated that Anxious Attachment and Avoidant Attachment were positively and strongly associated. Nonetheless, Anxious Attachment and Avoidant Attachment affected QCL through different mechanism. Emotion regulation mediated the path between Anxious Attachment and QCL while the fulfillment of psychological needs mediated the path between Avoidant Attachment and QCL. The fulfillment of psychological needs also mediated the path between emotion regulation and QCL. The described pattern of results was found for three separate models representing 1) the student’s attachment with their romantic partner, 2) best friend and 3) mother. Additionally, the study’s findings suggest a change in primary attachment figure during the college years. Emotion regulation, the fulfillment of psychological needs and QCL were all affected more strongly by the student’s attachment style with their romantic partner and best friend compared to their attachment style with their parents.
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Herman, Patricia Marie. "Unraveling Overall Quality of Life." Diss., The University of Arizona, 2008. http://hdl.handle.net/10150/196043.
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Whether the stated goal of a program is to improve health, reduce crime, or to increase standard of living, the ultimate goal of social programs is to improve overall quality of life. An adequate measure of this outcome would help determine whether achievement of these more specific goals (e.g., health, education) really leads to improvements in overall life quality, and would allow trade-offs to be made in terms of funding across programs. However, an understanding of the determinants of life quality (i.e., the mechanism by which a program did or did not have its intended effect) is also essential to program evaluation and the design of future programs.This study constitutes the analysis of an existing dataset of individual traits, life circumstances, satisfaction with a list of 30 life domains, and overall quality of life for 193 healthy elders to test a hypothesized model of the determinants of life quality. As expected, domain satisfaction appears to be a function of life circumstances. Individuals' traits (e.g., age, sex, personality) modify this relationship, but neither they, nor respondents' reports of domain importance, appear to have any direct effect on quality of life. Instead, domain satisfactions alone are the most proximal determinants of overall quality of life. It also appears that individuals respond differently in terms of overall quality of life to reductions in satisfaction with certain domains than to increases. These findings should be evaluated further as they could affect the design of future successful programs. Because individuals' traits and individuals' ratings of domain importance seem to have no effect on the relationship between domain satisfaction and overall quality of life, it may not be essential to measure these in future studies. Finally, although the data on life domains available to this study were sufficient to generate these results, the first step in the development of adequate measures of overall quality of life and of domain satisfactions will be the construction of a comprehensive, fully-representative list of the life domains that comprise life as a whole.
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Meuleners, Lynn. "Quality of life for adolescents." Thesis, Curtin University, 2001. http://hdl.handle.net/20.500.11937/2589.
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Assessments of quality of life (QOL) for adolescents have received relatively little attention in the literature. Although there is no consensus on the definition of adolescent QOL and what aspects should be measured, it is generally accepted that QOL is a multidimensional construct. Issues related to adolescent QOL bear special considerations since experiences of adolescents are substantially different from those of adults. The aim of this study is to provide a better understanding of adolescent QOL by assessing the impact of determinants of QOL over a six-month period. The study will also evaluate the measurement properties of the latent factors underlying adolescent OL based on a second-order confirmatory factor analysis. A recursive structural equation model is then proposed to determine the direction and magnitude of the interdependent effects among the latent factors. The Quality of Life Profile Adolescent Version (QOLPAV), a generic 54-item questionnaire was utilised. It was administered to 251 adolescents without a chronic condition and 112 adolescents with a chronic condition at baseline and the cohort of 204 adolescent without a chronic condition and 96 adolescents with a chronic condition a six months. Stratified sampling was used to recruit the adolescents from high schools in the Perth metropolitan area. Subjects were aged 10 to 19. A non-categorical approach was utilised to recruit adolescents with a chronic condition. To account for the hierarchical effects of the adolescents nested within schools multilevel modelling was undertaken to explore the potential determinants of adolescent QOL perceived in his/her life and the opportunities available were found to be significant predictors for adolescent QOL. However, as expected, health was rated poorer, with more sick days reported by chronically ill adolescents.The results of the second-order confirmatory factor analysis suggested that adolescent QOL may be measured by five underlying constructs namely social, environment, psychological, physical health, and opportunities for growth and development. interdependent relations among these constructs identified the environment factor as primary, exerting both direct and indirect effects on the other four factors. A multivariate analysis of variance (MANOVA) also revealed no difference between chronically ill and healthy adolescents in their perceptions of the five constructs. Multilevel longitudinal analysis was performed to explore and quantify the variations in QOL over the six-month period. Although a large proportion of the variation can be accounted for by the covariates perceptions of physical health, age, control and opportunities, 38% of the variability in QOL scores was actually due to time. Similar to the baseline results, there was again no significant difference in the overall QOL scores between chronic and non-chronic adolescents at six months. Health was again rated poorer, with more sick days reported by chronically ill adolescents. The majority of both groups reported a positive QOL. Only 1% of the adolescents (non-chronic) reported a problematic QOL at baseline, which increased to 2.5% (non-chronic) at six months. There was also no significant change between the baseline QOL scores and those at six months. However, the social, physical health and opportunities for growth and development composite factor scores showed a decrease for both groups over the six months. The findings indicated that adolescents with a chronic condition do not view themselves different from their healthy counterparts in terms of QOL. The study enhanced our understanding of the effects of the broader determinants of adolescent health through a QOL perspective.The perceptions that teachers, parents and health professionals have on the relative importance of different aspects of QOL for the adolescent with a chronic illness were separately explored using a three round Delphi study. The first round questionnaire identified the level of importance each of the three panels attached to sixteen aspects relating to QOL. Panelists were also encouraged to provide additional comments on why they felt a particular item was important to the chronically ill adolescent's QOL. In round two, panelists were asked to prioritise the items in order of importance whereas round three attempted to achieve consensus within each of the panels. Differences between and within each of the panels in the prioritisation of item importance in round one and round two were evident. However, consensus was achieved in round three for the prioritisation of very important items by the panel of teachers. Items identified by by all three panels as extremely important included the adolescent's attitude, and friendships with the same age group. Themes to emerge from the qualitative responses to the open-ended questions included the adolescent "not Wanting to be different" and the importance of a "positive attitude". The majority of the three panels also perceived the QOL for the adolescent with a chronic illness to be worse than their healthy counterparts.Panelists were also encouraged to provide additional comments on why they felt a particular item was important to the chronically ill adolescent's QOL. In round two, panelists were asked to prioritise the items in order of importance whereas round three attempted to achieve consensus within each of the panels. Differences between and within each of the panels in the prioritisation of item importance in round one and round two were evident. However, consensus was achieved in round three for the prioritisation of very important items by the panel of teachers. Items identified by by all three panels as extremely important included the adolescent's attitude, and friendships with the same age group. Themes to emerge from the qualitative responses to the open-ended questions included the adolescent "not Wanting to be different" and the importance of a "positive attitude". The majority of the three panels also perceived the QOL for the adolescent with a chronic illness to be worse than their healthy counterparts.
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Meuleners, Lynn. "Quality of life for adolescents." Curtin University of Technology, School of Public Health, 2001. http://espace.library.curtin.edu.au:80/R/?func=dbin-jump-full&object_id=12589.
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Assessments of quality of life (QOL) for adolescents have received relatively little attention in the literature. Although there is no consensus on the definition of adolescent QOL and what aspects should be measured, it is generally accepted that QOL is a multidimensional construct. Issues related to adolescent QOL bear special considerations since experiences of adolescents are substantially different from those of adults. The aim of this study is to provide a better understanding of adolescent QOL by assessing the impact of determinants of QOL over a six-month period. The study will also evaluate the measurement properties of the latent factors underlying adolescent OL based on a second-order confirmatory factor analysis. A recursive structural equation model is then proposed to determine the direction and magnitude of the interdependent effects among the latent factors. The Quality of Life Profile Adolescent Version (QOLPAV), a generic 54-item questionnaire was utilised. It was administered to 251 adolescents without a chronic condition and 112 adolescents with a chronic condition at baseline and the cohort of 204 adolescent without a chronic condition and 96 adolescents with a chronic condition a six months. Stratified sampling was used to recruit the adolescents from high schools in the Perth metropolitan area. Subjects were aged 10 to 19. A non-categorical approach was utilised to recruit adolescents with a chronic condition. To account for the hierarchical effects of the adolescents nested within schools multilevel modelling was undertaken to explore the potential determinants of adolescent QOL perceived in his/her life and the opportunities available were found to be significant predictors for adolescent QOL. However, as expected, health was rated poorer, with more sick days reported by chronically ill adolescents.The results of the second-order confirmatory factor analysis suggested that adolescent QOL may be measured by five underlying constructs namely social, environment, psychological, physical health, and opportunities for growth and development. interdependent relations among these constructs identified the environment factor as primary, exerting both direct and indirect effects on the other four factors. A multivariate analysis of variance (MANOVA) also revealed no difference between chronically ill and healthy adolescents in their perceptions of the five constructs. Multilevel longitudinal analysis was performed to explore and quantify the variations in QOL over the six-month period. Although a large proportion of the variation can be accounted for by the covariates perceptions of physical health, age, control and opportunities, 38% of the variability in QOL scores was actually due to time. Similar to the baseline results, there was again no significant difference in the overall QOL scores between chronic and non-chronic adolescents at six months. Health was again rated poorer, with more sick days reported by chronically ill adolescents. The majority of both groups reported a positive QOL. Only 1% of the adolescents (non-chronic) reported a problematic QOL at baseline, which increased to 2.5% (non-chronic) at six months. There was also no significant change between the baseline QOL scores and those at six months. However, the social, physical health and opportunities for growth and development composite factor scores showed a decrease for both groups over the six months. The findings indicated that adolescents with a chronic condition do not view themselves different from their healthy counterparts in terms of QOL. The study enhanced our understanding of the effects of the broader determinants of adolescent health through a QOL perspective.
The perceptions that teachers, parents and health professionals have on the relative importance of different aspects of QOL for the adolescent with a chronic illness were separately explored using a three round Delphi study. The first round questionnaire identified the level of importance each of the three panels attached to sixteen aspects relating to QOL. Panelists were also encouraged to provide additional comments on why they felt a particular item was important to the chronically ill adolescent's QOL. In round two, panelists were asked to prioritise the items in order of importance whereas round three attempted to achieve consensus within each of the panels. Differences between and within each of the panels in the prioritisation of item importance in round one and round two were evident. However, consensus was achieved in round three for the prioritisation of very important items by the panel of teachers. Items identified by by all three panels as extremely important included the adolescent's attitude, and friendships with the same age group. Themes to emerge from the qualitative responses to the open-ended questions included the adolescent "not Wanting to be different" and the importance of a "positive attitude". The majority of the three panels also perceived the QOL for the adolescent with a chronic illness to be worse than their healthy counterparts.
Panelists were also encouraged to provide additional comments on why they felt a particular item was important to the chronically ill adolescent's QOL. In round two, panelists were asked to prioritise the items in order of importance whereas round three attempted to achieve consensus within each of the panels. Differences between and within each of the panels in the prioritisation of item importance in round one and round two were evident. However, consensus was achieved in round three for the prioritisation of very important items by the panel of teachers. Items identified by by all three panels as extremely important included the adolescent's attitude, and friendships with the same age group. Themes to emerge from the qualitative responses to the open-ended questions included the adolescent "not Wanting to be different" and the importance of a "positive attitude". The majority of the three panels also perceived the QOL for the adolescent with a chronic illness to be worse than their healthy counterparts.
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Ling, Rebecca. "Department heads and School leadership : a narrative study of professional life space /." St. Lucia, Qld, 2003. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe17489.pdf.
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Walls, Liam D. "Quantifying road surface quality for underground haul roads /." [St. Lucia, Qld.], 2006. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe19802.pdf.
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Ramsenthaler, Christina. "Quality of life in multiple myeloma : longitudinal trajectories and monitoring symptoms and quality of life to improve quality of care." Thesis, King's College London (University of London), 2017. https://kclpure.kcl.ac.uk/portal/en/theses/quality-of-life-in-multiple-myeloma(e7e699b2-f030-4818-b6d1-96f995fb119e).html.
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Background: Multiple myeloma is an increasingly common disease, but there is little evidence about the change in symptoms and problems in more advanced stages. Aim: To describe the health-related quality of life (QOL) trajectories in multiple myeloma, and to evaluate the longitudinal validity of the Myeloma Patient Outcome Scale (MyPOS), a questionnaire to monitor QOL and palliative care concerns. Methods: A national, multi-centre, observational study comprising (1) a cross-sectional analysis merging data from two studies, and (2) a longitudinal study, recruiting patients at various stages of the disease. Demographic and clinical data was collected alongside QOL measures. Analysis: (i) prevalence of symptoms and independently associated factors with poor quality of life, (ii) latent growth mixture analysis of quality of life trajectories, (iii) longitudinal validity and reliability via Rasch analysis, Generalizability theory and responsiveness to change. Results: (i) Cross-sectional study: 557 patients reported a mean of 7.2 symptoms with the most common symptoms, pain, fatigue and breathlessness, being present in 61-78% of patients. General symptom level, pain, anxiety and depression, physical decline, age and phase of illness had significant independent associations with high palliative care concerns. (ii) Longitudinal study: Four classes of individual QOL trajectories were identified (n=224): declining HRQOL over 8 months, stable moderate to good QOL, improving QOL, and fluctuating poor QOL. Logistic regression analysis revealed general symptom level (OR = 1.28), pain (OR=1.03) and presence of clinically relevant anxiety or depression (OR=1.19) to be predictors for a declining or poor QOL trajectory. (iii) The MyPOS demonstrated good to excellent test-retest reliability. Rasch analysis identified limitations of suboptimal scale-to-sample targeting, resulting in floor effects. Responsiveness analysis yielded an MID of +2.5 for improvement and -4.5 for deterioration. Conclusions: People with myeloma have four main trajectories of QOL which can be predicted by symptoms and psychological concerns. These could be tested as triggers for additional palliative support. The MyPOS is a valid and reliable outcome measure to monitor these indicators in routine clinical practice.
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Gibbons, Sacha R. J. "Aboriginal testimonial life-writing and contemporary cultural theory /." [St. Lucia, Qld.], 2005. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe18737.pdf.
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Bowman, Marjorie June. "Quality of Life in Multiple Sclerosis." Thesis, Université d'Ottawa / University of Ottawa, 2016. http://hdl.handle.net/10393/34448.
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Objective: To explore quality of life in patients with multiple sclerosis.
Concept Analysis: A concept analysis of quality of life in multiple sclerosis was conducted using Rodgers’ evolutionary concept analysis method. Eighty-three studies were reviewed.
Study Proposal for Secondary Analysis: The proposal was for a secondary analysis using a quantitative, longitudinal, repeated measures design to determine if stem cell transplant has an impact on the quality of life of multiple sclerosis patients with aggressive disease.
Summary of Findings: A concept analysis provided valuable insight into the use and understanding of the concept of quality of life in the multiple sclerosis literature. The subjective and multidimensional attributes of quality of life in multiple sclerosis were similar to findings in previous concept analyses of quality of life in general and in other diseases. The other attributes of the concept being measureable, modifiable and predictable revealed the uniqueness of quality of life in multiple sclerosis and provided a foundation for the development of future research. The results of the secondary analysis will provide new knowledge of a novel treatment for multiple sclerosis and its impact on quality of life. This advancement of knowledge in nursing and across health care disciplines will aid in the delivery of collaborative and comprehensive patient-centred care to ultimately improve the lives of multiple sclerosis patients.
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Sin, Pui-yee. "Quality of life in atrial fibrillation /." View the Table of Contents & Abstract, 2006. http://sunzi.lib.hku.hk/hkuto/record/B36222562.
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Rapley, Mark Timothy John. "Quality of life : a critical approach." Thesis, Lancaster University, 1996. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.337125.
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Sin, Pui-yee, and 冼佩儀. "Quality of life in atrial fibrillation." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2006. http://hub.hku.hk/bib/B45012878.
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Chambers, Alison. "Quality of life in intestinal failure." Thesis, Queen Mary, University of London, 2011. http://qmro.qmul.ac.uk/xmlui/handle/123456789/2336.
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Aims/objectives: The objectives of this research were to investigate and compare aspects of Quality of Life (QoL) in adult patients who require HPN, in adult patients who have pseudo-obstruction, and in carers of, and children on, HPN. Methods: Demographic data, clinical parameters and current symptoms were collected and analysed. Generic QoL questionnaires were applied to the above groups. Results: HPN patients have significantly lower QoL than the rest of the UK population, report increased levels of bodily pain, anxiety and depression, a reduction in physical functioning, social functioning, general health, vitality and satisfactory levels of mental health and emotional functioning. Aspects of QoL improve over the first 6 months on HPN. Pseudo-obstruction has a negative impact on all aspects of QoL when compared to a normal population. A previous intestinal resection and opiate use had a negative impact on aspects of QoL. Carers of a child on HPN seek more social support and use more positive reappraisal coping strategies, more planful problem solving and less distancing than the controls and a higher level of psychiatric disorder is also seen. Children on HPN have a poorer functional status than those not on HPN, and there is a correlation between level of child dysfunction and parental general health. Families caring for a child on HPN function within normal and healthy parameters. Conclusions: Our studies indicate that the loss of intestinal function does have a negative impact on aspects of QoL but patients make adjustments to meet everyday requirements, even if it produces limitations with which these persons have to live by.
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Wilson, Adrian Michael. "Reliability testing in quality of life." Thesis, Imperial College London, 1989. http://hdl.handle.net/10044/1/47715.
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Holmes, H. Susan. "Quality of life : nutrition and cancer." Thesis, University of Surrey, 1989. http://epubs.surrey.ac.uk/847526/.
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Description of the cellular and systemic consequences of cancer and its treatment shows that biochemical and nutritional changes may affect both nutritional status (NS) and quality of life (QL); techniques of measuring both parameters are considered. A new technique of QL measurement is described and found valid, reliable and feasible for clinical use; it is shown to be sensitive to changes in the patient's condition, to have discriminative ability and to yield meaningful results. Tiredness, identified as the symptom causing most distress, appears to result primarily from discomfort arising from physical symptoms; changes in mobility, appearance and mood also caused distress. The activities of daily living most affected were recreation, sleeping patterns and eating behaviour. Investigation of the relationships between food intake, NS and QL showed that food consumption in cancer patients is generally inadequate and closely linked to QL, although no clear cause and effect relationship was demonstrated. Similarly, although NS clearly depends on food intake, no relationship was found between NS and QL, perhaps because no current method of nutritional assessment is satisfactory in this population. However, marked differences in the pattern of weight change were observed between male and female patients. Attempts to improve food intake using nutritional supplements found that the products tested were organoleptically unacceptable to both normal and cancer-bearing subjects. Recipes, incorporating the products, were developed in attempts to improve acceptability but it was not possible to try these in a patient population. Overall the studies revealed that many of the changes accompanying cancer may significantly affect QL causing tiredness, changes in mood, appearance and the ability to eat and affecting normal patterns of activity. Although there are indications that QL and NS are inter-related this was not confirmed. Suggestions are made for future research.
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Chatel, Daniel Mark 1957. "Quality of life following heart transplantation." Thesis, The University of Arizona, 1989. http://hdl.handle.net/10150/277155.
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With improved survival following cardiac transplantation, attention has focused upon the quality of that survival and some of the variables that may impact quality of life. The present study objectively measured subjective aspects of quality of life in order to discover its pre- and postoperative predictors. Results indicate that immunosuppression following heart transplantation creates a significant number of complications and symptoms for the recipient and is significantly related to elevated levels of psychological distress, particularly depression and anxiety, and decreased self-esteem. These findings emphasize the importance of careful symptom evaluation and targeting of distressed patients for psychological intervention in clinical settings and underscore the importance of continued medical research to improve immunosuppression therapy. Descriptive statistics reveal a rather mixed picture of postoperative quality of life which may result from the difficult clinical reality in which heart transplant patients often trade one set of preoperative cardiac symptoms for another set of postoperative symptoms related to immunosuppression therapy.
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Reardon, Louise. "Quality of life and transport policy." Thesis, University of Sheffield, 2014. http://etheses.whiterose.ac.uk/6581/.
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Jones, Judith Ann. "Oral health and quality of life." Thesis, Boston University, 2002. https://hdl.handle.net/2144/37813.
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Thesis(D.Sc.D.)--Boston University, Henry M. Goldman School of Dental Medicine, 2002.Includes bibliographical references (leaves 161-166).
Purpose: To describe the testing of oral health outcomes measures. Methods: This is a cross-sectional study of clinical and self-reported oral health in two samples of veterans: 538 users of Department of Veterans Affairs (VA) outpatient medical clinics (VHS) and 278 veterans from VA’s Dental Longitudinal Study (DLS). Clinical data incIuded number of teeth, tooth mobility, periodontal treatment need, an index of root caries, coronaI caries, oral mucosal status and denture stability and retention. Health-related quality of life (HRQOL) was measured by the Veterans SF-36. Oral-specific heaith-related quaIity of life (OQOL) measures included the single item seIf-report of oral health (OH1), the Oral Health Impact Profile (OHIP), the Geriatric (General) Oral Health Assessment Instrument (GOHAI), the D-E-N-T-A-L, a screening measure of need for care and the Oral Health Quality of Life (OHQOL) measure. Results: Self-reported oral problems are significant burdens on the health and function of users of VA outpatient care. Self-reported oral health, as measured by the GOHAI, is associated with the general well-being of users of VA care. VA patients have worse clinical and self-reported oral health than community dwelling men of similar age. Clinically determined need for dental care was universai in the VHS and present in two-thirds of the DLS. The OH1 and the DENTAL are useful in identifying who needs dental care in the combined population. Criterion and construct validity of self-reported measures of oraI heaIth (OH1, OHIP, GOHAI) are supported by their associations with selected sociodemographic, behavioral and dental conditions in users of VA care. Validity is further supported by the association with recency of dental care and reason for last visit in the VHS. Conclusions: VA outpatients have significant oral health needs as measured by self-report and clinical measures. Users of VA care have worse oral health than the general population. The OH1 and the DENTAL can help identify veterans who are in need of dental care. Longitudinal studies are needed to evaluate the impact of oral health care on general health and well-being and to estimate the resources needed to meet the needs of veterans eligible for care in VA.
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Young, Janet Louise. "Deinstitutionalisation and changes in life circumstances of adults with intellectual disability in Queensland /." [St. Lucia, Qld.], 2001. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe16161.pdf.
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Brooks, Robert School of Community Medicine UNSW. "Health related quality of life of intensive care patients: Development of the Sydney quality of life questionnaire." Awarded by:University of New South Wales. School of Community Medicine, 1998. http://handle.unsw.edu.au/1959.4/17465.
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This thesis has three main research aims. First the development of a questionnaire to measure HRQOL of ICU patients. Second, to examine a model of HRQOL proposed to assist with the development of the questionnaire. Third, to examine the HRQOL outcomes of patient after hospital discharge. The proposed model is based on a review of conceptual issues related to Quality of Life (QOL), Health Status and HRQOL. After a content analysis of a broad range of definitions of QOL, Health Status and HRQOL, QOL was defined as a dynamic attitude, continually being modified by experience. It is a function of the cognitive and affective appraisals of the discrepancies between domain specific perceptions and expectations. HRQOL was defined as an individuals cognitive and affective response to, or the QOL associated with, their health status. Health status was seen to consist of two health dimensions, physical and psychological health, with each dimension being composed of a number of component measures assessed subjectively. The developed questionnaire, the Sydney Quality of Life (SQOL) had good construct validity, based on substantial correspondence between qualitative and quantitative data, and internal consistency data (factor analysis and Cronbach's alpha). It had good concurrent validity in relation to the Sickness Impact Profile. The second order factor analysis of the SQOL suggested that health status may consist of three dimensions, physical health, positive mental health and negative mental health. The HRQOL model when formally examined, using Structural Equation Modelling (using LISREL), was not supported. However, exploratory modelling supported the separation of mental health into positive and negative components. The structure of HRQOL was different for patients than for the community from which they came. Patients QOL was determined largely by positive mental and physical health, whereas community members QOL was largely determined by negative mental health. Sixty three percent of patients at 12 months after discharge had significantly worse physical and functional health, lower satisfaction with their lives, lower positive affect and poorer QOL. Overall, mental health adapts rapidly to the impact of serious physical ill health and hospitalisation. Implications for clinical practice are examined.
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Watters, Sarah. "The measurement of quality-adjusted life years : investigations into trade-offs between longevity and quality of life." Thesis, London School of Economics and Political Science (University of London), 2016. http://etheses.lse.ac.uk/3528/.
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In health care, decision makers are faced with increasing innovation and demand for services accompanied by escalating costs. As a result, governments and institutions have sought to promote health care value (i.e. better outcomes per moneys spent). A summary measure of health-related quality-of-life (HRQoL) to help decide how to allocate available resources is thus highly desirable. In no other area of public policy has a measure similar to the widely-used quality-adjusted life-year (QALY) been developed. The QALY is therefore unique in both its ambitions and in the political, philosophical and measurement challenges it faces. This thesis set out to examine health state valuation using the time-trade off (TTO), a tool used to measure HRQoL, in the context of a behavioural economic framework. Observed violations of procedural and descriptive invariance, cornerstones of decision theory (on which the TTO is based), have been witnessed in health state valuation and elsewhere. Behavioural economics offers a framework by which such inconsistencies can potentially be better understood. Although behavioural economics has gained traction in other areas of decision research, its application to health state valuation has been limited. Drawing on the decision-making literature and health-specific considerations, the empirical studies in this thesis: provide insight into why previous studies of the TTO have yielded inconsistent findings, showcase violations of internal consistency due to behavioural economic phenomena, and identify issues relevant to the choice of TTO ‘version’ (i.e. how values should be elicited). Implications of the research in terms of stated preference methods and their role in policy are discussed. A strict focus on the TTO was intended, as it is the tool most widely implemented in health state preference elicitation, both in research contexts and clinical studies that seek to demonstrate cost-effectiveness. However, importantly, the empirical findings and discussion in this thesis are relevant not only to researchers of health state valuation but to policy makers in health and other areas of social policy which seek input for their decisions through stated preference exercises.
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Fallon, Patricia, and n/a. "So Hard the Conquering: A Life of Irene Longman." Griffith University. School of Humanities, 2003. http://www4.gu.edu.au:8080/adt-root/public/adt-QGU20030801.170528.
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This biography of Irene Longman is the story of a remarkable woman. A woman of integrity, intelligence, courage and compassion. It is also the story about the period in which she lived and how her life was inevitably interwoven with the lives of others and with the social structure and culture of the times. What made Irene Longman unique was that she became the first woman to sit in the Queensland Parliament. Irene Longman was elected to the Queensland Parliament in 1929, defeating the sitting Labor member in Bulimba. She was nominated by the Queensland Womens Electoral League and endorsed by the Country Progressive National Party, but held the seat for only one term as Labor swept back into power in 1932. Longmans career in the Moore government coincided with a brief interruption of continuous Labor rule in Queensland (1915-1957). No other woman was elected to State Parliament in Queensland until after Irene Longmans death in 1964 at the age of 87. Though her parliamentary career was short, Irene Longman was active in public life for over thirty years. This thesis brings to light her early childhood in Tasmania, her education and development while living in Sydney and will describe her career and the associational networks which shaped her political ideas. In 1904 at Toowoomba, Irene married Heber Longman and they made Queensland their permanent home. Although this study investigates a particular historical period in Australia, a wider account of Queensland life is incorporated to give a political context to Irene Longmans experiences in the decades after Federation. Irene Longman was involved in a wide range of social issues including town planning and the preservation of flora and fauna. But her professional and voluntary work was principally in the field of the welfare of women and children. Therefore, this thesis is not only a historical study but it also examines other discourses related to Irene Longmans experience and interest, such as feminism and womens reproductive function. I consider how the strength of maternal citizenship influences the way women lived their lives and understood their positions in the world.
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Bray, Steven Gregory. "The successful life cycle of the pasture weed giant rats tail grass (Sporobolus pyramidalis) /." [St. Lucia, Qld.], 2004. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe18400.pdf.
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Gunson, Keely Sarah Elizabeth. "Exploring positive life experiences and their influence on quality of life." Thesis, University of Bath, 2011. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.547636.
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Stam, H. "Surviving childhood cancer quality of life, course of life, and coping /." [S.l. : Amsterdam : s.n.] ; Universiteit van Amsterdam [Host], 2007. http://dare.uva.nl/document/94509.
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Ho, Ying-hon. "Quality of life in Hong Kong and Singapore in the 1990's." Hong Kong : University of Hong Kong, 1996. http://sunzi.lib.hku.hk/hkuto/record.jsp?B17505860.
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Kiessling, Anna. "Quality of care and quality of life in coronary artery disease /." Stockholm, 2005. http://diss.kib.ki.se/2005/91-7140-205-5/.
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Brown, Elaine Rosemary. "William Pettigrew 1825 - 1906 : sawmiller, surveyor, shipowner and citizen : an imigrant's life in colonial Queensland /." [St. Lucia, Qld.], 2004. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe18366.pdf.
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Petersen, Rejeanne. "The relationship between quality of work-life and quality of life based on the centrality and value of work in an individual’s life." Master's thesis, Faculty of Commerce, 2019. http://hdl.handle.net/11427/30879.
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The study sought to examine the relationship between quality of work-life and quality of life depending on how central work is in an individual’s life and what value work holds for them. Literature internationally has shown that because work forms such an integral part of individuals’ lives, that this could influence their experience of quality of life, indicating that a high quality of work life could lead to a high quality of life. Similarly, if work is a central life interest and dependent on the value that work holds, the loss of work could potentially influence quality of life. A cross-sectional, descriptive design was used, with a correlational approach. Snowball sampling was used to gather a sample of 163 working adults in South Africa, through a personal network of family and friends. Participants completed scales assessing the four variables of interest provided in an online questionnaire. The results indicated that individuals who experienced their quality of work-life as more positive also indicated a higher quality of life. This relationship was stronger when individuals saw work as having intrinsic value. However, the degree to which work was central to a person’s life, and to which work was seen as having value as it provided monetary rewards (extrinsic value), social connections and relationships (social value), or status (prestige value) were not found to alter the relationship between quality of work-life and quality of life. As shown previously in both international and local literature, work is always placed second to family in importance. Based on these findings, limitations and recommendations were suggested, as well as theoretical and practical implications.
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Thompson, Cara. "Quality of life in epilepsy : a review and analysis of psychosocial influences on quality of life in epilepsy." Thesis, Staffordshire University, 2018. http://eprints.staffs.ac.uk/4895/.
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This research thesis examines whether psychosocial factors influence the wellbeing of people with epilepsy. Paper one is a literature review, examining ten studies which investigated whether the ways in which people with epilepsy think about their condition (illness perceptions) influences their wellbeing. The findings suggested that illness perceptions were an important factor in influencing wellbeing, often more highly related to wellbeing than some clinical variables, such as seizure frequency. In view of this, clinical and future research implications are discussed, which include consideration of therapeutic interventions for people with epilepsy, such as peer support and psychological interventions. Paper two is an empirical study investigating the role of psychosocial factors on the quality of life of people diagnosed with epilepsy in adulthood. The study examined whether illness perceptions, resilience, social support, years since diagnosis and psychological therapy predicted quality of life in people diagnosed with epilepsy in adulthood. Participants were recruited through NHS services, and online, completing a set of validated questionnaires which were analysed using regression analysis. Illness perceptions and resilience were significant predictors of quality of life, accounting for a large proportion of the variance in quality of life scores. Years since diagnosis, social support and psychological therapy did not significantly predict quality of life. The findings are discussed in relation to psychological theory, as well as consideration of the clinical and research implications. The study offers novel findings about the unique experience and needs of a group of people with epilepsy who receive little research attention. Paper three summarises the main points, findings and recommendations in relation to the empirical paper, ‘Epilepsy in Adulthood’. It is written for a varied audience, including service users, healthcare professionals and epilepsy services.
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Aland, Rachel Claire. "Aspects of olfaction in the life history of antechinus subtropicus /." [St. Lucia, Qld.], 2004. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe18147.pdf.
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Barata, Badiella Anna. "Quality of life in hematopoietic cell transplantation." Doctoral thesis, Universitat Autònoma de Barcelona, 2017. http://hdl.handle.net/10803/402219.
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El trasplantament al·logènic de progenitors hematopoètics (TPH) és la
principal opció curativa per diverses neoplàsies hematològiques tot i
que comporta una morbiditat física i psicològica significativa. L’objectiu
de la tesi és avaluar la qualitat de vida, la depressió, les estratègies
d’afrontament de problemes i les necessitats psicosocials en receptors
de TPH al·logènic i els seus cuidadors. Els participants són receptors
adults de TPH al·logènic que havien rebut un TPH en el Moffitt Cancer
Center (Tampa, Estats Units) i els seus cuidadors. Els resultats s’han
analitzat mitjançant metodologia qualitativa i quantitativa. La tesi es
basa en cinc articles. En el primer estudi vam observar que els pacients
diagnosticats d’hemopatia maligna, i especialment els supervivents de
TPH al·logènic, tenen necessitats psicosocials significatives. Els resultats
del segon estudi mostren que la fatiga i les nàusees associades a la
profilaxis de la malaltia de l’empelt contra l’hoste amb sirolimus
contribueixen a disminuir la qualitat de vida durant el primer any post-
TPH. En el tercer estudi vam observar que les estratègies d’afrontament
adaptatives mitiguen la relació entre els símptomes associats al TPH i la
depressió. En el quart treball, que avalua l’educació sobre la qualitat de
vida post-TPH, vàrem trobar que els receptors de TPH al·logènic estan
ben preparats per afrontar la fase aguda del TPH, però no els efectes
tardans o la malaltia del l’empelt contra l’hoste crònica. De manera
similar, el cinquè estudi mostra que els cuidadors dels receptors de TPH
necessiten més informació sobre els efectes tardans del TPH al·logènic,
així com suport emocional. En conclusió, els resultats d’aquesta tesi
destaquen la càrrega física i emocional associada al TPH al·logènic i les
significatives necessitats psicosocials d’aquesta població. Futurs estudis
han d’avaluar i desenvolupar intervencions dirigides a millorar
l’educació del pacient, la comunicació metge pacient, el maneig dels
símptomes relacionats amb el TPH, i l’afrontament dels efectes
secundaris del TPH.Allogeneic hematopoietic cell transplantation (HCT) is the primary curative option for some hematological cancers but is associated with significant physical and psychological morbidity. The aim of this thesis is to assess quality of life (QoL), depression, coping strategies, and unmet needs for psychosocial care among allogeneic recipients and their caregivers. Participants were adult allogeneic recipients who received an HCT at the Moffitt Cancer Center (Tampa, United States) and their caregivers. Qualitative and quantitative methodology were used. Five papers contribute to the current thesis. In the first study, we found significant unmet needs for psychosocial care among patients diagnosed with hematological malignancies, particularly allogeneic survivors. In the second paper, results showed that fatigue and nausea were associated with receipt of sirolimus (SIR) for graft-versus-host disease (GvHD) prophylaxis and contributed to diminished QoL during the first year post-HCT. In the third study, we found that adaptive coping mitigated the relationship between HCT symptoms and depression. In the fourth work focused on patient education about post-HCT QoL, we observed that HCT patients reported feeling well prepared to deal with the acute transplant phase, but unprepared to deal with the late onset of late effects and chronic GvHD. Similarly, the fifth study showed that caregivers also reported significant unmet needs for information on late effects as well as unmet needs for emotional support. In conclusion, results of this thesis highlight the emotional and physical burden associated with allogeneic HCT and the significant unmet needs for psychosocial care among this population. Future studies should assess and develop interventions aimed at improving patient education, patient and physician communication, symptom management, and coping with the side effects of HCT.
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Mazzella, Ann Marie. "The quality of life after pulmonary brachytherapy /." Staten Island, N.Y. : [s.n.], 1993. http://library.wagner.edu/theses/nursing/1993/thesis_nur_1993_mazze_quali.pdf.
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