Dissertations / Theses: 'Psychosocial experiences of cancer'

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Flynn, Samantha E. "Cancer experiences in people with intellectual disabilities." Thesis, University of Chester, 2018. http://hdl.handle.net/10034/621794.

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People with intellectual disabilities are increasingly being diagnosed with cancer due, in part, to increases in life expectancy for this population. Despite the growing number of people with cancer and intellectual disabilities, the cancer-related experiences of people with intellectual disabilities are under-researched. Person-centred approaches to research are needed to better understand the needs and psychosocial outcomes of people with cancer and intellectual disabilities. This thesis aims to better understand the cancer-related experiences of people with intellectual disabilities, and the impact on the people who support them. The thesis comprises four related studies: (1) a systematic review of psychosocial experiences of cancer in people with intellectual disabilities; (2) a qualitative study of cancer experiences in people with intellectual disabilities using thematic analysis informed by grounded theory; (3) a survey of UK oncology nurses' attitudes and care perceptions towards people with intellectual disabilities; and (4) a feasibility study of an intervention to improve healthcare professionals' perceptions of communicating with people with cancer and intellectual disabilities. Five themes emerged from the ten papers included in the systematic review: delayed diagnosis; information, communication, and understanding; negative psychological consequences; negative physical consequences; and social support. Six of the ten papers included data from the same ethnographic study of 13 people, highlighting a paucity of empirical research regarding the psychosocial cancer experiences of people with intellectual disabilities. The qualitative study indicated that people with intellectual disabilities were often excluded from conversations about their diagnosis, treatment, and ongoing care, and expressed confusion and anxiety about their cancer. Attempts to protect them from distress inhibited communication, but where additional support was offered, participants engaged more meaningfully in their experience and this should, therefore, be encouraged. In the qualitative study, oncology nurses were reported to be important figures in the care of patients with intellectual disabilities. The survey of oncology nurses highlighted that caring for cancer patients with intellectual disabilities may intensify their already difficult role; however, previous experience may ameliorate negative consequences. This sample identified their need for training about communicating with people with intellectual disabilities. The first three studies informed the development of a novel, brief, online, video-based intervention for healthcare professionals working with people with intellectual disabilities and cancer. The feasibility trial of this intervention indicated that there were problems with recruitment, high attrition, and intervention adherence. These problems were, most likely due to participants finding the content and delivery method to be unacceptable. It is clear that the intervention is not feasible in its current format, and that further theoretical and modelling work is needed before the intervention is feasibility tested again ahead of a definitive trial. This body of work has demonstrated that people with intellectual disabilities and cancer face multiple barriers to accessing cancer care, including informative and understandable communication with healthcare professionals. With appropriate support, psychological and physical outcomes can be improved for people with intellectual disabilities and cancer, but caring for people with cancer and intellectual disabilities can be challenging for paid and informal carers, and oncology staff. Difficulties with communication are bi-directional, and improving communication might be an appropriate first step to improving cancer experiences for this population, but developing effective interventions presents numerous feasibility challenges.

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Chen, Chwen Cheng. "Psychosocial stress, coping style and the risk of breast cancer." Thesis, King's College London (University of London), 1994. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.287787.

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Simard, Sarah-Nicole. "Bridging the Gap – A Grounded Theory of Cancer Coaching Experiences." Thesis, Université d'Ottawa / University of Ottawa, 2016. http://hdl.handle.net/10393/34436.

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Cancer incidence is increasing and so are survival rates. The aftermath of cancer includes multi-dimensional and long-lasting effects that prevent individuals from recovering and re-integrating into their daily routines. Cancer systems attend to patients during diagnosis and treatment, but often fall short in providing continuity of care afterward. This results in a considerable number of individuals living with the effects of cancer, with little support care. While there are evidence-based recommendations to improve follow-up cancer care, the extent to which they have been implemented remains unknown. To support the needs of cancer survivors The Ottawa Regional Cancer Foundation developed a Cancer Coaching Program (CCP). As life and health coaching interventions have been shown to benefit this population, this study aimed to explore the impacts of the CCP on the lives of cancer survivors. Using a grounded theory approach, the experiences of (n=12) cancer survivors who had previously participated in the program were explored, to create an explanatory model. Descriptive results depicted various beneficial outcomes to participating in the CCP. The dominant role of the CCP is to support survivors by “bridging the gap” to survivorship, through tailored coaching services. This study provides insight into the mechanisms that work for this cancer coaching program, which may be helpful for other programs exploring strategies to assist this population.

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Shermak, Sheryl Lee. "Diggin in, moving on : the experiences of breast cancer dragon boat paddlers." Thesis, University of British Columbia, 2008. http://hdl.handle.net/2429/2642.

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It is commonly believed that breast cancer dragon boating benefits survivors in a range of psychosocial areas, but there have been few empirical studies to investigate such relationships. An interpretive description design and a critical health promotion approach were used to explore the psychosocial experiences of women who breast cancer dragon boat. In-depth interviews with six participants were analyzed. Themes that arose from the data are: (1) moving past isolation — networks of like-minded support, (2) taking control,(3) journey into adventure, (4) affirmative outlook, (5) confronting painful experience, (6) rebuilding identity, (7) and spiritual engagement. The findings illustrate that dragon boating provides breast cancer survivors with a significant venue for change and the opportunity to move beyond traumatic elements of cancer.

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Human, Carine. "The psychosocial experiences of the patient and family of skin cancer diagnosis and treatment." Diss., University of Pretoria, 2015. http://hdl.handle.net/2263/53411.

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Skin cancer is the most common cancer in South Africa with about 20 000 reported cases every year and 700 deaths. The Cancer Association of South Africa (CANSA) urges all South Africans to be SunSmart to reduce the high incidence of skin cancer in the country. The World Health Organization (2014) reports that between two and three million non-melanoma skin cancers and approximately 132 000 malignant melanomas occur globally every year. South Africa has the second highest incidence of skin cancer in the world after Australia (CANSA, 2014). Skin cancer is an increasing phenomenon in South Africa and enough is not done to raise awareness. The researcher has a very personal interest in skin cancer, the emotions around it, the needs, thoughts and experiences of patients diagnosed with skin cancer, due to various family members having suffered skin cancer. The researcher also learnt through own experience that there is a lack of support systems for the traumatised family to fall back on, specifically when it comes to skin cancer. Individuals who wish to support the patient may also need education, support and information regarding the condition in order to do so. The latter was confirmed through consultations with a Dermatologist and a Plastic Surgeon with regards to the emotional effects of skin cancer. Both specialists expressed eagerness to learn more in this regard and committed to assist the researcher in this study in finding suitable participants, who were selected and interviewed. It was clear from the first interview that none of the participants had expected skin cancer and many emotions were expressed. When a person is diagnosed with skin cancer he or she will often experience anxiety which can be very severe. Anxiety may make the pain experienced by cancer sufferers worse. Anxiety is a normal response to stressful events and is part of the process of coming to terms with an illness. Fear of the unknown is often a significant cause of anxiety. Patients may feel less anxious when they are given more information about their illness and their treatment, or when they find out more from booklets available from cancer charities and patient groups or from websites. Patients also usually begin to feel less anxious as they become more accustomed to seeing the doctor and going to hospitals. As they get to know hospital staff they gradually feel more at ease and less threatened by fears of the unknown. (Gillie, 2005:42). The patient participants had some form of treatment for skin cancer. Various emotions and experiences were observed and expressed by both patient and family participants and it became evident that from diagnosis, through treatment and even post treatment, the participants had a lot of emotions and each phase brought along its own experiences, feelings and needs. This supported theory around the issue of skin cancer and the experience around it being studied. The emotional effects of cancer may last long after the end of treatment. People often find they continue to feel anxious about minor signs of illness or pain, fearing a recurrence. Regular check-ups may be necessary and these can be very scary times. Permanent changes in lifestyle, as a result of cancer, or bodily changes may be daily reminders of the cancer and cause sadness. As distressing as these emotions may be, they are natural reactions to a cancer diagnosis. Talking to family and friends may be helpful (The Cancer Council of New South Wales Coping with Cancer (2005:1). The researcher followed a qualitative approach in this study and attempted to understand the subjective life experience of the participants who suffer from skin cancer and have been diagnosed and undergone treatment. In order to add to the development of insight and a better understanding of the experiences skin cancer patients have in the current South African context, the researcher was able to obtain first-hand information through the use of unstructured interviews as it allowed the participants to share their thought and feelings and experience without guidance from the researcher. The information gathered was in the form of words and concepts, which gave meaning to the participants experiences of a skin cancer diagnosis and treatment. In total 13 participants were selected as part of the study, who included both skin cancer patients and family members. These participants were selected from existing patients and family members of patients of two private medical specialists in Panorama, Parow and Cape Town. Unstructured interviews were conducted with the participants and were voice recorded with their permission. These interviews were then transcribed. The data was then analysed by the researcher and from that, themes and sub-themes were identified. The research findings are presented by the biological profile of all the participants being portrayed and a thematic analysis of the themes and sub-themes. Literature and verbatim quotes were then given in support of the findings. Five themes were identified as follows: Theme 1: Lack of knowledge around skin cancer Theme 2: Reaction to diagnosis Theme 3: Treatment Theme 4: Post-diagnosis mindfulness and behaviour change and Theme 5: Support structures. Each theme had sub-themes which were also discussed. In conclusion, it was eminent that skin cancer patients and their family go through a lot of emotional turmoil and therefore it is of vital importance that the medical personnel or the multi-disciplinary team is aware of this when working with skin cancer patients. It was clear that at the point of diagnosis, patients and their families experience a lot of shock and disbelief which they have to work through. Some even have immediate fears of death, whereas others are oblivious of the severity of the condition. It was mentioned as a need from participants, but also noted in theory that knowledge or a good understanding of a condition and of the treatment lowers anxiety levels. All members of the multi-disciplinary team should ideally be aware and motivated to ensure patients emotional needs are identified and addressed. Social workers have a vital role to play as their skills to identify needs are highly developed and have a good understanding of the family as a support system, as well as connecting patients and families with support systems within their environment and community.
Mini Dissertation (MSW)--University of Pretoria, 2015.
Social Work and Criminology
MSW
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Flack, Hazel June. "The psychosocial experiences of young people with cancer : a qualitative comparison between paediatric and adult treatment settings." Thesis, University of East Anglia, 2006. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.436523.

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Qualitative methods were used to investigate the psychosocial experiences of young people (aged 13-21) with cancer (N=8). The experiences of young people treated in a paediatric ward were compared with those treated in adult wards. Data were collected using semi-structured interviews, observations and discussions with the treatment teams. The findings were considered in relation to two developmental theories of adolescence frequently used within this field of research: 1) Havighurst (1948), and 2) Erikson (1968). Four main themes emerged from the data: 1) personal (emotional and physical changes), 2) setting (the physical treatment environment), 3) relational (interactions with family, peers, other patients and the treatment team), and 4) education, career and the future. Differences emerged between the treatment wards in relation to young people's psychosocial experiences. The theoretical implications of the research are considered and the researcher questions the usefulness of these developmental theories within the context of young people with cancer. Alternative theories (including ideas from: positive psychology, models of chronic illness, and systemic theory) are proposed to enhance our understanding of young people's experiences during treatment. The research also discusses clinical implications, including how to enhance the provision of psychosocial care for young people with cancer.

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Larson, Cheryl Ann Davisson. "Spiritual, psychosocial, and physical correlates of well-being across the breast cancer experience." Diss., The University of Arizona, 2004. http://hdl.handle.net/10150/280719.

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Spirituality has gained increasing attention by scientists for its importance in contributing to understanding human health experiences. The purpose of this study was to examine the relationships of spiritual, psychosocial, and physical correlates to well-being and depression over the trajectory of breast cancer experience. Nursing theory, lifespan development, and chronic illness trajectory provided the conceptual framework for the study. A correlational, retrospective design was used allowing for collection of longitudinal data during a one-time measurement process. The sample consisted of 64 women (constituting a 91% response rate) 60 years or older with Stage I, II, or III breast cancer, who had chemotherapy and/or radiation, and were 8 to 24 months post treatment. A set of questionnaires was used to obtain data over three phases of their breast cancer experience: Anticipatory; Therapy; and Survivor. For data analysis, it was determined that all instruments had adequate reliability and validity, and statistical assumptions were met. Multiple regression results indicated that two variables in particular (self-transcendence and symptom distress) were consistently significant in explaining well-being and depression (with explained variance ranging from 57% to 85%) across all three phases. Other variables (hope, spiritual perspective, social support) also contributed significantly to the explained variance across some phases. Repeated Measure ANOVA and post hoc tests indicated that the scores on several variables differed significantly depending upon the phase of illness. While symptom distress is often a primary concern of patient and nurse, it was concluded that spiritual variables are also important factors in experiences of well-being and depression across the trajectory of the illness. A second conclusion was that, as with physical or social aspects, spirituality includes many dimensions of human experience and should be studied for the variety of spiritual factors that may be significant across the trajectory of illness. In this study, at least one or more different spiritual variables were significant in the regression equations for every phase of illness. Findings provided empirical evidence to refine and further develop a mid-range theory on how spirituality functions as an important resource for well-being within the context of other variables, across the breast cancer experience.

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Lloyd, Susannah. "Understanding the experience of prophylactic bilateral mastectomy : a grounded theory study." Thesis, University of East Anglia, 1999. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.302194.

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Schüttler, Johanna, and Hanna Samuelsson. "Ung vuxen med cancer - behov och upplevelser under och efter behandling : En litteraturstudie." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2018. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-368292.

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Background: In Sweden, approximately 800 young adults between 16-30 years of age are affected by a cancer disease. Studies has shown that this is not only the medical treatment that affects how patients live with their cancer, but also how their psychological health are affected. When a young adult gets a cancer diagnosis can thoughts about the disease, death, changed body image, loss of fertility etcetera be particularly disturbing and anxiety evoking. To achieve good health and quality of life, care and good relations between patient and nurses are important. Aim: The aim of the literature study was to: 1) Examine young adults experiences of a cancer disease, 2) Experienced need of support from healthcare professionals and 3) Experiences of psychosocial support from nurses during and after treatment. Method: A literature study where qualitative articles were searched through the database Pubmed. 10 original articles out of a total of 27 articles were included because they met the inclusion criteria and were either medium or high quality. Results: The analysis revealed nine themes based on the three questions; attitudes and emotional reactions related to the disease, changed perception of identity, positive aspects of the disease, post-treatment reactions, support from family and friends, support and adaptation within health care, informative support, personal and emotional support and participation and trust. The need for information from healthcare professionals was particularly prominent, especially on the topics of sexuality and fertility. The importance of obtaining information in a manner that is easy to understand was highlighted. The majority of young adults experienced positive support from nurses which made them gain confidence, trust and joy. Conclusion: Young adults have an increased need for continuous information and guidance during and after treatment. Nurses need to be better at communicating, which would contribute to increased understanding and provide security for the patient in order to feel better mentally. Nurses have an important role in providing advice and information in areas which the patient lack knowledge in.

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Foster, Charles A. "Getting Back to My Life: Exploring Adaptation to Change Through the Experiences of Breast Cancer Survivors." Antioch University / OhioLINK, 2012. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1338575681.

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Girodet, Magali. "Exploration du vécu psychologique et psychosocial chez des patients atteints d’un cancer de la prostate en France : analyses de deux études : VICAN et PRESAgE." Thesis, Lyon, 2019. http://www.theses.fr/2019LYSE1270.

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Le cancer est désormais considéré comme une maladie chronique touchant une population toujours croissante. Une prise en charge et un suivi à long terme, à l’origine d’un bouleversement de la vie des patients et de leur entourage, semblent nécessaires et sont susceptibles d’initier une réorganisation du système de santé. Dans ce travail de thèse interdisciplinaire, nous nous sommes intéressés à l’impact du cancer sur le vécu psychologique et psychosocial des patients en France, en choisissant le modèle du cancer de la prostate. Pour cela, nous avons souhaité combiner deux études. L’une portait sur l’état de santé sexuelle des patients atteints d’un cancer de la prostate via une approche quantitative descriptive basée sur les données représentatives des enquêtes nationales VICAN. L’autre visait à déterminer l’impact du cancer de la prostate sur le couple et sa qualité de vie via une approche compréhensive qualitative complémentaire, focalisée sur une prise en charge en Surveillance Active et basée sur des entretiens semi-directifs de patients et de leurs conjointes. L’analyse des données a permis de montrer une détérioration de la santé sexuelle des patients, selon différents déterminants non nécessairement médicaux, et un endommagement du couple et des relations affectives perçues, avec des stratégies d’ajustements divergentes pour chacun des membres du couple, malgré une prise en charge initialement considérée comme optimale et indemne de conséquences. Une approche pluridisciplinaire pourrait permettre un accompagnement complet des couples pour une amélioration de leurs vécus, de leur bien-être et de leur qualité de vie
Cancer is now considered as a chronic disease affecting an ever-increasing population. Long-term care and follow-up, which are responsible of lives disruptions on patients and their relatives, seem necessary and likely to initiate health system reorganization. In this interdisciplinary thesis work, we focused on the impact of cancer on the psychological and psychosocial experiences of patients in France, by choosing the prostate cancer model. To do this, we decided to combine two studies. One aimed on the sexual health status of prostate cancer patients through a descriptive quantitative approach based on data representative of VICAN national surveys. The other one concentrated on the impact of prostate cancer on the couple and its quality of life through a complementary comprehensive qualitative approach, focused on Active Surveillance management and based on semi-directive interviews of patients and their spouses. The data analysis showed deterioration in patients' sexual health associated to several factors, which are not necessarily medical ones, and damages in the couple and perceived affective relationships, with divergent coping strategies for each member of the couple, despite a care management initially considered as optimal and free of consequences. A multidisciplinary approach could help couples to improve their experiences, well-being and quality of life

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McAndrew, Alice E. "Surviving a Terminal Diagnosis: the Ultimate Lifelong Learning Experience." Diss., Virginia Tech, 2004. http://hdl.handle.net/10919/28069.

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Every year in the United States, cancer accounts for one in four deaths. As the pool of those who have received diagnoses increases, more individuals can be encountered who have survived a terminal diagnosis or exceeded expected time limits for survival. Perhaps even more extraordinary, many of these consider it the "best thing" that ever happened to them. These are the modern eras' "mythical" heroes; they return bearing maps for our own eventual journeys. This study used a grounded theory research approach to illuminate the phenomenon of terminal diagnosis survivorship as evidenced in the psycho/social/spiritual learning process. The unit of analysis is the psychosocial and spiritual learning process as discovered and developed from three cases of individuals who described being positively transformed after receiving a terminal diagnosis. Three research questions were examined: (a) What are the components (e.g., coping strategies, problem solving techniques, emotion management) of the learning process employed by three cancer patients who have experienced a terminal diagnosis? (b) In what ways did the phenomenal meaning of their lives change as they coped with the trauma of a terminal diagnosis followed by remission persisting a significant time past doctors' predictions? (c) What changes did they make in their lives, viewed from a holistic perspective, including thought processes, healthcare, emotion, spirituality and changes in their social lives? A comparative analysis of tape recorded interviews yielded the data resulting in a six-phase model of terminal diagnosis survivorship delineating a psycho/social/spiritual transformational learning process. Death acceptance emerged as a central organizing construct facilitating transformational changes in those given a terminal diagnosis resulting in a constellation of attitudinal and behavioral change. This model challenges and extends theory in adult learning and post traumatic survival by challenging the heavily rational and cognitive based theories of these fields, emphasizing the importance of emotions, altered states, extrarational experiences and spirituality. This model also explicates the role of denial that can alternatively hamper, facilitate or place on hold movement toward death acceptance, the ultimate transformative agent. Additionally, this model elucidates the importance of holding environments on both sustaining and eliciting transformational and developmental change.
Ph. D.

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Carlsson, Malin, and Malin Nordin. "Unga kvinnors upplevelser av bröstcancer ur ett psykosocialt perspektiv." Thesis, Halmstad University, School of Social and Health Sciences (HOS), 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:hh:diva-3853.

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Problem: En problematik i sjukvården är att psykosociala problem sällan eller aldrig fångas upp av vårdpersonalen, att vara ung är en riskfaktor för att drabbas av psykosociala problem. Det är därför av vikt för sjuksköterskan att ha kunskap om den psykosociala påverkan som unga kvinnor med bröstcancer upplever. Syftet: var att belysa unga kvinnors upplevelser av sin bröstcancer ur ett kosocialt perspektiv, relaterat till omvårdnad.

Metod: En litteraturstudie, där 14 kvalitativa och kvantitativa artiklar som svarade mot studiens syfte användes. Resultat och konklusion: Bröstcancern påverkade kvinnans relationer med de anhöriga både positivt och negativt. De kroppsliga förändringar som uppstod till följd av bröstcancern skapade funderingar kring reproduktion, sexualitet och femininitet. De unga kvinnorna upplevde brist på anpassad information och anpassat stöd, de upplevde även att de förlorade sin identitet. Rädslan för att dö eller återinsjukna präglade kvinnornas liv. En ångest att överge sin familj vid en eventuell bortgång var vanligt förekommande hos kvinnorna.Implikation: Det finns behov av att förbättra information och psykosocialt stöd speciellt anpassat för unga kvinnor som drabbats av bröstcancer. Även behov av vidare forskning om hur psykosociala problem identifieras hos unga kvinnor med bröstcancer.

Problem: In health care the psychosocial problem rarely or never is noticed by nursing staff, being young is a risk factor for suffering from psychosocial problems. It is therefore important for nurses to have knowledge about the psychosocial impact that young women with breast cancer experience.

The purpose: was to illustrate young women´s experiences of their breast cancer from a psychosocial perspective, related to nursing.

Method: It was a literature study, where 14 qualitative and quantitative articles that responded to the study´s purpose were used.

Results and conclusion: Breast cancer influenced women´s relationships with the families both positively and negatively. The physical changes that occurred as a result of breast cancer created concerns about reproduction, sexuality and femininity. They felt that there was a lack of personalized information and tomized support for the young women. The women felt that they had lost their identity. The fear of dying or recurrence imprinted the women´s life. Anxieties to abandon the family in the event of a possible death were commonly occurring in the women.

Implication: There is a need to improve information and psychosocial support ecially modified for young women with breast cancer. Also there is a need for further research on how psychosocial problems are identified in young women with breast cancer.

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Roux, Pauline. "Images et savoirs dans l’expérience du cancer du sein : Un regard psychosocial sur les photographies et les schémas dans la relation chirurgien-patiente." Thesis, Lyon 2, 2013. http://www.theses.fr/2013LYO20096/document.

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Cette thèse interroge les images dans le parcours de soin de femmes touchées par un cancer du sein. Nous questionnons de façon spécifique les images ayant trait à la chirurgie curative du cancer du sein, images représentant la transformation du corps de la femme. Notre objectif est de comprendre les usages des images dans la consultation chirurgicale et de saisir leur interaction avec l’expérience de la maladie vécue par les patientes. Nous nous appuyons sur l’approche des représentations sociales pour appréhender la notion d’image selon deux acceptions. D’une part, l’image renvoie à l’iconographie ; ce qui nous intéresse alors est l’objectivation graphique, forme d’objectivation qui ne passe pas par les discours mais par la transformation des idées en entités concrètes dans des objets graphiques réels, comme l’iconographie circulant dans différents contextes. D’autre part, la notion d’image nous sert à désigner la dimension figurative des représentations sociales. Sous cette signification, l’image renvoie à l’aspect concret des représentations sociales, issu du processus d’objectivation. Ces deux acceptions de la notion d’image sont mises en lien avec la dimension expérientielle et les processus de genèse et de transformation des représentations sociales. Les méthodes d’enquête que nous avons mises en place sont qualitatives et s’inscrivent dans des lieux de soin. Nous nous appuyons sur un plan méthodologique reposant sur le principe de la triangulation des méthodes, qui permet d’atteindre différentes facettes de l’objet, dans différents contextes. Dans notre étude, la méthode d’observation de consultations chirurgicales est éclairée par des entretiens et focus groups avec des patientes.Les observations de consultations permettent de relever les types d’images utilisés dans ce contexte et les usages qui en sont faits : photographies et schémas sont principalement employés pour représenter la chirurgie du cancer du sein, chaque type d’image mettant en scène le corps selon des caractéristiques singulières. Si les patientes commentent peu ces images au cours des consultations, entretiens et focus groups nous donnent accès à leur perspective : photographies et schémas n’entrent pas en interaction de la même manière avec l’expérience des patientes et ne renvoient pas aux mêmes univers représentationnels
This thesis questions the images in the treatment of breast cancer. More particularly, we question the images related to breast cancer curative surgery representing the transformation of the woman body. Our objective is to understand the use of the images in surgical consultation and to seize their interaction with the experience of the disease by the patients. We rely on the approach of social representations to comprehend the concept of image according to two different acceptances. On the one hand, the image refers to iconography; therefore, what interests us is the graphical objectification, which does not imply speeches but the transformation of ideas into concrete entities in real graphical objects such as the iconography available in different contexts. On the other hand, the concept of image is used to refer to the figurative aspect of social representations. Under this meaning, the image refers to the concrete aspect of social representations emanating from the objectification process. These two acceptances of the concept of image are linked to the experience dimension and to the genesis and transformation processes of social representations. We used qualitative investigating methods and worked in care centers. Our methodology is based on triangulation, which enabled us to assess different aspects of the object in different contexts. The method used to observe surgical consultations in our study was enlightened by interviews and focus groups held with patients.The consultation observations enabled us to highlight the types of images used in this context and how they are used: photographs and schemas are mainly used to represent breast cancer surgery as each type of image shows the body according to specific features. While the patients do not comment much these images during the consultations, they make more comments during interviews and focus groups, showing us their perspectives: photographs and schemas do not interact the same way with the experience of the patients, and do not refer to the same representational spheres

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Davis, Lauren Zagorski. "Characteristics of life stress experienced prior to the diagnosis of ovarian cancer: Differential effects on psychosocial functioning and the role of protective resources." Diss., University of Iowa, 2017. https://ir.uiowa.edu/etd/5744.

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Little research has examined the effect of non-cancer life stressors on psychological well-being and recurrence in patients with cancer, and results have been mixed. Furthermore, no studies have examined specific types of stress, including loss, danger, and entrapment in patients with cancer, utilizing data obtained from the Life Events and Difficulties Schedule. Given that specifics stressors have been associated with certain psychological responses, this study sought to obtain a more nuanced understanding of the relationship between life stress and psychological well-being. This was examined in a sample of 135 women with ovarian cancer prior to surgery and during the year after diagnosis using latent growth curve analyses. Models of protective psychosocial resources examining social support, mastery, self-acceptance, and purpose in life as potential moderators and mediators of the relationship between life stress and psychosocial outcomes were also evaluated. Results indicated that cancer-related losses were most closely associated with psychological well-being across several analyses, and non-cancer losses had the greatest impact on psychological outcomes when cancer-related loss was low. Non-cancer losses were significantly related to greater fatigue prior to surgery. Additionally, major non-cancer danger stressors were associated with greater distress prior to surgery. In this sample, no stressors were significantly related to cancer recurrence. Social support was the most consistent moderator of life stress on psychological well-being, and its effects on distress and depression at baseline were mediated through self-acceptance. These findings highlight the importance of both cancer- and non-cancer-related stressors on psychological wellbeing among cancer patients in their first year following surgery and furthers our understanding of the role of protective psychosocial factors. This study has significant implications for distress screenings in patients with cancer, psychological interventions, and future research.

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Pemer, Lisa A. M., and Fredrik Willehadson. "Ungdomar och unga vuxnas upplevelser av sin psykosociala situation under cancerbehandling." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2020. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-425599.

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SAMMANFATTNING Bakgrund: Ungdomar och unga vuxna under cancerbehandling är i behov av specialanpassad och ålderslämplig vård då deras åldersgrupp genomgår unika livsutvecklande milstolpar i övergången från barndom till att bli vuxen som påverkas av cancersjukdomen. En störd livsutveckling kan resultera med långsiktiga negativa konsekvenser som kan påverka ungdomar och unga vuxna även efter avslutad behandling. Syfte: Att undersöka ungdomar och unga vuxnas upplevelser av sin psykosociala situation under cancerbehandling. Metod: Litteraturstudie med systematisk ansats med beskrivande design. Litteratursökningen använde MEDLINE, CINAHL, och PsycINFO. Resultatet baserades på elva kvalitativa studier samt en kvantitativ studie med kvalitativ bearbetning av ett fritextsvar publicerade mellan år 2014–2020. Resultat: Ungdomar och unga vuxna värderade bibehållandet av ett normalt liv och strävade efter att uppnå detta med olika strategier. Självständighet och känslan för den egna identiteten kunde störas. Stöttning från anhöriga, närstående, cancerdrabbade jämnåriga, och vårdpersonal var av betydelse men inte alltid tillräckligt. Upprymdhet upplevdes över att avsluta cancerbehandlingen men också en oro inför framtiden efteråt. Slutsats: Rapporterade upplevelser av psykosociala påfrestningar under cancerbehandlingen leder till slutsatsen att kunskap om hur dessa utmaningar kan bemötas på ett specialanpassat och ålderslämpligt vis är bristfällig. En vidare fördjupad förståelse för ungdomar och unga vuxnas psykosociala upplevelser under cancerbehandling från ytterligare forskning kan potentiellt förbättra sjukvårdens möjlighet till att erbjuda adekvat vård. Nyckelord: Ungdomar och unga vuxna (AYA), Cancerbehandling, Psykosocial, Erfarenheter.
ABSTRACT Background: Adolescents and young adults undergoing cancer treatment are in need of specially adapted and age appropriate care since their age group undergoes unique life-developing milestones in the transition period between childhood and adulthood that may be affected by cancer. A disrupted life development may result in long-term negative consequences that may affect adolescents and young adults even after the end of cancer treatment. Aim: This study aimed to examine adolescents and young adults’ experiences of their psychosocial situation during cancer treatment. Method: Literature review with descriptive design. The literature search used MEDLINE, CINAHL, and PsycINFO. The result was based on eleven qualitative studies and a quantitative study with qualitative processing of a free text answer published between 2014-2020. Result: Adolescents and young adults valued the maintenance of a normal life and strived to achieve this with different strategies. Independence and the feeling for one's own identity could be disturbed. Support from family, friends, cancer-stricken peers, and healthcare staff was of importance, but not always enough. Exaltation was experienced over ending the cancer treatment but also a concern for the future afterwards. Conclusion: Reported experiences of psychosocial stress during cancer treatment lead to the conclusion that knowledge of how these challenges can be met in a specially adapted and age-appropriate way is deficient. A further in-depth understanding of adolescents and young adults' psychosocial experiences during cancer treatment from further research may potentially improve healthcare's ability to offer adequate care. Keywords: Adolescents and Young Adults (AYA), Cancer Treatment, Psychosocial, Experiences.

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El, haj Aya, and Kom Elvire Ariane Tchuenteu. "Kvinnors upplevelse av vardagligt liv efter en mastektomi : En litteraturstudie." Thesis, Malmö universitet, Malmö högskola, Institutionen för vårdvetenskap (VV), 2020. http://urn.kb.se/resolve?urn=urn:nbn:se:mau:diva-41309.

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Bakgrund: Cancer är en livshotande sjukdom som kan orsaka dödsfall. Bröstcancer är den vanligaste cancerformen bland kvinnor över hela världen. Behandlingen för bröstcancer är vanligtvis ett kirurgiskt ingrepp som kallas mastektomi. Det är ett ingrepp där en del eller hela bröstet avlägsnas. Därefter kan kirurgin kompletteras med annan behandling för att förhindra spridningen. Bröstet är ett organ som har en betydelse för attraktivitet, sexualitet och kvinnlighet. Tanken på att förlora bröstet innebär en förändring hos den drabbade kvinnan och kan som konsekvens påverka kvinnans liv. Syftet: Syftet med denna studie var att beskriva kvinnors upplevelse av vardagen efter en mastektomi. Metod: Den valda metoden var en kvalitativ litteraturstudie, baserad på elva vetenskapliga artiklar som analyserades genom en manifest innehållsanalys. Resultat: Resultatet består av tre huvudkategorier Den nya kroppen, Den förändrade tillvaron och Upplevelse av stöd, och åtta subkategorier Förändrad kroppsbild, Förändrad sexualitet, Förändrad social funktion och påverkan på vardagen, Psykisk ohälsa, Känsla av acceptans och tacksamhet, Stöd från omgivning och Mötet med sjukvården. Konklusion: Kvinnor påverkas olika efter en mastektomi och upplevelsen kan variera beroende på ålder. Påverkan kan vara i form av depression, försämrad livskvalitet, förändring av kroppsbild och sexualitet. Därför är det avgörande för denna patientgrupp att ha kontakt med vården eftersom kvinnan behöver stöd för att kunna uttrycka känslor postoperativt. Således är sjuksköterskans roll att bemöta patienter på ett respektfullt sätt och tillhandahålla en rätt omvårdnad.
Background: Cancer is a life-threatening disease that can cause death. Breast cancer is the most common form of cancer among women worldwide. The treatment for breast cancer is usually a surgical procedure called mastectomy. It is a procedure where a part of or the whole breast is removed. The surgery can then be supplemented with other treatments to prevent the spread. The breast is a body part that is important for attractiveness, sexuality and femininity. The thought of losing the breast involves a change in the affected woman and can consequently affect the woman's life. Aim: The aim of this study was to describe women's experience of everyday life after a mastectomy. Method: The chosen method was a qualitative literature study, based on eleven scientific articles that were analyzed through a manifest content analysis. Result: The result consists of three main categories The new body, The changed existence and Experience of support, and eight subcategories Changed body image, Changed sexuality, Changed social function and impact on everyday life, Mental illness, Feeling of acceptance and gratitude, Support from the environment and Meeting with healthcare. Conclusion: Women are affected differently after a mastectomy and the experience can vary depending on age. Impacts can be in the form of depression, deteriorating quality of life, changes in body image and sexuality. Therefore, it is crucial for this patient group to have contact with the care because the woman needs support to be able to express feelings postoperatively. Thus, the role of the nurse is to treat patients in a respectful way and provide proper care

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Sharma, Abhiram. "Psychosocial factors in colorectal cancer." Thesis, University of Hull, 2007. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.445739.

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Galán, Ortega Santiago J. "Psychosocial support for young cancer survivors." Doctoral thesis, Universitat Rovira i Virgili, 2017. http://hdl.handle.net/10803/461095.

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El nombre de supervivents de càncer està creixent. Tanmateix, els efectes secundaris i a llarg plaç causats pel mateix càncer o pel seu tractament poden crear necessitats addicionals. Identificar quines són aquestes necessitats i desenvolupar directrius específiques sobre com es poden satisfer és important per garantir una qualitat de vida satisfactòria en aquesta població. Aquesta tesi està relacionada amb aquesta àrea de coneixement i té tres estudis: una revisió sistemàtica de les necessitats d'Adolescents i adults joves (Estudi I), un estudi Delphi sobre la importància d'aquestes necessitats (Study II) i una validació de l'Escala de Centralitat d'Esdeveniments (CES) per al seu ús amb joves de parla hispana (Estudi III). Les principals conclusions són les següents: 1. Els adolescents i adults joves supervivents de càncer tenen necessitats específiques com ara rebre informació i assessorament individualitzat, assistència personalitzada en la fase de posttractament, assistència psicològica i suport social. 2. Moltes d'aquestes necessitats relacionades amb la fertilitat i la salut sexual, el manteniment d'un estil de vida saludable, el suport social i familiar i les relacions entre iguals rarament es troben satisfetes. 3. El CES és una eina d'avaluació fiable i vàlida per ser utilitzada amb joves, que pot ajudar a determinar la importància de la centralitat de l'esdeveniment per adaptar-se als esdeveniments del càncer.
El número de supervivientes de cáncer está creciendo. Sin embargo, los efectos secundarios y a largo plazo causados por el cáncer o por su tratamiento pueden dar lugar a necesidades adicionales. Identificar cuáles son estas necesidades y desarrollar pautas específicas sobre cómo se pueden satisfacer es importante para garantizar una calidad de vida satisfactoria en esta población. Esta tesis está relacionada con esta área de conocimiento y cuenta con tres estudios: una revisión sistemática de las necesidades de adolescentes y jóvenes adultos (Estudio I), un estudio con metodología Delphi sobre la importancia de estas necesidades (Estudio II) y una validación de la escala de Centralidad de eventos (CES) para su uso con jóvenes de habla hispana (Estudio III). Las principales conclusiones son las siguientes: 1. Los adolescentes y adultos jóvenes supervivientes de cáncer tienen necesidades específicas tales como recibir información y asesoramiento individualizado, cuidado a medida en la fase posterior al tratamiento, ayuda psicológica y apoyo social. 2. Las necesidades relacionadas con la fertilidad y la salud sexual, el mantenimiento de un estilo de vida saludable, el apoyo social y familiar y las relaciones con los compañeros rara vez se encuentran cubiertas. 3. El CES es una herramienta de evaluación fiable y válida para ser utilizada en gente joven, que puede ayudar a determinar la importancia de la centralidad del evento para el ajuste a la vivencia del cáncer.
The number of cancer survivors is growing. However, the side and late effects caused by cancer itself or by the cancer treatment may result in additional needs. Identifying what these needs are and developing specific guidelines about how they can be satisfied is important in order to guarantee a satisfactory quality of life in this population. This Thesis is related to this area of knowledge, and has three studies: a systematic review of the needs of AYAs (Study I), a Delphi study about the importance of these needs (Study II) and a validation of the Centrality of Event Scale (CES) for its use with Spanish-speaking youths (Study III). The main conclusions are the following: 1. AYA cancer survivors have specific needs such as receiving information and individualized counselling, tailored care in the post- treatment phase, and psychological help and social support. 2. Several of these needs are seldom met, mostly related to: fertility and sexual health, healthy lifestyle maintenance, social and family support, and peer relationships. 3. The CES is a reliable and valid assessment tool to be used with young people, which can help determine the importance of centrality to adjustment to cancer events.

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Rigby, Selane. "Cancer : emotional experiences." Thesis, Lancaster University, 2017. http://eprints.lancs.ac.uk/123527/.

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Cancer can have major implications for those who receive a diagnosis, not only as a result of its physical impact, but its emotional one. The emotional impact can not only be distressing in itself, it can also affect behaviour and therefore, has been linked to poorer treatment adherence. The experience of difficult self-directed emotions, such as guilt, shame and disgust have provoked particular interest, particularly due to their association with rejection and avoidance. Therefore, insight into how and when these emotions are experienced within the cancer treatment journey are important to understand, in order that optimum support can be provided. The first paper is a thematic synthesis that explores the emotional experiences of people undergoing cancer treatment with a curative intent. The synthesis is structured by a sequential framework of four key transition points within the cancer journey, and the emotional experiences synthesised within each one. The temporal transition points were: Being diagnosed and facing treatment; Getting rid of cancer; Changed body and stigma; Reflections on the emotional journey having completed treatment. The synthesis demonstrates how emotions and feelings evolve and change in type, frequency and intensity across the curative cancer journey. The second study uses narrative analysis methodology to explore difficult self-directed emotions throughout cancer treatment and into recovery. The analysis focuses on how and when the emotions of disgust, guilt, shame and fear arise, as well as resulting changes to the sense of self. The findings demonstrate how many factors, such as relationships, current stressors, past experiences and resources (personal and systemic) can impact on emotional experiences. The critical appraisal focuses on strengths and weaknesses of the studies, particularly in relational to emotional research considerations more generally.

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Cason, Laura Rose. "Cancer deaths in the aged psychosocial and disease variables /." Gainesville, FL, 1985. http://www.archive.org/details/cancerdeathsinag00caso.

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Marshall, Claire. "Experiences of displacement and psychosocial support : a phenomenological inquiry." Thesis, Regent's University, 2013. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.646074.

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Despite the historical presence of forced migrants, the notion of refugees or internally displaced people is relatively new. With this, associated methods of practice and interventions have also arrived. Psychosocial supports provided by international actors aim to address psychological needs, yet there is arguably a lack of evidenced based practice in this area. Conceptualisations of the refugee experience vary from a focussing on wellbeing, to viewing mental health problems as everyday distress, to the association of trauma as a maladaptive presence, which makes psychosocial issues ubiquitous among forced migrants. There is also the issue of proportionality in generalised and specialised supports as well as the question of who should be the providers of psychosocial interventions. Based on this multilayered context, questions arise around how the psychology of displaced people should be understood and what interventions are useful and appropriate. The present research seeks to illuminate these dilemmas through a phenomenological inquiry. Semi-structured interviews were conducted with six people who had experienced internal forced displacement and lived in a camp in Uganda, Africa. It was found that the most common issues centred on physical safety, loss, suffering and coping, time, future, identity and community. The research also found that, from the point of view of the interviewees, psychosocial interventions were needed. Problematic areas cited, included: the need for more involvement and communication with displaced communities when shaping services, lack of project sustainability and the need for more culturally sensitive interventions. The research also aims to give a voice to these narratives. Finally, the research aims to contribute a new perspective on the topic; one which draws upon and integrates literature from Counselling Psychology and the forced migration and psychosocial fields.

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Mattsson, Elisabet. "Cancer During Adolescence: Psychosocial Consequences and Methodological Issues." Doctoral thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2008. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-8643.

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The overall aim of this thesis was to investigate psychosocial consequences of cancer during adolescence, using a longitudinal approach. An additional aim was to investigate if mode of administration has an influence on adolescents’ and young adults’ self-reported psychosocial function. In Study I participants, aged 13-23 years, were randomised according to two modes of administration, telephone interview and postal questionnaire, and asked to complete the Hospital Anxiety and Depression Scale (HADS) and Short Form 36 (SF-36). The telephone mode resulted in a higher response rate, better self-rated psychosocial function (except for the youngest age group), overall lower Cronbach’s alpha values, and a larger percentage of ceiling effects compared to the postal mode. A higher proportion of males than females chose not to participate in the postal mode. In Study II and III adolescents diagnosed with cancer completed the HADS and two sub-scales from the SF-36 (Mental Health and Vitality) 4-8 weeks, 6, 12, and 18 months after diagnosis. In Study II adolescents with cancer were compared to a reference group from the general population. Shortly after diagnosis the cancer group rated their psychosocial function as worse compared to the reference group. However, the differences gradually disappeared over time and were then reversed, resulting in the cancer group reporting better vitality and lower levels of anxiety and depression than the reference group eighteen months after diagnosis. In Study III five distinct psychosocial states were identified, characterised by: psychosocial dysfunction (state A), poor psychosocial function (state B), incomplete psychosocial function (state C), good psychosocial function (state D), and excellent psychosocial function (state E). Shortly after diagnosis more adolescents than expected by chance were found in states A and C and fewer were found in states D and E. Eighteen months after diagnosis a different pattern emerged, where more adolescents than expected were found in state E and fewer than expected in state C. In Study IV adolescents, two years after diagnosis, reported problems with physical impairment, intrusive thoughts, feelings of alienation, and problems catching up with school. However, a majority of the participants also reported positive consequences with regard to the cancer disease: a more positive view of life, good self-esteem, knowledge and experience with regard to disease and hospital care, good relations, broader perspectives, and material gains. Study V, a review of the literature, indicates that survivors of childhood/adolescent cancer do not differ from comparison groups with regard to relations to others and relation to self. However, some findings highlight that friendship and marital status are areas of concern, and parenthood and sexuality are areas of potential concern. In conclusion, mode of administration influences adolescents’ and young adults’ self-reported psychosocial function and is related to age. Psychosocial function increases with time from diagnosis for most adolescents diagnosed with cancer. However, some individuals remain in poor psychosocial states during the first eighteen months after diagnosis. Increased efforts should be taken to identify these individuals.

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Neuling, Sandra J. "Psychosocial needs and responses in breast cancer recovery /." Title page, contents and abstract only, 1989. http://web4.library.adelaide.edu.au/theses/09PH/09phn487.pdf.

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Thesis (Ph. D.)--Dept. of Psychology, University of Adelaide, 1991.
Typescript (Photocopy). Includes two papers co-authored by the author as appendix D. Includes bibliographical references (leaves 397-425).

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Ibrahim, M. (Moamen). "Revealing effects of psychosocial factors of cancer patients." Master's thesis, University of Oulu, 2019. http://jultika.oulu.fi/Record/nbnfioulu-201906272679.

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Abstract. This research shows different methodologies applied on different platforms in order to extract both social and psychosocial factors that might be related to caner by applying natural language processing tools on text from different platforms as social media or other online forums. We also present challenges associated with every platform and the corresponding tools used on it. From text mining to text analysis and then data visualisation, this research compares different analysis methods and outputs. We discuss many tools either tested, used or modified in order to achieve such analysis. Meanwhile, we were able to get interesting findings for the medical fields to explore and research more. We developed a modular system that can help clinicians and medical experts use to analyse similar forums.Syöpäpotilaiden psykososiaalisten tekijöiden vaikutusten paljastaminen. Tiivistelmä. Tämä tutkimus esittelee erilaisia menetelmiä sovellettuina eri alustoilla, tavoitteena hahmottaa sekä sosiaalisia että psykokososiaalisia tekijöitä, jotka voivat liittyä syöpään sovellettaessa luonnollisia kielenkäsittelyvälineitä eri alustojen tekstille sosiaalisen median tai muiden online-foorumeiden muodossa. Esitämme myös haasteita, jotka liittyvät jokaiseen alustaan ja siihen liittyviin työkaluihin. Teksti-mining, tekstianalyysiin ja sitten datan visualisointiin tässä tutkimuksessa verrataan erilaisia analyysimenetelmiä ja -tuloksia. Keskustelemme monista työkaluista, jotka on testattu, käytetty tai muunnettu tällaisen analyysin saavuttamiseksi. Samaan aikaan saimme mielenkiintoisia tuloksia lääketieteen aloille tutkia ja tutkia lisää. Kehitimme modulaarisen järjestelmän, jonka avulla lääkärit ja lääketieteen asiantuntijat voivat analysoida samanlaisia foorumeita.

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Huang, Tianyi. "Psychosocial Factors, Lifestyle and Risk of Ovarian Cancer." Thesis, Harvard University, 2015. http://nrs.harvard.edu/urn-3:HUL.InstRepos:16121145.

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Current prevention recommendations for ovarian cancer are limited, and the underlying etiology is not fully elucidated. The associations of common modifiable factors, such as psychosocial and lifestyle factors, with ovarian cancer risk need to be more fully evaluated. Thus, I examined the association of ovarian cancer with depression, physical activity, hypertension, and antihypertensive medication use among participants from two prospective cohort studies: the Nurses' Health Study and Nurses' Health Study II. Cox proportional hazards models were used to estimate hazard ratios (HRs) and 95% confidence intervals (CIs) for these associations. Depression was associated with about 30% increased risk of ovarian cancer (HR = 1.30, 95% CI 1.05-1.60). Higher risk was also observed among women with persistent positive depression status than women intermittently positive or persistently negative for depression. Contrary to the hypothesis that physical activity may lower ovarian cancer risk, we observed that both low and high physical activity was associated with a modest increase in ovarian cancer risk (HR for ≥27 [approximately equivalent to 1 hr/day of brisk walking] versus 3-9 MET-hrs/week = 1.26, 95% CI 1.02, 1.55; HR for <3 versus 3-9 MET-hrs/week = 1.19, 95% CI 0.94, 1.52). However, these associations were only restricted to premenopausal physical activity, and postmenopausal activity was not associated with ovarian cancer risk. While hypertension was not associated with risk (HR = 1.03, 95% CI 0.87, 1.21), use of thiazide diuretics was associated with an increased risk of ovarian cancer (HR = 1.35, 95% CI 1.04, 1.74), and use of calcium channel blockers was associated with a suggestively lower risk (HR = 0.73, 95% CI 0.53, 1.01). Our results need to be confirmed by other studies, but suggest that these common modifiable factors may have a moderate impact on ovarian cancer risk. This represents an opportunity to broaden our understanding of ovarian cancer etiology and potentially improve prevention strategies for ovarian cancer.
Epidemiology

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Waller, Josephine. "The viral aetiology of cervical cancer : psychosocial issues." Thesis, University College London (University of London), 2005. http://discovery.ucl.ac.uk/1446882/.

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This work stems from the discovery that certain sexually transmitted types of human papillomavirus (HPV) are the main causal agents in cervical carcinogenesis. The thesis sets out to explore the psychosocial issues that arise from linking a sexually transmitted infection with cervical cancer. Four studies were carried out. Study 1 was a survey of women attending a well-woman clinic (n=1032) and assessed awareness and knowledge about HPV. Study 2 used a population representative sample of men and women (n=1937) to assess beliefs about the risk factors for cervical cancer. Study 3 used in-depth interviews to explore the beliefs and experiences of 74 women who had taken part in HPV testing. Study 4 was a continuation of Study 3, in which 30 women were interviewed following participation in their second HPV test, a year after the first. Awareness of HPV and its link with cervical cancer was found to be low. Although there was higher awareness of sexual activity as a risk factor for cervical cancer, this was far from universal. Women testing positive for HPV who understood that it was sexually transmitted frequently reported negative emotional and social responses, different from those that have been found among women with abnormal smear test results. Leventhal's Common Sense Model of self-regulation in health and illness provided a useful framework within which to conceptualise the relationship between women's cognitive representations of HPV and their responses to the infection. It seemed that women were also engaged in the self-regulation of their relationships and were motivated to develop representations of HPV that did not impugn their current partners. Diagnosis with persistent HPV infection was associated with higher levels of anxiety about health and with the desire for immediate further investigation by colposcopy, rather than continued surveillance. The introduction of HPV testing and vaccination should be accompanied by widespread public education. If information provision is not handled in a sensitive way, it could cause confusion and stigmatise cervical cancer. More research is needed to develop ways to communicate information about HPV effectively.

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Kelleher, Sarah A. "Colon Cancer Survivorship Experiences." Thesis, Virginia Tech, 2010. http://hdl.handle.net/10919/36209.

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The purpose of this project is to explore potential social cognitive and psychosocial predictors of lifestyle changes, including diet and physical activity behaviors, in a sample of colorectal cancer survivors who are at high risk of developing a second colorectal cancer. Participants, recruited from Georgetown Universityâ s Lombardi Comprehensive Cancer Center, are colorectal cancer survivors from families at high or confirmed risk of having a hereditary colorectal cancer syndrome. Results indicate that, at the bivariate level, many of the psychosocial and social cognitive variables of interest are significantly associated with one another as well as with various health behaviors and health behavior changes. Correlational data indicate that lower distress is associated with higher psychosocial functioning, self-efficacy, and self-regulatory ability. In addition, the data also suggest that individuals with higher self-efficacy display higher self-regulation and more positive outcome expectations related to health behaviors. Overall, participants were more likely to increase healthy behaviors or remain consistent with moderately healthy lifestyles practiced prior to their colorectal cancer diagnosis and treatment, and decrease unhealthy behaviors. Implications and directions for future research are discussed within the paper.
Master of Science

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Thannhauser, Jennifer, and University of Lethbridge Faculty of Education. "The psychosocial experiences of individuals diagnosed with early-onset MS." Thesis, Lethbridge, Alta. : University of Lethbridge, Faculty of Education, 2005, 2005. http://hdl.handle.net/10133/284.

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This qualitative study explored the psychosocial experiences of children and adolescents with early-onset multiple sclerosis. In particular, an emphasis was placed on examing peer relationships and social behaviours in relation to these experiences. MS is a chronic neurological disease primarily affecting young adults. However, a proportion of MS patients have onset during childhood and adolescence. Very little is know about the psychosocial impact of MS on these children and adolescents. In particular, youth with MS may be at risk for negative peer experiences due to their chronic illness. Previous research suggested that negative peer experiences increase the risk of poor psychosocial development. In addition, research suggested that the social behaviours of these youth also impact the nature of their experiences with peers. Ultimately, this research aimed to provide insight into the psychoscial experiences of youth with MS and the role of their peer relationships. Six linked parent-youth pairs, from the MS Clinic in Calgary, AB, participated in semi-structured interviews to identify the issues that are pertinent to the participants' own experiences. Constant comparison analysis was then used to summarize the rante of psychosocial experiences in the adolescent participants. Data analysis was derived from grounded theory, which provided a framework for examining and categorizing interview data into themes. The categories were then constructed logically and systematically into a theoretical model which represented the data. Through this innovative grounded theory, a theoretical paradigm for understanding the psychosocial experiences of adolescents with MS was developed. The theory was comprised of two core categories: "the grief experience" and "dynamic relationships', each with several sub-categories. There were two primary conclusions drawn from the theory. The first reflected the significance of grief in understanding psychosocial experiences in adolescents with MS. The second identified that peer relationships play a variety of roles in this grief process. The second identified that peer relationships play a variety of roles in this grief process. The results of this study have many implications for the role of counsellors in the treatments of adolescents with MS. This model can act as a foundation for guiding therapeutic treatment of adolescents with MS. This model can act as a foundation for guiding therapeutic treatment and promoting future research in the area of psychosocial development in children and adolescents with early-onset MS.
xiv, 181 leaves ; 28 cm.

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Hilton, K. M. "Exploring the psychosocial experiences of adolescents with sequential cochlear implants." Thesis, Canterbury Christ Church University, 2012. http://create.canterbury.ac.uk/10976/.

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Section A is a review of the literature on the psychological and social implications of cochlear implants (CIs) in deaf children and adolescents. The literature is critically evaluated in relation to health-related quality of life, quality of life, psychological and emotional well-being, social well-being and identity. Relevant theories are outlined and discussed. Methodological limitations and gaps in the literature are discussed, and the review concludes with recommendations for further research. Section B describes a study using Interpretative Phenomenological Analysis to explore adolescent experiences of receiving and living with sequential cochlear implants (SCIs). Semi-structured interviews were conducted with eleven adolescents. The master and sub-themes are presented and the results are discussed with consideration of previous research findings and theoretical, clinical and research implications. Most participants enjoyed improved confidence and social well-being following their SCI, and felt that two CIs were superior to one. The majority identified themselves as hearing and deaf, but not culturally Deaf, as they strived to live in the hearing world. However, this was not without challenges and many young people experienced feelings of difference in the hearing world. These findings have clinical implications in terms of the role of clinical psychologists in CI clinics, and in providing information to families making decisions about CIs. These findings add to the emergent deaf identity development literature in young people with CIs.

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Jakobsen, Tanya Annalise. "Psychosocial experiences of type 1 diabetes diagnosed in emerging adulthood." Thesis, University of British Columbia, 2016. http://hdl.handle.net/2429/58806.

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While advances in medical technology have enabled people with type 1 diabetes (T1D) to live longer lives with fewer complications, these interventions are only as effective as individuals' abilities to implement them. People diagnosed during emerging adulthood (i.e., ages 18-30) face high risk of poor health outcomes, as they must attempt to balance the demands of chronic illness with mastery of normative life tasks, namely identity exploration and development. To better understand the unique needs of this population, the present study investigates the lived experiences of people diagnosed with T1D during emerging adulthood. Interpretive phenomenological analysis (IPA) was used to elucidate the accounts of four participants with T1D, and to develop a more general description of this shared phenomenon. Data were analyzed for hierarchical themes, and are presented alongside verbatim quotes from interview transcripts to substantiate researcher interpretations. This thesis research argues for the inclusion of counsellors in routine diabetes management, to address the psychological, social, and spiritual aspects of health that are currently neglected by mainstream medicine, and that interfere with successful disease management.
Education, Faculty of
Educational and Counselling Psychology, and Special Education (ECPS), Department of
Graduate

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Engler, Jennifer [Verfasser]. "Cancer Care and Cancer Patients’ Experiences with Cancer / Jennifer Engler." Berlin : Medizinische Fakultät Charité - Universitätsmedizin Berlin, 2019. http://d-nb.info/1180994191/34.

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Tomei, Christina. "Addressing Fear of Cancer Recurrence: A Cognitive-Existential Psychosocial Intervention for Cancer Survivors." Thesis, Université d'Ottawa / University of Ottawa, 2017. http://hdl.handle.net/10393/36206.

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Fear of cancer recurrence (FCR) is defined as “fear, worry, or concern relating to the possibility that cancer will come back or progress (Lebel et al., 2016, p. 3266). FCR is the most frequently reported concern identified among cancer survivors (Baker, Denniston, Smith, & West, 2005; Lebel, Rosberger, Edgar, & Devins, 2007). Although approximately 50% of cancer survivors experience moderate-to-high levels of FCR (Simard et al., 2013), few psychosocial interventions exist that directly target this construct. The overarching study objectives were: (a) to adapt a manualized, 6-week, cognitive-existential group therapy intervention for FCR to an individual format; (b) to pilot-test the feasibility, acceptability, and satisfaction of this individual intervention on n=3 participants; and (c) to further pilot-test the efficacy of the individual intervention on n=25 participants, via a randomized controlled trial (RCT). In study 1, n=3 cancer survivors (1 male, 2 females) completed the one-on-one therapy intervention for the psychological treatment of FCR. Sessions were 60-90 minutes long, and included cognitive restructuring exercises, behavioural experiments, relaxation techniques, existential processing of the here-and-now, and finding meaning in life post-diagnosis. Participants completed questionnaire packages throughout the intervention and an exit interview to determine their overall feedback on the intervention. Quantitative analyses revealed downwards trends in fear of cancer recurrence and cancer-specific distress across participants. Qualitative analyses of the exit interviews revealed that all participants found the intervention useful, and that the sessions had favourable pacing and length. In study 2, the FCR intervention was further pilot-tested via an RCT. Twenty-five female cancer survivors were randomized to an experimental group or a wait-list control group. Sessions included cognitive restructuring techniques, behavioural experiments, confronting existential distress, and relaxation exercises. Nineteen women (n=9 intervention, n=10 control) completed the 6-week therapy intervention, and completed questionnaire packages at pre-, post- and 3-month follow-up. Between-within ANOVAs revealed significant interactions in the primary outcome measure of FCR, and secondary outcome measures of cancer-specific distress and uncertainty in illness for participants in the experimental group. Repeated measures ANOVAs revealed reductions in FCR, cancer-specific distress, uncertainty in illness, reassurance-seeking, cognitive avoidance, and intolerance of uncertainty, and revealed improvements in positive reinterpretation and growth, use of emotional support and mental health (improved quality of life) for participants in the experimental group, as compared to the wait-list control group. The variables that changed either maintained or improved at follow-up. Results from this study demonstrate promising results in addressing FCR in cancer survivors via a cognitive-existential intervention. Future research should continue investigating the specific therapeutic ingredients that are most effective for the psychological treatment of FCR.

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Kassianos, Angelos. "Understanding lifestyle-related psychosocial processes after prostate cancer diagnosis." Thesis, University of Surrey, 2013. http://epubs.surrey.ac.uk/805144/.

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Prostate cancer diagnosis can result in patients losing control who then make efforts to cope by seeking information, social and medical support and changing their health behaviour. The objective of the Thesis is to investigate the psychosocial processes that influence prostate cancer patients’ coping process with an emphasis on dietary change. A mixed methods approach was used comprising of five studies. The first (Chapter 4) recruited 98 patients and significant others who completed an online survey. It found significant others to develop a need for treatment and interaction-specific information earlier than patients who were more in need for treatment and disease-specific information. Education predicted the time of information needs’ development. The second study (Chapter 5) recruited 126 GPs to an online survey and compared their responses to patients’ and significant others’. It found that GPs’ underestimate the time patients develop an interest in information whereas gender and years of practice can explain GPs’ perceptions of patients’ information needs. The third study (Chapter 6) systematically reviewed the literature to identify an association between dietary changes and quality of life identifying ten randomised-control trials and proposing that an association exists which needs further establishment on the pathways of the relationship. The fourth study (Chapter 7) recruited 95 patients on an online and paper survey and found that socio-demographic factors, cognitive functioning, external locus of control and cancer symptoms (dyspnea) can explain whether patients will change their diet after diagnosis but only cognitive functioning can explain changes after therapy has started. Finally, the fifth study (Chapter 8) used semi-structured interviews with eight patients and found that they develop an underlying mechanism that includes the determinants and the resulted evaluations of dietary change. Findings from the Thesis suggest that a holistic and patient-centred approach when targeting prostate cancer patients’ needs should be considered.

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Parker, Margaret. "Psychosocial costs and benefits of screening for colorectal cancer." Thesis, University of Nottingham, 1996. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.320536.

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Mccaffery, Kirsten. "Participation in bowel cancer screening : examination of psychosocial processes." Thesis, University College London (University of London), 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.401038.

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Dodd, R. H. "Examining the psychosocial impact of human papillomavirus oropharyngeal cancer." Thesis, University College London (University of London), 2016. http://discovery.ucl.ac.uk/1522414/.

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The causal role of human papillomavirus (HPV) in oropharyngeal squamous cell carcinoma (OSCC) has been well established. The work presented in this thesis sets out to explore the information available about HPV-OSCC and examine the psychosocial issues associated with a diagnosis of HPV-OSCC. Six studies were carried out between 2013 and 2016. Study 1 systematically reviewed the existing literature examining the psychosocial impact of HPV-OSCC in patients (n=10 studies) and current knowledge of the relationship between HPV and OSCC (n=41 studies). Study 2 was a content analysis examining the media coverage in the UK of the link between HPV and OSCC (n=112 articles). Study 3 was a qualitative study with health professionals caring for HNC patients (n=15). Study 4 was an extension of study 3, developing a survey for dissemination among health professionals working with HPV-OSCC patients (n=260). Both studies explored their experiences of and attitudes to discussing HPV with their patients, with study 4 additionally measuring knowledge of HPV-OSCC. Study 5 was a qualitative study with patients diagnosed with HPV-OSCC (n=20) and with some of these patients’ partners (n=12), examining their experiences around the diagnosis of HPV-OSCC. Study 6 involved the development of an information booklet about HPV-OSCC, based on the findings of studies 1-5. The existing literature examining the psychosocial impact of HPV-OSCC provided limited evidence about the impact of HPV in OSCC patients. Knowledge of HPV in OSCC was not well known across most populations, and the HPV-OSCC content presented in the media lacked basic facts about HPV. The increasing incidence of HPV-OSCC was a significant issue for health professionals and key messages to communicate to HPV-OSCC were found. Reactions about HPV were mixed among participants whose cancer or partners’ cancer was caused by HPV. An information booklet developed about HPV-OSCC was well received by patients and health professionals and could act as a discussion tool to provide patients with evidence-based information. De-escalation of treatment in the future may help minimise some of the negative psychosocial outcomes associated with HPV-OSCC and improve long-term functioning.

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Swartzman, Samantha. "Psychosocial determinants of post-traumatic stress among cancer survivors." Thesis, University of Dundee, 2017. https://discovery.dundee.ac.uk/en/studentTheses/10d5554d-8987-436b-9558-4e6be5f844f2.

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Cancer survivors can experience a number of consequences of their disease, both physical and psychological. In this thesis, I aimed to clarify the psychosocial processes that reduce or increase post-traumatic stress after cancer. “Social support,” for instance, has often been linked to post-traumatic stress, but I describe several problems with this concept. Alternatively, inspired by the Social Identity Approach (SIA) to health, I proposed that group identification, or a sense of belonging and commonality with social groups, might predict levels of post-traumatic stress after cancer. In line with Social Cognitive Processing Theory (SCPT), I also proposed that cancer survivors’ perceptions that members of their social groups are closed, judgmental, and unreceptive in conversations about cancer (“group constraints”) might predict post-traumatic stress. I proposed that these constructs might act in tandem to predict levels of post-traumatic stress. To begin my programme of research, I conducted a meta-analysis that established factors contributing to post-traumatic stress disorder (PTSD). I also found an increased prevalence of PTSD among cancer survivors compared to controls without cancer. This meta-analysis demonstrated that cancer survivors can experience PTSD related to their illness. Subsequently, I undertook a series of quantitative questionnaire studies to establish psychosocial determinants of post-traumatic stress. My questionnaire included scales measuring post-traumatic stress, social support, group identification, and group constraints. In a pilot study, I used convenience sampling to test out the acceptability of the questionnaire and to provide a foundation for further hypothesising. Then, I distributed this piloted questionnaire to colorectal cancer survivors in Tayside. In initial “wave 1” cross-sectional analyses of this data, I found that social support was not an independent predictor of post-traumatic stress in multivariate analyses. However, group constraints consistently and independently predicted post-traumatic stress. Group identification exerted an effect on post-traumatic stress by reducing group constraints. I then distributed the same questionnaire a second time to the same respondents from wave 1 in order to collect longitudinal data. The results of the data from respondents at both waves 1 and 2 revealed that social support was, in fact, a likely causal predictor of post-traumatic stress. Constraints within the family also causally reduced post-traumatic stress. Family identification was a weak causal factor in reducing post-traumatic stress, but reciprocally, post-traumatic stress reduced group identifications. The longitudinal data also provided further, albeit not strong, support for the hypothesis that family identification reduces post-traumatic stress by reducing constraints on conversations within the family. Finally, in light of the consistent evidence from the quantitative studies above that conversational constraints are associated with increased post-traumatic stress, I conducted a qualitative interview study with a small number of cancer survivors aiming to characterise their experiences of conversations about cancer. The participants reported a broad range of experiences, beyond just constraints versus openness. These findings have broad implications for both theory and practice. For instance, in the final chapter, I discuss ways in which these results motivate further research on intersections between the Social Identity Approach and cancer-related post-traumatic stress. I also discuss implications for interventions going beyond traditional trauma exposure techniques.

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Musyoka, Kanini. "Exploring spiritual features within psychosocial support in cancer care." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2021. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-447003.

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Introduction:Psychosocial intervetions are the actions taken to offer psychosocial support to cancer patients and their relatives for the improvement of their quality of life. They are aimed at meeting patients' mental, emotional, social, and spiritual needs and those of their families.Various previous studies have explored different forms of psychosocial support offered to different groups of cancer patients and their relatives. However, there are few literature reviews about how spirituality is included in psychosocial support among cancer patients. Aims:The aim of this literature review is to explore the spiritual features within psychosocial interventions in cancer care. Method:Two databases were used in this study: CINAHL and PubMed.Thirteen scientific studies involving various psychosocial interventions were included. Content anlysis with three steps' strategy was done. Results:Various spiritual aspects within psychosocial interventions in cancer care were identified, and the most prevalent among them were finding meaning,spirirual coping,spiritual transecendence,connection with others and the Sacred, life completion tasks and preperation for death.Conclusion:Psychosocial spiritual support is an essential element of psychosocial cancer care.There is need for more awareness of how spiritual health is to be addressed in cancer care.
Inledning: Psykosociala interventioner är de återgärder som vidtagits för att erbjuda psykosocialt stöd till cancerpatienter och deras anhöriga för att förbättra deras livskvalitet.De är inriktade på att möta pateinternas mentala,emotionella,sociala och andliga behöv och deras familjers behov.Tidigare studier har undersökt olika former av psykosocialt stöd som erbjuds olika grupper av cancerpatienter och deras anhöriga.Det finns dock få litteraturöversikter om hur andlighet ingår i psykosocialt stöd bland cancerpatienter. Syfte:Syftet med denna litteraturöversikt är att utförska de andliga asoekter inom psykosociala interventioner i cancervård. Metod:Två databaser användes i denna i denna studie: CINAHL och PubMed. Treton vetenskapliga studier med olika psykosociala interventioner inkluderades. Trestegsstrategi innehållanalys gjordes. Resultat:Olika andliga aspekter inom psykosocialt stöd identifierades, och de vanligaste bland dem var meningsskapande, andlig hantering(spiritual coping), andlig transcedens, förbindelser med andra och det Heliga, och föberedelser inför döden. Slutsats:Psykosocialt andligt stöd är en viktig del av psykosocial cancervård. Det finns behöv av mer medvetenhet om hur andlig hälsa hanteras i cancervården.

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Boermeester, Frank. "Psychosocial care of people with cancer : the 'victim's' perspective." Master's thesis, University of Cape Town, 1996. http://hdl.handle.net/11427/8491.

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Includes bibliography.
Most psychosocial services for people with cancer remain under-utilised. This phenomenon disturbs the logic of two facts: that people with cancer do experience psychosocial problems, and that most interventions are capable of alleviating psychological distress and improving quality of life. This dissertation approached the above problem using a multi-modal methodology. First, a multi-choice questionnaire survey was conducted at the out-patient oncology clinic, Groote Schuur Hospital, showing that interest in the more professionalised services such as psychiatry, psychotherapy, coping skills courses, and social work was low, while interest in less professionalised services such as self-help groups and veteran patient visits was relatively high. In the context of the narrative and discursive approaches to understanding human experience, it was argued that psychosocial oncology presents a particular view of the person 'ith cancer, rooted in positivist and medical frameworks, which may be out of sink with patients' own understandings of themselves. A discourse analytic study, using two focus group interviews and four individual interviews with people with cancer, served as an alternative approach to understanding the coping process and patients' attitudes towards psychosocial care. Two contrasting discourses were highlighted in this way: an individualistic discourse and a psychological discourse. Respondents employed various rhetorical strategies in order to ensure domination of the rational, individualistic, and coping 'I' over the emotional, psychologized mind. Taken together, these results suggest that less professionalised services, based largely on fellow patient support, should be central to a more consumer-friendly system of psychosocial care. An action research approach was recommended as a possible means of developing such a system of care.

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Prytz, Anna, and Linda Harnfeldt. "Chemotherapy and Cancer - childrens experiences." Thesis, Kristianstad University College, Department of Health Sciences, 2006. http://urn.kb.se/resolve?urn=urn:nbn:se:hkr:diva-3754.

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With good knowledge about the disease and the treatment, the fear and worry of children and parents can be reduced. Children may be helped by painting to express their experiences. In order to have a good care, the care-personnel need to see and understand what the children need. It is important to live an as regular life as possible during the disease and its treatment. The aim of this study was to elucidate how children experience chemotherapy in conection with their cancer disease. The method that was chosen was an systematic literature review. The result was based on five qualitative articles, which could be divided into four categories: to feel afraid and worried, to feel limited, to feel different and to feel sick. Discussion: There is risk that important information that the children want to tell will go lost when parents and care-personnels communicate children’s experiences to a third part. There is reaserch telling that children may need an adult to help express their experiences.

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Buckner, Stefanie. "Older people's experiences of recent urban re-generation : a psychosocial perspective." Thesis, University of Central Lancashire, 2012. http://clok.uclan.ac.uk/6643/.

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This study offers a policy-relevant psychosocial understanding of ways in which regeneration can affect the lives of older people. It examined the experiences of people over sixty in England of local regeneration through an in-depth biographical case-based methodology. The fieldwork was conducted in 2006/07 in Bromley by Bow/London and Burnley Wood/Burnley as two urban areas that had been experiencing substantial - and very different - regeneration activity. A review of the literature indicated that research with a focus on older people in regeneration was limited, and that much scope remained for an in-depth understanding of (older) individuals' experiences of regeneration as a basis for future policy and practice. The study addressed this gap in knowledge through a psychosocial approach. Older people were conceptualised as psychosocial beings in whose experiencing psychic and social dimensions interact. The study drew on the psychoanalytic theories of Melanie Klein and theorists in the British Object Relations tradition, as well as on the social theory of Pierre Bourdieu as a framework for exploring experiences of regeneration in terms of psychic and social, conscious and unconscious dimensions. The interview-based Biographical-Narrative Interpretive Method (BNIM) was adopted as a method capable of yielding the kind of detailed data that can provide the empirical basis of a psychoanalytically-informed psychosocial approach. Sixteen interviews were conducted. Interview analysis involved panels. Three fully developed contrasting case studies are presented in the thesis. Further case material from the remaining interviews that supported or confounded the analysis arising from these three core cases is presented in the form of twelve summary vignettes. The study concludes that local regeneration can work well for older people and their communities where it provides containing structures that facilitate relations of recognition across difference and enable older people to experience a sense of well-being in contemporary mixed communities. It argues that, in addition to sustaining the rights of both older individuals themselves and others, it is crucial that regeneration initiatives foster bonds that unite people across difference. In this, the wider political context can play an important facilitating role by sustaining a reparative politics that places a premium on promoting justice, care and relations of recognition and solidarity. The study adds a psychosocial perspective to a limited body of existing work with a specific focus on regeneration and older people. Involving detailed attention to unconscious mechanisms and defences, it offers a complex understanding of the processes through which regeneration can become a beneficial or negative experience for older people in terms of an interaction of psychic and social dimensions of personal experience. The depth of this understanding has not been matched by policy-focussed research into how well regeneration has ‘worked’. The study thus makes an original contribution to knowledge that can inform future regeneration policy and practice.

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Pomerleau, Julie M. ""It's Complicated..." Psychosocial and Religious/Spiritual Coping with Hook-Up Experiences." Bowling Green State University / OhioLINK, 2017. http://rave.ohiolink.edu/etdc/view?acc_num=bgsu1490203153588876.

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Moseley-Giannelli, Janine V. "New insights on psychosocial adjustment to pediatric cancer in caregivers." Thesis, University of British Columbia, 2011. http://hdl.handle.net/2429/31488.

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PURPOSE - While survival rates for pediatric cancer have dramatically improved, survivorship comes with its own stressors for this population and (especially) their caregivers, the most salient of which may be uncertainty. Answering a strong demand for modelling research, this study assessed the impact of numerous risk and resilience factors on caregiver emotional adjustment in the context of Mishel’s ‘uncertainty in illness’ (MUIT) framework. Of particular interest was examining the role of positive psychology variables. METHODS - One-hundred fifty-six caregivers of pediatric cancer patients/survivors were recruited. The sample was evenly divided across ‘on’/‘off’ treatment groups and ‘urban’/‘rural’ groups. Forty adolescent patients/survivors also participated, and 41 on-treatment caregivers were re-assessed longitudinally on some baseline questionnaires. Questionnaires sampled socio-demographic and cancer-specific variables, positive and negative thinking, school and family needs, and emotional adjustment. RESULTS - SEM analyses identified a version of the MUIT applicable to these caregivers in which hope, optimism, and benefit finding figured prominently. Hope was a strong predictor of positive and negative outcomes, across baseline and six months’ follow-up, and it (along with perceived mastery and threat) was also a significant mediating variable. In descriptive analyses, school and family needs (especially medically-related) were considered important but often unmet. Surprisingly, proportion of met needs did not vary across urban/rural subgroups, and having needs met (broadly speaking) did not significantly predict any outcome variable. Adolescents did not report any areas of struggle. While caregivers of newly diagnosed patients reported elevated distress, this subsided regardless of treatment status or urban/rural status. Frequent levels of benefit finding were reported by caregivers and teens, and benefit finding significantly predicted hope. Explained variance for most caregiver outcome variables averaged 60%, with the exception of benefit finding (33%). DISCUSSION - This is the first study to explore a pediatric cancer caregiving model of emotional adjustment incorporating the roles of uncertainty, hope and benefit finding. The significant role of positive psychology variables here is suspected to reflect the ‘buffering capacity’ of frequent positive affect. With this improved understanding of caregiver emotional adjustment, we are in a better position to design screening and intervention efforts for this population.

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Hou, Wai-kai. "Psychosocial resources and adaptation among Chinese people with colorectal cancer." Click to view the E-thesis via HKUTO, 2008. http://sunzi.lib.hku.hk/hkuto/record/B39634346.

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Hou, Wai-kai, and 侯維佳. "Psychosocial resources and adaptation among Chinese people with colorectal cancer." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2008. http://hub.hku.hk/bib/B39634346.

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Luk, Yin-ching, and 陸燕青. "Evidence-based psychosocial intervention for families with childhood cancer patients." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2010. http://hub.hku.hk/bib/B44625698.

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Bigler, Jamie. "Interventions to improve psychosocial sequelae in women with ovarian cancer." Honors in the Major Thesis, University of Central Florida, 2010. http://digital.library.ucf.edu/cdm/ref/collection/ETH/id/1358.

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This item is only available in print in the UCF Libraries. If this is your Honors Thesis, you can help us make it available online for use by researchers around the world by following the instructions on the distribution consent form at http://library.ucf.edu/Systems/DigitalInitiatives/DigitalCollections/InternetDistributionConsentAgreementForm.pdf You may also contact the project coordinator, Kerri Bottorff, at kerri.bottorff@ucf.edu for more information.
Bachelors
Nursing
Nursing

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Johnston, Gail Norma. "Assessing psychosocial and spiritual well-being in palliative cancer care." Thesis, University of Dundee, 1997. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.301521.

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Boone, C. "Colorectal cancer : psychosocial interventions and attitudes towards seeking psychological help." Thesis, University of Liverpool, 2016. http://livrepository.liverpool.ac.uk/3000243/.

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Dissertations / Theses on the topic 'Psychosocial experiences of cancer'

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