Journal articles on the topic 'Population-based cancer registry'
To see the other types of publications on this topic, follow the link: Population-based cancer registry.
Create a spot-on reference in APA, MLA, Chicago, Harvard, and other styles
Consult the top 50 journal articles for your research on the topic 'Population-based cancer registry.'
Next to every source in the list of references, there is an 'Add to bibliography' button. Press on it, and we will generate automatically the bibliographic reference to the chosen work in the citation style you need: APA, MLA, Harvard, Chicago, Vancouver, etc.
You can also download the full text of the academic publication as pdf and read online its abstract whenever available in the metadata.
Browse journal articles on a wide variety of disciplines and organise your bibliography correctly.
1
Opoku, P. "Establishing Accra Population-Based Cancer Registry." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 66s. http://dx.doi.org/10.1200/jgo.18.64600.
Full textAbstract:
Background: The African Cancer Organization (ACO) seeks to establish Accra Population-Based Cancer Registry (ACR). The whole idea is to collect, store and analyze data on persons with cancer to provide complete, accurate and timely cancer report for interventional programs. Such information would guide us to monitor patient care, prioritize and allocate resources effectively, give understanding of the things we do not yet know, and also act as a driver for policy development for the urgent need of comprehensive cancer control in Ghana. Countries require cancer surveillance programs to collect and analyze data on the scale of the cancer burden in each country. These are urgently needed in Africa as cancer data sources are scarce. Data can help to evaluate the impact of prevention, early detection/screening, treatment and palliative care programs. The proposed population-based cancer registry will help to act as a driver for policy development and program evaluation as recommended by the WHO. ACR intends to capture cancer cases diagnosed and/or treated within the Greater Accra region of Ghana and then further extend to cover the Central, Eastern, Western and the Volta regions of Ghana later. Aim: The goal of ACR to collect, store and analyze data on persons with cancer to generate incidence, prevalence, trends, mortality, and survival rates which is required to help develop a realistic and sustainable cancer control plan for Ghana. Methods: Cancer registry staff will be trained to abstract cancer cases diagnosed and/or treated within the southern regional geography of Ghana using a customized cancer notification form designed to capture detailed information on cancer patient demographics, tumor details, treatment, reporting sources and follow-up information based on both analytic and nonanalytic active case-finding reportability methods. These cases will then be classified and coded using the ICD-O-3, FIGO and/or SEER Summary Staging 2000 Manual. The data will be stored in customized cancer registry software which will be configured with various address codes from the registry geography. The cancer registry software checks for duplicate cases, data edits and consolidation. The software tracks down duplicate records and multiple primaries using a probability matching and consistency checking for impossible or rare cases. Conclusion: Establishing a cancer registry in Africa is challenging but very possible. Conflicts of interests are common norms among new cancer registries. With a good budget and working plan backed by few sincere and dedicated staff, it will be very possible to sustain the registry to capture all cancer cases within the catchment area, to take advantage of available modern technology to produce timely results. ACO is by this seeking for partnership to raise the needed support to embark on this national cancer registry campaign in the region.
2
Polednak, Anthony P. "Familial Testicular Cancer in a Population-Based Cancer Registry." Urologia Internationalis 56, no. 4 (1996): 238–40. http://dx.doi.org/10.1159/000282850.
Full text
3
Subedi, Ranjeeta, Meghnath Dhimal, Atul Budukh, Pradeep Gyawali, and Anjani Kumar Jha. "Challenges and Way Forward for Establishing Population Based Cancer Registry in Nepal." Journal of Nepal Health Research Council 18, no. 3 (November 14, 2020): 544–46. http://dx.doi.org/10.33314/jnhrc.v18i3.2703.
Full textAbstract:
Population Based Cancer Registry plays a crucial role in cancer control through identifying cancer incidence, mortality, pattern and trends over time in a particular population. The registry is in a very infancy stage in Nepal. During the process of establishing Population Based Cancer Registry in Nepal, the major challenges include adequate coverage of the cases, high cost of registration, sustainability along with expansion of the registry to other regions and non-linkage of Hospital Based Cancer Registry with Population Based Cancer Registry. However, the approach of mobilization of field enumerators at the end of year once had increased coverage of the cases. Similarly, the linkage of Population Based Cancer Registry with the existing Health Management and Information System will help in developing sustainable Population Based Cancer Registry and also provides an opportunity to increase coverage and expand it to other districts as well.
Keywords: Challenges; Nepal; population based cancer registry; way forward
4
Syse, Astri, Jon H. Loge, and Torkild H. Lyngstad. "Does Childhood Cancer Affect Parental Divorce Rates? A Population-Based Study." Journal of Clinical Oncology 28, no. 5 (February 10, 2010): 872–77. http://dx.doi.org/10.1200/jco.2009.24.0556.
Full textAbstract:
Purpose Cancer in children may profoundly affect parents' personal relationships in terms of psychological stress and an increased care burden. This could hypothetically elevate divorce rates. Few studies on divorce occurrence exist, so the effect of childhood cancers on parental divorce rates was explored. Patients and Methods Data on the entire Norwegian married population, age 17 to 69 years, with children age 0 to 20 years in 1974 to 2001 (N = 977,928 couples) were retrieved from the Cancer Registry, the Central Population Register, the Directorate of Taxes, and population censuses. Divorce rates for 4,590 couples who were parenting a child with cancer were compared with those of otherwise similar couples by discrete-time hazard regression models. Results Cancer in a child was not associated with an increased risk of parental divorce overall. An increased divorce rate was observed with Wilms tumor (odds ratio [OR], 1.52) but not with any of the other common childhood cancers. The child's age at diagnosis, time elapsed from diagnosis, and death from cancer did not influence divorce rates significantly. Increased divorce rates were observed for couples in whom the mothers had an education greater than high school level (OR, 1.16); the risk was particularly high shortly after diagnosis, for CNS cancers and Wilms tumors, for couples with children 0 to 9 years of age at diagnosis, and after a child's death. Conclusion This large, registry-based study shows that cancer in children is not associated with an increased parental divorce rate, except with Wilms tumors. Couples in whom the wife is highly educated appear to face increased divorce rates after a child's cancer, and this may warrant additional study.
5
Memirie, Solomon Tessema, Mahlet Kifle Habtemariam, Mathewos Asefa, Biniyam Tefera Deressa, Getamesay Abayneh, Biniam Tsegaye, Mihiret Woldetinsae Abraha, et al. "Estimates of Cancer Incidence in Ethiopia in 2015 Using Population-Based Registry Data." Journal of Global Oncology, no. 4 (December 2018): 1–11. http://dx.doi.org/10.1200/jgo.17.00175.
Full textAbstract:
Purpose Noncommunicable diseases, prominently cancer, have become the second leading cause of death in the adult population of Ethiopia. A population-based cancer registry has been used in Addis Ababa (the capital city) since 2011. Availability of up-to-date estimates on cancer incidence is important in guiding the national cancer control program in Ethiopia. Methods We obtained primary data on 8,539 patients from the Addis Ababa population-based cancer registry and supplemented by data on 1,648 cancer cases collected from six Ethiopian regions. We estimated the number of the commonest forms of cancer diagnosed among males and females in Ethiopia and computed crude and age-standardized incidence rates. Results For 2015 in Ethiopia, we estimated that 21,563 (95% CI, 17,416 to 25,660) and 42,722 (95% CI, 37,412 to 48,040) incident cancer cases were diagnosed in males and females, respectively. The most common adult cancers were: cancers of the breast and cervix, colorectal cancer, non-Hodgkin lymphoma, leukemia, and cancers of the prostate, thyroid, lung, stomach, and liver. Leukemia was the leading cancer diagnosis in the pediatric age group (age 0 to 14 years). Breast cancer was by far the commonest cancer, constituting 33% of the cancers in women and 23% of all cancers identified from the Addis Ababa cancer registry. It was also the commonest cancer in four of the six Ethiopian regions included in the analysis. Colorectal cancer and non-Hodgkin lymphoma were the commonest malignancies in men. Conclusion Cancer, and more prominently breast cancer, poses a substantial public health threat in Ethiopia. The fight against cancer calls for expansion of population-based registry sites to improve quantifying the cancer burden in Ethiopia and requires both increased investment and application of existing cancer control knowledge across all segments of the Ethiopian population.
6
Maglakelidze, M., M. Abuladze, N. Jokhadze, and D. Maglakelidze. "Implementation of Population-Based Cancer Registry in Georgia: Results of the Appeared Requirements to NCCP." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 154s. http://dx.doi.org/10.1200/jgo.18.92000.
Full textAbstract:
Background: The current cancer patterns in Georgia indicate that a significant proportion of cancer cases and deaths are preventable if appropriate actions are undertaken. The estimates from IARC indicate 12,361 new cancer cases per annum in 2012. The estimated number of deaths from cancer in 2012 was 7319. Objectives: The aim of the project was to: Implement modern cancer registration system in Georgia; Ensure compliance of reporting standards; Create registry that will meet international data standards; Reveal the main national trends of incidence and mortality in Georgia. Methods: In 2011-2014 as a result of active work with Ministry of Health Care (MOH) preliminary actions were taken under the State Program of Modern Cancer Registry Implementation, including: translation and publishing of ICD-O-3; translation of CanReg5 software and training of registrars; translation and filling of dictionaries: topography, morphology, administrative units, and institutions providing oncology services; participation in international training and courses organized by International Agency for Research on Cancer (IARC). Results: According to the schedule I stage of the program has been completed successfully. New model of cancer registry has been developed The first results of the register are received 8731 new cases of cancer have been diagnosed in Georgia in 2017 (234.8-291.6 per 100,000). Incidence of almost every type of cancer (in all localizations) is less than the incidence in European region and in EU countries. This number is closer to the CIS average data. Almost all localization cancer incidence in both men and women is less compared with the indicators of the European region and EU countries and is closer to the CIS average data. Collectively accounting for > 60% of all new cancers and half of all cancer deaths. Second most common cancer type in registered new cases among females is thyroid cancer. From 2015 there is a gradual increase in newly registered cases of thyroid cancer and its incidence among 100,000 females (2015 - 33.5, 2016 - 42.8, 2017 - 40. In 2017, there was 55 new thyroid cancer cases among females younger than 25 years (in 2015 this number was 41, in 2016 -50); this number corresponds to 50% of all newly registered cancer cases among this age group. By the end of the next year Cancer Registry will be linked to EMR notification system that itself will be linked to public and death registry and data on every cancer patient will automatically appear in the cancer registry database. Conclusion: Developed model of Cancer Registry will serve as a basis for clinical, epidemiologic, and health care services research and for the assessment of their efficacy in Georgia.
7
Chapagain, Sandhya, Atul Budukh, Ganesh Dangal, and Anjani Kumar Jha. "Initiation of Population-based Cancer Registry in Nepal." Journal of Nepal Health Research Council 17, no. 3 (November 13, 2019): I—II. http://dx.doi.org/10.33314/jnhrc.v17i3.2359.
Full text
8
Parkin, Donald M. "The evolution of the population-based cancer registry." Nature Reviews Cancer 6, no. 8 (August 2006): 603–12. http://dx.doi.org/10.1038/nrc1948.
Full text
9
Roder, David, Nicola Creighton, Deborah Baker, Richard Walton, Sanchia Aranda, and David Currow. "Changing roles of population-based cancer registries in Australia." Australian Health Review 39, no. 4 (2015): 425. http://dx.doi.org/10.1071/ah14250.
Full textAbstract:
Registries have key roles in cancer incidence, mortality and survival monitoring and in showing disparities across the population. Incidence monitoring began in New South Wales in 1972 and other jurisdictions soon followed. Registry data are used to evaluate outcomes of preventive, screening, treatment and support services. They have shown decreases in cancer incidence following interventions and have been used for workforce and other infrastructure planning. Crude markers of optimal radiotherapy and chemotherapy exist and registry data are used to show shortfalls against these markers. The data are also used to investigate cancer clusters and environmental concerns. Survival data are used to assess service performance and interval cancer data are used in screening accreditation. Registries enable determination of risk of multiple primary cancers. Clinical quality registries are used for clinical quality improvement. Population-based cancer registries and linked administrative data complement clinical registries by providing high-level system-wide data. The USA Commission on Cancer has long used registries for quality assurance and service accreditation. Increasingly population-based registry data in Australia are linked with administrative data on service delivery to assess system performance. Addition of tumour stage and other prognostic indicators is important for these analyses and is facilitated by the roll-out of structured pathology reporting. Data linkage with administrative data, following checks on the quality of these data, enables assessment of patterns of care and other performance indicators for health-system monitoring. Australian cancer registries have evolved and increasingly are contributing to broader information networks for health system management.
10
Motsuku, L., E. Chokunonga, M. Sengayi, E. Singh, L. Khoali, and M. Borok. "Strengthening African Population-Based Cancer Registration Through Regional Mentorship: UICC Fellowship Experience at Zimbabwe National Cancer Registry." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 65s. http://dx.doi.org/10.1200/jgo.18.68200.
Full textAbstract:
Background: South Africa (SA) recently established an urban population-based cancer registry in Ekurhuleni metropolitan district in Gauteng Province. The Ekurhuleni Population-Based Cancer Registry (EPBCR) aims to inform cancer policy and comprehensive cancer control programs. The registry covers 3.5 million residents including public/private, rural/urban patients and a mix of the multiethnic SA population. The first complete year's data will be published in April 2018. It is crucial that high-quality data collected by newly established registries are comparable regionally and globally. The Union for International Cancer Control (UICC) fellowship provides a practical opportunity for South African National Cancer Registry staff to learn from the Zimbabwe National Cancer Registry (ZNCR), a well-established population-based registry in the region. Aim: To enhance the SA EPBCR through observation and application of methods for population-based cancer registration used at the ZNCR. Methods: A desktop review of published and unpublished articles/reports of the ZNCR was conducted. Semi-structured informal interviews were conducted with registry staff to understand data processes from case finding to reporting. Representative data sources were visited to understand case-finding processes. Results: The ZNCR was established in 1985 through a collaborative research agreement between the Ministry of Health (MoH) and International Agency for Research on Cancer (IARC). Its activities are overseen by a 17-member constituted multidisciplinary advisory committee. The registry staff comprise one registrar, one executive assistant (EA) and four health information assistants (HIA). The process of ensuring quality data are guided by the African Cancer Registry Network and the International Association of Cancer Registries standards for population-based cancer registries. The ZNCR uses a combination of active and passive case-finding methods where HIAs have unrestricted access to patient information in private and public sectors such as hospitals, pathology laboratories, radiotherapy centers and death registries. HIAs conduct patient interviews for accurate demographics and to complete missing information. Cases are coded according to International Classification of Diseases for Oncology-V3 and Canreg software is used for data entry, quality control and analysis. The hard copies are stored in locked cabinets in offices with restricted access. The data are then used for reporting and research. Conclusion: The support of government, commitment of advisory committee volunteers, highly trained and experienced staff are key elements behind the success of ZNCR. Strict adherence to international practices for population-based cancer registration has enabled ZNCR to produce high-quality data for research and cancer programs. The processes used by ZNCR will be customised and implemented at EPBCR.
11
Berinder, Katarina, Olof Akre, Fredrik Granath, and Anna-Lena Hulting. "Cancer risk in hyperprolactinemia patients: a population-based cohort study." European Journal of Endocrinology 165, no. 2 (August 2011): 209–15. http://dx.doi.org/10.1530/eje-11-0076.
Full textAbstract:
ObjectiveExperimental evidence indicates that prolactin might play a role in tumorigenesis of several human cancers, but data on cancer risk in hyperprolactinemia patients are sparse. The aim of this study was to investigate cancer risk in hyperprolactinemia patients.DesignA population-based matched cohort study in Sweden.MethodsThe hyperprolactinemia cohort consisted of patients hospitalized for hyperprolactinemia from 1987 to 1995 identified in the National Patient Register (n=585) and a hospital cohort of prolactinoma patients at Karolinska University Hospital (n=384). For each patient, ten matched individuals were identified via the Register of Population. Cancer occurrence was ascertained via the Swedish Cancer Registry. Hazard ratios (HRs) were estimated by Cox proportional hazards regression.ResultsSeventy-three malignant tumors were identified in the hyperprolactinemia patients and 660 tumors in the comparison group (HR 1.31; 95% confidence interval (CI): 1.02–1.68), mainly attributed to an increased risk of upper gastrointestinal cancer in both males and females (HR 3.69; 95% CI: 1.70–8.03) and hematopoietic cancer in females (HR 3.51; 95% CI: 1.06–11.6). Twelve breast cancers occurred in the female patients, corresponding to an HR of 1.09 (95% CI: 0.60–1.99). Prostate cancer risk in hyperprolactinemia men was reduced (HR 0.40; 95% CI: 0.16–0.99).ConclusionsAn increased overall cancer risk was found in hyperprolactinemia patients, but no increased risk of breast cancer in women and a reduced risk of prostate cancer in men. These findings warrant further investigations and to be confirmed in larger studies but may indicate the importance of an active treatment strategy and follow-up of hyperprolactinemia patients.
12
Korir, A., R. Gakunga, N. Okerosi, A. Karagu, N. Buziba, G. Chesumbai, S. Gathere, V. Manduku, R. Rochford, and D. Parkin. "Development of a National Cancer Registry in a Low Resourced Country: The Case of Kenya National Cancer Registry Programme." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 216s. http://dx.doi.org/10.1200/jgo.18.87300.
Full textAbstract:
Background: Population-based cancer registration represents the gold standard for the provision of information on cancer incidence in a defined population (Bray F, et. al, IARC Technical Report No. 43). In Kenya, the incidence and prevalence of cancer has not been well documented. The existing population-based cancer registries (PBCRs) cover less than 10% of Kenya's population. Kenya is made up of 47 administrative counties and has a population of over 45 million people. Aim: To establish a National Cancer Registry Program that will compile national data on incidence, mortality and trends of cancer in Kenya over time. Methods: Three functional PBCRs have been in existence covering 3 counties: Nairobi, Eldoret and Kisumu. Needs assessment was conducted in the 3 registries. Additional support and resources were provided. New registries were set up in different geographical regions of Kenya. A centralized office to host the national registry was established and equipped at the Centre for Clinical Research, Kenya Medical Research Institute. Sensitization and awareness activities targeting the leaders in the selected counties were undertaken. Similarly trainings and technical support of the regional registries were conducted. Data were collected on to case registration forms, coded using the International Classification of Diseases for Oncology (ICD-O); data entry, validation and analysis done using IARC software CanReg5. Results: Variations in cancer occurrence in the different counties were noted. However the leading cancers were somewhat similar in the 8 counties with prostate and esophageal cancers being the leading in men while breast and cervical cancer being top among women. These variations could provide understanding on causation of certain types of cancers. Data highlights the need to develop and expand intervention programs like HPV vaccination, screenings, early detection and early treatment. Governments' allocation of resources to cancer registries and surveillance programs is important as well as building partnerships. Conclusion: In countries with limited resources it is expensive to develop a national cancer registry covering the entire country. Our program demonstrates that a national cancer registry program can be established by setting up regional population-based cancer registries that covers a reasonable population of the entire country and aggregating the data in a centralized system. Population-based cancer registries are critical in generating data on burden of cancer in specified populations. These data should be used to inform effective cancer control programs and research.
13
Maharjan, Urgena, and Joonas H. Kauppila. "Gastric cancer completeness in Finnish Cancer Registry and Finnish Patient Registry: a population-based nationwide retrospective cohort study." BMJ Open 12, no. 4 (April 2022): e056320. http://dx.doi.org/10.1136/bmjopen-2021-056320.
Full textAbstract:
BackgroundGastric cancer is the fourth-leading cause of cancer-related deaths worldwide. The only curative treatment options of gastric cancer are perioperative chemotherapy and surgical resection. Many nationwide registries have high validity and provide vast range of opportunities for registry-based research. Cancer diagnoses in the Finnish Cancer Registry (FCR) are reported by pathology laboratories and clinician forms, while discharge diagnosis codes are reported to the Finnish Patient Registry (HILMO) automatically. Finland is known for complete registries but the completeness of gastric cancer in FCR and HILMO remains unclear.ObjectivesThe aim of this study is to assess the registry coverage for gastric cancer in FCR and HILMO and to explore potential reasons for possible differences between these registries.DesignPopulation-based nationwide retrospective cohort study.ParticipantsAll patients diagnosed with gastric cancer in Finland during 1990 to 2014, with follow-up until 31 December 2019.ResultsOut of 21 468 total gastric cancers reported to either registry, 17 107 (79.7%) had a gastric cancer diagnosis in both registries. A substantial decrease from 88.3% to 83.4% was observed in the proportion of cases reported to FCR over time. The completeness of FCR was estimated at 87%. For HILMO, the completeness was 92.7%. Death due to gastric cancer was most common in those with gastric cancer in both registries (80.8%), and less common in those reported to only FCR (36.3%), followed by those reported to only HILMO (9.3%).ConclusionsThe study indicates that gastric cancer is well captured by both FCR and HILMO but there is an alarming decrease in the proportion of cases captured by the FCR over time. Some gastric cancer diagnoses in HILMO might, however, be misclassified due to cancer diagnoses being assigned based on clinical suspicion.
14
Taheri, Majid, Javad Nazari, Ali Arash Anoshirvani, Reza Aghabozorgi, Masoud Bahrami, and Amir Almasi Hashiani. "Incidence of Breast Cancer in Markazi, Iran, Population-based Cancer Registry Results." Open Public Health Journal 12, no. 1 (May 31, 2019): 228–31. http://dx.doi.org/10.2174/1874944501912010228.
Full textAbstract:
Background: Breast Cancer (BC) is the most prevalent malignancy and a significant cause of cancer deaths in females all around the world. BC includes 16 percent of all cancers. Objective: This study aimed at examining the epidemiology of BC in Markazi. Materials and Methods: This was an epidemiological study in which data resulted from the population-based cancer registry program in Markazi, Iran was used during the years 2010-2014. Data was recorded in Excel software and coded based on ICD-O and all duplicate reports were removed according to their unique codes. All cases out of Markazi were excluded from study and cases with code C-50 (all BC) were included in this study. SPSS ver.18 was used to analyze the data. Results: In this study, 1,254 new cases of BC in Markazi were included in the analysis. The highest cancer rate was reported in 2012 (319 cases). The highest crude rate of BC was reported in 2012 (45/100,000 people) and the lowest crude rate was reported in 2010 (26.2 /100,000 people). The Age-Specific Rates (ASR) of BC were 27, 37.3, 45.7, 39.8 and 31.5 per 100.000 people in 2010 to 2014, respectively. The highest ASR of BC was reported in 2012 (45.7/100,000 people) and the lowest ASR was reported in 2010 (27/100,000 people). Conclusion: The results showed similar incidence rate of BC in Markazi as compared to other provinces in Iran. Efficient approaches should be considered for cancer registry systems especially BC.
15
Bidoli, Ettore, Elda Lamaj, Tiziana Angelin, Ornella Forgiarini, Emilia De Santis, and Diego Serraino. "Linearity of Age at Cancer Onset Worldwide: 25-Year Population-Based Cancer Registry Study." Cancers 13, no. 21 (November 8, 2021): 5589. http://dx.doi.org/10.3390/cancers13215589.
Full textAbstract:
Background The linear association between median age at cancer onset and median age of the underlying population has been described only for breast cancer. We quantified the shape and strength of such association for 20 cancer types using data from all population-based cancer registries (CRs) worldwide. Methods The patients’ median age at cancer onset and of the underlying population were extracted from all CRs listed in volumes VI (1983–1987 years) and XI (2008–2012 years) of Cancer Incidence in Five Continents. The association was assessed at cross-sectional level by linear regression models and longitudinally considering only the long-standing CRs active throughout the study period (i.e., 25-year span). Results During 2008–2012, each one-year increase in median population ageing was associated in men with a nearly half year increase of median age at onset of all cancers, but skin; and a 2/3 year increase in women. Variance explained by linear model was around 60%. In long-standing CRs a decrease in median age at cancer onset was observed for prostate and cervical cancers throughout the 25-year span. Conclusions Population ageing reflected 60% of the median age at cancer onset. Misinterpretation of peaks of cancer incidence in specific age groups may be avoided by examining population pyramids.
16
Miladinov-Mikov, Marica. "What are cancer registries." Medical review 57, no. 1-2 (2004): 27–29. http://dx.doi.org/10.2298/mpns0402027m.
Full textAbstract:
Introduction Population-based cancer registries attempt to collect, process, analyze, store and interpret data on persons with cancer in a certain population (most frequently a geographical area). Hospital-based cancer registries register all cases in a given hospital, usually without knowledge of the background population; the emphasis is to serve the needs of the hospital administration, the hospital cancer program, and, above all, the individual patient. History of Cancer Registries Registration of persons suffering from cancer is a slow process. Around the year 1900, England and Germany demanded improvement of statistical investigation on spread of cancer in population in order to undertake etiological researches. The oldest example of a modern cancer registry is that in Hamburg. Today there are more than 200 population-based cancer registries, but they cover only 5% of the world population, mainly in developed countries of the world. Cancer registry of Vojvodina Cancer registry of Vojvodina was established in 1966; it is a member of International Agency for Research on Cancer (IARC) and it is still the only cancer registry from our country whose data are cited in scientific monographs of IARC. The main purpose of cancer registries is to produce statistics on the occurrence of cancer in a defined populatin and to provide a framework for assessing and controlling the impact of cancer on the community. Cancer registries are essential parts of any rational program of cancer control. Their data can be used in a wide variety of areas of cancer control, ranging from etiological research in epidemiology, through primary and secondary prevention to health-care planning and patient care, so benefiting both the individual and society.
17
Chesumbai, G. C., A. C. Koskei, N. G. Buziba, and F. A. Chite. "Using Hospital-Based Cancer Registry Data to Inform Establishment of Population-Based Cancer Registries in Western Kenya." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 215s. http://dx.doi.org/10.1200/jgo.18.86900.
Full textAbstract:
Background: Eldoret Cancer Registry (ECR) is both a population-based cancer registry (PBCR) and hospital-based cancer registry (HBCR) located in Uasin Gishu County, western region of Kenya. As HBCR, it collects data on cancer cases seen at the Moi Teaching and Referral Hospital (M.T.R.H.), which is the second largest public referral hospital in Kenya and has a robust cancer diagnosis, treatment facilities and medical specialists. The catchment population of MTRH is estimated at 24 million. Aim: The aim of this study is to determine the number of cancer patients seen at MTRH by county and determine which counties will benefit most from establishment of a PBCR, based on their high incidence. Methods: Case finding is an active process. The E.C.R seeks clearance to collect data from the various data sources within MTRH. Trained cancer registrars visit the units on a regular basis to abstract and update cancer data into CanReg5. Quality checks and analysis of data are mainly done using CanReg5. Results: 16 years of HBCR data were analyzed. Out 20,423 cancer cases, Uasin Gishu county registered 39%. Nandi, Bungoma, Kakamega and Trans-Nzoia counties each registered 8%, 7%, 6% and 6% respectively. E-Marakwet and Busia both had 4% while other counties had below 2% of cancers cases registered for the period of analysis. Conclusion: Notably, there were high numbers of cancer patients registered from counties bordering Uasin Gishu. There is a high likelihood that there are more cases in these areas for patients who did not make it to MTRH due to preference, distance, SES, traditional/cultural beliefs etc. Establishing PBCRs will ensure a more comprehensive capture and reporting of cancer incidence and therefore necessitate proper planning for cancer control programs in those areas to reduce cancer burden and improve services for cancer patients and their families.
18
Urdaneta, Alfredo I., James B. Yu, and Lynn D. Wilson. "Population Based Cancer Registry Analysis of Primary Tracheal Carcinoma." American Journal of Clinical Oncology 34, no. 1 (February 2011): 32–37. http://dx.doi.org/10.1097/coc.0b013e3181cae8ab.
Full text
19
Kodeda, K., L. Nathanaelsson, B. Jung, H. Olsson, P. Jestin, A. Sjövall, B. Glimelius, L. Påhlman, and I. Syk. "Population-based data from the Swedish Colon Cancer Registry." British Journal of Surgery 100, no. 8 (May 21, 2013): 1100–1107. http://dx.doi.org/10.1002/bjs.9166.
Full text
20
Wang, Bing-Yen, Jing-Yang Huang, Ching-Yuan Cheng, Ching-Hsiung Lin, Jiunn Liang Ko, and Yung-Po Liaw. "Lung Cancer and Prognosis in Taiwan: A Population-Based Cancer Registry." Journal of Thoracic Oncology 8, no. 9 (September 2013): 1128–35. http://dx.doi.org/10.1097/jto.0b013e31829ceba4.
Full text
21
Agustina, J., D. Sinulingga, E. Suzanna, B. Andinata, R. Ramadhan, and A. Kadir. "Epidemiology of Female Breast Cancer in West Jakarta, Indonesia." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 65s. http://dx.doi.org/10.1200/jgo.18.63300.
Full textAbstract:
Background: Breast cancer was the most common cancer in the world. GLOBOCAN 2012 estimated the incidence of female breast cancer in Indonesia was 40.3 per 100,000 and the mortality rate was 16.6 per 100,000. In 2016, Dharmais National Cancer Center was appointed as Regional Population Based Cancer Registry in West Jakarta. West Jakarta was a municipality with 2,281,945 populations, being the 2nd largest population in DKI Jakarta Province. Aim: This study was to evaluate the quality of population based cancer registry data and to describe the epidemiology of female breast cancer in West Jakarta, Indonesia during 2008-2012 and to compare with GLOBOCAN 2012 . Methods: We used population based cancer registry data with ICD - O code C50.0-C50.9 in female who live in West Jakarta. The population based cancer registry data were collected in Dharmais National Cancer Center. We evaluated the quality of population based cancer registry data based on WHO-IARC rules for cancer registry data. Results: The quality of population based cancer registry data were microscopic verification (70%); DCO percentage (20.8%), and unknown age (0%). The trend of female breast cancer was increasing during 2008-2012. Age-standardized rate incidence was 19.3 per 100,000. The most of frequent were in 45-49 years old, not other specific location subtopography (81.5%), the histopathology type was ductal and lobular neoplasm (51.8%), in stage III (44%), and with metastases to bone (34%). The average of length of duration was 29.1 months, most of them were unknown of last status contact (84%). Conclusion: The coverage and quality data of West Jakarta population based cancer registry need to be increased and establish a follow-up system to decrease the unknown last contact status of patients.
22
Yu, Chu-Ling, Emily S. Tonorezos, Chiung-Yu Huang, Brian C.-H. Chiu, Chun-Ju Chiang, Hui-Ju Ch'ang, Yen-Lin Liu, James S. Miser, Hung-Yi Chiou, and Yun Yen. "Second malignant neoplasms in a nationwide population-based cohort of childhood cancer survivors in Taiwan." Journal of Clinical Oncology 35, no. 15_suppl (May 20, 2017): 10569. http://dx.doi.org/10.1200/jco.2017.35.15_suppl.10569.
Full textAbstract:
10569 Background: Childhood cancer survivors have excess risk of second malignant neoplasms, but data are limited in Asian populations. We established a nationwide retrospective cohort of childhood cancer survivors in Taiwan to study the risk of second malignant neoplasms in the population. Methods: Children and adolescents diagnosed with cancer before age 21 years between 1990 and 2011 were identified from the Taiwan Cancer Registry, the national cancer registry in Taiwan. One-year survivors of childhood cancer were ascertained through data linkage with the national death registry. Survivors were followed up through December 2012. Standardized incidence ratios (SIRs), absolute excess risks (AERs), and cumulative incidence of second malignant neoplasms were calculated. Results: A total of 186 second malignant neoplasms occurred among 15,263 1-year survivors of childhood cancer after a mean follow-up time of 8.0 years (SIR = 5.4, 95% confidence interval [CI] = 4.6-6.2; AER = 12.4 per 10,000 person-years). The most common types of second malignant neoplasms were gastrointestinal cancers (n = 37), leukemia (n = 28), endocrine cancers (n = 18), and brain cancer (n = 17). Cancers in the liver (n = 11, including 9 hepatocellular carcinoma) and colorectum (n = 16) accounted for 73% of second gastrointestinal malignant neoplasms in this population. The cumulative incidence of second malignant neoplasms at 10 and 20 years from follow-up was 1.0% (95% CI = 0.8-1.2%) and 3.0% (95% CI = 2.3-3.6%), respectively. Conclusions: Childhood cancer survivors in Taiwan experience excess risk of second malignant neoplasms, in particular gastrointestinal cancers, compared with the general population.
23
Ramirez, Oscar, Paula Aristizabal, Alia Zaidi, Raul C. Ribeiro, and Luis E. Bravo. "Implementing a Childhood Cancer Outcomes Surveillance System Within a Population-Based Cancer Registry." Journal of Global Oncology, no. 4 (December 2018): 1–11. http://dx.doi.org/10.1200/jgo.17.00193.
Full textAbstract:
Purpose Approximately 80% of cases of childhood cancer occur in low- and middle-income countries and are associated with high mortality rates. Assessing outcomes is essential for designing effective strategies to improve outcomes equally worldwide. We implemented a real-time surveillance system, VIGICANCER, embedded in a population-based cancer registry (PBCR) to assess childhood cancer outcomes. Methods VIGICANCER was established in 2009 as an integral part of Cali’s PBCR to collect real-time data on outcomes of patients (age < 19 years) with a new diagnosis of cancer treated in pediatric oncology units in Cali, Colombia. Baseline and follow-up data (death, relapse, treatment abandonment, second neoplasms) were collected from medical records, hospital discharge logs, pathology reports, death certificates, and the National Public Health Insurance database. A quality assurance process was implemented for the system. Results From 2009 to 2013, data from 1,242 patients were included in VIGICANCER: 32% of patients were younger than 5 years, 55% were male, and 15% were Afro-descendants. International Classification of Childhood Cancer group I diagnoses predominated in all age groups except children younger than 1 year old, in whom CNS tumors predominated. Five-year overall survival for all cancers was 51.7% (95% CI, 47.9% to 55.4%) for children (< 15 years), and 39.4% (95% CI, 29.8% to 50.5%) for adolescents (15 to 18.9 years). Five-year overall survival for acute lymphoblastic leukemia was 55.6% (95% CI, 48.5% to 62.2%). Conclusion Our study demonstrates the feasibility of implementing a real-time childhood cancer outcomes surveillance system embedded in a PBCR that can guide interventions to improve clinical outcomes in low- and middle-income countries.
24
Kauppila, Joonas H., Pasi Ohtonen, Tuomo Rantanen, Tuula Tyrväinen, Vesa Toikkanen, Minna Pääaho, Antti Valtola, et al. "Cohort profile: gastric cancer in the population-based, Finnish National Esophago-Gastric Cancer Cohort (FINEGO) Study." BMJ Open 10, no. 10 (October 2020): e039574. http://dx.doi.org/10.1136/bmjopen-2020-039574.
Full textAbstract:
PurposeThe Finnish National Esophago-Gastric Cancer Cohort (FINEGO) was established with the aim of identifying factors that could contribute to improved outcomes in oesophago-gastric cancer. The aim of this study is to describe the patients with gastric cancer included in FINEGO.ParticipantsA total of 10 457 patients with gastric cancer or tumour diagnosis in the Finnish Cancer Registry or the Finnish Patient Registry during 1987–2016 were included in the cohort, with follow-up from Causes of Death Registry until 31 December 2016. All of the participants were at least 18 years of age, and had undergone either resectional or endoscopic mucosal surgery with curative or palliative intent.Findings to dateOf the 10 457 patients, 90.1% were identified to have cancer in both cancer and patient registries. In all, the median age was 70 at the time of surgery, 54.5% of the patients were men and 64.4% had no comorbidities. Education data were available for 31.1% of the patients, of whom the majority had had <12 years of formal education. Of the 7798 with cancer staging data available, 41.1% had a local cancer. Adenocarcinoma was the most common (94.2%) histological type. Almost all patients underwent open gastrectomy and 214% in hospitals with annual volume of more than 30 gastrectomies per year. A total of 8561 deaths occurred during the study period, of which 6474 were due to oesophago-gastric cancers. The 5-year survival was 34.6% and 5-year cancer-specific survival was 39.7%.Future plansThe data in FINEGO can be currently used for registry-based research but is being expanded by data extraction from patient records and scanning of histological samples from the Finnish biobanks. Initially, we are planning on studies on the national trends in treatment and mortality, and studies on the demographic factors and their influence on survival.
25
Lin, P. H., M. B. Lee, M. C. Tseng, C. C. Lin, H. C. Chen, and S. C. Liao. "Suicide in cancer patients: a population-based retrospective cohort study in taiwan." European Psychiatry 26, S2 (March 2011): 986. http://dx.doi.org/10.1016/s0924-9338(11)72691-8.
Full textAbstract:
IntroductionLittle is known about the suicide risk among cancer patients in Asian country.ObjectivesTo identify the risk and correlates of suicide death among cancer patients in Taiwan.AimsTo provide the references for policy-making of suicide prevention and information for clinicians and care-givers.MethodsWe conducted a retrospective cohort study of cancer patients in Taiwan from 1985 to 2007 by linking two national-wide databases of the Taiwan Cancer Registry and the National Mortality File. Standardized mortality ratios (SMR) and 95% confidence intervals (CIs) were estimated based on the general population rates of suicide stratified by age, sex, and calendar year.ResultsAmong 930,230 registry cancer patients observed for 4,376,574 person-years, 2614 suicides were ascertained. Individuals with diagnosis of cancer had significantly higher risk to die by suicide (Man SMR = 2.46, 95% CI = 2.35–2.58; Woman SMR = 2.12, 95% CI = 1.98–2.28). Patients with cancers of head/neck, esophagus, and lung had additional higher risk to commit suicide. The risk of suicide elevated soon within first 3 months after cancer was diagnosed (Man SMR = 6.57, 95% CI = 5.82–7.41; Woman SMR = 5.83, 95% CI = 4.71–7.21).ConclusionsCompared with general population, cancer patients had significantly higher risk to commit suicide in Taiwan. In addition to the prevention works focused on common risk factors of suicide death, clinicians and caretakers should pay special attention to patients with certain types of cancers and to those who were newly diagnosed to have cancers.
26
Subedi, Ranjeeta, Meghnath Dhimal, Atul Budukh, Sandhya Chapagain, Pradip Gyanwali, Bishal Gyawali, Uma Dahal, Rajesh Dikshit, and Anjani Kumar Jha. "Epidemiologic Pattern of Cancer in Kathmandu Valley, Nepal: Findings of Population-Based Cancer Registry, 2018." JCO Global Oncology, no. 7 (April 2021): 443–52. http://dx.doi.org/10.1200/go.20.00574.
Full textAbstract:
PURPOSE Although cancer is an important and growing public health issue in Nepal, the country lacked any population-based cancer registry (PBCR) until 2018. In this study, we describe the establishment of the PBCR for the first time in Nepal and use the registry data to understand incidence, mortality, and patterns of cancer in the Kathmandu Valley (consisting of Kathmandu, Lalitpur, and Bhaktapur districts), which comprises 10.5% of the estimated 29 million population of Nepal in 2018. MATERIALS AND METHODS The PBCR collects information from facilities and communities through the active process. The facilities include cancer or general hospitals, pathology laboratories, hospice, and Ayurvedic centers. In the communities, the field enumerators or female community health volunteers collected the data from the households. In addition, the Social Security and Nursing Division under the Department of Health Services, which provides subsidy for cancer treatment of underprivileged patients, was another major source of data. The collected data were verified for residence, accuracy, and completeness and then entered and analyzed using CanReg5 software. RESULTS In the Kathmandu Valley, the PBCR registered 2,156 new cancer cases with overall age-adjusted incidence rate for all cancers of 95.7 per 100,000 population (95.3 for males and 98.1 for females). The age-adjusted mortality rate for males was 36.3 (n = 365) and for females 27.0 (n = 305) per 100,000 population. We found that the commonest cancers in males were lung and stomach, whereas in females, they were breast and lung cancer. Gallbladder cancer was among the top five common cancers in both sex. CONCLUSION These findings provide a milestone to understand the cancer burden in the country for the first time using the PBCR and will be helpful to develop and prioritize cancer control strategies.
27
Arndt, Volker, Bernd Holleczek, Hiltraud Kajüter, Sabine Luttmann, Alice Nennecke, Sylke Ruth Zeissig, Klaus Kraywinkel, and Alexander Katalinic. "Data from Population-based Cancer Registration for Secondary Data Analysis: Methodological Challenges and Perspectives." Das Gesundheitswesen 82, S 01 (October 29, 2019): S62—S71. http://dx.doi.org/10.1055/a-1009-6466.
Full textAbstract:
AbstractPopulation-based cancer registries have a long-standing role in cancer monitoring. Scientific use of cancer registry data is one important purpose of cancer registration, but use of cancer registry data is not restricted to cancer registries. Cancer registration in Germany is currently heading towards population-based collection of detailed clinical data. This development together with additional options for record linkage and long-term follow-up will offer new opportunities for health services and outcome research. Both regional population-based registries and the German Centre for Cancer Registry Data (ZfKD) at the Robert Koch-Institute as well as international cancer registries and consortia or organizations may provide external researchers access to individual or aggregate level data for secondary data analysis. In this review, we elaborate on the access to cancer registry data for research purposes, availability of specific data items, and options for data linkage with external data sources. We also discuss as well as on limitations in data availability and quality, and describe typical biases in design and analysis.
28
Clarke, Christina A., and Sally L. Glaser. "Population-Based Surveillance of HIV-Associated Cancers: Utility of Cancer Registry Data." JAIDS Journal of Acquired Immune Deficiency Syndromes 36, no. 5 (August 2004): 1083–91. http://dx.doi.org/10.1097/00126334-200408150-00012.
Full text
29
Alessy, Saleh A., Elizabeth A. Davies, Janette Rawlinson, Matthew Baker, and Margreet Lüchtenborg. "How representative are colorectal, lung, breast and prostate cancer patients responding to the National Cancer Patient Experience Survey (CPES) of the cancer registry population in England? A population-based case control study." BMJ Open 9, no. 12 (December 2019): e034344. http://dx.doi.org/10.1136/bmjopen-2019-034344.
Full textAbstract:
ObjectiveTo assess the representativeness of National Cancer Patient Experience Survey (CPES) responders compared with the English cancer registry population in term of age, sex, socioeconomic deprivation, ethnicity, disease stage and median survival.DesignPopulation-based case-control study.SettingEngland.PopulationWe identified 103 186 colorectal, lung, breast and prostate cancer patients responding to at least one survey during 2010–2014 and randomly selected one non-responder from the cancer registry matched on cancer type and yearly quarter of diagnosis.Main outcome measureWe compared age, sex, socioeconomic deprivation, ethnicity and disease stage between the two groups using logistic regression. We also compared survival (in years) using the Mann-Whitney test.ResultsAcross all cancer types survey responders were younger, more likely to have a White ethnic background, to be resident in less deprived areas and diagnosed with earlier stage disease although they varied between cancers. Median survival for responders was also higher than for the cancer registry population (colorectal: 4.8 vs 3.2; lung: 2.0 vs 0.3; breast: 5.7 vs 5.4; and prostate: 5.7 vs 5.2 years; all p-values<0.001).ConclusionCPES responders with the four most common cancers do not necessarily represent all patients with these cancers in terms of demographic characteristics and tumour stage at diagnosis. These limitations should be considered when interpreting findings. To capture the experiences of patients currently underrepresented in CPES, different approaches may need to be taken.
30
Kotepui, Manas, and Chaowanee Chupeerach. "Age Distribution of Breast Cancer from a Thailand Population-Based Cancer Registry." Asian Pacific Journal of Cancer Prevention 14, no. 6 (June 30, 2013): 3815–17. http://dx.doi.org/10.7314/apjcp.2013.14.6.3815.
Full text
31
Mamoudou Garba, S., H. Hami, H. Mahamadou Zaki, A. Soulaymani, H. Nouhou, and A. Quyou. "Pancreatic Cancer in Niamey: First Results from a Population-Based Cancer Registry." International Journal of Epidemiology 44, suppl_1 (September 23, 2015): i259. http://dx.doi.org/10.1093/ije/dyv096.487.
Full text
32
Roncucci, L., R. Fante, L. Losi, C. Di Gregorio, A. Micheli, P. Benatti, N. Madenis, et al. "Survival for colon and rectal cancer in a population-based cancer registry." European Journal of Cancer 32, no. 2 (February 1996): 295–302. http://dx.doi.org/10.1016/0959-8049(95)00532-3.
Full text
33
Lacerda, Gonçalo F., Paulo S. Pinheiro, José M. Cabral, Jorge G. Câmara, and Vítor L. Rodrigues. "Cancer in the Azores: initial results from a recently established population-based cancer registry." Revista Brasileira de Epidemiologia 15, no. 2 (June 2012): 285–97. http://dx.doi.org/10.1590/s1415-790x2012000200006.
Full textAbstract:
INTRODUCTION: The Azores archipelago has long been the Portuguese region that presents the highest mortality rates for certain cancers. Lack of incidence data has prevented the evaluation of the actual burden of this disease in the Azorean population. METHODS: Malignant tumours (ICD-O 5th Digit /3) initially diagnosed between the January 1st 2000 and December 31st 2002 were retrieved from the database of the recently established population-based cancer registry. Crude, age-specific and age-standardized rates were calculated and confidence intervals were estimated using Poisson approximation. Relative risks of developing cancer in the Azores when compared to mainland Portugal have been represented by standardized ratios. Quality indicators, including Mortality:Incidence (M:I) ratios, were also assessed. RESULTS: Overall, the data shows a high incidence rate for some malignant diseases, specifically in men. Compared to those living in mainland Portugal, both Azorean men (RR 1.412; 99% CI 1.407-1.416) and women (1.127; 1.125-1.129) presented a significantly higher risk of developing cancer, all sites combined. When compared with other cancer registries, a less favourable cancer survival pattern is reported in the Azores, as emphasized by higher M:I ratios for several cancer sites. CONCLUSIONS: A preliminary analysis of the results suggests the presence of some major risk factors in the Azorean population, namely tobacco smoking in men. Higher M:I ratios would also point to survival disparities between the Azores archipelago and the continent, which should be further studied.
34
Timotewos, Genebo, Asmare Solomon, Assefa Mathewos, Adamu Addissie, Solomon Bogale, Tigeneh Wondemagegnehu, Abraha Aynalem, et al. "First data from a population based cancer registry in Ethiopia." Cancer Epidemiology 53 (April 2018): 93–98. http://dx.doi.org/10.1016/j.canep.2018.01.008.
Full text
35
Mensi, Carolina, Dario Consonni, Claudia Sieno, Sara De Matteis, Luciano Riboldi, and Pier Alberto Bertazzi. "Sinonasal Cancer and Occupational Exposure in a Population-Based Registry." International Journal of Otolaryngology 2013 (2013): 1–7. http://dx.doi.org/10.1155/2013/672621.
Full textAbstract:
We examined occupational exposures among subjects with sinonasal cancer (SNC) recorded in a population-based registry in the Lombardy Region, the most populated and industrialized Italian region. The registry collects complete clinical information and exposure to carcinogens regarding all SNC cases occurring in the population of the region. In the period 2008–2011, we recorded 210 SNC cases (137 men, 73 women). The most frequent occupational exposures were to wood (44 cases, 21.0%) and leather dust (29 cases, 13.8%), especially among men: 39 cases (28.5%) to wood and 23 cases (16.8%) to leather dust. Exposure to other agents was infrequent (<2%). Among 62 subjects with adenocarcinoma, 50% had been exposed to wood dust and 30.7% to leather dust. The proportions were around 10% in subjects with squamous cell carcinoma and about 20% for tumors with another histology. The age-standardized rates (×100,000 person-years) were 0.7 in men and 0.3 in women. Complete collection of cases and their occupational history through a specialized cancer registry is fundamental to accurately monitor SNC occurrence in a population and to uncover exposure to carcinogens in different industrial sectors, even those not considered as posing a high risk of SNC, and also in extraoccupational settings.
36
Unguryanu, Tatiana N. "POPULATION REGISTRIES OF NON-COMMUNICABLE DISEASES IN THE RUSSIAN FEDERATION." Hygiene and sanitation 98, no. 12 (December 15, 2019): 1432–36. http://dx.doi.org/10.18821/0016-9900-2019-98-12-1432-1436.
Full textAbstract:
Population registries consolidate information about cases of disease among the geographically limited population at the national, regional or municipal levels. The main tasks of registries are to monitor the levels of prevalence, to study risk factors, and to evaluate effectiveness of therapeutic or preventive measures. Currently, in the Russian Federation there is a lot of federal registries of various such diseases, like diabetes, cancer, congenital malformations, chronic skin diseases, cardiovascular diseases, bronchial asthma, orphan diseases, and others. These registries allow obtaining the necessary information about the prevalence, clinical course of disease, its complications, associated conditions, socio-demographic characteristics of patients, effect of a particular treatment on the course and outcomes of the disease.The article provides information about cancer registry, county birth registry and injury registry in the Arkhangelsk region. The advantages and limitations of population registries for epidemiological studies are given. Using registries in epidemiological studies is based on complete data collection, saving resources, taking into account confounding factors that are accessible to entire population. Register-based research has a large sample size, which makes it possible to study rare exposures and outcomes. The long collection of information in time allows studying diseases with a long latent period after exposure. The limitations of the registry data for epidemiological study include the fact that data is collected by the registrar and not by the researcher. The registries don’t contain information about specific confounding factors, which doesn’t allow correcting them. It is difficult to assess quality of registry data, as there is no “gold standard” for the comparement with the registry database The exchange of data between registries should be promising, as it will combine efforts to achieve common scientific and organizational goals.
37
Jabbaripour, Pooneh, Mohammad Hossein Somi, Hossein Mashhadi Abdolahi, and Roya Dolatkhah. "Gastric cancer in East Azerbaijan, Iran: Five-year survival analysis of population-based cancer registry results." Biomedical Research and Therapy 7, no. 11 (November 29, 2020): 4114–21. http://dx.doi.org/10.15419/bmrat.v7i11.648.
Full textAbstract:
Introduction: Gastric cancer is the most common cancer with significant increasing trends during the last decade in Iran. The aim of this study was to evaluate the epidemiologic profile of gastric cancer along with gastric cancer-specific survival analysis.
Methods: This was an analytical cross-sectional study in which all gastric cancer data were analyzed using the database of the East Azerbaijan Population-Based Cancer Registry (EA-PBCR). The incidents of definitive gastric cancer diagnosis were between the period of March 20th, 2015 to March 19th, 2017 ( = 3 Iranian solar years). The survival analysis was performed using the Kaplan-Meier method and life tables for 1- to 5-year survival data. The Log-rank test and Cox regression were computed to test the equality of survival function and mortality hazard.
Results: Overall, 2,631 newly diagnosed gastric cancer cases were registered for 3 years. Gastric cancer was 2.35 times more common in men than women. The most common age group was the 7th decade- with 531 (31.2%) gastric cancer cases. Most of the gastric cancer cases were non-cardia (n = 2,244, 85.29%) cancer, and the proportion of non-cardia to cardia gastric cancer was 5.8:1. Overall survival was 60.1%, and 1- to 5-year survival proportions were 91.61%, 64.21%, 58.53%, 30.14% and 24.77%, respectively. Cardia cancers had a worse survival rate than non-cardia cancers, and the hazard of mortality was 1.33 times higher in cardia than non-cardia cancers (hazard ratio or HR = 1.33; 95% CI: 1.05 - 1.68; P = 0.017).
Conclusion: Non-cardia gastric cancer is still the most dominant subsite in East Azerbaijan, Iran. There was a higher 1- to 5- year survival proportion in East Azerbaijan, with lower overall mortality rates, compared to other regions of Iran.
38
van der Wal, Junus M., Adee Bodewes, Charles Agyemang, and Anton Kunst. "A population-based retrospective study comparing cancer mortality between Moluccan migrants and the general Dutch population: equal risk 65 years after immigration?" BMJ Open 9, no. 8 (August 2019): e029288. http://dx.doi.org/10.1136/bmjopen-2019-029288.
Full textAbstract:
ObjectiveTo test the hypothesis that cancer mortality rates among the Moluccan–Dutch, the oldest non-Western migrant group to arrive in the Netherlands after the Second World War, are similar to those in the general Dutch population.DesignPopulation-based retrospective study.SettingData from the national cause of death registry in the Netherlands and municipal registries.ParticipantsUsing historic records containing family names of all Moluccan–Dutch who arrived in the Netherlands in 1951, we identified 81 591 Moluccan–Dutch persons in the national cause of death registry of the Netherlands. The reference group consisted of 15 866 538 persons of the general Dutch population.Outcome measuresMortality data were linked to demographic data from municipal registries. We calculated all-cancer and cancer-specific mortality and measured differences between the two groups using Poisson regression, adjusting for sex, age and area socioeconomic status. We conducted a sub-analysis for the first-generation and second-generation Moluccan–Dutch.ResultsThere was no difference in all-cancer mortality between Moluccan–Dutch and the general Dutch population. Mortality was higher among Moluccan–Dutch for liver, cervix and corpus uteri cancers, but lower for stomach, oesophagus, kidney and nervous system cancers. For most cancers, mortality risk as compared with the general Dutch population varied between different generations of Moluccan–Dutch.ConclusionsSeveral decades after migration, the Moluccan–Dutch show similar all-cancer mortality, but different cancer-specific mortality rates, when compared with the general Dutch population.
39
Aryana, I. Gusti Putu Suka, Putu A. T. Adiputra, Yulan Permatasari, Pande K. A. Prayudi, and Hendra P. Setiawan. "Breast Cancer in the Balinese Elderly Population: Analysis of the Hospital-Based Cancer Registry." Indonesian Journal of Cancer 16, no. 3 (September 29, 2022): 164. http://dx.doi.org/10.33371/ijoc.v16i3.895.
Full textAbstract:
Background: The elderly population in Indonesia will continue to increase over the next few decades. Breast cancer is 22.9% of all female cancers, and aging is one of the biggest risk factors. The challenge in managing older cancer patients is the ability to accurately assess whether the expected benefits of treatment outweigh the risks. Epidemiological data is very important for research and the advancement of medical science in the future. Currently, the incidence of breast cancer in Indonesia is 26 per 100,000 population, but the incidence of breast cancer in the elderly is unknown.Methods: This is a descriptive study of all breast cancer cases recorded in the cancer registry of Sanglah General Hospital, the largest cancer registry in Bali. Statistical analyses were conducted using descriptive statistics with the Statistical Package for the Social Sciences version 16.0 (SPSS).Results: From 1997 until 2013, 1,020 cases of breast cancer among Balinese women of various ages were recorded, of which only 78 cases (7.6%) were attributed to the elderly (age ≥ 65 years). At the time of diagnosis, distant metastasis was recorded for 28.9% of the elderly, compared with 24.4% for the younger group of patients (age < 65 years). Locally advanced breast cancer (LABC) was also recorded higher in the elderly (49.4% vs. 47.5%). A lower proportion of primary surgical treatment was recorded for the elderly than for the younger group of patients (69.7% vs. 76.2%). A lower proportion of adjuvant therapy, either by chemotherapy or radiotherapy, was also recorded for the elderly (45.5% vs. 53.4% and 2.6% vs. 4.9%, respectively), but the proportion of adjuvant hormonal therapy was recorded higher in the elderly (1.3% vs. 0.7%). In contrast, palliative care was recorded higher in the elderly (7.7% vs. 5.7%). Unfortunately, no data about survival were available.Conclusions: There is a tendency for older women in Bali to have more advanced disease at the time of diagnosis and receive less surgical treatment as the primary therapy, but they are more likely to receive adjuvant hormonal therapy and palliative care than their younger counterparts. This information should be of major interest to clinicians.
40
Tobin, Jessica L., Stefanie M. Thomas, David R. Freyer, Ann S. Hamilton, and Joel E. Milam. "Estimating cancer treatment intensity from SEER cancer registry data: methods and implications for population-based registry studies of pediatric cancers." Cancer Causes & Control 31, no. 10 (August 5, 2020): 881–90. http://dx.doi.org/10.1007/s10552-020-01328-7.
Full text
41
Alam, AMM Shariful. "Cancer Registry and Its Different Aspects." Journal of Enam Medical College 1, no. 2 (July 29, 2012): 76–80. http://dx.doi.org/10.3329/jemc.v1i2.11467.
Full textAbstract:
At both the national and community level, cancer registration schemes are central to research into the nature and causation of cancer, to the planning of health service resources and cancer control programmes, and to the assessment of their efficacy. Cancer registration is thus a part of the modern health information system. There are two major types of cancer registries -hospital-based registries and population-based registries. It is of paramount importance that the issue of development of cancer registry in developing countries should be taken into account. Although, the cancer registry system in Bangladesh is in infantile stage, it should be the aim of the health planner of our country to develop population-based cancer registry as early as possible. The extra difficulties and expenses involved are certainly outweighed by the enhanced validity and usefulness of the data generated. DOI: http://dx.doi.org/10.3329/jemc.v1i2.11467 J Enam Med Col 2011; 1(2): 76-80
42
Ibrahim, Amal S., Hussein M. Khaled, Nabiel NH Mikhail, Hoda Baraka, and Hossam Kamel. "Cancer Incidence in Egypt: Results of the National Population-Based Cancer Registry Program." Journal of Cancer Epidemiology 2014 (2014): 1–18. http://dx.doi.org/10.1155/2014/437971.
Full textAbstract:
Background. This paper aims to present cancer incidence rates at national and regional level of Egypt, based upon results of National Cancer Registry Program (NCRP).Methods. NCRP stratified Egypt into 3 geographical strata: lower, middle, and upper. One governorate represented each region. Abstractors collected data from medical records of cancer centers, national tertiary care institutions, Health Insurance Organization, Government-Subsidized Treatment Program, and death records. Data entry was online. Incidence rates were calculated at a regional and a national level. Future projection up to 2050 was also calculated.Results. Age-standardized incidence rates per 100,000 were 166.6 (both sexes), 175.9 (males), and 157.0 (females). Commonest sites were liver (23.8%), breast (15.4%), and bladder (6.9%) (both sexes): liver (33.6%) and bladder (10.7%) among men, and breast (32.0%) and liver (13.5%) among women. By 2050, a 3-fold increase in incident cancer relative to 2013 was estimated.Conclusion. These data are the only available cancer rates at national and regional levels of Egypt. The pattern of cancer indicated the increased burden of liver cancer. Breast cancer occupied the second rank. Study of rates of individual sites of cancer might help in giving clues for preventive programs.
43
Katsarelias, Dimitrios, Hanna Eriksson, Rasmus Mikiver, Isabelle Krakowski, Jonas A. Nilsson, Lars Ny, and Roger Olofsson Bagge. "The Effect of Beta-Adrenergic Blocking Agents in Cutaneous Melanoma—A Nation-Wide Swedish Population-Based Retrospective Register Study." Cancers 12, no. 11 (November 2, 2020): 3228. http://dx.doi.org/10.3390/cancers12113228.
Full textAbstract:
Previous studies have demonstrated an anti-tumoral effect of beta-adrenergic blocking agents on cutaneous melanoma (CM). The aim of this study was to investigate if beta-adrenergic blocking agents have an impact on survival in Swedish patients with melanoma. A population-based retrospective registry study including all patients diagnosed with a primary invasive melanoma between 2009 and 2013 was performed. Data from the Swedish Melanoma Register were linked to the Swedish Prescribed Drug Registry and the Swedish Cause of Death Register. Cox regression analyses including competing risk assessments were performed. There were 12,738 patients included, out of which 3702 were exposed to beta-blockers vs. 9036 non-exposed patients. Age, male sex, Breslow thickness, ulceration, and nodal status were independent negative prognostic factors for melanoma-specific survival (MSS). Adding beta-blockers to the analysis did not add any prognostic value to the model (HR 1.00, p = 0.98), neither when adjusting for competing risks (HR 0.97, p = 0.61). When specifically analyzing the use of non-selective beta-blockers, the results were still without statistical significance (HR 0.76, p = 0.21). In conclusion, this population-based registry study could not verify that the use of beta-adrenergic blocking agents improve survival in patients with melanoma.
44
Madanat-Harjuoja, Laura-Maria, Janne Pitkäniemi, Elli Hirvonen, Nea Malila, and Lisa Diller. "Risk of cancer in first-degree relatives of childhood cancer patients: A linked longitudinal population-based registry study." Journal of Clinical Oncology 37, no. 15_suppl (May 20, 2019): 1522. http://dx.doi.org/10.1200/jco.2019.37.15_suppl.1522.
Full textAbstract:
1522 Background: Population based data on risk of cancer in relatives of childhood cancer patients are sparse. Using linked population-based registries, we set out to evaluate risk of early onset cancer in first-degree relatives of childhood cancer patients. Methods: We queried the Finnish Cancer Registry and ascertained a cohort of 9135 individuals diagnosed with at least one cancer under the age of 21 years between 1970 and 2012. We then went on to identify a total of 58,211 unique first- and second-degree relatives by linking to the Central Population Registry. Relatives were then linked back to the annually updated Finnish Cancer Registry to identify cancer diagnoses in siblings, offspring and parents of childhood cancer patients, restricting to cancers occurring under the age of 40. Risk of cancer in relatives of the index case was estimated using standardized incidence ratios (SIRs) comparing cancer age and period specific incidence in relatives to that of the general population. Results: A total of 288 cancers were diagnosed in relatives during the 900,907 years of follow-up, while 266 cancers were expected. The overall risk of cancer in siblings of childhood cancer patients was elevated (SIR 1.18 95% CI 1.00-1.39). 144 of the childhood cancer patients were identified as having a sibling additional to index case with a diagnosis of cancer at age < 40; 44 of these 144 also had a parent with early onset cancer. The risk of early onset cancer was elevated in offspring overall (SIR 1.79 95%CI 1.05-2.81) and in offspring of retinoblastoma, malignant bone tumor and neuroblastoma patients. Siblings of lymphoma patients were at elevated risk of early cancer, and the mothers of 11 of 27 sibling pairs (lymphoma + cancer < 40 yo) also had cancer at age < 40. Conclusions: Linked registries allow family history of cancer to be evaluated across multiple relatives and to be longitudinally updated. Results are generally reassuring with regard to risk of cancer in relatives of childhood cancer patients. Elevated risk in relatives of retinoblastoma and malignant bone tumor patients are in line with the known cancer syndromes associated with these tumor types, and lymphoma and neuroblastoma families need further analysis.
45
Frederiksen, Henrik, Dóra Körmendiné Farkas, Christian Fynbo Christiansen, Hans Carl Hasselbalch, and Henrik Toft Sørensen. "Chronic myeloproliferative neoplasms and subsequent cancer risk: a Danish population-based cohort study." Blood 118, no. 25 (December 15, 2011): 6515–20. http://dx.doi.org/10.1182/blood-2011-04-348755.
Full textAbstract:
Abstract Patients with chronic myeloproliferative neoplasms, including essential thrombocythemia (ET), polycythemia vera (PV), and chronic myeloid leukemia (CML), are at increased risk of new hematologic malignancies, but their risk of nonhematologic malignancies remains unknown. In the present study, we assessed the risk of both types of malignancies after an ET, PV, or CML diagnosis. We linked 2 population-based nationwide registries, the Danish National Registry of Patients, covering all Danish hospitals and the Danish Cancer Registry, and assessed subsequent cancer risk in a cohort of all 7229 patients diagnosed with a chronic myeloproliferative neoplasm during 1977-2008. We compared the incidence of subsequent cancer in this cohort with that expected on the basis of cancer incidence in the general population (standardized incidence ratio). Overall, ET, PV, and CML patients were at increased risk of developing both new hematologic and nonhematologic cancers. The standardized incidence ratio for developing a nonhematologic cancer was 1.2 (95% confidence interval [95% CI]): 1.0-1.4) for patients with ET, 1.4 (95% CI: 1.3-1.5) for patients with PV, and 1.6 (95% CI: 1.3-2.0) for patients with CML. We conclude that patients with chronic myeloproliferative neoplasms are at increased risk of developing a new malignant disease.
46
Crocetti, Emanuele, Eva Buiatti, and Andrea Amorosi. "Prostate Cancer: Population-Based Survival Rates in Central Italy." Tumori Journal 81, no. 2 (March 1995): 81–85. http://dx.doi.org/10.1177/030089169508100202.
Full textAbstract:
Aims To evaluate survival in prostate cancer patients in the Province of Florence where the Tuscany Cancer Registry is active. Methods The survival of 777 patients with prostate cancer diagnosed in the period 1985-87 was evaluated. The observed and relative survival rates 1, 3 and 5 years after diagnosis were computed. Also the prognostic effect of age, disease extension, tumor grade, histological verification, place of residence and year of diagnosis were evaluated using univariate and multivariate analysis. Results The observed survival was 73.4% 1 year, 42.5% 3 years and 29.2% 5 years after diagnosis. The relative survival was respectively 78.7%, 53.0% and 43.0%. Significant independent risks were evident when the disease was extended out of the prostate, for patients older than 80 years, for high grade tumors and for patients without histological verification. Conclusion The 5-year relative survival rate in the province of Florence is similar to those from other European Registries and the Latina Registry, but much lower than the one reported by the SEER program in the US. Data on histological verification percentage, availability of information on disease extension, and tumor grade are discussed as indicators of the quality of the diagnostic approach in comparison with other registries.
47
Cortés-Ibañez, Francisco O., Sunil Belur Nagaraj, Ludo Cornelissen, Gerjan J. Navis, Bert van der Vegt, Grigory Sidorenkov, and Geertruida H. de Bock. "Prediction of Incident Cancers in the Lifelines Population-Based Cohort." Cancers 13, no. 9 (April 28, 2021): 2133. http://dx.doi.org/10.3390/cancers13092133.
Full textAbstract:
Cancer incidence is rising, and accurate prediction of incident cancers could be relevant to understanding and reducing cancer incidence. The aim of this study was to develop machine learning (ML) models that could predict an incident diagnosis of cancer. Participants without any history of cancer within the Lifelines population-based cohort were followed for a median of 7 years. Data were available for 116,188 cancer-free participants and 4232 incident cancer cases. At baseline, socioeconomic, lifestyle, and clinical variables were assessed. The main outcome was an incident cancer during follow-up (excluding skin cancer), based on linkage with the national pathology registry. The performance of three ML algorithms was evaluated using supervised binary classification to identify incident cancers among participants. Elastic net regularization and Gini index were used for variables selection. An overall area under the receiver operator curve (AUC) <0.75 was obtained, the highest AUC value was for prostate cancer (random forest AUC = 0.82 (95% CI 0.77–0.87), logistic regression AUC = 0.81 (95% CI 0.76–0.86), and support vector machines AUC = 0.83 (95% CI 0.78–0.88), respectively); age was the most important predictor in these models. Linear and non-linear ML algorithms including socioeconomic, lifestyle, and clinical variables produced a moderate predictive performance of incident cancers in the Lifelines cohort.
48
Ragusa, Rosalia, Antonina Torrisi, Alessia Anna Di Prima, Antonietta A. Torrisi, Antonella Ippolito, Margherita Ferrante, Anselmo Madeddu, and Vincenzo Guardabasso. "Cancer Prevention for Survivors: Incidence of Second Primary Cancers and Sex Differences—A Population-Based Study from an Italian Cancer Registry." International Journal of Environmental Research and Public Health 19, no. 19 (September 26, 2022): 12201. http://dx.doi.org/10.3390/ijerph191912201.
Full textAbstract:
Background: The number of cancer survivors continues to increase, thanks to advances in cancer diagnosis and treatment. Unfortunately, the incidence of a second primary cancer (SPC) is also increasing, but limited studies reporting incidence data are available regarding multiple cancers. This study presents our observations on multiple primary malignant cancers, the associations between sites, and the inherent sex differences. Patients and methods: We report the data, disaggregated by sex, concerning the SPCs that were recorded in the “Registro Tumori Integrato” (RTI) a population-based cancer registry in Sicily, Italy, as observed in the period from 2003 to 2017, in a total population of approximately 2,300,000. SPCs were divided into synchronous and metachronous cancers. The International Classification of Diseases for Oncology, third edition (ICD-O-3), was used for topographical and morphological classifications. Multiple primary cancers with multi-organ primitiveness were selected from the database of the RTI by extracting patients with more than one diagnosis. SPCs had different histology or morphology from the particular cancer that was considered to be the index cancer case. Multicenter or multifocal cancers, or metastases, were excluded. The percentages of cancer by sex and topography, the average age of incidence, and a breakdown by age were computed. Results: Differences were observed between sexes in terms of incidence and site for SPCs. The most frequent SPC was skin cancer (20% of the SPCs observed). The associations among sites of multiple cancers are reported. Conclusion: There are many gaps in our knowledge of sex differences in cancer. The study of multiple primary cancers could bring more likely opportunities for evaluation of the cancer burden and trends that can be used to identify new research areas by population health programs, as well as for clinical researchers.
49
Lin, J. Y. "Information System of Nationwide Population-Based Cancer Screening in Taiwan." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 209s. http://dx.doi.org/10.1200/jgo.18.84500.
Full textAbstract:
Background: Pap smear screening was the first nation-wide population-based organized screening since 1999 in Taiwan. After that, nationwide screening programs for breast cancer, colorectal cancer, and oral cancer have been launched since 2004. The national online information system was built for the infrastructure, monitoring, delivery, evaluation, and management of health care services in our nationwide screening program. Aim: To develop a comprehensive health information system for cancer screening to assist health professionals in processing screening with quality assurance and evaluation. Methods: A Web-based solution combining data gathering and processing capabilities was developed. Application design in a server was based on the ASP, HTML, DHTML, Java Script, Java Applet technology and SQL-SERVER relational database. Web-based software programs were developed to facilitate the structure, process, and outcome for screening. Individual screening data were transferred to centralized databases via the Internet. The client-users now include 25 health bureaus, 369 health centers and over 6500 clinics or hospitals. Results: The Taiwanese cancer screening system incorporates nationwide breast cancer screening with mammography, colorectal cancer with fecal immunochemical test, oral cancer with visual inspection. The key performance index for screening including screening rate, positive rate, referral rate, positive predictive rate, detection rate, and interval cancer rate were provided in the system. The system allows for the flow of information among different health services and country areas to monitor participants in the whole process screening. It has an alert system to prevent delayed referral for cases in need of diagnosis and treatment. A total of 2.27 million women aged 45-69 years have attended biennial mammography screening program at least once between 2004 and 2014. More than 4.6 million subjects with the exposure of betel quid and/or cigarette have attended the biennial oral cancer screening. Around 3.8 million subjects aged 50-74 years have attended the biennial FIT screening. Information on organized features appertaining to screening, diagnosis, and outcomes after long-term follow up were collected for the systematic evaluation. The proposed health information system for cancer screening is centered on modules that would allow for the computerization, process, update of screen data, and link with other registry data (e.g., population registry, cancer registry, and mortality). Conclusion: A nation-wide information system for breast cancer, colorectal cancer, and oral cancer screening was successfully developed to support health professionals and health decision makers for planning, delivery, management, and evaluation in population-based cancer screening program.
50
Veruttipong, Darlene. "Age distribution, polyps and rectal cancer in the Egyptian population-based cancer registry." World Journal of Gastroenterology 18, no. 30 (2012): 3997. http://dx.doi.org/10.3748/wjg.v18.i30.3997.
Full text