Journal articles: 'Person-centred support'

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Wheeler, Paul Nicholas. "Person-centred Active Support." Learning Disability Practice 8, no. 10 (December 1, 2005): 25–26. http://dx.doi.org/10.7748/ldp.8.10.25.s21.

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Harman, Anthony D., and Helen Sanderson. "How person-centred is active support?" Journal of Intellectual & Developmental Disability 33, no. 3 (September 2008): 271–73. http://dx.doi.org/10.1080/13668250802273257.

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Nobbs, Martin, Phillip Amey, Kate Gregson, Mandy Johnson, and Gwen Moulster. "person-centred planning in Hampshire: support networks." Learning Disability Practice 9, no. 9 (November 2006): 18–21. http://dx.doi.org/10.7748/ldp2006.11.9.9.18.c7674.

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Symonds, Jon, Caroline Miles, Mike Steel, Sue Porter, and Val Williams. "Making person-centred assessments." Journal of Social Work 20, no. 4 (February 19, 2019): 431–47. http://dx.doi.org/10.1177/1468017319830593.

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Summary The social care assessment is a ‘key interaction’ between a person and the local authority with ‘critical’ importance for determining a person’s needs for care and support. In order to achieve this, the guidance requires that assessments must be ‘person-centred throughout’. The concept of person-centred practice is now routinely invoked, but there remains little empirical evidence on how it gets put into practice. Findings This paper draws on interview data from 30 practitioners about their experiences of conducting social care assessments in England. While there was widespread support for the principles of a person-centred approach, tensions emerged for practitioners in three ways: the way in which ‘chat’ was used to build a relationship or conduct the assessment, whether to conduct the assessment via a conversation or by following the sections on the agency form and the extent to which the assessor should involve and negotiate the contributions of family members. Applications We argue that each of these dilemmas represents an occasion when a commitment to person-centred practice is negotiated between professionals and service users and sometimes compromised as a result. We consider the possibilities for and constraints on achieving person-centred assessments in a post-Care Act environment and discuss the implications for social work practice and research.

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Risi, Liliana, Juliette Brown, Isabel Hodkinson, Paul Sugarhood, and Clare Thormod. "Integrated Person Centred Support Preparation – a Handy Approach." International Journal of Integrated Care 16, no. 6 (December 16, 2016): 340. http://dx.doi.org/10.5334/ijic.2888.

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Rae, Ann. "Flexible learning to support safe, person-centred care." Nursing Management 18, no. 9 (January 26, 2012): 32–33. http://dx.doi.org/10.7748/nm2012.02.18.9.32.c8892.

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Rhodes, Junelle, and David Hamilton. "An Insight into Implementing Person‐Centred Active Support." Tizard Learning Disability Review 11, no. 3 (July 2006): 31–36. http://dx.doi.org/10.1108/13595474200600025.

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Blackon, Bret, Joohee Lee, Rebecca Bain, B. Michelle Brazeal, Courtney Williams, and Yolanda Green. "Person-centredness in the workplace: an examination of person-centred skills, processes and workplace factors among Medicaid waiver providers in the United States." International Practice Development Journal 12, no. 2 (November 23, 2022): 1–12. http://dx.doi.org/10.19043/ipdj.122.006.

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Background: Existing research supports the effectiveness of person-centred practices in working with persons with physical, intellectual and developmental disabilities, but less clear is the influence of workplace factors on the implementation and quality of person-centred practices. Aims: This article explores the influence of workplace factors on job satisfaction and on the implementation and quality of person-centred practices in healthcare agencies that provide home- and community-based services through a Medicaid waiver in Mississippi, a state in the southeastern United States. Methods: Purposive sampling was used to collect data via online surveys to explore the interrelationships among person-centred workplaces, job satisfaction and person-centred practices. Results: Path analysis reveals that a person-centred workplace influences both skill implementation and person-centred processes. Job satisfaction was significantly correlated to skill implementation and person-centred processes in bivariate analysis but was not detected in the path model. Conclusion: This study suggests that organisations may improve the provision of person-centred practices by investing in policies that create a person-centred workplace. Implications for practice: A person-centred workplace environment is a critical factor that influences person-centred practices and job satisfaction among employees Adapting practices to be person-centred should occur at every level of an organisation Social care organisations should maintain continuous assessments of person-centredness to ensure a person-centred workplace where employees consistently use person-centred skills and processes with the people whom they support

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Camble, Alexis. "Person-centred support of people who exhibit challenging behaviour." Learning Disability Practice 15, no. 2 (February 29, 2012): 18–20. http://dx.doi.org/10.7748/ldp2012.03.15.2.18.c8966.

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Risi, Liliana, Juliette Brown, Paul Sugarhood, Babalal Depala, Abi Olowosoyo, Cynthia Tomu, Lorena Gonzalez, et al. "The Handy Approach – Quick Integrated Person Centred Support Preparation." BMJ Quality Improvement Reports 6, no. 1 (June 2017): u214461.w5681. http://dx.doi.org/10.1136/bmjquality.u214461.w5681.

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Sobolewska, Agnieszka, Amy-Louise Byrne, Clare Lynette Harvey, Eileen Willis, Adele Baldwin, Sandy McLellan, and David Heard. "Person-centred rhetoric in chronic care: a review of health policies." Journal of Health Organization and Management 34, no. 2 (February 5, 2020): 123–43. http://dx.doi.org/10.1108/jhom-04-2019-0078.

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PurposeThe purpose of the paper is to explore how the national, state and organisational health policies in Australia support the implementation of person-centred care in managing chronic care conditions.Design/methodology/approachA qualitative content analysis was performed regarding the national, state and organisational Queensland Health policies using Elo and Kyngas' (2008) framework.FindingsAlthough the person-centred care as an approach is well articulated in health policies, there is still no definitive measure or approach to embedding it into operational services. Complex funding structures and competing priorities of the governments and the health organisations carry the risk that person-centred care as an approach gets lost in translation. Three themes emerged: the patient versus the government; health care delivery versus the political agenda; and health care organisational processes versus the patient.Research limitations/implicationsGiven that person-centred care is the recommended approach for responding to chronic health conditions, further empirical research is required to evaluate how programs designed to deliver person-centred care achieve that objective in practice.Practical implicationsThis research highlights the complex environment in which the person-centred approach is implemented. Short-term programmes created specifically to focus on person-centred care require the right organisational infrastructure, support and direction. This review demonstrates the need for alignment of policies related to chronic disease management at the broader organisational level.Originality/valueGiven the introduction of the nurse navigator program to take up a person-centred care approach, the review of the recent policies was undertaken to understand how they support this initiative.

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Hølge-Hazelton, Bibi, Elizabeth Rosted, Line Zacho Borre, Brendan McCormack, and Mette Kjerholt. "Facilitating person-centred leadership support during the Covid-19 crisis." International Practice Development Journal 11, no. 2 (November 17, 2021): 1–8. http://dx.doi.org/10.19043/ipdj.112.009.

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Background: The Covid-19 crisis has created new and difficult working conditions for all frontline healthcare staff and leaders. Ward managers in particular have faced significant challenges. The practice development initiative described in this article began at a hospital in Denmark immediately after the country’s first Covid-19 wave. The hospital has person-centredness as its vision for care and research. Aim: The purpose of this article is to offer a reflection on the ways in which our research and its findings enabled us to learn from the experiences of ward managers so as to support them and strengthen their network during a difficult time, using principles of practice development. Conclusion and implications for practice: The evidence produced in the project was found to be relevant to leadership practice by the ward managers and led to a strengthened position at a time of crisis. This implies that: • It is possible to establish collaborative and useful evidence for clinical practice under difficult circumstances • By using principles of practice development it is possible to facilitate constructive dialogues between ward managers and executive managers • At a time of a major crisis, the role of ward managers should not be underestimated

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Ewing, Gail, Lynn Austin, Janet Diffin, and Gunn Grande. "Developing a person-centred approach to carer assessment and support." British Journal of Community Nursing 20, no. 12 (December 2, 2015): 580–84. http://dx.doi.org/10.12968/bjcn.2015.20.12.580.

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Caesens, Gaëtane, Nicolas Gillet, Alexandre J. S. Morin, Simon A. Houle, and Florence Stinglhamber. "A Person‐Centred Perspective on Social Support in the Workplace." Applied Psychology 69, no. 3 (May 16, 2019): 686–714. http://dx.doi.org/10.1111/apps.12196.

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Silver, Ian. "Bridging the gap: person centred, place-based self-management support." Future Healthcare Journal 5, no. 3 (October 2018): 188–91. http://dx.doi.org/10.7861/futurehosp.5-3-188.

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Le Bosquet, Katherine, Nina Barnett, and John Minshull. "Deprescribing: Practical Ways to Support Person-Centred, Evidence-Based Deprescribing." Pharmacy 7, no. 3 (September 3, 2019): 129. http://dx.doi.org/10.3390/pharmacy7030129.

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Deprescribing is complex and multifactorial with multiple approaches described in the literature. Internationally, there are guidelines and tools available to aid clinicians and patients to identify and safely withdraw inappropriate medications, post a shared decision-making medicines optimisation review. The increase in available treatments and use of single disease model guidelines have led to a healthcare system geared towards prescribing, with deprescribing often seen as a separate activity. Deprescribing should be seen as part of prescribing, and is a key element in ensuring patients remain on the most appropriate medications at the correct doses for them. Due to the complex nature of polypharmacy, every patient experience and relationship with medications is unique. The individual’s history must be incorporated into a patient-centred medication review, in order for medicines to remain optimal through changes in circumstance and health. Knowledge of the law and appropriate recording is important to ensure consent is adequately gained and recorded in line with processes followed when initiating a medication. In recent years, with the increase in interested clinicians globally, a number of prominent networks have grown, creating crucial links for both research and sharing of good practice.

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Cook, Neal F., Donna Brown, Deirdre O’Donnell, Tanya McCance, Caroline A. W. Dickson, Siri Tønnessen, Stephanie Dunleavy, et al. "The Person-centred Curriculum Framework: a universal curriculum framework for person-centred healthcare practitioner education." International Practice Development Journal 12, Suppl (July 6, 2022): 1–11. http://dx.doi.org/10.19043/12suppl.004.

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Background: Globally, humanising healthcare is a strategic response to a distinct need for person-centred approaches to practice. This movement has largely focused on the artefacts of healthcare practice, with an emergent focus on the role of healthcare education in instilling and espousing the core principles of person-centredness. It is increasingly recognised that how healthcare professionals are educated is fundamental to creating learning cultures where person-centred philosophies can be lived out and aligned with workforce and healthcare policy strategies. In 2019, six European countries began collaboration on an Erasmus+ project, Person-centredness in Healthcare Curricula, to develop a Person-centred Curriculum Framework. The other articles in this Special Issue focus on the methodologies employed by the project team, and this article describes the framework. Aim: While curricula exist with person-centredness as a focus, aim or component, few embrace person-centredness as an underpinning philosophy and theory, or use a whole-systems approach. This project aimed to develop a universal curricular framework with the agility to work synergistically with existing curricular processes, in pursuit of the development of person-centred healthcare practitioners and cultures. Methods: The project used an iterative multiphase, mixed methods approach, including an e-survey and interviews. Drawing on authentic co-design principles, to create our framework we engaged with stakeholders in clinical practice and academic institutions as well as healthcare students and those working in health policy and strategic workforce planning. Results: We present a framework for the design, delivery and evaluation of curricula, structured using a modified version of McKinsey’s 7S methodology, resulting in each component having a statement, outcomes, and thematic actions to support the realisation of a person-centred curriculum. Conclusion: Our Person-centred Curriculum Framework can facilitate congruency between healthcare education and practice in the way person-centredness is defined and lived out through healthful cultures. Given the iterative origins of the framework, we anticipate its evolution over time through further exploration following its implementation and evaluation.

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Dahm, Maria R., Andrew Georgiou, Lucy Bryant, and Bronwyn Hemsley. "Information infrastructure and quality person-centred support in supported accommodation: An integrative review." Patient Education and Counseling 102, no. 8 (August 2019): 1413–26. http://dx.doi.org/10.1016/j.pec.2019.03.008.

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Kermode, Louise. "A journey towards integrated person-centred care: a case study of a mental health perspective in the voluntary sector." Journal of Integrated Care 29, no. 3 (April 7, 2021): 334–45. http://dx.doi.org/10.1108/jica-10-2020-0064.

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PurposePerson-centred care is a fundamental component of any service. This case study aims to explore the delivery of person-centred care in the voluntary sector, discussing how integrating support can be achieved to benefit individuals. It identifies challenges, best practice and learning that can be applied across sectors and promotes further enquiry.Design/methodology/approachThis case study is the result of a service audit at a mental health charity. The findings are a blend of reflections, observations and examples from service delivery, synthesised with national policy to provide evidence of best practice and processes that enable person-centred care.FindingsA focus on need not diagnosis, creating accessible and inclusive services, employing dual trained practitioners, having a varied skill mix along with holistic self-assessment tools are all enablers for integrated person-centred support. Multi-agency assessment frameworks, collaboration across services, cross-agency supervision and a shared vision for integration and person-centred care support services to coordinate more effectively. Barriers to integrated person-centred support include complex physical and mental health needs and harmful risk and safeguarding. The diversity of the voluntary sector, a lack of resources along with complex and competitive funding also hinder integration.Originality/valueThis case study provides a valuable insight into the voluntary sector and shares its findings to enhance best practice. It aims to promote interest and invites further research into health and social care delivery by the voluntary sector. As this delivery continues to increase, it is vital to examine the interface between the voluntary and statutory sector. Through better understanding and further research across all sectors, the author can identify how they can achieve person-centred outcomes and deliver the national policies.

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McCance, Tanya, Brendan McCormack, Paul Slater, and Donna McConnell. "Examining the Theoretical Relationship between Constructs in the Person-Centred Practice Framework: A Structural Equation Model." International Journal of Environmental Research and Public Health 18, no. 24 (December 13, 2021): 13138. http://dx.doi.org/10.3390/ijerph182413138.

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Research relating to person-centred practice continues to expand and currently there is a dearth of statistical evidence that tests the validity of an accepted model for person-centred practice. The Person-centred Practice Framework is a midrange theory that is used globally, across a range of diverse settings. The aim of this study was to statistically examine the relationships within the Person-centred Practice Framework. A cross sectional survey design using a standardized tool was used to assess a purposive sample (n = 1283, 31.8%) of multi-disciplinary health professionals across Ireland. Survey construct scores were included in a structural model to examine the theoretical model of person-centred practice. The results were drawn from a multi-disciplinary sample, and represented a broad range of clinical settings. The model explains 60.5% of the total variance. Factor loadings on the second order latent construct, along with fit statistics, confirm the acceptability of the measurement model. Statistically significant factor loadings were also acceptable. A positive, statistically significant relationship was observed between components of the Person-centred Practice Framework confirming it’s theoretical propositions. The study provides statistical evidence to support the Person-centred Practice Framework, with a multidisciplinary sample. The findings help confirm the effectiveness of the Person-Centred Practice Index for-Staff as an instrument that is theoretically aligned to an internationally recognised model for person-centred practice.

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Sanderson, Helen, Edwin Jones, and Kathy Brown. "Active Support and Person‐Centred Planning: Strange Bedfellows or Ideal Partners?" Tizard Learning Disability Review 7, no. 1 (January 2002): 31–38. http://dx.doi.org/10.1108/13595474200200006.

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Hamilton, Lisa. "Every Moment Has Potential: Person-centred Active Support Online Learning Resource." Research and Practice in Intellectual and Developmental Disabilities 2, no. 1 (January 2, 2015): 101–3. http://dx.doi.org/10.1080/23297018.2015.1021737.

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Beech, Roger, Bie Nio Ong, Sue Jones, and Vicky Edwards. "Delivering person-centred holistic care for older people." Quality in Ageing and Older Adults 18, no. 2 (June 12, 2017): 157–67. http://dx.doi.org/10.1108/qaoa-05-2016-0019.

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Purpose This paper is an evaluated case study of the Wellbeing Coordinator (WBC) service in Cheshire, UK. WBCs are non-clinical members of the GP surgery or hospital team who offer advice and support to help people with long-term conditions and unmet social needs remain independent at home. The paper aims to discuss this issue. Design/methodology/approach A mixed method design assessed the outcomes of care for recipients and carers using interviews, diaries and validated wellbeing measures. Service utilization data, interviews and observations of WBC consultations enabled investigation of changes in processes of care. Data were analysed using simple descriptive statistics, established instrument scoring systems and accepted social science conventions. Findings The WBC complements medical approaches to supporting people with complex health and social care problems, with support for carers often a key service component. Users reported improvements in their wellbeing, access to social networks, and maintenance of social identity and valued activities. Health and social care professionals recognized the value of the service. Practical implications The WBC concept relieves the burden on health and social care professionals as the social elements of ill-health are addressed. A shift in thinking from ill-health to wellbeing means older people feel more able to regain control over their own lives, being less dependent on consulting professionals. Originality/value The WBC is a new service focussing on the individual in their health, social and economic context. Process and outcomes evaluations are rare in this field.

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Griffiths, Alys Wyn, Claire A. Surr, Byron Creese, Lucy Garrod, and Lynn Chenoweth. "The development and use of the assessment of dementia awareness and person-centred care training tool in long-term care." Dementia 18, no. 7-8 (April 9, 2018): 3059–70. http://dx.doi.org/10.1177/1471301218768165.

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Policy and practice guidelines recommend person-centred care to support people to live well with dementia in long-term care. Therefore, staff working in long-term care settings need to be trained in dementia awareness and person-centred care. However, the access to, content of and reach of training across long-term care settings can be varied. Data on current and ongoing access to person-centred care training can form an important component of data gathered on usual care in research studies, in particular clinical trials within long-term care. However, no suitable assessment tools are available to measure dementia awareness and person-centred care training availability, content and reach. This paper describes the development of a training audit tool to meet this need for a usual care measure of dementia awareness and person-centred care training. The ‘Assessment of Dementia Awareness and Person-centred care Training’ tool was based on a review of published person-centred care literature and consultation with dementia and aged care experts. The Assessment of Dementia Awareness and Person-centred care Training tool was piloted in 13 long-term care facilities the UK and Australia, before being used to assess the content of dementia and person-centred care awareness training in 50 UK settings in a randomized controlled trial as part of usual care recording. Following pilot testing, modifications to the Assessment of Dementia Awareness and Person-centred care Training tool’s wording were made to enhance item clarity. When implemented in the randomized controlled trial, pre-baseline training assessment data showed that the Assessment of Dementia Awareness and Person-centred care Training tool was able to differentiate between the training in different long-term care settings and identify settings where further dementia awareness training was required. The Assessment of Dementia Awareness and Person-centred care Training tool was then used as a method of recording data on dementia awareness and person-centred care training as part of ongoing usual care data collection. The Assessment of Dementia Awareness and Person-centred care Training tool is suitable for use by researchers to establish the availability, content and reach of dementia and person-centred care awareness training to staff within research studies.

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Midje, Hilde Hovda, Steffen Torp, and Kjell Ivar Øvergård. "The role of working environment and employee engagement in person-centred processes for older adults in long-term care services." International Practice Development Journal 12, no. 2 (November 23, 2022): 1–19. http://dx.doi.org/10.19043/ipdj.122.007.

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Background: Assuring high-quality, person-centred practice in long-term care organisations requires attention to the wellbeing of the staff who deliver it – a factor sometimes overlooked amid the increasing challenges such organisations confront internationally. Research has shown that job demands and job resources are distinct aspects of the working environment that interact in predicting staff wellbeing and motivation. Work engagement can serve as a means to improve job motivation and performance, and also potentially facilitates activities that operationalise person-centred practice. Aims: To explore the influence of job demands and job resources on work engagement and person-centred processes, and examine whether engagement moderates or mediates the effects of demands and resources on person-centred processes. Method: A cross-sectional survey design with standardised self-report questionnaires was used to collect data on job resources, job demands, work engagement and person-centred processes from 128 registered nurses and nursing assistants in municipal care homes and nursing homes for older adults in Norway. Findings: Both work engagement and person-centred processes were positively associated with job resources. There was no significant negative association between person-centred processes and job demands. Work engagement was neither a significant moderator nor a mediator between job resources and person-centred processes. Conclusions: Enhancing job resources for nursing staff can positively impact their work engagement and support person-centred processes. In contrast to predictions by the dominant Job Demands-Resources (JD-R) model, work engagement did not moderate nor mediate the influence of job resources on person-centred processes. Implications for practice: Providing job resources such as meaningful tasks, colleague fellowship, development and autonomy is important to enhance nursing staff’s work engagement Improving organisational and psychosocial working conditions could build an organisational culture that is favourable for person-centred processes Building a supportive working environment within long-term care organisations is strategically important to resource-efficient delivery of person-centred care

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Broom, Brian. "Training clinicians in whole person-centred healthcare." European Journal for Person Centered Healthcare 4, no. 2 (July 26, 2016): 402. http://dx.doi.org/10.5750/ejpch.v4i2.1100.

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Since 1987 in New Zealand a form of person-centred healthcare has emerged, which was originally loosely referred to as ‘medicine and story’ and then developed into a University program titled MindBody Healthcare, but more recently has been described in clinical settings and publications as the Whole Person Approach. This paper emphasises the co-emergence of physicality and subjectivity from conception and the harm that comes from keeping mind and body apart in the treatment of physical illness of all kinds. Symbolic physical diseases provide particularly vivid and glaring examples of the need to attend to patient subjectivity as a part of treatment. Clinicians must learn to deal with whole persons and the patient’s story is a practical doorway into the complexity of this whole. Training clinicians over two decades to become whole person-focussed and competent has revealed that clinicians need sustained education to move from the typical Western healthcare dualistic view of patients with physical disease to a unitive, non-dualistic, whole person understanding. It takes time, practice, support and supervision for this to be expressed comfortably in clinical settings. The shift from expert clinician-to-disease focus to a more human-to-human dynamic, underwriting everything that is done, can be very challenging for some clinicians. Specific attitudes are required and some skills in eliciting relevant story can be learned quite easily. There are many sources of resistances to these changes in the health institutions and clinicians are more of a problem than patients. Each clinical discipline within the health sector tends to have unique problems. But the rewards for whole person practice are great for both clinicians and patients.

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O’Donnell, Deirdre, Caroline A. W. Dickson, Amanda Phelan, Donna Brown, Gobnait Byrne, Shaun Cardiff, Neal F. Cook, Stephanie Dunleavy, Sergej Kmetec, and Brendan McCormack. "A mixed methods approach to the development of a Person-centred Curriculum Framework: surfacing person-centred principles and practices." International Practice Development Journal 12, Suppl (July 6, 2022): 1–14. http://dx.doi.org/10.19043/ipdj.12suppl.003.

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Background: Internationally, the development of person-centred healthcare services is of strategic importance. Healthcare education has the potential to contribute to this agenda by preparing the future workforce as person-centred practitioners. However, there is a lack of clarity about how to design, deliver and evaluate curricula to support person-centred learning and practice cultures. Aim: This article sets out to report on the methodological approach used to distil the key components of a Person-centred Curriculum Framework, and to critically evaluate the implications of this approach for curriculum development. Methods: The McKinsey 7S methodology underpinned this project. A multiphase, mixed methods design was used to synthesise evidence on the components of a person-centred curriculum framework. The eight design stages included an e-survey, telephone interviews, and multiple national and international stakeholder engagement events. Responses were translated into English and synthesised using an adapted directed content analysis approach. Through the stakeholder engagement events, evidence was then integrated until consensus was reached on the key curricular components. Results: A total of 24 academics from 10 countries across five disciplines took part in an e-survey, with responses in two languages. In addition, 31 telephone interviews were conducted with learners, educators and policymakers across six countries, in four languages. The survey and interview evidence was synthesised and presented in tabular form for each of the 7S categories, including a curriculum statement mapped to evidence exemplars, together with a set of thematic actions to assist programme teams in operationalising the Person-centred Curriculum Framework. Conclusions: The project, using a multiphase, mixed methods design, underpinned by the 7S methodology, combined with a multiplicity of stakeholder perspectives, provided a rigorous approach to developing a Person-centred Curriculum Framework that is philosophically and methodologically aligned with person-centred principles.

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Stonehouse, David. "The importance of person-centred care and how to achieve it." British Journal of Healthcare Assistants 15, no. 7 (August 2, 2021): 334–39. http://dx.doi.org/10.12968/bjha.2021.15.7.334.

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This article discusses the important concept of person-centred care and how this can be achieved. Following an introduction defining what is meant by this term and contrasting it with the term patient-centred care, the relevant and pertinent parts of the Nursing and Midwifery Council code will then be identified and discussed. The four principles of person-centred care will then be presented. The role of the support worker and nursing associate will be made clear in how the wishes and needs of patients can be gained. Self-awareness, emotional intelligence and communication will be discussed in relation to this. Finally, two potential barriers to the successful achievement of person-centred care will be identified.

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Andersson, Maria. "Philosophical knowledge is warranted for the successful implementation of person-centred care." Nordic Journal of Nursing Research 41, no. 3 (February 15, 2021): 117–20. http://dx.doi.org/10.1177/2057158521991476.

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One potentially restrictive environment of person-centred care might be the intensive care unit (ICU) where RNs working in ICUs on a daily basis are caring for critically ill patients in a highly technological and stressful milieu. Nursing care for critically ill patients at the ICU is described as task-oriented and mainly based on the patient's medical needs. The purpose of this contemporary issue paper is to suggest that a photograph of the patient could be used as a tool to support RNs working in ICU in applying person-centred care and their understanding of the philosophical underpinnings for person-centred care. I additionally propose that philosophical understanding and knowledge among RNs working in ICU are an essential part of clinical practice if person-centred care implementations are to be sustainable.

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Beadle-Brown, Julie, Aislinn Hutchinson, and Beckie Whelton. "Person-Centred Active Support - Increasing Choice, Promoting Independence and Reducing Challenging Behaviour." Journal of Applied Research in Intellectual Disabilities 25, no. 4 (January 11, 2012): 291–307. http://dx.doi.org/10.1111/j.1468-3148.2011.00666.x.

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Emerson, Eric, Janet Robertson, and Beckie Whelton. "Commissioning Person‐Centred, Cost‐Effective, Local Support for People with Learning Disabilities." Tizard Learning Disability Review 14, no. 2 (May 13, 2009): 49–51. http://dx.doi.org/10.1108/13595474200900020.

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Ellis, Roger, Elaine Hogard, and Juli Carson. "Person-centered support for adults with learning difficulties: an evaluation." European Journal for Person Centered Healthcare 4, no. 2 (July 26, 2016): 384. http://dx.doi.org/10.5750/ejpch.v4i2.1058.

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This paper describes an evaluation of a Personalisation Programme provided by the UK Charity Choice Support for adults with learning difficulties.Personalisation, synonymous with patient-centred care, means thinking about care and support services in an entirely different way. This involves starting with the person as an individual with strengths, preferences and aspirations and putting them at the centre of the process of identifying their needs and making choices about how and when they are supported to live their lives. It requires a significant transformation of adult social care so that all systems, processes, staff and services are geared up to put people first.The Choice Support Personalisation Programme had three main features: Person Centred Planning; Individual Service Funds and Better Nights, a new form of night support which encourages greater independence. Person Centred Planning means exploring in detail what each individual wants and needs and planning support accordingly. An Individual Service Fund represents a notional allocation of money to each individual for support based on individual need and preference as opposed to a block grant and a standard support for all. Better Nights was a shift from ‘Waking Nights’ with support staff available and monitoring individuals throughout the night to ‘Sleep In’ where the care staff followed normal waking and sleeping patterns together with the individuals thus encouraging a more normal life style with greater independence. The Social and Health Evaluation Unit (SHEU) of the Buckinghamshire New University, UK, has completed two programme evaluations; one of Better Nights and one of personalisation more broadly. In each case the Unit’s Trident method was used focusing evaluation questions on outcomes; process and stakeholder perspectives. Data from the evaluation were assessed together with the substantial savings achieved. Specially devised audit tools were used to assess quality of life and risk management. Overall the results of these audits showed a maintenance or improvement in quality of life for the service users and effective management of risks. The process of implementation was described in sufficient detail to allow replication, learning and continuous improvement. Stakeholder perspectives were surveyed from care staff, parents and relatives and social services staff. Overall the programme had achieved its stated outcomes in person-centred care with substantial savings. For the minority of service users whose quality of life did not appear to improve, further detailed analysis and planning is being undertaken.

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Bates, Peter, Sam Smith, and Robert Nisbet. "Should social care staff be Facebook friends with the people they support?" Journal of Adult Protection 17, no. 2 (April 13, 2015): 88–98. http://dx.doi.org/10.1108/jap-06-2014-0018.

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Purpose – Local policies often prohibit care staff from online contact with the people they support. The purpose of this paper is to review the reasons put forward for this ban and seek explanations. Design/methodology/approach – The paper examines relevant literature on the use of social networking by disabled and nondisabled people. This paper offers a critique of common policies and justifications and poses a challenge to those who impose such regulations. Findings – The paper finds no support for current policies. Research limitations/implications – The authors found only a limited amount of research in this area, and research findings were not commonly utilised by policy makers. Practical implications – Policy makers and regulators need to take a more rigorous and person-centred approach to rule making in respect of social media. Social implications – A widespread ban on the use of social media in communications between staff and the people they support is exposed as paternalistic and exacerbating infantilisation and exclusion rather than seeing disabled people as digital citizens. Regulators and those with responsibilities for safeguarding need to adopt a more empowering and person-centred approach. Originality/value – This paper will only make a difference if regulators and those with responsibilities for safeguarding adopt a more empowering and person-centred approach rather than the fear-based blanket prohibitions that have applied to date.

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Robertson, E. M. "47 Five Things About Me." Age and Ageing 49, Supplement_1 (February 2020): i14—i17. http://dx.doi.org/10.1093/ageing/afz186.01.

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Abstract Background It has long been recognised that when care is centred around the person dignity and personhood are preserved and outcomes are improved. However, the dehumanising effect hospital systems and practices can have on older people persists and there are still frequent reports of harm caused by failures to prioritise what matters to the person. Local problem The “what matters to you?” campaign (Dewar & Nolan, 2013) has been championed locally to good effect but a key component of the model; “who you are,” is missing, there is limited evidence of the older person’s voice or identity in their hospital notes or care plans and many report not feeling involved in decisions about their care. Methods Engagement with older people, their loved ones and ward staff alongside a review of the published literature enabled effective analysis of the problem and the design of a suitable intervention. The COM-B model was used to identify and support the behavioural changes needed to ensure the intervention was implemented effectively and PDSA cycles of Improvement ensured it was rigorously tested. The Person-Centred Practice Inventory (PCPI) was used to structure the measurement of improvements in person centred care on the ward. Results Engagement with older people, their loved ones and ward staff alongside a review of the published literature enabled effective analysis of the problem and the design of a suitable intervention. The COM-B model was used to identify and support the behavioural changes needed to ensure the intervention was implemented effectively and PDSA cycles of Improvement ensured it was rigorously tested. The Person-Centred Practice Inventory (PCPI) was used to structure the measurement of improvements in person centred care on the ward. Conclusions This was a rewarding project which achieved its aim of improving person-centred care and the experiences of older people, staff got to know the people they were caring for better which was an enriching experience. The key factor which contributed to its success was the enthusiasm and hard work of the ward staff who participated and their passion to ensure the care they give is person-centred.

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Ewing, Gail, and Gunn Grande. "5 What needs to change to better support carers at end of life? a multi-perspective mixed methods study to identify recommendations for change in organisational structures and processes." BMJ Supportive & Palliative Care 8, no. 3 (September 2018): 361.2–362. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.5.

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IntroductionCarers play a vital role in supporting patients at end-of-life (EOL). EOL care policy promotes comprehensive person-centred assessment/support for carers but without a clear implementation strategy this will only remain an aspiration.AimTo develop recommendations for organisational structures/processes required for implementation of comprehensive person-centred comprehensive assessment/support for carers in EOL practice.MethodsSecondary analysis of qualitative data on implementation in 36 services to identify factors facilitating/hindering implementationExpert consultation (focus groups with 19 lead practitioners/hospice managers) to review Stage–1 findings and develop draft recommendationsWider stakeholder consultation–two professional workshops (23 participants: hospice hospital community policy and academics) online survey (62 participants) and two carer workshops (nine participants) to finalise recommendations.ResultsComprehensive person-centred carer assessment/support requires whole-systems change; a cultural shift at practitioner and organisational level. 10 recommendations identify key structures and processes not normally met by current provision:Consistent identification of carers within the care settingDemographic and contextual data on who the carer is and their situationA method/protocol for assessing carers and responding to assessmentA recording system for carer information (separate from patient data)A process for training staff about carer assessment/supportAvailable time/workload capacity for carer assessment/supportSupport from senior managersRole models/championsPathways for communication about carer assessment/supportProcedures for monitoring/auditing processes and outcomes of carer assessment/support.ConclusionsComprehensive person-centred carer support requires radical change at different organisational levels. Carers’ fit within service provision also urgently needs clarification. Our 10 recommendations outline necessary building blocks to achieve this change.FunderHospice UK and CLAHRC Greater Manchester

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Kottner, Jan, Oliver Ludwig, Thomas Bode, Fiona Cowdell, Steven Ersser, Ulrike Blume-Peytavi, and Nils Lahmann. "Person-Centred Dermatology Self-care Index: a translation and validation study." Journal of Wound Care 28, no. 9 (September 2, 2019): 566–75. http://dx.doi.org/10.12968/jowc.2019.28.9.566.

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Objective: Self-management is important to successfully managing chronic skin diseases. The Person-Centred Dermatology Self-care Index (PeDeSI) is a self-efficacy theory-based questionnaire tool to measure education and support needs of adults with long-term skin conditions. The aim of this research was to translate the PeDeSI into German (PeDeSI-G) and to explore the validity of this tool. Methods: The instrument was translated by five translators working independently. User understanding and relevance were evaluated by nurses, patients and physicians. The translated version was modified and applied in a subsequent validation study. Demographic and other variables, PeDeSI-G and Dermatology Life Quality Index (DLQI) scores of dermatological patients were obtained. Results: PeDeSi-G and DLQI scores were obtained from 100 patients. A conceptually and semantically equivalent German translation of the PeDeSI was developed. There was a statistically significant difference between in- and outpatients (p<0.001). PeDeSI-G scores were most strongly correlated with disease duration and DLQI scores. Conclusions: Validation results indicate that the PeDeSI-G is able to discriminate between patients with different educational and support needs for this patient group. Newly diagnosed patients and patients admitted to the hospital for the first time might benefit most from the PeDeSI-G assessment. The PeDeSI-G is a valid tool for assessing and evaluating the support needs of German-speaking patients with chronic skin disease.

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Roos, Charlotte, Anna Swall, Lena Hammar, Anne-Marie Boström, and Bernice Skytt. "Older People’s Perceptions of what is Needed to Experience Dignity and Well-being at Residential Care Facilities." Innovation in Aging 5, Supplement_1 (December 1, 2021): 976. http://dx.doi.org/10.1093/geroni/igab046.3512.

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Abstract Dignity and well-being are central values in care of older people living in residential care facilities. In addition, care of older people living in residential care facilities should be person-centred. Dignity and well-being can according to the person-centred practice framework be interpreted as person-centred outcomes. Despite this older people living in residential care facilities have described that they not fully experience dignity and well-being and improvements are needed. To improve care it is important to know what to target. The aim of this qualitative study was therefore to describe residents’ perceptions and experiences of what is needed to live with dignity and a sense of well-being. Interviews were carried out with older people living at residential care facilities (n=20). Inductive content analysis was used to analyse data and one overarching theme and three categories emerged. The result revealed the importance of, and that staff and the care environment supported, to manage daily life by oneself, to be shown respect and to belong to a social context. For older people to experience the person-centred outcomes dignity and well-being managers at residential care facilities need to develop and support the staff prerequisites related to knowledge, skills and attitudes and to improve the care environment. According to the person-centred practice framework, the staff prerequisites and the care environment must be taken into account to achieve the person-centred outcomes dignity and well-being.

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O’Rourke, Deanne J., Michelle M. Lobchuk, Genevieve N. Thompson, and Christina Lengyel. "Connecting Through Conversation: A Novel Video-Feedback Intervention to Enhance Long-Term Care Aides’ Person-Centred Dementia Communication." Gerontology and Geriatric Medicine 8 (March 2022): 233372142211012. http://dx.doi.org/10.1177/23337214221101266.

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Objective To pilot test a novel communication intervention incorporating a video-feedback component on the person-centred dementia communication skills of long-term care aides. Methods Effectiveness was assessed using a single group pre-test/post-test design. 11 care aide-resident dyads participated in the study. Objective outcomes included provider statements demonstrating linguistic (i.e., reciprocity, clarity/coherence, and continuity categories) and relational elements of person-centred dementia communication, measured via video-recorded observations of usual care interactions. Subjective outcomes of care aide communication confidence/competence, satisfaction with the resident relationship, relationship closeness, and self-reflection at work were measured using self-report questionnaires. Results In respect to observed person-centred dementia communication skills, there was an increase in the use of linguistic statements in the reciprocity and continuity categories, as well as total linguistic statements overall. Relational statements and overall person-centred dementia communication (i.e., linguistic plus relational strategies) increased. Care aide-reported communication confidence and competence, relationship closeness with the resident, and self-reflection at work also increased after the communication intervention. Discussion The communication intervention showed promise as an effective approach to enhance person-centred dementia communication behaviours in care aides. These results support undertaking a larger trial to examine the intervention’s effectiveness more fulsomely.

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Griffiths, Jane. "Person-centred communication for emotional support in district nursing: SAGE and THYME model." British Journal of Community Nursing 22, no. 12 (December 2, 2017): 593–97. http://dx.doi.org/10.12968/bjcn.2017.22.12.593.

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Lloyd, Helen, Ben Fosh, Ben Whalley, Richard Byng, and James Close. "Validation of the person-centred coordinated care experience questionnaire (P3CEQ)." International Journal for Quality in Health Care 31, no. 7 (December 1, 2018): 506–12. http://dx.doi.org/10.1093/intqhc/mzy212.

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Abstract Background Measuring patient experiences of healthcare is increasingly emphasized as a mechanism to measure, benchmark and drive quality improvement, clinical effectiveness and patient safety at both national and local NHS level. Person-centred coordinated care (P3C) is the conjunction of two constructs; person-centred care and care coordination. It is a complex intervention requiring support for changes to organizational structure and the behaviour of professionals and patients. P3C can be defined as: ‘care and support that is guided by and organized effectively around the needs and preferences of individuals’. Despite the vast array of PRMS available, remarkably few tools have been designed that efficiently probe the core domains of P3C. This paper presents the psychometric properties of a newly developed PREM to evaluate P3C from a patient perspective. Methods A customized EMIS search was conducted at 72 GP practices across the South West (Somerset, Devon and Cornwall) to identify 100 patients with 1 or more LTCs, and are frequent users of primary healthcare services. Partial Credit Rasch Modelling was conducted to identify dimensionality and internal consistency. Ecological validity and sensitivity to change were assessed as part of intervention designed to improve P3C in adults with multiple long-term conditions; comparisons were drawn between the P3CEQ and qualitative data. Results Response rate for the P3CEQ was 32.82%. A two-factor model was identified. Rasch analysis confirmed unidimensionality of each factor (using infit MSQ values between 0.5 and 1.5). High internal consistency was established for both factors; For the Person-centred scale Cronbach’s Alpha = 0.829, Person separation = 0.756 and for the coordination scale Cronbach’s alpha = 0.783, person separation = 0.672. Conclusions The P3CEQ is a valid and reliable measure of P3C. The P3C is considered to have strong face, construct and ecological validity, with demonstrable sensitivity to change in a primary healthcare intervention.

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Bender, Danielle, Kai Yan Grace Lui, and Paul Holyoke. "Five opportunities for healthcare leaders to better support person- and family-centred care in long-term care settings." Healthcare Management Forum 30, no. 1 (December 29, 2016): 20–25. http://dx.doi.org/10.1177/0840470416660090.

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The benefits of Person- and Family-Centred Care (PFCC) are well documented, and many healthcare organizations have expressed their commitment to take this approach. Yet, it can be a difficult endeavour, with common barriers identified at the point-of-care, organizational and system levels. We implemented a PFCC education program with healthcare leaders, providers, and support staff working in home, community, and long-term care organizations across Canada. Focus groups were then conducted with almost 200 workshop participants and 20 long-term care home residents and family members. Five key opportunities for healthcare leaders to better support the provision of PFCC were revealed. In this article, specific recommendations from focus group participants for addressing each of these five opportunities are provided. These findings can assist healthcare leaders to proactively ensure the supports and processes are in place to enable staff to provide care in a more person- and family-centred way.

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Nilsson, Stefan, Ulrika Wallbing, Gösta Alfvén, Kristina Dalenius, Andreas Fors, Marie Golsäter, Per-Åke Rosvall, Helena Wigert, and Mari Lundberg. "Development of the Help Overcoming Pain Early (HOPE) Programme Built on a Person-Centred Approach to Support School Nurses in the Care of Adolescents with Chronic Pain—A Feasibility Study." Children 6, no. 9 (August 25, 2019): 95. http://dx.doi.org/10.3390/children6090095.

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Chronic pain and its consequences are major global health challenges, and the prevalence is increasing worldwide among adolescents. Adolescents spend most of their waking hours in school; however, there is limited research available on how school nurses can address chronic pain among adolescents in the Swedish school context. Therefore, we designed a person-centred intervention, known as Help Overcoming Pain Early (HOPE), to enable school nurses to offer adolescents strategies to manage their stress and pain. We used the Medical Research Council (MRC) framework for developing and designing this new complex intervention. For this study, we describe two of the four phases: (a) development and (b) feasibility and piloting. The final version of the HOPE programme consists of (i) an educational package for school nurses in the areas person-centred care, stress and pain education/management and gender perspective; and (ii) an intervention package for adolescents with chronic pain. The programme consists of four sessions during which adolescents with chronic pain have person-centred dialogues with a school nurse. The HOPE programme is based on the existing evidence of managing chronic pain and on the assumption that school nurses can support adolescents with chronic pain by using person-centred care.

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Jansson, Inger, Andreas Fors, Inger Ekman, and Kerstin Ulin. "Documentation of person-centred health plans for patients with acute coronary syndrome." European Journal of Cardiovascular Nursing 17, no. 2 (June 28, 2017): 114–22. http://dx.doi.org/10.1177/1474515117718415.

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Background: Personalised care planning is argued for but there is a need to know more about what the plans actually contain. Aim: To describe the content of person-centred health, plans documented at three healthcare levels for patients with acute coronary syndrome. Design: Patients with acute coronary syndrome aged under 75 years and admitted to two coronary care units at a university hospital were enrolled in the study. This retrospective descriptive study documented 89 person-centred health plans at three healthcare levels: hospital, outpatient and primary care. In total, 267 health plans were reviewed and a quantitative content analysis conducted. The health plans included commonly formulated goals, patients’ own resources and support needed. Results: The health plan goals were divided into three categories: lifestyle changes, illness management and relational activities. The most frequently reported goal for better health was increased physical activity, followed by social life/leisure activities and return to paid professional work. In order to reach the goals, patients identified three ways: own resources, family and social support and healthcare system, in total three categories. The most frequently reported own capability was self-motivation. Spouses and children were important sources of family and social support. The most frequently reported healthcare support was cardiac rehabilitation. Conclusion: In traditional care and treatment plans devised by health professionals, patient goals often comprise behavioural changes. When patients identify their own goals and resources with the help of professionals, they include maintaining social relations and being able to return to important activities such as work.

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Brown, Freddy Jackson, and Sarah Parker. "Kindness, compassion and love: In defence of positive behavioural support." Clinical Psychology Forum 1, no. 324 (December 2019): 37–41. http://dx.doi.org/10.53841/bpscpf.2019.1.324.37.

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This paper responds to the claim that behavioural science is underpinned by an unreflective positivisim that inevitably leads to poor and/or abusive practice. In fact, the philosophy of modern behavioural science is contextualistic and today its ideas are at the forefront of a range of compassionate, person centred therapies.

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Jaensch, Daniel, Nicky Baker, and Susan Gordon. "Contemporaneous patient and health professional views of patient-centred care: a systematic review." International Journal for Quality in Health Care 31, no. 10 (December 2019): G165—G173. http://dx.doi.org/10.1093/intqhc/mzz118.

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Abstract Objective To understand the domains of agreement and disagreement, related to person-centred care, between the patient and healthcare professional during a shared episode of care. Design A systematic review following the PRISMA protocol searched PubMed (Medline), CINAHL, PsychInfo and Scopus using keywords for health professionals, patients and patient-centred care. A descriptive-interpretive method was used to identify domains described in the person-centred care framework. Setting Research conducted in all healthcare settings (inpatient, outpatient, community) were included. Participants Research which presented the contemporaneous perspectives of a health professional and the person they were providing services to were included. Intervention(s) Research regarding the delivery of any type of health service was included. Main Outcome Measure(s) The person-centred care framework which includes Structure, Process and Outcome as measures for implementing person-centred care was used to interpret and summarize the data. Results After title and abstract screening against inclusion and exclusion criteria, 15 of 1,406 studies were critically appraised. High levels of contemporaneous agreement were identified for easily accessible, supportive and accommodating environments, where information sharing occurred. Contemporaneous agreement occurred most often between patients and healthcare professionals in the importance of sharing information across all geographical settings, with greatest disagreement of patient involvement in the European and American hospital environments. Conclusions Greater understanding of the context of information sharing and drivers for management preferences may support shared decision-making and increase satisfaction. More information regarding contemporaneous experiences of healthcare episodes is required to further inform patient-centred care practices and optimize health outcomes.

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Asquith, Ian. "An Interpretive Phenomenological Analysis investigation into service user and service provider views on dementia services." FPOP Bulletin: Psychology of Older People 1, no. 124 (October 2013): 51–57. http://dx.doi.org/10.53841/bpsfpop.2013.1.124.51.

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Since the person-centred care revolution, social psychological factors that contribute to the cognitive decline have been recognised. Increasingly, having an understanding of the person with dementia’s experience is now seen as an important element of care. One approach that has been neglected in the research is whether the person-centred care revolution has resulted in a change in attitudes from the service providers. This research investigated the attitudes of service users and service providers towards dementia services using an interpretive phenomenological analysis. The analysis suggests that service user themes included personal understanding of the illness, staff members, nature of support and limitations to services. Service provider themes focused on appropriate staff members, approach to dementia, personalisation, support and constraints to provision. The discussion outlines the similarities in the themes, practical implications, limitations and the direction of future research.

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Abbott, Rebecca A., Debbie Cheeseman, Anthony Hemsley, and Jo Thompson Coon. "Can person-centred care for people living with dementia be delivered in the acute care setting?" Age and Ageing 50, no. 4 (April 22, 2021): 1077–80. http://dx.doi.org/10.1093/ageing/afab065.

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Abstract The need to improve care for people living with dementia in the hospital setting has long been recognised. Person-centred care has the potential to improve the experience of care for persons living with dementia and their carers, and has been shown to improve the experiences of hospital staff caring for the persons living with dementia, however it remains challenging to deliver in a time- and task-focussed acute care setting. This commentary suggests that to embed person-centred care across the hospital environment, cultural changes are needed at organisational and ward levels. In particular there needs to be: leadership that supports and advocates for workforce capacity to recognise and meet both psychological and physical needs of people living with dementia, promotion of physical environments that support familiarisation and social interactions, an inclusive approach to carers and the development of a culture of sharing knowledge and information across hierarchies and roles. An evidence-based set of pointers for service change are described which highlight institutional and environmental practices and processes that need to be addressed in order for person-centred care to become part of routine care.

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Jones, Edwin, and Kathy Lowe. "Active support is person-centred by definition: A response to Harman and Sanderson (2008)." Journal of Intellectual & Developmental Disability 33, no. 3 (September 2008): 274–77. http://dx.doi.org/10.1080/13668250802273265.

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DaCosta, Daniel, Linda J. Dodds, and Sarah A. Corlett. "Development of a tool to support person-centred medicine-focused consultations with stroke survivors." Patient Education and Counseling 102, no. 7 (July 2019): 1263–72. http://dx.doi.org/10.1016/j.pec.2019.02.007.

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Coleman, Deborah June, and Nawal Ali S. Asiri. "A person-centred communication approach to working with older people who have dementia." British Journal of Healthcare Assistants 14, no. 11 (December 2, 2020): 575–79. http://dx.doi.org/10.12968/bjha.2020.14.11.575.

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Dementia is prevalent among the older population, especially people over 65 years, and is characterised by deterioration in a person's cognitive abilities ( NHS, 2017 ). The main signs and symptoms of dementia include loss of memory, impaired thinking and problem-solving skills, and difficulties with communication. Effective communication in the healthcare setting will ensure patient care is safe and enable support workers to understand the needs of the older person with dementia. Communication is a vital aspect of healthcare, making it essential for support workers to be aware of challenges that may hinder communication and to identify strategies to enable the person to communicate their needs for as long as possible.

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Journal articles on the topic 'Person-centred support'

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