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Journal articles on the topic 'People with mental disabilities Care Victoria'

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Published: 10 December 2022

Last updated: 29 January 2023

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1

Lennox, Nicholas, and Robert Chaplin. "The Psychiatric Care of People with Intellectual Disabilities: The Perceptions of Consultant Psychiatrists in Victoria." Australian & New Zealand Journal of Psychiatry 30, no. 6 (December 1996): 774–80. http://dx.doi.org/10.3109/00048679609065044.

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Objective: This study was undertaken to establish the perceptions of psychiatrists regarding the care of people with intellectual disabilities. Method: A 28-item self-administered questionnaire was developed, piloted and sent on two occasions to 467 psychiatrists who receive the newsletter of the Victorian branch of the Royal Australian and New Zealand College of Psychiatrists. The questionnaire incorporated a Likert scale to document the opinions of the respondents. Results: A response rate of 51.1 % was achieved. The respondents indicated that, in their opinion, people with intellectual disabilities receive a poor standard of care in the inpatient and community setting. To improve this situation, the following strategies were recommended: the development of improved liaison between services; improved training for all personnel who provide services to people with intellectual disabilities; the development of greater resources; and support for professionals working in the area. The study also indicates that there is a core group of very interested psychiatrists who are currently practising and that people with intellectual disabilities are accessing private psychiatric services. In addition, the results suggest that diagnostic overshadowing is not a major barrier to psychiatric assessment, and that disorders which were presumed to be commonly overlooked by doctors (such as depression) are in fact frequently being diagnosed. Conclusions: Despite some positive findings, the majority of psychiatrists who responded held major concerns about the situation of people with intellectual disabilities. To improve the care provided to these people, it is recommended that these concerns are addressed by the psychiatric profession and responsible government departments in conjunction with university departments of psychiatry.

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2

Lennox, Nicholas, and Robert Chaplin. "The Psychiatric Care of People with Intellectual Disabilities: The Perceptions of Trainee Psychiatrists and Psychiatric Medical Officers." Australian & New Zealand Journal of Psychiatry 29, no. 4 (December 1995): 632–37. http://dx.doi.org/10.3109/00048679509064978.

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Objective: The main aim of this study was to document the perceptions of trainee psychiatrists and psychiatric medical officers regarding the psychiatric care of people with intellectual disabilities. Method: A 28-item self-administered questionnaire was developed by the investigators and pretested on eight psychiatrists and psychiatric trainees. A revised version of the questionnaire was then sent to 128 psychiatric trainees and 27 medical officers working in the public psychiatric services in Victoria. 116 questionnaires were returned, and the responses analysed. Results: The results indicate a high degree of interest in the psychiatry of intellectual disability, however this was tempered by a feeling that the respondents and their senior colleagues are inadequately trained. The respondents expressed major concerns regarding the care of people with dual disabilities in the hospital and community setting, and significant support for the development of specialised units and subspecialisation within psychiatry. The major concerns which were identified would in part explain why 30% of the respondents felt that they would prefer not to treat people with an intellectual disability and a psychiatric disorder. Conclusion: We can only support the assertion made by the Burdekin Report [12] that “there is an urgent need for academic research, increased clinical expertise and substantial increased resources in the much neglected area of dual disability.”

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3

Stein, M. A. "Mental Disability in Victorian England: The Earlswood Asylum 1847–1901. By David Wright. [Oxford: Oxford University Press. 2001. xii, 244 and (Index) 10 pp. Hardback £40. ISBN 0–19–924639–4.]." Cambridge Law Journal 61, no. 2 (June 24, 2002): 463–92. http://dx.doi.org/10.1017/s0008197302401699.

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Under the auspices of the 1808 Asylums Act, twelve county asylums for the institutionalised care of “dangerous idiots and lunatics” were created from 1808 through 1834. The advent of the New Poor Law in that latter year, with its emphasis on economising costs through “relieving” the poor in Union workhouses, resulted in a drastic increase in the number of mentally disabled people under the care of the Poor Law Overseers. Subsequently (and partially in consequence) the Lunatics Act of 1845 directed that all “lunatics, idiots, or persons of unsound mind” be institutionalised in county asylums. The Earlswood Asylum (formerly the National Asylum for Idiots) was the premier establishment for the care of people with mental disabilities throughout the Victorian era, and the institution upon which a national network would be modelled. This book chronicles and examines the history of the Earlswood Asylum from 1847–1901.

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4

Conrad, Jordan A. "On intellectual and developmental disabilities in the United States: A historical perspective." Journal of Intellectual Disabilities 24, no. 1 (April 5, 2018): 85–101. http://dx.doi.org/10.1177/1744629518767001.

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The history of intellectual and developmental disabilities (IDD) in the United States is, in many ways, a triumphant story reflecting an increasingly progressive attitude acknowledging the equality of all persons. The law now recognizes people with IDD as citizens, possessing an equal right to education, health care, and employment—each of which represents milestone victories. However, this progression was not a linear development but rather a product of periods of growth and decline, backsliding, and hard-won battles across political, cultural, and legal domains. This article explores the vacillating historical trajectory for people with IDD in the United States from the colonial period to the present. Particular attention is paid to the conceptual understanding of disability itself across time periods as that which informs particular developments in treatment, law, and social status. The capabilities approach, as outlined by Martha Nussbaum, is then brought to bear as a heuristic framework, consonant with current developments in disability studies, and which may guide future social and legislative action.

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5

Blair, Jim. "Mental Health Care For People with Learning Disabilities." Learning Disability Practice 7, no. 8 (October 1, 2004): 25–26. http://dx.doi.org/10.7748/ldp.7.8.25.s23.

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6

Dewing, Jan. "Mental Health Care For People with Learning Disabilities." Mental Health Practice 8, no. 5 (February 1, 2005): 33. http://dx.doi.org/10.7748/mhp.8.5.33.s23.

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7

Rodgers, Jacqueline, and Oliver Russell. "Health care for people with intellectual disabilities." Current Opinion in Psychiatry 5, no. 5 (October 1992): 660–63. http://dx.doi.org/10.1097/00001504-199210000-00008.

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8

Tracy, Jane M. "People with an intellectual disability in the discourse of chronic and complex conditions: an invisible group?" Australian Health Review 33, no. 3 (2009): 478. http://dx.doi.org/10.1071/ah090478.

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TO THE EDITOR: Goddard et al, authors of ?People with an intellectual disability in the discourse of chronic and complex conditions: an invisible group??1 are to be congratulated for raising discussion about one of the most vulnerable groups in Australia with respect to their receipt of optimal health care. The authors conclude that ?developing interventions and strategies to increase the knowledge of health care workers . . . caring for people with intellectual disabilities will likely improve the health care needs of this population and their families?. In relation to this identified need for health professional education and training in the care of people with intellectual disabilities, we would like to draw the attention of your readers to some work undertaken by the Centre for Developmental Disability Health Victoria (CDDHV) to address this issue. The CDDHV works to improve the health and health care of people with developmental disabilities through a range of educational, research and clinical activities. In recent years there has been an increasing awareness of the need for health professional education in this area. Moreover, as people with disabilities often have chronic and complex health and social issues, focusing on their health care provides a platform for interprofessional education and a springboard for understanding the essential importance and value of interprofessional practice. Recently, the CDDHV has taken a lead role in developing a teaching and learning resource that focuses both on the health care of people with disabilities and on the importance and value of interprofessional practice. This resource promotes and facilitates interprofessional learning, and develops understanding of the health and health care issues experienced by people with disabilities and those who support them. ?Health and disability: partnerships in action? is a new video-based teaching and learning package, produced through an interprofessional collaboration between health professionals from medicine, nursing, occupational therapy, physiotherapy, paramedic practice, health science, social work, speech pathology, dietetics and dentistry. Those living with a disability are the experts on their own experience and so their direct involvement in and contribution to the education of health care professionals is essential. The collaboration between those featured in the video stories and health professionals has led to the development of a powerful resource that facilitates students and practitioners developing insights into the health and health care issues encountered by people with developmental disabilities. We also believe that through improving their understanding of, and health provision to, people with disabilities and those who support them, health professionals will acquire valuable attitudes, knowledge and skills applicable to many other patients in their practice population. Jane M Tracy Education Director Centre for Developmental Disability Health Victoria Melbourne, VIC

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9

Sena, Adrielly Kayane da Silva, Cátia Maria Silva de Oliveira, and José Ricardo de Abreu Afonso. "Mental Health and Psychosocial Care for People with Disabilities." IJS - International Journal of Sciences 1, no. 1 (2021): 15–19. http://dx.doi.org/10.29327/229003.1.1-3.

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10

Focht-New, Virginia. "Beyond Abuse: Health Care for People with Disabilities." Issues in Mental Health Nursing 17, no. 5 (January 1996): 427–38. http://dx.doi.org/10.3109/01612849609009411.

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11

Bigby, C., R. Webber, B. Bowers, and B. McKenzie-Green. "A survey of people with intellectual disabilities living in residential aged care facilities in Victoria." Journal of Intellectual Disability Research 52, no. 5 (May 2008): 404–14. http://dx.doi.org/10.1111/j.1365-2788.2007.01040.x.

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12

Glover, Gyles, Sebastian Fox, and Chris Hatton. "General hospital care for people with intellectual disabilities." Tizard Learning Disability Review 21, no. 1 (January 4, 2016): 43–49. http://dx.doi.org/10.1108/tldr-10-2015-0040.

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Purpose – The purpose of this paper is to explore the extent of compliance of commissioners and providers of hospital services in England with their duty under equalities legislation to be aware of patients with intellectual disabilities as a first step to making appropriate provision for their consequent specific needs. Design/methodology/approach – National survey of healthcare commissioners undertaken as part of an annual learning disabilities services audit. Findings – In total, 41.4 per cent of local areas were unable to supply information about numbers of people with intellectual disabilities among those admitted to hospital, 46.7 and 48 per cent, respectively, could not supply this information about out-patient and accident and emergency department attenders. Figures supplied by those able to provide data varied very substantially and overall were so low as to suggest considerable numbers had been missed. Research limitations/implications – The study is testing what local health commissioners are able to find out from hospitals. The authors do not know the accuracy of the data they reported. Practical implications – The study suggests approaching half of healthcare commissioners in England have little or no information about the extent of proper adjustment of hospital care for people with intellectual disability in their area. Their responsibility to assure this has been repeatedly asserted by government. Social implications – The study indicates a need for more work to improve hospital care for people with intellectual disabilities. Originality/value – This was a government sponsored national study to which local healthcare commissioners were expected to contribute.

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13

Bouras, Nick, and Geraldine Holt. "Mental health services for adults with learning disabilities." British Journal of Psychiatry 184, no. 4 (April 2004): 291–92. http://dx.doi.org/10.1192/bjp.184.4.291.

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Services for people with learning disabilities have been transformed since the late 1960s by the move from institutional to community care. (Learning disabilities is the term currently used in the UK in preference to mental retardation, developmental disabilities and mental handicap.) Important changes include the progress towards integration, participation, inclusion and choice for people with learning disabilities, which have occurred in the context of the broader civil and human rights movements. It is time to examine the services delivered to people with learning disabilities and comorbid psychiatric disorders (mental illness, personality disorders, behavioural problems with aggression) and the evidence for their effectiveness.

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14

Redworth, Mike, and Gary Phillips. "Involving People with Learning Disabilities in Community Care Planning." British Journal of Learning Disabilities 25, no. 1 (March 1997): 31–35. http://dx.doi.org/10.1111/j.1468-3156.1997.tb00006.x.

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15

Bailey, Nicola M., and Sally-Ann Cooper. "Community Care for People with Learning Disabilities: Specialist Learning Disabilities Health Services Following Resettlement." British Journal of Learning Disabilities 27, no. 2 (June 1999): 64–69. http://dx.doi.org/10.1111/j.1468-3156.1999.tb00088.x.

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16

Bouras, Nick, Geraldine Holt, and Shaun Gravestock. "Community care for people with learning disabilities: deficits and future plans." Psychiatric Bulletin 19, no. 3 (March 1995): 134–37. http://dx.doi.org/10.1192/pb.19.3.134.

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The challenge facing services for people with learning disabilities is to create the environment in which clients have the best quality of life without preconception. The heterogenous nature of people with learning disabilities requires diversity of care provisions sensitive to their individual needs. The different demonstration and presentation of their mental health needs has influenced the development of services and different models of specialist services have emerged with local variations. There is still, however, a great deal of confusion on both ideological and service delivery level. Although services for people with learning disabilities have succeeded in resettling people in the community and supporting them in developing adaptive skills, unfortunately these successes are not matched by equally effective and efficient services to those with mental health needs.

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17

Torr, Jennifer, Nicholas Lennox, Sally-Ann Cooper, Therese Rey-Conde, Robert S. Ware, Jennifer Galea, and Miriam Taylor. "Psychiatric Care of Adults with Intellectual Disabilities: Changing Perceptions Over a Decade." Australian & New Zealand Journal of Psychiatry 42, no. 10 (January 1, 2008): 890–97. http://dx.doi.org/10.1080/00048670802345474.

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Objective: In light of developments in training and service provision, the aim of the present study was to compare two state-wide surveys, undertaken in 1994 and in 2004, of psychiatrists about their perceptions of their training and psychiatric treatment of adults with intellectual disabilities who also have mental health needs. Methods: A 50-item self-administered questionnaire was developed for the 2004 survey, based on the 1994 study. This was sent to all 624 Fellows of the Royal Australian and New Zealand College of Psychiatry registered in Victoria at the time. A series of questions was asked based on workload, training, the role of psychiatry in intellectual disabilities, opinions on assessment and management, improving services, and the demographics of participant psychiatrists. Results of the 2004 survey are compared with the 1994 study. Results: There has been some change in psychiatrists’ opinions about acute admission wards, believing strongly that they do not meet the needs of the adults with severe intellectual disabilities, leaving them vulnerable to exploitation. There has been some improvement in their ability to adequately manage adults with intellectual disabilities who have mental health needs and/or problem behaviours. Conclusions: Mainstream mental health services fail to meet the needs of adults with intellectual disabilities. Improved specialist clinical services and more clinical training opportunities are required.

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18

Jones, Martyn C., Ella McLafferty, Robert Walley, John Toland, and Naomi Melson. "Inclusion in primary care for people with intellectual disabilities." Journal of Intellectual Disabilities 12, no. 2 (June 2008): 93–109. http://dx.doi.org/10.1177/1744629508090982.

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19

Simpson, Neill J. "Bridging primary and secondary care for people with learning disabilities." Advances in Psychiatric Treatment 1, no. 7 (September 1995): 207–13. http://dx.doi.org/10.1192/apt.1.7.207.

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Definitions for learning disability vary depending on the context in which they are used (Box 1), as does the terminology (Box 2). In the UK, the term ‘learning disability’ was adopted in 1991 by the Department of Health. The term ‘mental retardation’ is used in the ICD-10 (World Health Organization, 1992). Fryers (1991) has commented on the need for different definitions in order to distinguish the context in which the term is used.

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20

Castle, David J. "Letter from Australia: mental healthcare in Victoria." Advances in Psychiatric Treatment 17, no. 1 (January 2011): 2–4. http://dx.doi.org/10.1192/apt.bp.110.008375.

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SummaryMental health services in the state of Victoria, Australia, have undergone enormous change over the past 15 years, with the closure of all stand-alone psychiatric hospitals and a shift of resources and services into the community. Although successful overall, various areas cause concern, including pressure on acute beds, a paucity of alternative residential options, and suboptimal integration of government and non-government agencies concerned with the care of people with mental illnesses. Certain groups, notably those with complex symptom sets such as substance use and mental illness, intellectual disability and forensic problems, remain poorly catered for by the system. Finally, community stigma and lack of work inclusion for mentally ill individuals are ongoing challenges.

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21

Bailey, Nicola M., and Sally-Ann Cooper. "NHS beds for people with learning disabilities." Psychiatric Bulletin 22, no. 2 (February 1998): 69–72. http://dx.doi.org/10.1192/pb.22.2.69.

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A questionnaire was completed by 135 of the 161 (83.9%) National Health Service (NHS) trusts who provide specialist health services for people with learning disabilities in England and Wales. From these, cumulative frequencies were calculated to describe the current level of provision of NHS beds. Results vary in different parts of the country, but the majority of NHS trusts provide assessment and treatment admission beds, long-stay beds (including those NHS trusts who have completed their resettlement process) and respite care beds. A half of NHS trusts directly manage NHS day places. The high response to questionnaires indicates the current high level of interest in this issue.

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22

Elstner, Samuel, and Michael-Mark Theil. "The health and social care of people with disabilities in Germany." Advances in Mental Health and Intellectual Disabilities 12, no. 3/4 (July 2, 2018): 99–104. http://dx.doi.org/10.1108/amhid-03-2018-0015.

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Purpose The purpose of this paper is to present information on the health care system in Germany with the focus on mental health care in people with intellectual disabilities (ID). Design/methodology/approach The paper is descriptive providing an overview of the general structure of the German health care system with historical and economic background. The paper also provides further information on the general social and health care in Germany for people with ID and medical education in the field of ID is used. Findings There is a highly developed health care infrastructure in Germany but health care for people with ID is not co-ordinated or universal. Mental health care for people with ID is predominantly in in-patient services. Only in recent years, out-patient services for people with ID have been developed. There is a little emphasis in medical education on the health care needs of people with ID. Originality/value The value of this paper is its description of health care in Germany and services for people with ID.

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23

Silva, Alan Patricio, Leticia Maria Factore Pacheco, Francisco Leitão, Matheus Paiva Emidio Cavalcanti, João Batista Francalino da Rocha, Sandra Dircinha Teixeira de Araújo Moraes, and Italla Maria Pinheiro Bezerra. "Mental health status and quality of life of people with disabilities in social isolation." Journal of Human Growth and Development 31, no. 3 (December 1, 2021): 470–75. http://dx.doi.org/10.36311/jhgd.v31.12619.

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Introduction: at this critical moment of the COVID -19 pandemic, we observe the social withdrawal and the break from the routine of individuals in society, for people with disabilities who need adequate support and a routine of more intense and effective activities may feel a greater need for care and attention of family support for solving everyday problems. Objective: to identify factors associated with the impact of the pandemic on the quality of life of individuals with disabilities and their caregivers. Methods: a virtual survey was carried out with parents and caregivers of people with disabilities to identify the main factors associated with the impact of the Pandemic on daily life and social relationships between family and community. Results: of the parents and caregivers we had access to and answered the questionnaire, 90% are residents of the ABC region of São Paulo. Their children and adolescents with disabilities are between 4 and 18 years old. The main scores of caregivers on difficulties in care during the pandemic, 70% felt helpless at some point, 17% had difficulties in performing self-care activities, 42% had anguish and fear during the period, 83% have the greatest responsibility for household decisions, and about 50% can share those decisions. Conclusion: the main complaints about the care of people with disabilities during the COVID-19 pandemic are related to the feeling of fear and anguish that affects decision-making and family relationships, which influences self-care activities and mental health of this population.

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Rahamim, Adina, and Philip Mendes. "Mental Health Supports and Young People Transitioning from Out-of-home Care in Victoria." Children Australia 41, no. 1 (November 17, 2015): 59–68. http://dx.doi.org/10.1017/cha.2015.35.

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Young people transitioning from out-of-home care (OHC) are a vulnerable group. One particular manifestation of disadvantage is poor mental health outcomes which may reflect both the traumatic effects of childhood abuse, and a lack of support on leaving care. This article presents the findings of a small qualitative study undertaken in Victoria which explored the views of OHC and mental health service providers regarding the mental health support needs of care leavers. The findings are consistent with existing research results internationally in highlighting a number of key factors that influence mental health outcomes including the impact of pre-care, in-care and transition from care experiences.

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Kirk, Jo, Aneet Sehmi, Charlotte Hazeldine, Gemma Palmer, and Georgina Ruddle. "LIFT psychology primary care group for people with intellectual disabilities: can IAPT adapt?" Advances in Mental Health and Intellectual Disabilities 8, no. 1 (December 20, 2013): 51–62. http://dx.doi.org/10.1108/amhid-12-2012-0008.

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Purpose – There is a move to make primary care models of mental health care more accessible to people with intellectual disabilities (IAPT, 2009) but little evidence of their ability of services to make the necessary reasonable adjustments or their effectiveness (Dodd et al., 2011). The purpose of this paper is to describe a pilot project to evaluate an anxiety management group co-facilitated by Least Intervention First Time (LIFT) Psychology and Community Team for People with Learning Disabilities (CTPLD) services. Design/methodology/approach – Five people attended a nine-week anxiety management group, adapted from a course offered by LIFT services. The Glasgow Anxiety Scale (GAS-ID) and a skills and knowledge assessment were completed pre-group, post-group and follow-up to evaluate outcome and consider the ability of LIFT to make reasonable adjustments to deliver effective services for people with intellectual disabilities. Findings – Participants showed no significant reduction in anxiety levels but improvements in their skills and knowledge. An evaluation of the adjustments to make the group accessible for people with intellectual disabilities identified that some were feasible if offering the group on a long-term basis, and others were not. The viability of future groups is considered. Originality/value – The paper looks at the viability of making reasonable adjustments to psychoeducational groups within Improving Access to Psychological Therapies services to better meet the needs of people with intellectual disabilities, an area of limited research. It raises dilemmas and considerations for the future development of such services.

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Jancar, J. "The Burdens — pioneers in mental health." Psychiatric Bulletin 13, no. 10 (October 1989): 552–55. http://dx.doi.org/10.1192/pb.13.10.552.

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Rarely in a lifetime do three people contribute to society in so many ways as the Burdens in Bristol. Here are some of their major achievements.The Reverend Burden and his wifw Katharine opened ‘The Royal Victoria Home’, near Horfield Prison, for the care of inebriate women and girls in moral danger in 1895.

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27

Barnoux, Magali. "Community services and transforming care: reflections and considerations." Tizard Learning Disability Review 24, no. 1 (March 8, 2019): 33–37. http://dx.doi.org/10.1108/tldr-12-2018-0034.

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Purpose The purpose of this paper is to consider the existing evidence base regarding community services for people with learning disabilities in the context of transforming care (TC). Design/methodology/approach Reflections and commentary on the provision of community services for people with learning disabilities following Washington et al.’s article on admissions and discharges from assessment and treatment units in England. Findings The existing evidence base pertaining to community learning disability teams in the UK is dated, sparse and methodologically weak. A greater focus on researching community services for people with learning disabilities is needed in order to inform best practice guidelines. Originality/value The success of the TC agenda is contingent on the provision of high quality community services. However, the focus has been on discharging individuals from hospital, rather than the support available to them once they leave.

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Strydom, Andre, Angela Hassiotis, and Gill Livingston. "Mental Health and Social Care Needs of Older People with Intellectual Disabilities." Journal of Applied Research in Intellectual Disabilities 18, no. 3 (September 2005): 229–35. http://dx.doi.org/10.1111/j.1468-3148.2005.00221.x.

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29

Perera, Bhathika, and Ken Courtenay. "Mental health services for people with intellectual disability in the United Kingdom." Advances in Mental Health and Intellectual Disabilities 12, no. 3/4 (July 2, 2018): 91–98. http://dx.doi.org/10.1108/amhid-03-2018-0017.

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Purpose Services for people with intellectual disabilities in the UK have evolved over the years from hospital-based care to more community provision. There are multiple reasons for these changes, however, often it was due to changes in social policy or following a scandal in provision. The paper aims to discuss these issues. Design/methodology/approach Providing services to meet the health and social care needs of people with intellectual disabilities is well-established in the four countries of the UK with support from legislation. There are often specialist mental health and social care teams. Dedicated professionals work with people with intellectual disabilities who experience mental health problems with a focus on support in the community. A range of services for children and adults and for offenders exist across the UK that often vary in composition and structure. Findings The challenges in providing mental health services for children and adults with intellectual disabilities in the future include recruitment and training of the workforce with the remit of enhancing community support and reduced in-patient care. Practical implications This paper helps the reader to understand how ID mental health services are organised in the UK. Originality/value This paper gives a summary of the ID mental health services in the UK. Even though there are various papers looking at different aspects of mental health services for people with ID in the UK, this paper brings all that information together to help reader get a better understanding of the mental health services for people with ID.

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30

Asri, Dahlia Novarianing, and Dian Ratnaningtyas Afifah. "Social support to improve the self-care ability of people with mental disabilities: a qualitative study in the “Kampung Tunagrahita”." Jurnal Konseling dan Pendidikan 8, no. 1 (February 29, 2020): 48. http://dx.doi.org/10.29210/139000.

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The objectives of this research are to describe and explain types of social support provided by families and residents of surrounding communities to individuals with mental disabilities in the “kampung tunagrahita” of mentally disabled people in Ponorogo Regency. This research used a qualitative descriptive approach along with its case study design. The data collection was undertaken through in-depth interviews, documentation, and passive observation. The sources of data were derived from main informants, events or activities that provided the social support to improve the ability of people with mental disabilities, and documents in the form of background data on the people with mental disabilities and other pertinent documents. The research subjects were dietermined using a purposive sampling technique, and the data analysis used an interactive analysis model. The results show that families, normal citizens, and village government in Jambon district, Ponorogo Regency provide the social support to people with mental disabilities through the provision of self-care skills training, information and assistance in taking care of family members with mental disabilities. Likewise, the much-needed skills training is set to produce works worth considering.

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31

Kerr, Mike. "Improving the general health of people with learning disabilities." Advances in Psychiatric Treatment 10, no. 3 (May 2004): 200–206. http://dx.doi.org/10.1192/apt.10.3.200.

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People with learning disabilities suffer an increase in common morbidity, communication difficulties, a high prevalence of serious conditions such as epilepsy, and specific patterns of health needs associated with the aetiology of their disability. Unfortunately, this combination of need is mirrored by a consistent picture of poor health promotion uptake, inadequate care for serious morbidity, unrecognised health need and poor access to health care. Consequently, there is a great disparity between the health of learning-disabled people and that of the general population. Psychiatrists can address this disparity in clinical practice by focusing on these patients' mental health, epilepsy management and the impact of behaviour on health. They can also influence health planning and service development.

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Sowney, Margaret, and Owen Barr. "Equity of Access to Health Care for People with Learning Disabilities." Journal of Learning Disabilities 8, no. 3 (September 2004): 247–65. http://dx.doi.org/10.1177/1469004704044966.

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Tilley, Liz. "Person?Centred Planning and Care Management with People with Learning Disabilities." British Journal of Learning Disabilities 35, no. 2 (June 2007): 138–39. http://dx.doi.org/10.1111/j.1468-3156.2007.00434.x.

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34

Karyakin, N. N., O. V. Balandina, and E. D. Bozhkova. "Main principles of organizing comprehensive care for persons with autism spectrum disorders." Public Health 2, no. 1 (June 30, 2022): 47–55. http://dx.doi.org/10.21045/2782-1676-2021-2-1-47-55.

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The purpose of this article is to form the key principles for organizing comprehensive care for people with mental disabilities. The basis for the development of principles was the experience of implementing the public project “Mental Health” in the Volga Federal District. Based on the experience, the main tasks when including the region in the project will be the organization of continuous support from an early age and throughout life, the organization of interdepartmental interaction, the creation of opportunities for the realization of medical, educational, professional, social and other needs of people with mental disabilities. At the same time, the development and approval at the regional level of a road map, which will identify activities, participants in the assistance program, responsible departments and institutions, as well as deadlines, is of particular importance as one of the main stages in the implementation of comprehensive assistance. Using the principles described in the article in its work, the region can quite effectively create a system of comprehensive assistance to people with mental disabilities, having a minimal backlog in this area.

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Hatton, Chris. "Social care for adults with learning disabilities in England: trends over time." Tizard Learning Disability Review 24, no. 2 (April 1, 2019): 94–100. http://dx.doi.org/10.1108/tldr-02-2019-0003.

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Purpose The purpose of this paper is to examine trends over time in social care usage and expenditure for adults with learning disabilities in England. Design/methodology/approach Returns from councils with social services responsibilities in England concerning social care usage and expenditure were analysed to examine the national picture and trends over time for adults with learning disabilities. Findings In 2017/2018, 147,915 adults with learning disabilities were receiving long-term social care, an increase of 5.7 per cent from 2014/2015. Social care expenditure increased by 10.2 per cent from 2014/2015 to £5.54bn in 2017/2018; adjusted for inflation this was a 2.7 per cent increase. For adults with learning disabilities who receive social care, increasing numbers of people are living with families or in supported accommodation/living, with gradual declines in the number of people living in residential or nursing care. The number of adults with learning disabilities in temporary accommodation is small but increasing. Social implications While councils appear to be attempting to protect social care for adults with learning disabilities in the face of cuts to council expenditure, social care expenditure and coverage are not keeping pace with likely increases in the number of adults with learning disabilities requiring social care. Originality/value This paper presents in one place statistics concerning long-term social care for adults with learning disabilities in England.

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Aftab, Rabia, and Abrar Anam. "Adult learning disabilities." InnovAiT: Education and inspiration for general practice 12, no. 11 (September 4, 2019): 651–55. http://dx.doi.org/10.1177/1755738019869377.

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People with a learning disability (LD) find it harder to learn certain life skills. The problems experienced vary from person to person, but may include learning new things, communication, managing money, reading, writing and personal care. Evidence indicates that people with LDs have poorer health than people without a LD, and have differences in health status that are, to an extent, avoidable. The health inequalities faced by people with LDs in the UK usually start early in life, and often result from barriers to access of timely, appropriate and effective healthcare. It is, therefore, essential at annual checks to opportunistically screen and holistically manage health inequalities. LD is a priority in the National Health Service’s Long Term Plan. Although a LD (depending upon severity) generally becomes apparent in early childhood, this article focuses on LDs in adults. LD and ‘intellectual disability’ are terms used interchangeably and recognised by the Mental Health Foundation.

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Spencer-Lane, Tim. "Lost in a Legal Maze: Community Care Law and People with Mental Health Problems: The Law Commission’s Review of Adult Social Care Law." International Journal of Mental Health and Capacity Law, no. 19 (September 8, 2014): 139. http://dx.doi.org/10.19164/ijmhcl.v0i19.250.

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In June 2008, the Law Commission published its Tenth Programme of Law Reform, which includes a project to review adult social care law in England and Wales. Adult social care impacts on a wide range of individuals, including older people, people with learning disabilities, physically disabled people, people with mental health problems and carers. This article considers the particular problems and challenges that community care law presents for people with mental health problems and how the Law Commission’s review proposes to address this.

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Glover, Gyles, Anna Christie, and Chris Hatton. "Access to cancer screening by people with learning disabilities in England 2012/13: information from the Joint Health and Social Care Assessment Framework." Tizard Learning Disability Review 19, no. 4 (September 30, 2014): 194–98. http://dx.doi.org/10.1108/tldr-07-2014-0024.

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Purpose – The purpose of this paper is to present information from the Joint Health and Social Care Self-Assessment Framework (JHSCSAF) on reported rates of cervical cancer, breast cancer and bowel cancer screening for eligible people with learning disabilities in England in 2012/2013 compared to screening rates for the general population. Design/methodology/approach – Between 94 and 101 Learning Disability Partnership Boards, as part of the JHSCSAF, provided information to allow the calculation of rates of cervical cancer, breast cancer and bowel cancer screening in their locality, for eligible people with learning disabilities and for the population as a whole. Findings – At a national level, reported cancer screening coverage for eligible people with learning disabilities was substantially lower than for the population as a whole (cervical cancer screening 27.6 per cent of people with learning disabilities vs 70 per cent of total population; breast cancer screening 36.8 per cent of people with learning disabilities vs 57.8 per cent of total population; bowel cancer screening 28.1 per cent of people with learning disabilities vs 40.5 per cent of the general population). There were considerable geographical variations in reported coverage for all three screening programmes. Originality/value – Consistent with previous research, localities in England report cancer screening rates for eligible people with learning disabilities considerably below those of the general population. There is an urgent need to address data availability and quality issues, as well as reasonable adjustments to cancer screening programmes to ensure uniformly high rates of cancer screening for people with learning disabilities across England.

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Gray, Jennifer A., and Jinsook Kim. "Palliative care needs of direct care workers caring for people with intellectual and developmental disabilities." British Journal of Learning Disabilities 48, no. 1 (January 31, 2020): 69–77. http://dx.doi.org/10.1111/bld.12318.

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Cooper, Sally-Ann, Angela Henderson, Deborah Kinnear, Daniel Mackay, Michael Fleming, Gillian S. Smith, Laura Anne Hughes-McCormack, et al. "Cohort profile: Scotland’s record-linkage e-cohorts of people with intellectual disabilities, and autistic people (SCIDA)." BMJ Open 12, no. 5 (May 2022): e057230. http://dx.doi.org/10.1136/bmjopen-2021-057230.

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PurposeTo investigate health, mortality and healthcare inequalities experienced by people with intellectual disabilities, and autistic people, and their determinants; an important step towards identifying and implementing solutions to reduce inequalities. This paper describes the cohorts, record-linkages and variables that will be used.ParticipantsScotland’s Census, 2011 was used to identify Scotland’s citizens with intellectual disabilities, and autistic citizens, and representative general population samples with neither. Using Scotland’s community health index, the Census data (demography, household, employment, long-term conditions) were linked with routinely collected health, death and healthcare data: Scotland’s register of deaths, Scottish morbidity data 06 (SMR06: cancer incidence, mortality, treatments), Prescribing Information System (identifying asthma/chronic obstructive pulmonary disease; angina/congestive heart failure/hypertension; peptic ulcer/reflux; constipation; diabetes; thyroid disorder; depression; bipolar disorders; anxiety/sleep; psychosis; attention deficit hyperactivity disorder; epilepsy; glaucoma), SMR01 (general/acute hospital admissions and causes, ambulatory care sensitive admissions), SMR04 (mental health admissions and causes), Scottish Care Information–Diabetes Collaboration (diabetic care quality, diabetic outcomes), national bowel screening programme and cervical screening.Findings to dateOf the whole population, 0.5% had intellectual disabilities, and 0.6% were autistic. Linkage was successful for >92%. The resultant e-cohorts include: (1) 22 538 people with intellectual disabilities (12 837 men and 9701 women), 4509 of whom are children <16 years, (2) 27 741 autistic people (21 390 men and 6351 women), 15 387 of whom are children <16 years and (3) representative general population samples with neither condition. Very good general health was reported for only 3389 (15.0%) people with intellectual disabilities, 10 510 (38.0%) autistic people, compared with 52.4% general population. Mental health conditions were reported for 4755 (21.1%) people with intellectual disabilities, 3998 (14.4%) autistic people, compared with 4.2% general population.Future plansAnalyses will determine the extent of premature mortality, causes of death, and avoidable deaths, profile of health conditions and cancers, healthcare quality and screening and determinants of mortality and healthcare.

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Taylor, John L. "Transforming care for people with intellectual disabilities and autism in England." Lancet Psychiatry 8, no. 11 (November 2021): 942–44. http://dx.doi.org/10.1016/s2215-0366(21)00349-7.

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Krysta, Krzysztof, Monika Romańczyk, Albert Diefenbacher, and Marek Krzystanek. "Telemedicine Treatment and Care for Patients with Intellectual Disability." International Journal of Environmental Research and Public Health 18, no. 4 (February 11, 2021): 1746. http://dx.doi.org/10.3390/ijerph18041746.

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In recent years, telemedicine has been developing very dynamically. The development of new technologies allows their use in the treatment of dermatological, cardiological, endocrine and other diseases. However, there are few reports on the use of digital technologies in the mental health care of people with intellectual disabilities. Intellectual disability is a disease that affects a large number of people. Patients suffering from intellectual disability encounter barriers that make it difficult for them to fully use telemedicine, however, these barriers can be overcome with appropriate support and adaptation. A review of the literature on telemedicine solutions in the care of people with intellectual disabilities indicates that the applications support the communication of these people with the doctor, enable simple behavioral interventions, stimulate cooperation in treatment, provide simple medical education as well as record medical data for the doctor. The authors present the potential risks related to the use of telemedicine solutions for people with intellectual disabilities as well as the project of creating a new, multi-module telemedicine system.

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O'Hara, Jean. "Learning disabilities and ethnicity: achieving cultural competence." Advances in Psychiatric Treatment 9, no. 3 (May 2003): 166–74. http://dx.doi.org/10.1192/apt.9.3.166.

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Despite the higher prevalence of learning disabilities among some minority ethnic communities and the greater burden of care, families from minority ethnic communities with a member who has learning disabilities are doubly disadvantaged as a result of racial discrimination and culturally inappropriate forms of care and service provision. This paper looks at the issue of discrimination, as well as the generally negative attitudes towards people with learning disabilities, and synthesises these into the concept of ‘double jeopardy’. It concludes by proposing ways of developing cultural competence in the delivery of care to this population.

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O'Day, Bonnie, Mary B. Killeen, Janet Sutton, and Lisa I. Iezzoni. "Primary Care Experiences of People with Psychiatric Disabilities: Barriers to Care and Potential Solutions." Psychiatric Rehabilitation Journal 28, no. 4 (2005): 339–45. http://dx.doi.org/10.2975/28.2005.339.345.

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Thio, Sally. "Rehabilitation for people with psychiatric disabilities: From care-role to payroll." Psychiatric Rehabilitation Journal 25, no. 1 (2001): 74–76. http://dx.doi.org/10.1037/h0095047.

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Swarbrick, Margaret, Susan Gould Fogerite, Amy B. Spagnolo, and Patricia B. Nemec. "Caregivers of People With Disabilities: A Program to Enhance Wellness Self-Care." Journal of Psychosocial Nursing and Mental Health Services 59, no. 5 (May 2021): 25–32. http://dx.doi.org/10.3928/02793695-20210107-04.

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Reichard, Amanda, Michelle Stransky, Kimberly Phillips, Charles Drum, and Monica McClain. "Does Type of Disability Matter to Public Health Policy and Practice?" Californian Journal of Health Promotion 13, no. 2 (September 1, 2015): 25–36. http://dx.doi.org/10.32398/cjhp.v13i2.1821.

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Background: Surveillance has been insufficient to inform and evaluate public health practices for people with disabilities. No studies have investigated whether there is statistical justification for subdividing the large, heterogeneous group of people with disabilities into subpopulations, for surveillance. Methods: Pooled data from the Medical Expenditures Panel Survey (2004-2010, unweighted n=132,198) included the following disability types: physical, cognitive, visual, hearing loss, and multiple disabilities. We examined differences among the disability subgroups and the no disability group on receipt of flu shot, dental exam, and timely care; insurance status; usual source of care (USOC); mental and physical health; and multiple chronic conditions (MCC). Results: The disability subgroups were sociodemographically heterogeneous and differed from each other and the no disability group on health status (mental, physical, and MCC) and healthcare outcomes (flu shot, dental exam, timely receipt of care, USOC, insurance status). Conclusion: Findings demonstrate that disability subgroups differ in the magnitude of the disparities they experience compared to each other and to people without disabilities. Disability subgroups should be examined separately for public health measures to enable effective tailoring of public health policies and programs to better meet the needs for all people.

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Teresa Dawson, Maria, Paul Grech, Brendan Hyland, Fiona Judd, John Lloyd, Anne M. Mijch, Jennifer Hoy, and Alan C Street. "A Qualitative Approach to the Mental Health Care Needs of People Living with HIV/AIDS in Victoria." Australian Journal of Primary Health 8, no. 3 (2002): 30. http://dx.doi.org/10.1071/py02041.

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This article reports on the findings of the qualitative stage of a larger project on the mental care needs of people with HIV/AIDS and mental illness (Tender T1176 Department of Human Services, Mental Health Branch, Victoria - Research on the Mental Health Care Needs of People with HIV/AIDS and Mental Illness). The purpose of the larger research was to evaluate the needs and treatment requirements of persons with HIV/AIDS, who also suffer from mental health problems, with a view to developing proposals for improving existing service delivery in Victoria, Australia. The qualitative stage was designed to complement and elucidate data obtained through the quantitative stages of the project. Thirty in-depth open-ended interviews were carried out with service providers including HIV physicians, general practitioners, psychiatrists, clinical and managerial staff of Area Mental Health Services, Contact Tracers and forensic mental health services staff, as well as representatives of community groups such as People Living with HIV/AIDS and Positive Women and carers. The interviews explored the perspective of both service providers and users of such services with respect to needs for psychiatric care and service delivery, ease of access or barriers to mental health services, and the perceived strengths and weaknesses in current service provision. This paper presents the main findings and recommendations submitted to the funding body.

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Hatton, Chris. "Day services and home care for adults with learning disabilities across the UK." Tizard Learning Disability Review 22, no. 2 (April 3, 2017): 109–15. http://dx.doi.org/10.1108/tldr-01-2017-0004.

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Purpose The purpose of this paper is to compare data from national social care statistics on day services and home care for people with learning disabilities across England, Scotland, Wales and Northern Ireland. Design/methodology/approach National social care statistics (England, Scotland, Wales and Northern Ireland) reporting the number of adults with learning disabilities accessing day services and home care were reviewed, with data extracted on trends over time and rate of service use. Findings Regarding day services, despite some variations in definitions, the number of adults with learning disabilities in England, Scotland and Wales (but not Northern Ireland) using building-based day services decreased over time. Data from Scotland also indicate that adults with learning disabilities are spending less time in building-based day services, with alternative day opportunities not wholly compensating for the reduction in building-based day services. Regarding home care, there are broadly similar rates of usage across the four parts of the UK, with the number of adults with learning disabilities using home care now staying static or decreasing. Social implications Similar policy ambitions across the four parts of the UK have resulted (with the exception of Northern Ireland) in similar trends in access to day services and home care. Originality/value This paper is a first attempt to compare national social care statistics concerning day services and home care for adults with learning disabilities across the UK. With increasing divergence of health and social service systems, further comparative analyses of services for people with learning disabilities are needed.

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Elstner, S. "German mental health care in people with intellectual and developmental disabilities (idd) in comparison to other European countries." European Psychiatry 41, S1 (April 2017): S598. http://dx.doi.org/10.1016/j.eurpsy.2017.01.925.

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IntroductionIn Germany, mental health care in people with IDD is mostly determined by experts’ opinions. Particularities of the psychiatric assessment and treatment of people with IDD and a co-morbid psychiatric disorder are taught neither at medical schools nor in the scope of the medical training of psychiatrists.ObjectivesThe present study examined the influence of socio-political aspects of health care on quality and organisation of mental health care in people with IDD.MethodsVarious aspects of health care systems in Germany and three other European countries were explored and juxtaposed subsequently with a special developed questionnaire.ResultsThe health care systems of four different European countries differ in socio-economical, educational and system-financed aspects.ConclusionsDiffering organisational levels of national health care systems and socio-economical aspects within these countries contribute to the organisation of the mental health care system in people with IDD. Suggestions for a better harmonisation of European mental health care in people with IDD are offered.Disclosure of interestThe author has not supplied his declaration of competing interest.

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