Academic literature on the topic 'People with disabilities – home care – economic aspects'
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Journal articles on the topic "People with disabilities – home care – economic aspects"
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Treacy, Paul C., and Douglas MacKay. "Weighing obligations to home care workers and Medicaid recipients." Nursing Ethics 26, no. 2 (July 25, 2017): 418–24. http://dx.doi.org/10.1177/0969733017718396.
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In June 2016, a US Department of Labor rule extending minimum wage and overtime pay protections to home care workers such as certified nursing assistants and home health aides survived its final legal challenge and became effective. However, Medicaid officials in certain states reported that during the intervening decades when these protections were not in place, their states had developed a range of innovative services and programs providing home care to people with disabilities—services and programs that would be at risk if workers were newly owed minimum wage and overtime pay. In this article, we examine whether the Department of Labor was right to extend these wage protections to home care workers even at the risk of a reduction in these home care services to people with disabilities. We argue that it was right to do so. Home care workers are entitled to these protections, and, although it is permissible under certain conditions for government to infringe workers’ occupational rights and entitlements, these conditions are not satisfied in this case.
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Lee, Heayon, Yu Rang Park, Hae-Reong Kim, Na Young Kang, Gahee Oh, Il-Young Jang, and Eunju Lee. "Discrepancies in Demand of Internet of Things Services Among Older People and People With Disabilities, Their Caregivers, and Health Care Providers: Face-to-Face Survey Study." Journal of Medical Internet Research 22, no. 4 (April 15, 2020): e16614. http://dx.doi.org/10.2196/16614.
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Background Home Internet of Things (IoT) services and devices have the potential to aid older adults and people with disabilities in their living environments. IoT services and devices can also aid caregivers and health care providers in conveniently providing care to those in need. However, real-world data on the IoT needs of vulnerable people are lacking. Objective The objective of this study is to conduct a face-to-face survey on the demand for IoT services among older people and people with disabilities, their caregivers, and health care providers in a real-world setting and to see if there are any differences in the aspects of need. Methods We conducted a face-to-face survey with 500 participants between January 2019 and March 2019. A total of 300 vulnerable people (200 older adults aged ≥65 years and 100 physically disabled people aged 30-64 years) were randomly sampled from either a population-based, prospective cohort study of aging—the Aging Study of Pyeongchang Rural Area (ASPRA)—or from the outpatient clinics at the Asan Medical Center, Seoul, South Korea. Simultaneously, their caregivers (n=150) and health care providers (n=50) participated in the survey. Detailed socioeconomic status, digital literacy, health and physical function, and home IoT service needs were determined. Among all commercially available IoT services, 27 services were classified into five categories: emergency and security, safety, health care, convenience (information), and convenience (operation). The weighted-ranking method was used to rank the IoT needs in different groups. Results There were discrepancies in the demand of IoT services among the vulnerable groups, their caregivers, and health care providers. The home IoT service category that was required the most by the vulnerable groups and their caregivers was emergency and security. However, health care providers indicated that the safety category was most needed by the older adults and disabled people. Home IoT service requirements differed according to the different types of disabilities among the vulnerable groups. Participants with fewer disabilities were more willing to use IoT services than those with more disabilities. Conclusions Our survey study shows that there were discrepancies in the demand of IoT services among the vulnerable groups, their caregivers, and health care providers. IoT service requirements differed according to the various types of disabilities. Home IoT technology should be established by combining patients’ priorities and individualized functional assessments among vulnerable people. Trial Registration Clinical Research Information Service (CRIS; KCT0004157); https://tinyurl.com/r83eyva
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Puzin, S. N., Marina A. Shurgaya, M. A. Shkurko, I. A. Krasnomyasova, S. N. Khristophorov, and S. S. Memetov. "Aspects of rehabilitation of disabled elderly persons in the Russian Federation." Medical and Social Expert Evaluation and Rehabilitation 19, no. 3 (September 15, 2016): 116–22. http://dx.doi.org/10.18821/1560-9537-2016-19-3-116-122.
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The article presents the results of the study of recommendations both for the rehabilitation of citizens, recognized primary and re-examination as disabled patients in the Russian Federation (2014). A positive result of the implementation of individual rehabilitation program was achieved in 45.1% of persons with disabilities, with the most significant recovery rates being at the level of 51.7% (integration of disabled persons in the family and society) and 50.8% (achievement of a partial compensation of lost functions). Disturbed functions were partially restored in 28.6% ofpersons with disabilities. As a result of the analysis of questionnaires of the evaluation tool (308forms), performed in the Care Home of Labor Veterans number 17, the Department of Labor and Social Protection of Moscow, there was revealed the medical and social status of persons with disabilities staying in this institution. The gender structure ofpersons with disabilities is characterized by a slight predominance ofwomen (59.7%) versus 40.3% of men. Among of all persons with disabilities there are dominated people aged of 75-89 years (51.9%). In the implementation of the comprehensive rehabilitation of disabled patients the need in drug therapy accounts of 100%, in the physiotherapy treatment - 89.6%, and physical therapy methods are used in 99.4% ofpersons with disabilities. With bearing in mind medical indications there are applied methods of socio-environmental, social and domestic, socio-psychological, sociocultural (art therapy, library therapy and adaptive physical education). For the creation of a barrier-free environment patients with disabilities are provided with the technical means of Rehabilitation. At the end of 2014 16.0 thousand people stand on the waiting list for the admission in stationary social care institutions for adults in the Russian Federation. With taking into account of demographical situation of an aging of the population and the gain in the demand for stationary establishments [2] intended for living of the older generation of people who cannot take care of themselves independently and need constant assistance, the further development of the social service system is feasible and has an important medical health value.
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Belyakova, N. V. "Social aspects of training organization for people with limited health capacities, special educational needs and disabilities in Russia." Social'naja politika i social'noe partnerstvo (Social Policy and Social Partnership), no. 4 (April 15, 2024): 257–62. http://dx.doi.org/10.33920/pol-01-2404-04.
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The article examines the issues related to the provision of social services to the elderly in their home environment. The author of the article examines the practice and evaluates its effectiveness and impact on the lives of senior citizens. The article discusses the main types of in-home services, including medical care, assistance with tidiness and personal hygiene, as well as social support. The importance of the practice of in-home social services for the elderly is emphasized. It has been found that this practice allows senior citizens to maintain independence, dignity, and quality of life, as well as prevents social isolation.
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Koliada, Nataliia, and Oksana Kravchenko. "Social and economic principles of supporting people with disabilities through the perspective of professional rehabilitation." Economies' Horizons, no. 1(8) (March 31, 2019): 44–52. http://dx.doi.org/10.31499/2616-5236.1(8).2019.170027.
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In Ukraine there are about 3 million people with disabilities who are not able to overcome the consequences of disability without the help and special care of society. All disabled people have the right to appropriate social, psychological, medical, professional and labor rehabilitation. The purpose of the research. The purpose of the study is to find out the economic and social benefits of home work of disabled people in Ukraine. Methodology. The analysis of the current Ukrainian legislation on the promotion of the disabled people employment is carried out. The organizational and legal principles of the home work application, the substantiation of home work as a type of social and psychological rehabilitation are revealed, recommendations for conducting home work for the social support of people in difficult straits have been identified. Results. It has been determined that labor rehabilitation is a system of measures developed with regard to the inclinations, physical and mental capabilities of the person and aimed at mastering the labor skills of labor activity providing the productional adaptation, including through the creation of special or specially adapted workplaces. It should be noted that the legal data framework on social and rehabilitation services of a professional and labor direction in the current legislation of Ukraine confirms to the UN Convention on the Rights of Persons with Disabilities and the UN Convention on the Professional Recovery and Employment of Persons with Disabilities. At the same time, employment of such groups of population provides them with additional elaboration of pensions and additional financing for the development of social and rehabilitation services of the professional and labor direction. Practical meaning. It is established that labor activity, employment of disabled people is one of the most effective means of their social and psychological rehabilitation, aimed at renewal of the disabled persons’ social relations and relationships, their emotional stability, active social life, integration into an open society, expansion and deepening of social contacts, renewal of professional qualities and skills, creation of favorable conditions for development and assertiveness of the person. Prospects for further research. It is necessary to define a nomenclature list of specialists in the field of professional rehabilitation and social assistance to the persons with disabilities in accordance with the international standards, to identify their need, to provide an organizational and methodological basis for their training and further employment.
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White, Emily, and Rosemary Barnitt. "Empowered or Discouraged? A Study of People with Learning Disabilities and their Experience of Engaging in Intimate Relationships." British Journal of Occupational Therapy 63, no. 6 (June 2000): 270–76. http://dx.doi.org/10.1177/030802260006300605.
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Vulnerable people constitute the majority of referrals to occupational therapy services, due to age and social, psychological and economic circumstances. People with learning disabilities may fit all these categories. An argument has been put that vulnerable people should not be subjects in research (de Raeve 1994) and that there may be unacceptable risks in being a subject in a socially sensitive research project (Barnitt and Partridge 1999). However, avoiding research with people with learning disabilities would mean that the voice of these clients would not be heard and it is known that they have expressed the wish to be consulted and involved in research (Atkinson 1989). A collaborative study was carried out with eight adults with learning disabilities who lived in a community residential home. Interviews were completed which dealt with aspects of intimate relationships. Three themes emerged from the interviews: the experience of intimate relationships, the future of a current relationship and the involvement of others in relationships. The findings showed that the people interviewed had a generally positive experience of such relationships. However, while the attitudes of staff and family towards intimate relationships were mostly empowering, some negative views still existed. The results have implications for occupational therapists working with people with learning disabilities.
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Niemeijer, Alistair R., Marja FIA Depla, Brenda JM Frederiks, and Cees MPM Hertogh. "The experiences of people with dementia and intellectual disabilities with surveillance technologies in residential care." Nursing Ethics 22, no. 3 (June 9, 2014): 307–20. http://dx.doi.org/10.1177/0969733014533237.
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Background: Surveillance technology such as tag and tracking systems and video surveillance could increase the freedom of movement and consequently autonomy of clients in long-term residential care settings, but is also perceived as an intrusion on autonomy including privacy. Objective: To explore how clients in residential care experience surveillance technology in order to assess how surveillance technology might influence autonomy. Setting: Two long-term residential care facilities: a nursing home for people with dementia and a care facility for people with intellectual disabilities. Methods: Ethnographic field study. Ethical considerations: The boards representing clients and relatives/proxies of the clients were informed of the study and gave their written consent. The clients’ assent was sought through a special information leaflet. At any time clients and/or proxy were given the option to withdraw from the study. The research protocol was also reviewed by a medical ethics committee. Findings: Our findings show a pattern of two themes: (1) coping with new spaces which entailed clients: wandering around, getting lost, being triggered, and retreating to new spaces and (2) resisting the surveillance technology measure because clients feel stigmatized, missed the company, and do not like being “watched.” Conclusion: Client experiences of surveillance technology appear to entail a certain ambivalence. This is in part due to the variety in surveillance technology devices, with each device bringing its own connotations and experiences. But it also lies in the devices’ presupposition of an ideal user, which is at odds with the actual user who is inherently vulnerable. Surveillance technology can contribute to the autonomy of clients in long-term care, but only if it is set in a truly person-centered approach.
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Tkach, Elena, and Elisa Nazareth Mendoza Ortega. "Theoretical aspects of the study of parental resilience, raising children with disabilities." E3S Web of Conferences 210 (2020): 18133. http://dx.doi.org/10.1051/e3sconf/202021018133.
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The presence of a child with disabilities is a powerful stressor for his parents, leading to a serious adjustment disorder. Based on a theoretical analysis of the main approaches to the phenomenon of psychological personality resilience, the resilience of parents raising children with disabilities is considered as a subject resource that provides positive adaptation and full-fledged life activity in spite of adverse living conditions. Resilience is characterized by a combination of social and intrapsychic processes that allow a person to be healthy and live a full life in an unfavorable environment. The ability of parents raising children with disabilities to cope with an adverse life situation is influenced by many factors: state policy in relation to this category of people, the media, public moods, school, social institutions, and interactions with people, family dynamics and resilience resources, stress factors, socio-economic characteristics of the family. The main characteristics of the resilience of parents raising children with disabilities are: the possibility of self-expression, general involvement, openness, awareness, a harmonious relationship between caring for the child and the need for attention of other family members. Despite difficult life circumstances, parents raising children with disabilities can find resources to adapt positively to the stress they experience. There are recommendations for certain actions, psychological intervention programs for the development of resilience in such families. In psychological practice, in a situation where a family has a child with disabilities, all attention and care is given to him.
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ANDONE, Ioana, Cristina POPESCU, Aura SPINU, Cristina DAIA, Simona STOICA, Liliana ONOSE, Irina ANGHEL, and Gelu ONOSE. "Current aspects regarding “smart homes”/ ambient assisted living (AAL) including rehabilitation specific devices, for people with disabilities/ special needs." Balneo Research Journal, Vol.11, no.4 (December 5, 2020): 444–49. http://dx.doi.org/10.12680/balneo.2020.3760.
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Introduction: The population life expectancy has increased (“over half the EU’s population predicted to be over-65 by 2070”), according to recent prevalence studies, being a result of the advancement of technology and medical science. This aging population has implications for society because there is increased number of older people requiring better quality of life. Materials and Methods: AAL represents the systems that may support completely the living area of a person and has the potential to facilitate the elderly to live longer and more safety in their family environments, allowing them to continue their current activities, facilitating participation in more activities at home and in the community and improving the cost-effectiveness, the quality of health and social services. A practical use of technology is the introduction of home networks, which involve notions such as: "smart homes ", “tele-health / tele-care” and even, possibly, “tele-medicine” to allow people with serious illnesses / conditions / and special needs to maintain an appropriate quality of life (QOL) at home. Discussions and Conclusions: AAL can contribute to an increased autonomy, self-confidence and mobility in people whose activity is limited to home environment, such as "the oldest olds” and/ or those with severe neuro-/ loco-motors disabilities, and so to reduce the risk of institutionalization, enhance security, prevent social isolation, thus allowing “older adults to age in place”. An important role in achieving this goal is representing by working in a multidisciplinary team (experts in the field of health - rehabilitation, gerontology -, social experts, technical/ informatics experts, engineering and robotics experts). Keywords: ambient assistive living, quality of life, special needs, tele-medicine, rehabilitation,
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Cole, Eunice Oben Bessem, S. Ariane Christie, Rasheedat Oke, Girish Motwani, Drusia Dickson, William Chendjou, Mbiarikai Mbianyor, Rochelle Dicker, Catherine Juillard, and Alain Chichom-Mefire. "Too serious to ignore: The epidemiologic and economic burden of home injuries in the Southwest Region of Cameroon—A community-based study." PLOS ONE 17, no. 9 (September 22, 2022): e0274686. http://dx.doi.org/10.1371/journal.pone.0274686.
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Background Home injuries are an important cause of morbidity and mortality in high-income countries. In Sub-Saharan Africa, including Cameroon, many people live in unplanned settlements with poorly constructed houses, predisposing them to home injuries. However, little is known about the epidemiology and care-seeking behaviors of the domestically injured. In this study, our objective was to determine the epidemiology and care-seeking behaviors of home injuries in the Southwest Region of Cameroon. Methods A sub-analyses of a larger descriptive cross-sectional community-based study on injury epidemiology in the preceding 12 months was conducted. Sampling was done using three-stage cluster sampling technique. Differences between groups were evaluated using Chi-squared and Adjusted Wald tests. Results Of 8065 participants, 157 suffered home injuries giving an incidence of 19.6 (16.8–23.0 95% CI) cases per 1000-person years. Home injuries comprised 31.2% of all 503 injuries and affected more females (60.8%) and younger individuals (mean age (SE) 25.1 years (2.0)) than non-home injuries. The most common activity and mechanism of home injury was leisure/play (51%) and falls (37.9%) respectively. Amongst those with home injuries, 37.6% did not seek care from any care provider (versus 25.0% of non-home injuries, p = 0.004) and were more likely to seek treatment within the family or at home (p = 0.008) or at church (p = 0.010). Those with home injuries experienced a median of 14 disability days and 22.9% of families faced difficulties affording basic expenses (p = 0.001). Conclusion Home injuries comprise about a third of the Southwest Region of Cameroon’s burden of injury and likely have a profound socioeconomic impact. Though these injuries cause severe disabilities, a large proportion of victims do not seek care from providers. Prevention efforts should address the design of homes and victims of home injury should be encouraged to utilize formal care services.
Dissertations / Theses on the topic "People with disabilities – home care – economic aspects"
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Mentzakis, Emmanouil. "Economic issues of informal care values and determinants /." Thesis, Available from the University of Aberdeen Library and Historic Collections Digital Resources, 2008. http://digitool.abdn.ac.uk:80/webclient/DeliveryManager?application=DIGITOOL-3&owner=resourcediscovery&custom_att_2=simple_viewer&pid=25213.
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Chu, Eva Pui Yi. "Women in the middle : economic restrictions and informal care : an exploratory study on the economic disadvantages of female informal carers of the Chinese old people in Hong Kong." HKBU Institutional Repository, 1995. http://repository.hkbu.edu.hk/etd_ra/45.
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Belkin, Teri. "The psychosocial outcomes of adult siblings of adults with autism and Down syndrome." Thesis, 2014. http://hdl.handle.net/1805/4830.
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Indiana University-Purdue University Indianapolis (IUPUI)Little is known regarding the psychosocial outcomes of adult siblings of adults with autism. Accordingly, the current study sought to: (1) illuminate factors that predict health-related quality of life, caregiver burden, and reported benefits in adult siblings of adults with autism, using a stress and coping framework and (2) compare outcomes of siblings of adults with autism (n = 31) to siblings of adults with Down syndrome (DS) (n = 54). For the within subject hypotheses, analyses were repeated within the DS group and an overall Disability group (n = 97). The Disability group consisted of participants in the Autism and Down syndrome groups plus twelve individuals in a mixed group of adult siblings of adults with DS who presented with co-morbid symptoms of autism. Variables were organized using The Adult Sibling Caregiver Conceptual Model (ASCCM) into three categories: antecedents (e.g., sibling relationship quality, problem behaviors of the disabled sibling), mediators (e.g., coping strategies, cognitive appraisal types), and psychosocial outcome variables (i.e., mental and physical health-related quality of life, caregiver burden, and reported benefits). For the within subject primary hypotheses, I posited a series of relationships between the antecedents and outcomes based on prior literature on demographic and individual difference predictors (e.g., siblings of adults with autism with fewer problem behaviors would have increased health-related quality of life [HRQOL], decreased caregiver burden, and increased reported benefits) and on stress and coping factors related to the burden of providing care for an individual with autism (e.g., greater use of avoidant coping strategies would be related to lower HRQOL, increased caregiver burden, and decreased reports of benefits). Exploratory hypotheses also were examined (e.g., being married would be associated with increased HRQOL, decreased burden, and increased reported benefits). The within-subject results indicated support for eight of the ten primary hypotheses and five of the six exploratory hypotheses when examined within at least one of the study groups: Autism, DS, or Disability. Overall, sibling caregivers, regardless of their sibling’s disability, reported more favorable psychosocial outcomes when demands were lower (e.g., less severe levels of problem behaviors, fewer autism symptoms exhibited by their disabled sibling, decreased additional pile-up stress), when resources were available to cope with stress (e.g., social support, respite care), and when healthy responses to stress were reported (e.g., use of emotion focused vs. avoidant coping strategies, use of challenge vs. threat appraisal types). Of note, reported benefits, which have rarely been examined in the autism literature, were strongly related to the quality of a sibling relationship across all study groups, and with the helpfulness of received services and perceived social support within the Autism group. The between subject hypotheses also were largely supported. As expected, compared to siblings of those with Down syndrome, siblings of those with autism demonstrated greater levels of caregiver burden and lower mental HRQOL. Moreover, there was a rank ordering in levels of caregiver burden across disability groups; siblings of adults with DS reported the lowest burden, siblings of adults with DS with symptoms of autism reported significantly higher levels of burden, and siblings of those with autism reported the most burden. The results imply that autism, either alone or co-morbid with another diagnosis, presents an increased risk of stress and caregiver burden, not only in parent caregivers, but also in sibling caregivers. Interestingly, there was also evidence for higher levels of stress related growth within the Autism group compared to the DS group. Future research will be needed to generalize the results of this study to broader samples of adult siblings while taking a life course perspective to assess changes in non-disabled siblings’ outcomes over time.
Books on the topic "People with disabilities – home care – economic aspects"
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Division, Minnesota Tax Research, ed. Home care tax incentive report. St. Paul, Minn: Minnesota Dept. of Revenue, Tax Research Division, 1999.
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Triomphe, Annie. Economic analysis of an innovative experiment in independent living for the severely handicapped. Paris: Organisation for Economic Co-operation and Development, Centre for Educational Research and Innovation, 1986.
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Janet, Leece, and Bornat Joanna, eds. Developments in direct payments. Bristol: The Policy Press, 2006.
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Office, General Accounting. Long-term care: Status of quality assurance and measurement in home and community-based services : report to the Chairman, Committee on Finance, U.S. Senate. Washington, D.C: The Office, 1994.
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Office, General Accounting. Long-term care: Consumer protection and quality-of-care issues in assisted living : report to the Honorable Ron Wyden, U.S. Senate. Washington, D.C: The Office, 1997.
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Office, General Accounting. Long-term care: Consumer protection and quality-of-care issues in assisted living : report to the Honorable Ron Wyden, U.S. Senate. Washington, D.C: The Office, 1997.
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Office, General Accounting. Long-term care: Consumer protection and quality-of-care issues in assisted living : report to the Honorable Ron Wyden, U.S. Senate. Washington, D.C: The Office, 1997.
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Office, General Accounting. Long-term care: Consumer protection and quality-of-care issues in assisted living : report to the Honorable Ron Wyden, U.S. Senate. Washington, D.C: The Office, 1997.
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Office, General Accounting. Long-term care: Consumer protection and quality-of-care issues in assisted living : report to the Honorable Ron Wyden, U.S. Senate. Washington, D.C: The Office, 1997.
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Office, General Accounting. Long-term care: Consumer protection and quality-of-care issues in assisted living : report to the Honorable Ron Wyden, U.S. Senate. Washington, D.C: The Office, 1997.
Find full textBook chapters on the topic "People with disabilities – home care – economic aspects"
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Atallah, Sandrine, and Aida Martín Redón. "Relevant (Sexual) Aspects of Cultural Differences." In Midwifery and Sexuality, 271–81. Cham: Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-18432-1_23.
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AbstractCulture is one of the most important elements influencing the sexual lives of people. Factors like traditionalism, religion, polygamy, machismo, and feminism influence sexuality and cultural ideas about motherhood and sex roles. This chapter focuses on those cultural aspects. Cultural differences exist not only by merit of geographical distance since cultures get intermingled through economic migration, political refugees, and global traffic. Even in midwifery, there are significant cultural differences between one country and another. In some countries, midwives independently guide childbirth at home, whereas, in other countries, the law prohibits such an approach. In some countries, the midwife provides postpartum contraception, whereas, in others, they don’t.This book is written in English and focuses relatively strongly on Western maternity care. It certainly has a European touch since most authors work in Europe. An advantage of Western and Northwestern Europe is the more open and pragmatic approach to discussing sexuality. While sexuality is essential everywhere, some basic health and luxury seem needed before it becomes relevant to tackle the problematic aspects of sexuality. We believe this book to be precious to midwives in middle- and high-income countries (Atallah et al., J Sex Med 13:591–606, 2016). On the other hand, much of the information will also be handy for urban midwives in low-income countries.This chapter is part of ‘Midwifery and Sexuality’, a Springer Nature open-access textbook for midwives and related healthcare professionals.
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Shang, Xiaoyuan, and Karen R. Fisher. "Introduction to leaving state care in China." In Young People Leaving State Care in China. Policy Press, 2017. http://dx.doi.org/10.1332/policypress/9781447336693.003.0001.
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This introductory chapter talks about how the rapid social, economic, and demographic changes in China have affected all aspects of the living environment of children and young people, particularly children in state care. Positive developments are the growth of the mixed welfare state and the relaxation of the family planning requirements, so that all families can now choose to have more than one child and they are more likely to receive free social services. These trends imply that fewer children will be left in state care in the future. On the other hand, whereas the government once arranged jobs for young people leaving care or other young people with disabilities, it now relies on the developing labour market to fulfil this function.
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Barr, Owen, and Bob Gates. "Physical health and well-being." In Oxford Handbook of Learning and Intellectual Disability Nursing, 143–224. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780198782872.003.0006.
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This chapter explores in detail aspects of health in children, adults, and older people with severe intellectual disabilities. It reviews why they have higher health needs when compared with the general population. It also identifies the different pattern of physical health needs and the high comorbidity in this group of people, as well as explores how many health needs can remain untreated. It demonstrates that the health profile of people with mild intellectual disabilities is similar to the wider population, once socio-economic factors are taken into account, although importantly they may experience more difficulty in accessing health promotion and primary and secondary care services. As a result of these factors, which include unmet health needs, many people die unnecessarily and at a premature age. This chapter uniquely provides comprehensive coverage of the very many factors compromising health and well-being, along with providing a range of strategies that registered nurses for people with intellectual disabilities can adopt in order to support health and well-being.
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Noreau, Luc, Normand Boucher, Geoffrey Edwards, Patrick Fougeyrollas, Ernesto Morales, Francois Routhier, Claude Vincent, and Hubert Gascon. "Enhancing independent community access and participation Services, technologies, and policies." In Oxford Textbook of Neurorehabilitation, edited by Volker Dietz, Nick S. Ward, and Christopher Kennard, 477–96. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780198824954.003.0035.
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Despite regulations and major efforts aimed at protecting the rights of people with disabilities, there are still huge challenges to ensure community access and full participation of persons with disabilities in society, in a context where the prevalence of disability will increase over the next decades. In this chapter, we examine three aspects of the community access issue—access to services, the value of both existing and emerging technologies, and social and economic policymaking. In addition to an efficient rehabilitation process focusing on physical and mental capabilities, enhancing community access and social participation will require the optimization of access to services such as primary healthcare, family support, the home environment, and job training, which currently are highly variable between jurisdictions. Key concepts in this regard include the notion of resiliency—support for both individuals and their families as well as their communities should aim to enhance the ability of these to rebound from challenging situations and create new ways of functioning. Technologies that enhance mobility, communication, and home adaptation also play an increasingly important role in favouring community access and participation. While these are essential to compensate various forms of disabilities, the current rapid evolution of technologies does not allow adequate efficacy testing, limiting the establishment of best practices or recommendations regarding these products and often overestimating their benefits. Finally, better community access and participation, supported by an enabling environment should not be based on a culture of disability but a culture of ‘ability’ that impacts all citizens regardless of their life situation.
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Launders, Ivan. "Socio-Technical Systems and Knowledge Representation." In Handbook of Research on Socio-Technical Design and Social Networking Systems, 558–74. IGI Global, 2009. http://dx.doi.org/10.4018/978-1-60566-264-0.ch037.
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The UK National Health Service (NHS) provides the opportunity to undertake local socio-technical system design to help staff maximize the opportunities of using mobile technology whilst minimizing the impact of change to existing patient systems. A real-world example from a local NHS socio-technical system is considered, that contains a collection of mobile clinicians and technology which provides home care to patients. The success of the Mobile NHS service has a high dependency upon the social aspects of the solution and draws upon a combination of people, resources, technology and economic events. This chapter considers multiagent system architectures, to model social complexity, and capture system knowledge, and then outlines a prototyping technique as a means of implementing and testing the design model. It concludes that the practice of implementing a prototype ontology provides a valuable step in clarifying meaning and understanding of concepts at the outset.
Conference papers on the topic "People with disabilities – home care – economic aspects"
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Stahl, Christoph, Krizia Ferrini, and Torsten Bohn. "LIFANA – User-centered design of a personalized meal recommender app for the elderly." In Human Interaction and Emerging Technologies (IHIET-AI 2024). AHFE International, 2024. http://dx.doi.org/10.54941/ahfe1004551.
Full textAbstract:
As the global population continues to age, the healthcare and technology sectors have witnessed an increased interest in understanding and addressing the unique needs of the elderly population. The health challenges faced by the elderly are multifaceted and often interconnected. Age-related cognitive decline can impair memory and decision-making abilities, while physical frailty, with reduced muscle strength and bone density, raises the risk of falls and fractures, affecting their quality of life. Comprehensive healthcare strategies that focus on prevention, early intervention are crucial to addressing these challenges.The general purpose of the LIFANA nutrition solution was to support healthy nutrition through all phases of aging in elderly people, from active seniors to elderly users and patients in need of daily care. The LIFANA mHealth application provided personalized meal plans that helped users to prevent undernutrition or overweight and followed WHO recommendations regarding caloric intake based on height, weight, gender and age as well as measured physical activity. The weekly meal plans maintained a balance between e.g fish and meat and plant-based dishes, ingredient variety, and macronutrients, and considered individual food restrictions. The LIFANA solution distinguishes itself from conventional food logging applications by providing users with seamless access to personalized meal plans that account for factors such as food restrictions, ingredient variety, macronutrient balance, and dietary preferences. For active users (60+) the solution integrated physical activity level measurement to balance caloric intake using the GoLive wearable clip provided by the Dutch project partner Gociety Solutions. Aimed towards users with limited mobility, the LIFANA prototype also integrated a digital shopping list with grocery home-delivery services during the field trials in the city of Porto. This service was provided by our Portuguese retail business partner MC Sonae to streamline the whole process of planning meals and acquiring food products.The target group for LIFANA differs from the general population in many aspects, i.e., cognitive and physical abilities, experience with smartphones, and eating behaviours. There are also considerable differences in food culture within Europe. For these reasons, we implemented a User-Centered Design (UCD) process with two iterative cycles of three phases: i) understanding the needs of the target group, ii) conceptualizing: specifying use cases and details of the technology, and iii) testing the system for usability and the assumed benefits. To facilitate understanding of the user’s needs, 37 stakeholders (seniors aged 65+, health professionals, and informal caregivers) participated in focus groups and co-creation workshops in The Netherlands (NL), Portugal (PT), and Switzerland (CH). The insights gathered from these sessions informed the creation of 7 personas and related scenarios, offering our developers a better understanding of the target users and their needs, considering factors such as age, gender, education, disabilities, and food preferences. Further, we added examples of typical meals for the age group in NL and PT. In the conceptualization phase, the functional requirements for the LIFANA solution were defined, considering the specific interests of all consortium partners, and a first prototype was implemented based on the personas defined in the first phase. The testing phase started with usability evaluation studies to validate that seniors can solve typical tasks. After successful request of ethical approval from the responsible national authorities, the LIFANA solution was then tested in a first round of short field trials in PT and NL. The feedback from the trials was used in a second iteration of the process to refine the requirements and develop a second prototype, which was then tested again in larger, long-term field trials in PT (53 participants, 14 months duration) and NL (107 participants, 3 months). The trials assessed various aspects including user friendliness and -acceptance, as well as changes of health-related aspects, determining its effectiveness regarding the improvement of markers related to health outcomes, and well-being, as well as potential effects related to budgeting. The results show a neutral effect regarding the participants’ anthropometric measures and blood pressure, while their motivation over time somewhat decreased in Portugal, though more pronounced in the Netherlands. This paper introduces the relevance of dietary applications for the healthcare system and the main objectives of the project LIFANA and its consortium. It provides insights into the results of the focus groups and shows two examples of the personas that were developed from them. Further, the results of the field trials are briefly presented. The paper closes with a discussion of the experienced benefits and challenges of the UCD process.