Academic literature on the topic 'People living with a Long-Term Conditions'
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Journal articles on the topic "People living with a Long-Term Conditions":
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Stenberg, Nicola, and Penny J. Furness. "Living Well With a Long-Term Condition." Qualitative Health Research 27, no. 4 (July 9, 2016): 547–58. http://dx.doi.org/10.1177/1049732316628834.
Abstract:
The outcomes of self-management interventions are commonly assessed using quantitative measurement tools, and few studies ask people with long-term conditions to explain, in their own words, what aspects of the intervention they valued. In this Grounded Theory study, a Health Trainers service in the north of England was evaluated based on interviews with eight service-users. Open, focused, and theoretical coding led to the development of a preliminary model explaining participants’ experiences and perceived impact of the service. The model reflects the findings that living well with a long-term condition encompassed social connectedness, changed identities, acceptance, and self-care. Health trainers performed four related roles that were perceived to contribute to these outcomes: conceptualizer, connector, coach, and champion. The evaluation contributes a grounded theoretical understanding of a personalized self-management intervention that emphasizes the benefits of a holistic approach to enable cognitive, behavioral, emotional, and social adjustments.
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Ambrosio, Leire, Kelly Hislop-Lennie, Nestor Serrano-Fuentes, Corine Driessens, and Mari Carmen Portillo. "Psychometric properties of the living with long term conditions scale in an English-speaking population living with long term conditions in the UK." BMJ Open 14, no. 1 (January 2024): e077978. http://dx.doi.org/10.1136/bmjopen-2023-077978.
Abstract:
ObjectiveTo present the psychometric properties of the living with long-term condition (LwLTCs) scale in an English-speaking population of people with different LTCs.DesignAn observational and cross-sectional study, with retest was conducted. Psychometric properties including feasibility, internal consistency, confirmatory factor analysis, reproducibility and content validity were tested.SettingThe study took place across the UK via primary care surgeries and voluntary organisations, between December 2021 and June 2022.ParticipantsThe study included 577 patients living with different LTCs, as chronic obstructive pulmonary disease, arthritis, chronic heart failure, Parkinson’s disease, chronic kidney disease and type 2 diabetes mellitus. Inclusion criteria included: (a) having been diagnosed with one or more of the conditions; (b) being able to read, understand and answer written questionnaires; (c) being fluent in English and (d) being able to provide written informed consent. Patients were involved in the design and pilot study of the scale.ResultsA total sample of 577 people with an age range of 37–97 years (98±9.65) were recruited. Internal consistency of the total 26-item LwLTCs scale score was excellent (ordinal alpha=0.90) but confirmatory factor analysis showed better fit indices (Normed Fit Index=0.96; standardised root mean square residual=0.051; Goodness of Fit Index=0.98) for a 20-item LwLTCs scale.ConclusionsA shorter version of the LwLTCs scale, with just 20 items and with excellent psychometric properties, is recommended. Having a short scale is key when considering the implementation of the scale in clinical practice to develop person-centred pathways and more comprehensive care plans.
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Swallow, Veronica. "Special Issue on Children, Young People, and Families Living With Long-Term Conditions." Journal of Pediatric Nursing 30, no. 1 (January 2015): 1–3. http://dx.doi.org/10.1016/j.pedn.2014.10.015.
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Owen, Natalie, Leanne Dew, Stuart Logan, Simon Denegri, and Lucy C. Chappell. "Research policy for people with multiple long-term conditions and their carers." Journal of Multimorbidity and Comorbidity 12 (January 2022): 263355652211044. http://dx.doi.org/10.1177/26335565221104407.
Abstract:
People with multiple long-term conditions (MLTC) are a growing population, not only in the United Kingdom but internationally. Health and care systems need to adapt to rise to this challenge. Policymakers need to better understand how medical education and training, and service configuration and delivery should change to meet the needs of people with MLTC and their carers. A series of workshops with people with MLTC and carers across the life-course identified areas of unmet need including the impact of stigma; poorly coordinated care designed around single conditions; inadequate communication and consultations that focus on clinical outcomes rather than patient-oriented goals and imperfectly integrate mental and physical wellbeing. Research which embeds the patient voice at its centre, from inception to implementation, can provide the evidence to drive the change to patient-centred, coordinated care. This should not only improve the lives of people living with MLTC and their carers but also create a health and care system which is more effective and efficient. The challenge of MLTC needs to be bought to the fore and it will require joint effort by policymakers, practitioners, systems leaders, educators, the third sector and those living with MLTC to design a health and care system from the perspective of patients and carers, and provide practitioners with the skills and tools needed to provide the highest quality care.
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Corchon, Silvia, Carmen Rodríguez-Blázquez, Alfonso Meneses, Marta Aranda-Gallardo, Lorena López, Maria Eugenia Ursúa, Maria Victoria Navarta-Sanchez, Mari Carmen Portillo, and Leire Ambrosio. "The Determinants of Living with Long-Term Conditions: An International Cross-Sectional Study." International Journal of Environmental Research and Public Health 18, no. 19 (October 2, 2021): 10381. http://dx.doi.org/10.3390/ijerph181910381.
Abstract:
It is essential that healthcare and social professionals understand the daily lives of people with chronic diseases, and the variables that influence them. The aim of this study was to identify the determinants influencing the process of living with long-term conditions. To investigate this, an observational, international, cross-sectional study was carried out. A consecutive sample of 1788 Spanish-speaking population living with chronic obstructive pulmonary disease, chronic heart failure and type 2 diabetes mellitus were included. Descriptive statistics and multiple linear regression models were performed. The linear regression models identified that social support (β = 0.39, p < 0.001) and the satisfaction with life (β = 0.37, p < 0.001) were the main determinants in the process of living with a long-term condition (49% of the variance). Age (β = −0.08, p = 0.01) and disease duration (β = 0.07, p = 0.01) were determinants only in the chronic heart failure subgroup, and country was significant in the chronic obstructive pulmonary disease subgroup (β = −0.15, p = 0.002). Satisfaction with life and social support were key determinants influencing the process of living with long-term conditions. As such, those aspects should be included in the design of interventions focused on the achievement of a positive living in people with long-term conditions.
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Lunt, Catherine, Christopher Dowrick, and Mari Lloyd-Williams. "The role of day care in supporting older people living with long-term conditions." Current Opinion in Supportive and Palliative Care 12, no. 4 (December 2018): 510–15. http://dx.doi.org/10.1097/spc.0000000000000391.
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Toze, Michael, Kelly Sisson, Thomas George, and Mo Ray. "Support for people with long-term neurological conditions in rural English communities." British Journal of Community Nursing 24, no. 5 (May 2, 2019): 212–15. http://dx.doi.org/10.12968/bjcn.2019.24.5.212.
Abstract:
Almost one-fifth of the population in England lives in rural areas. Compared to urban populations, the rural population is older and faces greater difficulties in accessing medical services. At the same time, healthcare teams in rural areas face particular challenges in recruiting and retaining staff, travelling between patients and keeping specialised knowledge up-to-date. Drawing upon a recent health needs assessment for people living with long-term neurological conditions in a rural English county, as well as a broader review of the literature, this paper considers the challenges of rurality and discusses potential solutions. Technological and community-based responses have often been suggested as responses to challenges of rurality. However, there is likely to be a need for up-front investment of resources and careful consideration of individual and community needs before these solutions can be applied to rural neurological care.
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REILLY, SIOBHAN, JANE HUGHES, and DAVID CHALLIS. "Case management for long-term conditions: implementation and processes." Ageing and Society 30, no. 1 (September 24, 2009): 125–55. http://dx.doi.org/10.1017/s0144686x09990183.
Abstract:
ABSTRACTThis paper presents a structured literature review that focused on comprehensive case management by nurses for adults with long-term conditions living in the community. The emphases of the review are the implementation of case-management approaches, including its roles, core tasks and components, and the coverage and quality of the reported implementation data. Twenty-nine studies were included: the majority were concerned with case management for frail older people, and others focused on people with multiple chronic diseases, high-cost patients, or those at high risk of hospital admissions. All the studies reported that case managers undertook the core tasks of assessment, care planning and the implementation of the care plan, but there was more variation in who carried out case finding, monitoring, review and case closure. Few studies provided adequate implementation information. On the basis of the reviewed evidence, three issues were identified as key to the coherent and sustainable implementation of case management for people with long-term conditions: fidelity to the core elements of case management; size of caseload; and case-management practice, incorporating matters relating to the continuity of care, the intensity and breadth of involvement, and control over resources. It is recommended that future evaluations of case-management interventions include a comprehensive process component or, at the very least, that interventions should be more fully described.
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Ambrosio, Leire, Jacqui Morris, Eric Compton, and Mari Carmen Portillo. "Physical activity and mental health experiences of people living with long term conditions during COVID-19 pandemic: A qualitative study." PLOS ONE 18, no. 7 (July 10, 2023): e0285785. http://dx.doi.org/10.1371/journal.pone.0285785.
Abstract:
Introduction Regular physical activity is a strategy that is effective in the physical management of long term conditions. The COVID-19 pandemic, led to disruption of physical activity routines for many people with long term conditions. It is important, to understand the experiences of people with long term conditions regarding physical activity during COVID-19 to enable future identification of strategies to mitigate the impact of restrictions on health. Objective To explore perceptions and experiences of people with long term conditions of the impact of the UK Government physical distancing restrictions on their physical activity participation during the COVID-19 pandemic. Methods A qualitative study, with in depth videoconference semi-structured interviews were conducted between January and April 2022, with 26 adults living with at least one long term condition in the UK. Data were managed in analytical matrices within Excel and data analysis was conducted using thematic analysis. Results Two main themes were developed, explaining how participants managed their physical activity during COVID19 lockdowns, and based on those experiences, what they considered should be in place should another lockdown occur:1) COVID-19 and physical activity: Losses, opportunities and adapting to new formats; and 2) Micro, meso, and macro contexts: creating the right conditions for physical activity support in future pandemics. Conclusions This study provides information on how people with long term conditions managed their condition during the COVID-19 pandemic and generates new understanding of how physical activity routines changed. These findings will be used to inform stakeholder engagement meetings with individuals with long term conditions and local, regional, and national policy makers, to co-produce recommendations that will help people living with long term conditions remain active during and after COVID-19 and other pandemics.
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Harvey, Clare Lynette, Jonathan Sibley, Janine Palmer, Andrew Phillips, Eileen Willis, Robert Marshall, Shona Thompson, Susanne Ward, Rachel Forrest, and Maria Pearson. "Development, implementation and evaluation of nurse-led integrated, person-centred care with long-term conditions." Journal of Integrated Care 25, no. 3 (July 3, 2017): 186–95. http://dx.doi.org/10.1108/jica-01-2017-0003.
Abstract:
Purpose The purpose of this paper is to outline a conceptual plan for innovative, integrated care designed for people living with long-term conditions (LTCs). Design/methodology/approach The conceptual plan delivers a partnership between the health system, the person with LTCs (chronic), their family, and the community. The partnership aims to support people at home with access to effective treatment, consistent with the New Zealand Government Health Strategy. This concept of people-owned care is provided by nurses with advanced practice skills, who coordinate care across services, locations and multiple LTCs. Findings With the global increase in numbers of people with multiple chronic conditions, health services are challenged to deliver good outcomes and experience. This model aims to demonstrate the effective use of healthcare resources by supporting people living with a chronic condition, to increase their self-efficacy and resilience in accordance with personal, cultural and social circumstance. The aim is to have a model of care that is replicable and transferable across a range of health services. Social implications People living with chronic conditions can be empowered to manage their health and well-being, whilst having access to nurse-led care appropriate to individual needs. Originality/value Although there are examples of case management and nurse-led coordination, this model is novel in that it combines a liaison nursing role that works in partnership with patients, whilst ensuring that care across a number of primary and secondary care services is truly integrated and not simply interfaced.
Dissertations / Theses on the topic "People living with a Long-Term Conditions":
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Brassington, Linsay. "Better living with illness : transdiagnostic approaches to psychological interventions for people with chronic illness." Thesis, University of Edinburgh, 2015. http://hdl.handle.net/1842/20955.
Abstract:
Objective: Chronic physical health problems are on the rise. Psychological interventions can play a role in helping people cope with the challenges that long term physical conditions brings. This thesis systematically reviewed the literature for group psychological interventions. Following this, an Acceptance and Commitment Therapy group intervention for people living with a range of long term physical conditions was designed and evaluated. Methods: Key databases were searched for relevant randomized-controlled studies. Papers that met inclusion criteria were quality assessed, and a meta-analysis was conducted. Participants with chronic physical health conditions were invited to an Acceptance and Commitment Therapy group (n=53). Measures were completed at assessment, pre, post and 3-month follow-up. These assessed anxiety and depression symptoms, health perceptions, values-based living and psychological flexibility. Assessment to pre-intervention served as a within-participant control. Results: 22 relevant studies were retrieved, with 18 rated as acceptable or high quality and 14 included in a meta-analysis. The majority of studies reported interventions as efficacious at reducing mental health problems, though effect sizes were weaker when compared to active controls such as education. In the Acceptance and Commitment therapy group, depression and anxiety symptoms reduced significantly from pre to post, compared to control period. Conclusions: Group psychological interventions may be beneficial for people with physical health problems. In particular, group-based ACT interventions may be effective with this population and can be delivered transdiagnostically for a range of physical conditions.
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Moncorps, Florence. "Pratiques réflexives des personnes vivant avec une maladie chronique : étude compréhensive mobilisant une méthodologie mixte." Electronic Thesis or Diss., Paris 10, 2023. http://www.theses.fr/2023PA100140.
Abstract:
Cette thèse s’intéresse aux circonstances et processus d’élaboration des savoirs expérientiels des personnes vivant avec une maladie chronique. Elle concerne spécifiquement des situations informelles d’élaboration de ces savoirs, plus pertinentes en termes d’analyse du pouvoir d’agir des personnes concernées.Cette contribution cherche à identifier les pratiques réflexives de ces personnes et à comprendre comment leur environnement et leurs dispositions individuelles les influencent. Pour cela, les cadres théoriques de l’agentivité (Bandura, 1986) et de la réflexivité (Dewey, 1910, 1938 ; Schön, 1983 ; Kolb, 1974) sont croisés. Ce croisement conduit à l’élaboration d’un modèle embryonnaire des pratiques réflexives. Le modèle de la réciprocité causale triadique (Bandura, 1986) est utilisé pour identifier les variables environnementales et dispositionnelles à étudier. Pour éprouver ce modèle embryonnaire, la première investigation empirique consiste en sept entretiens non directifs, auprès de personnes vivant avec différentes maladies chroniques. La deuxième s’appuie sur un questionnaire, co produit en partie avec des personnes concernées et associées par ailleurs plus largement à la thèse, via des Focus Group. Il est diffusé en ligne auprès de personnes concernées. À partir des 1404 réponses complètes collectées, des analyses en composantes principales permettent de décrire les relations entre les pratiques réflexives des répondants, leurs buts et supports d’information. Elles sont complétées par des ellipses de confiance et tests de Man Whitney Wilcoxon. Les répondants sont principalement des femmes, de plus de 35 ans, avec un niveau d'éducation supérieur au baccalauréat. La plupart sont atteints d'une encéphalomyélite myalgique et/ou d’un syndrome de fatigue chronique pouvant entraîner une incapacité à travailler. Ils souffrent de leur maladie depuis longtemps et se sentent peu reconnus socialement. Ils adoptent plutôt une attitude d’apprenance face aux savoirs médicaux. Ils vivent avec des maladies non reconnues par le système de santé, ayant une faible prévalence et un faible niveau de technicisation. Après analyse, deux systèmes de processus réflexifs cohabitent pour résoudre les écarts par rapport à l’auto-normativité (Andrieu, 2012 ; Barrier, 2008 ; Baeza, 2020) des personnes vivant avec une maladie chronique. Nos méthodes de recueil ont principalement permis de le mettre à jour et de décrire des processus analytiques longs (Dewey, 1910, 1938 ; Schön, 1983 ; Kolb, 1974).Au-delà des pratiques imaginées dans le modèle embryonnaire, l’analyse montre la mobilisation d’une pratique individuelle de défense réflexive. Concernant les processus cognitifs, les personnes construisent un environnement personnel de recherche ou réflexivité à partir de leurs perceptions et/ou ressentis, de supports d’informations (associations de malades, blogs), de professionnels en lien avec la santé et de profanes (proches, famille ou collègues). Leur environnement et dispositions influencent leurs pratiques de façons différentes au regard des modalités de variables explorées. Enfin, six motifs d’engagement en réflexivité, en référence aux motifs d’engagement en formation de Carré (1998), sont identifiés : épistémique, socio-affectif, économique, opératoire personnel, identitaire et vocationnel. Trois buts distincts sont repérés quant à la mobilisation de pratiques chez les personnes interrogées : maintenir son insertion sociale, gérer la maladie et maintenir les relations avec ses proches. La discussion porte sur la proximité entre pratiques réflexives des personnes vivant avec une maladie chronique et raisonnement clinique tel qu’il est enseigné aux professionnels de santé. Ceci incite à plus de coopération réflexive entre professionnels de santé et personnes concernées pour répondre aux problèmes quotidiens en lien avec la maladie chroniqueThis Phd thesis focuses on the circumstances and processes involved in the elaboration of experiential knowledge by people living with chronic illness. It specifically concerns informal situations in which this knowledge is developed, which are more relevant in terms of analyzing the power to act of the people concerned.This contribution seeks to identify the reflexive practices of these people and to understand how their environment and individual dispositions influence them. To this end, the theoretical frameworks of agency (Bandura, 1986) and reflexivity (Dewey, 1910, 1938; Schön, 1983; Kolb, 1974) are crossed. This intersection leads to the development of an embryonic model of reflexive practices. The triadic causal reciprocity model (Bandura, 1986) is used to identify the environmental and dispositional variables to be studied.To test this embryonic model, a first empirical investigation consisted of seven non-directive interviews with people living with various chronic illnesses. A second is based on a questionnaire, co-produced in part with the people concerned and more widely associated with the thesis, via Focus Groups. It is distributed online to the people concerned.Based on the 1,404 complete responses collected, principal component analyses are used to describe the relationships between respondents' reflexive practices, their information goals and media. They are completed by confidence ellipses and Man Whitney Wilcoxon tests.Respondents are mainly women, over 35 years of age, with a level of education higher than the baccalaureate. Most suffer from myalgic encephalomyelitis and/or chronic fatigue syndrome, which can lead to an inability to work. They have been suffering from their illness for a long time, and feel little social recognition. They tend to adopt a learning attitude towards medical knowledge. They live with illnesses that are not recognized by the healthcare system, have a low prevalence and a low level of technicalization.After analysis, two processes coexist to resolve the deviations from self-normativity (Andrieu, 2012; Barrier, 2008; Baeza, 2020) of people living with a chronic illness. Our collection methods have mainly uncovered and described lengthy analytical processes (Dewey, 1910, 1938; Schön, 1983; Kolb, 1974).Beyond the practices imagined in the embryonic model, the analysis shows the mobilization of an individual practice of reflexive defense. As far as cognitive processes are concerned, people construct a personal environment of research or reflexivity based on their perceptions and/or feelings, information supports (patients' associations, blogs), health-related professionals and laypeople (close friends, family or colleagues). Their environment and dispositions influence their practices in different ways, depending on the variables explored. Finally, six motives for engagement in reflexivity, in reference to Carré's (1998) motives for engagement in training, are identified: epistemic, socio-affective, economic, personal operative, identity and vocational. Three distinct goals are identified for the mobilization of practices among the people interviewed: maintaining social integration, managing illness and maintaining relationships with relatives.The discussion focuses on the proximity between the reflexive practices of people living with chronic illness and clinical reasoning as taught to healthcare professionals. This encourages greater reflexive cooperation between healthcare professionals and the people concerned, in response to the day-to-day problems associated with chronic illness
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Long, Jacqueline Ann. "Exploring how practising mindfulness affects people's experiences of living with a long-term condition." Thesis, University of Leeds, 2014. http://etheses.whiterose.ac.uk/7097/.
Abstract:
There is increasing evidence that mindfulness meditation-based interventions (MMBIs) benefit people with many long-term conditions (LTCs), particularly in terms of psychological wellbeing. Most evidence however relates to short-term outcomes, and limited information exists about how people integrate mindfulness into life over the longer-term, and how this affects their experience. This PhD aimed to address these limitations through the research question: How does practising mindfulness affect people’s experiences of living with a LTC? A qualitative approach was adopted, using grounded theory to explore the processes of change. Using two-stage interviews, diaries and focus groups, data were gathered from 34 participants and seven trainers of Breathworks’ mindfulness course. Almost all study participants reported a diversity of physical and/or mental health problems, many with multi-morbidity. Fieldwork was supplemented by a subsequent Cochrane-informed overview of systematic reviews and a critical review of qualitative studies of MMBIs. Participants’ experiences were predominantly strongly positive, identifying significant changes in thinking and behaviour. They described in detail how mindfulness had become part of their lives, enabling them to be more effective and responsive in their self-care. Analysis identified a core process and metaphor of ‘Starting where I am’ on an unwanted journey to an unfamiliar place. This highlighted how people become more aware and accepting of their condition and its impact, but able to see it in a wider context, and thus to take appropriate action. The process was represented in five interrelated themes: Getting a new perspective; Feeling equipped to cope; Doing life differently; Seeing a change; and Finding it difficult. Through exploration of existing chronic illness literature, the study suggests that mindfulness is a powerful facilitator of transition, through which people come to terms with challenging life events. Transition is associated with improved, self-directed self-management, which is significant to both people with LTC and healthcare providers.
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Lunt, Catherine A. "Impact of day care services on older people with long term conditions." Thesis, University of Liverpool, 2018. http://livrepository.liverpool.ac.uk/3025902/.
Abstract:
Background: Day care services support older people with multiple long term conditions (LTC) within the community to age in place. This salient topic is given little attention by researchers. Day care services models are complex and outcomes for service users unknown. In the UK, in response to wider policy reforms local authority models have been outsourced to a range of organisations, including Charitable and Voluntary services. This thesis aims to understand the models of day care provided in the community and the subsequent outcomes for users and their families. Methods: This is an exploratory study comparing outcomes for users across five different service types: firstly comparing day care provided by Paid staff services, Voluntary services and Blended services (provided by staff and volunteers) and secondly comparing services provided in urban and rural areas, with a particular focus on health inequalities. Mixed Methodology was used. Observations using focussed ethnography and semi structured qualitative interviews with staff and volunteers provided a greater understanding of the type of provision. Quantitative measures were used at 3 time points over 12 weeks of attendance with clients new to day care to assess outcomes using tools for health status and loneliness. Findings: Data was collected from nine day care centres across seven services. 94 clients and 16 carers attending day care were recruited. 36 semi structured interviews were undertaken with clients, carers, staff and volunteers at the services. At baseline there were no differences across services types in the numbers of long term conditions reported by service types but there were significant differences between rural and urban services (rural mean LTC 5.2, urban mean LTC 4.2, p0.04). A larger proportion of clients attending Blended and volunteer led services reported a reduction in loneliness. When adjusted for other baseline variables in logistic regression model, likelihood of reduction in loneliness was increased in Blended (OR=2.28) and Voluntary (OR=2.16) services compared to Paid staff service. People using Blended and Voluntary services reported better or same health outcomes across most EQ5D3L domains than Paid services. Observations and interview data suggests that the differences in outcomes at Blended and Voluntary services may be due to the delivery of activities promoting self-worth and facilitating links to the wider community. Conclusion: This thesis concludes that day care provides vital support for frail older people living at home and their volunteers can deliver effective support with favourable outcomes. It is suggested that activities that promote self-worth and provide links to the community may facilitate positive health outcomes and reduce loneliness. Preparation of such activities can be implemented with minimum resources, providing cost effective interventions for providers to deliver.
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Cheng, Joanna. "The mechanisms of psychological therapy with people with long-term physical health conditions." Thesis, Lancaster University, 2017. http://eprints.lancs.ac.uk/87391/.
Abstract:
This thesis comprises a literature review, a research paper and a critical appraisal of the research process. Qualitative literature was systematically reviewed using a meta-ethnography, with the aim of understanding how people with long-term physical health conditions (LTCs) experience psychological therapies. Thirteen articles were identified. Six themes emerged from the synthesis: i) ‘therapists’ expertise and empathic approach led to positive relationships’; ii) ‘therapy was a safe and neutral space’; iii) ‘therapy prompted change in LTC management’; iv) ‘psychological awareness reduced isolation and increased control’; v) how physical ill health interacts with being able to participate in therapy’; and vi) ‘time-limited therapy did not always match service users’ illness trajectory’. The findings were discussed in relation to the values of psychological therapy for people with LTCs and the current way services are delivered to people experiencing co-morbid mental health difficulties. The research paper comprised a qualitative study using a Discursive Action Model approach, which aimed to develop an understanding of how practitioners and service users construct resources and preferred futures within solution-focused therapy sessions. Eight participant dyads were recruited, formed by pairs of practitioners and service users. Data were collected via audio recordings. Four discourses were highlighted: i) ‘practitioners' use of assumptions drew out resources’; ii) ‘explicit commentaries construct change’; iii) ‘de-contextualising for goal construction’; and iv) ‘removing the blame, effort and failure’. The results highlighted the discursive mechanisms which enabled construction of resources and goals. The trans-theoretical applicability of the discourses, clinical implications and recommendations for future research were discussed. The critical appraisal discusses the importance of discourse in clinical psychology practice. The drivers behind conducting this thesis, strengths and weaknesses of the study, and lastly reflections on future practice in clinical psychology were offered.
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Caldwell, Ellie M. "Experiences of living with incurable haematological malignancy : a research portfolio." Thesis, University of Edinburgh, 2014. http://hdl.handle.net/1842/9881.
Abstract:
This thesis follows the research portfolio format and is carried out in part fulfilment of the academic component of the Doctorate in Clinical Psychology at the University of Edinburgh. An abstract provides an overview of the entire portfolio thesis. Chapter One contains a systematic review of published research investigating the experience of living with incurable forms of haematological malignancy. Chapter Two is an empirical study exploring adults’ experiences of living with follicular lymphoma while being maintained under the ‘watch and wait’ protocol. Both chapters are prepared for submission to the European Journal of Cancer Care, and follow their author guidelines.
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Crabb, Brooke Evangeline. "Perceptions of the transition to assisted living as a function of psychological well-being, instrumental activities of daily living, and coping: A prospective study." CSUSB ScholarWorks, 2003. https://scholarworks.lib.csusb.edu/etd-project/2439.
Abstract:
This study examined the influence of three predictor variables on perceptions of assisted living: psychological well-being, functional status, and coping strategies. A multiple regression analysis was used to examine the influence of these factors on perceptions of the transition to assisted living.
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Meron, Tikva. "The meaning of advance directives in the lives of people with advanced long term conditions." Thesis, University of Nottingham, 2014. http://eprints.nottingham.ac.uk/14600/.
Abstract:
Background: Socio demographic and epidemiological change, together with the availability of medical technology, may prolong the process of dying. Antecedent control over end-of-life care (EoLC) may be sought by making an advance directive (AD). This option has been legalised in some countries including Israel, the setting of this study. In Israel, EoLC is set in the context of complex and interrelated religious and state regulations. Aim: To examine from a variety of perspectives, the experiences, beliefs and practices associated with the use of ADs in Israel, with a view to understand their role in the lives of patients with palliative care needs towards the EoL. Methods: The study was conducted in 2011, using mixed methods in two phases. The first phase involved qualitative methods to construct patient-centred case studies. Twenty seven participants (patients, relatives, physicians and a Rabbi) were interviewed. In phase 2, a survey examined health care providers’ (HCP) knowledge, attitudes and experiences regarding ADs. The final sample (n=72) of HCPs comprised: 57 nurses (79%), 8 physicians (11%), and 7 social workers (10%). Findings: This study promotes the understanding that ADs reflect a multitude of steps that are distinct but linked, as in a ‘relay’. The findings demonstrate complexity: patients’ ADs reflected their desire for autonomy but their decisions were often influenced by their relationships. In turn, relatives feared making mistakes in decision-making, while also feeling obligated to enact the patient’s wishes. Physicians reported finding it difficult to forgo active treatments and found communication with relatives about patients’ ADs challenging. The survey showed that while HCPs had typically positive attitudes towards, and some experience with ADs, they also perceived some barriers towards their use. Conclusion: ADs seem as an imperfect solution to the complexities surrounding EoLC planning, and additional solutions than those available today may be required.
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Franks, Jeannette Searle. "Residents in long-term care : a case-controlled study of individuals in nursing homes and assisted living in Washington State /." Thesis, Connect to this title online; UW restricted, 1996. http://hdl.handle.net/1773/11194.
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Crick, Michelle. "The Role of Regulation in the Care of Older People with Depression Living in Long-Term Care in Ontario." Thesis, Université d'Ottawa / University of Ottawa, 2019. http://hdl.handle.net/10393/39114.
Abstract:
In this thesis, the overall purpose was to investigate the role of regulation in the care of older people with depression living in long-term care (LTC).
The first manuscript in this thesis is a systematic scoping review protocol which was published in BMJ open, using Arksey and O'Malley's scoping review methodology as a guide. In the second manuscript which was submitted to BMC Geriatrics, a systematic scoping review was conducted, exploring the concepts of regulation, older people, depression, and long-term care. The search yielded 778 unique articles, of which 21 were included in the final analysis. The scoping review revealed that the highly regulated environment of LTC poses significant challenges which can influence the quality of care of residents with depression. Despite evidence of high prevalence and improved treatment, regulation appears to have failed to capture best practice and contemporary knowledge. The scoping review demonstrated a need for further empirical research to explore these issues.
Findings from this study, which explored the role of regulation on the quality of care of older people living with depression in LTC are presented, and which were the basis of the third manuscript, to the Canadian Journal of Aging. Using instrumental case study methodology, I interviewed managers, staff, informal carers and residents, and reviewed documents and clinical charts. I found that Ministry of Health and Long-Term Care regulations influenced strategic planning, educational priorities, resourcing decisions and direct care. The findings from the study suggest an alternative approach to regulation is needed in this sector, which places accountability for standards of care at a provincial level and which has a more supportive and collaborative approach to regulations. The research findings showed that the staff working in the LTC home are committed to the care of residents with depression, but they had little time to implement additional quality initiatives outside of the identified mandated areas. The study concludes by suggesting that in its current state, the care of residents with depression in LTC homes is not reflected in Ministry of Health and Long-Term Care regulations and inspections, which make little difference to the care of older people living with depression living in LTC.
In contributing to the existing knowledge and practice the study along with the findings from the scoping review, finds an alternative model of inspection could be implemented in partnership with the province. An alternative approach to inspection might adopt an extended approach to quality, along with an individualized approach to inspections to meet the requirements set out in regulation, but at the same time offering flexibility and a more collaborative approach to improving quality in the LTC sector.
Books on the topic "People living with a Long-Term Conditions":
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United States. Congress. House. Select Committee on Aging. Long term care and personal impoverishment: Seven in ten elderly living alone at risk : hearing before the Select Committee on Aging, House of Representatives, One Hundredth Congress, first session, November 9, 1987. Washington: U.S. G.P.O., 1988.
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United States. Congress. House. Select Committee on Aging., ed. Long term care and personal impoverishment: Seven in ten elderly living alone are at risk : a report. Washington: U.S. G.P.O., 1987.
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Landay, David S. Be prepared.: The complete financial, legal, and practical guide for living with a life-challenging condition. New York: St. Martin's Press, 1998.
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Forrest, Richard. Retirement living: A guide to housing alternatives. New York: Facts on File, 1991.
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Gertler, Paul. Investing cash transfers to raise long term living standards. Washington, D.C: World Bank, 2006.
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Great Britain. Parliament. House of Commons. Health Committee. Managing the care of people with long-term conditions. London: The Stationery Office, 2014.
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Costa-i-Font, Joan. Reforming long-term care in Europe. Hoboken, NJ: Wiley-Blackwell, 2011.
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Hancock, Ruth. The long term effects of being a carer. London: HMSO, 1994.
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Vermont. Dept. of Aging and Disabilities and United States. Administration on Aging, eds. Final report, Title IV grant: Building a community assisted independent living system. Waterbury, Vt. (103 South Main St., Waterbury 05671-2301): Vermont Dept. of Aging and Disabilities, 1997.
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Schmall, Vicki L. Living arrangements in later life. [Corvallis, Or?]: Oregon State University Extension Service, Washington State University Cooperative Extension, University of Idaho Cooperative Extension Service, and U.S. Dept. of Agriculture, 1987.
Book chapters on the topic "People living with a Long-Term Conditions":
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Treimer, Swantje, and Astrid Lorenz. "Challenges for Participation and Empowerment. Six Youth Dialogue Projects in Comparative Perspective." In The Future of Europe, 125–38. Cham: Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-29793-9_10.
Abstract:
AbstractYouth work aimed at empowering people to be active citizens is demanding in organisational and didactic terms, and because of diverse contexts and EU perceptions which have to be respected. This chapter compares the practical challenges encountered by organisers of six youth dialogue projects in post-socialist regions of the European Union funded by Erasmus+ in 2019. It identifies typical challenges, including varying attitudes toward the EU and EU citizenship, a low interest in politics, challenging living conditions, underdeveloped youth work opportunities in remote rural areas, the difficulties in reaching a target group, the unstable motivation of young people, a lack of prior knowledge, no systematic consideration of the youth dialogue results by decision-makers, the unclear long-term effects of the projects and problems with funding. It also discusses the findings in light of previous studies on youth work and European citizenship that did not specifically focus on our region of interest.
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Swash, Carolyn, Maddie White, and Michaela Parker. "Living with Long Term Conditions." In Stoma Care Specialist Nursing: A Guide for Clinical Practice, 315–30. Cham: Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-07799-9_18.
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Letherby, Gayle. "Researching people with long term conditions." In The Sociology of Long Term Conditions and Nursing Practice, 55–77. London: Macmillan Education UK, 2009. http://dx.doi.org/10.1007/978-1-137-02125-0_4.
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Cavrini, Giulia, Nadia Paone, and Evan Tedeschi. "Interventions for non-self-sufficiency – Focus on care and social policies in South Tyrol." In Proceedings e report, 83–88. Florence: Firenze University Press and Genova University Press, 2023. http://dx.doi.org/10.36253/979-12-215-0106-3.15.
Abstract:
Background: A growing body of scientific literature points to the consequences of various factors related to housing status on the well-being of individuals, particularly the elderly. This project aims to develop models that guarantee high-quality care for older people living in the province of Bolzano based on quantitative data analysis. Current changes within the family structure make it increasingly necessary to find new answers to the needs of the elderly. Based on these assumptions, we will investigate which support options encourage older people to live longer in their own homes. Methods: The sample is characterized by individuals residing in South Tyrol, living in their own homes and over 60 years of age. A 14-page questionnaire was administered in 2020 in German and Italian to 536 individuals. Utilizing a latent class model, we first tried to identify which factors act as resources and which as barriers for older people. In addition, using a quantile model, we investigated some aspects of satisfaction with the neighbourhood, measured with a 10-point scale. Results: The study shows that architectural barriers and harmful sanitary conditions are negatively associated with housing satisfaction. At the same time, social activities, a good relationship with the neighbourhood and safe living conditions act as resources. The role of neighbours and voluntary work increase housing satisfaction and ensure that older people stay in their homes as long as possible, playing a crucial role in this respect. With regards to the satisfaction with the neighbourhood, we can observe that the effect tends to be much stronger and more negative for individuals with an overall low neighbourhood frequency. Discussion: as in previous research, the objective indicators showed a more significant impact, while the positive results regarding some subjective factors deserve further investigation.
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Anders, Lisa H. "Promoting the Active Citizenship of Young People in Peripheral Regions: Recommendations for EU Key Players." In The Future of Europe, 225–35. Cham: Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-29793-9_19.
Abstract:
AbstractIn light of the growing political disengagement of youth, this chapter presents four recommendations on how the Commission and the European Parliament can improve EU youth policies to promote the active citizenship of young people in peripheral regions. Firstly, given the central role that information plays for active citizenship, EU actors need to better tailor knowledge transfer to the needs of young people. Secondly, they need to enhance citizenship competences and political efficacy through meaningful local participation projects that are linked to the EU-level. Thirdly, to guarantee the long-lasting effect of these projects, EU actors should make project funding more reliable, for instance by extending funding periods or lowering the hurdles for follow-up projects. Last but not least, the inclusiveness of bottom-up dialogue formats needs to be further improved to make sure that the EU youth policy goals are connected to the diverse living conditions and needs of young people across the Union.
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Hannan, Jon, Caylee Raber, and Michael Peterson. "Connecting Design Students with People Living in Long-Term Care." In Design for People Living with Dementia, 163–75. New York: Routledge, 2022. http://dx.doi.org/10.4324/9781003095460-13.
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Welch, Lindsay. "Caring for people with long-term conditions and multimorbidity." In Foundations for 21st-Century Health and Social Care, 138–55. London: Routledge, 2023. http://dx.doi.org/10.4324/9781003198338-11.
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Carrier, Judith. "Effective management of people with a long-term condition." In Managing Long-term Conditions and Chronic Illness in Primary Care, 100–117. 3rd ed. London: Routledge, 2022. http://dx.doi.org/10.4324/9781003020653-7.
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Viganò, Paola, Bertrand Plewinski, Guillaume Vanneste, and Nicolas Willemet. "Peterbos: Living in the Park, Inhabiting the City." In The Urban Book Series, 155–74. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-031-19748-2_11.
Abstract:
AbstractThis paper explores the urban issues underlying the design experience in the Peterbos neighbourhood, Anderlecht, Brussels-Capital Region. It presents four themes, based on the living experiment of this urban project, which consists of a master plan for the renovation of public spaces (Studio Paola Viganò and vvv architecture urbanisme 2020). It starts with the critical perspective of a ‘project for the ground’. As an embodiment of modernity, collective living in high-rise buildings has made it possible to free up a large area of ground for use as a shared landscape. In Peterbos, this large ground has aged, deteriorated, and become disconnected from the city. Up until now, these characteristics have made Peterbos a place where all the ‘misery in the world’ (Bourdieu, La misère du Monde. Seuil, 1993) has been concentrated. A long transformation process is now underway: the renovation of housing and public spaces proposes new living conditions and a new image for the district. However, there are still questions about the appropriateness of such an investment in the absence of a radical rediscussing of what makes Peterbos an enclave for the poorest. Our analysis starts with the ground of Peterbos and its relationship with water flows, biodiversity, and the rest of the city. The modern project focuses on the liberation of the public ground. We see the Peterbos project as an opportunity for critical reinterpretation. Second, we reconsider the district’s position in the city and the need to reverse feelings inside and outside, aiming to renew relations with the metropolis. Third, a broader understanding of the environment is necessary in order to take part in an ecological transition. The notion of diversity and mixed-use as a fertile framework for emancipation and individual initiative is then discussed. Finally, in the conclusions, having explored the progetto di suolo as a manifold agent and pushed it to its limits, we conclude by examining the ‘stone guest’. Indeed, urbanism and investment in urban renewal do not represent an autonomous and self-responsible solution to the social and urban challenges society is currently facing. The design of public space represents a wide, but also a narrow, space for manoeuvre. When structural changes are implied, they do not tackle the basis of inequality concentrated at this site, linked to decisions made in the past that do not show the expected results. Interaction with economic policies is still too weak. We choose to use clear but sometimes burdensome vocabulary to discuss these spatial and social matters, not escaping the difficulty of the topic. All the same, urban and landscape designers have a responsibility and the possibility to assert the original meaning of politics as the organization of public life in the city, more broadly addressing actions in space and measures to reduce inequality and restore the dignity of the people who live there.
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Andrikopoulou, Elisavet, and Philip Scott. "What Personal Health Records are People with Long-Term Conditions Using?" In Communications in Computer and Information Science, 3–9. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-031-06417-3_1.
Conference papers on the topic "People living with a Long-Term Conditions":
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Zegarac Leskovar, Vesna, and Vanja Skalicky Klemenčič. "Inclusive design: comparing models of living environments for older people." In 14th International Conference on Applied Human Factors and Ergonomics (AHFE 2023). AHFE International, 2023. http://dx.doi.org/10.54941/ahfe1003339.
Abstract:
Many older adults who are no longer able to live independently due to a combination of impairments need to live in living environments that are adapted to their health conditions. Generally, these are various types of housing, such as nursing or retirement homes, skilled nursing facilities, assisted living facilities, residential care homes, palliative or rehabilitation centres, etc., which can be referred to as long-term care living environments. Although the recent trend in Europe has been to allow older adults to remain living at home as long as possible, the demand for institutionalised forms of long-term care living environments is quite high, and many older adults spend a significant portion of their lives in these settings. In general, the quality of the living environment has a significant impact on the physical and mental health of residents. Therefore, it is important to explore living environments for older adults that not only allow basic existential needs to be met, but also provide humane living conditions. Concepts of long-term care living environments vary from country to country and depend largely on the characteristics of each social and health care system. Among the various concepts of living environments for older adults, nursing homes house a relatively large proportion of the world's population aged 65 and older. The development of nursing home typologies has evolved from traditional to alternative forms which could be illustrated by five-generations model of nursing homes in Europe, whereby alternative types, fourth- and fifth-generation models provide residents with a higher quality of life due to specific architectural features and functional adaptations. The aim of this paper is to introduce some concepts of long-term care living environments in the U.S. and Europe and to analyse models of third-, fourth- and fifth-generation nursing homes, especially the architectural design features that can strongly influence the quality of life of older adults.
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Morris, Stephanie, Josephine Wildman, Kate Gibson, Suzanne Moffatt, and Tessa Pollard. "P109 Managing disruption at a distance: unequal experiences of people living with long-term conditions during the COVID-19 pandemic." In Society for Social Medicine Annual Scientific Meeting Abstracts. BMJ Publishing Group Ltd, 2021. http://dx.doi.org/10.1136/jech-2021-ssmabstracts.195.
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Shao, R., Y. Cao, and L. Hao. "STUDY OF DAYLIGHT HEALING FOR LONG-TERM QUARANTINED OCCUPANTS DURING THE COVID-19 PANDEMIC." In CIE 2023 Conference. International Commission on Illumination, CIE, 2023. http://dx.doi.org/10.25039/x50.2023.po036.
Abstract:
During the COVID-19 pandemic (2020-2023), people experienced long-term quarantine. The residential conditions have a substantial impact on our physical and mental health, including the notable impact of light on sleep and mood. The study collected data from 1118 subjects during the epidemic through questionnaires to analyse the sleep and mood problems and lighting needs of the residents. The physical building environment of the space where the long-term home health management people lived is normal, but with the increase of isolation time, uncertainty increases, so that people living in this space encounter mild to moderate stress stimulation, resulting in shortened sleep duration, decreased sleep quality and emotional anxiety, and there is a trend of gradual aggravation over time, which requires supportive improvement. It also studied the sleep and mood improvement effects by natural light on the subjects in Shanghai to provide a feasible light healing solution for the long-term quarantined occupants.
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Hayanga, Brenda, Mai Stafford, and Laia Bécares. "OP92 Ethnic inequalities in healthcare use and care quality among people with multiple long term health conditions living in the United Kingdom: a systematic review and narrative synthesis." In Society for Social Medicine Annual Scientific Meeting Abstracts. BMJ Publishing Group Ltd, 2022. http://dx.doi.org/10.1136/jech-2022-ssmabstracts.91.
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Khayamian Esfahani, Bahar, Daniel Ganji, Emily Louise Mann, and Jelena Milisavljevic Syed. "Ageing and medication adherence: An overview of key challenges, technologies, and opportunities." In 13th International Conference on Applied Human Factors and Ergonomics (AHFE 2022). AHFE International, 2022. http://dx.doi.org/10.54941/ahfe1002118.
Abstract:
A growing ageing population and the rise in the number of people living with long-term conditions lead to increasing demand for resources to support healthcare in a pandemic impacted world. Medication self-management or adherence remains a major challenge that creates additional pressure on the global healthcare system. Poor medication management puts the patients at risk of poor health outcomes, increased mortality and burden on the National Health Service (NHS) in the United Kingdom. In this paper, the authors provide an overview of medication adherence and discuss its underlying challenges and emerging opportunities in the smart packaging sector. This includes exploring the relevant challenges for older people’s medication self-management through interviews with medical experts. Finally, conclusions and an outlook are presented towards future opportunities for personalized product-service systems of the future.
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Ivanova, Elena Georgievna. "ATMOSPHERIC PRESSURE AS A RISK FACTOR FOR THE DEVELOPMENT OF CARDIOVASCULAR DISEASES IN THE FAR NORTH." In Themed collection of papers from Foreign International Scientific Conference «Trends in the development of science and Global challenges» by HNRI «National development» in cooperation with AFP. September 2023. – León (Nicaragua). Crossref, 2023. http://dx.doi.org/10.37539/230928.2023.48.86.013.
Abstract:
The harsh climatic conditions of the Far North and the Arctic place serious demands on the adaptive abilities of the organism, the study of which allowed the formation of several theories that determine the mechanisms of adaptation. Later, a term was put forward defining the pathogenesis of these changes, the phenomenon of "northern tension or polar stress". Currently, more and more often in the literature one can find such a definition: "diagnosis: Arctic", which characterizes the condition of people living in harsh climatic conditions.
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Huiyi, Xia, Nankai Xia, and Liu Liu. "Urban living environment assessment index system based on psychological security." In 55th ISOCARP World Planning Congress, Beyond Metropolis, Jakarta-Bogor, Indonesia. ISOCARP, 2019. http://dx.doi.org/10.47472/lvyv5472.
Abstract:
With the development of urbanization and the continuous development, construction and renewal of the city, the living environment of human beings has also undergone tremendous changes, such as residential community environment and service facilities, urban roads and street spaces, and urban public service formats. And the layout of the facilities, etc., and these are the real needs of people in urban life, but the characteristics of these needs or their problems will inevitably have a certain impact on the user's psychological feelings, thus affecting people's use needs. Then, studying the ways in which urban residents perceive changes in the living environment and how they perceive changes in psychology and emotions will have practical significance and can effectively assist urban management and builders to optimize the living environment of residents. This is also the long-term. One of the topics of greatest interest to urban researchers since then. In the theory of demand hierarchy proposed by American psychologist Abraham Maslow, safety is the basic requirement second only to physiological needs. So safety, especially psychological security, has become one of the basic needs of people in the urban environment. People's perception of the psychological security of the urban environment is also one of the most important indicators in urban environmental assessment. In the past, due to the influence of technical means, the study of urban environmental psychological security often relied on the limited investigation of a small number of respondents. Low-density data is difficult to measure the perceptual results of universality. With the leaping development of the mobile Internet, Internet image data has grown geometrically over time. And with the development of artificial intelligence technology in recent years, image recognition and perception analysis based on machine learning has become possible. The maturity of these technical conditions provides a basis for the study of the urban renewal index evaluation system based on psychological security. In addition to the existing urban visual street furniture data obtained through urban big data collection combined with artificial intelligence image analysis, this paper also proposes a large number of urban living environment psychological assessment data collection strategies. These data are derived from crowdsourcing, and the collection method is limited by the development of cost and technology. At present, the psychological security preference of a large number of users on urban street images is collected by forced selection method, and then obtained by statistical data fitting to obtain urban environmental psychology. Security sense training set. In the future, when the conditions are mature, the brainwave feedback data in the virtual reality scene can be used to carry out the machine learning of psychological security, so as to improve the accuracy of the psychological security data.
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Zhanyang, Liu, Tao Naigui, Chen Yang, and Tao Yunliang. "Radiation Dose of Airborne Radioactive Material in Nuclear Power Plant Conventional Operating Conditions." In 2017 25th International Conference on Nuclear Engineering. American Society of Mechanical Engineers, 2017. http://dx.doi.org/10.1115/icone25-67007.
Abstract:
In this paper, air-immersion, ground deposition, ingestion and inhalation of airborne radioactive effluent released from nuclear power plant under normal operating conditions is studied according to the atmospheric diffusion and ground deposition patterns and parameters that are suitable for the environmental characteristics of the nuclear power plant site, and the public living habits and food chain parameters around the site. Based on the Gaussian plume model, with a radius of 80 kilometers we divide 1, 2, 3, 5, 10, 20, 30, 40,50,60,70,80 km concentric circles around the nuclear power plant site. The 16 compass azimuth axial are the sector center-line, forming a total of 192 sub-regions, atmospheric diffusion of radionuclides is simulated in the assessment area of the region. The annual average atmospheric dispersion factor is calculate by using hourly observation data of wind direction, rainfall and atmospheric stability of the meteorological tower and the ground station, taking into account the ground reflection during transmission, the the decay of the radionuclide, and the loss brought by the wet and dry settling that caused by gravity and rain washing. The airborne radioactive effluent is deposited on the ground or plant surface by dry settling and wet settling in the process of atmospheric environment changing and diffusion. Radioactivity of per unit area brought about by dry settling and rain fall settling is described by the deposition coefficient and deposition speed. The long-term ground deposition factor and ground annual concentration in the evaluation area were calculated under the situation of airborne radioactive effluents in the nuclear power station mixing emission, and the calculated result of radionuclide concentration in the air and soil was compared with the natural background value and the actual monitoring value. Based on the radionuclide deposited on the ground and air through the terrestrial food radioactive transfer mode, together with a large number of environmental surveys data on the population distribution, agriculture, farming, animal husbandry and people’s living and eating habits in the 80km around nuclear station, combing with the actual situation of nuclear power station, the calculation model is amended accordingly. Using reasonable dose mode to calculate the maximum individual and entire public effective dose of the residents in the assessment area, and the results will be compared with other human activities. By comparing the calculated results of radionuclide concentration and radiation dose, it provide quantitative reference information for us understanding the influence of nuclear power station on the surrounding radiation environment, and to meet the requirements of nuclear power plant influence on surrounding environment and people under normal operating conditions.
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Yonita, Maria Regina Tri, Setyo Sri Rahardjo, and Bhisma Murti. "Effect of Social Support on the Quality of Life of People Living with HIV/AIDS: Meta Analisis." In The 7th International Conference on Public Health 2020. Masters Program in Public Health, Universitas Sebelas Maret, 2020. http://dx.doi.org/10.26911/the7thicph.01.64.
Abstract:
Background: Social support is an interpersonal relationship where the social environment provides assistance in the form of emotional attention, instrumental assistance, providing information, appreciation or assessment to individual sufferers. Lack of social support will lead to a decline in physical and mental conditions, so that it can cause a person to be lazy to carry out routine daily self-care activities, as a result people with HIV/AIDS do not adhere to treatment programs. If people with HIV/AIDS do not regularly take anti-retroviral (ARV) for a long time, it will greatly affect the quality of life of people with HIV/AIDS. This study aims to examine the effect of social support on quality of life in people with HIV/AIDS. Subject and Method: Meta analysis was conducted based on PRISMA guidelines on article with randomized controlled trial design which published in 2000-2020. The meta-analysis was carried out by systematically reviewing articles from Google Scholar, PubMed, and Springer Link. The articles used in this research are articles that have been published from 2010-2020. The keywords to find this article are as follows: “social support” AND “quality of life” OR “risk factor” AND “quality of life” OR “quality of life” AND “randomized controlled trial”. Articles are collected using the PRISMA diagram, and analyzed using the Review Manager 5.4 application. Results: There were 6 articles were reviewed in this study which met the criteria. Studies show that social support (OR = 3.14; 95% CI = 1.42 to 6.91; p <0.001) improves quality of life. Conclusion: Social support improves quality of life in people with HIV / AIDS. Keywords: social support, quality of life, people living with HIV / AIDS. Correspondence: Maria Regina Tri Yonita, Master Program in Public Health, Universitas Sebelas Maret, Jl. Ir. Sutami 36A, Surakarta 57126, Central Java, Indonesia. Email: mreginatry@gmail.com
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Gqwede, Mzingisi. "Promoting Lifelong Learning at Community Learning and Development Centres in Namibia." In Tenth Pan-Commonwealth Forum on Open Learning. Commonwealth of Learning, 2022. http://dx.doi.org/10.56059/pcf10.7536.
Abstract:
The Namibian Basic Education Act 3 of 2020 mandates lifelong learning for all citizens to acquire new skills required in a knowledge-based economy. As part of the quantitative research approach, the researcher conducted a survey to determine what skills adult learners and out-of-school youth need. Using the findings, the researcher was able to devise new approaches for developing initiatives to aid people in acquiring these abilities in their local communities. Purposive sampling was used to select all participants. The researcher used simple statistical processes such as frequency distribution tables and percentages to analyse the data. Participants indicated the need to learn hydroponics, poultry farming, goat husbandry, tailoring, and baking, among other skills. It is worth noting that the majority of those who participated in the study were females. The study also discovered that community projects require government support to succeed. Following the findings, all Community Learning and Development Centres (CLDCs) in all regions should be reformed to ensure that skills development is executed effectively in the communities. CLDCs are well-known for serving as focal points for community-based social development initiatives. An established and managed CLDC can be a long-term growth engine and a bridge to improved living conditions.
Reports on the topic "People living with a Long-Term Conditions":
1
Selph, Shelly S., Andrea C. Skelly, Ngoc Wasson, Joseph R. Dettori, Erika D. Brodt, Erik Ensrud, Diane Elliot, et al. Physical Activity and the Health of Wheelchair Users: A Systematic Review in Multiple Sclerosis, Cerebral Palsy, and Spinal Cord Injury. Agency for Healthcare Research and Quality (AHRQ), October 2021. http://dx.doi.org/10.23970/ahrqepccer241.
Abstract:
Objectives. Although the health benefits of physical activity are well described for the general population, less is known about the benefits and harms of physical activity in people dependent upon, partially dependent upon, or at risk for needing a wheelchair. This systematic review summarizes the evidence for physical activity in people with multiple sclerosis, cerebral palsy, and spinal cord injury regardless of current use or nonuse of a wheelchair. Data sources. We searched MEDLINE®, CINAHL®, PsycINFO®, Cochrane CENTRAL, Embase®, and Rehabilitation and Sports Medicine Source from 2008 through November 2020, reference lists, and clinical trial registries. Review methods. Predefined criteria were used to select randomized controlled trials, quasiexperimental nonrandomized trials, and cohort studies that addressed the benefits and harms of observed physical activity (at least 10 sessions on 10 different days of movement using more energy than rest) in participants with multiple sclerosis, cerebral palsy, and spinal cord injury. Individual study quality (risk of bias) and the strength of bodies of evidence for key outcomes were assessed using prespecified methods. Dual review procedures were used. Effects were analyzed by etiology of impairment and physical activity modality, such as treadmill, aquatic exercises, and yoga, using qualitative, and when appropriate, quantitative synthesis using random effects meta-analyses. Results. We included 146 randomized controlled trials, 15 quasiexperimental nonrandomized trials, and 7 cohort studies (168 studies in 197 publications). More studies enrolled participants with multiple sclerosis (44%) than other conditions, followed by cerebral palsy (38%) and spinal cord injury (18%). Most studies were rated fair quality (moderate risk of bias). The majority of the evidence was rated low strength. • In participants with multiple sclerosis, walking ability may be improved with treadmill training and multimodal exercise regimens that include strength training; function may be improved with treadmill training, balance exercises, and motion gaming; balance is likely improved with postural control exercises (which may also reduce risk of falls) and may be improved with aquatic exercises, robot-assisted gait training, treadmill training, motion gaming, and multimodal exercises; activities of daily living may be improved with aquatic therapy; sleep may be improved with aerobic exercises; aerobic fitness may be improved with multimodal exercises; and female sexual function may be improved with aquatic exercise. • In participants with cerebral palsy, balance may be improved with hippotherapy and motion gaming, and function may be improved with cycling, treadmill training, and hippotherapy. • In participants with spinal cord injury, evidence suggested that activities of daily living may be improved with robot-assisted gait training. • When randomized controlled trials were pooled across types of exercise, physical activity interventions were found to improve walking in multiple sclerosis and likely improve balance and depression in multiple sclerosis. Physical activity may improve function and aerobic fitness in people with cerebral palsy or spinal cord injury. When studies of populations with multiple sclerosis and cerebral palsy were combined, evidence indicated dance may improve function. • Evidence on long-term health outcomes was not found for any analysis groups. For intermediate outcomes such as blood pressure, lipid profile, and blood glucose, there was insufficient evidence from which to draw conclusions. There was inadequate reporting of adverse events in many trials. Conclusions. Physical activity was associated with improvements in walking ability, general function, balance (including fall risk), depression, sleep, activities of daily living, female sexual function, and aerobic capacity, depending on population enrolled and type of exercise utilized. No studies reported long-term cardiovascular or metabolic disease health outcomes. Future trials could alter these findings; further research is needed to examine health outcomes, and to understand the magnitude and clinical importance of benefits seen in intermediate outcomes.
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Joudaki, Hossein. Does mobile phone messaging improve self- management of long-term illnesses? SUPPORT, 2017. http://dx.doi.org/10.30846/170412.
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Rosato-Scott, Claire, Dani J. Barrington, Amita Bhakta, Sarah J. House, Islay Mactaggart, and Jane Wilbur. How to Talk About Incontinence: A Checklist. Institute of Development Studies (IDS), October 2020. http://dx.doi.org/10.19088/slh.2020.006.
Abstract:
Incontinence is the medical term used to describe the involuntary loss of urine or faeces. Women, men, girls, boys and people of all genders, at any age, can experience incontinence. A person with incontinence can experience leakage occasionally, regularly or constantly; and leakage can happen at any time, day or night. A person may also experience leakage of urinary or faecal matter due to not being able to get to the toilet in time or not wanting to use the toilet facilities available. This is known as social, or functional, incontinence. In many low- and middle-income countries (LMICs) understanding of incontinence is still in its early stages: the term ‘incontinence’ may not be known, knowledge of the condition is rare, and the provision of support is lacking. Those who experience incontinence may face stigma due to having the condition, and this may affect their willingness or confidence to talk about it. There is a need to better understand incontinence in LMICs, and how best to support people living with the condition to improve their quality of life. This requires having conversations with individuals that experience the condition, and with individuals who care for those who do: they will have the lived experiences of what it means to live with incontinence practically, emotionally and socially for them and their families. Living with incontinence can have a range of impacts on the people living with it and their carers. These include increased stress and distress; additional needs for water and soap; and restricted ability to join in community activities, school or work. Living with incontinence can also lead to a range of protection issues. The potential challenges that people face may be quite diverse and may vary between people and households. The checklist below, and corresponding page references to ‘Incontinence: We Need to Talk About Leaks’ can be used to increase your understanding of incontinence and the options available to support people living with the condition; and provide guidance on how to have conversations to understand how best to support people living with incontinence in your area.
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Rosato-Scott, Claire, Dani J. Barrington, Amita Bhakta, Sarah J. House, Islay Mactaggart, and Wilbur Jane. How to Talk About Incontinence: A Checklist. Institute of Development Studies (IDS), October 2020. http://dx.doi.org/10.19088/slh.2020.012.
Abstract:
Incontinence is the medical term used to describe the involuntary loss of urine or faeces. Women, men, girls, boys and people of all genders, at any age, can experience incontinence. A person with incontinence can experience leakage occasionally, regularly or constantly; and leakage can happen at any time, day or night. A person may also experience leakage of urinary or faecal matter due to not being able to get to the toilet in time or not wanting to use the toilet facilities available. This is known as social, or functional, incontinence. In many low- and middle-income countries (LMICs) understanding of incontinence is still in its early stages: the term ‘incontinence’ may not be known, knowledge of the condition is rare, and the provision of support is lacking. Those who experience incontinence may face stigma due to having the condition, and this may affect their willingness or confidence to talk about it. There is a need to better understand incontinence in LMICs, and how best to support people living with the condition to improve their quality of life. This requires having conversations with individuals that experience the condition, and with individuals who care for those who do: they will have the lived experiences of what it means to live with incontinence practically, emotionally and socially for them and their families. Living with incontinence can have a range of impacts on the people living with it and their carers. These include increased stress and distress; additional needs for water and soap; and restricted ability to join in community activities, school or work. Living with incontinence can also lead to a range of protection issues. The potential challenges that people face may be quite diverse and may vary between people and households. The checklist below, and corresponding page references to ‘Incontinence: We Need to Talk About Leaks’ can be used to increase your understanding of incontinence and the options available to support people living with the condition; and provide guidance on how to have conversations to understand how best to support people living with incontinence in your area.
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Vallerani, Sara, Elizabeth Storer, and Costanza Torre. Key Considerations: Equitable Engagement to Promote COVID-19 Vaccine Uptake among Undocumented Urban Migrants. SSHAP, May 2022. http://dx.doi.org/10.19088/sshap.2022.013.
Abstract:
This brief sets out key considerations linked to the promotion of COVID-19 vaccine uptake among undocumented migrants residing in Rome, Italy. We focus on strategies to equitably distribute COVID-19 vaccines. Evidence from Italy is applicable to other contexts where vaccine administration is tied to “vaccine passports” or “immunity passes”. Undocumented migrants have been considered as some of the “hardest to reach” groups to engage in COVID-19 vaccination outreach. This brief uses the term undocumented migrant or migrant for brevity, but we refer to people living without formal Italian citizenship, refugee status or right to remain in Italy. This brief explores the everyday context of undocumented migrants lives, and how experiences of the COVID-19 pandemic have exacerbated difficult conditions. It links emerging vulnerabilities to perceptions of vaccines, and we suggest that migrants orientate themselves towards the vaccines within frameworks which prioritise economic survival. In many cases, migrants have accepted a COVID-19 vaccine to access paid employment, yet this has often generated mistrust in the state and healthcare system. Accordingly, this brief considers how vaccines can be distributed equitably to boost trust and inclusion in the post-pandemic world. This brief draws primarily on the ethnographic evidence collected through interviews and observations with undocumented migrants in Rome, along with civil society representatives and health workers between December 2021 and January 2022. This brief was developed for SSHAP by Sara Vallerani (Rome Tre University), Elizabeth Storer (LSE) and Costanza Torre (LSE). It was reviewed by Santiago Ripoll (IDS, University of Sussex), with further reviews by Paolo Ruspini (Roma Tre University) and Eloisa Franchi (Université Paris Saclay, Pavia University). The research was funded through the British Academy COVID-19 Recovery: G7 Fund (COVG7210058). Research was based at the Firoz Lalji Institute for Africa, London School of Economics. The brief is the responsibility of SSHAP.
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Trachunthong, Deondara, Suchintana Chumseng, Worrayot Darasawang, and Mathuros Tipayamongkholgul. Risk Factors and National Burden of Selected Noncommunicable Diseases in People Living with HIV: Systematic Review, Meta-Analysis and, Disability-Adjusted Life Years protocol. INPLASY - International Platform of Registered Systematic Review and Meta-analysis Protocols, September 2022. http://dx.doi.org/10.37766/inplasy2022.9.0018.
Abstract:
Review question / Objective: 1. Are the prevalence/incidence of four major groups of NCDs including MetS, DM, CVD, and CKD different among adults with and without HIV infection? 2. Are there relationships between HIV status, ART (ART use, short and long-term effects of ART), traditional risk factors (BMI), and the development of four major NCDs? 3. Does the trend of NCDs burden attributable to HIV in Thailand increase according to the time? Information sources: 1. Electronic databases: the following databases will be searched: PubMed/Medline, Scopus, Embase, Cochrane Library Thai journals online (ThaiJO), Thai digital collection (TDC), Thai journal index (TJI), and Thai-journal citation index (TCI). 2. Authors or experts in the field will be contacted through emails for any relevant data, results and information.
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Okisatari, Mahesti, and Upalat Korwatanasakul. Leaving No One Behind in Carbon Neutrality Strategies: Insights from Developing Countries in Asia and the Pacific. United Nations University Institute for the Advanced Study of Sustainability, April 2023. http://dx.doi.org/10.53326/zfhc4987.
Abstract:
This policy brief offers strategies to operationalise the principle of 'leaving no one behind' (LNOB) in climate policies, focusing on developing countries. It is based on key areas of progress identified in the long-term low greenhouse gas emission development strategies (LTSs) of eight developing countries in Asia and the Pacific. Recommendations: (i) sustain decent work and reinforce labour rights to mitigate disruptions caused by the transition; (ii) combine climate initiatives with social protection measures to maintain an adequate standard of living for all; (iii) promote investments in inclusive climate projects and establish financial inclusion regulations; and (iv) establish a people-centred and gender-sensitive monitoring, reporting, and evaluation process.
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Fang, Mei Lan, Marianne Cranwell, Becky White, Gavin Wylie, Karen Lok Yi Wong, Kevin Harter, Lois Cosgrave, et al. Aging-in-Place at the End-of-Life in Community and Residential Care Contexts. University of Dundee, January 2023. http://dx.doi.org/10.20933/100001274.
Abstract:
Population aging is a global phenomenon that has presented capacity and resource challenges for providing supportive care environments for older people in later life (Bone et al., 2018, Finucane et al., 2019). Aging-in-place was introduced as a policy driver for creating supportive environmental and social care to enable individuals to live independently at home and in the community for as long as possible. Recently, there has been a move towards offering care for people with a terminal illness at home and in the community (Shepperd et al., 2016); and when appropriate, to die in supportive, home-like environments such as care homes (Wada et al., 2020). Aging-in-place principles can, thus and, should be extended to enabling supportive, home-like environments at the end-of-life. Yet, first, we must consider the appropriateness, availability and diversity of options for community-based palliative and end-of-life care (PEoLC), in order to optimise supports for older people who are dying at home or within long-term/residential care environments. Globally, across places with similar health and social care systems and service models such as in Scotland and in Canada, community-based PEoLC options are currently not uniformly available. Given that people entering into long-term/residential care homes are increasingly closer to the end of life, there is now an even greater demand for PEoLC provision in residential facilities (Kinley et al., 2017). Although most reported deaths occur within an inpatient hospital setting (50%), the proportion of overall deaths in a care home setting is projected to increase from 18% to 22.5% (Finucane et al, 2019). This suggests that long-term/residential care homes are to become the most common place of death by 2040, evidencing the need to develop and sustain appropriate and compassionate PEoLC to support those who are able to die at home and those living in residential care facilities (Bone et al., 2018; Finucane et al., 2019). This research initiative is premised on the notion that aging in place matters throughout the life-course, including at the end-of-life and that the socio-environmental aspects of care homes need to enable this.
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Polakowski, Michał, and Emma Quinn. Responses to irregularly staying migrants in Ireland. ESRI, May 2022. http://dx.doi.org/10.26504/rs140.
Abstract:
Irregularly staying migrants are more likely to face material deprivation, instability and are more vulnerable to exploitation and crime than legal residents (FRA, 2011). Ultimately, they may face deportation to their country of origin. The fear of detection and deportation can lead to underutilisation of public services (Vintila and Lafleur, 2020). The recent introduction of the Regularisation of Long-Term Undocumented Migrants Scheme (discussed below) is a major policy development that should improve the situation of many people living in Ireland. However, it is likely that irregular migration will persist, and related policy challenges will remain. This report aims to provide an overview of the situation of irregularly staying migrants in Ireland, including access to public services, and to outline major public debates and policy measures introduced to address related issues.
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Howard, Joanna, Oluwafunmilayo Para-Mallam, Plangsat Bitrus Dayil, and Philip Hayab. Vulnerability and Poverty During Covid-19: Religious Minorities in Nigeria. Institute of Development Studies (IDS), November 2021. http://dx.doi.org/10.19088/creid.2021.013.
Abstract:
The Covid-19 pandemic has had direct and indirect effects on religiously marginalised groups, exacerbating existing inequities and undermining ambitions for those ‘furthest behind’ to be reached and supported through the Sustainable Development Goals (SDGs). The intersection of religious identity, socioeconomic status, geographic location, gender, and age compound vulnerability to violence and its impacts. This policy briefing, written by Dr Joanna Howard, Professor Oluwafunmilayo Para-Mallam, Dr Plangsat Bitrus Dayil, and Dr Philip Hayab, draws on research into the experiences of the pandemic by religious minorities living in Kaduna and Plateau states in Nigeria and finds that the pandemic deepened pre-existing ethno-religious fault lines. Exacerbated by ongoing insecurity, it contributed to increased poverty, with women particularly affected, and worsening mental health, with people experiencing fear, frustration, and depression. There are also long-term consequences for development; for example, on children’s education.