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1
Tumelo, Sylvia Mmamoseka 1953. "COMPLIANCE AND FAMILY INVOLVEMENT WITH TUBERCULOSIS PATIENTS IN BOTSWANA." Thesis, The University of Arizona, 1986. http://hdl.handle.net/10150/275566.
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Ip, Lai-yin Frances. "Social support systems and coping: family members of terminal cancer patients." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1985. http://hub.hku.hk/bib/B29648191.
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Chan, Chun-wai Raymond. "Bereavement of spouses of cancer patients." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2000. http://hub.hku.hk/bib/B29726694.
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Davidson, Melissa J. "Shared experiences : a qualitative study of the impact of a diagnosis of terminal illness on family functioning." Thesis, McGill University, 2007. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=112611.
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The purpose of this qualitative research is to provide an in-depth exploration of the impact that a diagnosis of a terminal illness has on family functioning. The goal is to gain insight into adult children's personal experience when a parent is diagnosed with a terminal form of cancer. This study explores how families respond, adapt and cope when this specific family member is diagnosed with a terminal illness. It also explores any significant changes in relationships within the family and any shifts in the roles of the members and how they adjusted to such shifts.The study is informed by a phenomenological paradigm and used an explorative, qualitative design, which included semi-structured interviews. Participant text and "found poetry" is used in order to present a more accurate account of the participants' experiences. Found poetry provides an opportunity to hear the participant's voices by taking direct quotes from their transcripts and forming them into a poem. Themes of denial, anger, helplessness, hope and anticipatory grief/mourning are portrayed in the findings of this study. The difficult emotional dilemmas and tensions that people have to work through when faced with a family member dying are discussed. The realization of the loss of future relationships will be identified as one of the greatest impacts of the illness. This study shows the lack of professional supports and resources that are available for each participant's family in being faced with the diagnosis of a terminal illness, and will address a needed consideration for social work practice.
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Chung, Yin-kwan Carol. "Stress, appraisal, coping and perceived social support as predictors of mental health outcomes of spouse-caregivers of persons withdementia." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1998. http://hub.hku.hk/bib/B29697888.
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Veach, Theresa A. "Family adaptation to medical illness inventory (FAMILLI) : the development of a measure for second order patients." Virtual Press, 1999. http://liblink.bsu.edu/uhtbin/catkey/1180776.
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Although there are many instruments available to assess patient adaptation to cancer, there are few instruments which can be used to assess family members of cancer patients' adaptation to cancer. The present study was conducted to determine the internal structure and factor reliability estimates of a new instrument, the Family Adaptation to Medical ILLness Inventory (FAMILLI). The analysis of the FAMILLI was conducted using respondents (N=139) with family members of cancer. Respondents' ages ranged from 18 to 70 and many types of cancer, such as lung, breast, colorectal, prostate, brain, and cervical, were represented. The study was conducted in two phases, the pilot study and the major investigation.During the pilot study, respondents from a midwestern university setting and the oncology department at a midwestern hospital (N=28) completed the FAMILLI and participated in feedback groups. The pilot study helped to refine the demographic information sheet and to reduce the number of questions on the FAMILLI from 55 to 35 questions. In addition, interesting demographic questions were added to the demographics forms.The major study (N= 117) was conducted to test the initial factor structure of the FAMILLI and to test convergent and discriminant validity. A principal components extraction yielded a six factor solution which was judged best in terms of statistical structure and theoretical parsimony. The six factors to emerge were 1) factor one, "personal needs," 2) factor two, "attitudes toward leisure and work activities," 3) factor three, "anger and blame," 4) factor four, "receiving support," 5) factor five, "seeking medical information," and 6) factor six, "family responsibilities."Convergent and discriminant validity were tested using the Cancer Behavior Inventory (CBI-B) and the Satisfaction With Life Scale (SWLS). It was hypothesized that the FAMILLI would demonstrate convergent validity with the CBI-B. Four of the six factors (factors 2, 3, 4, and 5) significantly correlated with the CBI-B. The SWLS was used to test discriminant validity. Five of the six factors (factors 1, 2, 3, 4, and 6) correlated significantly with the SWLS. Thus, the FAMILLI did not demonstrate discriminant validity with an instrument used to measure global assessment of quality of life. Further research is needed to test the reliability and validity of the FAMILLI.Department of Counseling Psychology and Guidance Services
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陳袁美玉 and Yuen Mei-yuk Peggy Chan. "Problems encourtered by discharged mentally ill patients and their families: case study of four young maleschizophrenics and their families." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1985. http://hub.hku.hk/bib/B31974338.
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Liu, Chak-chun Jeffrey. "Family communication, coping and psychological health of cancer patients in Hong Kong." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1998. http://hub.hku.hk/bib/B29726360.
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Dhanbhoora, Khushnud A. "Spousal communication among patients with cancer." Virtual Press, 2007. http://liblink.bsu.edu/uhtbin/catkey/1364940.
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Using primarily grounded theory methodology, the purpose of this study was to understand how the experience of cancer affects communication patterns in married couples where one spouse has been diagnosed with cancer. Nine couples, five in which women were diagnosed with cancer and four in which men were diagnosed with cancer, were interviewed individually. They were asked questions pertaining to changes in their relationship and communication patterns since the diagnosis of cancer. Potential barriers and facilitators to communication were explored. Additionally, gender differences that could play a role in these marital communication patterns were examined. Participants were also administered a measure of mood states, the Profile of Mood States (POMS) and, a measure of family cohesion, flexibility and communication, the Family Adaptability and Cohesion Evaluation Scale-version IV (FACES IV). Findings from both qualitative and quantitative methods were triangulated.Information gathered from the interviews generated eight themes: initial reactions to diagnosis, the experience of cancer, coping strategies, impact of cancer on the spousal relationship, spousal communication prior to cancer, spousal communication since the diagnosis of cancer, barriers to communication, and impact of gender and gender role on communication and adjustment. These categories and their subcategories generated an integrated grounded theory on the dimensions of communication. The theory consisted of three interactive elements: facilitators of communication, barriers to communication and the role of gender.Findings from this study confirmed existing trends in the current literature on communication among couples facing cancer. Results demonstrated that the experienceof cancer and its treatment brought couples closer to each other, where they experienced increased intimacy and communication with their spouses. There were several factors that facilitated these changes. On the other hand, barriers to communication were also identified; however, some of these barriers also served as coping strategies for participants. Furthermore, although there were differences and similarities noted among men and women in the study, results highlighted the importance of viewing them within the context of each participant's role as a patient and a caregiver, and not merely as a result of gender.Several research and practice implications are presented. Results of this study can help health care and mental health professionals gain a better understanding of the needs of cancer patients and their families. Couples and families can also benefit from an awareness of specific facilitators and barriers to communication.Department of Counseling Psychology and Guidance Services
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Van, der Merwe Jó-Marié. "Family needs following adult traumatic brain injury." Thesis, University of Port Elizabeth, 2004. http://hdl.handle.net/10948/335.
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Traumatic brain injury (TBI) represents a significant and growing type of disability in South Africa. Coping with the impact of traumatic brain injury is one of the most difficult tasks that can confront a family, and family members experience a wide range of needs as the injured person progresses through rehabilitation. In South Africa, research on family needs following traumatic brain injury has thus far been neglected and rehabilitation resources are sadly lacking. For this reason it is necessary to accumulate knowledge about these families’ needs so as to assist with the planning of future rehabilitation programmes. The study aimed to explore and describe the needs of a sample of families with adult traumatic brain injury individuals in the Eastern Cape utilizing the Family Needs Questionnaire (FNQ). The research approach followed could be described as descriptive and exploratory in nature and was conducted within a quantitative framework. A biographical questionnaire and the FNQ were administered to a heterogeneous sample of 32 family members, including significant others and primary caregivers, of 16 adult traumatically brain-injured individuals, who sustained the TBI one to three years previously, and who underwent rehabilitation treatment at a private rehabilitation hospital in Port Elizabeth. A non-probability, purposive, and convenient sampling method was used. Descriptive statistics were computed to determine the importance and the perceived fulfillment of the needs. The results of the present study indicated that all 40 needs were endorsed by at least half the sample as being important to very important. Furthermore, 52.50% of the needs were endorsed by more than two-thirds of the sample as being important to very important. The needs were rank-ordered according to their importance ratings and the 10 mostly rated as important or very important were identified. These 10 needs were endorsed by between 84.38% and 93.75% of the family members as being important to very important. Six of the important or very important needs related to health information, two to professional support, one to community support, and one to emotional support. The relation between various participant, traumatically brain-injured individual and brain injury characteristics and the 10 important or very important needs, as well as the 10 needs more frequently rated as met were investigated and found to either have a limited or varied relationship. The 10 needs most often rated as met were endorsed by between 43.75% and 56.25% of the family members. Six of the met needs related to health information, two to community support, one to instrumental support, and one to treatment decisions. The highest unmet need was endorsed by 46.88% of the participants and related to the need to discuss their feelings with someone who has gone through the same experience. Based on the findings of the present study, further research on family needs following traumatic brain injury is suggested. It is also recommended that the Family Needs Questionnaire be used to evaluate existing rehabilitation programmes so as to make suggestions as to how to improve them. The results of this study suggested that family members would benefit from receiving educational information material, as well as referrals to professionals for advice and support.
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Guo, Yujuan Kirsty, and 郭玉娟. "Evaluating the impact of family intervention services in early psychosis." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2011. http://hub.hku.hk/bib/B46935885.
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Wan, Wai-on Joseph, and 溫偉安. "Stress and coping of parents of schizophrenic patients." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1992. http://hub.hku.hk/bib/B43893405.
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FitzGerald, Patricia Anne. "Needs of family members of critically ill brain-injured patients during the ICU experience." Thesis, University of British Columbia, 1990. http://hdl.handle.net/2429/28763.
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This descriptive exploratory study was designed to determine the perceived importance of selected needs of family members of critically ill brain-injured patients. In addition, the personal/demographic factors which may have influenced the needs of these family members were investigated, as well as the reasons family members perceived these needs as important or unimportant.
A convenience sample of one family member for each of 15 critically ill brain-injured patients was selected from two tertiary care hospitals and the community. Family members were interviewed using a pre-determined interview guide and asked to verbally rate 20 need statements on a four-point Likert-type scale. Generally, family members perceived all 20 needs to be important. However, the importance of each need was influenced by the family members' personal/demographic factors. No significant statistical relationship was found between personal/demographic factors and the family members' perceptions of the importance of selected needs. However, the findings of the study suggest that family members relate their needs to their present experience, and thus individual assessment of family members' needs is crucial.Applied Science, Faculty of
Nursing, School of
Graduate
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Palmer, Elizabeth Seccombe. "Psychosocial impact of head injury on the family." CSUSB ScholarWorks, 2001. https://scholarworks.lib.csusb.edu/etd-project/2022.
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Naidoo, Sherina. "The sense of coherence and coping resources of adult family caregivers of HIV/AIDS patients in the Kwazakhele area of Port Elizabeth." Thesis, Nelson Mandela Metropolitan University, 2009. http://hdl.handle.net/10948/1021.
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Human Immune Deficiency Virus (HIV), which results in Acquired Immune Deficiency Syndrome (AIDS), has many manifestations. Literature reveals that some of these manifestations may compromise the infected individual’s sense of well-being and negatively impact on health related quality of life. As the number of people living with HIV/AIDS disease grows, so does the need for their care. In the early days of the AIDS epidemic, care was primarily handled by special agencies, hospitals and clinics. These agencies have been inundated with the demands of people living with HIV/AIDS, while their resources are shrinking. As it stands now, the total assistance given to people living with HIV/AIDS is provided by relatives and this responsibility of caregiving will more increasingly rest with families. This situation is particularly salient for the rural community in South Africa, which has been disproportionately affected by the AIDS epidemic. AIDS has a tremendous impact on the entire family system, particularly on the individual who has primary responsibility for caregiving. The caregiver must cope with many circumstances that are frustrating and often beyond their control. Caring for a Person Living with HIV/AIDS (PLWHA) appears to be a major stressor in the lives of caregivers, and can be very demanding, impacting on carers financially, physically, emotionally and socially. Given the lack of research on HIV/AIDS family caregiving from a salutogenic approach, this study aimed to explore and describe the sense of coherence and coping of family caregivers of HIV/AIDS patients in the Kwazakhele area in Port Elizabeth. The sample consisted of 50 participants aged between 21 and 65 years, recruited via the Kwazakhele Masizakhe Project. An exploratory-descriptive design was employed. Data was obtained by a biographical questionnaire, the Coping Resources Inventory (CRI) and the Sense of Coherence (SOC-29) Questionnaire. A non-probability convenience sample of adult male and female family caregivers were sampled. Descriptive statistics and correlation coefficients were utilized to describe and explore the coping and sense of coherence of the family caregivers and the correlation between these constructs, respectively. The data obtained from the biographical questionnaire was analysed by using descriptive statistics and frequency counts. Key findings include the following: Results from the coping resources measure indicated that this sample perceived themselves as having an average level of coping resources. The sample tended to rely more readily on spiritual resources and less on cognitive resources. Results from the SOC-29 revealed fairly high mean scores. There is no positive relationship between the SOC-29 and the CRI for the current sample. No significant relationship existed between the SOC and the subscales of the CRI. Suggestions are made for future research, the limitations and value of research were outlined.
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Zucchero, Renee A. "Marital adjustment of older adult couples with breast cancer, prostate cancer, and couples without cancer." Virtual Press, 1998. http://liblink.bsu.edu/uhtbin/catkey/1117099.
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The purpose of this study was to explore the marital adjustment of older adult couples with breast cancer, prostate cancer, and couples who have experienced neither. Participants were 64 couples in which at least one of the spouses was over 55 years of age, including 19 breast cancer couples, 20 prostate cancer couples, 25 couples who had experienced neither of these cancers. Most participants were young-old, Protestant, Caucasians from a high socioeconomic class. The breast cancer and prostate cancer participants had completed treatment an average of 39.5 months prior to participation. The methodology was a mail survey. Participants completed a demographic questionnaire, the Marital Satisfaction Questionnaire for Older Adults (MSQFOP) (Haynes et al., 1992), Primary Communication Inventory (PCI) (Navran, 1967), Miller Social Intimacy Scale (MSIS) (Miller & Lefcourt, 1982), and the Index of Sexual Satisfaction (ISS) (Hudson et al., 1981).There were no differences in the amount of discordance between the couples groups' level of marital satisfaction, communication, intimacy, and sexual satisfaction. In addition, there were no differences in the level of marital satisfaction, communication, intimacy, and sexual satisfaction between the participant groups. There was a significantly greater correlation between the prostate cancer couples' scores on the ISS than the correlation between the breast cancer couples' scores and the scores of the couples who had not experienced breast cancer or prostate cancer.The level of marital satisfaction, communication, intimacy, and sexual satisfaction reported was similar to that of the normative samples. There was no difference between the marital adjustment of the cancer couples and older couples who had experienced neither type of cancer. These results are good news for breast and prostate cancer survivors, and professionals. Older adults may be better able to incorporate the experience of cancer into their lives or are better prepared for chronic illness through anticipatory socialization. The high degree of agreement between the prostate cancer spouses on the ISS may be related to the sexual dysfunction that frequently accompanies treatment for this cancer. Future research should be qualitative and longitudinal and continue to explore the psychosocial implications of prostate cancer.Center for Gerontology
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Matebese, Dineo. "Primary caregivers' experiences of caring for HIV infected adolescents." Thesis, Nelson Mandela Metropolitan University, 2014. http://hdl.handle.net/10948/5745.
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HIV/AIDS has affected families in a profound and tragic way. Children whose parents have succumbed due to HIV/AIDS related infections have to be cared for by their relatives. This study focused on the experiences of primary caregivers of adolescents who are living with HIV in a semi-rural area of Eastern Cape Province, Grahamstown. There is a dearth of literature that is addressing the well-being, experiences and challenges of primary caregivers of adolescents living with HIV. Adolescence is a complex life stage during which adolescents usually present challenging behaviours and are grappling with moral issues. Caregiving to these youngsters who are burdened with HIV infection places additional demands on caregivers, especially so when they are experiencing poverty and poor social and welfare support. A qualitative study was most appropriate to explore and describe the experiences of adolescents infected with HIV. The population of this study was the primary caregivers of adolescents caring for adolescents with HIV in the area of Grahamstown, who are between 11 to 19 years old. A purposive sample of nine primary caregivers of adolescents living with HIV was selected. Data was collected by conducting individual interviews, using a semi-structured interview schedule. Data was analysed thematically according to prescribed theoretical guidelines. Data was verified by means of guidelines for the truth value, applicability, consistency, and neutrality of the study. The findings of the study indicated that primary caregivers experience that caring for adolescents who are living with HIV places a huge burden due to adolescents' negative behaviour, HIV stigma and discrimination, poor support from their families, being confronted with adolescents' emotional issues that they are not capacitated to deal with, and no adequate community resources to assist them. The challenges primary caregivers experience lead to negative effects on their health status. The findings of the study could be useful for informing intervention programmes that are targeting this group and policy development, and implementation of programmes benefiting both infected adolescents and their primary caregivers.
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To, Heung-yan, and 杜向欣. "An evidence-based, nurse-led communication intervention for families of critically-ill patients with grave prognosis in ICU." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2010. http://hub.hku.hk/bib/B44626538.
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Bailey, A. Kathleen (Ann Kathleen). "Interactional Patterns in Families of Patients with Breast Cancer." Thesis, North Texas State University, 1985. https://digital.library.unt.edu/ark:/67531/metadc330997/.
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This study utilized ethnographic methodology to describe the communicative interactional patterns in families with a member who has breast cancer. Three breast cancer patients whose families were between the adolescent and launching of children developmental lifestage (McGoldrick & Carter, 1982) were chosen for the study. Data were collected from a series of three interview sessions over a period of four weeks with a two week time lapse between each of the interview sessions. Interview sessions were conducted in the families' homes by the researcher. All interviews were video and audio tape recorded for the purpose of preserving data for transcribing and coding. Research questions examined individual perception of meaning in regard to the disease, the structure and organization of the family in relation to the illness, and the effects of family communicative interaction on the course and management of the disease. Findings indicated that family members' responses to the diagnosis of "breast cancer were influenced by multi-generational "beliefs. All three families formulated a collective belief which supported the mother's belief about the disease. Each of the three families were mother-centered, and each mother seemed to use a metacommunicative approach to mediating family transactions. Each of the three fathers were reported as having been isolated and withdrawn within the family at various times. However, each father appeared to play a protective role in deflecting tension and stress away from the mother. All three couples appeared to have constructed an egalitarian relationship with an implicit agreement as to who was more skilled to hold the power within a particular context. In all three families, the generational boundaries were clearly defined. Conflict and affect were most generally expressed in an indirect manner through wit and sarcasm. However, because each of these three families were structured to allow for personal autonomous functioning of each individual member, patients were supported in seeking a modality outside of the family system to express more ambivalent feelings.
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Deist, Melanie. "Resilience factors in families caring for a family member diagnosed with dementia." Thesis, Stellenbosch : Stellenbosch University, 2013. http://hdl.handle.net/10019.1/80360.
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Thesis (MA)--Stellenbosch University, 2013.ENGLISH ABSTRACT: Dementia is a chronic illness characterised by the progressive deterioration of cognitive functions. Patients diagnosed with dementia are most often cared for by family members. Families caring for dementia patients are faced with tasks that are physically exhausting and psychologically distressing. Nevertheless, some families show resilience and are able to overcome the adversity of the illness. This study aimed to identify and explore the resilience factors these families utilised to rise above the hardships faced when caring for a demented family member. The study was based on McCubbin and McCubbin’s (1996) Family Resiliency Model of Family Stress, Adjustment and Adaptation and Walsh’s (2002, 2003) Family Resilience Framework. A mixed-methods approach was followed to collect data from a convenience sample drawn from the Cape Metropolitan area in the Western Cape, South Africa. The study sample comprised of families in which either a spouse (n = 44) was caring for a partner with dementia or adult children (n = 47) were caring for a parent with dementia. The family resilience factors of these subgroups were explored separately and were compared with each other. The quantitative data analysis was conducted using analyses of variance (ANOVA), Pearson’s product-moment correlation coefficients, and a best-subsets multiple regression analysis. Qualitative data were analysed using thematic content analysis. These analyses revealed that positive communication patterns, acceptance, optimism, family hardiness, family connectedness, and the effective management of symptoms facilitated family adaptation in both the spouse and child subgroups. Negative patterns of communication within the family was the only variable that was inversely related to family adaptation in both family subgroups. The level of adaptation in the different family subgroups did not differ significantly, but the subgroups did differ slightly in terms of their communication patterns, coping strategies and social support avenues utilised. In addition to expanding the current literature regarding family resilience, the body of information collected in this study could be used to help families caring for dementia patients to create a family environment that maximises adjustment and adaptation. The results could also be used in the development and evaluation of intervention programmes tailored to the needs of these family subgroups.
AFRIKAANSE OPSOMMING: Demensie is 'n chroniese siekte wat gekenmerk word deur die progressiewe agteruitgang van kognitiewe funksies. Pasiënte wat met demensie gediagnoseer word, word meestal deur familielede versorg. Gesinne wat sorg vir demensiepasiënte word gekonfronteer met take wat fisies uitputtend en sielkundig ontstellend is. Tog toon sommige families volharding en is hulle in staat is om die teëspoed van hierdie siekte te oorkom. Hierdie studie het gepoog om die veerkragtigheidsfaktore te identifiseer en verken wat deur families wat 'n familielid met demensie versorg, aangewend word om bo hulle omstandighede uit te styg. Die studie is gebaseer op McCubbin en McCubbin (1996) se Family Resiliency Model of Family Stress, Adjustment and Adaptation en Walsh (2002, 2003) se Family Resilience Framework. Beide kwalitatiewe en kwantitatiewe data-insamelingsmetodes is in hierdie studie gebruik. 'n Gerieflikheidsteekproef is uit die Kaapse Metropolitaanse gebied in die Wes-Kaap, Suid- Afrika gewerf en het bestaan uit gesinne waarvan eggenote (n = 44) vir hulle eggenoot met demensie sorg of volwasse kinders (n = 47) vir ’n ouer met demensie sorg. Die gesinsveerkragtigheidsfaktore van hierdie subgroepe is afsonderlik ondersoek en met mekaar vergelyk. Die kwantitatiewe data-analise is via variansieontleding (VARO), die berekening van Pearson se produkmoment-korrelasiekoëffisiënte, en beste-subset regressie-analises uitgevoer. Kwalitatiewe data is met behulp van tematiese inhoudanalise ontleed. Hierdie analises het getoon dat positiewe kommunikasiepatrone, aanvaarding van die situasie, optimisme, familie gehardheid, familie verbondenheid, en die doeltreffende bestuur van demensiesimptome familie aanpassing in beide die eggenoot- en kind-subgroepe gefasiliteer het. Negatiewe, opruiende kommunikasiepatrone binne die gesin was die enigste veranderlike wat in beide subgroepe 'n omgekeerde verwantskap met familie aanpassing gehad het. Die vlak van aanpassing in die verskillende familie subgroepe het nie beduidend verskil nie, maar die subgroepe het effens verskil in terme van hulle kommunikasiepatrone, streshanteringstrategieë, en bronne van sosiale ondersteuning. Die resultate van hierdie studie brei uit op die huidige literatuur oor gesinsveerkragtigheid en kan gebruik word om families wat vir demensiepasiënte sorg te help om 'n familie-omgewing te skep wat die gesin se aanpasbaarheid verbeter. Die resultate kan ook gebruik word in die ontwikkeling en evaluering van intervensieprogramme wat die behoeftes van hierdie subgroepe teiken.
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Straw, Lorraine B. "Impact of Alzheimer's disease on family caregivers : support group participation and other predictor variables /." The Ohio State University, 1987. http://rave.ohiolink.edu/etdc/view?acc_num=osu1487585645578764.
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Demling, Jennifer. "Family caregiving for persons with AIDS." Virtual Press, 1995. http://liblink.bsu.edu/uhtbin/catkey/962800.
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This study examines the experience of individuals who participated or did not participate in the caregiving process for a family member who died within approximately the past three years of an AIDS-related illness. The focus of this study is on the adjustment of the caregivers and non-caregivers after the death of the PWA. It was hypothesized that due to their direct involvement in the caregiving process, caregivers would differ significantly from non-caregivers on a number of measures designed to evaluate adjustment. It was hypothesized that caregivers would report better overall adjustment than non-caregivers.Participants completed the Symptom Checklist 90 (SCL-90; Derogatis, Lipman, & Covi, 1973), as well as a semi-structured interview about their experiences. A two-tailed t-test revealed no significant differences between groups. However, effect sizes computed for these variables revealed moderate to large diff ererences between caregivers and non-caregivers on the somatization and interpersonal subscales of the SCL-90. Comparisons to a standardization sample showed that caregivers differed significantly on all subscales from that standardization sample: Non-caregivers differed only on the depression and interpersonal sensitivity subscales. Analysis of the interview data revealed a significant difference in reported stress, with caregivers reporting significantly more stress during the illness of the PWA than non-caregivers. Effect sizes were computed for nine other interview categories; these suggested that caregiversreported substantially less social withdrawal, fewer feelings of guilt, fewer problems resolving issues with the PWA, substantially more physical illness, and more life affirming statements than their non-caregiver counterparts. Several other noteworthy trends that emerged in the interview portion of the study are discussed.Small sample size and pre-existing characteristics of the participants are explored as possible factors affecting the outcome of the study. More controlled studies exploring the adjustment of caregivers and non-caregivers are needed in order to better understand the possible differences that may exist between caregivers and non-caregivers in terms of adjustment after the death of their loved one from an AIDS-related illness.Department of Psychological Science
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Coyne, Elisabeth. "The Strengths and Resources Young Women and their Family Members use during Treatment for Breast Cancer." Thesis, Griffith University, 2012. http://hdl.handle.net/10072/366144.
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Breast cancer is the leading cancer in women worldwide; one in eight will be diagnosed before the age of 75 years. Of those diagnosed 25% are under the age of 50 years and likely to be premenopausal and have family responsibilities (Coyne & Borbasi, 2006; Sammarco, 2001). Although all women regardless of age experience difficulties, younger women face significant difficulties after their diagnosis related to their phase of life (Bloom, Stewart, Chang, & Banks, 2004). The diagnosis and treatment of breast cancer is a time of intense physical and emotional disturbance. The women rarely go through this alone. They are supported by their family members who are distressed and lost in the situation. During this time families experience a range of responses including changes to communication, role and sense of control as they respond to the diagnosis and treatment for breast cancer. While family is the mainstay of support for young women with breast cancer there is little research that has addressed the family response to breast cancer. The aim of this research was to explore the strengths and resources young women and their family members use during treatment for breast cancer. The use of a family framework allowed the unique nature of the family response to breast cancer to be explored. A two phase mixed method approach informed by the Resiliency Model of Family Stress, Adjustment and Adaptation (McCubbin & McCubbin, 1993) was used, to investigate the strengths and resources used by the family in response to breast cancer treatment. A total of 111 participants, women with breast cancer and their family members completed the composite questionnaire. A non-parametric analysis of the quantitative data included descriptive statistics, correlations between variables and changes over time. Personal interviews with 14 women with breast cancer and nine family members added richness to the research data. A family case study analysis of the 36 families provided information on the family as a group’s response to breast cancer treatment.Thesis (PhD Doctorate)
Doctor of Philosophy (PhD)
School of Nursing and Midwifery
Griffith Health
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Rau, Marie Therese. "Elderly stroke patients and their partners: a longitudinal study of social support and well-being changes associated with a disabling stroke." PDXScholar, 1986. https://pdxscholar.library.pdx.edu/open_access_etds/478.
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This investigation explored the relationship of demographic, social network, social support, and stroke-related factors to depressive symptomatology and well-being in 50 elderly individuals who had recently suffered a first, completed stroke and their partners. Data were gathered at two points in time, with interviews scheduled six months apart. Outcome measures included the CES-D depression scale and the Index of Psychological Well-Being. Data were analyzed using descriptive statistics, correlational procedures, multiple regression, and change-focused regression analyses. For the caregivers, lower depression levels at Time 1 were associated with better subjective health, less concern about being able to care for the patient in the future, higher levels of patient ADL functioning, greater perceived pre-stroke instrumental support, and greater patient optimism. At Time 2, lower caregiver depression scores were associated with lower levels of perceived burden, fewer health problems or negative changes in health status, fewer negative network interactions, greater network density, greater frequency of network contacts, and fewer perceived personality and behavior changes in the patient. Best predictors of depression score for the caregivers at Time 1 were subjective health rating, the patient's level of ADL functioning, degree of concern about ability to care for the patient in the future, the proportion of the network providing instrumental support, and the percent of reciprocal confiding relationships reported. At Time 2, best predictors of depression were level of perceived caregiver burden, objective health score, and network density. The best predictor of caregiver depression level over time was Time 1 depression level. Perceived caregiver burden was also a strong predictor of depression score. For the patients, higher depression scores at Time 1 were associated with whether they felt they could have done anything to prevent the stroke, higher levels of concern about their partner's ability to care for them in the future, and greater reported frequency of pre-stroke disagreement with their partners. At Time 2, higher levels of depressive symptomatology were associated with decreased satisfaction with amount of social contact, a greater proportion of friends in the post-stroke network, a greater degree of perceived negative health change, and change in employment status.
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Bizzell, Laurie. "Stressors, Resources, and Psychological Symptomatology for Family Caregivers of Alzheimer's Patients." Thesis, University of North Texas, 1993. https://digital.library.unt.edu/ark:/67531/metadc500551/.
Full textAbstract:
The purpose of this study was to examine the relationship between life stressors, resources, and psychological symptomatology of 20 family caregivers of Alzheimer's patients. Stressors were categorized as stressors specific to the caregiving role and general life stressors. Resources were also categorized as resources specific to the caregiving role and general life resources. Multiple regression determined which stressors, resources, and demographic variables predicted psychological symptomatology. Specific stressors that were significant predictors included: caregiving events, caregiving event chronicity, and mean burden scores. Significant general stressors included: size of caregivers' household, non-caregiving events and non-caregiving event chronicity. Significant resources included: other caregivers, the duties other caregivers provided, and caregiver's educational level. No Other Demographic Variables were found to be significant predictors.
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Koenig, LeRoy Michael 1951. "PERSONAL NEEDS OF SIGNIFICANT OTHERS OF CANCER PATIENTS." Thesis, The University of Arizona, 1986. http://hdl.handle.net/10150/275512.
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Kellams, Diana D. "Perceived familial support and self-esteem in gay and bisexual men infected with the AIDS virus." Virtual Press, 1992. http://liblink.bsu.edu/uhtbin/catkey/834143.
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This study explored the relationship between perceived familial support to self-esteem in gay and bisexual men along a continuum of infection with the AIDS virus. Subjects were primarily obtained from two HIV/AIDS care coordination, education and social support centers. All participants completed the Coopersmith (1967) Self-Esteem Inventory, the Perceived Social Support-Family (PSS-Fa) questionnaire by Procidano and Heller (1983) and a demographic questionnaire. Two hypotheses were proposed: 1) Self-esteem will increase with strength of perceived Perceived Familial Support familial support. 2) Self-esteem will decrease as the stage of HIV infection worsens. Significant support was found for the first hypothesis. The second hypothesis was not supported; however, some reasons are postulated. The continuum of HIV infection and self-esteem as it relates to stages of death and dying are discussed. Implications and suggestions for counseling HIV-infected persons are addressed.Department of Counseling Psychology and Guidance Services
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Doherty, Elsie Janet. "A phenomenological study of partners of people with Parkinson's disease who demonstrate communication changes." Thesis, Edith Cowan University, Research Online, Perth, Western Australia, 2003. https://ro.ecu.edu.au/theses/1318.
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Parkinson's disease is a common progressive neurological illness for which there is no known cure. While the cardinal signs are tremor, bradykinesia or slowness of movement, muscle rigidity and postural instability (Jahanshahi & Marsden, 1998, p.3) the patient may face an extended number of years experiencing all, or any combination of, the many other manifestations of the disease process. These manifestations include changes to various aspects of communication including loss of voice volume, diminished body language and loss of facial expression. All of these affect both verbal and non verbal communication. Given the progressive nature of Parkinson's disease the patient may often require both physical and emotional support for many years. The long term partner or spouse often provides this care and support. There is a paucity of literature discussing the impact of communication changes or difficulties on the partner or spouse. Thus a study into the life experiences of the partners of people with Parkinson’s disease who demonstrate communication problems is needed. The aim of this study was to explore the experiences of partners of people with this neurological diagnosis and whose communication is affected. A phenomenological approach was utilised to explore the impact of communication changes on the partner of a person with Parkinson's disease. Five participants took part in his study. Four of the participants responded to an advertisement placed in the Western Australian Parkinson’s Association newsletter. The remaining participant volunteered to be part of the study while she and her husband were on holiday in Perth, Western Australia from overseas. All of the participants were female and their husbands had been diagnosed with Parkinson's disease for extended periods of time, ranging from five to fifteen years. In depth interviews were audio taped and transcribed verbatim. The data from these interviews were analysed using the method described by Colaizzi (1978). Data were described and interpreted and common themes were extrapolated and analysed. The three major themes emerging from the interviews were: The Partner/Carer Interface, Emotional Turmoil and Ways of Coping. The Partner/Carer Interface is made up of three sub themes, ‘life before diagnosis'', "the point of diagnosis" and "sharing the disease.'' The second theme, Emotional Turmoil, includes the sub themes "confronting the physical, ''the conditions always wins” and “social isolation”. The third theme addresses the skills necessary to cope with the future, or Ways of Coping. This theme encapsulates minor themes of ''knowing the beast", "sharing the burden”, and finally preparing for "the road ahead”. Based upon study findings recommendations are made in relation to care provision, patient education and community support. The need for further research has been identified, specifically into the diverse gender issues related to communication and the role of care giver. In addition the need for health professionals with an extensive knowledge base of this neurological condition has been identified as essential for quality nursing management.
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Barton, Marci A. "Family environment, time since diagnosis, and gender as predictors of psychosocial adaptation in oncology patients." Virtual Press, 2001. http://liblink.bsu.edu/uhtbin/catkey/1213157.
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The purpose of this study was to investigate the influence of gender, time since diagnosis, and the family environment on the psychosocial adaptation of cancer patients. This study was important because there is a deficit in the literature investigating the effects of the family environment on psychosocial adaptation in male and female cancer patients with diverse diagnoses. This study measured psychosocial adaptation by the patient's ability to adjust to cancer-related stressors in the areas of social relationships, involvement in health care, psychological well-being, household and work related duties, and family relationships. The family environment was measured by the patient's perceived level of cohesion, expressiveness, and conflict in the family.The study's sample consisted of 149 stage I or II cancer patients over the age of 50 with no prior cancer diagnosis, recurrence, or metastases. Participants completed a set of questionnaires, including the Psychosocial Adjustment to Illness Scale and the Family Relationship Index. The combination of gender, time since diagnosis, and the family environment, with demographic variables held constant, was significant and accounted for nearly one-third (27 %) of the variance in cancer patients' psychosocial adaptation. Results showed that the family environment is a significant predictor of psychosocial adaptation in cancer patients. Gender and time since diagnosis were not significantly related to psychosocial adaptation. Implications from this study are offered.Department of Counseling Psychology and Guidance Services
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Topp, Charles G. "Family typology associated with females who display bulimic behavior." Virtual Press, 1990. http://liblink.bsu.edu/uhtbin/catkey/720285.
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Clinical observations of families with a member who displays bulimia have suggested that more than one family interaction pattern exist. The purpose of this study was to investigate these clinical observations using three self-report questionnaires: FACES-III, Binge Scale, and a demographic instrument including items regarding three identifiable family types. Data was collected from hospitals who treated persons displaying bulimia and eating disorder treatment centers. A total of 70 women, ages 13 to 39, and both parents of each woman included in the study (Total N = 210).Responses to the FACES-III and certain items on the demographic questionnaire were analyzed using chi-square and one-way ANOVAs with Tukey's follow-up procedure when necessary. Each of the 70 families were identified on the Circumplex Model, but because of methodological concerns only 57 families were used to test most of the hypotheses.Hypothesis One, which stated that more than 50% of the families would be classified as either moderately or extremely dysfunctional, was accepted. Sixty-four percent of the families were labeled moderately or extremely dysfunctional. Hypothesis Two, which claimed that there would be no differences between types of families in terms of the age and birth order of the member displaying bulimia and the number of siblings in the family, was also supported. There were no significant differences found among families with regards to the age and birth order of the daughter or the number of siblings in the family. Hypothesis Three, which asserted that types of families would not differ in terms of the parents' relational status, was accepted as well, but cautiously interpreted. Of the parents, 96.5% were married, while one set was divorced and another separated. Hypothesis Four, which stated that families would differ with respect to their degree of family satisfaction, was also supported. Functional families claimed feeling more satisfied than dysfunctional families. Hypothesis Five, which claimed that types of families would differ in terms of their previous and current level of closeness, was accepted. Dysfunctional, as compared to functional, families reported significantly less family satisfaction previously and currently. Finally, Hypothesis Six, which asserted that types of families would differ with respect to their degree of chaos, perfection, and overprotection, was partially supported. Dysfunctional families claimed to experience greater degrees of chaos and perfection than functional families.Relying on the Circumplex Model of family functioning, results suggest that there are identifiable differences in the family structures of families where one member displays bulimia. Findings from this study may assist therapists when conceptualizing and treating various types of families that are struggling with the interpersonal and emotional effects of bulimia.Department of Counseling Psychology and Guidance Services
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Roberts, Della Kim. "The family experience with chronic obstructive pulmonary disease." Thesis, University of British Columbia, 1985. http://hdl.handle.net/2429/24422.
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This study was designed to gain an understanding of the family experience when an adult member has chronic obstructive pulmonary disease (COPD). It is recognized that illness within the family affects the well-being of the family unit and the health of all members. To understand the impact of COPD upon the family, however, the literature provides only knowledge of the experience of the individual who has COPD and the spouse, not that of the family unit. Thus, the purpose of this study was to describe and explain the COPD experience from the perspective of the family unit.
A qualitative method, phenomenology, was chosen for this investigation. Data were collected through semi-structured interviews with eight families who shared their experiences. From the content analysis of these data, three themes that were common throughout the families' accounts were identified and developed to describe and explain family life with COPD.
The first theme, disease-dictated family life, describes four aspects of a common lifestyle that is imposed on the family by the characteristics of COPD. The second theme, isolation, describes the isolation that accompanies the illness experience, for the family group and the individual members within the group. The final theme, family work, describes the four primary challenges the families face and the coping strategies they use to deal with them. These findings revealed that COPD acts as an intense stressor within the family, requiring extensive family work to cope with COPD in a way that maintains the well-being of the family unit. Furthermore, it was found that living with COPD in many ways inhibits the resources within the family and those external sources of support that foster the family's ability to manage the stress associated with living with COPD. The implications for nursing practice and nursing research were delineated in light of the research findings.Applied Science, Faculty of
Nursing, School of
Graduate
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Davis, Sue. "The information needs of the families of patients with advanced cancer in an acute hospital." Thesis, Edith Cowan University, Research Online, Perth, Western Australia, 2003. https://ro.ecu.edu.au/theses/1313.
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A diagnosis of cancer has a major impact on the family as well as the patient. The families of patients with advanced cancer have many needs. In particular, a number of researchers have identified family members' needs for information as a priority. Most of this research, however, has been undertaken in the context of Palliative Care settings. Few empirical studies have been undertaken to examine the information needs of these families in an acute hospital setting. The aim of this study is to modify an existing tool, The Family Inventory of Needs (FIN), to more precisely assess the information needs of these families in an acute hospital setting and to measure the extent to which these needs are met. A three-phase study was conducted. Phase I involved interviews conducted with eight bereaved family members of patients who had received care at a 600-bed teaching hospital in Perth, Western Australia. The purpose of this phase was to describe the amount and usefulness of information given to these families while the patient was in hospital. Phase II involved modification of the FIN, based on the interviews and the current literature, to more precisely assess the information needs of this population. Clarity and content validity of the FIN was assessed by calculating percent agreement (80%) amongst the families interviewed in Phase I. Several modifications were made to the FIN based on family feedback and this modified FIN was assessed for clarity and content validity by six specialist nurses. Phase III was a descriptive quantitative pilot study, which involved administering the modified FIN to 60 families of patients with advanced cancer at the 600-bed teaching hospital in Perth, Western Australia. Internal consistency reliability of the tool was tested using Cronbach’s alpha coefficient (Part A: r=0.91 and Part B: r=0.92). Stability of the instrument was tested using test- retest reliability procedure estimated using the intraclass correlation coefficient (Part A: r=0.91 and Part B: r=0.91). The self reported information needs and the extent to which these needs have been met were described. There is evidence that in the terminal phase of an illness the families of advanced cancer patients suffer mentally and physically. Patients cope better with their illness if their families are coping well; therefore, it is imperative that families’ needs are assessed and responded to appropriately. It is anticipated that the modified questionnaire will be a useful and straightforward clinical tool that can be used by health care professionals to better assess the information needs of the families of patients with advanced cancer in an acute hospital. Health care professionals who are better able to assess families' needs would then be able to respond more appropriately and precisely to assist these families.
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Driskill, Gail. "Effects of an Intervention Program on Caregiver Coping Efficacy." Thesis, University of North Texas, 1993. https://digital.library.unt.edu/ark:/67531/metadc500883/.
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The purpose of this study was to examine the effect of an intervention program for Alzheimer's patients on coping efficacy of their family caregivers. Using a pre-post repeated measures design, 16 family caregivers were interviewed before and after a medical, nursing, and social service intervention. Self-report measures, adjusted for caregiver satisfaction and caregiver mastery, were used to determine if there was a change in: resources, burden, and coping efficacy with caregiver specific and general life events. Results showed a marginal effect [F = 2.6, df(4,10), p<.10] for the omnibus MANCOVA. Most of this change was due to an increase in resources. Covariates of caregiver satisfaction and mastery were correlated with average burden. Results suggest that interventions such as this will be helpful for family caregivers of Alzheimer's patients.
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Segaric, Cheryl Ann. "Progressively engaging : how nurses, patients and family members manage relationships in acute care hospital settings." Thesis, University of British Columbia, 2007. http://hdl.handle.net/2429/31496.
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This grounded theory study, informed by symbolic interactionism, explains how nurses, patients, and family members manage relationships in order to plan and provide care in acute care hospital settings. The study also explains the effects of contextual and systemic features associated with acute care environments and participants' personal characteristics on their efforts to manage relationships. Data collection included thirty three hours of participant observation and forty interviews. Seventeen interviews were conducted with nurses, ten with family members, and thirteen with patients. Participants were recruited from a total of ten acute care units across four community hospitals in the Fraser Health Authority of British Columbia; there were four medical units, three surgical units, two transitory care or activation units, and one community hospital intensive care unit. I constructed the basic social psychological process of progressively engaging. The process describes how nurses, patients, and family members manage their relationships during patient care by developing varying levels of engagement. The levels of engagement are represented by three stages, including: focusing on tasks, getting acquainted, and building rapport. Structural conditions and personal factors, relevant to nurses, patients, and family members, facilitate or constrain their efforts to progressively engage by contributing to or detracting from their shared perspectives. Levels of engagement ranged from 'just doing the job' to 'doing the job with heart' or making a deep human connection. Higher levels of engagement achieved in nurse, patient, and family member relationships correspond with more satisfaction expressed by participants about their relationships and nursing care. The substantive theory of progressively engaging makes a significant contribution to the family nursing theory. The process has implications for nursing education, practice, research, and administration.Applied Science, Faculty of
Nursing, School of
Graduate
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Davis, Nancy Lynn. "Perceptions of spouses of head injured survivors." Thesis, The University of Arizona, 1989. http://hdl.handle.net/10150/277111.
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This exploratory study was designed to discover the culture of living with a head injured spouse. Using the ethnographic approach, five spouses of head injured survivors were interviewed. Analysis of data yielded five domains of meaning: concerns as a result of role transition, social isolation, loss, future and coping. Two cultural themes emerged as "no one understands" and a "wish list." Implications for nursing practice include increasing awareness of health care professionals regarding perceptions and needs of spouses of head injured survivors.
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Achor, Sam Ndu. "Family visits or contact to dementia elderly at long term care facilities." CSUSB ScholarWorks, 2000. https://scholarworks.lib.csusb.edu/etd-project/1581.
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Bender, Alexis A. "Patients, Partners, and Practitioners: Interactions and Meaning- Making Following Spinal Cord Injury." Digital Archive @ GSU, 2011. http://digitalarchive.gsu.edu/sociology_diss/57.
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Sustaining a Spinal Cord Injury at any point in time is life altering – physically, emotionally, and financially – for all persons affected by the injury, but it can place unique challenges on younger married couples. This study examines the transition to injury for 18 couples (ages 21-55). Data were collected using individual interviews with each partner at three time points following injury, as well as observation in the rehabilitation setting (Creekview). This resulted in 96 individual interviews and 300 hours of observation. Using a combination of the life course perspective and cognitive sociology as guiding theoretical frameworks and grounded theory analysis, I examined how the health care institution influenced the couples’ relationships during their rehabilitation stay and the subsequent transition home. Overall, this study found that Creekview shaped a thought community that emphasizes a return to walking and high levels of physical recovery. Patients who achieved these goals constructed positive narratives about the future while those with lower levels of recovery constructed negative narratives over time. Additionally, because of the dominant medical narrative of wait and see regarding physical recovery, many respondents constructed fuzzy narratives about the future that reflect ambiguity about what life would look like following injury. Additionally, Creekview staff and couples accepted and reinforced the dominant cultural narrative that women are natural caregivers, but larger social structures of class, gender, and the division of paid and unpaid labor work together to push some women into caregiving faster or prevent other women from engaging in caregiving. Expanding on Aneshensel et al.’s (1995) caregiving career, this study examines how younger couples move through the caregiving career when the expected outcome is not long-term care placement or death. This study identified three main types of caregivers, each with their own path of caregiving – Naturalized, Constrained, and Resistant caregivers. Overall, the transition to injury is complex for patients and partners and this study highlights some of the ways the marital relationship is affected by a non-normative, unexpected transition.
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Luevanich, Chayanit. "A longitudinal study exploring the impact of moderate or severe traumatic head injuries on family caregivers." Thesis, Edith Cowan University, Research Online, Perth, Western Australia, 2004. https://ro.ecu.edu.au/theses/824.
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Background: This longitudinal study explored the impact on the family caregivers caring for a victim of a moderate or severe traumatic head injury (THI). The study used both quantitative and qualitative method and involved data calculation at three times points: one-month post injury, six months post injury, and one year later. Study Population: The study population comprised 45 family caregivers aged 21 to 72 years old. Thirty-four of the same caregivers were followed at six months and twenty five one year respectively. Methods: Both quantitative and qualitative methods were used to assess the family caregivers. The quantitative dimension comprised the Psychological General Well•Being Schedule (PGWBS, Dupy, 1984), the General Functioning Scale of the Family Assessment Device (FAD-GFS, Epstein, Baldwin, &Bishop, 1983), and the Stanford Acute Stress Reaction Questionnaire (SASRQ, Cardem1, et at., 2000), as well as a range of demographic variables. The PGWBS and the FAD-GFS were completed by family caregivers at three times during the study, and the SASRQ was completed by family caregivers at Time 1. Results: Findings from quantitative method revealed that in the terms of the impact on family functioning, no significant differences were found between the initial stages of injury, six months, and one year post injury at the 0.05 level of significance. Especially in the initial stages of injury, family caregivers of both moderate and severe THI patients were likely to be at risk of developing an acute stress disorder after exposure to the traumatic event. However, the family caregiver's psychological general well-being showed significant difference among three times at the 0.01 level of significance. The qualitative findings showed that most of family caregivers gave the meaning of THI as causing disability and severe injury. The major sources of distress were financial problems and victims’ prognosis or reactions. These caused an impact on caregivers’ financial situations, psychological and health problems, and loss of social interactions. Family caregivers used both problem-focused and emotion-focused coping strategies to deal the traumatic event. The coping strategies and resources that caregivers used to deal with the THI were consistent with the caregiver’s way of life and culture. For example, they used religious coping mechanisms and belief in God or traditional medicine and local wisdom combined with the professional health care sector to help them cope. Conclusion: The results of this study provide insights into the family caregivers experiences, understand how they cope with the crisis event and the impact of THI on their health. Health policy and local government should pay attention and promote the family caregivers’ well-being and welfare to support the family caregivers during their take role as caregivers.
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Eakin, Laurel. "The psychosocial functioning of families of adults with attention-deficit/hyperactivity disorder /." Thesis, McGill University, 2001. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=36920.
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The psychosocial functioning of the families of clinic-referred adults with attention-deficit/hyperactivity disorder (ADHD) was evaluated in two studies. Study 1 examined the psychiatric and psychological difficulties of married adults with ADHD and their spouses, with a focus on the quality of their marital adjustment and family functioning. Study 2 focused on the prevalence of psychiatric disorders, the psychological functioning, and the social functioning of children with ADHD parents.Results revealed that married adults with ADHD had higher rates of comorbid psychiatric disorders and more psychological distress than non-ADHD control adults. The spouses of adults with ADHD did not differ in rates of psychiatric disorders from the control spouses, however, they reported significantly higher levels of current psychological distress. Greater marital and family dysfunction were reported by adults with ADHD than control adults. The spouses of ADHD adults, however, did not report greater marital and family dysfunction than the spouses of controls.
The children of ADHD adults were found to be at high risk for ADHD. Forty-three percent of the children met DSM-IV criteria for the disorder. The children with ADHD were found to have higher rates of comorbid disorders, more psychological difficulties, and significantly poorer social functioning than the control children. The non-ADHD children of ADHD adults were not found to differ from control children on these measures. Having a parent without a psychiatric disorder in the home was found to have a protective effect on behavior problems in the non-ADHD children.
Together, these studies suggest that evaluating the functioning of family members and the health of the family relationships are important when assessing clinic-referred adults with ADHD. These results suggest that involving family members in the therapeutic process may be beneficial.
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Henschel, Peter W. (Peter William). "Distress and Causal Attributions Associated with Caring for Family Members with Senile Dementia." Thesis, University of North Texas, 1993. https://digital.library.unt.edu/ark:/67531/metadc501261/.
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A sample of 22 persons who care for relatives exhibiting initial symptoms of senile dementia were administered paper-and- pencil questionnaires to determine their level of subjective burden and psychological symptomatology. Each participant's attributional style was measured on an internal-external dimension, and their causal attributions regarding their relative's symptomatic behaviors were assessed. Results indicated that attributional style did not predict specific attributions about illness-related behaviors, but the tendency to not blame an afflicted relative for their behavior was predictive of subjective burden and symptoms of depression and anxiety. Subjective burden was found to predict feelings of hostility in caregivers.
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Warner, Judy A. "Perceptions of family caregivers of non-institutionalized Alzheimer's patients about support groups." Virtual Press, 1999. http://liblink.bsu.edu/uhtbin/catkey/1133742.
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The purpose of this descriptive study was to document and analyze the perceptions of family caregivers of non-institutionalized Alzheimer's patients about the benefits and limitations of Alzheimer's support groups. Survey methodology was used to survey caregivers and support group leaders from eight Alzheimer's support groups in the central Indiana area. Several of the major findings challenge the literature. These findings are as follows: The majority of caregivers attended the support group to receive information. None of the caregivers attended the support group due to frustration, and only one caregiver responded that relieving frustration was a benefit of participating in the support group. A majority of caregivers and support group leaders were positive about mixed (spouses and adult children) support groups. A majority of caregivers responded that they did not have guilt, anger, fears about caregiving in the future, or stress concerning their caregiving responsibilities. The study generated several implications that can be used by planners to improve support groups.Department of Educational Leadership
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Simonich, Heather K. "Sex differences in social support among cancer patients." Virtual Press, 2001. http://liblink.bsu.edu/uhtbin/catkey/1222834.
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Social support is likely to play an especially important role in coping with a cancer diagnosis as it presents a unique set of stressors to the individual. The purpose of this study was to examine biological sex differences in the perceived availability of three modes of social support (emotional, instrumental, and informational), source of support (friends vs. family), and social support seeking behavior in a population of cancer patients. The sample included 71 men and 71 women who had been diagnosed with cancer within two years of the start of the study. No significant sex differences were found in social support seeking; however, results revealed that women perceived greater availability of emotional support as well as greater support from friends on all modes of social support than did men. Implications of these findings and future directions for research are discussed.Department of Counseling Psychology and Guidance Services
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Bernard, Lori Lynn. "Husband's and Daughter's Role Strain During Breast Cancer Hospice Patient Caregiving and Bereavement Adjustment." Thesis, University of North Texas, 2000. https://digital.library.unt.edu/ark:/67531/metadc2542/.
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Current literature regarding caregiver bereavement adjustment has advanced two competing models explaining adjustment in relation to caregiver interrole conflict: the Relief Model and Complicated Grief Model. This research has primarily focused on the experience of those providing care to dementia patients. This study tests these competing models of bereavement adjustment for husband and daughter caregivers of breast cancer hospice patients. For husbands, greater psychological strain and health strain were predictive of greater difficulty with bereavement adjustment, supporting the Complicated Grief Model of bereavement adjustment. For daughters, strain was not a significant predictor of bereavement adjustment, and thus did not support either bereavement adjustment model. While daughter caregivers experienced more role strain than husband caregivers during patient care, the degree of role strain was predictive of bereavement adjustment for husbands but not for daughters, suggesting that relationship type (husbands versus daughters) between caregiver and patient impacts which factors influence bereavement adjustment.
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Butler, Mary, and n/a. "Care ethics and brain injury." University of Otago. Department of Philosophy, 2008. http://adt.otago.ac.nz./public/adt-NZDU20080214.134301.
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It is generally supposed that a supportive family can have an influence on outcomes for an adult with severe brain injury, but there is very little known about what effective families actually do. In this research the families of five such individuals were involved in an ethnographic project that lasted for one year.
The literature review brought together insights from brain injury, care ethics, disability studies and anthropology. These insights were combined with a process of reflective equilibrium that was applied to the ethnographic material in order to determine the ethics of the carers. Ethics of care in this setting was conceived of as a positive practice ethic, rather than as a series of negative conundrums posed by the brain injury.
The practice ethic shared by carers meant that they all conceived of the need created by brain injury in humanistic terms, rather than in terms of pathology. Carers demonstrated virtues appropriate to their practice as they helped the adult with brain injury to connect with aspects of ordinary life. The best outcomes for the adult with brain injury included being able to engage in productive activity and to make a place in the world. These outcomes could only be achieved with due regard for their safety and subsistence. The practice ethic of carers was demonstrated in the skills and concern that ensured a satisfactory outcome for the adult with brain injury.
This research is a departure from recent research about families affected by brain injury, which has focused on the burden involved in care. An examination of what carers achieve suggests that burden may be associated with the development of caring practice. The transformative capacity of care, for both the carer and the adult with brain injury, is emphasized. However contextual factors, such as adequate compensation, are connected to the capacity of the carer to engage in good practice and these are explored also in this thesis. In particular, relevant aspects of the relationship between families and the Accident Compensation Corporation are explored.
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余文蕙 and Man Wai Philippa Yu. "Stress and coping in parents of daughters with eating disorders: an evaluation of a coping-focusedintervention group." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2008. http://hub.hku.hk/bib/B41715986.
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Zhao, Huan, and 赵环. "Living and loving: adaptive experiences of caregiving to a spouse with Alzheimer's disease in Shanghai, China." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2012. http://hub.hku.hk/bib/B48329599.
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This qualitative study is an attempt to explore the adaptive experiences of elderly Chinese caregivers who have to take care of their spousal partners who are suffering from Alzheimer’s disease (AD). As the illness is known to be chronic and degenerative in nature, caregivers are thus faced with many stressful situations and adjustments are necessary. The purpose of this study is to examine how these caregivers in AD situations are interpreting the factors that might have influenced their adjustments.
The sample consists of 26 participants aged 60 and above that have been a primary caregiver for not less than a year. Three in-depth interviews were conducted with each participant during the study period, which lasted for about two years. Findings show that most of them had to adjust to stressful situations in various aspects of life. They also developed many strategies for life adaption, which can be summarized in the following six adjustment themes.
First, after hearing the AD diagnosis, they initially experienced a series of shocks and false hopes, and subsequent adjustments include eliminating uncertainty, establishing reasonable expectations toward both the disease and treatment, learning to take on the caregiver role, and finally, separating the disease from their partner’s personality.
Second, these elderly caregivers gradually learned to attain inner peace through converting to various religions, searching for meanings within their stressful situations, and reconstructing rational explanations for their negative emotions.
Third, in the area of spousal interaction, adaptive strategies included staying connected with their sick partners, reinforcing their caregiving motivations, completing the “familiar-strange-familiar” cycle, and re-establishing daily routines.
Fourth, in situations involving other family members, such as adult children, the adjustment strategies included sharing economic burdens, re-allocating housework chores, delegating care responsibilities, and emotionally supporting one another.
Fifth, in terms of social network, the main support that caregivers received usually came from informal sources; formal support is extremely limited. Findings further show a connection between the input and output of social support and personal capacity.
Sixth, elderly spousal caregivers often possessed the ability to re-position and re-construct their self-confidence while adjusting to their new life rhythm. They were also able to achieve a balance between their private lives and their care responsibilities, which helps to maintain their well-being and neutralize their distresses.
In summary, participants of the study often utilized more than one strategy in adjusting to their situations. The six aspects of adjustments are thus put together in this study as an integrated model of life adaptation and survival tactics adopted by elderly Chinese AD spousal caregivers. Also, whether these caregivers are successful in adapting depends on their abilities to accept changes in themselves and their environment, and achieve a compromise between the two.
Based on the above findings, a culturally sensitive perspective is thus put forward to enhance the understanding of studied phenomenon within the contemporary Chinese context. Recommendations are also made regarding the needed policy changes and the revisions of social work practices in support of the elderly suffering from AD and their caregiving spouses.published_or_final_version
Social Work and Social Administration
Doctoral
Doctor of Philosophy
47
Van, der Poel Alette. "Die invloed van kroonaarhartomleidingchirurgie op die huweliksverhouding en gesinsfunksionering van die pasiënt." Thesis, Stellenbosch : Stellenbosch University, 2000. http://hdl.handle.net/10019.1/51709.
Full textAbstract:
Thesis (MA)--University of Stellenbosch, 2000.ENGLISH ABSTRACT: It is well known that coronary bypass graft surgery influences the psycho-social adjustment of the patient, but little is known about the effect of bypass surgery on the family members of the patient. The primary aim of this study was to assess the effect of coronary bypass graft surgery on certain aspects of the marital relationship and family functioning of the patient. The secondary aim was to determine which coping strategies families used during the two months after the operation. An experimental pre-test and post-test research design was used. Data during the first measure was collected by means of Biographical, Enriching and Nurturing Relationship Issues, Communication and Happiness (ENRICH)- and Family Adaptability and Cohesion Evaluation Scale-II (FACES II)-questionnaires, which were completed by the patient, the spouse of the patient and the eldest child still living with the parents. ENRICH-, FACES 11-and Family Crisis Oriented Personal Evaluation Scales (F-COPES)-questionnaires were used during the second measure which was conducted two months after the operation. The results indicated that bypass surgery affected the patients' marital satisfaction and communication negatively and changed their attitudes toward the division of new roles in the marriage and family. Bypass surgery had a further negative influence on the emotional bonding of the patients and their spouses with other members of the family. The patients' adaptability regarding new challenges facing the family was also negatively affected. The patients in the experimental group who were still working also showed a greater decline than the retired patients with regards to some of the measured variables. The coping strategies most often used by the families were the seeking of spiritual support and the reframing of the problem. Correlation coefficients between changes in the marital and family variables of the patient and the coping strategies used indicated that if passive appraisal was used, the patients' marital satisfaction would decrease and if reframing of the problem was used, the patients' adaptability regarding new challenges facing the family would increase.
AFRIKAANSE OPSOMMING: Alhoewel kroonaarsiektes die psigo-sosiale aanpassing van die pasiënt beïnvloed, bestaan daar min inligting oor die invloed wat kroonaarhartomleidingchirurgie op die huweliksverhouding en gesinsfunksionering van die pasiënt het. Die doel van hierdie ondersoek is om te bepaal hoe kroonaarhartomleidingchirurgie sekere aspekte van die pasiënt se huweliks- en gesinslewe beïnvloed. Verder het die ondersoek ten doelom te bepaal watter coping-strategieë die gesin post-operatief gebruik. Daar is van 'n eksperimentele voor- en na-metingnavorsingsontwerp gebruik gemaak. Data is ingesamel met Biografiese, Enriching and Nurturing Relationship Issues, Communication and Happiness (ENRICH)- en Family Adaptability and Cohesion Evaluation Scale-II (FACES II)-vraelyste wat gedurende 'n voormetingsgeleentheid deur die pasiënt, huweliksmaat van die pasiënt en oudste kind wat nog in die huis bly, voltooi is. Die na-meting, wat bestaan het uit die voltooing van ENRICH-, FACES 11-en Family Crisis Oriented Personal Evaluation Scales (F-COPES)-vraelyste, het twee maande na die operasie plaasgevind. Die resultate toon dat kroonaarhartomleidingchirurgie die pasiënte se huwelikstevredenheid en -kommunikasie nadelige beïnvloed het en 'n veranderinge in hul houding oor die rolverdeling in die huwelik en gesin teweeg gebring het. Verder het die operasie 'n nadelige effek op die pasiënte en hul huweliksmaats se gevoel van emosionele binding met ander gesinslede gehad. Die pasiënte se vermoë om by nuwe eise en uitdagings wat aan die gesin gestel word aan te pas, is ook nadelig beïnvloed. Verder is bevind dat die werkende pasiënte 'n groter verandering as die afgetrede pasiënte ten opsigte van sekere van die gemete veranderlikes getoon het. Die coping-strategieë wat die meeste deur die gesinne gebruik is, is die soeke na geestelike ondersteuning en die herdefiniëring van die probleem. Die resultate het ook aangedui dat as passiewe waardering as coping-strategie gebruik word, die pasiënte se tevredenheid met hul huwelik sal afneem. Verder sal gesinne se vermoë om by nuwe eise en uitdagings wat aan die gesin gestel word aan te pas, toeneem indien herdefiniëring van die probleem as coping-strategie gebruik word.
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Evans, Deirdre Aileen. "From adolescence to adulthood : a study of the relationship between social factors and outcome for young psychiatric patients." Thesis, University of British Columbia, 1990. http://hdl.handle.net/2429/28714.
Full textAbstract:
Adolescents who were admitted to the Adolescent Psychiatric Unit at Vancouver General Hospital for assessment between 1981 and 1983 who were queried to be in the process of developing a long term psychotic illness were followed retrospectively after five to seven years. At the time of assessment the subjects were between 13 and 16 years of age. The study was intended to act as a pilot project for a larger study. In tune with a biopsychosocial emphasis, outcome was defined as a multi-directional and multi-dimensional concept, involving both positive and negative outcomes in a variety of dimensions. Independent variables were drawn from a structured interview which pertained to the subjects' experience with family relationships, peer relationships, use of treatment resources, educational and employment achievement, drug and alcohol usage, legal difficulties, and quality of life issues since their hospitalization. Three structured outcome measures were used as dependent variables. These included scales which assessed current levels of family functioning, satisfaction and happiness, and community adjustment. Bivariate analysis was conducted using SPSSX:3.
The resulting description of the population indicated a heterogeneous group with a variety of outcomes. Although some of the subjects fit the profile for chronic mental illness, diagnosis did not predict outcome. Positive outcome appeared to be associated with stability in overall family functioning, and in particular with the subjects' reports of a positive relationship with their fathers; with the ongoing use of
treatment resources; with ease in establishing peer relationships; with self-motivatioin in the area of employment; and with the ability of subjects to move from alternate school settings back into the regular system. Subjects who described their families as having problems with control issues and with task accomplishment appeared to have had trouble in a number of areas during the intervening couse. Acceptance of the need for ongoing treatment was associated with the subjects' characterization of their families as being within norms for social values and norms at the time of outcome, suggesting the tendency of families and treatment personnel who have similar values to ally. Subjects who had had minimal or sporadic contact with treatment resources described their families as being weak in most areas of functioning, and in particular in the area of values and norms.
The findings suggest several avenues for further exploration in a larger study. They also support a consideration by treatment resource personnel of the need to involve families as resources in the treatment process, and point to areas in which treatment interventions can be made.Arts, Faculty of
Social Work, School of
Graduate
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Tweedy, Maureen P. "Change in Depression of Spousal Caregivers of Dementia Patients." Thesis, University of North Texas, 2006. https://digital.library.unt.edu/ark:/67531/metadc5338/.
Full textAbstract:
Caring for a family member or loved one with dementia places a heavy burden on those providing the care. Caregivers often develop chronic depression because of having to deal with this burden. A great deal of literature has been published discussing coping effectiveness, effects of social support, and other internal and external means of support for the caregiver. However, little has been written about the changes, if any, in depression that the caregiver experiences after the termination of care, either through institutionalization or death of the person with dementia. This study examined whether there is a change in depression of spousal caregivers after institutionalization of the dementia care recipient as well as any changes in depression that may have occurred as a result of the death of the dementia care recipient. Two theoretical models, the wear and tear model and the adaptation model were discussed in terms of caregiver depression after institutionalization of the dementia care recipient. Two other theoretical models, the relief model and the stress model, were discussed in terms of caregiver depression after the death of the dementia care recipient. Datasets from the National Institute on Aging sponsored Health and Retirement Study were analyzed. Results indicate that both male and female spousal caregivers report an increase in depression after the institutionalization or death of the dementia care recipient, but that as time passes, males report a decrease in depression while females continue to report an increase in depression.
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MacKay, Lyndsay Jerusha, and University of Lethbridge Faculty of Health Sciences. "Exploring family-centered care among pediatric oncology nurses." Thesis, Lethbridge, Alta. : University of Lethbridge, Faculty of Health Sciences, c2009, 2009. http://hdl.handle.net/10133/2483.
Full textAbstract:
Family-centered care (FCC) is important within the practice of pediatric oncology nurses. Such nurses face challenges and barriers when attempting to provide FCC. The purpose of this study was to understand the experiences of pediatric oncology nurses in relation to FCC; identify how pediatric oncology nurses implemented FCC into their practice; identify what facilitated and enabled pediatric oncology nurses to implement FCC; and discern the barriers and challenges that were present in their setting when implementing FCC. A qualitative approach utilizing person-centered interviewing was used to collect data. Nurses (N=20) from the Alberta Children‟s Hospital were recruited through purposeful convenience sampling and were then interviewed. Five major themes were identified from the data set: ACH support f FCC, How participants defined FCC, Establishing FCC, Enhancing FCC, and Barriers and Challenges to providing FCC. Recommendations for future research and implications for practice and education are offered.xii, 191 leaves ; 29 cm