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Books on the topic 'Patient self-determination'

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Author: Grafiati

Published: 4 June 2021

Last updated: 31 January 2023

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1

Nerney, Thomas. Beyond managed care: Self-determination for people with disabilities. Concord, N.H: Self-Determination for Persons with Developmental Disabilities, University of New Hampshire, Institute on Disability/UAP, 1996.

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2

B, Kapp Marshall, ed. Patient self-determination in long-term care: Implementing the PSDA in medical decisions. New York: Springer Pub. Co., 1994.

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3

Cate, Fred H. The Patient Self-Determination Act: Implementation issues and opportunities : a white paper of the Annenberg Washington Program. Washington, DC (1455 Pa. Ave. N.W., Suite 200, Washington 20004): Annenberg Washington Program, Communications Policy Studies, Northwestern University, 1991.

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4

Office, General Accounting. Patient Self-determination Act: Providers offer information on advance directives but effectiveness uncertain : report to the ranking minority member, Subcommittee on Health, Committee on Ways and Means, House of Representatives. Washington, D.C: The Office, 1995.

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5

Office, General Accounting. Patient Self-determination Act: Providers offer information on advance directives but effectiveness uncertain : report to the Ranking Minority Member, Subcommittee on Health, Committee on Ways and Means, House of Representatives. Washington, D.C: The Office, 1995.

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6

Routson, Kenneth. The gifts of autism & Alzheimer's: Stories of unconditional love & self-determination. Fairfield, OH: Tulip Press, 2013.

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7

Commission, Manitoba Law Reform. Self-determination in health care: Living wills and health care proxies. Winnipeg: The Commission, 1991.

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8

Commission, Manitoba Law Reform. Self-determination in health care: Living wills and health care proxies. Manitoba: The Commission, 1991.

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9

ABA Commission on Legal Problems of the Elderly., George Washington University. Division for Aging Studies and Services., and Concern for Dying (Association), eds. Patient Self-Determination Act state law guide. Washington, D.C: The Commission, 1991.

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10

Ulrich, Lawrence P. Patient Self-Determination Act: Meeting the Challenges in Patient Care. Georgetown University Press, 2001.

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11

Ulrich, Lawrence P. The Patient Self-Determination Act: Meeting the Challenges in Patient Care (Clinical Medical Ethics (Washington, D.C.).). Georgetown University Press, 2001.

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12

Ulrich, Lawrence P. The Patient Self-Determination Act: Meeting the Challenges in Patient Care (Clinical Medical Ethics (Georgetown Univ Pr)). Georgetown Univ Pr, 1999.

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13

B, Kapp Marshall, ed. Patient self-determination in long-term care: Implementing the PSDA in medical decisions. New York, NY: Springer Publishing, 1994.

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14

Lance, Linda Johnston. Information-seeking behavior of health care consumers: Influences of the patient self determination act. 1993.

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15

Mosby. Mosby's Legal and Ethical Issues in Nursing Video Series: Patient Self-Determination - Pal Videotape. C.V. Mosby, 1995.

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16

Cooper, Elizabeth. THE EFFECT OF GENDER AND EDUCATION ON OBSTETRIC PRACTITIONERS' ATTITUDES TOWARD PSYCHOSOCIAL ASPECTS OF PATIENT CARE AND PATIENT SELF-DETERMINATION. 1992.

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17

Sullivan, Mark D. Advancing from Activated Patient to Autonomous Patient. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780195386585.003.0008.

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Patient action in chronic disease care may not be best understood as “behavior.” Healthy patients do not just emit healthy behaviors but act as agents in their own lives. Bandura revolutionized health psychology through his “agentic” approach that emphasized patient confidence or self-efficacy. Now, the personal importance of behavior change is elicited using techniques like motivational interviewing. These and other approaches that include personal goals and identity shift our focus from behavior to action. Health action includes not just management of a disease separate from the self, but self-transformation. Achieving lasting change in health actions requires attention to the autonomous quality of patient motivation. Self-determination theory offers a useful theory of intrinsic motivation and an understanding of the process of internalization of motivation. This helps us understand the promise of shared decision-making and its difference from informed consent. Ultimately, patient empowerment must be understood as fostering patient autonomy.

18

Lachance, Rebecca Kay. IMPLEMENTATION OF AN ADVANCE DIRECTIVE POLICY AT A MILITARY MEDICAL CENTER (PATIENT SELF DETERMINATION ACT). 1996.

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19

Corrigan, Patrick W., and American Psychological Association Staff. Person-Centered Care for Mental Illness: The Evolution of Adherence and Self-Determination. American Psychological Association, 2015.

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20

Communications and the Patient Self-Determination Act: Strategies for meeting the educational mandate : a resource guide. Washington, D.C. (Willard Off. Bldg., 1455 Pennsylvania Ave., N.W., Suite 200, Washington 20004): Annenberg Washington Program, Communications Policy Studies, Northwestern University, 1993.

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21

Malin, Michele Sheridan. A DESCRIPTION OF HEALTH CARE POLICY IMPLEMENTATION IN AN ACUTE CARE INSTITUTION: THE PATIENT SELF-DETERMINATION ACT. 1994.

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22

Kapp, Marshall B. Patient Self-Determination in Long-Term Care: Implementing the Psda in Medical Decisions (Springer Series on Ethics, Law, and Aging). Springer Publishing Company, 1994.

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23

New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care., ed. The New Jersey Advance Directives for Health Care Act (and the Patient Self-Determination Act): A guidebook for health care professionals. [Princeton, N.J.]: New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care, 1992.

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24

Bradley, Elizabeth Howe. THE IMPACT OF IMPROVED CONSUMER INFORMATION ON HEALTH CARE DECISION-MAKING: A STUDY OF THE PATIENT SELF-DETERMINATION ACT (NURSING HOME RESIDENTS). 1996.

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25

Canvin, Krysia. Patient experiences and perceptions of coercion: universal meaning, individual experiences? Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780198788065.003.0009.

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This chapter presents a synthesis of major research themes and findings on patients’ subjective experiences and perceptions of coercion in community psychiatry. Covering the 20-year period from 1994 to 2014, it reviews studies of both formal (legislative) and informal (non-legislative) coercion, including patients’ experiences of mandated community treatment or community treatment orders (CTOs), assertive community treatment (ACT), and leverage. It begins by presenting four concepts that characterize patients’ perceptions: interventions, obligations, threats, and safety. It then reviews the contradictory evidence surrounding patients’ experiences of coercion, including patient comparisons of hospital and community coercion and the implications of coercion for self-determination, ‘normality’, care and services, and for wellness. It concludes by identifying gaps in the literature and recommending future research.

26

Patient Self-determination Act: Providers offer information on advance directives but effectiveness uncertain : report to the ranking minority member, Subcommittee on Health, Committee on Ways and Means, House of Representatives. Washington, D.C: The Office, 1995.

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27

Patient Self-determination Act: Providers offer information on advance directives but effectiveness uncertain : report to the ranking minority member, Subcommittee on Health, Committee on Ways and Means, House of Representatives. Washington, D.C: The Office, 1995.

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28

Patient Self-determination Act: Providers offer information on advance directives but effectiveness uncertain : report to the ranking minority member, Subcommittee on Health, Committee on Ways and Means, House of Representatives. Washington, D.C: The Office, 1995.

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29

Patient Self-determination Act: Providers offer information on advance directives but effectiveness uncertain : report to the ranking minority member, Subcommittee on Health, Committee on Ways and Means, House of Representatives. Washington, D.C: The Office, 1995.

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30

Edozien, Leroy C. Self-Determination in Health Care. Taylor & Francis Group, 2020.

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31

Szmukler, George. Challenges to the orthodoxy. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198801047.003.0004.

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Two comparatively recent developments in health care ethics and policy further challenge the conventional bases for involuntary treatment in mental health care. First has been the shift in general medicine over the past 50 years from ‘paternalism’ and large medical discretion to patient ‘autonomy’. Interventions require ‘informed consent’; treatment without a patient’s consent can only occur if the person lacks ‘decision-making capacity’ and the treatment is judged to be in the person’s ‘best interests’. The treatment decision of a general medical patient who has decisional capacity is respected even if it appears to be unwise. This shift to respect for patient self-determination has been largely ignored in psychiatry. The second policy development is the extension in mental health care of involuntary treatment into the community, greatly increasing the scope for the exercise of compulsion. What constitutes an appropriate level of risk to justify compulsion in the community is unclear.

32

Edozien, Leroy C. Self-Determination in Health Care: A Property Approach to the Protection of Patients' Rights. Taylor & Francis Group, 2016.

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33

Edozien, Leroy C. Self-Determination in Health Care: A Property Approach to the Protection of Patients' Rights. Taylor & Francis Group, 2016.

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34

Edozien, Leroy C. Self-Determination in Health Care: A Property Approach to the Protection of Patients' Rights. Taylor & Francis Group, 2016.

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35

Edozien, Leroy C. Self-Determination in Health Care: A Property Approach to the Protection of Patients' Rights. Taylor & Francis Group, 2015.

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36

Edozien, Leroy C. Self-Determination in Health Care: A Property Approach to the Protection of Patients' Rights. Taylor & Francis Group, 2016.

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37

Rushing, Sara. The Virtues of Vulnerability. Oxford University Press, 2020. http://dx.doi.org/10.1093/oso/9780197516645.001.0001.

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There are many locations, relationships, and experiences through which we learn what it means to be a citizen. Contemporary healthcare—or “the clinic”—is one of those sites. Being drawn into the complex “medical-legal-policy-insurance nexus” as a patient entails all sorts of learning, including, it is argued here, political learning. When we are subjected as a patient, frequently through a discourse of “choice and control,” or “patient autonomy,” what do we learn? What happens when the promise of a certain kind of autonomy is accompanied by demands for a certain kind of humility? What do we learn about agency and self-determination, as well as trust, self-knowledge, dependence, and resistance under such conditions of acute vulnerability? This book explores these questions on a journey through medicalized encounters with giving birth, navigating death and dying, and seeking treatment for life-altering mental illness (here post-traumatic stress disorder among veterans). While the body has always posed a problem for Western thought, and has been treated as an obstacle to freedom and independence and something our rational capacity must master and control, this book aims to counter that intellectual-historical and political tendency by asking how we might reimagine the political potential of embodiment, or make space for considering “the virtues of vulnerability.” In particular, the book offers a novel conception of democratic citizen-subjectivity, grounded in an ethical disposition of humility-informed-relational-autonomy.

38

Oklopcic, Zoran. The Nomos and the Gaze. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198799092.003.0006.

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Chapter 5 confronted the imagination of the right to self-determination in international law. It focused on the ways in which interpretations of that right hinge on jurists’ implicit cartographies, their scopic regimes, affective predilections, disciplinary self-images, concealed calculi of suffering, visions of alternative universes, false binaries, and their idiosyncratic levels of (im)patience and anxiety, which—together with their quasi-nationalistic professional commitments and dreams of disciplinary sovereignty—remain some of the main factors that determine how international lawyers interpret the national sovereignty, territorial integrity, and political autonomy of everyone else. After having proposed a number of new ways of looking at the claims of the right to self-determination, Chapter 6 ends on a sobering note: as long as jurists remain preoccupied with their own disciplinary self-determination and ‘linguistic’ purity, they will continue reproducing the flat, monochromatic, and vacuous imaginary of popular sovereignty.

39

Szmukler, George. How mental health law discriminates against persons with mental illness. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198801047.003.0005.

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Mental health law discriminates against people with mental illness when it comes to detention and involuntary treatment. This is evident when we compare such law with that applying in the rest of medicine, certainly in countries with well-developed legal systems. Mental health law fails to respect patient ‘autonomy’ (or self-determination) in the same way as it does in the rest of medicine. Furthermore, a confusion between a person’s health interests and the protection of others results in laws permitting the preventive detention of people with mental disorders—probably uniquely so—on the basis of ‘risk’ of harm, without any offence having been committed. Though people with mental illness are responsible for a very small percentage of violent offences, they can be preventively detained—on grounds reserved for them—while people without a mental illness—equally risky to others or even more so—cannot.

40

Grabe, Magnus, and Björn Wullt. Urinary tract infection. Edited by Rob Pickard. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199659579.003.0004.

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Infections of the urinary tract are among the most frequent infections encountered in the community and hospital environments. They range from harmless self-curing cystitis to severe pyelonephritis with life-threatening sepsis. Urinary tract infections are often recurrent. Host defence is crucial to control the infection but can also be deleterious in terms of scar formation. Early diagnosis, determination of severity, evaluation of possible risk factors, and assumption of possible pathogen are essential aspects to initiate efficient treatment. Urine culture with antibiotic sensitivity testing is the most important tool to confirm a suspected clinical diagnosis and direct treatment. Patients with urological disease are particularly susceptible to urinary tract infections, and healthcare-associated urinary infections are observed in approximately 10% of hospitalized urological patients. In view of the worsening resistance pattern of common urinary pathogens against available antimicrobial agents, it is important to comply with recommended treatment regimens.