Relevant bibliographies by topics / Patient self-determination

Academic literature on the topic 'Patient self-determination'

Author: Grafiati
Published: 4 June 2021
Last updated: 31 January 2023

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Contents

  1. Journal articles
  2. Dissertations / Theses
  3. Books
  4. Book chapters
  5. Conference papers

Journal articles on the topic "Patient self-determination":

1

Anonymous. "Patient Self-Determination Act Supported." Journal of Gerontological Nursing 16, no. 10 (October 1990): 47. http://dx.doi.org/10.3928/0098-9134-19901001-24.

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PARKMAN, CYNTHIA A. "The Patient Self-Determination Act." Nursing Management (Springhouse) 28, no. 10 (October 1997): 44???48. http://dx.doi.org/10.1097/00006247-199710010-00011.

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Soskis, Carole W., and Toba Schwaber Kerson. "The Patient Self Determination Act." Social Work in Health Care 16, no. 4 (August 31, 1992): 1–18. http://dx.doi.org/10.1300/j010v16n04_01.

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Kring, Daria L. "The Patient Self-determination Act." JONA's Healthcare Law, Ethics, and Regulation 9, no. 4 (October 2007): 125–31. http://dx.doi.org/10.1097/01.nhl.0000300767.91800.17.

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&NA;. "The Patient Self-determination Act." JONA's Healthcare Law, Ethics, and Regulation 9, no. 4 (October 2007): 132–33. http://dx.doi.org/10.1097/01.nhl.0000300772.04369.59.

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Fletcher, JohnC. "US Patient Self-Determination Act." Lancet 339, no. 8784 (January 1992): 60. http://dx.doi.org/10.1016/0140-6736(92)90184-5.

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McCloskey, Elizabeth Leibold. "The Patient Self-Determination Act." Kennedy Institute of Ethics Journal 1, no. 2 (1991): 163–69. http://dx.doi.org/10.1353/ken.0.0062.

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Haynor, Patricia M. "The Patient Self-Determination Act." Journal of Nursing Administration 26, no. 10 (October 1996): 47–55. http://dx.doi.org/10.1097/00005110-199610000-00012.

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White, Margot L. "The Patient Self-Determination Act." JAMA 266, no. 3 (July 17, 1991): 410. http://dx.doi.org/10.1001/jama.1991.03470030110035.

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Fletcher, John C. "The Patient Self-Determination Act: Yes." Hastings Center Report 20, no. 5 (September 1990): 33. http://dx.doi.org/10.2307/3562536.

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Journal articles Dissertations / Theses Books

Dissertations / Theses on the topic "Patient self-determination":

1

Wagner, Leanna. "A Policy Analysis of the Patient Self-Determination Act of 1990." Thesis, California State University, Long Beach, 2018. http://pqdtopen.proquest.com/#viewpdf?dispub=10784173.

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This is a policy analysis of the Patient Self-Determination Act of 1990 which aimed to improve access and education of Advance Health Care Directives (ADs). ADs are in the form of durable power of attorneys and living wills that communicate a patient’s decisions concerning life sustaining treatment. The policy has three objectives, first that health care staff are required to educate patients on ADs and to follow such documentation when treating patients. Second, the policy calls for the Federal Department of Health and Human Services (HHS) to educate the United States population on the benefits and need for ADs. Lastly, it required states to create and implement their own laws concerning end-of-life treatments and the use of ADs. This analysis focuses on the impact of the policy on patient self-determination, informed consent and quality-of-life.

2

Victoria, Lindsey N. "A Feasibility Analysis of a Pilot Study Comparing Prenatal Genetic Service Delivery Outcomes Using the Self-Determination Theory." Scholar Commons, 2019. https://scholarcommons.usf.edu/etd/7982.

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Genetic counselors, along with the National Society of Genetic Counselors, desire evidence-based research and data assessing the value of genetic counseling in genetic service delivery. This pilot study was designed to gather data about genetic counseling outcomes as well as analyze the feasibility of a study looking at new genetic outcome measures in the prenatal setting. Implementation of the methods used for data collection were evaluated by analysis of the appropriateness, acceptability, feasibility, fidelity, and adoption of the research protocol at three sites. We found that there is a hierarchy between implementation outcomes and it may be necessary to satisfy one implementation outcome before the next one can be achieved. We also found that patient engagement is a key component to evaluating the success of methods used for data collection. These findings may be useful to individuals designing future research studies used to measure genetic counseling outcomes.
3

Johansson, Beatrice, and Oskar Holmdahl. "Patienters upplevelser av psykiatrisk vård : Med fokus på tvångsvård." Thesis, Kristianstad University College, School of Health and Society, 2009. http://urn.kb.se/resolve?urn=urn:nbn:se:hkr:diva-6379.

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Abstract:

 

Bakgrund: Att vara inskriven enligt lagen om psykiatrisk tvångsvård, LPT, innebär att självbestämmandet tas ifrån en. Eftersom den nya lagen skapades för att skydda patienters integritet undersöker detta arbetet patienternas upplevelser av tvångsvård. Syfte: Syftet var att beskriva patienters erfarenheter av tvång med fokus på tvångsvård inom den psykiatriska vårdenheten. Metod: En litteraturstudie där sju vetenskapliga artiklar ingick. Systematisk granskning av artiklarna genomfördes. Resultat: Resultatet utgörs av tre kategorier: de som uppfattar tvång i störst utsträckning vilket var främst vita, högutbildade och kvinnor. Negativa erfarenheter av tvångsvård vilket inkluderade att ingen lyssnade eller tog en på allvar. Slutligen positiva erfarenheter av tvångsvård vilket bland annat innebar att ha någon att prata med och få viss kontroll över sin vård. Diskussion: Självbestämmande och kommunikation är viktiga faktorer som spelar en stor roll när det kommer till upplevelser av tvångsvård. Slutsats: Många faktorer spelar in vid upplevelser av tvångsvård och tvång. Både negativa och positiva upplevelser kom fram. Många problem hade kunnat undvikas om personalen hade pratat med patienterna och visat empati. Fler studier i ämnet behövs för att personalen ska kunna förstå patienterna och i slutändan ge en bättre vård.


Background: To be admitted according to the law of coercive measures in psychiatric care, LPT, one is stripped of one’s self-determination. Since the new law was created to protect patients' integrities, the aim of this study was to determine how patients' experienced coercive measures. Purpose: The aim was to describe patient´s experience of coercive measures with focus on psychiatric coercive care within a psychiatric care unit. Method: A literature review in which seven scientific articles were included. Systematic review of the articles was used. Results: Three categories were found: Those who experience coercive measure the most which was mainly white people, women and those with a high education. Negative experience of coercive measures which included not being listened to and taken serious. Finally positive experience which included having someone to talk to and being given some control over one’s own care. Discussion: Self determination and communication are key factors when it comes to experiences of coercive measures in psychiatric health care. Conclusion: There are many factors that correlated with experience of coercive measures and coercion. Both negative and positive experiences were mentioned. Many problems could have been avoided if only the staff had talked to the patients and showed empathy. More studies are needed to make the staff understand patients and ultimately give them better care.

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Olivera, Jacqueline, and Leyton Maureen Loyola. "Äldre personers upplevelser av utskrivningsprocessen från slutenvård till primärvård : en litteraturöversikt." Thesis, Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, 2020. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-8619.

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Bakgrund: Utskrivningsprocessen har förändrats på grund av sjukvårdsreformer med mål att stärka patienters ställning och förkorta vårdtider inom sluten vård. Samtidigt som en åldrande befolkning med ökande multisjukhet och komplexa vårdbehov ställer höga krav på samverkan mellan berörda parter. Äldre patienters upplevelse av utskrivningsprocessen är av intresse för sjuksköterskor i rollen som samordnare av insatser under utskrivningsprocessen. Syfte: Syftet var att belysa äldre personers upplevelser av utskrivningsprocessen från slutenvård till primärvård. Metod: Efter en kvalitetsgranskning gjordes en litteraturöversikt enligt Fribergs metod på nio kvalitativa och tre kvantitativa studier ur databaserna CINAHL och PubMed. Resultat: Ur analysen identifierades fem teman under utskrivningsprocessen och var patienters: informationsbehov och vårdpersonalens betydelse, känsla av utsatthet, nöjdhet och tillfredställelse med vården, strategier och empowerment, samt anhörigas betydelse för patienterna. Slutsats: Äldre patienter upplevelser av utskrivningsprocessen var brist på delaktighet och samordning vilket gav upphov till känslor av oro, stress, förvirring och maktlöshet. Patienter upplevde en ojämlik tillgång till insatser, i synnerhet personer ≥ 80 år. Bristande kommunikation mellan vårdpersonal och patienter påverkar patienters upplevelse av utskrivningsprocessen negativt och orsakade vårdlidande.
Background: The hospital discharge process (DP) has changed due to healthcare reforms whose aim has been to promote the status (voice) of patients and to shorten hospital stays. At the same time as an ageing population with increased multimorbidity and complex care needs puts high demands for integrated care on the partners concerned. Elderly patients’ experiences of the hospital discharge process are of interest to nurses in their role as coordinators of integrated care during the discharge process. Aim: The aim was to highlight older persons’ experiences of the discharge process from inpatient to primary care. Method: Following a quality review, a literature review was conducted according to the method by Friberg on nine qualitative and three quantitative articles from the databases CINAHL and PubMed. Results: From the analysis five themes emerged during the DP and were patients’: need for information and the importance of care personnel, feeling of vulnerability, satisfaction with health care, strategies and empowerment as well as the importance of relatives for the patients. Conclusion: Older patients’ experiences of the DP were lacking in participation and integrated care which aroused feelings of concern, stress, confusion and powerless. Patients experienced an unequal access to care and support, especially persons ≥ 80 years. Lack of communication between care professionals and patients influence patients experience of the DP negatively and can lead to health care-induced suffering.
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Riahi, Löfdahl Fredrika. "” Ibland känner jag mig övergiven därför att personalen har så mycket andra människor att ta hand om”. : - En kvalitativ intervjustudie som presenterar några äldres åsikter om hur relationen till vårdare kan påverka äldre i deras vardag." Thesis, Stockholms universitet, Institutionen för socialt arbete - Socialhögskolan, 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-113671.

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The purpose of this thesis is to examine the relationship between the elderly at a retirement home and their professional caretakers with focus on the perspective of the elderly. Chosen method, a qualitative interview analysis has been conducted to describe how the relationship affects the elderly in their everyday lives. The total amount of interviews were four. The relationship between the elderly and their professional caretakers has rarely been examined in previous research from an elder’s perspective. The results indicate that the elderly often are satisfied with the way the professional caretakers treat them. Factors that the elderly mentioned as problematic were that professional caretakers often acted stressed, and rushed through things which the elderly considered as problematic for their own well- being. Another feature was the asymmetric relationship with the professional caretakers which affected the elderly ́s belief in their own capability in managing their everyday lives. In cases where the elderly felt that the relationship was equal their capacity and their beliefs to their own capacity increased significantly which was an effect that was positive for the elderly ́s physical and mental health.
6

Gibb, Winna. "Informed consent : a liberal perspective." Thesis, Queensland University of Technology, 1998.

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7

Lindberg, Jenny. "Withholding information from patients regarding do-not-resuscitate (DNR) decisions - a moral evaluation." Thesis, Umeå universitet, Institutionen för idé- och samhällsstudier, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-132334.

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Yu, Chen-An. "Motivation and physical activity among rheumatoid arthritis patients : a self-determination theory approach." Thesis, University of Birmingham, 2015. http://etheses.bham.ac.uk//id/eprint/6197/.

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Rheumatoid Arthritis (RA) is a chronic inflammatory disease that can negatively impact people both psychologically and physically. Health benefits of regular physical activity (PA) have been demonstrated for RA patients (Cooney et al., 2011), however people living with RA are more likely to be sedentary (Sokka et al., 2008; Yu et al., 2015). A Self-Determination Theory (SDT) based approach was adopted in this thesis. The validity and reliability of the Behavioural Regulation in Exercise Questionnaire-2 (BREQ-2) was tested (Chapter 2) within RA patients via a mixed method approach. In a second study (Chapter 3), hypothesised relationships based on SDT between autonomy support from the important other (s), basic psychological needs, motivation regulations and RA patients’ subjective vitality and self-reported PA was tested via structural equation modelling. Presumed mediation effects were also examined. As an incongruence between PA measurement has been found previously (Semanik et al., 2011), the agreement with self-reported PA and sedentary time (ST) were determined (Chapter 4) on both objective and subjective PA, then related to the VO2 max test. The next investigation (Chapter 5) assessed the associations between motivation regulations, objectively measured PA/ST and a key indicator of compromised mental health (i.e., depressive symptoms). Overall findings of this thesis were discussed in Chapter 6, and future research directions, practical implication and limitations proposed.
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Urias-Bodnar, Leslie Yaneth. "Effect of Self-Determination, Motivation, and Dispositional Optimism with Physical Therapy in Geriatric Patients." ScholarWorks, 2017. https://scholarworks.waldenu.edu/dissertations/4108.

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Older people are frequently faced with physical conditions that require treatment. A better understanding of the components of engagement relating to the outcomes of treatment was the focus of the study. The purpose of this quantitative study was to examine whether there was an association between the independent variables of optimism, pessimism, motivation, and self-determination and their impact on the dependent variable of achieving physical activity goals in 86 geriatric patients, ages 65 to 80 receiving physical therapy services. The theoretical framework of self-determination, motivation, optimism, and pessimism was assessed by using two self-report questionnaires, The Self-Determination Scale and The Revised Life Orientation Test, along with reviewing physical therapy evaluations, progress notes, and discharge summaries. It was found through the use of a multiple regression analysis that no significant difference in modified independence existed between those with low versus high optimism, pessimism, self-determination, and motivation; there was also no significant difference in the number of physical therapy goals achieved upon discharge. The findings of this study warrant further research on the connection between cognitive and physical abilities and the decline of health due to the aging process. The implication of social change is the need for continued research for clarification of what has been provided through previous research that high levels of optimism, self-determination, and motivation explain a positive outcome in the treatment, rehabilitation process, and achievement of goals versus the contradictory results demonstrated in this research study.
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Chang, Ling Patricia. "Development of Motivation to Exercise in Patients with Parkinson's Disease: An Application of Self Determination Theory." Diss., Temple University Libraries, 2012. http://cdm16002.contentdm.oclc.org/cdm/ref/collection/p245801coll10/id/172423.

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Educational Psychology
Ph.D.
A patient's response to receiving a diagnosis of a chronic progressive disease is critical, as is the approach to the intervention that the patient receives. Parkinson's disease (PD) exemplifies chronic disease with the additional complication of being progressively degenerative and therefore increasingly debilitating. Many of the patients with PD suffer from a decrease in motivation. While physical therapy and individual independent exercise may benefit these patients with PD, the lack of motivation to exercise often presents a significant barrier to this beneficial behavior. Self-determination Theory (SDT) has been used successfully in other health paradigms to improve motivation. Motivation is achieved by satisfying the three psychological needs of competence, autonomy and relatedness of the individual. Physical therapy intervention may facilitate motivation through the development of relatedness to the health care professional (HCP). The purpose of this study was to determine if SDT may be effectively applied to increase motivation in patients with PD, determine the factors that facilitate the motivation, and quantify the effect on the patient's quality of life. This study utilized a within subject design consisting of 8 weekly sessions. At screening, demographics and baseline assessments for cognitive impairment (SLUMS), severity of PD ( Hoehn and Yahr), quality of life (PDQ-8 a questionnaire validated for the PD patient), and evaluation of physical impairments (Tinetti gait and balance test and Timed Up and Go Test[TUG]) were collected. Each weekly session included motivational interviewing designed to implement SDT strategies promoting satisfaction of the three psychological needs. Additionally, at each weekly physical therapy session, additional physical assessments were completed as well as the SRQ-E, a Likert scale SDT questionnaire designed to determine the motivation to exercise (extrinsic regulation, introjected regulation, identified regulation and intrinsic motivation.). Ten patients were consented and enrolled in this study at a physician-owned clinic in the Philadelphia suburbs. All patients completed the 8-week study, with 6 of the patients opting to continue in physical therapy after the study. At baseline, patients exhibited mild to moderate impairment in physical activity as assessed by the Hoehn and Yahr average score of 2.9 (range 1-4). The average age of the patient was 68.4 (range 50-84) years with an average SLUMS score of 26.3 (range 20-30), indicating mild cognitive impairment. The data from the SRQ-E did not demonstrate significance for change in motivation. Both the Tinetti gait and balance test and the TUG average scores improved, with a change of 4.9, 1.8, and 7.1, respectively. The PDQ-8 average change improved 0.118, indicating improvement in the quality of life. Results from both the Tinetti and PDQ-8 demonstrated improvements that were statistically significant (p=.0007 and p=.008 respectively). Qualitative analysis of the motivational interviews showed the most common themes as a decrease in pain, increase in strength and function as well as independently initiating a novel exercise. Correlative analysis was inconclusive. While motivational interviewing is qualitative, a positive effect was indirectly assessed by the patient's self-reports of increased exercise and the development of relatedness to the HCP as evidenced by the patient's 100% completion rate of the study and 60% continuation on physical therapy. Further study is warranted to determine the factors that facilitated this improvement and evaluate the benefit of motivation in these patients with Parkinson's disease.
Temple University--Theses
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Books on the topic "Patient self-determination":

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Nerney, Thomas. Beyond managed care: Self-determination for people with disabilities. Concord, N.H: Self-Determination for Persons with Developmental Disabilities, University of New Hampshire, Institute on Disability/UAP, 1996.

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B, Kapp Marshall, ed. Patient self-determination in long-term care: Implementing the PSDA in medical decisions. New York: Springer Pub. Co., 1994.

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Cate, Fred H. The Patient Self-Determination Act: Implementation issues and opportunities : a white paper of the Annenberg Washington Program. Washington, DC (1455 Pa. Ave. N.W., Suite 200, Washington 20004): Annenberg Washington Program, Communications Policy Studies, Northwestern University, 1991.

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Office, General Accounting. Patient Self-determination Act: Providers offer information on advance directives but effectiveness uncertain : report to the ranking minority member, Subcommittee on Health, Committee on Ways and Means, House of Representatives. Washington, D.C: The Office, 1995.

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Office, General Accounting. Patient Self-determination Act: Providers offer information on advance directives but effectiveness uncertain : report to the Ranking Minority Member, Subcommittee on Health, Committee on Ways and Means, House of Representatives. Washington, D.C: The Office, 1995.

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Routson, Kenneth. The gifts of autism & Alzheimer's: Stories of unconditional love & self-determination. Fairfield, OH: Tulip Press, 2013.

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Commission, Manitoba Law Reform. Self-determination in health care: Living wills and health care proxies. Winnipeg: The Commission, 1991.

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Commission, Manitoba Law Reform. Self-determination in health care: Living wills and health care proxies. Manitoba: The Commission, 1991.

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ABA Commission on Legal Problems of the Elderly., George Washington University. Division for Aging Studies and Services., and Concern for Dying (Association), eds. Patient Self-Determination Act state law guide. Washington, D.C: The Commission, 1991.

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Ulrich, Lawrence P. Patient Self-Determination Act: Meeting the Challenges in Patient Care. Georgetown University Press, 2001.

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Book chapters on the topic "Patient self-determination":

1

Williams, Geoffrey C. "Self-Determination and the Patient-Health Practitioner Relationship." In Human Motivation and Interpersonal Relationships, 335–60. Dordrecht: Springer Netherlands, 2014. http://dx.doi.org/10.1007/978-94-017-8542-6_15.

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Maehle, Andreas-Holger. "Patient Information and Consent: Self-Determination versus Paternalism." In Doctors, Honour and the Law, 69–94. London: Palgrave Macmillan UK, 2009. http://dx.doi.org/10.1057/9780230234390_4.

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Corrigan, Patrick W., Karina J. Powell, and Patrick J. Michaels. "Beyond the rational patient: Implications for health decisions and behaviors." In Person-centered care for mental illness: The evolution of adherence and self-determination., 29–51. Washington: American Psychological Association, 2015. http://dx.doi.org/10.1037/14644-003.

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Hornung, Severin, Bettina Lampert, Matthias Weigl, and Jürgen Glaser. "Modeling Self-determination in Emotional Labor: Stressful Patient Interactions, Emotion Regulation, and Burnout in Geriatric Nursing." In Advances in Intelligent Systems and Computing, 180–92. Cham: Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-60483-1_19.

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Dietz, Andreas. "The Surgical Approach to Elderly Patients with HNSCC." In Critical Issues in Head and Neck Oncology, 111–18. Cham: Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-63234-2_8.

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AbstractDespite the fact that elderly people are the main incidental and continuously growing patient group with head and neck cancer, prospective trials focusing on special issues regarding head and neck surgery in elderlies are missing. To avoid complications during and after surgery in that patient category, comprehensive evaluation of functional status, comorbidities, performance status, social support and mental condition is mandatory. Regarding functional parameters, cardiac and respiratory conditions play a major role for any primary surgical procedure. Nevertheless, other comorbidities, medication and patients view on self-determination have carefully to be taken into consideration. It has repeatedly been shown that fit elderly individuals may benefit from intensive therapies like reconstructive surgery with microvascular free tissue transfer, concurrent chemoradiotherapy in the locoregionally advanced disease setting, and even from the standard first- and second-line palliative systemic therapies. Since it is well known that tolerance of systemic nonsurgical treatments in elderly people is less and therefore death from noncancer-related causes in that population is higher, moderate surgical procedures can be even more effective regarding quality of life in situations facing higher comorbidities, or functional constraints with limited life expectancy compared to nonsurgical standard approaches. Older people usually are at increased risk of postoperative complications. In particular, organ failure progresses much faster in multiple organ failure. The preoperative clarification of comorbidity for the avoidance of surgical complications is therefore of major importance. Close coordination with anesthesia and rapid postoperative mobilization are essential for this. Decision-making and treatment based on specific assessment in an experienced multidisciplinary team is key.
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Glässel, Andrea, Mirriam Tyebally Fang, Manya J. Hendriks, and Nikola Biller-Andorno. "Using Narratives to Improve Health Literacy – An Ethical and Public Health Perspective." In Public Health Ethics Analysis, 169–80. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-030-92080-7_12.

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AbstractMost people have little interaction with the health system and tend to be unfamiliar with the prevention, diagnosis, and treatment of even common health conditions. In case of illness, the medical information delivered by health professionals can be overwhelming because of its complexity, unfamiliar terminology, and use of statistical data. Understanding such information requires specific “health literacy” skills. Health literacy empowers individuals to exercise their autonomy and self-determination regarding health-related matters. This chapter explores how health literacy and ethical questions are interrelated as illustrated using actual patient narratives of a woman’s pregnancy experiences. The narratives were collected as part of the Swiss DIPEx (Database of individual patients’ experiences) database. We demonstrate that narratives of health experiences can be used to enhance health literacy. Firstly, narratives can convey complex information in an easily understandable manner. Secondly, they allow policymakers to understand, the informational needs of users of the health care system and the communication gaps they perceive can help improve the health care system and qualitative evaluate and improve medical communication efforts. The chapter ends by raising a number of ethical questions at the individual and health system level related to the use of narratives for improving health literacy for discussion.
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Sass, Hans-Martin, and Arnd T. May. "Advance Directives: Balancing Patient’s Self-Determination with Professional Paternalism." In Ethics in Psychiatry, 147–59. Dordrecht: Springer Netherlands, 2010. http://dx.doi.org/10.1007/978-90-481-8721-8_10.

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Davy, Zowie. "Medical governance and governing the healthcare assemblage." In Sex/Gender and Self-Determination, 83–110. Policy Press, 2021. http://dx.doi.org/10.1332/policypress/9781447344278.003.0004.

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This chapter looks at a range of medico-legal policies in order to draw distinctions between international and UK contexts in relation to patient centredness, autonomy, bodily integrity and self-determination. Here we will observe institutional lines of flight. The chapter explores the development of medical governance, particularly (but not exclusively) in the UK, to understand whether the relational field and all its relevant parts implicated in the medical-patient-policy assemblage continue to be fit for purpose in assigning a sex/gender at birth. From this we can ask whether sex/gender assignments have a medical purpose and what challenges can be levelled at the practice in light of human rights declarations surrounding the rights of people in relation to bodily integrity, autonomy and self-determination. This detour into medico-legal policy domains will also point to the ways that trans, sex/gender expansive and intersex people are treated differently to cis sex/gender people in many parts of the world, and continue to be unnecessarily pathologized. This chapter simply highlights that all bodies are affected and affect differently the ethical arguments about bodily integrity, autonomy and self-determination.
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Davy, Zowie. "(Self-)determining trans, sex/gender expansive and intersex people." In Sex/Gender and Self-Determination, 111–40. Policy Press, 2021. http://dx.doi.org/10.1332/policypress/9781447344278.003.0005.

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This chapter explores the burgeoning debates from the international trans and intersex depathologization movement in relation to medico-legal sex/gender self-determination. This activism argues for a patient-centred, self-determination model to be implemented. The chapter goes on to describe the different degrees to which sex/gender self-determination has made inroads into medico-legal frameworks in Europe, Asia, and South America, and assesses whether these developments are underpinned by self-determination. As such, this chapter deals with the micro-challenges and movements that are producing new medical practices for trans, sex/gender expansive and intersex people through political activism. I demonstrate that in some countries, psychiatrists’ power over trans, sex/gender expansive and intersex people’s bodies is being questioned, and highlight that the self-determination model has succeeded in changing the context in various jurisdictions.
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"Jim Crow Psychiatry II: The Patient Self-Determination Act." In Liberation by Oppression, 105–20. Routledge, 2017. http://dx.doi.org/10.4324/9780203787182-6.

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Conference papers on the topic "Patient self-determination":

1

Živojinović, Dragica. "IZJAVE VOLjE ZA SLUČAJ POTONjE NESPOSOBNOSTI ZA SAMOSTALNO ODLUČIVANjE: ANTICIPIRANO ODLUČIVANjE PACIJENATA U EVROPSKIM PRAVIMA." In XV Majsko savetovanje: Sloboda pružanja usluga i pravna sigurnost. University of Kragujevac, Faculty of Law, 2019. http://dx.doi.org/10.46793/xvmajsko.621z.

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Abstract:
The subject of this paper is the analysis of the methods of regulating the advance decision of patients at the level of the Council of Europe and in the countries of German legal tradition in order to underline the significance of this institute and the predispositions for its validity and applicability in concrete medical situations. In the first part of the paper, the author presents and assesses the regulations related to advance decision making adopted under the auspicies of the Council of Europe, mostly with the aim of its recoginition as the expression of people's autonomy and the right to self- determination, but then, also, with the aim of establishing the principles on which the member countries base this institute in their national legislations. The second part is devoted to the analysis of the methods of regulating the advance directives and advance powers of attorney in Switzerland, Germany and Austria. In the conclusion, the author underlines the value of this institute and the need of the Republic of Serbia, the member of the Council of Europe, to harmonize its regulations on this matter with European standards. In that context, Serbia needs to acknowledge and establish the conditions under which a patient may in advance, in case of his subsequent incapacity, refuse or accept to be the subject of a certain medical treatment or designate a person who will make decisions on his behalf and under certain instructions related to his health. Here the author points to some issues that need to be adequtely solved , such as: the validity of declarations of consent, their registration, the monitring of their execution, etc.
2

Torquato, Salvatore, and Thomas S. Deisboeck. "An Interdisciplinary Approach to Brain Tumor Growth Dynamics." In ASME 2000 International Mechanical Engineering Congress and Exposition. American Society of Mechanical Engineers, 2000. http://dx.doi.org/10.1115/imece2000-1415.

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Abstract Intensive medical research over the last fifty years has left the prognosis for patients diagnosed with malignant brain tumors nearly unchanged. This suggests that a new perspective on the problem may offer important insight. We have undertaken an interdisciplinary research program, seeking to study brain tumors as complex systems. This research aims to develop computational models coupled with experimental assays to investigate the hypothesis of self-organizing behavior in tumor systems. Preliminary assays have revealed behavior consistent with this hypothesis. A cellular-automaton model to study the growth of the tumor core has been developed. This model has proven successful in reproducing macroscopic tumor growth from a limited parameter set. Further, it has been applied to investigate the importance of heterogeneity to determination of a clinical prognosis and has demonstrated the importance of understanding clonal composition in making an accurate prognosis.
3

Pavićević, Aleksandra. "EUTANAZIJA KAO KRAJNJI IZRAZ LIČNOG PRAVA ČOVEKA NA SAMOODREĐENjE." In XVII majsko savetovanje. Pravni fakultet Univerziteta u Kragujevcu, 2021. http://dx.doi.org/10.46793/uvp21.647p.

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The author discusses different segments of the institute of euthanasia ("murder out of mercy"), especially the question of the justification of its legalization. The subject of the analysis are the solutions of certain European regulations that have completely or partially decriminalized euthanasia, and then the domestic one, in which there is a collision of the norms of criminal and medical law. According to the positive serbian criminal law, euthanasia is a criminal offense and a privileged form of murder, while the Law on Patients' Rights indirectly allows the so-called passive euthanasia, which is not the optimal solution, which introduces legal uncertainty. Тhe Preliminary Draft of the Civil Code of Serbia, which embodies the proposal for the future civil law of Serbia, proposes the decriminalization of euthanasia, which is a solution that needs to be commented on. The aim of the paper is a comparative analysis of domestic and foreign solutions of this controversial institute - through its concept, types (active and passive euthanasia) and critical analysis of the reasons for and against its introduction into the domestic law. The author evaluates the proposal of the Preliminary Draft as progress, with the idea that euthanasia, despite all the controversies that accompany it, represents the ultimate expression of a personal right to self-determination (subjective civil right sui generis), in both modalities, without distinction.

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