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Books on the topic 'Patient-reported outcomes and experiences'

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Author: Grafiati
Published: 10 December 2022
Last updated: 28 January 2023

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1

Benson, Tim. Patient-Reported Outcomes and Experience. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-030-97071-0.

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2

Patient-reported outcomes: Measurement, implementation and interpretation. Boca Raton: CRC Press/Taylor & Francis Group, 2014.

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3

Devlin, N. J. (Nancy J.), author and Parkin David W. author, eds. Using patient reported outcomes to improve health care. Chichester, West Sussex: John Wiley & Sons Inc., 2016.

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4

Kamudoni, Paul, Nutjaree Johns, and Sam Salek. Living with Chronic Disease: Measuring Important Patient-Reported Outcomes. Singapore: Springer Singapore, 2018. http://dx.doi.org/10.1007/978-981-10-8414-0.

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5

Athanasiou, Thanos, Ara Darzi, and Aung Ye Oo, eds. Patient Reported Outcomes and Quality of Life in Cardiovascular Interventions. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-031-09815-4.

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6

M, Fayers Peter, and Machin David 1939-, eds. Quality of life: The assessment, analysis, and interpretation of patient-reported outcomes. 2nd ed. Chichester: John Wiley & Sons, 2007.

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7

Office, General Accounting. Cataract surgery: Patient-reported data on appropriateness and outcomes : report to congressional requesters. Washington, D.C: The Office, 1993.

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8

Office, General Accounting. Cataract surgery: Patient-reported data on appropriateness and outcomes : report to Congressional requesters. Washington, D.C: U.S. General Accounting Office, 1993.

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9

Physician entrepreneurs: The quality patient experience : improve outcomes, boost quality scores, and increase revenue. Marblehead, MA: HCPro, 2008.

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10

Osborn, Leah. Sex offender treatment programs in correctional settings: Participant selection, treatment experience, and treatment completion. New York: LFB Scholarly Pub., 2007.

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11

The Comparative guide to American hospitals: 4,693 hospitals with key personnel and 49 quality measures relating to heart attack, heart failure, pneumonia, childhood asthma, surgical care, medical imaging and patient experience. 3rd ed. Amenia, NY: Grey House Publishing, 2011.

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12

Stover, Angela M. Integrating Patient-Reported Outcomes into Routine Cancer Care Delivery. Edited by David A. Chambers, Wynne E. Norton, and Cynthia A. Vinson. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190647421.003.0021.

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This case study describes a cancer hospital’s experience with implementing symptom questionnaires into routine care delivery. Implementing symptom questionnaires (patient-reported outcome measures [PROs]) into cancer care delivery is a useful case study for implementation science because there is ample evidence for effectiveness in improving care but stalled implementation throughout most US health care systems. No “turnkey” PRO implementation strategies exist; thus, each clinic or health care system has to make many complex implementation decisions on its own. The Organizational Model of Innovation Implementation and the Theoretical Domains Framework are used to illustrate the implementation planning process and barriers and facilitators encountered.
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13

Benson, Tim. Patient-Reported Outcomes and Experience: Measuring What We Want from PROMs and PREMs. Springer International Publishing AG, 2022.

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14

Cappelleri, Joseph C., Kelly H. Zou, Andrew G. Bushmakin, Jose Ma J. Alvir, Demissie Alemayehu, and Tara Symonds. Patient-Reported Outcomes. Chapman and Hall/CRC, 2013. http://dx.doi.org/10.1201/b16139.

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15

Cella, David F. Patient-Reported Outcomes in Performance Measurement. RTI International / RTI Press, 2015.

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16

Zou, Kelly H., Joseph C. Cappelleri, Demissie Alemayehu, Andrew G. Bushmakin, and Jose Ma J. Alvir. Patient-Reported Outcomes: Measurement, Implementation and Interpretation. Taylor & Francis Group, 2013.

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17

Zou, Kelly H., Joseph C. Cappelleri, Demissie Alemayehu, Andrew G. Bushmakin, and Jose Ma J. Alvir. Patient-Reported Outcomes: Measurement, Implementation and Interpretation. Taylor & Francis Group, 2013.

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18

Zou, Kelly H., Joseph C. Cappelleri, Demissie Alemayehu, Andrew G. Bushmakin, and Jose Ma J. Alvir. Patient-Reported Outcomes: Measurement, Implementation and Interpretation. Taylor & Francis Group, 2016.

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19

Cappelleri, Joseph C. Patient-Reported Outcomes: Measurement, Implementation and Interpretation. Taylor & Francis Group, 2013.

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20

Nissenson, Allen R., John Moran, and Robert Provenzano. Overview of dialysis patient management and future directions. Edited by Jonathan Himmelfarb. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780199592548.003.0267_update_001.

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Nearly 2 million patients worldwide have end-stage renal disease (ESRD) and require dialysis or kidney transplantation. The advent of clinical dialysis in the 1950s has had a huge impact on the way ESRD and acute kidney injury are managed, but several decades later, the morbidity and mortality in patients with ESRD remain unacceptably high and patients often have a poor quality of life. Many believe that we have focused attention on a few key treatment-related outcomes, and have done well with these (i.e. anaemia, adequacy of dialysis, metabolic bone disease), but achieving great results in only these domains has clearly not been sufficient to drive improvements in survival or patient-reported outcomes. Recent experience with integrated care management, focusing on comorbidity management, offers promise. In addition, a number of investigators have been challenging the current thrice-weekly, diffusion-based treatment paradigm and have been developing approaches to emulate the function of natural kidneys. Thus an ideal care delivery model would focus on the holistic needs of the patient with kidney disease, while the ideal form of renal replacement therapy would mimic native kidneys, operating continuously, removing solutes with a molecular-weight spectrum similar to that of native kidneys, removing water and solutes on the basis of individual patient needs, and would be biocompatible, wearable, and ideally implantable. It would also be low cost, reliable, and safe. A few years ago, these technical requirements would have seemed impossible to achieve, but with advances in the sciences of nanotechnology and microfluidics, renal replacement of the future may come closer to this ideal.
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21

Parkin, David, John Appleby, and Nancy Devlin. Using Patient Reported Outcomes to Improve Health Care. Wiley & Sons, Incorporated, John, 2015.

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22

Parkin, David, John Appleby, and Nancy Devlin. Using Patient Reported Outcomes to Improve Health Care. Wiley & Sons, Incorporated, John, 2015.

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23

Parkin, David, John Appleby, and Nancy Devlin. Using Patient Reported Outcomes to Improve Health Care. Wiley & Sons, Incorporated, John, 2015.

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24

Parkin, David, John Appleby, and Nancy Devlin. Using Patient Reported Outcomes to Improve Health Care. Wiley & Sons, Incorporated, John, 2016.

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25

Li, Yuelin, and Thomas M. Atkinson Ph D. Patient-Reported Outcomes Data Analysis in Clinical Research. Taylor & Francis Group, 2023.

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26

Salek, Sam, Paul Kamudoni, and Nutjaree Johns. Living with Chronic Disease: Measuring Important Patient-Reported Outcomes. Adis, 2018.

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27

Salek, Sam, Paul Kamudoni, and Nutjaree Johns. Living with Chronic Disease: Measuring Important Patient-Reported Outcomes. Adis, 2019.

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28

Moller, David Wendell. Exploring the Experiences of Mr. J. W. Green. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780199760145.003.0004.

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Inattentive care and lack of compassion exacerbated the Whites’ suffering, leading to unconscionable indignity for both in the nursing home. Ken and Virble White were a part of the ongoing fabric of our society, that portion which includes the working poor. We know that individuals like them are subject to worse health outcomes. They possess inadequate resources to make the health system work in their favor or even on balance with the rest of the population. Their medical decision-making takes place in a context of inadequate patient–physician communication, low health literacy, lack of access to social services, and other factors that undermine optimal care. These factors are present in different ways throughout the life experience of disempowered patients every day in clinics, hospitals, and assisted-living facilities throughout the nation.
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29

Oo, Aung Ye, Ara Darzi, and Thanos Athanasiou. Patient Reported Outcomes and Quality of Life in Cardiovascular Interventions. Springer International Publishing AG, 2022.

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30

Machin, David, and Peter Fayers. Quality of Life: The Assessment, Analysis and Interpretation of Patient-reported Outcomes. 2nd ed. Wiley, 2007.

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31

Quality of Life: The Assessment, Analysis and Reporting of Patient-Reported Outcomes. Wiley & Sons, Limited, John, 2016.

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32

Machin, David, and Peter M. Fayers. Quality of Life: The Assessment, Analysis and Interpretation of Patient-Reported Outcomes. Wiley & Sons, Incorporated, John, 2013.

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33

Machin, David, and Peter M. Fayers. Quality of Life: The Assessment, Analysis and Interpretation of Patient-Reported Outcomes. Wiley & Sons, Limited, John, 2007.

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34

Machin, David, and Peter M. Fayers. Quality of Life: The Assessment, Analysis and Reporting of Patient-Reported Outcomes. Wiley & Sons, Limited, John, 2015.

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35

Machin, David, and Peter M. Fayers. Quality of Life: The Assessment, Analysis and Reporting of Patient-Reported Outcomes. Wiley & Sons, Incorporated, John, 2015.

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36

Machin, David, and Peter M. Fayers. Quality of Life: The Assessment, Analysis and Reporting of Patient-Reported Outcomes. Wiley & Sons, Incorporated, John, 2016.

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37

Machin, David, and Peter M. Fayers. Quality of Life: The Assessment, Analysis and Reporting of Patient-Reported Outcomes. Wiley & Sons, Incorporated, John, 2015.

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38

Machin, David, and Peter M. Fayers. Quality of Life: The Assessment, Analysis and Interpretation of Patient-Reported Outcomes. Wiley & Sons, Incorporated, John, 2013.

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39

Machin, David, and Peter M. Fayers. Quality of Life: The Assessment, Analysis and Reporting of Patient-Reported Outcomes. Wiley & Sons, Incorporated, John, 2015.

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40

Cataract surgery: Patient-reported data on appropriateness and outcomes : report to congressional requesters. Washington, D.C: The Office, 1993.

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41

Cataract surgery: Patient-reported data on appropriateness and outcomes : report to congressional requesters. Washington, D.C: The Office, 1993.

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42

Cataract surgery: Patient-reported data on appropriateness and outcomes : report to congressional requesters. Washington, D.C: The Office, 1993.

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43

Cataract surgery: Patient-reported data on appropriateness and outcomes : report to congressional requesters. Washington, D.C: The Office, 1993.

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44

Hood, Ralph W. Mysticism and Hypo-egoicism. Edited by Kirk Warren Brown and Mark R. Leary. Oxford University Press, 2016. http://dx.doi.org/10.1093/oxfordhb/9780199328079.013.19.

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The shift from negative evaluations of hypo-egoicism to more positive considerations is a shared interest of both the positive psychologist and the psychologist of religion. This chapter suggests that the possible positive benefits of hypo-egoicism associated with experiences of transcendence may be interpreted as vertical (more common in psychology of religion) or horizontal (more common in positive psychology). However, the empirical consequences may be similar. The measurement of hypo-egoicism associated with reported mystical experiences is well established and the correlates of such experience are seldom associated with psychopathology. Likewise, that mysticism can be facilitated by appropriate set and setting circumstances and associated triggers such as isolation and chemicals suggests that hypo-egoicism is a human ability that can be facilitated among those interested in its likely positive outcomes for lives framed in terms of religion, spirituality, or both.
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45

Novara, Giacomo, Alexander Mottrie, Filiberto Zattoni, and Vincenzo Ficarra. Technology and prostatectomy. Edited by James W. F. Catto. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199659579.003.0067.

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Radical prostatectomy (RP) is the gold standard surgical treatment for patients with clinically localized prostate cancer and life expectancy more than 10 years. In the last decades, the desire to reduce the invasiveness of traditional retropubic RP has produced an increasing interest towards laparoscopic techniques, but acceptance was limited primarily because of the steep learning curve. Conversely, robot-assisted laparoscopic RP (RARP) had a rapid and wide diffusion in the world. Surgical technique for RARP is currently very well standardized and reported in the literature. According to the available data, the procedure can be performed routinely with a relatively small risk of complications and excellent functional outcomes. Clinical patient characteristics, surgical experience and technique, and cancer characteristics may affect the risk of complications as well as continence and potency recovery.
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46

Gossec, Laure, Tania Gudu, and Maarten de Wit. Patient-reported outcome measures in psoriatic arthritis. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780198737582.003.0024.

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Psoriatic arthritis (PsA) is a chronic, potentially severe disease with an important impact on the lives of people who have this disease. The impact of PsA is wide-reaching, and both physical but also mental aspects of quality of life can be modified by this disease. Thus, the measurement of the patient’s status rests in part, on the assessment of patient-reported outcomes, i.e. questionnaires to assess different aspects of life. In the present chapter, we will discuss the impact of the disease from a qualitative point of view, and review different patient-reported questionnaires which are either specific to PsA, or generic, and which are used to assess people with PsA.
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47

Patient-Reported Outcomes - Key Indicators of Responsiveness and Quality of Health Care [Working Title]. IntechOpen, 2021. http://dx.doi.org/10.5772/intechopen.92939.

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48

Cappelleri, Joseph C., and Andrew G. Bushmakin. Practical Approach to Quantitative Validation of Patient-Reported Outcomes: A Simulation-Based Guide Using SAS. Wiley & Sons, Limited, John, 2023.

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49

Cappelleri, Joseph C., and Andrew G. Bushmakin. Practical Approach to Quantitative Validation of Patient-Reported Outcomes: A Simulation-Based Guide Using SAS. Wiley & Sons, Incorporated, John, 2022.

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50

Barton, Jennifer L., and Patti Katz. Patient Reported Outcomes in Rheumatic Diseases, an Issue of Rheumatic Disease Clinics of North America. Elsevier, 2016.

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