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Mawarni, Ellis, Dachriyanus Dachriyanus, Esthika Ariany Maisa, and Jufri Al Fajri. "Gambaran Pengetahuan Inter Professional Collaboration Pada Profesional Pemberi Asuhan Di Rumah Sakit Khusus Propinsi Jambi: Kajian." Jurnal Ilmiah Universitas Batanghari Jambi 19, no. 2 (July 9, 2019): 416. http://dx.doi.org/10.33087/jiubj.v19i2.676.
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Interprofessional collaboration (IPC) between nurses and doctors is associated with good outcomes for patients, especially in hospitalizations. Different professional cultures can be a barrier to nurses and doctors in an IPC effective and efficient. Effective IPC is important to ensure patient safety. To analyze how the image of Professional Care Givers is different in implementing IPC at Jambi Special Hospital. The research was cross-sectional, the population were nurses, doctors, pharmacists and nutritionists in Jambi Province Special Hospital 105 samples. Sampling with total sampling. AITCS research instruments that have been modified as needed. Most of the application of IPC to Professional Care Givers in Jambi Province Special Hospital both on the partnership dimension, coordination, shared decision-making is only on the clearest reciprocal differences in the dimension of cooperation which is more than half less good. Conclusion: It is expected that the special hospital of Jambi Province will organize more integrated patient center care, which will have consequences for the implementation of the IPC, especially in terms of perceived cooperation.
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Baldwin, Dana. "A Joint Demonstration Project to Improve the Care of Patients with Dementia: A Partnership Between a Staff Model HMO and the Alzheimer's Association." Practicing Anthropology 20, no. 2 (April 1, 1998): 17–18. http://dx.doi.org/10.17730/praa.20.2.42p6px0w77htt777.
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I am part of a multi-disciplinary team composed of researchers from Kaiser Permanente, the country's largest staff model Health Maintenance Organization (HMO) and the Los Angeles chapter of the Alzheimer's Disease and Related Disorders Association. This team has designed a demonstration service delivery system to enhance the quality of care given to dementia patients and their care givers. If the demonstration project is successful, it may be expanded throughout the Kaiser system. After completing my Ph.D. in medical anthropology at UCLA, I worked as a consultant at the Rand Corporation then held a post-doctoral fellowship in addictions through the National Institute on Drug Addiction. With this track record, and my experience with both qualitative and quantitative survey methods, I was hired at Kaiser as an internal health care service and organizational researcher. They did not hire me because I was an anthropologist. As an anthropologist, however, I have brought some of the discipline's perspectives to bear on the formative stages of the dementia demonstration project.
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Swinnen, Katja, and Leia Vrancken. "Enhancing transmural continuity of care for vulnerable patients with kidney problems. A mixed-methods multi-stakeholder needs-assessment." International Journal of Integrated Care 23, S1 (December 28, 2023): 130. http://dx.doi.org/10.5334/ijic.icic23051.
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Summary: Research on supporting the (in)formal caregiver, in enabling autonomy and empowering of persons with a chronic kidney disorder and creating a bridge between primary care and specialized care in hospital settings.
Background: Almost half (48%) of hospital readmissions is due to a lack of continuity of care ,e.g. no discharge conversation, poor communication at discharge, lack of patient education and no patient empowerment, a lack of information flow between the hospital setting and primary care, … Especially vulnerable patients with e.g. low health literacy suffer from a not optimally organized transition from the hospital setting to home. More attention is needed for: patient and informal care giver engagement and education, person-centered support, coordination of the transmural care process in order to deliver continuous and responsible care.
Target group: Vulnerable patients with kidney problems in the province of Flemish Brabant (Belgium).
Involved and engaged stakeholders: Patients, informal care givers, hospital kidney department (doctors, nurses, physiotherapists, social workers, …), primary care professionals (GPs, nurses, physiotherapists, social workers, …).
Intervention: A needs-assessment is performed regarding the continuity of care of vulnerable patients with kidney problems. Patients, informal care givers, primary care as well as hospital professionals are surveyed and interviewed.
Results: Preliminary results show the need for optimized transmural care from the patient, informal caregiver and professional perspectives. Continuity of care is mainly lacking regarding its informational and therapeutic dimensions. The minimal or even absent information flow (informational continuity) results in therapeutic differences between the services offered by hospital and primary care professionals (therapeutic continuity). Special attention is needed for patient education and empowerment. Relational continuity between the patient and professionals is more fixed, but professionals often do not have fixed partnerships with each other, both within primary care as well as across the primary and hospital care settings.
Lessons for international audience:
- A multi-perspective needs-assessment uncovers the, sometimes hidden, needs with regard to continuity of care.
- Transmural care is often still quite discontinuous, especially from the perspective of the vulnerable patient, informal care giver and primary care professional.
- System-wide change is needed in terms of vision, goals, adapting to local health needs, using people as partners, redefining professional responsibilities and (re)training care professionals, and reconfiguring care delivery.
Next steps: The information gathered through the needs-assessment is used to co-develop a continuity-enhancing intervention that optimizes the transmural care process with relevant stakeholders (patients and informal care givers or their representatives, primary care professionals, hospital professionals). The intervention is implemented and evaluated through a patient and professionals questionnaire and interviews.
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Rehman, Raza ur, Saadia Quraishy, and Naim Siddiqi. "POSTGRADUATE COMMUNITY PSYCHIATRY TRAINING IN PAKISTAN." Journal of Pakistan Psychiatric Society 19, no. 02 (October 31, 2022): 44–47. http://dx.doi.org/10.63050/jpps.19.02.158.
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Closure of large psychiatric hospitals across UK, Europe and the United States has shifted the services for the care of psychiatric patients to general hospitals, community based public and private facilities and social sector organizations. Underpinning the process of deinstitutionalization and the development of community psychiatric services was the ethos of providing seamless, flexible services close to where people lived, led by their needs and with involvement of them and their care givers. In Pakistan, in-patient psychiatric facilities are scarce and community psychiatry is still in its initial stages of development so the burden of care is mostly beared by the families. There is a dearth of formalized training and skill set to work effectively in the community and this is reflected in the lack of exposure of our new generation of mental health professionals who are only trained in managing patients admitted in hospitals. In the light of recent guidelines and WHO recommendations it is imperative that community based psychiatric care be incorporated in the postgraduate psychiatry curriculum. This article describes the principles of training and syllabus. However this can only possible by a proactive collaborative partnership between multiple public and private stake holders.
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Mailani, Robit Altom, and Risdiana Himmati. "Kerjasama bagi hasil ayam potong untuk meningkatkan kesejahteraan bagi pelaku usaha." Journal of Economics Research and Policy Studies 2, no. 2 (July 23, 2022): 60–71. http://dx.doi.org/10.53088/jerps.v2i2.375.
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Chicken farming is a form of agribusiness that is capital intensive. Broiler chicken is one of the farms if it is developed to have good prospects. Businesses in the field of animal husbandry in the form of broiler cultivation can establish partnerships. A partnership is a form of cooperation that applies profit sharing. The broiler cooperation program aims to establish mutually beneficial and reinforcing business cooperation and mutual trust between farmers and the core party (business partners or investors). Qualitative analysis was used in this study with a descriptive qualitative model. The study results indicate that the system is a partnership cooperation system, with farmers as plasma following the policy from its core (the investors). The policy on delivery issues already exists. Marketing has been regulated by the core party so that, in this case, the breeder only takes care of it. Profit sharing in partnership applies to an agreement where the nucleus already gives a benchmark price.
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Afzal Javed. "Developing partnership with patients and carers: A need of the time for mental health service delivery." Journal of the Pakistan Medical Association 74, no. 7 (June 28, 2024): 1217–18. http://dx.doi.org/10.47391/jpma.24-51.
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Contemporary practice of psychiatry is witnessing a radicle shift in the care of mentally ill. As compared to the 20th century, we are now moving towards community psychiatry and large mental hospitals and asylums are closing with a shift to manage these patients closer to their homes. Following these changes in mental health care, current literature provides growing evidence for developing partnership with patients, carers and family members in the delivery of mental health services. While this approach is appreciated for improving the quality of life of patients, there has also been some concerns about increasing burden of carers and families when they have limited resources and support to face the challenges in dealing with the management of their patients.1 Treatment and management of mental health problems are complex and needs a wider recognition for having patients and care-givers involvement in the treatment processes. Patients with mental health problems unfortunately suffer from a wide range of psychosocial adversities and require engagement leading to more empowerment in decision making processes. Furthermore, quality of health services can be measured by the experiences of patients and their families. Their viewpoints can reflect their happiness as well as the effectiveness of the services that could be based on their knowledge and understanding of their role in the treatment processes. However, in many societies, the nature and role of families are either undermined or not fully understood.2 Families may be considered as a cause for the onset of mental health issues and can be blamed for causing or triggering the illnesses. Similarly, the clinicians are given the full authority to decide about the treatment choices and preferred possibilities. Their role may be acknowledged as “the ultimate expert” who can decide in a final way and patients or families may have limited opinions in such decisions. Professionals may also consider confidentiality issues as a primary reason for not sharing information and taking relatives or family members on board, so they are frequently excluded from the decision-making processes. Apart from confidentiality reasons, clinicians may not have sufficient training and skills to deal with families and patients in terms of supporting and dealing with their concerns.3 Continued...
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Sloan, Danetta, Valerie Cotter, Quincy Samus, Morgan Spliedt, Samuel Means, Janice Bowie, and Darrell Gaskin. "My Faith Gives Me Strength: Black Churches Supporting Dementia Care Partners." Innovation in Aging 5, Supplement_1 (December 1, 2021): 516. http://dx.doi.org/10.1093/geroni/igab046.1995.
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Abstract Inequities in dementia care require an in depth understanding of dementia care partner life experiences, care needs, sources of support and ways to improve those experiences at the community level. In partnership with Black Churches in Baltimore, MD and rural Pennsylvania, we facilitated three focus groups (n=30) with Black dementia care partners to understand: 1) unique dementia care-related needs and challenges, and 2) how the church can be a supportive care partner. Participants noted three overarching themes related to challenges and needs: 1) unique challenges in caregiving - assuming various roles to provide comprehensive care, working within policies of support services, environmental challenges (neighborhood safety), and family conflicts; 2) lack of dementia education and educational materials; and 3) unmet needs of the care recipient – lack of dementia friendly neighborhoods, lack of meaningful activities, and undiagnosed dementia. Regarding the supportive role of the church, the theme of perceived role of the church included providing emotional and social support for care partners and recipients, reducing burden through providing respite, support groups, networking/ connections to resources, and promoting health events.
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Perkins, Neil, and David James Hunter. "Health and Wellbeing Boards: a new dawn for public health partnerships?" Journal of Integrated Care 22, no. 5/6 (December 15, 2014): 220–29. http://dx.doi.org/10.1108/jica-07-2014-0030.
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Purpose – The purpose of this paper is to consider the effectiveness of partnership working in public health and draws on a systematic review of public health partnerships and original research conducted by the authors. It then considers in the light of research evidence whether the recently established Health and Wellbeing Boards (HWBs) under the 2012 Health and Social Care Act will help agencies to work together more effectively to improve population health or will go the way of previous initiatives and fall short of their original promise. Design/methodology/approach – The paper is based on a systematic literature review conducted by the authors and empirical research focusing upon the ability of public health partnerships to reduce health inequalities and improve population health outcomes. It also draws on recent studies evaluating HWBs. Findings – The paper finds that, hitherto, public health partnerships have had limited impact on improving population health and reducing health inequalities and that there is a danger that HWBs will follow the same path-dependent manner of previous partnership initiatives with limited impact in improving population health outcomes and reducing health inequalities. Research limitations/implications – The research draws on a systematic literature review and further scoping review of public health partnerships, in addition to empirical research conducted by the authors. It also reviews the current evidence base on HWBs. It is recognised that HWBs are in their early stages and have not as yet had the time to fulfil their role in service collaboration and integration. Practical implications – The paper gives an overview of how and why public health partnerships in the past have not lived up to the expectations placed upon them. It then offers practical steps that HWBs need to take to take to ensure the mistakes of the past are not replicated in the future. Social implications – The research outlines how public health partnerships can operate in a more effective manner, to ensure a more seamless provision for service users. The paper then gives pointers as to how this can benefit HWBs and the wider community they serve. Originality/value – The paper draws on a comprehensive research study of the effectiveness of public health partnerships on improving health outcomes and a systematic literature review. In addition, it also draws upon the current evidence base evaluating HWBs, to inform the discussion on their future prospects, in regard to partnership working in public health and promoting service integration.
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Ariesti, Ellia, Monika Luhung, and Eli Lea Widhia Purwandhani. "PELATIHAN CAREGIVER LANSIA TENTANG SKRINING STATUS GIZI MENGGUNAKAN THE MINI NUTRITIONAL ASSESSMENT (MNA)." SELAPARANG: Jurnal Pengabdian Masyarakat Berkemajuan 6, no. 3 (September 4, 2022): 1149. http://dx.doi.org/10.31764/jpmb.v6i3.9300.
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ABSTRAKLansia merupakan kelompok khusus yang rentan dan berisiko mengalami berbagai permasalahan terkait kesehatan mereka. Di LKS-LU Pangesti Lawang 21 lansia pernah terpapar Virus Covid 19, sehingga sangat diperlukan perhatian khusus terhadap kesehatan lansia, terutama dalam upaya mempertahankan imunitas, misalnya melalui asupan nutrisi adekuat. Indikator nutrisi adekuat dapat diketahui melalui skrining menggunakan the Mini Nutritional Assessment (MNA). Tujuan kegiatan Program kemitraan Masyarakat (PkM) ini adalah melatih dan meningkatkan keterampilan care giver lansia melakukan skrining status gizi menggunakan the Mini Nutritional Assessment (MNA). Kegiatan ini dilakukan 3 tahap yang meliputi tahapan persiapan yaitu melakukan perijinan dan menyusun pelaksanaan. Tahap kedua pemberian edukasi dan pelatihan cara melakukan skrining status gizi menggunakan the Mini Nutritional Assessment (MNA), kegiatan demonstrasi & redemonstrasi skrining status gizi menggunakan MNA. Tahap ke tiga evaluasi kegiatan yang meliputi evaluasi kemampuan caregiver dengan post tes. Kegiatan ini telah terlaksana selama bulan Mei - Juni 2022, dan diikuti oleh 14 caregiver. Hasil kegiatan pengabdian ini pada awal pre tes nilai rata-rata peserta adalah 80 sedangkan nilai pos tes rata-rata peserta meningkat menjadi 94. Hal ini menunjukkan terjadi peningkatan pengetahuan peserta pelatihan terhadap materi pelatihan yang diberikan selama tiga hari. Hasil observasi yang dicapai dalam redemonstrasi semua peserta atau 100 % mampu melakukan skrining dengan benar. Kegiatan skrining status gizi menggunakan the Mini Nutritional Assessment (MNA) diharapkan nantinya dapat diterapkan oleh semua care giver lansia secara mandiri di LKS-LU Pangesti Lawang. Kata kunci: caregiver; skrining; status gizi; lansia; Mini Nutritional Assessment (MNA) ABSTRACTThe elderly are a special group that is vulnerable and at risk of experiencing various problems related to their health. In LKS-LU Pangesti Lawang, 21 elderly people have been exposed to the Covid 19 virus, so special attention is needed to the health of the elderly, especially in an effort to maintain immunity, for example through adequate nutritional intake. Indicators of adequate nutrition can be identified through screening using the Mini Nutritional Assessment (MNA). The purpose of this Community Partnership Program (PkM) activity is to train and improve the skills of elderly care givers in screening nutritional status using the Mini Nutritional Assessment (MNA). This activity is carried out in 3 stages which include the preparation stage, namely licensing and compiling implementation. The second stage is providing education and training on how to screen for nutritional status using the Mini Nutritional Assessment (MNA), demonstration activities & redemonstrations of nutritional status screening using MNA. The third stage is the evaluation of activities which includes evaluating the caregiver's ability with a post test. This activity has been carried out during May - June 2022, and was attended by 14 caregivers. The results of this service activity at the beginning of the pre-test the average score of the participants was 80 while the average post-test score of the participants increased to 94. This indicates an increase in the knowledge of the trainees on the training materials provided for three days. The results of the observations achieved in the redemonstration of all participants or 100% were able to do the screening correctly. The nutritional status screening activity using the Mini Nutritional Assessment (MNA) is expected to be implemented by all elderly care givers independently at LKS-LU Pangesti Lawang. Keywords: caregivers; screening; nutritional status; elderly: Mini Nutritional Assessment (MNA)
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McCann, Warren. "Redeveloping Primary Health and Community Support Services in Victoria." Australian Journal of Primary Health 6, no. 4 (2000): 36. http://dx.doi.org/10.1071/py00032.
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Why Primary Care Reforms?: It gives me very great pleasure to have been asked to speak at this major international Conference about redeveloping primary health and community support services in Victoria. While opening the Conference, the Victorian Minister for Health, the Honourable John Thwaites, launched the Primary Care Partnership Strategy which is one of the most ambitious and far reaching primary health and community support reform agendas in Australia.
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Stephanos, Francis. "Power and Partnership Conference: Challenging the Power Structure." Global South Theological Journal 2, no. 2 (January 26, 2024): 35–48. http://dx.doi.org/10.57003/gstj.v2i2.11.
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God, the creator and the proprietor of every living and non-living thing, is the source of power and authority, which he delegates to humans to exercise authority and control, for proper use and care of all God’s creation, placed at their disposal and for the well-being of humanity. But with power comes the misuse of power as evidenced is power sharing struggles, misuse of power by the governmetn and misuse of pwoer by the church. In the palce of the exercise of pwoer, Jesus gives us the servanthood partnership--partnership which is expressed in compassion, humility, obedience, and a genuine spirit of service to the point of sacrificing oneself. If we are motivated by fear, love of God, and compassion, we can see the needs of the people and join them to walk alongside in collaboration with them in order to alleviate their sufferings. True partners do not end their relationship after the goal of temporary relief has been obtained, but move into the critical phase of long-term and lasting development for transformation and growth.
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Sunderland, Ronald H. "The Dignity of Servanthood in Pastoral Care." Journal of Pastoral Care & Counseling: Advancing theory and professional practice through scholarly and reflective publications 57, no. 3 (September 2003): 269–79. http://dx.doi.org/10.1177/154230500305700303.
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Servanthood is a dominant image of ministry in both Jewish and Christian scriptures, and poses a rich source of material from which to address the theme of human dignity from the perspective of pastoral care. The biblical concept of servanthood, which defines the nature of the pastoral relationship and dignifies the personhood of the care recipient, suggests an approach to the issues of vulnerability of both giver and receiver of care, and proposes that the caring relationship is best conceived as a partnership to which each participant brings gifts. The servant theme implies addressing the notion of the kingship of Christ, how control issues affect the ministry of pastoral care, and the realization that being a servant of the Lord entails a concern for the well being of each individual and of the social order; that is, servant ministry mandates both visiting the sick ( Matthew 25) and seek justice and righteousness as social norms ( Isaiah 16:5).
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Basukala, Sulochana. "Care giver burden among spouse of psychiatric patients attending psychiatry outpatient department of a teaching hospital." Journal of Patan Academy of Health Sciences 6, no. 1 (June 30, 2019): 72–77. http://dx.doi.org/10.3126/jpahs.v6i1.27084.
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Introductions: Caregiver burden in mental illness is a global issue. Burden is more significant and high among spouse than other caregivers. Spouse face illness-specific burdens of feeling powerlessness, fear, marital stress and partnership and family roles.
Methods: A cross-sectional study was conducted in outpatient department of psychiatry in Patan hospital, Patan Academy of Health Sciences, Nepal, from 26th August to 23rd September, 2018. Non-probability purposive sampling technique was used. Data was collected from spouses of psychiatric patients by face-to-face interview using Burden Assessment Schedule (BAS) to assess the caregiver burden of spouses of psychiatric patients.
Results: Out of 160 spouses interviewed, 94 (59%) had severe burden, 13 (9%) very severe, and 53 (34%) moderate. Burden was significantly associated with respondents’ relation to patient, educational status, income and diagnosis. The respondent’s age, occupation, duration of caring, and place of residence had no significant association with burden.
Conclusions: More than half of the spouses of psychiatric patients had severe care giver burden.
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Ryckman, Aurelie. "A collaboration between first- and second-line healthcare for persons with a disability in Flanders to strengthen quality of care, continuity of care and affordability of care." International Journal of Integrated Care 23, S1 (December 28, 2023): 391. http://dx.doi.org/10.5334/ijic.icic23488.
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The introduction of personal financing within the disability sector, in Flanders, in 2017, created the opportunity to enter into broader collaborations with other professional services. This allows us to strengthen the quality of care and support for people with disabilities. We therefore started a collaboration between first and second line healthcare. This collaboration is based on 3 major pillars, quality of care, continuity of care and affordability of care. With the introduction of personal financing in the disability sector, care focusses more on the person with a disability. The adult person is allocated a budget based on his need for support and can buy care and support with it. These can be purchased more widely than only from the healthcare providers licensed by the VAPH (Flemish Agency for Persons with Disabilities). When we look at quality of care, we use the expertise of both partners. The licensed care provider mainly directs the disability-specific part whereas support in the daily ADL activities comes from home care. Both partners always coordinate with each other and the first focus is always on the person with a disability, which takes a central role. Drawing up individual support plans, linked to objectives, is one of the tasks of the licensed healthcare provider. Home care provides value in carrying out this objective together with the person with a disability. In a concrete example: the residential supporter indicates that the resident is learning to handle money, the home care supporter takes this into account during the purchases at the bakery together with the client and gives feedback to the residential supporter about the experience. We strengthen the quality of care by combining the expertise of both parties and create more time to work at the person's pace. In doing so, we focus on talent, rather than starting from the disability.Two components are important for the continuity of care: the effective presence, but also the fixed character of the employees who are present. People with disabilities are more sensitive to change than other target groups. That is why focusing on continuity, both in time and in person, is important in this partnership. The home care selects a group of employees to commit as a team. The residents therefore can always rely on the same people for support at home: the number of faces remains limited and a bond of trust is created. To ensure continuity in time, the team members replace each other when needed, so the support is continuous. With home care we enter the (replacing) home situation and we focus the tasks on supporting the person. As a result, we can also invoice the person according to the regulations within home care. We only have to calculate the customer contribution and that makes it affordable. We work in 1-on-1 situations, but we also support in groups. In the latter case, the costs are shared by all persons who use the support. Through this partnership, we create a more high-quality, affordable care for people with disabilities.
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Thomas, Anne. "Stranger danger! What’s the real challenge in integration?" Journal of Integrated Care 23, no. 4 (August 17, 2015): 194–205. http://dx.doi.org/10.1108/jica-07-2015-0029.
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Purpose The purpose of this paper is to illustrate the complexities involved in delivering seamless patient-centred care across organisational boundaries. There is particular focus on how working with an organisation outside the public sector challenges the ideology of those involved, thereby hindering progress. It will explore the challenges and solutions to delivering a service and discuss the key components of success. It will investigate the theory of partnership working and balance the importance of the emotional investment and understanding with leadership and project management. Design/methodology/approach It explores the current “crisis” in NHS, along with political statements, emphasising its importance, but failing to address the issues faced by workers and agencies in the “outside” world. It will examine the concept of the “other” to explain the struggle required to gain a place at the table in discussing integration/service improvement. It will use experience in negotiating between a reasonably large care and nursing home provider and public sector bodies in Wales and consider the factors leading to a successful collaboration. Findings The Social Services and Well-being (Wales) Act, 2014 makes it clear that integration is seen as a critical means to achieve better outcomes for people and whilst not contesting that principle, the paper shows that integration is often limited in thinking and action to “public sector” integration. Originality/value There have been few attempts to explore the role and function of care and nursing home providers in service improvement from the provider’s perspective. It will challenge the practice of commissioning, that gives all the power to the commissioner and explores the commissioners’ accountability for their role in partnership work. It also offers hope for a different kind of relationship, based on mature conversations and mutual respect, along with a system of governance offering guarantees for sustainability.
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Heip, Tine, and Jochen Van den steen. "Person centred care: good practises in an ambulatory mental healthcare setting." International Journal of Integrated Care 23, S1 (December 28, 2023): 167. http://dx.doi.org/10.5334/ijic.icic23060.
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Introduction: BW IPSO is an organisation that started out as a variety of small organisations in the late 1970. By offering people with a mental illness the possibility to live in sheltered housing, with the guidance of mental healthcare workers, the organisation intended to improve the quality of life for this population. Over the years the organisation grew, merged and became BW IPSO. We now offer 118 places of supported living, going from group homes, to small appartements provided by the organisation, as well as guiding people in their own (social) home.
Description: Throughout the years, apart from housing and mental health, other life domains became more and more important. The mental healthcare worker became a case manager . In our multiprofessional team we follow the principles of FACT and SRH . If the resident wishes so, the case manager can also become a care coordinator. The principles of SRH comprise of three key aspects: presence-oriented, recovery-oriented and strength-oriented. So together, the resident and mental healthcare worker, will explore every life domain and investigate if the resident wishes to ameliorate or change something on a particular domain. Self-direction in the process is crucial. The life domains are physical health, mental health, administration, living and general daily life activities, religion and meaning, meaningful daily activities/work, social network, learning. The mental healthcare worker walks next to the resident throughout his/her path. A path that may lead to all different kinds of settings, f.e. specialized residential (mental) healthcare, community health centres, ambulatory psychologist/psychiatrist but also a workplace, regular welfare organisations, family, friends… When a resident decides to leave our organisation, (s)he can also choose to stay in ‘follow-up’. This means that the mental healthcare worker will still see this person but less frequent. It is a way to prevent fractions in the care continuum and gives the very important opportunity to shift to a more intensive form of care when needed. Providing continuity in care is essential in our line of work. To make this possible, BW IPSO invests maximum efforts to form partnerships with other organisations or initiatives. Building relations in health systems is vital. Innovations in such systems are affected by collaboration. In making these investments, we aim to give our residents the possibilities to try new things, make connections and improve overall quality of life.
Conclusion: Over time, many healthcare services have become fragmented, people who are less empowered miss out on proper care. This also applies for a majority of people who suffer of a (severe) mental illness. As an organisation we strive for continuity of care, collaborative partnerships, patient centred care with maximum ownership. We achieve this with a multidisciplinary team of experienced mental health workers in partnership with other organisations and the network of de person in need.
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Iftikhar, Danyal, Rabia Farooqi, Shahzad Waheed Qureshi, Amina Tariq, Amna Mehwish Ikram, and Adeel Haidar. "Assessment of Parental self-management of epileptic pediatric in terms of adherence of antiepileptic drugs." Pakistan Journal of Medical and Health Sciences 15, no. 7 (July 26, 2021): 1587–89. http://dx.doi.org/10.53350/pjmhs211571587.
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Aim: To assess the parental self-management of epileptic pediatric in terms of adherence of antiepileptic drugs Methodology: A descriptive cross-sectional study was conducted in Children Complex Hospital of Multan. Convenient sampling technique was used to collect the data from included population, care giver of epilepticus children. Reliability checked by Cronbach alpha which was 0.71. Data was analyzed in SPSS 25, to get percentage and frequency. Results: The majority of the responses were agree 86(81.9%) on the doctors/nurses fully explained seizures/epilepsy (diagnosis). 10(9.5%) were strongly agree that doctors and nurses fully explained seizures to them. What side effects they have to look for while they are in treatment, was reported in positive by 73(69.5%) participants. 63(60%) were agree about whom to contact for questions or problems. The results show that the 71(67.6%) were agree about the confidence with which they can in partnership with the health care team can manage side effects if occur. Conclusion: Parental self-management was found higher in epileptic pediatrics in Multan Keywords: Epileptic drugs, Pediatrics, self-management, nurses
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NAKAGAWA, YOSHINORI, RINA YAMADA, and SEIGO NASU. "Characteristics of care-givers and care recipients influencing the impact of paid care services on family care-giver burdens." Ageing and Society 34, no. 8 (April 11, 2013): 1314–34. http://dx.doi.org/10.1017/s0144686x13000081.
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ABSTRACTIn the last few decades, a number of researchers have attempted to identify the effects of paid care services on alleviating the sense of burden of family care-givers, especially care-givers to people with dementia. However, few researchers have considered the possibility that paid care services alleviate the sense of burden only among those care-givers who possess specific characteristics. Without considering this point, the impact of paid care services would be averaged over an entire sample, and one might overlook the effects on these specific care-givers. With this background, this study examines the relationship between family care-givers' sense of burden and the amount of paid care services in Japan and identifies groups of care-givers among whom these services are significantly associated with a lesser sense of burden. The sense of burden of 339 family care-givers to older care recipients with dementia was measured using a modified version of the Caregiver Burden Inventory. In order to examine their association with the amount of paid care services received, logistic regression analysis was individually applied to groups of care-givers who exhibit specific characteristics. The results suggested that paid care services alleviated two out of five components of burden, provided the groups to which the analyses are applied are appropriately defined. In particular, two subsets of the entire sample, comprising young care-givers aged 49 or below, and including male care-givers, indicated that their overall sense of social and emotional burden were alleviated by the use of paid care services. The practical implications for policy makers are discussed.
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Robinson, Lianne, Mosunmola Fapohunda, Abiemwense Giwa-Osagie, Bolanle Ogunleye, Oritseweyinmi Okhiria, and Olalekan Aina. "The African and Caribbean Doctors Buddy Group (ACDBG) at HPFT- Hertfordshire Partnership University NHS Foundation Trust." BJPsych Open 9, S1 (July 2023): S108. http://dx.doi.org/10.1192/bjo.2023.313.
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AimsThere are increasing amounts of documented evidence that Black and Ethnic Minority (BME) NHS staff are more likely to face exclusion and discrimination. The MWRES- Medical Workforce Race Equality Standards Report details the disadvantages faced by BME doctors in the NHS. This piece of work shows a strategy to support doctors of African and Caribbean origin working in HPFT. Launched in 2021, the HPFT African and Caribbean Doctors Buddy Group (ACDBG) is a group for all doctors of any grade working in HPFT from African and Caribbean backgrounds. The group aims to bring together doctors of these backgrounds to build a group of clinicians who advocate for equity for African and Caribbean patients and medical professionals. Another key focus of the group is to support and motivate each other, focusing on individual health and well-being and sharing mutually beneficial experiences.MethodsDoctors of the groups' ethnic backgrounds across all grades identified 34 (20.1%) African-Caribbean doctors out of the 169 BAME doctors in Hertfordshire Partnership University NHS Foundation Trust (HPFT). Of this, there are 30 doctors of African and 4 of Caribbean backgrounds, with 14 in Consultant, 7 in Staff Grade, Associate Specialist and Specialty (SAS) and 13 in Training posts.The identified doctors received an invitation to attend the group meeting. Attendance was optional; membership was free with no long-term commitment. The group has an active social media presence to communicate and attract interested colleagues.ResultsThe group has met at least three times a year to provide opportunities for meaningful engagement and networking. These have included formal meetings as well as informal dinner events. Feedback from attendees has been very positive, with members mainly commenting on having found support from fellow members in navigating new experiences or learning from how others have sorted culturally unique challenges encountered in their working lives. Our international doctors have expressed joy in finding a resource to obtain guidance in settling into work and support with career development.ConclusionFeedback received from members of the group indicate that the doctors have found the group extremely useful. It gives an opportunity for expressive communication to promptly address concerns of any form or nature, on a personal or collective level, thereby improving positive well-being and career progression. Their positive experiences in pastoral care improved inclusion, productivity, retention and ultimately quality of care provided to service users.
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CHEN, CHEN-FEN. "Insiders and outsiders: policy and care workers in Taiwan's long-term care system." Ageing and Society 36, no. 10 (November 12, 2015): 2090–116. http://dx.doi.org/10.1017/s0144686x15001245.
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ABSTRACTAs in many developed countries, foreign care-givers have made up a short-term labour force to help shoulder the responsibilities of older adult care in Taiwan since 1992. This study uses the dual labour market and the occupational segregation theoretical frameworks and a mixed-method approach to examine whether foreign care-givers are supplementary or have replaced Taiwanese care-givers in Taiwan's long-term care (LTC) industry, and to understand better the status of care workers and their influx into the secondary labour market. As of 2012, 189,373 foreign workers joined the care services, compared to 7,079 Taiwanese, indicating they are no longer supplementary. The gap between the dual care system and workforce regulation has resulted in occupation segregation, and the secondary care labour market has been divided into ‘institutional’ and ‘home’ spheres, segregating care-givers into three levels: all Taiwanese care-givers, foreign institutional care-givers, and foreign home care-givers, the latter being the cheapest, most obedient and most adaptable LTC products. This case exhibits the ‘particularistic’ associations between nationality and care-givers’ workplace, which should be abolished. Only by squarely facing the changes and impacts caused by importing workers into the secondary labour market can one propose concrete, effective LTC labour plans and retention policies.
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Maffoni, Marina, Francesco Zanatta, Ilaria Setti, Ines Giorgi, Laura Velutti, and Anna Giardini. "SMiLE to Life: Meaning in life in healthcare professionals working in palliative care and rehabilitation medicine: SMiLE to Life: Meaning in life in healthcare professionals." La Medicina del Lavoro 112, no. 5 (October 28, 2021): 387–400. https://doi.org/10.23749/mdl.v112i5.11408.
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Background: In the healthcare landscape, various protective factors are identified, such as meaning in life (MiL), namely what gives sense to life events. However, little is known about this construct in the healthcare population. Objectives: To describe MiL among healthcare professionals employed in palliative care and neuro-rehabilitation medicine, unveiling possible differences related to medical specialty and socio-demographic characteristics. Methods: In this cross-sectional and multicentre study, palliative care and neuro-rehabilitation professionals were recruited. MiL was evaluated with the Schedule for Meaning in Life Evaluation (SMiLE), which provides a list of meaningful areas, as well as related overall indexes of satisfaction (IoS), weighting (IoW), weighted satisfaction (IoWS). Descriptive statistics, t-test, chi-square, linear and binary logistic regressions were performed. Results: Overall, 297healthcare professionals (palliative care=89, neuro-rehabilitation medicine=208, 47% of participants ≤ 40 years old) completed the evaluation. The sample was intra- and inter-groups heterogeneous, in particular concerning age and professional role. Conversely, no significant group differences emerged in MiL indexes comparisons, nor in the number of MiL listed areas. As for MiL areas, the category “family” increased the IoWS index, while terms related to “finances” contributed to decrease it. Comparing specialties, palliative care professionals were more likely to report areas like “partnership”, “social commitment”, and “satisfaction”. Nurses (n=116), nurse aides (n=47), and therapists (n=67) were more likely to mention health-related terms (e.g. health, physical wellbeing) than physicians and psychologists (n=65). Conclusion: This study highlighted MiL areas among professionals employed in palliative care and neurorehabilitation specialties, providing informative suggestions for tailored health prevention programs which should pay particular attention to social and family relationships, socio-economic status, and health.
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JACOBS, MARIANNE, THEO VAN TILBURG, PETER GROENEWEGEN, and MARJOLEIN BROESE VAN GROENOU. "Linkages between informal and formal care-givers in home-care networks of frail older adults." Ageing and Society 36, no. 8 (June 15, 2015): 1604–24. http://dx.doi.org/10.1017/s0144686x15000598.
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ABSTRACTIn ageing societies, policy makers aim for more contact between informal and formal care-givers as it may enhance the quality of care. So far, the linkage between formal and informal care-givers is generally studied from a one-sided or a single dyadic perspective, without taking into account that care networks of community-dwelling older adults often exist of multiple informal and formal care-givers. The current study examines discussion of care between all potential informal–formal care-giver dyads in a care network, and relates this to characteristics of the older care recipient, the care network and the care-givers. Seventy-four Dutch older care recipients provided information on all care-givers who helped with five different types of tasks; 410 care-givers reported on the contact between all care-givers identified. Multi-level logistic regression was conducted in 2,150 informal–formal care-giver dyads and revealed that in 26 per cent of all these dyads discussion on care occurred. This was more likely when both care-givers performed multiple types of tasks, the informal care-giver was residing with the care recipient, and contact within the formal and the informal sub-network was higher. To enhance discussion of care between informal and formal care-givers in care networks where no discussion occurs at all, home-care organisations may need to allocate formal care-givers who form a bridge with an extra-residential care-giver of care recipients living alone.
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G, Umesh, Asokan T.V., Roselin V, and Sri Santhanakrishnan V. V. "Cross-Sectional Study on Stigma among Care Givers of Patients with Mental Illness in Kanchipuram District, Tamil Nadu." Journal of Evidence Based Medicine and Healthcare 8, no. 28 (July 12, 2021): 2484–88. http://dx.doi.org/10.18410/jebmh/2021/460.
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BACKGROUND Stigma experienced by caregivers of patients with mental illnesses remains unnoticed. This study was conducted to evaluate the stigma perceived by the care givers of patients with various mental illnesses and the factors associated with stigma. METHODS This cross-sectional study was conducted among the care givers of patients with mental illnesses who accompanied the patients to the outpatient department (OPD) of Psychiatry in Meenakshi Medical College Hospital and Research Institute, from January 2017 to March 2017. A total of hundred care givers were included in the study. All care givers aged between 18 - 50 years of age in both sexes were included in the study. Care givers of substance abuse cases were excluded from the study. A total of hundred care givers with fifty care givers of neurosis patients and another fifty care givers of psychosis were included in the study. Family interview schedule (FIS) stigma scale was used to assess the stigma perceived by care givers. Data was entered in Microsoft excel and data analysis was done using statistical package for social sciences (SPSS) version 17. RESULTS Mean perceived stigma score was 12.27 ± 9.43. High, low and zero stigma was noted among 44 %, 36 % and 20 % of care givers, respectively. Also, it was found that care givers of psychosis patients had more stigma than the care givers of neurosis patients (P = 0.0008). Statistically significant association was found between patient’s duration of illness (P = 0.003), patient’s diagnosis (P = 0.000) and care givers burden (P = 0.000) with severity of stigma perceived by the care givers. CONCLUSIONS Proportion of stigma prevailing among the care givers is high and it depicts only the cases which were reported to the health care center, whereas a larger proportion of cases remains not seeking the health care. An early intervention by conducting routine assessments of the mental status of caregivers is necessary. KEYWORDS Stigma, Care Givers, Mental Illnesses, Family Interview Schedule
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Mainwaring, Debra. "Educational Psychologists as advocates of children in out of home care: An innovative program model that empowers young people and the adults who support them." Educational and Child Psychology 31, no. 1 (March 2014): 101–23. http://dx.doi.org/10.53841/bpsecp.2014.31.1.101.
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Life Without Barriers, a specialist foster care agency, are funding a Collaborative Education Program in partnership with Edmund Rice Education Australia Youth +. This paper aims to share some of the practice that gives a voice to the children and young people who have experienced trauma, abuse and neglect and have been placed in out of home care. Casework illustrations serve to reveal how the voice of the child is included in measures of participation, well-being and achievement that inform their Education Support Plans. Given the evidence of the impact of trauma on language development non-verbal methods of monitoring are used to explore the child’s perceptions of: what context is most likely to engage them using the Preferences for Activities for Children flashcards and pictorial Likert scales; how their attachment to the carer is developing using video recordings of structured play sessions with carers; sandtray and symbol work when creating trauma narratives; and iPad applications to scaffold emotional expression, social problem solving, transition planning and literacy and numeracy interventions. The program model is limited by recent government financial cutbacks in addition to the scarcity of educational and developmental psychologists in Queensland and its expansion to a national model requires a creative, facilitative model of leadership and strategic social investment in the local community.
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Huang, Chiung-Yu. "Informal Female Caregivers of Older Adults with Dementia in Taiwan." Californian Journal of Health Promotion 2, no. 3 (September 1, 2004): 53–66. http://dx.doi.org/10.32398/cjhp.v2i3.880.
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Family care givers providing a major portion of care giving often experience stress related to the negative consequences for their health. Female care givers often more heavily involved care giving activities than males. Care givers’ gender studies have seldom conducted in Taiwan. The purpose of this study was to explore the relationship of demographic factors and coping on health of female care givers of older adults with dementia in Taiwan. In addition, whether coping mediated or moderated the relationship between stress and care giver’s health was also examined. Lazarus and Folkman’s Stress model guided this study. Using a secondary data analysis method, this study examined data collected from the family care givers of older adults with dementia (2002). One hundred and three female care givers were analyzed by applying Pearson correlation, simple and multiple regression analysis. The findings showed care givers who are younger, more income, and with helpers had better health. Care givers who had less income, without helpers, and caring for care recipients with more behavioral problems had more depressive symptoms. In addition, mediating effect of avoidance coping was supported in this study. The data analysis from this study will provide a basis for nurses to develop interventions that minimize the negative impacts on female care givers.
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Bentwich, Miriam Ethel, Ya'arit Bokek-Cohen, and Nomy Dickman. "How figurative language may be related to formal care-givers’ person-centred approach toward their patients with dementia." Ageing and Society 39, no. 12 (July 17, 2018): 2653–70. http://dx.doi.org/10.1017/s0144686x18000685.
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AbstractPerson-centred care that respects a patient's personhood is the gold standard in dementia care, which is often difficult to achieve given the complexity of caring for people with dementia. This article delves into the narration style of formal care-givers from a variety of ethno-cultural backgrounds in search of linguistic cues that may be related to their emphasis on a person-centred approach to care. A qualitative study, using a discourse analysis of semi-structured interviews with 20 formal care-givers in an institutional setting, was employed. The care-givers fell into three groups: Arabs, immigrants from the former Soviet Union (IFSU) and Jews born in Israel (JBI). Our results show 20 figurative language expressions (FLEs) in the narratives of the JBI care-givers and 11 among the IFSU care-givers. In contrast, the Arab care-givers conveyed 48 FLEs. Many of the Arab care-givers’ FLEs were not associated with the ‘regular’ domains articulated by other care-givers (family, children, militaristic language) and were primarily individual-focused, emphasising the personhood of the patient. These findings, together with relevant theoretical literature, suggest that the extensive use of figurative language by Arab care-givers may be a possible tool assisting these care-givers to employ a person-centred approach, manifested in their stress on the personhood of the patient. Such tools may be useful for better achieving person-centred care for these patients.
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Wells, Y. D., A. F. Jorm, F. Jordan, and R. Lefroy. "Effects on Care-Givers of Special Day Care Programmes for Dementia Sufferers." Australian & New Zealand Journal of Psychiatry 24, no. 1 (March 1990): 82–90. http://dx.doi.org/10.3109/00048679009062889.
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Two groups of care-givers to dementia sufferers were interviewed to assess their psychological symptoms and the behaviour problems of the dementia sufferers. The first group were using special dementia day care while the second group were about to begin using it. The second group were re-interviewed three months later. Therefore two comparisons could be made; a with/without day care comparison and a before/after admission to day care comparison. Care-givers had a high level of psychological symptoms which were not significantly reduced by using day care. Full-time institutional care did reduce distress. Day centre clients continued to deteriorate as would be expected with a degenerative condition. While special dementia day care centres appear to play a useful role for many care-givers, they may provide too few hours relief per week to markedly reduce the care-givers' psychological symptoms. Family care-givers currently take the major role in caring for dementia sufferers in the community and the burden of care needs to be shared more equitably.
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Özen, Yelda. "Body work and later-life care in Turkey: a qualitative study of paid and unpaid carers of older people." Ageing and Society 40, no. 10 (July 30, 2019): 2106–27. http://dx.doi.org/10.1017/s0144686x19000989.
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AbstractThe ageing population of Turkey has brought later-life care into question. Family care remains most prevalent, but institutional, paid and professional care are increasing. Literature in Turkey has focused on the medical or social policy aspects but not care-givers’ experiences, nor how the care is performed. This study aims to illuminate care-givers’ experiences using qualitative methods, through in-depth interviews in Ankara with 19 care-givers providing home care for people aged 65 and over. Commonalities and differences were revealed among unpaid family care-givers, paid care-givers and professional care-givers. First, whether paid or unpaid, the bodily and emotional aspects of care work are intertwined. To cope with the ‘negativities’ involved in the work, nurses usually medicalised bodily tasks, unpaid care-givers cited traditional responsibilities and employed infantilisation, while paid care-givers mostly informalised the relationship, infantilised the person cared for and underlined their asexuality. Secondly, care work is gendered; silenced, invisible and ambivalent; related to intimacy with older bodies; and performed in the home space, which blurs the distinction between the private and public field for paid care. Finally, it involves emotional work regarding managing the bodily aspects and navigating the relationships surrounding the older person; and it is labour-intensive with an exploitative character.
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DE LA CUESTA-BENJUMEA, CARMEN, and BRENDA ROE. "The experience of family care-givers and migrant paid care-givers' relief of burden: a contrasted qualitative analysis." Ageing and Society 34, no. 7 (February 28, 2013): 1219–42. http://dx.doi.org/10.1017/s0144686x13000044.
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ABSTRACTOlder people are increasingly being cared for in the community across Europe. Dependent care in Spain largely remains a private issue involving family carers and migrant women from developing countries. Qualitative research on respite care has contributed to our understanding of respite as a subjective experience. Nonetheless, how care-givers relieve the burden of care is still not fully understood. Migrant care-givers are present in family life but their need for rest remains unseen. The aim of the study presented in this paper was to contrast family care-givers and migrant care-givers' strategies for relief from their caring role. Care-givers rest by thinking, doing and being but in a different manner from that of care-giving, that is: when they are a different person.To leave the life of care-givingis the general strategy that family care-givers use to rest from their care-giving selves whileturning to one's own worlddescribes the way migrant care-givers seek to relieve the burden of care. The comparative analysis shows that both strategies have in common the necessity to disconnect from the care-giving identity and that both migrant and family care-givers employ strategies that arefalse exits to a care-giving identity: they apparently relieve the burden of care. Respite goes beyond places, times and activities; as family care itself, it requires identity.
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Farberman, Harvey A., Stephen J. Finch, Beverly P. Horowitz, Abraham Lurie, Richard Morgan, and Jaimie Page. "A Survey of Family Care Giving to Elders in New York State: Findings and Implications." Care Management Journals 4, no. 3 (September 2003): 153–60. http://dx.doi.org/10.1891/cmaj.4.3.153.57524.
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It is estimated that there are 734,400 care giver households in New York State (9.6% [±] 0.8% of all households). Categorization of all care givers on a 5 level “intensity of care” measure reveals that, on average, care givers provide 22.1 hours of care per week. Highest intensity level 5 care givers (9.2% of all care givers), provide, on average, 88 hours of care per week and account for 36.3% of all care giving. The annualized market contribution of all care givers to the NYS health care system is estimated at between $7.5 and $11.2 billion dollars. The combination of care levels 4 and 5 contributed 70% of all care giving and account for about $5.2 billion in market value. Level 4 and 5 care givers are more likely than other care givers to report difficulties including the recent death of the care-receiver (p < 0.001), financial and employment setbacks (p < 0.001), emotional stress from worrying about the patient’s future condition, dealing with cognitively impaired, physically unmanageable, opinionated, virtually immobile patient’s, and insufficient support from family members (p < 0.05). Nevertheless, they also report such rewards as feeling grateful for improving the quality of the care receiver’s life (43.5%) as well as love (17.2%). Of the nearly 15% of NYS care givers who used adult day care services, all reported that these services met their needs fully or partly. However, of the 85% who did not use the service, 33.5% were negative about it. And while use of adult day care services increases with intensity of care level, there is resistance to adult day care particularly among level 3 care givers, with negative statements from 46.8% of them.
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Zelewsky, Marianne G., and Emily P. Deitrick. "Rx for Care Givers: Respite Care." Journal of Community Health Nursing 4, no. 2 (June 1987): 77–84. http://dx.doi.org/10.1207/s15327655jchn0402_4.
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Heinert, Sara, Marina Del Rios, Arjun Arya, Ramin Amirsoltani, Nasseef Quasim, Lisa Gehm, Natalia Suarez, and Terry Vanden Hoek. "The CHAMPIONS NETWork: Training Chicago High School Students as Health Advocates to Improve Health Equity." Health Promotion Practice 20, no. 1 (February 5, 2018): 57–66. http://dx.doi.org/10.1177/1524839918757755.
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In Chicago, major disparities exist across ethnic groups, income levels, and education levels for common chronic conditions and access to care. Concurrently, many of Chicago’s youth are unemployed, and the number of minorities pursuing health professions is low. In an effort to eliminate this health equity gap, the University of Illinois at Chicago convened a community–university–hospital partnership to implement the CHAMPIONS NETWork (Community Health And eMPowerment through Integration Of Neighborhood-specific Strategies using a Novel Education & Technology-leveraged Workforce). This innovative workforce training program is a “High School to Career Training Academy” to empower underserved youth to improve population health in their communities, expose them to careers in the health sciences, and provide resources for them to become community and school advocates for healthy lifestyles. This program differs from other traditional pipeline programs because it gives its students a paid experience, extends beyond the summer, and broadens the focus to population health with patient contact. The CHAMPIONS NETWork creates a new type of health workforce that is both sustainable and replicable throughout the United States.
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CUSTERS, ANNETTE F. J., YOLANDE KUIN, MARIANNE RIKSEN-WALRAVEN, and GERBEN J. WESTERHOF. "Need support and wellbeing during morning care activities: an observational study on resident–staff interaction in nursing homes." Ageing and Society 31, no. 8 (February 1, 2011): 1425–42. http://dx.doi.org/10.1017/s0144686x10001522.
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ABSTRACTQuality of life and wellbeing in nursing homes are becoming more important in research and practice. One of the main influences on residents' wellbeing is the interaction with their professional care-givers. The purpose of this study was to explore to what extent care-givers support the residents' needs of relatedness, autonomy and competence, and how this need support is related to wellbeing. Residents and their professional care-givers of four nursing homes in the Netherlands participated in an observational and questionnaire study. Three video-observations of each resident (with different care-givers) were made during morning care. Additional data were collected by means of questionnaires. The results show that the needs of residents were, on average, moderately fulfilled during care interactions. More need support by care-givers was related to higher resident wellbeing. Care-givers provided more need support to residents with stronger functional impairments. More need support was provided by higher-educated care-givers and care-givers in higher job functions. The results show the importance of need support for situational wellbeing, but the contribution to the general subjective wellbeing of residents remains unclear. Further (longitudinal) research is needed to investigate changes in wellbeing over time. Possible differences between subjective ratings and observations of need support and wellbeing should be taken into account.
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Pereira, Anabela, Joaquim Escola, Vitor Rodrigues, and Carlos Almeida. "Parents’ Perspectives on the Health Education Provided by Clinicians in Portuguese Pediatric Hospitals and Primary Care for Children Aged 1 to 10 Years." International Journal of Environmental Research and Public Health 17, no. 18 (September 19, 2020): 6854. http://dx.doi.org/10.3390/ijerph17186854.
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This study aimed to analyze parents’ perspectives of the health education practice provided by health professionals to children and parents. This is a descriptive research with a qualitative approach, based on the conceptual framework of health education provided by health professionals to children/young people and families. The selection took place by non-probabilistic sampling of convenience, and was developed with parents/users of health units for pediatric hospitalization and primary health care in northern Portugal. Data were collected using semi-structured interviews with 20 parents from March to April 2019, and were analyzed using the content analysis technique. Health education was understood to enhance health, and the evaluation was carried out according to planning and partnership. The most frequent topics were food, the national vaccination plan, and accident prevention. The evaluation shown is very positive, pointing to the nurse as the professional of choice for this practice and thus contributing to the visibility of nursing. We can state that the perspectives of parents about the health education carried out by health professionals show a practice that values health; is adaptable to the complexity of the binomial child and parents; is capable of influencing health determinants with sustainability, efficacy, and effectiveness; and gives visibility to nurses’ positions as health educators.
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Ringer, Thom J., Matthew Wong-Pack, Patricia Miller, Christopher Patterson, Sharon Marr, Brian Misiaszek, Tricia Woo, Richard Sztramko, Peter George Vastis, and Alexandra Papaioannou. "Understanding the educational and support needs of informal care-givers of people with dementia attending an outpatient geriatric assessment clinic." Ageing and Society 40, no. 1 (August 28, 2018): 205–28. http://dx.doi.org/10.1017/s0144686x18000971.
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AbstractInformal (unpaid) care-givers of older people with dementia experience stress and isolation, causing physical and psychiatric morbidity. Comprehensive geriatric assessment clinics represent an important geriatrician-led model of dementia care. Our qualitative study examined the educational and support needs of care-givers of people diagnosed with dementia at a geriatric assessment clinic, resources used to address those needs and challenges experienced in doing so. We conducted structured thematic analysis of interviews with 18 informal care-givers. Participants’ narratives reflected four themes. First, care-givers sought information from varied sources, including the Alzheimer Society, the internet and clinic staff. Responsive behaviours, the expected progression of dementia and system navigation were topics of particular interest. Second, care-givers obtained assistance from public, for-profit and voluntary sources. Third, care-givers received little assistance. Two-thirds received fewer than four hours of help weekly from all sources combined, and none more than 15. Several received no assistance whatsoever. Publicly funded support workers’ tasks, and their timing, were often unhelpful. Finally, while numerous care-givers felt physical and emotional strain, and worried about how poor health impaired their care-giving, many hesitated to seek help. The needs of this unique population of informal care-givers can be met by improved home-care service flexibility, and access to trustworthy information about the expected progression of dementia and skills for managing behavioural and psychological symptoms.
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Gandhi, Priya, Bindu Shaiju, and Eke Lama Tamang. "Patients’ and Care-givers’ Knowledge and Practice regarding Prevention of Complications of Immobilisation with a View to Develop an Information Booklet." Nursing Journal of India CVIII, no. 05 (2017): 206–9. http://dx.doi.org/10.48029/nji.2017.cviii504.
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This study was conducted at a tertiary care hospital with the objectives to assess the knowledge and practice of immobilised orthopaedic patients and their care-givers regarding prevention of complications of immobilisation and to seek relationship between knowledge and practice scores with the selected demographic variables. A quantitative approach with descriptive survey design was used. A semi structured questionnaire, to assess the knowledge and a checklist to assess the practice of both patients and their care-givers were used for data collection. Purposive sampling technique was employed to select 50 patients admitted in the orthopaedic ward and their 50 care-givers. The study showed that most of the subjects (both patients and care-givers) were in the age group of 20-30 years and married and spending more than 12 hours with their patient to care for them. There was no significant relationship between the knowledge scores of study subjects (patients as well as care-givers) with their practice scores. There was a significant relationship between the knowledge scores of patient and care-givers in specific areas showing consistent knowledge deficit in both patient and care-givers in those areas. There was no significant relationship between the knowledge and practice scores with the selected demographic variables in both patients and their care-givers. An Information Booklet on prevention of complications of immobilisation was developed and disseminated.
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Fee, Anne, Sonja McIlfatrick, and Assumpta Ryan. "‘When it faded in her … it faded in me’: a qualitative study exploring the impact of care-giving on the experience of spousal intimacy for older male care-givers." Ageing and Society 41, no. 1 (August 13, 2019): 29–50. http://dx.doi.org/10.1017/s0144686x19000850.
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AbstractOlder male care-givers play an increasingly important role in informal care-giving, yet they have received little attention in the literature. The aim of this study was to explore the impact of care-giving on the experience of spousal intimacy for older male care-givers. Twenty-four older male care-givers, drawn from a region of the United Kingdom, participated in one-to-one interviews about their care-giving role. Thematic analysis was used to analyse data, and the study was underpinned by theories of masculinity. Three main themes were identified: (a) ‘Impact of care-giving on the experience of sexual intimacy’; (b) ‘Impact of care-giving on the experience of emotional intimacy’; and (c) ‘Not up for discussion’. When sexual intimacy declined, some older male care-givers prioritised emotional intimacy; some struggled with the decline; and some were reluctant to discuss the issue. Additionally, some care-givers reported that they had not received support from external support providers for declining sexual or emotional intimacy. Intimacy has been highlighted as important for care-givers given its link with care-giver wellbeing and quality of life. Results of this study suggest that sexual and emotional intimacy was an issue for older male care-givers, and that this issue should be considered by external support providers as part of a holistic assessment of need in order to tailor effective support.
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Rady, A., T. Mouloukheya, and E. Ramadan. "Post traumatic stress disorder symptoms and stress burden among caregivers of patients with severe mental illness." European Psychiatry 64, S1 (April 2021): S126. http://dx.doi.org/10.1192/j.eurpsy.2021.353.
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IntroductionCare givers of patients with severe mental disorders have been shown to be under heavy stress burden that reflect itself through various heterogenous psychiatric symptoms that may mimic PTSD with associated negative impact on interpersonal relations and work performanceObjectivesto assess the prevalence of PTSD symptoms among care givers of patients with severe mental illnessMethods70 patients care givers of sevely mentally ill patients compred to control 70 care giver of patients with chronic debilitating medical illness were recruited from outpatient of the university hospital outpatient facilities, random selection. Severe mental illness was defined by Global assessment of function GAF score above 50 and duration exceeding 2 years. Both groups were subject to Zarit burden interview to assess stress burden and post traumatic stress diagnostic scale PDS to assess PTSD symptomatsResults43% of care givers of severly mentally patients showed moderate to severe burden on the Zarit scale compared to only 10% among care givers of medically ill patients, this difference was statistically significant (p<0,001). Among care givers of severly mental patients showed moderate to severe score on post traumatic stress diagnostic scale compared to 0% among those taking care of medically ill patients. this difference was statistically significant (p<0,001)ConclusionsStress burden among care givers of patients with severe mental illness is high and may manifest symptoms of post traumatic disorder. This highlight the importance of particular psychological support and assessment among care givers of patients with sever mental illnessDisclosureNo significant relationships.
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van der Plas, Annicka GM, Anneke L. Francke, Luc Deliens, Wim JJ Jansen, Kris C. Vissers, and Bregje D. Onwuteaka-Philipsen. "Informal care givers' experiences with support in primary palliative care when a case manager is involved: A descriptive study in the Netherlands." International Journal of Care Coordination 20, no. 1-2 (December 26, 2016): 17–25. http://dx.doi.org/10.1177/2053434516685738.
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Introduction Case managers have been introduced in primary palliative care in the Netherlands; these are nurses with expertise in palliative care who offer support to patients and informal care givers. The case manager provides support in addition to the care provided by the home care nurse and general practitioner, potentially leading to more complexities in care coordination. This study describes what informal care givers think about the number of professionals involved in primary palliative care and what support is and is not provided by the general practitioner, the community nurse and the case manager according to the informal care givers. Methods A questionnaire was filled in by the case manager upon referral, and the informal care giver ( n = 178) completed a questionnaire two months after the patient had died. Frequencies (the number of professionals) and cross tabs (for support) were calculated. Results The number of healthcare professionals involved was appropriate according to the vast majority (91%) of informal care givers. Support was provided by all three professionals, but a small proportion (14%) of informal care givers did not receive sufficient information on possibilities of care and support from any of the care providers. Discussion Reluctance to involve a case manager is unnecessary, as long as the role of each professional is explained to patients and informal care givers. At all times, support should be offered to the informal care givers as well as to the patient. Added value of the case manager is found in offering specific knowledge of palliative care.
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Fisher, Alinka, Michelle Bellon, Sharon Lawn, and Sheila Lennon. "Identifying Current Practices and Supports in Behaviour Management Following ABI in South Australian Community Settings: A Delphi Study." Brain Impairment 18, no. 2 (February 2, 2017): 211–25. http://dx.doi.org/10.1017/brimp.2016.36.
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Objectives: To consider the strategies currently used by family care givers to manage challenging behaviour in the community following ABI, and to identify what supports are available that support family care givers in addressing this issue.Research design: Delphi study.Methods: Service providers (n = 8) and family care givers (n = 3) completed a three-round Delphi process with the aim of reaching consensus (75% agreement) regarding research objectives. Round 1 consisted of an open-ended questionnaire in which items were identified; these items were then rated in Round 2 and 3 using a Likert scale. Statistical aggregation then allowed for quantitative analysis.Results: The findings suggest a number of behaviour management approaches are being used by family care givers, including basic antecedent strategies, agreeing with the person's demands, and medication. Consensus was reached that only two services in SA provide specific support to family care givers regarding behaviour management in the community: Families4Families Inc. (a peer support network) and Private Specialists (e.g., [neuro]psychologists and [neuro]psychiatrists).Conclusions: Findings emphasise the need for more specialised services specific to educating and supporting family care givers in the management of challenging behaviours following ABI. These services should be accessible, centralised, and easy for family care givers to navigate.
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Hanna, Gay, Pamela Saunders, and Marie Bernard. "Why Creativity Matters to Aging and Health." Innovation in Aging 4, Supplement_1 (December 1, 2020): 643. http://dx.doi.org/10.1093/geroni/igaa057.2208.
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Abstract As GSA turns 75, it is an appropriate time to review the history of the creative aging movement. This symposium explores the research, policy and practice of creative aging - past and present, starting in the 1970’s through the efforts of pioneering leaders in the aging, humanities and arts in conjunction with growing support from the newly established National Endowment for the Arts and related aging and health service systems. The foundational research by Gene Cohen, MD PHD and others at the turn of the 21st Century will be described in terms of its building the science to utilize the humanities and arts to scaffold policy and practices that promote the potential of aging through creative expression rather than the pervasive view of aging as a time of loss. Moving towards strength-based approaches to further the development of overall health including brain reserve, physical fitness and social networks, creative aging collaborations will be highlighted as the future of this initiative. Case studies of joint research projects between state departments of both aging and arts in partnership with Universities will demonstration contemporary practices to address major aging issues around isolation, loneliness and caring for the care giver.
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&NA;. "POETRY BY CANCER CARE GIVERS." Oncology Times 26, no. 24 (December 2004): 37. http://dx.doi.org/10.1097/01.cot.0000292727.04215.0a.
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Raskin, Curtis A. "Dermatologists as primary care givers." Journal of the American Academy of Dermatology 37, no. 4 (October 1997): 668–69. http://dx.doi.org/10.1016/s0190-9622(97)70200-7.
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Mayer, Gloria Gilbert. "Families as Hospital Care Givers." JONA: The Journal of Nursing Administration 31, no. 10 (October 2001): 457–58. http://dx.doi.org/10.1097/00005110-200110000-00002.
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Dalmer, Nicole K. "‘Add info and stir’: an institutional ethnographic scoping review of family care-givers’ information work." Ageing and Society 40, no. 3 (October 5, 2018): 663–89. http://dx.doi.org/10.1017/s0144686x18001125.
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AbstractFamily care-givers are increasingly expected to find, understand and use information to meet the complex needs of older adults in their care. A significant number of studies, however, continue to report that care-givers’ information needs are unmet. Following Arksey and O'Malley's scoping review framework, I examined 72 articles for the range and extent of available research on the information work done by family care-givers of community-dwelling older adults living with dementia. To untangle the complex relationship between information and care, this scoping review maps out (a) the ways scholarly literature conceptualises the informational components of family care-givers’ work and (b) the degree to which scholarly research acknowledges these components as work. An institutional ethnography inflection enhanced the scoping review framework, enabling the privileging of lived experiences, questioning of assumptions of language used, attending to authors’ positioning and highlighting care-givers’ information work made invisible throughout the processes of academic research.
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TSUNAKA, MEGUMI, and JENNY C. C. CHUNG. "Care-givers’ perspectives of occupational engagement of persons with dementia." Ageing and Society 32, no. 4 (July 28, 2011): 543–60. http://dx.doi.org/10.1017/s0144686x11000365.
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ABSTRACTMeaningful engagement in activity is associated with the maintenance of health and wellbeing, but reduced activity participation is common among persons with dementia. Family care-givers play an important role in engaging their relatives with dementia in activities but little is known about their perception of occupational engagement. This study aimed to examine care-givers’ perception of occupational performance of their relatives from three aspects: person, occupation and environment. Adopting a qualitative methodology, semi-structured and in-depth interviews were conducted with 14 family care-givers. Care-givers were also asked to document the activity patterns of their relative, using the Activity Card Sort Hong Kong version (ACS-HK). The ACS-HK findings suggested that high-demand leisure activities were mostly retained (61%) while instrumental activities of daily living were the least retained (37%). Qualitative analysis revealed that care-givers’ perception of activity participation was intertwined with their motives and behaviours to get their relatives engaged in activities. Care-givers acknowledged occupational engagement as a means of maintaining wellness and used various strategies to encourage their relative's activity participation. Apathy and passivity, however, are difficult to deal with. Also, activity decisions appear to depend on the availability of support resources and a balance between safety concern and risk-taking. Clinical practitioners could assist care-givers by suggesting activity strategies and providing support resources for continued engagement of their relative in activities.
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Wu, Heng, and Lyn Holley. "Estimating Risk of Elder Abuse: Intergenerational Communication/Empathy, Census-Based Assessment." Innovation in Aging 4, Supplement_1 (December 1, 2020): 868. http://dx.doi.org/10.1093/geroni/igaa057.3213.
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Abstract COVID highlights the importance of accurate estimates of the risk of elder abuse to guide prevention. Reliability of data is problematic; reports have issues with consistency of definitions, time periods, and stigma. This paper demonstrates the use of US Census data to estimate risk of elder abuse by mapping generational incongruities between care-givers and care-receivers that invite dissonance (Cohen, 2011). Using the 2014-2018 Nebraska Public Use Microdata and 5-year American Community Survey, this research identifies and profiles personal care aides/nursing aides for institutionalized persons (65+). Data reveal generation gaps in age, education, and race between care-receivers and care-givers that are geographically comparable in the three most populous counties (the Big-3), but different for the 90 rural counties. In Nebraska’s Big-3 Counties the difference in education between care-givers (ages 25+) and care-receivers (65+) is considerable; 42.9% of Big-3 care-givers have some college, while 43.6% of care-receivers have only high school. Intergenerational differences in education are greater in Nebraska’s 90 rural counties than in the Big-3; 41.2% of rural care-givers have some college; 46.1% of rural care-receivers have only high school. Racial intergenerational differences are greater in Big-3 than in rural counties; 90.3% of care-receivers and only 62.3% of care-givers are non-Hispanic White. For rural Nebraskans, intergenerational differences in race are smaller, 97.2% of care-receivers and 79.4% of care-givers are non-Hispanic White. This type of analysis can be used to identify geographic settings where elder abuse is most likely to happen and guide the development of preventive measures that mitigate elder abuse.
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SMITH-CARRIER, TRACY, THUY-NGA PHAM, SABRINA AKHTAR, GAYLE SEDDON, MARK NOWACZYNSKI, and SAMIR K. SINHA. "‘It’s not just the word care, it’s the meaning of the word…(they) actually care': caregivers’ perceptions of home-based primary care in Toronto, Ontario." Ageing and Society 38, no. 10 (May 17, 2017): 2019–40. http://dx.doi.org/10.1017/s0144686x1700040x.
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ABSTRACTThe frail and homebound older adult populations currently experience difficulties accessing primary care in the medical office. Given this fundamental access to care problem, and the questionable care quality that arises when navigating a labyrinthine health-care system, these populations have typically been subject to inadequate primary care. To meet their needs better, growing research stresses the importance of providing comprehensive home-based primary care (HBPC), delivered by an inter-professional team of health-care providers. Family care-givers typically provide the majority of care within the home, yet their perceptions of HBPC remain under-researched. The purpose of this study was to explore unpaid care-givers' perceptions of and experiences with HBPC programmes in Toronto, Canada. We conducted qualitative inductive content analysis, using analytic procedures informed by grounded theory, to discover a number of themes regarding unpaid care-givers' understandings of HBPC. Findings suggest that, compared to the standard office-based care model, HBPC may better support unpaid care-givers, providing them assistance with system navigation and offering them the peace of mind that they are not alone, but have someone to call should the need arise. The implications of this research suggest that HBPC could be a model to help mitigate the discontinuities in care that patients with comorbid chronic conditions and their attendant unpaid care-givers experience when accessing fragmented health, home and social care systems.
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SZINOVACZ, MAXIMILIANE E., and ADAM DAVEY. "Changes in adult children's participation in parent care." Ageing and Society 33, no. 4 (March 21, 2012): 667–97. http://dx.doi.org/10.1017/s0144686x12000177.
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ABSTRACTCare-giving research has focused on primary care-givers and relied on cross-sectional data. This approach neglects the dynamic and systemic character of care-giver networks. Our analyses address changes in care-givers and care networks over a two-year period using pooled data from the US Health and Retirement Study, 1992–2000. Based on a matrix of specific adult-child care-givers across two consecutive time-points, we assess changes in any adult-child care-giver and examine the predictors of change. A change in care-giver occurred in about two-fifths of care-giving networks. Ability to provide care based on geographical proximity, availability of alternative care-givers, and gender play primary roles in the stability of care networks. Results underline the need to shift care-giving research toward a dynamic and systemic perspective.
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TOLKACHEVA, NATALIA, MARJOLEIN BROESE VAN GROENOU, ALICE DE BOER, and THEO VAN TILBURG. "The impact of informal care-giving networks on adult children's care-giver burden." Ageing and Society 31, no. 1 (September 17, 2010): 34–51. http://dx.doi.org/10.1017/s0144686x10000711.
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ABSTRACTPrevious research on the care-giver burden experienced by adult children has typically focused on the adult child and parent dyad. This study uses information on multiple informal care-givers and examines how characteristics of the informal care-giving network affect the adult child's care-giver burden. In 2007, 602 Dutch care-givers who were assisting their older parents reported on parental and personal characteristics, care activities, experienced burden and characteristics of other informal care-givers. A path model was applied to assess the relative impact of the informal care-giving network characteristics on the care-giver burden. An adult child experienced lower care-giver burden when the informal care-giving network size was larger, when more types of tasks were shared across the network, when care was shared for a longer period, and when the adult child had no disagreements with the other members of the network. Considering that the need for care of older parents is growing, being in an informal care-giving network will be of increasing benefit for adult children involved in long-term care. More care-givers will turn into managers of care, as they increasingly have to organise the sharing of care among informal helpers and cope with disagreements among the members of the network.