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1
Castanon, Léa. "Ρrise en charge institutiοnnelle des persοnnes en situatiοn d'Etat Végétatif Chrοnique οu Etat Ρauci-Relatiοnnel : analyse sοciοlοgique au prisme de la "trajectοire de handicap"." Electronic Thesis or Diss., Normandie, 2024. http://www.theses.fr/2024NORMR126.
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Au travers d’une recherche ethnographique menée dans deux unités (éveil de coma et unité dédiée), la thèse interroge la construction de la trajectoire de handicap des patients en état végétatif chronique ou pauci relationnel. Ces deux états de conscience altérée, entraînent un handicap extrême et une dépendance quasiment totale rendant impossible la participation pleine et entière du patient à sa prise en charge. A la fois présent et absent, ce dernier voit sa trajectoire de handicap se construire au travers d’un partenariat fragile entre les professionnels de santé d’un côté, et les familles de l’autre. Le travail de thèse a permis d’identifier les différentes unités de prise en charge comme des moments-clés de la trajectoire de handicap où se nouent et se dénouent des relations entre professionnels et familles oscillant entre conflits, partenariat, tensions et partages. La peur omniprésente en réanimation laisse sa place à l’incertitude et l’espoir, marqueurs du passage en unité d’éveil de coma, puis à l’inscription dans le handicap et le temps long représentatif de l’unité dédiée qui devient le lieu de vie. Ces passages modifient ainsi ces relations, et de fait, le déroulement de la trajectoire de handicap. Ce sont, en effet, les deux unités, les relations qui s’y déploient, les « esprits de soin » qui y sont mobilisés et les savoirs qui se partagent ou s’affrontent qui sont analysés pour tracer les contours de cette trajectoire de handicap. Dans une démarche interactionniste et ethnographique, la thèse rend ainsi compte des différents enjeux de cette prise en charge que l’on peut définir, à plusieurs niveaux, de particulièreThrough an ethnographic research, conducted in two medical units (awakening and dedicated unit), this thesis investigates the construction of the handicap trajectory of patients in a chronic vegetative state or in a minimal conscious state. These two states, of altered consciousness, create an extreme handicap and an almost full reliance, making a full and whole participation of the patient to their medical care, impossible. Being both present and absent, the latter, observes his handicap trajectory being built via a fragile partnership between the family and the medical care givers. The research conducted during his thesis, allowed to identify the different medical care units involved, and as well key moments of the handicap trajectory: the relationship between the family and the care givers where they create and unwind bonds, oscillating between conflicts, partnership, tensions and sharing. The omnipresent fear in intensive care unit, is replaced by uncertainty and hope, which are markers of the transfer to the awakening coma unit. The passage to dedicated unit marks the beginning of the disability identity. This transfer, changes the inter-relationships and the evolution of the handicap trajectory. These two medical units (awakening and dedicated unit), their relationships, the deployed “spirit of the given care”, their knowledge which can be contradictory or shared, is analyzed in this these, in order to trace the outlines of this handicap trajectory. Via an interactionist and ethnographic research approach, this thesis examines the various issues involved in this type of care, which can be defined as particular on several levels
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Earley, Louise. "Children as familial care givers : the psychological implications." Thesis, University of Warwick, 2001. http://wrap.warwick.ac.uk/89666/.
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This thesis is concerned with children as familial caregivers. To date 'young carers' have received limited attention from researchers, and the current body of literature has mainly developed from the social welfare field. This is in contrast to a vast body of research, which has established the psychological impact of care giving on adults. The first paper critically reviews the concept and research on 'parentification'. This is a systemic/dynamic perspective on the psychological and developmental implications of children's involvement in caring roles. It has been submitted to the Journal of Clinical Child Psychology and Psychiatry (see Appendix A for instructions to authors for all papers). The brief paper is a qualitative study employing focus groups and individual interviews to consider the views of twenty young carers. The aim was to gain an insight into their perceptions of the caring experience and to provide data which might be helpful in developing a measure of 'young carer stress' to be used in the main study. This paper has been prepared for the journal 'Qualitative Health Research'. The main research focused upon the application of a stress- coping model to a study of 108 adolescent young carers. It was found that those children who felt devalued in their caring role, overloaded, and used avoidant coping styles to manage their stress were most at risk of suffering from psychological distress. The results are considered in the context of the adolescent stress-coping literature and implications for prevention and intervention are discussed. Papers are prepared in accordance with the instructions to authors, although small changes to the formatting have been made to ensure consistency across all the papers. The whole thesis is less than 20,000 words (excluding references, and tables).
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Bryan, William J. "Constructing a profile of lay pastoral care-givers an investigation of the Myers-Briggs type indicators and spiritual gifts of lay pastoral care-givers /." Theological Research Exchange Network (TREN), 1999. http://www.tren.com.
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Hannigan, Pamela Ann. "The psychological impact of a community care project on elderly care recipients and their care givers." Thesis, University of Ulster, 2002. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.274102.
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Bernabe-Ortiz, Antonio, Canseco Francisco Diez, Alberto Vásquez, and J. Jaime Miranda. "Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru." Informa Healthcare, 2015. http://hdl.handle.net/10757/556094.
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ArticlePURPOSE: To determine the prevalence of disability in Peru, explore dependency on caregiver's assistance and assess access to rehabilitation care. METHOD: Data from Disability National Survey (ENEDIS), including urban and rural areas, were analyzed. Disability was defined as a permanent limitation on movement, vision, communication, hearing, learning/remembering or social relationships. Dependency was defined as the self-reported need for a caregiver to help with daily activities; and access to rehabilitation care was defined as the self-report of any therapy for disabilities. Estimates and projections were calculated using sample strata, primary sampling units and population weights, and prevalence ratios (PRs) and 95%CI were reported. RESULTS: From 798 308 people screened, 37 524 (5.1%; 95%CI 4.9--5.2%) had at least one disability. A total of 37 117 were included in further analysis, mean age 57.8 (SD ± 24.1) years, 52.1% women. Dependency was self-reported by 14 980 (40.5%; 95%CI: 39.2-41.9%) individuals with disabilities. A family member, usually female, was identified as a caregiver in 94.3% (95%CI: 93.3-95.3%) of dependent participants. Only 2881 (10.7%; 95%CI: 9.7-11.9%) of people with disabilities reported access to rehabilitation care. Major inequality patterns of disability burden versus access to rehabilitation care were observed by age and education level. Older age groups had higher disability burden yet lower chances of access to rehabilitation care. Conversely, the higher the education level, the lesser the overall disability burden but also the higher chances of reporting receiving care. Private healthcare insurance doubled the probability of having access to rehabilitation compared with those without insurance. CONCLUSIONS: Approximately 1.6 million Peruvians have at least one disability, and 40% of them require assistance with daily activities. Informal caregiving, likely female and relative-provided, is highly common. Rehabilitation care access is low and inequitable. Our results signal a major need to implement strategies to guarantee the highest standard of health care for people with disabilities. Implications for Rehabilitation Major inequality patterns in terms of burden of disability versus access to rehabilitation care were observed: those groups who concentrate more disability reported receiving less rehabilitation care. Caregiving is mostly informal and provided by a direct relative, mainly a woman, who resigned to their usual activities in order to help care for the person with disability. As a result, there is a need to develop appropriate support and training for caregivers. Access to care services in Peru is low and inequitable, but especially for people with disabilities: they experience greater barriers when accessing healthcare services even in the case of having health insurance.
Revisión por pares
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Adlin, Sheryl. "Day care partnership : a comprehensive plan for Massachusetts." Thesis, Massachusetts Institute of Technology, 1985. http://hdl.handle.net/1721.1/71048.
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Thesis (M.C.P.)--Massachusetts Institute of Technology, Dept. of Urban Studies and Planning, 1985.MICROFICHE COPY AVAILABLE IN ARCHIVES AND ROTCH
Bibliography: leaves 98-101.
by Sheryl Adlin.
M.C.P.
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Phillips, Susan E. "Care giving, institutionalization and available supports, a study of family care givers of persons with Alzheimer's in central Newfoundland." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1998. http://www.collectionscanada.ca/obj/s4/f2/dsk2/tape17/PQDD_0014/MQ33824.pdf.
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Amoah, Abigail. "Factors contributing to primary care givers' delay in presenting children with chronic kidney disease for medical care in Ghana." Master's thesis, University of Cape Town, 2017. http://hdl.handle.net/11427/24979.
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Chronic kidney disease (CKD) in children has become a public health problem in Ghana. The researcher observed that the primary care givers of these children present them late for medical care. This ignited the researcher to conduct this study to identify factors that contribute to primary care givers' delay in seeking early medical care for children with CKD. The purpose of the study was to explore and describe the factors that contribute to primary care givers' delay in presenting children who suffer from CKD for medical care in Ghana. A descriptive qualitative design was used to answer the research question: What factors contribute to primary care givers' delay in presenting children with CKD for medical care in Ghana? Convenience sampling was used to recruit ten primary care givers of children admitted for CKD at the Paediatric Renal Unit of Komfo Anokye Teaching Hospital in Kumasi, Ghana, to participate in the study. Semi-structured interviews and field notes were used to collect data. The thematic data analysis approach of Colaizzi (1978) was used, and the ecological model of Schneider (2017) assisted in organising themes and subthemes. The themes which emerged are: intrapersonal-related factors contributing to delay; interpersonal-related factors contributing to delay; community-related factors contributing to delay; and political-related factors contributing to delay. These were directly related to the research question. A fifth theme which emerged serendipitously is the perceived need for community awareness about CKD. The findings revealed that intrapersonal, interpersonal, community and political level factors influence primary care givers' decisions in seeking medical care for their children. At intrapersonal level factors that played a role were personal attitudes and beliefs; primary care givers' beliefs in traditional medicine as a cure for CKD; their lack of knowledge on CKD and its management; primary care givers' financial constraints; and their beliefs in ancestral spiritual powers for healing. At interpersonal level factors included primary care givers' lack of family support and marital conflicts. At community level factors included primary care givers' delayed referral from the local health facility; incorrect advice received from family and neighbours on management; mismanagement of the disease at the local health facility; and misdiagnosis by neighbours. At political level the distance of the primary care givers' homes from the hospital can contribute to delays. One of the recommendations of the study is development and implementation of a national referral policy for CKD patients to guide health practitioners at the districts. Early referral for appropriate treatment of children with CKD can slow progression of the disease and prevent early mortality. Awareness campaigns need to be developed and implemented by the Ghana Kidney Association to provide health educational programmes for health professionals and communities. Further research using a larger sample or quantitative research methods is also recommended, to gain a better understanding of the factors contributing to delays in presentation of children with CKD in Ghana.
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Adams, Tracey. "Old strategies, new game, the changing health care system and its impact on care givers in long-term care facilities in Nova Scotia." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1999. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp01/MQ37788.pdf.
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Hemphill, Jean Croce, and C. Macnee. "Community Partnership in Primary Care of Homeless and Indigent." Digital Commons @ East Tennessee State University, 1995. https://dc.etsu.edu/etsu-works/7589.
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Ross, Angela Catherine Dagley John C. "An assessment of anticipatory grief as experienced by family care givers of individuals with dementia." Auburn, Ala, 2008. http://repo.lib.auburn.edu/EtdRoot/2008/SUMMER/Counselor_Education,_Counseling_Psychology,_and_School_Psychology/Dissertation/Ross_Angela_15.pdf.
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Farley, Carol J. "Stress, appraised control, and salivary immunoglobulin A." Thesis, Anglia Ruskin University, 2010. http://arro.anglia.ac.uk/188989/.
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Salivary IgA is the primary antibody of mucosal immunity. It has been suggested that chronic stress may lower levels of IgA and lead to an increased susceptibility to respiratory illness. It is also suggested that acute stress increases IgA during active coping (that involves mental effort or controllability, such as time-based mathematics or memory tests) and decreases it during passive coping tasks (with no mental effort required or uncontrollable, such as the passive viewing of disgust images). However, tasks often classed as stressors have produced consistent IgA effects in areas of passive coping and chronic stress. These inconsistencies might be a consequence of methodological issues, such as sampling procedures, or may reflect individual differences, for example how a task is appraised. This thesis examined appraisal effects with focus on control over a stressful event and a potential relationship with salivary IgA. Three different study designs were used to examine stress, appraised control and salivary IgA. To alter appraisal during passive coping, disgust images were presented as either real pictures or as fake effects from fictional films to change the participant's perception of control during the image presentations. The role of appraised control during a chronic stress situation was explored in caregivers, and finally, appraised control and subjective stress were investigated in relation to IgA daily for a week in undergraduates, alongside perceived stress and hassles from the prior month. Viewing disgusting images increased perceived stress, irrespective of whether the images were presented as real or fake. Crucially, control was lower and salivary IgA increased only in the group that were told the images were real. Appraised control over a chronic stressor of caregiving did not affect IgA, but neither did perceived stress. Finally, in undergraduates, stress measured at the same time as sampling showed a lower level of IgA on days rated the highest compared to lowest on stress, and appraised control had a negative correlation with IgA when averages were used over the week, but only in a sub-group of participants. Perceived stress or hassles from the prior month did not relate to IgA. The main conclusions are that a participant's appraisal of passive coping tasks can be altered and that this may lead to a change in their IgA response. The overall results challenge the view that IgA is a stress marker, as the only consistent effect of stress on IgA was its consistency. Yet inconsistent IgA responses are likely to be a recurring issue in research due to the sensitivity of IgA to a number of different methodological practices that may cause a direct effect, or may alter appraisals.
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Farley, Carol J. "Stress, appraised control, and salivary immunoglobulin A." Thesis, Anglia Ruskin University, 2010. https://arro.anglia.ac.uk/id/eprint/188989/1/Thesis_Farley_2010.pdf.
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Salivary IgA is the primary antibody of mucosal immunity. It has been suggested that chronic stress may lower levels of IgA and lead to an increased susceptibility to respiratory illness. It is also suggested that acute stress increases IgA during active coping (that involves mental effort or controllability, such as time-based mathematics or memory tests) and decreases it during passive coping tasks (with no mental effort required or uncontrollable, such as the passive viewing of disgust images). However, tasks often classed as stressors have produced consistent IgA effects in areas of passive coping and chronic stress. These inconsistencies might be a consequence of methodological issues, such as sampling procedures, or may reflect individual differences, for example how a task is appraised. This thesis examined appraisal effects with focus on control over a stressful event and a potential relationship with salivary IgA. Three different study designs were used to examine stress, appraised control and salivary IgA. To alter appraisal during passive coping, disgust images were presented as either real pictures or as fake effects from fictional films to change the participant's perception of control during the image presentations. The role of appraised control during a chronic stress situation was explored in caregivers, and finally, appraised control and subjective stress were investigated in relation to IgA daily for a week in undergraduates, alongside perceived stress and hassles from the prior month. Viewing disgusting images increased perceived stress, irrespective of whether the images were presented as real or fake. Crucially, control was lower and salivary IgA increased only in the group that were told the images were real. Appraised control over a chronic stressor of caregiving did not affect IgA, but neither did perceived stress. Finally, in undergraduates, stress measured at the same time as sampling showed a lower level of IgA on days rated the highest compared to lowest on stress, and appraised control had a negative correlation with IgA when averages were used over the week, but only in a sub-group of participants. Perceived stress or hassles from the prior month did not relate to IgA. The main conclusions are that a participant's appraisal of passive coping tasks can be altered and that this may lead to a change in their IgA response. The overall results challenge the view that IgA is a stress marker, as the only consistent effect of stress on IgA was its consistency. Yet inconsistent IgA responses are likely to be a recurring issue in research due to the sensitivity of IgA to a number of different methodological practices that may cause a direct effect, or may alter appraisals.
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Rennert, Karin I. "An evaluation of intervention designed to teach communication strategies to care-givers of nursing home residents." Thesis, University of British Columbia, 1990. http://hdl.handle.net/2429/29787.
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This study evaluated the ability of nursing home staff to implement communication strategies as a result of inservice education. Seventeen subjects, from two occupational groups (patient care aides, and rehabilitation staff), were observed twice each during routine interactions with the nursing home residents. The measurement tool consisted of 11 communication behaviours, which were scored according to degree of use. There were two categories of strategies: those that could be used in all situations, and those that were appropriate only for some situations. Results were mixed: the experimental group (N=5), who attended the inservice, showed an increase in the use of latter category of communication strategies, while the control group (N=12) decreased their use of the same strategies. In the former category of strategies, no difference was found between the experimental and control groups. The discussion focused on possible sources of confound, and recommendations for further research.Medicine, Faculty of
Audiology and Speech Sciences, School of
Graduate
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Jones, Craig McLeod Frank. "Too much glass, social forces and the restructuring of production relations among care-givers in Ontario." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1997. http://www.collectionscanada.ca/obj/s4/f2/dsk3/ftp04/nq20566.pdf.
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Staples, Lauren. "Cognitive Behavioural Therapy for anxiety in informal care-givers of people with dementia : a meta-analysis." Thesis, University of East Anglia, 2017. https://ueaeprints.uea.ac.uk/69040/.
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Background and Aims: Caring for someone with dementia can be a source of significant stress, with many experiencing depression and anxiety (Pinquart & Sorensen, 2006). Despite showing promise for informal care-givers of people with dementia Cognitive Behavioural Therapy has received little systematic appraisal in isolation from other intervention models. The current review aimed to provide a systematic and quantitative appraisal of the evidence for CBT interventions with a primary focus upon anxiety outcomes, and secondary focus upon depression. Methods: A systematic search of relevant databases was conducted. Study characteristics and effect size data were extracted. A series of random-effects meta-analyses were conducted. Subgroup analysis and meta-regression were performed to evaluate impact of intervention and care-giver characteristics. Publication bias and sensitivity analyses were examined. Results: Fourteen studies comparing CBT to active or passive comparators for anxiety in informal dementia care-givers were identified. For both anxiety and depression significant “small” effect sizes, Hedge’s g=-0.15 and g=-0.21 respectively, were identified in favour of CBT over comparators combined. Effect sizes were generally reduced when studies deemed to be outliers were excluded. No significant treatment effects were found for anxiety or depression when CBT was compared to psychoeducation in isolation. Subgroup analysis for anxiety outcomes suggested that care-giver gender and relationship to care-receiver did not impact upon CBT intervention effectiveness. Interventions did not differ significantly according to delivery format; however, the magnitude of the effect was increased when studies without a relaxation component were excluded. Subgroup analyses were limited by lack of clear reporting within studies and therefore should be treated as preliminary. Conclusions: There is a primary need to better understand whether dementia care-givers want help for anxiety and if they do then there is a need to establish what factors are driving their anxiety, specifically whether these factors lend themselves to the CBT model. If the answer is yes to both these questions then further methodologically rigorous clinical trials exploring the effectiveness of CBT for anxiety in informal dementia care-givers are warranted. In particular there is a need for trials employing CBT interventions specifically designed to target anxiety, with theoretically linked and well-defined primary outcomes, with attention given to baseline anxiety symptomatology.
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Ullah, Abu Naser Zafar. "Public-private partnership for tuberculosis care : A model for Bangladesh." Thesis, University of Leeds, 2010. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.530815.
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Munene, Grace N. "An Assessment of a Hospice and Palliative Care Partnership Program." Thesis, University of North Texas, 2014. https://digital.library.unt.edu/ark:/67531/metadc699969/.
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This project attempts to describe how a hospice and palliative care partnership program works. Through the assessment of one such program, the researcher sought to find out the essential components of the partnership including how the two partner organizations interact and work together. Data was collected using various methods: document review of organization documents such as newsletters, annual or quarterly reports, brochures and other available literature e.g. materials on organizations’ website and on social media; in-depth interviews with stakeholders of both organizations that included staff and board members; observation of staff working; and participant observation during organization events. The findings of the research shows that in order for organizations to have an effective partnership program in place, both partners need to have strong leadership in place, possess a willingness to learn from each other, maintain regular communication, and visit each other regularly. With this in place, several outcomes of the program are likely such as: increasing advocacy for hospice and palliative care, increasing visibility of the organizations both nationally and internationally, and provides an opportunity for organizations to network with other organizations in their locality in order to achieve partnership objectives. The study further reveals that global collaborations in the field of hospice and palliative care began with the advent of the international hospice movement. The assessment of this hospice partnership demonstrates how organizations can establish working relationships and the results likely to come out of such an initiative.
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Bramble, Marguerite Dorothy. "Promoting Family Involvement in Residential Dementia Care: An Education Intervention." Thesis, Griffith University, 2009. http://hdl.handle.net/10072/368110.
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There has been very little empirical research in Australia that examines the role of the family caregiver of the person with dementia in residential care. Nevertheless, both in Australia and overseas, researchers and clinicians recognise that there are benefits for staff, families and their relative with dementia from increased family accessibility, involvement and engagement as clients in care. Client partnerships are defined as dynamic, therapeutic relationships with health professionals that require articulation of common care goals, the exchange of knowledge and clarification of care roles. In the later stages of the dementia syndrome as the person with dementia experiences profound, deteriorating cognitive effects, the focus inevitably shifts to family caregivers to fulfil the surrogate role in providing information about their relatives’ individual care needs. The aim of this thesis is to explore family involvement as partners with staff in the care of their relative with dementia in residential care. This was achieved by implementing and evaluating a family-staff partnership model of care based on negotiation of therapeutic activities for the person with dementia. The study is a partial replication of an intervention conducted in United States of America (US) with successful care outcomes. The Family Involvement in Care (FIC) education intervention and partnership model has evolved from research over the period of two decades, led by Meridean Maas. Her research demonstrated that, through education and contractual partnership, caregiving arrangements between family and staff not only improved care for the person with dementia, but also resulted in more harmonious and productive partnerships which benefit all.Thesis (PhD Doctorate)
Doctor of Philosophy (PhD)
School of Nursing and Midwifery
Griffith Health
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Zeeman, Celeste. "Exploring the barriers and facilitators of access to care as experienced by caregivers of children who were admitted to a specialised tuberculosis hospital." University of the Western Cape, 2020. http://hdl.handle.net/11394/7269.
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Master of Public Health - MPHTuberculosis (TB) continues to be a major cause of ill health and the leading cause of death from a single infectious agent worldwide. Furthermore, young children, especially those under five years old and infants, are at risk of developing more severe forms of TB. TB cases continue to cluster among disadvantaged groups such as the poor whose lives are characterised by adverse living conditions. Defaulting from treatment poses a severe threat to children’s health because untreated TB or breaks in treatment could lead to a child developing more severe forms of TB, or worse, could result in mortality. Currently, long-term hospitalisation has the most successful TB treatment outcomes. Therefore, to ensure compliance, children are taken out of their social environment and admitted to hospital. However, being separated from one’s family, especially at a crucial stage of development, could have long-terms effects on the child’s development. The study explored, factors influencing access to care that caregivers of children; who are five years and younger, who received prolonged treatment at a specialised TB hospital in the Western Cape, South Africa experienced. A qualitative approach allowed the researcher to use personal interactions as a focus for studies and was suitable when aiming to understand health behaviour in its everyday context as experienced by the participant. The study results indicated the factors that enable caregiver visitation, is largely dependent on availability of finances. Furthermore, the hospital itself was identified as being accommodating with regards to visiting hours, telephonic calls and served as important mediator between health service provider, the children, their caregivers and the rest of the staff. Visitation depended on availability of finances, and this was the main barrier that was identified by caregivers. The challenges that hampered visitation were unemployment, lack of access to private and public transport and challenges related to farm-workers. A large number of caregivers work on farms in the Cape Winelands and many of them are dependent on seasonal work which results in inconsistent income. This limited availability of finances for visitation. Furthermore, the working conditions, long shifts and lack of employment benefits which were associated with farming, prevented caregivers from visiting. This study revealed that there are a series of factors which influence access to care of caregivers; this is especially the case in children hospitalised for TB. These factors need to be considered by policy makers as well as the Specialised Tuberculosis facility when dealing with children under five as the best way to ensure that treatment is completed through hospitalisation. Therefore, the strategies to assist families of children with TB need to be explored to assist in the continuity of care as well as the child’s development.
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Ancient, Claire. "Delivering positive reminiscence through a ubiquitous device application designed for people living with dementia and their care-givers." Thesis, University of Portsmouth, 2016. https://researchportal.port.ac.uk/portal/en/theses/delivering-positive-reminiscence-through-a-ubiquitous-device-application-designed-for-people-living-with-dementia-and-their-caregivers(9ba79cf2-c29f-4743-a9b7-331e4e3ffb5c).html.
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Dementia is a progressive condition which is synonymous with cognitive decline. In the UK, it is estimated that the number of people living with the condition is 800,000, a figure which is anticipated to rise above 1 million people before 2021. Symptoms of dementia include short-term memory loss, communication problems and difficulties with reasoning. In addition to these symptoms, many people living with dementia experience neuropsychiatric symptoms, including depression and apathy. Positive reminiscence is a non-pharmacological intervention which has the potential to improve the happiness of people living with dementia. Reminiscence utilises prompts, such as music and photographs, to evoke the long-term memories of the person with dementia, a capacity which is the last to be affected by the condition. Generally, reminiscence uses generic prompts, however, there is research suggesting that personalised memories lead to greater engagement in the activity. This research uses a mixed methods approach to develop a theory-based reminiscence program which can be implemented on a tablet computer and evaluate the potential for it to be accepted by people living with dementia and their care-givers. An initial study within this project found that personalised memories which use photographs, stories and music as stimuli are effective at evoking positive emotions in people over the age of 50. The research then develops a set of guidelines which can be used to design technology interaction to ensure that it is dementia friendly. Further research used these two areas of theory which have been developed to design and implement an application to facilitate the reminiscence program. The acceptance this application is then qualitatively assessed using people living with dementia and their informal care-givers. Results suggest there is the potential for the tablet application to be accepted by the target user group. This thesis makes a number of contributions to knowledge including the most effective types of stimuli and memories to evoke positive emotions, guidelines for dementia friendly technology interaction, and the potential for the theory-based reminiscence program implemented on a tablet computer to be accepted by people living with dementia and their care-givers.
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Thompson, Susan. "Givers gain : a phenomenologically grounded exploration of reciprocity in the lives of older people dependent on formal care." Thesis, University of Liverpool, 2011. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.569662.
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In this phenomenologically grounded study I draw on PCS analysis (Thompson, 2011a) to explore the relationship between how individuals make sense of their experience of reciprocity while in receipt of formal eldercare delivery, prevailing discourses about old age and dependency, and the significance attached to age as a social division. In addition to applying the PCS framework in an innovative way, I propose a further innovative analytical framework to highlight that meaning making around reciprocity is informed by the significance of space, time, discourse and institutionalised patterns of power. Findings that emerged from the narratives of elders in the UK and India reflect that, while older people dependent on formal care may desire opportunities to give as well as receive, opportunities for giving tend not to be facilitated, and the dimension of future aspiration tends to be neglected. In exploring the sociological and phenomenological implications of the findings, and raising the profile of reciprocity in the theorising of eldercare, I highlight their positive potential to contribute to a better understanding of the spiritual well-being of individuals dependent on formal care and to provide a challenge to deficit models in the theorising of dependency in old age by emphasising a future orientation.
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Vasey, Jackie. "Tokenism or true partnership : parental involvement in a child's acute pain care." Thesis, University of Huddersfield, 2015. http://eprints.hud.ac.uk/id/eprint/26181/.
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Background: Despite the growing evidence about acute pain management in children and the availability of practice guidelines, children still experience unnecessary pain when in hospital. Involving parents in their child’s pain care has been identified as being central to the pain management in children. However, little is known about how parents and nurses work in partnership in acute children’s wards to care for the child experiencing pain. This thesis explored the experiences and perceptions of parents and nurses and the extent to which parents are involved and partners in the child’s pain care, and the factors that influence parental involvement in care. The family-centred care practice continuum was the theoretical framework that underpinned the study. Methods: A qualitative ethnographical study using non-participant observation and follow up interviews was undertaken. Fourteen nurses and 44 parents/grandparents participated, recruited from the children’s wards of two district general hospitals. The framework approach underpinned data analysis. Findings: While some evidence of parental involvement was identified, the study revealed variations in the way parents are involved in their child’s pain care. A range of challenges were highlighted in relation to the implementation of family-centred care as an approach to promote parental involvement in care. Parents wanted to be more involved in their child’s pain care, and act as an advocate for their child, particularly when they perceived their child’s pain care to be sub-optimal. At times nurses created barriers to parental involvement in pain care, for example, by not communicating effectively with parents and planning pain care without involving parents. The ‘Pillars of Partnership in Pain Care Model’ is offered as an alternative approach to engaging with parents, to address the barriers to involvement and assist nurses shift from a paternalistic approach to involvement to one of working collaboratively with parents in the context of the care of child in pain. Conclusions and implications for practice: Parental involvement in their child’s acute pain care can improve the child’s pain experience, increase parents’ satisfaction in care and reduce parental anxiety. The challenge for nurses is to embrace parental contribution to care and develop the confidence to support parents to advocate for their child.
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Heinrich, Stephanie, and Hermann-Josef Gertz. "German adaptation of the Resources for Enhancing Alzheimer’s Caregiver Health II." Universitätsbibliothek Leipzig, 2014. http://nbn-resolving.de/urn:nbn:de:bsz:15-qucosa-137169.
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Brown, Melissa. "Assessment of nutritional knowledge, behaviour and BMI of Primary Care-Givers with children under the age of 18 years." Thesis, University of the Western Cape, 2011. http://etd.uwc.ac.za/index.php?module=etd&action=viewtitle&id=gen8Srv25Nme4_8415_1366189949.
Full textAbstract:
Research suggests that parents&rsquo
feeding practices play a critical role in the development of children&rsquo
s tastes, eating habits, nutrition and eventual weight status. Thus if parental feeding practices play such a critical role, the question arises as to whether there is a difference in parental feeding practices that determine different developments in children&rsquo
s nutritional habits. Furthermore, feeding practices are possibly based on the nutritional knowledge of parents. The aim of this study was to assess the Body Mass Index (BMI), nutritional knowledge and behaviour of primary care-givers. This study followed the quantitative research paradigm. A sample of 147 staff members, who were primary care- givers of children at a University in the Western Cape was self-selected to participate in the study. Only primary care-givers of children were invited to participate. The primary care-givers were asked to complete two online questionnaires, the Comprehensive Child Feeding Questionnaire (CFPQ) developed by Musher-E-Eisenman and Holub (2007), and the General Nutritional Knowledge Questionnaire (GNKQ) for adults. Data analysis was done by means of the Statistical Package for Social Sciences (SPSS17). Results indicated that the majority of participants were overweight (46% of the participants). Primary care-givers across all body mass index groups did not lack nutritional knowledge but variations in behaviour were found with regard to feeding practices. However similarities were found in the BMI categories in the areas of teaching about nutrition, pressure to eat at meal times
and encouraging balance and variety.
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Tshikongo, Aktofel Ndetshipanda. "To investigate factors preventing the care-givers from accessing the social grants and other benefits entitled to the orphans and vulnerable children (OVC) under their care." Thesis, Stellenbosch : Stellenbosch University, 2013. http://hdl.handle.net/10019.1/79963.
Full textAbstract:
Thesis (MPhil)-- Stellenbosch University, 2013.ENGLISH ABSTRACT: One of the consequences of HIV/AIDS is the large number of orphans and vulnerable children (OVC). Most OVC care givers in African communities are elders. The elders use their meagre pension hand out to support their OVC grandchildren. The Ministry of Gender Equality and Child Well Fare (MGECW) has responded to the financial burden of the OVC care-givers by issuing different social grants to the OVC. Due to preventing factors not all OVC are receiving these grants. The Namibian Government has formulated different policies protecting the rights of OVC. However, not all stakeholders are implementing these policies which lead to the OVC`s rights being compromised. This study was conducted in Omusati Region in Namibia to determine the factors that prevent some of the OVC care-givers from accessing the social grants and other benefits entitled to the OVC under their care. Data for this study have been obtained from four sources, using four different data collection methods. In depth interview have been used to collect data from twelve Community Childcare Workers (CCW) in the (MGECW) administering the OVC`s grants applications at twelve Constituencies. Some information was obtained using structured questionnaire from twenty four teachers dealing with OVC at twelve schools in twelve Constituencies. The officials from the Ministry of Home Affairs and Immigration (MHAI) have been engaged in focus group discussion to provide valuable information to this study. Literature has also been reviewed to shed more light on the subject under investigation. This study discovered that there are various impediments preventing the care-givers from obtain the OVC social grants. Lack of documents, transport costs and long distances coupled with cumbersome process of processing grants applications and issuing national documents are among the preventing factors. This project has been concluded with recommendations which if implemented will smoothen the process of grants accessibility.
AFRIKAANSE OPSOMMING: Een van die gevolge van MIV/Vigs is die groot aantal weeskinders en kwesbare kinders (OVC). OVC sorg gewers in Afrika-gemeenskappe is die ouderlinge. Die oudstes gebruik hul karige pensioen hand uit hul OVC kleinkinders te ondersteun. Die Ministerie van Geslagsgelykheid en Kinderwelsyn Wel Fare (MGECW) het gereageer op die finansiële las van die OVC versorgers deur die uitreiking van verskillende maatskaplike toelaes aan die OVC. As gevolg van die voorkoming van faktore nie alle OVC hierdie toekennings ontvang. Die Namibiese regering het verskillende beleide wat die beskerming van die regte van die OVC geformuleer. Egter nie alle belanghebbendes die implementering van hierdie beleid wat lei tot die OVC se regte word gekompromitteer. Hierdie studie is uitgevoer in die Omusati-streek in Namibië om die faktore wat verhoed dat sommige van die OVC versorgers van toegang tot die maatskaplike toelaes en ander voordele geregtig op die OVC onder hul sorg te bepaal. Data vir hierdie studie is verkry uit vier bronne, deur gebruik te maak van vier verskillende data-insamelingsmetodes. In diepte onderhoud is gebruik om data van twaalf Gemeenskap Kindersorg Werkers (CCW) te versamel in die (MGECW) die administrasie van die OVC se toelaes aansoeke op twaalf Kiesafdelings. Sommige inligting is verkry met behulp van gestruktureerde vraelys uit 24 onderwysers die hantering van OVC by twaalf skole in twaalf Kiesafdelings. Die amptenare van die Ministerie van Binnelandse Sake en Immigrasie (MHAI) is besig met die fokusgroepbespreking om waardevolle inligting te verskaf aan hierdie studie. Literatuur is ook hersien om meer lig te werp op die onderwerp wat ondersoek word. Hierdie studie het ontdek dat daar verskeie struikelblokke wat verhoed dat die versorgers van die OVC maatskaplike toelaes te verkry. Gebrek van dokumente, vervoerkoste en lang afstande, tesame met 'n omslagtige proses van die verwerking van toelaes aansoeke en die uitreiking van nasionale dokumente is onder die voorkoming van faktore. Hierdie projek is afgesluit met aanbevelings wat, indien dit geïmplementeer word, die toegang to toelaes sal verbeter.
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Shidhika, Fenny Fiindje. "The South-South partnership to provide cardiac surgery: The Namibian Children Heart Project." Master's thesis, University of Cape Town, 2018. http://hdl.handle.net/11427/29683.
Full textAbstract:
Introduction: Congenital and acquired heart diseases are highly prevalent in developing countries despite limited specialised care. Namibia established a paediatric cardiac service in 2009 with significant human resource and infrastructural constraints. Therefore, patients are referred for cardiac interventions to South Africa. Objectives: To describe the diagnoses, clinical characteristics, interventions, post-operative morbidity and mortality and follow-up of patients referred for care. Methods: Demographics, diagnoses, interventions, intra- and postoperative morbidity and mortality as well as longitudinal follow-up data of all patients referred to South Africa were recorded and analysed. Results: The total cohort constituted 193 patients of which 179 (93%) had congenital and 7% acquired heart disease. The majority of patients (78.8%) travelled more than 400 km to Windhoek prior to transfer. There were 28 percutaneous interventions. Palliative and definitive surgery was performed in 27 and 129 patients respectively. Eighty (80/156, 51.3%) patients had postoperative complications, of which 15 (9.6%) were a direct complication of surgery. Surgical mortality was 8/156 (5.1%, 95% confidence interval 1.2.2-9.8), with a 30- day mortality of 3.2%. Prolonged ICU stay was associated with a 5% increased risk of death (Hazard Ratio 1.05, 95% confidence interval: 1.02-1.08, p=0.001). Follow-up was complete in 151 (78%) patients over seven years. Conclusions: Despite the challenges associated with a cardiac programme referring patients for intervention to a neighbouring country and the adverse characteristics of multiple lesions and complexity associated with late presentation, we report good surgical and interventional outcomes. Our goal remains to develop a comprehensive sustainable cardiac service in Namibia.
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Glyde, Jo, and n/a. "Beyond baby sitting : a study of after school care services in the ACT from the perspective of care providers." University of Canberra. Teacher Education, 1997. http://erl.canberra.edu.au./public/adt-AUC20060712.100543.
Full textAbstract:
The increased demand for Out of School Hours Care (OSHC) has been linked to changes
that have occurred in the family structure and work habits. OSHC programs operating
on school sites under the management of a committee of parents and school
representatives provide parents with one option to meet the needs for care of primary age
children.
This study examined the issue of OSHC from the perspectives of workers involved in the
provision of services in government school sites in the ACT. Data were gathered by way
of semi-structured interviews with nineteen coordinators from sixteen After School Care
(ASC) centres. The data were analysed to find similarities in the experiences of workers
interviewed. Extracts from the interviews are presented in the findings to illustrate the
perceptions care givers have about their work and areas where changes can be made to
improve the quality of ASC services.
The study provides information on the factors affecting the provision of quality services
and suggests possible directions for future planning and research in this area. The
findings indicate that the care givers interviewed perceived their role as a positive
influence in the lives of children and families. Care givers sought to provide relaxed
environments for children after the school day. Many centres operated with the strong
support of parents, schools and management committees. The findings suggest that ASC
centres can and do operate successfully on school sites in the ACT and that care givers
were generally happy with the level of service provided. However, variability in the
facilities and support provided to centres was noted.
The study concludes that real improvement to the quality of programs and support of
workers is dependent on the introduction of nationally recognised standards in the
provision of ASC.
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Duma, Vivian V. "Exploration of the coping strategies of parents/care-givers in the management of health and rehabilitation problems of their disabled children." Thesis, Stellenbosch : Stellenbosch University, 2012. http://hdl.handle.net/10019.1/20414.
Full textAbstract:
Thesis (MPhil(Rehabilitation))--Stellenbosch University, 2012.ENGLISH ABSTRACT: This is a descriptive, phenomenological, qualitative study which explores the experiences of and coping strategies employed by the parents/caregivers of disabled children in the management of their care, including rehabilitation and schooling. The study was conducted in the rural communities of the Eastern Cape outside Mthatha, where parents/caregivers of disabled children have historically had challenges finding suitable schooling for their intellectually impaired children. In 1999, Happy Home community rehabilitation centre for disabled children was established by Mrs. V.V. Duma, a parent of a disabled child. Study participants comprised of parents or care-givers of the disabled children residing at Happy Home. A total of 37 participants took part in the study, comprising of six focus group discussions of six parents/caregivers per group, and one individual interview. Study findings revealed that parents/caregivers used a variety of coping strategies to manage the care of their disabled children. Both positive and negative coping strategies were used. Negative coping strategies included abandoning the child, which was justified by, for instance, belief that the child had been bewitched by in-laws, or on the pretext that the mother's HIV positive status had been caused by the father, leading to the mother abandoning the child. In cases where both parents had abandoned the baby, or the death of a parent occurred, a caregiver, often a relative, would take responsibility for the child. Positive strategies can be characterized as willingness by parents/caregivers to do whatever it takes to help the children to survive and access better opportunities. The caregivers/parents who adopted positive coping strategies were mainly from Christian backgrounds and consequently believed that a disabled child is God‟s gift. These parents/caregivers seek assistance from a number of different sources to help the disabled child, including from faith healers, traditional healers, and western medical treatments. Cultural influences on the reactions of parents, extended family and the wider community as revealed in the study show that disability is seen in negative terms and that the abuse of women, including while pregnant, is supported as a cultural norm. It was found that stress, abuse, and poverty during pregnancy were perceived by parents to be some of the causes of disability in new born babies. Parents/caregivers experienced barriers to health and rehabilitation including; long distances to health and rehabilitation centres with prohibitive transport costs. It appeared that health care providers did not communicate about children‟s conditions or would not treat sick disabled children. There were also data that indicated that there were some health care providers who were helpful and that parents/caregivers used other resources such as radio programmes to educate them about disability. The study sought to understand the challenges that disabled children and their parents/caregivers experienced. The results of the study indicate that workshops with the health professionals to change their attitudes, and enhance their understanding of disability should be conducted. In addition, community awareness and education campaigns about causes, and signs and symptoms of disabilities; and the issue of cultural norms that impact on the abuse of women and negative attitudes towards disabled children need to be conducted among the communities from which the study participants originate. Furthermore, the study recommends that the Health Science curriculum include a generic module on disability studies to be completed by all health science students, to ensure that as health practitioners such as therapists and nurses, they can be more effective in responding to the needs of disabled children.
AFRIKAANSE OPSOMMING: Die studie is ʼn beskrywende fenomenologiese navorsing, wat die ervaring van ouers/versorgers van gestremde kinders ondersoek; asook die strategiee wat deur hulle aangewent word om te help met die versorging, rehabilitasie en onderrig van gestremde kinders. Die studie het gebruik gemaak van kwalitatiewe data kolleksie metodes. Ouers/versorgers van gestremde kinders wat in Happy Home woon het aan die studie deelgeneem. Ses groepsbesprekings, met ses ouers in elke groep, sowel as individuele onderhoude met elke deelnemer was uitgevoer. In totaal was daar 37 deelnemers in die studie. Die studie was uitgevoer in die plattelandse gemeenskappe buite Mthatha, in die Oos Kaap. Ouers/versorgers van intelektueel gestremde kinders het probleme ondervind om geskikte onderwys te vind vir hulle kinders in hierdie area. Happy Home, `n gemeenskapsrehabilitasie sentrum vir gestremde kinders, is in 1999 deur Mev J.J.Duma, `n ouer van `n gestremde kind, gestig. Daar was bevind dat ouers/versorgers `n veskeidenheid hanterings meganismes, positief en negatief,gebruik om hulle gestremde kinders te versorg. Negatiewe stratigee soos om die kind te verlaat is ingesluit en is geregverdig deur, bevoorbeeld, die geloof dat die kind deur skoonouers betower was, of op die voorwendsel dat die moeder se HIV postief status, veroorsaak deur die vader, die oorsaak was dat die moeder gevolglik die kind verlaat het. In Ingevalle waar beide ouers die baba verlaat hetof waar `n ouer gesterf het, het `n versorger wat gewoonlik `n familielid was, verantwoordelikheid geneem vir die kind. Postiewe strategiee is kenmerkend van ouers/versorgers se gewilligheid om alles moontlik te doen, om die kinders te help om te oorleef en toegang te he tot beter geleenthede. Ouers/versorgers wie positiewe strategiee aangewent het was waarskynlik van Christelike agtergronde en het gevolglik geglo dat ʼn gestremde kind ʼn gesekenk van God is. Sulke ouers/versorgers soek bystand van ʼn verskydenheid hulpbronne, om die gestremde kind te help; insluitend die dienste van ʼn geloofsgeneser, tradisionele genesers, en westerse mediese behandelings. Die studie het gewys dat kulturele invloede op die reaksies van ouers, die familie en die wyer gemeenskap veroorsaak het dat gestremdheid in `n negatiewe lig gesien word en dat die mishandeling van vroue, insluitende swanger vroue, ondersteun word as `n kulturele norm. Daar was bevind dat spanning, mishandeling en armoede gesien word as oorsake van gestremdheid in pas gebore babas. Ouers/versorgers het struikelblokke teegekom met betrekking tot toegang tot gesondheids dienste en rehabilitasie. Dit het lang afstande na gesondheids- en rehabilitasie sentrums asook onbekostigbare vervoer uitgawes ingesluit. Dit het voorgekom asof gesondheidsorg voorsieners nie oor die kinders se toestande gekommunikeer het nie en nie siek gestremde kinders behandel het nie. Daar was data wat daarop gewys het dat sommige gesondheidsorg voorsieners behulpsaam was en dat ouers/versorgers ander hulpbronne soos radio programme gebruik het om hulself in te lig. Die studie het gepoog om die plattelandse konteks en die uitdagings wat gestremde kinders en hulle ouers/versorgers ondervind het te verstaan. Die studie resultate dui daarop dat werkswinkels met gesondheidsorg verskaffers gehou moet word om hulle begrip van gestremdheid te verbeter om sodoende hulle houding teenoor gestremdhied te verander. Daarbenewens moet opleidings en inligtings veldtogte oor die oorsake, tekens en simptome van gestremdheid, oor die impak wat kulturele norme het op die mishandeling van vroue, en oor die negatiewe houdings teenoor gestremde kinders, in die gemeenskappe waarvandaan die studie deelnemers kom gehou word ʼn Verdere aanbeveling is dat die kurrikulum vir Gesondheids Wetenskappe ʼn algemene module oor gestremdheid studies insluit; om voltooi te word deur all studente wie Gesondheids Wetenskappe studeer; sodat terapeute en verpleegsters grooter kennis sal dra van die behoeftes van gestremde kinders.
30
Boxenbaum, Eva. "The partnership metaphor in Quebec health care policy : the decision-making process with cognitively impaired elderly clients in home care." Thesis, McGill University, 2001. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=33063.
Full textAbstract:
This research evaluates Quebec's health care policy by analyzing how the partnership metaphor is implemented in policy and practice. The partnership construction is identified in 4 interpretive communities within long-term community services to the elderly population. This analysis focuses on the placement decision for cognitively impaired clients in home care. Interpretive policy analysis is employed to examine 3 policy documents and 3 client files, while grounded theory serves to analyze 13 semi-structured interviews with 2 administrators and 3 open triads of client, caregiver, and case manager. The findings show partnership to be an egalitarian, collaborative ideal widely adopted but with little consensus on the pertinent objects and actors. Important differences emerge in how partnership is applied to the placement decision, indicating a too flexible application. Specific restrictions are recommended on the application of the partnership metaphor in order to improve community services and organizational structures in health care.
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Iyavoo, Ludmila. "An evaluation of the role of social workers : an attempt to improve partnership working between health care and social care." Thesis, University of Surrey, 2005. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.418179.
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Dunning, Debra. "Seamless service: Collaboration and partnership of a non-publicly funded child care organization located within a site with multiple publicly-funded agencies." The Ohio State University, 2004. http://rave.ohiolink.edu/etdc/view?acc_num=osu1095696710.
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Bífárìn, Oládayò O., Catherine Quinn, Liz Breen, C. Wu, M. Ke, L. Yu, and Jan R. Oyebode. "Stressors and coping mechanisms of family care-givers of older relatives living with long-term conditions in mainland China: A scoping review of the evidence." Cambridge University Press, 2021. http://hdl.handle.net/10454/18567.
Full textAbstract:
YesAs the ageing population in China continues to grow, more people will be living with long-term health conditions and require support from family care-givers. This scoping review therefore aims to explore sources of stress and coping mechanisms adopted by care-givers of older relatives living with long-term conditions in mainland China. Literature searches were conducted in English (CINAHL, EMBASE, MEDLINE, PsycINFO and SCOPUS) and Chinese (CNKI, WANFANG DATA, CQVIP and CBM) databases between October and November 2019. The searches focused on the stressors and coping mechanisms utilised by family care-givers residing in the community. Narrative synthesis was used to identify themes within the data. Forty-six papers were included: 20 papers from English and 26 from Chinese databases. Six themes captured stressors: care-giving time (N = 22), financial resources (N = 17), role and personal strains (N = 42), preparedness (N = 4), social roles (N = 10) and lack of adequate formal support (N = 22); and one theme captured coping (N = 14). Unmet needs of care-givers of older relatives in mainland China were found to be extensive. Only a few studies had attempted to explore the causal link between stressors, coping and the influence of culture. Findings underscore the significance of adequately capturing intricacies around care-givers’ unmet needs, rather than generalising on the basis of culture. Qualitative studies are critical to providing a better understanding of the relationship between stressors, coping and resources afforded to care-givers by their cultural environment. Having such understanding is crucial to inform the development of competent care, which promotes self-efficacy and self-actualisation in care-givers in mainland China.
This work was supported by Research England: Quality Related Global Challenge Research Fund (QR-GCRF).
34
Grobler, Hermanus Bosman. "An exploration of the psychosocial experiences of coloured grandmothers in Groenheuwel who are the primary care givers of their grandchildren / Grobler, H.B." Thesis, North-West University, 2011. http://hdl.handle.net/10394/7005.
Full textAbstract:
In various South African communities older people play a key role in looking after their children,
grandchildren and unrelated children. For the purpose of this study, 50 years was considered the start of
old age as motivated by the World Health Organization. However, most women who partook in the study
were older than 60. The western family structure in communities has been transformed due to major
social changes that include modifications to the structures of households and often lead to grandmothers
taking over the role of primary caregivers of children. All the participants were grandmothers residing in
Groenheuwel who were primarily responsible for their grandchildren. These grandmothers act as primary
caregivers because the parents of their grandchildren are deceased, have abandoned their children or lack
financial resources to care for their own children. This article focuses on the psychosocial experiences of
these coloured grandmothers who care for their grandchildren. A qualitative research design was used
together with a purposive and snowball sampling method whereby 12 coloured grandmothers in the
Groenheuwel community in Paarl, South Africa were selected. A reflective group discussion was held
during which the Mmogo–methodTM was applied. The meanings of the visual representations were used
as textual data. Both the textual and the visual data obtained by means of a video camera, were analyzed
through thematic analysis. Data collection occurred at a community centre close to Groenheuwel. In this
study crystallization enhanced trustworthiness by using multiple methods of data collection and analysis.
The researcher constructed three main themes from the findings: challenges associated with caring for
grandchildren, coping with challenges associated with caring for grandchildren and intergenerational
relationships. The results showed that grandmothers experienced feelings of ambivalence regarding
caring for their grandchildren. On the one hand they experience difficulty with disciplining their
grandchildren, tiredness due to caring for their grandchildren and a lack of resources. On the other hand
they find immense support in their existential relationship with God and their community. This
ambivalence seems to be embedded in the nostalgia that dictates the nature of the intergenerational
vi
relationships between themselves and their grandchildren. However, notwithstanding the ambivalence the
grandmothers strongly believe that caring for their grandchildren is a responsibility that has been given to
them by God and therefore He will provide in their needs.Thesis (M.A. (Research Psychology))--North-West University, Potchefstroom Campus, 2012.
35
Eilbert, Kay Wylie. "A Community Health Partnership Model: Using Organizational Theory to Strengthen Collaborative Public Health Practice." Diss., Health Services Management and Leadership, George Washington University, 2003. http://hdl.handle.net/1961/123.
Full textAbstract:
Degree awarded (2003): DPhPH, Health Services Management and Leadership, George Washington UniversityAbstract Community partnerships are an increasingly popular strategy for improving community health. This popularity is based less on evidence than on rhetoric. This research developed and tested a systems model of partnership to improve the practice of collaboration in public health. Basing the need for partnerships on the multi-sectoral nature of health, the model used open systems theory to set out requirements for partnership. Institutional theory suggested that problems faced by partnerships may result from partners meeting requirements for legitimacy. Change is, therefore, required, both in organizations and in their institutional environment. Using exploratory case studies, the study design involved site visits to two community health partnerships (West Virginia Community Voices and Healthy New Orleans). Mixed qualitative methods included semi-structured interviews, focus groups, and document review. Analysis involved interpreting informants responses in terms of evidence representing the model and for new elements. Evidence from practice suggested several revisions to the model. One involved applying a typology of organizational affiliation, with partnership toward one end of the continuum. Use of this typology permitted an extension of the model to understand the form of affiliation practiced by Community Voices and of Healthy New Orleans. Multiple opportunities to network and build coalitions in Community Voices led to increased chances of success in achieving health improvement goals. Networking opportunities for individual volunteers led to an informal Healthy New Orleans organization. Results of this research led to an analytic fit between the two sites and the community health partnership model. Recommendations are offered for practice, research, and for funding agencies. With further research, the model can be used to develop practical tools to guide and assess partnerships as a strategy to improve health, as well as to identify environmental barriers to partnership and strategies for change.
Advisory Committee: Kathleen Maloy JD PhD (Chair), Vincent Lafronza ScD, Chris Johnson EdD
36
Weinehall, Lars. "Partnership for health : on the role of primary health care in a community intervention programme." Doctoral thesis, Umeå universitet, Epidemiologi och folkhälsovetenskap, 1997. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-7534.
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Cameron, Robert J. "Parents, professionals and preschool children with special needs : towards a partnership model of problem solving." Thesis, University of Southampton, 1989. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.306178.
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Chimange, Mizeck. "Implementation of the Zimbabwe National Orphan Care Policy: implications of partnership between government and civil society." Thesis, University of Fort Hare, 2012. http://hdl.handle.net/10353/d1007188.
Full textAbstract:
The study focused on the exploration of the implication of partnership between the government and civil society organizations in the implementation of the Zimbabwe National Orphan Care Policy (ZNOCP). The study was carried out in Masvingo District in Zimbabwe to explore on the feasibility of inter-organizational interaction in policy implementation and how it affects the service delivery system. The study incorporated government departments, civil society organizations and ward councillors who stood as the custodians of the people. The study was intended on unveiling the different contextual aspects that exist between government departments and civil-society organizations (CSOs) as individual and separate entities and how the compromising of their values would affect the partnership. Looking at the hierarchical and bureaucratic features of government institutions, the study also intended to understand how this could be concealed and compromised with CSOs‟ open agendas in public policy implementation to ensure effective service delivery to the people. The 5C protocol, critical variables in policy implementation which are policy content, context, capacity, commitment of those entrusted with the implementation process and also clients and coalitions were used as the yardsticks. These variables acted as a yardstick on which to analyze the partnership between the Zimbabwean government and the civil society in the implementation of the Z.N.O.C.P, their different attitudes, bureaucratic settings, organizational culture, values, norms, and how their readjustments or failure affect the service delivery system. It also became imperative to look at the government legislations that govern the CSO space of operation and financial aspects to understand the implications of partnership between government and civil society. An understanding of these aspects leads to an increased understanding of the feasibility of state-CSO partnerships and its implications on policy implementation.
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Mazikwana, Thuliswa Julia. "Care givers' perceptions about the purpose, uses and adequacies of the child support grant in Mfuleni Western Cape, South Africa: Implications for social policy." University of Western Cape, 2020. http://hdl.handle.net/11394/7821.
Full textAbstract:
Masters of CommerceThis study investigates caregiver’s perceptions of the purposes, uses and adequacies of the Child Support Grant (CSG) in Mfuleni (Cape Town, South Africa). Moreover, the research was underpinned by the following research questions: What is the CSG intended for in South Africa? To what extent does the CSG enable caregivers to use it? What is the perception of caregivers with regards to the uses and purposes of the CSG in Mfuleni? What is the perception of caregivers regarding their power and agency to influence policy in terms of how the CSG should be structured (both in terms of benefit level and how it is administered)? A model by DFID (2011) focusing on the causal pathway for cash transfers was used as the conceptual framework for the study. Qualitative research methods were utilized to achieve the aims of the study. Ten interviews and a focus group discussion comprising six caregivers were conducted. Thematic analysis was used to analyse the data. The study revealed that caregivers understood the CSG is proposed for children, households and being a source of income for caregivers. Caregivers also revealed the CSG was utilized towards the basic needs of children. Through the CSG many caregivers had agency and power in their household and could establish small businesses.
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Adkison, Lesley Ellen. "Establishing Ties: Descriptions of Meaningful Interactions with Health Care Providers from the Perspectives of Family Caregivers of Persons Diagnosed with Moderate to Advanced Dementia." Thesis, Boston College, 2014. http://hdl.handle.net/2345/3788.
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Thesis advisor: Ellen K. MahoneyPurpose: The purpose of this study was to describe meaningful interactions with health care providers (HCPs) from the perspectives of family caregivers of persons with dementia (PWD). A secondary purpose was to understand ways in which family caregivers obtained needed information for managing uncertainty associated with providing care for a PWD. Background: Family members of PWD often assume the caregiver role, but lack preparation for the psychological and practical ramifications of caring for someone with a progressive, terminal illness (Alzheimer's Association, 2011a). Lack of preparedness for caregiving impacts well-being and quality of life throughout the caregiving experience (Lilly, Robinson, Holzman and Bottorff, 2012). Meaningful interactions with HCPs have the potential to improve preparedness and alleviate suffering of caregivers, promote caregiver well-being and positively impact treatment provided to PWD. Methods: Qualitative description was used to obtain rich, straightforward descriptions from perspectives of participants. Congruent with this approach, findings were reported with minimal inference. Results: Positive meaningful interactions with HCPs included interactive dialogue, partnering between HCPs and caregivers, and a sense of being known as individuals with unique needs. Negative meaningful interactions were characterized as lacking one or more of those components. Participants used multiple strategies to obtain information and manage uncertainty associated with caregiving. Efforts to obtain care for PWD were often complicated by challenges of a health care system that was not designed to meet the needs of PWD. Conclusions: HCPs have opportunities to improve interactions, provide support and increase preparedness for family members providing care for PWD. HCP: caregiver partnerships can improve care for PWD and mitigate stressors inherent in the caregiving role. Corrective experiences may change caregivers' perceptions and provide opportunities for HCPs to intervene, engage and partner with health care consumers. Nurses are particularly well-suited to taking a leadership role in fostering partnerships and helping to design a dementia-ready system to meet the needs of PWD and those who care for them
Thesis (PhD) — Boston College, 2014
Submitted to: Boston College. Connell School of Nursing
Discipline: Nursing
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Kim, Jung-Eun. "The Impact Of Child Care Center Partnerships with Head Start Agencies on Parents' Satisfaction with Child Care and Early Education." Case Western Reserve University School of Graduate Studies / OhioLINK, 2012. http://rave.ohiolink.edu/etdc/view?acc_num=case1333497812.
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Sharland, Elaine Ruth. "Protection, partnership and the promotion of welfare : the experience of professional intervention in child sexual abuse referrals." Thesis, University of Southampton, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.310561.
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Prendergast, Lynn. "Organisational culture, secondment and social care : an exploration of a partnership organisation in the East of England." Thesis, University of Essex, 2011. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.542366.
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Jumah, Anne Mukeli. "The nature and extent of palliative care in the Nairobi Hospice." Diss., Pretoria : [s.n.], 2008. http://upetd.up.ac.za/thesis/available/etd-11202008-163831.
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Larsson, Josefin, and Sandra Qvarforth. "Upplevelser av mötet med vårdpersonalen efter våld i nära relation : en litteraturstudie ur patientperspektiv." Thesis, Röda Korsets Högskola, 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:rkh:diva-253.
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Bakgrund: Kvinnor som utsatts för våld i nära relationer är ett globalt folkhälsoproblem och strider mot de mänskliga rättigheterna. Konsekvenserna av våldet innebär ett liv i rädsla, skam och lidande. Detta leder ofta till att kvinnorna söker vård först vid akut skada. Vanligare är dock att söka vård för indirekta skador och följdsjukdomar vilket ofta leder till att vårdgivare missar att identifiera våldet. Syfte: Att beskriva kvinnor som utsatts för våld i nära relationer och deras upplevelse av mötet med vårdpersonal. Metod: Litteraturstudie baserad på 14 kvalitativa artiklar vilka granskades och fyra teman identifierades: Bemötande, Att bli sedd och hörd, Tillit och Skam. Resultat: Kvinnor som utsatts för relationsvåld upplevde vårdpersonal som stressad och oförstående. Vidare var avskild kommunikation en viktig del i mötet och kvinnorna önskade få frågan om våld i hemmet ställd. Mötet med vårdpersonal kunde även bidra till att förstärka upplevelsen av skam och skuld. Slutsats: Vårdpersonal bör uppmärksamma bemötandet av kvinnor och se bakom yttre symtom för att kunna identifiera relationsvåld. Frågan om våld måste ställas regelbundet och på ett respektfullt sätt. Det är nödvändigt att samtal sker avskilt från kvinnans man och omgivning. Information bör finnas tillgänglig i miljö där patienter vistas. Klinisk betydelse: Resultatet i denna studie visar att vårdpersonal med små medel kan förbättra mötet med kvinnor som utsatts för våld i nära relation. Ytterligare kunskap är nödvändig och specialiserad vårdpersonal bör finnas för att kunna tillgodose denna patientgrupps specifika omvårdnadsbehov. Nationella riktlinjer borde framarbetas och vårdprogram följas.Background: Women subjected to intimate partner violence is both a global health issue and a violation of basic human rights. The result of the violence is a life of fear, shame, and suffering. Consequently, these women do not seek healthcare until acute injuries occur. More common is to seek care for indirect injuries or associated illnesses, which frequently leads to a misdiagnosis of the violence. Aim: The aim of this study was to describe how women who have been subjected to domestic violence experience the interactions with their caregivers. Method: A literature review based on fourteen qualitative articles that have been closely studied and four main themes were identified: Interaction, To be seen and heard, Trust and Shame. Result: Women who have been subjected to domestic violence experienced care givers as stressed and lacking in understanding. Private conversation was an important part of the interaction and the women wished to be asked about domestic violence. However, the interaction with care givers could potentially enhance the feeling of shame and guilt. Conclusion: Care givers need to be perceptive in their interactions with the women in order to see beyond superficial symptoms and identify domestic violence. Questions about violence should be asked respectfully and on a regular basis. It is also essential that these questions are asked separately, not in the presence of the spouse or in public. Information should be available in patient environment. Clinical implication: The result of this study shows that care givers can improve their interaction with women subjected to domestic violence by small means. Further knowledge is necessary and specialized staff are required to provide for this group's specific care needs. National guidelines should be created and care programs should be followed.
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Boltena, Sisay Sinamo. "Effectiveness of a Complementary Feeding Promotion Program for Care givers of Infants Using Trained Agriculture Extension Workers in a Rural Area of Ethiopia: A Randomized Control Trial." University of the Western Cape, 2017. http://hdl.handle.net/11394/5895.
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Philosophiae Doctor - PhD (School of Public Health)Complementary feeding practices are often inadequate in developing countries resulting in a significant decline in the nutritional status in children between 6 and 24 months of age. In 2011, only 4% of mothers in Ethiopia who were breast feeding gave their children 6 to 23 months of age from four or more food groups daily (CSA 2011). Despite Agriculture Extension Workers (AEWs) involvement in livestock and crops production, they were not involved in improving complementary feeding for infants and young children. This study assessed the effectiveness of using AEWs in addition to existing Health Extension Workers (HEWs), to promote complementary feeding practices and improve infants' nutritional status in Wonchi Woreda, Oromia region of southwestern Ethiopia.
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Mooka, Dorethy. "Examining home-based care of chronically/terminally ill persons by family care givers and their interaction with professional health care providers." Thesis, 2004. http://hdl.handle.net/10500/10330.
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According to the Ministry of Health (1996:26), the most common
chronic/terminal illnesses were cardiovascular disorders, diabetes, cancer,
mental disorders, HIV/AIDS, tuberculosis and asthma. Long term treatment
and care and the growing incidence of these conditions necessitated the
introduction of home-based care (HBC). Consequently, family care givers play
a major role in the provision of care to chronically/terminally ill patients and
professional health care providers adopt a supervisory role.
This study examined the quality of home care services provided in Botswana.
The availability and accessibility of home-based care services and resources
have a direct bearing on the quality of home-based care delivery system. The
researcher used systems theory was used as the conceptual framework for this
study.
The study aimed to
• determine the accessibility and availability of home-based care services in
Molepolole East
• investigate what the perspectives and experiences of family care givers,
patients and professional health care providers of Botswana home-based
care are
• determine the roles of professionals health care providers, patients, and
family care givers and their relationships in the context of home- based
care • identify the needs of chronically/terminally ill patents and family care
givers
• determine the type of support given to family care givers and patients by
professional health care providers and make recommendations for the
improvement of home-based care
• develop a model to prepare family care givers
The research design combined quantitative and qualitative research methods.
A sample of convenience was used to obtain information from patients'
family care givers and professional health care providers. Interviews and
questionnaires were used.
A proposed care giving preparedness model is presented to meet needs of
the family care givers.
The study found that family care givers needs are neither known nor
catered for by the professional health care provider. The family care givers
were not adequately prepared before adopting the care-giving role.
It is recommended that
• The proposed preparedness care giving training model is considered for
training of patients and family care givers before discharge and during
HBC.
• Increase patients and family care givers decision-makingHealth Studies
D.Litt. et Phil. (Health Studies)
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Hsu, Yu-Cheng, and 許譽澄. "Work and Leisure of Indonesian Family Care-givers in Hualien." Thesis, 2010. http://ndltd.ncl.edu.tw/handle/13260631718927086596.
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碩士國立東華大學
高階經營管理碩士在職專班
98
Abstract Most foreign family care-givers in Taiwan are from Indonesia. A lack of concern exists in work and leisure for these Indonesian care-givers. This study examines both work and leisure for Indonesian family care-givers to benefit subsequent research. This study used the time-diary approach. A time-diary questionnaire was designed from the dual perspectives of “the researcher” and “the respondent”, to identify what kinds of work and leisure activities in which Indonesian family care-givers participate, the difference between discretionary time and leisure time, and the frequencies of committed, obligatory, and discretionary time activities. The research population comprised 40 Indonesian family care-givers via a foreign labor agency in Hualien City, Taiwan. In total, 280 valid questionnaires were obtained with 13,873 diary events in May, 2010. Analytical results demonstrated that Indonesian family care-givers can experience leisure during all committed, obligatory, and discretionary time activities. The degree of leisure experienced correlates with the degree of perceived freedom. The working hours for Indonesian family care-givers are very long; thus, suggestions are made about caring for the mental and physical health of Indonesian family care-givers.
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Stark, Marlies. "Attitudes of older persons, and their care-givers, towards human sexuality." Thesis, 1992. http://hdl.handle.net/10413/6218.
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The literature reviewed reveals changing attitudes towards
sexuality generally and towards sexuality and the elderly in
particular. These changes are ' .... represented by a shift
from religious organization of moral life to increasingly
secular regulation embodied in the emergence of new medical,
psychological and educational norms' (Weeks 1986,p.33).
However, it seems that these changes have not necessarily
affected provision of care for older persons in a positive
way.
This study focusses on attitudes of older women, housed in
traditional large residential units, and attitudes of
caregivers of the residents in such units, towards human
sexuality. Data was obtained by means of the administration
of the Sexual Attitude Scale (Hudson and Murphy, 1976) which
is a summated rating scale. The attitudes of subjects
toward self-determination in human sexuality in the context
of the aging person's life are specifically considered.
The major findings of the study were that residents
attitudes towards human sexuality were generally extremely
conservative. However, this clearly did not extend to a
belief that sex was only for the young.
Attitudes expressed by staff towards human sexuality were on
the whole liberal and they agreed that sex was not only for
the young. However, although caregivers support the idea
that sexuality in the later years is important in theory,
their actions do not bear this out.
The findings have implications for the prevailing
arrangements for caring in traditional large residential
care units with respect to house rules, and education in
human sexuality for residents, staff and relatives of the
elderly.Thesis (M.A.)-University of Natal, Durban, 1992.
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Chun, Ting Yu, and 丁友駿. "The related research of technology literacy and technology cognition for care-givers." Thesis, 2008. http://ndltd.ncl.edu.tw/handle/28458024770471197640.
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碩士國立高雄師範大學
工業科技教育學系
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ABSTRACT The main purpose of this study was to understand the state about technology literacy and technology cognition of care-givers.The researcher also discussed the correlation among demographic, technology literacy and technology cognition variables. A questionnaire survey was conducted to collect data including demographics, and the scales of technology literacy and technology cognition for care-givers. The subjects concerned were the care-givers in licensed public/private kindergartens, creches and cram schools in Kaohsiung City. A stratified random sampling method was used with 598 copies of valid samples were retrieved. The statistic analysis as applied included: Descriptive analysis, independent t-test, one-way ANOVA, Scheff 'e and Pearson Product-Moment Correlation analysis. The results were as follows： 1. The level of technology literacy for care-givers was above average, while the one concerning technology and social literacy appeared to be the highest. The basic concept of technology was poor. 2. The level of technology cognition for care-givers was above average, while the one regarding the transportation technology cognition appeared to be the highest. The manufacturing technology cognition was poor. 3. The age, working experience, education background of care-givers and those who also deal with administration works may show a significant difference in the aspect of technology literacy. 4. The age, working experience and education background of care-givers show a significant difference on technology cognition. 5. Care-givers with better technology literacy were also noticed to have better technology cognition