Academic literature on the topic 'Partnership of care givers/family'
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Journal articles on the topic "Partnership of care givers/family"
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Afzal Javed. "Developing partnership with patients and carers: A need of the time for mental health service delivery." Journal of the Pakistan Medical Association 74, no. 7 (June 28, 2024): 1217–18. http://dx.doi.org/10.47391/jpma.24-51.
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Contemporary practice of psychiatry is witnessing a radicle shift in the care of mentally ill. As compared to the 20th century, we are now moving towards community psychiatry and large mental hospitals and asylums are closing with a shift to manage these patients closer to their homes. Following these changes in mental health care, current literature provides growing evidence for developing partnership with patients, carers and family members in the delivery of mental health services. While this approach is appreciated for improving the quality of life of patients, there has also been some concerns about increasing burden of carers and families when they have limited resources and support to face the challenges in dealing with the management of their patients.1 Treatment and management of mental health problems are complex and needs a wider recognition for having patients and care-givers involvement in the treatment processes. Patients with mental health problems unfortunately suffer from a wide range of psychosocial adversities and require engagement leading to more empowerment in decision making processes. Furthermore, quality of health services can be measured by the experiences of patients and their families. Their viewpoints can reflect their happiness as well as the effectiveness of the services that could be based on their knowledge and understanding of their role in the treatment processes. However, in many societies, the nature and role of families are either undermined or not fully understood.2 Families may be considered as a cause for the onset of mental health issues and can be blamed for causing or triggering the illnesses. Similarly, the clinicians are given the full authority to decide about the treatment choices and preferred possibilities. Their role may be acknowledged as “the ultimate expert” who can decide in a final way and patients or families may have limited opinions in such decisions. Professionals may also consider confidentiality issues as a primary reason for not sharing information and taking relatives or family members on board, so they are frequently excluded from the decision-making processes. Apart from confidentiality reasons, clinicians may not have sufficient training and skills to deal with families and patients in terms of supporting and dealing with their concerns.3 Continued...
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Sloan, Danetta, Valerie Cotter, Quincy Samus, Morgan Spliedt, Samuel Means, Janice Bowie, and Darrell Gaskin. "My Faith Gives Me Strength: Black Churches Supporting Dementia Care Partners." Innovation in Aging 5, Supplement_1 (December 1, 2021): 516. http://dx.doi.org/10.1093/geroni/igab046.1995.
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Abstract Inequities in dementia care require an in depth understanding of dementia care partner life experiences, care needs, sources of support and ways to improve those experiences at the community level. In partnership with Black Churches in Baltimore, MD and rural Pennsylvania, we facilitated three focus groups (n=30) with Black dementia care partners to understand: 1) unique dementia care-related needs and challenges, and 2) how the church can be a supportive care partner. Participants noted three overarching themes related to challenges and needs: 1) unique challenges in caregiving - assuming various roles to provide comprehensive care, working within policies of support services, environmental challenges (neighborhood safety), and family conflicts; 2) lack of dementia education and educational materials; and 3) unmet needs of the care recipient – lack of dementia friendly neighborhoods, lack of meaningful activities, and undiagnosed dementia. Regarding the supportive role of the church, the theme of perceived role of the church included providing emotional and social support for care partners and recipients, reducing burden through providing respite, support groups, networking/ connections to resources, and promoting health events.
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Basukala, Sulochana. "Care giver burden among spouse of psychiatric patients attending psychiatry outpatient department of a teaching hospital." Journal of Patan Academy of Health Sciences 6, no. 1 (June 30, 2019): 72–77. http://dx.doi.org/10.3126/jpahs.v6i1.27084.
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Introductions: Caregiver burden in mental illness is a global issue. Burden is more significant and high among spouse than other caregivers. Spouse face illness-specific burdens of feeling powerlessness, fear, marital stress and partnership and family roles.
Methods: A cross-sectional study was conducted in outpatient department of psychiatry in Patan hospital, Patan Academy of Health Sciences, Nepal, from 26th August to 23rd September, 2018. Non-probability purposive sampling technique was used. Data was collected from spouses of psychiatric patients by face-to-face interview using Burden Assessment Schedule (BAS) to assess the caregiver burden of spouses of psychiatric patients.
Results: Out of 160 spouses interviewed, 94 (59%) had severe burden, 13 (9%) very severe, and 53 (34%) moderate. Burden was significantly associated with respondents’ relation to patient, educational status, income and diagnosis. The respondent’s age, occupation, duration of caring, and place of residence had no significant association with burden.
Conclusions: More than half of the spouses of psychiatric patients had severe care giver burden.
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Maffoni, Marina, Francesco Zanatta, Ilaria Setti, Ines Giorgi, Laura Velutti, and Anna Giardini. "SMiLE to Life: Meaning in life in healthcare professionals working in palliative care and rehabilitation medicine: SMiLE to Life: Meaning in life in healthcare professionals." La Medicina del Lavoro 112, no. 5 (October 28, 2021): 387–400. https://doi.org/10.23749/mdl.v112i5.11408.
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Background: In the healthcare landscape, various protective factors are identified, such as meaning in life (MiL), namely what gives sense to life events. However, little is known about this construct in the healthcare population. Objectives: To describe MiL among healthcare professionals employed in palliative care and neuro-rehabilitation medicine, unveiling possible differences related to medical specialty and socio-demographic characteristics. Methods: In this cross-sectional and multicentre study, palliative care and neuro-rehabilitation professionals were recruited. MiL was evaluated with the Schedule for Meaning in Life Evaluation (SMiLE), which provides a list of meaningful areas, as well as related overall indexes of satisfaction (IoS), weighting (IoW), weighted satisfaction (IoWS). Descriptive statistics, t-test, chi-square, linear and binary logistic regressions were performed. Results: Overall, 297healthcare professionals (palliative care=89, neuro-rehabilitation medicine=208, 47% of participants ≤ 40 years old) completed the evaluation. The sample was intra- and inter-groups heterogeneous, in particular concerning age and professional role. Conversely, no significant group differences emerged in MiL indexes comparisons, nor in the number of MiL listed areas. As for MiL areas, the category “family” increased the IoWS index, while terms related to “finances” contributed to decrease it. Comparing specialties, palliative care professionals were more likely to report areas like “partnership”, “social commitment”, and “satisfaction”. Nurses (n=116), nurse aides (n=47), and therapists (n=67) were more likely to mention health-related terms (e.g. health, physical wellbeing) than physicians and psychologists (n=65). Conclusion: This study highlighted MiL areas among professionals employed in palliative care and neurorehabilitation specialties, providing informative suggestions for tailored health prevention programs which should pay particular attention to social and family relationships, socio-economic status, and health.
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Heip, Tine, and Jochen Van den steen. "Person centred care: good practises in an ambulatory mental healthcare setting." International Journal of Integrated Care 23, S1 (December 28, 2023): 167. http://dx.doi.org/10.5334/ijic.icic23060.
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Introduction: BW IPSO is an organisation that started out as a variety of small organisations in the late 1970. By offering people with a mental illness the possibility to live in sheltered housing, with the guidance of mental healthcare workers, the organisation intended to improve the quality of life for this population. Over the years the organisation grew, merged and became BW IPSO. We now offer 118 places of supported living, going from group homes, to small appartements provided by the organisation, as well as guiding people in their own (social) home.
Description: Throughout the years, apart from housing and mental health, other life domains became more and more important. The mental healthcare worker became a case manager . In our multiprofessional team we follow the principles of FACT and SRH . If the resident wishes so, the case manager can also become a care coordinator. The principles of SRH comprise of three key aspects: presence-oriented, recovery-oriented and strength-oriented. So together, the resident and mental healthcare worker, will explore every life domain and investigate if the resident wishes to ameliorate or change something on a particular domain. Self-direction in the process is crucial. The life domains are physical health, mental health, administration, living and general daily life activities, religion and meaning, meaningful daily activities/work, social network, learning. The mental healthcare worker walks next to the resident throughout his/her path. A path that may lead to all different kinds of settings, f.e. specialized residential (mental) healthcare, community health centres, ambulatory psychologist/psychiatrist but also a workplace, regular welfare organisations, family, friends… When a resident decides to leave our organisation, (s)he can also choose to stay in ‘follow-up’. This means that the mental healthcare worker will still see this person but less frequent. It is a way to prevent fractions in the care continuum and gives the very important opportunity to shift to a more intensive form of care when needed. Providing continuity in care is essential in our line of work. To make this possible, BW IPSO invests maximum efforts to form partnerships with other organisations or initiatives. Building relations in health systems is vital. Innovations in such systems are affected by collaboration. In making these investments, we aim to give our residents the possibilities to try new things, make connections and improve overall quality of life.
Conclusion: Over time, many healthcare services have become fragmented, people who are less empowered miss out on proper care. This also applies for a majority of people who suffer of a (severe) mental illness. As an organisation we strive for continuity of care, collaborative partnerships, patient centred care with maximum ownership. We achieve this with a multidisciplinary team of experienced mental health workers in partnership with other organisations and the network of de person in need.
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NAKAGAWA, YOSHINORI, RINA YAMADA, and SEIGO NASU. "Characteristics of care-givers and care recipients influencing the impact of paid care services on family care-giver burdens." Ageing and Society 34, no. 8 (April 11, 2013): 1314–34. http://dx.doi.org/10.1017/s0144686x13000081.
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ABSTRACTIn the last few decades, a number of researchers have attempted to identify the effects of paid care services on alleviating the sense of burden of family care-givers, especially care-givers to people with dementia. However, few researchers have considered the possibility that paid care services alleviate the sense of burden only among those care-givers who possess specific characteristics. Without considering this point, the impact of paid care services would be averaged over an entire sample, and one might overlook the effects on these specific care-givers. With this background, this study examines the relationship between family care-givers' sense of burden and the amount of paid care services in Japan and identifies groups of care-givers among whom these services are significantly associated with a lesser sense of burden. The sense of burden of 339 family care-givers to older care recipients with dementia was measured using a modified version of the Caregiver Burden Inventory. In order to examine their association with the amount of paid care services received, logistic regression analysis was individually applied to groups of care-givers who exhibit specific characteristics. The results suggested that paid care services alleviated two out of five components of burden, provided the groups to which the analyses are applied are appropriately defined. In particular, two subsets of the entire sample, comprising young care-givers aged 49 or below, and including male care-givers, indicated that their overall sense of social and emotional burden were alleviated by the use of paid care services. The practical implications for policy makers are discussed.
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DE LA CUESTA-BENJUMEA, CARMEN, and BRENDA ROE. "The experience of family care-givers and migrant paid care-givers' relief of burden: a contrasted qualitative analysis." Ageing and Society 34, no. 7 (February 28, 2013): 1219–42. http://dx.doi.org/10.1017/s0144686x13000044.
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ABSTRACTOlder people are increasingly being cared for in the community across Europe. Dependent care in Spain largely remains a private issue involving family carers and migrant women from developing countries. Qualitative research on respite care has contributed to our understanding of respite as a subjective experience. Nonetheless, how care-givers relieve the burden of care is still not fully understood. Migrant care-givers are present in family life but their need for rest remains unseen. The aim of the study presented in this paper was to contrast family care-givers and migrant care-givers' strategies for relief from their caring role. Care-givers rest by thinking, doing and being but in a different manner from that of care-giving, that is: when they are a different person.To leave the life of care-givingis the general strategy that family care-givers use to rest from their care-giving selves whileturning to one's own worlddescribes the way migrant care-givers seek to relieve the burden of care. The comparative analysis shows that both strategies have in common the necessity to disconnect from the care-giving identity and that both migrant and family care-givers employ strategies that arefalse exits to a care-giving identity: they apparently relieve the burden of care. Respite goes beyond places, times and activities; as family care itself, it requires identity.
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Thrysøe Hansen, L., L. I. Nielsen, P. Gazerani, and L. Petrini. "“What about me?”: A qualitative explorative study on perspectives of spouses living with complex chronic pain patients." Scandinavian Journal of Pain 16, no. 1 (July 1, 2017): 173. http://dx.doi.org/10.1016/j.sjpain.2017.04.027.
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Abstract Aims Being a close relative of a chronic pain patient affects family life. No study has been carried out in Denmark to explore relatives’ life experiences and challenges while living with complex chronic pain patients. Hence, the aim of the study was to investigate the experiences of living with chronic pain patients from their spouses’ perspectives. In particular, this study focused on how spouses describe: (i) their everyday tasks and roles as a spouse; (ii) the types of changes and challenges that the pain condition brings into their partnership lives; (iii) a gender difference in these experiences; and (iv) the type of help they wish to receive from the healthcare system. Methods Two focus group interviews were conducted in Multidisciplinary Pain Center, Køge, including a total of 11 spouses (6 men). The spouses were contacted via their partners who were referred to public pain clinics. Focus group interview was chosen because is a suitable method for exploratory studies. The approach was phenomenological and transcriptions of interview records were used for analysis. Results Eight categories emerged from the data analysis: psychological burden, physical burden, the pain invisibility, roles, loss, worries concerning medicine, self-care, and needs concerning help and support. The differences between gender were vague. Spouses for whom the patient pain condition was a new situation (<1 year) appeared to worry more. Conclusions The study demonstrated that the spouses’ lives were dramatically affected. They had to support the family financially, do most of the household chores, be optimistic, a parent, and a pain care giver. The spouses experienced daily worries about several points including pain medicine by the patients. This study also highlighted an essential need for psychological support for coping with the changing life situation, the point that is currently neglected to a great extent.
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Fisher, Alinka, Michelle Bellon, Sharon Lawn, and Sheila Lennon. "Identifying Current Practices and Supports in Behaviour Management Following ABI in South Australian Community Settings: A Delphi Study." Brain Impairment 18, no. 2 (February 2, 2017): 211–25. http://dx.doi.org/10.1017/brimp.2016.36.
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Objectives: To consider the strategies currently used by family care givers to manage challenging behaviour in the community following ABI, and to identify what supports are available that support family care givers in addressing this issue.Research design: Delphi study.Methods: Service providers (n = 8) and family care givers (n = 3) completed a three-round Delphi process with the aim of reaching consensus (75% agreement) regarding research objectives. Round 1 consisted of an open-ended questionnaire in which items were identified; these items were then rated in Round 2 and 3 using a Likert scale. Statistical aggregation then allowed for quantitative analysis.Results: The findings suggest a number of behaviour management approaches are being used by family care givers, including basic antecedent strategies, agreeing with the person's demands, and medication. Consensus was reached that only two services in SA provide specific support to family care givers regarding behaviour management in the community: Families4Families Inc. (a peer support network) and Private Specialists (e.g., [neuro]psychologists and [neuro]psychiatrists).Conclusions: Findings emphasise the need for more specialised services specific to educating and supporting family care givers in the management of challenging behaviours following ABI. These services should be accessible, centralised, and easy for family care givers to navigate.
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Tinker, Cindy. "Vanderbilt-Ingram Cancer Center's & Gilda's Club Nashville: Songs from the Heart." OMEGA - Journal of Death and Dying 67, no. 1-2 (August 2013): 213–19. http://dx.doi.org/10.2190/om.67.1-2.z.
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Songs from the Heart is an annual palliative care and outreach/support project done in partnership with the Vanderbilt-Ingram Cancer Center Henry Joyce Cancer Clinic and Gilda's Club Nashville. It is a two-evening songwriters' workshop and concert that gives cancer survivors, family members and healthcare professionals the opportunity to tell their story about cancer through the art of music in a safe therapeutic environment. It is a unique project through the art of music helping others of all ages and from all walks of life find healing and hope; as well as an opportunity to give back to others. A professional singer/songwriter and a social worker co-facilitate the two-evening songwriters workshop. Two musicians perform songs the workshop songwriters have written at a community wide concert. Those who have participated in Songs from the Heart have communicated through the workshop evaluations that this experience has been life changing and a unique opportunity in being able to: explore and express their deep felt emotional feelings and thoughts; release their creative juices; ability to be alone with the group, yet feel included as a whole; express their journey through music; and benefit from being involved with others affected by cancer who have had similar difficulties. Others who have attended the concert or listened to the CD have expressed the significant impact these songs have had on their lives and their journey with cancer.
Dissertations / Theses on the topic "Partnership of care givers/family"
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Earley, Louise. "Children as familial care givers : the psychological implications." Thesis, University of Warwick, 2001. http://wrap.warwick.ac.uk/89666/.
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This thesis is concerned with children as familial caregivers. To date 'young carers' have received limited attention from researchers, and the current body of literature has mainly developed from the social welfare field. This is in contrast to a vast body of research, which has established the psychological impact of care giving on adults. The first paper critically reviews the concept and research on 'parentification'. This is a systemic/dynamic perspective on the psychological and developmental implications of children's involvement in caring roles. It has been submitted to the Journal of Clinical Child Psychology and Psychiatry (see Appendix A for instructions to authors for all papers). The brief paper is a qualitative study employing focus groups and individual interviews to consider the views of twenty young carers. The aim was to gain an insight into their perceptions of the caring experience and to provide data which might be helpful in developing a measure of 'young carer stress' to be used in the main study. This paper has been prepared for the journal 'Qualitative Health Research'. The main research focused upon the application of a stress- coping model to a study of 108 adolescent young carers. It was found that those children who felt devalued in their caring role, overloaded, and used avoidant coping styles to manage their stress were most at risk of suffering from psychological distress. The results are considered in the context of the adolescent stress-coping literature and implications for prevention and intervention are discussed. Papers are prepared in accordance with the instructions to authors, although small changes to the formatting have been made to ensure consistency across all the papers. The whole thesis is less than 20,000 words (excluding references, and tables).
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Castanon, Léa. "Ρrise en charge institutiοnnelle des persοnnes en situatiοn d'Etat Végétatif Chrοnique οu Etat Ρauci-Relatiοnnel : analyse sοciοlοgique au prisme de la "trajectοire de handicap"." Electronic Thesis or Diss., Normandie, 2024. http://www.theses.fr/2024NORMR126.
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Au travers d’une recherche ethnographique menée dans deux unités (éveil de coma et unité dédiée), la thèse interroge la construction de la trajectoire de handicap des patients en état végétatif chronique ou pauci relationnel. Ces deux états de conscience altérée, entraînent un handicap extrême et une dépendance quasiment totale rendant impossible la participation pleine et entière du patient à sa prise en charge. A la fois présent et absent, ce dernier voit sa trajectoire de handicap se construire au travers d’un partenariat fragile entre les professionnels de santé d’un côté, et les familles de l’autre. Le travail de thèse a permis d’identifier les différentes unités de prise en charge comme des moments-clés de la trajectoire de handicap où se nouent et se dénouent des relations entre professionnels et familles oscillant entre conflits, partenariat, tensions et partages. La peur omniprésente en réanimation laisse sa place à l’incertitude et l’espoir, marqueurs du passage en unité d’éveil de coma, puis à l’inscription dans le handicap et le temps long représentatif de l’unité dédiée qui devient le lieu de vie. Ces passages modifient ainsi ces relations, et de fait, le déroulement de la trajectoire de handicap. Ce sont, en effet, les deux unités, les relations qui s’y déploient, les « esprits de soin » qui y sont mobilisés et les savoirs qui se partagent ou s’affrontent qui sont analysés pour tracer les contours de cette trajectoire de handicap. Dans une démarche interactionniste et ethnographique, la thèse rend ainsi compte des différents enjeux de cette prise en charge que l’on peut définir, à plusieurs niveaux, de particulièreThrough an ethnographic research, conducted in two medical units (awakening and dedicated unit), this thesis investigates the construction of the handicap trajectory of patients in a chronic vegetative state or in a minimal conscious state. These two states, of altered consciousness, create an extreme handicap and an almost full reliance, making a full and whole participation of the patient to their medical care, impossible. Being both present and absent, the latter, observes his handicap trajectory being built via a fragile partnership between the family and the medical care givers. The research conducted during his thesis, allowed to identify the different medical care units involved, and as well key moments of the handicap trajectory: the relationship between the family and the care givers where they create and unwind bonds, oscillating between conflicts, partnership, tensions and sharing. The omnipresent fear in intensive care unit, is replaced by uncertainty and hope, which are markers of the transfer to the awakening coma unit. The passage to dedicated unit marks the beginning of the disability identity. This transfer, changes the inter-relationships and the evolution of the handicap trajectory. These two medical units (awakening and dedicated unit), their relationships, the deployed “spirit of the given care”, their knowledge which can be contradictory or shared, is analyzed in this these, in order to trace the outlines of this handicap trajectory. Via an interactionist and ethnographic research approach, this thesis examines the various issues involved in this type of care, which can be defined as particular on several levels
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Bramble, Marguerite Dorothy. "Promoting Family Involvement in Residential Dementia Care: An Education Intervention." Thesis, Griffith University, 2009. http://hdl.handle.net/10072/368110.
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There has been very little empirical research in Australia that examines the role of the family caregiver of the person with dementia in residential care. Nevertheless, both in Australia and overseas, researchers and clinicians recognise that there are benefits for staff, families and their relative with dementia from increased family accessibility, involvement and engagement as clients in care. Client partnerships are defined as dynamic, therapeutic relationships with health professionals that require articulation of common care goals, the exchange of knowledge and clarification of care roles. In the later stages of the dementia syndrome as the person with dementia experiences profound, deteriorating cognitive effects, the focus inevitably shifts to family caregivers to fulfil the surrogate role in providing information about their relatives’ individual care needs. The aim of this thesis is to explore family involvement as partners with staff in the care of their relative with dementia in residential care. This was achieved by implementing and evaluating a family-staff partnership model of care based on negotiation of therapeutic activities for the person with dementia. The study is a partial replication of an intervention conducted in United States of America (US) with successful care outcomes. The Family Involvement in Care (FIC) education intervention and partnership model has evolved from research over the period of two decades, led by Meridean Maas. Her research demonstrated that, through education and contractual partnership, caregiving arrangements between family and staff not only improved care for the person with dementia, but also resulted in more harmonious and productive partnerships which benefit all.Thesis (PhD Doctorate)
Doctor of Philosophy (PhD)
School of Nursing and Midwifery
Griffith Health
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Ross, Angela Catherine Dagley John C. "An assessment of anticipatory grief as experienced by family care givers of individuals with dementia." Auburn, Ala, 2008. http://repo.lib.auburn.edu/EtdRoot/2008/SUMMER/Counselor_Education,_Counseling_Psychology,_and_School_Psychology/Dissertation/Ross_Angela_15.pdf.
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Phillips, Susan E. "Care giving, institutionalization and available supports, a study of family care givers of persons with Alzheimer's in central Newfoundland." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1998. http://www.collectionscanada.ca/obj/s4/f2/dsk2/tape17/PQDD_0014/MQ33824.pdf.
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Bífárìn, Oládayò O., Catherine Quinn, Liz Breen, C. Wu, M. Ke, L. Yu, and Jan R. Oyebode. "Stressors and coping mechanisms of family care-givers of older relatives living with long-term conditions in mainland China: A scoping review of the evidence." Cambridge University Press, 2021. http://hdl.handle.net/10454/18567.
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YesAs the ageing population in China continues to grow, more people will be living with long-term health conditions and require support from family care-givers. This scoping review therefore aims to explore sources of stress and coping mechanisms adopted by care-givers of older relatives living with long-term conditions in mainland China. Literature searches were conducted in English (CINAHL, EMBASE, MEDLINE, PsycINFO and SCOPUS) and Chinese (CNKI, WANFANG DATA, CQVIP and CBM) databases between October and November 2019. The searches focused on the stressors and coping mechanisms utilised by family care-givers residing in the community. Narrative synthesis was used to identify themes within the data. Forty-six papers were included: 20 papers from English and 26 from Chinese databases. Six themes captured stressors: care-giving time (N = 22), financial resources (N = 17), role and personal strains (N = 42), preparedness (N = 4), social roles (N = 10) and lack of adequate formal support (N = 22); and one theme captured coping (N = 14). Unmet needs of care-givers of older relatives in mainland China were found to be extensive. Only a few studies had attempted to explore the causal link between stressors, coping and the influence of culture. Findings underscore the significance of adequately capturing intricacies around care-givers’ unmet needs, rather than generalising on the basis of culture. Qualitative studies are critical to providing a better understanding of the relationship between stressors, coping and resources afforded to care-givers by their cultural environment. Having such understanding is crucial to inform the development of competent care, which promotes self-efficacy and self-actualisation in care-givers in mainland China.
This work was supported by Research England: Quality Related Global Challenge Research Fund (QR-GCRF).
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Adkison, Lesley Ellen. "Establishing Ties: Descriptions of Meaningful Interactions with Health Care Providers from the Perspectives of Family Caregivers of Persons Diagnosed with Moderate to Advanced Dementia." Thesis, Boston College, 2014. http://hdl.handle.net/2345/3788.
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Thesis advisor: Ellen K. MahoneyPurpose: The purpose of this study was to describe meaningful interactions with health care providers (HCPs) from the perspectives of family caregivers of persons with dementia (PWD). A secondary purpose was to understand ways in which family caregivers obtained needed information for managing uncertainty associated with providing care for a PWD. Background: Family members of PWD often assume the caregiver role, but lack preparation for the psychological and practical ramifications of caring for someone with a progressive, terminal illness (Alzheimer's Association, 2011a). Lack of preparedness for caregiving impacts well-being and quality of life throughout the caregiving experience (Lilly, Robinson, Holzman and Bottorff, 2012). Meaningful interactions with HCPs have the potential to improve preparedness and alleviate suffering of caregivers, promote caregiver well-being and positively impact treatment provided to PWD. Methods: Qualitative description was used to obtain rich, straightforward descriptions from perspectives of participants. Congruent with this approach, findings were reported with minimal inference. Results: Positive meaningful interactions with HCPs included interactive dialogue, partnering between HCPs and caregivers, and a sense of being known as individuals with unique needs. Negative meaningful interactions were characterized as lacking one or more of those components. Participants used multiple strategies to obtain information and manage uncertainty associated with caregiving. Efforts to obtain care for PWD were often complicated by challenges of a health care system that was not designed to meet the needs of PWD. Conclusions: HCPs have opportunities to improve interactions, provide support and increase preparedness for family members providing care for PWD. HCP: caregiver partnerships can improve care for PWD and mitigate stressors inherent in the caregiving role. Corrective experiences may change caregivers' perceptions and provide opportunities for HCPs to intervene, engage and partner with health care consumers. Nurses are particularly well-suited to taking a leadership role in fostering partnerships and helping to design a dementia-ready system to meet the needs of PWD and those who care for them
Thesis (PhD) — Boston College, 2014
Submitted to: Boston College. Connell School of Nursing
Discipline: Nursing
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Manning, Jessica Brooke. "An examination of collaborative training methods among participants in the Family Child Care Partnerships Program." Auburn, Ala., 2007. http://repo.lib.auburn.edu/07M%20Theses/MANNING_JESSICA_1.pdf.
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Burbach, Frank Robert. "Developing systemically-oriented secondary care mental health services." Thesis, University of Plymouth, 2013. http://hdl.handle.net/10026.1/1599.
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Research has indicated that offering support and services for people who experience mental health problems and their families is a complex and contested area. Despite the controversies surrounding therapeutic interventions with families, it has now been recognised that relatives and other supporters of people with mental health problems should be included in their care. Whole- family interventions and partnership working with carers and families is now central to secondary care UK mental health policies and clinical practice guidelines. However, for many families/ carers this remains an aspiration rather than a reality. The way in which we successfully developed family focused mental health practice, as well as specialist family interventions (FI) for people who have been given a diagnosis of psychosis, has therefore aroused considerable interest. The Somerset Partnership NHS Foundation Trust has adopted a Strategy to Enhance Working Partnerships with Carers and Families, developed best practice guidance and has established two complementary workforce development projects - the development of specialist family intervention services and the widespread training of mental health staff to create a ‘triangle of care’ with service users and their families. This has resulted in widespread adoption of systemically informed, ‘whole-family’ practice. In response to the widespread difficulties experienced following other staff- training initiatives we developed specialist family interventions (FI) services by means of an innovative one-year course delivered in partnership with Plymouth University. This training initiative has been widely acknowledged for its novel integration of psycho-educational and systemic approaches and the effective in-situ, multi-disciplinary service development model. An advantage of this approach is that by the end of the course a local FI Service has been established and staff experience fewer difficulties in applying their new skills than people trained in other programmes. We then ensure the continued development of clinical skills by means of a service structure that emphasises on-going supervision. Regular audits of the service and in-depth research studies clearly indicate that the service is effective and highly valued by users. Our ‘cognitive-interactional’ approach, which integrates systemic therapy with psychosocial interventions (individual- and family-CBT) within a collaborative therapeutic relationship, enables us to meet the needs of families in a flexible, tailored manner. The FI teams are able to deliver early interventions for people with first episode psychosis, as well as meeting the NICE guidelines for people with longstanding symptoms. Recognising that many families do not require formal family interventions/ therapy, we also have been designing ‘stepped-care’ family intervention services. We have developed, and extensively evaluated, short training packages to enhance working partnerships with families throughout our mental health services. We have used this three-day package to train a range of community and inpatient teams. We have also encouraged family- inclusive practice with the establishment of a trustwide steering group, practice guidelines and the establishment of ‘family liaison’ posts to facilitate family meetings on inpatient units, as part of the assessment process. Both training initiatives explicitly focus on developing systemic thinking, by integrating CBT and systemic therapy. The involvement of families/ carers in the design and delivery of both training initiatives is also crucial.
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Povilonytė, Ieva. "Emigracijos įtaka mokyklos ir šeimos partnerystei." Master's thesis, Lithuanian Academic Libraries Network (LABT), 2008. http://vddb.library.lt/obj/LT-eLABa-0001:E.02~2008~D_20080924_174818-95568.
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Tėvų emigracijos įtaka šeimos ir mokyklos bendradarbiavimui – aktuali ir mažai nagrinėta tema Lietuvoje. Šiuo metu migracijai skiriamas didelis dėmesys, nes tai nėra vien socialinė, ekonominė ar demografinė problema. Nereikia pamiršti, jog situacija, kai tėvai dėl tam tikrų priežasčių išvyksta į kitą šalį, dažnai sukelia neigiamas pasekmes vaiko fizinei bei emocinei būsenai. Tai yra problema, kurios vienas iš aspektų – nutrūkstantis mokyklos ir šeimos bendradarbiavimas. Darbo tikslas - apibūdinti šiuolaikinę šeimos ir mokyklos partnerystės sampratą, bei atskleisti emigracijos problemos pedagoginį aspektą. Tyrimo hipotezė - tėvų emigracija apriboja galimybę įtraukti šeimą į ugdymo procesą, todėl neigiamai veikia vaikų elgesį bei pasiekimus mokykloje. Tyrimo metu taikyti šie metodai: • Dokumentų (klasės dienynų) analizė. • Anketavimas (tėvų, pedagogų). • Interviu (su vaikais). Statistinė gautų duomenų analizė patvirtino tyrimo pradžioje iškeltą hipotezę, kad į užsienį išvykusių tėvų santykiai su vaikus ugdančiais pedagogais yra riboti. Dažnai pablogėja vaikų emocinė būsena, elgesys, bendravimas su globėjais, mokytojais, bendraamžiais.Influence of parents emigration between the collaboration of school and family is actual theme is Lithuania. In this moment the problem of migration is a matter of great relevance to our society, but it isn’t just a social, economic,demographic questions. There are a lot of families, where one or both parents go to foreign countries for different reasons. As the results, there are negative subsequence of physical, emotional state of child. We can’t forget about the interests and requirements of child. There are some problems, that the relation between school and family collaboration are broken. The general destination of this work – to charakterize conception of the modern school and family partnership and disclose pedagogic aspect of the emigration problems. Hypothesis for analysis – the parents emigration limits the opportunity for the communication between parents and teachers also it is a general reason for negative children behaviours and learning results. The analysis methods: • Analysis of documents (class daybook). • Questionnaire (parents, teachers). • Interview with schoolchildren. Statistical analysis of facts has confirmed our work hypothesis.
Books on the topic "Partnership of care givers/family"
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J, Grieco Anthony, ed. Family partnership in hospital care: The cooperative care concept. New York: Springer Pub. Co., 1994.
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Peter, Marsh. Leaving care in partnership: Family involvement with care leavers. London: Stationery Office, 1999.
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Peter, Marsh. Leaving care in partnership: Family involvement with care leavers. London: Stationary Office, 1999.
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Sue, Owen, National Children's Bureau, and National Children's Bureau. Early Childhood Unit., eds. Ambiton for change: Partnership, children and work. London: National Children's Bureau, 2000.
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(Firm), Mitra and Associates, and MEASURE Evaluation Project, eds. 2001 urban family health partnership evaluation survey: Household survey report. Dhaka: Mitra and Associates, 2003.
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B, Gorman John. Child care background checks: How to effectively protect your child from dangerous baby sitters, nannies, and other care givers. Richmond: Gorman Graphics, 1993.
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Jamieson, Ann. Ambit[i]on for change: Partnership, children, and work. London: National Children's Bureau, 2000.
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Initiative, Massachusetts Governor's Day Care Partnership. Partnerships for day care: Final report of the Governor's Day Care Partnership Initiative. Boston]: Governor's Office of Human Resources, Commonwealth of Massachusetts, 1987.
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Siobhán, Bogues, Lindsay Brenda, and Foyle Health and Social Services Trust., eds. Partnership Care West: Evaluation of the Family Support Service Foyle (Waterside/Limavady). [Londonderry]: Foyle Health and Social Services Trust, 1998.
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Educational Resources Information Center (U.S.), ed. AHEAD Outreach: Where the child is, the services are: home, child care, hospital/clinical services to infants, toddlers, and young children with disabilities and their care givers : final report. Logan, UT: SKI-HI Institute, Dept. of Communicative Disorders, Utah State University, 2000.
Find full textBook chapters on the topic "Partnership of care givers/family"
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Višnjić Jevtić, Adrijana. "Models of Family-School Partnership: Who Is in Power When We Care for the Children We Share?" In International Perspectives on Early Childhood Education and Development, 111–25. Cham: Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-38762-3_6.
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AbstractIn this chapter, three models that try to explain the collaborative relations between parents and ECEC teachers are analysed. McAllister Swap models discuss interactions between parents and professionals based on beliefs, expectations, and involvement strategies. Epstein’s Six Types of Parental Involvement are considered through the prism of involvement as a potentially passive position. It is questioned whether in this model the parents are involved by someone, or they have the option of choosing to participate, or not. Hornby’s model of parental participation is considered in relation to parental strengths and parental contribution. Parents are approached as separate individuals who have the option of choosing (not)participating. Given that both models see parents as part of governing bodies, the chapter provides an account of the involvement/participation of parents as decision-makers in ECEC in different countries.
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Parton, Nigel. "Child Care, Prevention and Partnership." In Governing the Family, 19–51. London: Macmillan Education UK, 1991. http://dx.doi.org/10.1007/978-1-349-21441-9_2.
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Brown, Erica. "Holistic Care - Family Partnership in Practice." In Care Planning in Children and Young People's Nursing, 89–95. West Sussex, UK: John Wiley & Sons, Ltd,., 2013. http://dx.doi.org/10.1002/9781118785324.ch10.
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de Lima, Maria Eduarda Batista, Patrocinio Ariza-Vega, Aline Tavares Domingos Forte, and Stefano Eleuteri. "Family Partnerships, Patient and Carer Education and Support." In Perspectives in Nursing Management and Care for Older Adults, 239–52. Cham: Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-33484-9_15.
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AbstractThe involvement of the family, friends, and other people who are important to the patient has always been at the centre of any person-centred care process. Following a fragility fracture, many patients want their family and significant others to be involved in their care, both during hospitalisation and after discharge, and it is often expected that families will provide or lead ongoing care after discharge.It is well documented that postoperative functional decline is influenced by a great complexity of factors and that care aimed at preserving patients’ maximum autonomy, improving their perception of their health status, maintaining their social support network, and ensuring healthy living conditions is essential. The introduction of orthogeriatric units has made it possible to reduce the average length of stay and mortality, improve diagnostic accuracy, and reduce the cost of caring for these patients.The World Health Organization (WHO) recognises that the patient’s home is the natural environment in which they can develop their maximum functional and health potential. There is also considerable evidence that educational interventions can effectively contribute to functional recovery and improved patient compliance. Education has also been identified as a key element in the effectiveness of fracture coordination units. Health education aimed at preparing patients and their carers for a safe transition home can help during the first days after discharge from hospital and contribute to a reduction in rehospitalisation and an improvement in functional recovery and quality of life.This chapter will explore the importance of patient and family partnership in healthcare following fragility fracture and the importance of educational support from health professionals to ensure better functional recovery, quality of life and reduction of care-related burden.
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Wright, Natalie, Leighann Ness Wilson, Anastasia Tyurina, Jane Harnischfeger, Sarah Johnstone, and Judy Matthews. "‘It Takes a Village’: The Power of Conceptual Framing in the Participatory Redesign of Family-Centred Care in a Paediatric Intensive Care Unit." In How Designers Are Transforming Healthcare, 43–61. Singapore: Springer Nature Singapore, 2024. http://dx.doi.org/10.1007/978-981-99-6811-4_3.
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AbstractFamily-centred care (FCC) is a global approach to the planning, delivery, and evaluation of safe, quality health care that is grounded in mutually-beneficial partnerships among health care providers, patients, and families. This perspective not only relates to direct care interactions, but also to quality improvement, safety initiatives, education of health professionals, research, facility design, and policy development. This chapter presents and discusses the process and outcomes of a truly collaborative and values-led participatory design quality improvement project undertaken by the QUT HEAL team at the Queensland Children’s Hospital (QCH) Paediatric Intensive Care Unit (PICU) in Brisbane, Australia in 2020–2021, to optimise family-centred care quality through a spatial redesign proposal. It discusses the importance of conceptual framing at the outset of the project to galvanise a large team of staff, current and past parents and families, and hospital administration to support the three core principles of FCC—partnership, participation, and protection, and promote the health and well-being of individuals and families both through the design process and in the final conceptual interior design outcome.
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Howard, Christopher. "Daily Care." In Who Cares, 203—C9.P81. Oxford University PressNew York, 2022. http://dx.doi.org/10.1093/oso/9780190074456.003.0010.
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Abstract Many people are unable to perform everyday tasks like getting dressed, preparing meals, or bathing. Young children belong in this group, as do adults with disabilities that range from mild to severe. Historically, family members have been the primary givers of daily care; most have been women and unpaid. Over time, paying other people to care for the young, the old, and the disabled has become more common. However, most of the poor and near poor cannot afford a child-care center or nursing home on their own. If they work unpredictable hours, evenings, or weekends, affordable care is even harder to find. Few of their employers offer paid family and medical leave. The national government spends little on child care. It spends much more on long-term care, largely through Medicaid. Even so, the family safety net remains a crucial source of daily care.
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Kaufmann, Beatrice, Anouk Haldemann, Christopher Lueg, Loraine Olalia, Friederike Thilo, and Kerstin Denecke. "Can We Do Better than Gesturing? Requirements for a Digital Communication Aid to Support Non-Verbal Communication in Paediatric Emergency Care." In MEDINFO 2021: One World, One Health – Global Partnership for Digital Innovation. IOS Press, 2022. http://dx.doi.org/10.3233/shti220254.
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Providing urgent and emergency care to migrant children is often hampered or delayed. Reasons for this are language barriers when children, and their care givers, don’t speak any of the languages commonly spoken in Switzerland, which include German, French, Italian, and English. By a participatory design process, we want to develop a novel image-based digital communication aid tailored to the needs of migrant patients and nurses within Swiss paediatric clinics.
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Nedelsky, Jennifer. "Introduction." In Part-Time for All, 1—C0P74. Oxford University PressNew York, 2023. http://dx.doi.org/10.1093/oso/9780190642754.003.0001.
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Abstract The introduction provides an overview of the book. The premise is that care involves work and good work involves care. We offer a diagnosis of the interconnected problems of work and care: inequality for care-givers, family stress, time scarcity, and the care/policy divide that generates policy makers ignorant of care and excludes care givers as policy makers. It outlines the solution of new norms: no one does paid work for more than 30 hours a week, and everyone contributes roughly 22 hours of unpaid care to family, friends, or their chosen community of care. The challenges of norm transformation are also addressed. The introduction outlines each chapter: “CARE” and “WORK” explain the new norms and structures we propose. The final chapters explain the feasibility of these transformations for high income countries in the current global economy.
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Lowe, N. V., G. Douglas, E. Hitchings, and R. Taylor. "18. Care and Supervision." In Bromley's Family Law, 663–717. Oxford University Press, 2021. http://dx.doi.org/10.1093/he/9780198806691.003.0018.
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The Children Act 1989 places considerable importance on local authorities working in partnership with families and the avoidance wherever possible of court proceedings. However, the Act also makes provision, in the form of care and supervision orders, for compulsory measures to be taken to safeguard and promote children’s welfare. This chapter focuses on care and supervision orders. It covers the initiation of proceedings; the threshold criteria, which refers to conditions set out by s 31(2) that must be satisfied before a care or supervision order may be made; the ‘welfare stage’, where the court must, pursuant to s 1(1), regard the welfare of the child as the paramount consideration; tackling delay in care proceedings; court orders; appeals; and discharge of care orders and discharge and variation of supervision orders. The chapter ends by discussing the position of children in local authority care, focusing on the critical issue of contact with children in care.
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Luke, Michael J. "Social Care Interventions." In Social Drivers of Health. American Academy of PediatricsItasca, IL, 2025. https://doi.org/10.1542/9781610027922-8.
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Health systems interested in screening for health-related social needs must first ensure they are equipped with accessible and family-centered intervention strategies to address any identified needs. Several factors, such as variability in severity of need among families and differences in resource availability based on geography, serve as considerable barriers to designing and streamlining social needs interventions. Some common strategies used in health care to overcome these barriers and address families’ needs include aggregated resource lists, in-person support to navigate these resources, and partnerships with community organizations that can offer resources directly. Over time, more and more creative models have been developed to address specific social need domains, which can serve as examples for any health system interested in designing its own interventions. Given the increasing overlap between medical and social care complexity in pediatric care, continued collaborative, family-centered, and community-engaged approaches will be critical to achieve health equity.
Conference papers on the topic "Partnership of care givers/family"
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Repciuc (Jucan), Elena. "Family and Kindergarten - the Partnership for Education." In ATEE 2020 - Winter Conference. Teacher Education for Promoting Well-Being in School. LUMEN Publishing, 2021. http://dx.doi.org/10.18662/lumproc/atee2020/27.
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This paper presents both theoretical and practical aspects of the significance of this kindergarten-family partnership with the mission to inform both teachers and parents about the importance of collaboration and to offer some suggestions by which we can make the communication between these two parts. The main objective underlying this paper is to study in detail the partnership between kindergarten and family and to analyze the reasons why this partnership is not fully realized in order to facilitate better communication between these two parties. The paper is structured in 3 chapters as follows: In the first chapter, called "The family environment and its educational value", the paper deals with topics such as: family - a polysematic concept, family functions and educational styles in the family. In these second chapter, called "Kindergarten-family relationship, active and efficient partners in early education", the paper focuses on: the concept of educational partnership, collaboration between family and kindergarten - guarantee of school success, the opportunity of the educational partnership family-kindergarten, implementation of the family-kindergarten partnership and the importance of the kindergarten-family partnership in the formation and development of the personality of the preschool child. In the third chapter, which is the case study, “Comparison between the urban and rural areas, regarding the kindergarten-family partnership problem”, the paper focuses on the level of involvement of parents and teachers in the issue of their involvement in the education of children. I will also analyze the difference between rural and urban areas regarding the problem of partnership and the involvement of parents and educators. The family must always be involved in the education of the child at home and at school. The partnership between family and kindergarten represents a strong collaborative relationship, with the help of which we work in a team to establish the best methods of collaboration and education for the child. The kindergarten helps the child to develop psychically, physically and intellectually, leaving him with a bag of information that will help him in the future. Many may ask this question "What role does the family play in this process?". Well, the family gives the child the seven years at home, which are extremely important. Without the seven years at home, the educator cannot function as well as he or she would like. Without the help and involvement of the family in the relationship with the kindergarten, this process we call Partnership, would not exist. Also, in performing the processing and interpretation of the data from this research, the statistical method was used. After centralizing all the answers, I found the following facts: Parents are selective when it comes to their involvement in different activities within the kindergarten. The parents together with the teachers appreciate the importance of the partnership. In both urban and rural areas, we can say that there is openness and transparency when it comes to this partnership and between parents and teachers do not find communication problems.
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Frizzola, Meg, Elissa Miller, Juliana Hayman, and Carly Levy. "Picu and Palliative Care Partnership to Standardize Family Meetings and Decrease Icu Readmission Rates." In Selection of Abstracts From NCE 2016. American Academy of Pediatrics, 2018. http://dx.doi.org/10.1542/peds.141.1_meetingabstract.388.
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"Partnership with a Family Having a Child with Mental Disorders—strategy for Quality Improvement in Health Care." In Congress on mental health meeting the needs of the XXI century. Gorodets, 2016. http://dx.doi.org/10.22343/mental-health-congress-compendium20-23.
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Richmond, Deborah. "Empowered Mobility: Supply Chain Thinking for Youth in Foster Care." In 2016 ACSA International Conference. ACSA Press, 2016. http://dx.doi.org/10.35483/acsa.intl.2016.29.
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The application of global container logistics to high mobility children, such as those in foster care, asks designers to consider an empathic, human-centered approach to an institutionalized system of involuntary mobility, which can result in as many as 3-4 family “placements” per year for some children. In spite of grim statistics for youth in foster care related to graduation, teen pregnancy, drug use and imprisonment, these children develop many positive resiliencies around adaptability, emotional intelligence, empathy and efficiency. Working with a non-profit serving youth in foster care in Watts, Los Angeles, called Peace4Kids, whose motto is “community as family,” the concept of a “mobile village” was born. Following their lead, paired with a deep understanding of consumer culture’s collective intelligence around moving goods through cities, an innovative strategy was used to create a literal delivery platform for educational programming, in partnership with other non-profits, around food equity, social justice and eventually other vocational skills such as apparel arts, machine arts, fine arts and early education.
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Pacheco, Andre G. C., Clayton Oliveira Vicente, Eduarda Pylro Magesk, Gabriel Schettino Lucas, Guilherme Teixeira Caldana, and Patricia H. L. Frasson. "SADE: Software de Análise Dermatológica - Um sistema de coleta, gerenciamento e triagem de lesões de pele." In Anais Estendidos do Simpósio Brasileiro de Sistemas Multimídia e Web. Sociedade Brasileira de Computação - SBC, 2023. http://dx.doi.org/10.5753/webmedia_estendido.2023.235905.
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Skin cancer is a global public health challenge, accounting for approximately one-third of cancer diagnoses worldwide. The state of Espírito Santo has tens of thousands of inhabitants of European descent. Most of them have fair skin and are engaged in family farming, often exposed to the sun. The combination of this vulnerable phenotype with such sun exposure results in a high incidence of skin cancer in the state. Since 1987, the Federal University of Espírito Santo has maintained a dermatological and surgical assistance program, providing free care to the most vulnerable population. Starting from a partnership that began in 2018, the Dermatological Analysis Software (SADE) was developed, a system used to collect, manage, and screen skin lesions during the program’s care. Since its implementation, the software has had a significant impact on assisting the population, reducing both waiting and service times. Additionally, SADE has enabled a range of technical and scientific achievements, such as publications, awards, and participation in events.
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Gričnik, Ana Marija, Matjaž Mulej, and Simona Šarotar Žižek. "Sustainable Human Resource Management." In 7th FEB International Scientific Conference. University of Maribor, University Press, 2023. http://dx.doi.org/10.18690/um.epf.3.2023.35.
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Sustainable HRM (SHRM) is a new approach to people management, focusing on long-term HRM, regeneration, and renewal. It helps firms attract and retain high-quality employees: by integrating SHRM practices into their employee value proposition, firms establish unique, attractive employer brands. Socially Responsible HRM, Green HRM, Triple Bottom Line HRM, and Common Good HRM are types of SHRM. Especially these characteristics of SHRM matter: Long-term orientation, care for employees, environment, profitability, employee participation and social dialogue, employee development, external partnership, flexibility, compliance beyond labor regulations, employee cooperation, fairness, equality. SHRM is based on sustainable HR policies, such as management of employment relationships, prevention, health and safety at work, training and continuous development, diversity and equal opportunities, fair remuneration and social benefits, communication, transparency, social dialogue, attraction, and retention of employees, work–family balance. The paper presents a possible requisitely holistic model of SHRM.
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Olteanu, Radu Lucian, and Gabriel Gorghiu. "INCREASING THE STUDENTS’ INTEREST IN SCIENCE BY IMPLEMENTING A SCIENCE ACTION DEDICATED TO PLASTICS BIODEGRADABILITY." In 5th International Baltic Symposium on Science and Technology Education. Scientia Socialis Press, 2023. http://dx.doi.org/10.33225/balticste/2023.162.
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Science actions represent specific initiatives and demarches that involve investigation, experimentation, and even research, for raising the interest of the young generation in science, through particular approaches of STEM education. Important topics are promoted to students in various approaches, addressing nowadays problems, answering scientific questions, or trying to make them aware of sensible issues. In this respect, the topic of plastics biodegradability embraced the clothes of a Science action, a format based on the Care-Know-Do model, proposed in the frame of the CONNECT project. Having the view to evaluating the students’ interest in science after the implementation of the project-designed science actions, the partnership proposed a 5-point Likert scale instrument. In Romania, 373 students who participated in the Biodegradable Plastics action expressed their feedback, underlining - in an important proportion - their strong confidence in science, being ready to participate in collaborative science projects or benefit from their family support who consider that understanding and knowing science is useful for the entire life. Moreover, the students offered positive feedback related to teachers’ ability to emphasize the importance of science for their life and future, but also in society, in general. Keywords: STEM education, science action, plastics biodegradability, students’ feedback, CONNECT project
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Lavilla, KM, J. Teal, B. Schausberger, M. Sankoh, AB Conteh, AY Kamara, AM Tholley, et al. "Safe motherhood and childhood in Sierra Leone: key findings from mixed-methods health-seeking behaviour study." In MSF Scientific Days International 2022. NYC: MSF-USA, 2022. http://dx.doi.org/10.57740/8sd6-2h56.
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INTRODUCTION MSF and the MoHS implemented a partnership model of free and accessible maternal and child healthcare at primary and hospital-level health facilities in Tonkolili District, Sierra Leone, in order to reduce barriers to care and improve health outcomes. We conducted a health-seeking behaviour (HSB) study in 2021 to evaluate impact and change since a previous HSB study conducted in 2016/17. We also compared MSF-supported primary health unit (PHU) catchment areas with MSF-unsupported PHU’s. In addition, we explored adolescent reproductive health, family planning, and female genital mutilation (FGM). METHODS Study design was mixed-methods, similar to that used in 2016/17, including a quantitative household survey, structured interviews with key informants, and qualitative in-depth interviews (IDI’s). We randomly selected 60 clusters; 30 in MSF-supported areas, and 30 in unsupported areas. IDI’s explored topics identified through the survey, and were conducted with purposively-sampled participants, and analyzed thematically. ETHICS This study was approved by the Sierra Leone Ethical and Scientific Review Committee and by the MSF Ethics Review Board RESULTS Between February and August 2021, 1,164 women and 1,177 carers (of 1,559 children aged under 5) participated in the survey; 59 structured interviews and 42 IDI’s were conducted. Compared to the 2016/17 study, access to healthcare improved, with the proportion of women delivering in a health facility increasing from 52.0% (95% confidence intervals (CI) 42-64) to 90.9% (95% CI 89.2-92.5), and the proportion of mothers reporting at least one barrier to accessing care decreasing from 90.0% (95% CI 80-95) to 45.9% (95% CI 43.0-48.8). Outcomes of care also improved over this period, with under-5 mortality decreasing from 1.55 per 10,0000/day (95% CI 1.30-1.86) to 0.25 per 10,000/day (95% CI 0.17-0.36).When comparing unsupported PHU’s versus supported areas in 2021, complications during labour or delivery were higher in unsupported areas (10.9%; 95% CI 8.6-13.6) vs 7.2% (95% CI 5.3-9.7), as was stillbirth (4.5%; 95% CI 3.1-6.5) vs 1.4% (95% CI 0.6-2.8). Under-5 mortality was 0.44 per 10,000/day (95% CI 2.4-7.2) in unsupported areas and 0.17 per 10,000/day (95% CI 0.8-2.9) in supported areas. 42.9% (95% CI 34.7-51.4) of adolescents in unsupported areas and 39.7% (95% CI 31.3- 48.7) in supported areas reported unmet need for contraception. More than 90% (96.6%, 95% CI 95.3-97.5) of women reported FGM. Qualitative data suggests that communities recognized the importance of delivering in a health facility with trained assistance. Nevertheless, health staff and community members felt the current fine system for home births was applied inflexibly in circumstances when distance, transport, or cost restricted or delayed access. CONCLUSION Since 2016/17, access to healthcare and outcomes have improved in all areas, but improvement has been greatest in areas where, in addition to hospital care, MSF supported MoHS PHU’s. This provides evidence for ongoing implementation and scale-up of comprehensive models of care. Progress made must not overshadow areas requiring further attention, such as care for adolescents, access to contraception, and the need to reduce stillbirths. CONFLICTS OF INTEREST None declared.
Reports on the topic "Partnership of care givers/family"
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Oza, Shardul, and Jacobus Cilliers. What Did Children Do During School Closures? Insights from a Parent Survey in Tanzania. Research on Improving Systems of Education (RISE), May 2021. http://dx.doi.org/10.35489/bsg-rise-ri_2021/027.
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In this Insight Note, we report results of a phone survey that the RISE Tanzania Research team conducted with 2,240 parents (or alternate primary care-givers) of primary school children following the school closures in Tanzania. After the first case of COVID-19 was confirmed in Tanzania on 16 March 2020, the government ordered all primary schools closed the following day. Schools remained closed until 29 June 2020. Policymakers and other education stakeholders were concerned that the closures would lead to significant learning loss if children did not receive educational support or engagement at home. To help stem learning loss, the government promoted radio, TV, and internet-based learning content to parents of school-age children. The primary aims of the survey were to understand how children and families responded to the school closures, the education related activities they engaged in, and their strategies to send children back to school. The survey also measures households’ engagement with remote learning content over the period of school closures. We supplement the findings of the parent survey with insights from interviews with Ward Education Officers about their activities during the school closures. The survey sample is comprised of primary care-givers (in most cases, parents) of students enrolled in Grades 3 and 4 during the 2020 school year. The survey builds on an existing panel of students assessed in 2019 and 2020 in a nationally representative sample of schools.4 The parent surveys were conducted using Computer Assisted Telephonic Interviewing (CATI) over a two-week period in early September 2020, roughly two months after the re-opening of primary schools. We report the following key findings from this survey: *Almost all (more than 99 percent) of children in our sample were back in school two months after schools re-opened. The vast majority of parents believed it was either safe or extremely safe for their children to return to school. *Only 6 percent of households reported that their children listened to radio lessons during the school closures; and a similar fraction (5.5 percent) tuned into TV lessons over the same period. Less than 1 percent of those surveyed accessed educational programmes on the internet. Households with access to radio or TV reported higher usage. *Approximately 1 in 3 (36 percent) children worked on the family farm during the closures, with most children working either 2 or 3 days a week. Male children were 6.2 percentage points likelier to work on the family farm than female children. *Households have limited access to education materials for their child. While more than 9 out of 10 households have an exercise book, far fewer had access to textbooks (35 percent) or own reading books (31 percent). *One in four parents (24 percent) read a book to their child in the last week.
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Mir, Ali M., Zeba Sathar, Iqbal Shah, Rehan Niazi, Tahira Parveen, and Susheela Singh. Safeguarding women's health: Trends, inequities, and opportunities in Pakistan's abortion and post-abortion care services. Population Council, August 2024. http://dx.doi.org/10.31899/sbsr2024.1039.
Full textAbstract:
This report presents the findings of a comprehensive study on abortion and post-abortion care in Pakistan, conducted in 2023 by the Population Council in partnership with the Guttmacher Institute. The study addresses a critical need for updated information on women's reproductive health in Pakistan, a country facing significant challenges including a high population growth rate (2.55% per annum), low contraceptive use (34% for any method, 23.4% for modern methods), and a high unmet need for family planning (17.3%). The study is the third of its kind since 2002, building on previous research conducted in 2002 and 2012. It comes at a crucial time when Pakistan faces economic challenges that may impact access to healthcare services. This study provides critical, timely evidence to inform policies and programs aimed at improving contraceptive and abortion services in public and private health facilities across Pakistan. Its comprehensive approach and expanded scope offer valuable insights into the evolving landscape of reproductive health care in the country. Implementing these recommendations can significantly enhance women's reproductive health outcomes and reduce the burden on the healthcare system, particularly in the context of current economic challenges.
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Hossain, Sharif M. I., Shongkour Roy, Sigma Ainul, Abdullah Al Mahmud Shohag, A. T. M. Rezaul Karim, and Ubaidur Rob. Assessing effectiveness of a person-centered group ANC-PNC model among first-time young mothers and their partners for improving quality and use of MNCH-FP services. Population Council, 2022. http://dx.doi.org/10.31899/sbsr2022.1041.
Full textAbstract:
This baseline report is part of an operations research project “Healthy Women, Healthy Families (HWHF): Shustha Ma, Shustha Poribar” led by Management Sciences for Health (MSH) in partnership with BRAC, SCOPE, and the Population Council. The project aims to improve quality and increase utilization of maternal, newborn, and child health (MNCH) and family planning (FP) services and information for young mothers-to-be, first-time mothers (FTMs) aged 15-24, and their partners in the urban municipality of Tongi, Gazipur District, Bangladesh, through a group antenatal care ANC-PNC approach. The objectives of this study are to establish baseline values of selected HWHF project result indicators against which the impacts of the project’s intervention can be measured. The target group is young, first-time parents and the study examines the current status of knowledge on MNCH-FP and access to services among FTMs. This quasi-experimental pre-post control group design study employs both quantitative and qualitative data-collection methods. A simple random sampling procedure was employed to select respondents from BRAC FTM lists, while qualitative informants were selected purposively.
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Policy brief—Safeguarding women's health: Trends, inequities, and opportunities in Pakistan's abortion and postabortion care services. Population Council, August 2024. http://dx.doi.org/10.31899/sbsr2024.1040.
Full textAbstract:
Pakistan is experiencing critical reproductive health issues driven by a high population growth rate of 2.55% per year, low contraceptive use (34% for all methods, 23.4% for modern methods), and a significant unmet need for family planning (17.3%). Low contraceptive use and high unmet need for family planning contribute to high rates of unintended pregnancies which often result in unsafe abortions and postabortion complications. This policy brief presents the findings of a comprehensive study on abortion and postabortion care in Pakistan. The study was conducted in 2023 by the Population Council in partnership with the Guttmacher Institute. The study is the third of its kind, building on previous research conducted in 2002 and 2012 and assessing trends in the past decade.
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Involving youth in the care and support of people affected by HIV and AIDS. Population Council, 2003. http://dx.doi.org/10.31899/hiv2003.1016.
Full textAbstract:
Young people in Zambia who were trained to provide care and support to individuals and families affected by AIDS have proven to be a vital resource to their communities. In a country where adult HIV prevalence is 13 percent among males and 18 percent among females, communities are seeking new ways of helping those infected and affected by the disease. As the needs of people living with HIV and AIDS (PLHA) and orphans and vulnerable children continue to escalate, results from an intervention study by the Horizons Program, in partnership with Care International and Family Health Trust, provide a promising picture of young peoples’ potential to contribute to community-based care and support activities. The study also indicates that involving young people in the care and support of persons affected by HIV and AIDS may have a positive effect on their adoption of protective behaviors. As noted in this brief, this quasi-experimental intervention study sought to determine which care and support needs of PLHA and their families can be met by trained youth and to establish whether youth engaged in formalized care and support activities would increase their adoption of protective behaviors.
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Global Food 50/50 Report 2023/2024. International Food Policy Research Institute (IFPRI), 2024. http://dx.doi.org/10.56649/ddxd8983.
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Global Food 50/50 (GF5050) is a partnership between Global Health 50/50 (GH5050), the International Food Policy Research Institute (IFPRI), and UN Women. The GF5050 Report monitors progress and holds food system organizations accountable for achieving intersectional gender equality in leadership, adopting gender-equitable internal workplace policies, and implementing strategies that advance progress toward gender-just and equitable food systems. The 2023/2024 Report presents findings on the workplace policies for care and family leave from 51 global organizations active in the global food system and presents an annual analysis of gender-related policies and practices within 51 organizations.