Academic literature on the topic 'Partnership and parenthood of people with mental disabilities'
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Journal articles on the topic "Partnership and parenthood of people with mental disabilities"
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Jablan, Branka, and Marta Sjenicic. "Sexuality and sexual health of the population with disabilities, with special reference to people with visual impairments." Stanovnistvo, no. 00 (2021): 1. http://dx.doi.org/10.2298/stnv200819001j.
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Sexuality represents one of the basic dimensions of human existence, which is channelled through sexual and gender identification and role, sexual orientation, eroticism, emotional commitment, satisfaction, and reproduction. Sexuality is also linked to many significant health problems, especially in the area of reproductive and sexual health. Sexual health is the condition of physical, emotional, mental, and social wellbeing that is linked with sexuality. Knowledge about sexual health, contraception and selection of contraceptives, and the risk of sexually transmittable diseases is not only relevant for individuals? sexuality; it?s also important for encouraging the use of health services and other forms of support that are necessary to protect youth from sexually transmittable diseases and the maintenance of sexual and re-productive health. When it comes to sexuality and care of reproductive and sexual health, some groups are especially vulnerable. Bearing in mind the specific conditions women with disabilities grow up in and their dependence on assistance and support from other people, satisfying their needs for partnership, sexuality, and parenthood becomes unattainable for many, or it takes place under the control of professionals or family members. In this context, people with visual impairments are part of a vulnerable group, acknowledging that visual impairment leads to limitations in everyday life, autonomy, and quality of life to its full potential. The purpose of this article is to describe the phenomena of sexuality and sexual health among people with visual impairments, and to point out the existing international and national normative frameworks relevant to the sexual health of people with disabilities. Existing legislative acts acknowledge the right to a normal sexual life, as well as to the care and maintenance of the sexual health of people with disabilities. However, there are many obstacles and limitations that hamper the practical application of these rights: health issues, communication problems, lack of privacy, people?s acceptance of the inhibition of their own sexuality, or their acceptance of the labelling and normalisation of their situation. Even considering the existence of the regulation, the system of support for maintaining and improving the sexual and reproductive health of women with disabilities is not developed enough. The lack of literature relating to this topic shows that its importance is not recognised enough among the relevant actors, including organisations that advocate for people with disabilities. Realising the existing general legal framework requires the will of policymakers, who could enact and implement specific bylaw regulations, as well as activating the societal actors relevant to this field.
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Carnaby, Steve. "Commentary: enhancing community inclusion for people with complex needs through partnership working." Tizard Learning Disability Review 21, no. 3 (July 4, 2016): 140–43. http://dx.doi.org/10.1108/tldr-04-2016-0011.
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Purpose – The purpose of this paper is to serve as a commentary on the work reported by Hilary Johnson and her colleagues, which used partnership working as a lever for developing community inclusion for people with complex communication needs. Design/methodology/approach – The commentary uses the wider literature on social inclusion as well as narrative from current policy in England on the development of “Transforming Care Partnerships” to explore some of the issues raised by the research. Findings – The conclusion is that physical integration is only the starting point for a vision where people with the most complex needs live the “included life” which evolves by developing partnership working and reciprocal relationships between people with and without disabilities. Originality/value – This paper attempts to highlight relevant key research in the area of social integration as a way of reviewing the likely impact of recent policy on the lives of people with intellectual disabilities and the most complex needs.
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Marshall-Tate, Karina. "Enhancing clinical practice: reducing health inequalities – reflections on a clinical education and training partnership." Advances in Mental Health and Intellectual Disabilities 10, no. 6 (November 7, 2016): 342–48. http://dx.doi.org/10.1108/amhid-10-2016-0029.
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Purpose The purpose of this paper is to outline a two-year project designed to reduce health inequalities and improve health outcomes of people with intellectual disabilities using health services in South London by raising awareness and increasing health staff confidence and capability. Design/methodology/approach The project was conducted in two stages. In stage 1, a mapping exercise was undertaken to establish existing intellectual disabilities education and training availability. In stage 2, a network of stakeholders was formed and education and training materials were developed and delivered. Findings A formal evaluation of the project is underway and this paper seeks to share information about the project. That said prima facie data appear to indicate that health staff who attended education and training events learned new knowledge and skills that they could implement in their practice, increasing confidence and capability. Research limitations/implications Health staff who attended the events appeared to have an interest in intellectual disabilities and wanted to increase their knowledge and skills base. This means that there is a significant group of health staff that the project was unable to reach or who may not know that they need to know about intellectual disabilities. The results of the project have not yet been formally analysed. Practical implications Work-based education and training events can have a positive impact on health staff capability and confidence, however, it would appear that only those who already have an interest in the field or recognise its value to their own practice attend such events. To truly capture all health staff intellectual disabilities needs to be visibly included in all health curricula. Originality/value This project has not focussed on one profession or one aspect of healthcare and has embraced the values of inter professional and inter agency learning; this has enabled health staff to learn from each other and think in a “joined up” way replicating the realities of providing healthcare to people with intellectual disabilities.
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Stayner, David, Martha Staeheli, and Larry Davidson. "Pathways to friendship in the lives of people with psychosis: Incorporating narrative into experimental research." Journal of Phenomenological Psychology 35, no. 2 (2004): 233–52. http://dx.doi.org/10.1163/1569162042652209.
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AbstractThis paper explores the role of friendship in the lives of people with psychiatric disabilities through the use of narrative. We suggest that the use of phenomenologically based investigation in experimental or other traditional research designs provides a more in-depth and complex view of the lives of people with serious mental illness. We offer the example of the Partnership Project, which provides people with psychiatric disabilities a consumer or non-consumer "partner" with whom to enjoy community activities and spend a weekly stipend. Through the lens of narrative, we examine the ways that friendship differs between people matched with either a consumer or non-consumer partner and delve into the importance of connection and friendship in the lives of people with psychiatric disabilities.
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Glover, Gyles, Anna Christie, and Chris Hatton. "Access to cancer screening by people with learning disabilities in England 2012/13: information from the Joint Health and Social Care Assessment Framework." Tizard Learning Disability Review 19, no. 4 (September 30, 2014): 194–98. http://dx.doi.org/10.1108/tldr-07-2014-0024.
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Purpose – The purpose of this paper is to present information from the Joint Health and Social Care Self-Assessment Framework (JHSCSAF) on reported rates of cervical cancer, breast cancer and bowel cancer screening for eligible people with learning disabilities in England in 2012/2013 compared to screening rates for the general population. Design/methodology/approach – Between 94 and 101 Learning Disability Partnership Boards, as part of the JHSCSAF, provided information to allow the calculation of rates of cervical cancer, breast cancer and bowel cancer screening in their locality, for eligible people with learning disabilities and for the population as a whole. Findings – At a national level, reported cancer screening coverage for eligible people with learning disabilities was substantially lower than for the population as a whole (cervical cancer screening 27.6 per cent of people with learning disabilities vs 70 per cent of total population; breast cancer screening 36.8 per cent of people with learning disabilities vs 57.8 per cent of total population; bowel cancer screening 28.1 per cent of people with learning disabilities vs 40.5 per cent of the general population). There were considerable geographical variations in reported coverage for all three screening programmes. Originality/value – Consistent with previous research, localities in England report cancer screening rates for eligible people with learning disabilities considerably below those of the general population. There is an urgent need to address data availability and quality issues, as well as reasonable adjustments to cancer screening programmes to ensure uniformly high rates of cancer screening for people with learning disabilities across England.
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Walmsley, Jan. "An investigation into the implementation of Annual Health Checks for people with intellectual disabilities." Journal of Intellectual Disabilities 15, no. 3 (September 2011): 157–66. http://dx.doi.org/10.1177/1744629511423722.
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This project, conducted during 2010 by a researcher working with a self-advocacy group, investigated the implementation of Annual Health Checks (AHCs) for people with intellectual disabilities in Oxfordshire, where only 26.1 percent of AHCs were completed in 2009–10 (national average 41 percent). AHCs were introduced in England in 2008 as a response to findings that people with intellectual disabilities have significantly worse health care than other groups. GP practices are financially incentivized to offer AHCs. This study found that slow progress in implementing AHCs was attributable to: uncertainty over who was eligible; limited awareness in general practices about the legal duty to make ‘reasonable adjustments’ to facilitate access; limited awareness of AHCs and their potential benefits amongst carers and adults with intellectual disabilities; and in some cases scepticism that AHCs were either necessary or beneficial. The article also explores the benefits of undertaking this project in partnership with a self-advocacy group.
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Dewson, Helen, Keith J. B. Rix, Isabelle Le Gallez, and Kartina A. Choong. "Sexual rights, mental disorder and intellectual disability: practical implications for policy makers and practitioners." BJPsych Advances 24, no. 6 (August 24, 2018): 386–97. http://dx.doi.org/10.1192/bja.2018.40.
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SUMMARYClear policies regarding sexual expression, sexual behaviour and related decision-making assist in ensuring that the rights of people with mental disorder or intellectual disability are upheld, and that staff know how to react to situations consistently and lawfully without interfering on the basis of their own moral judgements or personal beliefs. Sensitive and holistic planning of care that complies with domestic law, international human rights law and statutory guidance is necessary to complement such policies. Non-intimate physical contact, masturbation, sexual relationships, contraception, sterilisation and vasectomy, pregnancy, termination of pregnancy, sexual dysfunction, parenthood, marriage and civil partnership, divorce, prostitution, pornography, and sex aids and toys are all matters that may properly be part of care planning.LEARNING OBJECTIVES•Understand the limited legal basis for the formulation of policies and rules concerning sexual expression, sexual behaviour and related decision-making by people with mental disorder or intellectual disability•Be able to formulate policies concerning sexual matters as they relate to people with mental disorder or intellectual disability•Be able to plan care for psychiatric patients and community service users balancing their rights to sexual fulfilment with the protection of their own welfare and the protection of othersDECLARATION OF INTERESTNone.
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Barlott, Tim, Tammy Aplin, Emma Catchpole, Rebecca Kranz, Damian Le Goullon, Amanda Toivanen, and Sarah Hutchens. "Connectedness and ICT: Opening the door to possibilities for people with intellectual disabilities." Journal of Intellectual Disabilities 24, no. 4 (February 28, 2019): 503–21. http://dx.doi.org/10.1177/1744629519831566.
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This study aimed to investigate the experiences of people with intellectual disability (ID) using information and communication technologies (ICTs) and the ways these technologies foster social connectedness. In partnership with a community mental health organization, this qualitative descriptive study explored the experiences of 10 people with ID using ICTs. Participants described how ICTs Opened the Door to Possibilities in their life – ICTs provided an avenue for connecting with other people, a means to pursue personal interests and a tool for organizing everyday life. Opening the door to possibilities was further understood as movement towards digital inclusion for people with ID, conceptualized as the fit between social opportunity and personal skills. We have identified the prominent role social supports play in creating (and constraining) opportunities for digital inclusion, and that digital inclusion has the potential to enable social connectedness and the development of agency. Consideration of the complex interaction between social opportunity and personal skills, and the mediating influence of supports, will enhance the inclusion of people with ID.
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Lafferty, Attracta, Roy McConkey, and Audrey Simpson. "Reducing the barriers to relationships and sexuality education for persons with intellectual disabilities." Journal of Intellectual Disabilities 16, no. 1 (February 8, 2012): 29–43. http://dx.doi.org/10.1177/1744629512438034.
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Opportunities for persons with intellectual disabilities to participate in relationships and sexuality education (RSE) are often constrained by the attitudes and perceptions of family carers, frontline support workers and professional staff. In order to understand how the barriers might be reduced, a study was undertaken in Northern Ireland with samples drawn from these three stakeholder groups, involving nearly 100 persons and using group and individual interviews. Although there was agreement on the need for RSE, four barriers were commonly reported: the need to protect vulnerable persons; the lack of training; the scarcity of educational resources; and cultural prohibitions. The impact of these barriers could be lessened through partnership working across these groups involving the provision of training and information about RSE, the development of risk management procedures and the empowerment of people with intellectual disabilities.
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da Costa, Edward, Danielle Adams, Munzer Salmeh, Omar Mahmoud, and Ekim Yetkili. "Using clinical audit to improve the quality of mental health-care services for people with learning disabilities." Advances in Mental Health and Intellectual Disabilities 15, no. 4 (August 14, 2021): 105–18. http://dx.doi.org/10.1108/amhid-03-2020-0006.
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Purpose The over-reliance on psychotropic medication for the management of patients with learning disabilities with behaviour that challenges is well documented.This paper aims to discuss the application of the methodology of clinical audit within community learning disability mental health services to adapt interventions including optimising prescribing practice and behavioural interventions aiming to reduce behaviour that challenges in people with learning disabilities. Design/methodology/approach Questionnaire-based review of documentation in electronic patient records, covering relevant audit standards in line with NICE and Royal College of Psychiatrists, was carried out in the North Essex Community Learning Disability Service, Hertfordshire Partnership NHS Foundation Trust. The audit included patients on the caseload of consultant psychiatrists. Findings The audit demonstrated that the prescribing of psychotropic medication was within BNF maximum limits for all patients, evidence of “consent” procedures was being followed in the majority, and there was some evidence of deprescribing attempts.Improvement was required in several areas e.g. undocumented off label prescribing in a significant proportion of patients. Objective measures to record the severity of behaviours and the effects of the medication were being used by clinicians in only a small proportion of patients. A significant proportion of patients have prescribed medication in the absence of appropriate psychological or environmental interventions. Originality/value As a result of the audit findings, the action plan made recommendations such as the development of a database for tracking the prescribing of psychotropic medicines and routine use of standardised measures. This action has been supported by the pharmacy team. Positive developments include a clinical psychologist taking on the role of leading the development of behavioural intervention strategies.
Dissertations / Theses on the topic "Partnership and parenthood of people with mental disabilities"
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Boxenbaum, Eva. "The partnership metaphor in Quebec health care policy : the decision-making process with cognitively impaired elderly clients in home care." Thesis, McGill University, 2001. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=33063.
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This research evaluates Quebec's health care policy by analyzing how the partnership metaphor is implemented in policy and practice. The partnership construction is identified in 4 interpretive communities within long-term community services to the elderly population. This analysis focuses on the placement decision for cognitively impaired clients in home care. Interpretive policy analysis is employed to examine 3 policy documents and 3 client files, while grounded theory serves to analyze 13 semi-structured interviews with 2 administrators and 3 open triads of client, caregiver, and case manager. The findings show partnership to be an egalitarian, collaborative ideal widely adopted but with little consensus on the pertinent objects and actors. Important differences emerge in how partnership is applied to the placement decision, indicating a too flexible application. Specific restrictions are recommended on the application of the partnership metaphor in order to improve community services and organizational structures in health care.
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Lochařová, Kateřina. "Interakce mezi pedagogy a rodiči s mentálním postižením." Master's thesis, 2021. http://www.nusl.cz/ntk/nusl-446085.
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The main topic of the submitted diploma thesis is "Interactions between the teachers and the parents with mental disabilities". The aim was to examine how parents with mental disabilities themselves understand the interaction and how it is perceived by teachers who educate their children. The first part introduces the reader to potential prejudices against people with mental disabilities and possible risks of discrimination against them. It also introduces the reader to the sexuality and partnership of people with mental disabilities. The work does not omit an important chapter related to its focus, and that is the parenting of people with mental disabilities. Given that the relationship between teachers and parents can be better understood on the basis of their mutual communication, the last chapter of the first part deals with communication. At the same time, it does not forget to mention the communication difficulties of people with mental disabilities and the principles and strategies that will facilitate contact with these people for the intact population. The empirical part interprets the author's own qualitative research of this diploma thesis. The data were obtained by the author through interviews with teachers and through semi-structured interviews with parents with mental disabilities....
Books on the topic "Partnership and parenthood of people with mental disabilities"
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Ansello, Edward F. Aging and lifelong disabilities: Partnership for the twenty-first century. College Park, Md: National Center on Aging and Disabilities, Center on Aging, University of Maryland, 1989.
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Gettings, Robert M. Forging a federal-state partnership: A history of federal developmental disabilities policy. Washington, DC: American Association on Intellectual and Developmental Disabilities, 2011.
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Office, General Accounting. Welfare reform: Challenges in maintaining a federal-state fiscal partnership : report to Congressional requesters. Washington, D.C: United States General Accounting Office, 2001.
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1948-, Swain John, and French Sally, eds. Therapy and learning difficulties: Advocacy, participation and partnership. Oxford: Butterworth-Heinemann, 1999.
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Ansello, Edward F., and Thomas Rose. Aging and Lifelong Disabilities: Partnership for the Twenty First Century : Wingspread Report. Elvirita Lewis Forum, 1989.
Find full textBook chapters on the topic "Partnership and parenthood of people with mental disabilities"
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Hart, Sue, and Eva Scarlett. "Decision Making in Learning Disability Nursing." In Nursing: Decision-Making Skills for Practice. Oxford University Press, 2013. http://dx.doi.org/10.1093/oso/9780199641420.003.0021.
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This chapter focuses on exploring decision making in the learning disability nursing field of practice. Previous chapters have covered the background about decision making, the principles, tools, and the use of evidence, as well as the way in which decision making fits in with the Nursing and Midwifery Council (NMC) Standards for Pre-Registration Nursing Education (NMC 2010) and competencies. The content of these early chapters and learning will help you to build your understanding of the issues when applied particularly to learning disability nursing skills in practice. This chapter also follows those addressing decision making in mental health nursing, children and young people’s nursing, and adult nursing. This ‘separating out’ of the fields of practice is helpful to give particular clarity and focus to issues relevant within them. It is, however, equally important to remind you that these apparently clear-cut distinctions between the disciplines are not necessarily reflected in practice, and that clients and patients do not always fit neatly into these artificial ‘boxes’. People with a learning disability have a right to equal treatment from registered nurses in adult and mental health settings, and children and young people with learning disabilities should expect the same standard of care as their typically developing peers. The NMC’s The Code: Standards of Conduct, Performance and Ethics for Nurses and Midwives (NMC 2008: 3) reminds us that ‘You must not discriminate in any way against those in your care’ and that ‘You must treat people as individuals and respect their dignity’. So, whatever your chosen future field of practice, please read on, because when people with learning disabilities require nursing, they are—and always will be—your responsibility too. Case study 12.1 has been chosen intentionally to highlight the partnership working and decision making that can go on between adult nurse specialists and learning disability nurses. The underpinning value base of decision making in learning disability nursing today is best understood with brief reference to the past. It is in recent memory for many service users that ‘home’ was a long-stay hospital ward or villa, which, despite the best efforts of nursing staff, would invariably be managed along quite regimented lines.