To see the other types of publications on this topic, follow the link: Parents of autistic children.
Journal articles on the topic 'Parents of autistic children'
Create a spot-on reference in APA, MLA, Chicago, Harvard, and other styles
Consult the top 50 journal articles for your research on the topic 'Parents of autistic children.'
Next to every source in the list of references, there is an 'Add to bibliography' button. Press on it, and we will generate automatically the bibliographic reference to the chosen work in the citation style you need: APA, MLA, Harvard, Chicago, Vancouver, etc.
You can also download the full text of the academic publication as pdf and read online its abstract whenever available in the metadata.
Browse journal articles on a wide variety of disciplines and organise your bibliography correctly.
1
De Froy, Adrienne, and Pamela Rosenthal Rollins. "The cross-racial/ethnic gesture production of young autistic children and their parents." Autism & Developmental Language Impairments 8 (January 2023): 239694152311595. http://dx.doi.org/10.1177/23969415231159548.
Full textAbstract:
Background & Aims Early gesture plays an important role in prelinguistic/emerging linguistic communication and may provide insight into a child's social communication skills before the emergence of spoken language. Social interactionist theories suggest children learn to gesture through daily interactions with their social environment (e.g., their parents). As such, it is important to understand how parents gesture within interactions with their children when studying child gesture. Parents of typically developing (TD) children exhibit cross-racial/ethnic differences in gesture rate. Correlations between parent and child gesture rates arise prior to the first birthday, although TD children at this developmental level do not yet consistently exhibit the same cross-racial/ethnic differences as their parents. While these relationships have been explored in TD children, less is known about the gesture production of young autistic children and their parents. Further, studies of autistic children have historically been conducted with predominantly White, English-speaking participants. As a result, there is little data regarding the gesture production of young autistic children and their parents from diverse racial/ethnic backgrounds. In the present study, we examined the gesture rates of racially/ethnically diverse autistic children and their parents. Specifically, we explored (1) cross-racial/ethnic differences in the gesture rate of parents of autistic children, (2) the correlation between parent and child gesture rates, and (3) cross-racial/ethnic differences in the gesture rates of autistic children. Methods Participants were 77 racially/ethnically diverse cognitively and linguistically impaired autistic children (age 18 to 57 months) and a parent who participated in one of two larger intervention studies. Naturalistic parent–child and structured clinician–child interactions were video recorded at baseline. Parent and child gesture rate (number of gestures produced per 10 min) were extracted from these recordings. Results (1) Parents exhibited cross-racial/ethnic differences in gesture rate such that Hispanic parents gestured more frequently than Black/African American parents, replicating previous findings in parents of TD children. Further, South Asian parents gestured more than Black/African American parents. (2) The gesture rate of autistic children was not correlated with parent gesture, a finding that differs from TD children of a similar developmental level. (3) Autistic children did not exhibit the same cross-racial/ethnic differences in gesture rate as their parents, a result consistent with findings from TD children. Conclusions Parents of autistic children—like parents of TD children—exhibit cross-racial/ethnic differences in gesture rate. However, parent and child gesture rates were not related in the present study. Thus, while parents of autistic children from different ethnic/racial backgrounds appear to be conveying differences in gestural communication to their children, these differences are not yet evident in child gesture. Implications Our findings enhance our understanding of the early gesture production of racially/ethnically diverse autistic children in the prelinguistic/emerging linguistic stage of development, as well as the role of parent gesture. More research is needed with developmentally more advanced autistic children, as these relationships may change with development.
2
Liang, Bridget. "Divided Communities and Absent Voices: The Search for Autistic BIPOC Parent Blogs." Studies in Social Justice 16, no. 2 (March 11, 2022): 447–69. http://dx.doi.org/10.26522/ssj.v16i2.3407.
Full textAbstract:
Both autistic adults and families of autistic children rely heavily on blogs and other digital platforms to create community and gain experiential knowledge about autism, but research on autism blogs has failed to distinguish between the perspectives of autistic adults and neurotypical parent bloggers. Furthermore, intersections in the experiences of BIPOC autistics are rarely examined. Using a content analysis with a feminist Critical Disability Studies lens, I explore six autism parent blogs from diverse demographics: a white neurotypical father, a white autistic mother in an interracial relationship, a white neurotypical mother, an Indigenous autistic trans father, a Black autistic nonbinary mother, and a Black neurotypical mother. I examine the attitudes of these bloggers to get a sampling of their opinions on autism, how they parent autistic children, and how their social location, specifically race, impacts their experiences. More intersectional research needs to be done to boost the perspectives of BIPOC autistics and the expertise of autistic parents.
3
Eslami, Neda, Taraneh Movahed, and Masoumeh Asadi. "Parents' Perceptions of the Oral Health-related Quality of Life of their Autistic Children in Iran." Journal of Clinical Pediatric Dentistry 42, no. 6 (January 1, 2018): 422–26. http://dx.doi.org/10.17796/1053-4625-42.6.3.
Full textAbstract:
Objectives: The aim of this study was to evaluate parents' perception of the oral health-related quality of life (OHRQoL) of autistic children in Iran, and to determine the quality of life of their families in relation to child' oral health status. Study design: 70 families with at least one child with autism, and 70 families with normal children were enrolled. Parents' perceptions of the OHRQoL of children were assessed using pre-validated PedsQL oral health scale questionnaire. PedsQL Family Impact Module questionnaire was also used to evaluate the impact of having an autistic child on the quality of life of their families. Both of the questionnaires were filled by parents. Parents of children with autism spectrum filled a separate questionnaire for the sibling of the autistic child. In the control families, child-reported PedsQL oral health scale questionnaire was also filled by the child himself/herself. Mann-Whitney U-test, and chi-square were used for statistical analysis. Results: There was a significant difference in the mean total score of PedsQL oral health scale questionnaire between autistics and controls. Parents of normal children reported more oral problems (p<0.001). There was not a significant difference in the mean total score of PedsQL Family Impact Module questionnaire between the families of autistics and controls in the last 7 and 30 days. Conclusion: According to parents' point of view, oral health-related quality of life of autistic children was better than normal children. However, parents of autistic children had more problems in the social and communication issues.
4
Kusmiati, Yopi, and Achmad Syarifudin. "Extra Attention Toward Autistic Children: Islamic Psychology Perspective." Psikis : Jurnal Psikologi Islami 7, no. 1 (June 30, 2021): 31–44. http://dx.doi.org/10.19109/psikis.v7i1.7994.
Full textAbstract:
Having an autistic child is a challenge for some parents because an autistic child should be treated specifically, based on condition and ability. The autistic child needs more extra attention than a non-autistic child because the attention from family can accelerate the development and ability of an autistic child, but not all parents can do the treatment because of various reasons. This study aimed to reveal the family's treatment which had an autistic child, especially parent or autistic's sister and brother. The study was done by using qualitative method with a phenomenological approach. The findings showed that there were three treatments of the family to treat an autistic child in daily life, they were extra attention, attention, and inattention. Extra attention was the informant included in the category who gave extra attention to a child. They were strongly caring about their child’s ability, food, and education. The attention category was an informant who did not fully give attention to their child, and not all time. The inattention category was an informant who rarely cares for their child, it related to the development of the child, education, and life.
5
Wang, Binyan. "User Interface Design of an Interactive Story Application for Autistic Children and Parents." Lecture Notes in Education Psychology and Public Media 10, no. 1 (September 14, 2023): 270–80. http://dx.doi.org/10.54254/2753-7048/10/20230254.
Full textAbstract:
The prevalence of autism is increasing year by year. At the same time, the parents of autistic children often suffer from poor mental states, which brings heavy financial and emotional burdens to the family. With the popularization of electronic devices, its prospective to intervene autistic children with applications on electronic devices. It not only doesnt limit when and where we use it, but also enables parents to interact with autistic children while working outside, saving a lot of costs on the therapy. The application is designed to help autistic children solve the problems of stereotyped repetitive behaviors and communication difficulties. This article analyzes the visual, cognitive, and interactive habits of autistic children, and summarizes the preferences of autistic children. In order to encourage the participation of parents, the article also analyzes the ways that parents can get involved in the game, such as training and guidance. Through these analyses, the author summarizes the principles of UI design for autistic children. This article intends to design an application that can connect autistic children and parents through the internet and encourage autistic children to complete the tasks in the games under the guidance of parents voices and stories, which will intervene the autistic childrens therapy effectively. In this way, parents can grasp the learning process of their children, which will reduce parents anxiety and improve the relationship between parents and their children.
6
McCauley, James B., and Marjorie Solomon. "Characterizing Parent–Child Interactions in Families of Autistic Children in Late Childhood." Social Sciences 11, no. 3 (February 28, 2022): 100. http://dx.doi.org/10.3390/socsci11030100.
Full textAbstract:
Parent–child interactions are influential to a wide range of positive developmental processes in neurotypical children, yet contributions to our understanding of these interactions using observational methods in families of children on the autism spectrum are lacking. The aim of the current study is to investigate how autism symptoms might impact these interactions. We use a family discussion task to: (1) compare families of autistic children aged 8–12 years (n = 21) to families of typically developing children (n = 21, matched on age and cognitive abilities) on the observed levels of supportive and directive behaviors in the parent–child relationship, and (2) examine the associations between parent–child interaction characteristics and child functioning. Results showed no differences in the observed levels of supportive behavior exhibited by parents, but significantly less supportive behavior in autistic children compared to neurotypical children. In addition, parents of autistic children had higher levels of observed directive behavior compared to parents of neurotypical children. Levels of supportive behavior in parents and autistic children were negatively associated with child ADHD symptoms. Findings reinforce literature on younger children describing positive parenting characteristics and further rebuke historical accounts of negative parenting qualities of parents of autistic children.
7
Mathée-Scott, Janine, and Susan Ellis Weismer. "Naturalistic parent–child reading frequency and language development in toddlers with and without autism." Autism & Developmental Language Impairments 7 (January 2022): 239694152211367. http://dx.doi.org/10.1177/23969415221136740.
Full textAbstract:
Background and aims The efficacy of parent–child reading for supporting language development has been well-established in the neurotypical (NT) literature. For children with autism spectrum disorder, (ASD) who may be at risk for delays in language development, prior research has shown promise for shared book-reading interventions. Yet there has been limited research on naturalistic parent–child reading with autistic children to date. The present study aimed to fill this missing link in the current literature. Methods Fifty-seven autistic toddlers participated at two developmental time points: Time 1 ( Mage = 30.4 months) and Time 2 ( Mage = 43.8 months). An NT control group ( N = 31) was matched on age to a subset of the ASD group ( N = 33). We assessed group differences in parent–child reading frequency between age-matched NT and autistic groups. Using a one-year follow-up design, we evaluated the relationship between parent–child reading and autistic children’s language development. Results Cross-group comparisons revealed that parents of age-matched NT children reported significantly more frequent weekly parent–child reading than parents of autistic toddlers. After a one-year follow-up with the autistic group, within-group analyses revealed that greater frequency of parent–child reading (controlling for maternal education, books in the home, and autism symptom severity) was associated with larger growth in autistic toddlers’ receptive and expressive language skills. Conclusions and implications These findings have important clinical implications as they emphasize the potential of parent–child reading for supporting autistic children’s language development. Findings demonstrate that frequency of parent–child reading is associated with language development over one year. Findings also demonstrate that parents of autistic children engage in less frequent parent–child reading than parents of age-matched NT peers, suggesting these parents may face more barriers to implementing parent–child reading than parents of NT children.
8
Taft, Lawrence T. "PARENTS OF AUTISTIC CHILDREN." Developmental Medicine & Child Neurology 11, no. 1 (November 12, 2008): 104–6. http://dx.doi.org/10.1111/j.1469-8749.1969.tb01402.x.
Full text
9
Gombosi, Peter G. "Parents of Autistic Children." Psychoanalytic Study of the Child 53, no. 1 (January 1998): 254–75. http://dx.doi.org/10.1080/00797308.1998.11822486.
Full text
10
Milgram, Norman A., and Mira Atzil. "Consensus and Conflict in Parents of Autistic Children." Psychological Reports 61, no. 2 (October 1987): 557–58. http://dx.doi.org/10.2466/pr0.1987.61.2.557.
Full textAbstract:
Parents raising autistic children at home tended to agree on “objective” aspects of parenting—how difficult their child is, each parent's share of parenting responsibility, school/home collaboration, counseling received, child's attainments at maturity. They disagree on the “subjective”—fairness of each parent's share of parenting, how much each parent should do, whether child's living at home is worthwhile. Latter findings suggest parental discord warranting professional counseling.
11
Crane, Laura, Lok Man Lui, Jade Davies, and Elizabeth Pellicano. "Autistic parents’ views and experiences of talking about autism with their autistic children." Autism 25, no. 4 (January 4, 2021): 1161–67. http://dx.doi.org/10.1177/1362361320981317.
Full textAbstract:
Little is known about how parents talk about autism with their autistic children, particularly among families in which both a parent and child are autistic. Using an online survey, we gathered quantitative and qualitative data from 34 autistic parents (most of whom had told their children about their diagnosis) to address this knowledge gap. There was considerable overlap between the views and experiences of the autistic parents in this study and the largely non-autistic parent samples in previous research. Specifically, parents emphasised the importance of being open and honest about the diagnosis, disclosing the diagnosis as early as possible, individualising discussions to children’s needs and framing the diagnosis positively. There were, however, areas in which the views and experiences of the current sample differed from previous research on non-autistic samples. First, our sample of autistic parents outlined the benefits of their own experiential expertise, which they felt resulted in heightened understanding and empathy with their children. Second, our sample tended not to express concerns about disclosure potentially having a negative impact. Finally, our participants did not express a want or need for professional support with disclosure. Instead, they reported feeling well equipped to support their children using their own knowledge and lived experience. Lay abstract Previous research examining how parents talk about autism with their children has tended to focus on parents who are not autistic themselves. We collected information on this topic from 34 autistic parents of autistic children (most of whom had told their children about their diagnosis). We found similarities, but also differences, between the views and experiences of autistic parents in this research and those reported in previous research (in studies of largely non-autistic parents). Similarities include the following: it is important to be open and honest about the diagnosis; the diagnosis should be introduced/discussed as early as possible; discussions should be tailored to each individual child’s needs; and we should not overlook the challenges associated with autism, but it is important to focus on positive aspects too. Differences include the following: autistic parents used personal experiences in conversations about autism, which was felt to result in increased understanding and empathy with their children; autistic parents overwhelmingly focused on more positive aspects of an autism diagnosis; our sample did not express concerns that discussions could have negative consequences too (e.g. making children more anxious); and autistic parents did not want or need professional support to talk about autism with their children (instead, they felt confident in using their own knowledge/experiences to guide discussions).
12
Usma Naeem, Irfan Abbas, and Iqra Majeed. "Impact of Computer-Aided Educational Applications on Communication and Learning Abilities of the Autists." sjesr 5, no. 3 (September 30, 2022): 57–67. http://dx.doi.org/10.36902/sjesr-vol5-iss3-2022(57-67).
Full textAbstract:
Computer-aided instructions have significant potential in increasing the educational experiences and facilitating the development of children with special needs (autistic children). Early intervention for autistic children helps their learning, language, and communication skills. This study aimed to explore the perceptions of parents of autists and speech therapists regarding the use of computer-aided educational applications to improve the communication and learning of Autistic Students. A critical paradigm was used for this study, under this paradigm, mixed methods research was used. Under mixed methods research, an explanatory sequential design was used. All the parents of autists and speech therapists of Lahore were considered the population for this study. A purposive sampling technique was used to determine the desired sample size from the population. Seventy-three parents of autists and twenty-eight speech therapists participated in the study. For the quantitative phase, the purposive sampling technique was used. For the qualitative phase, only those parents of autists using mobile/computer applications for student communication and language development were selected. Four instruments were used in this study. The reliability for the parents of autists’ questionnaire was α=.77 and for the speech therapists' questionnaire was α=.96. Data was analyzed using SPSS. It is concluded that parents of autists and speech therapists have average to high perceptions (based on their means) regarding the usage of educational applications. However, positive perceptions were shared by the speech therapists and parents of autists about the educational applications using these applications for specific purposes. It is also noted that an individualized set of activities are essential for autistic children.
13
ХВОРОВА, Ганна. "Introduction and content of training of competent interaction of specialists with parents of children with autism and training of competent parenting by children with autism." EUROPEAN HUMANITIES STUDIES: State and Society 2 (June 27, 2019): 98–112. http://dx.doi.org/10.38014/ehs-ss.2019.2.09.
Full textAbstract:
The purpose of the article is to substantiate and describe the content of the training of competent interaction between specialists and parents of autistic children and training of competent parenting by the autistic children, and also - the prospect of the research of phenomenon of parenting for children with autism. Despite the annual increase in the number of people with autism, the problem of support of children with autism in Ukraine and in the world has not received sufficient scientific study, in particular - little is known about the methods of effective influence on the level of competence of parents of children and adolescents with autism and on optimization of social communication of parents on micro- and the macro level. Parents raising children with disabilities (in the conditions of transformation of parental functions), face additional problems in comparison with parents of standard-type children. Parental competence, in its modern sense, is characterized by the ability of the parent to perform parental functions in such a way that it promotes the positive direction of the physical, mental, emotional, speech, communicative, etc. of the child, under conditions the parent has sufficient quality of his own life. The main question of the research: what kind of parenting behavior and which parent's socio-psychological characteristics provide the positive direction for the development of a child with autism, and how the social environment at the micro-level (family, teachers, friends, acquaintances) and at the macro-level (civil society organizations, state organizations and services, public authorities) of social communication affect this ability. The article describes the system of support in educational institutions for children with autism and their parents abroad (USA, Israel), provides guidance to the administration of educational institutions on the competent relationship with parents of children with autism. Training of competent interaction of specialists with parents of autistic children and competent parenting for autistic children are described.
14
Fletcher-Randle, Jessy Erin. "Where are all the Autistic Parents? A Thematic Analysis of Autistic Parenting Discourse within the Narrative of Parenting and Autism in Online Media." Studies in Social Justice 16, no. 2 (March 11, 2022): 389–406. http://dx.doi.org/10.26522/ssj.v16i2.2701.
Full textAbstract:
Although content related to parenting Autistic children is common in online media, little attention is paid to the experiences of Autistic parents. There is a growing trend of parents receiving autism diagnoses after their children are diagnosed, yet a basic Google search on “parents” and “autism” reveals myriad data on the experiences of parents of Autistic children and little on experiences of Autistic parents. A systematic online search, augmented with a “crowd-sourcing” request to online parent support groups, identified only 15 articles and blogs that discuss Autistic parenting in advocacy, lifestyle, and parenting websites. This article explores the scope and content of Autistic parenting discourse in these online media to consider how the experiences of Autistic parents are conceptualized and situated within broader narratives of neurodiversity, autism and parenting. Media discourse focused on women who had received their autism diagnosis in adulthood, their experiences navigating their diagnoses, minimizing parenting challenges, and pushing back against autism stereotypes, with the majority of content intended for Allistic audiences. Recent increased recognition of autism in women has coincided with a new interest in Autistic parenthood, raising questions about gendered assumptions and disabled mothering. The media narrative includes “defying stereotypes” and “proving” autism is compatible with parenthood, echoing mainstream beliefs. Social justice issues reinscribed in the narrative illustrate how centring the voices of Autistic parents can reconceptualize public perception of autism and bridge the disconnect between parenting Autistic children, and Autistic parenting of children.
15
Anthony, Bruno J., Hillary A. Robertson, Alyssa Verbalis, Yetta Myrick, Mary Troxel, Sydney Seese, and Laura Gutermuth Anthony. "Increasing autism acceptance: The impact of the Sesame Street “See Amazing in All Children” initiative." Autism 24, no. 1 (May 22, 2019): 95–108. http://dx.doi.org/10.1177/1362361319847927.
Full textAbstract:
To promote knowledge and acceptance of autism, Sesame Workshop created an online initiative: See Amazing in All Children. This nationwide evaluation of See Amazing assessed whether it increased knowledge and acceptance, promoted community inclusion, reduced parenting strain, and enhanced parenting competence. Survey responses were collected online from parents of children (age ⩽ 6) with and without autism before (N = 1010), 1 week after (N = 510), and, for parents of autistic children, 1 month after (N = 182) they viewed the See Amazing materials. Following exposure, parents of non-autistic children showed small but significant increases in knowledge of autism and, like parents of autistic children, greater acceptance of autistic children. Parents of autistic children reported less strain, increased parenting competence, and more hope about involving their child in their community. That the See Amazing materials invoked positive changes in the general parent community and in parents of autistic children suggests that See Amazing materials have the potential to be an effective resource to increase acceptance and community inclusion, although limitations of self-selection, dropout rate, and lack of control group constrain interpretation. Implications include support for targeting acceptance as a step beyond awareness campaigns, though actual behavior change is a subject for future research.
16
Ma, Yu, Liz Yuanxi Lee, and Xuemin Zhang. "Affiliate stigma and related factors among parents of autism spectrum condition: A pilot study from mainland China." Autism & Developmental Language Impairments 8 (January 2023): 239694152311685. http://dx.doi.org/10.1177/23969415231168567.
Full textAbstract:
Background Autistic individuals show differences in social and behavioral performances. Autism-related stigma affects autistic children as well as their caregivers (e.g., parents). Research has shown that stigmatizing reactions from others toward caregivers of autistic children are common and that these caregivers suffer from affiliate stigma. Aims To examine the level of affiliate stigma among parents of autistic children and its predictive factors in mainland China. Methods This was a cross-sectional study involving parents of autistic children from mainland China. The sample consisted of 183 parents (mean age = 36.5 years). The measures assessed included demographic characteristics, and parents completed two questionnaires. The Social Responsiveness Scale (SRS) was used to evaluate the characteristics of children by their parent's subjective assessments, and the Affiliate Stigma Scale (ASS) was used to investigate the affiliate stigma level of parents. Results The affiliate stigma levels of parents of autistic children were high, and the mean score of the affect subscale was higher than those of the other subscales. The mean ASS score differed significantly between employed and unemployed parents, those aged under 40 and over 40, and high- and low-income parents. The hierarchical regression analysis showed that parents’ age, monthly household income, and mean SRS score were significant predictors of the mean ASS score. The results indicated that parents of autistic children and their children need more social support and inclusion in mainland China. Conclusion The present study confirms the importance of studying primary caregivers (i.e., parents) in the context of traditional mainland Chinese culture. Although preliminarily, findings showed that the affiliate stigma levels of parents are high in mainland China, probably due to the influence of traditional cultural values. Moreover, considering the importance of autistic child characteristics, our results suggest that we should increase public knowledge of autism, enrich the general understanding of autism, and reduce the autism-related stigma of parents in mainland Chinese societies.
17
Riyadi, Slamet, Rosmawati Rosmawati, and Mira Sri Gumilar. "The Effectiveness of Brushing Teeth Video to Improve Autism Parent’s Skill in Brushing Teeth at SLB 2 Provinsi Jambi Year 2020." Jurnal Kesehatan Gigi 8, no. 2 (December 15, 2021): 125–29. http://dx.doi.org/10.31983/jkg.v8i2.7629.
Full textAbstract:
Childrens with Autism have difficulty to clean their oral cavity because less of ability in motor skills. Case reports show that the average autistic child has dental caries and periodontal disease due to the inability to brush their teeth properly. Autistic children spend a lot of time with their families so that the role of families, especially parents, is very important in the development of children with autism. This study aims to determine the effectiveness of brush teeth video counseling to improve brushing teeth skill in parents of autistic children at SLB 2 Provinsi Jambi. Study design is a quasi experimental study. The independent variable was the video counsellling of brushing teeth and the dependent variable was the parent’s ability of brushing teeth. The Sample in this study were parents of autistic children who met the inclusion and exclusion criteria. The average age of the respondents was 41 years (CI: 38 - 44). Wilcoxon test showed p value 0, 0001 (0.05) means significant difference of brushing skills between treatment group and control group. Mann Whitney showed p value 0.0042 (0.05), means significant difference between before and after intervention in the treatment group. Providing education on brushing skills to children with autism cannot be done instantly, it is necessary for the role of parents in teaching tooth brushing skills to be carried out continuously until children can brush their teeth independently. There is an improvement in brushing skills in parents of autistic children through counseling using videos on how to brush teeth.
18
Creak, Mildred. "THE PARENTS OF AUTISTIC CHILDREN." Developmental Medicine & Child Neurology 14, no. 5 (November 12, 2008): 659–61. http://dx.doi.org/10.1111/j.1469-8749.1972.tb02650.x.
Full text
19
Mano, Elona. "Adult Autism - Global Challenge of the Future." European Journal of Social Sciences Education and Research 6, no. 1 (April 30, 2016): 94. http://dx.doi.org/10.26417/ejser.v6i1.p94-98.
Full textAbstract:
There is an increase awareness of Autism Spectrum Disorder recently. The truth is that tens of thousands face an autism diagnosis each year. Even though the integration of autistic children is the focus of many studies in the last decades, the problem remains unsolved. What happens with autistic children as adults? In addition, one of the biggest challenges in providing services to people with an autism spectrum disorder is that the needs change from person to person. This study is focused on parent`s point of view. During the interviews the participants raised some important issues. To have their children in the same classes with non-disabled children, was the first won battle of parents of autistic children, but integrating autistic individuals as adults in society seems to be just the cover of a big dilemma for parents of autistic children. Autistic child as adult is a real challenge for society worldwide.
20
Salman Almohammedi, Yasser, Mohammed Abed Almatrafi, Rami Mohammed Almutairi, Noura Abdulrahman Omar, Mawaddah Mohammed Altaleb, Majed Mohammed Alharbi, Khalid Majdi Tolah, Ahmed Farid Abualkhair, and Sami Abdo Al-Dubai. "THE IMPACT OF CARING FOR A CHILD WITH AUTISM SPECTRUM DISORDER ON STRESS AND EMOTIONAL WELL-BEING OF PARENTS IN AL-MADINAH CITY, SAUDI ARABIA." International Journal of Advanced Research 11, no. 07 (July 31, 2023): 902–12. http://dx.doi.org/10.21474/ijar01/17299.
Full textAbstract:
Introduction: Autism Spectrum Disorder (ASD) is a lifelong neurodevelopmental disorder with mental health impact for parents caring for an autistic child. Despite establishing centers for children with ASD and schools for their special education in Saudi Arabia, there is a lack of studies exploring the impact of ASD on parents. Therefore, a study assessed the impact of caring for a child with ASD on parental stress, emotional well-being, and associated factors in Al-Madinah City. Methods: A cross-sectional study was conducted on parents of children with ASD in schools and Autistic Centers in Al-Madinah City, Saudi Arabia, using the Family Impact Questionnaire (FIQ), Autism Parenting Stress Index (APSI), and the Hospital Anxiety and Depression Scale (HADS) tools. Results: Autism parenting mean stress, depression, and anxiety scores were 1.68± 0.88, 8.50± 4.10 and 10.35± 5.30, respectively. Autistic childrens impact on their parents was significantly positively correlated to parents stress (p<0.001), depression (p<0.001), and anxiety (p<0.001). Parents anxiety was associated with the relationship with their autistic child (p=0.001). There was a significant association between nationality and depression among participants (p=0.032). Post hoc test showed that age of less than 15 years was significantly associated with parental anxiety (p<0.001), depression (p<0.001), and stress (p=0.031), while age of less than 5 years was associated with the impact on a family (p=0.002). Having more than 5 children in the family was associated with parental anxiety (p=0.020), depression (p=0.025), and stress (p=0.032), and motherhood was associated with stress (p<0.001). Lastly, divorce was associated with childs impact on the family (p=0.019). Conclusion: Caring for children with ASD in Saudi Arabia significantly impacts the emotional well-being of parents and siblings, and the impact is influenced by factors such as the childs age, parent-child relationship, nationality, number of children, and marital status. Therefore, comprehensive support and policy initiatives should address this burden and ease the strain on parents caring for autistic children in Saudi Arabia.
21
Smith, Jodie, Rhylee Sulek, Ifrah Abdullahi, Cherie C. Green, Catherine A. Bent, Cheryl Dissanayake, and Kristelle Hudry. "Comparison of mental health, well-being and parenting sense of competency among Australian and South-East Asian parents of autistic children accessing early intervention in Australia." Autism 25, no. 6 (April 25, 2021): 1784–96. http://dx.doi.org/10.1177/13623613211010006.
Full textAbstract:
Parents from individualist cultures (those focused on autonomy of individuals; that is, Australian) may view their autistic children differently compared to parents from collectivist cultures (where community needs are valued over an individual’s, that is, South-East Asian cultures). As most research on autism and parenting has been undertaken in Western individualist cultures, knowledge of parenting beliefs and mental health within collectivist cultures is lacking. We compared the mental health, quality of life, well-being and parenting sense of competency between families raising an autistic child from two groups: 97 Australian parents and 58 parents from South-East Asian backgrounds. Children from both groups were receiving the same community-based early intervention. No group differences were found on the measures of mental health but, when compared to Australian parents, parents from South-East Asian backgrounds reported higher well-being and less impact on their quality of life resulting from their child’s autism-specific difficulties. Furthermore, a positive association between well-being and quality of life was only observed for South-East Asian parents. Hence, the views of, and responses to, disability for South-East Asian parents may act as a protective factor promoting well-being. This novel research indicates that culture plays a role in parenting autistic children and highlights the need to accurately capture cultural background information in research. Lay abstract We know that parents of autistic children experience poorer mental health and lower well-being than parents of non-autistic children. We also know that poorer mental health among parents of autistic children has been observed across different cultures. Most research focuses on Western cultures, so we know little about parental mental health and well-being of parents from different cultural backgrounds; yet, it is likely that cultural background contributes to how parents view their child’s condition and respond to the diagnosis. Here, we compared mental health, quality of life and well-being between families raising an autistic child from Australian backgrounds to families from South-East Asian backgrounds. All children in the current study were receiving the same community-based early intervention. When compared to the general population, parents had poorer mental health overall, but there were no differences between the two groups of parents. However, parents from South-East Asian backgrounds reported higher well-being and fewer difficulties associated with their child’s autism. These findings suggest that cultural background likely influences not only parent’s view of, and response to, their child’s autism, but also their own sense of well-being. As researchers and clinicians working with families of autistic children, we should more explicitly consider family’s cultural background within our work.
22
Raza, Yasir, Sadaf Ali, Saher Mushtaque, Ujala Mushtaque, Hariza Surani, and Shafaq Nomani. "The Oral Health of Autistic Children and its Impact on the Mental Health of Parents of Karachi, Pakistan." Pakistan Journal of Medical and Health Sciences 16, no. 1 (January 30, 2022): 948–50. http://dx.doi.org/10.53350/pjmhs22161948.
Full textAbstract:
Background: Autism spectrum disorder is a mental health disorder which affects the oral health of autistic children. The parents of autistic children have to come across various problems associated with mental health. Objective: This study is conducted to assess the oral health of autistic children and its impact on the mental health of parents. Methodology: A cross-sectional study was conducted among 150 parents of autistic children. Out of which 75 were mothers and 75 were fathers. Hence, (DASS 21) was use to assess depression, anxiety and stress of parents. SPSS version-23 was use to analyze the data by applying independent t-test and Pearson product-moment correlation coefficient . (P ≤ 0.05) was considered significant. Results: The findings of the study revealed that autistic children have poor oral health status. Oral symptoms such as caries (p < 0.001), bad breath (p < 0.001), gingivitis (p < 0.001), and breathing from mouth (p < 0.001), biting of objects (p < 0.05) and unfavorable experience of dentist (p < 0.001) was highly significant among autistic children. Hence no significant difference was observed in dietary pattern of autistic children. Depression, anxiety and stress were observed among the parents of autistic children. Conclusion: Dental Carries, bad breath and gingivitis was commonly seen among the autistic children due to poor oral hygiene. In this situation when children are unable to understand parents. It becomes a challenging situation for parents leading to depression, stress and anxiety. Keywords: Autism spectrum disorder, Mental health, Oral health
23
Alqahtani, Abdullah Saad, Khalid Gufran, Abdulaziz Alsakr, Banna Alnufaiy, Abdulhamid Al Ghwainem, Yasser Mohammed Bin Khames, Rakan Abdullah Althani, and Sultan Marshad Almuthaybiri. "Oral Healthcare Practices and Awareness among the Parents of Autism Spectrum Disorder Children: A Multi-Center Study." Children 10, no. 6 (May 31, 2023): 978. http://dx.doi.org/10.3390/children10060978.
Full textAbstract:
This study aimed to evaluate the knowledge and attitudes of the parents of autistic children toward oral health and the practice of oral hygiene habits. A questionnaire was constructed, validated, and distributed to the parents of autistic children at different autistic centers. The questionnaire was divided into three parts: demographic information on the parents of autistic children, the knowledge and attitudes of parents toward oral health, and the practice of oral hygiene habits in the current population. A total of 206 responses were collected. Irrespective of the parents’ educational and employment statuses, most second children were diagnosed with autism, and most of the parents have four or more children. In terms of knowledge and attitudes toward oral health, a total of 90.30% of the patients were aware of the oral healthcare of their child, and 55.80% of parents take them to the dentist for checkups. Moreover, the response to the practice of oral hygiene habits from the parents was positive, and most of the parents assist in the oral hygiene practices of their autistic children. This study showed that most of the parents appeared to have satisfactory knowledge about oral health practices for autistic children. However, additional studies should also be conducted.
24
Azeem Mubarak, Doaa Mohammed Abdul. "Psychological Stress and Perceived Self-Efficacy in Mothers of Autistic Children." Journal of Intellectual Disability - Diagnosis and Treatment 10, no. 6 (December 15, 2022): 334–41. http://dx.doi.org/10.6000/2292-2598.2022.10.06.7.
Full textAbstract:
Background: Literature has indicated that parents of autistic children face higher stress levels than parents of allistic children (non-autistic children), leading them to experience depressive symptoms that impact their daily lives, reducing their quality of life. This study aims to investigate the relationship between psychological stress and perceived self-efficacy in mothers and fathers of autistic children.
Methods: This study is descriptive and cross-sectional. A total of 125 mothers and fathers consented to participate in the current study. 15 parents only partially completed the survey, so their data was not included. The remaining 110 cases were included. This left a final sample of 110 parents of autistic children, 100 mothers (90.9 %), and 10 fathers (9.1%). All were biological parents.
Results: As indicated by the results, all statements in the Parental distress (PD) subscale had a score ranging between high (the majority of items, 10) to medium (two items). All statements in the Parent-Child Dysfunctional interaction (P-CDI) subscale had a score ranging between high (the majority of items, 10) to low (two items). All statements in the Difficult Child (DC) subscale scored high. The whole subscale had a mean score of 4.04 (SD=3.17) with a high score. For correlations, psychological stress was negatively correlated with perceived self-efficacy (r = -0. 34, p < 0.001).
Conclusion: The stress experienced during the nurturing of children with disabilities is a factor that threatens the psychological well-being of mothers of autistic children.
25
Agha Mohammad Hasani, Parvin, Mahmood Sheikh Fathollahi, Asal Gerami Fard, and Mohammadreza Mokhtari. "Effectiveness of Happiness Training on the Pattern of Parent-Child Relationships and the Hope of Parents With Autistic Children." Iranian Rehabilitation Journal 18, no. 3 (September 1, 2020): 309–18. http://dx.doi.org/10.32598/irj.18.3.946.1.
Full textAbstract:
Objectives: Families of children with special needs face many problems. This study aimed to investigate happiness training on the pattern of parent-child relationships and the hope of parents with autistic children. Methods: Twenty-six couples with autistic children who referred to Rafsanjan Autism Clinic, Rafsanjan City, Iran, were enrolled in the study by the census method. Informed consent was obtained from them. Then the parents completed the Schaefer and Edgerton Parent-Child Interaction Questionnaire (1985) and Miller Hope Scale (1988). Next, parents were randomly assigned to the intervention or control groups. Happiness training based on the Fordyce method was performed for eight 1.5-hour sessions per week for the intervention group. The parents of either group completed the questionnaires after training of the intervention group (about 2 months and 3 months later). The Chi-square test, independent t-test, and 2-way repeated-measures ANOVA were used for statistical analysis. The level of significance was set at 0.05. Results: The results of the analysis showed that the changes in the scores of communication (P=0.013), acceptance (P=0.008), control (P=0.005), independence (P=0.040), aggressive non-attachment (P=0.015), and hope (P=0.010) were significant between the two groups at stages of measurement. The scores of all variables increased but the aggressive non-attachment decreased. Discussion: The education of happiness in Fordyce style influenced the interactive pattern of communication and hope of parents with autistic children. Therefore, training of happiness along with other services available to parents of autistic children can also be considered.
26
Sipowicz, Kasper, Tadeusz Pietras, Marlena Podlecka, and Łukasz Mokros. "The Association between Depression and Perceived Stress among Parents of Autistic and Non-Autistic Children—The Role of Loneliness." International Journal of Environmental Research and Public Health 19, no. 5 (March 4, 2022): 3019. http://dx.doi.org/10.3390/ijerph19053019.
Full textAbstract:
Having an autistic child significantly impairs the functioning of the family, including the wellbeing of the parents. The aim of this study was to assess whether loneliness mediates the relationship between perceived stress and the severity of depressive symptoms in the studied sample of parents. This cross-sectional study involved 39 parents of autistic children and 45 parents of non-autistic children. They completed a set of tests: a survey on sociodemographic and clinical data and psychometric questionnaires, i.e., Beck Depression Inventory II (BDI), De Jong Gierveld Loneliness Scale (DJGLS), and Perceived Stress Questionnaire (KPS). A rise in external and intrapsychic stress, independently, was linked to a rise in the severity of depressive symptoms. The severity of depression, loneliness and stress was higher among parents of autistic children compared with parents of non-autistic children. Intrapsychic stress exhibited an indirect effect through loneliness on the worsening of depressive symptoms.
27
Indah Roziah, Indah Roziah Cholilah, and Fatihatul Mufidah Fatihatul Mufidah. "Peran Orang Tua Dan Guru Dalam Penerapan Toilet Training Pada Siswa Autis Kelas VII di Sekolah Menengah Pertama Luar Biasa Negeri Branjangan Jember." Sociocouns: Journal of Islamic Guidance and Counseling 4, no. 1 (April 15, 2024): 47–66. http://dx.doi.org/10.35719/sjigc.v4i1.127.
Full textAbstract:
The application of toilet training to autistic children is different from normal children, because of the complex disorders children have difficulty implementing toilet training. Therefore, many parents of autistic children prefer practical things such as wearing diapers rather than training their children to defecate or urinate in the toilet. The focus of the problem studied in this thesis is: What is the role of parents and teachers in implementing toilet training for autistic children and what factors influence success and what obstacles are experienced. The aim of this research is to determine the role of parents and teachers in implementing toilet training for autistic children as well as the factors that influence success and the obstacles experienced. This research uses a descriptive qualitative approach, analyzing the role of parents and teachers in implementing toilet training for autistic students. The subjects in this research were autistic class teachers and parents of autistic students at the Branjangan Jember State Extraordinary Middle School. Data analysis uses data reduction, data presentation, and drawing conclusions. This research concluded: 1) The role of parents in implementing toilet training for autistic children is by providing an understanding of toilet training to children, providing encouragement by teaching toilet training regularly, providing examples during the toilet training implementation period, supervising children during the toilet training implementation period. . 2) The teacher's role in implementing toilet training for autistic students is by providing an understanding of toilet training by inviting students directly to the toilet, making a schedule of when students go to the toilet at school, providing examples of procedures for defecating or urinating ( BAK) in students. 3) factors that influence success in implementing toilet training for autistic students, namely the mother's level of knowledge about toilet training, the child's environmental factors, be it the family environment or school environment and family factors, the child's physical readiness, giving rewards to the child when they succeed in doing something 4) Obstacles What parents and teachers face in implementing toilet training for autistic students is children's difficulty in understanding toilet training, children who are not physically ready when toilet training is implemented.
28
Burrows, Kristen E., Cindy L. Adams, and Jude Spiers. "Sentinels of Safety: Service Dogs Ensure Safety and Enhance Freedom and Well-Being for Families With Autistic Children." Qualitative Health Research 18, no. 12 (December 2008): 1642–49. http://dx.doi.org/10.1177/1049732308327088.
Full textAbstract:
Children with autism might display unpredictable and volatile behavior that places them in considerable physical danger and creates stress for the family. Families of autistic children often have limited freedom and experience difficulty with everyday activities. In this qualitative ethology study, we examined the effect of integrating service dogs into ten families with an autistic child. Data included participant observation, video recordings of family—parent—dog interaction, and semistructured interviews with the parents. The themes were (a) the dog as a sentinel of safety, (b) gaining freedom through enhanced safety, facilitating public outings and family activities, and (c) improving social recognition and status, in which the presence of the dog promoted awareness of autism and affected social interaction. The triadic relationship between parent, autistic child, and service dog constantly evolves. This research provides valuable information for parents interested in having a service dog for their autistic child, and has implications for long-term human—animal companionship for children with special needs and their caregivers.
29
Suyanti, Suyanti, and Kurniyatul Faizah. "HUBUNGAN ANTARA PENERIMAAN DIRI DAN DUKUNGAN SOSIAL ORANG TUA ANAK AUTIS DENGAN INTERAKSI SOSIAL ANAK AUTIS." Edupedia 3, no. 2 (January 8, 2019): 1–8. http://dx.doi.org/10.35316/edupedia.v3i2.246.
Full textAbstract:
This study aims to determine how much influence social acceptance and support for parents of autistic children with social interaction of children with autism. The population is 30 parents of autistic children and the closestpeople who attend in PAUD Inklusi Anggrek MandiriSitubondo and the sample is the whole of the population of some 30 people. This study is correlational; the subject is determined by purposive sampling technique. Results of the study showed that the regression analysis coefficient on F = 17.839, p = 0.000 (p <0.05) so that there is a significant relationship between self-acceptance and social support for parents of autistic children with social l interactionautistic children is received. Partially there is a significant correlation between self-acceptance with social interaction shown by prices at t = 5.018, p = 0.000, so the hypothesis is accepted. In parsal also shown at t = 1.613 p = 0.118 (p> 0.05), so the research hypothesis that says there is a relationship of social support with social interaction rejected. So overall derived price Sguare R = 0.569 which shows variable acceptance of self and social support contributed 56.9% effective this further strengthensacceptance your self parents with autistic children and social support autistic children associated with autistic children social interaction. So H0 rejected, which means acceptance of self and relationship betweensocial parents support correlated with sociall interactionautistic children.
30
HUGHES, C., M. LEBOYER, and M. BOUVARD. "Executive function in parents of children with autism." Psychological Medicine 27, no. 1 (January 1997): 209–20. http://dx.doi.org/10.1017/s0033291796004308.
Full textAbstract:
Background. Previous studies have shown that individuals with autism show impaired performance on tests of executive function (Ozonoff et al. 1991, 1993; Hughes & Russell, 1993; Hughes et al. 1994). There is also strong evidence for genetic involvement in autism (see Rutter, 1991 for review). If executive dysfunction is a core impairment in autism, then similar impairments are hypothesized to exist in a subtler form among the parents of autistic children.Methods. Forty parents of autistic children were compared with 40 parents of learning disabled children and 36 adults from unaffected families on three computerized tests of executive function. These tasks tapped attentional-shifting skills, visuospatial planning and working memory. Participants also received a computerized control test of spatial memory-span. In addition, the interviewer's initial impressions of family members were coded using a new 33-item questionnaire.Results. A significant proportion of parents of autistic children (especially fathers) showed impaired executive function. By contrast, parents did as well as both comparison groups on a control test of spatial span, and on other ‘non-executive’ measures from the tasks, indicating that the autism group were as able and motivated as comparison groups. Interestingly, impairment of executive function was significantly correlated with the interviewer's pre-test impression of social abnormality among parents of autistic children.Conclusions. The hypothesis that a significant proportion of parents of autistic children show impaired executive function was supported. Parents showed good memory ability, but relatively poor planning skills and attentional flexibility. The extent to which this is an inherent trait in family members, rather than a reflection of the difficulties involved in caring for an autistic child, remains to be examined.
31
Kristanti, Lucia Ani, and Cintika Yorinda Sebtalesy. "Parents' Capacity for Autistic Child Personal Hygiene." Jurnal Midpro 11, no. 2 (December 29, 2019): 117. http://dx.doi.org/10.30736/md.v11i2.117.
Full textAbstract:
ABSTRAK Anak autisme memiliki kebutuhan dasar yang sama dengan anak normal lainnya. Namun akibat dari gangguan perkembangan yang dialami menyebabkan mereka tidak atau kurang mampu memenuhi kebutuhannya tersebut secara mandiri. Tujuan penelitian ini adalah mengetahui kapasitas orang tua terhadap personal hygiene anak autis. Jenis penelitian deskriptif. Populasi penelitian ini adalah semua orang tua yang memiliki anak autis dengan jumlah sampel 30 responden. menggunakan teknik total sampling. Variabel dalam penelitian ini adalah kapasitas orang tua terhadap personal hygiene anak autis. Instrumen penelitian menggunakan kuesioner. Data yang diperoleh kemudian diproses editing, coding, scoring dan tabulating. Hasil penelitian menunjukkan bahwa sebagian besar orang tua memiliki kapasitas maksimal terhadap personal hygiene (mandi) anak autis yaitu 21 orang (70%). Sebagian besar orang tua memiliki kapasitas maksimal terhadap personal hygiene (keramas) anak autis yaitu 21 orang (70%). Sebagian besar orang tua memiliki kapasitas maksimal terhadap personal hygiene (gosok gigi) anak autis yaitu 22 orang (73,3%). Sebagian besar orang tua memiliki kapasitas maksimal terhadap personal hygiene (cuci tangan) anak autis yaitu 20 orang (63,7%). Sebagian besar orang tua memiliki kapasitas maksimal terhadap personal hygiene (memotong kuku) anak autis yaitu 19 orang (63,3%). Saran dari hasil penelitian yaitu memberikan pendidikan dan pelatihan kepada orang tua yang memiliki anak autis dalam mengelola sumber-sumber daya yang dimiliki, paling tidak uang dan waktu dalam upaya peningkatan kapasitas orang tua terhadap personal hygiene anak autis. Diharapkan hasil penelitian ini dapat dikembangkan dengan menyertakan variabel yang belum diangkat dalam pelaksanaan penelitian ini. Kata kunci : Kapasitas Orang Tua, Anak Autis, Personal Hygiene ABSTRACT Children with autism have the same basic needs as other normal children. However, the result of developmental disruptions caused them to be unable or less able to meet these needs independently. The purpose of this study is to determine the capacity of parents of autistic children personal hygiene. Descriptive research type. The study population was all parents who have autistic children with a sample of 30 respondents. using total sampling techniques. The variable in this study is the capacity of parents for personal hygiene in children with autism. The research instrument used a questionnaire. The data obtained is then processed editing, coding, scoring and tabulating. The results showed that most parents have the maximum capacity for personal hygiene (bathing) of autistic children, which is 21 people (70%). Most parents have the maximum capacity for personal hygiene (shampooing) for autistic children, which is 21 people (70%). Most of the parents have a maximum capacity for personal hygiene (brush teeth) of autistic children, that is 22 people (73.3%). Most parents have the maximum capacity for personal hygiene (hand washing) of autistic children, which is 20 people (63.7%). Most parents have a maximum capacity for personal hygiene (nail cutting) of autistic children, 19 people (63.3%). Suggestions from the results of the study are to provide education and training to parents who have autistic children in managing their resources, at least money and time in an effort to increase the capacity of parents to autistic children personal hygiene. It is expected that the results of this study can be developed by including variables that have not been raised in the implementation of this study. Keywords: Parental Capacity, Personal Hygiene, Autistic Children
32
Loveland, Katherine A., Susan H. Landry, Sheryl O. Hughes, Sharon K. Hall, and Robin E. McEvoy. "Speech Acts and the Pragmatic Deficits of Autism." Journal of Speech, Language, and Hearing Research 31, no. 4 (December 1988): 593–604. http://dx.doi.org/10.1044/jshr.3104.593.
Full textAbstract:
In a videotaped free-play session with a parent, autistic children were compared with mental-age matched Developmental Language Delay (DLD) children and with normally developing (ND) 2-year-olds in the use of communicative acts by parent and child. Groups were matched for language level. Autistic children had more incidents of no responses, produced less affirming, turn-taking vocalization, and gesture, and were less likely to initiate communication than other children. Parent groups differed only in a greater amount of initiating and use of imperatives by parents of autistic children. Few relations between parent behaviors and child behaviors were found. Nonresponses by all children were concentrated subsequent to parent imperatives and questions, but no group differences were found in the distribution of nonresponses to various parent communicative acts. Results are interpreted to support the hypothesis that autistic children's language can serve a number of useful functions but that their pattern of language functions differs from that of nonautistic language-impaired children and much younger normal children of similar language level.
33
Badi’ah, Atik, Ni Ketut Mendri, Heru Santoso Wahito Nugroho, and Wawuri Handayani. "The Effect of Parenting on The Language Development of Autistic Children." Proceeding International Conference on Science and Engineering 3 (April 30, 2020): 509–15. http://dx.doi.org/10.14421/icse.v3.554.
Full textAbstract:
Autistic children have abilities and characteristics that are different from each other, so different ways of interacting with themselves and the environment and making autistic children as unique individuals (Ginanjar, 2007). The development of autistic children both physically, emotionally, intellectually, and psychosocially has a problem that results in the inhibition of children reaching a level of language development that is appropriate to their age. Parenting in children with autism includes autistic child parents providing emotional, social, informational and practical support. Attention and love from parents and family will encourage autistic children to develop better. An autistic child will feel that he is loved and wanted if more and more people in the family environment who love and care for him. Based on the results of a preliminary study conducted by the author by interviewing 8 autistic schools in the provinces of DIY and Ponorogo, East Java, to 16 parents who have autistic children, the majority of parents (93%) think that by entering autistic children into an outside school ordinary (SLB) autism in accordance with its limitations means their efforts can be said to be enough. Not all parents realize that having children with special needs in accompanying language development can maximize language development. Knowing the effect of parenting on the language development of children with autism This type of quantitative research uses Quasi experiment with the design "Pre test Post test with Control Group Design". Observation was carried out twice. The first observation is to determine the development of an autistic child before being given parenting and the second observation after being given parenting. Sampling was done by purposive sampling with the criteria of parents and autistic children aged 6-12 years in the autistic schools of the provinces of Yogyakarta and Ponorogo, East Java. Examination data were analyzed analytically with the help of SPSS for Windows version 16.0 using paired t-test and Wilcoxon, with a significant level of p <0.05. The experimental group pre-test and post-test with a value of p (sig) 0,000 <0.05 then Ha is accepted and Ho is rejected, meaning there is a difference between pre-test and post-test in the experimental group. In the control group pre-test and post-test with p value (sig) 0.002 <0.05 then Ha is accepted and Ho is rejected, meaning there is a difference between pre-test and post-test in the control group. There is a parenting effect on the language development of autistic children in autistic schools with p (sig) <0.05 means that Ha is accepted and Ho is rejected.
34
Fisman, Sandra N., Lucille C. Wolf, and Samuel Noh. "Marital Intimacy in Parents of Exceptional Children." Canadian Journal of Psychiatry 34, no. 6 (August 1989): 519–25. http://dx.doi.org/10.1177/070674378903400607.
Full textAbstract:
The purpose of this study was to examine the role of perceived parenting stress and parental depression on marital intimacy between parents of handicapped children versus developmentally normal children, and to investigate discrepancies between husbands' and wives' reports of marital intimacy. The parents of 31 autistic children, 31 Down Syndrome children and 62 developmentally normal children, matched for both mental and chronological age were studied. Results indicated significantly greater stress and depression, as well as lower marital intimacy for mothers of autistic children than mothers of normal children, and significantly greater stress than mothers of Down Syndrome children who fell somewhere between other groups of parents in all three measures. Fathers of autistic children experienced significantly higher parenting stress than the other groups, as well as lower marital intimacy but there were no differences amongst fathers on measures of depression. Low scores on subscales of identity and compatibility for mothers implying low self esteem contributed significantly to the lowered perception of marital intimacy. Implications for intervention, based on these findings, are discussed.
35
Boy, Hendry, Rina Kurnianti, and Satria Al Fatiha. "Knowledge and Attitudes of Parents with Prevalence of Autism in Children in Schools with Special Needs (SABK) Unggul Sakti Jambi City." Jurnal Kesehatan Gigi 6, no. 2 (December 31, 2019): 130–35. http://dx.doi.org/10.31983/jkg.v6i2.5490.
Full textAbstract:
Oral and dental health is important for anyone, including children with special needs. According to the Ministry of Health of the Republic of Indonesia, the role of parents, especially mothers, is very important in maintaining the cleanliness of their child's teeth and mouth. Especially in autistic children, caries and gingivitis are encountered, and while their behavior will cause dental care to be rather difficult. Dental caries is a dental tissue disease characterized by tissue damage, starting from the surface of the tooth extending towards the pulp. The study was to determine the relationship of knowledge and attitudes of parents with the prevalence of dental caries in autistic children in the School of Children with Special Needs of Jambi City. This study used a cross sectional approach. The sampling technique used was purposive sampling as many as 30 respondents. The measuring instruments used were questionnaires and dental caries observation sheets. Prevalence of dental caries was 77% or 23 children had caries, knowledge of parents of autistic children was 86.7% or 26 people had high criteria while those with moderate criteria were 13.3% or 4 people and attitudes in parents of autistic children were as much as 76.7% or 23 people have good criteria while those that have good criteria are 23.3% or 7 people. There is relationship between the level of knowledge of parents with the prevalence of dental caries in autistic children (p value = 0.031) and OR = 16.5 and there is relationship between attitudes of parents with the prevalence of dental caries (p value = 0.033), and OR = 8.88. There is a significant relationship between the level of knowledge of parents with the prevalence of dental caries in autistic children and there is a significant relationship between attitudes of parents with the prevalence of dental caries.
36
Begum, Fardaus Ara, Md Shafiqul Islam, and Abu SMMH Rahman. "Coping strategies and education of parents of autistic children in Bangladesh." Bangladesh Journal of Medical Science 19, no. 4 (April 12, 2020): 614–19. http://dx.doi.org/10.3329/bjms.v19i4.46615.
Full textAbstract:
Objectives: Bangladesh is a country characterized by the shared cultures of different ethnic groups. Parents in different cultures demonstrate diverse psychological functioning when caring for a child with a chronic disability such as autistic disorder. Few investigations have been conducted in Bangladesh regarding the coping strategies used by parents of autistic children. Therefore, the purpose of this study was to examine the coping strategies of parents raising autistic children in Dhaka city. We also studied the relation between the coping strategies of parents with autistic children and the parents’ educational status.
Materials and Methods: A total of 44 parents with autistic children participated in this survey and were randomly selected from a simple sample comprising parents of children attending special schools in Dhaka city, Bangladesh. Data were collected through questionnaires on coping strategies and were administered by an interviewer. A chi square test was conducted to determine the significance of the relation between education and different coping strategies.
Results and Discussion: Eight groups of coping strategies were selected as follows: Confrontive coping, Distancing from problem, Seeking social support, Self-controlling, Accepting responsibility, Planful problem-solving, Escape-avoidance, and Positive reappraisal. A total of 34, 10, 26, 19, 17, 32, 6, and 35 parents chose “at least try,” “not overanalyzing,” “get professional help,” “separate own feelings,” “conduct self-evaluation” “apply more effort….;” “hand over…,” “fantasies for turn the….,” “wish for over the…,” and “change daily lifestyle”, respectively. Moreover, a significant relation was revealed between parents’ education and the strategy, “accepting responsibilities.”
Conclusion: We concluded that parents of autistic children need more social support, counseling, and higher education to support their child’s special needs, as well as ensure their own physical and mental wellbeing.
Bangladesh Journal of Medical Science Vol.19(4) 2020 p.614-619
37
Ben Soussia, R., A. Bouallagui, S. Khouadja, I. Marrag, and M. Nasr. "Psychoaffectives Repercussions of Autism on Parents." European Psychiatry 41, S1 (April 2017): S122. http://dx.doi.org/10.1016/j.eurpsy.2017.01.1922.
Full textAbstract:
IntroductionCaring for a child with autism is a stressful experience for parents. The daily stress of this handicap has a major impact and triggers in the parents a series of adverse psychological reactions.AimTo reveal sociodemographic characteristics of parents of autistic children and to estimate the prevalence of anxiety and depressive symptoms among these parents.MethodsA cross-sectional study conducted among parents of autistic children supported by four of autistic children rehabilitation centers under the Tunisian Association for the Promotion of Mental Health. Data were collected through a questionnaire to explore the sociodemographic data of parents of autistic children. Depressive symptoms were assessed by the Beck scale and anxiety symptoms by the Hamilton scale.ResultsFifty-two parents were collected. The middle age was 35.73 years. They lived in an urban area in 96% of cases. The majority had an average socioeconomic level (88.4%). The respective rates of depressed or anxious parents as Beck scales and Hamilton were 48% and 23%. The association between depressive and anxious symptoms was found in 19%. In addition, depression was more common in mothers (P < 10−4) and anxiety was also more evident among mothers (P = 0.01).ConclusionThe presence of an autistic child causes profound changes in families and can be a source of tension and stress. The anxious and depressive impact on parents is important and frequent. The intervention that designs the psychiatrist to help children with autism should necessarily include an action for parents.Disclosure of interestThe authors have not supplied their declaration of competing interest.
38
Hussein, Amal M., Elizabeth Pellicano, and Laura Crane. "Understanding and awareness of autism among Somali parents living in the United Kingdom." Autism 23, no. 6 (November 29, 2018): 1408–18. http://dx.doi.org/10.1177/1362361318813996.
Full textAbstract:
Using vignettes and interviews, this study examined understanding and awareness of autism, and (a)typical development more broadly, among 32 Somali parents living in the United Kingdom. Results demonstrated that parents of both autistic (n = 16) and non-autistic (n = 16) children were just as likely to identify vignettes of typically developing children, yet parents of autistic children appeared more astute to signs of atypical development. Across the whole sample, parents commonly identified and labelled vignettes of autistic children, but experienced more difficulty labelling vignettes that described children with other forms of atypical development, sometimes mislabeling these children as autistic. This suggests that there is a need for greater support in recognising and identifying different types of atypical development in the Somali community (to mitigate the risk that the term ‘autism’ may take on its own meaning within the Somali community, becoming a euphemism for a range of developmental conditions). Analysis of interview data identified key sociocultural factors that either helped or hindered the inclusion of families with autistic children within the community, including the Somali community’s: (1) perceptions of disability, (2) beliefs about the causes of autism in the Western world and (3) strong reliance on religious beliefs in understanding and accepting an autism diagnosis.
39
Floríndez, Lucía I., Dominique H. Como, Daniella C. Floríndez, Francesca M. Floríndez, Evelyn Law, Jose C. Polido, and Sharon A. Cermak. "Toothbrushing and Oral Care Activities of Autistic and Non-Autistic Latino Children." Children 9, no. 5 (May 18, 2022): 741. http://dx.doi.org/10.3390/children9050741.
Full textAbstract:
Background: Oral care activities, e.g., toothbrushing, are habitual occupations often considered routine. However, for autistic children, performing these routine dental practices can be challenging due to the child’s sensory sensitivities, unique executive function, and the complicated way in which autistic children conceptualize structure and habits. Limited research exists exploring the nuances of oral care routines in the autistic population, and more knowledge is needed to support targeted education interventions to improve oral care and address health inequities. The purpose of this study was to examine videos of oral care routines in the home to understand how oral care activities, such as toothbrushing, were performed by autistic and non-autistic Latino/a children. Methods: Parents/caregivers from eighteen Latino/a families with children between 6 and 12 years old (n = 10 autistic children and n = 8 non-autistic children) video recorded their child’s oral care routines for three days. The research team blindly coded and analyzed these videos using an oral care observation template to understand how these activities were uniquely performed by the children. Results: Eighty-five oral care videos were analyzed for this study. In addition to noting areas of oral care that can be improved, which included length of brushing and using the correct brushing technique, we identified two themes related to the differences between oral care practices in the autistic and non-autistic children: parent involvement and modifications. Conclusions: Qualitative findings show that parental involvement was documented especially in the case of autistic children, and that two types of modifications, habitual and sensory, were observed that demonstrated parents being aware of the needs of their autistic child and modifying the oral care activity to meet those needs. By synthesizing observations from the oral care videos into suggestions for practitioners working with families, we hope to supplement knowledge about effective oral care practices for autistic and non-autistic Latino/a children, thereby improving overall oral health and reducing oral health inequities in this population.
40
Ma’rifah, Asirotul, Naning Puji Suryantini Suryantini, and Rina Mardiyana. "STRATEGI KOPING ORANG TUA TERHADAP ANAK AUTIS DAN POLA ASUH ORANG TUA." Journal of Health Sciences 11, no. 2 (October 25, 2018): 196–204. http://dx.doi.org/10.33086/jhs.v11i2.113.
Full textAbstract:
Autism is still a nightmare for most parents. Parents with autism can be very stressful when dealing with a hyperactive child's behavior, aggressive and passive. Stress experienced by parents of children with autism will affect the ability of parents in the parenting role, especially in relation to coping strategies have in dealing with problems of children. The participation of parents is crucial the success of socializing with children with autism in the general population. This study aims to determine the relationship of coping strategies parents of autistic children and parenting parents. This type of research is an analytic correlation with cross sectional approach. The population in this study were all parents of autistic children in SLB Muhammadiyah Mojokerto numbering 15 people. Samples in this study were all parents of autistic children in SLB Muhammadiyah Mojokerto which totaled 15 people by using total sampling technique. Collecting data using questionnaires. Data analized use cross tabulation, presented in a frequency distribution. On cross-tabulation obtained results tend to use maladaptive coping strategies permissive parenting that is 8 (53.3%), there are also respondents who use adaptive coping strategies using authoritarian parenting as much as one person (16.7%), and adaptive coping strategies tend using democratic parenting style as much as 5 people (33.3%). Expected parents still seeking information to broaden their parents on coping strategies of parents of autistic children and parenting parents as well as parents to give special attention for children with autism to the development and advancement of their lives because they have the same rights as any other normal child.
41
Rahman, Farah Shalsabila, and Rita Destiwati. "The Intrapersonal Communication Model of Parents with Autistic Children in Tangerang." Jurnal Ilmu Komunikasi 20, no. 3 (December 30, 2022): 275. http://dx.doi.org/10.31315/jik.v20i3.7333.
Full textAbstract:
Autism Spectrum Disorder (ASD) is a developmental disability that can cause significant social, communication, and behavioral challenges. Having a child with ASD is an exceedingly important challenge for parents. Parents must deal with their child's repetitive behavior, difficulties with speech, understanding, and uncontrollable tantrums. Parents had to face financial problems regarding the high cost of nurturing their children and the high intensity of negative stigma in the surrounding environment. This situation has not fully received the attention and care of the surrounding community. This study aims to explain and discover the intrapersonal communication model among parents with autistic children in Tangerang. This study uses a descriptive qualitative method with data collection techniques, namely observation and unstructured interviews. Six parents in Tangerang city were selected using purposive sampling. Through four stages, the results of this research show that the intrapersonal communication of parents with autistic children is represented as sad, disappointment, anger, confusion, scared, traumatized, self-acceptance, self-approach to God, treatment attempts, etcetera. This research is conducted to support parents with autistic children to increase their confidence in raising their children. This research also contributes information and education to the public regarding the intrapersonal communication of parents with autistic children.
42
Kocabıyık, Oya Onat, and Yeşim Fazlıoğlu. "Life Stories of Parents with Autistic Children." Journal of Education and Training Studies 6, no. 3 (February 16, 2018): 26. http://dx.doi.org/10.11114/jets.v6i3.2920.
Full textAbstract:
The major aim of this study was to determine how children diagnosed with autism shapes their parents’ lives by specifying parents’ life stories. The study group consisted of 10 parents who have children with autism. Parents who have participated in the study were determined through a preliminary interview prior to the study and in-depth interviews were conducted with volunteer parents. In the study, "Life Story Interview" list was implemented to examine the content of life stories that shape parents’ lives. The data obtained from the research were analyzed using data analysis phases of interpretative phenomenology which is one of the qualitative research models. By analyzing the data obtained in the research, 10 major themes emerged. These major themes include; diagnosis, feeling, hopes and plans, concerns and questions, social reactions / stigmatization, parenting roles, coping with, sensitivity to disease, meaning of life and development. Analyses revealed that parents with autistic children undergo through a wide variety of emotions, challenges and difficulties during their daily lives and also that good coping skill is the key to normal functioning within the family which had an autistic child.
43
Asari, Hasyim, Suri Ana, and Hilmi Yumni. "Caring for Autistic Children Based on the Development of a Family Stress Coping Model." Open Access Macedonian Journal of Medical Sciences 11, G (January 1, 2023): 12–15. http://dx.doi.org/10.3889/oamjms.2023.11141.
Full textAbstract:
BACKGROUND: The limitations of social interaction, communication, cognitive abilities, behavior patterns, and activities in autistic children are sources of stress for parents. Parents’ negative stress assessment of autistic children causes maladaptive coping and has an impact on inappropriate caring behavior. AIM: Caring of autistic children based on the development of family stress coping models METHODS: This research was observational research by utilizing a cross-sectional approach. Participants of parents of autistic children at the Surabaya Autism Therapy Center. The determination of the amount using the rule of thumb formula in SEM is determined by 7 x 15 parameters of 105. Data collection uses a multi-stage random technique. Test the model reliability using the Structural Equation model - Partial Least Square (SEM - PLS), the structure using R Square, and evaluate using Q-square. RESULT: A significant influence occurred toward stress assessment against stress coping and stress coping against parental behavior in caring for children with autism. CONCLUSION: Parents’ positive assessment of stressors and energy adequacy and good health will make parents able to control themselves and make themselves an important psychological resource in developing adaptive coping. The development of adaptive coping for parents can increase togetherness among family members, maintain and reduce physiological and psychological reactions to stressors, and manage family support and professional staff to obtain comfort, attention, or assistance in improving behavior in caring for autistic children.
44
Odabaş Özgür, Bahar, Mürşit Aksoy, Mensure Aydın, Serkan Koçkaya, and Bergün Meriç Bingül. "Determination of mothers’ depression levels by the type of special educational services they get for their autistic children." Journal of Human Sciences 13, no. 3 (December 30, 2016): 6092. http://dx.doi.org/10.14687/jhs.v13i3.4269.
Full textAbstract:
The purpose of this study is to determine the depression levels of mothers by the type of special educational services they got for their autistic children. Mothers of 20 male autistics and 5 female autistics participated in the study as volunteers. %24 of families got educational services from life coaches, %48 from O.Ç.E.M (Autistic Children Education Centers) and %28 from rehabilitation centers. Beck depression scale applied to volunteers to determine the depression levels (SCORES, Life Coach =16±7,05, O.Ç.E.M =13,83±7,05, Rehabilitation Center =25,57±9,28). Data were presented as mean, SD, frequency for description purpose. Variables were analyzed and were calculated by using Kruskal Wallis Test and Mann Whitney U tests. There is a significance difference at level of P<0.05 (p=0,035) between parents which get different types of special educational services. As a result; significant difference has found in the depression levels of parents which get special educational services from rehabilitation centers found more depressive then O.Ç.E.M and life coach services.
45
Chan, Victoria, Carly S. Albaum, Nazilla Khanlou, Henny Westra, and Jonathan A. Weiss. "Parent Involvement in Mental Health Treatment for Autistic Children: A Grounded Theory-Informed Qualitative Analysis." Child Psychiatry & Human Development, October 17, 2023. http://dx.doi.org/10.1007/s10578-023-01621-x.
Full textAbstract:
AbstractCognitive behavior therapy (CBT) is an effective treatment for many autistic children experiencing mental health problems, and parents are particularly involved in their psychotherapy. This study presents a conceptual framework of successful parent involvement in CBT for autistic children. Seventeen therapists (94% female) and 11 mothers were interviewed about their involvement in a CBT program for autistic children ages 8–13 years. The conceptual framework depicts how parent involvement varies depending on child, parent, and environmental factors. Parents’ contributions to therapy were grouped into five main roles. Parents’ beliefs and attitudes toward therapy also influenced their involvement. This is the first study to empirically investigate how parents of autistic children contribute to the therapeutic process in CBT.
46
Radev, Sarah, Megan Freeth, and Andrew R. Thompson. "‘I’m not just being difficult . . . I’m finding it difficult’: A qualitative approach to understanding experiences of autistic parents when interacting with statutory services regarding their autistic child." Autism, November 24, 2023. http://dx.doi.org/10.1177/13623613231212794.
Full textAbstract:
The experiences of autistic parents when interacting with statutory services for their autistic children is not well understood. This study investigates the experiences of autistic parents’ interactions with statutory services, including education and healthcare, in relation to their autistic children. Interpretative Phenomenological Analysis was used to investigate their experiences. Ten autistic mothers of autistic children in mainstream education completed semi-structured interviews, which were co-developed with autistic parents. Two superordinate themes were developed: (1) The wider system is the problem and (2) Feeling judged and stigmatised. While Theme 1 demonstrates some similarities in the experiences of autistic parents to that of non-autistic parents in previous studies, theme 2 is unique to autistic parents who may feel that they are being treated differently. These themes indicate the importance of training encouraging a strength-based rather than deficit-based understanding of autism. Participants highlighted the wider system is the problem rather than individual professionals, and that it places some families at a disadvantage. Lay abstract Becoming a parent is an important part of adult life for many people, including autistic people. Many parents of autistic children can find getting the right support for their children difficult. Knowledge is currently poor about how this is experienced by parents who are also autistic themselves. The main researcher is also an autistic parent to an autistic child and other experts by experience were consulted in the development of the study. Ten autistic mothers with autistic children in mainstream education were interviewed about their experiences of seeking support for their autistic children from services such as healthcare and education. Participants talked about finding the overall system being the main problem, rather than the individuals working in it, and about needing to fight to get the right support for their children. These are points that non-autistic parents have also raised before. Participants also talked about feeling judged and stigmatised for being autistic, and about struggling to manage sensory and communication difficulties, which is something that has not been talked about by non-autistic parents. Improving services to offer better support to autistic families is important and can be achieved through better training. This training should be developed and run by autistic adults and focus on positive aspects of autism, rather than negative.
47
Northrup, Jessie B., Kaitlyn B. Cortez, Carla A. Mazefsky, and Jana M. Iverson. "Expression and co-regulation of negative emotion in 18-month-olds at increased likelihood for autism with diverse developmental outcomes." Autism, February 26, 2024. http://dx.doi.org/10.1177/13623613241233664.
Full textAbstract:
Emotion dysregulation is a common challenge for autistic individuals, yet research examining early emotion regulation processes in autism is lacking. The present study examined negative emotion expression and parent-child co-regulatory processes in 18-month-old younger siblings of autistic children (children with an “elevated likelihood” (EL) of autism) with diverse outcomes: autism, language delay without autism (EL-LD), and no delay/diagnosis (EL-ND). Thirty-nine toddlers were videotaped at home with a parent. Negative emotion and parent co-regulatory responses were coded from the video. Results indicated that autistic toddlers exhibited more high-intensity negative emotion than EL-ND toddlers. The likelihood of negative emotion continuing once initiated was higher for autistic and EL-LD toddlers. Parental co-regulation strategy use was similar across groups. Parental co-regulation reduced the likelihood of continued negative emotion, although the effect appeared somewhat weaker for autistic toddlers. This research corroborates evidence that increased risk for heightened and prolonged negative emotion starts early in autistic children and, to a lesser extent, in EL-LD children. Parents of all children were highly responsive, but coregulatory responses may be less effective at reducing negative emotions for autistic children. While more research is needed, the present study contributes to our understanding of the unique emotional experiences of autistic toddlers. Lay Abstract Managing negative emotion can be challenging for autistic individuals and their families from a young age. Parents help young children manage negative emotions by responding in comforting or supportive ways. Not much research has examined how negative emotions and parent responses to negative emotions are different in very young autistic children. This study used videotapes of 18-month-old toddlers and parents at home. We examined how much and how intensely toddlers expressed negative emotion in everyday situations, and how parents responded. Participants were younger siblings of autistic children, and we compared three groups—children that (1) later received an autism diagnosis; (2) had language delays but not autism; and (3) had no delays or autism. We found that autistic toddlers’ negative emotion was more likely to be intense and to continue once it started compared with children without delays or autism. Language-delayed toddlers also showed some, but not all these differences. Parents responded similarly to negative emotions in all groups. When parents used strategies to help, it reduced the chances of the negative emotions continuing, although it may have been less helpful for autistic toddlers. This study shows that autistic children may express more intense and long-lasting negative emotions from an early age. It also shows that parents of autistic children are very responsive to their children’s negative emotions, but these responses may not be as helpful to autistic children. While more research is needed, this study helps us understand how autistic toddlers may express and experience emotions differently.
48
Columna, Luis, Justin A. Haegele, Ashlyn Barry, and Laura Prieto. "“I Can Do It”: Perceived Competence of Parents of Autistic Children After Participating in a Physical Activity Intervention." Journal of Physical Activity and Health, 2024, 1–8. http://dx.doi.org/10.1123/jpah.2023-0669.
Full textAbstract:
Background: Autistic children can benefit from physical activity (PA) in a variety of ways. However, autistic children tend not to meet PA recommendations and, consequently, may not experience the associated benefits. Parental PA support can facilitate PA participation among autistic children, but parents of autistic children may lack the skills to help their child engage in PA. Few studies, to date, have examined the outcomes of parent-mediated PA interventions for autistic children. The purpose of this study was to explore parents’ perceived behavioral control (PBC) to support their autistic children in PA after their participation in a PA intervention. Methods: The theory of planned behavior served as the framework for this descriptive–qualitative investigation. Fifteen parents (each with 1 autistic child in the intervention) participated in semistructured interviews (3 wk after the intervention), which were transcribed and then analyzed using thematic line-by-line analysis. Results: Three themes characterized the changes to parents’ PBC after completing the PA intervention. Those themes were: (1) I learned by son! (2) You are my coach! and (3) I can do it! Conclusions: The results showed that by participating in a parent-mediated PA intervention, parents experienced improved confidence and awareness of their child’s abilities, thus enhancing their PBC. Future research is needed to examine how these improvements in PBC may influence the actual PA behaviors of autistic children.
49
McAuliffe, Tomomi, Brittany Apps, and Jenny Setchell. "Using Relationship Development Intervention with Autistic Children and Their Families: The Experiences of RDI Consultants in Australia." Journal of Developmental and Physical Disabilities, August 12, 2023. http://dx.doi.org/10.1007/s10882-023-09925-5.
Full textAbstract:
AbstractCommunication and interaction in neurotypical environments can be challenging for autistic individuals, potentially disrupting the parent-child relationship. In Relationship Development Intervention (RDI) that facilitates improved interactions between autistic children and their parents, RDI Consultants play key roles in enabling parents to develop skills that support the parent-child relationship. Parents follow the guidance of the Consultants to build their capacities to model reciprocal communications with their autistic children. Given the significant role played by the Consultant, their perspectives should be explored. Two research questions were explored: 1) What are the lived experiences of RDI Consultants in delivering RDI to autistic children and their families? 2) What are RDI Consultants’ perspectives regarding the outcomes of engaging in RDI for autistic children and their families? Eleven RDI Consultants participated in semi-structured interviews to explore their experiences in using RDI. Interviews were conducted via Zoom. All interviews were transcribed verbatim and thematically analysed. Three main themes were produced: 1) RDI helps autistic children reach their potential; 2) Parents learn to embrace parenthood through RDI; and 3) Consultants form a team with parents. Overall, RDI was perceived to be beneficial in improving autistic children’s social engagement, such as parent-child interactions, as well as enhancing parenting experiences. The results add to and extend the existing evidence of RDI, which may provide families of autistic children and those professionals who are working with these families more therapeutic choices to consider. Future research implications for parents and health professionals involved in therapies are discussed.
50
Brandi Gomes Godoy, Priscilla, Lorna McWilliams, Leticia Rodrigues da Silveira, Mirian de Cesaro Revers Biasão, Fernanda Speggiorin Pereira Alarcão, Leonardo Seda, Renata Generoso Campoli, et al. "Acceptability and feasibility of a parent-mediated social-communication therapy for young autistic children in Brazil: A qualitative implementation study of Paediatric Autism Communication Therapy." Autism, January 1, 2023, 136236132211445. http://dx.doi.org/10.1177/13623613221144501.
Full textAbstract:
Effective support for autistic individuals is lacking in Brazil. Few centres offer services and those that do are limited in therapeutic options and geographical location. Paediatric Autism Communication Therapy is a low-intensity, evidence-based parent-mediated social-communication intervention that may be useful for this scenario. This implementation study aimed to assess the acceptability and feasibility of Paediatric Autism Communication Therapy for young autistic children (aged 2–10 years) in Brazil. Parents ( n = 18) of 2- to 10-year-old autistic children and clinicians ( n = 20) who work with autistic children in Brazil were interviewed and the data analysed using thematic analysis to explore their perceptions concerning the acceptability and feasibility of Paediatric Autism Communication Therapy. In addition, Paediatric Autism Communication Therapy was delivered to a case series of 15 further parent–child dyads; these parents were interviewed at the end of the therapy, and the data were analysed using thematic analysis. All parents and clinicians had favourable opinions about the acceptability, feasibility and perceived effectiveness of a parent-mediated intervention conducted mainly in the home. However, they also highlighted obstacles concerning the implementation of Paediatric Autism Communication Therapy in Brazil, especially related to engaging Brazilian parents in a parent-mediated model of therapy. Based on these data, minor adaptations were made to the original Paediatric Autism Communication Therapy protocol to facilitate the implementation of the intervention in Brazil. Lay abstract Parents of autistic children and health professionals who work with autistic children in Brazil had positive views about introducing Paediatric Autism Communication Therapy as a therapy for autistic children in Brazil. The parents and clinicians also mentioned some difficulties about using Paediatric Autism Communication Therapy in Brazil. We made adaptations to Paediatric Autism Communication Therapy to address these difficulties. Paediatric Autism Communication Therapy is a therapy to support the development of social and communication skills for autistic children aged 2–10 years. The therapy is conducted with the autistic child’s parent. Paediatric Autism Communication Therapy has not been used in Brazil before. There are few therapy options available for autistic children in Brazil and we believed that Paediatric Autism Communication Therapy may be useful. We asked three groups of people in Brazil about their views of Paediatric Autism Communication Therapy, after explaining how the therapy works. Group 1 included 18 parents of autistic children aged 2–10 years. Group 2 included 20 health professionals such as psychologists who work with autistic children. Group 3 included 15 parents of autistic children aged 2–7 years who received the Paediatric Autism Communication Therapy. We learned that parents and clinicians felt that Paediatric Autism Communication Therapy would be a beneficial therapy for autistic children in Brazil. We also found out about the challenges of using Paediatric Autism Communication Therapy in Brazil. We used these findings to make small cultural adaptations to Paediatric Autism Communication Therapy to make it more suitable for Brazil.