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Journal articles on the topic "Parents of autistic children Australia Attitudes"
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Boy, Hendry, Rina Kurnianti, and Satria Al Fatiha. "Knowledge and Attitudes of Parents with Prevalence of Autism in Children in Schools with Special Needs (SABK) Unggul Sakti Jambi City." Jurnal Kesehatan Gigi 6, no. 2 (December 31, 2019): 130–35. http://dx.doi.org/10.31983/jkg.v6i2.5490.
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Oral and dental health is important for anyone, including children with special needs. According to the Ministry of Health of the Republic of Indonesia, the role of parents, especially mothers, is very important in maintaining the cleanliness of their child's teeth and mouth. Especially in autistic children, caries and gingivitis are encountered, and while their behavior will cause dental care to be rather difficult. Dental caries is a dental tissue disease characterized by tissue damage, starting from the surface of the tooth extending towards the pulp. The study was to determine the relationship of knowledge and attitudes of parents with the prevalence of dental caries in autistic children in the School of Children with Special Needs of Jambi City. This study used a cross sectional approach. The sampling technique used was purposive sampling as many as 30 respondents. The measuring instruments used were questionnaires and dental caries observation sheets. Prevalence of dental caries was 77% or 23 children had caries, knowledge of parents of autistic children was 86.7% or 26 people had high criteria while those with moderate criteria were 13.3% or 4 people and attitudes in parents of autistic children were as much as 76.7% or 23 people have good criteria while those that have good criteria are 23.3% or 7 people. There is relationship between the level of knowledge of parents with the prevalence of dental caries in autistic children (p value = 0.031) and OR = 16.5 and there is relationship between attitudes of parents with the prevalence of dental caries (p value = 0.033), and OR = 8.88. There is a significant relationship between the level of knowledge of parents with the prevalence of dental caries in autistic children and there is a significant relationship between attitudes of parents with the prevalence of dental caries.
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Smith, Jodie, Rhylee Sulek, Ifrah Abdullahi, Cherie C. Green, Catherine A. Bent, Cheryl Dissanayake, and Kristelle Hudry. "Comparison of mental health, well-being and parenting sense of competency among Australian and South-East Asian parents of autistic children accessing early intervention in Australia." Autism 25, no. 6 (April 25, 2021): 1784–96. http://dx.doi.org/10.1177/13623613211010006.
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Parents from individualist cultures (those focused on autonomy of individuals; that is, Australian) may view their autistic children differently compared to parents from collectivist cultures (where community needs are valued over an individual’s, that is, South-East Asian cultures). As most research on autism and parenting has been undertaken in Western individualist cultures, knowledge of parenting beliefs and mental health within collectivist cultures is lacking. We compared the mental health, quality of life, well-being and parenting sense of competency between families raising an autistic child from two groups: 97 Australian parents and 58 parents from South-East Asian backgrounds. Children from both groups were receiving the same community-based early intervention. No group differences were found on the measures of mental health but, when compared to Australian parents, parents from South-East Asian backgrounds reported higher well-being and less impact on their quality of life resulting from their child’s autism-specific difficulties. Furthermore, a positive association between well-being and quality of life was only observed for South-East Asian parents. Hence, the views of, and responses to, disability for South-East Asian parents may act as a protective factor promoting well-being. This novel research indicates that culture plays a role in parenting autistic children and highlights the need to accurately capture cultural background information in research. Lay abstract We know that parents of autistic children experience poorer mental health and lower well-being than parents of non-autistic children. We also know that poorer mental health among parents of autistic children has been observed across different cultures. Most research focuses on Western cultures, so we know little about parental mental health and well-being of parents from different cultural backgrounds; yet, it is likely that cultural background contributes to how parents view their child’s condition and respond to the diagnosis. Here, we compared mental health, quality of life and well-being between families raising an autistic child from Australian backgrounds to families from South-East Asian backgrounds. All children in the current study were receiving the same community-based early intervention. When compared to the general population, parents had poorer mental health overall, but there were no differences between the two groups of parents. However, parents from South-East Asian backgrounds reported higher well-being and fewer difficulties associated with their child’s autism. These findings suggest that cultural background likely influences not only parent’s view of, and response to, their child’s autism, but also their own sense of well-being. As researchers and clinicians working with families of autistic children, we should more explicitly consider family’s cultural background within our work.
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Lilley, Rozanna, Mikala Sedgwick, and Elizabeth Pellicano. "Inclusion, acceptance, shame and isolation: Attitudes to autism in Aboriginal and Torres Strait Islander communities in Australia." Autism 24, no. 7 (June 12, 2020): 1860–73. http://dx.doi.org/10.1177/1362361320928830.
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This is the first qualitative study to investigate experiences of, and attitudes towards, autism in Aboriginal and Torres Strait Islander communities in Australia. Understanding the complexity of these attitudes is crucial because they influence the recognition of autism as well as the ways in which individuals and families are supported. Twelve families with 16 autistic children living in diverse regions of Australia participated in a semi-structured interview. The interviews were thematically analysed using the six-step process outlined by Braun and Clarke. The analysis identified a marked tension in participants’ accounts. On the one hand, participants described negative feelings, including shame associated with atypical behaviour, stigmatisation and the social isolation of families, which potentially point towards under-identification or misdiagnosis. On the other hand, they also described inclusive attitudes, including ‘looking after each other’ and a growing acceptance of autistic differences. This positive model of support for and acceptance of autistic children and their families may well contribute to good outcomes for autistic children and adults in Aboriginal and Torres Strait Islander communities. More research is needed on cross-cultural and pluralistic understandings of autism, parental perceptions and family experience. Lay Abstract There has been almost no research done about autism in Aboriginal and Torres Strait Islander communities in Australia. This article is the first detailed report on attitudes to autism in these communities. Understanding attitudes to autism is important because they influence whether or not children are diagnosed, as well as the kinds of support autistic people are getting. Twelve families who lived in different parts of Australia were interviewed. They told us that there is a range of attitudes to autism in Aboriginal and Torres Strait Islander communities. These include negative ideas such as sometimes feeling shame associated with children’s unusual behaviour, as well as feeling stigmatised and socially isolated. The negative attitudes reported may mean that some children are missing out on an autism diagnosis or being wrongly diagnosed with a different condition in these communities. They also included positive ideas such as the importance of looking after each other and of accepting autistic people and their differences. We can all learn from these positive attitudes. It will be interesting to know in future projects whether these accepting attitudes lead to better outcomes for autistic children and adults in these communities. This research helps us to understand how autism is thought about in different cultures and how attitudes impact diagnosis and support. It will also help people to plan supports that reflect what Aboriginal and Torres Strait Islander families actually want and need.
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Martiani, Maria, Elisabeth Siti Herini, and Martalena Purba. "Pengetahuan dan sikap orang tua hubungannya dengan pola konsumsi dan status gizi anak autis." Jurnal Gizi Klinik Indonesia 8, no. 3 (January 1, 2012): 135. http://dx.doi.org/10.22146/ijcn.18209.
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Background: The prevalence of autistic spectrum disorder (ASD) has increased in recent years. In 1993 the prevalence of ASD was 2-4 cases per 10.000 children. The number increased significantly to 152 cases per 10.000 children in 2003 (0.15-0.2%). In addition to diet, nutritional status can be influenced by parent’s knowledge and attitudess toward children with autism. Improving parent’s knowledge and attitudess about autism can be an effective way to manage children with autism.Objective: To examine the relationship between parent’s knowledge and attitudes toward autism with dietary pattern and nutritional status of autistic children in SLBN Semarang.Methods: This was an observational study with cross sectional design. The subjects were students with autism who attended SLBN Semarang and their parents. A questionaire was used to collect the information on parent’s knowledge and attitudes toward autism, Food Frequency Questionnaire (FFQ) was used to obtain the data on gluten and casein consumption, whereas the data on nutritional status were measured by weight and height of the children. Chi square and Fisher Exact test were used to analyze the data.Result: As many as 55.3% of parents have good knowledge and 65.8% have a possitive attitudes toward autism. Fifty percent of children presented with good consumption pattern of gluten, 65% exhibited good consumption pattern of casein and 55.3% of autistic children had good consumption pattern of both gluten and casein. Almost half (47.4%) of the children were undernourished. There were no association found between parent’s knowledge and gluten and casein consumption (p>0.05); parent’s knowledge and nutritional status (p>0.05); and parent’s attitudes and nutritional status (p>0.05). Only parent’s attitudes towards autism was found to be associated with casein and gluten consumption pattern (p<0.05).Conclusion: There was a significant association between parent’s attitudes and consumption of gluten and casein in children with autism.
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Nurhafni, Nurhafni. "TINGKAT PENGETAHUAN DAN SIKAP ORANG TUA YANG MEMILIKI ANAK AUTIS TENTANG TUMBUH KEMBANG ANAK AUTIS DI KLINIK FADIRA BINJAI TAHUN 2018." COLOSTRUM : Jurnal Kebidanan 2, no. 1 (January 14, 2021): 44–50. http://dx.doi.org/10.36911/colostrum.v2i1.907.
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Growth is increasing in size and the cell size of all parts of the body, development is increasing body structure and function that is more complex in the ability to coarse motion, smooth motion, speech and language and socialization and independence. Autism is a neurobiological development disorder that is very complex / long in life, which includes disturbances in aspects of social interaction, communication and language, and behavior and emotional disturbances and sensory perceptions even in the motor aspects. Autistic symptoms appear before 3 years of age. Knowledge is the result of "knowing" and this occurs after people have sensed a particular object. Attitude is the most important concept in social psychology that addresses the elements of attitudes both as individuals and groups. The type of research used in this research is descriptive method. This research was conducted at the Fadira Binjai clinic. Data collection is taken using primary data. With a sample of all the total population (total sampling) all parents who have autistic children in the fadira Binjai clinic. The results showed that there were 17 parents (56.67%) with good knowledge of autistic children and 5 (16.66%) good knowledge. Parents who have autistic children have a positive attitude of 17 people (56.67%) and have a negative attitude of 13 people (43.33%). From the results of the above research, it is expected that parents who have autistic children in order to increase their understanding of autism and the development of autistic children can through group discussions with a nurse doctor or midwife, friends to find out information through magazine and television books.
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Hartami Santi, Indyah. "THE DESIGN OF EXPERT SYSTEM APPLICATION FOR DIAGNOSING AUTISM DISORDERS IN CHILDREN." JARES (Journal of Academic Research and Sciences) 4, no. 2 (September 1, 2019): 11–19. http://dx.doi.org/10.35457/jares.v4i2.757.
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The level of public understanding of autistic disorders and how to handle them that still lacking is the main reason in this study. How to know that a child has an autistic disorder or not is generally done by manual and simple way, it done by filling out a checklist or questionnaire that contains facts, attitudes and behaviors that often appear in children. The checklist is filled by parents who will then be observed again by the therapist to get clear, accurate, and reliable results. The weakness from this method in diagnosing there is an autistic disorder or not is it must involve therapists/experts who are currently still few in number.
The purpose of this study is to make a software namely an expert system application that able to diagnose autistic disorders in children that are tailored to the needs of parents. The results of this study are a series of product design systems for expert systems to diagnose autistic disorders in children including ongoing system flowcharts, computerized system flowcharts, Data Flow Diagrams, application program flowcharts and display of application programs that have been built. The results of designing expert system software applications are expected to be used by therapists in diagnosing children who come to consult
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Gergely, Roland, and Alina S. Rusu. "A qualitative investigation of parental attitudes and needs for sexual health education for children with autism in Romania." Journal of Educational Sciences & Psychology 11(73) (2021): 64–75. http://dx.doi.org/10.51865/jesp.2021.2.08.
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Parents play an important role as primary educators in the sexual education of children diagnosed with autistic spectrum disorder (ASD). This current study investigates by using a qualitative approach the attitudes and needs of parents regarding the sexual health education (SHE) of their ASD children. A sample of N=19 parents with ASD children and adolescents was included in the study. Data were collected with an online questionnaire (with 11 items referring to aspects of sexual health education). The answers were analyzed by performing qualitative content analysis. The results indicate that most of the parents are open towards sexual health education for their ASD children starting at 8-12 years and, if possible, embedded in therapeutic programs. Parents expressed that they encounter difficulties regarding the communication and recognition of signs of interests of their children towards sexuality. The majority of parents expressed willingness towards participation to parental SHE programs.
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Liang, Bridget. "Divided Communities and Absent Voices: The Search for Autistic BIPOC Parent Blogs." Studies in Social Justice 16, no. 2 (March 11, 2022): 447–69. http://dx.doi.org/10.26522/ssj.v16i2.3407.
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Both autistic adults and families of autistic children rely heavily on blogs and other digital platforms to create community and gain experiential knowledge about autism, but research on autism blogs has failed to distinguish between the perspectives of autistic adults and neurotypical parent bloggers. Furthermore, intersections in the experiences of BIPOC autistics are rarely examined. Using a content analysis with a feminist Critical Disability Studies lens, I explore six autism parent blogs from diverse demographics: a white neurotypical father, a white autistic mother in an interracial relationship, a white neurotypical mother, an Indigenous autistic trans father, a Black autistic nonbinary mother, and a Black neurotypical mother. I examine the attitudes of these bloggers to get a sampling of their opinions on autism, how they parent autistic children, and how their social location, specifically race, impacts their experiences. More intersectional research needs to be done to boost the perspectives of BIPOC autistics and the expertise of autistic parents.
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Abdizadeh, Hadis, Jane Southcott, and Maria Gindidis. "Attitudes of Iranian Community Parents in Australia towards their Children’s Language Maintenance." Heritage Language Journal 17, no. 3 (December 31, 2020): 310–31. http://dx.doi.org/10.46538/hlj.17.3.1.
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Issues of language shift (LS) and language maintenance (LM) are inevitable consequences of globalization and increased mobility of human populations. This qualitative case study investigated attitudes of migrant parents from Iran towards Persian community language maintenance (CLM) for their school-age children in Australia. Ten parents residing in Melbourne, Victoria were interviewed in two groups and demographic data were collected. The participants were seven female and three male parents who had at least one school-age child. In this qualitative case study, data were analyzed thematically. Three major themes concerning Persian CLM were identified: parents’ attitudes, strategies adopted for maintenance, and challenges for their children. The parents believed that CLM supported cultural identity, preserved family cohesion, and fostered bilingualism, all of which were considered valuable future skills for their children. Interviewees adopted diverse strategies including the establishment of family language use policies, sending their children to Iranian community language school, frequent contacts with extended family in Iran, and the use of Persian media and literature. The influential role of siblings and peers in their children’s language shift, and a lack of age-appropriate Persian books and visual materials were the main challenges to CLM mentioned by the parents in this research.
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Iner, Derya. "Faith-Inspired Muslim Parents’ School Choices and Attitudes in the Cultural West and Australia." Religions 12, no. 9 (September 10, 2021): 746. http://dx.doi.org/10.3390/rel12090746.
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All parents want the best accessible, available and affordable school for their children. Yet, the literature highlights that school choice for middle-class parents in the cultural West is a deliberate decision and a reflection of their salient identities. For racialised middle-class Western parents, school choice is an instrumental investment to secure social upward mobility and minimise the harms of racism for their children. Research focusing on Western middle-class Muslim parents highlights that accommodation of Muslim identities and ethno-religious values is pivotal in parental school choice. This is expected due to the rise of Islamophobia in the cultural West since 9/11. The semi-structured interviews with faith-inspired middle-class Muslim parents in Australia bring a new dimension to the parental school choice literature. Regardless of carrying more or less similar concerns for their children in an Islamophobic climate, middle-class Muslim parents’ school choices vary based on their childhood schooling experiences in the Australian context, diverse parenting styles and mentalities and their children’s varying personalities demanding a particular type of school setting. This article demonstrates there is no one size fits all Muslim parent in terms of deciding which school is the best for their children in an Islamophobic climate.
Dissertations / Theses on the topic "Parents of autistic children Australia Attitudes"
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Woodward, Debbie Louise. "(A) Views to autism held by parents and clinicians; (B) attitudes towards adults with mental illness." Thesis, University of Birmingham, 1994. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.341661.
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Candy, Judith. "Early education : experiences and perceptions of minority group parents and young children." Thesis, Edith Cowan University, Research Online, Perth, Western Australia, 2004. https://ro.ecu.edu.au/theses/783.
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In Australia there has been little research into the experiences and perceptions of education of parents from different minority groups whose young children attend school in this country. This study investigated the experiences that overseas born parents from non-English speaking backgrounds have of their own and their children's education in countries outside Australia, experiences of their children's early education in Australia, as well as those of their young children between 6 and 9 years of age attending school in this country. Despite marked differences in educational policies and practices operating in the participants' countries of origin, almost all parents in this study had experiences of education in childhood which were unlikely to be conducive to the building of warm and friendly future relationships with teachers and schools. Feelings of fear and hostility due to the extremely formal role methods, repressive discipline, and harsh corporal punishment administered by authoritarian and often cruel teachers, particularly in early primary years, were consistently described as pervasive elements in the education of most of the parents participating. In contrast, many aspects• of education in Australia were regarded as superior, however unsatisfactory communication, lack of awareness and interest demonstrated by schools and teachers meant that many of these parents also had negative experiences of education in this country. Dissatisfaction with their children's progress resulting in feelings of powerlessness due to the perceived lack of information, concerns about insufficient academic rigour, motivation and discipline were a source' of anxiety for many participants. Discussions with the young children of participants revealed their preferences for non academic activities outside the classroom, and those involving creativity •and/or• motor skills. Children's dislikes related mainly to relationships with their peer group, with difficulties in making /retaining friendships, bullying and racism as issues of concern. Relationships with teachers seemed to be both positive and negative, however little help with problems concerning the peer group seemed forthcoming, and minimal evidence of positive affirmation of the cultural and linguistic differences of these children was noted. Recommendations and implications include the need for teachers and schools to develop more cultural awareness in order to understand the differing perspectives of linguistically and culturally diverse families, and appreciate the role that parents’ prior experiences of education play in the formation of attitudes towards their children’s education. The importance of improving relationships, building authentic collaborative partnerships between teachers and minority group parents, and providing more information about school goals and programmes with opportunities to discuss these freely, is stressed. The use of overseas born parents’ expertise and home experiences both as resources to facilitate optimum outcomes for their children, and a means of increasing respect, understanding and trust between linguistically and culturally diverse families and the “mainstream” school population, is also strongly recommended.
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Panaccione, Kathleen Marie. "The Efficacy and Feasibility of a Context-Specific Autism Behavior Rating Tool with Real Time Data Collection Methods from the Perspectives of Clinicians, Educators, and Parents." PDXScholar, 2016. http://pdxscholar.library.pdx.edu/open_access_etds/3293.
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The incidence of autism has increased tremendously over the past 20 years; however, the tools used for diagnosis and educational identification have largely remained the same. Diagnostic and educational decisions are based on observations and interactions to identify hallmark skill deficits associated with autism. Research demonstrates behaviors are affected by the environment, and real-time data collection is more accurate than reflective methods.
The problem is current autism diagnostic and educational identification tools lack essential features. The Autism Diagnostic Observation Schedule (ADOS), considered the gold standard, relies on contrived settings, and lacks an observational comparison to same aged peers. Autism behavior rating scales, rely on reflective data collection, and are not context specific.
The purpose of this study was to gain feedback from stakeholders (clinicians, educators, parents) about the perceived efficacy and feasibility of a context-specific autism behavior rating tool with real time data collection methods for diagnosis and educational planning. Results showed stakeholders confirmed the perceived efficacy of the context-specific tool for improved accuracy for diagnosis, more specific information for educational planning, and increased understanding for parents to support their child's learning needs.
Even though the tool was useful, stakeholder feedback also indicated the tool lacked feasibility for teacher use and may be better suited for administration by school psychologists or other trained professionals. The increased specificity and accuracy provided by a context-specific autism behavior rating tool has the potential to affect the future of autism evaluations and educational planning; thereby influencing the future life function of individuals with autism.
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Vargas, Liliana. "Autism and family functioning: The role of parental coping." CSUSB ScholarWorks, 2006. https://scholarworks.lib.csusb.edu/etd-project/3092.
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The present study employed a family systems approach to investigate the effects of level of autism severity on family functioning as mediated by parental coping. Participants were mothers of children with autism who were volunteers in an ongoing research program conducted within a university-based treatment center (N=146). Gilliam Autism Rating Scale, Second Edition (GARS-2) scores were available for all of the children and, as part of the broader program, parents completed the Coping Scale for Adults, which assesses a range of coping styles, and the Family Environment Scale, which provides positive and negative indicators of family functioning. Data analyses indicated that nonproductive coping significantly mediated the relationship between level of autism severity and family cohesion and conflict. Results also suggested that level of autism severity was negatively related to family conflict. The study further examined the use of specific coping styles on family cohesion and conflict. Evaluation of findings suggest that parents who have a child diagnosed with severe autism may be employing maladaptive coping strategies, such as wishful thinking, blaming one's self, or avoiding the situation. Implications for intervention approaches for individuals working with families of children with autism are suggested.
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O'Hara, Deborah Gwyn. "The effects of childhood Autistic Spectrum Disorder on mother's reports of closeness to their sons." CSUSB ScholarWorks, 2004. https://scholarworks.lib.csusb.edu/etd-project/2514.
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Hawes, Janelle M. "An examination of fathers' satisfaction with the legal system: Exploring the concept in relation to fathers' experience with the Family Law Court of Western Australia." Thesis, Edith Cowan University, Research Online, Perth, Western Australia, 2004. https://ro.ecu.edu.au/theses/822.
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Although the importance of fathers' post divorce contact with their children has been linked with a better outcome for the children and is valued by society, studies in the United States and Australia have suggested that up to 30 percent of fathers do not maintain regular contact with their children post divorce. To date, the literature has focused mainly on demographic variables and some personal characteristics of the father. An area, which has been neglected, is the influence of fathers' perception of legal proceedings and rules on their contact with their children post divorce. This study aimed to explore the underlying concepts of satisfaction and examine fathers' perception of satisfaction in relation to their experience with the Family Court of Western Australia. This was done by utilising qualitative research methodology. Twenty·four fathers were interviewed using an interview schedule adapted from Tyler (1988). Results from the present study indicated that fathers' satisfaction was primarily influenced by a favourable outcome in relation to contact with their children. Factors found to result in dissatisfaction included fathers’ feelings that their father role had been eroded, a perceived bias by the family law system in favour of the mother, and a lack of legal assistance and limited availability of legal personnel. In order to clarify a number of issues, a subset often fathers from the original sample were re-interviewed. Further analysis confirmed that fathers' unresolved issues in relation to their separation; strong emotions including anger and distress during the court process; and unrealistic expectations in relation to contact with their children, made dissatisfaction with the legal system, and in particular court outcomes, more likely. This research suggests that early intervention for fathers is needed to allow them to address any unresolved issues surrounding their separation, and the emotions such as anger and grief that often follow separation. Services, which provide legal assistance and direction prior to entering and during legal proceedings, also appear to be necessary.
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Yates, Julie F. "MMR uptake in Somerset following the 2009 national catch-up campaign : factors affecting parents' decisions to accept or decline immunisation." Thesis, University of Stirling, 2015. http://hdl.handle.net/1893/23247.
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Introduction and Background: Measles, mumps and rubella (MMR) are infectious diseases, primarily of childhood, which cause significant mortality and morbidity globally. These infections are, however, vaccine preventable and there is potential for them to be eradicated worldwide through the strategic use of organised population immunisation programmes. Following the introduction of the MMR vaccination in the UK in 1988, uptake was initially good and a high level of population vaccination coverage was achieved. This was sustained until 1998 when a study by Dr Wakefield and colleagues was published in the Lancet suggesting the theoretical possibility of an association between MMR and Autism/bowel disease. Intense media coverage followed, uptake of MMR vaccine fell to less than 80% in Somerset, and community outbreaks of measles, which had almost been eliminated in the UK, began to reappear. The Wakefield study was subsequently discredited and was eventually retracted by the Lancet in 2010. In August 2008 the Chief Medical Officer announced a national MMR catch-up campaign, targeting all children between the age of 13 months and 18 years who had either not been vaccinated against measles, mumps and rubella, or had only partial immunisation. These children were invited again for vaccination and the campaign was completed in January 2009. This study was undertaken to explore, in depth, the quantitative data available in respect of the uptake of MMR at the time of the 2009 campaign, and also to provide new qualitative data in relation to the attitudes, beliefs and experience of MMR and immunisation services of parents who continued to decline MMR for their children after the 2009 campaign, in order to identify factors which affected parental decision-making, add to the wider knowledge base, and to use this knowledge to improve the future development of immunisation services in Somerset. Methods: The overall objective of the study was to investigate a number of social, demographic and geographic characteristics of parents and children associated with MMR uptake, to compare these characteristics within and between defined sub-sets of the Somerset population, and to explore the basis on which parents in Somerset make decisions in relation to MMR immunisation. The study design adopted was a ‘mixed methods’ approach comprising of a cross-sectional design with three sequential phases - an exploration of baseline epidemiological data; a survey conducted with parents of children who remained unimmunised after 2009; and finally, semi-structured interviews with a sub-set of these parents. Results: The key findings from the study are: Parents who decline MMR for their children are not a homogenous group, but consist of a number of sub-groups each of which have different motives, decision pathways and predicted outcomes in relation to potential to change their mind and accept MMR There are differences in geographic distribution between the two age groups investigated Whilst the ‘Wakefield’ study did, and still does have, an impact, it is not the only or most important factor in their continuing decision-making. There is evidence that health professionals have a key role in addressing parental concerns in respect of immunisation. GP practice was the most significant factor associated with uptake in the Phase 1 study, and this was further confirmed in interviews with parents. Parents make decisions through engagement, through communicating and relating to others and this offers a potential mechanism for health professionals to influence decisions through open engagement with parents. Discussion and Conclusions: Three parent sub-groups were identified (Single Vaccines; Medical Comorbidities and Natural Health). These sub-groups were further investigated and factors associated with the decision-making pathways of each group were identified. This resulted in the development of the ‘MMR Parent Engagement Framework’ as a tool for use by professionals in planning their interactions with parents to improve and encourage more open dialogue in order to positively influence parental decision-making in relation to accepting MMR or other vaccinations. From a commissioning perspective, embedding frameworks such as this in service specifications offers a more cost-effective approach to improving immunisation uptake than funding large, poorly targeted catch-up campaigns. It is therefore recommended that further research is undertaken to provide evidence of the effectiveness of the approach in practice, and to inform future commissioning decisions. Additional recommendations to improve the effectiveness and delivery of immunisation services are also made in respect of GP Practice specific factors, independent schools, ethnic minority communities, vaccine overload, media, and data validation. The study has already directly influenced changes in current practice at both a local and a national level.
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Jenkins, David P. "Parent ratings of the effectiveness of increasing adaptive behavior among children with autism spectrum disorders at a remediation summer day camp." 2012. http://liblink.bsu.edu/uhtbin/catkey/1675694.
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The purpose of this study was to examine how participation in an academic and behavioral remediation summer camp impacts broad adaptive behavior in children with autism spectrum disorders. Adaptive behavior was measured by administering the Adaptive Behavior Assessment System, Second Edition (ABAS-II; Harrison & Oakland, 2002) to the parents of a sample of 23 children whose ages ranged from 5 years, 10 months to 11 years, 4 months. Adaptive behavior was assessed prior the beginning of camp and again during the last week of camp. Repeated measures ANOVA and repeated measures MANOVA were conducted to assess whether significant changes in adaptive behavior were observed. Results from these analyses indicated statistically significant changes in adaptive behavior were not observed, but the MANOVA indicated there was a significant interaction between time and gender. Although significant improvement in adaptive behavior was not observed, there also were no significant decreases in adaptive behavior. Additionally, clinical significance was assessed using reliable change indexes (RCI). These analyses suggested most children did not exhibit clinically significant changes in adaptive behavior. Results also were mixed with three children reportedly exhibiting clinically significant increases and two children reportedly exhibiting clinically significant decreases in adaptive behavior. Suggestions for future research include using a control or comparison group, obtaining larger sample size, using multiple measures of adaptive behavior, and obtaining observations of adaptive behavior from multiple sources.Department of Special Education
Books on the topic "Parents of autistic children Australia Attitudes"
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MMR and autism: What parents need to know. London: Routledge, 2004.
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Parenting your complex child : become a powerful advocate for the autistic, Down syndrome, PDD, bipolar, or other special-needs child. New York: AMACOM, 2006.
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Gindi, Shahar. How preschool autism programs work: Parent and staff perceptions. 2004.
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Beyond rain man: What one psychologist learned raising a son on the autism spectrum. LeatherBack Press, 2016.
Find full textBook chapters on the topic "Parents of autistic children Australia Attitudes"
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Coppala, A. Cameron, and Jack A. Hardy. "Attitudes Toward Autism of Parents Raising Autistic Children." In Studies in Corpus-Based Sociolinguistics, 236–52. New York, NY : Routledge, [2017]: Routledge, 2017. http://dx.doi.org/10.4324/9781315527819-10.
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McKnight, Rebecca, Jonathan Price, and John Geddes. "Child and adolescent psychiatry: specific disorders." In Psychiatry. Oxford University Press, 2019. http://dx.doi.org/10.1093/oso/9780198754008.003.0040.
Full textAbstract:
This chapter describes common and/ or important mental health disorders seen in children and adolescents. More general information about classification, aetiology, assessment, and management is discussed in Chapter 17. Many of the psychiatric problems seen in adolescence are the common disorders of adulthood; in the latter part of the chapter, these are briefly covered, identifying adolescent- specific presentation or treatment with reference to the general information in relevant chapters on adults. Mental disorders are very common in childhood and adolescence; meta- analysis data from international studies suggest a prevalence of 10 per cent in 5– 15- year- olds. It is difficult to get accurate epidemiology data for preschool- age children— partly as fewer studies have been done, but also because many behavioural and emotional problems are short- lived and the child ‘grows out’ of them. Boys tend to be more prone to hyperactive, disruptive, and autistic spectrum disorders, while girls predominant the emotional disorders. Table 32.1 gives an overview of epidemiology of common mental health disorders. Common problems in preschoolers are shown in Table 32.2. Most problems are short- lived and whether they are reported to doctors depends on the attitudes of the parents as well as on the severity of the issue. The aetiology of these conditions is primarily related to individual variations in development and temperament, but family problems can play a role in certain situations. In the UK, a health visitor is uniquely placed to assess the child and provide advice and support. Neurodevelopmental disorders are conditions that arise due to abnormalities in growth or development of the central nervous system. Some of these disorders cause emotional and behavioural difficulties or are highly associated with other mental disorders; it is these conditions that tend to present to psychiatry. A summary is shown in Table 32.3. They tend to present in early to mid childhood. Autistic spectrum disorders (ASD) are neurodevelopmental conditions characterized by deficits and delays in social and communicative development, which are associated with restricted patterns of interest and behaviour. As the name suggests, ASD are a spectrum of conditions, with individuals varying both in severity and form of the disorder. Due to this heterogeneity, the nomenclature and classification of ASD have been through various incarnations. Until recently they have been known as pervasive developmental disorders, with subtypes of childhood autism, atypical autism, Rett’s syndrome, and Asperger’s syndrome.