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Mazhar, Mahpara, Faisal Rashid Khan, Asad Tamizuddin Nizami, and Sadia Yasir. "Assessment of parent/ caretaker satisfaction with child and adolescent mental health services in a tertiary care setting." Journal of Rawalpindi Medical College 25, no. 2 (June 30, 2021): 152–58. http://dx.doi.org/10.37939/jrmc.v25i2.1217.
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BACKGROUND: Assessment of parent/caretaker satisfaction with child and adolescent mental health services in a tertiary care setting
METHODS: In this descriptive cross sectional study, 130 parents/caretakers of children aged ≤ 16 years were administered Parent/Caretaker Satisfaction Questionnaire which is a 20-item, 4-point Likert type scale, after their second visit/consultation with Child Psychiatric OPD via non-probability consecutive sampling directly as well as telephonically during six months period. Demographic variables were collected via Proforma. The data was analyzed using SPSS v 16.0. p- value <0.05 was considered significant.
RESULTS: 73.1% (n=95) were very satisfied (satisfaction level>60), 24.6 %(n=32) were satisfied (satisfaction between 21-60) and only 2.3%(n=3) were unsatisfied (satisfaction ≤20). No significant association was found between demographic variables and level of satisfaction.
CONCLUSION: Our study revealed a high level of parent/caretaker satisfaction with Child and Adolescent mental health services in a tertiary care setting. No significant association was found between socio-demographic variables and parent/caretakers’ satisfaction.
KEY WORDS: Patient satisfaction, Quality of health care, Child Psychiatry, Mental health services
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Conner, Jeanette M., and Eugene C. Nelson. "Neonatal Intensive Care: Satisfaction Measured From a Parent's Perspective." Pediatrics 103, Supplement_E1 (January 1, 1999): 336–49. http://dx.doi.org/10.1542/peds.103.se1.336.
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Health care systems today are complex, technically proficient, competitive, and market-driven. One outcome of this environment is the recent phenomenon in the health care field of “consumerism.” Strong emphasis is placed on customer service, with organized efforts to understand, measure, and meet the needs of customers served. The purpose of this article is to describe the current understanding and measurement of parent needs and expectations with neonatal intensive care services from the time the expectant parents enter the health care system for the birth through the discharge process and follow-up care. Through literature review, 11 dimensions of care were identified as important to parents whose infants received neonatal intensive care: assurance, caring, communication, consistent information, education, environment, follow-up care, pain management, participation, proximity, and support. Five parent satisfaction questionnaires—the Parent Feedback Questionnaire, Neonatal Index of Parent Satisfaction, Inpatient Parent Satisfaction–Children's Hospital Minneapolis, Picker Institute-Inpatient Neonatal Intensive Care Unit Survey, and the Neonatal Intensive Care Unit-Parent Satisfaction Form—are critically reviewed for their ability to measure parent satisfaction within the framework of the neonatal care delivery process. An immense gap was found in our understanding about what matters most and when to parents going through the neonatal intensive care experience. Additional research is required to develop comprehensive parent satisfaction surveys that measure parent perceptions of neonatal care within the framework of the care delivery process.
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Tuompo-Johansson, Erja, Fredrik Almqvist, Eeva Huikko, and Ann-Christin Kairemo. "Child day care services and parents' satisfaction with them." Nordic Journal of Psychiatry 52, no. 1 (January 1998): 51–59. http://dx.doi.org/10.1080/080394898422571.
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Christopher Amalraj Vallaba Doss, Syed Mohamed Sadath, Palanivel R M, Muhil Sakthivel, OLA Olatunji, and Malik Khurram Shahzad Awan. "A Study on Parental Perception and Satisfaction towards Occupational Therapy Holistic Approach on Treatment and Service Delivery." International Journal of Research in Pharmaceutical Sciences 11, no. 3 (July 22, 2020): 3916–21. http://dx.doi.org/10.26452/ijrps.v11i3.2578.
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To highlight how holistic occupational therapy processes contribute to the level of parent’s perception and satisfaction, improve the therapist’s level of care, update therapist about client understands of their services, increase client’s awareness of different modes of occupational therapy treatment services. Quantitative descriptive cross-sectional study design, POC-20 Questionnaire is used to measure the processes of care questionnaire with parents ticking each column of items according to their perception and satisfaction. MPOC-20 question output from the interview results shows the treatment care services that enable parents to understand how the therapist takes effort and satisfied them day to day life. Therapist expressed their confidence in the holistic approachability to manage the child’s behaviors and act as the family center-point of contact for their ongoing care. This research clearly demonstrates the value of the holistic approach, parent and child place on receiving their service care close to home and how the therapist uses their holistic approach to enable this. The success of this study demonstrates this model of care can be implemented in other services across the world.
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Battalen, Adeline Wyman, Abbie E. Goldberg, David M. Brodzinsky, Ruth G. McRoy, and Summer S. Hawkins. "Heterosexual and sexual minority adoptive parents’ help-seeking and service satisfaction of pediatricians and mental health providers." Developmental Child Welfare 1, no. 3 (September 2019): 233–50. http://dx.doi.org/10.1177/2516103219873011.
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The aim of our study was to examine the associations between heterosexual and sexual minority adoptive parents’ adoption-related help-seeking and their service satisfaction with pediatricians and mental health providers. We examined associations with (a) satisfaction with pediatricians and (b) understanding of adoption by a mental health provider among adoptive parents who sought advice for adoption-related issues using data drawn from the Modern Adoptive Families study ( N = 1,419). Logistic regressions were used to examine associations with service-seeking and satisfaction with professionals’ adoption advice. About half of the sample adopted a child with either special needs at placement (55%) and/or preplacement adversity (74%), which were significantly associated with seeking adoption-related advice. Consulting pediatricians about adoption was common (78%), and 83% of those parents reported being satisfied with adoption-related advice provided by their pediatrician. About half (51%) of the parents sought mental health services, but only 41% of those parents reported having access to an adoption-competent mental health provider and 50% of those parents felt their mental health provider understood adoption. Parent sexual orientation, higher income, older child age, and having a child with special needs were positively associated with satisfaction with adoption-related advice provided by the pediatrician and having a mental health provider who understood adoption. Adopting a child with special needs at placement and an older child were positive associations of seeking adoption-related help, while parent demographics, including higher household income, were positively associated with satisfaction. Results suggest an inclusive family-centered approach to care is important.
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McIntyre, Laura Lee. "Parent Training for Young Children With Developmental Disabilities: Randomized Controlled Trial." American Journal on Mental Retardation 113, no. 5 (September 1, 2008): 356–68. http://dx.doi.org/10.1352/2008.113:356-368.
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Abstract A randomized controlled trial was used to evaluate a parent training intervention for caregivers with preschool-age children with developmental disabilities. The 21 families in the experimental group received usual care plus the 12-week Incredible Years Parent Training Program with developmental delay modifications. Families in the control group (n = 23) received usual care, including early childhood education and related services. Results suggest that this parent training intervention was superior to usual care for young children with developmental delays or disabilities in reducing negative parent–child interactions and child behavior problems. Participants in the experimental group indicated high satisfaction with treatment. Additional research is necessary to document maintenance and generalization of treatment outcomes.
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Ahmed, Riaz, Jamshed Akhtar, Naima Zamir, Syed Muhammad Raees Hussain Taqvi, and Safia Bibi. "Assessment of Parental Satisfaction with Day-Care Surgical Services in a Tertiary Level Pediatric Hospital." Annals of King Edward Medical University 28, no. 1 (April 30, 2022): 7–12. http://dx.doi.org/10.21649/akemu.v28i1.5003.
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Background: Parental feedback is important for improving quality of the surgical services provided.Objective: This study was conducted to assess the level of satisfaction of parents with the day-care surgical services so as to find out where improvement is needed. Methods: This was an observational cross sectional study conducted in the Department of Pediatric Surgery, National Institute of Child Health, Jinnah Sindh Medical University Karachi from September 2019 to April 2020. The parents of the children who underwent different day-care surgical procedures were included. A validated Parent Satisfaction Scale (PSS) which consist of 11-items was used. The responses were made according to Likert scale. Three groups of satisfied, undecided and unsatisfied study participants were made according to the scores obtained. The socio-demographic variables including age of parents and children, level of education, and income group were compared amongst study groups. Results: Total of 114 parents participated. The most common procedure performed was inguinal herniotomy (n=59). Seven (6%) patients were brought back after discharge due to pain. Eighty-seven (76.30%) parents were satisfied with the services provided while 18 (15.8%) were unsatisfied and 9 (7.9%) undecided. A significant difference in the satisfaction level of the study participants noted with respect to the mean age of parents (p=0.039), level of education (p< 0.001) and income groups (p< 0.001). Conclusion: Majority of the study participants were satisfied with the surgical services provided. Lack of respect given by the hospital staff and delay in getting treatment were the main reasons for dissatisfaction. Socio-demographic characteristics of the study participants were significantly associated with the level of satisfaction.
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Feragen, Kristin Billaud, Tone Kristin Særvold, Ragnhild Aukner, and Nicola Marie Stock. "Speech, Language, and Reading in 10-Year-Olds with Cleft: Associations with Teasing, Satisfaction with Speech, and Psychological Adjustment." Cleft Palate-Craniofacial Journal 54, no. 2 (March 2017): 153–65. http://dx.doi.org/10.1597/14-242.
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Background Despite the use of multidisciplinary services, little research has addressed issues involved in the care of those with cleft lip and/or palate across disciplines. The aim was to investigate associations between speech, language, reading, and reports of teasing, subjective satisfaction with speech, and psychological adjustment. Design Cross-sectional data collected during routine, multidisciplinary assessments in a centralized treatment setting, including speech and language therapists and clinical psychologists. Participants Children with cleft with palatal involvement aged 10 years from three birth cohorts (N = 170) and their parents. Outcome Measures Speech: SVANTE-N. Language: Language 6-16 (sentence recall, serial recall, vocabulary, and phonological awareness). Reading: Word Chain Test and Reading Comprehension Test. Psychological measures: Strengths and Difficulties Questionnaire and extracts from the Satisfaction With Appearance Scale and Child Experience Questionnaire. Results Reading skills were associated with self- and parent-reported psychological adjustment in the child. Subjective satisfaction with speech was associated with psychological adjustment, while not being consistently associated with speech therapists’ assessments. Parent-reported teasing was found to be associated with lower levels of reading skills. Having a medical and/or psychological condition in addition to the cleft was found to affect speech, language, and reading significantly. Conclusions Cleft teams need to be aware of speech, language, and/or reading problems as potential indicators of psychological risk in children with cleft. This study highlights the importance of multiple reports (self, parent, and specialist) and a multidisciplinary approach to cleft care and research.
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Bradley, Caroline, Crispin Day, Caroline Penney, and Daniel Michelson. "‘Every day is hard, being outside, but you have to do it for your child’: Mixed-methods formative evaluation of a peer-led parenting intervention for homeless families." Clinical Child Psychology and Psychiatry 25, no. 4 (June 1, 2020): 860–76. http://dx.doi.org/10.1177/1359104520926247.
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We conducted a mixed-methods, formative evaluation of a peer-led parenting intervention for homeless families. Participants were parents living in temporary accommodation with self-identified difficulties related to parenting an index child aged 2–11 years. An evidence-based programme (‘Empowering Parents, Empowering Communities’) was adapted for delivery with the target population in London, UK. We assessed feasibility in terms of session attendance rate, intervention completion rate and potential for impact on a range of parent-reported outcomes measures. Acceptability and appropriateness were examined by a user satisfaction measure and qualitative interviews. The intervention was delivered across three group cohorts ( N = 15). Thirteen parents completed the programme (including one parent who required two attempts). We found improvements in child behavioural difficulties, parenting knowledge and practices, while parental well-being and social support were unchanged. Participants were highly satisfied overall, with indications that the peer-led model mitigated negative expectancies of services and normalized experiences of parenting in challenging conditions. Parental self-care and ‘the good enough parent’ were strongly endorsed topics, although some content (e.g. timeout) was deemed impractical. These promising findings warrant further testing under controlled conditions.
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Vellingiri, Sutharshana. "Assessment of Parent's Preference to General or Local Anesthesia for Children undergoing Dental Treatment." World Journal of Dentistry 6, no. 3 (2015): 154–60. http://dx.doi.org/10.5005/jp-journals-10015-1333.
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ABSTRACT Background Investigators have begun to address the relationship of parental satisfaction with dental care for children since the dentist/physician and the patient are all aware of the services being provided. These determining characters are essential for compliance of the patient, as patient satisfaction is directly related to health-related issues, needs, and practice. Patient satisfaction has an important role in determining the utilization of the healthcare services and the compliance behavior of the patients. Factors which can influence the patients’ decision to seek care and follow through to the completion of the treatment process can affect the physiologic and functional outcomes of the treatment. Hence, this survey was done to evaluate parent's preference to general or local anesthesia in their children's dental treatments. Materials and methods In this survey, a modified and adapted questionnaire from a previously tested survey that was used to assess parental satisfaction with dental treatments under general anesthesia in pediatric dentistry, was used to assess parents’ preference to general or local anesthesia. Parents whose children were going to undergo treatments in Department of Pedodontics, Saveetha Dental College, was issued with this questionnaire and clinical examination of teeth present and treatment to be done was examined. Results Ninety-seven percent of the parents preferred local anesthesia to general anesthesia. Parents preferred general anesthesia most only in case child below the age of 3 and when multiple settings are required of and their knowledge about anesthesia and its side effects was found to low and preferred local anesthesia in most cases. Conclusion Parents play a unique role in dental care and over all well being of the child. Some parents and dental practitioners prefer the presence of a parent with their child during the delivery of in-office dental care. Parents are aware of their child's previous dental experiences and are also aware of the child's interest and fear. Most of the parent's preference was to local anesthesia (97%) and preferred general anesthesia under given circumstances. How to cite this article Vellingiri S, Gurunathan D. Assessment of Parent's Preference to General or Local Anesthesia for Children undergoing Dental Treatment. World J Dent 2015;6(3):154-160.
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Kruszecka-Krówka, Agnieszka, Ewa Smoleń, Grażyna Cepuch, Krystyna Piskorz-Ogórek, Mieczysława Perek, and Agnieszka Gniadek. "Determinants of Parental Satisfaction with Nursing Care in Paediatric Wards—A Preliminary Report." International Journal of Environmental Research and Public Health 16, no. 10 (May 20, 2019): 1774. http://dx.doi.org/10.3390/ijerph16101774.
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Background: The quality of medical services for a child and their parents are tantamount to a sense of satisfaction with care. Purpose: The assessment of determinants of parental satisfaction with nursing care in paediatric wards. Methods: The study covered 336 parents of children hospitalised in paediatric departments and was based on the “EMPHATIC” questionnaire, standardized and adapted to Polish conditions. Results: The mean score of the overall parental satisfaction was high, amounting to 4.19 points. The lower level of satisfaction with nursing care was reported in parents of children under the age of 6 years, admitted in an emergency mode with a diagnosed post-trauma condition and those with higher education. The duration of hospitalisation, sex and age of parents did not have an influence on the satisfaction with care. Conclusions: The age of the child, admission mode and education of respondents are determinants of parental satisfaction with nursing care.
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Al-Mazidi, Sarah H., and Laila Y. Al-Ayadhi. "National Profile of Caregivers’ Perspectives on Autism Spectrum Disorder Screening and Care in Primary Health Care: The Need for Autism Medical Home." International Journal of Environmental Research and Public Health 18, no. 24 (December 10, 2021): 13043. http://dx.doi.org/10.3390/ijerph182413043.
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Although autism spectrum disorder (ASD) is a common developmental disorder, primary healthcare providers show a deficit in providing early diagnosis. To understand parents’ experience and perspective in the diagnosis and intervention process of their children, a survey was deployed through social media to parents’ with at least one child diagnosed with ASD. The survey included parents experience, satisfaction and perception in the diagnosis process and services provided for their children, stigma and type of support received. A total of 223 participants were enrolled. Although 62% of ASD patients were diagnosed by three years old, most diagnoses (66%) were non-physician initiated. Additionally, 40.8% of the parents reported that the services required for their child are available in their area of residence, but only 7.9% were satisfied with these services. Parents who received psychological support (9.9%) started early intervention, and their children have a better prognosis (p ≤ 0.005). Stigmatized parents were more likely to delay intervention (p ≤ 0.005). Parents’ perception is to have qualified healthcare and educational professionals experienced in ASD. Our findings suggest that a specialized family-centred medical home for ASD patients would significantly benefit ASD patients, increase parents’ satisfaction, reduce parents’ stress, and ease their children’s transition to adolescents.
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Halfon, Neal, Michael Regalado, Harvinder Sareen, Moira Inkelas, Colleen H. Peck Reuland, Frances P. Glascoe, and Lynn M. Olson. "Assessing Development in the Pediatric Office." Pediatrics 113, Supplement_5 (June 1, 2004): 1926–33. http://dx.doi.org/10.1542/peds.113.s5.1926.
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Objective. To determine the proportion of children aged 10 to 35 months who were reported ever to have received a developmental assessment (DA) and to examine characteristics of the child, family, and health care setting associated with the receipt of a DA. Methods. The National Survey of Early Childhood Health, conducted in 2000, is a survey of 2068 parents of children 4 to 35 months of age. Children were classified as having received a DA in response to 2 questions: whether the child’s pediatric provider ever told parents that he or she was doing a “developmental assessment” and/or parents recalled explicit components of a DA, such as stacking blocks or throwing a ball. Parent-reported receipt of a DA was assessed in relationship to child and family, health care access, other measures of health care content and process, and measures of quality and satisfaction. Results. Approximately 57% of children 10 to 35 months of age ever received a DA. Forty-two percent of parents recalled ever being told by their child’s pediatric provider that a DA was being done. Thirty-nine percent recalled their child’s being asked to perform specific tasks routinely included in a DA. Bivariate analysis indicates that receipt of a DA is not associated with child or family sociodemographic characteristics such as maternal education and household income, with the exception of race/ethnicity. Less acculturated Hispanic parents reported a DA more frequently than parents in other racial/ethnic groups (66% vs 56%). A smaller proportion of parents whose children who used community health centers reported their child’s ever having received a DA compared with children who use other settings (51% vs 60%). Compared with other children, parents whose child ever received a DA reported more frequently than other parents that the time spent with the child’s provider during the last well-child visit was adequate (94% vs 80%). They also reported longer visits (19 minutes vs 16 minutes), higher family-centered care ratings (mean: 71 vs 59), and higher satisfaction with well-child care (8.9 vs 8.4). Receipt of a DA is also associated with the content of developmentally focused anticipatory guidance received. For each health supervision topic analyzed, frequency of discussion is higher for children who ever received a DA. In multivariate analysis, odds of receiving a DA are higher for children with longer visits with the provider (odds ratio: 1.03; 95% confidence interval: 1.01–1.05) and lower for children in community health clinics compared with a private office (odds ratio: 0.61; 95% confidence interval: 0.39–0.96), even accounting for total well-child visits to the pediatric provider. Conclusion. Although guidelines endorse the routine provision of DAs, parents of many children do not report receiving DAs. Children who receive assessments are more likely to receive other developmental services, and their parents are more likely to report greater satisfaction with care and rate the interpersonal quality of well-child care more favorably. The substantial number of children who do not receive these routinely recommended services raises important questions about the quality of care received.
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Bucaite-Vilke, Jurga. "Family Choices on Welfare and Territorial Disadvantages: The Perception of the Child Care Services Approach in Urban and Rural Areas." SAGE Open 11, no. 3 (July 2021): 215824402110326. http://dx.doi.org/10.1177/21582440211032641.
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Although the research on social-economic and demographic inequities of parents and their approach to formal child care (early childhood education and care [ECEC] system) is increasing, the territorial effects on child care remain underresearched. In Lithuania, the importance of the accessibility and availability of formal child care services are highlighted by the political agenda. However, the residential location is not considered enough to explain the differences in parental approach to child care in rural and urban regions. The article seeks to analyze how families’ child care choices and family welfare priorities are related to parental socioeconomic backgrounds, territorial dimension (residential location of parents), and general life satisfaction. The article uses the subsample of representative population survey data of the working-age generation cohort (34–48 years old cohort), focusing on respondents who have children below 4 years old and benefit from formal child care services in Lithuania. The main results contribute to explaining parental preferences to benefits-in-cash or services-in-kind (child care) family welfare priorities and their socioeconomic backgrounds, including residential location. The less is the residential location size (rural areas), the more likely respondents would support the benefits-in-cash system rather than formal child care services.
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Gao, Jing. "Artificial Intelligence Application in the Design of Children's Service Robot Based on Context Perception." Mobile Information Systems 2022 (August 11, 2022): 1–10. http://dx.doi.org/10.1155/2022/7557015.
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In the era of artificial intelligence, children's service robots will surely become one of the conventional hardware. This paper combines artificial intelligence technology and the space algorithm to design the child service robot system, improves the situational space perception algorithm, and applies the algorithm to the robot system. Moreover, this paper constructs the system structure of the children's service robot according to the actual needs and obtains the system function modules. In addition, this paper constructs a child service robot based on context perception and verifies the performance of the robot system. Finally, this paper combines the simulation experiment to carry out the interactive effect of the robot system and the service effect to children and investigates the satisfaction of parents. Through experimental research, it can be seen that the child service robot system based on situational awareness constructed in this paper has good service effects, can effectively take care of children, and has high parent satisfaction.
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Singh, Vini, Melanie Pinkett-Davis, Luther G. Kalb, Gazi Azad, Jason Neely, and Rebecca Landa. "A preliminary study of care coordination services within a specialized outpatient setting for youth with autism spectrum disorder." International Journal of Care Coordination 22, no. 3-4 (September 2019): 109–16. http://dx.doi.org/10.1177/2053434519893659.
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Introduction Parents of children with autism spectrum disorder often experience high levels of stress and challenges when organizing medical and behavioral services for their child. Care coordination could alleviate these challenges, however little is known about the effectiveness of this service. This study examined the need, feasibility, and acceptability of a care coordination program. Methods Families of 176 children with autism, seen at a multidisciplinary autism clinic in the United States, participated in a prospective observational study. Families received a three-month structured care coordination program and completed pre- and post-program questionnaires that probed parents’ beliefs about the need and acceptability of the program through structured and open-ended questions. Results Most (≥90%) parents reported both a need for care coordination and satisfaction with the program. Qualitative themes identified valuable aspects and ways to improve the program. Discussion Parents raising a child with autism spectrum disorder experience an unmet need for care coordination. When provided, parents’ demonstrated high uptake of service and high levels of satisfaction with the program.
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Kyzar, Kathleen B., and Jean Ann Summers. "Students With Deaf-Blindness and Their Families: Service Utilization and Satisfaction." Inclusion 2, no. 3 (September 1, 2014): 195–211. http://dx.doi.org/10.1352/2326-6988-2.3.195.
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Abstract Research on child- and family-related service needs for families of children with severe disabilities is scant, and the literature regarding the service needs of children/families with deaf-blindness is almost nonexistent. This study examined child and family disability-related service utilization and satisfaction with services from the perspective of a national sample of 227 parents who had a child aged birth through 21 with deaf-blindness. Participants were recruited from state deaf-blind technical assistance projects. We utilized survey research design and descriptive statistics to report results. Friend and family support had the highest ratings of utilization. Education and related services were also highly used, whereas mental health services and intervener services were among services/supports with the lowest rates of use. After-school care also had low rates of utilization and, for participants who reported using the service, satisfaction ratings were low. On average, only three services had satisfaction ratings within the “adequate” range: well-child checks, early intervention, and health provider (for informational purposes). A discussion of the findings in terms of the implications for family support policy, practice, and research is provided.
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Bradley, E. Jane, and Barbara S. Clark. "Patients’ Characteristics and Consumer Satisfaction on an Inpatient Child Psychiatric Unit." Canadian Journal of Psychiatry 38, no. 3 (April 1993): 175–80. http://dx.doi.org/10.1177/070674379303800304.
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This paper reports the results of a chart review and consumer satisfaction evaluation of referrals to a tertiary care child psychiatric inpatient unit. The evaluation involved an examination of the types of child and family difficulties treated during the period of the study; the nature and extent of assessment, treatment and follow-up; treatment outcome and parental perception of factors related to treatment outcome; and the satisfaction of both the parents and referral sources. Results indicated that children admitted for treatment were a heterogeneous group with severe difficulties from families with a number of problems. Most parents and referring therapists were very satisfied with the treatment, recommendations and follow-up provided. Significant correlations were observed between the parents’ and referring therapist's satisfaction with the service and the extent to which home based problems were addressed during the child's stay in hospital. In addition, some suggestions are given for strategies to improve services. The findings are discussed with special reference to the value of program evaluations for inpatient child psychiatric services.
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Bennett, Susan M., Christine T. Chambers, Doria Bellows, Colleen A. Court, Elizabeth Huntsman, Carolyne Montgomery, Tim F. Oberlander, Michelle Sheriff, and Harold Siden. "Evaluating Treatment Outcome in an Interdisciplinary Pediatric Pain Service." Pain Research and Management 5, no. 2 (2000): 169–72. http://dx.doi.org/10.1155/2000/767058.
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OBJECTIVE: To provide descriptive data evaluating outcome and treatment satisfaction among former pediatric patients and their parents seen in an interdisciplinary treatment program for complex pain syndromes.DESIGN: Retrospective telephone interview.SETTING: Pediatric academic health care centre.SUBJECTS AND METHODS: A semistructured interview designed for this study was administered by phone with 24 former patients (mean age 15.63 years) and parents, seen over the previous three years in the Complex Pain Consultation Service. Participants provided both qualitative and quantitative information about pre- and post-treatment levels of pain and functioning, achievement of treatment goals and satisfaction with the treatment program.RESULTS: Findings indicated significantly lower frequency and intensity of pain, as rated by patients, when current pain levels were compared with recalled pretreatment levels. As well, improvements were reported in strategies for managing pain and participation in regular activities of daily living. Satisfaction with the team treatment was generally very high, and most felt that their goals were partially to completely met. Child and parent ratings of outcome and satisfaction were consistent.CONCLUSIONS: These descriptive data provide preliminary support for the application of an interdisciplinary model to treating disabling complex pain syndromes in children and youths.
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Tsironi, Spyridoula, and George Koulierakis. "Factors associated with parents’ levels of stress in pediatric wards." Journal of Child Health Care 22, no. 2 (December 25, 2017): 175–85. http://dx.doi.org/10.1177/1367493517749327.
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Hospitalization of a child is a stressful experience, increasing parents’ anxiety and deteriorating their satisfaction with the health-care services. This study aimed to assess the level of stress that parents of hospitalized children experienced and evaluate the association of parent’s stress and satisfaction and identify its predictors. Three hundred and fifty-two parents whose children were hospitalized in two pediatric hospitals were enrolled in the study, from February 2015 to April 2015. The Perceived Stress Scale was used to estimate parental stress and the Pyramid Questionnaire was used for assessing parents’ overall satisfaction with care. Parents expressed mild to moderate overall levels of stress. Less-stressed parents felt more satisfied. Being single ( p < .001), having lower educational level ( p = .005), one’s child been hospitalized for more than 14 days ( p = .001), and one’s have visited the hospital many times in the past ( p = .014) were the predictors of experiencing high levels of stress. During pediatric hospitalization, parental needs (communication, interpersonal health care, continuous information, involvement in child’s care) should be considered, so as stress levels to be decreased and parents get more satisfied by the quality of health care provided.
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Day, Crispin, Jackie Briskman, Mike J. Crawford, Lisa Foote, Lucy Harris, Janet Boadu, Paul McCrone, et al. "An intervention for parents with severe personality difficulties whose children have mental health problems: a feasibility RCT." Health Technology Assessment 24, no. 14 (March 2020): 1–188. http://dx.doi.org/10.3310/hta24140.
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Background The children of parents with severe personality difficulties have greater risk of significant mental health problems. Existing care is poorly co-ordinated, with limited effectiveness. A specialised parenting intervention may improve child and parenting outcomes, reduce family morbidity and lower the service costs. Objectives To develop a specialised parenting intervention for parents affected by severe personality difficulties who have children with mental health problems and to conduct a feasibility trial. Design A pragmatic, mixed-methods design to develop and pilot a specialised parenting intervention, Helping Families Programme-Modified, and to conduct a randomised feasibility trial with process evaluation. Initial cost-effectiveness was assessed using UK NHS/Personal Social Services and societal perspectives, generating quality-adjusted life-years. Researchers collecting quantitative data were masked to participant allocation. Setting Two NHS mental health trusts and concomitant children’s social care services. Participants Parents who met the following criteria: (1) the primary caregiver of the index child, (2) aged 18–65 years, (3) have severe personality difficulties, (4) proficient in English and (5) capable of providing informed consent. Index children who met the following criteria: (1) aged 3–11 years, (2) living with index parent and (3) have significant emotional/behavioural difficulties. Exclusion criteria were (1) having coexisting psychosis, (2) participating in another parenting intervention, (3) receiving inpatient care, (4) having insufficient language/cognitive abilities, (5) having child developmental disorder, (6) care proceedings and (7) index child not residing with index parent. Intervention The Helping Families Programme-Modified – a 16-session intervention using structured, goal-orientated strategies and collaborative therapeutic methods to improve parenting, and child and parent functioning. Usual care – standard care augmented by a single psychoeducational session. Main outcome measures Trial feasibility – rates of recruitment, eligibility, allocation, retention, data completion and experience. Intervention acceptability – rates of acceptance, completion, alliance (Working Alliance Inventory-Short Revised) and experience. Outcomes – child (assessed via Concerns About My Child, Eyberg Child Behaviour Inventory, Child Behaviour Checklist-Internalising Scale), parenting (assessed via the Arnold-O’Leary Parenting Scale, Kansas Parental Satisfaction Scale), parent (assessed via the Symptom Checklist-27), and health economics (assessed via the Client Service Receipt Inventory, EuroQol-5 Dimensions). Results The findings broadly supported trial feasibility using non-diagnostic screening criteria. Parents were mainly referred from one site (75.0%). Site and participant factors delayed recruitment. An estimate of eligible parents was not obtained. Of the 86 parents referred, 60 (69.7%) completed screening and 48 of these (80.0%) were recruited. Participants experienced significant disadvantage and multiple morbidity. The Helping Families Programme-Modified uptake (87.5%) was higher than usual-care uptake (62.5%). Trial retention (66.7%, 95% confidence interval 51.6% to 79.6%) exceeded the a priori rate. Process findings highlighted the impact of random allocation and the negative effects on retention. The Helping Families Programme-Modified was acceptable, with duration of delivery longer than planned, whereas the usual-care condition was less acceptable. At initial follow-up, effects on child and parenting outcomes were detected across both arms, with a potential outcome advantage for the Helping Families Programme-Modified (effect size range 0.0–1.3). For parental quality-adjusted life-years, the Helping Families Programme-Modified dominated usual care, and child quality-adjusted life-years resulted in higher costs and more quality-adjusted life-years. At second follow-up, the Helping Families Programme-Modified was associated with higher costs and more quality-adjusted life-years than usual care. For child quality-adjusted life-years, when controlled for baseline EuroQol-5 Dimensions, three-level version, usual care dominated the Helping Families Programme-Modified. No serious adverse events were reported. Conclusion The Helping Families Programme-Modified is an acceptable specialised parenting intervention. Trial methods using non-diagnostic criteria were largely supported. For future work, a definitive efficacy trial should consider site selection, recruitment methods, intervention efficiency and revised comparator condition. Trial registration Current Controlled Trials ISRCTN14573230. Funding This project was funded by the National Institute for Health Research (NIHR) Health Technology Assessment programme and will be published in full in Health Technology Assessment; Vol. 24, No. 14. See the NIHR Journals Library website for further project information.
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Kruszecka-Krówka, Agnieszka, Grażyna Cepuch, Agnieszka Gniadek, Ewa Smoleń, Krystyna Piskorz-Ogórek, and Agnieszka Micek. "Selected predictors of parental satisfaction with child nursing care in paediatric wards in Poland—Cross-sectional study." PLOS ONE 16, no. 11 (November 19, 2021): e0260504. http://dx.doi.org/10.1371/journal.pone.0260504.
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Background Assessment of parental satisfaction with child nursing is the key issue in evaluation of the care quality, enabling the adjustment of the services provided to the needs and expectations of recipients, and thus ensuring safety and achieving better long-term health effects. Aim Assessment of parental satisfaction with child nursing in paediatric wards including its determinants. Material and methods The study covered 1030 parents of children hospitalised in paediatric and surgical wards of seven hospitals of different levels of health security in Poland. The Polish adaptation of the Empathic standardised questionnaire for assessment of the level of parents’ satisfaction with nursing care, developed by Latour et al. and the self-constructed summary of socio-demographic data were applied in the study. Results More than 90% of respondents expressed high level of satisfaction with nurses’ Availability, the lowest, but still high score of respondents’ satisfaction was observed for Parental Participation. The highest satisfaction was observed among the parents of children at the preschool, early school and puberty stage, admitted to the hospital on the elective basis, referred for diagnostic assessment and with the length of hospital stay less than 7 and longer than 28 days. Achieving preschool age was the strongest factor which increased assessment of satisfaction in most domains. Conclusions There is a need for optimising nursing care especially in the area of parental participation. The nursing care’ quality improvement plan in paediatric departments should focus particularly on early childhood patients and their parents who are the most critical in satisfaction’ assessment.
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Restivo, Lea, Gurpreet Khaira, Amonpreet Sandhu, and Susan Kuhn. "64 Is it enough: An Assessment of Parental Satisfaction with an International Adoption Clinic at a Pediatric Tertiary Care Center." Paediatrics & Child Health 25, Supplement_2 (August 2020): e26-e27. http://dx.doi.org/10.1093/pch/pxaa068.063.
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Abstract Background The circumstance in which internationally adopted children are born and live prior to adoption put them at high risk for health issues. Nearly all adoptees have complex medical conditions, the most common being cleft lip/palate, orthopaedic problems, infectious diseases, congenital heart diseases, and/or nutritional deficiencies, as well as cognitive impairments, and/or developmental delays. Specifically, nearly all institutionalized children will have expressive language delays and most will have motor delays. Although improvement can be seen with time, most do not attain their full potential. Additionally, by nature of adoption, all children experience trauma. In some situations, this will be further compounded by neglect and/or abuse faced prior to adoption, or during institutionalization. Consequently, almost all adoptees develop attachment difficulties. Trained medical professionals are required to screen, monitor, and provide management suggestions for this complex and unique population. Objectives To our knowledge, parental experience of an international adoption clinic has not yet been published. This parent-based evaluation of the parental experience at a pediatric tertiary care center’s international adoption clinic, provides insights that may help guide provision of care for this high-risk population in our centre, throughout the country, and internationally. Design/Methods A qualitative, exploratory design was employed using telephone interviews of eighteen parents of adoptees assessed by a pediatric tertiary care center’s international adoption clinic since 2010. This approach was chosen to allow for more extensive exploration of parental experience, and to identify barriers and facilitators of care. Interviews were 30 to 90 minutes, semi-structured, and transcribed verbatim. Field notes were made during the interviews to note intonation and major concerns, and were used to supplement transcripts during data analysis. Questions covered experiences with pre-adoption counselling, arranging the first clinic visit, health and developmental assessments, life after clinic discharge, and general comments/suggestions. Thematic analysis was performed on the transcripts using Maguire’s step-by-step guide. Results Analysis resulted in four main themes and seven subthemes. The first theme was “difficulty of international adoption”. The second theme “utility and impact of services offered” was subdivided into “pre-adoption counselling”, “clinic visits and medical assessments”, and “post adoption seminars”. The third theme “the administrative procedures of the clinic” was subdivided into “timing and ease of organizing a first visit”, and “hours of operation”. The final theme “gaps in care” was divided into “ongoing difficulty with attachment”, and “allied healthcare services”. These results demonstrate that parents of internationally adopted children often feel overwhelmed by the medical needs of their children and feel unsupported. They recommend comprehensive and in-person pre-adoption counselling with standard referral processes to ensure timely access to care. Post-arrival medical and developmental assessments should be flexible and complete. Most importantly, clinics should incorporate support from allied healthcare professionals, including social work, psychology, occupational therapy, and physiotherapy. In particular, parents were interested in further management of attachment. Conclusion This first parent-based evaluation of the parental experience at a pediatric tertiary care center’s international adoption clinic provides insights that may help guide provision of care to this high-risk population in centres across Canada and internationally.
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Dhingra, Pardeep. "Newborn in Neonatal Intensive Care Unit: Parental Concerns." Journal of Neonatology 34, no. 4 (December 2020): 196–98. http://dx.doi.org/10.1177/0973217920980923.
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Background: Having a newborn baby admitted in the neonatal intensive care unit (NICU) can be a stressful experience for the parents. Objectives: This study was planned to know the following: 1. The concerns of parents whose babies were admitted in NICU 2. Parental satisfaction level about the services provided 3. Assessment of parents for their understanding and knowledge at discharge Study Design: Semiqualitative interview. Participants: Parents of 100 (56 M, 44 F) neonates. Intervention: We subjected them to a semiqualitative interview on the day of discharge of their newborn infant. Questionnaire consisted of parent’s understanding regarding NICU and health care providers, their perspective about the possible cause of illness in their baby along with competence and communication skills of health care providers. Parental satisfaction about the services was assessed by the short assessment of patient satisfaction (SAPS). They were assessed for their anxiety and depression levels by hospital anxiety and depression scale (HADS). They were assessed for their knowledge about care of baby at home after discharge by patient knowledge questionnaire (PKQ). Results: Parents of 44% babies had no prior idea about NICU and why babies need to be admitted. In total, 48% mothers and 36% fathers had clinically significant anxiety levels as assessed by HADS. Many parents complained about lack of communication about their babies illness, its cause, duration of treatment, and prognosis. Both parents scored the caregivers on borderline scores on the SAPS. At discharge only 13% knew the correct dose and duration of medicines prescribed. PKQ scores varied from 5 to 20. Almost all parents emphasized the need for more space, resting place for mothers, and better communication by doctors. Conclusions: This study reveals a significant communication gap between health care providers and parents. Concerns of parents have to be addressed to have their full participation in newborn care.
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McNicholas, F., Udo Reulbach, Sarah O. Hanrahan, and Manas Sakar. "Are parents and children satisfied with CAMHS?" Irish Journal of Psychological Medicine 33, no. 3 (September 9, 2015): 143–49. http://dx.doi.org/10.1017/ipm.2015.36.
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BackgroundClient Satisfaction with services is an important predictor of health care seeking, treatment compliance and health status outcome. Given that both parents and young people may have different views of services offered, this study examines both perspectives with respect to Child and Adolescent Mental Health Services (CAMHS) in Ireland.MethodFollowing ethical approval, the Client Satisfaction Questionnaire-8 (CSQ-8) were sent to all open cases attending three urban CAMHS. Returned questionnaires were received from 426 (280 parents and 146 adolescents) giving a response rate of 49%.ResultsNo significant differences were observed between parents and adolescents regarding general satisfaction with CAMHS (Mann–Whitney U-test; Z=−0.255; p=0.799) with a range of good and excellent ratings between 77.1% (for the extent that program met user’s needs) and 93.1% (for recommendation of program to a friend). Significant positive associations were found between age of child (Spearman’s ρ=0.159; p=0.017), receiving a diagnosis (Mann–Whitney U-test; Z=−2.14; p=0.032), frequent attendance (χ2=8.74; df=3; p=0.033) and living in close proximity to the service (χ2=9.24; df=3; p=0.026). There was a strong negative correlation between reduction in impairment and levels of satisfaction (ρ=−0.44, n=275, p<0.000). Waiting time or duration in service were not associated with CSQ and 53% (145) requested clinic opening hours outside of 09:00 a.m. to 17:00 p.m.ConclusionRegular user feedback, a robust and distinct measure of service quality, will ensure the development of effective, accessible, client-centered and responsive services, which can evolve in partnership with families and young people.
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Spooren, Daniel J., Hilde Henderick, and Constantin Jannes. "Survey Description of Stress of Parents Bereaved from a Child Killed in a Traffic Accident. A Retrospective Study of a Victim Support Group." OMEGA - Journal of Death and Dying 42, no. 2 (March 2001): 171–85. http://dx.doi.org/10.2190/nn3c-x4jf-me0y-prh4.
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Objectives: To assess parents' views of the care and support received at the time of the child's accident. To examine the presence of traumatic grief and general psychiatric distress among parents. Methods: Data were obtained from a self-help group of parents who lost a child in a traffic accident. Eighty-five parents responded to a survey including items about circumstances of the death, satisfaction with death handling and standardized questionnaires. Results: Parents reported insufficient satisfaction with services immediately following the death of their child. Even after considerable time they continued to show strong symptoms of traumatic grief and high levels of general psychiatric distress. Conclusion: Confrontation with the death of a child killed in a vehicular crash increases the risk of prolonged psychiatric distress in bereaved parents. A closer immediate follow-up is needed, and long-term support should be provided when needed.
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Szilagyi, Peter G., Jane L. Holl, Lance E. Rodewald, Laura Pollard Shone, Jack Zwanziger, Dana B. Mukamel, Sarah Trafton, Andrew W. Dick, and Richard F. Raubertas. "Evaluation of Children's Health Insurance: From New York State's Child Health Plus to SCHIP." Pediatrics 105, Supplement_E1 (March 1, 2000): 687–91. http://dx.doi.org/10.1542/peds.105.se1.687.
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Background. The legislation and funding of the State Children's Health Insurance Program (SCHIP) in 1997 resulted in the largest public investment in child health care in 30 years. The program was designed to provide health insurance for the estimated 11 million uninsured children in the United States. In 1991 New York State implemented a state-funded program—Child Health Plus (CHPlus)—intended to provide health insurance for uninsured children who were ineligible for Medicaid. The program became one of the prototypes for SCHIP. This study was designed to measure the association between CHPlus and access to care, utilization of care, quality of care, and health care costs to understand the potential impact of one type of prototype SCHIP program. Methods. The study took place in the 6-county region of upstate New York around and including the city of Rochester. A before-and-during design was used to compare children's health care for the year before they enrolled in CHPlus versus the first year during enrollment in CHPlus. The study included 1828 children (ages 0–6.99 years at enrollment) who enrolled between November 1, 1991 and August 1, 1993. A substudy involved 187 children 2 to 12.99 years old who had asthma. Data collection involved: 1) interviews of parents to obtain information about demographics, sources of health care, experience and satisfaction with CHPlus, and perceived impact of CHPlus; 2) medical chart reviews at all primary care offices, emergency departments, and health department clinics in the 6-county region to measure utilization of health services; 3) claims analysis to assess costs of care during CHPlus and to impute costs before CHPlus; and 4) analyses of existing datasets including the Current Population Survey, National Health Interview Survey, and statewide hospitalization datasets to anchor the study in relation to the statewide CHPlus population and to assess secular trends in child health care. Logistic regression and Poisson regression were used to compare the means of dependent measures with and without CHPlus coverage, while controlling for age, prior insurance type, and gap in insurance coverage before CHPlus. Results. Enrollment: Only one third of CHPlus-eligible children throughout New York State had enrolled in the program by 1993. Lower enrollment rates occurred among Hispanic and black children than among white children, and among children from lowest income levels. Profile of CHPlus Enrollees: Most enrollees were either previously uninsured, had Medicaid but were no longer eligible, or had parents who either lost a job and related private insurance coverage or could no longer afford commercial or private insurance. Most families heard about CHPlus from a friend, physician, or insurer. Television, radio, and newspaper advertisements were not major sources of information. Nearly all families had at least 1 employed parent. Two thirds of the children resided in 2-parent households. Parents reported that most children were in excellent or good health and only a few were in poor health. The enrolled population was thus a relatively low-risk, generally healthy group of children in low-income, working families. Access and Utilization of Health Care: Utilization of primary care increased dramatically after enrollment in CHPlus, compared with before CHPlus. Visits to primary care medical homes for preventive, acute, and chronic care increased markedly. Visits to medical homes also increased for children with asthma. There was, however, no significant association between enrollment in CHPlus and changes in utilization of emergency departments, specialty services, or inpatient care. Quality of Care: CHPlus was associated with improvements in many measures involving quality of primary care, including preventive visits, immunization rates, use of the medical home for health care, compliance with preventive guidelines, and parent-reported health status of the child. For children with asthma, CHPlus was associated with improvements in several indicators of quality of care such as asthma tune-up visits, parental perception of asthma severity, and parent-reported quality of asthma care. Health Care Costs: Enrollment in CHPlus was associated with modest additional health care expenditures in the short term—$71.85 per child per year—primarily for preventive and acute care services delivered in primary care settings. Conclusions. Overall, children benefited substantially from enrollment in CHPlus. For a modest short-term cost, children experienced improved access to primary care, which translated into improved utilization of primary care and use of medical homes. Children also received higher quality of health care, and parents perceived these improvements to be very important. Nevertheless, CHPlus was not associated with ideal quality of care, as evidenced by suboptimal immunization rates and receipt of preventive or asthma care even during CHPlus coverage. Thus, interventions beyond health insurance are needed to achieve optimal quality of health care. This study implemented methods to evaluate the association between enrollment in a health insurance program and children's health care. These methods may be useful for additional evaluations of SCHIP. Implications: Based on this study of the CHPlus experience, it appears that millions of uninsured children in the United States will benefit substantially from SCHIP programs.
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Symons, Martyn, Amy Finlay-Jones, Jennifer Meehan, Natalie Raymond, and Rochelle Watkins. "Nurturing families: One year pilot outcomes for a modified Parent Child Assistance Program in Australia." PLOS Global Public Health 2, no. 8 (August 10, 2022): e0000580. http://dx.doi.org/10.1371/journal.pgph.0000580.
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Alcohol and Other Drug (AOD) exposure during pregnancy is linked to serious adverse child outcomes, including Fetal Alcohol Spectrum Disorder (FASD). The Parent-Child Assistance Program (PCAP) supports women with problematic AOD use, who are pregnant or have young children, and are not effectively engaging with services. PCAP has been shown to reduce alcohol exposed pregnancies, promote AOD abstinence, increase employment and family planning and improve child outcomes. This manuscript reports the first pilot evaluation of the PCAP program delivered in Australia. A pre-post-intervention repeated measures design was used. Eleven women receiving PCAP from a not-for-profit organisation were invited to take part in the study, with eight providing complete pre-post data. Home visitation case management was provided by trained and experienced case-managers. Clients were assisted to engage with existing services effectively to meet their own goals via a combination of relational theory, motivational interviewing and harm reduction concepts. The PCAP Modified Addiction Severity Index 5th Edition was adapted for use in Australia and was used to measure domains of addiction severity related problems as the primary outcome. Secondary outcomes included client satisfaction and program fidelity. There were significant changes in composite addiction severity scores from baseline to one year. 80% of participants had periods of abstinence of longer than four months. All clients had better connection to services, no subsequent AOD exposed pregnancies, and were highly satisfied with the program. Four had children returned to their care. Implementation was similar to the original PCAP program with major differences including case-managers relying on training manuals only without undertaking in-person training; being more experienced; providing more direct AOD counselling; and having less supervision. The findings will inform future program delivery and methodology for a larger longitudinal study assessing outcomes at program exit.
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Alshukairy, Haneen, Bayan Alsahwan, Massoma Alkhabbaz, Maryam Alkhwajah, Zainab Bumajdad, and Zahra Alradwan. "The Extent of Parents' Acceptance with Regard to Usage of General Anaesthesia for Their Children during Dental Procedure in Riyadh City." Journal of Evolution of Medical and Dental Sciences 9, no. 44 (November 2, 2020): 3289–93. http://dx.doi.org/10.14260/jemds/2020/723.
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BACKGROUND Investigators have begun to assess the parental acceptance on General Anaesthesia (GA) in pediatric dentistry. Patient satisfaction and knowledge has an essential role in determining the utilization of the healthcare services. Physiologic and functional outcomes can affect completion of the treatment process that is one of the Factors that influence parental decision for seeking care. METHODS In this survey, a structured self-administered and close ended questionnaire, was used to assess parents’ acceptance for dental treatments under general anaesthesia for their child. Parents whose children were going to undergo dental treatments in Riyadh Elm University, were approached with this questionnaire. All parents fulfilling inclusion criteria were explained about the purpose of the study and a total of 452 parents provided informed consent during the aforementioned period was included in the survey. RESULTS A total of 452 parents of the children participated in the study. The educational level of the parents was found to be significantly associated with the effectiveness of the comprehensive dental care for their child under GA. Child age showed significant association with the parental refusal of dental treatment under GA. Educational level of the parents and residence were found to be significantly associated with the perception that the dental treatment under GA is indicated for a specific class of patients. (P < 0.05) CONCLUSIONS Education level of parent’s have important role in knowlage and awareness to treat their children under GA. Regular dental check up is important. Educating parents about oral health and diseases is important to increase the awareness about prevention rather than intervention. KEY WORDS Dentistry, General Anaesthesia, Paediatric Dentistry, Parent Acceptance
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Bergman, David A. "Thriving in the 21st Century: Outcome Assessment, Practice Parameters, and Accountability." Pediatrics 96, no. 4 (October 1, 1995): 831–35. http://dx.doi.org/10.1542/peds.96.4.831.
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The past two decades have brought about major health care changes that have been driven by an ever-increasing cost of health care, practice variability, and medical malpractice litigation. These changes pose a challenge to pediatricians to contain costs, to reduce inappropriate use of health care services, and to demonstrate improved health care outcomes. To meet this challenge, a new "clinical tool kit" is required, one that will allow the pediatrician to analyze current practices and to document effective interventions. Two of the major tools in this kit are practice guidelines and outcomes assessment instruments. Practice guidelines are optimal care specifications that provide an analytic framework for defining high-quality care and measuring health care outcomes. Ideally, these guidelines should be developed from scientific evidence. In practice, however, scientific evidence to support the majority of recommendations made in guidelines is insufficient. Consequently, these recommendations are instead developed by expert consensus. Measurement of health outcomes includes clinical outcomes, patient satisfaction, cost and use, and quality of life. Health care organizations have become very sophisticated in measuring cost and use, but considerably less work has been done in the patient-centered areas of satisfaction and quality of life. This is particularly true for children, because measures are dependent on the viewpoint chosen (parent, child, or teacher), the age of the child, and the adjustment for severity of illness. Analyzing practice patterns and improving health outcomes will not be easy tasks to accomplish. For the pediatrician to use these tools in an efficient and effective manner, a new research agenda and new skills will be required.
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Koren, Paul E., Robert I. Paulson, Ronald F. Kinney, Diane K. Yatchmenoff, Lynwood J. Gordon, and Neal Dechillo. "Service Coordination in Children's Mental Health: An Empirical Study from the Caregiver's Perspective." Journal of Emotional and Behavioral Disorders 5, no. 3 (September 1997): 162–72. http://dx.doi.org/10.1177/106342669700500304.
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Service coordination from the perspective of parents and other caregivers whose children have serious emotional disabilities was examined in this study. Service coordination was assessed with a self-report instrument administered to 266 caregivers. Analyses focused on the relationship of service coordination to child and family characteristics, service system complexity, family participation, overall satisfaction with services, and comprehensiveness of needs met. Although complexity of services was not related to service coordination, the severity of children's problems was inversely related and family participation was positively related to service coordination. In addition, service coordination significantly predicted satisfaction with services and comprehensiveness. The findings illustrate the utility of including the family perspective in the assessment of systems of care.
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Cappelli, Mario, Paula Cloutier, Amanda S. Newton, Eleanor Fitzpatrick, Samina Ali, Kathryn A. Dong, Clare Gray, et al. "Evaluating mental health service use during and after emergency department visits in a multisite cohort of Canadian children and youth." CJEM 21, no. 1 (December 4, 2017): 75–86. http://dx.doi.org/10.1017/cem.2017.416.
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AbstractObjectivesThe goal of this study was to examine the mental health needs of children and youth who present to the emergency department (ED) for mental health care and to describe the type of, and satisfaction with, follow-up mental health services accessed.MethodsA 6-month to 1.5-year prospective cohort study was conducted in three Canadian pediatric EDs and one general ED, with a 1-month follow-up post-ED discharge. Measures included 1) clinician rating of mental health needs, 2) patient and caregiver self-reports of follow-up services, and 3) interviews regarding follow-up satisfaction. Data analysis included descriptive statistics and the Fisher’s exact test to compare sites.ResultsThe cohort consisted of 373 children and youth (61.1% female; mean age 15.1 years, 1.5 standard deviation). The main reason for ED presentations was a mental health crisis. The three most frequent areas of need requiring action were mood (43.8%), suicide risk (37.4%), and parent-child relational problems (34.6%). During the ED visit, 21.6% of patients received medical clearance, 40.9% received a psychiatric consult, and 19.4% were admitted to inpatient psychiatric care. At the 1-month post-ED visit, 84.3% of patients/caregivers received mental health follow-up. Ratings of service recommendations were generally positive, as 60.9% of patients obtained the recommended follow-up care and 13.9% were wait-listed.ConclusionsChildren and youth and their families presenting to the ED with mental health needs had substantial clinical morbidity, were connected with services, were satisfied with their ED visit, and accessed follow-up care within 1-month with some variability.
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Campbell, Teresa, Ching-Yi (Jenny) Chen, Harpreet Chhina, Rajpreet Chahal, Anthony Cooper, and Alison M. Elliott. "Support, information, and integration of genetics for children with congenital lower limb deficiencies in British Columbia, Canada." Paediatrics & Child Health 24, no. 6 (February 12, 2019): 395–401. http://dx.doi.org/10.1093/pch/pxz001.
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Abstract Objectives Children and families affected by congenital limb deficiencies (CLD) require a unique level of emotional support from diagnosis through to adolescence. The following study aims to collect data on Canadian paediatric patients affected by a CLD followed at BC Children’s Hospital (BCCH), Department of Orthopaedics. Methods Parents of children with a CLD were asked to complete a written questionnaire examining their experiences. Qualitative and quantitative data were collected concerning parent satisfaction with patient referrals, emotional support, and knowledge of their child’s diagnosis. Results Twenty-five completed questionnaires were returned. Fifty per cent of the parents reported they were either very satisfied, or satisfied, with the emotional support provided by health care providers (HCPs). Twenty-five per cent of the parents were unsatisfied with the emotional support received by HCPs. Forty-eight per cent of the parents could not recall the specific name of their child’s diagnosis; 20% of the parents reported their child did not have diagnosis. All the patients in our study had received a clinical diagnosis. Twenty-eight per cent of the parents in this study were also seen in medical genetics. Conclusions Families require additional resources for emotional support, peer support, and referrals to support organizations. Gaps in parent knowledge regarding their child’s CLD suggest the need for formalized communication strategies for HCPs. Furthermore, patients with CLDs and their families may benefit from improved communication between orthopaedic and medical genetic services at the time of diagnosis. Integration of genetic counsellors may improve emotional supports and education for families with regards to testing and reproductive planning.
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SIAJ, Rawan Weal. "IMPROVING SERVICES FOR CHILDREN WITH SPECIAL NEEDS WHO BENEFIT FROM A CHILD CARE CENTER IN EAST JERUSALEM: CASE STUDY." RIMAK International Journal of Humanities and Social Sciences 03, no. 07 (September 1, 2021): 237–46. http://dx.doi.org/10.47832/2717-8293.7-3.21.
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The aim of the study was to identify the satisfaction of parents with the reality of the rehabilitation services and programs provided by the Children's Care Center in Jerusalem for their children with special needs, and the problem of the study was identified by the main question of the study: How can I contribute to improving the reality of the services provided to children benefiting from the services of the Child Welfare Center from the point of view of mothers? To achieve these objectives, the procedural approach has been used. To achieve the objectives of the study, the study tools were identified by similar interviews organized, so the researcher conducted face-to-face interviews with a sample of seventeen mothers whose children benefited from the center's services, who in turn volunteered to participate in the current study. The results indicated that the satisfaction of these mothers, whose children benefited from the reality of rehabilitation centre services, was relatively acceptable, as they felt that there were weaknesses and deficiencies in the rehabilitation services provided to their children, as these weaknesses were reflected in three concepts: a lack of specialized competencies in the skills of dealing with children with special needs, high rehabilitation costs for children with special needs, and a lack of medical equipment and services for children with special needs. The results also indicated that the needs of these children based on the recommendations of their mothers were reflected in five basic aspects: the provision of rehabilitation services by the foundation free of charge, the need to provide escorts for their children to be integrated into public education, the need to provide educational and educational games for children and other requirements of child support devices, the need to hold training courses to raise community awareness on how to deal and accept children, and finally the need to hold training courses for parents on how to deal and accept their child in special need.
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Alvi, Aaqib Shahzad, Asif Naveed Ranjha, and Ibad Ullah Sajid. "Institutionalized Care and Child Wellbeing: A Study of Residents of Child Welfare Institutions of District Sargodha." Pakistan Journal of Applied Social Sciences 11, no. 2 (September 8, 2020): 1–20. http://dx.doi.org/10.46568/pjass.v11i2.504.
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This research has focussed on child welfare services and wellbeing among residents of residential child care centers. A well designed interview schedule and a wellbeing scale were used as instruments. The purposive sampling technique was used from the target population and 115 respondents were taken as sample size. Analysis of the data was made on the basis of descriptive analysis and Cross- tabulation. Results reveal that two third of respondents were male. It has also found that majority of respondents reported positively regarding staff behavior, living arrangements, nutrition status, arrangements of education and health condition. Moreover, almost half of the children have moderate and one forth estimated high level of wellbeing. A plethora of children desired to live in these institutions because they fulfil their basic needs. Majority of residents of Kashana, Anjumane-e-Khaliqia were belonged to rural areas and SOS Village residents were residents of urban community. Most of Kashana residents had both parents alive whereas in other child care centers majority were orphans. No significant variation was observed regarding levels of satisfaction in these three institutions. Hence, these institutions play a vital role in upbringing, child welfare services and wellbeing of orphans and vulnerable.
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Brooks, Teresa, Jennifer Brown, and Elaine Woolley. "CHILDREN'S WARFARIN CLINIC-AN AUDIT OF THE NEW PHARMACIST-LED TELEPHONE SERVICE BASED ON A UNIQUE COMPUTERISED SYSTEM COMPARED TO THE WARD BASED PAPER SYSTEM." Archives of Disease in Childhood 101, no. 9 (August 17, 2016): e2.38-e2. http://dx.doi.org/10.1136/archdischild-2016-311535.43.
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AimsTo audit the new pharmacist-led telephone service for warfarin dosing and monitoring of INR, and compare it to the previous system. The previous system was based on the paediatric cardiology ward, dosing by junior medical staff to dose and documented on a paper system. Also to audit the parent satisfaction of the new system.MethodsSearch the computerised system to reveal 73 patients on warfarin with a total of 1547 INRs, and looked for any complications or out of range results. This to be compared to a previous audit of the original system of 44 patients on warfarin with a total of 1289 INRs.For parent/carer satisfaction, a questionnaire was sent to parents/carers of all patients who were under the care of the pharmacist-led children's warfarin clinic.ResultsThe pharmacist-led children's warfarin service was fully compliant for NPSA safety standards for warfarin dosing. There was no significant difference in the safety indicators from the original service and the pharmacist-led service.11 patients (25%) were lost to follow up from the original service, compared to none in the pharmacist-led service. No patients from either service had an inappropriate target INR and every patient had been given the correct information. 38 out of 53 (72%) parents/carers returned the satisfaction survey. 28 (78%) reported that their overall experience of the clinic was excellent and the rest found it satisfactory.DiscussionChanging to the pharmacist-led service has meant that it is now compliant with NPSA standards and the safety indicators are comparable to the original service. The service has generally been very well received, with all parents/carers finding the service at least satisfactory and 78% found it excellent. The pharmacist-led service is unique, as it uses a computerised system for documentation, with the aim to produce a paediatric dosing algorithm.
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Fuengfoo, Adidsuda, Kim Sakulnum, and Sumitra Owjinda. "Effectiveness of 36 hospital learning centers in Thailand: continuation of child patient education, parent attitudes toward child’s illness and service satisfaction." F1000Research 9 (April 13, 2022): 1446. http://dx.doi.org/10.12688/f1000research.26599.2.
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Background: This study aimed to determine the effectiveness of 36 hospital learning centers for the continued education of sick children using electronic distance learning television (eDLTV), parents’ attitudes toward their child’s illnesses and education, and service satisfaction of the centers. Methods: The sample included 4,430 children aged 4-18 years old with common illnesses, chronic illnesses and developmental disorders, as well as 4,430 parents who had taken care of the child for at least 6 months. The methods included attitude surveys, which were analyzed using chi-square tests and t-tests. Results: The factors associated with education continuation of the children were illness types (parents were less worried about children with common illness and more concerned about education of children with chronic diseases and children with disabilities), distance from home to school, transportation type, parents’ education level, marital status, and family income. About 99.8% of patients with common illnesses continued their education, followed by 99.3% of disabled children, and 95.9% of chronic patients. Satisfaction score towards the services at the learning centers were high (mean scores: 4.28 and 4.43 respectively, out of 5 = strongly satisfied). Conclusion: After completing an education program through eDLTV at a center, a total of 97.7% of children continued their education and were highly satisfied with the service at the center. Parents had positive attitudes towards their child’s illnesses and education.
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Fuengfoo, Adidsuda, Kim Sakulnum, and Sumitra Owjinda. "Effectiveness of 36 hospital learning centers in Thailand: continuation of child patient education, parent attitudes toward child’s illness and service satisfaction." F1000Research 9 (December 11, 2020): 1446. http://dx.doi.org/10.12688/f1000research.26599.1.
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Background: This study aimed to determine the effectiveness of 36 hospital learning centers for the continued education of sick children using electronic distance learning television (eDLTV), parents’ attitudes toward their child’s illnesses and education, and service satisfaction of the centers. Methods: The sample included 4,430 children aged 4-18 years old with common illnesses, chronic illnesses and developmental disorders, as well as 4,430 parents who had taken care of the child for at least 6 months. The methods included attitude surveys, which were analyzed using chi-square tests and t-tests. Results: The factors associated with education continuation of the children were illness types (parents were less worried about children with common illness and more concerned about education of children with chronic diseases and children with disabilities), distance from home to school, transportation type, parents’ education level, marital status, and family income. About 99.8% of patients with common illnesses continued their education, followed by 99.3% of disabled children, and 95.9% of chronic patients. Satisfaction score towards the services at the learning centers were high (mean scores: 4.28 and 4.43 respectively, out of 5 = strongly satisfied). Conclusion: After completing an education program through eDLTV at a center, a total of 97.7% of children continued their education and were highly satisfied with the service at the center. Parents had positive attitudes towards their child’s illnesses and education.
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Timothy, Andrea, David Coetzee, Christopher Morgan, Margaret Kelaher, Ross Stewart Bailie, and Margie Danchin. "Using an adaptive, codesign approach to strengthen clinic-level immunisation services in Khayelitsha, Western Cape Province, South Africa." BMJ Global Health 6, no. 3 (March 2021): e004004. http://dx.doi.org/10.1136/bmjgh-2020-004004.
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IntroductionOptimal immunisation programme service delivery and childhood vaccine coverage remains an ongoing challenge in South Africa. Previous health systems approaches have made recommendations on how to address identified barriers but detailed local implementation studies are lacking. This study aimed to improve immunisation service delivery in children under 24 months in Khayelitsha, Western Cape Province using an adaptive, co-design approach to assess and improve childhood immunisation service delivery at the clinic level.MethodsA rapid, adaptive approach to identification of barriers and assessment of current childhood immunisation service delivery was developed with three clinics in Khayelitsha, Western Cape Province. This informed a short co-design process with key stakeholders and service providers to develop local interventions targeted at high priority barriers. Interventions were implemented for 4–6 months and evaluated using theory-based evaluation tools. Clinic service delivery, satisfaction and changes to clinic processes and parent engagement and knowledge were measured.ResultsInterventions developed included weekly community immunisation education radio sessions, daily clinic health talks, immunisation education and promotion materials and service provider and parent quality checklists. Evaluation post-intervention showed improvement in parents’/guardians’ knowledge about immunisation, parent engagement and service provider commitment to improvement in service quality. Radio sessions and immunisation education and communication materials were deemed most useful by parents and providers.ConclusionImmunisation service delivery can be strengthened using an adaptive, clinic-led assessment process which can effectively identify barriers, inform co-designed interventions and be evaluated over a short period. This approach provides a framework to guide future local participatory action research to more effectively improve childhood immunisation service delivery and other child health services in under-resourced settings.
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St.Onge, J., E. Karreman, M. McCarron, L. Harasen, and C. Ames. "P076: Assessment of a newly integrated and standardized approach for pediatric concussions aimed to improve the concussion recovery process." CJEM 22, S1 (May 2020): S91—S92. http://dx.doi.org/10.1017/cem.2020.282.
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Introduction: Children with concussions presenting to emergency departments often receive very different recommendations for how to recover. In addition, there are no instructions for teachers to how children should return to learn and play after a concussion. Therefore, some children take too long to return to learn and play at school while others return too soon, thereby risking long-term problems because their brain injury is not fully healed. The purpose of this project is to determine the impact of a new integrated, standardized approach aimed to help a concussed child recover faster and whether the recovery experience for all involved has improved. Methods: Structured interviews were conducted with 11 parents of children treated for concussion at the Emergency Department of Pasqua Hospital in Regina, SK, four of whom received care after a change in practice whereby parents were provided with a return-to-school protocol form prior to discharge. Data were analyzed using an inductive qualitative content analysis approach using NVivo 12 software. Results: Three main categories were noted in the data: Parental response to the child's concussion, satisfaction with health services, and the communication amongst parents, physicians, and teachers. It was with regard to the last theme in particular that the impact of the return to school protocol was noted, helping to at least indirectly address the issue of the parent as the “middleman” in the communication triad. Most parents whose children received care prior to the introduction of the protocol suggested that providing written information at discharge to guide parents through the concussion recovery process would be helpful. Conclusion: Our initial results show a positive impact in regards to the process of children returning to learn and play after a concussion. Specifically, the increased communication between physician, teacher, and parent seems to benefit and improve the child's recovery process.
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Kaiser, Kim, Michele E. Villalobos, Jill Locke, Iheoma U. Iruka, Camille Proctor, and Brian Boyd. "A culturally grounded autism parent training program with Black parents." Autism 26, no. 3 (March 2, 2022): 716–26. http://dx.doi.org/10.1177/13623613211073373.
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Parent training (i.e. group-based supports and psychoeducation aimed at parent as primary agent of change) in Autism Spectrum Disorders (autism) is well-documented as an Evidence-Based Intervention designed to increase advocacy, knowledge, and empowerment. While research on Parent Training acknowledges the cultural limitations, the field lacks culturally grounded models. Furthermore, barriers in diagnosis, service acquisition, and inclusion of under-represented populations including Black families have been established; however, research programs have traditionally failed to include these families. This study aims to provide a first toward addressing the lack of inclusion. We describe the practice-based implementation of a culturally concordant Parent Training program (Spectrum of Care) developed by a community organization (the Color of Autism) as well as feedback from parents after the implementation process. The findings indicate that culturally grounded strategies could promote engagement and empowerment of Black families. There, however, is still a need for research that attends to parental mistrust and examines culturally grounded strategies more closely. Lay abstract Parent training programs have been well-studied in Autism Spectrum Disorders and shown to increase a parent’s feeling of empowerment, advocacy skills, and treatment enrollment for their child. The majority of parent training interventions have been developed without considering the unique needs of under-represented communities, such as the Black community. Black children with autism are not only misdiagnosed or not diagnosed at all, but are not accessing services equally compared to their White peers. There is an urgent need for culturally adapted interventions in order to decrease the disparity gap. The Color of Autism Foundation developed and ran a parent training program for Black parents of children with autism. The program was grounded in two key features: (1) creating a circle of support for parents to connect and heal from ongoing and historical racial trauma and (2) using parents of Black children with autism as the main facilitators. We believe this increased parent’s ability to engage in the educational aspects of the training. Overall, parents reported high levels of satisfaction with the training were highly engaged (attended an average of five of six sessions) and reported high levels of empowerment. Parents also reported continued mistrust in the medical and research community and a need for more Black providers. Further work should examine the relationship of the parent and provider in autism treatment and study the impact of circles of healing for Black families.
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Fisenko, Andrey P., Rimma N. Terletskaya, Irina V. Vinyarskaya, Elena V. Antonova, Vladislav V. Chernikov, Ekkaterina I. Alexeeva, Elena N. Basargina, et al. "Satisfaction of parents (legal representatives) with the quality of medical care provided to their disabled children." Russian Pediatric Journal 24, no. 2 (May 14, 2021): 106–11. http://dx.doi.org/10.46563/1560-9561-2021-24-2-106-111.
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The aim is to identify parents’ (legal representatives’) satisfaction with the quality of medical care provided to their disabled children to improve this type of service further. Materials and methods. A sociological survey was conducted of 506 legal representatives of minors (aged from birth to 17 years) with the status of a disabled child. The study design is single-center, non-randomized, uncontrolled. Results. An analysis of the living conditions of a disabled child in the family, the parents’ assessment of his health status, the problems arising in the registration of disability, in the provision of medical and rehabilitation assistance, and issues of medical and social support made it possible to determine the position of this part of the child population in current legal and medical and social conditions. The main problems were the collection of a large number of documents when registering a disability, a long wait for the day of examination, the remoteness of the medical and social examination bureau, the lack of specialist doctors, problems with obtaining subsidized drugs, the lack of consideration of the individual needs of the child when conducting unique rehabilitation programs, the need to apply at the same time to various organizations and departments, violation of rights in the provision of medical services to a disabled child. Conclusion. The obtained information is very significant for further improving the provision of medical and social assistance to disabled children and children with disabilities. The main task today is to develop mechanisms for implementing the declared rights and freedoms of persons with disabilities, the obligations assumed by the State concerning them.
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Vusio, Frane, Andrew Thompson, Max Birchwood, and Latoya Clarke. "Experiences and satisfaction of children, young people and their parents with alternative mental health models to inpatient settings: a systematic review." European Child & Adolescent Psychiatry 29, no. 12 (October 21, 2019): 1621–33. http://dx.doi.org/10.1007/s00787-019-01420-7.
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Abstract Community-based mental health services for children and young people (CYP) can offer alternatives to inpatient settings and treat CYP in less restrictive environments. However, there has been limited implementation of such alternative models, and their efficacy is still inconclusive. Notably, little is known of the experiences of CYP and their parents with these alternative models and their level of satisfaction with the care provided. Therefore, the main aim of this review was to understand those experiences of the accessibility of alternative models to inpatient care, as well as overall CYP/parental satisfaction. A searching strategy of peer-reviewed articles was conducted from January 1990 to December 2018, with updated searches conducted in June 2019. The initial search resulted in 495 articles, of which 19 were included in this review. A narrative synthesis grouped the studies according to emerging themes: alternative models, tele-psychiatry and interventions applied to crisis, and experiences and satisfaction with crisis provision. The identified articles highlighted increased satisfaction in CYP with alternative models in comparison with care as usual. However, the parental experiential data identified high levels of parental burden and a range of complex emotional reactions associated with engagement with crisis services. Furthermore, we identified a number of interventions, telepsychiatric and mobile solutions that may be effective when applied to urgent and emergency care for CYP experiencing a mental health crisis. Lastly, both parental and CYP experiences highlighted a number of perceived barriers associated with help-seeking from crisis services.
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Kim, Sun Hee, Yeoun Kyoung Hwang, and Chang Seek Lee. "Dual mediating effects of job stress and gratitude on the relationship between organizational incivility and life satisfaction of child-care teachers: a moderated mediation role of grit." Perspectives of Science and Education 56, no. 2 (May 1, 2022): 478–90. http://dx.doi.org/10.32744/pse.2022.2.28.
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Introduction. Child-care teachers who deal with colleagues, young children and parents are under a lot of stress. In addition, incivility at workplace, which are invisible non-social behaviors, further aggravate stress. Research is needed to relieve stress caused by such organizational incivility. This study tried to elucidate the role of grit in effects of job stress and gratitude on the relationship between organizational incivility and life satisfaction of child-care teachers. Study participants and methods. Subjects of this study were 323 teachers who worked at daycare centers located in S, A, and C cities in Korea. there were 97.8% females and 2.2% males. The most common age group was in the 40s (38.8%), followed by the 50s (24.7%) and 30s (19.9%). For analysis, frequency analysis, reliability analysis, and correlation analysis were performed using SPSS 25.0. Moderated mediation effect was analyzed using PROCESS macro 3.5.3. Results. First, there were significant correlations among organizational incivility, job stress, gratitude, grit, and life satisfaction. Gratitude and life satisfaction had the highest correlation (r = 0.495, p < 0.01), and followed by the correlation between job stress and organizational incivility (r = 0.436, p < 0.01). Second, a moderated mediation effect of grit on the path from organizational incivility to life satisfaction via job stress and gratitude was verified. The conditional indirect effect of grit on the relationship of organizational incivility → job stress → gratitude → life satisfaction was all significant when grit was low (-.5266, -.0933 ~ -.0207), average (.0000, -.1156 ~ -.0396), and high (.5266, -.1515 ~ -.0471). Conclusions. Therefore, we found grit’s moderated mediation effect which increases gratitude and life satisfaction of child-care teachers with high incivility and job stress at workplace. These research results are significant in that they provided an alternative for improving the quality of childcare services in a situation where life satisfaction of childcare teachers has a high causal relationship with the quality of childcare services. In addition, since the role of grit was verified in this study result, it will be possible to contribute to improving the life satisfaction of childcare teachers and improving childcare service by utilizing the enhancement of grit.
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Hardy, Steven J., Sarah E. Bills, and Linda J. Herbert. "Mental Health Screening in a Pediatric Sickle Cell Disease Clinic: Acceptability and Impact on Mental Health Discussions, Referrals, and Patient Satisfaction." Blood 134, Supplement_1 (November 13, 2019): 4687. http://dx.doi.org/10.1182/blood-2019-131875.
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Introduction: Mental health (MH) problems are relatively common in children with sickle cell disease (SCD). Psychological factors are known to directly and indirectly affect pain perception, functional impairment, and other patient-reported health outcomes. Therefore, it is essential to consider these domains in order to provide comprehensive, evidence-based care to youth with SCD. However, it can be challenging for hematology providers without substantive training in MH assessment to recognize symptoms and discuss impressions and treatment recommendations with families. We examined the acceptability and outcomes of a MH screening program in a pediatric SCD clinic. Methods: During an initial data collection period ("Phase A"), patients' parents (n = 57) were interviewed after hematology clinic visits, providing details about any MH discussions that occurred during the visit and completing Press Ganey® patient satisfaction questions. During a secondary phase ("Phase B"), patients (ages 8-17) and parents (of children ages 5-17) completed the PROMIS Pediatric Profile-25, which assesses 6 domains (fatigue, anxiety, depression, pain interference, mobility, and peer relationships), via iPad in the clinic waiting room. Raw scores were entered into an electronic form, which calculated T scores and generated tailored MH recommendations for hematologists to review before seeing each patient. Parents (n = 32) completed the same post-visit interviews. Results: At baseline (Phase A), 83% of parents reported that their child's hematologist asked questions about MH during the visit. Across Phases A and B, 97% of parents who reported that their child's hematologist asked about MH reported that they liked that these questions were asked. Of the parents who said MH was not discussed, 27% said that they wished their hematologist would have asked about it. All parents reported that the 25-item PROMIS Pediatric Profile was an appropriate length and that the screening survey was easy to complete on an iPad. Additionally, 100% of parents reported feeling that it was a good idea to ask the screening questions on an iPad prior to the hematology visit. Most parents (94%) agreed or strongly agreed that the survey questions were appropriate for the care of their child. In Phase B, hematologists stated that they referred to the MH screening summary to guide part of their patient visit 90% of the time and they described the screening summary as "Very Useful" 92% of the time. Parent reports of the frequency of MH discussions were not significantly different between Phase A (no screening) and Phase B (screening) (84% to 81%; p = .772). However, when asking hematologists whether specific issues were discussed during the visit, significant increases were observed in the rates of discussions about the impact of pain on daily activity (72% to 94%; χ2(1) = 8.87, p = .004), anxiety (4% to 36%; χ2(1) = 17.08, p < .001), and depression (6% to 30%; χ2(1) = 10.57, p = .001). Hematologists reported a nonsignificant increase in the rate of referral for MH services in Phase B (9% to 14%; p = .548). In regards to patient/parent satisfaction, there was a statistically significant increase in the proportion of "Very Good" ratings on the item asking about satisfaction with the degree to which the physician talked using words the parent could understand (88% to 100%; χ2(1) = 4.27, p = .046), and clinically meaningful but statistically nonsignificant increases on items about satisfaction with the amount of time the physician spent with the patient (88% to 97%; p = .250) and the likelihood of the parent recommending the physician to others (84% to 94%; p = .315). Conclusions: This study demonstrated the acceptability of MH screening in a pediatric SCD clinic. Although hematologists already discussed MH frequently prior to implementing the screening program, increases in discussions about anxiety, depression, and the functional impact of pain were noted after introducing MH screenings. Rates of referrals for MH treatment rose following implementation of the screening program, but this increase was not statistically significant. Hematologists found a brief MH screening summary to be useful and certain aspects of patient/parent satisfaction showed improvement. Pediatric SCD clinics could integrate MH screenings to increase consideration of the role of psychological factors in patients' presentations and positively affect patient/parent satisfaction. Disclosures No relevant conflicts of interest to declare.
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Abdelfattah, Faisal, Ahmad Rababah, Ibrahim Alqaryouti, Zaidan Alsartawi, Dareen Khlaifat, and Abdullah Awamleh. "Exploring Feelings of Worry and Sources of Stress during COVID-19 Pandemic among Parents of Children with Disability: A Sample from Arab Countries." Education Sciences 11, no. 5 (May 4, 2021): 216. http://dx.doi.org/10.3390/educsci11050216.
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The study sought to explore feelings of worry and sources of stress-affected parents of children with disabilities, as well as describing the negative feelings and how resources helped them overcome stress due to the outbreak of the Coronavirus. Furthermore, we sought to assess the level of general satisfaction with the services they have obtained remotely. Methodology: A sample of 623 parents of children with disabilities filled out an electronic self-report questionnaire during the period June 4th to June 20th, 2020. Results: The parents reported a high level of worry regarding the possibility of their child getting infected. Parents continue to worry about losing their child’s care and treatment. Parents who hold a bachelor’s degree feel the sources of stress at a higher level compared to parents with lower than high school education. A proportion of 59% of parents reported not receiving services from special education centers during the pandemic, and 41% of parents were satisfied with the services provided by the center of special education. Parents with a bachelor’s degree or higher were less satisfied with the center’s services. Parents with a higher qualification than secondary school use several sources to overcome the pressure associated with educating a child with a disability. Conclusion: Mental health fears were associated with pandemic restrictions. The study recommends special education centers implement strategies that support parents with special education children.
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Northman, Lisa, Marybeth Morris, Caitlyn Loucas, Sarah Ross, Anna C. Muriel, Dongjing Guo, Wendy B. London, Peter Manley, and Nicole J. Ullrich. "The Effectiveness of a Hospital-Based School Liaison Program: A Comparative Study of Parental Perception of School Supports for Children With Pediatric Cancer and Neurofibromatosis Type 1." Journal of Pediatric Oncology Nursing 35, no. 4 (March 30, 2018): 276–86. http://dx.doi.org/10.1177/1043454218765140.
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Childhood survivors of central nervous system (CNS) cancers (defined as cancers whose diagnosis or treatment affect the CNS) are at increased risk for educational related difficulties, as are children affected by neurofibromatosis type 1. This study evaluated the effectiveness of and satisfaction with a model of psychoeducation, consultation, and advocacy provided by a School Liaison Program (SLP) for families and schools of children with CNS-involved cancers compared with a control group of parents of children with a diagnosis of neurofibromatosis type 1 who did not receive school-based services. Results indicated significant between-group differences in parents’ belief that their child is meeting academic potential, with parents who received SLP services reporting greater satisfaction with their child’s progress, better understanding of their child’s learning needs, and an increased ability to access school supports. The strong, positive impact associated with the consultation, psychoeducation, and parental advocacy training provided by the SLP suggests that a similar model of care would potentially benefit other groups of children whose neurocognitive functioning is compromised by chronic medical conditions.
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Lee-Miller, Cathy A., Renee Connor, Lynnette Acosta, and Cynthia Wetmore. "Initiation of family-centered bedside rounds at Phoenix Children's Hospital Center for Cancer and Blood Disorders." Journal of Clinical Oncology 36, no. 30_suppl (October 20, 2018): 170. http://dx.doi.org/10.1200/jco.2018.36.30_suppl.170.
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170 Background: There has been a national trend towards a family/patient-centered care model in an effort to achieve many goals: earlier discharges, enhanced collaboration and patient safety, and improved satisfaction among medical care teams, patients and families. While most of the services at Phoenix Children’s Hospital (PCH) utilized a family-centered rounding model, the hematology/oncology service used table rounds. In December 2017, the Center for Cancer and Blood Disorders (CCBD) initiated family-centered rounds (FCR) on the inpatient service. Methods: FCR participants include patient, parent(s), bedside nurse, clinical supervisor, residents, fellow, attending, nurse practitioners, pharmacist, dietitian and child life specialist. One unique aspect of our FCR model is using scheduled rounds, whereby each patient is allotted a specific length of time and each family is given a time range within which to expect the team. Patients are scheduled every 10 minutes and if more time is needed, the attending/fellow return later for discussion. Staying on a schedule allows for improved nursing workflow and for consulting teams and interpreters to join rounds for specific patients. Outcome measures include patient, family and employee satisfaction. Results: Patient satisfaction is measured using NRC Real-time electronic survey. Scores have increased from a baseline of 70% (Oct/Nov 2017) to 87.5% (April 2018) after the initiation of FCR. From a qualitative standpoint, families have expressed gratitude for the new rounding model. Staff have expressed increased satisfaction at the efficiency and thoroughness of communication on rounds and the multidisciplinary team allows for real-time collaboration. Conclusions: FCR have led to increases in patient satisfaction both quantitatively and qualitatively. Ongoing initiatives include adding family-centered night rounds and a more extensive evaluation of FCR’s impact on employee satisfaction, patient safety, length of stay and lower overall costs. We are continuously evaluating the structure and efficacy of FCR to achieve the best possible care for our patients.
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Maynard, Linda, Rodney C. G. Franklin, and Jo Wray. "A survey of professionals delivering secondary care regarding their requirements for paediatric cardiac services as provided by specialists." Cardiology in the Young 15, no. 5 (September 16, 2005): 489–92. http://dx.doi.org/10.1017/s1047951105001356.
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The provision of outreach services by paediatric cardiac centres enhances the choice for both parents and professionals. We have conducted a survey to investigate the processes for information and communication at times of interface between specialist and local services for cardiac disease. Based on the responses, we suggest that distance from, and level of contact with, the specialist centre may influence satisfaction and the perceived usefulness of more information. We suggest strategies to increase contact, and make more effective targeting of resources.
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Korpilahti-Leino, Tarja, Terhi Luntamo, Terja Ristkari, Susanna Hinkka-Yli-Salomäki, Laura Pulkki-Råback, Otto Waris, Hanna-Maria Matinolli, et al. "Single-Session, Internet-Based Cognitive Behavioral Therapy to Improve Parenting Skills to Help Children Cope With Anxiety During the COVID-19 Pandemic: Feasibility Study." Journal of Medical Internet Research 24, no. 4 (April 13, 2022): e26438. http://dx.doi.org/10.2196/26438.
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Background The COVID-19 pandemic has had a major impact on families’ daily routines and psychosocial well-being, and technology has played a key role in providing socially distanced health care services. Objective The first objective of this paper was to describe the content and delivery of a single-session, internet-based cognitive behavioral therapy (iCBT) intervention, which has been developed to help parents cope with children’s anxiety and manage daily situations with their children. The second objective was to report user adherence and satisfaction among the first participants who completed the intervention. Methods The Let’s Cope Together intervention has been developed by our research group. It combines evidence-based CBT elements, such as psychoeducation and skills to manage anxiety, with parent training programs that strengthen how parents interact with their child and handle daily situations. A pre-post design was used to examine user satisfaction and the skills the parents learned. Participants were recruited using advertisements, media activity, day care centers, and schools and asked about background characteristics, emotional symptoms, and parenting practices before they underwent the iCBT. After they completed the 7 themes, they were asked what new parenting skills they had learned from the iCBT and how satisfied they were with the program. Results Of the 602 participants who filled in the baseline survey, 196 (32.6%) completed the program’s 7 themes, and 189 (31.4%) completed the postintervention survey. Most (138/189, 73.0%) of the participants who completed the postintervention survey were satisfied with the program and had learned skills that eased both their anxiety (141/189, 74.6%) and their children’s anxiety (157/189, 83.1%). The majority (157/189, 83.1%) reported that they learned how to organize their daily routines better, and just over one-half (100/189, 53.0%) reported that the program improved how they planned each day with their children. Conclusions The single-session iCBT helped parents to face the psychological demands of the COVID-19 pandemic. Future studies should determine how the participation rate and adherence can be optimized in digital, universal interventions. This will help to determine what kinds of programs should be developed, including their content and delivery.