Relevant bibliographies by topics / Older people and people with disability and carers

Academic literature on the topic 'Older people and people with disability and carers'

Author: Grafiati
Published: 10 December 2022
Last updated: 28 January 2023

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Journal articles on the topic "Older people and people with disability and carers"

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Tolson, Debbie, Iain Swan, and Christina Knussen. "Hearing disability: a source of distress for older people and carers." British Journal of Nursing 11, no. 15 (August 8, 2002): 1021–25. http://dx.doi.org/10.12968/bjon.2002.11.15.10529.

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Giraud, Olivier, Anne Petiau, Abdia Touahria-Gaillard, Barbara Rist, and Arnaud Trenta. "Tensions and polarities in the autonomy of family carers in the context of the COVID-19 pandemic in France." International Journal of Care and Caring 6, no. 1 (February 1, 2022): 141–56. http://dx.doi.org/10.1332/239788221x16316514499801.

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This article analyses the impact of the COVID-19 lockdown on ‘monetised’ family carers’ understanding of their own autonomy in a long-term care relation at home. The reduction or suspension of medico-social service deteriorated the situation of family carers of frail older people or people with disability. We develop and apply an analytical grid of 15 interviews of monetised family carers about the reorganisation of care systems and their situation as carers. We identify three types of understandings of autonomy among family carers in the context of the COVID-19 pandemic: preventive autonomy; health protection autonomy; and supported autonomy.
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Gangannagaripalli, J., S. Yaakob, and M. Watson. "MEdication Management in older people with Intellectual Disabilities (MEMID): a scoping review." International Journal of Pharmacy Practice 30, Supplement_1 (April 1, 2022): i44—i45. http://dx.doi.org/10.1093/ijpp/riac019.062.

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Abstract Introduction Globally, around 1 in 100 adults have intellectual disabilities (ID) (synonymous with learning disability in the UK) (1) yet their needs in terms of healthcare in general and medication management in particular, are under-researched. People with ID have more comorbidities compared with those without ID and around one third of older people (≥ 50 years) with ID (OPwID) have two or more chronic conditions, putting them at risk of polypharmacy (use of multiple medicines) (2). Aim To undertake a scoping review to gather evidence on the barriers and facilitators in the medication management of OPwID from a multi-stakeholder (patient, carer and healthcare professional) perspective. Methods Standard scoping review methods were used. Electronic databases (Medline, PsycINFO) were searched from 2011-2021 using a range of search terms. Studies were included if they involved: OPwID without dementia (all types); healthcare professionals or caregivers caring for individuals with ID; problems related to medication use. The review was restricted to studies in the English language. The PRISMA-ScR checklist and reporting standards was used to conduct and report the review. Independent duplicate screening and data extraction was undertaken. The quality of studies was not formally assessed. A narrative synthesis was conducted to summarise the results and included barriers and facilitators associated with medicines management from patients’/carers’ and professionals’ perspectives. Results Eight studies were included, of which seven used qualitative methods. The majority of studies were undertaken in Europe ((the Netherlands (2), Norway (1), Belgium (1), UK (3)) and one was conducted in the US. Patients/carers reported several barriers/facilitators: The most cited barriers to medication management of OPwID from professionals’ perspective included: limited knowledge of, and training about, ID; nonadherence to guideline recommendation; and lack of coordination between different professionals in multidisciplinary teams. Conclusion/Discussion The review was restricted to two databases and the English language due to resource- and time-constraints. All the included studies were conducted in developed countries with different healthcare settings/practice. As such, the findings might not be generalisable to other less/under-developed countries or settings. There is limited empirical evidence regarding the medication management of OPwID, in particular, facilitators to medicines management from professionals’ perspective. OPwID are a highly vulnerable population for whom medications have an important role in managing their multiple morbidities. This review highlights an evidence gap regarding the medication management of these individuals. The results will be used to inform the development of personalised intervention(s) to improve the safe and effective use of medication in this population. References (1) Maulik PK, Mascarenhas MN, Mathers CD, Dua T, Saxena S. Prevalence of intellectual disability: a meta-analysis of population-based studies. Res Dev Disabil. 2011 Mar 1;32(2):419-36. (2) Hermans H, Evenhuis HM. Multimorbidity in older adults with intellectual disabilities. Res Dev Disabil. 2014;35(4):776–83.
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O'Brien, Roisin, Fiona Breen, Caoimhe Gibney, Laura Mackey, Estefanía Guisado-Fernández, Brian Caulfield, Fiona Curran, et al. "77 Behind the Scenes: the Burden Experienced by Informal Carers of People with Dementia." Age and Ageing 48, Supplement_3 (September 2019): iii17—iii65. http://dx.doi.org/10.1093/ageing/afz103.42.

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Abstract Background Informal care is undoubtedly a vital to dementia care in Ireland. To date, little research has been carried out exploring the burden experienced by informal carers of people with mild to moderate dementia. The main aim of this quantitative study is to explore the burden experienced by caregivers, relative to dementia severity. The secondary aim is to identify risk factors which may be contributing to this perceived burden. Methods Fifty-two people with dementia(PwD) and their informal caregivers were recruited by convenience sampling, and data was collected as part of the ‘CHESS’ research trial. Data was collected during baseline assessments between April 2017 and September 2018. Dementia disease severity was measured using the Mini-Mental State Examination(MMSE), the Neuro-Psychiatric Inventory Questionnaire(NPI-Q), and the Disability Assessment for Dementia(DAD) scale. These outcome measures were then compared to levels of caregiver burden, which was measured using the Zarit-Burden Interview(ZBI). These comparisons were completed using Spearman’s correlations. Socio-demographic characteristics of both the carer and PwD were then compared to caregiver burden, using Mann-Whitney and Kruskal-Wallis tests. Results The results of the study substantiate that behavioural disturbances(p=0.000) and increasing disability(p=0.022) of the PwD are associated with higher carer burden. The study also identified potential non-modifiable risk factors for increased carer burden. These include spousal relationship to the PwD(p=0.096), older caregiver age(p=0.208), female carer gender(p=0.083) and higher educational attainment of the caregiver(p=0.035). Some of these differ from factors influencing burden in other international populations. Conclusion This preliminary analysis is the first study of its kind to be carried out in Ireland. It sheds light on potential predictors and risk factors for carer burden and shows need for future research to be carried out in this area. Such research would help to clarify interventions which could minimise the prevalence of the burden experienced by informal caregivers.
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Marston, Hannah, and Julie Samuels. "A Review of Age Friendly Virtual Assistive Technologies and their Effect on Daily Living for Carers and Dependent Adults." Healthcare 7, no. 1 (March 21, 2019): 49. http://dx.doi.org/10.3390/healthcare7010049.

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Many barriers exist in the lives of older adult’s, including health, transport, housing, isolation, disability and access to technology. The appropriate integration of technology within age-friendly communities continues to offer possible solutions to these barriers and challenges. Older adults and disabled people continue to be affected and marginalized due to lack of access to the digital world. Working collaboratively with planners, policy makers and developers, social and living spaces in the future will ensure that residents are equipped to live in an era that continues to be led by, and is dependent upon, access to technology. This review paper uniquely draws together the small volume of literature from the fields of gerontology, gerontechnology, human computer interaction (HCI), and disability. This paper examines the national and international age-friendly frameworks regarding older adults who are carers of dependent people with disabilities.
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Singh, Prabhjot, Rafat Hussain, Adeel Khan, Lyn Irwin, and Roslyn Foskey. "Dementia Care: Intersecting Informal Family Care and Formal Care Systems." Journal of Aging Research 2014 (2014): 1–9. http://dx.doi.org/10.1155/2014/486521.

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Dementia is one of the major causes of disability and dependence amongst older people and previous research has highlighted how the well-being of people with dementia is inherently connected to the quality of their relationships with their informal carers. In turn, these carers can experience significant levels of emotional stress and physical burden from the demands of caring for a family member with dementia, yet their uptake of formal services tends to be lower than in other conditions related to ageing. This paper is based on a qualitative study undertaken in the Australian state of Queensland and explores issues of access to and use of formal services in dementia care from the perspective of the informal family carers. It identifies three critical points at which changes in policy and practice in the formal care system could improve the capability of informal carers to continue to care for their family member with dementia: when symptoms first become apparent and a diagnosis is sought; when the condition of the person with dementia changes resulting in a change to their support needs; and when the burden of informal care being experienced by the carer is so great that some form of transition appears to be immanent in the care arrangement.
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Górska, Sylwia, Kirsty Forsyth, Linda Irvine, Donald Maciver, Susan Prior, Jacqueline Whitehead, Janice Flockhart, Jane Fairnie, and Jenny Reid. "Service-related needs of older people with dementia: perspectives of service users and their unpaid carers." International Psychogeriatrics 25, no. 7 (March 27, 2013): 1107–14. http://dx.doi.org/10.1017/s1041610213000343.

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ABSTRACTBackground: Dementia is a major cause of disability among older people and constitutes one of the greatest challenges currently facing families and health and social care services in the developed world. In response to trends in dementia prevalence and the impact the condition has on peoples’ lives, dementia care has been placed high on the public and political agenda in the United Kingdom. However, despite significant public resources being allocated to combat the impact of the disease, recent evidence indicates that numerous challenges in relation to service provision remain. This study aimed to develop a deeper understanding of the lived experience of people with dementia regarding their service-related needs.Method: The study made use of data gathered through individual semi-structured, narrative interviews conducted with persons with experience of dementia and their unpaid carers.Results: Although participants were generally satisfied with the services they received, a number of unmet needs related to service provision were identified. In terms of diagnostic procedures the findings of this study indicate the need for early diagnosis delivered through a comprehensive assessment package. The participants also highlighted the need for well-coordinated post-diagnostic support, greater continuity of care concerning the personnel involved, and enhanced access to non-pharmacological interventions to support identity and social engagement.Conclusion: This study contributes to a better understanding of service-related needs of people with dementia in relation to diagnostic procedures and post-diagnostic support.
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Gilbert, Claire, Jane Wilcock, Ingela Thuné-Boyle, and Steve Iliffe. "A comparison of service use by people with dementia in two samples a decade apart." Dementia 16, no. 1 (July 27, 2016): 96–107. http://dx.doi.org/10.1177/1471301215581504.

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Investment in improving community-based dementia care is underway in the United Kingdom, but we do not know how well it meets the needs of people with dementia and those who care for them. The aim of this study was to explore the service use and reported unmet needs of people with dementia in two samples recruited a decade apart. We interviewed 122 carers from Central Scotland and London in 2000–2001 and 84 carers from South-East England in 2010–2011 using the same interview schedule. The two samples of carers had similar demographics. The later groups were more likely to be spouses, slightly older, not working, ethnically diverse, have better perceived health and better access to a car. The people with dementia in each sample had similar characteristics and levels of disability. Carers in the later sample reported more met need for activities of daily living, although up to a third were still not getting sufficient help with some activities. Nearly half of both samples reported verbal aggression and nearly a fifth physical aggression, yet most have not received advice on how to manage this. There is a more evident role of the practice nurse ( p = 0.01) and less evident use of community nurses ( p = 0.0005), psychiatric nurses ( p = 0.006) and health visitors ( p = 0.0003) in the more recent sample.
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Brennan, Damien, Rebecca Murphy, Philip McCallion, and Mary McCarron. "024CAREGIVING CAPACITY AND FUTURE CARE PLANNING OF FAMILY CARERS FOR OLDER PEOPLE WITH AN INTELLECTUAL DISABILITY IN IRELAND." Age and Ageing 45, suppl 2 (September 2016): ii1.1—ii12. http://dx.doi.org/10.1093/ageing/afw159.01.

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Bayer, Antony. "Telling older patients and their families what they want to know." Reviews in Clinical Gerontology 13, no. 4 (November 2003): 269–72. http://dx.doi.org/10.1017/s0959259804001145.

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Good communication between health and social care professionals and patients, their families and carers is recognized increasingly as integral to best management. Thus a central principle of the NHS Plan is that all patients should have open access to information about services, treatments and performance and should be treated as partners in their own care. Lack of information and poor communication is a common basis for complaints, and there is little evidence that older patients want any less information than those who are younger Certainly, if elderly people living with long-term illness, frailty or disability are fully informed, they will be better able to make appropriate decisions and actively participate in managing their own condition and their lives. In general, it is for professionals to provide the required information and support, or to direct people to other quality sources of evidence-based information, and not for them to decide whether or what should be disclosed.
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Dissertations / Theses on the topic "Older people and people with disability and carers"

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Magnusson, Lennart. "Designing a responsive support service for family carers of frail older people using information and communication technology /." Göteborg : Acta Universitatis Gothoburgensis, 2005. http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&doc_number=013142543&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA.

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Fleming, Alfred Andrew. "Older Men Working it Out A strong face of ageing and disability." University of Sydney. Behavioural and Community Health Sciences, 2001. http://hdl.handle.net/2123/852.

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This hermeneutical study interprets and describes the phenomena of ageing and living with disability. The lived experiences of 14 older men and the horizon of this researcher developed an understanding of what it is like for men to grow old and, for some, to live with the effects of a major disability. The study is grounded in the philosophical hermeneutics of Gadamer and framed in the context of embodiment, masculinity, and narrative. I conducted multiple in-depth interviews with older men aged from 67 to 83 years of age. Seven of the participants had experienced a stroke and I was able to explore the phenomenon of disability with them. Through thematic and narrative analyses of the textual data interpretations were developed that identified common meanings and understandings of the phenomena of ageing and disability. These themes and narratives reveal that the men�s understandings are at odds with conventional negative views of ageing and disability. These older men are �alive and kicking�, they voice counternarratives to the dominant construction of ageing as decline and weakness, and have succeeded in remaking the lifeworld after stroke. Overall I have come to understand an overarching meaning of older men �working it out� as illustrative of a strong face of ageing and disability. Older men seek out opportunities to participate actively in community life and, despite the challenges of ageing and disability, lead significant and meaningful lives. These findings challenge and extend our limited understandings of men�s experiences of ageing and living with disability. This interpretation offers gendered directions for policy development, clinical practice, and future research.
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Rose, John Laurence. "Stress amongst staff working with people who have a learning disability." Thesis, University of Hertfordshire, 1996. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.309715.

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McIntyre, Anne Elizabeth. "The experience of falling of older people with dementia and their carers." Thesis, Brunel University, 2012. http://bura.brunel.ac.uk/handle/2438/7247.

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Falling by older people is of significant global concern as the population ages, because of subsequent injury, disability, admission to long-term care and mortality. Older people experiencing dementia are twice as likely to fall with more severe consequences. Unsurprisingly, carer-burden increases when a care-recipient falls. Older people are rarely asked about their falls experiences and those with dementia less so. The studies presented in this thesis explore the experiences of falling of older people with dementia and memory problems, and their carers. The studies were informed by contextualism and the primary study used interpretative phenomenological analysis to explore the experiences of nine older people with dementia and their 10 carers, using one-to-one and joint interviews, and three focus groups with nine older people experiencing memory problems and 12 carers from a branch of the Alzheimer’s society. Analysis of the data considered the falls experience itself and the perceived consequences of falls within two higher level themes: ‘Falling as a malevolent force’ as two themes - ‘Going back to the experience’, ‘Reactions, responses and coming to terms with events’, and ‘Falling as the manifestation of dementia’ as two themes - ‘Self, identity and falling’, ‘The caring relationship’. The secondary study elaborated upon primary study data using an inductive interpretative approach unaligned to any tradition. Older people recently diagnosed with dementia and carers from another Alzheimer’s Society branch participated in two focus groups. Participants discussed stimulus cards with quotations from primary study participants. Thematic analysis suggested four major themes: Making sense of falls, The personal and social significance of falling, Falling, self and identity and Struggling to care. The findings demonstrate how falling and dementia are enmeshed and embodied experiences for participants. Spouse-carers’ discussion of their own falls emphasise the need for joint assessment and intervention to reduce carerburden and preserve couplehood.
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Williams, Tanagh. "Caring for older people : insights from trainee clinical psychologists and family carers." Thesis, University of Warwick, 2014. http://wrap.warwick.ac.uk/65049/.

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This thesis focuses on the care of older people, both those with and without dementia, by family caregivers and one group of health professionals (trainee clinical psychologists). This thesis considers and explores a number of factors which are important to those providing care. These factors have been defined specifically as Religion / Spirituality in the literature review, which focuses on family caregivers of people with dementia. However, in the empirical paper those factors important to providing care were not pre-defined by the research team but emerged from the data. It is hoped that, in conjunction, these papers will contribute to understanding the perspectives of those caring for older people. Chapter 1 is a systematic literature review investigating the association between religion/spirituality and the psychological wellbeing/role adjustment among Black and Minority Ethnic (BME) family (informal) dementia caregivers. It focuses on one specific factor ‘religion/spirituality’ in order to understand one aspect of the dementia caregiving experience. Chapter 2 is an empirical study exploring trainee clinical psychologists’ experiences of working with older people, including people with and without dementia. Interpretative phenomenological analysis (IPA) was used to analyse the transcript data from eight interviews with participants. Three superordinate themes and nine subordinate themes emerged following the data analysis. The themes are explored, including implications for research, clinical practice and clinical psychology doctoral training. Chapter 3 is a reflective account, which includes the experience of carrying out the research and the insights it provided. Adopting the theme of ‘story’ allowed a connection to be made between hearing the stories of older people, and hearing the stories of participants in IPA research. The theme of ‘story’ then also allowed further exploration of this topic in books, research and media articles.
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Andersson, Stefan. "Information and Communication Technology - mediated support for working carers of older people." Doctoral thesis, Linnéuniversitetet, Institutionen för hälso- och vårdvetenskap (HV), 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-65220.

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Despite a growing awareness of the importance of support for carers who combine paid work with care of an older relative, so called ‘working carers’, there remains a lack of empirical knowledge about more innovative ways to support this largest group of carers of older people. Information and Communication Technologies (ICTs) are becoming more readily available. As a result, ICTs have made it feasible to offer working carers more targeted forms of support. This thesis aimed to gain an understanding about support for working carers of older people via the use of ICT. An integrative literature review was conducted to explore and evaluate the current evidence base concerning the use of ICT-mediated support for working carers (I). Content analysis of qualitative data was used to describe nursing and support staff’s experiences of using web-based ICTs for information, e-learning and support of working carers (II). Content analysis was also used to describe working carers’ experiences of having access to a web-based family care support network provided by the municipality (III). Descriptive statistical methods were used to analyse survey data which focused on the types of support received and how they were valued by working carers, with a focus on ICT support (IV). Findings highlighted that ICT mediated support provided working carers with the means to manage their caring situation, via the provision of information, e-learning and education, in addition to practical assistance and emotional and/or physical respite from caregiving. In this way, working carers felt empowered in their caring situation by feeling more competent and prepared in their caring role and by strengthening their self-efficacy and positive self-appraisal of their situation. Carers were provided channels to share their frustrations and burdens via forums for emotional and social support between working carers, caring professionals, and other peer carers. This led to working carers feeling less burdened by their caregiving role and it helped promote their wellbeing. Further, carers were helped in some instances to balance work and care. As a result caregiving activities conflicting with work obligations were then lessened. In contrast, when ICT mediated support was neither provided in a timely fashion or in accordance with individual carers’ needs and preferences, then it was perceived by them to be unimportant. Cross-sectional data revealed that take-up of support services was low suggesting that unmet support needs may be inflated by work-care conflicts. For carers with lower digital skills, the additional time needed to learn to use ICTs was a further barrier. Overall, ICT mediated support acted as a complementary form of support for working carers. Measures to overcome dis-empowering aspects of this innovative from of support are needed to avoid working carers’ deprioritizing their own support needs and also to avoid possible digital exclusion from the current information society.
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Abbott, Angela. "Orientations and lifeworlds of carers of older people in Tyne and Wear, UK." Thesis, University of Newcastle Upon Tyne, 2012. http://hdl.handle.net/10443/1766.

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This thesis focuses on the subjectivities and everyday routines of people who provide home-based care to older people at a political juncture which is reorienting social care towards self-directed support. Promoting the uptake of personal cash budgets and encouraging more person-centred provision, personalisation agendas loosely knit with the recognition politics of the disability movement, and connect to the emerging ‘Big Society’ discourse by encouraging more support from family, friends and volunteers. Their discursive combination strengthen and legitimate choice and control agendas that are potentially progressive in many ways, but have less obvious benefit from a carer perspective. This qualitative research draws upon semi-structured interviews and solicited diaries to explore the everyday practices, spaces and emotional investments of paid and unpaid home-based carers in Tyne and Wear, UK. Using feminist and poststructuralist understandings of diverse care economies, and phenomenological concepts of orientation and life-world, I argue that in negotiating the right thing to do, carer orientations in ‘being for others’ traverse competing social expectations, and disrupt and constitute caring spaces, practices and identities. Individualised notions of choice and control may fray and unravel when directed towards carers who de-limit possibilities in their everyday lives in a desire for coherence, predictability and legitimacy. Findings suggest that ‘good enough’ care imaginaries are often co-produced in a context of significant constraint. Yet, in augmenting imagined notions of home and family in everyday caring routines, carer respondents often insist on the necessity of practices which extend beyond utility, reflecting on the life-course to sustain meaningful stories and coherent identities for older people and for themselves.
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Lee, Hyunsook. "Comparative study of carers of older people with dementia in Scotland and Korea." Thesis, University of Edinburgh, 2011. http://hdl.handle.net/1842/9796.

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This study aims to explore Scottish and Korean carers‘ attitudes towards the diagnosis of dementia in their relative, family care, community care and to residential care in Scotland and Korea respectively, also under examination was the origin of different carers‘ attitudes between Scotland and Korea. The dominant argument between previous Western and Eastern comparative studies on attitudes, has been that culture made the difference. In other words, the cultural factor was recognised as a main determinant of attitudes towards a diagnosis of dementia, towards social services at home and residential care in Asian societies, including Korea. This thesis starts with the question: Does culture really explain the phenomenon of Asian people‘s attitudes towards dementia? Indeed the tradition of filial piety has been changing and now seems to be rather weak in modern Asian society. In particular, contemporary Korea is modernised and westernised, as a result, many older people live apart from their adult children and their nuclear families. This study asserts that Confucianism is a much less significant factor than differences in social policy. In other words, this thesis focuses not on Confucianism, but on the impact of institutions on carers‘ attitudes towards dementia. Finally, this thesis explores this argument through the following research question: What are the origins of different carers‘ attitudes between Scotland and Korea? In order to develop this argument, this thesis has carried out interviews with 14 Scottish carers and 28 Korean carers; and adopted a qualitative approach that would yield a rich exploration and deeper understanding of the different attitudes between carers in Scotland and Korea. Based on this data, this thesis examines carers‘ attitudes towards the diagnosis of dementia (chapter 3), family care (chapter 4), community care (chapter 5), and residential care (chapter 6). Each chapter analyses similarities and differences in attitudes in Scotland and Korea from the point of view of culture or the social welfare system. To conclude, these findings explain that the origin of carers‘ attitudes in this study is based on social policy rather than culture. In other words, the Korean carers‘ attitudes and behaviours towards diagnosis and long-term care services are rooted in the residual welfare system rather than Confucianism. Likewise, this study found that Confucianism has a less significant influence than social policy on carers‘ attitudes towards the utilisation of health care, community care and residential care. Unlike previous studies on East Asia, that argue for a cultural explanation, this study of Korean carers demonstrates that the residual welfare system is more persuasive than the cultural approach derived from Confucianism . This study contributes to the comparative study of Scotland and Korea as well as being a qualitative study in Korea. In addition, it will provide a new perspective on attitudes towards studies on East Asia. Moreover, the study will suggest political implications through the exploration of the carers‘ attitudes towards dementia diagnosis, social services at home and residential care. It also can provide lessons on dementia and dementia care from different experiences in Scotland and Korea.
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Sahar, Junaiti. "Supporting family carers in caring for older people in the community in Indonesia." Thesis, Queensland University of Technology, 2002. https://eprints.qut.edu.au/36786/1/36786_Digitised%20Thesis.pdf.

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The purpose of the study: The purpose of this research study was to improve the health status of older people living in the community through implementing a family carers' training program. Background of the study: Many previous studies have reported the improvement of family carers' knowledge in providing better care for older people as well as reducing their burden, anxiety and depression. However, those studies have not addressed clearly the impact of the programs on the health status of older people living in the community. Design of the study: An experimental design with pre and post-tests of intervention and control groups was used in the study. The intervention of the study: The intervention group attended the training program and received a training package consisting of 8 health education booklets and trainees'guide at the beginning of the study. They were also provided with guidance practice and follow-up support following the training program. The control group received usual care and support during the study. However, at the end of the study they were provided with the training package. Population and sample: All older people (60 years and above) living with their family carers in the district of Beiji, Depok Indonesia formed the population for this study. Two villages were randomly selected from the six villages in this district. One village was randomised to become the intervention group and the other became the control group. A sample of 120 older people and their primary carers (120) were selected from of the two villages. Therefore, the total sample consisted of 480 participants made up of 240 family carers and 240 older people. Data collection and instruments: The data were collected within three time points (baseline, 3 and 6 months) by using several tested and widely used instruments. Some additional questions relating to the family carers' training program were also added. All instruments were tested for reliability in Indonesia before being used for the present study. Data analysis: T-test and Chi-square analyses were used to identify baseline differences between the intervention and control groups. ANOVA was used to examine the differences between selected internal or external factors of older people and the health status of older people. Two-way repeated measures ANCOV A was chosen to evaluate the differences within the three time points and between groups and controlled for baseline differences or some potential confounders. Friedman's test was used to test the variances which were not equal and for categorical data. For the dichotomous variables, the Cochran's test was chosen. Results: Overall, the findings over the six-month period for the intervention group showed a significant increase for the knowledge, skills, attitudes, global social support and life satisfaction perceived by family carers when compared to those of the control group. The objective burden was significantly lower in the intervention group than that of the control group. The subjective burden was not significantly different between the groups. However, further analysis using independent pairwise comparisons (Bonferroni) showed the intervention group significantly lower than the control group. Similarly the health status of older people in the intervention group, including physical, mental, global social support, life satisfaction, and blood pressure was significantly increased when compared to those of the control group. In contrast to these findings, the activities of daily living of older people were not significantly different between groups. Conclusions: In conclusion, the Family Carers' Training Program made a positive impact on the health status of older people through increasing the family carers' ability in caring for older people. This program was found to be acceptable by the population and feasible to implement within the Indonesian population.
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Ng, Ka-man Carmen. "An exploration of experiential learning with carers participating in a multi-skills training course on care of the elderly." Hong Kong : University of Hong Kong, 2000. http://sunzi.lib.hku.hk/hkuto/record.jsp?B22331463.

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Books on the topic "Older people and people with disability and carers"

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Hales, Cathy. Carers in Australia: Assisting frail older people and people with a disability. Canberra, A.C.T: AIHW, 2004.

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Disability through the life course. Thousand Oaks, Calif: SAGE, 2012.

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West Birmingham Health Authority. Family and Preventative Services Unit. Handbook for people with a physical disability, and their carers. Birmingham: Family & Preventative Services Unit, 1987.

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Trieschmann, Roberta B. Aging with a disability. New York: Demos Publications, 1987.

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Lucille, Bennett, Hogg James 1940-, and British Institute of Learning Disabilities., eds. Ageing matters: Pathways for older people with a learning disability. : working with older people with a learning disability. Kidderminster: BILD Publications, 1997.

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Aging and disability: Crossing network lines. New York: Springer, 2007.

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Services, U. S. Department of Health and Human. Disability among older people: United States and Canada. Hyattsville, Md: U.S. Department of Health and Human Services, 1995.

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Dawson, Weeks Julie, Forbes William F. 1924-, and National Center for Health Statistics (U.S.), eds. Disability among older people: United States and Canada. Hyattsville, Md: U.S. Dept. of Health and Human Services, Public Health Service, Centers for Disease Control and Prevention, National Center for Health Statistics, 1995.

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Terry, Paul Michael. Counselling the elderly and their carers. Basingstoke, Hampshire: Macmillan, 1997.

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Department, Northamptonshire (England) Social Services. Information for carers of older people: Local services for carers in Kettering and Corby. Northampton: Northamptonshire County Council, 1991.

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Book chapters on the topic "Older people and people with disability and carers"

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Terry, Paul. "Individual Consultations with Carers." In Counselling and Psychotherapy with Older People, 125–38. London: Macmillan Education UK, 2008. http://dx.doi.org/10.1007/978-1-137-06398-4_8.

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Strydom, Andre, and Jennifer Torr. "Mental Health of Older People." In Intellectual Disability Psychiatry, 149–68. Chichester, UK: John Wiley & Sons, Ltd, 2009. http://dx.doi.org/10.1002/9780470682968.ch11.

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Swift, Cameron G. "Disease and disability in older people — prospects for intervention." In Rehabilitation of Older People, 12–26. Boston, MA: Springer US, 1996. http://dx.doi.org/10.1007/978-1-4899-2987-7_2.

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Terry, Paul. "Groups for Very Frail Older People and Their Carers." In Counselling and Psychotherapy with Older People, 92–109. London: Macmillan Education UK, 2008. http://dx.doi.org/10.1007/978-1-137-06398-4_6.

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Jones, Karen, and Susanna Watson. "Eric, Len and Nina: Growing Older with a Learning Disability." In Best Practice with Older People, 46–55. London: Macmillan Education UK, 2013. http://dx.doi.org/10.1007/978-1-137-36846-1_5.

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Kristjansson, Siri Rostoft. "Comorbidity, Disability, and Geriatric Syndromes." In Management of Colorectal Cancers in Older People, 21–27. London: Springer London, 2013. http://dx.doi.org/10.1007/978-0-85729-984-0_3.

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Sixsmith, Andrew. "Modeling the Well-Being of Older People." In The Engineering Handbook of Smart Technology for Aging, Disability, and Independence, 567–84. Hoboken, NJ, USA: John Wiley & Sons, Inc., 2008. http://dx.doi.org/10.1002/9780470379424.ch30.

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Bigby, Christine. "Piecing Together Experiences of Older People with Intellectual Disability." In Researching Later Life and Ageing, 84–103. London: Palgrave Macmillan UK, 2012. http://dx.doi.org/10.1057/9781137271372_6.

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Eastman, Mervyn. "The victims: older people and their carers in a domestic setting." In Old Age Abuse, 23–29. Boston, MA: Springer US, 1994. http://dx.doi.org/10.1007/978-1-4899-3077-4_2.

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Newell, Alan. "User-Sensitive Design for Older and Disabled People." In The Engineering Handbook of Smart Technology for Aging, Disability, and Independence, 785–802. Hoboken, NJ, USA: John Wiley & Sons, Inc., 2008. http://dx.doi.org/10.1002/9780470379424.ch43.

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Conference papers on the topic "Older people and people with disability and carers"

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Karlsen, Kristine, Konstantinos Zachos, Neil Maiden, Sara Jones, Ian Turner, Malcolm Rose, and Kevin Pudney. "Supporting Reflection and Creative Thinking by Carers of Older People with Dementia." In 5th International ICST Conference on Pervasive Computing Technologies for Healthcare. IEEE, 2011. http://dx.doi.org/10.4108/icst.pervasivehealth.2011.246124.

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Kotronia, E., GS Wannamethee, OA Papacosta, PH Whincup, LT Lennon, M. Visser, RJ Weyant, TB Harris, and SE Ramsay. "OP111 Oral health, disability and physical function: results from studies of older people in the UK and USA." In Society for Social Medicine and Population Health and International Epidemiology Association European Congress Annual Scientific Meeting 2019, Hosted by the Society for Social Medicine & Population Health and International Epidemiology Association (IEA), School of Public Health, University College Cork, Cork, Ireland, 4–6 September 2019. BMJ Publishing Group Ltd, 2019. http://dx.doi.org/10.1136/jech-2019-ssmabstracts.100.

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Pui-Yuk King, Alex, and Kin Wai Michael Siu. "Ethnographic Study of Living Alone Elderly with Mild Cognitive Impairment in Hong Kong: A Pilot Study." In 13th International Conference on Applied Human Factors and Ergonomics (AHFE 2022). AHFE International, 2022. http://dx.doi.org/10.54941/ahfe1002048.

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1. IntroductionA report by the United Nations has revealed the number of older adults in the world is projected to reach 1.4 billion by 2030, and this number is expected to increase to 2.1 billion by 2050. This development will place enormous pressure on current healthcare and social protection systems. If life expectancy continues to rise while fertility constantly declines over many years. the ageing of the population will continue to throughout the world. The gigantic numbers of elderly people will place significant pressure on current systems of social protection and global health care. By 2024, it is expected to have nearly 400,000 people over the age of 80 in Hong Kong —a 24.8% increase over the figure recorded in 2014. 2. Problem StatementLike in other Asian cities, the population of Hong Kong exhibits a continuous ageing trend.The change in the population structure will need an improved housing policy and health care system and infrastructure in order to tackle these resulting social problems. The more older adults are living in the city, the greater the numbers of people who are living with dementia. 3. Older Adults Living with Mild Cognitive ImpairmentDementia is characterised by the loss of mental abilities,and by further degeneration over time.This condition is not inevitable, as the hallmark symptoms of cognitive deterioration are not considered to be a normal part of ageing. It is a typical biomedical disease that might appear when the brain is affected by some specific diseases, such as a series of small strokes damage the brain and cause confusion, speech problems and progressive loss of memory and cognition. This gradual decline in cognitive functions causes people to need extra support for daily living. A person who is having slightly problems with planning, reasoning and also remembering may be classified as having mild cognitive impairment (MCI). 4. Universal DesignUD (universal design) is classified as the practice of making things in ways that involve almost no extra cost, but offer attractive yet functional styles that are fulfilling all people, regardless of each individual’s ability or disability. UD addresses the complete span of functionality through making each element and space accessible to its deepest extent by careful planning at all different stages of a project. 5. Participant Observation An interpretive approach is adopted as a research paradigm for understanding the meanings that human beings attach to their experiences. For this study, a centre manager of the well-established Yan Oi Tong Elderly Community Centre recruited three older adults to participate for nine months. These people were living with MCI in a rural district. Prior to this study, these three elders engaged in a participative design workshop that was organised by the same researcher. The workshop had two sessions, and explored the participants’ latent needs concerning home decoration and product design for public housing.Observational visits were conducted with each participant every two weeks for a nine-month period. The participants are referred to as CH, CP and SK, and they were aged between 79 and 85 years old.6. DiscussionTheme 1: Fear of being alone.The participants described their experiences of facing loneliness. Although they felt that their memories were getting worse, they could still express how loneliness was one of the most difficult challenges that they had to face day-by-day. SK said that ‘I want to do my preferred activities,and don’t want to stay at home all the time!’ Theme 2: Recognition of incompetence.The older persons suffering from MCI believed that they were, to varying degrees, incompetent in dealing with day-to-day activities. As CP explained, ‘I have become useless and cannot remember things recently…’ Theme 3: Lack of neighbourhood spirit. For older people living alone in public housing, neighbours become the most reliable people after their families. Older participants reported that they commonly displaced their house keys due to their gradual memory loss. They had to make duplicate front door keys, and gave them to neighbours who they trusted.To deal with such problems, a product design or system could be pre-installed in housing facilities that would enable better communication or connection between neighbours, and allow older residents to become closer to others.7. ConclusionThis ethnographic study has investigated the latent, unfulfilled needs of older persons living with MCI. Building rapport with these older participants was an important step at the beginning of the study.This finding of “Fear of being alone”, “Lack of neighbourhood spirit”also revealed that regular visits by community centre staff and local social workers should be organised to provide older community members and stakeholders with more attention regarding their day-to-day activities and their relations to society as a whole in order to eliminate “Recognition of incompetence”.
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Kyng, Timothy, Ling Li, and Ayse Bilgin. "Risk, uncertainty & decisions about australian retirement village residency for seniors." In Decision Making Based on Data. International Association for Statistical Education, 2019. http://dx.doi.org/10.52041/srap.19305.

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“Retirement Villages” (RVs) are a common form of housing for older people in Australia. RV contracts are very complex. RV residency terminates on death or ill health. At Macquarie we developed a free online RV financial calculator. This is designed to help consumers with understanding the contracts, comparison shopping, and avoiding costly mistakes. It takes account of longevity / health and financial risks. It converts the complex fee structure to a comparison rent payable monthly over the consumers expected healthy lifespan. RVs are much costlier than most consumers expect. The cost varies by gender and increases with age. This tool uses actuarial modelling utilising publicly available data on mortality and disability. The contracts have much in common with insurance policies. This is the first RV calculator available in Australia. The underlying actuarial model is very original and the calculator can handle the vast majority of contract designs.
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Kyng, Timothy, Ling Li, and Ayse Bilgin. "Financial and statistical literacy for retirement housing decisions in Australia." In Teaching Statistics in a Data Rich World. International Association for Statistical Education, 2017. http://dx.doi.org/10.52041/srap.17302.

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Many older people in Australia sell their family home to fund a long term residential arrangement with a “retirement village”. The contracts are complex. Consumers usually lack the capacity to compare various retirement village contracts with each other or with other arrangements. We have designed a methodology for comparing such contracts via a comparison rent and other metrics. We are working towards developing a free online publicly available calculator and relevant educational material to facilitate informed decision making by consumers. Our proposed calculator will utilise publicly available data on mortality and disability to model survival of resident status. It will compute various metrics that measure the costs, benefits and risks of these contracts. These metrics vary with age, gender, and health characteristics. These freely (soon) available resources are intended to educate both consumers and their advisors / families in statistical, health, and financial literacy when they need to make an important decision towards the end of their lives.
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Smagulov, N. K., A. A. Adilbekova, and A. M. Evnevich. "OCCUPATIONAL BURNOUT SYNDROME AS AN INDICATOR OF PROFESSIONAL MALADJUSTMENT OF A UNIVERSITY PROFESSOR." In The 16th «OCCUPATION and HEALTH» Russian National Congress with International Participation (OHRNC-2021). FSBSI “IRIOH”, 2021. http://dx.doi.org/10.31089/978-5-6042929-2-1-2021-1-478-482.

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Abstract. Introduction. University professors’ occupational activity is affected by a large number of stress factors prolonged exposure to which can contribute to the development of burnout syndrome, which is absolutely necessary to prevent. Purpose: assessment of occupational burnout syndrome as an indicator of professional maladjustment of a university professor The objects and research methods. Female professors (68 people) of 3 age categories (up to 30 years old, from 30 to 49 years old, 50 years old and older). Questionnaire, psychophysiological, statistical methods. Results. The analysis of the OBS phases formed in the university professors has shown that the Tension phase has the minimal severity (11.4 ± 0.04%). The Resistance phase is more pronounced (22.9 ± 0.05%). The Depletion phase is second in severity (11.4 ± 0.04%). A post-symptom analysis of the OBS phases formed has shown a predominance in the Resistance phase characterized, firstly, by the "curtailment" of professional activity, due to the reduction of duties requiring emotional costs (P4. Reduction of professional duties); secondly, the uncontrollable influence of mood on professional relations (P1. Inadequate emotional response); thirdly, when a professor feels that both working conditions and professional interpersonal relationships are traumatic (H1. Traumatic experiences). Regarding the age aspect, the burnout effect is not unambiguous. Thus, the formed Resistance phase predominates in the third group (50 years and older); the Resistance phase at the stage of formation (forming) is prevalent in the first age group (up to 30 years old). Conclusion. University professors’ occupational activity causes the development of OBS and can be considered a work-related disease which entails disability i.e., inability of an employee to perform their professional duties in a qualified manner.
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Reports on the topic "Older people and people with disability and carers"

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Kamiya, Yumiko, Catriona Murphy, George Savva, and Virpi Timonen. Profile of Community-Dwelling Older People with Disability and their Caregivers in Ireland. The Irish Longitudinal Study on Ageing, May 2012. http://dx.doi.org/10.38018/tildare.2012-00.

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Boyes, Allison, Jamie Bryant, Alix Hall, and Elise Mansfield. Barriers and enablers for older people at risk of and/or living with cancer to accessing timely cancer screening, diagnosis and treatment. The Sax Institute, July 2022. http://dx.doi.org/10.57022/ieoy3254.

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• Older adults have complex and unique needs that can influence how and when cancer is diagnosed, the types of treatment that are offered, how well treatment is tolerated and treatment outcomes. • This Evidence Check review identified 41 studies that specifically addressed barriers and enablers to cancer screening, diagnosis and treatment among adults aged 65 years and older. • Question 1: The main barriers for older people at risk of and/or living with cancer to access and participate in timely cancer screening relate to lack of knowledge, fear of cancer, negative beliefs about the consequences of cancer, and hygiene concerns in completing testing. The main enablers to participation in timely cancer screening include positive/helpful beliefs about screening, social influences that encourage participation and knowledge. • Question 2: The main barriers for older people at risk of and/or living with cancer to access and/or seek timely cancer diagnosis relate to lack of knowledge of the signs and symptoms of cancer that are distinct from existing conditions and ageing, healthcare accessibility difficulties, perceived inadequate clinical response from healthcare providers, and harmful patient beliefs about risk factors and signs of cancer. The main enablers to accessing and/or seeking a timely cancer diagnosis include knowledge of the signs and symptoms of cancer, and support from family and friends that encourage help-seeking for symptoms. • Question 3: The main barriers for older people at risk of and/or living with cancer in accessing and completing cancer treatment include discrimination against patients in the form of ageism, lack of knowledge, patient concern about the adverse effects of treatment, predominantly on their independence, healthcare accessibility difficulties including travel and financial burden, and patients’ caring responsibilities. The main enablers to accessing and completing cancer treatment are social support from peers in a similar situation, family and friends, the influence of healthcare providers, and involving patients in treatment decision making. • Implications. The development of strategies to address the inequity of cancer outcomes in people aged 65 years and older in NSW should consider: ­ Increasing community members’ and patients’ knowledge and awareness by providing written information and decision support tools from a trusted source ­ Reducing travel and financial burden by widely disseminating information about existing support schemes and expanding remote patient monitoring and telehealth ­ Improving social support by promoting peer support, and building the support capacity of family carers ­ Addressing ageism by supporting patients in decision making, and disseminating education initiatives about geriatric oncology to healthcare providers ­ Providing interdisciplinary geriatric oncology care by including a geriatrician as part of multidisciplinary teams and/or expanding geriatric oncology clinics.
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